Podcasts about stem cell transplant

Medical procedure to replace blood or immune stem cells

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Best podcasts about stem cell transplant

Latest podcast episodes about stem cell transplant

The Nonmicrowaved Truth With C.L. Whiteside
The IVF Story That Left Me Asking: Are We Playing God?

The Nonmicrowaved Truth With C.L. Whiteside

Play Episode Listen Later Jun 23, 2026 21:43


As Christians, we need to stay informed about the rapidly changing world of fertility treatments, genetic testing, and IVF before making decisions or forming opinions. Join C.L. as we explore the powerful story behind the Boozer family, wrestle with difficult questions about life, embryos, technology, and God's will, and seek biblical wisdom for navigating one of the most important ethical conversations of our time.

Marrow Masters
The Transition to Survivorship with Christy Donovan, DNP, RN

Marrow Masters

Play Episode Listen Later May 27, 2026 18:08


In this episode, we talk with Christy Donovan, DNP, RN, a Blood Cancer Coordinator at the the Blood and Marrow Transplant/ Leukemia Program at Northside Hospital Cancer Institute, about what survivorship really looks like after a stem cell transplant. The central message is that survivorship is not a finish line. It is a transition into a new normal. Many patients expect life to return to the way it was before diagnosis or transplant, but recovery usually feels slower, messier, and more emotional than that. Fatigue, side effects, fear, and frustration can last for months, and that does not mean something is wrong. It means recovery is still happening. We also focus on how important it is to set realistic expectations. Christy explains that early struggles do not define long term outcomes. A setback in the first weeks or months after transplant does not mean a patient will not go on to live a full and meaningful life. Recovery takes patience. Small wins matter. Walking to the mailbox, cooking a meal, or getting through a day with a little more energy can be major milestones. Over time, those moments add up. Another major theme is emotional recovery. We talk about the fear of recurrence and the challenge of learning what is normal after treatment versus what should be reported to a doctor. That education helps people feel more confident and less trapped by fear. We also touch on how easy it is to forget that some aches and pains may simply come with getting older, not always with cancer. That perspective can be grounding. Other survivors can be a valuable information resource, too. Support comes up again and again throughout the conversation. Caregivers remain important in survivorship, but their role changes. Friends, peer support, support groups, podcasts, and survivorship communities all help patients feel less isolated. Christy emphasizes the value of honesty and vulnerability, especially in telling people what kind of support is needed on a given day. Some days call for celebration. Some days call for rest. We also talk about the tension between wanting to get back to life and needing to stay safe. Many survivors ask when they can return to work, travel, attend church, or see family. That desire is a good sign. It shows hope. At the same time, it takes guidance from the healthcare team to know when and how to widen that protective bubble. The episode ends on a hopeful note. Christy shares that she does not think of one survivor story. She thinks of many faces. She describes the joy of seeing patients return months later looking stronger, brighter, and more like themselves. That image captures the heart of the episode. Survivorship is hard, but it is also full of possibility, growth, connection, and life after transplant. More: Northside Hospital Cancer Institute Blood & Marrow Transplant Program — https://www.northside.com/services/cancer-institute/cancer-treatment-options/blood-marrow-transplant-program Northside Hospital Cancer Institute Blood Cancer Program — https://www.northside.com/services/cancer-institute/cancer-programs/blood-cancer-program National Bone Marrow Transplant Link (nbmtLINK) — https://www.nbmtlink.org/ Thanks to this season's sponsors, Incyte and Sanofi. (00:00) Introduction (00:40) Meet Christy Donovan (01:42) Survivorship as a transition (03:00) The role of caregivers and support after transplant (03:38) Early struggles vs long term outcomes (05:41) Emotional impact and fear of recurrence (07:02) Learning what is normal and what is not (07:55) Support groups, healing arts, and community (08:44) Being honest with friends about what you need (09:34) Managing energy and celebrating small wins (11:02) Patience, hope, and finding your people (13:15) Common questions in early survivorship (14:27) Expanding the protective bubble (15:20) The many faces of survivorship (17:03) Final encouragement and close National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/Check out our valued nbmtLINK resource books, some for sale, some free as downloadable, https://www.nbmtlink.org/shop/nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.This content is provided for informational purposes only and is not intended to substitute for professional medical advice, diagnosis, or treatment. It is crucial to consult directly with a qualified healthcare professional regarding any medical conditions, treatment options, or other health concerns.The views and opinions expressed by the speakers are their own and do not necessarily reflect the official policy or position of the nbmtLINK. Unless otherwise stated in an official policy, the nbmtLINK does not endorse any specific treatments, products, or services mentioned by the speakers. Reliance on any information provided is solely at your own risk.The Marrow Masters Podcast is produced by JAG Podcast Productions: https://jagpodcastproductions.com/ Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Marrow Masters
The Strain of Worry: Mental Health in Transplant Survivorship

Marrow Masters

Play Episode Listen Later May 27, 2026 40:51


Today, Peggy talks with Daniel Gaylor, LCSW, OSW-C, ACHP-SW, and a social work supervisor at Moffitt Cancer Center, about what happens after patients and caregivers get through the intense treatment period and begin asking, “Now what?” Daniel explains that recovery does not mean life snaps back to normal. Survivorship brings fear, relief, hope, uncertainty, and exhaustion all at once. Those reactions are normal, and they deserve to be named. Daniel explains why post-traumatic stress disorder (PTSD) can show up after transplant. A transplant is not a routine treatment. It can involve long hospital stays, isolation, major physical side effects, and real fears about survival. When patients return for follow up visits, they may be brought back emotionally to those difficult hospital days. This can make survivorship feel complicated, even when the transplant was successful. Another key theme is slowly letting go. Patients may feel afraid to go out, socialize, eat in a restaurant, drive, or return to activities they once enjoyed. Daniel encourages survivors to start small and to be fair to the situation. It is easy to imagine the worst case. But it also helps to keep yourself honest - say out loud what could happen if things go well. The episode also addresses the “strain of worry.” Daniel describes signs of anxiety and depression, including sleep problems, racing thoughts, trouble concentrating, irritability, sadness, appetite changes, and not wanting to do things that usually bring joy. He reminds listeners that difficult days do not mean failure. Survivors should be able to say, “Today is not my best day,” and ask for help. Peggy and Daniel also talk about toxic positivity. While loved ones often mean well, phrases like “you're lucky to be alive” can minimize a survivor's fear or pain. Daniel encourages honest communication. Patients can thank loved ones for their support while also explaining what would help more. Social connection is another major part of healing. Daniel urges survivors and caregivers to increase connection and reduce isolation. A quick text, a short call, a support group, or a shared conversation can make a real difference. Peggy highlights programs where survivors can meet others who understand graft versus host disease (GVHD) and transplant recovery. Daniel closes with the idea of building a “tool belt.” Each person needs practical coping tools, whether that is a friend, music, journaling, counseling, mindfulness, a book, or a favorite place to reset. Caregivers need their own tool belts too. Transplant affects the whole support system, and survivorship works best when people communicate, ask for help, and remember they are not meant to do this alone. Links: Elephants and Tea: https://elephantsandtea.org/ BMT InfoNet: https://bmtinfonet.org/ Blood Cancer United: https://bloodcancerunited.org/ Thanks to this season's sponsors, Incyte and Sanofi. (00:00) Intro (01:01) Normalizing emotional reactions during recovery (04:22) PTSD after transplant and why it matters (08:59) Slowly letting go after transplant (13:12) Facing the worst case and choosing to move forward (13:53) The strain of worry and mental health red flags (19:31) Toxic positivity and the power of validation (20:26) How to talk with loved ones who are trying to help (22:39) Social health, connection, and friendship (26:43) Support groups, GVHD, and feeling understood (28:07) Building a survivorship "tool belt" (33:08) Why transplant never fully “stops” (36:39) A patient story about resilience and asking for help National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/Check out our valued nbmtLINK resource books, some for sale, some free as downloadable, https://www.nbmtlink.org/shop/nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.This content is provided for informational purposes only and is not intended to substitute for professional medical advice, diagnosis, or treatment. It is crucial to consult directly with a qualified healthcare professional regarding any medical conditions, treatment options, or other health concerns.The views and opinions expressed by the speakers are their own and do not necessarily reflect the official policy or position of the nbmtLINK. Unless otherwise stated in an official policy, the nbmtLINK does not endorse any specific treatments, products, or services mentioned by the speakers. Reliance on any information provided is solely at your own risk.The Marrow Masters Podcast is produced by JAG Podcast Productions: https://jagpodcastproductions.com/ Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Marrow Masters
Caregivers Need Care Too - With Ashlee Cramer

Marrow Masters

Play Episode Listen Later May 27, 2026 37:00


In this episode of Marrow Masters, Peggy Burkhard talks with caregiver Ashlee Cramer about what caregiving really looks like during cancer, bone marrow transplant, and survivorship. Ashlee shares the story of her son Michael, who was diagnosed in 2020 with hepatosplenic T-cell lymphoma. Their family had already lived through cancer once before, when Ashlee's husband Patrice was diagnosed with large B-cell lymphoma in 2014 and later died at home in hospice, surrounded by his family. Ashlee explains that caregiving is often misunderstood. Caregivers are not saints who always feel strong, positive, or ready. Many are scared, exhausted, grieving, and trying to manage jobs, children, finances, appointments, medications, and the emotional weight of watching someone they love suffer. She says caregivers often feel pressure to do everything alone, but that pressure can lead to burnout and isolation. The conversation focuses on the reality that caregiving is not always temporary or predictable. For Michael, treatment moved quickly from diagnosis to hospitalization to transplant. He received a stem cell transplant from an anonymous donor, went into remission, and then developed serious complications, including engraftment syndrome, acute graft versus host disease (GVHD) , and chronic GVHD. Ashlee says Michael is a miracle, and while GVHD remains part of his life, the key word is living. Ashlee also talks about mental health for caregivers. She names anxiety, depression, post-traumatic stress disorder (PTSD), burnout, and loneliness as common experiences. She points out that many cancer centers offer support for patients, but caregivers often have to search for help on their own. Support groups, virtual programs, and caregiver resources can make a major difference because connection helps people feel less alone. A central message of the episode is that caregivers need care too. Ashlee encourages caregivers to take small pockets of peace when they cannot take a full day away. A shower, a breathwork practice, a walk outside, a cup of coffee, or a short hug from another caregiver can help. She also reminds caregivers to accept help. A meal train, a friend waiting in the hospital lobby, or someone offering a few minutes of support can ease the load. The episode ends with hope. Ashlee talks about post-traumatic growth, or PTG, and the idea that people do not have to bounce back to who they were before trauma. They can bounce forward. Michael and Ashlee continue to advocate, share their story through their podcast Michael and Mom Talk Cancer, and remind other caregivers that they are not alone. Thanks to this season's sponsors, Incyte and Sanofi. (00:00 Intro (04:05) Misconceptions about caregiving and why caregivers are not saints (05:30) Why caregivers should not be expected to do everything alone (07:00) The pressure to “stay strong” and how it can isolate caregivers (09:49) The reality of caregiving and how much it affects mental health (12:03) Work, family, sacrifice, and the myth of balance (16:40) Caregiver anxiety, depression, PTSD, burnout, and the need for support (20:40) Finding small “pockets of peace” when a full break is impossible (23:10) What Ashlee wishes she knew earlier about speaking up and asking questions (24:59) Why accepting help matters and how a meal train supported her family (34:09) Post-traumatic growth and the idea of bouncing forward instead of bouncing back National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/Check out our valued nbmtLINK resource books, some for sale, some free as downloadable, https://www.nbmtlink.org/shop/nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.This content is provided for informational purposes only and is not intended to substitute for professional medical advice, diagnosis, or treatment. It is crucial to consult directly with a qualified healthcare professional regarding any medical conditions, treatment options, or other health concerns.The views and opinions expressed by the speakers are their own and do not necessarily reflect the official policy or position of the nbmtLINK. Unless otherwise stated in an official policy, the nbmtLINK does not endorse any specific treatments, products, or services mentioned by the speakers. Reliance on any information provided is solely at your own risk.The Marrow Masters Podcast is produced by JAG Podcast Productions: https://jagpodcastproductions.com/ Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Marrow Masters
The Medical Side of Transplant Survivorship - Dr. Amar Kelkar

Marrow Masters

Play Episode Listen Later May 27, 2026 41:51


Today, Peggy Burkhard talks with Dr. Amar Kelkar of the Dana-Farber Cancer Institute about the medical side of survivorship after bone marrow, stem cell, or CAR-T transplant. The conversation begins with the important shift from the urgent “save my life” phase to the longer “protect my health” phase. Dr. Kelkar explains that this transition often starts around the 100-day mark, though timing varies by transplant center, geographical region and patient needs. A major theme is the need to restart routine care that may have been paused during transplant. Dental care, dermatology, ophthalmology, and primary care all become important again. Dental visits are especially important because oral graft-versus-host disease (GVHD) can cause dry mouth, irritation, cavities, and other problems. Skin checks matter because transplant can increase the risk of skin cancers. Dr. Kelkar stresses annual dermatology visits, sun protection, SPF 50 or higher, protective clothing, and smart decisions about sun exposure. Fatigue is another central topic. Dr. Kelkar describes post-transplant fatigue as different from normal tiredness. It can feel deep, physical, and mental, and it may last for months or even years. He encourages patients to pace themselves, listen to their bodies, and build activity back slowly. Returning to work also needs to be individualized. Some patients work remotely during treatment, while others may need extended disability or a gradual return. The episode also covers immune recovery and repeat vaccinations. Dr. Kelkar explains that after transplant, the immune system has been reset, and many childhood vaccines need to be repeated. Most programs begin revaccination around six, nine, or 12 months, depending on immune suppression and other factors. He reassures listeners that many patients have fewer vaccine symptoms early on because their immune systems are still rebuilding. Dr. Kelkar also reviews long-term screening and prevention. Survivors need routine cancer screenings, including mammograms, colonoscopies, lung cancer screening when appropriate, skin exams, and monitoring for thyroid or other changes. Metabolic health is also important. Steroids can affect blood sugar, transplant can change body composition, and quick weight loss often includes muscle loss. Nutrition support and exercise programs can help, and Peggy notes that Blood Cancer United offers nutrition services for patients and caregivers. Blood Cancer United's nutrition program provides free one-on-one consultations with oncology dietitians by phone or email. Bone health, hormone changes, sexual health, and early aging are also discussed. Dr. Kelkar explains that steroids, menopause, testosterone changes, vitamin D deficiency, and time indoors can affect bones. Many centers use DEXA scans and vitamin D supplementation. He also encourages patients to bring up sexual health concerns, including menopause symptoms, low testosterone, pain with intercourse, ulcers, or fear about resuming intimacy. The episode closes with practical advice for everyday life. Food restrictions often loosen around 100 days, but patients should reintroduce foods slowly and carefully. Raw foods, alcohol, tobacco, and inhaled smoke should generally be avoided, especially during the first year. Dr. Kelkar also emphasizes mental health support, counseling, and honest conversations with the medical team. Survivorship is a bumpy road, but the goal is to help patients regain control and thrive. Blood Cancer United Nutrition Offerings: https://bloodcancerunited.org/blood-cancer-care/adults/food-nutrition Thanks to this season's sponsors, Incyte and Sanofi. (00:00) Intro (01:16) Moving from acute treatment to survivorship (02:17) Dental, dermatology, ophthalmology, and routine care (05:45) Fatigue after transplant versus normal tiredness (08:35) Pacing yourself and avoiding setbacks (10:26) Returning to work after transplant (12:24) Resetting the immune system and repeat vaccinations (16:07) Secondary malignancy prevention and cancer screenings (18:59) Sun protection and skin cancer prevention (20:23) Metabolic health, blood sugar, and weight management (23:58) Bone health, vitamin D, DEXA scans, and early aging (29:32) Sexual health and hormonal changes (32:43) Everyday living after transplant (36:07) Psychological and cognitive hurdles in survivorship (38:16) Pulmonary function tests and liver monitoring (40:42) Closing thoughts National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/Check out our valued nbmtLINK resource books, some for sale, some free as downloadable, https://www.nbmtlink.org/shop/nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.This content is provided for informational purposes only and is not intended to substitute for professional medical advice, diagnosis, or treatment. It is crucial to consult directly with a qualified healthcare professional regarding any medical conditions, treatment options, or other health concerns.The views and opinions expressed by the speakers are their own and do not necessarily reflect the official policy or position of the nbmtLINK. Unless otherwise stated in an official policy, the nbmtLINK does not endorse any specific treatments, products, or services mentioned by the speakers. Reliance on any information provided is solely at your own risk.The Marrow Masters Podcast is produced by JAG Podcast Productions: https://jagpodcastproductions.com/ Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Help and Hope Happen Here
Kelly DiGiammo and her son Brayden will talk about Brayden's battle with Acute Myeloid Leukemia which Brayden was diagnosed with in late February of 2024. Brayden is now just one month away from the second anniversary of his remission and is doing wel

Help and Hope Happen Here

Play Episode Listen Later Apr 9, 2026 80:59


When Kelly DiGiammo's son Brayden was 13 years old in early 2024 he developed troubling health symptoms, including going from being one of the fastest runners in the school to losing his breath and running very slowly, experiencing continuing colds, and then having a bout with the flu. Brayden was diagnosed late in February of that year with Acute Myeloid Leukemia. Brayden successfully completed a Stem Cell Transplant and has been in remission since May of 2024. Kelly and Brayden will talk about his journey which has been a successful one and Kelly will also talk about her experiences getting involved in advocacy work for the cause of Pediatric Cancer. 

MedStar Health DocTalk
CAR T-Cell Therapy for Lymphoma with Dr. Jennifer Kanakry

MedStar Health DocTalk

Play Episode Listen Later Apr 9, 2026 18:00


Would like like to share feedback on this podcast? Or suggest another topic for us to explore? Click here, or email us at DocTalk@medstar.netOn this DocTalk episode, we chat with Dr. Jennifer Kanakry, the medical director of the Stem Cell Transplant and Cellular Immunotherapy Program at MedStar Georgetown University Hospital. Dr. Kanakry explains what types of lymphoma can be treated with CAR T-cell therapy. For an interview with Dr. Jennifer Kanakry, or for more information about this podcast, contact MedStar Georgetown University Hospital Manager Media Relations, Ryan.M.Miller2@Medstar.net. Learn more about Dr. Kanakry.For more episodes of MedStar Health DocTalk, go to medstarhealth.org/doctalk.

RNZ: Checkpoint
Young mum faced with stem cell transplant delays worried about survival

RNZ: Checkpoint

Play Episode Listen Later Mar 26, 2026 8:52


A young mum facing life threatening delays for cancer treatment may be forced to raise more than a million dollars for a stem cell transplant overseas. Loran Geddes, who is 29, was diagnosed with Leukaemia last year and needs a stem cell transplant for any chance of a cure. But a lengthy waitlist means her treatment keeps getting pushed out, significantly impacting her chance of survival. What was at first a six month wait, is now nine months. She's now in remission and must stay this way to get the transplant that is still six months off, leaving her in a dangerous limbo. Loran Geddes spoke to Lisa Owen. 

Coffee & Compatibility
This Is Not Yesterday's Hematopoietic Stem Cell Transplant

Coffee & Compatibility

Play Episode Listen Later Mar 16, 2026 52:34


Dr. Alberto Cardoso Martins Lima shares how advances in therapeutics are changing the way we think about HSCT donor selection.AFDT LINK: https://amfdt.swoogo.com/histocompatability2026/home

Patient from Hell
Leukemia Survivor on Stem Cell Transplant, Post-Traumatic Growth, and Rebuilding Life After Cancer

Patient from Hell

Play Episode Listen Later Feb 25, 2026 48:23


Rich — a leukemia survivor, nurse practitioner, and longtime oncology clinician — to talk about what it's really like to survive cancer, rebuild your life after treatment, and live with long-term side effects.Rich was diagnosed with leukemia at age 28, underwent an allogeneic stem cell transplant at Dana-Farber / Brigham and Women's, and is now a 29-year survivor. His experience as both a patient and provider offers a rare, honest look at cancer survivorship, prostate cancer side effects, sexual health, mental health, and post-traumatic growth.In this conversation, we cover:What it's like to be told you have leukemia in your 20sStem cell transplant and long-term survivalTurning cancer into purpose and becoming an oncology NPCommon prostate cancer side effects (urination, bowel changes, erectile dysfunction)How doctors actually manage these symptomsSexual health after cancer treatmentMental health, grief, and post-traumatic growthHow to rebuild your life after active treatmentThis episode is for patients, survivors, caregivers, and anyone navigating life after a cancer diagnosis.

Dietitians in Nutrition Support: DNS Podcast
Switching Gears: Nutrition Strategies for Stem Cell Transplant Patients

Dietitians in Nutrition Support: DNS Podcast

Play Episode Listen Later Feb 2, 2026 32:19


Stem cell transplant patients face significant GI challenges that make nutrition support complex—and critical. In this episode, I'm joined by Katie Harper, MS, RD, CNSC, an expert in oncology and blood and marrow transplant nutrition, to break down best practices for transitioning patients from parenteral nutrition (PN) to enteral nutrition (EN).We cover:• When nutrition support is needed during transplant• Key challenges with PN• How to assess readiness for EN• Practical strategies for successful PN-to-EN transitions• The importance of interdisciplinary collaborationA must-listen for dietitians and clinicians supporting stem cell transplant patients.

כל תכני עושים היסטוריה
Allogeneic Stem Cell Transplant for MDS: Advanced Considerations (Part II) [MDS Patient & Family Report]

כל תכני עושים היסטוריה

Play Episode Listen Later Jan 6, 2026 31:10 Transcription Available


In this follow-up episode,  Dr. Nikolaos Papadantonakis continues the conversation with Dr. Colin Vale from Winship Cancer Institute of Emory University and Dr. Nancy Luna Torres from Moffitt Cancer Center, diving deeper into advanced transplant topics. This episode is ideal for patients and families who want to understand the nuances of transplant care and post-transplant management.

כל תכני עושים היסטוריה
Allogeneic Stem Cell Transplant for MDS: Understanding the Basics (Part I) [MDS Patient & Family Report]

כל תכני עושים היסטוריה

Play Episode Listen Later Jan 6, 2026 30:33 Transcription Available


Join host Dr. Nikolaos Papadantonakis as he welcomes Dr. Colin Vale from Winship Cancer Institute of Emory University and Dr. Nancy Luna Torres from Moffitt Cancer Center to discuss the fundamentals of allogeneic hematopoietic stem cell transplantation for MDS patients.  Our experts break down complex medical concepts into easy-to-understand language, helping patients make informed decisions about this important treatment option.

Oncology Peer Review On-The-Go
S1 Ep194: What's New in Hematology/Oncology? Discussing the 2025 ASH Annual Meeting

Oncology Peer Review On-The-Go

Play Episode Listen Later Dec 29, 2025 28:02


After the 2025 American Society of Hematology (ASH) Annual Meeting had passed, the  data were out, and the hematologist/oncologists of the world had time to digest the practice changes that awaited them upon their returns home. Rahul Banerjee, MD, FACP, and Brooke Adams, PharmD, BCOP, took part in an X Spaces discussion hosted by CancerNetwork® in collaboration with The American Society for Transplantation and Cellular Therapy (ASTCT) to highlight these potential changes. Adams and Banerjee discussed abstracts from the meeting, including the phase 3 MajesTEC-3 trial (NCT05083169), which evaluated teclistamab-cqyv (Tecvayli) plus daratumumab (Darzalex) in patients with relapsed/refractory multiple myeloma who progressed on at least 1 prior line of therapy.1 A significant progression-free survival benefit was observed with the experimental combination compared with standard of care in this population. They also discussed data from cohort A of the phase 2 IFM2021-01 trial (NCT05572229), which evaluated subcutaneous teclistamab in combination with subcutaneous daratumumab in patients with newly diagnosed multiple myeloma. Results demonstrated that the combination was effective and safe in the frontline treatment of patients who were ineligible for transplant.2 The discussion also covered the broader treatment landscape, as the experts compared the use of bispecific antibodies with BCMA-directed CAR T-cell therapies. Frontline bispecific strategies for transplant-ineligible populations were also topics of conversation, as well as post-transplant consolidation with bispecifics. Ultimately, they stated that multiple myeloma care is undergoing a paradigm shift toward deeper minimal residual disease negativity, possible treatment de‑escalation, and even serious use of the word “cure” for the disease. Banerjee is an assistant professor in the Clinical Research Division at the Fred Hutchinson Cancer Center, and Adams is a clinical pharmacist in the Department of Stem Cell Transplant and Cellular Therapy and coordinator of the PGY-2 Oncology Residency at Orlando Health. Both are also members of the ASTCT content committee. References Mateos M-V, Bahlis N, Perrot A, et al. Phase 3 randomized study of teclistamab plus daratumumab versus investigator's choice of daratumumab and dexamethasone with either pomalidomide or Bortezomib (DPd/DVd) in patients (Pts) with relapsed refractory multiple myeloma (RRMM): Results of majestec-3. Blood. 2025;146(suppl 2):LBA-6. doi:10.1182/blood-2025-LBA-6 Manier S, Lambert J, Marco M, et al. A phase 2 study of teclistamab in combination with daratumumab in elderly patients with newly diagnosed multiple myeloma: the IFM2021-01 teclille trial, cohort A. Blood. 2025;146(suppl 1):367. doi:10.1182/blood-2025-367

MORTAL AND STRONG - The Podcast
Mortal and Strong - Voice No. 100 - Gemma

MORTAL AND STRONG - The Podcast

Play Episode Listen Later Sep 26, 2025 61:46


Welcome back to another episode of the Mortal and Strong podcast, and our FINAL episode of Season 1! Today, we are wrapping the season up with the wonderful, and bubbly Gemma! Gemma shares her story of multiple myeloma; from the 5 months of being dismissed for simply having a 'bad back', to coming to terms with such a diagnosis, all the way to where she's at now. Gemma also opens up about her different treatments, including her experience of a Stem Cell Transplant - a serious medical procedure used to replace damaged or destroyed blood cells with healthy ones. Gemma describes that time of her life as like 'walking on a tightrope', trying to hold things together as best she can before she wobbles off. She shares many powerful insights into the impact that cancer, and continuous invasive treatments have on an individual. Despite all that she has been through, Gemma is the epitome of 'Mortal and Strong' and continues to find joy in the little things. A huge thank you to Gemma for joining us and becoming another fantastic Voice in our Scars of Gold Campaign.Thank you all so much for listening and joining us this Season, lots more to come from Mortal and Strong so stay tuned! Scars of Gold is a health awareness campaign sharing the voices of 100 women facing their mortality at a young age with life changing or incurable health conditions. Produced by charity @mortalandstrong (No.1209448).#podcast #podcastprevious #interview #mortalandstrong #scarsofgold #kintsugi #stemcelltransplant #sct #multiplemyeloma #cancer #bloodcancer Hosted on Acast. See acast.com/privacy for more information.

Marrow Masters
Lorri and Her Cancer Caregiver Army - It Takes a Village

Marrow Masters

Play Episode Listen Later Sep 16, 2025 21:07


In this episode, we sit down with Lorri Pimentel of Santa Rosa, California, a resilient survivor who shares her deeply personal journey through breast cancer, acute myeloid leukemia (AML), and a life-saving bone marrow transplant. We explore not only the medical milestones but also the practical and emotional realities of navigating treatment and recovery, especially in the context of caregiving during the COVID-19 pandemic.Lorri opens by walking us through her diagnosis timeline: first with DCIS breast cancer in 2016, followed by an AML diagnosis in 2019. She underwent intense chemotherapy and, after a relapse, received a stem cell transplant in March 2021. Her story is not only one of medical complexity but also of personal upheaval—she was in the middle of a divorce and raising three children, with limited family caregiving options. Her caregivers were her friends and former work colleagues, who rotated week by week to support her recovery.We dive into Lorri's insights and hard-earned lessons about caregiving and post-transplant life. She stresses the importance of flexibility in caregiver scheduling, being prepared for early hospital discharge, and having a list of essential medical contacts readily available. She advises caregivers to undergo thorough training, keep detailed records for outpatient visits, and maintain strict medication management practices.Lorri doesn't shy away from sharing her missteps. She discusses her experience with Graft-versus-Host Disease (GvHD), the dangers of sun exposure, and complications like mucositis and insomnia. Her tips—like using a water pick, prescription mouthwash, fluoride toothpaste, and avoiding self-medicating with cannabis—are based on lived experience. She also shares less obvious insights, such as the need for UV-protective clothing, avoiding rice leftovers, and managing dry eyes with serum-based drops not yet FDA-approved.Transportation and social isolation were also major themes. Lorri emphasizes the importance of arranging reliable rides to appointments and finding indoor outlets for creativity and community. She found healing in watercolor art, music, yoga, and support groups. Her volunteer work with LLS, now Blood Cancer United, and NMDP reflects her dedication to mentoring others on the same path.We wrap up by discussing Lorri's present-day life. Now more than four years post-transplant, she's active, creative, and grounded in gratitude. Her final message is one of hope and purpose: bone marrow transplant recovery is slow, but it's life-changing, and each day is a gift worth sharing.This season is sponsored by Sanofi: https://www.sanofi.com/And Jazz Pharmaceuticals: https://www.jazzpharma.com/ National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.To participate in the GVHD Mosaic, click here: https://amp.livemosaics.com/gvhd Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

The Conversation
The Conversation: Marine debris recycling; Stem cell transplant

The Conversation

Play Episode Listen Later Sep 5, 2025 53:47


Mafalda de Freitas, megaplastics program director at the Center for Marine Debris Research at Hawaiʻi Pacific University, talks about Hawaiʻi's only marine debris recycling center; Donor Mariel Tadena, stem cell recipient Nicole Fabela, and Erika Sevilla, spokesperson for the National Marrow Donor Program, share their stem cell story

The EMJ Podcast: Insights For Healthcare Professionals
Hema Now: Episode 23: New Frontiers in Treating Haemoglobinopathies

The EMJ Podcast: Insights For Healthcare Professionals

Play Episode Listen Later Aug 15, 2025 33:43


In this episode, host Jonathan Sackier is joined by Emanuele Angelucci, Director of Hematology and Cellular Therapies and Director of the Stem Cell Transplant and Cellular Therapies Program at the Istituto di Ricovero e Cura a Carattere Scientifico (IRCCS), Ospedale Policlinico San Martino Hospital in Genoa, Italy.   Timestamps   00:00 – Introduction 02:14 – The future of stem cell transplantation 03:15 – What continues to drive Emanuele in his work 05:40 – Donation of haematopoietic stem cells 10:00 – Gene therapy for haemoglobinopathies 11:40 – Will stem cell transplantation remain central in treating thalassaemia and sickle cell disease? 14:14 – Emanuele's work on iron overload and toxicity 16:53 – Current landscape for haemoglobinopathies 22:11 – Key recommendations in the most recent clinical guidelines for haemoglobinopathies  25:00 – Promising developments on the horizon for patients with haemoglobinopathies  28:00 – Emanuele's key takeaways 

The EMJ Podcast: Insights For Healthcare Professionals
Hema Now: Episode 22: The State of Sickle Cell

The EMJ Podcast: Insights For Healthcare Professionals

Play Episode Listen Later Jul 23, 2025 31:40


In this episode, host Jonathan Sackier is joined by Steven Okoli, Honorary Senior Clinical Lecturer at Imperial College London. From leading the UK's first adult stem cell transplant trial for sickle cell disease to driving innovation in AI-guided transfusion strategies, Okoli shares how clinical research, patient advocacy, and equity-driven care are reshaping the landscape of haemoglobinopathies in the UK and beyond.  Timestamps  00:00: Introduction  01:58: Quickfire round  09:09: Pioneering adult stem cell transplant in sickle cell  11:41: Combining AI and genetics for blood transfusion  13:58: Systemic disparities in sickle cell  20:58: Education and advocacy  23:30: Non-cancerous blood disorders  25:18: What's next in sickle cell?  27:27: Okoli's three wishes for healthcare  

Show and Tell
Kids always know what's really going on!

Show and Tell

Play Episode Listen Later Jun 23, 2025 31:01 Transcription Available


We do a check in to see what the update with Brooke getting a Stem Cell Transplant is and Monty went to a pain rehab! We also chat about how we talk to our kids about chronic illness and Brooke has a cracking tip that might make it a little less scary for our kids.See omnystudio.com/listener for privacy information.

Marrow Masters
What Young Adults with Cancer Really Need: A Conversation with Emily Sarro

Marrow Masters

Play Episode Listen Later Jun 18, 2025 27:02


In this episode, we speak with Emily Long Sarro, a board-certified family nurse practitioner specializing in adolescent and young adult (AYA) care at Memorial Sloan Kettering Cancer Center. We focus on the unique challenges AYAs face before, during, and after a stem cell transplant. Emily shares how this age group, defined as 15 years old to 39 years old by the National Cancer Institute, is often overlooked in the healthcare system, stuck between pediatric and adult care settings. They're navigating identity, relationships, careers, and independence—while also managing a serious illness, which can disrupt or halt life milestones.We discuss how Emily approaches AYA care with a holistic mindset—merging clinical treatment with emotional and mental health support. She emphasizes the importance of granting young patients autonomy and private space, especially when families may unintentionally overstep. She urges healthcare providers to always include mental health support in the treatment plan, noting that anxiety, depression, and even PTSD are common in this group, both during and long after treatment.Emily also stresses the need for daily coping tools like journaling, movement, and meditation to supplement infrequent counseling sessions. She encourages us to create trust by really listening, especially since many AYAs feel dismissed in early diagnostic stages due to their age.We then dive into critical but often unspoken topics: fertility preservation, sexual health, and survivorship. Emily outlines time-sensitive fertility options and highlights the emotional toll if these aren't addressed early. She covers the hidden costs of care and offers resource suggestions like Livestrong and Cancer and Careers. She also calls attention to "silent disabilities" that persist post-transplant and affect career and daily function, emphasizing self-advocacy in the workplace. Coworkers and others may not "see" these limitations, but accommodations are often necessary.We discuss milestones missed due to treatment and the emotional weight of watching peers move on through social media. Emily suggests practical ways to stay socially connected, such as virtual events and platforms like Cancer Buddy. For caregivers, she reminds us that support often means just being present and handling small tasks that feel overwhelming to the patient.  It's important to hold space for patients' sadness over missing milestones, but when appropriate, the big picture remains: they may be sacrificing a few milestones now to experience many more later.The episode closes with a deeply moving survivor story—a young man from The Bronx who overcame mistrust in the medical system, underwent a transplant, and now runs a thriving music production business. His resilience and transformation encapsulate the hope and strength that defines this patient group.More:Marrow Masters Season 9, Episode 2, with fertility resources in Show Notes: https://marrowmasters.simplecast.com/episodes/preserving-fertility-through-cancer-treatmentCancerCare – https://www.cancercare.orgImerman's Angels – https://imermanangels.orgLivestrong Fertility – https://livestrong.org/how-we-help/livestrong-fertility/Worth the Wait – https://worththewaitcharity.com/Maggie's Dream (Fertility Preservation Assistance)–https://www.teammaggiesdream.org/Cancer and Careers – https://www.cancerandcareers.orgCancer Buddy App (Bone Marrow Foundation) –https://bonemarrow.org/support-and-financial-aid-2/support/about-cancerbuddyThanks to our Season 17 Sponsors:Leukemia and Lymphoma Society (LLS): https://lls.org/and Incyte: https://incyte.com/ National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.To participate in the GVHD Mosaic, click here: https://amp.livemosaics.com/gvhd

Marrow Masters
Two Mothers' Love: The Touching Story of A Life Saving Donation and Transplant

Marrow Masters

Play Episode Listen Later Jun 18, 2025 40:51


In this incredible episode of Marrow Masters, we sit down with Kayla West, a stem cell donor from Texas, and Miriam Bauer, the mother of a young leukemia survivor Miley, from Oklahoma. This story is a deeply emotional journey of hope, resilience, and a connection that transcends bloodlines. Kayla and Miriam take us through the entire transplant process from both perspectives: the donor stepping up during a pandemic, and the caregiver navigating a life-threatening diagnosis in a child.We begin with Kayla's decision to join the donor registry after a chance encounter with DKMS at a Goo Goo Dolls concert. She didn't expect to be called to donate, but when she was, during COVID lockdown, she jumped at the chance to help someone—anyone—in need. That “anyone” turned out to be Miley, an eleven-year-old girl who had been diagnosed with acute myeloid leukemia (AML) and urgently needed a transplant after two brutal rounds of chemotherapy.Miriam recounts those terrifying early days at St. Jude, from the moment of diagnosis through the chaos of the early pandemic lockdowns. She was Miley's only caregiver during a 248-day hospital stay. Her story is filled with moments of heartbreak and triumph, from failed chemo rounds to the joy of reaching remission and finding a viable donor in Kayla. We learn how transplant coordination works, how donor cells were frozen and shipped during COVID, and how little details—like celebrating donor day or choosing a transplant date that coincides with family birthdays—brought joy in dark times.Post-transplant, Miley's life has been a mix of recovery and lingering health effects, but she's thriving. Miriam emphasizes advocacy, honesty, and self-care for caregivers. Kayla, for her part, reflects on the overwhelming emotion of learning she was a match, undergoing all the testing during COVID, and then finally meeting the recipient of her cells in an unforgettable reunion in New York. The two families, now bonded for life, meet regularly and have built a deep friendship.  Next up: A trip for Kayla's family to Oklahoma to experience a powwow with Miriam, Miley, and their family!The videos below will have you reaching for the tissues and hopefully inspire many to get swabbed.Kayla also shares her decision to launch a nonprofit, SETX Leukemia Organization, focused on educating communities and recruiting new donors. Her goal is to prevent other families from facing what Miriam's did—wondering if there will be a match in time. Kayla's drive, born from her experience, continues to ripple outwards as she recruits more potential donors at local events with DKMS support.This episode isn't just about survival—it's about connection, purpose, and what can happen when strangers become family through an act of extraordinary generosity.SETX Leukemia Organization (Kayla's nonprofit): https://setxleukemia.org/DKMS (Be The Match partner organization): https://www.dkms.orgDKMS Video about Kayla, Miley, and Miriam: https://www.youtube.com/watch?v=sNhwRxXMbw8Thanks to our Season 17 Sponsors:Leukemia and Lymphoma Society (LLS): https://lls.org/and Incyte: https://incyte.com/ National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.To participate in the GVHD Mosaic, click here: https://amp.livemosaics.com/gvhd

Talkin with Topher
TwT #270 | Puppy Love | All the Ice is Melting | Stem Cell transplant restores vision | Trojan Horse

Talkin with Topher

Play Episode Listen Later Jun 4, 2025 51:12


Official Emailtalkinwithtopher@gmail.comTopher's Social Media(linktr.ee) ⁠⁠https://linktr.ee/talkinwithtopher⁠⁠(instagram) ⁠⁠https://www.instagram.com/talkinwithtopher/?hl=en⁠⁠(twitter) ⁠⁠https://twitter.com/_conderman⁠⁠(snap chat) ⁠⁠https://www.snapchat.com/add/cconderman?share_id=HiV14moKPns&locale=en-US⁠⁠(tik tok) ⁠⁠https://www.tiktok.com/@talkinwithtopher?lang=en⁠⁠(Facebook) ⁠⁠https://www.facebook.com/christopher.conderman⁠⁠Time Stamps(00:00:00) Start(00:01:54) Puppy Love(00:04:56) A23A on the move(00:11:23) What happens all the ice melts(00:17:23) China's endless power, power plant(00:20:03) Meta worked with China in Censorship(00:26:07) Stem Cell transplant restores vision(00:29:56) Clean Cocaine(00:33:41) Trump Excepting the Trojan Horse from Qatar(00:38:04) Putin Reveals Tartaria was Real(00:43:17) There were no planes(00:47:29) Controlled Demolition Squib Blow OutEpisode Linkshttps://www.bbc.co.uk/news/resources/idt-f4de435a-d215-4a7c-86e9-9b838701c993https://youtu.be/VbiRNT_gWUQ?si=qH5v9uDC0ZiQpvp5https://www.sustainability-times.com/energy/the-us-on-high-alert-chinas-largest-nuclear-reactor-passes-final-test-as-global-power-tensions-explode/https://www.cbsnews.com/news/meta-whistleblower-testimony-senate-judiciary-subcommittee/https://www.wcvb.com/article/stem-cell-transplant-treatment-restores-vision/64409863https://abcnews.go.com/Politics/doj-coast-guard-bust-45000-pounds-cocaine-tied/story?id=120642241https://www.google.com/imgres?imgurl=https://www.techspot.com/images2/news/bigimage/2023/09/2023-09-12-image.jpg&tbnid=i7ds8lmYELSvaM&vet=1&imgrefurl=https://www.cbsnews.com/news/qatar-jet-trump-boeing-pentagon/https://x.com/Whiplash437/status/1924311751492808956https://www.instagram.com/reel/DHvgNxuuP5Z/?utm_source=ig_web_copy_linkhttps://x.com/BGatesIsaPyscho/status/1926325690506297632

Cancer Interviews
145: Sheila Romanski twice survived breast cancer | autologous stem cell transplant | lumpectomy | diep flap

Cancer Interviews

Play Episode Listen Later May 28, 2025 25:00


Sheila Romanski is with us today after overcoming two diagnoses of breast cancer and the removal of a tumor in her left shoulder thanks to an autologous stem cell transplant.  She tells the @CancerInterviews podcast her initial of Stage 1A breast cancer in 1996 came after her doctor suggested a routine mammogram at age 36 when at the time mammograms were not performed on women that young.  Radiation treatment successfully addressed that diagnosis, but the following year, the cancer had metastasized to her shoulder.  That brought on the stem cell transplant, plus chemotherapy and more radiation.  All seemed well until 2008 when the breast cancer returned as Stage 4 triple negative infiltrating ductal carcinoma.  Shiela opted for a double mastectomy with reconstruction, which was followed by a second, more aggressive form of chemotherapy.  She has been pronounced NED (No Evidence of Disease), and now enjoys a healthy lifestyle, leading a non-profit that aids cancer victims.   Sheila Romanski advises everyone to do self-examinations for breast cancer.  She admits had she done so, her breast cancer would have been caught sooner.  In 1996, it was rare that 36-year-old women went in for routine mammograms, but Sheila's doctor suggested such an exam.  Thanks to that suggestion, a 2cm tumor was found.  She underwent a lumpectomy and radiation treatment.   While it appeared cancer was in her rear-view mirror, in 1997, a lump was found in her collar bone area.  That was treated with four chemotherapy treatments and autologous stem cell transplant, a procedure involved her own stem cells.  The chemo and the transplant last four months.   For Sheila, this time in her life was very challenging.  She was no only battling cancer, but she was raising four small children.  However, she says she was able to get through because of support from her friends and her church, and because attending to the needs of her kids took her mind off cancer.   Sheila's health appeared to be on the right track until 2008 when another routine mammogram revealed micro-calcifications in the same breast as her original diagnosis.  She decided a double mastectomy would be her best option. It would include a procedure called a diep flap, which involves taking skin from other parts of the body.  However, her surgeon said Sheila would have to lose twenty pounds before diep flap could be performed.  It took Shiela ten years to lose the weight and by that time, her surgeon said she no longer performed diep flap.  However, she said she could get Sheila “fixed up” and in 2021, thirteen years after mastectomy, reconstruction was complete.   Sheila Romanski has gone on to found Crystal Roses, a non-profit that seeks to aid those diagnosed with cancer.   Additional Resources:   Support Group:   Crystal Roses  https://www.crystalroseshelps.com    

Show and Tell
What is a stem cell transplant?

Show and Tell

Play Episode Listen Later May 25, 2025 20:17 Transcription Available


We sat down and recorded before Brooke headed off to see her neurologist. Brooke has had three different types of treatments for MS and none have worked as they would have hoped. Stem cell transplants are occasionally done in Australia but have a super strict criteria you need to meet to be considered. We chat about what it is exactly and if Brooke is a candidate. This story is unfolding in real time and we will keep you updated. See omnystudio.com/listener for privacy information.

Two Onc Docs
Stem Cell Transplant (SCT) Part 2 2025 UPDATE

Two Onc Docs

Play Episode Listen Later May 5, 2025 29:22


This week's episode will be focusing on Hematopoietic Stem Cell Transplant. We welcome our guest  Dr. Jeff Auletta, Senior Vice President, National Marrow Donor Program, and Chief Scientific Director,Center for International Blood and Marrow Transplant Research. Part 2 discusses conditioning regimens, graft-vs-host disease, toxicities, and Dr. Auletta's career path.

Two Onc Docs
Stem Cell Transplant (SCT) Part 1 2025 UPDATE

Two Onc Docs

Play Episode Listen Later Apr 28, 2025 26:50


This week's episode will be focusing on Hematopoietic Stem Cell Transplant. We welcome our guest  Dr. Jeff Auletta, Senior Vice President, National Marrow Donor Program, and Chief Scientific Director,Center for International Blood and Marrow Transplant Research. Part 1 discusses important basics including what a transplant is, types of transplant & associated risks, types of donors, how to find a donor, and barriers/inequities of finding a donor.

Blood Podcast
Phosphoseryl-tRNA kinase inhibition in acute myeloid leukemia (AML), APOE gene variants and post-hematopoietic stem cell transplant outcomes in AML, and the role of chronic inflammation in sickle cell cardiomyopathy

Blood Podcast

Play Episode Listen Later Apr 24, 2025 19:06


In this week's episode we'll learn more about how phosphoseryl-tRNA kinase inhibition promotes cell death in acute myeloid leukemia, or AML; APOE gene variants and their association with post-hematopoietic stem cell transplant outcomes in AML; and pathways by which chronic inflammation and oxidative stress may lead to cardiomyopathy in patients with sickle cell disease.Featured Articles:PSTK inhibition activates cGAS-STING, precipitating ferroptotic cell death in leukemic stem cells Common Hereditary Variants of the APOE Gene and Posttransplant Outcome in Acute Myeloid Leukemia 17R-Resolvin D1 Protects Against Sickle Cell Related Inflammatory Cardiomyopathy in Humanized Mice 

YXE Underground
Season Seven - Episode Six - Prairie Cancer Fertility Preservation

YXE Underground

Play Episode Listen Later Feb 20, 2025 43:31


A cancer diagnosis at any age is scary and life changing, but receiving this news the you are at a point in your life where having children, starting a family or growing your family is on your mind, raises a different set of challenges. Saskatoon's Prairie Cancer Fertility Preservation charity supports cancer patients when it comes to fertility challenges. Helping patients navigate fertility issues during a cancer diagnosis is something Dominique Paulgaard and Lierin Baerg do in their roles as nurses at Royal University Hospital and with their charity, Prairie Cancer Fertility Preservation. The charity was started three years by a group of oncology nurses in Saskatoon and today features Jessica Smith, Taylor Huang, Lierin Baerg and Dominique Paulgaard as its members. The purpose of Prairie Cancer Fertility Preservation is to preserve the ability for cancer patients to have children. As I learned from Lierin and Dominique, this can either be through sperm or egg preservation, and as you are about to hear, it can be quite the journey. Lieren as been a Registered Nurse at Royal University Hospital's Inpatient Cancer and Stem Cell Transplant unit for the past 10 years. Dominique has been a nurse in the same unit for 13 years. They both have families with young children and find the time to run this charity.How the charity works, why it means so much to them, and what conversations are like with their patients when it comes to fertility are topics we cover in our conversation. We also discuss how overwhelming it is for someone who has just received a cancer diagnosis to think about if they want to preserve their ability to have children in the future and the financial challenges that come with their decision.Prairie Cancer Fertility Preservation has a fundraising event on Saturday, March 15th at Crossmount Cider Company. Tickets are 50 dollars and Saskatoon's Ross Nielsen will be playing live sets of music. You can learn more by following Prairie Cancer Fertility Preservation on Facebook and Instagram, or click this link to purchase tickets.You can listen to YXE Underground wherever you find your favourite including Apple Podcast, Spotify, Goodpods or on yxeunderground.com. Please feel free to leave a 5-star review if you like what you hear. These positive reviews help the podcast show up in more podcast feeds so I really do appreciate the support. I also want to let you know of an exciting event I am working on with the Remai Modern. Please mark April 17th on your calendar as that's when YXE Underground will be presenting a movie at the Remai Modern's lovely theatre beginning at 7pm. This is thanks to Kyle Zurevinski, who runs the theatre programming at the Remai, and his generous spirit. We will be showing the short film Molly Schikosky and I made last summer celebrating the podcast followed by the Pixar classic, Wall-E because it's one of my favourite movies of all time and I think it connects nicely to YXE Underground in meaningful ways. The Remai does this with other community organizations who select a movie for the public to watch for free and it's really cool to partner with the gallery in this way. Plus, it's free to attend!So I would love to see you on the night of Thursday, April 17th, to celebrate the podcast and watch one of the best films of the past 20 years.Thank you for continuing to support a local, independent podcast here in Saskatoon.Cheers...Eric  Host, Producer, Editor: Eric AndersonTheme Music: Andrew DicksonWebsite: https://www.yxeunderground.comRecorded: On Treaty 6 Territory and the traditional homeland of the Metis

Afternoons with Pippa Hudson
On the couch: Young cancer fighter ready for stem cell transplant

Afternoons with Pippa Hudson

Play Episode Listen Later Feb 18, 2025 17:51


Pippa speaks to Amy Brand who is only a few days way from going into hospital for a stem cell transplant – but she is so passionate about raising awareness of this issue that she was adamant we needed to speak to her ahead of that procedure.See omnystudio.com/listener for privacy information.

The Whole Paradox
Dancing with Death and the Yogic Journey with Ayla Nova

The Whole Paradox

Play Episode Listen Later Feb 11, 2025 58:07


In this episode, depth + somatic psychotherapist, and The Whole Paradox Host, Molly Mitchell-Hardt interviews Yoga Nidra guide, cancer survivor, and podcast host Ayla Nova. They talk about:The yogic journeyCancer diagnosis, dancing with death, and deep surrenderFinding and falling in love with Yoga NidraWorking with the narrative of "good" and "bad" versus non-dualityThe wheel of samsaraSitting with shadow and being "not okay" within spiritual communitiesRelationship with fearand so much more...Follow us @mollymitchellhardt and @thewholeparadoxMolly's Offerings:To inquire about 1:1 work or about Molly's Sacred Motherhood Online Support Group, schedule a free consultation or email mollymitchellhardt@gmail.comFind Ayla Nova:Follow Ayla on instagramVisit Ayla's website and find her Yoga Nidra trainingThis podcast was produced in association with Channel the Sun by Kevin Joseph Grossmann.  Musical stylings by Kevin Joseph Grossmann.

Oncotarget
Rare Case of Donor Cell-Derived Blood Cancer Discovered Nine Years After Stem Cell Transplant

Oncotarget

Play Episode Listen Later Feb 10, 2025 4:35


BUFFALO, NY - February 10, 2025 – A new #casereport was #published in Volume 16 of Oncotarget on February 5, 2025, titled “A case report of donor cell–derived hematologic neoplasms 9 years after allogeneic hematopoietic cell transplantation." In this case report, Aleksandra Mroczkowska-Bękarciak and Tomasz Wróbel from Wroclaw Medical University describe a rare and serious complication after a stem cell transplant. The case involves a patient who, nine years after receiving a stem cell transplant for acute myeloid leukemia (AML), developed a new, aggressive blood cancer originating from donor cells. Despite receiving treatment, the disease progressed to myelodysplastic syndrome/acute myeloid leukemia (MDS/AML), ultimately leading to the patient's death. Stem cell transplants are a life-saving treatment for many blood cancers, including AML. While relapse of the original cancer is the most common concern, this case highlights another rare but serious complication: the development of donor cell-derived hematologic neoplasms (DCHN). The report details the case of a 23-year-old woman who remained in remission for nearly 10 years following a successful hematopoietic stem cell transplant from an unrelated donor. However, she later developed a new form of leukemia, driven by genetic mutations in the ASXL1, SETBP1, and EZH2 genes—biomarkers linked to highly aggressive blood cancers. Over the next two years, the disease progressed despite intensive treatment, ultimately proving fatal. This case highlights the need for continued monitoring of transplant recipients, even years after the procedure. Although DCHN is extremely rare, its occurrence raises critical questions about the process by which donor cells transform into leukemia. Some stem cell donors may unknowingly carry genetic mutations that are harmless in their own bodies but could trigger cancer in recipients. Additionally, factors such as immunosuppressive therapy, bone marrow stress, and transplantation procedures may contribute to these rare but deadly outcomes. “Early diagnosis and intervention are crucial to improving patient prognosis.” Ongoing research is focused on improving donor screening methods to help predict and prevent these complications. In the future, routine genetic testing for stem cell donors could become a standard part of the transplant process, helping clinicians identify potential risks before transplantation. More studies are needed to fully understand why donor-derived cancers develop and how they can be prevented. With continued progress in precision medicine and genetic diagnostics, researchers aim to make stem cell transplants safer and more effective for all patients. DOI - https://doi.org/10.18632/oncotarget.28686 Correspondence to - Aleksandra Mroczkowska-Bękarciak - omroczkowska@interia.pl Video short - https://www.youtube.com/watch?v=G2zd0UqWzeE About Oncotarget Oncotarget (a primarily oncology-focused, peer-reviewed, open access journal) aims to maximize research impact through insightful peer-review; eliminate borders between specialties by linking different fields of oncology, cancer research and biomedical sciences; and foster application of basic and clinical science. Oncotarget is indexed and archived by PubMed/Medline, PubMed Central, Scopus, EMBASE, META (Chan Zuckerberg Initiative) (2018-2022), and Dimensions (Digital Science). To learn more about Oncotarget, please visit https://www.oncotarget.com and connect with us: Facebook - https://www.facebook.com/Oncotarget/ X - https://twitter.com/oncotarget Instagram - https://www.instagram.com/oncotargetjrnl/ YouTube - https://www.youtube.com/@OncotargetJournal LinkedIn - https://www.linkedin.com/company/oncotarget Pinterest - https://www.pinterest.com/oncotarget/ Reddit - https://www.reddit.com/user/Oncotarget/ Spotify - https://open.spotify.com/show/0gRwT6BqYWJzxzmjPJwtVh MEDIA@IMPACTJOURNALS.COM

Lyrical Audio Candy Tour
Tips for Stem Cell Transplant E12 S7

Lyrical Audio Candy Tour

Play Episode Listen Later Feb 6, 2025 25:55


Just the ongoings of my life so far. He is day 8 post stem cell transplant. Giving some tips on how to create an organized medication system and tips on how to prepare for Stem Cell Transplantation. Enjoy.

Marrow Masters
Chronic GVHD Survival Tips from Nurse Krista Wood

Marrow Masters

Play Episode Listen Later Jan 30, 2025 23:36


In today's episode, we talk with Krista Wood, a registered nurse with the Cell Therapy and Transplant Program at Victoria General Hospital in Halifax, Nova Scotia (Canada). Krista shares her invaluable insights and experiences working with patients dealing with chronic graft-versus-host disease (GVHD), a common complication following stem cell transplants. Our discussion delves into the importance of communication, post-transplant care, and finding joy and purpose during survivorship.Krista emphasizes that early detection and treatment of GVHD are critical. She encourages patients to report any changes, no matter how minor they may seem, and reassures them that healthcare teams are there to help. This open communication is vital, as post-transplant life can be overwhelming with fears of relapse or complications. Ensuring patients have direct access to their care team can ease their anxieties and foster trust.Routine health checks, like blood work and pulmonary function tests, play a crucial role in monitoring potential complications. Krista explains the importance of tracking liver enzymes, bone density, and lung function to catch and address issues early. She underscores that post-transplant care goes beyond the transplant itself, extending to overall health maintenance, including routine screenings like mammograms, dental care, and colorectal exams.Reconnecting with life post-transplant is another important theme. Krista encourages patients to rediscover the activities they loved before their illness, whether it's returning to work, volunteering, or pursuing hobbies. Work and social engagement provide purpose and can aid emotional recovery. For those who can't return to work, finding alternative ways to contribute, such as volunteering with organizations like the Leukemia & Lymphoma Society or HealthTree, can offer fulfillment and connection. (Note: the National Bone Marrow Transplant Link (nbmtLINK) has a peer mentor program as well, email info@nbmtlink.org if you'd like to be a peer or need a peer mentor. )Preparing for transplant and understanding GVHD beforehand is crucial. While some patients prefer to know everything, others may only want the basics. Krista and her team provide consistent education in manageable increments to help patients absorb key information. She explains factors that increase the risk of GVHD, such as donor characteristics and patient preconditioning, and stresses the importance of entering the transplant process in the best possible physical shape.Krista also highlights the importance of addressing sensitive topics like sexual health, which many patients are reluctant to discuss. She brings up these issues proactively, ensuring patients feel supported and have access to necessary resources.Finally, Krista shares stories of hope, including patients who, despite long-term challenges, have regained a sense of normalcy and fulfillment. She reminds us that while every patient's journey is unique, resilience and adaptation are common threads in their recovery.This episode is a testament to the critical role nurses like Krista play in guiding patients through this complex medical journey, offering care, education, and encouragement every step of the way.More:Leukemia & Lymphoma Society: https://www.lls.orgHealthTree Foundation: https://www.healthtree.orgGVHD Alliance: https://www.gvhdalliance.orgLink to LLS free Nutrition Consultations: https://www.lls.org/managing-your-cancer/food-and-nutritionThank you to our sponsors. This season is supported by a healthcare contribution from Sanofi  https://www.sanofi.com/ National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.To participate in the GVHD Mosaic, click here: https://amp.livemosaics.com/gvhd

MedStar Health DocTalk
Stem Cell Transplant & Cellular Immunology

MedStar Health DocTalk

Play Episode Listen Later Jan 14, 2025 18:37


Send us a textThe MedStar Georgetown University Hospital Stem Cell Transplant and Cellular Immunotherapy Program is the only adult, FACT-accredited program in the Washington, D.C., area. We give patients with cancers affecting the blood or immune system and other disorders access to life-saving treatment options not otherwise available in our region. These include:·       Allogeneic stem cell transplant·       Autologous stem cell transplant·       CAR T-cell therapyAlaa Ali, MD, MSC, is a clinician, instructor, and investigator in clinical and translational research at MedStar Georgetown's Stem Cell Transplant and Cellular Immunotherapy program. Concurrrently, he holds the position of Assistant Professor at Georgetown University School of Medicine.For an interview with Dr. Ali, or for more information about this podcast, contact MedStar Georgetown University Hospital Manager Media Relations, Ryan.M.Miller2@Medstar.net. Learn more about Dr. Ali. For more episodes of MedStar Health DocTalk, go to medstarhealth.org/doctalk.

Stretch Marks
40: Áine O'Donnell - My Multiple Sclerosis Fight

Stretch Marks

Play Episode Listen Later Nov 20, 2024 68:37


NEW! "The 40's Stretch" - A new season from Stretch Marks PodcastWe are stretching - this time into our 40's.Meet Áine O'Donnell - one of my closest friends and favourite humans.At 27 she was diagnosed with MS, Multiple Sclerosis, an incurable neurological condition that interrupts communication between the brain and the rest of the body. Eventually, the disease can cause permanent damage and loss of power.At 40, she lost her dad, got married and learned that her hero drugs have failed her.And this week, as this goes out, she begins the process of a Stem Cell Transplant in the UK - her last chance to hold back her advancing MS.But it's not all tears. We laugh. We reminisce.We talk about the grief of losing her dad. And marrying the love of her life Tara.And in this one hour - she will teach you more about life than anyone could.DONATE xxTo help with the financial burden of this fight, friends have set up a GOFUNDME page for Áine.To donate to this page and support my wonderful friend, you can follow the link here. Áine - we love you, fight like hell. Supported by Key For Her - Their two-step supplement includes two unique blends to support your daily wellness and help naturally alleviate the symptoms associated with menstruation, perimenopause and menopause.Use the discount code STRETCH for 20% off your first order across all products on keyforher.com "The 40's Stretch" is a Stretch Marks Production,Hosted by Sinéad O'Moore, produced by The Brand Story and sound edited by Alan Breslin.Contact: stretchmarkspod@gmail.comhttps://www.instagram.com/stretchmarkspodcast/ Hosted on Acast. See acast.com/privacy for more information.

Marrow Masters
Caregiver Laurie and Survivor Dave Reflect on Their Recent CAR T Life-Saving Experience

Marrow Masters

Play Episode Listen Later Nov 15, 2024 32:00


In this episode of Marrow Masters, we hear the journey of married couple Dave and Laurie Brock, as they share their experience with CAR T-cell therapy— one Dave very recently underwent. The Brocks provide an inspiring and honest account of navigating this complex treatment process. Dave, diagnosed with multiple myeloma in 2015, had an eight-year remission following a stem cell transplant. When he relapsed earlier this year, his doctor, Dr. Abdullah at the University of Kansas Medical Center, recommended CAR T-cell therapy, which had just been FDA-approved for patients in his position. Dave recalls his surprise that what once felt like a “futuristic” option was now available and could be pursued immediately.As Dave began CAR T- cell therapy, he leaned on advice he received early in his treatment: maintain a positive attitude, be informed, and work closely with his healthcare team. Physical fitness played a crucial role in his journey, allowing him to hike and stay active, which he believes aided his recovery. However, the therapy wasn't without challenges. He experienced significant fatigue, developed Bell's palsy as a side effect, and had to constantly monitor for signs of neurotoxicity.Laurie  is Dave's "care partner," not "care giver." And she describes the intensive nature of navigating CAR T- cell therapy. She monitored Dave around the clock, prepared their home with stringent health protocols, and managed the complexities of his medication and appointments. Laurie's commitment required self-sacrifice; she isolated from family and even stopped going to the gym to protect Dave from exposure to illness. However, she also found unexpected joy in the time spent alone with Dave, as they grew closer through shared activities and humor.Both Dave and Laurie emphasize gratitude—appreciating their medical team, the support of their community, and the positive outcomes of CAR T-cell therapy. Their care team was deeply invested in their success, with doctors even celebrating with them on day 31 when test results confirmed Dave was in remission. Dave reflects on how fortunate he feels for his proximity to the clinic and his medical staff's expertise, acknowledging the importance of clinical trials and the contributions of previous patients in advancing treatments like CAR T.The episode closes with Dave's reminder: we're all in this together, underscoring the value of community, support systems, and the role that clinical trials play in the ongoing advancements in cancer treatment.  He also shares his gratitude for anyone who's participated in a clinical trial.  Without them, he wouldn't have had the opportunity to undergo this cutting-edge treatment. This season is made possible thanks to our sponsors:Kite, a Gilead company: http://www.kitepharma.com/and Bristol Myers Squibb's CAR T support services program:https://www.celltherapy360.com/ Follow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/Or visit our website at https://www.nbmtlink.org/

The Cancer Pod: A Resource for Cancer Patients, Survivors, Caregivers & Everyone In Between.
Dr. Amy Rothenberg on Healing After Treatment

The Cancer Pod: A Resource for Cancer Patients, Survivors, Caregivers & Everyone In Between.

Play Episode Listen Later Oct 30, 2024 53:55 Transcription Available


Dr. Amy Rothenberg, a respected naturopathic physician and three-time cancer survivor, shares her story of multiple cancer diagnoses and treatments. Her most recent treatment was a stem cell transplant in 2024 for acute leukemia. Dr. Rothenberg gives valuable insights into integrative cancer care, the importance of gut health, and practical tips for caregivers. The conversation also emphasizes the significance of maintaining a healthy lifestyle and seeking open-minded, collaborative healthcare providers. Tune in for an informative and inspiring discussion on navigating cancer care holistically.Link to Dr. Rothenberg's social media and websiteBe The Match Program - Becoming a stem cell donorWhat is a Stem Cell Transplant? NIH explanationTips for Caregivers of Patients — a guest blog post by Dr. RothenbergUnderstanding Cancer-Related FatiguePrevious podcast episodes :Dr. Amy Rothenberg's initial interview with usCancer-Related FatiguePrebiotics (Microbiome stuff)Chemotherapy-Induced NeuropathySupport the showOur website:https://www.thecancerpod.com Email us: thecancerpod@gmail.comJoin our growing community! We are @TheCancerPod on: Instagram Twitter Facebook LinkedIn THANK YOU for listening!

Dimed Out
Season 5, Episode 7: The Road to Mexico - Part 2

Dimed Out

Play Episode Listen Later Jun 26, 2024 55:14


In this episode of your third favourite, above average, but infinitely curious podcast DIMED OUT... The months, weeks, and days are counting down until I head to Puebla, Mexico for HSCT treatment. In this second of a two parter, I go through my mental/emotional state and the practical preparation ahead of my Stem Cell Transplant. Follow Me on the Gram' https://www.instagram.com/iammalfoster/ Kofi (or Tea?) https://ko-fi.com/dimedout DIMED OUT is an anthropological Podcast dedicated to exploring the mysteries and meaning of life. An audio kaleidoscope of culture and society, alternative lifestyles and life experiences. --- Send in a voice message: https://podcasters.spotify.com/pod/show/dimedout/message --- Send in a voice message: https://podcasters.spotify.com/pod/show/dimedout/message

The Conversing Nurse podcast
Stem Cell Transplant Nurse, Dora Loun

The Conversing Nurse podcast

Play Episode Play 60 sec Highlight Listen Later Jun 19, 2024 56:55 Transcription Available


Send us a Text Message.I recently came across Dora Loun's LinkedIn profile, and her bio as a stem cell transplant nurse piqued my interest. However, when I had a conversation with her, I realized that what I thought she did and what she actually does are vastly different.Dora's experience in critical care nursing provided her with the perfect foundation for caring for some of the most severely ill patients. I usually ask my guests to walk me through a typical day in their life as a nurse, but Dora took a different approach. She instead described what her patients go through before, during, and long after a stem cell transplant. This was an intelligent move because hearing about the patients' hopes and dreams for the future, anxieties about the treatment, physical ailments from the medication's side effects, the isolation of loneliness, and the bond they form with their nurses gave me a deeper insight into Dora's work. And Dora's work entails providing hope for the future, care for the present, and comfort when time has run out. In the five-minute snippet: She's going to need a lot of coffee. For Dora's bio, please visit my website (link below).Dora's LinkedInBe The MatchContact The Conversing Nurse podcastInstagram: https://www.instagram.com/theconversingnursepodcast/Website: https://theconversingnursepodcast.comYour review is so important to this Indie podcaster! You can leave one here! https://theconversingnursepodcast.com/leave-me-a-reviewWould you like to be a guest on my podcast? Pitch me! https://theconversingnursepodcast.com/intake-formCheck out my guests' book recommendations! https://bookshop.org/shop/theconversingnursepodcast Email: theconversingnursepodcast@gmail.comThank you and I'll talk with you soon!

Marrow Masters
Janet Young Shares Challenging Side Effects after AML Transplant

Marrow Masters

Play Episode Listen Later May 31, 2024 20:09


In today's episode, we have the pleasure of speaking with Janet Young from Massachusetts, who shares her challenging yet inspiring journey with acute myeloid leukemia (AML) and her subsequent stem cell transplant. Diagnosed in March 2022, Janet underwent a transplant in August of the same year after a regimen of intensive chemotherapy. Remarkably, her transplant occurs on her ACTUAL birthday, adding a poignant touch to her recovery story.Janet discusses the profound fatigue she experiences post-transplant, describing it as an overwhelming tiredness that significantly limited her daily activities initially. However, over 21 months, she's progressed from barely being able to walk to her driveway to completing a two-and-a-half-mile walk, a significant achievement in her recovery.Another major challenge Janet faces is the loss of muscle strength, for which she has been in physical therapy, greatly improving her stamina. Cognitive issues, particularly with memory and word recall, are also significant hurdles that Janet continues to navigate. These symptoms are common among transplant recipients and will slowly improve.Janet also touches on Graft Versus Host Disease (GVHD), a complication of her transplant manifesting mainly in her lower limbs. Treatment for GVHD includes starting a medication called Rezurock, which she hopes will be effective.Her social interactions have changed, too. She spent a year isolated post-transplant, which has altered her casual relationships although her closer friendships remain strong. Janet also mentions adapting her life to manage her energy better, using the "spoon theory" to prioritize activities based on her daily energy levels.Concluding the interview, Janet shares how she has had to modify her approach to planning and socializing, focusing on self-care and adjusting to a new normal. She remains thankful for every new day and emphasizes the importance of support groups in her ongoing recovery.This powerful story not only highlights the physical and emotional challenges of dealing with AML and undergoing a stem cell transplant but also showcases the resilience and gradual return to normalcy despite the challenges of GVHD. Janet's journey is a testament to the power of medical treatment, personal determination, and community support in navigating life after a major health crisis.Resources:Dana Farber Cancer Institute https://www.dana-farber.org/National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/nbmtLINK Facebook Page:  https://www.facebook.com/nbmtLINKnbmtLINK YouTube Page can be found by clicking here.Thank you to our sponsors. This season is supported by a healthcare contribution from Sanofi  https://www.sanofi.com/ Follow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/

Going anti-Viral
Episode 16 - Insights on HIV Cure by Stem Cell Transplant with Dr Ravindra Gupta Recorded Live at CROI 2024 on March 3, 2024

Going anti-Viral

Play Episode Listen Later May 7, 2024 20:40


Episode 16 -  Insights on HIV Cure by Stem Cell Transplant with Dr Ravindra Gupta Recorded Live at CROI 2024 on March 3, 2024 In this episode of Going anti-Viral, Dr Michael Saag hosts Dr Ravindra Gupta. Dr Gupta is the infectious diseases expert who led the team that treated Adam Castillejo, also known as ‘The London Patient,' the second person known to have been cured of HIV. The discussion, recorded on March 3, 2024, at the Conference on Retroviruses and Opportunistic Infections (CROI), focused on the intricate process of finding a suitable stem cell donor, the immunologic and virologic considerations around the transplant process, and the collaborative medical team effort involved.  00:00 Introduction 00:30 The London Patient 03:05 Finding the CCR5∆32 Stem Cell Match 04:21 Clinical Challenges on the Transplant Journey 06:58 Post-Transplant Monitoring and Milestones 15:53 Reflecting on the Journey 18:51 Closing Thoughts and Acknowledgments__________________________________________________Produced by IAS-USA, Going anti–Viral is a podcast for clinicians involved in research and care in HIV, its complications, and other viral infections. This podcast is intended as a technical source of information for specialists in this field, but anyone listening will enjoy learning more about the state of modern medicine around viral infections. Going anti-Viral's host is Dr Michael Saag, a physician, prominent HIV researcher at the University of Alabama at Birmingham, and volunteer IAS–USA board member. In most episodes, Dr Saag interviews an expert in infectious diseases or emerging pandemics about their area of specialty and current developments in the field. Other episodes are drawn from the IAS–USA vast catalogue of panel discussions, Dialogues, and other audio from various meetings and conferences. Email podcast@iasusa.org to send feedback, show suggestions, or questions to be answered on a later episode.Follow Going anti-Viral on: Apple Podcasts YouTube InstagramTikTok...

The Nutritional Therapy and Wellness Podcast
Ep 012 - An RN's Prognosis Pushback and Where To Start With Food

The Nutritional Therapy and Wellness Podcast

Play Episode Listen Later Apr 18, 2024 47:08


In this Nutritional Therapy and Wellness Podcast episode, host Jamie Belz interviews Rachel Ballard, an RN who wasn't willing to accept the prognosis of a slow, painful, premature death. Rachel is a Registered Nurse, farmer, and Food As Medicine teacher who is currently completing her Nutritional Therapy Practitioner (NTP) certification. After battling back from a rare, paralyzing autoimmune disease, she's helping individuals use food as a tool so they can fight back against chronic conditions and defy the odds. A lover of British television dramas, raising medicinal plants, and scratch cooking, Rachel lives on her Kentucky cattle farm with her husband of twenty-three years and two teenage children. In talking with Jamie, Rachel walks us through her declining health, eventual diagnosis of CIPD (Chronic Inflammatory Demyelinating Polyneuropathy), and her long road to recovery. 04:50 – Symptoms and red flags leading up to diagnosis: Hashimoto's, muscles in eye, limp leg, loss of strength, paralysis, felt like she was “on fire” 07:10 – CIPD Diagnosis with Central Nervous Symptom Overlap causing issues with vision, hearing, digestion, bowel and bladder control, and promoting cardiac arrhythmia 9:00 - IVIG (Intravenous Immunoglobulin) Treatment, Plasmapheresis, Stem Cell Transplant, slow decline 10:10 – Five years to live 11:02 – Subcutaneous IVIG Therapy Failed 13:02 – Hitting the point of desperation, looking at natural medicine for the first time, found the wrong natural medicine professionals for her preference and bio-individuality at the time 19:34 – Buying-in on the alternative approach 21:30 – Corruption in science, “follow the money” 22:30 – Working with an NTP, starting with digestion, making slow progress 27:53 – New hope, new career 30:31 – Bioindividuality 31:57 – TALKING ABOUT FOOD! Simple swaps, things to buy 40:17 - Mindset 42:04 – Car analogy 43:15 – Rachel's list of reversed symptoms/conditions 44:21 – Last question As you'll hear, taking the first steps into a more natural approach to wellness can be challenging, frustrating, expensive, and a little “weird.” Rachel shares how she didn't find any luck or answers with the alternative medicine practitioners she initially saw.* Her story is fun, relatable, and inspirational for those suffering from illness, as well as those looking to peek over the fence from the world of conventional medicine. You can find Rachel's food blog at www.feastandfarm.com. Please SUBSCRIBE and visit www.nutritionaltherapy.com/podcast to record a question for the show. *Not all practitioners of each title are created equally. Remember to give multiple practitioners under one umbrella a chance. This is true for both allopathic and alternative care. :)

GeriPal - A Geriatrics and Palliative Care Podcast
PC Trials at State of Science: Tom LeBlanc, Kate Courtright, & Corita Grudzen

GeriPal - A Geriatrics and Palliative Care Podcast

Play Episode Listen Later Mar 28, 2024 39:41


One marker of the distance we've traveled in palliative care is the blossoming evidence base for the field. Ten years ago we would have been hard pressed to find 3 clinical trial abstracts submitted to the annual meeting, much less high quality randomized trials with robust measures, sample sizes, and analytics plans.  Well, as a kick off to this year's first in-person State of the Science plenary, held in conjunction with the closing Saturday session of the AAHPM/HPNA Annual Assembly, 3 randomized clinical trials were presented. Today we interview the authors of these 3 abstracts about their findings: Tom LeBlanc about a multisite trial of palliative care for patients undergoing Stem Cell Transplant for blood cancers (outcomes = quality of life, depression, anxiety) Kate Courtright about a pragmatic trial of electronic nudges to prognosticate and/or offer comfort-focused treatment to mechanically ventilated ICU patients/surrogates (outcomes = lengths of stay, hospice, time to discontinuation of life-support) Corita Grudzen on a pragmatic trial of two palliative care approaches for patients with advanced cancer or organ failure discharged from the ED: a nurse-led telephone intervention or outpatient specialty palliative care clinic (outcomes = quality of life, symptom burden, loneliness, healthcare utilization) Wow! I'm just stunned even writing that! We've come so far as a field. This isn't to say we've “made it” - more to say that we've reached a new stage of maturation of the field - in which the evidence we are discussing is frequently high quality randomized trial level data.  We recorded this on Friday during the annual assembly, and Eric and I were a littttttle off our game due to the residual effects of the GeriPal pub crawl the night before, which were only compounded by technical difficulties.  I believe these issues were more than made up for by our guests' forced accompaniment to the song “Feel Like Making Science.” (Credit to the Beeson singing crew for coming up with that one). Enjoy! -@AlexSmithMD  

The Scoot Show with Scoot
The "Light up the Season" Radiothon at Children's Hospital - Hour 2

The Scoot Show with Scoot

Play Episode Listen Later Dec 7, 2023 30:35


Broadcasting LIVE from Children's Hospital, it's the Light up the Season" Radiothon presented by CHNOLA and WWL.  This hour, Scoot speaks with:            Jessica Brandt, philanthropist and presenting sponsor of Radiothon        Dr. Ben Watkins, Director of the Stem Cell Transplant and Cell Therapy Program Alicia Martes, parent of a patient of Children's Hospital

Myeloma Crowd Radio
Stem Cell Transplant Advances and Use in the Age of Immunotherapy

Myeloma Crowd Radio

Play Episode Listen Later Sep 20, 2023 65:00


Stem cell transplant remains a useful and widely used treatment for multiple myeloma. John DiPersio, MD, PhD of the Siteman Cancer Center at Washington University joins HealthTree Podcast for Multiple Myeloma to discuss stem cell transplant in myeloma, a new and better way to collect stem cells as part of the process and the utility of stem cell transplant in the age of immunotherapies.  Thanks to our episode sponsor, GSK

KIC POD
Jordan Lambropoulos is now thriving after fighting for her life just 3 months ago

KIC POD

Play Episode Listen Later Aug 22, 2023 33:09


You may have come across Jordy on Tiktok (@itsjordysworld) where she very openly shares the details of her life with a chronic illness and living with an ostomy bag. At age 9, Jordy was diagnosed with a rare case of Crohn's disease - an incurable chronic inflammatory bowel condition where her body attacks her own digestive system. Only a few months ago, she was fighting for her life in the process of a stem cell transplant, but after a successful surgery (and the first of its kind in Australia) she is now thriving and things are looking up for the 25 year old. In today's KICPOD episode, Jordy so eloquently shares her journey of what led her to the transplant, how it felt thinking her time was up, and what it was like filming a goodbye video for her family. She also explains what life is like with an ostomy bag, how she is confident to be 100% herself on social media, and her feelings around the prospects of dating.See omnystudio.com/listener for privacy information.

Cancer Actually F***ing Sucks
Tori McGee - Hodgkins Lymphoma & Stem Cell Transplant Survivor, Guillain-Barre Syndrome Warrior

Cancer Actually F***ing Sucks

Play Episode Listen Later Jul 13, 2023 51:44


This week we're talking to Tori McGee, who is a two time Hodgkins Lymphoma survivor, stem cell survivor and Guillain-Barre Syndrome warrior. She has now been in remission since last March 2022! She shared with us how important it is to listen to your body rather than just go through the motions of life and accept not feeling great. Tori also opens up about how before her diagnosis she was always go go go and never took breaks or time for herself, and now moving forward how important that is her for her and her health. She talks about the process of getting diagnosed and how scary it was seeing her scan results for the first time and how due to the size of her tumor she wasn't able to do anything in regards to fertility prior to treatment.  Tori also walks us through the stem cell transplant process and how it went for her, and how she ended up also getting diagnosed with Guillain-Barre Syndrome (GBS), which is an autoimmune disease that attacks the nerve endings.  She provides some amazing advice and tips on how she stays so positive and has such a great perspective on life, taking one day at a time and prioritizing your health.  You can check out Tori's website at iamstoritelling.com and follow her in Instagram at @storitelling. Don't forget to rate, review and subscribe to the pod and follow us on Insta @canceractuallysuckspod!

Neurology® Podcast
Hematopoietic Stem Cell Transplant in Secondary Progressive MS

Neurology® Podcast

Play Episode Listen Later Mar 13, 2023 21:54 Very Popular


Dr. Shuvro Roy talks with Dr. Matilde Inglese about comparing stem-cell transplants to DMTs in patients with Secondary Progressive MS. Read the related article in Neurology®.

Passion Struck with John R. Miles
Jess Faulds On How Stem Cell Transplant Cured Her MS and the Nutrition Science That Promoted Recovery EP 93

Passion Struck with John R. Miles

Play Episode Listen Later Dec 28, 2021 59:29


Jess Faulds is a certified holistic nutrition consultant diagnosed with Multiple Sclerosis (M.S.) at the age of 15. Through her M.S. journey, she suffered through different disease-modifying drugs and treatments before having a stem cell transplant! She sits down with John R. Miles on The Passion Struck Podcast to discuss how Haematopoietic Stem Cell Transplantation (HSTC) cured her M.S. and the nutrition science that promoted recovery. New to this channel and the passion-struck podcast? Check out our starter packs which are our favorite episodes grouped by topic, to allow you to get a sense of all the podcast has to offer. Go to https://passionstruck.com/starter-packs/. Do You Need To Ship Packages? Try ShipStation ShipStation makes shipping the easy part of running your online store. So you can get back to doing what you're passionate about—growing your business. Just go to ShipStation.com, click on the microphone at the top, and enter code PASSIONSTRUCK.   Like this? Please join me on my new platform for peak performance, life coaching, self-improvement, intentional living, and personal growth: https://passionstruck.com/ and sign up for our email list. Learn more about me: https://johnrmiles.com. SHOW NOTES 0:00 Introduction 3:41 Her diagnosis of M.S. at only 15 7:45 The rarety of it in teens 10:27 Different types of M.S. 16:33 Discovering nutrition science 19:33 Disease-modifying therapies for M.S. 23:09 Undergoing stem cell treatment 29:52 How nutrition science promoted recovery 36:19 Why more doctors aren't talking about diet:  39:56 How the 5 AM Club changed her life 43:48 Discussing the book How Not to Die: Discover the Foods Scientifically Proven to Prevent and Reverse Disease 46:02 A typical day in the life of Jessica Faulds 49:09 She recommends eating the rainbow 50:34 Quick Rapid Round of Questions ===== FOLLOW JESS FAULDS ===== *Personal Instagram: https://www.instagram.com/jessicakcfaulds/ *Instagram: https://www.instagram.com/alltherightbites/ *Facebook: www.facebook.com/alltherightbites/ * website: www.alltherightbites.ca   ===== FOLLOW JOHN R. MILES ON THE SOCIALS ===== * Twitter: https://twitter.com/Milesjohnr * Facebook: https://www.facebook.com/johnrmiles.c0m * Medium: https://medium.com/@JohnRMiles​ * Instagram: https://www.instagram.com/john_r_miles * LinkedIn: https://www.linkedin.com/company/JohnMiles * Blog: https://passionstruck.com/blog/ * Instagram: https://www.instagram.com/passion_struck_podcast   ====== ABOUT JOHN ====== John R. Miles leads a global movement called Passion Struck. He is passionate about being the catalyst who helps individuals expand into the most excellent version of themselves, unlocking the most no regrets life possible. He is a combat veteran, multi-industry CEO, successful entrepreneur, top podcast host, and author who is helping people worldwide regain their passion. John is one of the most-watched, quoted, and followed high-performance trainers globally, and his leadership acumen spans more than two decades. He's founded or co-founded more than half a dozen successful start-ups, was a Fortune 50 CIO and CISO, mentors rising entrepreneurs, and invests in successful tech ventures. He graduated from the U.S. Naval Academy, where he learned vital leadership skills and was a multi-sport Division 1 athlete.