Podcasts about stem cell transplant

Medical procedure to replace blood or immune stem cells

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Best podcasts about stem cell transplant

Latest podcast episodes about stem cell transplant

YXE Underground
Season Seven - Episode Six - Prairie Cancer Fertility Preservation

YXE Underground

Play Episode Listen Later Feb 20, 2025 43:31


A cancer diagnosis at any age is scary and life changing, but receiving this news the you are at a point in your life where having children, starting a family or growing your family is on your mind, raises a different set of challenges. Saskatoon's Prairie Cancer Fertility Preservation charity supports cancer patients when it comes to fertility challenges. Helping patients navigate fertility issues during a cancer diagnosis is something Dominique Paulgaard and Lierin Baerg do in their roles as nurses at Royal University Hospital and with their charity, Prairie Cancer Fertility Preservation. The charity was started three years by a group of oncology nurses in Saskatoon and today features Jessica Smith, Taylor Huang, Lierin Baerg and Dominique Paulgaard as its members. The purpose of Prairie Cancer Fertility Preservation is to preserve the ability for cancer patients to have children. As I learned from Lierin and Dominique, this can either be through sperm or egg preservation, and as you are about to hear, it can be quite the journey. Lieren as been a Registered Nurse at Royal University Hospital's Inpatient Cancer and Stem Cell Transplant unit for the past 10 years. Dominique has been a nurse in the same unit for 13 years. They both have families with young children and find the time to run this charity.How the charity works, why it means so much to them, and what conversations are like with their patients when it comes to fertility are topics we cover in our conversation. We also discuss how overwhelming it is for someone who has just received a cancer diagnosis to think about if they want to preserve their ability to have children in the future and the financial challenges that come with their decision.Prairie Cancer Fertility Preservation has a fundraising event on Saturday, March 15th at Crossmount Cider Company. Tickets are 50 dollars and Saskatoon's Ross Nielsen will be playing live sets of music. You can learn more by following Prairie Cancer Fertility Preservation on Facebook and Instagram, or click this link to purchase tickets.You can listen to YXE Underground wherever you find your favourite including Apple Podcast, Spotify, Goodpods or on yxeunderground.com. Please feel free to leave a 5-star review if you like what you hear. These positive reviews help the podcast show up in more podcast feeds so I really do appreciate the support. I also want to let you know of an exciting event I am working on with the Remai Modern. Please mark April 17th on your calendar as that's when YXE Underground will be presenting a movie at the Remai Modern's lovely theatre beginning at 7pm. This is thanks to Kyle Zurevinski, who runs the theatre programming at the Remai, and his generous spirit. We will be showing the short film Molly Schikosky and I made last summer celebrating the podcast followed by the Pixar classic, Wall-E because it's one of my favourite movies of all time and I think it connects nicely to YXE Underground in meaningful ways. The Remai does this with other community organizations who select a movie for the public to watch for free and it's really cool to partner with the gallery in this way. Plus, it's free to attend!So I would love to see you on the night of Thursday, April 17th, to celebrate the podcast and watch one of the best films of the past 20 years.Thank you for continuing to support a local, independent podcast here in Saskatoon.Cheers...Eric  Host, Producer, Editor: Eric AndersonTheme Music: Andrew DicksonWebsite: https://www.yxeunderground.comRecorded: On Treaty 6 Territory and the traditional homeland of the Metis

Afternoons with Pippa Hudson
On the couch: Young cancer fighter ready for stem cell transplant

Afternoons with Pippa Hudson

Play Episode Listen Later Feb 18, 2025 17:51


Pippa speaks to Amy Brand who is only a few days way from going into hospital for a stem cell transplant – but she is so passionate about raising awareness of this issue that she was adamant we needed to speak to her ahead of that procedure.See omnystudio.com/listener for privacy information.

The Whole Paradox
Dancing with Death and the Yogic Journey with Ayla Nova

The Whole Paradox

Play Episode Listen Later Feb 11, 2025 58:07


In this episode, depth + somatic psychotherapist, and The Whole Paradox Host, Molly Mitchell-Hardt interviews Yoga Nidra guide, cancer survivor, and podcast host Ayla Nova. They talk about:The yogic journeyCancer diagnosis, dancing with death, and deep surrenderFinding and falling in love with Yoga NidraWorking with the narrative of "good" and "bad" versus non-dualityThe wheel of samsaraSitting with shadow and being "not okay" within spiritual communitiesRelationship with fearand so much more...Follow us @mollymitchellhardt and @thewholeparadoxMolly's Offerings:To inquire about 1:1 work or about Molly's Sacred Motherhood Online Support Group, schedule a free consultation or email mollymitchellhardt@gmail.comFind Ayla Nova:Follow Ayla on instagramVisit Ayla's website and find her Yoga Nidra trainingThis podcast was produced in association with Channel the Sun by Kevin Joseph Grossmann.  Musical stylings by Kevin Joseph Grossmann.

Oncotarget
Rare Case of Donor Cell-Derived Blood Cancer Discovered Nine Years After Stem Cell Transplant

Oncotarget

Play Episode Listen Later Feb 10, 2025 4:35


BUFFALO, NY - February 10, 2025 – A new #casereport was #published in Volume 16 of Oncotarget on February 5, 2025, titled “A case report of donor cell–derived hematologic neoplasms 9 years after allogeneic hematopoietic cell transplantation." In this case report, Aleksandra Mroczkowska-Bękarciak and Tomasz Wróbel from Wroclaw Medical University describe a rare and serious complication after a stem cell transplant. The case involves a patient who, nine years after receiving a stem cell transplant for acute myeloid leukemia (AML), developed a new, aggressive blood cancer originating from donor cells. Despite receiving treatment, the disease progressed to myelodysplastic syndrome/acute myeloid leukemia (MDS/AML), ultimately leading to the patient's death. Stem cell transplants are a life-saving treatment for many blood cancers, including AML. While relapse of the original cancer is the most common concern, this case highlights another rare but serious complication: the development of donor cell-derived hematologic neoplasms (DCHN). The report details the case of a 23-year-old woman who remained in remission for nearly 10 years following a successful hematopoietic stem cell transplant from an unrelated donor. However, she later developed a new form of leukemia, driven by genetic mutations in the ASXL1, SETBP1, and EZH2 genes—biomarkers linked to highly aggressive blood cancers. Over the next two years, the disease progressed despite intensive treatment, ultimately proving fatal. This case highlights the need for continued monitoring of transplant recipients, even years after the procedure. Although DCHN is extremely rare, its occurrence raises critical questions about the process by which donor cells transform into leukemia. Some stem cell donors may unknowingly carry genetic mutations that are harmless in their own bodies but could trigger cancer in recipients. Additionally, factors such as immunosuppressive therapy, bone marrow stress, and transplantation procedures may contribute to these rare but deadly outcomes. “Early diagnosis and intervention are crucial to improving patient prognosis.” Ongoing research is focused on improving donor screening methods to help predict and prevent these complications. In the future, routine genetic testing for stem cell donors could become a standard part of the transplant process, helping clinicians identify potential risks before transplantation. More studies are needed to fully understand why donor-derived cancers develop and how they can be prevented. With continued progress in precision medicine and genetic diagnostics, researchers aim to make stem cell transplants safer and more effective for all patients. DOI - https://doi.org/10.18632/oncotarget.28686 Correspondence to - Aleksandra Mroczkowska-Bękarciak - omroczkowska@interia.pl Video short - https://www.youtube.com/watch?v=G2zd0UqWzeE About Oncotarget Oncotarget (a primarily oncology-focused, peer-reviewed, open access journal) aims to maximize research impact through insightful peer-review; eliminate borders between specialties by linking different fields of oncology, cancer research and biomedical sciences; and foster application of basic and clinical science. Oncotarget is indexed and archived by PubMed/Medline, PubMed Central, Scopus, EMBASE, META (Chan Zuckerberg Initiative) (2018-2022), and Dimensions (Digital Science). To learn more about Oncotarget, please visit https://www.oncotarget.com and connect with us: Facebook - https://www.facebook.com/Oncotarget/ X - https://twitter.com/oncotarget Instagram - https://www.instagram.com/oncotargetjrnl/ YouTube - https://www.youtube.com/@OncotargetJournal LinkedIn - https://www.linkedin.com/company/oncotarget Pinterest - https://www.pinterest.com/oncotarget/ Reddit - https://www.reddit.com/user/Oncotarget/ Spotify - https://open.spotify.com/show/0gRwT6BqYWJzxzmjPJwtVh MEDIA@IMPACTJOURNALS.COM

Lyrical Audio Candy Tour
Tips for Stem Cell Transplant E12 S7

Lyrical Audio Candy Tour

Play Episode Listen Later Feb 6, 2025 25:55


Just the ongoings of my life so far. He is day 8 post stem cell transplant. Giving some tips on how to create an organized medication system and tips on how to prepare for Stem Cell Transplantation. Enjoy.

Marrow Masters
Chronic GVHD Survival Tips from Nurse Krista Wood

Marrow Masters

Play Episode Listen Later Jan 30, 2025 23:36


In today's episode, we talk with Krista Wood, a registered nurse with the Cell Therapy and Transplant Program at Victoria General Hospital in Halifax, Nova Scotia (Canada). Krista shares her invaluable insights and experiences working with patients dealing with chronic graft-versus-host disease (GVHD), a common complication following stem cell transplants. Our discussion delves into the importance of communication, post-transplant care, and finding joy and purpose during survivorship.Krista emphasizes that early detection and treatment of GVHD are critical. She encourages patients to report any changes, no matter how minor they may seem, and reassures them that healthcare teams are there to help. This open communication is vital, as post-transplant life can be overwhelming with fears of relapse or complications. Ensuring patients have direct access to their care team can ease their anxieties and foster trust.Routine health checks, like blood work and pulmonary function tests, play a crucial role in monitoring potential complications. Krista explains the importance of tracking liver enzymes, bone density, and lung function to catch and address issues early. She underscores that post-transplant care goes beyond the transplant itself, extending to overall health maintenance, including routine screenings like mammograms, dental care, and colorectal exams.Reconnecting with life post-transplant is another important theme. Krista encourages patients to rediscover the activities they loved before their illness, whether it's returning to work, volunteering, or pursuing hobbies. Work and social engagement provide purpose and can aid emotional recovery. For those who can't return to work, finding alternative ways to contribute, such as volunteering with organizations like the Leukemia & Lymphoma Society or HealthTree, can offer fulfillment and connection. (Note: the National Bone Marrow Transplant Link (nbmtLINK) has a peer mentor program as well, email info@nbmtlink.org if you'd like to be a peer or need a peer mentor. )Preparing for transplant and understanding GVHD beforehand is crucial. While some patients prefer to know everything, others may only want the basics. Krista and her team provide consistent education in manageable increments to help patients absorb key information. She explains factors that increase the risk of GVHD, such as donor characteristics and patient preconditioning, and stresses the importance of entering the transplant process in the best possible physical shape.Krista also highlights the importance of addressing sensitive topics like sexual health, which many patients are reluctant to discuss. She brings up these issues proactively, ensuring patients feel supported and have access to necessary resources.Finally, Krista shares stories of hope, including patients who, despite long-term challenges, have regained a sense of normalcy and fulfillment. She reminds us that while every patient's journey is unique, resilience and adaptation are common threads in their recovery.This episode is a testament to the critical role nurses like Krista play in guiding patients through this complex medical journey, offering care, education, and encouragement every step of the way.More:Leukemia & Lymphoma Society: https://www.lls.orgHealthTree Foundation: https://www.healthtree.orgGVHD Alliance: https://www.gvhdalliance.orgLink to LLS free Nutrition Consultations: https://www.lls.org/managing-your-cancer/food-and-nutritionThank you to our sponsors. This season is supported by a healthcare contribution from Sanofi  https://www.sanofi.com/ National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.To participate in the GVHD Mosaic, click here: https://amp.livemosaics.com/gvhd

MedStar Health DocTalk
Stem Cell Transplant & Cellular Immunology

MedStar Health DocTalk

Play Episode Listen Later Jan 14, 2025 18:37


Send us a textThe MedStar Georgetown University Hospital Stem Cell Transplant and Cellular Immunotherapy Program is the only adult, FACT-accredited program in the Washington, D.C., area. We give patients with cancers affecting the blood or immune system and other disorders access to life-saving treatment options not otherwise available in our region. These include:·       Allogeneic stem cell transplant·       Autologous stem cell transplant·       CAR T-cell therapyAlaa Ali, MD, MSC, is a clinician, instructor, and investigator in clinical and translational research at MedStar Georgetown's Stem Cell Transplant and Cellular Immunotherapy program. Concurrrently, he holds the position of Assistant Professor at Georgetown University School of Medicine.For an interview with Dr. Ali, or for more information about this podcast, contact MedStar Georgetown University Hospital Manager Media Relations, Ryan.M.Miller2@Medstar.net. Learn more about Dr. Ali. For more episodes of MedStar Health DocTalk, go to medstarhealth.org/doctalk.

Sh!t Talkers
Double the Love: Jordy's Journey to Twin Motherhood After a Stem Cell Transplant

Sh!t Talkers

Play Episode Listen Later Dec 11, 2024 97:34


Send us a textThis week on Sht Talkers Pod*, Soph and Kell sit down with our girl Jordy to talk about her incredible journey—because this isn't just any pregnancy... it's twins!

Stretch Marks
40: Áine O'Donnell - My Multiple Sclerosis Fight

Stretch Marks

Play Episode Listen Later Nov 20, 2024 68:37


NEW! "The 40's Stretch" - A new season from Stretch Marks PodcastWe are stretching - this time into our 40's.Meet Áine O'Donnell - one of my closest friends and favourite humans.At 27 she was diagnosed with MS, Multiple Sclerosis, an incurable neurological condition that interrupts communication between the brain and the rest of the body. Eventually, the disease can cause permanent damage and loss of power.At 40, she lost her dad, got married and learned that her hero drugs have failed her.And this week, as this goes out, she begins the process of a Stem Cell Transplant in the UK - her last chance to hold back her advancing MS.But it's not all tears. We laugh. We reminisce.We talk about the grief of losing her dad. And marrying the love of her life Tara.And in this one hour - she will teach you more about life than anyone could.DONATE xxTo help with the financial burden of this fight, friends have set up a GOFUNDME page for Áine.To donate to this page and support my wonderful friend, you can follow the link here. Áine - we love you, fight like hell. Supported by Key For Her - Their two-step supplement includes two unique blends to support your daily wellness and help naturally alleviate the symptoms associated with menstruation, perimenopause and menopause.Use the discount code STRETCH for 20% off your first order across all products on keyforher.com "The 40's Stretch" is a Stretch Marks Production,Hosted by Sinéad O'Moore, produced by The Brand Story and sound edited by Alan Breslin.Contact: stretchmarkspod@gmail.comhttps://www.instagram.com/stretchmarkspodcast/ Hosted on Acast. See acast.com/privacy for more information.

Marrow Masters
Caregiver Laurie and Survivor Dave Reflect on Their Recent CAR T Life-Saving Experience

Marrow Masters

Play Episode Listen Later Nov 15, 2024 32:00


In this episode of Marrow Masters, we hear the journey of married couple Dave and Laurie Brock, as they share their experience with CAR T-cell therapy— one Dave very recently underwent. The Brocks provide an inspiring and honest account of navigating this complex treatment process. Dave, diagnosed with multiple myeloma in 2015, had an eight-year remission following a stem cell transplant. When he relapsed earlier this year, his doctor, Dr. Abdullah at the University of Kansas Medical Center, recommended CAR T-cell therapy, which had just been FDA-approved for patients in his position. Dave recalls his surprise that what once felt like a “futuristic” option was now available and could be pursued immediately.As Dave began CAR T- cell therapy, he leaned on advice he received early in his treatment: maintain a positive attitude, be informed, and work closely with his healthcare team. Physical fitness played a crucial role in his journey, allowing him to hike and stay active, which he believes aided his recovery. However, the therapy wasn't without challenges. He experienced significant fatigue, developed Bell's palsy as a side effect, and had to constantly monitor for signs of neurotoxicity.Laurie  is Dave's "care partner," not "care giver." And she describes the intensive nature of navigating CAR T- cell therapy. She monitored Dave around the clock, prepared their home with stringent health protocols, and managed the complexities of his medication and appointments. Laurie's commitment required self-sacrifice; she isolated from family and even stopped going to the gym to protect Dave from exposure to illness. However, she also found unexpected joy in the time spent alone with Dave, as they grew closer through shared activities and humor.Both Dave and Laurie emphasize gratitude—appreciating their medical team, the support of their community, and the positive outcomes of CAR T-cell therapy. Their care team was deeply invested in their success, with doctors even celebrating with them on day 31 when test results confirmed Dave was in remission. Dave reflects on how fortunate he feels for his proximity to the clinic and his medical staff's expertise, acknowledging the importance of clinical trials and the contributions of previous patients in advancing treatments like CAR T.The episode closes with Dave's reminder: we're all in this together, underscoring the value of community, support systems, and the role that clinical trials play in the ongoing advancements in cancer treatment.  He also shares his gratitude for anyone who's participated in a clinical trial.  Without them, he wouldn't have had the opportunity to undergo this cutting-edge treatment. This season is made possible thanks to our sponsors:Kite, a Gilead company: http://www.kitepharma.com/and Bristol Myers Squibb's CAR T support services program:https://www.celltherapy360.com/ Follow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/Or visit our website at https://www.nbmtlink.org/

The Cancer Pod: A Resource for Cancer Patients, Survivors, Caregivers & Everyone In Between.
Dr. Amy Rothenberg on Healing After Treatment

The Cancer Pod: A Resource for Cancer Patients, Survivors, Caregivers & Everyone In Between.

Play Episode Listen Later Oct 30, 2024 53:55 Transcription Available


Dr. Amy Rothenberg, a respected naturopathic physician and three-time cancer survivor, shares her story of multiple cancer diagnoses and treatments. Her most recent treatment was a stem cell transplant in 2024 for acute leukemia. Dr. Rothenberg gives valuable insights into integrative cancer care, the importance of gut health, and practical tips for caregivers. The conversation also emphasizes the significance of maintaining a healthy lifestyle and seeking open-minded, collaborative healthcare providers. Tune in for an informative and inspiring discussion on navigating cancer care holistically.Link to Dr. Rothenberg's social media and websiteBe The Match Program - Becoming a stem cell donorWhat is a Stem Cell Transplant? NIH explanationTips for Caregivers of Patients — a guest blog post by Dr. RothenbergUnderstanding Cancer-Related FatiguePrevious podcast episodes :Dr. Amy Rothenberg's initial interview with usCancer-Related FatiguePrebiotics (Microbiome stuff)Chemotherapy-Induced NeuropathySupport the showOur website:https://www.thecancerpod.com Email us: thecancerpod@gmail.comJoin our growing community! We are @TheCancerPod on: Instagram Twitter Facebook LinkedIn THANK YOU for listening!

All Things Cardio Oncology
Cardiovascular Risk After Stem Cell Transplant

All Things Cardio Oncology

Play Episode Listen Later Sep 23, 2024 30:38


Dr. Alexis Vasbinder, University of Washington School of Nursing, Seattle, USA Read her article here: https://www.jacc.org/doi/10.1016/j.jaccao.2023.07.007

Dimed Out
Season 5, Episode 7: The Road to Mexico - Part 2

Dimed Out

Play Episode Listen Later Jun 26, 2024 55:14


In this episode of your third favourite, above average, but infinitely curious podcast DIMED OUT... The months, weeks, and days are counting down until I head to Puebla, Mexico for HSCT treatment. In this second of a two parter, I go through my mental/emotional state and the practical preparation ahead of my Stem Cell Transplant. Follow Me on the Gram' https://www.instagram.com/iammalfoster/ Kofi (or Tea?) https://ko-fi.com/dimedout DIMED OUT is an anthropological Podcast dedicated to exploring the mysteries and meaning of life. An audio kaleidoscope of culture and society, alternative lifestyles and life experiences. --- Send in a voice message: https://podcasters.spotify.com/pod/show/dimedout/message --- Send in a voice message: https://podcasters.spotify.com/pod/show/dimedout/message

The Conversing Nurse podcast
Stem Cell Transplant Nurse, Dora Loun

The Conversing Nurse podcast

Play Episode Play 60 sec Highlight Listen Later Jun 19, 2024 56:55 Transcription Available


Send us a Text Message.I recently came across Dora Loun's LinkedIn profile, and her bio as a stem cell transplant nurse piqued my interest. However, when I had a conversation with her, I realized that what I thought she did and what she actually does are vastly different.Dora's experience in critical care nursing provided her with the perfect foundation for caring for some of the most severely ill patients. I usually ask my guests to walk me through a typical day in their life as a nurse, but Dora took a different approach. She instead described what her patients go through before, during, and long after a stem cell transplant. This was an intelligent move because hearing about the patients' hopes and dreams for the future, anxieties about the treatment, physical ailments from the medication's side effects, the isolation of loneliness, and the bond they form with their nurses gave me a deeper insight into Dora's work. And Dora's work entails providing hope for the future, care for the present, and comfort when time has run out. In the five-minute snippet: She's going to need a lot of coffee. For Dora's bio, please visit my website (link below).Dora's LinkedInBe The MatchContact The Conversing Nurse podcastInstagram: https://www.instagram.com/theconversingnursepodcast/Website: https://theconversingnursepodcast.comYour review is so important to this Indie podcaster! You can leave one here! https://theconversingnursepodcast.com/leave-me-a-reviewWould you like to be a guest on my podcast? Pitch me! https://theconversingnursepodcast.com/intake-formCheck out my guests' book recommendations! https://bookshop.org/shop/theconversingnursepodcast Email: theconversingnursepodcast@gmail.comThank you and I'll talk with you soon!

Marrow Masters
Janet Young Shares Challenging Side Effects after AML Transplant

Marrow Masters

Play Episode Listen Later May 31, 2024 20:09


In today's episode, we have the pleasure of speaking with Janet Young from Massachusetts, who shares her challenging yet inspiring journey with acute myeloid leukemia (AML) and her subsequent stem cell transplant. Diagnosed in March 2022, Janet underwent a transplant in August of the same year after a regimen of intensive chemotherapy. Remarkably, her transplant occurs on her ACTUAL birthday, adding a poignant touch to her recovery story.Janet discusses the profound fatigue she experiences post-transplant, describing it as an overwhelming tiredness that significantly limited her daily activities initially. However, over 21 months, she's progressed from barely being able to walk to her driveway to completing a two-and-a-half-mile walk, a significant achievement in her recovery.Another major challenge Janet faces is the loss of muscle strength, for which she has been in physical therapy, greatly improving her stamina. Cognitive issues, particularly with memory and word recall, are also significant hurdles that Janet continues to navigate. These symptoms are common among transplant recipients and will slowly improve.Janet also touches on Graft Versus Host Disease (GVHD), a complication of her transplant manifesting mainly in her lower limbs. Treatment for GVHD includes starting a medication called Rezurock, which she hopes will be effective.Her social interactions have changed, too. She spent a year isolated post-transplant, which has altered her casual relationships although her closer friendships remain strong. Janet also mentions adapting her life to manage her energy better, using the "spoon theory" to prioritize activities based on her daily energy levels.Concluding the interview, Janet shares how she has had to modify her approach to planning and socializing, focusing on self-care and adjusting to a new normal. She remains thankful for every new day and emphasizes the importance of support groups in her ongoing recovery.This powerful story not only highlights the physical and emotional challenges of dealing with AML and undergoing a stem cell transplant but also showcases the resilience and gradual return to normalcy despite the challenges of GVHD. Janet's journey is a testament to the power of medical treatment, personal determination, and community support in navigating life after a major health crisis.Resources:Dana Farber Cancer Institute https://www.dana-farber.org/National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/nbmtLINK Facebook Page:  https://www.facebook.com/nbmtLINKnbmtLINK YouTube Page can be found by clicking here.Thank you to our sponsors. This season is supported by a healthcare contribution from Sanofi  https://www.sanofi.com/ Follow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/

Going anti-Viral
Episode 16 - Insights on HIV Cure by Stem Cell Transplant with Dr Ravindra Gupta Recorded Live at CROI 2024 on March 3, 2024

Going anti-Viral

Play Episode Listen Later May 7, 2024 20:40


Episode 16 -  Insights on HIV Cure by Stem Cell Transplant with Dr Ravindra Gupta Recorded Live at CROI 2024 on March 3, 2024 In this episode of Going anti-Viral, Dr Michael Saag hosts Dr Ravindra Gupta. Dr Gupta is the infectious diseases expert who led the team that treated Adam Castillejo, also known as ‘The London Patient,' the second person known to have been cured of HIV. The discussion, recorded on March 3, 2024, at the Conference on Retroviruses and Opportunistic Infections (CROI), focused on the intricate process of finding a suitable stem cell donor, the immunologic and virologic considerations around the transplant process, and the collaborative medical team effort involved.  00:00 Introduction 00:30 The London Patient 03:05 Finding the CCR5∆32 Stem Cell Match 04:21 Clinical Challenges on the Transplant Journey 06:58 Post-Transplant Monitoring and Milestones 15:53 Reflecting on the Journey 18:51 Closing Thoughts and Acknowledgments__________________________________________________Produced by IAS-USA, Going anti–Viral is a podcast for clinicians involved in research and care in HIV, its complications, and other viral infections. This podcast is intended as a technical source of information for specialists in this field, but anyone listening will enjoy learning more about the state of modern medicine around viral infections. Going anti-Viral's host is Dr Michael Saag, a physician, prominent HIV researcher at the University of Alabama at Birmingham, and volunteer IAS–USA board member. In most episodes, Dr Saag interviews an expert in infectious diseases or emerging pandemics about their area of specialty and current developments in the field. Other episodes are drawn from the IAS–USA vast catalogue of panel discussions, Dialogues, and other audio from various meetings and conferences. Email podcast@iasusa.org to send feedback, show suggestions, or questions to be answered on a later episode.Follow Going anti-Viral on: Apple Podcasts YouTube InstagramTikTok...

The Nutritional Therapy and Wellness Podcast
Ep 012 - An RN's Prognosis Pushback and Where To Start With Food

The Nutritional Therapy and Wellness Podcast

Play Episode Listen Later Apr 18, 2024 47:08


In this Nutritional Therapy and Wellness Podcast episode, host Jamie Belz interviews Rachel Ballard, an RN who wasn't willing to accept the prognosis of a slow, painful, premature death. Rachel is a Registered Nurse, farmer, and Food As Medicine teacher who is currently completing her Nutritional Therapy Practitioner (NTP) certification. After battling back from a rare, paralyzing autoimmune disease, she's helping individuals use food as a tool so they can fight back against chronic conditions and defy the odds. A lover of British television dramas, raising medicinal plants, and scratch cooking, Rachel lives on her Kentucky cattle farm with her husband of twenty-three years and two teenage children. In talking with Jamie, Rachel walks us through her declining health, eventual diagnosis of CIPD (Chronic Inflammatory Demyelinating Polyneuropathy), and her long road to recovery. 04:50 – Symptoms and red flags leading up to diagnosis: Hashimoto's, muscles in eye, limp leg, loss of strength, paralysis, felt like she was “on fire” 07:10 – CIPD Diagnosis with Central Nervous Symptom Overlap causing issues with vision, hearing, digestion, bowel and bladder control, and promoting cardiac arrhythmia 9:00 - IVIG (Intravenous Immunoglobulin) Treatment, Plasmapheresis, Stem Cell Transplant, slow decline 10:10 – Five years to live 11:02 – Subcutaneous IVIG Therapy Failed 13:02 – Hitting the point of desperation, looking at natural medicine for the first time, found the wrong natural medicine professionals for her preference and bio-individuality at the time 19:34 – Buying-in on the alternative approach 21:30 – Corruption in science, “follow the money” 22:30 – Working with an NTP, starting with digestion, making slow progress 27:53 – New hope, new career 30:31 – Bioindividuality 31:57 – TALKING ABOUT FOOD! Simple swaps, things to buy 40:17 - Mindset 42:04 – Car analogy 43:15 – Rachel's list of reversed symptoms/conditions 44:21 – Last question As you'll hear, taking the first steps into a more natural approach to wellness can be challenging, frustrating, expensive, and a little “weird.” Rachel shares how she didn't find any luck or answers with the alternative medicine practitioners she initially saw.* Her story is fun, relatable, and inspirational for those suffering from illness, as well as those looking to peek over the fence from the world of conventional medicine. You can find Rachel's food blog at www.feastandfarm.com. Please SUBSCRIBE and visit www.nutritionaltherapy.com/podcast to record a question for the show. *Not all practitioners of each title are created equally. Remember to give multiple practitioners under one umbrella a chance. This is true for both allopathic and alternative care. :)

GeriPal - A Geriatrics and Palliative Care Podcast
PC Trials at State of Science: Tom LeBlanc, Kate Courtright, & Corita Grudzen

GeriPal - A Geriatrics and Palliative Care Podcast

Play Episode Listen Later Mar 28, 2024 39:41


One marker of the distance we've traveled in palliative care is the blossoming evidence base for the field. Ten years ago we would have been hard pressed to find 3 clinical trial abstracts submitted to the annual meeting, much less high quality randomized trials with robust measures, sample sizes, and analytics plans.  Well, as a kick off to this year's first in-person State of the Science plenary, held in conjunction with the closing Saturday session of the AAHPM/HPNA Annual Assembly, 3 randomized clinical trials were presented. Today we interview the authors of these 3 abstracts about their findings: Tom LeBlanc about a multisite trial of palliative care for patients undergoing Stem Cell Transplant for blood cancers (outcomes = quality of life, depression, anxiety) Kate Courtright about a pragmatic trial of electronic nudges to prognosticate and/or offer comfort-focused treatment to mechanically ventilated ICU patients/surrogates (outcomes = lengths of stay, hospice, time to discontinuation of life-support) Corita Grudzen on a pragmatic trial of two palliative care approaches for patients with advanced cancer or organ failure discharged from the ED: a nurse-led telephone intervention or outpatient specialty palliative care clinic (outcomes = quality of life, symptom burden, loneliness, healthcare utilization) Wow! I'm just stunned even writing that! We've come so far as a field. This isn't to say we've “made it” - more to say that we've reached a new stage of maturation of the field - in which the evidence we are discussing is frequently high quality randomized trial level data.  We recorded this on Friday during the annual assembly, and Eric and I were a littttttle off our game due to the residual effects of the GeriPal pub crawl the night before, which were only compounded by technical difficulties.  I believe these issues were more than made up for by our guests' forced accompaniment to the song “Feel Like Making Science.” (Credit to the Beeson singing crew for coming up with that one). Enjoy! -@AlexSmithMD  

Into the Wee Hours Podcast
Sophie Gray, on life & movement after a stem cell transplant; leukaemia recovery while through-hiking the Heysen Trail; camel trekking and sharing her love and practice of yoga

Into the Wee Hours Podcast

Play Episode Listen Later Mar 19, 2024 77:29


Episode 51! Today I speak to the very lovely Sophie Gray, originally from the UK, now based on SA's Fleurieu Peninsula.Sophie generously shares with us her reality of a shock diagnosis of Acute Myeloid Leukaemia at 29, which subsequently resulted in a lifesaving stem cell transplant. While trapped in a hospital ward for over a month, Sophie looked out of the hospital windows at the countryside surrounding Adelaide, wishing she were out exploring. Indeed nature and movement have formed a major part of Sophie's recovery, and without having ever gone on a multiday hike before, Sophie embarked on a through hike of the 1200km Heysen Trail as part of her journey.Now working as a yoga teacher, we cover a range of topics including:the magic of yoga, meditation and breathworkmovement as medicinehow you may be able to make a difference to someone else's life through the stem cell registrySophie's own Yoga after Cancer course creationhiking the 1200km Heysen Trail (with a few days left to complete, thanks to a sprained ankle along the way!)Camel trekking through the desertSophie references the organisations Strength to Give and Ur the Cure.We also mention Sophie Matterson's book, The Crossing. You can find Sophie on Instagram at @sophiegrayyogaThanks as always to the podcast Patreon supporters - you're amazing! You can help keep the podcast lights on and join the community here: www.patreon.com/intotheweehourspodcast Hosted on Acast. See acast.com/privacy for more information.

WWL First News with Tommy Tucker
Children's Hospital helps families around the area. Now they need YOUR help

WWL First News with Tommy Tucker

Play Episode Listen Later Mar 5, 2024 11:49


Tommy talks to Dr. Zachary Leblanc, a hematologist oncologist at Children's Hospital and a member of the Stem Cell Transplant team

The Aubrey Masango Show
Medical Matters: Stem Cell Transplant/Bone Marrow donation

The Aubrey Masango Show

Play Episode Listen Later Jan 22, 2024 37:14


On Medical Matters this evening we look at the importance of stem cell donation. We learn about the different types of blood disorders and cancer and the role we can play in assisting people suffering from these disorders. Palesa Mokomele, Head of Community Engagement and Communications at DKMS Africa, joins to educate us on why we should consider donating our stem cells. See omnystudio.com/listener for privacy information.

JACC Speciality Journals
JACC: CardioOncology - Cardiovascular Events after Hematopoietic Stem Cell Transplant: Incidence and Risk Factors

JACC Speciality Journals

Play Episode Listen Later Dec 19, 2023 9:51


Marrow Masters
Survivor, Speaker, and Author Gregory Proctor

Marrow Masters

Play Episode Listen Later Dec 18, 2023 33:58


**Disclaimer: The information in this podcast should not be construed as medical advice. Please consult with your health care provider regarding your medical decisions and treatment. Any listed resources are not intended to be endorsements.**In today's episode of our podcast, we had the privilege of speaking with Gregory Proctor, a 53-year-old multiple myeloma survivor from San Antonio, Texas. Gregory's story is a testament to resilience and hope, as he details his journey through a challenging battle with cancer, starting from his diagnosis in July 2022, to his stem cell transplant, and his ongoing recovery. Gregory shares the shock and fear he experienced when first diagnosed, particularly when advised to "get his affairs in order." He describes the mental and emotional toll of dealing with such a diagnosis, emphasizing the importance of mental strength and determination in facing the disease. His story took a dramatic turn with his return to the hospital just 14 hours after being discharged, due to a dangerously high fever. This event marked the beginning of a challenging path to recovery, filled with physical weakness and stringent precautions to protect his compromised immune system.A significant part of Gregory's conversation focuses on the emotional challenges of coping with cancer. He talks about the initial period of depression and the process of accepting his new life and journey. This acceptance was crucial in shifting his mindset from despair to determination and finding a renewed sense of purpose.Financial toxicity was another critical topic Gregory touches upon. He sheds light on the staggering costs of cancer treatment and the importance of understanding insurance policies and seeking additional resources. His experience highlights the often-overlooked financial burden of battling cancer, which can be as devastating as the disease itself.Gregory also discussed the social isolation he experienced, exacerbated by the pandemic and his condition. He highlighted the changes he had to make in his daily routine, like visiting grocery stores during low-peak hours and carefully vetting his social interactions to avoid infections.On a positive note, Gregory spoke about regaining his strength and the incremental progress he made in his physical recovery. He emphasized the mental aspect of this journey, pushing boundaries to rebuild his strength gradually. His story is inspiring, showing that persistence and small, consistent efforts can lead to significant improvements over time.Gregory's approach to medication management was unconventional yet effective for him. He advocated for a treatment plan that made sense to him and allowed him to maintain some normalcy in his life. This part of the conversation underscored the importance of patient advocacy and being an active participant in one's treatment plan.As for his current life, Gregory is channeling his experiences into positive endeavors. He just published his book, titled Faith, Strength, and Courage, and is actively involved in speaking engagements and consultancy work. His story is a beacon of hope for many, illustrating how one can turn adversity into an opportunity to inspire and help others.Gregory concluded the podcast with valuable advice for those facing tough days. He stressed the importance of never giving up, finding strength in faith, and realizing that you're not alone in your journey. His message is clear: cancer may be a part of your life, but it doesn't define your entire existence.Greg's Book: Faith, Strength, and Courage on Amazon: https://www.amazon.com/FAITH-STRENGTH-COURAGE-Overcoming-Adversity/dp/760919834X/Other ResourcesNational Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/nbmtLINK Facebook Page:  https://www.facebook.com/nbmtLINKnbmtLINK YouTube Page can be found by clicking here.Thank you to our sponsors. This season is supported by a healthcare contribution from Sanofi  https://www.sanofi.com/

Marrow Masters
Multiple Myeloma Survivor Diane Raab

Marrow Masters

Play Episode Listen Later Dec 18, 2023 31:46


**Disclaimer: The information in this podcast should not be construed as medical advice. Please consult with your health care provider regarding your medical decisions and treatment. Any listed resources are not intended to be endorsements.**Today we welcome Diane Raab, a remarkable survivor of multiple myeloma and a licensed clinical social worker from Cheboygan, Michigan. Diane shares her personal journey through the challenging path of cancer treatment, sprinkling her narrative with both professional insights and deeply personal experiences.Diane's story begins with the diagnosis of multiple myeloma following persistent back pain. She recounts the rigorous process of diagnosis, which led to seven months of chemotherapy in preparation for a stem cell transplant. She remembers the steroids turned her into an 'Energizer Bunny,' enhancing her productivity during treatment.The focus then shifts to her transplant experience at the University of Michigan. Diane praises the comprehensive and detailed guide provided by the hospital, which helped alleviate much of her anxiety. She describes the fascinating process of stem cell harvesting and the convenience of using a port for medical procedures. However, the journey was not without its hardships, as Diane lost her hair due to the intensive chemotherapy, a side effect handled with grace and humor.Post-transplant, Diane faced numerous challenges in adjusting to everyday life, from being in a highly protected hospital environment to navigating the risks of infection at home. She had to adopt new hygiene practices, including daily showers with clean towels and washcloths, and careful food preparation to avoid infection risks. Diane also shares the emotional toll of not being able to socialize freely and the adjustments she made to stay connected with friends and family.Peggy and Diane delve into the physical changes Diane experienced after her transplant, particularly the fatigue and the need to listen to her body's demands for rest. Diane also touches on the mental aspects of coping with cancer, emphasizing the importance of avoiding negative online forums and focusing on reputable sources for information.Diane candidly discusses the challenges of acknowledging her cancer and the psychological impact of the diagnosis. She stresses the importance of therapy and talking about one's experiences, sharing personal anecdotes that highlight the therapeutic value of open communication.As the episode concludes, Diane offers invaluable advice for others going through similar experiences. She emphasizes the importance of following medical guidance, staying safe, and finding value in everyday life, relationships, and the simple things. Her story is a testament to resilience, adaptability, and the power of a positive outlook in the face of adversity.Other Resources:National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/nbmtLINK Facebook Page:  https://www.facebook.com/nbmtLINKnbmtLINK YouTube Page can be found by clicking here.Thank you to our sponsors. This season is supported by a healthcare contribution from Sanofi  https://www.sanofi.com/

Marrow Masters
Season 12 Trailer

Marrow Masters

Play Episode Listen Later Dec 8, 2023 3:12


Welcome to Season 12 of the Marrow Masters Podcast, brought to you by the National Bone Marrow Transplant link, and sponsored by Sanofi. This season focuses on one critical question. "I'm home, now what?" You'll hear candid stories and advice from survivors and caregivers. This season, you'll also get valuable advice from a registered dietician and a social worker. .Season 12 of the Marrow Masters Podcast is out December 19th, 2023. Don't miss an episode - follow our show for free on Apple, Spotify, YouTube, or at N-B-M-T-link-dot-org.

The Scoot Show with Scoot
The "Light up the Season" Radiothon at Children's Hospital - Hour 2

The Scoot Show with Scoot

Play Episode Listen Later Dec 7, 2023 30:35


Broadcasting LIVE from Children's Hospital, it's the Light up the Season" Radiothon presented by CHNOLA and WWL.  This hour, Scoot speaks with:            Jessica Brandt, philanthropist and presenting sponsor of Radiothon        Dr. Ben Watkins, Director of the Stem Cell Transplant and Cell Therapy Program Alicia Martes, parent of a patient of Children's Hospital

Myeloma Crowd Radio
Stem Cell Transplant Advances and Use in the Age of Immunotherapy

Myeloma Crowd Radio

Play Episode Listen Later Sep 20, 2023 65:00


Stem cell transplant remains a useful and widely used treatment for multiple myeloma. John DiPersio, MD, PhD of the Siteman Cancer Center at Washington University joins HealthTree Podcast for Multiple Myeloma to discuss stem cell transplant in myeloma, a new and better way to collect stem cells as part of the process and the utility of stem cell transplant in the age of immunotherapies.  Thanks to our episode sponsor, GSK

KIC POD
Jordan Lambropoulos is now thriving after fighting for her life just 3 months ago

KIC POD

Play Episode Listen Later Aug 22, 2023 33:09


You may have come across Jordy on Tiktok (@itsjordysworld) where she very openly shares the details of her life with a chronic illness and living with an ostomy bag. At age 9, Jordy was diagnosed with a rare case of Crohn's disease - an incurable chronic inflammatory bowel condition where her body attacks her own digestive system. Only a few months ago, she was fighting for her life in the process of a stem cell transplant, but after a successful surgery (and the first of its kind in Australia) she is now thriving and things are looking up for the 25 year old. In today's KICPOD episode, Jordy so eloquently shares her journey of what led her to the transplant, how it felt thinking her time was up, and what it was like filming a goodbye video for her family. She also explains what life is like with an ostomy bag, how she is confident to be 100% herself on social media, and her feelings around the prospects of dating.See omnystudio.com/listener for privacy information.

Cancer Actually F***ing Sucks
Tori McGee - Hodgkins Lymphoma & Stem Cell Transplant Survivor, Guillain-Barre Syndrome Warrior

Cancer Actually F***ing Sucks

Play Episode Listen Later Jul 13, 2023 51:44


This week we're talking to Tori McGee, who is a two time Hodgkins Lymphoma survivor, stem cell survivor and Guillain-Barre Syndrome warrior. She has now been in remission since last March 2022! She shared with us how important it is to listen to your body rather than just go through the motions of life and accept not feeling great. Tori also opens up about how before her diagnosis she was always go go go and never took breaks or time for herself, and now moving forward how important that is her for her and her health. She talks about the process of getting diagnosed and how scary it was seeing her scan results for the first time and how due to the size of her tumor she wasn't able to do anything in regards to fertility prior to treatment.  Tori also walks us through the stem cell transplant process and how it went for her, and how she ended up also getting diagnosed with Guillain-Barre Syndrome (GBS), which is an autoimmune disease that attacks the nerve endings.  She provides some amazing advice and tips on how she stays so positive and has such a great perspective on life, taking one day at a time and prioritizing your health.  You can check out Tori's website at iamstoritelling.com and follow her in Instagram at @storitelling. Don't forget to rate, review and subscribe to the pod and follow us on Insta @canceractuallysuckspod!

Spectrum | Deutsche Welle
The 'Dusseldorf patient' — or the search for a safe HIV cure

Spectrum | Deutsche Welle

Play Episode Listen Later Jul 13, 2023 29:59


Three people. Ever. That's how many have been cured of HIV. We visited one of them to learn about the extraordinarily rare (and risky) treatment — and to find out if it can, even indirectly, lead to a true cure for 40 million more.

The Root Cause Medicine Podcast
Reviving the Immune System: The Power of Hematopoietic Stem Cell Transplant for Autoimmune Disorders with Dr. Richard Burt

The Root Cause Medicine Podcast

Play Episode Listen Later Apr 27, 2023 58:48


The Root Cause Medicine Podcast is created by Rupa Health, the best way to order, track & manage results from 30+ lab companies in one place for free. The Root Cause Medicine Podcast is a weekly one-on-one conversation with renowned medical experts, specialists, and pioneers who are influencing the way we look at our health and wellbeing. This week we're joined by Dr. Richard Burt, Chief of the Division of Immunotherapy, Department of Medicine, Feinberg School of Medicine, Northwestern University, Chicago, Illinois. In this episode, Dr. Richard Burt shares his insights on hematopoietic stem cell transplant (HSCT) for autoimmune disorders. For thirty-five years, Dr. Burt dedicated himself to advancing stem cell and cellular therapy, beginning with animal models and, later, some of the world's first clinical trials. He authored over 145 articles, mostly as the first author, and edited four medical textbooks. As the first Autoimmune Committee Chairperson for the International Bone Marrow Transplant Registry (IBMTR), he led the way in developing stem cell clinical trials for autoimmune diseases, securing a National Institute of Health (NIH) $10,000,000 multi-center contract. Dr. Burt performed America's first hematopoietic stem cell transplant (HSCT) for multiple sclerosis (MS), systemic lupus erythematosus (SLE), Crohn's disease (CD), stiff person syndrome (SPS), and chronic inflammatory demyelinating polyneuropathy (CIDP). He also published the world's first randomized clinical stem cell transplantation trials for systemic sclerosis and multiple sclerosis. Dr. Burt's pioneering stem cell work earned him recognition as one of the top 50 people in the world for improving humanity by Scientific American in 2006, along with A1 Gore and Steve Jobs. In 2011, Science Illustrated recognized his stem cell work as one of the top 10 advances of the decade. Key Takeaways: What is a hematopoietic stem cell transplant? Hematopoietic stem cell transplantation (HSCT) is a medical procedure where multipotent stem cells are transplanted into a patient, typically from bone marrow, peripheral blood, or umbilical cord blood. These cells can replicate and produce new, healthy blood cells, which can rejuvenate or repair damaged tissue in different organs, and also help fight viruses and foreign tissue. While leukemia is caused by defects in the blood stem cells themselves, autoimmune diseases arise from defects in the immune cells produced by these stem cells. To treat autoimmune diseases, specialists target the effector cells responsible for the disease and eliminate them, then quickly regenerate healthy cells from the blood stem cell. By using HSCT to replace damaged or defective cells with healthy ones, physicians hope to mitigate the symptoms of autoimmune disorders and promote long-term recovery. This innovative approach to treatment is still undergoing testing and refinement, but it shows great promise in the fight against these debilitating diseases. Finding the optimal transplant regimen for autoimmune diseases If your regimen is too strong, whether it's myeloablative or non-myeloablative, you can have more toxicity and problems. If it's too weak, it's not going to be effective. And so you've got to find that right regimen. When finding the optimal transplant regimen for autoimmune diseases, the aim is to develop a treatment plan that maximizes the benefits of the transplant while minimizing the risks and complications associated with it. An optimal transplant regimen for autoimmune diseases involves selecting the appropriate donor, considering the type of transplant, choosing the right conditioning regimen, and determining the timing and dosing of immunosuppressive medications. Financial toxicity in American healthcare systems Financial toxicity is a growing concern in America, particularly in medical treatments. Unfortunately, this often leads to patients being prescribed expensive treatments that may not be the best option for their specific needs. To achieve successful outcomes with hematopoietic stem cell transplantation, two key factors need to be considered: patient selection and the conditioning regimen used. However, due to the financial pressures facing healthcare providers and institutions, specialists may feel obligated to prescribe expensive treatments, even if they are not necessarily the most appropriate option for the patient. This can be a major source of frustration for patients, who may struggle to afford these treatments or may not receive the care that they truly need. Dr. Burt emphasizes the importance of physicians taking responsibility for their patient's care and being mindful of the financial implications of their recommendations. Rather than being driven solely by financial considerations, doctors should focus on providing the best possible care for their patients. By doing so, they can help to mitigate the effects of financial toxicity and ensure that patients receive the treatments that are best suited to their individual needs.

Morning Medical Update
Surprise Facebook Post Helps Cancer Patient Find Stem Cell Transplant Match

Morning Medical Update

Play Episode Listen Later Apr 17, 2023 31:57


How did a random Facebook message help a man with cancer on the stem cell transplant list? Guests include Dr. Nasheen Ahmed, hematologist and medical oncologist; Dr. Chris Lominska, radiation oncologist; and Shelleen King, RN, bone marrow transplant coordinator.

Help and Hope Happen Here
On today's podcast Stephanie Yost will talk about being diagnosed with Acute Myeloid Leukemia in 2013 when she was 14 years old, the difficult treatment that she went through, and her decision to become a Child Life Specialist.

Help and Hope Happen Here

Play Episode Listen Later Apr 3, 2023 40:12


After running a low grade fever for over a week that was thought to be a virus, Stephanie Yost Was diagnosed with Acute Myeloid Leukemia at the age of 14 in 2013. Stephanie will talk about her 3 Chemotherapy treatments, her Stem Cell Transplant, and her decision to become a Child Life Specialist on today's podcast. 

CCO Infectious Disease Podcast
RSV in Adults: A Hidden Epidemic

CCO Infectious Disease Podcast

Play Episode Listen Later Mar 22, 2023 10:43


In this episode, Angela Branche, MD, and Helen Y. Chu, MD, MPH, discuss the impact of respiratory syncytial virus (RSV) and describe those at risk for severe RSV disease, including: RSV prevalence and seasonality  RSV burden throughout life, including burden in older adultsComorbidities that increase the risk of RSV complications  RSV transmission in the hospital and care home settingImplications of risk factors for severe RSV on prevention and treatment    Faculty: Angela Branche, MDAssociate Professor of MedicineDivision of Infectious DiseasesDepartment of MedicineUniversity of RochesterRochester, New YorkHelen Y. Chu, MD, MPHAssociate Professor of MedicineDivision of Allergy & Infectious DiseasesUniversity of Washington  School of MedicineSeattle, WashingtonLink to full program: bit.ly/3nb25xeLink to downloadable slides: bit.ly/3TsXym5

Neurology Minute
Hematopoietic Stem Cell Transplant In Secondary Progressive MS

Neurology Minute

Play Episode Listen Later Mar 16, 2023 2:39


Dr. Matilde Inglese discusses her article, "Hematopoietic Stem Cell Transplantation in People With Active Secondary Progressive Multiple Sclerosis". Show References: https://n.neurology.org/content/early/2022/12/21/WNL.0000000000206750

The Caregiver Cup Podcast
The Stem Cell Transplant Is Scheduled, Now What?

The Caregiver Cup Podcast

Play Episode Listen Later Mar 14, 2023 49:07


The Stem Cell Transplant Is Scheduled, Now What?  Or better yet, what all needs to be done? Before, Denis and I got home from the transplant doctor, the dates were booked but there were still so many unanswered questions.  Where will we going to stay?Would the insurance cover everything?Who would take care of our home, dogs and my mom?  In this episode, I want to share the preparation experience.  Some things went smoothly, others were learning experiences and also the things we didn't think about and forgot.  The doctors and the transplant team do a great job providing resources for your loved one, but as a caregiver, there was much more to plan and prepare.   That's why I'm sharing a series of episodes about my loved one's bone marrow transplant (aka stem cell transplant) so that you, the caregiver can find helpful tips and hints to make your journey a bit easier.Get the full episode notes at https://www.cathylvan.com/episode152Support the showThank you for listening. If you know of another caregiver who could benefit from this podcast, please copy and share this episode. Follow me by clicking on the links below: Join the Caregiver Cup Circle ❤️ If you're interested in 1:1 Coaching ➡️ schedule a 30 minute FREE chat CONNECT WITH CATHY ON INSTAGRAM @cathylynnvan for daily tips and inspiration

Neurology® Podcast
Hematopoietic Stem Cell Transplant in Secondary Progressive MS

Neurology® Podcast

Play Episode Listen Later Mar 13, 2023 21:54 Very Popular


Dr. Shuvro Roy talks with Dr. Matilde Inglese about comparing stem-cell transplants to DMTs in patients with Secondary Progressive MS. Read the related article in Neurology®.

OncLive® On Air
S8 Ep27: Milner, Dalal, and Ligon Discuss Stem Cell Transplant Methods, Results, and Risk Factors in Pediatric Patients

OncLive® On Air

Play Episode Listen Later Mar 13, 2023 15:59


Drs Milner, Dalal, and Ligon discuss hematopoietic stem cell transplant in children with severe aplastic anemia, graft failure risk factors in children receiving hematopoietic cell transplant for non-malignant disorders, and the use of mediports for CAR T-cell infusion.

The Caregiver Cup Podcast
Preparing For The Stem Cell Transplant

The Caregiver Cup Podcast

Play Episode Play 36 sec Highlight Listen Later Mar 7, 2023 23:08


It's a little over a year since my spouse began his stem cell transplant.   In this episode I reflect on the pre-transplant process.   One the biggest gaps I experienced was the lack of caregiver information.   The medical systems does a good job at providing resources and education for the patient, but the caregivers are  left to figuring it out on their own.  Support the showThank you for listening. If you know of another caregiver who could benefit from this podcast, please copy and share this episode. Follow me by clicking on the links below: Join the Caregiver Cup Circle ❤️ If you're interested in 1:1 Coaching ➡️ schedule a 30 minute FREE chat CONNECT WITH CATHY ON INSTAGRAM @cathylynnvan for daily tips and inspiration

CCO Oncology Podcast
Experts Answer Questions on Personalized Management of Patients With Myelodysplastic Syndromes

CCO Oncology Podcast

Play Episode Listen Later Feb 17, 2023 21:59


In this podcast, Rami Komrokji, MD; María Díez Campelo, MD, PhD; and Amer Zeidan, MBBS, MHS answer questions from an audience of healthcare professionals on topics related to personalized management of myelodysplastic syndromes including:  Practical use of the Molecular International Prognostic Scoring System  Mutational targets and other treatments in ongoing clinical trialsProphylaxis with venetoclax therapyBest practices for bone marrow transplant, including induction and salvage regimensTreatment options for hypoplastic myelodysplastic syndromesPresenters:Rami Komrokji, MDProfessorDepartment of Oncologic SciencesUniversity of South Florida  Vice ChairMalignant Hematology DepartmentMoffitt Cancer CenterTampa, FloridaMaría Díez Campelo, MD, PhDAssociate ProfessorDepartment of MedicineSchool of MedicineUniversity of SalamancaHematologistDepartment of HematologyUniversity Hospital of SalamancaSalamanca, SpainAmer Zeidan, MBBS, MHSAssociate Professor, Internal MedicineHematologyLeader, Leukemia and Myeloid Disease Aligned Research Team (DART)Director, Hematology Early Therapeutics ResearchYale Cancer Center and Smilow Cancer HospitalYale University School of MedicineNew Haven, ConnecticutLink to full program, including downloadable slidesets, expert commentaries, and on-demand webcast:http://bit.ly/3YXgKK3  

Blood Podcast
Stem cell transplant for SCD normalizes brain blood flow, novel GALE variants disrupt platelet development, and revisiting risk classification in NPM1-mutant AML

Blood Podcast

Play Episode Listen Later Jan 26, 2023 17:22


In this week's episode, new research shows that in children with sickle cell disease, stem cell transplantation normalizes blood flow in the brain. The improvements in cerebral hemodynamics seen in this study may help explain the stroke protection seen following transplant in this high-risk patient population. Next up, a research article providing new insights on thrombocytopenia related to the GALE gene, including the identification of several previously unreported variants. The findings highlight the importance of GALE in the glycosylation of proteins that play a role in the production and function of platelets. Finally, we'll review a brief report on NPM1-mutated AML with adverse cytogenetics in light of the updated ELN 2022 classification. In short, adverse-risk cytogenetics remain significantly associated with unfavorable prognosis under the refined definitions, supporting the recent categorization of this entity as adverse-risk.

The Cancer Mavericks: A History of Survivorship
Series Finale: If History Teaches Us Anything

The Cancer Mavericks: A History of Survivorship

Play Episode Listen Later Oct 27, 2022 17:14


Welcome to the series finale of The Cancer Mavericks. In this final episode, we reflect on the first seven episodes through the lens of history and progress with a series of insightful conversations featuring some of healthcare's most influential and visionary voices across the past four decades. If history is a teacher, we have learned that change can happen, albeit slowly. But it is only when the people stand up, organize and activate their voices demanding change, that the culture will shift, the institutions will pivot, and the very system itself will be forced by the will of the citizens to bend towards the arc of justice. Thank you for joining us for this groundbreaking series. If you like this series, please leave a review and a rating on your favorite podcast app. To learn more about The Cancer Mavericks, visit https://CancerMavericks.com. To learn more about OffScrip Health, visit https://OffScrip.com.FEATURED VOICESGil BasheChair Global Health and Purpose, FINN PartnersJohn D. Carpten, Ph.D.President's Cancer Panel (Emeritus)Director, Institute of Translational GenomicsKeck School of Medicine at USCDeanna DarlingtonPresident at Links2EquityKenny KaneYoung Adult Cancer Advocacy PioneerCo-Founder/CEO, Stupid Cancer (Former)Margaret LawsPresident and CEO, Hope LabLisa C. Richardson, MD, MPHDivision Director, Cancer Prevention and Control at The CDCCatharine Young, Ph.D.Assistant Director of Cancer Moonshot Engagement and PolicyThe White HouseSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Blood Cancer Talks
Episode 6. Donor Search for Allogeneic Hematopoietic Stem Cell Transplant

Blood Cancer Talks

Play Episode Listen Later Sep 28, 2022 48:16


Key papers discussed in the show:1. Landmark paper on HLA-mismatch and survival: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4568127/2. HLA-DP and Risk of GVHD: https://www.nejm.org/doi/full/10.1056/NEJMoa15001403. Outcomes of Allogeneic Transplant with HLA-Mismatched Unrelated Donor: https://ascopubs.org/doi/10.1200/JCO.20.035024. Review/perspective on fundamentals of unrelated donors and cord blood units: https://ashpublications.org/blood/article/120/2/259/30405/A-perspective-on-the-selection-of-unrelated-donors5. HLA-DQ heterodimers and HCT: https://ashpublications.org/blood/article-abstract/139/20/3009/484363/HLA-DQ-heterodimers-in-hematopoietic-cell6. PT-Cy as GVHD prophylaxis after HCT: https://pubmed.ncbi.nlm.nih.gov/20124511/7. Comparative outcome of MUD vs Haplo-HCT from Registry data: https://ashpublications.org/blood/article/138/3/273/475738/HLA-haploidentical-vs-matched-unrelated-donor 

Novant Health Healthy Headlines
Beating Incurable: A stem cell transplant in pursuit of remission

Novant Health Healthy Headlines

Play Episode Listen Later Sep 7, 2022 13:25


“Beating incurable," produced by Gina DiPietro, follows a cancer patient from diagnosis through treatment. This inspiring 5-part series covers his journey in just an hour, where Tim shares what he's learned about himself, how he finds the strength to keep moving forward, and how you can, too.  Listen to Episode 1 of Beating Incurable.Listen to Episode 2 of Beating Incurable. In the third episode of Beating Incurable, Tim Cooper has a stem cell transplant, an advanced treatment that could help push his cancer into remission. Highlights include:  2:28 - Previewing how a stem cell transplant works.  4:01 - Being in remission with myeloma is not the same as being cured of myeloma. 4:43 - Stem cell collection day.5:54 - Tim packs for his "two-week" vacation at Novant Health Presbyterian Medical Center in Charlotte.6:52 - Day of transplant. His "new birthday."9:55 - Tim shares a tough day in the hospital. 11:00 - Better days would follow...Helpful links:  Leave Tim a note of encouragement: Join the discussion at this end of this article. Listen to the next episode here.

Don’t Give Up on Testicular Cancer
Navigating Cancer and Stem Cell Transplants

Don’t Give Up on Testicular Cancer

Play Episode Listen Later Aug 26, 2022 22:35


With a master's degree in social work, Christina Merrill saw how managing a transplant diagnosis upended the lives of patients and their caregivers. She founded the Bone Marrow & Cancer Foundation (BMCF) in 1992 to help patients and their caregivers facing bone marrow and other transplants. In 2018, she expanded all services to cancer patients and their caregivers. In 2022, BMCF introduced Cancer Buddy, an app to connect transplant and cancer patients across the globe with another person, a cancer buddy, facing the same diagnosis. Christina talks about the BMCF financial and community services available to cancer patients, including testicular cancer patients, in this episode of Don't Give Up on Testicular Cancer from the Max Mallory Foundation.Support the show

Modern Cowboy
Episode 197 Steven Todd Is Beyond Inspiring / Cancer Warrior-Survivor / Multiple Myeloma / Stem Cell Transplant / Graves Disease / Diabetes / Neck Rods…

Modern Cowboy

Play Episode Listen Later Jul 18, 2022 53:47


To say Steven is inspiring is an understatement. One of the biggest takeaways for me is Steven's attitude & how he has managed and dealt with a devastating diagnosis and the multiple afflictions that followed. We talk about how important it is to have the right medical team for "you" and the support of Family and Friends. Along with Steven's unrelenting determination, grit and dedication to fitness, his story and recovery is an example we all can learn from. Resources: @warrior2cancer @texasneurospinesurgery Show Sponsors: LINK IN BIO USE CODE: “MODERNCOWBOY” @moderncowboypodcast www.moderncowboy.global @nrsworld https://g-sight.com/ @gsightdryfire Show Music: The Ropin Pen By: Trent Willmon MC Podcast Production & Editing: Tyler Hillenbrand @tyhbrand

UnBreakable Spirit, Inspiring Stories of Women  Surviving and Thriving
Running The Race Of Her Life To Beat A Terminal Diagnosis of Scleroderma with Meghan Newell Davis and Jennifer Seven

UnBreakable Spirit, Inspiring Stories of Women Surviving and Thriving

Play Episode Listen Later Jun 1, 2022 47:01


Episode 18 is the powerful story of how Ironman athlete, Meghan Newell Davis was given a terminal diagnosis of scleroderma not long after the birth of her son.  At the top of her game, and in perfect health, Meghan chose the Mirena IUD as her method of birth control after giving birth.  Shortly afterwards she began to develop debilitating pain and was losing the ability to pick up her son, change his diaper and even walk.  Doctors dismissed her symptoms and no one knew how to help.  Finally she found a doctor with answers.  And it wasn't good.  There was no cure and it was terminal.  Meghan was devastated. She was sent to Duke University and given the option to have a stem cell transplant.  But there were hurdles to cross, could she qualify for the treatment, would insurance cover it?  And the costs could run up to $300,000.  Meghan activated her warrior spirit and was determined to beat the odds.  The treatment was difficult.  Radiation and chemotherapy were undertaken to kill everything in her body, in order to receive the stem cells back in and pray for a good outcome.  All along, Meghan's mantra was "Austin Davis, Austin Davis, Austin Davis" her son's name.  And, although she was very angry at her faith, she clung to it, listening to Christian music over and over. What Meghan didn't realize was that the transplant was only the first part of the journey.  Leaving the hospital to go home, she had to learn to use her muscles and body all over again.  She had to learn how to walk again and making it to the mailbox was a huge victory. Meghan is doing remarkably well and considered scleroderma free.  She has begun training again for an Ironman, knowing it will take time, but she is fierce in her determination.  Above all else, Meghan fights to be a Mom for her beloved son. Meghan graduated from Radford University with a BS. in Exercise Science Health Education Commercial Corporate Fitness with a minor in Nutrition. After graduating she worked as a Rehab Specialist for a Chiropractor in Northern Virginia. She received her Chiropractic Certificate from Parker University and became a Chiropractic Assistant. She came across the Ideal Protein protocol at her Chiropractic office and had excellent results with weight loss and balancing her hormones. Instantly she knew Ideal Protein would be her passion and became an Ideal Protein Coach and Business Developer for Ideal Body Wellness in Northern Virginia.  She has been with Ideal Protein for over ten years. She moved to Myrtle Beach with her husband 4 years ago and became the Founder and Clinic Director of Ideal Body Myrtle Beach. Ideal Body Myrtle Beach is the first Ideal Protein clinic in the Grand Strand Region. Ideal Protein has become an incredible tool in Meghan's life. Not only did it help balance her hormones but it helped her recover from her Stem Cell Transplant after being diagnosed with Scleroderma after her son was born. She lost over 50 pounds after battling Chemotherapy/Radiation and Steroids for treatments. She utilizes Ideal Protein as her Sports Performance Nutrition when training for her Ironman races. In her spare time, Meghan is an advocate for Scleroderma Awareness and Stem Cell Transplant for Duke Medical University.  If you, or anyone you know, is suffering from scleroderma, please feel free to reach out to Meghan.   Connect with Meghan Newell Davis Follow Meghan on Facebook Follow Meghan on Linkedin Follow Meghan on Instagram Follow Facebook Group Scleroderma Connect with Jennifer Seven Follow Unbreakable Spirit on Facebook Follow Unbreakable Spirit on Instagram Follow Jennifer Seven on LinkedIn 7Company Weight Loss & Wellness  Follow on YouTube Follow Jennifer on Twitter Schedule a Free Consultation with Jennifer Get your copy of the book  right here on Amazon  UnBreakable Spirit The Sisterhood Folios   12 remarkable and courageous women take you through their journeys. They show you the strength of their Spirits and show you how they discovered the greatness within themselves. Let them inspire you to find the Unbreakable Spirit that you possess. #7Company #JenniferSeven #unbreakablespirit #transformation #sclerodermaawareness

Man Up to Cancer
1 stem cell transplant, 10 marathons: Boyd Dunleavey just won't quit

Man Up to Cancer

Play Episode Listen Later Apr 5, 2022 46:25


Boyd Dunleavey of Moncton, New Brunswick, just might be Canada's most stubborn and inspiring cancer survivor-athlete. Boyd is also one hell of a storyteller. He is a two-time blood cancer survivor who underwent a life-saving stem cell transplant in May 2012. Since that time, Boyd has finished 10 marathons — mostly because people told him he would never be able to do it. This month he makes a return to his favorite course at the legendary Boston Marathon. Boyd runs to prove the doubters wrong, and to give hope to other cancer patients and survivors, with the message that anything is possible. In 2019, Boyd finally got the chance to meet the U.S. Navy Serviceman, Nathan Barnes, who risked his own life to give boyd a stem cell donation. Video of Boyd meeting his donor, Nathan, at the Disney half marathon in 2019: https://disneyparks.disney.go.com/blog/2020/05/disneymagicmoments-runners-who-inspire-us-part-2/?fbclid=IwAR0aYNcwA6Iv41KhNlTt5w5agVcrB7e_rKySQf5h_ocKjQJPDVdxbYPNVDg (https://disneyparks.disney.go.com/blog/2020/05/disneymagicmoments-runners-who-inspire-us-part-2/?fbclid=IwAR0aYNcwA6Iv41KhNlTt5w5agVcrB7e_rKySQf5h_ocKjQJPDVdxbYPNVDg ) SPONSOR SHOUT-OUT! A shout out to our sponsor - Natera, developers of a new kind of test called Signatera that can detect recurrence as much as a year earlier than imaging. Ask your doctor if Signatera is right for you. https://www.natera.com/oncology/signatera-advanced-cancer-detection/patients/ (Natera.com/signaterapatients)

Passion Struck with John R. Miles
Jess Faulds On How Stem Cell Transplant Cured Her MS and the Nutrition Science That Promoted Recovery EP 93

Passion Struck with John R. Miles

Play Episode Listen Later Dec 28, 2021 59:29


Jess Faulds is a certified holistic nutrition consultant diagnosed with Multiple Sclerosis (M.S.) at the age of 15. Through her M.S. journey, she suffered through different disease-modifying drugs and treatments before having a stem cell transplant! She sits down with John R. Miles on The Passion Struck Podcast to discuss how Haematopoietic Stem Cell Transplantation (HSTC) cured her M.S. and the nutrition science that promoted recovery. New to this channel and the passion-struck podcast? Check out our starter packs which are our favorite episodes grouped by topic, to allow you to get a sense of all the podcast has to offer. Go to https://passionstruck.com/starter-packs/. Do You Need To Ship Packages? Try ShipStation ShipStation makes shipping the easy part of running your online store. So you can get back to doing what you're passionate about—growing your business. Just go to ShipStation.com, click on the microphone at the top, and enter code PASSIONSTRUCK.   Like this? Please join me on my new platform for peak performance, life coaching, self-improvement, intentional living, and personal growth: https://passionstruck.com/ and sign up for our email list. Learn more about me: https://johnrmiles.com. SHOW NOTES 0:00 Introduction 3:41 Her diagnosis of M.S. at only 15 7:45 The rarety of it in teens 10:27 Different types of M.S. 16:33 Discovering nutrition science 19:33 Disease-modifying therapies for M.S. 23:09 Undergoing stem cell treatment 29:52 How nutrition science promoted recovery 36:19 Why more doctors aren't talking about diet:  39:56 How the 5 AM Club changed her life 43:48 Discussing the book How Not to Die: Discover the Foods Scientifically Proven to Prevent and Reverse Disease 46:02 A typical day in the life of Jessica Faulds 49:09 She recommends eating the rainbow 50:34 Quick Rapid Round of Questions ===== FOLLOW JESS FAULDS ===== *Personal Instagram: https://www.instagram.com/jessicakcfaulds/ *Instagram: https://www.instagram.com/alltherightbites/ *Facebook: www.facebook.com/alltherightbites/ * website: www.alltherightbites.ca   ===== FOLLOW JOHN R. MILES ON THE SOCIALS ===== * Twitter: https://twitter.com/Milesjohnr * Facebook: https://www.facebook.com/johnrmiles.c0m * Medium: https://medium.com/@JohnRMiles​ * Instagram: https://www.instagram.com/john_r_miles * LinkedIn: https://www.linkedin.com/company/JohnMiles * Blog: https://passionstruck.com/blog/ * Instagram: https://www.instagram.com/passion_struck_podcast   ====== ABOUT JOHN ====== John R. Miles leads a global movement called Passion Struck. He is passionate about being the catalyst who helps individuals expand into the most excellent version of themselves, unlocking the most no regrets life possible. He is a combat veteran, multi-industry CEO, successful entrepreneur, top podcast host, and author who is helping people worldwide regain their passion. John is one of the most-watched, quoted, and followed high-performance trainers globally, and his leadership acumen spans more than two decades. He's founded or co-founded more than half a dozen successful start-ups, was a Fortune 50 CIO and CISO, mentors rising entrepreneurs, and invests in successful tech ventures. He graduated from the U.S. Naval Academy, where he learned vital leadership skills and was a multi-sport Division 1 athlete.