Podcasts about stem cell transplant

We do a check in to see what the update with Brooke getting a Stem Cell Transplant is and Monty went to a pain rehab! We also chat about how we talk to our kids about chronic illness and Brooke has a cracking tip that might make it a little less scary for our kids.See omnystudio.com/listener for privacy information.

In this episode, we speak with Emily Long Sarro, a board-certified family nurse practitioner specializing in adolescent and young adult (AYA) care at Memorial Sloan Kettering Cancer Center. We focus on the unique challenges AYAs face before, during, and after a stem cell transplant. Emily shares how this age group, defined as 15 years old to 39 years old by the National Cancer Institute, is often overlooked in the healthcare system, stuck between pediatric and adult care settings. They're navigating identity, relationships, careers, and independence—while also managing a serious illness, which can disrupt or halt life milestones.We discuss how Emily approaches AYA care with a holistic mindset—merging clinical treatment with emotional and mental health support. She emphasizes the importance of granting young patients autonomy and private space, especially when families may unintentionally overstep. She urges healthcare providers to always include mental health support in the treatment plan, noting that anxiety, depression, and even PTSD are common in this group, both during and long after treatment.Emily also stresses the need for daily coping tools like journaling, movement, and meditation to supplement infrequent counseling sessions. She encourages us to create trust by really listening, especially since many AYAs feel dismissed in early diagnostic stages due to their age.We then dive into critical but often unspoken topics: fertility preservation, sexual health, and survivorship. Emily outlines time-sensitive fertility options and highlights the emotional toll if these aren't addressed early. She covers the hidden costs of care and offers resource suggestions like Livestrong and Cancer and Careers. She also calls attention to "silent disabilities" that persist post-transplant and affect career and daily function, emphasizing self-advocacy in the workplace. Coworkers and others may not "see" these limitations, but accommodations are often necessary.We discuss milestones missed due to treatment and the emotional weight of watching peers move on through social media. Emily suggests practical ways to stay socially connected, such as virtual events and platforms like Cancer Buddy. For caregivers, she reminds us that support often means just being present and handling small tasks that feel overwhelming to the patient.  It's important to hold space for patients' sadness over missing milestones, but when appropriate, the big picture remains: they may be sacrificing a few milestones now to experience many more later.The episode closes with a deeply moving survivor story—a young man from The Bronx who overcame mistrust in the medical system, underwent a transplant, and now runs a thriving music production business. His resilience and transformation encapsulate the hope and strength that defines this patient group.More:Marrow Masters Season 9, Episode 2, with fertility resources in Show Notes: https://marrowmasters.simplecast.com/episodes/preserving-fertility-through-cancer-treatmentCancerCare – https://www.cancercare.orgImerman's Angels – https://imermanangels.orgLivestrong Fertility – https://livestrong.org/how-we-help/livestrong-fertility/Worth the Wait – https://worththewaitcharity.com/Maggie's Dream (Fertility Preservation Assistance)–https://www.teammaggiesdream.org/Cancer and Careers – https://www.cancerandcareers.orgCancer Buddy App (Bone Marrow Foundation) –https://bonemarrow.org/support-and-financial-aid-2/support/about-cancerbuddyThanks to our Season 17 Sponsors:Leukemia and Lymphoma Society (LLS): https://lls.org/and Incyte: https://incyte.com/ National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.To participate in the GVHD Mosaic, click here: https://amp.livemosaics.com/gvhd

In this incredible episode of Marrow Masters, we sit down with Kayla West, a stem cell donor from Texas, and Miriam Bauer, the mother of a young leukemia survivor Miley, from Oklahoma. This story is a deeply emotional journey of hope, resilience, and a connection that transcends bloodlines. Kayla and Miriam take us through the entire transplant process from both perspectives: the donor stepping up during a pandemic, and the caregiver navigating a life-threatening diagnosis in a child.We begin with Kayla's decision to join the donor registry after a chance encounter with DKMS at a Goo Goo Dolls concert. She didn't expect to be called to donate, but when she was, during COVID lockdown, she jumped at the chance to help someone—anyone—in need. That “anyone” turned out to be Miley, an eleven-year-old girl who had been diagnosed with acute myeloid leukemia (AML) and urgently needed a transplant after two brutal rounds of chemotherapy.Miriam recounts those terrifying early days at St. Jude, from the moment of diagnosis through the chaos of the early pandemic lockdowns. She was Miley's only caregiver during a 248-day hospital stay. Her story is filled with moments of heartbreak and triumph, from failed chemo rounds to the joy of reaching remission and finding a viable donor in Kayla. We learn how transplant coordination works, how donor cells were frozen and shipped during COVID, and how little details—like celebrating donor day or choosing a transplant date that coincides with family birthdays—brought joy in dark times.Post-transplant, Miley's life has been a mix of recovery and lingering health effects, but she's thriving. Miriam emphasizes advocacy, honesty, and self-care for caregivers. Kayla, for her part, reflects on the overwhelming emotion of learning she was a match, undergoing all the testing during COVID, and then finally meeting the recipient of her cells in an unforgettable reunion in New York. The two families, now bonded for life, meet regularly and have built a deep friendship.  Next up: A trip for Kayla's family to Oklahoma to experience a powwow with Miriam, Miley, and their family!The videos below will have you reaching for the tissues and hopefully inspire many to get swabbed.Kayla also shares her decision to launch a nonprofit, SETX Leukemia Organization, focused on educating communities and recruiting new donors. Her goal is to prevent other families from facing what Miriam's did—wondering if there will be a match in time. Kayla's drive, born from her experience, continues to ripple outwards as she recruits more potential donors at local events with DKMS support.This episode isn't just about survival—it's about connection, purpose, and what can happen when strangers become family through an act of extraordinary generosity.SETX Leukemia Organization (Kayla's nonprofit): https://setxleukemia.org/DKMS (Be The Match partner organization): https://www.dkms.orgDKMS Video about Kayla, Miley, and Miriam: https://www.youtube.com/watch?v=sNhwRxXMbw8Thanks to our Season 17 Sponsors:Leukemia and Lymphoma Society (LLS): https://lls.org/and Incyte: https://incyte.com/ National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.To participate in the GVHD Mosaic, click here: https://amp.livemosaics.com/gvhd

“Tarzan Dan” Freeman has announced that he'll be taking another leave of absence from his Bounce Radio midday show to undergo a stem cell bone marrow transplant.Freeman, who went public with his cancer diagnosis last September, has been undergoing treatment for multiple myeloma.Broadcast Dialogue caught up with Dan this week as he underwent a plasma transfusion to boost his immune system ahead of the transplant. He candidly shares the ups and downs of his cancer journey, which as you'll hear, includes willing himself to come back physically.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Official Emailtalkinwithtopher@gmail.comTopher's Social Media(linktr.ee) ⁠⁠https://linktr.ee/talkinwithtopher⁠⁠(instagram) ⁠⁠https://www.instagram.com/talkinwithtopher/?hl=en⁠⁠(twitter) ⁠⁠https://twitter.com/_conderman⁠⁠(snap chat) ⁠⁠https://www.snapchat.com/add/cconderman?share_id=HiV14moKPns&locale=en-US⁠⁠(tik tok) ⁠⁠https://www.tiktok.com/@talkinwithtopher?lang=en⁠⁠(Facebook) ⁠⁠https://www.facebook.com/christopher.conderman⁠⁠Time Stamps(00:00:00) Start(00:01:54) Puppy Love(00:04:56) A23A on the move(00:11:23) What happens all the ice melts(00:17:23) China's endless power, power plant(00:20:03) Meta worked with China in Censorship(00:26:07) Stem Cell transplant restores vision(00:29:56) Clean Cocaine(00:33:41) Trump Excepting the Trojan Horse from Qatar(00:38:04) Putin Reveals Tartaria was Real(00:43:17) There were no planes(00:47:29) Controlled Demolition Squib Blow OutEpisode Linkshttps://www.bbc.co.uk/news/resources/idt-f4de435a-d215-4a7c-86e9-9b838701c993https://youtu.be/VbiRNT_gWUQ?si=qH5v9uDC0ZiQpvp5https://www.sustainability-times.com/energy/the-us-on-high-alert-chinas-largest-nuclear-reactor-passes-final-test-as-global-power-tensions-explode/https://www.cbsnews.com/news/meta-whistleblower-testimony-senate-judiciary-subcommittee/https://www.wcvb.com/article/stem-cell-transplant-treatment-restores-vision/64409863https://abcnews.go.com/Politics/doj-coast-guard-bust-45000-pounds-cocaine-tied/story?id=120642241https://www.google.com/imgres?imgurl=https://www.techspot.com/images2/news/bigimage/2023/09/2023-09-12-image.jpg&tbnid=i7ds8lmYELSvaM&vet=1&imgrefurl=https://www.cbsnews.com/news/qatar-jet-trump-boeing-pentagon/https://x.com/Whiplash437/status/1924311751492808956https://www.instagram.com/reel/DHvgNxuuP5Z/?utm_source=ig_web_copy_linkhttps://x.com/BGatesIsaPyscho/status/1926325690506297632

Sheila Romanski is with us today after overcoming two diagnoses of breast cancer and the removal of a tumor in her left shoulder thanks to an autologous stem cell transplant.  She tells the @CancerInterviews podcast her initial of Stage 1A breast cancer in 1996 came after her doctor suggested a routine mammogram at age 36 when at the time mammograms were not performed on women that young.  Radiation treatment successfully addressed that diagnosis, but the following year, the cancer had metastasized to her shoulder.  That brought on the stem cell transplant, plus chemotherapy and more radiation.  All seemed well until 2008 when the breast cancer returned as Stage 4 triple negative infiltrating ductal carcinoma.  Shiela opted for a double mastectomy with reconstruction, which was followed by a second, more aggressive form of chemotherapy.  She has been pronounced NED (No Evidence of Disease), and now enjoys a healthy lifestyle, leading a non-profit that aids cancer victims.   Sheila Romanski advises everyone to do self-examinations for breast cancer.  She admits had she done so, her breast cancer would have been caught sooner.  In 1996, it was rare that 36-year-old women went in for routine mammograms, but Sheila's doctor suggested such an exam.  Thanks to that suggestion, a 2cm tumor was found.  She underwent a lumpectomy and radiation treatment.   While it appeared cancer was in her rear-view mirror, in 1997, a lump was found in her collar bone area.  That was treated with four chemotherapy treatments and autologous stem cell transplant, a procedure involved her own stem cells.  The chemo and the transplant last four months.   For Sheila, this time in her life was very challenging.  She was no only battling cancer, but she was raising four small children.  However, she says she was able to get through because of support from her friends and her church, and because attending to the needs of her kids took her mind off cancer.   Sheila's health appeared to be on the right track until 2008 when another routine mammogram revealed micro-calcifications in the same breast as her original diagnosis.  She decided a double mastectomy would be her best option. It would include a procedure called a diep flap, which involves taking skin from other parts of the body.  However, her surgeon said Sheila would have to lose twenty pounds before diep flap could be performed.  It took Shiela ten years to lose the weight and by that time, her surgeon said she no longer performed diep flap.  However, she said she could get Sheila “fixed up” and in 2021, thirteen years after mastectomy, reconstruction was complete.   Sheila Romanski has gone on to found Crystal Roses, a non-profit that seeks to aid those diagnosed with cancer.   Additional Resources:   Support Group:   Crystal Roses  https://www.crystalroseshelps.com    

We sat down and recorded before Brooke headed off to see her neurologist. Brooke has had three different types of treatments for MS and none have worked as they would have hoped. Stem cell transplants are occasionally done in Australia but have a super strict criteria you need to meet to be considered. We chat about what it is exactly and if Brooke is a candidate. This story is unfolding in real time and we will keep you updated. See omnystudio.com/listener for privacy information.

This week's episode will be focusing on Hematopoietic Stem Cell Transplant. We welcome our guest  Dr. Jeff Auletta, Senior Vice President, National Marrow Donor Program, and Chief Scientific Director,Center for International Blood and Marrow Transplant Research. Part 2 discusses conditioning regimens, graft-vs-host disease, toxicities, and Dr. Auletta's career path.

This week's episode will be focusing on Hematopoietic Stem Cell Transplant. We welcome our guest  Dr. Jeff Auletta, Senior Vice President, National Marrow Donor Program, and Chief Scientific Director,Center for International Blood and Marrow Transplant Research. Part 1 discusses important basics including what a transplant is, types of transplant & associated risks, types of donors, how to find a donor, and barriers/inequities of finding a donor.

In this week's episode we'll learn more about how phosphoseryl-tRNA kinase inhibition promotes cell death in acute myeloid leukemia, or AML; APOE gene variants and their association with post-hematopoietic stem cell transplant outcomes in AML; and pathways by which chronic inflammation and oxidative stress may lead to cardiomyopathy in patients with sickle cell disease.Featured Articles:PSTK inhibition activates cGAS-STING, precipitating ferroptotic cell death in leukemic stem cells Common Hereditary Variants of the APOE Gene and Posttransplant Outcome in Acute Myeloid Leukemia 17R-Resolvin D1 Protects Against Sickle Cell Related Inflammatory Cardiomyopathy in Humanized Mice 

In this podcast, Dr. Marcos de Lima from the Ohio State University, Columbus, OH, USA, and Dr. David I. Marks from the University Hospitals Bristol NHS Trust, Bristol, UK, discuss real-world data obtained from the Center for International Blood and Marrow Transplant Research database to evaluate post-allogeneic hematopoietic stem cell transplantation outcomes in adult patients with acute lymphoblastic leukemia who received inotuzumab ozogamicin. This podcast is published open access in Targeted Oncology and is fully citeable. You can access the original published podcast article through the Targeted Oncology website and by using this link: https://link.springer.com/article/10.1007/s11523-025-01129-5. All conflicts of interest can be found online. Open Access This podcast is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License, which permits any non-commercial use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The material in this podcast is included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by-nc/4.0/.

A cancer diagnosis at any age is scary and life changing, but receiving this news the you are at a point in your life where having children, starting a family or growing your family is on your mind, raises a different set of challenges. Saskatoon's Prairie Cancer Fertility Preservation charity supports cancer patients when it comes to fertility challenges. Helping patients navigate fertility issues during a cancer diagnosis is something Dominique Paulgaard and Lierin Baerg do in their roles as nurses at Royal University Hospital and with their charity, Prairie Cancer Fertility Preservation. The charity was started three years by a group of oncology nurses in Saskatoon and today features Jessica Smith, Taylor Huang, Lierin Baerg and Dominique Paulgaard as its members. The purpose of Prairie Cancer Fertility Preservation is to preserve the ability for cancer patients to have children. As I learned from Lierin and Dominique, this can either be through sperm or egg preservation, and as you are about to hear, it can be quite the journey. Lieren as been a Registered Nurse at Royal University Hospital's Inpatient Cancer and Stem Cell Transplant unit for the past 10 years. Dominique has been a nurse in the same unit for 13 years. They both have families with young children and find the time to run this charity.How the charity works, why it means so much to them, and what conversations are like with their patients when it comes to fertility are topics we cover in our conversation. We also discuss how overwhelming it is for someone who has just received a cancer diagnosis to think about if they want to preserve their ability to have children in the future and the financial challenges that come with their decision.Prairie Cancer Fertility Preservation has a fundraising event on Saturday, March 15th at Crossmount Cider Company. Tickets are 50 dollars and Saskatoon's Ross Nielsen will be playing live sets of music. You can learn more by following Prairie Cancer Fertility Preservation on Facebook and Instagram, or click this link to purchase tickets.You can listen to YXE Underground wherever you find your favourite including Apple Podcast, Spotify, Goodpods or on yxeunderground.com. Please feel free to leave a 5-star review if you like what you hear. These positive reviews help the podcast show up in more podcast feeds so I really do appreciate the support. I also want to let you know of an exciting event I am working on with the Remai Modern. Please mark April 17th on your calendar as that's when YXE Underground will be presenting a movie at the Remai Modern's lovely theatre beginning at 7pm. This is thanks to Kyle Zurevinski, who runs the theatre programming at the Remai, and his generous spirit. We will be showing the short film Molly Schikosky and I made last summer celebrating the podcast followed by the Pixar classic, Wall-E because it's one of my favourite movies of all time and I think it connects nicely to YXE Underground in meaningful ways. The Remai does this with other community organizations who select a movie for the public to watch for free and it's really cool to partner with the gallery in this way. Plus, it's free to attend!So I would love to see you on the night of Thursday, April 17th, to celebrate the podcast and watch one of the best films of the past 20 years.Thank you for continuing to support a local, independent podcast here in Saskatoon.Cheers...Eric  Host, Producer, Editor: Eric AndersonTheme Music: Andrew DicksonWebsite: https://www.yxeunderground.comRecorded: On Treaty 6 Territory and the traditional homeland of the Metis

Pippa speaks to Amy Brand who is only a few days way from going into hospital for a stem cell transplant – but she is so passionate about raising awareness of this issue that she was adamant we needed to speak to her ahead of that procedure.See omnystudio.com/listener for privacy information.

In this episode, depth + somatic psychotherapist, and The Whole Paradox Host, Molly Mitchell-Hardt interviews Yoga Nidra guide, cancer survivor, and podcast host Ayla Nova. They talk about:The yogic journeyCancer diagnosis, dancing with death, and deep surrenderFinding and falling in love with Yoga NidraWorking with the narrative of "good" and "bad" versus non-dualityThe wheel of samsaraSitting with shadow and being "not okay" within spiritual communitiesRelationship with fearand so much more...Follow us @mollymitchellhardt and @thewholeparadoxMolly's Offerings:To inquire about 1:1 work or about Molly's Sacred Motherhood Online Support Group, schedule a free consultation or email mollymitchellhardt@gmail.comFind Ayla Nova:Follow Ayla on instagramVisit Ayla's website and find her Yoga Nidra trainingThis podcast was produced in association with Channel the Sun by Kevin Joseph Grossmann.  Musical stylings by Kevin Joseph Grossmann.

BUFFALO, NY - February 10, 2025 – A new #casereport was #published in Volume 16 of Oncotarget on February 5, 2025, titled “A case report of donor cell–derived hematologic neoplasms 9 years after allogeneic hematopoietic cell transplantation." In this case report, Aleksandra Mroczkowska-Bękarciak and Tomasz Wróbel from Wroclaw Medical University describe a rare and serious complication after a stem cell transplant. The case involves a patient who, nine years after receiving a stem cell transplant for acute myeloid leukemia (AML), developed a new, aggressive blood cancer originating from donor cells. Despite receiving treatment, the disease progressed to myelodysplastic syndrome/acute myeloid leukemia (MDS/AML), ultimately leading to the patient's death. Stem cell transplants are a life-saving treatment for many blood cancers, including AML. While relapse of the original cancer is the most common concern, this case highlights another rare but serious complication: the development of donor cell-derived hematologic neoplasms (DCHN). The report details the case of a 23-year-old woman who remained in remission for nearly 10 years following a successful hematopoietic stem cell transplant from an unrelated donor. However, she later developed a new form of leukemia, driven by genetic mutations in the ASXL1, SETBP1, and EZH2 genes—biomarkers linked to highly aggressive blood cancers. Over the next two years, the disease progressed despite intensive treatment, ultimately proving fatal. This case highlights the need for continued monitoring of transplant recipients, even years after the procedure. Although DCHN is extremely rare, its occurrence raises critical questions about the process by which donor cells transform into leukemia. Some stem cell donors may unknowingly carry genetic mutations that are harmless in their own bodies but could trigger cancer in recipients. Additionally, factors such as immunosuppressive therapy, bone marrow stress, and transplantation procedures may contribute to these rare but deadly outcomes. “Early diagnosis and intervention are crucial to improving patient prognosis.” Ongoing research is focused on improving donor screening methods to help predict and prevent these complications. In the future, routine genetic testing for stem cell donors could become a standard part of the transplant process, helping clinicians identify potential risks before transplantation. More studies are needed to fully understand why donor-derived cancers develop and how they can be prevented. With continued progress in precision medicine and genetic diagnostics, researchers aim to make stem cell transplants safer and more effective for all patients. DOI - https://doi.org/10.18632/oncotarget.28686 Correspondence to - Aleksandra Mroczkowska-Bękarciak - omroczkowska@interia.pl Video short - https://www.youtube.com/watch?v=G2zd0UqWzeE About Oncotarget Oncotarget (a primarily oncology-focused, peer-reviewed, open access journal) aims to maximize research impact through insightful peer-review; eliminate borders between specialties by linking different fields of oncology, cancer research and biomedical sciences; and foster application of basic and clinical science. Oncotarget is indexed and archived by PubMed/Medline, PubMed Central, Scopus, EMBASE, META (Chan Zuckerberg Initiative) (2018-2022), and Dimensions (Digital Science). To learn more about Oncotarget, please visit https://www.oncotarget.com and connect with us: Facebook - https://www.facebook.com/Oncotarget/ X - https://twitter.com/oncotarget Instagram - https://www.instagram.com/oncotargetjrnl/ YouTube - https://www.youtube.com/@OncotargetJournal LinkedIn - https://www.linkedin.com/company/oncotarget Pinterest - https://www.pinterest.com/oncotarget/ Reddit - https://www.reddit.com/user/Oncotarget/ Spotify - https://open.spotify.com/show/0gRwT6BqYWJzxzmjPJwtVh MEDIA@IMPACTJOURNALS.COM

Just the ongoings of my life so far. He is day 8 post stem cell transplant. Giving some tips on how to create an organized medication system and tips on how to prepare for Stem Cell Transplantation. Enjoy.

In today's episode, we talk with Krista Wood, a registered nurse with the Cell Therapy and Transplant Program at Victoria General Hospital in Halifax, Nova Scotia (Canada). Krista shares her invaluable insights and experiences working with patients dealing with chronic graft-versus-host disease (GVHD), a common complication following stem cell transplants. Our discussion delves into the importance of communication, post-transplant care, and finding joy and purpose during survivorship.Krista emphasizes that early detection and treatment of GVHD are critical. She encourages patients to report any changes, no matter how minor they may seem, and reassures them that healthcare teams are there to help. This open communication is vital, as post-transplant life can be overwhelming with fears of relapse or complications. Ensuring patients have direct access to their care team can ease their anxieties and foster trust.Routine health checks, like blood work and pulmonary function tests, play a crucial role in monitoring potential complications. Krista explains the importance of tracking liver enzymes, bone density, and lung function to catch and address issues early. She underscores that post-transplant care goes beyond the transplant itself, extending to overall health maintenance, including routine screenings like mammograms, dental care, and colorectal exams.Reconnecting with life post-transplant is another important theme. Krista encourages patients to rediscover the activities they loved before their illness, whether it's returning to work, volunteering, or pursuing hobbies. Work and social engagement provide purpose and can aid emotional recovery. For those who can't return to work, finding alternative ways to contribute, such as volunteering with organizations like the Leukemia & Lymphoma Society or HealthTree, can offer fulfillment and connection. (Note: the National Bone Marrow Transplant Link (nbmtLINK) has a peer mentor program as well, email info@nbmtlink.org if you'd like to be a peer or need a peer mentor. )Preparing for transplant and understanding GVHD beforehand is crucial. While some patients prefer to know everything, others may only want the basics. Krista and her team provide consistent education in manageable increments to help patients absorb key information. She explains factors that increase the risk of GVHD, such as donor characteristics and patient preconditioning, and stresses the importance of entering the transplant process in the best possible physical shape.Krista also highlights the importance of addressing sensitive topics like sexual health, which many patients are reluctant to discuss. She brings up these issues proactively, ensuring patients feel supported and have access to necessary resources.Finally, Krista shares stories of hope, including patients who, despite long-term challenges, have regained a sense of normalcy and fulfillment. She reminds us that while every patient's journey is unique, resilience and adaptation are common threads in their recovery.This episode is a testament to the critical role nurses like Krista play in guiding patients through this complex medical journey, offering care, education, and encouragement every step of the way.More:Leukemia & Lymphoma Society: https://www.lls.orgHealthTree Foundation: https://www.healthtree.orgGVHD Alliance: https://www.gvhdalliance.orgLink to LLS free Nutrition Consultations: https://www.lls.org/managing-your-cancer/food-and-nutritionThank you to our sponsors. This season is supported by a healthcare contribution from Sanofi  https://www.sanofi.com/ National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.To participate in the GVHD Mosaic, click here: https://amp.livemosaics.com/gvhd

Send us a textThe MedStar Georgetown University Hospital Stem Cell Transplant and Cellular Immunotherapy Program is the only adult, FACT-accredited program in the Washington, D.C., area. We give patients with cancers affecting the blood or immune system and other disorders access to life-saving treatment options not otherwise available in our region. These include:·       Allogeneic stem cell transplant·       Autologous stem cell transplant·       CAR T-cell therapyAlaa Ali, MD, MSC, is a clinician, instructor, and investigator in clinical and translational research at MedStar Georgetown's Stem Cell Transplant and Cellular Immunotherapy program. Concurrrently, he holds the position of Assistant Professor at Georgetown University School of Medicine.For an interview with Dr. Ali, or for more information about this podcast, contact MedStar Georgetown University Hospital Manager Media Relations, Ryan.M.Miller2@Medstar.net. Learn more about Dr. Ali. For more episodes of MedStar Health DocTalk, go to medstarhealth.org/doctalk.

Send us a textThis week on Sht Talkers Pod*, Soph and Kell sit down with our girl Jordy to talk about her incredible journey—because this isn't just any pregnancy... it's twins!

NEW! "The 40's Stretch" - A new season from Stretch Marks PodcastWe are stretching - this time into our 40's.Meet Áine O'Donnell - one of my closest friends and favourite humans.At 27 she was diagnosed with MS, Multiple Sclerosis, an incurable neurological condition that interrupts communication between the brain and the rest of the body. Eventually, the disease can cause permanent damage and loss of power.At 40, she lost her dad, got married and learned that her hero drugs have failed her.And this week, as this goes out, she begins the process of a Stem Cell Transplant in the UK - her last chance to hold back her advancing MS.But it's not all tears. We laugh. We reminisce.We talk about the grief of losing her dad. And marrying the love of her life Tara.And in this one hour - she will teach you more about life than anyone could.DONATE xxTo help with the financial burden of this fight, friends have set up a GOFUNDME page for Áine.To donate to this page and support my wonderful friend, you can follow the link here. Áine - we love you, fight like hell. Supported by Key For Her - Their two-step supplement includes two unique blends to support your daily wellness and help naturally alleviate the symptoms associated with menstruation, perimenopause and menopause.Use the discount code STRETCH for 20% off your first order across all products on keyforher.com "The 40's Stretch" is a Stretch Marks Production,Hosted by Sinéad O'Moore, produced by The Brand Story and sound edited by Alan Breslin.Contact: stretchmarkspod@gmail.comhttps://www.instagram.com/stretchmarkspodcast/ Hosted on Acast. See acast.com/privacy for more information.

In this episode of Marrow Masters, we hear the journey of married couple Dave and Laurie Brock, as they share their experience with CAR T-cell therapy— one Dave very recently underwent. The Brocks provide an inspiring and honest account of navigating this complex treatment process. Dave, diagnosed with multiple myeloma in 2015, had an eight-year remission following a stem cell transplant. When he relapsed earlier this year, his doctor, Dr. Abdullah at the University of Kansas Medical Center, recommended CAR T-cell therapy, which had just been FDA-approved for patients in his position. Dave recalls his surprise that what once felt like a “futuristic” option was now available and could be pursued immediately.As Dave began CAR T- cell therapy, he leaned on advice he received early in his treatment: maintain a positive attitude, be informed, and work closely with his healthcare team. Physical fitness played a crucial role in his journey, allowing him to hike and stay active, which he believes aided his recovery. However, the therapy wasn't without challenges. He experienced significant fatigue, developed Bell's palsy as a side effect, and had to constantly monitor for signs of neurotoxicity.Laurie  is Dave's "care partner," not "care giver." And she describes the intensive nature of navigating CAR T- cell therapy. She monitored Dave around the clock, prepared their home with stringent health protocols, and managed the complexities of his medication and appointments. Laurie's commitment required self-sacrifice; she isolated from family and even stopped going to the gym to protect Dave from exposure to illness. However, she also found unexpected joy in the time spent alone with Dave, as they grew closer through shared activities and humor.Both Dave and Laurie emphasize gratitude—appreciating their medical team, the support of their community, and the positive outcomes of CAR T-cell therapy. Their care team was deeply invested in their success, with doctors even celebrating with them on day 31 when test results confirmed Dave was in remission. Dave reflects on how fortunate he feels for his proximity to the clinic and his medical staff's expertise, acknowledging the importance of clinical trials and the contributions of previous patients in advancing treatments like CAR T.The episode closes with Dave's reminder: we're all in this together, underscoring the value of community, support systems, and the role that clinical trials play in the ongoing advancements in cancer treatment.  He also shares his gratitude for anyone who's participated in a clinical trial.  Without them, he wouldn't have had the opportunity to undergo this cutting-edge treatment. This season is made possible thanks to our sponsors:Kite, a Gilead company: http://www.kitepharma.com/and Bristol Myers Squibb's CAR T support services program:https://www.celltherapy360.com/ Follow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/Or visit our website at https://www.nbmtlink.org/

Dr. Amy Rothenberg, a respected naturopathic physician and three-time cancer survivor, shares her story of multiple cancer diagnoses and treatments. Her most recent treatment was a stem cell transplant in 2024 for acute leukemia. Dr. Rothenberg gives valuable insights into integrative cancer care, the importance of gut health, and practical tips for caregivers. The conversation also emphasizes the significance of maintaining a healthy lifestyle and seeking open-minded, collaborative healthcare providers. Tune in for an informative and inspiring discussion on navigating cancer care holistically.Link to Dr. Rothenberg's social media and websiteBe The Match Program - Becoming a stem cell donorWhat is a Stem Cell Transplant? NIH explanationTips for Caregivers of Patients — a guest blog post by Dr. RothenbergUnderstanding Cancer-Related FatiguePrevious podcast episodes :Dr. Amy Rothenberg's initial interview with usCancer-Related FatiguePrebiotics (Microbiome stuff)Chemotherapy-Induced NeuropathySupport the showOur website:https://www.thecancerpod.com Email us: thecancerpod@gmail.comJoin our growing community! We are @TheCancerPod on: Instagram Twitter Facebook LinkedIn THANK YOU for listening!

In this episode of your third favourite, above average, but infinitely curious podcast DIMED OUT... The months, weeks, and days are counting down until I head to Puebla, Mexico for HSCT treatment. In this second of a two parter, I go through my mental/emotional state and the practical preparation ahead of my Stem Cell Transplant. Follow Me on the Gram' https://www.instagram.com/iammalfoster/ Kofi (or Tea?) https://ko-fi.com/dimedout DIMED OUT is an anthropological Podcast dedicated to exploring the mysteries and meaning of life. An audio kaleidoscope of culture and society, alternative lifestyles and life experiences. --- Send in a voice message: https://podcasters.spotify.com/pod/show/dimedout/message --- Send in a voice message: https://podcasters.spotify.com/pod/show/dimedout/message

Send us a Text Message.I recently came across Dora Loun's LinkedIn profile, and her bio as a stem cell transplant nurse piqued my interest. However, when I had a conversation with her, I realized that what I thought she did and what she actually does are vastly different.Dora's experience in critical care nursing provided her with the perfect foundation for caring for some of the most severely ill patients. I usually ask my guests to walk me through a typical day in their life as a nurse, but Dora took a different approach. She instead described what her patients go through before, during, and long after a stem cell transplant. This was an intelligent move because hearing about the patients' hopes and dreams for the future, anxieties about the treatment, physical ailments from the medication's side effects, the isolation of loneliness, and the bond they form with their nurses gave me a deeper insight into Dora's work. And Dora's work entails providing hope for the future, care for the present, and comfort when time has run out. In the five-minute snippet: She's going to need a lot of coffee. For Dora's bio, please visit my website (link below).Dora's LinkedInBe The MatchContact The Conversing Nurse podcastInstagram: https://www.instagram.com/theconversingnursepodcast/Website: https://theconversingnursepodcast.comYour review is so important to this Indie podcaster! You can leave one here! https://theconversingnursepodcast.com/leave-me-a-reviewWould you like to be a guest on my podcast? Pitch me! https://theconversingnursepodcast.com/intake-formCheck out my guests' book recommendations! https://bookshop.org/shop/theconversingnursepodcast Email: theconversingnursepodcast@gmail.comThank you and I'll talk with you soon!

In today's episode, we have the pleasure of speaking with Janet Young from Massachusetts, who shares her challenging yet inspiring journey with acute myeloid leukemia (AML) and her subsequent stem cell transplant. Diagnosed in March 2022, Janet underwent a transplant in August of the same year after a regimen of intensive chemotherapy. Remarkably, her transplant occurs on her ACTUAL birthday, adding a poignant touch to her recovery story.Janet discusses the profound fatigue she experiences post-transplant, describing it as an overwhelming tiredness that significantly limited her daily activities initially. However, over 21 months, she's progressed from barely being able to walk to her driveway to completing a two-and-a-half-mile walk, a significant achievement in her recovery.Another major challenge Janet faces is the loss of muscle strength, for which she has been in physical therapy, greatly improving her stamina. Cognitive issues, particularly with memory and word recall, are also significant hurdles that Janet continues to navigate. These symptoms are common among transplant recipients and will slowly improve.Janet also touches on Graft Versus Host Disease (GVHD), a complication of her transplant manifesting mainly in her lower limbs. Treatment for GVHD includes starting a medication called Rezurock, which she hopes will be effective.Her social interactions have changed, too. She spent a year isolated post-transplant, which has altered her casual relationships although her closer friendships remain strong. Janet also mentions adapting her life to manage her energy better, using the "spoon theory" to prioritize activities based on her daily energy levels.Concluding the interview, Janet shares how she has had to modify her approach to planning and socializing, focusing on self-care and adjusting to a new normal. She remains thankful for every new day and emphasizes the importance of support groups in her ongoing recovery.This powerful story not only highlights the physical and emotional challenges of dealing with AML and undergoing a stem cell transplant but also showcases the resilience and gradual return to normalcy despite the challenges of GVHD. Janet's journey is a testament to the power of medical treatment, personal determination, and community support in navigating life after a major health crisis.Resources:Dana Farber Cancer Institute https://www.dana-farber.org/National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/nbmtLINK Facebook Page:  https://www.facebook.com/nbmtLINKnbmtLINK YouTube Page can be found by clicking here.Thank you to our sponsors. This season is supported by a healthcare contribution from Sanofi  https://www.sanofi.com/ Follow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/

Episode 16 -  Insights on HIV Cure by Stem Cell Transplant with Dr Ravindra Gupta Recorded Live at CROI 2024 on March 3, 2024 In this episode of Going anti-Viral, Dr Michael Saag hosts Dr Ravindra Gupta. Dr Gupta is the infectious diseases expert who led the team that treated Adam Castillejo, also known as ‘The London Patient,' the second person known to have been cured of HIV. The discussion, recorded on March 3, 2024, at the Conference on Retroviruses and Opportunistic Infections (CROI), focused on the intricate process of finding a suitable stem cell donor, the immunologic and virologic considerations around the transplant process, and the collaborative medical team effort involved.  00:00 Introduction 00:30 The London Patient 03:05 Finding the CCR5∆32 Stem Cell Match 04:21 Clinical Challenges on the Transplant Journey 06:58 Post-Transplant Monitoring and Milestones 15:53 Reflecting on the Journey 18:51 Closing Thoughts and Acknowledgments__________________________________________________Produced by IAS-USA, Going anti–Viral is a podcast for clinicians involved in research and care in HIV, its complications, and other viral infections. This podcast is intended as a technical source of information for specialists in this field, but anyone listening will enjoy learning more about the state of modern medicine around viral infections. Going anti-Viral's host is Dr Michael Saag, a physician, prominent HIV researcher at the University of Alabama at Birmingham, and volunteer IAS–USA board member. In most episodes, Dr Saag interviews an expert in infectious diseases or emerging pandemics about their area of specialty and current developments in the field. Other episodes are drawn from the IAS–USA vast catalogue of panel discussions, Dialogues, and other audio from various meetings and conferences. Email podcast@iasusa.org to send feedback, show suggestions, or questions to be answered on a later episode.Follow Going anti-Viral on: Apple Podcasts YouTube InstagramTikTok...

In this Nutritional Therapy and Wellness Podcast episode, host Jamie Belz interviews Rachel Ballard, an RN who wasn't willing to accept the prognosis of a slow, painful, premature death. Rachel is a Registered Nurse, farmer, and Food As Medicine teacher who is currently completing her Nutritional Therapy Practitioner (NTP) certification. After battling back from a rare, paralyzing autoimmune disease, she's helping individuals use food as a tool so they can fight back against chronic conditions and defy the odds. A lover of British television dramas, raising medicinal plants, and scratch cooking, Rachel lives on her Kentucky cattle farm with her husband of twenty-three years and two teenage children. In talking with Jamie, Rachel walks us through her declining health, eventual diagnosis of CIPD (Chronic Inflammatory Demyelinating Polyneuropathy), and her long road to recovery. 04:50 – Symptoms and red flags leading up to diagnosis: Hashimoto's, muscles in eye, limp leg, loss of strength, paralysis, felt like she was “on fire” 07:10 – CIPD Diagnosis with Central Nervous Symptom Overlap causing issues with vision, hearing, digestion, bowel and bladder control, and promoting cardiac arrhythmia 9:00 - IVIG (Intravenous Immunoglobulin) Treatment, Plasmapheresis, Stem Cell Transplant, slow decline 10:10 – Five years to live 11:02 – Subcutaneous IVIG Therapy Failed 13:02 – Hitting the point of desperation, looking at natural medicine for the first time, found the wrong natural medicine professionals for her preference and bio-individuality at the time 19:34 – Buying-in on the alternative approach 21:30 – Corruption in science, “follow the money” 22:30 – Working with an NTP, starting with digestion, making slow progress 27:53 – New hope, new career 30:31 – Bioindividuality 31:57 – TALKING ABOUT FOOD! Simple swaps, things to buy 40:17 - Mindset 42:04 – Car analogy 43:15 – Rachel's list of reversed symptoms/conditions 44:21 – Last question As you'll hear, taking the first steps into a more natural approach to wellness can be challenging, frustrating, expensive, and a little “weird.” Rachel shares how she didn't find any luck or answers with the alternative medicine practitioners she initially saw.* Her story is fun, relatable, and inspirational for those suffering from illness, as well as those looking to peek over the fence from the world of conventional medicine. You can find Rachel's food blog at www.feastandfarm.com. Please SUBSCRIBE and visit www.nutritionaltherapy.com/podcast to record a question for the show. *Not all practitioners of each title are created equally. Remember to give multiple practitioners under one umbrella a chance. This is true for both allopathic and alternative care. :)

One marker of the distance we've traveled in palliative care is the blossoming evidence base for the field. Ten years ago we would have been hard pressed to find 3 clinical trial abstracts submitted to the annual meeting, much less high quality randomized trials with robust measures, sample sizes, and analytics plans.  Well, as a kick off to this year's first in-person State of the Science plenary, held in conjunction with the closing Saturday session of the AAHPM/HPNA Annual Assembly, 3 randomized clinical trials were presented. Today we interview the authors of these 3 abstracts about their findings: Tom LeBlanc about a multisite trial of palliative care for patients undergoing Stem Cell Transplant for blood cancers (outcomes = quality of life, depression, anxiety) Kate Courtright about a pragmatic trial of electronic nudges to prognosticate and/or offer comfort-focused treatment to mechanically ventilated ICU patients/surrogates (outcomes = lengths of stay, hospice, time to discontinuation of life-support) Corita Grudzen on a pragmatic trial of two palliative care approaches for patients with advanced cancer or organ failure discharged from the ED: a nurse-led telephone intervention or outpatient specialty palliative care clinic (outcomes = quality of life, symptom burden, loneliness, healthcare utilization) Wow! I'm just stunned even writing that! We've come so far as a field. This isn't to say we've “made it” - more to say that we've reached a new stage of maturation of the field - in which the evidence we are discussing is frequently high quality randomized trial level data.  We recorded this on Friday during the annual assembly, and Eric and I were a littttttle off our game due to the residual effects of the GeriPal pub crawl the night before, which were only compounded by technical difficulties.  I believe these issues were more than made up for by our guests' forced accompaniment to the song “Feel Like Making Science.” (Credit to the Beeson singing crew for coming up with that one). Enjoy! -@AlexSmithMD  

Episode 51! Today I speak to the very lovely Sophie Gray, originally from the UK, now based on SA's Fleurieu Peninsula.Sophie generously shares with us her reality of a shock diagnosis of Acute Myeloid Leukaemia at 29, which subsequently resulted in a lifesaving stem cell transplant. While trapped in a hospital ward for over a month, Sophie looked out of the hospital windows at the countryside surrounding Adelaide, wishing she were out exploring. Indeed nature and movement have formed a major part of Sophie's recovery, and without having ever gone on a multiday hike before, Sophie embarked on a through hike of the 1200km Heysen Trail as part of her journey.Now working as a yoga teacher, we cover a range of topics including:the magic of yoga, meditation and breathworkmovement as medicinehow you may be able to make a difference to someone else's life through the stem cell registrySophie's own Yoga after Cancer course creationhiking the 1200km Heysen Trail (with a few days left to complete, thanks to a sprained ankle along the way!)Camel trekking through the desertSophie references the organisations Strength to Give and Ur the Cure.We also mention Sophie Matterson's book, The Crossing. You can find Sophie on Instagram at @sophiegrayyogaThanks as always to the podcast Patreon supporters - you're amazing! You can help keep the podcast lights on and join the community here: www.patreon.com/intotheweehourspodcast Hosted on Acast. See acast.com/privacy for more information.

Tommy talks to Dr. Zachary Leblanc, a hematologist oncologist at Children's Hospital and a member of the Stem Cell Transplant team

On Medical Matters this evening we look at the importance of stem cell donation. We learn about the different types of blood disorders and cancer and the role we can play in assisting people suffering from these disorders. Palesa Mokomele, Head of Community Engagement and Communications at DKMS Africa, joins to educate us on why we should consider donating our stem cells. See omnystudio.com/listener for privacy information.

Commentary by Dr. Catherine Lee & Richard Cheng

**Disclaimer: The information in this podcast should not be construed as medical advice. Please consult with your health care provider regarding your medical decisions and treatment. Any listed resources are not intended to be endorsements.**Today we welcome Diane Raab, a remarkable survivor of multiple myeloma and a licensed clinical social worker from Cheboygan, Michigan. Diane shares her personal journey through the challenging path of cancer treatment, sprinkling her narrative with both professional insights and deeply personal experiences.Diane's story begins with the diagnosis of multiple myeloma following persistent back pain. She recounts the rigorous process of diagnosis, which led to seven months of chemotherapy in preparation for a stem cell transplant. She remembers the steroids turned her into an 'Energizer Bunny,' enhancing her productivity during treatment.The focus then shifts to her transplant experience at the University of Michigan. Diane praises the comprehensive and detailed guide provided by the hospital, which helped alleviate much of her anxiety. She describes the fascinating process of stem cell harvesting and the convenience of using a port for medical procedures. However, the journey was not without its hardships, as Diane lost her hair due to the intensive chemotherapy, a side effect handled with grace and humor.Post-transplant, Diane faced numerous challenges in adjusting to everyday life, from being in a highly protected hospital environment to navigating the risks of infection at home. She had to adopt new hygiene practices, including daily showers with clean towels and washcloths, and careful food preparation to avoid infection risks. Diane also shares the emotional toll of not being able to socialize freely and the adjustments she made to stay connected with friends and family.Peggy and Diane delve into the physical changes Diane experienced after her transplant, particularly the fatigue and the need to listen to her body's demands for rest. Diane also touches on the mental aspects of coping with cancer, emphasizing the importance of avoiding negative online forums and focusing on reputable sources for information.Diane candidly discusses the challenges of acknowledging her cancer and the psychological impact of the diagnosis. She stresses the importance of therapy and talking about one's experiences, sharing personal anecdotes that highlight the therapeutic value of open communication.As the episode concludes, Diane offers invaluable advice for others going through similar experiences. She emphasizes the importance of following medical guidance, staying safe, and finding value in everyday life, relationships, and the simple things. Her story is a testament to resilience, adaptability, and the power of a positive outlook in the face of adversity.Other Resources:National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/nbmtLINK Facebook Page:  https://www.facebook.com/nbmtLINKnbmtLINK YouTube Page can be found by clicking here.Thank you to our sponsors. This season is supported by a healthcare contribution from Sanofi  https://www.sanofi.com/

**Disclaimer: The information in this podcast should not be construed as medical advice. Please consult with your health care provider regarding your medical decisions and treatment. Any listed resources are not intended to be endorsements.**In today's episode of our podcast, we had the privilege of speaking with Gregory Proctor, a 53-year-old multiple myeloma survivor from San Antonio, Texas. Gregory's story is a testament to resilience and hope, as he details his journey through a challenging battle with cancer, starting from his diagnosis in July 2022, to his stem cell transplant, and his ongoing recovery. Gregory shares the shock and fear he experienced when first diagnosed, particularly when advised to "get his affairs in order." He describes the mental and emotional toll of dealing with such a diagnosis, emphasizing the importance of mental strength and determination in facing the disease. His story took a dramatic turn with his return to the hospital just 14 hours after being discharged, due to a dangerously high fever. This event marked the beginning of a challenging path to recovery, filled with physical weakness and stringent precautions to protect his compromised immune system.A significant part of Gregory's conversation focuses on the emotional challenges of coping with cancer. He talks about the initial period of depression and the process of accepting his new life and journey. This acceptance was crucial in shifting his mindset from despair to determination and finding a renewed sense of purpose.Financial toxicity was another critical topic Gregory touches upon. He sheds light on the staggering costs of cancer treatment and the importance of understanding insurance policies and seeking additional resources. His experience highlights the often-overlooked financial burden of battling cancer, which can be as devastating as the disease itself.Gregory also discussed the social isolation he experienced, exacerbated by the pandemic and his condition. He highlighted the changes he had to make in his daily routine, like visiting grocery stores during low-peak hours and carefully vetting his social interactions to avoid infections.On a positive note, Gregory spoke about regaining his strength and the incremental progress he made in his physical recovery. He emphasized the mental aspect of this journey, pushing boundaries to rebuild his strength gradually. His story is inspiring, showing that persistence and small, consistent efforts can lead to significant improvements over time.Gregory's approach to medication management was unconventional yet effective for him. He advocated for a treatment plan that made sense to him and allowed him to maintain some normalcy in his life. This part of the conversation underscored the importance of patient advocacy and being an active participant in one's treatment plan.As for his current life, Gregory is channeling his experiences into positive endeavors. He just published his book, titled Faith, Strength, and Courage, and is actively involved in speaking engagements and consultancy work. His story is a beacon of hope for many, illustrating how one can turn adversity into an opportunity to inspire and help others.Gregory concluded the podcast with valuable advice for those facing tough days. He stressed the importance of never giving up, finding strength in faith, and realizing that you're not alone in your journey. His message is clear: cancer may be a part of your life, but it doesn't define your entire existence.Greg's Book: Faith, Strength, and Courage on Amazon: https://www.amazon.com/FAITH-STRENGTH-COURAGE-Overcoming-Adversity/dp/760919834X/Other ResourcesNational Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/nbmtLINK Facebook Page:  https://www.facebook.com/nbmtLINKnbmtLINK YouTube Page can be found by clicking here.Thank you to our sponsors. This season is supported by a healthcare contribution from Sanofi  https://www.sanofi.com/

Welcome to Season 12 of the Marrow Masters Podcast, brought to you by the National Bone Marrow Transplant link, and sponsored by Sanofi. This season focuses on one critical question. "I'm home, now what?" You'll hear candid stories and advice from survivors and caregivers. This season, you'll also get valuable advice from a registered dietician and a social worker. .Season 12 of the Marrow Masters Podcast is out December 19th, 2023. Don't miss an episode - follow our show for free on Apple, Spotify, YouTube, or at N-B-M-T-link-dot-org.

Broadcasting LIVE from Children's Hospital, it's the Light up the Season" Radiothon presented by CHNOLA and WWL.  This hour, Scoot speaks with:            Jessica Brandt, philanthropist and presenting sponsor of Radiothon        Dr. Ben Watkins, Director of the Stem Cell Transplant and Cell Therapy Program Alicia Martes, parent of a patient of Children's Hospital

Stem cell transplant remains a useful and widely used treatment for multiple myeloma. John DiPersio, MD, PhD of the Siteman Cancer Center at Washington University joins HealthTree Podcast for Multiple Myeloma to discuss stem cell transplant in myeloma, a new and better way to collect stem cells as part of the process and the utility of stem cell transplant in the age of immunotherapies.  Thanks to our episode sponsor, GSK

You may have come across Jordy on Tiktok (@itsjordysworld) where she very openly shares the details of her life with a chronic illness and living with an ostomy bag. At age 9, Jordy was diagnosed with a rare case of Crohn's disease - an incurable chronic inflammatory bowel condition where her body attacks her own digestive system. Only a few months ago, she was fighting for her life in the process of a stem cell transplant, but after a successful surgery (and the first of its kind in Australia) she is now thriving and things are looking up for the 25 year old. In today's KICPOD episode, Jordy so eloquently shares her journey of what led her to the transplant, how it felt thinking her time was up, and what it was like filming a goodbye video for her family. She also explains what life is like with an ostomy bag, how she is confident to be 100% herself on social media, and her feelings around the prospects of dating.See omnystudio.com/listener for privacy information.

This week we're talking to Tori McGee, who is a two time Hodgkins Lymphoma survivor, stem cell survivor and Guillain-Barre Syndrome warrior. She has now been in remission since last March 2022! She shared with us how important it is to listen to your body rather than just go through the motions of life and accept not feeling great. Tori also opens up about how before her diagnosis she was always go go go and never took breaks or time for herself, and now moving forward how important that is her for her and her health. She talks about the process of getting diagnosed and how scary it was seeing her scan results for the first time and how due to the size of her tumor she wasn't able to do anything in regards to fertility prior to treatment.  Tori also walks us through the stem cell transplant process and how it went for her, and how she ended up also getting diagnosed with Guillain-Barre Syndrome (GBS), which is an autoimmune disease that attacks the nerve endings.  She provides some amazing advice and tips on how she stays so positive and has such a great perspective on life, taking one day at a time and prioritizing your health.  You can check out Tori's website at iamstoritelling.com and follow her in Instagram at @storitelling. Don't forget to rate, review and subscribe to the pod and follow us on Insta @canceractuallysuckspod!

Three people. Ever. That's how many have been cured of HIV. We visited one of them to learn about the extraordinarily rare (and risky) treatment — and to find out if it can, even indirectly, lead to a true cure for 40 million more.

The Root Cause Medicine Podcast is created by Rupa Health, the best way to order, track & manage results from 30+ lab companies in one place for free. The Root Cause Medicine Podcast is a weekly one-on-one conversation with renowned medical experts, specialists, and pioneers who are influencing the way we look at our health and wellbeing. This week we're joined by Dr. Richard Burt, Chief of the Division of Immunotherapy, Department of Medicine, Feinberg School of Medicine, Northwestern University, Chicago, Illinois. In this episode, Dr. Richard Burt shares his insights on hematopoietic stem cell transplant (HSCT) for autoimmune disorders. For thirty-five years, Dr. Burt dedicated himself to advancing stem cell and cellular therapy, beginning with animal models and, later, some of the world's first clinical trials. He authored over 145 articles, mostly as the first author, and edited four medical textbooks. As the first Autoimmune Committee Chairperson for the International Bone Marrow Transplant Registry (IBMTR), he led the way in developing stem cell clinical trials for autoimmune diseases, securing a National Institute of Health (NIH) $10,000,000 multi-center contract. Dr. Burt performed America's first hematopoietic stem cell transplant (HSCT) for multiple sclerosis (MS), systemic lupus erythematosus (SLE), Crohn's disease (CD), stiff person syndrome (SPS), and chronic inflammatory demyelinating polyneuropathy (CIDP). He also published the world's first randomized clinical stem cell transplantation trials for systemic sclerosis and multiple sclerosis. Dr. Burt's pioneering stem cell work earned him recognition as one of the top 50 people in the world for improving humanity by Scientific American in 2006, along with A1 Gore and Steve Jobs. In 2011, Science Illustrated recognized his stem cell work as one of the top 10 advances of the decade. Key Takeaways: What is a hematopoietic stem cell transplant? Hematopoietic stem cell transplantation (HSCT) is a medical procedure where multipotent stem cells are transplanted into a patient, typically from bone marrow, peripheral blood, or umbilical cord blood. These cells can replicate and produce new, healthy blood cells, which can rejuvenate or repair damaged tissue in different organs, and also help fight viruses and foreign tissue. While leukemia is caused by defects in the blood stem cells themselves, autoimmune diseases arise from defects in the immune cells produced by these stem cells. To treat autoimmune diseases, specialists target the effector cells responsible for the disease and eliminate them, then quickly regenerate healthy cells from the blood stem cell. By using HSCT to replace damaged or defective cells with healthy ones, physicians hope to mitigate the symptoms of autoimmune disorders and promote long-term recovery. This innovative approach to treatment is still undergoing testing and refinement, but it shows great promise in the fight against these debilitating diseases. Finding the optimal transplant regimen for autoimmune diseases If your regimen is too strong, whether it's myeloablative or non-myeloablative, you can have more toxicity and problems. If it's too weak, it's not going to be effective. And so you've got to find that right regimen. When finding the optimal transplant regimen for autoimmune diseases, the aim is to develop a treatment plan that maximizes the benefits of the transplant while minimizing the risks and complications associated with it. An optimal transplant regimen for autoimmune diseases involves selecting the appropriate donor, considering the type of transplant, choosing the right conditioning regimen, and determining the timing and dosing of immunosuppressive medications. Financial toxicity in American healthcare systems Financial toxicity is a growing concern in America, particularly in medical treatments. Unfortunately, this often leads to patients being prescribed expensive treatments that may not be the best option for their specific needs. To achieve successful outcomes with hematopoietic stem cell transplantation, two key factors need to be considered: patient selection and the conditioning regimen used. However, due to the financial pressures facing healthcare providers and institutions, specialists may feel obligated to prescribe expensive treatments, even if they are not necessarily the most appropriate option for the patient. This can be a major source of frustration for patients, who may struggle to afford these treatments or may not receive the care that they truly need. Dr. Burt emphasizes the importance of physicians taking responsibility for their patient's care and being mindful of the financial implications of their recommendations. Rather than being driven solely by financial considerations, doctors should focus on providing the best possible care for their patients. By doing so, they can help to mitigate the effects of financial toxicity and ensure that patients receive the treatments that are best suited to their individual needs.

How did a random Facebook message help a man with cancer on the stem cell transplant list? Guests include Dr. Nasheen Ahmed, hematologist and medical oncologist; Dr. Chris Lominska, radiation oncologist; and Shelleen King, RN, bone marrow transplant coordinator.

After running a low grade fever for over a week that was thought to be a virus, Stephanie Yost Was diagnosed with Acute Myeloid Leukemia at the age of 14 in 2013. Stephanie will talk about her 3 Chemotherapy treatments, her Stem Cell Transplant, and her decision to become a Child Life Specialist on today's podcast. 

In this episode, Angela Branche, MD, and Helen Y. Chu, MD, MPH, discuss the impact of respiratory syncytial virus (RSV) and describe those at risk for severe RSV disease, including: RSV prevalence and seasonality  RSV burden throughout life, including burden in older adultsComorbidities that increase the risk of RSV complications  RSV transmission in the hospital and care home settingImplications of risk factors for severe RSV on prevention and treatment    Faculty: Angela Branche, MDAssociate Professor of MedicineDivision of Infectious DiseasesDepartment of MedicineUniversity of RochesterRochester, New YorkHelen Y. Chu, MD, MPHAssociate Professor of MedicineDivision of Allergy & Infectious DiseasesUniversity of Washington  School of MedicineSeattle, WashingtonLink to full program: bit.ly/3nb25xeLink to downloadable slides: bit.ly/3TsXym5

Dr. Matilde Inglese discusses her article, "Hematopoietic Stem Cell Transplantation in People With Active Secondary Progressive Multiple Sclerosis". Show References: https://n.neurology.org/content/early/2022/12/21/WNL.0000000000206750

Dr. Shuvro Roy talks with Dr. Matilde Inglese about comparing stem-cell transplants to DMTs in patients with Secondary Progressive MS. Read the related article in Neurology®.

Drs Milner, Dalal, and Ligon discuss hematopoietic stem cell transplant in children with severe aplastic anemia, graft failure risk factors in children receiving hematopoietic cell transplant for non-malignant disorders, and the use of mediports for CAR T-cell infusion.

To say Steven is inspiring is an understatement. One of the biggest takeaways for me is Steven's attitude & how he has managed and dealt with a devastating diagnosis and the multiple afflictions that followed. We talk about how important it is to have the right medical team for "you" and the support of Family and Friends. Along with Steven's unrelenting determination, grit and dedication to fitness, his story and recovery is an example we all can learn from. Resources: @warrior2cancer @texasneurospinesurgery Show Sponsors: LINK IN BIO USE CODE: “MODERNCOWBOY” @moderncowboypodcast www.moderncowboy.global @nrsworld https://g-sight.com/ @gsightdryfire Show Music: The Ropin Pen By: Trent Willmon MC Podcast Production & Editing: Tyler Hillenbrand @tyhbrand

0

Jess Faulds is a certified holistic nutrition consultant diagnosed with Multiple Sclerosis (M.S.) at the age of 15. Through her M.S. journey, she suffered through different disease-modifying drugs and treatments before having a stem cell transplant! She sits down with John R. Miles on The Passion Struck Podcast to discuss how Haematopoietic Stem Cell Transplantation (HSTC) cured her M.S. and the nutrition science that promoted recovery. New to this channel and the passion-struck podcast? Check out our starter packs which are our favorite episodes grouped by topic, to allow you to get a sense of all the podcast has to offer. Go to https://passionstruck.com/starter-packs/. Do You Need To Ship Packages? Try ShipStation ShipStation makes shipping the easy part of running your online store. So you can get back to doing what you're passionate about—growing your business. Just go to ShipStation.com, click on the microphone at the top, and enter code PASSIONSTRUCK.   Like this? Please join me on my new platform for peak performance, life coaching, self-improvement, intentional living, and personal growth: https://passionstruck.com/ and sign up for our email list. Learn more about me: https://johnrmiles.com. SHOW NOTES 0:00 Introduction 3:41 Her diagnosis of M.S. at only 15 7:45 The rarety of it in teens 10:27 Different types of M.S. 16:33 Discovering nutrition science 19:33 Disease-modifying therapies for M.S. 23:09 Undergoing stem cell treatment 29:52 How nutrition science promoted recovery 36:19 Why more doctors aren't talking about diet:  39:56 How the 5 AM Club changed her life 43:48 Discussing the book How Not to Die: Discover the Foods Scientifically Proven to Prevent and Reverse Disease 46:02 A typical day in the life of Jessica Faulds 49:09 She recommends eating the rainbow 50:34 Quick Rapid Round of Questions ===== FOLLOW JESS FAULDS ===== *Personal Instagram: https://www.instagram.com/jessicakcfaulds/ *Instagram: https://www.instagram.com/alltherightbites/ *Facebook: www.facebook.com/alltherightbites/ * website: www.alltherightbites.ca   ===== FOLLOW JOHN R. MILES ON THE SOCIALS ===== * Twitter: https://twitter.com/Milesjohnr * Facebook: https://www.facebook.com/johnrmiles.c0m * Medium: https://medium.com/@JohnRMiles​ * Instagram: https://www.instagram.com/john_r_miles * LinkedIn: https://www.linkedin.com/company/JohnMiles * Blog: https://passionstruck.com/blog/ * Instagram: https://www.instagram.com/passion_struck_podcast   ====== ABOUT JOHN ====== John R. Miles leads a global movement called Passion Struck. He is passionate about being the catalyst who helps individuals expand into the most excellent version of themselves, unlocking the most no regrets life possible. He is a combat veteran, multi-industry CEO, successful entrepreneur, top podcast host, and author who is helping people worldwide regain their passion. John is one of the most-watched, quoted, and followed high-performance trainers globally, and his leadership acumen spans more than two decades. He's founded or co-founded more than half a dozen successful start-ups, was a Fortune 50 CIO and CISO, mentors rising entrepreneurs, and invests in successful tech ventures. He graduated from the U.S. Naval Academy, where he learned vital leadership skills and was a multi-sport Division 1 athlete.