Podcast appearances and mentions of debra ireland

Jimmy Fearon, CEO of Debra Ireland, discusses Colin Farrell and Emma Fogarty's fundraising for Debra Ireland which saw them cross the finish line at the Dublin City Marathon

Emma and Colin join Ray as they prepare to tackle the Irish Life Dublin Marathon on Sunday and raise money for Debra Ireland. To donate go to Debra.ie or call 01 902 3938.

  With just over a week to go to the Irish Life Dublin Marathon on Sunday 27th October, my guest presenter David O'Sullivan was joined by the heads of Irish charities whose funding will hopefully benefit from the sponsorship and donations from those involved. Grainne O'Leary Chief Executive Arthritis Ireland ★Jimmy Fearon Chief Executive, DEBRA Ireland Among the main themes explored were... 1. What is the historical context of Irish charitable giving? 2. How has the Irish charity sector evolved in terms of governance and professionalism? 3. What are the key challenges faced by Arthritis Ireland and Debra Ireland? 4. What are the main misconceptions about arthritis? 5. What is Epidermolysis Bullosa (EB), and why is it referred to as “butterfly skin”? 6. How has the COVID-19 pandemic impacted Irish charities? 7. How has Colin Farrell supported Debra Ireland? Colin Farrell, the renowned Irish actor, has been a long-standing supporter of Debra Ireland, forming a close friendship with Emma Fogarty, a prominent ambassador for the charity.  

The longest living person in Ireland with Eipdermolysis Bullosa also known as Butterfly Skin Emma Fogarty chats to Ray about reaching the age of 40 when she wasn't expected to survive more than a week after her birth.

Bobby began his career building video games for Nintendo. After that, he founded Eland (an airline tech company) which he sold to SITA before going on to build CarTrawler over 15 years, and led two successful LBOs for the business. For the last 4 years, he's been building ‘Manna Drone Delivery' - a business whose mission is to improve the world by making lightning-fast suburban deliveries affordable, green and safe. He is also a founder of Meili Travel technology with a mission to end the fiasco of car hire brokering. Aside from business, Bobby has a keen interest in philanthropy and is an active member of the board of Debra Ireland as well as running several fund-raising events for other charities. This is the 17th episode with guest Bobby Healy, Founder of Manna Drone Delivery in the Davy podcast series 'Everyday Business with Aidan Donnelly'. This podcast brings you insightful conversation between Aidan Donnelly and entrepreneurs and business owners/management with their own unique story to tell. If you like what you hear, please like, share and subscribe.

Claudia Scanlon shares her story of living with epidermolysis bullosa and the support from charity DEBRA Ireland, ahead of the awareness week for the skin condition.

DEBRA Ambassadors Trisha Lewis @trishastransfo1 and Emma Fogarty @emma_p_fogarty are chatting about our DEBRAs StepTember Challenge and why they want you to sign up alongside them. See acast.com/privacy for privacy and opt-out information.

The mother of a teenager with a debilitating skin condition is pleading for family carers to be included in Covid vaccine priority lists. Liz Collins’ worst nightmare came true when she and her husband Gary both tested positive for the virus, leaving them deeply concerned over who would care for their 17-year-old daughter Claudia, who has Recessive Dystrophic EB and requires daily care at their home in Terenure. Liz, who is a parent ambassador with DEBRA Ireland, joined Shane Beatty on Breakfast Briefing:   [audio mp3="https://media.radiocms.net/uploads/2021/02/18071038/liz-collins.mp3"][/audio]

Ray catches up with Emma Fogarty to talk about her fundraising for Debra Ireland and they are joined on the line by Colin Farrell.

On Episode 12 (the final episode in Series 1) we have the patient ambassador for DEBRA Ireland, Emma Fogarty. Emma suffers from RDEB, also known as Recessive Dystrophic Epidermolysis Bullosa. EB is a rare, genetic skin condition which causes the skin to blister at the slightest touch. These wounds, some of which will never heal, occur both internally and externally and are constantly at risk of severe infection. Children that are born with EB are highly susceptible to a very aggressive form of skin cancer from as early as their teenage years and there is currently no cure for EB. Emma has an extraordinary life, and has experienced pain most humans can't even fathom. This remarkable woman is everything The Other Side Of Perfect is about because, she's not defined by her struggle, instead her strength. In this episode we discuss in detail, what it's like living with EB, life outside the condition, the incredible people Emma has met on her journey, and why fundraising is so important. On the topic of fundraising, DEBRA Ireland is the only charity devoted solely to the care and cure of EB. DEBRA supports patients and their families living with the devastating effects of this condition and helps them cope with all the challenges that it brings. DEBRA provides this through their in-home EB Community Care Programme as well as advancing research both nationally and internationally. In February 2020 I will be taking part in the DEBRA Ireland Arctic Challenge. My mission is to survive in the harsh environment of Northern Finland, 150km above the Arctic Circle, totally off grid with no running water or electricity. The aim is to learn new skills and survive the extreme cold of the arctic regions whilst raising money for children living with EB. Last year the trip raised just under €250,000 from just 35 participants. In 2020 there's 36 of us heading and it's the first year men will be joining the mission. I know you will take a huge amount from this episode and I urge you to use the emotion and empathy experienced to make just a small donation where 100% of the proceeds from my Arctic fundraising go directly to DEBRA Ireland.DONATIONS https://www.justgiving.com/fundraising/joannelarbyArctic Challenge https://www.youtube.com/watch?v=i0AnSVhxHVEDEBRA Ireland https://debraireland.org/Visit https://theothersideofperfect.com/

Claire Concannon works for DEBRA Ireland - and is avowedly single.   The really good book I was reading while I was on a date (and wanted to get back to) was NK Jemisin's The Fifth Season, which I would really recommend.   "Women are happier without children or a spouse." Read all about it in the Guardian.   That "Millennial Burnout" article I'm always on about is here.   ***   Would you like to hear more from me? Read my writing on Patreon here. For just $4 per month you'll get two pieces of writing per week, as well as an exclusive mini podcast episode every fortnight. The latest minisode featured Gearoid Farrelly scrolling through my Tinder in a somewhat hopeless attempt to find me a man. (It's fun, I swear.)   If you're buying from Amazon, I would really appreciate it if you'd use my affiliate link. It helps support what I do and costs you nothing extra! Same goes for Asos...    You can follow me on all of my social media handles @rosemarymaccabe.   Thank you so much for listening to How to be Sound. Please take some time to rate and/or review on iTunes; it helps other people who might like it to find How to be Sound!   Producer extraordinaire Liam Geraghty's Meet Your Maker is also well worth a listen. See acast.com/privacy for privacy and opt-out information.

In this, the 15th and final episode of Inspirefest: The Podcast series two, Dr Shaun O'Boyle chats to Liz Collins and Claudia Scanlon about living with epidermolysis bullosa (EB) and the support system Debra Ireland has created for people with EB. In this wide-ranging discussion, the mother and daughter duo discuss their individual experience with EB and how they've used it to help others. Produced by Bureau. Inspirefest: The Podcast is proudly supported by our anchor sponsor, The Digital Hub. Use the discount code ‘Inspirepod19' to get 10% off your tickets today! https://inspirefest.com/#tickets Help us stay trendy! If you like us, please rate us.

Today's show Matt sat down with two amazing lady’s, Liz Collins and her superstar of a daughter Claudia Scanlon. Claudia was born with Epidermolysis bullosa (EB) also known as butterfly syndrome. EB is a distressing and painful genetic skin condition that causes the skin layers and internal body linings to separate. Claudia talks about living with EB, Her great friends and nurses, her attitude to life and the amazing bond she has with her mam Liz. Liz is the Family Patient Ambassador for Debra Ireland. Please give your support to this amazing charity. www.debraireland.org Special thanks to; Niall Reilly - www.rooneymedia.com Carolyn Harvey- ISANutrition Magic Minds Podcast Team Matt Burke- Creator/Host Derek Mc Donnell - Sound & Audio Production Aaron Keogh - Social Media & Promotion --- Send in a voice message: https://anchor.fm/magic-minds/message

Join us as we chat with Ann O'Dea of Silicon Republic about her Artic Challenge for Debra Ireland, the importance of diversity in the workplace and why she is now a big supporter of gender quotas. Opening and closing credits music was Someways by Nicolai Heidlas.