Podcasts about hemophilia foundation

In this live episode from the Hemophilia Foundation of Michigan's Conference for Women and Teens, hosts Jessica and Sarah create an open dialogue about menstruation, aiming to normalize the conversation and encourage self-advocacy.    They invite participants (virtual and in person) to discuss their menstrual journeys, touching on subjects such as heavy bleeding, inadequate medical support, and the stigma surrounding periods. Special guests Christine, Francis, and Erica share stories of managing bleeding disorders, receiving late diagnoses, and utilizing various tools and products for relief. The episode passionately encourages advocacy, community support, and broader education on menstrual health.   Program Notes:   Episode Links: Hemophilia Foundation of Michigan's Conference for Women + Teens Women with Hemophilia - Documentary Sign Up   How's Your Flow? We wanna know (Calendly link): https://calendly.com/flowtalk/flow-talk-period-pain-stories   HOST: Jessica RIchmond Website: jrich.online IG, @jessicalaurenrichmond  Twitter @geniuspills  Tik Tok @jrichsocal   HOST: Sarah Watson Website: sarahwatsonlpc.com Podcast: Behind The Bedroom Door Facebook: @sarahwatsonlpcsextherapy IG @swsxtherapy Twitter @swsextherapy   Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more.   Connect with BloodStream Media: Find all of our bleeding disorders podcasts on  BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter    Check out Believe Limited's Other Work: BloodFeed: bloodfeed.com Bombardier Blood: bombardierblood.com Hemophilia: The Musical: breakingthroughhemophilia.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com Teen Impact Awards: teenimpactawards.com The Science Fair: thesciencefair.org  

Sarah Procario is the Advocacy Director for the Hemophilia Foundation of Michigan, and leader of the Michigan All Copays Count Coalition. Patients from across Michigan Helped by New Bill to Ensure All Copays Count

June 7, 2023 ~ Full Show. Joe Charles, Director of Instruction for the Boyne Golf Academy kicks off day 3 of the Pure Michigan Golf Tour. Senior News Analyst Lloyd Jackson discusses Detroit having the world's worst air quality today due to the Canadian wildfires. Sarah Procario, Advocacy Director for the Hemophilia Foundation of Michigan and Leader of the Michigan All Copays Count Coalition tells us about new co-pay rules. Bernie Friedrich, Director of Golf Course Renovations and Development for Boyne Golf talks golf. Craig Mauger from the Detroit News discusses Michigan lawmakers' plan to allow early voting and the possibility of a national popular vote. Tom Gillis, Professional Golfer on the PGA Tour on the uproar among PGA golfers over the LIV merger. Josh Richter, Senior Vice President of Golf Operations for Boyne Golf joins us and Rod Alberts, Executive Director of the Detroit Auto Dealers Association has some exciting news for the 2023 North American International Auto Show.

June 7, 2023 ~ Sarah Procario, Advocacy Director for the Hemophilia Foundation of Michigan & Leader of the Michigan All Copays Count Coalition, talks with Guy Gordon about how some health insurers are avoiding counting copays towards patient deductibles.

Jessica Foley, MD is a pediatric hematologist and oncologist with a passion for camp. Join Sarah and Jessica on FLOW as they deep dive into vWD diagnosis challenges, treatment options, and the joys of hemophilia camp - all in honor of March / Bleeding Disorders Awareness month.   FLOW is straight talk about extreme periods, with new episodes the second Thursday of each month. Tune in for tips for self study, shared discoveries and to expand menstrual awareness.    Program Notes:   vWD Resources NHF - National Hemophilia Foundation WFH - World Federation of Hemophilia  Foundation for Women & Girls with Bleeding Disorders Let's Talk Period   HOST: Jessica RIchmond Website: jrich.online IG, @jessicalaurenrichmond  Twitter @geniuspills    HOST: Sarah Watson Website: sarahwatsonlpc.com Podcast: Behind The Bedroom Door Facebook: @sarahwatsonlpcsextherapy IG @swsxtherapy Twitter @swsextherapy   FLOW is sponsored by Takeda, the manufacturer of a treatment for adults with von Willebrand disease. To see if this treatment might be right for you and your needs, visit: https://ssshare.it/2rnK    Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter    Check out Believe Limited's Other Work: BloodFeed: bloodfeed.com Bombardier Blood: bombardierblood.com Hemophilia: The Musical: breakingthroughhemophilia.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com Teen Impact Awards: teenimpactawards.com The Science Fair: thesciencefair.org

Ken talks with Sarah Procario,Advocacy Director, Hemophilia Foundation of MichiganSee omnystudio.com/listener for privacy information.

Megan Adediran, President of the Hemophilia Foundation of Nigeria and Durhane Wong-Rieger, President and CEO of the Canadian Organization for Rare Disorders, join the podcast to talk about the importance of finding new and innovative ways to expand access to life-saving therapies for people living with bleeding disorders. 

Ken talks with Sarah Procario, Hemophilia Foundation of Michigan  See omnystudio.com/listener for privacy information.

Sarah Procario from the Hemophilia Foundation of Michigan. MI patients v health insurance companies

What does your soul need? Do you ever think about it? It's not the word that comes up most often on my podcast so I was really moved when Patricia Medranda referred to her desire to teach middle school kids as something her soul needed.  Had she always dreamed of becoming a teacher? Not even close - she originally wanted to be a surgeon. After her first career pause, she worked for a pharmaceutical company. And then she paused again. In her interview, she shares how her early interest in medicine served her as a mom and a daughter attending to the medical needs of her children and her father. And she shares how she developed a love for teaching through her volunteer work with the Hemophilia Foundation.

Leah Love from The Hemophilia Foundation of Greater Florida & Sitting On Top A Pile of Poop on 91.5 WPRK & Michael Rizzo from Personal Talent and Media Group come hang with us. I thought they were vegetarians, but they're not. We could’ve ate chicken wings. Beside that, we had fun. CHECK OUT THE LINKS: Leah: http://www.hemophiliaflorida.org https://spinitron.com/WPRK/show/10937/Sitting-On-Top-A-Pile-of-Poop Michael: https://www.personaltmg.com https://www.facebook.com/events/729847000814556/    

Hemophilia Foundation of Michigan’s Camp Bold Eagle is turning 50 this year! Camp Bold Eagle is the longest running summer camp for kids and teens with bleeding disorders in the United States and to celebrate this incredible accomplishment and to relish in the joy of summer camp, Ask the Expert invited staff of the Hemophilia Foundation of Michigan to join us as they reminisce about the history of camp, the amazing leadership that is developed at camp and share the evolution of Camp Bold Eagle. Whether you are a parent struggling with sending your child to camp for the first time or a seasoned camper that can’t wait to see your friends next summer, join us for a conversation about the history of bleeding disorder camps and unique power camp has to foster independence in all of us.   Welcome to Episode 30 - or our Summer Camp Special! Episode - of the Ask The Expert Podcast!     Find a bleeding disorder camp in your area: Hemophilia Federation of America Camp Directory National Hemophilia Foundation Camp Directory   “The concept back then was to see what they could do rather than couldn’t do.“ -Sue Lerch “Many chronic disease camps are designed to forget about disease, but hemophilia camp was designed to engage with the disorder to develop independence.” -Sue Lerch “Camp is not about the place - it’s about the people.” - Tim Wicks      

In many developing countries, children that are born with chronic medical conditions are placed in orphanages. With limited hope for care in these situations one of the best hopes for these children is to be adopted. In this month’s Ask The Expert episode, we visit with Shari Luckey, the Adoption Advocacy and Outreach Coordinator for the Hemophilia Foundation of Michigan. Shari not only has personal experience adopting a child with hemophilia from a developing country but also works with individuals around the country to help them navigate the challenge adoption system. We explore her personal journey through adoption and learn about what the overall adoption process looks like. We also touch on the unique challenges this presents when the adopted child has a chronic medical condition. To contact Shari, please visit the website below. https://www.hfmich.org/what-we-do-adoption/   Disclaimer: The content contained within Ask The Expert is for informational purposes only. Please consult your healthcare provider before making any decisions about treatment or changes in physical activities. Have a bleeding disorders-related question you’d like to submit to Ask The Expert? Excellent! You can email it to mailbag@bloodstreammedia.com (Subject: Ask The Expert Question), post it on the wall of our Facebook Page, Facebook.com/BloodStreamMedia or tweet it to us @BloodStreamInfo or @pjlynch (host) All 2018 episodes of Ask The Expert are made possible exclusively by Bayer & Living With Hemophilia.  Connect with BloodStream: BloodStream Facebook Page BloodStream Twitter Account Email mailbag@bloodstreammedia.com Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream Host Patrick James Lynch on Twitter and Instagram.