Podcasts about bleedingdisorders

This month's FLOW delves into the 'Iron Ladies' research - they investigate iron deficiency's prevalence among women with bleeding disorders, the importance of routine screening, the challenges in setting standardized care practices, and the historical exclusion of women from clinical trials. Featuring Dr. Megnahn McCormick, a doctor passionate about treating iron deficiency.   Program Notes:   Episode Links: Bloodstream Media: https://www.bloodstreammedia.com/ The Iron Ladies Study: The Iron Ladies: Prevalence and Risk Factors of Iron Deficiency in Females With Bleeding Disorders - McCormick - Haemophilia - Wiley Online Library A study presenting the data available through the ATHN dataset on women and girls with bleeding disorders* A Cross-Sectional Study of Women and Girls with Congenital Bleeding Disorders: The American Thrombosis and Hemostasis Network Cohort | Journal of Women's Health *includes a discussion on how participation in the dataset is not complete and how work is being done to remedy this! An article about the impact of Thalidomide on FDA regulation: How medical research changed after thalidomide More in depth on Thalidomide: Clinical Trials in Pregnancy and the “Shadows of Thalidomide”:Revisiting the Legacy of Frances Kelsey - PMC Information about what is identified as a “normal” hemoglobin; and how  women who are iron-replete hemoglobin values are similar to men:  “These findings highlight sex-based inequities that lead to normalization of disease states and the critical need to update hematologic ranges truly reflective of iron repletion.” Sex, lies, and iron deficiency: a call to change ferritin reference ranges | Hematology, ASH Education Program | American Society of Hematology 2021 article, Iron Ladies: Variation in the Identification and Management of Iron Deficiency in Women with Bleeding Disorders: https://www.sciencedirect.com/science/article/pii/S0006497121030202   How's Your Flow? We wanna know (Calendly link): https://calendly.com/flowtalk/flow-talk-period-pain-stories   HOST: Jessica RIchmond Website: jrich.online IG, @jessicalaurenrichmond  Twitter @geniuspills  Tik Tok @jrichsocal   HOST: Sarah Watson Website: sarahwatsonlpc.com Podcast: Behind The Bedroom Door Facebook: @sarahwatsonlpcsextherapy IG @swsxtherapy Twitter @swsextherapy   Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more.   Connect with BloodStream Media: Find all of our bleeding disorders podcasts on  BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter    Check out Believe Limited's Other Work: BloodFeed: bloodfeed.com Bombardier Blood: bombardierblood.com Hemophilia: The Musical: breakingthroughhemophilia.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com Teen Impact Awards: teenimpactawards.com The Science Fair: thesciencefair.org  

In this week's episode we'll learn about the role of autologous transplant for relapsed myeloma. In an updated analysis of the GMMG ReLApsE trial, salvage autologous transplant offered no survival benefit compared to control chemotherapy. These findings may have clinical implications in an era of alternative, and highly effective, treatment options. After that: Response to DDAVP, or desmopressin, in bleeding disorders. This study is the first large scale meta-analysis to assess the response rate to DDAVP in bleeding disorders. Authors provide new insights into determinants of response, which vary according to the disease type. Finally, turning to diffuse large B cell lymphoma. Germinal center B cells depend on the activity of DOT1 and EZH2 to maintain their pro-proliferative identity. New research shows that combined treatment with DOT1L and EZH2 inhibitors has synergistic activity in vitro.Featured Articles:Salvage autologous transplant in relapsed multiple myeloma: long-term follow-up of the phase 3 GMMG ReLApsE trialDDAVP response and its determinants in bleeding disorders: a systematic review and meta-analysisTargeting DOT1L and EZH2 synergizes in breaking the germinal center identity of diffuse large B-cell lymphoma

In honor of Bleeding Disorders Awareness Month, Flow is talking about advocacy in action for Factor 7 Deficiency. Our guest Stacy shares challenges with extreme menstrual pain and dismissed symptoms, emphasizing the importance of persistence while navigating a broken healthcare system where rare conditions are poorly understood. Despite facing systemic hurdles, keeping up with current research and working with several bleeding disorder foundations helps Stacy move the proverbial needle in accessing treatment.   Program Notes:   Episode Links: https://ches.education/board https://www.bleeding.org/bleeding-disorders-a-z/types/other-factor-deficiencies/factor-vii   How's Your Flow? We wanna know (Calendly link): https://calendly.com/flowtalk/flow-talk-period-pain-stories   HOST: Jessica RIchmond Website: jrich.online IG, @jessicalaurenrichmond  Twitter @geniuspills  Tik Tok @jrichsocal   HOST: Sarah Watson Website: sarahwatsonlpc.com Podcast: Behind The Bedroom Door Facebook: @sarahwatsonlpcsextherapy IG @swsxtherapy Twitter @swsextherapy   Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more.   Connect with BloodStream Media: Find all of our bleeding disorders podcasts on  BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter    Check out Believe Limited's Other Work: BloodFeed: bloodfeed.com Bombardier Blood: bombardierblood.com Hemophilia: The Musical: breakingthroughhemophilia.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com Teen Impact Awards: teenimpactawards.com The Science Fair: thesciencefair.org

On this month's FLOW, peak behind the curtain of the award-winning comedic web-series Stop the Bleeding!     The guests share personal stories about learning about and dealing with hemophilia, periods, and the significance of portraying these issues through their characters on STBhemo.com - and the joys of benign part of an ( animated ) series that tackles choosing pride, dismantling shame, and raising awareness - specifically that women have hemophilia too!   Program Notes:   Episode Links: Stop the Bleeding! https://www.stbhemo.com/en/our-episodes Queen Noveen Hillary Hawkins   How's Your Flow? We wanna know (Calendly link): https://calendly.com/flowtalk/flow-talk-period-pain-stories   HOST: Jessica RIchmond Website: jrich.online IG, @jessicalaurenrichmond  Twitter @geniuspills  Tik Tok @jrichsocal   HOST: Sarah Watson Website: sarahwatsonlpc.com Podcast: Behind The Bedroom Door Facebook: @sarahwatsonlpcsextherapy IG @swsxtherapy Twitter @swsextherapy   Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more.   Connect with BloodStream Media: Find all of our bleeding disorders podcasts on  BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter    Check out Believe Limited's Other Work: Bombardier Blood: bombardierblood.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com The Science Fair: thesciencefair.org  

Supporting Georgians with Hemophilia, with Vic McCarty, Hemophilia of Georgia (North Fulton Business Radio, Episode 816) In this episode of North Fulton Business Radio, John Ray interviews Vic McCarty, Chief Community Engagement Officer with Hemophilia of Georgia. Vic discusses the organization’s extensive work in supporting individuals with blood clotting disorders, providing education, resources, and specialized care […] The post Supporting Georgians with Hemophilia, with Vic McCarty, Hemophilia of Georgia appeared first on Business RadioX ®.

Supporting Georgians with Hemophilia, with Vic McCarty, Hemophilia of Georgia (North Fulton Business Radio, Episode 816) In this episode of North Fulton Business Radio, John Ray interviews Vic McCarty, Chief Community Engagement Officer with Hemophilia of Georgia. Vic discusses the organization’s extensive work in supporting individuals with blood clotting disorders, providing education, resources, and specialized care […]

Mosi Williams, blood brother and social worker at an HTC in Northern California joins Patrick for the latest I'm Fine segment with a candid discussion about treatment transitions. And we have UK rugby player, Jess Page, who is living with hemophilia on our Elite Athletes with Hemophilia, the companion segment to the new film REDEFINING IMPOSSIBLE from Believe Limited.  Show Notes: Subscribe: The BloodStream Podcast   Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more.   I'm Fine and Elite Athletes with Hemophilia are presented by @SanofiUS    Sanofi seeks to expand the idea of what's possible for the hemophilia community. Take a deeper look at the science behind hemophilia and an important connection between factor activity levels and potential activities at LevelsMatter.com   Sanofi aims to raise the bar for the patients living with hemophilia.  Reimagine what's possible by visiting Rareblooddisorders.com to hear more about Sanofi's dedication to the bleeding disorder community.   Watch "I'm Fine": A panel discussion webinar led by Patrick with The National Bleeding Disorders Foundation    WFH statement on the Israel-Palestine crisis Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter   

Looking for more information on this topic? Check out the Bleeding Disorders: Foundations and Frameworks brick. If you enjoyed this episode, we'd love for you to leave a review on Apple Podcasts.  It helps with our visibility, and the more med students (or future med students) listen to the podcast, the more we can provide to the future physicians of the world. Follow USMLE-Rx at: Facebook: www.facebook.com/usmlerx Blog: www.firstaidteam.com Twitter: https://twitter.com/firstaidteam Instagram: https://www.instagram.com/firstaidteam/ YouTube: www.youtube.com/USMLERX Learn how you can access over 150 of our bricks for FREE: https://usmlerx.wpengine.com/free-bricks/ from our Musculoskeletal, Skin, and Connective Tissue collection, which is available for free. Learn more about Rx Bricks by signing up for a free USMLE-Rx account: www.usmle-rx.com You will get 5 days of full access to our Rx360+ program, including nearly 800 Rx Bricks.  After the 5-day period, you will still be able to access over 150 free bricks, including the entire collections for General Microbiology and Cellular and Molecular Biology.

Hi Everyone, This week we are joined by Dr Anastazia Keegan an obstetric haematologist and the head of Haematology at our Women's hospital here in Western Australia. Join us as Anastazia educates us about congenital bleeding disorders in pregnancy - the common ones, Von Willebrands disease and haemophilia - and how to approach a woman with one of the many uncommon ones (which working in a tertiary referral centre are more common than you would expect). Thanks for all the great advice and insights - we look forward to having Anastazia back in the near future for the lowdown on some more really important haematological conditions we encounter in women's health. References Updated Australian consensus statement on management of inherited bleeding disorders in pregnancy. Med J Aust 2019; 210 (7): Online Bleeding Assessment Tool ISTH-BAT

The social determinants of health (SDH) are the non-medical factors that influence health outcomes. They are the conditions in which people are born, grow, work, live, and age, and the wider set of forces and systems shaping the conditions of daily life. These forces and systems include economic policies and systems, development agendas, social norms, social policies and political systems.   Contributors: Keri Norris, PhD, JM, MPH, MCHES Karina Lopez, MPH Adrian Palau-Tejeda Marissa Melton, MPH Chris Bombardier Mosi Williams   Senior Advisor: Donna DiMichele, MD   Hosted by: Patrick James Lynch   Written by: Simantini Karve, PhD     Show Notes: Presenting Sponsor: Sanofi   Subscribe to the Global Hemophilia Report   Connect with the Global Hemophilia Report Global Hemophilia Report on LinkedIn Global Hemophilia Report on Twitter Global Hemophilia Report on Facebook   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter   

With Natalie Philbert, Manager of Women's Programs and Services at Hemophilia Ontario, and Dr. Meghan Pike, pediatrician and clinical fellow in Pediatric-Hematology Oncology at Dalhousie University/IWK Health Centre.   We don't always have the language to speak about our periods – let alone menstrual bleeding disorders. What are the signs and symptoms? What are the gaps in care and diagnosis? And how does it connect with gendered inequities?   May 28 was International Day of Action for Women's Health, so for the next few episodes, we're focusing on gender and health matters we may know bits and pieces of but probably need to learn more about. Today, we focus on menstrual bleeding disorders.  Natalie Philbert is a PhD candidate focusing on delay in diagnosis for menstruators with bleeding disorders. Natalie brings a professional and personal passion to the bleeding disorder community given her own diagnosis of Von Willebrand disease Type 1. She co-created a website called heroixx.ca, specifically designed for menstruators with bleeding disorders.    Dr. Meghan Pike launched the WeThrive App that can identify adolescents with heavy menstrual bleeding.  She is an advocate for free access to menstrual products. Her research interests include patient-reported outcome measures, impacts of cancer treatment on reproductive and menstrual health, and advocacy for menstruators.  Relevant links: heroixx.ca, WeThrive App (Apple App Store | Google Play)  Please listen, subscribe, rate, and review this podcast and share it with others. If you appreciate this content, if you want to get in on the efforts to build a gender equal Canada, please donate at ⁠⁠⁠⁠⁠canadianwomen.org⁠⁠⁠⁠⁠ and consider becoming a monthly donor.   Episode ⁠⁠⁠⁠⁠Transcripts⁠⁠⁠⁠⁠   Facebook: ⁠⁠⁠⁠⁠Canadian Women's Foundation⁠⁠⁠⁠⁠   Twitter: ⁠⁠⁠⁠⁠@cdnwomenfdn ⁠⁠⁠⁠⁠   LinkedIn: ⁠⁠⁠⁠⁠The Canadian Women's Foundation ⁠⁠⁠⁠⁠   Instagram: ⁠⁠⁠⁠⁠@canadianwomensfoundation⁠⁠

In this episode, the Sanders Sisters deep dive into discussion on deep vein thrombosis (DVT) awareness and discuss etiology and management for bleeding disorders. What is DVT? DVT is a medical condition that occurs when a blood clot forms in a deep vein. Irregular clotting or lack-of can cause a variety of issues, especially in procedures where soft tissue (such as the gums) come into play. Check out this resource from Stefanie VanDuine, RDH, BSDH, MSDH on treating patients with bleeding disorders.  Floss and Flip-Flops with the Sanders sisters features hosts dental hygienist and speaker Katrina M. Sanders, RDH, and podiatrist Dr Elizabeth Sanders, DPM. Together, the sisters discuss the oral-systemic link and its impact—from your teeth down to your toes. The podcast is produced monthly by Dental Products Report® and Modern Hygienist®, in partnership with The Sanders sisters. For additional content for dental professionals visit DPR and MH at dentalproductsreport.com. Katrina Sanders, RDH, can be reached at:  Website: katrinasanders.com Facebook Instagram LinkedIn

There has been a remarkable increase in the life expectancy of persons living with hemophilia (PLWH) over the past century, largely due to access to safe factor replacement products.  However, the course of progress has been uneven, and rocky, for many. This is part two of our series on Aging with Hemophilia. Contributors: William McKeown, MD Randall Curtis Gerry Dolan, MD, MBChB, FRCP, FRCPath Barbara Konkle, MD Sara L. Schwartz, PhD  Tam Perry, PhD   Senior Advisor: Donna DiMichele, MD   Hosted by: Patrick James Lynch   Show Notes: Presenting Sponsor: Sanofi   Subscribe to the Global Hemophilia Report   Connect with the Global Hemophilia Report Global Hemophilia Report on LinkedIn Global Hemophilia Report on Twitter Global Hemophilia Report on Facebook   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter   

BloodStream welcomes back NHF Vice President of Public Policy, Nathan Schaefer to talk everything Washington Days and advocacy! Plus, an interview with community member and social worker, Mosi Williams and a new segment of The Well. Oh, and Amy and Patrick share some personal advocacy wins and bummers too! Show Notes: Subscribe: The BloodStream Podcast Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter   

BloodStream honors Black History Month with a series of interviews with community members and KOL's Join us for this pop-up episode with Connie Montgomery as she shares her perspective with James Maple. Plus, Josh Bragg is back with another Let's Talk featuring community member, Mike Hargett. Show Notes: Subscribe: The BloodStream Podcast   Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more.   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter 

A legislative package was approved at the end of 2022 with several wins and several disappointments for the rare disease community–we talk about it! Also, we welcome Aditi Kantipuly, a Research Collaborator for the CDC for a chat about health equity. Plus, Jessica Lauren Richmond is back with The Well, a segment featuring 5 steps to make your new year's resolutions stick. Show Notes: Subscribe: The BloodStream Podcast     Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more.   As part of H.R. 2617, Congress delivered several crucial programs and reforms that are important to the rare disease community — measures that NORD and the rare community fought for and will help speed efforts to develop effective therapies and expand access to care. Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter 

There has been a remarkable increase in the life expectancy of persons living with hemophilia (PLWH) over the past century, largely due to access to safe factor replacement products.  However, the course of progress has been uneven, and rocky, for many.   Contributors: William McKeown, MD Randall Curtis Gerry Dolan, MD, MBChB, FRCP, FRCPath Barbara Konkle, MD   Senior Advisor: Donna DiMichele, MD   Hosted by: Patrick James Lynch   Listen to Blood of the Paladin Podcast   Show Notes: Presenting Sponsor: Sanofi   Subscribe to the Global Hemophilia Report Listen to BloodStream's Journey to Joint Health episode.   Connect with the Global Hemophilia Report Global Hemophilia Report on LinkedIn Global Hemophilia Report on Twitter Global Hemophilia Report on Facebook   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter 

Today I'm sharing a brand new pill reality series episode about the hormonal IUD and fibroids. Unfortunately in Augustina's case, having an IUD placed worsened her fibroids. Tune into today's episode to find out what happened. Today's episode is sponsored by the Fertility Awareness Mastery Charting Workbook. The first fully customizable paper charting workbook of its kind, available in both Fahrenheit and Celsius editions. Click here to grab your copy today!   Topics discussed in today's episode: What Augustina's early menstrual cycle was like and how that led her to contraceptives What her IUD insertion was like and what happened after insertion What are fibroids and how they affect women How Augustina's heavy bleeding affects her and health The changes in Augustina's fibroids post homornal IUD How Augustina has recovered post surgery Connect with Augustina: You can connect with Augustina on her Instagram and on her website. Resources mentioned: FFP 356 | Bleeding Disorders in Women | Heavy Bleeding | Menorrhagia | Dr. Fiona Bethea & Jhon Velasco The Fifth Vital Sign: Master Your Cycles & Optimize Your Fertility (Book) | Lisa Hendrickson-Jack Fertility Awareness Mastery Charting Workbook Fertility Awareness Mastery Online Self-Study Program Related podcasts & blog posts: FFP 290 | The Pill, The Hormonal IUD, and Pulmonary Embolisms | Lisa & Kat FFP 227 | Endocrine Disrupting Chemicals, Fibroids, and Epigenetics | Dr. Tiffany Katz, Ph.D. FFP 161 | Are IUDs Safer Than The Pill? | Hormonal IUDs vs Copper IUDs | Dr. Steve Gangemi FFP 136 | Endometriosis, PCOS & Fibroids | Surgical Techniques That Preserve Fertility | NaPro Technology | Dr. Kyle Beiter FFP 017 | Natural Treatment for Unexplained Infertility | Treating Endometriosis and Fibroids | Dr Shawna Darou, ND Join the community! Follow Fertility Friday on Instagram! Subscribe to the Fertility Friday Podcast in Apple Podcasts! Music Credit: Intro/Outro music Produced by J-Gantic A Special Thank You to Our Show Sponsors: Fertility Friday | Fertility Awareness Programs This episode is sponsored by my Fertility Awareness Programs! Master Fertility Awareness and take a deep dive into your cycles and how they relate to your overall health! Click here to apply now! Fertility Awareness Mastery Mentorship Program (FAMM) This episode is sponsored by FAMM! Are you a women's health practitioner looking for a solid way to incorporate comprehensive fertility awareness chart analysis into your practice? If yes, FAMM is the program you've been waiting for. Click here to apply now!  

In this episode, host Alyssa Watson, DVM, is joined by Armi Pigott, DVM, DACVECC, to talk about his recent Clinician's Brief article, “Drugs & Blood Products Used to Manage Bleeding Disorders.” Hemostasis can be complicated, but Dr. Pigott helps to break it down into its 3 phases, then uses those to organize diseases and treatments. He also discusses practical details about blood products and transfusions.Resource:https://www.cliniciansbrief.com/article/drugs-blood-products-used-manage-bleeding-disordersContact us:Podcast@briefmedia.comWhere to find us:Cliniciansbrief.com/podcastsFacebook.com/clinciansbriefTwitter: @cliniciansbriefInstagram: @clinicians.briefThe Team:Alyssa Watson, DVM - HostAlexis Ussery - Producer & Digital Content CoordinatorRandall Stupka - Podcast Production & Sound Editing

Renowned hematologist, researcher, and senior advisor to the Global Hemophilia Report Dr. Donna DiMichele shares some of her Season 1 takeaways and thoughts about the future of hemophilia research. Senior Advisor: Donna DiMichele, MD   Hosted by: Patrick James Lynch   Show Notes: Presenting Sponsor: Sanofi   Subscribe to the Global Hemophilia Report Listen to BloodStream's Journey to Joint Health episode.   Connect with the Global Hemophilia Report Global Hemophilia Report on LinkedIn Global Hemophilia Report on Twitter Global Hemophilia Report on Facebook   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter 

The first gene therapeutic for hemophilia (specifically for hemophilia B) was approved last week, and with that –a new era of treatment options has begun! Amy and Patrick share first reactions to the approval news and toss out opinions on how this news may impact our community in 2023. We also have Michelle Rice with us to share how her work is continuing to bring access to treatment for rare disease patients. Plus, a new segment of The Well on Relationships.   Show Notes: Subscribe: The BloodStream Podcast   Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more.   Episode and Segment Sponsors:  CSL Behring, visit HemEvolution.com to learn more about gene therapy, or ProtraitsofProgress.com for a virtual photo exhibition chronicling hemophilia's history   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter

On this episode, we continue our discussion of chronic pain in hemophilia. We'll discuss exercise, medication and investigations.   Contributors: Nathalie Anne Roussel, PhD, MSc, PT Paul Mc Laughlin,  BSc, MSc, MMACP   Senior Advisor: Donna DiMichele, MD   Episode Advisors (also contributors): Michelle Witkop, DNP, FNP-BC Tyler Buckner, MD   Hosted by: Patrick James Lynch   Show Notes: Presenting Sponsor: Sanofi   Subscribe to the Global Hemophilia Report Listen to BloodStream's Journey to Joint Health episode.   Connect with the Global Hemophilia Report Global Hemophilia Report on LinkedIn Global Hemophilia Report on Twitter Global Hemophilia Report on Facebook   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter 

This talk goes over the most common causes of inhirted bleeding disorders. There are two major types of hemophilia – deficiency in factor VIII and IX – which predominant occur in men. Hemophilia A is deficiency of factor VIII and is the most common form of hemophilia treated with factor concentrate. Hemophilia B is less common but treatment principles are the same. There are multiple types of von Willebrand Disease as this is a complex molecular that both carries factor VIII and forms large multimers essential for platelet function. Mild forms of vWD can be treated by desmopressin but von Willebrand factor is needed for more severe types.

According to the Centers for Disease Control, pain is one of the most common reasons people seek medical care. However, for persons affected by hemophilia A and B, the experience of pain has provided the subtext for many issues related to health and wellbeing across the lifespan, and irrespective of gender, age, and, potentially, hemophilia severity levels. Although less-well characterized in children, pain is already embedded in the life experience of a PWH, and a substantial contributor to poor health-related quality of life in adolescence and young adulthood, further increasing in negative impact throughout adult life. In this episode, we explore pain's prevalence, mechanisms, and more.    Contributors: Nathalie Anne Roussel, PhD, MSc, PT Paul Mc Laughlin,  BSc, MSc, MMACP Michelle Rice    Senior Advisor: Donna DiMichele, MD   Episode Advisors (also contributors): Michelle Witkop, DNP, FNP-BC Tyler Buckner, MD   Hosted by: Patrick James Lynch   Show Notes: Presenting Sponsor: Sanofi Subscribe to the Global Hemophilia Report   Listen to BloodStream's Pain Podcast   Connect with the Global Hemophilia Report Global Hemophilia Report on LinkedIn Global Hemophilia Report on Twitter Global Hemophilia Report on Facebook   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter  

A good one this week! Erin Willis, associate professor at the University of Colorado joins us to discuss the increasingly popular use of patient influencers in pharmaceutical marketing. The goal of her research is to explore how message design can influence people's understanding about their health and choices. Also, Jessica Richmond is back with another segment of The Well as she investigates how the past informs the present.   Show Notes: Subscribe: The BloodStream Podcast Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more.   Episode and Segment Sponsors:  CSL Behring, visit HemEvolution.com to learn more about gene therapy, or ProtraitsofProgress.com for a virtual photo exhibition chronicling hemophilia's history   Genentech has local Clinical Education Managers (CEMs) who offer one-on-one support throughout your entire hemophilia journey. To get in contact with a CEM, visit www.TalkToACEM.com    Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter 

In this episode James Anderst, MD, FAAP, child abuse pediatrician and author of a new clinical report, explains how to screen for bleeding disorders in cases of suspected trauma. Hosts David Hill, MD, FAAP, and Joanna Parga-Belinkie, MD, FAAP, also talk with Diana Cutts, MD, FAAP, about how household evictions affect child health. For resources go to aap.org/podcast.

In this episode, our newest team members and MS3s Laurel Parker and Kylie Schmitt review the primary and secondary disorders of hemostasis. They'll talk about the steps and goals of primary and secondary hemostasis, and then get into the nitty gritty of various bleeding disorders. If you have a hard time remembering how bleeding time, platelet count, PT, and PTT are affected by all these disorders, this episode is for you!

Patrick shares life post ankle surgery and wonders if everything from now on will be impacted by hemophilia. Plus, a fantastic interview with Hemophilia of Gerogia's Director of Advocacy, Michelle Conde AND members of Glanzmann's Research Foundation, Peter Z and Taylor Anne. We'll cap the episode with another Let's Talk mental health segment on acknowledging your past.   Show Notes: Subscribe: The BloodStream Podcast   Check out the work Glanzmann's Research Foundation is doing!   Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more.   Episode and Segment Sponsors:    Listen in to Let's Talk, a monthly segment with your host, Josh Bragg. Let's Talk shares tips on how to care for your own or someone you love's mental health and strives to eliminate the stigma associated with this discussion within the bleeding disorders community. Visit Letstalkmh.com and click Resources.   Brought to you by Sanofi   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter 

In Part 2 of our Hemophilia B episode, we spotlight research priorities into women with hemophilia B, novel therapies to treat people with hemophilia B, and we conclude the story of Alexei Nikolaevich, the last Tsesarevich of Russia.   Contributors: Bethany Samuelson Bannow, MD Brian O'Mahony Kathaleen M. Schnur, MSW, LCSW   Senior Advisor: Donna DiMichele, MD   Episode Advisors (also contributors): Dr. Amy Shapiro Professor Jan Astermark   Hosted by: Laurence Woollard   Links to learn more:   Brown A. "The Royal Disease and The Royal Collapse: Political Effects of Hemophilia in the Royal Houses of Europe." Honor Scholar Theses. 2017;63. [Online]. Available at: https://scholarship.depauw.edu/cgi/viewcontent.cgi?article=1063&context=studentresearch [Accessed 10 October 2022]   Gualtierotti R, et al. Updates on novel non-replacement drugs for hemophilia. Pharmaceuticals 2022;15(10):1183. Doi: 10.3390/ph15101183   Hart DP, et al. International consensus recommendations on the management of people living with haemophilia B. Ther Adv Hematol 2022;13:1-22. Doi: 20406207221085202   Hoffman TA. "Bad Blood: Hemophilia and Its Detriment to the Russian Imperial Family." Young Historians Conference. 2022;8. [Online]. Available at: https://pdxscholar.library.pdx.edu/cgi/viewcontent.cgi?article=1244&context=younghistorians [Accessed 10 October 2022]   Lannoy N, Hermans C. The ‘royal disease' – haemophilia A or B? A haematological mystery is finally solved. Haemophilia 2010;16:843-47. Doi: 10.1111/j.1365-2516.2010.02327.x   Nathwani A, et al. Liver gene therapy. Hum Gene Thur 2022;33:17-18. Doi: 10.1089/hum.2022.169   O'Donovan M, et al. Recombinant factor IX-Fc fusion protein in severe hemophilia B: Patient-reported outcomes and health-related quality of life. Res Pract Thromb Haemost 2021;5(7):e12602. Doi: 10.1002/rth2.12602   Peeling S. Russo-Japanese War. International Encyclopaedia of the First World War. 1914-1918. [Online]. Available at: https://encyclopedia.1914-1918-online.net/article/russo-japanese_war [Accessed 10 October 2022]   Potts WTW. Royal haemophilia. J Biol Educ 1996;30(3):207-17. DOI: 10.1080/00219266.1996.9655504   Price KD. "Diary of Nicholas II, 1917-1918, an annotated translation." Graduate Student Theses, Dissertations, & Professional Papers. 1966;2065. [Online]. Available at: https://scholarworks.umt.edu/cgi/viewcontent.cgi?article=3084&context=etd [Accessed 10 October 2022]   Radcliffe J. “Rasputin and the Fragmentation of Imperial Russia.” Young Historians Conference. 2017;14. [Online]. Available at: https://pdxscholar.library.pdx.edu/younghistorians/2017/oralpres/14/ [Accessed 10 October 2022]   Show Notes: Presenting Sponsor: Sanofi Subscribe to the Global Hemophilia Report   Connect with the Global Hemophilia Report Global Hemophilia Report on LinkedIn Global Hemophilia Report on Twitter Global Hemophilia Report on Facebook   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter 

On the heels of National Coming Out Day, BloodStream is joined by Dr. Nathan Connell, Clinical Chief of Hematology at Brigham and Women's Faulkner Hospital to discuss LGBTQ+ health issues in the bleeding disorder community. Plus, Patrick reconnects with Annelise Ellis, longtime friend and fellow person with a bleeding disorder, as she shares with us her story of how von Willebrand disease impacted her first pregnancy, labor, and delivery.   Show Notes: Subscribe: The BloodStream Podcast   Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more.   Episode and Segment Sponsors:  Genentech, open enrollment is right around the corner and Genentech has resources to support you through this process. To learn more about these resources, visit www.HemophiliaAccess.com  CSL Behring, visit HemEvolution.com to learn more about gene therapy, or ProtraitsofProgress.com for a virtual photo exhibition chronicling hemophilia's history Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter 

Hemophilia B is a rare inherited X-linked disorder characterized by a congenital anomaly in the factor IX gene leading to a variable deficiency in clotting factor IX. In this episode, we explore the known differences between Hemophilia B and Hemophilia A and discuss priority areas for further research into Hemophilia B. The episode also guides listeners on an entertaining journey through 19th and 20th century European monarchy and the unlikely role that hemophilia played in forever shaping Europe's governance!    Contributors: Bethany Samuelson Bannow, MD Brian O'Mahony Kathaleen M. Schnur, MSW, LCSW   Senior Advisor: Donna DiMichele, MD   Episode Advisors (also contributors): Dr. Amy Shapiro Professor Jan Astermark   Hosted by: Laurence Woollard   Links to learn more:   Brown A. "The Royal Disease and The Royal Collapse: Political Effects of Hemophilia in the Royal Houses of Europe." Honor Scholar Theses. 2017;63. [Online]. Available at: https://scholarship.depauw.edu/cgi/viewcontent.cgi?article=1063&context=studentresearch [Accessed 10 October 2022]   Hoffman TA. "Bad Blood: Hemophilia and Its Detriment to the Russian Imperial Family." Young Historians Conference. 2022;8. [Online]. Available at: https://pdxscholar.library.pdx.edu/cgi/viewcontent.cgi?article=1244&context=younghistorians [Accessed 10 October 2022]   Lannoy N, Hermans C. The ‘royal disease' – haemophilia A or B? A haematological mystery is finally solved. Haemophilia 2010;16:843-47. Doi: 10.1111/j.1365-2516.2010.02327.x   Potts WTW. Royal haemophilia. J Biol Educ 1996;30(3):207-17. DOI: 10.1080/00219266.1996.9655504   Price KD. "Diary of Nicholas II, 1917-1918, an annotated translation." Graduate Student Theses, Dissertations, & Professional Papers. 1966;2065. [Online]. Available at: https://scholarworks.umt.edu/cgi/viewcontent.cgi?article=3084&context=etd [Accessed 10 October 2022]   Radcliffe J. “Rasputin and the Fragmentation of Imperial Russia.” Young Historians Conference. 2017;14. [Online]. Available at: https://pdxscholar.library.pdx.edu/younghistorians/2017/oralpres/14/ [Accessed 10 October 2022]   Funnell APW, Crossley M. Hemophilia B Leyden and once mysterious cis-regulatory mutations. Trends Genet 2014;30(1):18-23. Doi: 10.1016/j.tig.2013.09.007   Simioni P, et al. X-linked thrombophilia with a mutant factor IX (factor IX Padua). N Engl J Med 2009;361(17):1671-5. Doi: 10.1056/NEJMoa0904377   Nogami K, et al. Clinical conditions and risk factors for inhibitor-development in patients with haemophilia: A decade-long prospective cohort study in Japan, J-HIS2 (Japan Hemophilia Inhibitor Study 2). Haemophilia 2022;28(5):745-59. Doi: 10.1111/hae.14602   Thorland EC, et al. Anaphylactic response to FIX replacement therapy in haemophilia B patients: complete gene deletions confer the highest risk. Haemophilia 1999;5(2):101-5.    Chitlur M, et al. Inhibitors in factor IX deficiency a report of the ISTH-SSC international FIX inhibitor registry (1997-2006). Haemophilia 2009;15(5):1027-31. Doi: 10.1111/j.1365-2516.2009.02039.x   DiMichele D. The North American Immune Tolerance Registry: contributions to the thirty-year experience with immune tolerance therapy. Haemophilia 2009;15(1):320-8. Doi: 10.1111/j.1365-2516.2008.01880.x   Astermark J, et al. The B-Natural Study – The outcome of immune tolerance induction therapy in patients with severe haemophilia B. Haemophilia 2021;27(5):802-13. Doi: 10.1111/hae.14357   Iorio A, et al. Establishing the prevalence and prevalence at birth of hemophilia in males: a meta-analytic approach using national registries. Ann Intern Med 2009;171(8):540-46. Doi: 10.7326/M19-1208   Soucie JM, et al. Occurance rates of haemophilia among males in the United States based on surveillance conducted in specialized haemophilia treatment centres. Haemophilia 2020;26(3):487-93. Doi: 10.1111/hae.13998   Berntorp E, et al. Quality of life in a large multinational haemophilia B cohort (The B-Natural Study – Unmet needs remain. Haemophilia 2022;28(3):453-61. Doi: 10.1111/hae.14525   Kihlberg K, et al. Treatment outcomes in persons with severe haemophilia B in the Nordic region: The B-NORD study. Haemophilia 2021;27(3):366-74. Doi: 10.1111/hae.14299   Feng D, et al. Evidence of clinically significant extravascular stores of factor IX. Thromb Haemost 2013;11(12):2176-2178. Doi: 10.1111/jth.12421   DiMichele DM, et al. Severe and moderate haemophilia A and B in US females. Haemophilia 2014;20(2):e136-43. Doi: 10.1111/hae.12364   Buckner TW, et al. Management of US men, women, and children with hemophilia and methods and demographics of the Bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B-HERO-S) study. Eur J Haematol 2017;98:5-17. Doi: 10.1111/ejh.12854     Show Notes: Presenting Sponsor: Sanofi Subscribe to the Global Hemophilia Report   Connect with the Global Hemophilia Report Global Hemophilia Report on LinkedIn Global Hemophilia Report on Twitter Global Hemophilia Report on Facebook   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter 

Patrick James Lynch is a globally- recognized healthcare and rare disease advocate, media professional, filmmaker, and father. He is the cofounder and CEO of Believe Limited, a mission- driven content agency and production company, and he's the Founder of BloodStream Media, a rare and chronic disease podcast network. Some of Patrick's producing credits include the films Bombardier Blood (EP: Alex Borstein), Elsewhere (HRIFF: Best Picture), My Beautiful Stutter (EPs: Paul Rudd, Mariska Hargitay), sometimes, i think about dying (Sundance Film Festival; Academy Award shortlist), and the multi-award winning web series Stop the Bleeding!. Patrick is also the Founder of the 501(c)(3) Entertainment 2 Affect Change (E2AC), a proud graduate of Boston University (BFA, Acting), and a fierce indoor cyclist. Born with severe hemophilia, Patrick dedicates his work in bleeding disorders and rare diseases to the memory of his late brother, Adam. Website: www.believeltd.com  www.bloodstreammedia.com Headshoot link: https://m.imdb.com/name/nm4019838/mediaviewer/rm2979742720

James Maple, sitting in for Amy, and Patrick present the audio from BloodStream's Diversity, Equity, and Inclusivity panel during National Hemophilia Foundation's Bleeding Disorders Conference as well as the latest from the Let's Talk mental health segment. Plus, news from ICER on gene therapy!   Show Notes: Subscribe: The BloodStream Podcast   Article: Hemophilia gene therapies from BioMarin, CSL pick up an early ICER endorsement    Presenting Sponsor: - Takeda, visit bleedingdisorders.com to learn more.   Episode and Segment Sponsors: - CSL Behring, visit HemEvolution.com to learn more about gene therapy, or ProtraitsofProgress.com for a virtual photo exhibition chronicling hemophilia's history - Sanofi, visit ShareYourWhy.com to meet the CoRe team and hear stories from the hemophilia community. - Pfizer, if you have sickle cell disease, how often do painful crises have you visiting the doctor? Learn more at ClinicalTrialSCD.com    Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter 

On this episode, Executive Producer of the Global Hemophilia Report, Patrick James Lynch, is joined in person by Senior Advisor, Dr. Donna DiMichele, and Writer/Host, Laurence Woollard, to reflect on Season 1 so far as well as debate existing and emerging research priorities from each episode. Contributors: Patrick James Lynch Laurence Woollard Donna DiMichele, MD   Senior Advisor: Donna DiMichele, MD   Links to Learn More: Episode 1 - Inhibitors: Prevention, Eradication & Lived Experiences Episode 2 - Novel Therapies: Entering Uncharted Territory Episode 3 - Prophylaxis: Protection, Achievements & Shortcomings Episode 4 - Bone & Joint Health: Monitoring & Detection Episode 5 - Mental Health & Hemophilia in Adolescence & Young Adulthood Episode 6 - Women with Hemophilia: Research Priorities   Show Notes: Recorded in person at the National Hemophilia Foundation's Bleeding Disorders Conference on August 26th, 2022 in Houston, Texas, US.  Presenting Sponsor: Sanofi Subscribe to the Global Hemophilia Report   Connect with the Global Hemophilia Report Global Hemophilia Report on LinkedIn Global Hemophilia Report on Twitter Global Hemophilia Report on Facebook   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter 

Women, girls, and those with the potential to menstruate (WGPPM) who live with hemophilia, have more difficulty getting a diagnosis and accessing adequate care than their biological male counterparts. But why? What research is underway to support the needs of these individuals? This episode takes a wide-lens approach to exploring the socio-cultural barriers and gender-related challenges facing WGPPM in the global hemophilia community.   Contributors: Dawn Rotellini Andra James, MD, MPH Connie Miller, PhD Tyler Buckner, MD Maureen Baldwin, MD, MPH Kristin Paulyson Nunez, M.S., C.G.C   Senior Advisor: Donna DiMichele, MD   Episode Advisors: Angela Weyand, MD Robert Sidonio, MD   Hosted by: Laurence Woollard   Links to learn more: Bercovitz RS. “A new hemophilia carrier nomenclature to define hemophilia in women and girls: Communication from the SSC of the ISTH”: Comment. J  Thromb Haemost 2022;20(7):1744-45. DOI: 10.1111/jth.15727   Chaudhury A, et al. Women and girls with haemophilia and bleeding tendencies: Outcomes related to menstruation, pregnancy, surgery and other bleeding episodes from a retrospective chart review. Haemophilia 2021;27(2):293-304. DOI: 10.1111/hae.14232   d'Oiron R, et al. Women and girls with haemophilia: Lessons learned. Haemophilia 2021;27(S3):75-81. DOI: 10.1111/hae.14094   DiMichele DM, et al. Severe and moderate haemophilia A and B in US females. Haemophilia 2014;20(2):e136-43. DOI: 10.1111/hae.12364   Fox L. Women and girls with hemophilia: Gender-based differences in comprehensive care. NHF Bleeding Disorders Conference 2019. [Online]. Available at: https://www.hemophilia.org/research/research-projects/women-and-girls-with-hemophilia-gender-based-differences-in-comprehensive-care   Kirtava A, et al. Trends in clinical management of women with von Willebrand disease: A survey of 75 women enrolled in haemophilia treatment centres in the United States. Haemophilia 2004;10:158-161. DOI: 10.1046/j.1351-8216.2003.00832.x    Malouin RA, et al. Practice Characteristics of Genetic Counselors Serving the North American Bleeding Disorders Community. [Poster]. World Federation of Hemophilia 2016 World Congress , May 2016.    Miller CH, et al. Women and girls with haemophilia receiving care at specialized haemophilia treatment centres in the United States. Haemophilia 2021;27(6):1037-44. DOI: 10.1111/hae.14403   Rajpurkar M, et al. Current challenges for men and women with mild-to-moderate haemophilia. Haemophilia 2021;27(S1):5-7. DOI: 10.1111/hae.14193   van Galen K, et al. European principles of care for women and girls with inherited bleeding disorders. Haemophilia 2021;27(5):837-47. DOI: 10.1111/hae.14379   van Galen KPM, et al. A new hemophilia carrier nomenclature to define hemophilia in women and girls: Communication from the SSC of the ISTH. J Thromb Haemost 2021;19(8):1883-87. DOI: 10.1111/jth.15397   Weyand AC, James PD. Sexism in the management of bleeding disorders. Res Pract Thromb Haemost 2020;5(1):51-4. DOI: 10.1002/rth2.12468   Show Notes: Presenting Sponsor: Sanofi Subscribe to the Global Hemophilia Report   Connect with the Global Hemophilia Report Global Hemophilia Report on LinkedIn Global Hemophilia Report on Twitter Global Hemophilia Report on Facebook   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter  Listen to the FLOW podcast

Looking for more information on this topic? Check out the Bleeding Disorders: Foundations and Frameworks brick. If you enjoyed this episode, we'd love for you to leave a review on Apple Podcasts.  It helps with our visibility, and the more med students (or future med students) listen to the podcast, the more we can provide to the future physicians of the world. Follow USMLE-Rx at: Facebook: www.facebook.com/usmlerx Blog: www.firstaidteam.com Twitter: https://twitter.com/firstaidteam Instagram: https://www.instagram.com/firstaidteam/ YouTube: www.youtube.com/USMLERX Learn how you can access over 150 of our bricks for FREE: https://usmlerx.wpengine.com/free-bricks/ from our Musculoskeletal, Skin, and Connective Tissue collection, which is available for free. Learn more about Rx Bricks by signing up for a free USMLE-Rx account: www.usmle-rx.com You will get 5 days of full access to our Rx360+ program, including nearly 800 Rx Bricks.  After the 5-day period, you will still be able to access over 150 free bricks, including the entire collections for General Microbiology and Cellular and Molecular Biology.

Flow's Sarah and Jessica sit down to discuss the fact that abortion is healthcare - and embark on a series of “straight talk about abortion” with part 1: Abortion Is Healthcare.  There are a myriad of medical situations in which pregnancy is a short-term experience. Review helpful terminology to engage in conversation. Upcoming episodes focus on: clinical situations that may call for abortion, necessary and currently missing reproductive health education, and current activism going on to support suffering menstruators.  Tune in for tips for self study, shared discoveries and to be part of the growing menstrual awareness movement! FLOW is straight talk about extreme periods, with new episodes the second Thursday of each month.   Program Notes:   Abortion Content and Resources This American Life - https://www.thisamericanlife.org/774/the-pink-house-at-the-center-of-the-world Shameless Mom Academy - https://shamelessmom.com/episode/amanda-kingsley-speaking-light-into-abortion/ Shout Your Abortion - https://shoutyourabortion.com/ Abortion Fund Network - https://abortionfunds.org/   HOST: Jessica RIchmond: Website: jrich.online IG, @jessicalaurenrichmond    HOST: Sarah Watson: Website: sarahwatsonlpc.com Podcast: Behind The Bedroom Door Facebook: @sarahwatsonlpcsextherapy IG, @swsxtherapy Twitter @swsextherapy   FLOW is sponsored by Takeda, the manufacturer of a treatment for adults with von Willebrand disease. To see if this treatment might be right for you and your needs, visit: https://ssshare.it/2rnK    Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter    Check out Believe Limited's Other Work: BloodFeed: bloodfeed.com Bombardier Blood: bombardierblood.com Hemophilia: The Musical: breakingthroughhemophilia.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com Teen Impact Awards: teenimpactawards.com The Science Fair: thesciencefair.org

BloodStream welcomes Greig Blamey, a physiotherapist from Winnipeg, Canada and the lead investigator and author of Sexual Issues in People with Haemophilia: Awareness and Strategies for Overcoming Communication Barriers (A fantastic interview!). Plus, Patrick learned something at his recent HTC visit and the latest Let's Talk mental health segment, featuring Joshua Sterling Bragg, on growing, evolving, and taking baby steps.   Show Notes:   Subscribe to BloodStream Podcast   Sexual Issues in People with Haemophilia: Awareness and Strategies for Overcoming Communication Barriers: Click HERE   Listen in to Let's Talk, a monthly segment with your host, Josh Bragg. Let's Talk shares tips on how to care for your own or someone you love's mental health and strives to eliminate the stigma associated with this discussion within the bleeding disorders community. Visit Letstalkmh.com and click Resources.   Brought to you by Sanofi   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter

Welcome to the Three Part Series of Diagnosis Vs. Defeat: Speaking with special guests about their medical diagnosis, their strength to discover treatment & not accepting defeat as the answer. This episode discusses hemophilia factor 8 in children, finding the answer with a diagnosis, treatment, motherhood & all in between!Sponsor: MomsFashionAttic (Instagram: virginiaanne5)Special Guest: Kaitlin Bartholomew (TT: kaitlinmarie788/IG: Kaitlin.marie19)Hemophilia Mothers Facebook: (https://www.facebook.com/groups/1953376031578481/)National Hemophilia Foundation for Bleeding Disorders: (https://www.hemophilia.org/bleeding-disorders-a-z/types/hemophilia-a)

In March 2022, a Washington Post article highlighted children and adolescents in the US experiencing a mental health crisis, but how does a hemophilia diagnosis further complicate a young person's mental wellbeing? What data exists to support interventions? This episode explores the state of research and understanding of hemophilia's impact on a young person's mental health.   Episode Advisors: Dr. Michelle Witkop Samantha Carlson, LMSW   Contributors: Randall G. Curtis, MBA Dr. Gráinne O'Brien Dr. Duc “Bobby” Tran Amanda Stahl, LCSW   Senior Advisor: Dr. Donna DiMichele   Show Notes: Presenting Sponsor: Sanofi Subscribe to the Global Hemophilia Report   Connect with the Global Hemophilia Report Global Hemophilia Report on LinkedIn Global Hemophilia Report on Twitter Global Hemophilia Report on Facebook   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter 

FLOW's Jessica and Sarah sit down with Mimi Millard of DeLune!   DeLune's Whole Cycle support products use evidence-based research and the team is passionate about furthering clinical research into the period burden and the avoidance/endurance strategy that is common, but not normal!   Tune in for tips for self study, shared discoveries and to be part of the growing menstrual awareness movement! FLOW is  with straight talk about extreme periods; monthly episodes the second Thursday of each month!   Program Notes:   Flow with DeLune  www.Delune.co / use code FLOWPOD20 for 20% off! www.periodcramps.com / take the quiz, help the research study!   HOST: Jessica RIchmond: Website: jrich.online IG, @jessicalaurenrichmond    HOST: Sarah Watson: Website: sarahwatsonlpc.com Podcast: Behind The Bedroom Door Facebook: @sarahwatsonlpcsextherapy IG, @swsxtherapy   FLOW is sponsored by Takeda, the manufacturer of a treatment for adults with von Willebrand disease. To see if this treatment might be right for you and your needs, visit: https://ssshare.it/2rnK    Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter    Check out Believe Limited's Other Work: BloodFeed: bloodfeed.com Bombardier Blood: bombardierblood.com Hemophilia: The Musical: breakingthroughhemophilia.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com Teen Impact Awards: teenimpactawards.com The Science Fair: thesciencefair.org

Even with the introduction of prophylaxis, the goal of achieving perfect bone and joint health for patients with hemophilia through normalizing homeostasis remains elusive. In this episode, we cover the current monitoring and detection strategies and explore the investigational work that's aimed at enhancing existing tools, validating suspected tools, and discovering entirely new ones.     Episode Advisors: Dr. Marilyn Manco-Johnson Dr. Kathelijn Fischer   Contributors: Dr. Annette Von Drygalski Dr. Tyler W. Buckner Dr. Amy Dunn Dr. Suchitra S Acharya Dr. Andrea Doria Dr. Beth Warren Tom Russomano   Senior Advisor: Dr. Donna DiMichele   Links to learn more: Young adult outcomes of childhood prophylaxis for severe hemophilia A: results of the Joint Outcome Continuation Study Measurement of joint health in persons with haemophilia: A systematic review of the measurement properties of haemophilia-specific instruments Vascular remodeling underlies rebleeding in hemophilic arthropathy Quantitative measurements of haemophilic joint tissues by point‐of‐care musculoskeletal ultrasound: Associations with clinical and functional joint outcome parameters How Do PROMIS Scores Correspond to Common Physical Abilities? Evaluating international Haemophilia Joint Health Score (HJHS) results combined with expert opinion: Options for a shorter HJHS   Show Notes: Presenting Sponsor: Sanofi Subscribe to the Global Hemophilia Report   Connect with the Global Hemophilia Report Global Hemophilia Report on LinkedIn Global Hemophilia Report on Twitter Global Hemophilia Report on Facebook   Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter

Prophylaxis in hemophilia has led to extraordinary progress, however, recent studies suggest that although the overall musculoskeletal health of persons with hemophilia has significantly improved, the goal of attaining a level of musculoskeletal health comparable to that of the general population without hemophilia has still not been achieved. Furthermore, the impact of prophylaxis has been uneven across hemophilia populations and the promise of greater physical activity free of hemorrhage has not been entirely fulfilled. This episode explores the history, evolution, and current state of prophylaxis, and highlights the current and future areas of further investigation.   Contributors: Episode Advisors: Dr. Marilyn Manco Johnson Dr. Kathelijn Fischer   Contributors: Dr. Robert Sidonio Dr. Manuel Carcao  Dr. Maria Elisa Mancuso Susan Lynch   Senior Advisor: Dr. Donna DiMichele   Links to learn more: A history of prophylaxis in haemophilia Hemophilia A and B: Routine management including prophylaxis Young adult outcomes of childhood prophylaxis for severe hemophilia A: results of the Joint Outcome Continuation Study Tailored frequency-escalated primary prophylaxis for severe haemophilia A: results of the 16-year Canadian Hemophilia Prophylaxis Study longitudinal cohort Factor VIII replacement prophylaxis in patients with hemophilia A transitioning to adults: a systematic literature review Long-term outcomes with emicizumab prophylaxis for hemophilia A with or without FVIII inhibitors from the HAVEN 1-4 studies Optimal treatment strategies for hemophilia: achievements and limitations of current prophylactic regimens Optimising prophylaxis in haemophilia A: The ups and downs of treatment Show Notes: Presenting Sponsor: Sanofi Subscribe to the Global Hemophilia Report Connect with the Global Hemophilia Report Global Hemophilia Report on LinkedIn Global Hemophilia Report on Twitter Global Hemophilia Report on Facebook Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter 

Megan Adediran, President of the Hemophilia Foundation of Nigeria and Durhane Wong-Rieger, President and CEO of the Canadian Organization for Rare Disorders, join the podcast to talk about the importance of finding new and innovative ways to expand access to life-saving therapies for people living with bleeding disorders. 

Christie and Jessica speak to Dr. Heather Hirsch MD, MS, NCMPabout the close of reproductive years - as they close out the year, and season 01! Dr. Hirsch describes menopause as part of the full spectrum of menstrual experience and highlights the importance of including obstetrics as part of the complete medical history of mensturating patients.  Plus, the FLOW team unpacks the stereo-types of “hot flashes”, the vitamin-market trend and the under-represented realities of menopause in media.  We close with extreme gratitude for Christie (and her tips) throughout season 01, and one more reminder that you are not crazy! Program Notes: Mentioned in the episode: Dr. Heather Hirsch MD, MS, NCMP: https://www.heatherhirschmd.com/ “You're Not Crazy” Article: https://pubmed.ncbi.nlm.nih.gov/9698634/ Find our Hosts on Instagram:  @jessicalaurenrichmond @christie_publichealth FLOW is sponsored by Takeda, the manufacturer of a treatment for adults with von Willebrand disease. To see if this treatment might be right for you and your needs, visit: https://ssshare.it/pF5f Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter  Check out Believe Limited's Other Work: BloodFeed: bloodfeed.com Bombardier Blood: bombardierblood.com Hemophilia: The Musical: breakingthroughhemophilia.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com Teen Impact Awards: teenimpactawards.com The Science Fair: thesciencefair.org

In FLOW episode 11, Jessica and Christie host a panel conversation on sexism. Panelists Sara, Jean, and Dr. Weyand share openly about their experiences of extreme menstruation - from both the patient and provider perspective - and how sexism has affected their ability to receive or deliver treatment. The episode addresses internalized and externalized sexism, medical hierarchy, disparity of opportunity to enter medicine - and collective endured pain and trauma - - grab your RBG doll, everyone! Program Notes: Recommended articles and resource-links mentioned in the episode: Learn More About The Shematologist Dr. Weyand https://twitter.com/acweyand Advocacy Organizations mentioned in this episode: The Period Movement https://period.org/ Endofound https://www.endofound.org/ Book Recommendations Unwell Women: Misdiagnosis and Myth in a Man-Made World by Elinor Cleghorn Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed, and Sick by Maya Dusenbery The Doctors Blackwell: How Two Pioneering Sisters Brought Medicine to Women and Women to Medicine Hardcover  by Janice P. Nimura   “You're Not Crazy” Article: Dr. Elizabeth Blackwell https://www.pbs.org/newshour/health/elizabeth-blackwell-becomes-the-first-woman-doctor-in-the-united-states Find our Hosts on Instagram:  @jessicalaurenrichmond @christie_publichealth FLOW is sponsored by Takeda, the manufacturer of a treatment for adults with von Willebrand disease. To see if this treatment might be right for you and your needs, visit: https://ssshare.it/WT2t 

In episode 10, the Flow team hands the conversation over to 3 non-menstruating men to unpack what they know about menstrual health and extreme conditions. They cover the generational gap in education, the information they get from Tik Tok, and how the pop-media explains hormonal spikes during the menstrual cycle as “women be moody”... candid and compassionate conversation leads the way on this episode of FLOW - straight talk about extreme periods!   Program Notes: Recommended articles and resource-links mentioned in the episode:   Learn More About Our Guests www.believeltd.com/about-rob-bradford www.believeltd.com/about-joshua-sterling-bragg www.believeltd.com/about-patrick-james-lynch www.bloodstreammedia.com/bloodstream   “You're Not Crazy” Sex Education Article: https://www.guttmacher.org/state-policy/explore/sex-and-hiv-education   Find our Hosts on Instagram:  @jessicalaurenrichmond @christie_publichealth   FLOW is sponsored by Takeda, the manufacturer of a treatment for adults with von Willebrand disease. To see if this treatment might be right for you and your needs, visit: https://ssshare.it/NwLr    Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter    Check out Believe Limited's Other Work: BloodFeed: bloodfeed.com Bombardier Blood: bombardierblood.com Hemophilia: The Musical: breakingthroughhemophilia.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com Teen Impact Awards: teenimpactawards.com The Science Fair: thesciencefair.org

In episode 09, the Flow team speaks with Damaris from The Period Movement. Dama shares the multiple ways that EVERYONE can get involved in The Period Movement - including how to advocate for new legislation, how to host a community product drive and how Period.org's resources can help young people to normalize speaking about the experience of having a period!  PLUS the pink tax - is it affecting your state? Check out links in our show notes to get involved.  Program Notes: Recommended articles and resource-links mentioned in the episode: The Period Movement: https://period.org/   Donate https://period.org/donate Take Action https://period-action.org/ Advocate (advocacy.period.org) https://www.period-action.org/advocacy Every 28 Days Club https://donate.period.org/campaign/every-28-day-club/c351670   Period Action Day www.periodactionday.com   s/o Green Periods https://www.greenperiods.org/     Articles on the Pink Tax  https://www.healthline.com/health/the-real-cost-of-pink-tax https://www.usatoday.com/story/money/business/2017/03/24/feminine-hygiene-newest-consumer-battlefield/99532850/   Find our Hosts on Instagram:  @jessicalaurenrichmond @christie_publichealth   FLOW is sponsored by Takeda, the manufacturer of a treatment for adults with von Willebrand disease. To see if this treatment might be right for you and your needs, visit: https://ssshare.it/jR2O    Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter    Check out Believe Limited's Other Work: BloodFeed: bloodfeed.com Bombardier Blood: bombardierblood.com Hemophilia: The Musical: breakingthroughhemophilia.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com Teen Impact Awards: teenimpactawards.com The Science Fair: thesciencefair.org

In episode 08, the Flow team talk about the complexity of Endometriosis (part 2, cause Endo is Complex!)   Dr. Jocelyn Fitzgerald, Urogynecologist and Pelvic Reconstructive Surgeon, joins Jessica and Christie to unpack the complexity of endometriosis - symptoms, diagnosis and treatment options.  PLUS: the importance of having women working in ALL parts of the medical field, the obstacle of insurance coverage when seeking treatment, the lack of comprehensive research into female reproductive health - AND a prediction of what will be different in 5-10 years from now for those suffering from endometriosis.  Program Notes: Dr. Jocelyn Fitzgerald, Assistant Professor of Urogynecology and Pelvic Reconstructive Surgery, joins Jessica and Christie to unpack complexity of endometriosis.  Recommended articles and resource-links mentioned in the episode:   PROGRAM NOTES / LINKS:   Dr. Jocelyn Fitzgerald https://www.obgyn.pitt.edu/people/jocelyn-fitzgerald-md   Find Dr. Fitzgerald on Twitter! https://twitter.com/jfitzgeraldMD   Doctor Recommended Article:  https://www.nytimes.com/2021/04/27/health/endometriosis-griffith-uterus.html   Christie's Tips / Resource List https://www.cdc.gov/ https://www.mayoclinic.org/ https://my.clevelandclinic.org/ https://www.acog.org/   You're Not Crazy segment article:  https://www.kff.org/report-section/beyond-the-numbers-access-to-reproductive-health-care-for-low-income-women-in-five-communities-executive-summary/   Find our Hosts on Instagram:  @jessicalaurenrichmond @christie_publichealth   FLOW is sponsored by Takeda, the manufacturer of a treatment for adults with von Willebrand disease. To see if this treatment might be right for you and your needs, visit: https://ssshare.it/X1Oa    Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook  BloodStream on Twitter    Check out Believe Limited's Other Work: BloodFeed: bloodfeed.com Bombardier Blood: bombardierblood.com Hemophilia: The Musical: breakingthroughhemophilia.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com Teen Impact Awards: teenimpactawards.com The Science Fair: thesciencefair.org