Podcast appearances and mentions of hannah setzer

**This is the original version. A voiceover version is available on this platform. If you have hearing loss or auditory processing difficulties, or are listening in a noisy car, the voiceover version is here for you to access this awesome conversation! Have you ever given much thought to the terminology we use to describe our medically complex kids (and ourselves)? The words we use might seem inconsequential at first glance, but I'm talking with Kari Harbath (mom to a disabled daughter) and Hannah Setzer (disabled activist), to explain why the terms we use for our kids are really important and set the tone for how disabled children and adults can move about in the world. In this episode, Hannah describes her experience as a disabled child and now a disabled adult and why she prefers the term “disabled” instead of special needs. She and Kari also discuss how they've heard the term “special” used in society and why that just isn't an ideal description for our kids. And I want to add, this conversation isn't about calling out or shaming anyone! We're just here to give you another perspective and offer you an alternative to some very popular (but kind of infantilizing) terms often used in wider society. We're so grateful that you're here and willing to tackle topics like this with us.   Links: Watch this episode with subtitles ⁠on YouTube.⁠ Get a copy of Hannah's book “I'll Pray for You: and Other Outrageous Things Said to Disabled People.” Get a copy of Demystifying Disability by Emily Ladau. Listen to Ep 85 with Emily Ladau and Amanda Griffith-Atkins on the identity of parents related to their disabled children. Listen to Ep 121: When Strangers “Just Ask” with disabled author James Catchpole. Listen to Episode 10 and Episode 11 to hear Kari's first episodes on The Rare Life. Follow Hannah on Instagram! Follow Kari (and Sloan) on Instagram! Follow me on Instagram! Donate to the podcast via Buy Me a Coffee. Contact me about sponsoring the podcast. Follow the Facebook page. Join the Facebook group Parents of Children with Rare Conditions. Access the transcript on the website here. And if you love this podcast, please leave us a rating or review in your favorite podcast app!

**This is the voiceover version. There are two versions of this episode! One where you can hear directly from Hannah, and one where we used an AI voiceover. If you have hearing loss or auditory processing difficulties, or are listening in a noisy car, the voiceover version is here for you to access this awesome conversation! Have you ever given much thought to the terminology we use to describe our medically complex kids (and ourselves)? The words we use might seem inconsequential at first glance, but I'm talking with Kari Harbath (mom to a disabled daughter) and Hannah Setzer (disabled activist), to explain why the terms we use for our kids are really important and set the tone for how disabled children and adults can move about in the world. In this episode, Hannah describes her experience as a disabled child and now a disabled adult and why she prefers the term “disabled” instead of special needs. She and Kari also discuss how they've heard the term “special” used in society and why that just isn't an ideal description for our kids. And I want to add, this conversation isn't about calling out or shaming anyone! We're just here to give you another perspective and offer you an alternative to some very popular (but kind of infantilizing) terms often used in wider society. We're so grateful that you're here and willing to tackle topics like this with us. Links: Watch this episode with subtitles on YouTube. Get a copy of Hannah's book “I'll Pray for You: and Other Outrageous Things Said to Disabled People.” Get a copy of Demystifying Disability by Emily Ladau. Listen to Ep 85 with Emily Ladau and Amanda Griffith-Atkins on the identity of parents related to their disabled children. Listen to Ep 121: When Strangers “Just Ask” with disabled author James Catchpole. Listen to Episode 10 and Episode 11 to hear Kari's first episodes on The Rare Life. Follow Hannah on Instagram! Follow Kari (and Sloan) on Instagram! Follow me on Instagram! Donate to the podcast via Buy Me a Coffee. Contact me about sponsoring the podcast.

We all have insecurities and there are always going to be people who may say things about us behind our back. Especially when you're a person with a disability, life just doesn't come easy. But if you're able to choose self-love at every point of your journey, no amount of chaos in the outer world is going to affect your inner world. In this episode, we have Hannah Setzer of Feeding Tube Fitness in Virginia. Born with a rare medical condition called Cystic Hygroma, Hannah had to go through surgery all the time. But that didn't stop her from living her life and pursuing her dreams and passions from running marathons to Crossfit and writing a book. A perfect example is that if you choose self-love, happiness, confidence, and your autonomy to make choices naturally follow. In this episode, you will hear: Growing up with Cystic Hygroma and embracing her disability Trusting that everyone is their own expert Giving people the autonomy to make choices for themselves How she got into running marathons and CrossFit Finding the kind of movement you love and enjoy Hannah's advocacy efforts in Virginia Subscribe and Review Have you subscribed to our podcast? We'd love for you to subscribe if you haven't yet.  We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast. Supporting Resources: Hannah's Book: “I'll pray for you, and other outrageous things said to disabled people”: https://amzn.to/3TkDVwm (affiliate) https://www.instagram.com/feedingtube.fitness/ Episode Credits If you like this podcast and are thinking of creating your own, consider talking to my producer, Emerald City Productions. They helped me grow and produce the podcast you are listening to right now. Find out more at https://emeraldcitypro.com Let them know I sent you.

Do we have a TREAT for you today- Hannah Setzer is here to talk about her new (and incredible) book "I'll Pray for You: and other outrageous things said to disabled people". We rank the top five worst and muse about life, chickens, and disability. PLUS: NextDoor nightmare and your daily dance of the week!  Shop some of my favorite things from my personal closet at Doramaar.com! Buy Hannah's book on Amazon now :)

Hannah Setzer is strong, ambitious, and just a light to the world! Hannah has been through soooooo much. She was born with a rare condition called Cystic hygroma, where cysts grow in her neck/head. Hannah was told she would never live a normal life because of her condition... CHECK AGAIN DOCTORS!! Hannah is a proud wife, foster mother, business owner, and a disability advocate. This woman does it all!! Thanks again Hannah. I am truly honored, and now, I am on the hunt to find adult males with feeding tubes. (Hannah made me realize I️ actually don't know any adults my age with feeding tubes haha) I️nsta: @feedingtube.fitness Wanna check out her businesses? Blog? And even support a cause to build a community center for those with disabilities? Link Below! linktr.ee/feedingtube.fitness

Hannah Setzer (known on social media as @feedingtube.fitness) speaks about working full-time; helping to run a family business with her husband; tending to their small farm; being an exercise influencer, fostering four boys, writing a memoir and more. She also speaks about Cystic Hygroma, using a feeding tube and trach, and gives tips such as why she started blending her own food instead of using a formula. Hannah's "why" is to show individuals that they don't have to settle, and can live a full and happy life. Hannah's Link Tree: HereLinks for The Landscape PagesLink to The Landscape FB PageLink to The Landscape Instagram PageLink to sign up News LetterLink to The Landscape LinkedIn

The story behind Hannah’s Handcrafted Elderberry Syrup. Hannah Setzer shares the highs and lows of running a new start up business during a pandemic. Use code JMAR10 at checkout to get %10 off your order. https://handcraftedbyhannah.com/ We are a husband and wife duo based in Richmond, Virginia. We make and sell Elderberry Syrup. Our products are certified by the Virginia Departments of Agriculture and Consumer Services. We are also a certified Virginia's Finest product. Our delicious syrups are packed with antioxidants and local raw honey. Try some out and see for yourself! Check out our Testimonials page to see what our customers have to say! 

Hannah Setzer is an inspiration to so many and I can’t wait for you to hear her story. Hannah was born with a rare medical condition called Cystic Hygroma of... The post Episode 184: Hannah Setzer appeared first on Lindsey Hein.

Today's interview reminds us of what an absolute miracle life can be.  Our guest today is a very special 28 year old woman named Hannah Setzer.  Hannah was born with a rare cyst condition and has been defying the odds since the day she was born. She is 100% fed by a feeding tube and relies on a trach to breath. Her parents were told that she wouldn't live and if she did, she would never walk or talk. Yet Hannah kept defying the odds and continues to be a walking, talking, beautiful miracle.  Hannah has many health difficulties but has never let it stop her from achieving her goals and motivating others. She runs a fitness account @feedingtube.fitness that encourages people with all ability levels to stay fit and move their bodies every day.  She is full of light and has the most beautiful and fun perspective on life.   One of the reasons why we love Hannah so much is that she has taught us what it looks like to fully and completely love our bodies. She has shown us that everyone should love their body exactly as it is. Hannah has her masters degree and is a disabilities rights advocate for the state of Virginia. Because of her experience in this field we were able to discuss how best to interact with people with disabilities or physical differences. We can discover how we are all more alike than different and can grow meaningful and loving relationships with people of all abilities.   We have learned so much from Hannah and absolutely love her, we know you will too!      Article mentioned in episode: https://cupofjo.com/2019/03/special-needs-encounter/

Today’s #SwoulSisters is extra special because I have my friend Hannah Setzer as a guest speaker. We talk about attaining victory over suffering and how to be a Spirit Led Influencer. We hope you are inspired and encourage by today’s message. . Hannah’s IG account - https://instagram.com/feedingtube.fitness?utm_source=ig_profile_share&igshid=rlong6xlzdxn . Sign up for Essie’s newsletter - https://www.fitblvd.com/ . “Swoul Sisters” empowers women to be strong in spirit and body. My fit, fun and fabulous friend Esther Williams and I will be sharing stories and tips to encourage you in life, family and business. We are raw and unedited in our conversations about how we apply and stay true to our Godly principles in today’s society. . Wanting to use safer skincare? The link provided will take you to Beauty Counter. http://Www.beautycounter.com/Estherwilliams . Direct Message Jennifer on Instagram at @jmarfit http://www.instagram.com/jmarfit FB Page - Life By JMAR Divine Coaching Concepts by Jennifer Martinez lifebyjmar@gmail.com . Direct Message Essie on her Instagram account https://www.instagram.com/fitblvd or email her at fitblvd@gmail.com Fitness program launching soon!

My name is Hannah, I’m 28 and eat through a feeding tube and breathe through a tracheostomy tube. I’ve had both these tubes since I was just days old. I was born with a medical condition that affects my lymphatic system and as a result I have thousands of cysts in my head and neck, some of which are in my airway and esophagus. I’ve had more surgeries than we can count and have heard the word can’t more times than anyone should. For every time I’ve been told I can’t do something I tend to do the opposite. I grew up around sports and played some growing up, but was often held back, or given free passes in gym class, to not have to try as hard. When I was out on my own in college I signed up for every intermural sport I could (despite being TERRIBLE at all of them) and legitimately played Ultimate Frisbee every single day. I found my body could do much more than I ever dreamed it could, including multiple half marathons. . Several years ago I took my health into my own hands in the biggest way I probably ever will. Up until age 23 I was on canned, genetically made, pre-packaged formula for people with feeding tubes or other medical needs. Doctors advised my parents to put me on this from a very young age and admittedly it kept me alive. I was able to function and go to public school and participate in activities and camps and be social. It also made me incredibly sick often. We didn’t know it was the cause but it was certainly a catalyst for many infections and illnesses I had for my first 23 years.  With the encouragement of some friends, when I was 23 I went off the formula. I started blending my own foods and trying to eat healthier real foods. It was a steep learning curve. My parents were not happy. I lost a lot of weight at a very rapid pace until we figured out a blended diet that worked for me to sustain my body. Five years later I am healthier than I’ve ever been, I eat real food, and instead of getting sick monthly I’ve been sick four times in those five years.  . . Here is Hannahs 30 Days of Fitness sign up https://mailchi.mp/4a7498673f68/feedingtubefitness Instagram: @feedingtube.fitness Facebook: www.facebook.com/feedingtubefitness  Email: hannahpvaughn@gmail.com  THANK YOU times a million again I'm so so so grateful !  . Feel free to Direct Message me on Instagram at @jmarfit http://www.instagram.com/jmarfit or FB Page - Life By JMAR Divine Coaching Concepts Email me if you would be interested in Life and Wellness coaching at lifebyjmar@gmail.com