Let's Talk More About Sarcoma

In this moving episode of Let's Talk More About Sarcoma, guest Jessica Cook shares her extraordinary story of resilience, motherhood, and self-advocacy. After an 18-month struggle with what doctors repeatedly misdiagnosed as a routine muscle tear and haematoma, Jess was finally given a terrifying diagnosis: an aggressive 27-centimetre sarcoma. To make matters even more intense, she received this news while 23 weeks pregnant with her second child. Jess opens up about navigating the harrowing choice of undergoing an above-knee leg amputation while carrying her baby, delivering a healthy daughter at 32 weeks, and stepping straight into rounds of chemotherapy and radiation. Jess speaks about adjusting to a robotic prosthetic leg and managing energy levels as a young mother of two. She reflects on the vital importance of speaking up for your health, finding silver linings, and connecting with the supportive sarcoma community. If you would like more information please visit www.crbf.org.auSee omnystudio.com/listener for privacy information.

In this moving episode, award-winning model James Parr shares his remarkable journey of resilience and self-advocacy. From losing his mother to cancer as a child to facing a difficult 10-month misdiagnosis that ultimately revealed osteosarcoma, a rare bone cancer in his ankle, James reflects openly on the shock of his diagnosis and the subsequent amputation of his right leg. Now a prominent figure on global runways for major brands like Calvin Klein and Ralph Lauren, James discusses how he uses his high-profile modeling career as a powerful catalyst to challenge traditional standards of beauty and normalise disability representation in the media. Stripping away the glamorous expectations, James discusses the realities of post-cancer health anxiety, navigating complex family dynamics, and the importance of unplugging from social media to truly live in the present moment. If you would like more information please visit www.crbf.org.auSee omnystudio.com/listener for privacy information.

In this episode, Anne Pantazis shares her harrowing 18-month medical journey, which began with minor leg numbness during an overseas trip in late 2018 and culminated in a life-altering diagnosis of myxofibrosarcoma. Facing continuous misdiagnoses and a critical lack of medical answers, Anne discusses the physical toll of her tumour, the realities of her hip disarticulation amputation, and the secondary complications, including a severe post-radiation wound infection, that delayed her rehabilitation. Balancing candor with resilience, Anne shares how she navigated massive life changes, coped with persistent phantom pain, and ultimately chose to rewrite her path through intense physical fitness, family support, and new perspectives on disability advocacy. If you would like more information please visit www.crbf.org.auSee omnystudio.com/listener for privacy information.

What would you do if you noticed something strange on your leg and your gut told you something wasn't right? Carmen Scheffer was living her best life. Born in South Africa, raised in Australia, and working as a senior digital art director in Canada, life was full of possibility. Then in December 2023, everything changed when she noticed something unusual on her leg during a family trip to South Africa. What followed was a journey through diagnosis, treatment, and a decision to return home to Australia that she believes saved her life. At Chris O'Brien Lifehouse in Sydney, Carmen finally received the care and support she had been searching for, with a team around her that treated her like a human being every step of the way. Carmen speaks with warmth and honesty about the emotional and physical side of her sarcoma experience, the importance of trusting your instincts, and what it means to find hope and gratitude on the other side of the hardest chapter of your life. If you would like more information please visit www.crbf.org.auSee omnystudio.com/listener for privacy information.

For Sarcoma awareness month we have focussed on hope for the future. The hope that comes from high level research, in order to unlock the questions that have eluded our brilliant scientific minds for over four decades. To finish Sarcoma Awareness Month on a high note, we hear from many of those leading the way in sarcoma research in Australia. Professors David Wood, University of WA, David Thomas, the Garvan Institute, and Glenn Marshall ,Sydney Children's Hospital Randwick, kick the series off this year followed in episode two by insights from Dr Richard Boyle,Head of the NSW Bone Tumour Team, Dr Joost Lesterhuis, Telethon Kids Institute and A/Prof Geoff McCowage from the Westmead children's hospital. Our GDPR privacy policy was updated on August 8, 2022. Visit acast.com/privacy for more information.

In episode two we place the spotlight on the Multi-Disciplinary Team (MDT) and the importance of patient referral for treatment of sarcoma. Dr Daniel Wong, Consultant Pathologist, Jacky Woods, Clinical Nurse Consultant, Dr David Gyorki, Consultant Surgical Oncologist, and ANZSA Board Member, together with Debra Yorke, Clinical Psychologist each provide valuable insight on their respective areas of expertise, and what it means to the sarcoma patient, whilst Christine Cockburn, Patient Care Co-ordinator RCA offsets the discussion speaking to her experience within the area of rare cancers. Our GDPR privacy policy was updated on August 8, 2022. Visit acast.com/privacy for more information.

In episode one we speak to Dr Richard Boyle, Head of Surgery NSW Sarcoma Services, Dr Michela Sorensen, Medical Practitioner, and Merryn Aldridge, Australian Olympic Team Physiotherapist (Athletics), to explore the importance of recognising symptoms, early diagnosis and timely referral to a specialist sarcoma clinician. Our GDPR privacy policy was updated on August 8, 2022. Visit acast.com/privacy for more information.

In this episode we'll hear from Professor Richard Carey-Smith, Professor David Thomas, Associate Professor Georgia Halkett, and Dr Emmy Fleuren, together with a brief wrap up on sarcoma awareness month from Mandy Basson Executive Director - Sock it to sarcoma! and Tania Rice-Brading co-founde, Cooper Rice-Brading Foundation.The series coincides with Sarcoma Awareness Month in July. The podcast will be talking about all aspects of sarcoma. Each week we will be joined by patients, family & friends, specialist clinicians and researchers, as well as hearing from the two foundations behind creating this podcast; Sock it to Sarcoma! and the Cooper Rice-Brading Foundation. Thank you for joining us for episode one of ‘Let's Talk About Sarcoma'. If you would like more information please visit www.sockittosarcoma.org.au and www.crbf.org.au Make sure to subscribe so you don't miss and episode and share on your own social media. Our GDPR privacy policy was updated on August 8, 2022. Visit acast.com/privacy for more information.

The series coincides with Sarcoma Awareness Month in July. The podcast will be talking about all aspects of sarcoma. Each week we will be joined by patients, family & friends, specialist clinicians and researchers, as well as hearing from the two foundations behind creating this podcast; Sock it to Sarcoma! and the Cooper Rice-Brading Foundation. Thank you for joining us for episode one of ‘Let's Talk About Sarcoma'. If you would like more information please visit www.sockittosarcoma.org.au and www.crbf.org.au Make sure to subscribe so you don't miss and episode and share on your own social media. Our GDPR privacy policy was updated on August 8, 2022. Visit acast.com/privacy for more information.

The series coincides with Sarcoma Awareness Month in July. The podcast will be talking about all aspects of sarcoma. Each week we will be joined by patients, family & friends, specialist clinicians and researchers, as well as hearing from the two foundations behind creating this podcast; Sock it to Sarcoma! and the Cooper Rice-Brading Foundation. Thank you for joining us for episode one of ‘Let's Talk About Sarcoma'. If you would like more information please visit www.sockittosarcoma.org.au and www.crbf.org.au Make sure to subscribe so you don't miss and episode and share on your own social media. Our GDPR privacy policy was updated on August 8, 2022. Visit acast.com/privacy for more information.

The series coincides with Sarcoma Awareness Month in July. The podcast will be talking about all aspects of sarcoma. Each week we will be joined by patients, family & friends, specialist clinicians and researchers, as well as hearing from the two foundations behind creating this podcast; Sock it to Sarcoma! and the Cooper Rice-Brading Foundation. Thank you for joining us for episode one of ‘Let's Talk About Sarcoma'. If you would like more information please visit www.sockittosarcoma.org.au and www.crbf.org.au Make sure to subscribe so you don't miss and episode and share on your own social media. Our GDPR privacy policy was updated on August 8, 2022. Visit acast.com/privacy for more information.

The series coincides with Sarcoma Awareness Month in July. The podcast will be talking about all aspects of sarcoma. Each week we will be joined by patients, family & friends, specialist clinicians and researchers, as well as hearing from the two foundations behind creating this podcast; Sock it to Sarcoma! and the Cooper Rice-Brading Foundation. Thank you for joining us for episode one of ‘Let's Talk About Sarcoma'. If you would like more information please visit www.sockittosarcoma.org.au and www.crbf.org.au Make sure to subscribe so you don't miss and episode and share on your own social media. Our GDPR privacy policy was updated on August 8, 2022. Visit acast.com/privacy for more information.

The series coincides with Sarcoma Awareness Month in July. The podcast will be talking about all aspects of sarcoma. Each week we will be joined by patients, family & friends, specialist clinicians and researchers, as well as hearing from the two foundations behind creating this podcast; Sock it to Sarcoma! and the Cooper Rice-Brading Foundation.Thank you for joining us for episode one of ‘Let's Talk About Sarcoma'. If you would like more information please visit www.sockittosarcoma.org.au and www.crbf.org.au Our GDPR privacy policy was updated on August 8, 2022. Visit acast.com/privacy for more information.

The series coincides with Sarcoma Awareness Month in July. The podcast will be talking about all aspects of sarcoma. Each week we will be joined by patients, family & friends, specialist clinicians and researchers, as well as hearing from the two foundations behind creating this podcast; Sock it to Sarcoma! and the Cooper Rice-Brading Foundation. Thank you for joining us for episode one of ‘Let's Talk About Sarcoma'. If you would like more information please visit www.sockittosarcoma.org.au and www.crbf.org.au Make sure to subscribe so you don't miss and episode and share on your own social media. Our GDPR privacy policy was updated on August 8, 2022. Visit acast.com/privacy for more information.

In this episode we hear from Tania (Co-Founder of the CRBF) and Mitch Rice-Brading whose son and brother Cooper founded the CRBF. We also chat to Mandy Basson who is Executive Director of Sock it to Sarcoma founded by her daughter Abbie f. We also speak with CEO of the Australian and New Zealand Sarcoma Association Dr Denise Caruso BS(honours) and MAICD and PHD.The series coincides with Sarcoma Awareness Month in July. The podcast will be talking about all aspects of sarcoma. Each week we will be joined by patients, family & friends, specialist clinicians and researchers, as well as hearing from the two foundations behind creating this podcast; Sock it to Sarcoma! and the Cooper Rice-Brading Foundation.Thank you for joining us for episode one of ‘Let's Talk About Sarcoma'. If you would like more information please visit www.sockittosarcoma.org.au and www.crbf.org.auMake sure to subscribe so you don't miss and episode and share on your own social media.Next week we will be taking to some incredible patients about their sarcoma journeys. Thank you again for tuning in. Our GDPR privacy policy was updated on August 8, 2022. Visit acast.com/privacy for more information.

A podcast that shines the spotlight on a sarcoma diagnosis. The expected, the unexpected and everything in between brought to you by Sock it to Sarcoma! and the Cooper Rice-Brading Foundation.The series coincides with Sarcoma Awareness Month in July. The podcast will be talking about all aspects of sarcoma. Each week we will be joined by patients, family & friends, specialist clinicians and researchers, as well as hearing from the two foundations behind creating this podcast; Sock it to Sarcoma! and the Cooper Rice-Brading Foundation. Our GDPR privacy policy was updated on August 8, 2022. Visit acast.com/privacy for more information.