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BloodStream Media is proud to present The Factor Revolution: The Last 60 Years in Hemophilia Treatment, a three-episode special series with over forty interviews from community members, doctors, experts and advocates. We take a deep look at the history of factor treatment from the 1950's to today. The Factor Revolution pulls together source material, news reports, white papers, and original audio content from the film Bad Blood and the "HIV Story Project."  Exclusive Sponsor for The Factor Revolution: Shire LINKS: - ISHIM.NET - “Who Discovered Hemophilia” (Abdul Nasser Kaadan MD, PhD*, Mahmud Angrini MD**) - JOURNAL OF CLINICAL INVESTIGATION - “HEMOPHILIA. II. SOME PROPERTIES OF A SUBSTANCE OBTAINED FROM NORMAL HUMAN PLASMA EFFECTIVE IN ACCELERATING THE COAGULATION OF HEMOPHILIC BLOOD” - HEMOPHILIA FEDERATION OF AMERICA (HFA): “1970s: Living with Hemophilia” “Medical Bullentin #7 Chapter Advisory #8” “1982—AIDS Discovered Among Patients with Hemophilia” “1980’s: Hemophilia, HIV/AIDS, and Hepatitis C” - HEMOPHILIA NEWS TODAY - “A Brief History of Hemophilia Treatment” - AMERICAN SOCIETY OF HEMATOLOGY - “Hemophilia: From Plasma to Recombinant Factor”   - NATIONAL HEMOPHILIA FOUNDATION (NHF) - “History of Bleeding Disorders” - NBC's Earliest Report on AIDS 1982 - ABC News Nightline AIDS - 12/17/1982 - 1982 - 1992 News Clips On HIV/AIDS (The First Ten Years) - BLOODJOURNAL - “Recombinant factor VIII products and inhibitor development in previously untreated boys with severe hemophilia A” - WORLD FEDERATION OF HEMOPHILIA (WFH) “The Tragic History of AIDS in the Hemophilia Population, 1982-1984” “Recombinant FVIII product associated with higher risk of inhibitor development in newly diagnosed, previously untreated patients with severe hemophilia A” - THE NATIONAL CENTER FOR BIOTECHNOLOGY INFORMATION - “HIV And The Blood Supply: An Analysis Of Crisis Decision Making” - CENTER FOR DISEASE CONTROL (CDC) - “Current Trends Prevention of Acquired Immune Deficiency Syndrome (AIDS): Report of Inter-Agency Recommendations” - HEALTH RESOURCES & SERVICES ADMINISTRATION - “Who Was Ryan White” - LINKEDIN - “Hemophilia market is boiling- new players, new products and drug wars.” - GENETIC ENGINEERING & BIOTECHNOLOGY NEWS - “Phase III Study Shows Roche’s Hemophilia Drug Emicizumab Prevents Bleeding in Children” - PBS (PUBLIC BROADCAST SYSTEM) - “Bad Blood - A Cautionary Tale” Directed by Marilyn Ness, Written by Marilyn Ness and Sheila Curran Bernard INTERVIEWS: Bobby Wiseman (via the HIV Story Project) - Board Member of Hemophilia Council of California Carl Weixler (via the HIV Story Project) - Board of Directors for and President of the Committee of Ten Thousand Dana Francis (via the HIV Story Project) - The clinical social worker with the Adult Hemophilia Treatment Team at UCSF Glenn Pierce (via the HIV Story Project) - Medical and Scientific Advisory Council (MASAC) for NHF; Previously served as president of the Board of NHF Jeanne White-Ginder (via the HIV Story Project) - Serves on the advisory board of The AIDS Institute; Advocate & Mother of Ryan White Louise & Clifford Ray (via the HIV Story Project) - Advocates & Parents of Ricky Ray Mark Skinner - Former President of NHF and WFH; Current member of the Federal Advisory Committee on Blood Safety Michelle Rice - Senior VP of external affairs for the National Hemophilia Foundation Randy Curtis - President of the Hemophilia Council of California Val Bias (via the HIV Story Project) - CEO of NHF Dana Kuhn - President and founder of Patient Services Incorporated Sue Geraghty - Nurse Coordinator at the University of Colorado Denver Hemophilia and Thrombosis Center Various interviews from the film Bad Blood. LINKS ON THE LGBT COMMUNITY & THE HIV/AIDS PANDEMIC US Federal Govt Statistics & Timeline, HIV.Gov National Institutes of Health (NIH) Huffington Post Top Books on HIV AIDS Ryan White Care Act Connect with BloodStream: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodFeed: https://www.bloodfeed.com Powering Through Podcast: http://poweringthrough.org/podcast Ask The Expert Podcast: http://bloodstreamexpert.com Email mailbag@bloodstreammedia.com BloodStream Facebook Page BloodStream Twitter Account Subscribe to BloodStream: iTunes: http://bit.ly/bloodstreamitunes Stitcher: http://bit.ly/bloodstreamstitcher LibSyn: http://bit.ly/bloodstreamlibsyn SoundCloud: http://bit.ly/bloodstreamSC TuneIn: http://bit.ly/bloodstreamtunein Google Play: http://bit.ly/bloodstreamPlay

This month on The BloodStream Podcast, we spotlight “Factor Revolution”, BloodStream Media’s new three-part series covering the history of treatment in hemophilia; Natalie takes us through the five things all new moms need in our Like Segment; “Factor Revolution” Producers Ryan Gielen and Seth Kirschner introduce themselves and provide a window into their work in our Share Segment; Patrick highlights recent news related to medical marijuana/cannabis use for pain management; and finally sportswriter and hemo dad Dan Levy - perhaps better known as the dad of #IronMax - shares his perspective on media, awareness, and more! Listen now on Episode 17 of The BloodStream Podcast.   Exclusive Sponsor: Shire   Like Segment: Five things all new mothers need.   Share Segment: “Factor Revolution” Producers Ryan Gielen and Seth Kirschner share their experience of building relationships with the bleeding disorders community.   Comment Segment: Medical cannabis can help reduce our nation's pain epidemic || The Hill Why (some of) the GOP is Pushing for Medical Marijuana Research || Rolling Stonen Justice Department at Odds with DEA Over Marijuana Research. || Washington Post Sen. Hatch Introduces Medical Marijuana Research Bill || Orrin Hatch Campaign Website   Dan Levy Interview Marvel Honors Boy Fighting Hemophilia With Cameo in ‘Iron Man’ Comic | NBC Nightly News Inspiring America: Checking In On Real Life Super Hero Kid ‘Iron Max’ Hearts 4 Hemophilia Other Links of Interest Powering Through Podcast Ask The Expert Podcast   BloodFeed: https://www.bloodfeed.com Powering Through Podcast http://poweringthrough.org/podcast Ask The Expert Podcast http://bloodstreamexpert.com    

BloodStream Media is proud to present The Factor Revolution: The Last 60 Years in Hemophilia Treatment, a three-episode special series with over forty interviews from community members, doctors, experts and advocates. We take a deep look at the history of factor treatment from the 1950's to today. The Factor Revolution pulls together source material, news reports, white papers, and original audio content from the film Bad Blood and the "HIV Story Project."  Episode 2: The Contamination Crisis pulls together first-hand accounts from survivors of the HIV/AIDS outbreak, often referred to in our community as "the contamination crisis." This series - and especially this episode - was created in partnership with The HIV Story Project and the seminal documentary film, Bad Blood.  Exclusive Sponsor for The Factor Revolution: Shire LINKS: - ISHIM.NET - “Who Discovered Hemophilia” (Abdul Nasser Kaadan MD, PhD*, Mahmud Angrini MD**) - JOURNAL OF CLINICAL INVESTIGATION - “HEMOPHILIA. II. SOME PROPERTIES OF A SUBSTANCE OBTAINED FROM NORMAL HUMAN PLASMA EFFECTIVE IN ACCELERATING THE COAGULATION OF HEMOPHILIC BLOOD” - HEMOPHILIA FEDERATION OF AMERICA (HFA): “1970s: Living with Hemophilia” “Medical Bullentin #7 Chapter Advisory #8” “1982—AIDS Discovered Among Patients with Hemophilia” “1980’s: Hemophilia, HIV/AIDS, and Hepatitis C” - HEMOPHILIA NEWS TODAY - “A Brief History of Hemophilia Treatment” - AMERICAN SOCIETY OF HEMATOLOGY - “Hemophilia: From Plasma to Recombinant Factor”   - NATIONAL HEMOPHILIA FOUNDATION (NHF) - “History of Bleeding Disorders” - NBC's Earliest Report on AIDS 1982 - ABC News Nightline AIDS - 12/17/1982 - 1982 - 1992 News Clips On HIV/AIDS (The First Ten Years) - BLOODJOURNAL - “Recombinant factor VIII products and inhibitor development in previously untreated boys with severe hemophilia A” - WORLD FEDERATION OF HEMOPHILIA (WFH) “The Tragic History of AIDS in the Hemophilia Population, 1982-1984” “Recombinant FVIII product associated with higher risk of inhibitor development in newly diagnosed, previously untreated patients with severe hemophilia A” - THE NATIONAL CENTER FOR BIOTECHNOLOGY INFORMATION - “HIV And The Blood Supply: An Analysis Of Crisis Decision Making” - CENTER FOR DISEASE CONTROL (CDC) - “Current Trends Prevention of Acquired Immune Deficiency Syndrome (AIDS): Report of Inter-Agency Recommendations” - HEALTH RESOURCES & SERVICES ADMINISTRATION - “Who Was Ryan White” - LINKEDIN - “Hemophilia market is boiling- new players, new products and drug wars.” - GENETIC ENGINEERING & BIOTECHNOLOGY NEWS - “Phase III Study Shows Roche’s Hemophilia Drug Emicizumab Prevents Bleeding in Children” - PBS (PUBLIC BROADCAST SYSTEM) - “Bad Blood - A Cautionary Tale” Directed by Marilyn Ness, Written by Marilyn Ness and Sheila Curran Bernard INTERVIEWS: Bobby Wiseman (via the HIV Story Project) - Board Member of Hemophilia Council of California Carl Weixler (via the HIV Story Project) - Board of Directors for and President of the Committee of Ten Thousand Dana Francis (via the HIV Story Project) - The clinical social worker with the Adult Hemophilia Treatment Team at UCSF Glenn Pierce (via the HIV Story Project) - Medical and Scientific Advisory Council (MASAC) for NHF; Previously served as president of the Board of NHF Jeanne White-Ginder (via the HIV Story Project) - Serves on the advisory board of The AIDS Institute; Advocate & Mother of Ryan White Louise & Clifford Ray (via the HIV Story Project) - Advocates & Parents of Ricky Ray Mark Skinner - Former President of NHF and WFH; Current member of the Federal Advisory Committee on Blood Safety Michelle Rice - Senior VP of external affairs for the National Hemophilia Foundation Randy Curtis - President of the Hemophilia Council of California Val Bias (via the HIV Story Project) - CEO of NHF Dana Kuhn - President and founder of Patient Services Incorporated Sue Geraghty - Nurse Coordinator at the University of Colorado Denver Hemophilia and Thrombosis Center Various interviews from the film Bad Blood. LINKS ON THE LGBT COMMUNITY & THE HIV/AIDS PANDEMIC US Federal Govt Statistics & Timeline, HIV.Gov National Institutes of Health (NIH) Huffington Post Top Books on HIV AIDS Ryan White Care Act Connect with BloodStream: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodFeed: https://www.bloodfeed.com Powering Through Podcast: http://poweringthrough.org/podcast Ask The Expert Podcast: http://bloodstreamexpert.com Email mailbag@bloodstreammedia.com BloodStream Facebook Page BloodStream Twitter Account Subscribe to BloodStream: iTunes: http://bit.ly/bloodstreamitunes Stitcher: http://bit.ly/bloodstreamstitcher LibSyn: http://bit.ly/bloodstreamlibsyn SoundCloud: http://bit.ly/bloodstreamSC TuneIn: http://bit.ly/bloodstreamtunein Google Play: http://bit.ly/bloodstreamPlay

BloodStream Media is proud to present The Factor Revolution. The last sixty years in hemophilia treatment, with over forty interviews from community members, doctors, and advocates. We take a deep look at the history of factor treatment in the 1950's to today. The Factor Revolution pulls together source material, news reports, white papers, and original audio content from the film Bad Blood and the "HIV Story Project".  Exclusive Sponsor for The Factor Revolution: Shire ISHIM.NET - “Who Discovered Hemophilia” (Abdul Nasser Kaadan MD, PhD*, Mahmud Angrini MD**) ENCYCLOPEDIA.COM - “Hemophilia Throughout History” JOURNAL OF CLINICAL INVESTIGATION - “HEMOPHILIA. II. SOME PROPERTIES OF A SUBSTANCE OBTAINED FROM NORMAL HUMAN PLASMA EFFECTIVE IN ACCELERATING THE COAGULATION OF HEMOPHILIC BLOOD” HEMOPHILIA FEDERATION OF AMERICA (HFA) “1970s: Living with Hemophilia” “Medical Bullentin #7 Chapter Advisory #8” “1982—AIDS Discovered Among Patients with Hemophilia” “1980’s: Hemophilia, HIV/AIDS, and Hepatitis C” HEMOPHILIA NEWS TODAY - “A Brief History of Hemophilia Treatment” AMERICAN SOCIETY OF HEMATOLOGY - “Hemophilia: From Plasma to Recombinant Factor”   NATIONAL HEMOPHILIA FOUNDATION (NHF) - “History of Bleeding Disorders” NBC's Earliest Report on AIDS 1982 ABC News Nightline AIDS - 12/17/1982 1982 - 1992 News Clips On HIV/AIDS (The First Ten Years) BLOODJOURNAL - “Recombinant factor VIII products and inhibitor development in previously untreated boys with severe hemophilia A” WORLD FEDERATION OF HEMOPHILIA (WFH) “The Tragic History of AIDS in the Hemophilia Population, 1982-1984” “Recombinant FVIII product associated with higher risk of inhibitor development in newly diagnosed, previously untreated patients with severe hemophilia A” THE NATIONAL CENTER FOR BIOTECHNOLOGY INFORMATION - “HIV And The Blood Supply: An Analysis Of Crisis Decision Making” CENTER FOR DISEASE CONTROL (CDC) - “Current Trends Prevention of Acquired Immune Deficiency Syndrome (AIDS): Report of Inter-Agency Recommendations” HEALTH RESOURCES & SERVICES ADMINISTRATION - “Who Was Ryan White” LINKEDIN - “Hemophilia market is boiling- new players, new products and drug wars.” GENETIC ENGINEERING & BIOTECHNOLOGY NEWS - “Phase III Study Shows Roche’s Hemophilia Drug Emicizumab Prevents Bleeding in Children” PBS (PUBLIC BROADCAST SYSTEM) - “Bad Blood - A Cautionary Tale” Directed by Marilyn Ness, Written by Marilyn Ness and Sheila Curran Bernard INTERVIEWS: Bobby Wiseman (via the HIV Story Project) Board Member of Hemophilia Council of California Carl Weixler (via the HIV Story Project) Board of Directors for and President of the Committee of Ten Thousand Dana Francis (via the HIV Story Project) The clinical social worker with the Adult Hemophilia Treatment Team at UCSF Glenn Pierce (via the HIV Story Project) Medical and Scientific Advisory Council (MASAC) for NHF Previously served as president of the Board of NHF Jeanne White-Ginder (via the HIV Story Project) Serves on the advisory board of The AIDS Institute Advocate & Mother of Ryan White Louise & Clifford Ray (via the HIV Story Project) Advocates & Parents of Ricky Ray Mark Skinner Former President of NHF and WFH Current member of the Federal Advisory Committee on Blood Safety Michelle Rice Senior VP of external affairs for the National Hemophilia Foundation Randy Curtis President of the Hemophilia Council of California Val Bias (via the HIV Story Project) CEO of NHF Dana Kuhn President and founder of Patient Services Incorporated Sue Geraghty Nurse Coordinator at the University of Colorado Denver Hemophilia and Thrombosis Center Various interviews from Bad Blood. LINKS ON THE LGBT COMMUNITY & THE HIV/AIDS PANDEMIC US Federal Govt Statistics & Timeline, HIV.Gov National Institutes of Health (NIH) Huffington Post Top Books on HIV AIDS Ryan White Care Act   Connect with BloodStream: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodFeed: https://www.bloodfeed.com Powering Through Podcast: http://poweringthrough.org/podcast Ask The Expert Podcast: http://bloodstreamexpert.com Email mailbag@bloodstreammedia.com BloodStream Facebook Page BloodStream Twitter Account Subscribe to BloodStream: iTunes: http://bit.ly/bloodstreamitunes Stitcher: http://bit.ly/bloodstreamstitcher LibSyn: http://bit.ly/bloodstreamlibsyn SoundCloud: http://bit.ly/bloodstreamSC TuneIn: http://bit.ly/bloodstreamtunein Google Play: http://bit.ly/bloodstreamPlay

Andy Slavitt, the former head of Medicare, Medicaid, and the Affordable Care Act (ACA) under President Obama, joins us for a very special interview segment on the importance of the ACA for people with hemophilia. UK-based community advocate Laurence Woollard provides insight into the UK bleeding disorders community and his personal journey in hemophilia advocacy. Natalie leads a New York Times story on the debate surrounding how to price gene therapy treatments, and Patrick provides an overview of the recent, terrible news of a patient death during the Fitusrian clinical trial - what happened, what it means, and what happens next? Listen now on Episode 16 of The BloodStream Podcast.   Exclusive Sponsor for Episode 16: Shire   Like Share Comment Segments Like: NYT: New Gene-Therapy Treatments Will Carry Whopping Price Tags   Share: Laurence Woollard’s “The Endeavour to Progress”    Comment: Alnylam Suspends All Trials of Fitusiran After Hemophilia A Patient Dies in Phase 2 Study // Story from RareDr.com // Story from FierceBiotech   Andy Slavitt Interview JAMA Forum: Reforming Medicaid USA Today Column: Spare America a do-over on health care. Seize the bipartisan moment.   Other Links of Interest Clinical Trials 101 from HemAware Clinical Trials from the Hemophilia Federation of America Powering Through Podcast Ask The Expert Podcast Making-Of Bombardier Blood Video Stop The Bleeding! Season 7 - Behind The Story Videos Hope For Hemophilia   BloodFeed: https://www.bloodfeed.com Powering Through Podcast http://poweringthrough.org/podcast Ask The Expert Podcast http://bloodstreamexpert.com    

We preview National Hemophilia Foundation’s (NHF) 2017 Annual Meeting! Interviews include NHF CEO Val Bias, NHF staff and volunteers. During our Like, Share, Comment segment, Natalie and I discuss a recent article profiling companies with notably strong employee health benefits, a World Federation of Hemophilia (WFH) article highlighting recent success in their Twinning Program, and community member Tai-yan Chou-Kudu  presents Hemophilia - Not Just Physical, a spoken-word piece on severe hemophilia A’s impact on her life and studies. All of that, plus a look at a new inquiry in the UK into the blood contamination crisis. Listen now on Episode 15 of The BloodStream Podcast! Exclusive Sponsor for Episode 15: Like Share Comment Like: Nine Companies Hiring Now That Cover 100% of Employee Health Insurance Premiums Share: Tai-yan Chou-Kudu’s “Hemophilia - Not Just Physical” (LINK TO BLOG) Comment: Twinning successes in 2016, Inquiry to contaminated blood scandal in UK Other Links of Interest Powering Through Podcast Ep 7 feat. four HTC hematologists: http://bit.ly/PTpodEp7 Ask The Expert Podcast:  http://BloodStreamExpert.com The Haemophilia Society’s Blog: http://haemophilia.org.uk/blog/ Outreach and Identification in Indonesia video from the World Federation of Hemophilia’s Humanitarian Aid Program: http://bit.ly/WFHIndonesia Believe @ #NHF2017 Video: VIDEO NOT YET AVAILABLE. Believe @ #NHF2017 Printed Schedule: http://BelieveLTD.com/NHF2017 https://www.hepmag.com/article/coffee-cannabis-may-protect-liver-hiv-hcv   BloodFeed: https://www.bloodfeed.com Powering Through Podcast http://poweringthrough.org/podcast Ask The Expert Podcast http://bloodstreamexpert.com  

On this episode, Dr. Steven Pipe- pediatric hematologist and Chair of the National Hemophilia Foundation’s (NHF) Medical and Scientific Advisory Council- provides an update on new and developing treatment products immediately following his attending the International Society on Thrombosis and Hemostasis (ISTH) Congress. Natalie leads a discussion on a recent CDC study that indicates opioid prescriptions are on the decline, Patrick initiates a game based on a new bleeding disorders online platform, and a community member shares her take on platelet disorders. All this and more on Episode 14 of The BloodStream Podcast!  Opioid Prescriptions Fall After 2010 Peak, C.D.C Report Finds https://www.nytimes.com/2017/07/06/health/opioid-painkillers-prescriptions-united-states.html Rare Platlet Disorders: https://stepsforliving.hemophilia.org/basics-of-bleeding-disorders/types-of-bleeding-disorders/rare-platelet-disorders ISTH Congress 2017 Headlines: BioMarin and Spark: http://www.biopharmadive.com/news/hemophilia-ISTH-spark-alnylam-gene-therapy-biomarin/446849/    Idelvion: https://hemophilianewstoday.com/2017/07/14/hemophilia-b-pediatric-adult-patients-benefit-from-idelvion-studies-show/   Emicizumab: https://www.dddmag.com/article/2017/07/positive-results-emicizumab-phase-iii-studies-hemophilia-inhibitors   Nuwiq: http://www.businesswire.com/news/home/20170709005080/en/ISTH-2017-Berlin-Octapharma-presents-exciting-Nuwiq%C2%AE Q&A with R&D chief of Bioverativ: https://www.dddmag.com/article/2017/07/bioverativ-r-d-chief-breaks-down-data-blood-disorder-drug-pipeline   Steven Pipe presents small molecule therapies: http://isthcongressdaily.org/novel-therapies-hemophilia-small-molecules-treatment-hemophilia/   BloodFeed: https://www.bloodfeed.com Powering Through Podcast http://poweringthrough.org/podcast Ask The Expert Podcast http://bloodstreamexpert.com  

Believe Limited is excited to announce the launch of not one but TWO new podcasts! Ask the Expert and The Powering Through Podcast join our flagship podcast BloodStream™ to round out the growing BloodStream Media Network. Read a bit more about both podcasts below and make sure to subscribe on your favorite platform! Check out BloodStreamMedia.com! Ask The Expert features a HTC hematologist or other healthcare expert answering listener-submitted questions about all things bleeding disorders. Ask The Expert is created and produced by Believe Limited and hosted by Patrick James Lynch. Listen and Subscribe! Disclaimer: The content contained within Ask The Expert is for informational purposes only. Please consult your health care provider before making any decisions about treatment.  The Powering Through Podcast features empowering, live panel conversations on obstacles, challenges, and what it takes to overcome, held for the benefit of the bleeding disorders community. The Powering Through Podcast is sponsored by NCHS, produced by Believe Limited, and hosted by Patrick James Lynch. Listen and Subscribe! BloodStream Media on Social: BloodStream Facebook Page BloodStream Twitter Account BloodStream Host Patrick James Lynch on Twitter and Instagram Want to submit a question for Ask The Expert? Want to send in an idea for a segment on The BloodStream Podcast? Want to find out more about Powering Through events in your area? Email BloodStream: mailbag@bloodstreammedia.com.