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On this episode...Her story of living with the “most painful illness on the planet”Her story being diagnosed with RSD after surgeryToxic positivity and misunderstandings of others who live with invisible illnessesHow she has managed her mental health in the face of painHow to best support those who have an invisible illnessHer coping strategies day to day, how she feels currently and her support system through this process Disability advocate and former columnist for The National Pain Report, Katie O'Leary works for Snoot Entertainment as an office manager and development assistant. She also models and writes. Her greatest passion though is creating and spreading more awareness on subjects such as mental health, suicidal ideation, invisible illnesses, and moreKatie O'Leary's recommendationsFind her on Instagram:Instagram.com/deelitefool Themighty.comrsds.orgCheck us out on socials!Instagram @dopeshttherapypodClubhouse @dopeshttherapypodTik Tok @dopeshttherapypodemail us at dopeshttherapypod@gmail.comLogo artwork by Nora Padison: Instagram @bynorajayne***Disclaimer***Dope Sh*t My Therapist Says Podcast is not a replacement for therapy. The conversations, guests, and tips talked about on the episodes are provided as educational, thought provoking, and to be inspiring and are NOT specific theraputic advice. The views of our guests reflect their own personal experiences and perspectives. Information and tips heard on the episodes are to be used at your own caution and discretion as they are not being given by a therapist that knows you personally. As always please seek out your own individual mental health care to best serve you.
Ed Coughlan journalist and editor of the National Pain Report joins us today. He covers the story about how the response to the opioid crisis is hurting many chronic pain patients. During our conversation we cover the political as well as the personal side of pain in America. Millions of people in the United States have chronic pain and many find relief by taking opioids, which used to be called pain medicine. Since the start of the "opioid crisis", which I contend is in reality an overdose crisis in the addiction community, people in pain are being forced to reduce or even completly stopped from taking their pain medication. We discuss what this type of preventable suffering does to individauls, families and to society at large. This is a very personal issue for me. I’ve been in chronic pain for over thirty years and I’ve definitely been affected by the current opioidphobia that’s gripped the nation. So I’m very grateful for Ed’s work and his perspective on this issue. Ed does an amazing job over at the National Pain Report covering the news concerning pain, practical ideas that can help those in pain and giving a platform for people in pain to share their stories. We discuss the state of the pain community advocacy efforts and what can be done to help change the draconian and in some places, like Oregon, absolutely barbaric policies surrounding the treatment of pain. During out talk we also touched on how the true enemies of those in pain aren’t people with addiction, doctors or people who advocate for alternative therapies but those who are lobbying the government to make it extremely difficult or in many cases impossible to get effective opioids to treat their pain. Personally I advocate for the total separation of Medicine and State and I believe that individuals have the right to consume what they choose. But as Ed said during our conversation the world has changed since the current opioid crisis started and that’s the reality we have to deal with. The question is now how can we gain back some of our freedom lost during the last few years, and once again to choose, along with our doctor, how best to ease our pain. We also talk about how undertreated pain can lead some to contemplate suicide or actually take their own life. If you are struggling with suicidal thoughts please reach out to friends and family or contact https://samaritanshope.org and you can also call or text them at 1-877-870-4673. If you are in pain or know someone who is or you want to educate your friends and family about what the issues are surrounding politics, pain and solutions to help those who are suffering, please check out and share our conversation. After listening to the conversation head over to http://nationalpainreport.com and check out the great work Ed is doing. You can also follow him on twitter @NatPainReport Facebook at https://www.facebook.com/NationalPainReport/ I also mentioned that I have found success using Kratom to transition off of opioids and to manage my mild to moderate pain. If you are interested in learning more about Kratom check out https://www.americankratom.org .&nb
this was edited Butterflies of Wisdom is a podcast where we want to share your story. We want to share your wisdom if you have a small business, if you are an author or a Doctor, or whatever you are. With a disability or not, we want to share your story to inspire others. To learn more about Butterflies of Wisdom visit http://butterfliesofwisdom.weebly.com/ Be sure to FOLLOW this programhttps://itunes.apple.com/us/podcast/wins-women-of-wisdom/id1060801905. To learn more about Challenge Aspen go tohttps://challengeaspen.org. To learn how Win walk and about Ekso go to http://www.bridgingbionics.org/, or email Amanda Boxtel atamanda@bridgingbionics.org. On Butterflies of Wisdom today, Best-Selling Author, Win C welcomes Cynthia Toussaint. Cynthia serves as Spokesperson at For Grace and has had Complex Regional Pain Syndrome for 35 years. She later developed Fibromylagia and other over-lapping, auto-immune conditions. Cynthia founded For Grace in 2002 to raise awareness about CRPS and five years later expanded the organization’s mission to include all women in pain. Before becoming ill, she was an accomplished ballerina and worked professionally as a dancer, actor and singer. Since 1997, she has been a leading advocate for women in pain, raising awareness through local, national and worldwide media as well as public speaking. Toussaint championed and gave key testimony at two California Senate informational hearings. The first, in May 2001, was dedicated to CRPS awareness. The second took place in February 2004 and explored the chronic under treatment of and gender bias toward women in pain. Both of these efforts were the first of their kind in the nation. In 2006, Toussaint ran for the California State Assembly to bring attention to her CRPS Education Bill that Governor Schwarzenegger vetoed after she got it to his desk in its first year. Her next bill, a seven year effort, was signed into law by Governor Jerry Brown in 2015. This Step Therapy legislation reformed an unethical prescription practice used by the health insurance industry to save money in a way that increased the suffering of California pain patients. Toussaint was the first CRPS sufferer to be featured in the New York Times, Los Angeles Times and on the Public Broadcasting System and National Public Radio. She is a consultant for The Discovery Channel, ABC News, FOX News, the National Pain Report and PainPathways, the official magazine of the World Institute of Pain. Also, she is a guide and guest contributor for Maria Shriver’s Architects of Change website. Her many speaking engagements include the National Institutes of Health and Capitol Hill. She is the author of Battle for Grace: A Memoir of Pain, Redemption and Impossible Love. Also, Toussaint is experiencing her first-ever partial CRPS remission largely due to the narrative therapy of writing this book. Toussaint continues to be a leading advocate for health care reform in California. She was instrumental in changing public opinion which sparked sweeping HMO reform legislation that was signed by Governor Gray Davis in 1999. Her focus has now shifted to creating a single-payer, universal health care plan in California that would provide a model for the rest of the country. To learn more about Cynthia visit http://www.forgrace.org/. To learn more about Win Kelly Charles visit https://wincharles.wix.com/win-charles. To follow Win on Twitter go to @winkellycharles. To follow Win on Instagram go to winkcharles. To follow Win on Snapchat go to Wcharles422. To follow Win on Snapchat go to Wcharles422. To see Win's art go tohttps://fineartamerica.com/profiles/2-win-charles.html. "Books for Books," you buy Win's books so she can purchase books for school. "Getting through school is a 'win' for her fans and a 'win' for her." Please send feedback to Win by email her at winwwow@gmail.com, or go to http://survey.libsyn.com/winwisdom andhttp://survey.libsyn.com/thebutterfly. To be on the show please fill out the intake at http://bit.ly/bow2017. Butterflies of Wisdom sponsored by Kittr a new social media tool that is bringing about new ways of posting on Twitter. It's fun, full of free content you can use, helps you schedule at the best times, is easy to use, and it will help you get more followers. Visit Kittr at gokittr.com. This is a 20% off code forwww.gracedbygrit.com. The code will be XOBUTTERFLIES. If you would like to support Butterflies of Wisdom go tohttps://www.patreon.com/wcharles. If you want to check out what Win’s friend, Dannidoll, is doing (a.k.a. Dannielle) go tohttps://www.facebook.com/dannidolltheragdollclown/?notif_t=page_invite_accepted¬if_id=1492366163404241. To learn more about Danielle visit http://www.dancanshred.com. To learn about the magic of Siri go to https://www.udemy.com/writing-a-book-using-siri/?utm_campaign=email&utm_source=sendgrid.com&utm_medium=email. If you want to donate Butterflies of Wisdom, please send a PayPal donation toaspenrosearts@gmail.com or aspenwin@gmail.com. Please donate to Challenge Aspen or the Bridging Bionics Foundation. Please send a check in the mail so 100% goes to Bridging Bionics Foundation. In the Memo section have people write: In honor of Win Charles. Please donate to the charity of your choice thank you in advance, Win. Send to: Challenge Aspen PO Box 6639 Snowmass Village, CO 81615 Or donate online at https://challengeaspen.org. Bridging Bionics Foundation PO Box 3767 Basalt, CO 81621 Thank you Win Thanks,
Butterflies of Wisdom is a podcast where we want to share your story. We want to share your knowledge if you have a small business if you are an author or a Doctor, or whatever you are. With a disability or not, we want to share your story to inspire others. To learn more about Butterflies of Wisdom visit http://butterfliesofwisdom.weebly.com/ Be sure to FOLLOW this programhttps://itunes.apple.com/us/podcast/wins-women-of-wisdom/id1060801905. To find out more about Challenge Aspen go tohttps://challengeaspen.org. To see how Win walk and about Ekso go to http://www.bridgingbionics.org/, or email Amanda Boxtel atamanda@bridgingbionics.org. On Butterflies of Wisdom today, Best-Selling Author, Win C welcomes Cynthia Toussaint. Cynthia serves as Spokesperson at For Grace and has had Complex Regional Pain Syndrome for 35 years. She later developed Fibromyalgia and other over-lapping, auto-immune conditions. Cynthia founded For Grace in 2002 to raise awareness about CRPS and five years later expanded the organization’s mission to include all women in pain. Before becoming ill, she was an accomplished ballerina and worked professionally as a dancer, actor and singer. Since 1997, she has been a leading advocate for women in pain, raising awareness through local, national and worldwide media as well as public speaking. Toussaint championed and gave critical testimony at two California Senate informational hearings. The first, in May 2001, was dedicated to CRPS awareness. The second took place in February 2004 and explored the chronic under treatment of and gender bias toward women in pain. Both of these efforts were the first of their kind in the nation. In 2006, Toussaint ran for the California State Assembly to bring attention to her CRPS Education Bill that Governor Schwarzenegger vetoed after she got it to his desk in its first year. Her next bill, a seven-year effort, was signed into law by Governor Jerry Brown in 2015. This Step Therapy legislation reformed an unethical prescription practice used by the health insurance industry to save money in a way that increased the suffering of California pain patients. Toussaint was the first CRPS sufferer to be featured in the New York Times, Los Angeles Times and on the Public Broadcasting System and National Public Radio. She is a consultant for The Discovery Channel, ABC News, FOX News, the National Pain Report and PainPathways, the official magazine of the World Institute of Pain. Also, she is a guide and guest contributor for Maria Shriver’s Architects of Change website. Her many speaking engagements include the National Institutes of Health and Capitol Hill. She is the author of Battle for Grace: A Memoir of Pain, Redemption and Impossible Love. Also, Toussaint is experiencing her first-ever partial CRPS remission mainly due to the narrative therapy of writing this book. Toussaint continues to be a leading advocate for health care reform in California. She was instrumental in changing public opinion which sparked sweeping HMO reform legislation that was signed by Governor Gray Davis in 1999. Her focus has now shifted to creating a single-payer, universal health care plan in California that would provide a model for the rest of the country. To learn more about Cynthia visit http://www.forgrace.org/. To learn more about Win Kelly Charles visit https://wincharles.wix.com/win-charles. To follow Win on Twitter go to @winkellycharles. To follow Win on Instagram go to winkcharles. To follow Win on Snapchat go to Wcharles422. To follow Win on Snapchat go to Wcharles422. To see Win's art go tohttps://fineartamerica.com/profiles/2-win-charles.html. "Books for Books," you buy Win's books so she can purchase books for school. "Getting through school is a 'win' for her fans and a 'win' for her." Please send feedback to Win by email her at winwwow@gmail.com, or go to http://survey.libsyn.com/winwisdom andhttp://survey.libsyn.com/thebutterfly. To be on the show please fill out the intake at http://bit.ly/bow2017. Butterflies of Wisdom sponsored by Kittr a new social media tool that is bringing about new ways of posting on Twitter. It's fun, full of free content you can use, helps you schedule at the best times, is easy to use, and it will help you get more followers. Visit Kittr at gokittr.com. This is a 20% off code forwww.gracedbygrit.com. The code will be XOBUTTERFLIES. If you would like to support Butterflies of Wisdom go tohttps://www.patreon.com/wcharles. If you want to check out what Win’s friend, Dannidoll, is doing (a.k.a. Dannielle) go tohttps://www.facebook.com/dannidolltheragdollclown/?notif_t=page_invite_accepted¬if_id=1492366163404241. To learn more about Danielle visit http://www.dancanshred.com. To learn about the magic of Siri go to https://www.udemy.com/writing-a-book-using-siri/?utm_campaign=email&utm_source=sendgrid.com&utm_medium=email. If you want to donate Butterflies of Wisdom, please send a PayPal donation toaspenrosearts@gmail.com or aspenwin@gmail.com. Please donate to Challenge Aspen or the Bridging Bionics Foundation. Please send a check in the mail so 100% goes to Bridging Bionics Foundation. In the Memo section have people write: In honor of Win Charles. Please donate to the charity of your choice thank you in advance, Win. Send to: Challenge Aspen PO Box 6639 Snowmass Village, CO 81615 Or donate online at https://challengeaspen.org. Bridging Bionics Foundation PO Box 3767 Basalt, CO 81621 Thank you Win
On this episode of the Healthy Wealthy and Smart Podcast, I had the pleasure of welcoming Cynthia Toussaint onto the show to discuss her experiences as a patient managing Complex Regional Pain Syndrome. Cynthia Toussaint is the founder and spokesperson of For Grace, an organization that promotes better care and wellness for women in pain. Toussaint championed and gave key testimony at two California Senate hearings – one was dedicated to CRPS awareness, the second explored the chronic under-treatment of and gender bias toward women in pain. She will lead a 2017 conference that will convene healthcare and policy leaders to bring pain care into the 21st century. The solutions proposed at the event will mandate structural changes that respond to patient needs and gender inequalities in California. Toussaint is the author of Battle for Grace: A Memoir of Pain, Redemption and Impossible Love. In this episode, we discuss: -The story behind Cynthia’s long battle with Complex Regional Pain Syndrome -How Cynthia developed independent survival solutions when medical providers would no longer help -Why gratitude, acceptance and grieving are necessary components for the management of chronic pain -For Grace: better care and wellness for women in pain -And so much more! Cynthia’s long history of battling unimaginable physical and psychological pain has taught her how to be resilient. She believes, “We don’t know what we can live with until we are there.” Cynthia has used her past experiences as inspiration for her advocacy and has created meaningful change for CRPS patients. Based on her experience, she stresses, “Don’t ever let anybody say you can’t get something done.” Cynthia has found that adversity can breed strength and that, “People who go through the impossible odds survive and they go on to make the world a better place.” After exhausting her family support system and the recommendations of her medical providers were unable to help with her chronic pain, Cynthia found her greatest relief through her own strength and will. She states, “With high impact chronic pain, we have to refuse to be a victim. We have to be our own advocates. We have to be deeply involved with self management.” For more information on Cynthia: Cynthia Toussaint serves as Spokesperson at For Grace and has had Complex Regional Pain Syndrome for 34 years. She later developed Fibromylagia and other over-lapping, auto-immune conditions. Cynthia founded For Grace in 2002 to raise awareness about CRPS and five years later expanded the organization’s mission to include all women in pain. Before becoming ill, she was an accomplished ballerina and worked professionally as a dancer, actor and singer. Since 1997, she has been a leading advocate for women in pain, raising awareness through local, national and worldwide media as well as public speaking. Toussaint championed and gave key testimony at two California Senate informational hearings. The first, in May 2001, was dedicated to CRPS awareness. The second took place in February 2004 and explored the chronic under treatment of and gender bias toward women in pain. Both of these efforts were the first of their kind in the nation. In 2006, Toussaint ran for the California State Assembly to bring attention to her CRPS Education Bill that Governor Schwarzenegger vetoed after she got it to his desk in its first year. Her next bill, a seven year effort, was signed into law by Governor Jerry Brown in 2015. This Step Therapy legislation reformed an unethical prescription practice used by the health insurance industry to save money in a way that increased the suffering of California pain patients. Toussaint was the first CRPS sufferer to be featured in the New York Times, Los Angeles Times and on the Public Broadcasting System and National Public Radio. She is a consultant for The Discovery Channel, ABC News, FOX News, the National Pain Report and PainPathways, the official magazine of the World Institute of Pain. Also, she is a guide and guest contributor for Maria Shriver’s Architects of Change website. Her many speaking engagements include the National Institutes of Health and Capitol Hill. She is the author of Battle for Grace: A Memoir of Pain, Redemption and Impossible Love. Also, Toussaint is experiencing her first-ever partial CRPS remission largely due to the narrative therapy of writing this book. Toussaint continues to be a leading advocate for health care reform in California. She was instrumental in changing public opinion which sparked sweeping HMO reform legislation that was signed by Governor Gray Davis in 1999. Her focus has now shifted to creating a single-payer, universal health care plan in California that would provide a model for the rest of the country. Resources discussed on this show: Battle for Grace: A Memoir of Pain, Redemption and Impossible Love For Grace: Women in Pain Facebook Cynthia Toussaint Twitter For Grace Website Thanks for listening and subscribing to the podcast! Make sure to connect with me on twitter, instagram and facebook to stay updated on all of the latest! Show your support for the show by leaving a rating and review on iTunes! Have a great week and stay Healthy Wealthy and Smart! Xo Karen P.S. 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