Welcome to Patient Paradox Podcast. My name is Mark Sleeper and I’m 29 yrs. old living with a chronic, life threatening disease called Cystic Fibrosis ( or CF the easier name). I’m here to share life stories of many wonderful people who are living with or have lived through serious health issues. Su…
Hey, I'm Mark Sleeper, I host a patient paradox. It has been a while since I've said anything about the podcast. Life has been pretty crazy over the past few years. But I'm ready to re-launch the podcast now that I have time in my schedule. The podcast will be relaunched in the next coming weeks. So for now I'm going to re-upload /replay all 12 episodes from the first.
Hey, I'm Mark Sleeper, I host a patient paradox. It has been a while since I've said anything about the podcast. Life has been pretty crazy over the past few years. But I'm ready to re-launch the podcast now that I have time in my schedule. The podcast will be relaunched in the next coming weeks. So for now I'm going to re-upload /replay all 12 episodes from the first.
Hey, I'm Mark Sleeper, I host a patient paradox. It has been a while since I've said anything about the podcast. Life has been pretty crazy over the past few years. But I'm ready to re-launch the podcast now that I have time in my schedule. The podcast will be relaunched in the next coming weeks. So for now I'm going to re-upload /replay all 12 episodes from the first.
Hey, I'm Mark Sleeper, I host a patient paradox. It has been a while since I've said anything about the podcast. Life has been pretty crazy over the past few years. But I'm ready to re-launch the podcast now that I have time in my schedule. The podcast will be relaunched in the next coming weeks. So for now I'm going to re-upload /replay all 12 episodes from the first.
Hey, I'm Mark Sleeper, I host a patient paradox. It has been a while since I've said anything about the podcast. Life has been pretty crazy over the past two years. But I'm ready to re-launch the podcast! The podcast will be relaunched in the next coming weeks. So for now enjoy the replay of all 12 episodes from the first season!
Health Updated: So for the past few months, I've been feeling sick. Daily fever from low 99f-102f.I've lost close to 10-12lb.Muscles and joints have become very sore and at times painful.Neuropathy has come back some as well. Depression has increased. Lack of sleep has also increased in these past months. As of Monday, December 7th My lab results have come back, they are very inconclusive. As of right now, autoimmune disease isn’t likely. Unless it a very underline autoimmune disease(which is possible). So they are running more labs and working on getting a CT scan this week. If the extra lab work comes back inconclusive as well, then we are looking to putting me into the hospital for IV's antibiotics and then diving deeper with more broad testing. In the last few days, my kidneys are starting to hurt as well. I'm completely exhausted. The next update should be Wednesday or Thursday. If you have any questions or would like updates, feel free to text me at 205.420.8893
Jason Colquitt lives in Carrollton, Georgia, and has been blessed to meet and work with many amazing people and organizations across his 20+ years in the healthcare technology field. His work has caused a positive disruption within the healthcare industry as he has partnered with many organizations ranging from small start-ups to some of the world's largest companies. He has worked directly with patients, caregivers, physicians, regulators, and researchers. These past experiences and relationships have led him to focus as CEO of a company he founded in 2012 called Across Healthcare (https://acrosshealthcare.com/). Jason was diagnosed with Carnitine Palmitoyltransferase II Deficiency (CPT II), a rare mitochondrial disease, and believes he has been called to use his journey and technical background to help the rare disease community. His Matrix Rare Disease Platform (https://acrossmatrix.com/) is a major focus and passion of the Across Healthcare team. It is his hope and desire to use this platform to help care for and cure rare diseases. The Matrix platform is made available to any size rare disease group to help connect the dots from patient to researcher.A little info on Mitochondrial DiseaseFollow Jason on Linkedin Follow Mark on Instagram Follow Patient Paradox on Instagram
Molly Waldren, originally from Charleston, SC, was diagnosed with Wilms Tumor at 11 months old. Her pediatrician discovered a mass in her abdomen during a routine visit to the doctor. Molly currently lives in Birmingham, AL, where she enjoys teaching elementary students, entertaining friends in her home, speaking without a filter, and spending time with her spunky yellow lab. What's Wilms Tumor? The book we discussThe Body Keeps Score Genius Foods Social Media: Give Patient Paradox a followGive Molly Waldren a followGive Mark Sleeper a follow
Adam Calvert, Ed.S, LPC-S, CSAT-SLicensed Professional CounselorCalvert + Associates, LLCAdam is a Licensed Professional Counselor-Supervisor and a Certified Sexual Addiction Therapist and Supervisor. He received his M.A. and Ed.S in Agency Counseling from the University of Alabama at Birmingham. He also has a B.S. degree in Marketing from Jacksonville State University and an M.S. in Public Relations from the University of Southern Mississippi. He has served on several professional boards in the mental health profession. Adam has over 20-years of experience in the counseling field. He works with those affected by sexual addiction and compulsivity. The therapy involves individual counseling, group therapy, and family counseling. He also works with couples to restore intimacy in their marriage. In addition, Adam counsels adults and teenagers dealing with sexual problems, pornography issues, depression, anxiety, grief, anger, trauma, and abuse. He is trained in EMDR. He also facilitates workshops and intensives on sexual addiction and other related topics. He and his wife, Mandy, are the parents of two sons and are members of a local church.Give them both a followPatient Paradox InstagramMark Sleeper (host) Instagram Please email me for a guest recommendationEmail: patientparadox@pm.me
This one's brief, but it's exciting!!!Season two will kick off on September 8th. A Patient Paradox website is in the works as well. So you'll be able to submit guest recommendations.Don't forget to rate, review and share this podcast as much as you heart desires. Go follow Patient Paradox on Instagram for a update and announcement. Go follow the host Mark Sleeper on Instagram
My name is Shannon Hippensteel, recently married. I’m an outdoor enthusiast. I climb, ski, bike anything that gets me outside and around other people. I love to travel and plan on doing some serious mountaineering in the future. I consider myself an expert on sour candy. You can take that to the bank. Show Notes:COVID-19 Links:COVID-19 SurfacesCOVID-fibrosis COVID-19 brain fog and moreCOVID-19 blood typeCOVID-19 Vitamin D insufficiencyWe Thought It Was Just a Respiratory VirusMental Health Links:Stress in the Time of COVID-19Implications of COVID-19 for Mental Health and Substance UseThe First Data On COVID-19 And Teens' Mental Health Is HereThe Mental Health Consequences of COVID-19COVID-19 Mental SupportSuicide prevention lifeline Peter Attia Podcast with Terry Real Give them a follow:Mark Sleeper (host) Instagram Shannon (guest) Instagram Guest Submissions:Phone: 205.420.8893Email: Patientparadox@pm.me
Dr. Bradford A. Woodworth is the James J. Hicks Endowed Professor and Vice Chair of Clinical Affairs in the Department of Otolaryngology, and Adjunct Professor of Neurosurgery at the University of Alabama at Birmingham (UAB) School of Medicine. He completed his bachelor’s degree at Williams College, graduated from Tulane University School of Medicine, and finished residency in Otolaryngology-Head and Neck Surgery at the Medical University of South Carolina. Dr. Woodworth obtained fellowship training in Rhinology at the University of Pennsylvania. Dr. Woodworth has lectured on endoscopic sinus and skull base surgery at numerous national and international venues, published over 170 journal articles and 40 text book chapters, and is the editor of 2 Rhinology textbooks. He and his mentored students/residents have also been awarded numerous regional, national, and international honors including the Edmund Prince Fowler Award from the Triological Society for best thesis, the American Rhinologic Society Young Physician Scientist Award and Cottle Award, as well as the American Academy of Otolaryngology Medical Student Research Award.What is Rhinology?What is CRISPR?A little more info on Dr. WoodworthSickle Cell Disease treated with CRISPRFollow Patient Paradox Follow Mark SleeperFor possible guest submissions, please contact Mark Sleeper.Email: PatientParadox@pm.mePhone Number 205.601.4511
EPISODE 8 is out with Dr. Clancy. He's a Pediatric Pulmonologist and the Vice President of Clinical Research for the Cystic Fibrosis Foundation. His CFF role is to oversee clinical research conducted by the CFF TDN and investigators from academic institutions internationally. He also is deeply involved in the education and training of physician-scientists and career development in CF. Dr. Clancy have been the primary or co-mentor of >20 fellows, graduate students and junior faculty. He has over 300 peer reviewed publications, and regularly provides leadership in clinical and translational research through the international CF research community. Check out Cystic Fibrosis Foundation Check out CFF Instagram Check out Vertex Pharmaceuticals PipelineWant to learn more about TRIKAFTA go check it out!Follow both of my Instagram accounts Patient Paradox and Mark Sleeper Check out Vogmask if you need a good quality mask.I've included a link to CDC that list "People who are at higher rick for several illness"
Brett was born on July 29, 1970 with Cystic Fibrosis and originally from Syracuse, NY. He grew up in Birmingham, after his family moved to Birmingham, Al. in 1972. He attended college at Jacksonville State University B.A in Sociology then went on to Birmingham Theological Seminary M.A. Counseling and M.Div. He now serves as a chaplain at Children’s of Alabama hospital since 2002. He is married to Tracy Vebber in 2003 and has a 13 year old son William.
Episode 6 featuring Erika Fieder is out! Erika is an Arizona native who is studying to become a Physician Assistant. While she went to school for journalism and worked in the technology industry, her family’s battle with cancer inspired her to study medicine. Erika has Lynch Syndrome, an inherited cancer syndrome associated with a genetic predisposition to different cancer types. Due to this, her and her family will likely encounter some types of cancer in their lifetimes, which prompts them to undergo yearly preventative care routines to detect cancer as early as possible. Lynch Syndrome Genius Food Book Everlywell Home Health Test Never Split Difference by chis Voss Hosted & Edited by Mark Sleeper --- Send in a voice message: https://anchor.fm/patientparadox/message
Hey everyone I wanted to say I hope you enjoy this episode with Dr. Sutton and myself. I do ask that everyone continues to be smart with their health right now. Please follow the guidelines from the CDC it is very important that everyone does their part. Below I will include some links to things we discussed along with links to the CDC and a couple other links that provide information about COV-19. LINKS: CDC - https://www.cdc.gov/coronavirus/2019-nCoV/index.html COV-19 Global Tracker - https://www.arcgis.com/apps/opsdashboard/index.html#/85320e2ea5424dfaaa75ae62e5c06e61 Pneumococcal vaccines - https://en.wikipedia.org/wiki/Pneumococcal_vaccine hypertension - https://www.mayoclinic.org/diseases-conditions/high-blood-pressure/symptoms-causes/syc-20373410 Immunoglobulin A (IgA) - https://en.wikipedia.org/wiki/Immunoglobulin_A PCO2 - https://medical-dictionary.thefreedictionary.com/Pco2 Flutter - http://cfcareli.com/livingwithcf_acts_flutter.php --- Send in a voice message: https://anchor.fm/patientparadox/message
Welcome back everyone, it's 2020!! This is episode 4 with Reagan Keith Fun facts about Reagan! He's Hawaiian Shirt enthusiast, a student at Beeson Divinity school, afternoon tea drinker, and Birmingham native --- Send in a voice message: https://anchor.fm/patientparadox/message
Adam is 34, married to his wife Meredith for almost 8 years! Adam is a Cystic Fibrosis and Lung Transplant patient. Outside of a standard work schedule, He’s involved with our church, like to mountain bike and hike. Episode 3 show notes: Lung Transplant: https://www.webmd.com/lung/lung-transplant-surgery CFF & Lung Transplant: https://www.cff.org/Life-With-CF/Treatments-and-Therapies/Lung-Transplantation/ Depression:https://www.webmd.com/depression/default.htm What is the Enneagram? https://www.enneagraminstitute.com/ Ed Mylett with Kayla Stoecklein: https://www.youtube.com/watch?v=GZFISXhqzf8 --- Send in a voice message: https://anchor.fm/patientparadox/message
Rachel Gunalda is an amputee, she's turning 32 at the end of October. She lives in Mississippi with her husband, baby boy, and 30+ house plants. Enjoys coffee until it’s time to switch to wine, trying new recipes, and jazz music. Everyone should defiantly check out Instagram page, she has come great content. Please give Patient Paradox a follow: https://www.instagram.com/patientparadox/ Also, give Racheal a follow also: https://www.instagram.com/reareagun/ Some medical info on amputee's https://www.webmd.com/a-to-z-guides/definition-amputation#1 --- Send in a voice message: https://anchor.fm/patientparadox/message
Welcome to the VERY FIRST episode of Patient Paradox Podcast. I have a very special guest host my dear friend Will Sorrell. Who has a podcast too. So he will be interviewing me, I'm Mark Sleeper (your host) I’m 29 yrs. old living with a chronic, life threatening disease called Cystic Fibrosis ( or CF the easier name). On episode one I’m here to share my crazy and weird life I live. Thanks to everyone who listens and subscribes. Will Sorrell's podcast go check it out! https://anchor.fm/ergonomy Want to know more about Cystic Fibrosis go check it out: https://www.cff.org What is Port you ask? Well go check it out: https://en.wikipedia.org/wiki/Port_(medical) --- Send in a voice message: https://anchor.fm/patientparadox/message