Room 64 - A Palliative Care Podcast

In this episode of Room 64 we are joined by Sharyn Milnes, iValidate Education Co-ordinator at Barwon Health and Joanna Leece, Partnering with Consumers Lead at Barwon Health.Sharyn and Joanna share their extensive knowledge about consumer (patient) engagement in medical decision making plus information about the project they are working on together that has a focus on supporting consumers to be active participants in their own care.Please take the opportunity to listen and share through your networks, families and friends to keep these conversations happening.

We are joined by Molly Carlile AM, Manager of PEPA & IPEPA Victoria (Program of Experience in the Palliative Approach), free Australia wide program that offers workshops and placements in the palliative approach to care. PEPA works closely with Barwon Health providing opportunities throughout the Barwon South West for workers in aged care and disability services.Molly shares her extensive knowledge and experience as the manager of the PEPA program from 20+ years working in palliative care, the importance of death literacy and the value of expanding our conversations and education in the palliative approach.For more information about the PEPA and IPEPA programs follow this link.Please take the opportunity to listen and share through your networks, families and friends to keep these conversations happening.

Barwon South West Region voluntary assisted dying (VAD) care navigator Jill Mann gives an overview of VAD legislation, the care navigator service, and how people can find out more information.

Sharyn Milnes joins the Room 64 podcast to discuss the iValidate program, an initiative from Barwon Health and Deakin University. iValidate is a unique and innovative program focusing on effective communication between medical professionals and their patients and families, with Sharyn working as the program's education co-ordinator.

Palliative Care nurse practitioner Meg Harrison speaks about the amazing work of the Cachexia Clinic, its positive impact on patients and their families, and how Barwon Health is a leader and innovator in this space. Please take the opportunity to listen and share through your networks to keep the conversations happening.

In this episode of Room 64, we are joined by Dr Michael Axtens. Michael works with Deakin University and Barwon Health and shares his knowledge of the background to palliative care and in particular the passionate vision of Dr Trevor Banks, a pioneer for hospice and palliative care in Geelong. Michael also talks about the important work of the iValidate Project and the benefits to patients, their families and medical teams in ensuring that patient values, priorities and choices are communicated effectively in palliative care. Read more at https://geelongcriticalcare.com.au/ivalidate/

In this episode of Room 64, we are joined by Russell Armstrong and Sue Strong from the Barwon Health Palliative Care Dignity Therapy team. Russell shares his extensive knowledge and experience as the Dignity Therapy team manager and we also hear from Sue about the privilege of volunteering with the team and engaging with palliative care patients as they share their life stories for family and friends to cherish after they have passed away. Please take the opportunity to listen and share with your families and friends to keep these conversations happening.

Join Steve Trumble as he shares about caring for his wife Therese through her oesophageal cancer, including her end-of-life journey at home with the love, care and support of her family, affectionately known as Team Therese.

Room 64 is joined by Jill Mann from Barwon Health's Advance Care Planning team, who shares her experience and the role of the Advance Care Planning program in supporting people to plan for future health, care and medical treatments. The program identifies goals, values and medical preferences where individual needs and priorities are documented for the future. Who would make medical treatment decisions for you if you were too sick to do this for yourself? For more information about Advance Care Planning through Barwon Health, visit www.barwonhealth.org.au/services-departments/advance-care-planning or phone 4215 7723.

Kat Dunell joins Room 64 to share her experience with the Barwon Health Palliative Care team, after her husband Brett Smith was diagnosed with melanoma at age 43 and died seven years later. Given melanoma is the second most common cancer for men in Australia, Kat's message is “Take it seriously. Get your skin checked every year. Find out if you're high risk or low risk”. This episode features the sounds of the didgeridoo from Michael Cousins, an indigenous healer who supported Brett and his family in palliative care with his connection to land and country.

Room 64 is joined by members of the McKellar Singing Group, as part of the Palliative Care program at Barwon Health. This choir came together through grief and now sings in the McKellar Chapel, celebrating a generosity of spirit through music. “Bringing a group of bereaved people together... creates a great layer of comfort and hope.”

Clinical nurse coordinator Robyn Matheson joins the podcast to talk about running Barwon Health's Pal@Home program, which won a Victorian Public Health Care Award in the category of “improving the integration of care for patients with chronic and complex conditions”. During Palliative Care Week, it is important to reflect on the exceptional palliative care service provided by Barwon Health and in this case the Pal@Home team – the difference they make to people's lives simply by giving their patients choice.

“When we think about the human animal bond there's no time that we're more vulnerable than when we're facing the loss of a pet.” In this conversation for World Veterinary Day, Dr Alicia Kennedy from Cherished Pets shares her experiences working in the unique area of palliative veterinary care.   Alicia also discusses ways in which Cherished Pets helps support Barwon Health patients who are at the end of life to ensure that their pet will be cared for after their death. She offers insight into how important it is to include pets and to honour the human animal bond when supporting people planning for end of life. The peace of mind that people feel knowing their pets will be loved and looked after when they are no longer able to, is immeasurable.”   #CherishedPets  #TheSocial HeartedVet  #PalliativeCareVictoria  #PalliativeCareAustralia #WorldVeterinaryDay

Tonya Court returns to chat with her son Owen, who was six when his father died 12 years ago. Now 18, Owen reflects on his memories of his dad playing Lego and making music, and their connection through his drums, the importance of creating the space for conversations, and that there is “no timeline for grief”. Find out more about organisations supporting young people with grief and loss: Wombats Wish - a support group for children in Geelong

In this episode of Room 64, we talk to Tash and Tonya from Lighthouse Friends, a support group for young parents with young children who have experienced the death of their partners. We share the experience of dealing with the journey of grief and life with small children, the value of friends helping each other and “shining a light” in grief. Find out more about Lighthouse Friends via their Facebook page https://www.facebook.com/lighthousefriends

Nurse consultant Melanie Davies from the Barwon Health Palliative Care team talks to Brian MacAfee about challenges facing people with Motor Neuron Disease, his experience living with the disease, and how his family is raising funds to offer practical support for people impacted by MND in the region.

Sisters and clinical nurse consultants Nicole Morrison and Ruth Morrison talk about their role in advocating for palliative patients, as well as the importance of empowering patients and their carers through education.

Tonya Court shares her thoughts and experiences with Jen and Christine about the patient-centred care of the Barwon Health Palliative Care team, the impact of death and grief on her young family, her life changes, and how she is connecting with others by starting up a support group for young women with children whose partners have died, called “Lighthouse Friends”.

As part of Dying To Know Day, Libby Maloney from Natural Grace Holistic Funerals in conversation with Barwon Health Palliative Care clinical nurse consultant Mel Davies, reflecting on end-of-life, and the importance of building confidence in families to honour the lives of the person they love through end-of-life planning. Featuring the music “Go” from Torquay singer/songwriter Gary Banks album “Live at the Courthouse”.

In this episode of Room 64, we acknowledge NAIDOC Week with Deeanna's story about her mum Mary, both proud indigenous women, and their experience in the Palliative Care Unit at Barwon Health. Deeanna shares her mum's story of life and death, and how as a family they were able to say goodbye to Mary in their own home with love, flowers and a beautifully hand-painted coffin, according to Mary's wishes.

As part of Palliative Care Week, Barwon Health chief executive Frances Diver talks about the role of palliative care in the wider organisation, as well as the importance of encouraging conversations in the community about death and dying.

As part of Palliative Care Week, we acknowledge the “It's more than you think!” campaign and highlight Barwon Health Palliative Care's “Have a Go” program. This episode features conversations with Nicky Craig from Wee Skitters and Tamika Cefai from Diamond Castings, as Nicky talks about how the simple act of making bears for others from the clothes of their loved ones has enabled her to acknowledge the experience of her grandmother in palliative care. Tamika shares the strength she gains from the memory of her sister and the pleasure she gets from the stories of the people that place their trust in her hands as she crafts amazing hand castings. Interviewed by Christine Brooks Facilitator of Room 64 and Jen Walsh Palliative Care Volunteer Co-ordinator.

In line with Advance Care Planning Week, Marilyn Dolling talks about how the death of her husband Roger showed the value of Advance Care Planning, spending time with him in Barwon Health’s Palliative Care Unit, and the importance of family. Interviewed by Christine Brooks and Jen Walsh.

Palliative care nurse Jonathan Muller shares his perspective on providing end-of-life care, his willingness to spent time with people in raw, emotional moments, and the importance of exposing healthcare workers to the reality of palliative care.

Barwon Health's palliative care co-director Dr Ian Grant shares experiences about specialising in end-of-life care, and why he decided to work as a doctor looking after people rather than treating diseases.

Palliative Care Unit volunteer co-ordinator Jen Walsh shares her story about understanding death as a child, finding the right ways to talk about death as an adult, and her experiences working with people in palliative care.

Clinical nurse consultant Jill Carter talks about her experiences with palliative care, and how Barwon Health is able to tailor end-of-life care and experiences to meet the individual needs of a patient.

The late Ian Binding, his partner Kathryn, and their teenage son Jason talk about facing death and experiencing the reality of palliative care as a young family.

The Room 64 podcast returns with the late Josie Reed describing how her life changed after her cancer diagnosis, including her final six years with her husband and gaining a new perspective on palliative care.

Jacqui White joins the discussion to talk about the future of end-of-life care as Barwon Health's palliative care program manager, the discomfort most people experience when discussing death, and how to involve and engage the community with a better understanding of dying.Presented by Christine Brooks and Dominic BlackProduced by Christine Brooks, Jen Walsh and Dominic BlackSpecial thanks to Jill Carter, Melanie Davies, Dr Ian Grant, Jonathan Muller, Sue Ritter, Jacqui White and the Barwon Health Palliative Care Unit.Thanks also to Dianne Johnston for transcribing all the interviews.

Sue Ritter discusses her late husband Pete's terminal illness, the process of deciding together to move him into palliative care, and balancing her role as a carer and a wife.Music in Part 3: CandlelightFrom the album Grab BagBy Jahzzarhttp://www.betterwithmusic.com/projects/grab-bag/Used under Creative Commons ShareAlike 4.0 International (CC BY-SA 4.0)https://creativecommons.org/licenses/by-sa/4.0/legalcodePresented by Christine Brooks and Dominic BlackProduced by Christine Brooks, Jen Walsh and Dominic BlackSpecial thanks to Jill Carter, Melanie Davies, Dr Ian Grant, Jonathan Muller, Sue Ritter, Jacqui White and the Barwon Health Palliative Care Unit.Thanks also to Dianne Johnston for transcribing all the interviews.

Clinical nurse consultant Mel Davies talks about some misconceptions of end-of-life care, how people view death and dying, and what it means to care for people with a terminal illness.Presented by Christine Brooks and Dominic BlackProduced by Christine Brooks, Jen Walsh and Dominic BlackSpecial thanks to Jill Carter, Melanie Davies, Dr Ian Grant, Jonathan Muller, Sue Ritter, Jacqui White and the Barwon Health Palliative Care Unit.Thanks also to Dianne Johnston for transcribing all the interviews.

Christine Brooks shares her experiences in Room 64, where her mother Evelyn spent her final three weeks in palliative care. Christine discusses the way they spent Evelyn's final days together, her interactions with Barwon Health staff, and preparing for the death of a loved one.Presented by Christine Brooks and Dominic BlackProduced by Christine Brooks, Jen Walsh and Dominic BlackSpecial thanks to Jill Carter, Melanie Davies, Dr Ian Grant, Jonathan Muller, Sue Ritter, Jacqui White and the Barwon Health Palliative Care Unit.Thanks also to Dianne Johnston for transcribing all the interviews.Music in Part 1: ArcticPodington Bearsoundofpicture.comUsed under license (license holder Michael Black)