Podcasts about Palliative care

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Best podcasts about Palliative care

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Latest podcast episodes about Palliative care

For the Life of the World / Yale Center for Faith & Culture
How to Die Well / Lydia Dugdale (From the Archives)

For the Life of the World / Yale Center for Faith & Culture

Play Episode Listen Later Jul 30, 2026 11:27


Why don't more doctors talk about death? Dr. Lydia Dugdale has been asking this question since she was a medical student. She is the Silberberg Professor of Medicine and directs the Center for Clinical Medical Ethics, and two books on how we die, including "The Lost Art of Dying." "Most medical professionals today are very unpracticed at talking to patients about their mortality," she says. Not only unpracticed, but even themselves afraid. In this bonus clip from Episode 232 with Macie Bridge, Dugdale traces the path from that early perplexity on the wards to the ars moriendi, the medieval art of dying, grounded in the idea that dying is part of living, so if you want to die well you have to live well. Lydia comments on the emergence of palliative care and the way it let physicians hand conversations about death to specialists; the doctor who inherited the priest's old place at the threshold between life and death; the death anxiety clinicians carry without examining; virtue as preparation for dying, and community as the other half of living well; the unrepresented patients of New York City who die alone; and a grumpy old man, hospitalized for 20 years, who wept when she read aloud what she had written about him. Episode Highlights “Most medical professionals today are very unpracticed at talking to patients about their mortality.” “we are really the intermediaries between life and death, I'm not saying we're priests, but that used to be the role of the priest. And so it is now the role of the physician. “If you want to die well, you have to live well.” We have to be all in or we end up like all of these patients here in New York City who have no one that I can reach out to as they're dying. “He started weeping and he said, someone finally saw me. Someone finally saw me. I've been in this hospital for 20 years and I didn't think anyone ever saw me.” About Lydia Dugdale Lydia Dugdale is a physician and medical ethicist who has spent fifteen years asking why medicine finds death so hard to talk about. She is the Silberberg Professor of Medicine at Columbia, directs the Columbia Center for Clinical Medical Ethics, and co-directs clinical ethics at NewYork-Presbyterian Milstein Hospital, where she still sees patients. She edited "Dying in the Twenty-First Century" and wrote "The Lost Art of Dying," a modern ars moriendi. She trained at the University of Chicago and Yale-New Haven Hospital, holds a master's in ethics from Yale Divinity School, and in 2025 founded the nonprofit Heal the Nation. Helpful Links and Resources “Dying Alone,” the full Episode 232 with Lydia Dugdale and Macie Bridge: https://faith.yale.edu/media/dying-alone Lydia Dugdale's website: https://lydiadugdale.com/ The Lost Art of Dying: Reviving Forgotten Wisdom, Lydia Dugdale's book: https://www.harpercollins.com/products/the-lost-art-of-dying-ls-dugdale Dying in the Twenty-First Century, edited by Lydia Dugdale: https://mitpress.mit.edu/9780262534598/dying-in-the-twenty-first-century/ Columbia Center for Clinical Medical Ethics, which Dugdale directs: https://www.vagelos.columbia.edu/departments-centers/columbia-center-clinical-medical-ethics Columbia Center for Clinical Medical Ethics on X: https://x.com/columbia_ccme Ars moriendi, the medieval art of dying, at the Morgan Library and Museum: https://www.themorgan.org/blog/new-acquisition-ars-moriendi-blockbook Ars moriendi block book, 1475, at the Library of Congress: https://www.loc.gov/item/2021666798/ Lydia Dugdale at the Yale Center for Faith and Culture: https://faith.yale.edu/people/lydia-dugdale-md Show Notes Death anxiety in medicine Why doctors avoid frank conversations about mortality Palliative care's arrival as a discipline, and what it made possible Real gains in symptom relief for the sick and the dying The unintended cost: death conversations outsourced to specialists Clinicians as intermediaries between life and death The priest's old place at the threshold, now the physician's Nurses at the bedside, doctors calling the shots on treatment Existential questions physicians have never worked through A colleague who would never tell a patient they were dying, out of her own fear of death Digging into how other times and places handled mortality Ars moriendi: the medieval genre on the preparation for death Illustrated editions made for people who could not read Fifteen years and two books spent reviving the art of dying Living well as the precondition of dying well Virtue as preparation: hope, patience, joy against bitterness and despair The role of community in dying well New York's unrepresented patients, dying alone A reader estranged from his adult children who committed to years of repair after the book Relationship as ongoing work: rupture, forgiveness, iron sharpening iron A long-hospitalized patient nobody wanted assigned to their team Modeling care for young doctors, and being verbally destroyed in front of them Loneliness of the neighbor, the colleague, the checkout person Practice as the only way to get better at it #ForTheLifeOfTheWorld #LydiaDugdale #TheLostArtOfDying #ArsMoriendi #MedicalEthics #DyingWell #Loneliness #EndOfLifeCare Production Notes This podcast featured Lydia Dugdale Edited and Produced by Evan Rosa Hosted by Evan Rosa Production Assistance by Noah Senthil A Production of the Yale Center for Faith & Culture at Yale Divinity School https://faith.yale.edu/about Support For the Life of the World podcast by giving to the Yale Center for Faith & Culture: https://faith.yale.edu/give

OffScrip with Matthew Zachary
Your Benefits May Vary: Rebecca Bloom

OffScrip with Matthew Zachary

Play Episode Listen Later Jul 28, 2026 41:50


Rebecca Bloom is a former employee benefits and executive compensation attorney who spent more than 25 years helping women navigate cancer, work, insurance, disability coverage, and financial survival. She is the founder and author of When Women Get Sick, a book built from decades inside the legal, workplace, and patient advocacy systems most people only discover after diagnosis.Bloom started in Big Law at Simpson Thacher handling employee benefits and compensation work she originally chose to pay off student loans. Then her mother was diagnosed with breast cancer. Suddenly the language she used in corporate law offices became the language of survival at home. Explanation of benefits forms. Coverage disputes. Second opinions. Disability protections. Medical leave. Bills no one could explain.That collision changed the direction of her life.In this episode, Bloom explains how serious illness quietly turns patients into unpaid administrators managing paperwork, logistics, financial risk, and emotional labor while trying to survive treatment. She breaks down how employer based health insurance shapes nearly every aspect of cancer care in America and why women often carry the invisible burden of protecting everyone else from discomfort while they themselves fall apart.The conversation digs into workplace power, the illusion of the healthcare “safety net,” caregiver exhaustion, and the class divide hiding underneath patient empowerment culture. Bloom explains why educated, insured women with resources still struggle to navigate healthcare bureaucracy and what happens to patients without those advantages.This episode explores cancer care, health insurance, employee benefits, patient advocacy, workplace protections, caregiving, and the structural incentives that force sick people to become project managers of their own survival.RELATED LINKSRebecca BloomWhen Women Get SickBay Area Cancer ConnectionsSimpson Thacher & BartlettFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Health Focus
Understanding palliative care

Health Focus

Play Episode Listen Later Jul 28, 2026 3:58


This week, Bobbi Conner talks with MUSC's Dr. Conrad Williams about palliative care for children and adults.

palliative care musc conrad williams bobbi conner
Town Hall Seattle Science Series
265. Psychedelic Salon: Psychedelics & Grief With Dr. Sunil Aggarwal, Laura Sullivan Cassidy, and April Pride

Town Hall Seattle Science Series

Play Episode Listen Later Jul 27, 2026 74:57


Grief is one of the most universal yet isolating experiences we endure—and psychedelics may offer a path through it. This Salon explores how substances like psilocybin, MDMA, and 5-MeO-DMT are being used to support those navigating loss, whether from death, identity shifts, or life transitions. This session sheds light on how altered states can help us reconnect to love, soften the sharp edges of sorrow, and reorient to a life forever changed. Attendees will gain insight into the science and integration practices that support emotional processing and meaning-making in the context of grief. Dr. Sunil Aggarwal is a physician in hospice and palliative medicine, physical medicine and rehabilitation, and a medical geographer. Dr. Aggarwal's primary clinical work is as an Integrative Pain, Palliative Care, and Rehabilitation Physician in private practice at the AIMS Institute in Seattle, Washington, and as an on-call Palliative and Hospice Physician within a Puget Sound–based healthcare system. He has a petition to reschedule psilocybin that is currently under review at the US Department of Health and Human Services. Dr. Aggarwal's medical geography scholarship focuses on the geographies of access, delivery, and development of cannabinologic and psychedelic integrative medicine—particularly as these relate to pain management, hospice and palliative medicine, and rehabilitation services. After two decades in journalism and content direction, Laura Sullivan Cassidy (she/her) used the early pandemic years to begin building a new career serving communities in grief and loss. She's trained as a grief work facilitator, creative coach, and death doula, and is employed at Recompose, the Seattle-based green funeral home known for pioneering the process of human composting. Her role at Recompose involves outreach, community, and client work—specifically with communities for whom a death is approaching, either via terminal diagnosis or hospice care. Laura writes a Substack called Griever's Ball and offers creative expression, listening groups, and death awareness workshops. — Psychedelic Salon: Cultivating Conscious Connections Join Seattle-based psychedelics educator and podcast host April Pride in a dynamic series co-produced with Town Hall Seattle. Psychedelic Salon explores the transformative potential of psychedelic medicines through engaging conversations, expert panels, and interactive community discussions. Rooted in scientific evidence, each event highlights unique themes—including grief, seniors, menopause, and more—emphasizing their role in mental health, spiritual growth, and personal optimization. Designed to be inclusive and insightful, this series invites attendees of all backgrounds to discover how psychedelics can foster profound connections, healing, and well-being. About April Pride April Pride is a Seattle-based creative entrepreneur and harm reduction advocate with over two decades of experience building brands at the intersection of lifestyle, cannabis, psychedelics, and women's health. Her work has been featured in The New York Times, Forbes, Vice, and The Guardian. April is the founder of SetSet, the world's first clinician-approved woman-focused platform for safe, accessible psychedelic integration. To learn more, follow April on Substack – aprilpride.substack.com

The Disrupted Podcast
Presence & Consistency

The Disrupted Podcast

Play Episode Listen Later Jul 27, 2026 37:52


What if the most powerful growth strategy in hospice and primary care had nothing to do with your clinical protocols, your technology stack, or your marketing budget — and everything to do with who shows up, and how often? In this episode of The Disrupted Podcast, Scott Middleton — founder and Chief Disruption Officer of Your Health — unpacks the real-world lessons shaping how your Health is staffing, growing, and rebuilding trust as it integrates the newly merged TCPA and Providence Care organizations. Scott spent the week in the field — Monroe, Georgia; Beaufort, South Carolina; Atlanta and beyond — sitting in care team meetings, talking to nurses, watching exercise classes, and rethinking everything from staffing ratios to personality matching. What he found is both a warning and a blueprint. In this episode: Why minor service failures — a nurse who didn't show up once — can cost you an entire facility relationship, and what it actually takes to earn it back The strategic case for pulling a nurse off a shared caseload and planting her full-time in a single building — even when the numbers don't fully justify it yet The story of a nurse so embedded in one facility that an administrator told Your Health: "I will cut you if you move her" How DISC personality profiles should determine which staff member walks into which building — and why getting it wrong creates friction that kills referrals Why the best talent you'll ever hire is already living in the community you serve — and why your recruiters will never find them on Indeed The centralize-then-decentralize model Your Health deploys every time it launches something new — and why it's the only way to scale without losing quality If you lead a care team, run a hospice program, manage a building, or are trying to grow in any direction in healthcare right now — this episode is your field guide. www.YourHealth.Org

The Workr Beeing Podcast
Gain Balance With Miriam Stewart

The Workr Beeing Podcast

Play Episode Listen Later Jul 23, 2026 36:02


In this episode, we had the honor of talking to Miriam Stewart, the Chief Well-being Officer at the Children's Hospital of Philadelphia and attending physician in the Justin Michael Ingerman Center for Palliative Care. In our conversation, she shares her insights on balancing work and life, supporting flexibility, and leading healthy teams. Want More? Follow Miriam Steward on LinkedIn Check out her workplace, CHOP Order your copy of “Leading for Wellness” Listen on Apple Podcasts Listen on Spotify Follow Patricia and Katina on LinkedIn Sign up to never miss a Workr Beeing update Don't forget to subscribe and rate our show! The post Gain Balance With Miriam Stewart appeared first on Workr Beeing | The Science Of Thriving Workplaces.

Jungianthology Podcast
Jung in the World | Synchronicity at the Deathbed: Jung and Meaning at the End of Life with Daniel Ross

Jungianthology Podcast

Play Episode Listen Later Jul 22, 2026 47:29


Carl Jung called it “an acausal connecting principle” — but for Dan Ross, a Jungian analyst working in hospice care, synchronicity isn’t just theoretical. In this episode, Dan reveals what thirty years of end-of-life work taught him about Jung’s most misappropriated theory, its roots in Jung’s relationship with physicist Wolfgang Pauli, and why studying synchronicity seems to produce more of it. This episode is rich with poignant examples blended that will leave you thinking differently about how synchronicity works in your own life. Daniel Ross, RN, PMHNP, MSN, MBA has been a nurse for 40 years and in hospice for over 30. As a Psychiatric Mental Health Nurse Practitioner, he brings both a medical and psychiatric experience to the field of end-of-life care. He is a Jungian Analyst at the C. G. Jung Institute of Chicago where he has been Director of Training in the Analyst Training Program and Co-Director of the Jungian Psychotherapy Program and Jungian Studies Program. Dan works in the field of Hospice and Palliative Care and is in private practice as a psychotherapist in Chicago. Patricia Martin, MFA, is the host of Jung in the World. A noted cultural analyst, she applies Jungian theory to her work as a researcher and writer. Author of three books, her work has been featured in the New York Times, Harvard Business Review, Huffington Post, and USA Today. She holds an MFA in writing and literature from Bennington College and an MA in cultural studies at the University College, Dublin (honors). In 2018, she completed the Jungian Studies Program at the C. G. Jung Institute Chicago where she is a professional affiliate. A scholar in residence at the Chicago Public Library, for the last decade she's been studying the digital culture and its impact on the individuation process. Patricia travels the world giving talks and workshops based on her findings and has a private consulting practice in Chicago. Be informed of new programs and content by joining our mailing list! Support this free podcast by making a donation, becoming a member of the Institute, or making a purchase in our online store! Your support enables us to provide free and low-cost educational resources to all. This podcast is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License. You may share it, but please do not change it, sell it, or transcribe it.Executive Producer: Ben LawHosts: Patricia Martin, Judith Cooper, Daniel Ross, Adina Davidson, and Raisa Cabrera2025-2026 Season Intern: Zoe KalawMusic: Peter Demuth

Primary Care Knowledge Boost
An approach to nausea and vomiting in palliative care

Primary Care Knowledge Boost

Play Episode Listen Later Jul 22, 2026 31:16


Doctors Lisa and Sara talk to Palliative Care Consultants Doctors Cat Barrat Ayres and Cat MacDermott about nausea and vomiting in palliative patients. We talk through their overview of assessing patients with these symptoms, tips to work out causes before considering medication options. A nice section on avoiding common prescribing pitfalls towards the end. A useful episode for all of us in primary care helping to manage palliative patients with these often distressing symptoms.  Resources: Greater Manchester Medicines Management Group palliative symptom control guidelines: https://gmmmg.nhs.uk/wp-content/uploads/2025/05/Palliative-Care-Pain-and-Symptom-Control-Guidelines-DIGITAL.pdf NICE Clinical Knowledge Summaries, Palliative Care - Nausea and Vomiting: https://cks.nice.org.uk/topics/palliative-care-nausea-vomiting ___ If you have any questions, suggestions, concerns or want any particular areas covered, leave a comment on our survey here: https://pckb.org/feedback Or email us at: primarycarepodcasts@gmail.com ___ Given that this episode was recorded with specific clinicians, the information discussed may not be applicable elsewhere and it is important to consult local guidelines before making any treatment decisions.  The information presented is the personal opinion of the healthcare professional interviewed and might not be representative to all clinicians. It is based on their interpretation of current best practice and guidelines when the episode was recorded. Guidelines can change; To the best of our knowledge the information in this episode is up to date as of it's release but it is the listeners responsibility to review the information and make sure it is still up to date when they listen. Dr Lisa Adams, Dr Sara MacDermott and their interviewees are not liable for any advice, investigations, course of treatment, diagnosis or any other information, services or products listeners might pursue as a result of listening to this podcast - it is the clinicians responsibility to appraise the information given and review local and national guidelines before making treatment decisions. Reliance on information provided in this podcast is solely at the listeners risk. The podcast is designed to be used by trained healthcare professionals for education only. We do not recommend these for patients or the general public and they are not to be used as a method of diagnosis, opinion, treatment or medical advice for the general public. Do not delay seeking medical advice based on the information contained in this podcast. If you have questions regarding your health or feel you may have a medical condition then promptly seek the opinion of a trained healthcare professional.

TCN Talks
This Global Healthcare Lesson Could Change America | Part One

TCN Talks

Play Episode Listen Later Jul 22, 2026 33:47 Transcription Available


What can American healthcare learn from global healthcare?  In our latest episode, Dr. Mark Stoltenberg, Harvard Medical School professor and Massachusetts General Hospital physician, joins Chris Comeaux to explore global healthcare, palliative care, hospice leadership, healthcare innovation, and the future of serious illness care in America.Healthcare leaders often assume innovation requires more money, more technology, or more specialists.  Dr. Stoltenberg argues the opposite, drawing from his work leading global palliative care programs throughout Latin America, the Caribbean, Africa, and other underserved regions.  He shares how resource-limited healthcare systems are pioneering solutions that can improve American healthcare, strengthen the healthcare workforce, and restore compassionate, person-centered care.Together, Chris and Dr. Stoltenberg discuss workforce shortages, Project ECHO, community-based care, volunteerism, family-centered decision-making, healthcare leadership, and why hospice and palliative care must preserve their founding values while continuing to innovate.Through moving patient stories—including a remarkable experience in Belize—they reveal why dignity, compassion, community, and purpose remain healthcare's greatest innovations.If you're a healthcare executive, hospice leader, physician, nonprofit executive, nurse, or business leader, this episode offers practical strategies for improving leadership, building stronger organizations, and delivering more compassionate care.In this episode you'll learn:✔ What America can learn from global healthcare systems✔ Why palliative care is rooted in social justice✔ How healthcare workforce shortages can be addressed creatively✔ Why Project ECHO is transforming healthcare education✔ How community-based care improves patient outcomes✔ Why family and spirituality remain essential to serious illness care✔ How great organizations preserve their mission while scaling innovation

OffScrip with Matthew Zachary
Mission, Margin, and the Women Left Waiting: Vasanta Pundarika

OffScrip with Matthew Zachary

Play Episode Listen Later Jul 21, 2026 42:04


Vasanta Pundarika built her career inside healthcare investment banking before launching Lotuspring, an advisory firm focused on women's health and behavioral health. She spent nearly 20 years advising healthcare systems, treatment providers, and growth stage companies on mergers, financing, and operational strategy while watching the industry repeatedly misunderstand the people it claimed to serve.The conversation starts unexpectedly with anthropology, bread, and language. Vasanta explains how she spent years changing the pronunciation of her own name to make other people comfortable before eventually reclaiming it. That thread opens into a much larger discussion about adaptation, identity, and what institutions quietly train people to tolerate.From there, the discussion moves into behavioral health, women delaying care, and the invisible labor that healthcare business models routinely ignore. During COVID, Vasanta noticed men's behavioral health units refilled faster than women's units. The reason had nothing to do with demand. Women were still home managing caregiving responsibilities, children, aging parents, and households while their own mental health collapsed in the background.The episode examines what happens when healthcare companies become “snazzy big brands” before building real clinical substance underneath. Vasanta describes the tension between mission and margin inside healthcare startups, private equity backed care models, and behavioral health expansion. The conversation pushes on who benefits when healthcare scales aggressively, who absorbs the operational pressure, and how patient trust erodes long before executives notice it on a dashboard.They also discuss patient advocacy culture, anthropology as systems analysis, healthcare capitalism, prior authorization, investor language, and why some clinically excellent companies never survive long enough to scale.RELATED LINKSVasanta PundarikaLotuspringWomen's Health HorizonsSakhi for South Asian SurvivorsNACDPrinceton University Anthropology DepartmentFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

The Disrupted Podcast
Lost In Misinterpretation

The Disrupted Podcast

Play Episode Listen Later Jul 20, 2026 40:42


What if the reason your boss wants you in the office has nothing to do with your productivity — and everything to do with their ego? Scott Middleton admits it: he walked around his 30,000-square-foot corporate office on a Friday afternoon, found nobody, and got irritated. Then he caught himself. The data said his team was productive. The irritation was his ego talking. That moment of self-awareness opens a much bigger conversation about what happens when leaders — in business and in healthcare — stop reading the evidence and start acting on assumption. In this episode of The Disrupted Podcast, Scott and Jamie dig into: Why most CEOs pushing return-to-office mandates are solving for ego, not outcomes — and the New York Times data that proves it How Your Health is shifting from counting patients to measuring risk scores — and why that changes everything about how care teams are built The "legs grow back on January 1st" problem: how the Medicare system loses patient diagnoses every year and why hospice patients often appear healthier right before they die Why misinterpreting hospice rules is putting patients on the wrong track — and costing providers in ways they don't see coming The role of chaplains in advanced care planning, and why getting that right could reduce hospitalizations and change end-of-life outcomes South Carolina's jump from 49th to 26th in healthcare quality rankings — and what it means for the rest of the country Scott closes with a mission statement that's hard to argue with: at 67, he could have retired. He didn't. If this conversation lights something up in you, share it with someone who needs to hear it. www.YourHealth.Org

Breast Cancer Conversations
305. Palliative Care Isn't Hospice: Whole-Person Support at Every Stage of Breast Cancer

Breast Cancer Conversations

Play Episode Listen Later Jul 19, 2026 43:14


Love the podcast? Send us a text!When you're living with breast cancer, the medical team treats the cancer — but who takes care of everything else? The fear that won't quiet down at 2 a.m. The diarrhea you're not sure is "bad enough" to call about. The FMLA paperwork, the school pickup, the light bill, the strange grief that shows up right when everyone expects you to feel grateful.In this episode, host Laura Carfang sits down with Dr. Julia Frydman, palliative care physician and medical director at Thyme Care, and Dr. Stephanie Broussard, director of social work at Thyme Care, to talk about what whole-person cancer support actually looks like — at every stage, from newly diagnosed through survivorship and metastatic disease. Together they unpack how a proactive, interdisciplinary team of nurses, social workers, and physicians closes the gaps that so often get missed, meeting people where they are, on their schedule, whether that's a text, an after-hours call, or simply someone to talk to.Julia and Stephanie share how structured, evidence-based check-ins catch symptoms early (before a small problem becomes an ER visit), how they screen for the emotional distress patients often don't realize they're carrying, and why the transitions in a cancer journey can feel like the rug being pulled out from under you. They tackle one of the biggest misconceptions in cancer care head-on: palliative care is NOT hospice — it's added support at any age and any stage. And they get honest about the things we rarely make space for: the ambivalence of "no evidence of disease," the grief that lives alongside the gratitude, financial toxicity, caregiver burnout, and the particular weight carried by those living with metastatic breast cancer, for whom treatment never ends.This is a warm, practical conversation about being seen, being heard, and knowing you don't have to endure it all alone.In this episode:Why "you don't know what you don't know" is one of the biggest barriers in cancer careProactive check-ins and patient-reported outcomes: catching symptoms before they escalateWhen a symptom is clinically significant — and when it's okay to manage it at homeEmotional distress vs. depression and anxiety: what's normal adjustment, and what needs supportThe grief-and-gratitude paradox of survivorship, and making space for bothFear of recurrence, "no evidence of disease," and the symptom burden that follows patientsHow a nurse/social-work triage team coordinates with your oncology team (not around it)Mental health escalation in action — from a routine call to real-time supportFinancial toxicity, social needs, and caregiver supportWho can access Thyme Care, insurance partnerships, and 50-state licensingMetastatic and life-limiting breast cancer: bearing witness and living with uncertaintyThe truth about palliative care: it adds, it doesn't take awayOutcomes: higher satisfaction, improved symptoms, fewer avoidable hospitalizations, and expanded access to palliative careAbout the guests:Dr. Julia Frydman is a palliative care physician and medical director at Thyme Care, where an interdisciplinary team provides whole-person support to people living with cancer as an extra layer alongside their oncology care.Dr. Stephanie Broussard, DSW, is director of social work at Thyme Care, leading its clinical and non-clinical social support teams, with a background in oncology, palliative care, and behavioral health.About the show: Breast Cancer Conversations is produced by SurvivingBreastCancer.org, a nonprofit providing evidence-based education, emotional support, and well-being resources to everyone touched by breast cancer — at every stage. All of our programs are virtual, online, and 100% free, with a global reach. Learn more at survivingbreastcancer.org.This episode is for educational and emotional-support purposes and is not a substitute for medical advice. Please talk with your own care team about your symptoms and treatment. Eligibility for Thyme Care depends on your insurer, employer, or provider — check their website to see if you're covered.Support the showListener FeedbackIf this episode resonated with you, we invite you to leave a review on Apple Podcasts or Spotify.You can also click the link in the show notes that says "Love this episode? Send us a text" to share feedback.Messages are completely anonymous.If you would like us to follow up directly, please include your email address in your message so we can respond.Latest News: Join our Mailing List - New content drops every Monday! Discover FREE programs, support groups, and resources from SurvivingBReastCancer.org! Become a Breast Cancer Conversations+ Member! Sign Up Now. Enjoying our content? Please consider supporting our work. 

Wellbeing
Oliver Christen - End-of-life choices

Wellbeing

Play Episode Listen Later Jul 19, 2026 53:36


In this episode, we speak with Oliver Christen, author of As She Chose: A Conscious End to a Life Well Lived. Oliver shares the deeply personal story behind his book, which chronicles his mother's decision to approach the end of her life with dignity, intention, and presence. Drawing on his experiences as a son, traveller, entrepreneur, and student of meditation, Oliver explores themes of choice, mortality, spirituality, family, and what it truly means to live—and die—well. This thoughtful conversation offers insight, compassion, and a fresh perspective on one of life's most profound journeys.See omnystudio.com/listener for privacy information.

Ask the Vet
Compassionate Palliative Care: A Conversation with Dr. Wendy McCulloch, Veterinarian and Founder of Pet Requiem

Ask the Vet

Play Episode Listen Later Jul 15, 2026 52:59 Transcription Available


Caring for a pet at the end of their life is one of the hardest parts of loving a them. In this episode of Ask the Vet, Dr. Ann Hohenhaus welcomes Dr. Wendy McCulloch, veterinarian and founder of Pet Requiem, to discuss quality of life, difficult decisions, and how to find compassionate support.Topics include:What seeing a pet in their home environment may reveal in contrast to seeing them in a traditional clinic settingWhat Pet Requiem does and how the practice came to beWhat palliative care for pets looks like and how it can help pets and their families make the most of their time togetherTips to assess a pet's quality of lifeHow to approach and navigate discussions about euthanasiaWhat a peaceful in-home euthanasia experience looks like and how to prepare for itNavigating grief and the role of rituals, keepsakes, and memorials in providing comfortAlso on this month's show:Trending animal story about Romeow, a stray orange tabby cat who made an unexpected appearance during an outdoor performance of “Romeo and Juliet”Animal news, including the story of how a new study challenges the common assumption that cat ownership automatically worsens asthma in childrenPet Health Listener Q&A: What sudden movements during deep sleep may mean; why cats may drool while kneading surfaces; and what to do if your pet gets sprayed by a skunkDo you have a pe t health question for Dr. Hohenhaus? Email AskTheVet@amcny.org to have your question answered on Ask the Vet.

OffScrip with Matthew Zachary
You Shouldn't Need AI to Survive Cancer: Brad Power

OffScrip with Matthew Zachary

Play Episode Listen Later Jul 14, 2026 42:00


Brad Power spent years advising major corporations on systems design, process engineering, and decision making before lymphoma shoved him into the patient side of American healthcare. Instead of accepting the experience at face value, he started reverse engineering the machinery around cancer itself. Brad is the founder of Cancer Patient Lab and Open Cancer AI, two projects built around a blunt reality most patients discover too late: the healthcare system rewards people who know how to navigate it. Everyone else risks getting steamrolled by information asymmetry, insurance barriers, administrative friction, and institutional incentives designed around efficiency instead of human survival.The conversation starts with Harvard Business Review and Tumblr blogs before moving directly into the darker architecture underneath modern cancer care. Power explains how hospitals optimize for throughput, how insurance companies reward operational consistency over personalized medicine, and why many patients quietly end up needing a crash course in oncology, reimbursement policy, and behavioral psychology while fighting for their lives.The discussion digs into CAR-T therapy, functional testing, AI assisted decision support, and the growing collision between personalized medicine and standardized care pathways. Power argues that engaged patients often get better outcomes because they learn how to push for off guideline treatments, contest denials, and ask smarter questions. The counterpoint lands hard: patients should never have needed to become experts in the first place.The episode also explores the cultural consequences of AI entering cancer care. OpenAI advertising, data privacy, trust erosion, pharmaceutical influence, and “agentic AI” all collide inside a healthcare economy already drowning in distrust. Power sees artificial intelligence as a force multiplier for patient literacy and access. The larger system still decides who gets approved, who gets delayed, and who gets left behind.By the end, the conversation lands exactly where modern healthcare keeps forcing people to land: survival increasingly depends on learning how the machine works before the machine works on you.RELATED LINKSBrad PowerCancer Patient LabOpen Cancer AIHarvard Business ReviewResearch to the PeopleCAR T Cell TherapyFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Regionaljournal Zentralschweiz
Zug: Werbebild aus den 1940er-Jahren kommt zum Vorschein

Regionaljournal Zentralschweiz

Play Episode Listen Later Jul 13, 2026 7:03


Eine 10 Meter grosse Nähmaschine der Firma Bernina ist im Moment an einer Hausmauer in der Stadt Zug zu sehen. Die Werbung wurde 1941 gemalt und verschwand sieben Jahre später in einem schmalen Zwischenraum, weil daneben ein Neubau entstand. Bald ereilt sie wieder dasselbe Schicksal. Weiter in der Sendung: · Die Kantone Uri und Schwyz verstärken ihre Zusammenarbeit im Bereich der Palliative Care. · In einem Bordell in Küssnacht im Kanton Schwyz kam es zu einem Todesfall, die Ermittlungen laufen. · Die Luzerner Polizei konnte zwei Motorradfahrer identifizieren, die im Mai 2025 mit massiv überhöhter Geschwindigkeit und ohne Kontrollschilder unterwegs gewesen sind.

Regional Diagonal
Regional Diagonal vom 13.07.2026

Regional Diagonal

Play Episode Listen Later Jul 13, 2026 5:51


Eine 10 Meter grosse Nähmaschine der Firma Bernina ist im Moment an einer Hausmauer in der Stadt Zug zu sehen. Die Werbung wurde 1941 gemalt und verschwand sieben Jahre später in einem schmalen Zwischenraum, weil daneben ein Neubau entstand. Bald ereilt sie wieder dasselbe Schicksal. Alle Themen der heutigen Sendung: - Crans-Montana erwartet trotz Brandkatastrophe eine stabile Saison. - Die Kantone Uri und Schwyz verstärken ihre Zusammenarbeit im Bereich der Palliative Care. - Die Kantonspolizei Aargau will mehr Luftunterstützung: Eine Drohnenflotte soll die Polizei unterstützen. - In Zug ist ein Werbebild aus den 1940ern zum Vorschein gekommen.

Breast Cancer Conversations
304. Palliative Care Is Not Giving Up: Patients Living With MBC Share What It Really Means

Breast Cancer Conversations

Play Episode Listen Later Jul 12, 2026 36:02


Love the podcast? Send us a text!Palliative care is one of the most misunderstood parts of cancer care. Many people hear the term and think it means hospice, end-of-life care, or giving up. But palliative care, also called supportive care, can be offered alongside active cancer treatment and is focused on improving quality of life.In this episode of Breast Cancer Conversations, we hear from Kacie Flaherty, Joyce Garber, Paula Bouckhuyt, Hillary Stackpole, and Aimee Hoes, who are living with metastatic breast cancer about their unique experiences with palliative care.  Some were offered it early. Some had to ask for it. Some learned about it from other patients. Others are still trying to access the support they need.Together, we explore what palliative care really looks like: pain management, side effect support, emotional care, medication questions, care coordination, and whole-person support.This episode is a powerful reminder that palliative care is not about giving up. It is about helping people live with more comfort, support, dignity, and quality of life.Resources: Listeners looking for a palliative care provider can search the Palliative Care Provider Directory through GetPalliativeCare.org.Support the showListener FeedbackIf this episode resonated with you, we invite you to leave a review on Apple Podcasts or Spotify.You can also click the link in the show notes that says "Love this episode? Send us a text" to share feedback.Messages are completely anonymous.If you would like us to follow up directly, please include your email address in your message so we can respond.Latest News: Join our Mailing List - New content drops every Monday! Discover FREE programs, support groups, and resources from SurvivingBReastCancer.org! Become a Breast Cancer Conversations+ Member! Sign Up Now. Enjoying our content? Please consider supporting our work. 

OffScrip with Matthew Zachary
Standard Deviation S2 E5: Pitch Imperfect

OffScrip with Matthew Zachary

Play Episode Listen Later Jul 9, 2026 10:02


By the time the paper hit version 71, Dr. Nirosha Murugan had already done the hard part. The data were real. The experiment had worked. A team of researchers had used a wearable bioreactor to trigger limb regeneration in frogs, a result with obvious implications for regenerative medicine. But the science still wasn't getting over the line. The problem wasn't the work. It was the translation.On this episode of Standard Deviation, host Oliver Bogler talks with Dr. Nirosha Murugan, a biophysicist and Tier II Canada Research Chair in Tissue Biophysics at Wilfrid Laurier University, about what happens when a scientist working at the edges of quantum biology, bioelectricity, and tissue regeneration runs headfirst into the unwritten rules of academic publishing. Murugan's research asks biologists to think beyond molecules and chemistry alone, and to consider the physical signals, electromagnetic fields, and invisible forces that shape development and healing. It is ambitious science. It is also exactly the kind of work that can make gatekeepers nervous.Bogler follows Murugan through the less glamorous part of discovery: the hidden curriculum of getting a paper published, securing scientific credibility, and learning that data do not simply “speak for themselves.” Murugan describes how jargon buried the pitch of her own work, how a lack of editorial support left her at a disadvantage, and how the JEDI program at the Life Science Editors Foundation paired her with a former journal editor who taught her how to structure a manuscript, write a cover letter, and survive peer review.The result was publication in Science Advances, but the larger story is about power. Who gets taught the rules of biomedical research. Who has access to grant writers, editors, and institutional polish. Who is left to brute-force their way through the maze. And how one scientist, having finally found the map, now makes sure her own trainees do not have to learn it the hard way.RELATED LINKSDr. Nirosha Murugan⁠Wilfrid Laurier University⁠Life Science Editors Foundation⁠JEDI Program⁠Science Advances paper on limb regeneration⁠FEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

OffScrip with Matthew Zachary
The Doctor Will Leave You Now: Jessica Peatross

OffScrip with Matthew Zachary

Play Episode Listen Later Jul 7, 2026 41:44


Dr. Jess Peatross trained in conventional medicine and worked as a hospitalist before she started questioning why so many chronically ill patients kept getting worse inside the healthcare system she trusted. Her perspective carries weight because she spent years following every protocol exactly as taught before walking away from hospital medicine entirely.Raised in Huntington, West Virginia during the opioid crisis, she entered medicine believing the system existed to heal people. Instead, she found hospitals driven by billing codes, liability management, and pharmaceutical dependence while patients with chronic illness, autoimmune disease, mold exposure, and chronic pain cycled endlessly through appointments and prescriptions.Dr. Peatross explains what pushed her toward functional medicine, cannabis therapy, and prevention focused care after watching patients improve only after leaving conventional treatment pipelines behind. The conversation tackles physician burnout, chronic illness stigma, healthcare incentives, and the growing collapse of trust between patients and institutions.The discussion also moves into supplements, environmental toxins, ultra processed food, and the uncomfortable economics behind keeping people permanently sick but continuously billable. Dr. Peatross describes the professional backlash that comes with challenging medical orthodoxy while Matthew connects her experience to the broader erosion of public trust across American healthcare.Together they unpack what happens when patients stop believing the system can help them and start searching elsewhere for answers.RELATED LINKSDr. Jess PeatrossInstagramMarshall UniversityBrave New WeedFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

GeriPal - A Geriatrics and Palliative Care Podcast
Who Should Deliver Palliative Care in Liver Disease? Chris Woodrell, Manisha Verma, Marie Bakitas

GeriPal - A Geriatrics and Palliative Care Podcast

Play Episode Listen Later Jul 2, 2026 50:08


Who's better at delivering palliative care to patients with liver disease: palliative care specialists, or hepatologists who have received liver disease-specific palliative care training?  That's the question we take a deep dive into on this week's podcast by breaking down the PAL-LIVER trial, published this year in JAMA Internal Medicine. We've invited three of the trial's authors, Manisha Verma, Chris Woodrell, and Marie Bakitas, to discuss this cluster-randomized clinical trial spanning 19 U.S. medical centers. We'll discuss: Why was this trial done? Do we really need to run a separate palliative care trial for every single organ disease? What kind of specialized palliative care training did the hepatologists receive? What exactly is meant by the finding that hepatologists were not statistically superior, but were shown to be statistically non-inferior? Lastly, we discuss whether these results change anyone's practice, and whether healthcare systems should decide which type of palliative care model to fund (primary vs. specialty.) —- References we discussed Developing palliative care interventions in liver disease using formative and summative qualitative evaluation. Hepatology 2026  Palliative Care for Advanced Liver Disease: Hepatology and Palliative Care Specialists Experiences. J Pain Symptom Manage 2026     

Raise the Line
Creating Alignment On Improving End Of Life Care: Dr. Shoshana Ungerleider, Founder & President of End Well

Raise the Line

Play Episode Listen Later Jul 2, 2026 25:12


In the United States, nearly 70% of people say they want to die at home, yet the majority still die in medical settings, often after receiving care that may not match their goals and values. Closing that gap between preference and reality is at the heart of the work being done by End Well, a nonprofit dedicated to transforming how we think about, plan for, and experience the end of life. "The gap isn't about people wanting the wrong things. It's that our culture and our incentives aren't aligned with helping those wishes actually happen at the end of life,” says Dr. Shoshana Ungerleider, End Well's founder and president.  As Dr. Ungerleider explains to Raise the Line host Michael Carrese, End Well sponsors an annual symposium and year-round activities to bring together clinicians, patients, caregivers, and innovators to improve that alignment. Key steps include earlier integration of palliative care, allowing providers time for listening and goal setting with patients, and normalizing conversations about what matters most to people. This compelling conversation on reframing end of life care also covers how to bring wonder, joy, and hope into end-of-life conversations, and End Well's work to change how death is portrayed in the media. Mentioned in this episode:End Well If you like this podcast, please share it on your social channels. You can also subscribe to the series and check out all of our episodes at www.osmosis.org/podcast

HPNA Podcast Corner
Ep. 60 - Breath, Boundaries, and Letting Go: Ventilation Discontinuation in Rural Long-Term Care

HPNA Podcast Corner

Play Episode Listen Later Jul 1, 2026 21:42


Prolonged mechanical ventilation in rural long-term care settings brings a unique set of clinical, ethical, and logistical challenges for care teams, residents, and their families. In this episode, we explore the realities of ventilator use in rural long-term care environments, where limited resources and geographic barriers can complicate care decisions and delivery. We also take a thoughtful look at the emotional and practical impact of ventilator discontinuation, highlighting the experiences of those directly affected. Join us for a nuanced conversation that sheds light on an often-overlooked aspect of long-term care and the difficult decisions that come with it.      Von Vitto, DNP, CNP, AGNP-C, ACHPN® Von Vitto, DNP, CNP, AGNP-C, ACHPN® is a board-certified adult-gerontology nurse practitioner and has advanced certification as a hospice and palliative nurse. He currently serves as a nurse practitioner at HospiceCare in The Berkshires, Inc. in Berkshire County, MA. Von brings years of experience in delivering geriatric and specialty palliative care in skilled nursing facilities and to community-dwelling patients. He is passionate about navigating serious illness conversations and the provision of goal-concordant care. Von has also mentored and precepted nurse educator and nurse practitioner students.    Julie Thurston Julie Thurston is a board-certified Adult-Gerontology Primary Care Nurse Practitioner with advanced certification in Hospice and Palliative Care who currently serves as a key member of the leadership team at HospiceCare in The Berkshires, Berkshire County, Massachusetts. In her role, Julie provides comprehensive patient and family-centered care, supports her organization in ongoing performance improvement projects, and mentors her staff in various professional development opportunities. During her tenure, Julie has embraced diverse roles including RN Case Manager, RN Weekend/Evening Triage, and Staff Educator. Her commitment to the provision of high-quality care across the continuum earned her an Integritus Healthcare Profiles in Care award. Additionally, she shares her expert knowledge and experience providing education throughout the local community for healthcare providers across multiple disciplines. Julie has been an active member of the Hospice and Palliative Nurses Association since 2010.   Brett Snodgrass, DNP, FNP-C, ACHPN®, FAANP Dr. Brett Snodgrass has been a registered nurse for 28 years and a Family Nurse Practitioner for 18 years, practicing in multiple settings, including family practice, urgent care, emergency departments, administration, chronic pain and palliative medicine. She is currently the Operations Director for Palliative Medicine at Baptist Health Systems in Memphis, TN. She is board certified with the American Academy of Nurse Practitioners. She is also a Fellow of the American Association of Nurse Practitioners and an Advanced Certified Hospice and Palliative Nurse. She completed a Doctorate of Nursing Practice at the University of Alabama – Huntsville. She is a nationally recognized nurse practitioner speaker and teacher. Brett is a chronic pain expert, working for more than 20 years with chronic pain and palliative patients in a variety of settings. She is honored to be the HPNA 2025 podcast host. She is married with two daughters, two son in laws, one grandson, and now an empty nest cat. She and her family are actively involved in their church and she is an avid reader.

OffScrip with Matthew Zachary
The Patient Wears Prada: Farla Efros

OffScrip with Matthew Zachary

Play Episode Listen Later Jun 30, 2026 42:47


Farla Efros is a senior retail executive and former CEO who built and sold companies before facing her own breast cancer diagnosis. She brings that same operational mindset into a healthcare system that expects patients to manage complexity while they are at their most vulnerable.She was on a client call in Spain when the diagnosis came through. A clear mammogram had missed it. An MRI caught it. Within hours, she was ordering binders, building a plan, and structuring her treatment like a turnaround strategy. Every appointment became a meeting. Every doctor faced an agenda with dozens of questions. She paid out of pocket for PET scans that were denied and hired a third party firm to validate her treatment path when her own doctors resisted outside input. The conversation tracks what happens when a high-functioning executive enters a system built on delay, denial, and fragmentation. Efros describes negotiating for tests, managing physician relationships, and assembling an “executive board” of advisors across conventional and alternative care. She calls the experience “the worst client I ever had,” exposing how administrative burden shifts onto patients and families.The tension sits between what worked for her and what is inaccessible to most. Her approach requires confidence, time, and fluency in navigating power. The system rewards that behavior while quietly failing patients who cannot replicate it. Insurance coverage still left her paying out of pocket. Doctors pushed standard protocols over precision medicine. Survivorship offered little support once treatment ended.This episode examines how cancer care operates as a series of incentives rather than a coordinated system, and why patients are forced to become operators just to get through it.RELATED LINKSFarla EfrosFarla Efros on LinkedInF*ck CancerF*ck Cancer on AmazonAccentureCTOAMPULL QUOTES“I treated cancer like the worst client I ever had.”“They wouldn't approve the test, so I paid for it myself.”“Every appointment was a negotiation.”FEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Sternstunde Philosophie
Wie sieht die Zukunft des Sterbens aus?

Sternstunde Philosophie

Play Episode Listen Later Jun 28, 2026 59:59


Ihre Arbeit veränderte den Umgang mit dem Tod grundlegend: Die Sterbeforscherin Elisabeth Kübler-Ross. Diese Tage hätte sie ihren 100. Geburtstag gefeiert. Und heute, in einer zunehmend alternden Gesellschaft, stellt sich dringlicher denn je die Frage: Wie werden wir in Zukunft sterben? Mit «Interviews mit Sterbenden» leistete die schweizerisch-US-amerikanische Psychiaterin und Sterbeforscherin Elisabeth Kübler-Ross 1969 Epochemachendes: Sie brach das Schweigen über den Tod und verschob ihn aus der Tabuzone in den gesellschaftlichen Diskurs. Ihre kulturelle Leistung liegt darin, das Sterben als Teil des Lebens sichtbar gemacht zu haben – eine Voraussetzung für die moderne Palliativmedizin. Gleichzeitig stellt die demografische Entwicklung diese Errungenschaften infrage. Immer mehr Menschen erreichen ein hohes Alter – häufig verbunden mit langen Phasen von Krankheit und Demenz. Der Palliativmediziner Gian Domenico Borasio spricht von einem «Tsunami von hochaltrigen Sterbenden», der auf uns zukomme und grundlegende Fragen nach Würde, Autonomie und Fürsorge neu aufwirft. Ein auf Effizienz getrimmtes Gesundheitssystem gelangt damit an seine Grenzen. Braucht es neue Formen der Solidarität, «Caring Communities», und eine stärkere Vergesellschaftung von Sorgearbeit? Welche Rolle kann Palliative Care als Modell für ein menschlicheres System spielen – und was heisst das für uns alle? Olivia Röllin fragt nach bei Gian Domenico Borasio, eine der prägenden Stimmen in der Debatte um ein würdiges Lebensende.

Sternstunde Philosophie HD
Wie sieht die Zukunft des Sterbens aus?

Sternstunde Philosophie HD

Play Episode Listen Later Jun 28, 2026 59:59


Ihre Arbeit veränderte den Umgang mit dem Tod grundlegend: Die Sterbeforscherin Elisabeth Kübler-Ross. Diese Tage hätte sie ihren 100. Geburtstag gefeiert. Und heute, in einer zunehmend alternden Gesellschaft, stellt sich dringlicher denn je die Frage: Wie werden wir in Zukunft sterben? Mit «Interviews mit Sterbenden» leistete die schweizerisch-US-amerikanische Psychiaterin und Sterbeforscherin Elisabeth Kübler-Ross 1969 Epochemachendes: Sie brach das Schweigen über den Tod und verschob ihn aus der Tabuzone in den gesellschaftlichen Diskurs. Ihre kulturelle Leistung liegt darin, das Sterben als Teil des Lebens sichtbar gemacht zu haben – eine Voraussetzung für die moderne Palliativmedizin. Gleichzeitig stellt die demografische Entwicklung diese Errungenschaften infrage. Immer mehr Menschen erreichen ein hohes Alter – häufig verbunden mit langen Phasen von Krankheit und Demenz. Der Palliativmediziner Gian Domenico Borasio spricht von einem «Tsunami von hochaltrigen Sterbenden», der auf uns zukomme und grundlegende Fragen nach Würde, Autonomie und Fürsorge neu aufwirft. Ein auf Effizienz getrimmtes Gesundheitssystem gelangt damit an seine Grenzen. Braucht es neue Formen der Solidarität, «Caring Communities», und eine stärkere Vergesellschaftung von Sorgearbeit? Welche Rolle kann Palliative Care als Modell für ein menschlicheres System spielen – und was heisst das für uns alle? Olivia Röllin fragt nach bei Gian Domenico Borasio, eine der prägenden Stimmen in der Debatte um ein würdiges Lebensende.

OffScrip with Matthew Zachary
Coding the Invisible: Emily Mendenhall

OffScrip with Matthew Zachary

Play Episode Listen Later Jun 23, 2026 42:05


In 2020, Emily Mendenhall drove from Washington, DC to Okoboji, Iowa, a town of 800 that swells to 200,000 every summer, and walked into a pandemic that looked nothing like the one dominating national headlines. Inside gas stations and bars, masks marked you as an outsider. In one stop, a man told her family they would not be served if they kept theirs on. Her 6 year old daughter cried, confused. Mendenhall, a medical anthropologist at Georgetown University, did what she always does. She started asking questions. Over months, she interviewed neighbors, former classmates, and local officials, including her own brother in law who helped lead the local COVID response. The result became Unmasked, a case study in how community identity, economics, and politics shaped public health decisions in real time. That work led directly into her latest book, Invisible Illness: A History, from Hysteria to Long COVID, where she tracks a much older problem. Patients with chronic illness, especially women, often fail to meet medicine's demand for proof. Without a clear diagnosis, they lose access to care, insurance coverage, and legitimacy. Mendenhall argues that long COVID did not create this failure. It exposed it.This conversation centers on how healthcare systems reward certainty and punish complexity. Long COVID clinics send patients to 17 specialists without resolution. Insurance structures require diagnoses that many conditions cannot provide. Medical training still struggles to integrate trauma, mental health, and chronic disease into a coherent model of care.Mendenhall brings lived experience into the conversation. After COVID, she dealt with months of fatigue and escalating anxiety that altered her baseline health. She does not claim the label of long COVID, but she understands how quickly the system becomes harder to navigate once symptoms stop fitting clean categories. The stakes are not theoretical. In the United States, access to healthcare, disability benefits, and treatment still depends on whether a condition can be measured, coded, and reimbursed. For millions living with invisible illness, the burden of proof becomes the illness itself.RELATED LINKSEmily MendenhallInvisible Illness: A History, from Hysteria to Long COVIDScience PoliticsGeorgetown UniversityFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Experiencing Healthcare Podcast
The Merger with Matt Staub

Experiencing Healthcare Podcast

Play Episode Listen Later Jun 23, 2026 44:34


What if the patient never noticed the merger at all? For Matt Staub, that's not a failure — it's the goal. In this episode, Your Health CEO Matt Staub sits down with Jamie to talk through the company's merger with TCPA and Providence Care — a move that brings together similar footprints in primary care, palliative, hospice, skilled nursing, and assisted living across South Carolina and Georgia. As a 23-year healthcare veteran going through his first merger, Matt is candid about the tedious due-diligence "earnest money" phase, the EMR transitions ahead, and why he refuses to let "what could go wrong" crowd out "what could go right." You'll hear: Why "mass moves mass" — and what scale actually buys patients in care management and data analytics How Your Health breaks 50,000 patients into groups, teams, and "hubs" so no one falls through the cracks The "change is hard" philosophy and the discipline of productive (not just effective) communication How the spirit of agape — godly love — still threads through a company that's evolved far past its original name What success looks like in six months: patient retention, mission and margin If you lead through change — or live through it — this one will reframe how you think about getting bigger without losing what made you matter.

Nuus
Swakopmund Sages skenk ruim aan Palliative Care Namibia

Nuus

Play Episode Listen Later Jun 22, 2026 0:37


Die Swakopmund Sages Senior Gholfspelersvereniging het onlangs kombuistoerusting ter waarde van 20 000 Namibiese dollar aan die nuutgestigte Palliative Care Namibia Erongo-sentrum geborg. Die skenkings is die opbrengs van die Sages Gholfspelers-toernooie wat deur die jaar by die Rossmund-gholfbaan in Swakopmund aangebied word. Sanet de Waal, hoof van die Kankervereniging van Namibië se Erongo-sentrum:

Caring Caregiver Show with Evan & Savy
S18 E3 - Navigator Guardians and Accessibility to Thrive

Caring Caregiver Show with Evan & Savy

Play Episode Listen Later Jun 22, 2026 53:23


Join me, Savy for Episode 3 of Season 18, with Dan Haire of Navian Hawaii, Catia Garell of Thrive for Life and World-Renowned Laughter Leader and Award-Winning Empowerment Coach Bianca Spears returns for our Mindful Moment! We're here to bring back the joy of Caregiving, we're here to connect you to the resources that you need, because you DESERVE some "CARING"From this Episode:Havian Hawaii - Guiding and assisting patients and their families through difficult times, providing Palliative Care to patients battling serious illnesses or delivering Hospice Care to patients nearing their end-of-life journeyThrive for Life - The only known premier residential accessibility consulting firm in Hawai'iBianca Spears - World-Renowned Laughter Leader and Award-Winning Empowerment Coach: Showing others how to activate more fun, freedom & flow in their livesOur Resources:Gimme A Break - Non-profit for caregivers aiming to bring back joy to caregiving, free weekly support sessions offering caregivers a chance to relax, renew, resource and revive. Register or register a caregiver for a break.Givers Guides Magazine - The complete caregiver resource guide. Get your first issue today, as 100% of all profits are donated to support Gimme A Break.Your Host:Savy Makalena - founder of Gimme a Break and Givers Guides Connect with the Caring Caregiver Show:Facebook Page: Caring Caregiver ShowInstagram: caringcaregivershowWebsite: www.caringcaregivershow.comFacebook Group: Click here to join

Afternoons with Helen Farmer
How two sisters found clarity and support in palliative care

Afternoons with Helen Farmer

Play Episode Listen Later Jun 19, 2026 39:11


Fouzia and Kashaf want their father to live with dignity and less suffering following a devastating life-limiting diagnosis, and found it through Dr. Paul Coulter, who heads up the palliative care service at NMC Healthcare in Dubai.See omnystudio.com/listener for privacy information.

OffScrip with Matthew Zachary
Jace Beats Cancer

OffScrip with Matthew Zachary

Play Episode Listen Later Jun 16, 2026 54:34


At 25, Jace Yawnick was building a career in health and wellness sales, chasing growth, status, and the usual young adult fantasy of getting somewhere fast. Then his body stopped cooperating. Fatigue turned into chemotherapy. The diagnosis was primary mediastinal B cell non Hodgkin lymphoma, and the rest of his life split into before and after. Now in remission, he talks about cancer the way people actually live it, not the way nonprofits package it. He gets into survivorship, mental health, young adult isolation, and the deadening absurdity of prior authorization. One of the sharpest parts of the conversation lands on a simple American insult disguised as policy: treatment innovation means very little when insurance can still deny the scan, the drug, or the next step. Jace has seen that firsthand, including during routine monitoring after active treatment. This episode tracks what happens when a young cancer patient becomes a public voice and refuses to play mascot. It covers oncology, insurance, remission, advocacy, and the long mental hangover that follows survival. It also names the part too many institutions dodge: the system works great right up until it doesn't, and when it fails, patients get handed the bill, the panic, and a camera if they want anyone to care. RELATED LINKSJace Beats CancerJace Yawnick on LinkedImConquer Cancer ArticleCURE Today ArticlePyure BrandsFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Experiencing Healthcare Podcast
Matt Goes To The Capital

Experiencing Healthcare Podcast

Play Episode Listen Later Jun 16, 2026 42:14


What if the most important care in the entire healthcare system is also the most underfunded? While hospitals and inpatient reimbursements rise with inflation, the physician fee schedule has quietly declined roughly 33% in real terms over 25 years — and this year it's facing another cut. In this episode, Jamie Preston sits down with Your Health CEO Matt Staub, just back from Capitol Hill, where he spent a record-setting 95-degree day meeting with seven legislative offices to advocate for physicians, providers, and the patients they serve across rural South Carolina, Georgia, and beyond. What follows is part field report, part reflection on why preventive primary care saves money and lives — and why we plan meticulously for weddings, retirement, and vacations, but treat our own health with a "call us if something happens" approach. In this conversation: Why a 2.5–5% physician fee cut hits frontline rural practices hardest The bipartisan doctors' caucus and the real appetite for reform Why winning can come from a loss — the Kobe Bryant mindset on process over outcome How a Disney ride (Spaceship Earth) reframes humanity's whole story around communication The case for proactive, team-based primary care over reactive sick visits Press play for a conversation about advocacy, communication, and a simple, powerful idea: the change you need to make starts with you.

LTC University Podcast
What If Your Company Trained You to Outgrow Your Job?

LTC University Podcast

Play Episode Listen Later Jun 15, 2026 36:10


What if educating your people so well that they could leave was exactly the point? At Your Health, that's not a risk to manage — it's the philosophy that built an entire learning ecosystem. In this episode, Jamie talks with Aubrey Wall, who came to Your Health from a background in education and now leads Your Health University, the organization's learning management system and continuous-development engine. Aubrey brings an educator's eye to a fast-evolving healthcare environment, where best practice changes by the day and meeting patients where they are demands that staff never stop learning. Here's what you'll hear: Why a healthcare company runs 12-month, Department of Labor–registered apprenticeships — including programs in management, value-based care, population health, and hospice aide preparation How gamification is being built into nurse instruction (straight from Aubrey's dissertation research) The difference between Your Health University (your classroom) and the Hub (your resource library) How LinkedIn Learning delivered roughly $4.2 million in CEUs to staff last year Meeting Leah — the new AI assistant that helps employees find exactly the right course If you've ever believed growing your people is a cost rather than the whole point, this conversation will change how you think. Press play, then go ask Leah a question. www.YourHealth.Org

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OffScrip with Matthew Zachary
Standard Deviation S2 E4: The Invisible Load

OffScrip with Matthew Zachary

Play Episode Listen Later Jun 11, 2026 9:51


At 20 years old, newly arrived from Puerto Rico and trying to build a future in science, Benjamin Suarez Jimenez found himself sitting in front of two senior faculty members accused of plagiarism. He knew the material. He had done the work. His mistake came from failing to cite class notes during an exam because nobody had told him that was expected. In a matter of minutes, he watched what felt like his entire career flash before him.On this episode of Standard Deviation, host Oliver Bogler examines the hidden architecture of academic science through the experiences of Dr. Benjamin Suarez Jimenez, Assistant Professor at the University of Rochester and a neuroscientist studying PTSD, anxiety, trauma, and spatial cognition through virtual reality and video game environments.Benjamin traces his path from Puerto Rico to the mainland United States, through the NIH, Columbia University, and eventually to leading his own laboratory. Along the way, he encountered a series of barriers that had little to do with scientific ability and everything to do with access to unwritten rules. From academic gatekeeping to grant writing expectations, he learned that success in biomedical research often depends on knowledge that never appears in a textbook.Oliver explores how those invisible obstacles shape careers, influence research funding, and determine who gains access to opportunity. The conversation also examines the Justice, Equity, Diversity, and Inclusion Program at the Life Science Editors Foundation, which pairs scientists from underrepresented backgrounds with experienced scientific editors. Through that mentorship, Benjamin transformed a critical grant proposal into a successful pilot award that helped launch an NIH R01 application.The discussion extends beyond one scientist's experience. Benjamin describes helping a former mentee navigate dissertation roadblocks that threatened her graduation, illustrating how institutional bureaucracy can delay careers and discourage talented researchers. Together, they explore the hidden administrative burden, cultural barriers, and bias that many scientists carry alongside their research, and what happens when someone who receives support turns around and opens the door for others.RELATED LINKSLife Science Editors FoundationBenjamin Suarez Jimenez LabDr. Benjamin Suarez JimenezBenjamin Suarez JimenezFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

OffScrip with Matthew Zachary
Taco Thursday Meets Broken Healthcare: Dr. Sarah Matt

OffScrip with Matthew Zachary

Play Episode Listen Later Jun 9, 2026 42:18


Dr. Sarah Matt trained as a burn surgeon, working in a field where patients arrive with catastrophic injuries and survival depends on speed, skill, and resources. She left the bedside after confronting a limit that medicine does not like to admit. One physician can only see so many people in a day. The system surrounding those patients decides the rest. She moved into health technology, held leadership roles in startups, and built global infrastructure at Oracle to scale care across populations. Then she watched billions of dollars in digital health and AI initiatives stall out when they hit real clinical environments.This episode follows that pivot from surgeon to strategist and back into direct patient care in rural New York, where she now treats uninsured patients, migrant workers, and communities pushed to the margins. The conversation centers on a persistent failure across healthcare systems. Products get built for regulators, executives, and investors instead of the people who use them. The result shows up in failed adoption, broken workflows, prior authorization delays, and rising physician burnout.The discussion cuts through health policy language and lands on lived consequence. The system rewards speed over usability, scale over trust, and compliance over care. Patients absorb the fallout. Physicians carry the liability. The incentives remain intact.RELATED LINKSDr. Sarah MattThe Borderless Healthcare RevolutionThe Clinical RealistJessica FedererSovatoFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

End-of-Life University
Ep. 550 Changing the Culture Around Palliative Care with Jared Rubenstein MD

End-of-Life University

Play Episode Listen Later Jun 8, 2026 49:56


Diary of a Kidney Warrior Podcast
Episode 161: From Palliative Care to Purpose: Rebecca's Journey Through Kidney Failure, Dialysis & Transplant Loss

Diary of a Kidney Warrior Podcast

Play Episode Listen Later Jun 8, 2026 46:37 Transcription Available


In this powerful episode of Diary of a Kidney Warrior Podcast, host Dee Moore is joined by Rebecca Griffiths, who shares her extraordinary journey through kidney failure, dialysis, kidney transplantation and transplant loss.   Rebecca's story is one of resilience, determination and hope. After gaining approximately 25kg of fluid in a matter of days and requiring emergency treatment to drain fluid from around her heart, she found herself facing kidney failure without the support of a renal team. What followed was a life-changing journey that included dialysis, a kidney transplant, the devastating loss of that transplant and the challenge of starting again.   In this episode, Rebecca discusses:  

Holy Redeemer Podcasts
Comfort in Crisis:Catholic Perspectives on Palliative Care - Part 3 - Ageing Gracefully - Episode 18

Holy Redeemer Podcasts

Play Episode Listen Later Jun 8, 2026 40:19


Special guests, Dr. Carolin Elizabeth, and Dr. John Tharakan who are experts in the field of Palliative Care and devoted Catholics along with Fr. Juventius Andrade, share their knowledge and experiences, offering a unique perspective on finding solace and meaning during challenging times. The discussion illuminates the path of compassionate care and how faith plays a crucial role in providing comfort to those in need.Whether you are a caregiver, a healthcare professional, or someone navigating the complexities of serious illness, this episode aims to provide solace, understanding, and a sense of purpose through open discussions and dialogue.Topics Covered:The Catholic approach to end-of-life careFinding spiritual meaning in sufferingNavigating ethical dilemmas in Palliative CareSupport for caregivers and families

Holy Redeemer Podcasts
Comfort in Crisis:Catholic Perspectives on Palliative Care - Part 2 - Ageing Gracefully - Episode 17

Holy Redeemer Podcasts

Play Episode Listen Later Jun 8, 2026 29:24


This is another insightful episode of AGEING GRACEFULLY, where we delve into the intersection of faith and critical topics affecting the evening of our lives. In this episode, we're shining a compassionate light on Palliative Care through the lens of our Catholic faith. Join us as we navigate the complex and sensitive landscape of end-of-life care, seeking professional and spiritual insights and guidance.Special guests, Dr. Carolin Elizabeth, and Dr. John Tharakan who are experts in the field of Palliative Care and devoted Catholics along with Fr. Juventius Andrade, will share their knowledge and experiences, offering a unique perspective on finding solace and meaning during challenging times. Join the discussion that illuminates the path of compassionate care and how faith plays a crucial role in providing comfort to those in need.Whether you are a caregiver, a healthcare professional, or someone navigating the complexities of serious illness, this episode aims to provide solace, understanding, and a sense of purpose through open discussions and dialogue. Topics Covered:The Catholic approach to end-of-life careFinding spiritual meaning in sufferingNavigating ethical dilemmas in Palliative CareSupport for caregivers and families

Holy Redeemer Podcasts
Comfort in Crisis:Catholic Perspectives on Palliative Care - Part 1 - Ageing Gracefully - Episode 16

Holy Redeemer Podcasts

Play Episode Listen Later Jun 8, 2026 42:33


This insightful episode of AGEING GRACEFULLY delves into the intersection of faith and critical topics affecting the evening of our lives. In this episode, we're shining a compassionate light on Palliative Care through the lens of our Catholic faith. Tune in as we navigate the complex and sensitive landscape of end-of-life care, seeking professional and spiritual insights and guidance.Special guests, Dr. Carolin Elizabeth, and Dr. John Tharakan who are experts in the field of Palliative Care and devoted Catholics along with Fr. Juventius Andrade share their knowledge and experiences, offering a unique perspective on finding solace and meaning during challenging times. This discussion illuminates the path of compassionate care and how faith plays a crucial role in providing comfort to those in need.Whether you are a caregiver, a healthcare professional, or someone navigating the complexities of serious illness, this episode aims to provide solace, understanding, and a sense of purpose through open discussions and dialogue.Topics Covered:The Catholic approach to end-of-life careFinding spiritual meaning in sufferingNavigating ethical dilemmas in Palliative CareSupport for caregivers and families

OffScrip with Matthew Zachary
The Chernobyl Kid in a White Coat: Dr. Yan Leyfman

OffScrip with Matthew Zachary

Play Episode Listen Later Jun 2, 2026 42:29


In the late 1980s, a child exposed to fallout from the Chernobyl disaster lay in a hospital bed while doctors told his family there were no clear answers and no reliable path forward. Decades later, that same child, Yan Leyfman, walks into exam rooms as a hematology oncology fellow, expected to deliver clarity inside a system that still runs on delay, uncertainty, and institutional self preservation.This episode traces the throughline from early life shaped by radiation exposure and hospice level uncertainty to a career inside academic medicine, translational research, and oncology media. Yan built his identity around survival and usefulness, moving from patient to physician while carrying the memory of what it feels like to sit on the other side of the table. He helped launch MedNews Week during the COVID crisis to push back on misinformation and expand access to medical knowledge, stepping into a public role while still in training.The conversation stays grounded in the friction between personal narrative and system reality. Clinical training demands efficiency, hierarchy, and emotional distance. Cancer care demands time, clarity, and human connection. Those forces collide in real patient encounters where prior authorization delays, insurance barriers, and fragmented care pathways shape outcomes as much as any treatment protocol.Yan speaks openly about mentorship, belonging, and the drive to make meaning out of survival. The discussion pushes further into what the healthcare system actually rewards, what it quietly strips away, and how quickly empathy can erode under institutional pressure. The episode also examines the role of medical media, where education, industry influence, and narrative control often blur together.This is a conversation about identity under construction, about what happens when someone who remembers powerlessness steps into a role that carries authority, and about whether that memory can survive long enough to change anything.RELATED LINKSYan Leyfman on LinkedInYan Leyfman on InstagramSurviving ChernobylFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

The Conversation
The challenges for women in palliative care

The Conversation

Play Episode Listen Later Jun 1, 2026 26:29


Confronting the death of a loved one – or the end of our own life – can be frightening and overwhelming. And yet it is something that will happen to all of us. So how can we open up conversations about the way we want to die? Is it possible to avoid pain and suffering? And who are the people who will care for us in our final moments?Datshiane Navanayagam talks to two women who work in palliative care.Dr Tania Pastrana is from Colombia and is now based in Germany where she works for the International Association for Hospice & Palliative Care (IAHPC). And Dr Catherine Millington-Sanders is a general practitioner, and national lead in palliative care for the Royal College of GPs.Producer: Hannah Sander

Prolonged Fieldcare Podcast
PFC Podcast 281: Crisis Standards of Care: The Hardest Conversations Medics and Teams Must Have

Prolonged Fieldcare Podcast

Play Episode Listen Later Jun 1, 2026 58:41


In this raw and unflinching episode of the Prolonged Field Care Podcast, Dennis sits down with Thad Snyder (physician, former medic, and brigade surgeon) to tackle one of the most uncomfortable topics in combat medicine: what happens when resources run out, evacuation timelines collapse, and “doing everything” is no longer possible.Drawing from a 72-page crisis standards of care memo (originally written for flu and updated for COVID), Thad explains the shift from standard → contingency → crisis care, the ethical duty to plan for no-win scenarios, and why medics, teams, and leaders must have real conversations about capabilities, limitations, and what “living” actually means after catastrophic injury. They explore palliative/comfort care in austere environments, the emotional weight of those decisions, and practical ways to share the burden so the medic isn't left carrying it alone.Essential listening for medics, operators, team leaders, and anyone preparing for large-scale combat or prolonged operations where the next casualty might not get a bird out for days or weeks.Key TakeawaysThere is a duty to plan for crisis standards of care before you're in the middle of it.Leaders and teams must understand the real capabilities and limitations of their medics—not the 437-task training list.Pre-mission conversations about quality of life, advanced directives, and unacceptable outcomes give medics a moral framework when they have to make the hardest calls.Palliative/comfort care is already happening in modern conflicts (Ukraine, etc.) even if no one wants to talk about it.The emotional and moral burden of end-of-life decisions cannot fall solely on the medic—teams and leaders must share ownership.Staying busy to “do something” can sometimes cause more harm than shifting to dignity-focused comfort care.Chapters00:00 – Intro & Pulling the Crisis Standards Memo from the Closet00:56 – Standard, Contingency, and Crisis Care: What Changes When Resources Vanish02:51 – The Duty to Plan: Preparing for No-Win Scenarios04:55 – Why Commanders Need Brutally Honest Briefs on Medic Capabilities06:20 – Surgical Team Limitations, Non-Survivable Injuries, and Realistic Expectations08:40 – Advanced Directives, Quality of Life, and “Living vs. Being Alive”11:36 – Palliative Care in Large-Scale Combat (Ukraine, Future Conflicts)13:15 – How (and When) to Have These Conversations with Your Team14:38 – The Emotional Reality: Holding Someone's Hand While They Die Is Harder Than Any Procedure20:33 – Real Hospital Examples of Hard End-of-Life Discussions25:58 – What Outcomes Actually Matter to Warriors? (Walking, talking, independence)32:00 – Using Patient Values as a Moral Framework in Crisis35:04 – Offloading the Burden: Team Ownership of Comfort Care Decisions40:43 – Shared Responsibility, Rituals, and Preventing Moral Injury43:14 – Final Thoughts + Where to Get the Crisis Standards DocumentThis episode is heavy, honest, and desperately needed. Share it with your team.For more content, go to ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.prolongedfieldcare.org⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Consider supporting us: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠patreon.com/ProlongedFieldCareCollective⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ or ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.lobocoffeeco.com/product-page/prolonged-field-care⁠

Hospice Explained Podcast
188 The Intersection of Hospice and Palliative Care: A Conversation with Dr. Jill Schwartz-Chevlin, MD, MBA, FACP

Hospice Explained Podcast

Play Episode Listen Later May 31, 2026 32:52


188 The Intersection of Hospice and Palliative Care: A Conversation with Dr. Jill Schwartz-Chevlin,  MD, MBA, FACP Host Marie Betcher, RN and former hospice nurse, interviews Dr. Jill  Schwartz-Chevlin, an internist and palliative physician with experience in home-based primary care, hospice leadership, and value-based care. Dr. Jill explains value-based medicine as aligning incentives with patient outcomes, especially for people with complex chronic illness, by anticipating needs, supporting symptom recognition, and preventing crisis-driven ER and hospital use that can lead to debility and loss of independence. She describes Vynca's home-based, tech-enabled, interdisciplinary palliative care model across California, Oregon, Washington, Utah, and Idaho, plus enhanced care management and a digital advance care planning platform used in 28 states. She discusses reimbursement challenges, noting Medicaid palliative care programs in California, Hawaii, and New Jersey and Medicare Advantage as current pathways, and explains transferring eligible patients to hospice when available while providing virtual hospice-like support in areas without access. Dr. Jill outlines practical ways to normalize advance care planning conversations and encourages patients and families to advocate for palliative services and proactive planning. 00:00 Welcome and Disclaimer 00:29 Meet Host and Guest 02:13 Dr Jill's Background 05:40 Value Based Care Explained 11:01 Patient Empowerment and Team Care 13:51 Vynca Locations and Services 15:07 Proactive Home Based Model 20:16 Access and Reimbursement Challenges 23:32 Hospice Transition and Rural Gaps 25:11 Advance Care Planning Tips 30:37 Final Takeaways and Closing    https://www.vyncacare.com/   If you want to help, you can donate to help support Hospice Explained at the Buy me a Coffee link   https://www.buymeacoffee.com/Hospice  Hospice Explained Affiliates & Contact Information Buying from these Affilite links will help support this Podcast.  Maire introduces a partnership with Suzanne Mayer RN inventor of the  cloud9caresystem.com,  When patients remain in the same position for extended periods, they are at high risk of developing pressure injuries, commonly known as bedsores. One of the biggest challenges caregivers face is the tendency for pillows and repositioning inserts to easily dislodge during care.(Suzanne is a former guest on Episode #119) When you order with Cloud 9 care system, please tell them you heard about them from Hospice Explained.(Thank You) Marie's Contact Marie@HospiceExplained.com www.HospiceExplained.com   Finding a Hospice Agency 1. You can use Medicare.gov to help find a hospice agency, 2. choose Find provider 3. Choose Hospice 4. then add your zip code This should be a list of Hospice Agencies local to you or your loved one.

OffScrip with Matthew Zachary
MZ LIVE at Merkin Concert Hall: 30 Years After Cancer

OffScrip with Matthew Zachary

Play Episode Listen Later May 29, 2026 107:24


Matthew Zachary is a brain cancer survivor, healthcare advocate, founder of Stupid Cancer and We the Patients, and host of Out of Patients. In April 2026, he returned to the stage at Merkin Hall near Lincoln Center for his first solo public piano concert in almost 22 years while launching his debut book, We the Patients: Understanding, Navigating, and Surviving America's Healthcare Nightmare.What unfolded became far larger than a concert.Over 2 hours, survivors, clinicians, advocates, nonprofit founders, journalists, pharmaceutical sponsors, and healthcare insiders gathered in one room to reflect on 30 years of survivorship, institutional failure, accidental advocacy, and the emotional afterlife of cancer. The evening moved through original piano performances, live chapter readings, and deeply personal conversations about infertility, disability, financial toxicity, insurance denials, grief, burnout, and what happens when patients spend decades navigating systems designed around transactions instead of continuity.Guests including Wendell Potter, Maimah Karmo, Craig Lustig, Shelly Fuld Nasso, Tamika Felder, and others reflected on how the modern cancer advocacy movement emerged largely because patients built parallel systems where healthcare infrastructure failed to meet human needs. The conversation explored how prior authorization, reimbursement incentives, administrative fragmentation, and institutional distrust continue shaping the patient experience across oncology and survivorship.The performance also marked a deeply personal milestone. After brain cancer compromised his left hand at age 21, Zachary spent 6 months rehabilitating both hands to return to public performance for the first time in over 2 decades. The result became part concert, part civic gathering, and part historical record of a generation of survivors who refused to disappear quietly.RELATED LINKSMZLIVE Official WebsiteMZLIVE YouTube VideoFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

OffScrip with Matthew Zachary
Fatal to Relentless: Kathy Giusti

OffScrip with Matthew Zachary

Play Episode Listen Later May 26, 2026 49:25


In December 1996, a 37 year old pharmaceutical executive sat in a Borders bookstore reading medical textbooks on the floor, trying to understand a disease she had never heard of. Multiple myeloma carried a three year prognosis. Her daughter was 18 months old. Her father had just died of cancer. Within weeks, she pushed her doctors to say the quiet part clearly. This would likely end her life before her child entered kindergarten.Kathy Giusti refused to accept passive survival. She built a plan while the system offered fragments. She interviewed oncologists and fertility specialists at the same time. She pursued IVF to have a second child while preparing for treatment. She stayed employed to keep insurance coverage. Every decision carried financial, medical, and emotional risk.That same urgency exposed a deeper failure. Cancer research moved slowly. Academic centers guarded data. Clinical trials lacked coordination. Patients entered a system that demanded compliance without providing clarity. Giusti responded by building the Multiple Myeloma Research Foundation, not as a support group, but as an operating engine to accelerate drug development, fund research, and force collaboration across institutions.This episode tracks the tension between individual agency and systemic failure. Giusti describes how patients navigate diagnosis, insurance barriers, and fragmented care in real time. She explains how data, genomics, and clinical trials reshape cancer treatment while still leaving patients responsible for decisions they are not trained to make. She addresses disparities in access, the limits of early detection, and the reality that progress in oncology often depends on speed, funding, and alignment of incentives.The conversation moves between lived experience and structural critique. It names the cost of delay, the burden placed on patients to act as their own advocate, and the tradeoffs required to push a system forward that still protects itself first.⸻RELATED LINKSKathy GiustiMultiple Myeloma Research FoundationFatal to FearlessAmerican Society of Hematology⸻FEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

OffScrip with Matthew Zachary
Discharge Instructions Not Included: Shlomit Liberty

OffScrip with Matthew Zachary

Play Episode Listen Later May 19, 2026 44:19


At 19, Shlomit woke up unable to speak. The right side of her body went numb. An emergency room sent her home and called it stress. That moment did not end in a diagnosis that changed policy or triggered reform. It sent her into a decade long pursuit of understanding how the brain fails language and how the healthcare system fails patients who cannot advocate for themselves.Shlomit trained as a speech language pathologist and spent years inside acute care hospitals and ICUs, performing endoscopies and treating patients with brain injury, stroke, and dysphagia. She watched medical teams rotate in and out, deliver dense updates, and leave families nodding without comprehension. She stayed behind and translated. Every day, patients told her she was the only one who explained what was happening. That gap is not an accident. Hospital systems optimize for throughput, not understanding. Patients move through beds based on cost, not readiness. Discharge planning becomes a financial decision wrapped in clinical language. A stay under 48 hours can shift the insurance burden dramatically, leaving patients exposed to higher out of pocket costs. Shlomit left the system and built Patient Path NYC, a private patient advocacy service. She now spends 15 to 20 hours a week per client reading charts, coordinating care teams, and translating medical decisions into plain language. Her work sits in the uncomfortable space between healthcare policy and lived experience. Families pay out of pocket to understand their own care. Hospitals benefit from the clarity she provides while maintaining the same structural incentives that created the confusion.This conversation tracks the human cost of fragmented care, the economics behind discharge decisions, and the quiet reality that patients who cannot communicate clearly often lose control of their own outcomes.RELATED LINKSShlomit LibertyShlomit Liberty on LinkedInPatient Path NYCBoard Certified Patient AdvocateFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

OffScrip with Matthew Zachary
Standard Deviation S2 E3: The Hidden Curriculum

OffScrip with Matthew Zachary

Play Episode Listen Later May 14, 2026 11:50


In 2020, developmental biologist Dr. Crystal Rogers drove the country roads outside Davis, California crying between grant rejections, wondering whether she was about to lose her lab, her career, and the scientific future she had spent years building. She had already done what academia tells young scientists to do. She earned the credentials. She landed a faculty position at UC Davis. She built a lab. Then the real test began.On this episode of Standard Deviation, Dr. Oliver Bogler examines the unspoken rules that determine which scientists survive academic research and which quietly disappear from it. The conversation follows Crystal Rogers and cancer biologist Dr. Michelle Mendoza as they collide with the “Hidden Curriculum” of biomedical science: the unwritten rhetoric, institutional signaling, and grant writing strategies that often decide who receives funding, tenure, and long term stability.Michelle Mendoza entered a tenure track position at the Huntsman Cancer Institute while raising 3 children, navigating a divorce, and trying to secure major NIH funding during COVID. What looked like objective scientific review turned out to depend heavily on persuasion, presentation, and insider fluency. Established researchers could promise massive research agendas based on reputation alone. Junior investigators faced a completely different standard.Oliver traces how the Life Science Editors Foundation and its JEDI program intervened by pairing scientists with former editors from journals including Cell and Nature. The work had little to do with commas or grammar. Editors challenged logic, structure, and scientific framing before grant reviewers could destroy an application in public.Both researchers eventually secured career defining grants. One realized she would keep her job and not have to move her family. The other celebrated by ordering a personalized “DEV BIO” license plate and driving through Davis blasting nineties hip hop and Beyoncé.The episode exposes how biomedical research funding rewards institutional fluency as much as scientific talent, and how hidden systems inside academic medicine continue shaping who gets to stay in science long enough to make discoveries.RELATED LINKSDr. Crystal Rogers LinkedInDr. Crystal Rogers Faculty PageDr. Crystal Rogers LabDr. Michelle Mendoza LinkedInDr. Michelle Mendoza Faculty PageHuntsman Cancer Institute Mendoza LabLife Science Editors FoundationFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

OffScrip with Matthew Zachary
Nun, Done, and Uninsured: Katy Talento

OffScrip with Matthew Zachary

Play Episode Listen Later May 12, 2026 45:52


In 2008, Katy Talento walked away from Capitol Hill and into a Catholic convent. Within a year, she walked out. Within another decade, she sat inside the White House shaping health policy. Somewhere in between, she got labeled “infertile” after a single cycle of testing and spent years believing it.That label stuck. The pain that came before it never got investigated. Doctors offered birth control and moved on. No one asked why her body was struggling. No one followed the thread.Talento built her career inside the very systems she now critiques. She worked on federal health policy, global disease programs, and later advised the Trump administration on healthcare reform. She helped advance price transparency rules in a system where hospitals can still list 457 different prices for the same service.Then she left.Now she builds employer health plans that bypass insurers, PBMs, and traditional networks. Her approach replaces insurance contracts with direct payment, nurse navigators, and cost sharing models that promise simplicity but raise hard questions about risk and protection.This conversation sits in that tension.Talento describes a healthcare system shaped by layered incentives, where insurers, hospitals, and intermediaries profit from complexity. She argues that employers hold the leverage to disrupt it. The host pushes on what happens when patients fall outside those structures, when contracts disappear, and when community based models fail.The episode moves through infertility, misdiagnosis, insurance design, and the mechanics of employer sponsored care. It tracks how policy decisions made in Washington ripple into exam rooms, billing departments, and family lives.It also confronts a harder truth.Even insiders who understand the system can still get caught in it.RELATED LINKSAllBetter HealthKaty TalentoThem Before UsAn Arm and a LegRelentless Health ValueFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.