Podcasts about Palliative care

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Best podcasts about Palliative care

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Latest podcast episodes about Palliative care

OffScrip with Matthew Zachary
LEAD EP3: Fraying at the Edges

OffScrip with Matthew Zachary

Play Episode Listen Later Aug 19, 2025 22:32


The effects of the neurotoxin are taking their toll on Cooper as Shannon desperately tries to navigate the severity of their new reality.LEAD how this story ends is up to us is a true story written and produced by Shannon Burkett. Co-produced by Jenny Maguire. Directed by Alan Taylor. Starring Merritt Wever, Alessandro Nivola, Cynthia Nixon, and Cooper Burkett.E43 features Jenny Maguire, JD Mollison, Laith Nakli, Deirdre O'Connell, Carolyn Baeumler, Zach Shaffer, and Monique Woodley. Casting by Alaine Alldaffer and Lisa Donadio. Music by Peter Salett. Sound Design by Andy Kris. Recording Engineer Krissopher Chevannes.For corresponding visuals and more information on how to protect children from lead exposure please go to https://endleadpoisoning.org.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

The KGEZ Good Morning Show
Logan Health Palliative Care (8-14-25)

The KGEZ Good Morning Show

Play Episode Listen Later Aug 14, 2025 24:30


LOGAN HEALTH PALLIATIVE CARE JOHN ERICKSON TRT: 24:30

OffScrip with Matthew Zachary
LEAD EP2 : Stop the Spiral

OffScrip with Matthew Zachary

Play Episode Listen Later Aug 12, 2025 11:30


As the lead wreaks havoc on Cooper's development, Shannon searches for answers. Desperate to get a handle on what was happening to her son, she grabs onto a lifeboat - nursing school. Andy tries to piece together the past to make sense of the present.LEAD how this story ends is up to us is a true story written and produced by Shannon Burkett. Co-produced by Jenny Maguire. Directed by Alan Taylor. Starring Merritt Wever, Alessandro Nivola, Cynthia Nixon, and Cooper BurkettEP2 features Keith Nobbs and Frank Wood. Music by Peter Salett. Sound Design by Andy Kris. Recording Engineer Krissopher Chevannes. Casting by Alaine Alldaffer and Lisa Donadio.For corresponding visuals and more information on how to protect children from lead exposure please go to https://endleadpoisoning.org.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Afternoons with Pippa Hudson
Health: Palliative care nurse shares wisdom in her new book Dying Ways

Afternoons with Pippa Hudson

Play Episode Listen Later Aug 8, 2025 17:18 Transcription Available


Pippa speaks to Sister Dale Heim, a palliative care nurse who recently shared some of this accrued wisdom in a book called Dying Ways, which officially launches today. Lunch with Pippa Hudson is CapeTalk’s mid-afternoon show. This 2-hour respite from hard news encourages the audience to take the time to explore, taste, read and reflect. The show - presented by former journalist, baker and water sports enthusiast Pippa Hudson - is unashamedly lifestyle driven. Popular features include a daily profile interview #OnTheCouch at 1:10pm. Consumer issues are in the spotlight every Wednesday while the team also unpacks all things related to health, wealth & the environment. Thank you for listening to a podcast from Lunch with Pippa Hudson Listen live on Primedia+ weekdays between 13:00 and 15:00 (SA Time) to Lunch with Pippa Hudson broadcast on CapeTalk https://buff.ly/NnFM3Nk For more from the show go to https://buff.ly/MdSlWEs or find all the catch-up podcasts here https://buff.ly/fDJWe69 Subscribe to the CapeTalk Daily and Weekly Newsletters https://buff.ly/sbvVZD5 Follow us on social media: CapeTalk on Facebook: https://www.facebook.com/CapeTalk CapeTalk on TikTok: https://www.tiktok.com/@capetalk CapeTalk on Instagram: https://www.instagram.com/ CapeTalk on X: https://x.com/CapeTalk CapeTalk on YouTube: https://www.youtube.com/@CapeTalk567 See omnystudio.com/listener for privacy information.

TCN Talks
The Path to the Future May be the Un-obvious

TCN Talks

Play Episode Listen Later Aug 6, 2025 71:50 Transcription Available


The Path to the Future May be the Un-obvious - Top News Stories, July 2025 The future of hospice care hangs in the balance as providers navigate a perfect storm of challenges and opportunities. From financial pressures closing hospice houses to unprecedented Medicare fraud schemes, from technological disruption to changing consumer expectations – the hospice field stands at a critical inflection point that demands both reflection and action.Join hosts Chris Comeaux and Cordt Kassner as they delve into the latest trends and challenges in Hospice and Palliative Care, discussing key trends, challenges, and innovations shaping the field. This episode covers a wide range of topics, including the impact of healthcare layoffs, disruptive innovations, and the importance of disaster preparedness. They also discuss the evolving landscape of Hospice Care, the role of technology, and the significance of maintaining an authentic brand in the field.  Join us.HostChris Comeaux, President / CEO of TELEIOSCohostCordt Kassner, PhD, Publisher of Hospice & Palliative Care Today & CEO and Founder of Hospice Analyticshttps://www.teleioscn.org/tcntalkspodcast/the-path-to-the-future-may-be-the-un-obvious-top-news-stories-july-2025Teleios Collaborative Network / https://www.teleioscn.org/tcntalkspodcast

Wellness Rising
Wellness Rising Ep. 66: Palliative Care Physician and Author Dr. Delia Chiaramonte reveals why some people with cancer and their families cope better with the rigors of the disease than others.

Wellness Rising

Play Episode Listen Later Aug 6, 2025 46:30


Wellness Rising from the Wellness House of Annapolis welcomes Palliative Care Physician and Author Dr. Delia Chiaramonte, who writes about why some people with cancer and their families cope better with the rigors of the disease than others.

OffScrip with Matthew Zachary
LEAD EP1: The Monster in the Walls

OffScrip with Matthew Zachary

Play Episode Listen Later Aug 5, 2025 22:39


A mysterious dust fills a young family's apartment. The truth begins to unravel when the mother gets a call from the pediatrician - the monster deep within the walls has been unleashed. LEAD how this story ends is up to us is a true story written and produced by Shannon Burkett. Co-produced by Jenny Maguire. Directed by Alan Taylor. Starring Merritt Wever, Alessandro Nivola, Cynthia Nixon, and Cooper Burkett. EP1 features Zak Orth, Jenny Maguire, Daphne Gaines, and Micheal Gaston. Music by Peter Salett. Sound Design by Andy Kris. Recording Engineer Krissopher Chevannes. Casting by Alaine Alldaffer and Lisa Donadio.For corresponding visuals and more information on how to protect children from lead exposure please go to https://endleadpoisoning.org.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

HPNA Podcast Corner
Ep. 49 - Reimagining Palliative Care: Conversations That Matter in Non-Traditional Settings

HPNA Podcast Corner

Play Episode Listen Later Aug 1, 2025 22:51


In this episode, Shena Gazaway joins us in a discussion of her nurse-led research, providing primary palliative care in patients' homes— where this care is urgently needed but often overlooked. We explore how she leads serious illness conversations, manages complex chronic conditions, and builds trust with patients and families to ensure care aligns with their values.   From qualitative studies to pilot-tested toolkits that empower patients and caregivers—especially in underserved Black communities—we explore what it truly means to lead with empathy, equity, and evidence.  Whether you're a nephrology nurse wondering how to deepen your role or a provider curious about innovative palliative care pathways, this episode offers practical insights, personal stories, and a call for more providers in this vital space.      Shena Gazaway PhD, RN, CHPN®  Shena Gazaway PhD, RN, CHPN® is currently an Assistant Professor in the School of Nursing at the University of Alabama at Birmingham. As a registered nurse working within the community, her practice experience stimulated her research interest in supporting upstream decision-making of seriously ill patients and families, particularly those who live in built environments that limit access to specialty palliative care services. In addition, her work centers on the belief that individuals living with serious illness are the best navigators of their illness experience, and interventions must incorporate local knowledge, beliefs, and practices for long-term success. Specifically, her research is focused on developing and optimizing community-informed decision-support interventions for individuals living with advanced chronic kidney disease and their caregivers. Shena is currently funded on a K23 from the NIDDK and a pilot grant the Forge AHEAD center, a P50 center grant funded by NIMHD. She and Dr. Wells also serve as co-I's on a pain heart failure intervention funded by the Alex and Rita Hillman Foundation. She is a past recipient of the Palliative Care Research Cooperative Pilot Grant Program and multiple internal funding mechanisms. Above all Shena is a mother, wife, daughter, friend, and sister, and so excited to share the next hour with you all today.    Brett Snodgrass, DNP, FNP-C, ACHPN®, FAANP Dr. Brett Snodgrass has been a registered nurse for 28 years and a Family Nurse Practitioner for 18 years, practicing in multiple settings, including family practice, urgent care, emergency departments, administration, chronic pain and palliative medicine. She is currently the Operations Director for Palliative Medicine at Baptist Health Systems in Memphis, TN. She is board certified with the American Academy of Nurse Practitioners. She is also a Fellow of the American Association of Nurse Practitioners and an Advanced Certified Hospice and Palliative Nurse. She completed a Doctorate of Nursing Practice at the University of Alabama – Huntsville. She is a nationally recognized nurse practitioner speaker and teacher. Brett is a chronic pain expert, working for more than 20 years with chronic pain and palliative patients in a variety of settings. She is honored to be the HPNA 2025 podcast host. She is married with two daughters, two son in laws, one grandson, and now an empty nest cat. She and her family are actively involved in their church and she is an avid reader.

The Sunflower- Palliative Care Podcasts
Equity in Children's Palliative care: honouring voices and stories in 2SLGBTQ+ community

The Sunflower- Palliative Care Podcasts

Play Episode Listen Later Aug 1, 2025 48:48


Rachel Neufeld chats with Ben Carrol, a PhD student, nurse and researcher, in this final episode of the 5 part series, exploring how trans and gender diverse nurses engage with concepts of binary gender in nursing education and practice, and how practitioners can approach their care of children and youth who identify as being a part of the 2SLGBTQ+ community.Below are some links to some of the references Ben talks about in this chat. efaidnbmnnnibpcajpcglclefindmkaj/https://www.transcarebc.ca/sites/default/files/2024-03/Making_Mistakes.pdfefaidnbmnnnibpcajpcglclefindmkaj/https://tiontario.ca/wp-content/uploads/2023/05/Demographic-Snapshot.pdfhttp://www.soginursing.ca/https://notdecidingalone.com/https://www.nobarriershere.org/https://uofmpress.ca/books/inuit-stories-of-being-and-rebirthhttps://www.tandfonline.com/doi/full/10.1080/22423982.2022.2071410#abstract

The Disrupted Podcast
Stop Giving People What They Want

The Disrupted Podcast

Play Episode Listen Later Aug 1, 2025 40:54


Episode Notes (Key Takeaways)Why "customer satisfaction" can be the wrong metric in healthcareWhat Scott learned from a meeting with JPMorgan Chase CEO Jamie DimonThe difference between perceived value and actual healthcare needsA candid story about overprescribing pain meds and the cultural shift requiredWhy the healthcare "customer" is more complicated than we thinkBreaking down Your Health's value-based care results: $75M savedThe danger of over-collaboration and inefficiency in care coordinationRealigning roles: Why community health workers need to drive proactive careYour Health's shift toward specialty divisions and wellness clinicsThe staggering ROI of early interventions: $1.1 million in bonuses justifiedWhy United Healthcare and others may be falling behind on data access www.YourHealth.Org

JAMA Network
JAMA Oncology : Proportional Sedation for Persistent Agitated Delirium in Palliative Care

JAMA Network

Play Episode Listen Later Jul 31, 2025 17:43


Interview with David Hui, MD, and Eduardo Bruera, MD, authors of Proportional Sedation for Persistent Agitated Delirium in Palliative Care: A Randomized Clinical Trial. Hosted by Vivek Subbiah, MD. Related Content: Proportional Sedation for Persistent Agitated Delirium in Palliative Care

ASCO Daily News
What Is Precision Palliative Care? Rethinking a Care Delivery Problem

ASCO Daily News

Play Episode Listen Later Jul 31, 2025 28:05


Dr. Joseph McCollom and Dr. Ramy Sedhom discuss precision palliative care, a new strategy that aims to align palliative care delivery with patient and caregiver needs instead of diagnosis alone. TRANSCRIPT ADN Podcast Episode 8-22 Transcript: What Is Precision Palliative Care? Rethinking a Care Delivery Problem Dr. Joseph McCollom: Hello and welcome to the ASCO Daily News Podcast. I'm your guest host, Dr. Joseph McCollom. I'm a GI medical oncologist and palliative oncologist at the Parkview Packnett Family Cancer Institute here in Fort Wayne, Indiana. So, the early benefits of palliative care for patients with cancer have been well documented, but there are challenges in terms of bandwidth to how do we provide this care, given the workforce shortages in the oncology field. So today, we'll be exploring a new opportunity known as precision palliative care, a strategy that aims to align care delivery with patient and caregiver needs and not just diagnosis alone. Joining me for this discussion is Dr. Ramy Sedhom. He is the medical director of oncology and palliative care at Penn Medicine Princeton Health and a clinical assistant professor of medicine at the University of Pennsylvania Perelman School of Medicine. Our full disclosures are available in the transcript of this episode.  Dr. Sedhom, it's great to have you on the podcast today. Thank you so much for being here. Dr. Ramy Sedhom: Thank you, Joe. It's a pleasure to be here and lucky me to be in conversation with a colleague and friend. Yes, many of us have heard about the benefits of early palliative care. Trials have shown better quality of life, reduced symptoms, and potentially even improved survival. But as we know, the reality is translating that evidence into practice, which is really, really challenging. So Joe, both you and I know that not every patient can see palliative care, or I'd even argue should see palliative care, but that also means there are still many people with real needs who still fall through the cracks. That's why I'm really excited about today's topic, which we'll be discussing, which is precision palliative care. It's a growing shift in mindset from what's this patient's diagnosis or what's this patient's prognosis, to what matters most for this person in front of me right now and what are their individual care needs. I think, Joe, it's very exciting because the field is moving from a blanket approach to one tailored to meet people where they actually are. Dr. Joseph McCollom: Absolutely, Ramy. And I think from the early days when palliative care was kind of being introduced and trying to distinguish itself, I think one of the first models that came to clinicians' eyes was Jennifer Temel's paper in The New England Journal of Medicine in 2010. And her colleagues had really looked at early palliative care integration for patients with advanced non–small cell lung cancer. And in that era – this is a pre-immunotherapy era, very early targeted therapy era – the overall prognosis for those patients are similar to the population I serve as a GI medical oncologist, pancreatic cancer today. Typically, median overall survival of a year or less. And so, a lot of her colleagues really wanted her to track overall survival alongside quality of life and depression scores as a result of that. And it really was a landmark publication because not only did it show an improvement of quality of life, but it actually showed an improvement of overall survival. And that was really, I think, revolutionary at the time. You know, a lot of folks had talked about if this was a drug, the FDA would approve it. We all in GI oncology laugh about erlotinib, which got an FDA approval for a 2-week overall survival advantage. And so, it really kind of set the stage for a lot of us in early career who had a passion in the integration of palliative care and oncology. And I think a lot of the subsequent ASCO, NCCN, COC, Commission on Cancer, guidelines followed through with that. But I think what we realized is now we're kind of sitting center stage, there's still a lot of resource issues that if we sent a referral to palliative care for every single patient diagnosed with even an advanced cancer, we would have a significant workforce shortage issue. And so, Ramy, I was wondering if you could talk a little bit about how do we help center in on who are the right patients that are going to have the greatest benefit from a palliative care specialist intervention? Dr. Ramy Sedhom: Thanks, Joe. Great question. So you mentioned Dr. Temel's landmark 2010 trial published in the New England Journal of Medicine. And it is still a game changer in our field. The results of her work showed not only improved quality of life and mood, but I think very surprisingly at the time, a survival benefit for patients with lung cancer who had received early palliative care. That work, of course, has helped shape national guidelines, as you've shared, and it also helped define early, as within 8 weeks of diagnosis. But unfortunately, there remains a disconnect. So in clinical practice, using diagnosis or stage as the only referral trigger doesn't really match the needs that we see show up. And I think unfortunately, the other part is that approach creates a supply demand mismatch. We end up either referring more patients than palliative care teams can handle, or at the opposite extreme, we end up referring no one at all. So, I actually just wanted to quickly give, for example, two real world contrasts. So one center that I actually have friends who work in, tried as a very good quality improvement incentive, auto-refer all patients with stage IV pancreas cancer to palliative care teams. And while very well intentioned, they saw very quickly that in a two-month period, they had 30 new referrals. And on the palliative care side, there were only 15 available new patient slots. On the other hand, something that I often see in practice, is a situation where, for example, consider the case of a 90-year-old with a low-grade B-cell lymphoma. On paper, low-risk disease, but unfortunately, when you look under the microscope, this gentleman is isolated, has symptoms from his bulky adenopathy, and feels very overwhelmed by many competing illnesses. This is someone who, of course, may benefit from palliative care, but probably doesn't check the box. And I think this is where the model of precision palliative care steps in. It's not really about when was someone diagnosed or what is the prognosis or time-based criteria of their cancer, but it's really fundamentally asking the question of who needs help, what kind of help do they need, and how urgently do we need to provide this help? And I think precision palliative care really mirrors the logic and the philosophy of precision oncology. So just like we've made strides trying to match therapies to tumor biology, we also need to have the same attention and the same precision to match support to symptoms, to context of a patient situation and their caregiver, and also to their personal goals. So I think instead of a blanket referral, we really need to tailor care, the right support at the right moment for the right person to the right care teams. And I think to be more precise, there's really four core elements to allow us to do this well. So first, we really need to implement systematic screening. Let's use what we already have. Many of our centers have patient reported outcomes. The Commission on Cancer motivates us to use distress screening tools. And the EHR is there, but we do very little to flag and to surface unmet care needs. We have seen amazing work from people like Dr. Ethan Bash, who is the pioneer on patient-reported outcomes, and Dr. Ravi Parikh, who used to be my colleague at Penn, now at Emory, who show that you could use structured data and machine learning to identify some of these patient needs in real time. The second piece is after a systematic screening, we really need to build very clear referral pathways. One very good example is what the supportive care team at MD Anderson has done, of course, led by Dr. Eduardo Brera and Dr. David Huey, where they have, for example, designed condition-specific triggers. Urgent referrals, for example, to palliative care for severe symptoms, where they talk about it like a rapid response team. They will see them within 72 hours of the flag. But at the same time, if the unmet need is a caregiver distress, perhaps the social work referral is the first part of the palliative care intervention that needs to be placed. And I think this helps create both clarity and consistency but also it pays attention to that provider and availability demand mismatch. Third, I really think we need to triage smartly. As mentioned in the prior example, not every patient needs every team member of the palliative care team. Some benefit most from the behavioral health intervention. Others might benefit from chaplaincy or the clinician for symptom management. And I think aligning intensity with complexity helps us use our teams wisely. Unfortunately, the greatest barrier in all of our health care systems is time and time availability. And I think this is one strategic approach that I have not yet seen used very wisely. And fourth, I really think we need to embrace interdisciplinary care and change our healthcare systems to focus more on value. So this isn't about more consults or RVUs. I think it's really about leveraging our team strengths. Palliative care teams or supportive care teams usually are multidisciplinary in their core. They often have psychologists, social workers, sometimes they have nurse navigators. And I think all of these are really part of that engine of whole person care. But unfortunately, we still are not set up in care delivery systems that unfortunately to this day still model fee for service where the clinician or the physician visit is the only quote unquote real value add. Hopefully as our healthcare systems focus more on delivery and on value, this might help really embrace the structure to bring through the precision palliative care approach. Dr. Joseph McCollom: No, I love those points. You know, we talk frequently in the interdisciplinary team about how a social worker can spend 5 minutes doing something that I could not as a physician spend an hour doing. But does every patient need every member every time? And how do we work as a unified body to deliver that dose of palliative care, specialized palliative care to those right patients and match them? And I think that perfect analogy is in oncology as a medical oncologist, frequently I'm running complex next-generation sequencing paneling on patients' tumors, trying to find out is there a genetic weakness? Is there a susceptibility to a targeted therapy or an immunotherapy so that I can match and do that precision oncology, right patient to the right drug? Similarly, we need to continue to analyze and find these innovative ways like you've talked about, PROs, EHR flags, machine learning tools, to find those right patients and match them to the right palliative care interdisciplinary team members for them. I know we both get to work in oncology spaces and palliative and supportive spaces in our clinical practice. Share a little bit, if you could, Ramy, about what that looks like for your practice. How do you find those right patients? And how do you then intervene with that right palliative oncology dose? Dr. Ramy Sedhom: So Joe, when I first started in this space as a junior faculty, one thing became immediately clear. I think if we rely solely on physicians to identify the patients for palliative care, we're unfortunately going to be very limited by what we individually, personally observe. And I think that's what reflects the reality that many patients have real needs that go unseen. So over the past few years, I've really worked with a lot of my colleagues to really work the health system to change that. The greatest partnership I've personally had has been working with our informatics team to build a real time EHR integrated dashboard that I think helps us give us a broader view of patient needs. What we really think of as the population health perspective. Our dashboard at Penn, for example, pulls in structured data like geriatric assessment results, PHQ-4 screens, patient reported outcomes, whether or not they've been hospitalized, whether or not these hospitalizations are frequent and recurrent. And I think it's allowed us to really move from a reactive approach to one that's more proactive. So let me give you a practical example. So we have embedded in our cancer care team, psycho-oncologists. They share the same clinic space, they're right down the hall. And we actually use this shared dashboard to review weekly trends in distress scores and patient reported outcomes. And oftentimes, if they see a spike in anxiety or worsening symptoms like depression, they'll reach out to me and say, “Hey, I noticed Mrs. Smith reported feeling very anxious today. Do you think it'd be helpful if I joined you for her visit?” And I think that's how we could really use data and teamwork to offer and maximize the right support at the right time. Like many of our other healthcare systems, we also have real-time alerts for hospitalizations. And I think like Dr. Temel's most recent trial, which we'll discuss at some point, I'm sure, it's another key trigger for vulnerability. I think whenever someone's admitted or discharged, we try to coordinate with our palliative care colleagues to assess do they need follow-up and in what timeline. And we know that these are common triggers, progression of disease, hospitalizations, drops in quality-of-life. And it's actually surprisingly simple to implement once you set up the right care structures. And I think these systems don't just help patients, which is what I quickly learned. They also help us as clinicians too. Before we expanded our team, I often felt this weight, especially as someone dual trained in oncology and palliative medicine, as trying to be everything to everyone. I remember one patient in particular, a young woman with metastatic breast cancer who was scheduled for a routine pre-chemo visit with me. Unfortunately, on that day, she had a very dramatic change in function. We whisked her down to x-ray and it revealed a pretty large pathologic fracture in her femur. And suddenly what was scheduled as a 30-minute visit became a very complex conversation around prognosis, urgent need for surgery and many, many life changes. And when I looked at my Epic list, I had a full waiting room. And thankfully, because we have embedded palliative care in our team, I was able to bring in Dr. Collins, the physician who I work with closely, immediately. She spent the full hour with the patient while I was able to continue seeing other patients that morning. And I think that's what team-based care makes possible. It's not just more hands on deck but really optimizing the support the patient needs on each individual day. And I think last, we're also learning a lot from behavioral science. So many institutions like Penn, Stanford, Massachusetts General, they've experimented with a lot of really interesting prompts in the EHR. One of them, for example, is the concept of nodes or the concept of prompt questions. Like, do you think this patient would benefit from a supportive care referral? And I think these low-level nudges, in a sense, can actually really dramatically increase the uptake of palliative care because it makes what's relevant immediately salient and visible to the practicing physician. So I think the key, if I had to maybe finish off with a simple message: It's not flashy tech, it's not massive change against staffing, but it's having a local champion and it's working smarter. It's asking the questions of how can we do this better and setting up the systems to make them more sustainable. Dr. Joseph McCollom: I appreciate you talking about this because I think a lot of folks want to put the wheels on in some way and they don't know where to get started. And so I think some of the models that you've been able to create, being able to track patients, screen your population, find the right individuals, and then work within that team to be able to extend, I think when you have an embedded palliative care specialist in your clinic, they expand your practice as a medical oncologist. And so you can make that warm handoff. And that patient and that caregiver, when they view the experience, they don't view you as a medical oncologist, someone else as a palliative care specialist, they view that team approach. And they said, "The team, my cancer team took care of me." And I think we can really harness a lot of the innovative technological advancements in our EHR to be able to prompt us in this work. I know that Dr. Temel had kind of set the stage for early palliative care intervention, and you did mention her stepped palliative care trial. Where do you see some of the future opportunities as we continue to push the needle forward as oncologists and palliative care specialists? What do you see as being the next step? Dr. Ramy Sedhom: So for those who are not familiar with the stepped palliative care trial, again, work by Dr. Temel, I think it's really important to explain not just the study itself, but I think more importantly, what it's representing for the future of our field. First, I really want to acknowledge Dr. Temel, who is a trailblazer in palliative oncology. Her work has not only shaped how we think about timing and delivery, but really about the value of supportive care. And more importantly, I think for all the young trainees listening, she had shown that rigorous randomized trials in palliative care are possible and meaningful. And I think for me, one quick learning point is that you could be an oncologist and lead this impactful research. And she's inspired many and many of us. Now let's quickly transition to her study. So in this trial, the stepped palliative care trial, patients with advanced lung cancer were randomized into two groups. One group followed the model from her landmark 2010 New England Journal of Medicine paper, which was structured monthly palliative care visits, again, within eight weeks of diagnosis. The second group, which is in this study, the intervention or the stepped palliative care group, received a single early palliative care visit. Think of this as a meet and greet. And then care was actually stepped up. If one of three clinical triggers happened. One, a decline in patient reported quality of life as measured by PROs. Two, disease progression, or three, hospitalization. And the findings which were presented at ASCO 2024 were striking. Clinical outcomes, very similar between the two groups. And this included quality-of-life, end-of-life communication, and resource use. But I think the take-home point is that the number of palliative care visits in the stepped group was significantly lower. So in other words, same impact and fewer visits. This was a very elegant example of how we can model precision palliative care, right sizing patient care based on patient need. So where do we go from here? I think if we want this model to take root nationally, we really need to pull on three key levers: healthcare systems, healthcare payment, and healthcare culture. So from a system alignment, unfortunately, as mentioned too often, the solution to gaps in palliative care is we need more clinicians. And while yes, that's partly true, it's actually not the full picture. I think what we first need to do and what's more likely to be achieved is to develop systems that focus on building the infrastructure that maximizes the reach of our existing care teams. So this means investing in nurse navigation, real-time dashboards with patient-reported outcomes and EHR flags, and again, matching triage protocols where intensity matches complexity. And the goal, as mentioned, isn't to maximize consults, but to really maximize deployment of expertise based on need. The second piece is, of course, we need payment reform. So the stepped palliative care model only works when it allows continuous patient engagement. But unfortunately, current pay models don't reward or incentivize that. In fact, electronic PROs require a very high upfront financial investment and ongoing clinician time with little to no reimbursement. Imagine if we offered bundled payments or value-based incentives for teams that integrated PROs. Or imagine if we reimbursed palliative care based on impact or infrastructure instead of just fee-for-service volume. There is a lot of clear evidence that tele-palliative care is effective. In fact, it was the Plenary at ASCO 2024. Yet we're still battling these conversations around inconsistent reimbursement, and we're always waiting on whether or not telehealth waivers are gonna continue. So I think most importantly is we really need to recognize the broader scope of what palliative care offers, which is caregiver support, improving navigation, coordinating very complex transitions. To me, and what I've always prioritized as a champion at Penn, is that palliative care is not a nice to have, and neither are all of these infrastructures, but they're really essential to whole person care, and they need to be financially supported. And last, we really need a culture shift. We need to change from how palliative care is perceived, and it can't be something other. It can't be something outside of oncology, but it really needs to be embraced as this is part of cancer care itself. I often see hesitancy from many oncologists about introducing palliative care early. But it doesn't need to be a dramatic shift. I think small changes in language, how we introduce the palliative care team, and co-management models can really go a very long way in normalizing this part of patient care. And I'm particularly encouraged, Joe, by one particular innovation in this space, which is really the growth of many startups. And one startup, for example, is Thyme Care, where I've seen them working with many, many private practices across the country, alongside partnerships with payers to really build tech-enabled navigation that tries to basically maximize triage support with electronic PROs. And to me, I really think these models can help scale access without overwhelming current care teams. So precision palliative care, Joe, in summary, I think should be flexible, scalable, and really needs to align based on what patients need. Dr. Joseph McCollom: No, I really appreciate, Ramy, you talking about that it really takes a village to get oncology care in both a competent and a compassionate way. And we need buy-in champions at all levels: the system level, the administrative level, the policy level, the tech level. And we need to change culture. I kind of want to just get your final impressions and also make sure that we make our listeners aware of our article. We should be able to have this in the show notes here as well to find additional tools and resources, all the studies that were discussed in today's episode. But, Ramy, what are some of your kind of final takeaways and conclusions? Dr. Ramy Sedhom: Before we wrap up, I just want to make sure we highlight a very exciting opportunity for residents considering a future in oncology and palliative medicine. Thanks to the leadership of Dr. Jamie Von Roen, who truly championed this cause, ASCO and the ABIM (American Board of Internal Medicine) have partnered to create the first truly integrated palliative care oncology fellowship. Trainees can now double board in just two years or triple board in three with palliative care, oncology, and hematology. And I think, Joe, as you and I both know, it's incredibly rewarding and meaningful to work at this intersection. To close our message, if there's one message I think listeners should carry with them, it's that palliative care is about helping people live as well as possible for as long as possible. And precision palliative care simply helps us do that better. We need to really develop systems that tailor support to individual need, value, and individual goals. Just like our colleagues in precision oncology mentioned, getting the right care to the right patient at the right time, and I would add in the right way. For those who want to learn more, I encourage you to read our full article in JCO, which is “Precision Palliative Care As a Pragmatic Solution for a Care Delivery Problem.” Joe, thank you so, so much for this thoughtful conversation and for your leadership in our field. And thank you to everyone for listening. Thank you all for being champions of this essential part of cancer care. If you haven't yet joined the ASCO Palliative Care Communities of Practice, membership is free, and we'd love to have you. Dr. Joseph McCollom: Thank you, Ramy, not only for sharing your insights today, but the pioneering work that you have done in our field. You are truly an inspiration to me in clinical practice, and it is an honor to call you both a colleague and friend.  And thank you for our listeners for joining us today. If you value the insights that you've heard on the ASCO Daily News Podcast, please subscribe, rate, and review wherever you get your podcasts. Thanks again. Disclaimer: The purpose of this podcast is to educate and to inform. This is not a substitute for professional medical care and is not intended for use in the diagnosis or treatment of individual conditions. Guests on this podcast express their own opinions, experience, and conclusions. Guest statements on the podcast do not express the opinions of ASCO. The mention of any product, service, organization, activity, or therapy should not be construed as an ASCO endorsement. Follow today's speakers:   Dr. Joseph McCollom @realbowtiedoc Dr. Ramy Sedhom @ramsedhom Follow ASCO on social media:   @ASCO on X (formerly Twitter) ASCO on Bluesky  ASCO on Facebook   ASCO on LinkedIn   Disclaimer: Dr. Joseph McCollom: No relationships to disclose Dr. Ramy Sedhom: No relationships to disclose

JAMA Oncology Author Interviews: Covering research, science, & clinical practice in oncology that improves the care of patien

Interview with David Hui, MD, and Eduardo Bruera, MD, authors of Proportional Sedation for Persistent Agitated Delirium in Palliative Care: A Randomized Clinical Trial. Hosted by Vivek Subbiah, MD. Related Content: Proportional Sedation for Persistent Agitated Delirium in Palliative Care

OffScrip with Matthew Zachary
Meet My Grief: Notes from an Orphaned Teen

OffScrip with Matthew Zachary

Play Episode Listen Later Jul 29, 2025 43:41


Lexi Silver is 15 years old. She lost both of her parents before she turned 11. That should tell you enough—but it doesn't. Because Lexi isn't here for your pity. She's not a sob story. She's not a trauma statistic. She's a writer, an advocate, and one of the most emotionally intelligent people you'll ever hear speak into a microphone.In this episode, Lexi breaks down what grief actually feels like when you're a kid and the adults around you just don't get it. She talks about losing her mom on Christmas morning, her dad nine months later, how the system let her down, and how Instagram trolls tell her she's faking it for attention. She also explains why she writes, what Experience Camps gave her, how she channels anger into poems, and what to say—and not say—to someone grieving.Her life isn't a Netflix drama. But it should be.And by the way, she's not “so strong.” She's just human. You'll never forget this conversation.RELATED LINKS• Lexi on Instagram: @meet.my.grief• Buy her book: The Girl Behind Grief's Shadow• Experience CampsFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Compassion & Courage: Conversations in Healthcare
Humility, Compassion, and Understanding in Healthcare with Beth Cavenaugh

Compassion & Courage: Conversations in Healthcare

Play Episode Listen Later Jul 28, 2025 31:41


In this episode of Compassion & Courage, Marcus Engel speaks with Beth Cavenaugh, a longtime hospice nurse, about her journey into nursing, the importance of compassionate communication, and the role of narrative medicine in healthcare. They discuss the challenges of end-of-life care, the significance of hospice support, and how to navigate difficult conversations with patients and families. Beth shares personal stories that highlight the power of being present for patients and the emotional impact of caregiving. The conversation emphasizes the need for humility, compassion, and understanding in healthcare.Resources for you: More communication tips and resources for how to cultivate compassion: https://marcusengel.com/freeresources/Connect with Marcus on LinkedIn: https://www.linkedin.com/in/marcusengel/ Connect with Beth on LinkedIn: https://www.linkedin.com/in/beth-cavenaugh/ Learn more about Beth and her Books: https://www.bethcavenaugh.comLearn more about Hopewell House: https://hopewellhousepdx.org/ Learn more about Marcus' Books: https://marcusengel.com/store/ Subscribe to our podcast through Apple: https://bit.ly/MarcusEngelPodcast Subscribe to our podcast through YouTube: https://bit.ly/Youtube-MarcusEngelPodcastAbout Beth Cavenaugh:I have been a nurse for 28 years and am certified in Hospice and Palliative Care (since 2009). I helped to take care of my mom when she died in 1998 and realized the profound nature of this work and the difficulties of caring for someone you love. I started working as a hospice nurse in 2006 and continue to feel a deep call to this work. Presently, I am studying at Columbia University to attain a Master's in Narrative Medicine.I write and educate about end-of-life care because I hope to demystify death and dying so that more people will walk toward this powerful life event rather than run away from it. I want everyone to exit this world knowing their wishes will be respected, they will be taken care of, and they will be comfortable in the final stage of their beautiful life.Date: 6/2/2025 Name of show: Compassion & Courage: Conversations in Healthcare Episode number and title: Episode 171 – Humility, Compassion, and Understanding in Healthcare. – With Beth Cavenaugh RN, BSN, CHPN

Prairie Doc Radio
PDR 2025-07-28 Grief, Hospice, & Palliative Care - Dr. Kelly Evans-Hullinger

Prairie Doc Radio

Play Episode Listen Later Jul 28, 2025 53:22


Prairie Doc Kelly Evans-Hullinger talks about grief, hospice, and palliative care and the many resources available to help individuals experiencing loss.

CE Podcasts for Nurses
Holistic Approaches in Palliative Care

CE Podcasts for Nurses

Play Episode Listen Later Jul 28, 2025 59:45 Transcription Available


This is a special one-episode podcast: Holistic Approaches in Palliative CareSUMMARY: This episode explores the foundational elements of holistic palliative care, emphasizing the importance of addressing physical, emotional, and spiritual needs in patient care. Healthcare professionals will gain insight into assessing holistic needs, using non-pharmacological methods for pain management, and incorporating complementary therapies into care plans.This episode focuses on the emotional, psychological, nutritional, and spiritual aspects of holistic palliative care. Listeners will gain insight into how healthcare teams can support patients and families through diverse interventions, foster meaningful connections, and address challenges in implementing holistic care practices.  ---Nurses may be able to complete an accredited CE activity featuring content from this podcast and earn CE hours provided from Elite Learning by Colibri Healthcare. For more information, click hereAlready an Elite Member? Login hereLearn more about CE Podcasts from Elite Learning by Colibri HealthcareView Episode TranscriptView this podcast course on Elite LearningSeries: Holistic Approaches in Palliative Care

Duke Theology, Medicine, and Culture initiative
"The Uncanny Valley Remaining Human in Healthcare" with Joshua Briscoe, MD

Duke Theology, Medicine, and Culture initiative

Play Episode Listen Later Jul 27, 2025 57:52


A problem plagues modern healthcare: machines are setting the standard of care, and human clinicians are struggling to keep up. Artificial intelligence will only make this worse. The technical mindset fragments patient care and draws us further from shalom even as pursue surrogate markers that are meant to restore health. How can we, as Christian clinicians, respond wisely and well to this problem? One response is found in the story of the God's people in the Bible, specifically in the story of Israel's adoption into the family of God. The Theology, Medicine, and Culture Initiative (TMC) at Duke Divinity School and the Trent Center for Bioethics, Humanities & History of Medicine at Duke co-sponsored this seminar entitled "The Uncanny Valley: Remaining Human in Healthcare" on November 8, 2024 with Dr. Joshua Briscoe. Joshua Briscoe, MD is a Hospice and Palliative Care physician at the Durham VA Medical Center where he also serves on the Ethics Consultation Service. He's an assistant professor of Medicine and of Psychiatry and Behavioral Sciences at Duke University School of Medicine, and faculty associate with the Trent Center for Bioethics, Humanities and History of Medicine. He writes about issues at the intersection of medicine, technology, and moral formation in a monthly newsletter entitled Notes from a Family Meeting.

David Jackson Productions
Cutting the Ribbon on AMOREM's new In-Patient Hospice Care Facility in the High Country

David Jackson Productions

Play Episode Listen Later Jul 24, 2025 40:59


Over the years the types of health care offerings in the High Country have continued to evolve. On Friday, July 25th, AMOREM, formerly Caldwell Hospice and Palliative Care, will mark the opening of a state-of-the-art in-patient care facility in Watauga County, serving the needs of the entire High Country region.On this week's Mind Your Business, we visit with Kerri McFalls, Chief Growth & Development Officer with AMOREM, as we discuss what this type of facility can provide to patients and families in terms of end of life and respite care, and the types of jobs it takes to manage such an operation. We'll go over the details for a special community celebration of the dedication of this facility and we'll discuss ways to continue to fundraise toward the goals AMOREM has set for its growing Watauga campus. ** Special programming note -- there is a slight bit of digital noise during small portions of our interview that was caused by a passing summer storm here in the High Country. It's not your connection -- it's Mother Nature trying to insert herself in our conversation! **Mind Your Business is written and produced weekly by the Boone Area Chamber of Commerce. This podcast is made possible thanks to the sponsorship support of Appalachian Commercial Real Estate.Catch the show each Thursday afternoon at 5PM on WATA (1450AM & 96.5FM) in Boone.Support the showSupport the show

The Mike Hosking Breakfast
Catherine D'Souza: ANZ Society of Palliative Medicine Chair on New Zealand's palliative care system dropping to rank 12th in the world

The Mike Hosking Breakfast

Play Episode Listen Later Jul 24, 2025 2:01 Transcription Available


Our palliative care system may be waning as demand grows, prompting a push for action. We've fallen from third in the world in palliative care access ten years ago, to 12th place. An article in the New Zealand Medical Journal finds we have less than a third of the recommended number of specialists per capita, and many are nearing retirement. Author Dr Catherine D'Souza told Mike Hosking that we lack the funding to train more specialists, despite having ample opportunity and space to do so. She says that the number of people dying is going to double in the next thirty years, and if we don't take action quickly, already struggling health services are going to struggle even more and fall apart. LISTEN ABOVE See omnystudio.com/listener for privacy information.

TCN Talks
A Strategic Path Forward for Hospice and Palliative Care with Dr. Ira Byock

TCN Talks

Play Episode Listen Later Jul 23, 2025 62:20 Transcription Available


Is Hospice Care losing its soul?  Dr. Ira Byock thinks so, and after months of soul-searching work, he's offering us the roadmap back to our roots.In this episode, Dr. Ira Byock discusses the current state of Hospice and Palliative Care, emphasizing the need for reform and improvement in the field.  He and Chris spend time unpacking Dr. Byock's recently released seminal work, “A Strategic Path Forward for Hospice and Palliative Care: A White Paper on the Potential Future of the Field. This conversation tackles the uncomfortable truth: corporatization is eroding the core values of our field.  Dr. Byock highlights the challenges posed by the corporatization of healthcare, particularly in hospice and palliative care, and emphasizes the importance of maintaining high-quality care for patients and their families.  Dr. Byock presents a strategic framework that all of us in hospice and palliative care can draw from to chart a path forward. That framework includes:Publishing clear clinical and programmatic standardsMaking meaningful data readily availableDriving quality-based competitionEmbracing the field's authentic brand of expert care that fosters well-being for patients and their familiesThis episode is more than a discussion—it's a wake-up call for every leader, clinician, and team member in Hospice and Palliative Care.  Listen now.  Share it with your Board.  And be part of the movement to safeguard the future of this essential work.Guest: Dr. Ira Byock, MD, FAAHPM, is a leading palliative care physician, author, and public advocate for improving care through the end of lifeHost:  Chris Comeaux, President / CEO of TELEIOShttps://www.teleioscn.org/tcntalkspodcast/a-strategic-path-forward-for-hospice-and-palliative-care-with-dr.-ira-byockTeleios Collaborative Network / https://www.teleioscn.org/tcntalkspodcast

OffScrip with Matthew Zachary
The Cancer Fun House: Michele Andrews

OffScrip with Matthew Zachary

Play Episode Listen Later Jul 22, 2025 41:39


Michelle Andrews built a career inside the pharma machine long before anyone knew what “DTC” meant. She helped launch Rituxan and watched Allegra commercials teach America how to ask for pills by name. Then she landed in the cancer fun house herself, stage 4 breast cancer, and learned exactly how hollow all the “journey” slide decks feel when you're the one circling the drain.We talk about what happens when the insider becomes the customer, why pill organizers and wheat field brochures still piss her off, and how she fired doctors who couldn't handle her will to live. You'll hear about the dawn of pharma advertising, the pre-Google advocacy hustle, and what she wants every brand team to finally admit about patient experience.If you've ever wondered who decided windsurfing was the best way to sell allergy meds—or what happens when you stop caring if you make people uncomfortable—listen up.RELATED LINKSMichelle Andrews on LinkedInTrinity Life Sciences – Strategic AdvisoryJade Magazine – Ticking Time Bombs ArticleNIHCM Foundation – Breast Cancer StoryFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

BackTable Urology
Ep. 249 Palliative Care in Urology with Dr. Pauline Filippou and Dr. Ashwin Kotwal

BackTable Urology

Play Episode Listen Later Jul 22, 2025 40:21


Often misunderstood as end-of-life care, palliative care is actually about improving quality of life at any stage of serious illness. In this episode of BackTable Urology, Dr. Ashwin Kotwal, a geriatrician and palliative care physician at UCSF, and Dr. Pauline Filippou, a urologic oncologist at Kaiser Permanente in Northern California join hosts Dr. Gina Badalato and Dr. Lindsay Hampson to discuss the importance of palliative care in the field of urology. --- SYNPOSIS The episode covers how palliative care can improve quality of life for patients with serious illnesses, the challenges and opportunities of integrating palliative care into urology practice, and specific training resources and frameworks for effective communication and symptom management. From addressing common misconceptions to providing practical advice on implementing palliative care, this episode is an essential guide for trainees and urology professionals looking to deepen their understanding of palliative care and enhance their practice. --- TIMESTAMPS 00:00 - Introduction03:04 - Understanding Palliative Care04:43 - Misconceptions and Communication Strategies07:45 - Integrating Palliative Care in Urology10:26 - Collaborative Approaches and Multidisciplinary Teams15:48 - Training and Education for Trainees20:25 - Effective Communication Techniques28:18 - Impact of Palliative Care34:33 - Final Thoughts and Takeaways --- RESOURCES Center to Advance Palliative Care website:https://www.capc.org/ AUA White Paper: https://www.auanet.org/documents/guidelines/white%20papers/postoperative.pdf VitalTalk:https://www.vitaltalk.org/ Eliciting the Patient's Agenda- Secondary Analysis of Recorded Clinical Encounters: https://link.springer.com/article/10.1007/s11606-018-4540-5 Family Meetings on Behalf of Patients with Serious Illness: https://www.nejm.org/doi/full/10.1056/NEJMvcm1913056

The Superhumanize Podcast
The Courage to Live Fully: Dr. Hsien Seow on Final Days, Mortality, and Finding Meaning Beyond Fear

The Superhumanize Podcast

Play Episode Listen Later Jul 21, 2025 54:54


Welcome back to The Superhumanize Podcast. I am so deeply honored to have you with me today for a conversation that is close to the very core of what it means to be human.My guest is Dr. Hsien Seow, Canada Research Chair in Palliative Care and Health System Innovation, Professor at McMaster University, and one of the foremost voices reimagining how we approach serious illness and end-of-life care. His work transcends the medical system, inviting us to see palliative care not as surrender, but as a path to reclaiming agency, dignity, and meaning, even, and perhaps especially, in life's most vulnerable chapters.Dr. Seow's book, Hope for the Best, Plan for the Rest, co-authored with Dr. Samantha Winemaker, is a guide to navigating life-changing diagnoses with clarity, courage, and grace. It offers seven keys to transform the illness journey from one of fear and disempowerment to one of hope and preparedness.In today's conversation, we explore the paradigm shifts needed in healthcare, the deeper truths mortality can teach us about life, and how we can each become active architects of our own experience, even when the path ahead feels out of our control.This episode is about much more than palliative care. It is about what it means to live fully awake to our finite nature, and to love, decide, and be present with the preciousness of this human life.Episode Highlights:02:30 – Realizing a disconnect: the moment Hsien noticed future doctors weren't trained to talk about dying, sparking his mission to change the system.04:00 – What palliative care really means: an approach that centers on the full human experience—emotional, spiritual, social—not just medical intervention.06:30 – Why timing matters: most people meet palliative care too late. Hsien and his colleague Dr. Sammy Winemaker push for earlier integration.07:15 – The key concept: “Hope for the best, plan for the rest” — balancing optimism with informed planning.08:30 – Reclaiming power from the medical system: how patients and families can move from passive to activated roles.10:00 – “Zooming out” to see the big picture: why asking what stage you're in is essential to living fully.12:15 – How to move from silence to agency: the role of courageous conversations in healing.14:45 – The ripple effect: illness doesn't just affect the patient—it shapes families and communities.16:30 – Family dynamics and understanding: how knowing someone's coping style reduces conflict and increases compassion.20:00 – What to do when the patient avoids discussion: using gentle invitations instead of confrontations.25:00 – Real-life application: how Hsien's own family used these principles to navigate care with love and tact.27:30 – Cultural myths and medical systems: how we've lost the communal experience of dying and what needs to change.30:15 – Reframing grief and loss: learning from everyday changes how to prepare for bigger transitions.32:30 – Dying as sacred: honoring diversity in spiritual beliefs and values through customized care.34:45 – The invisible load: recognizing and supporting family caregivers before burnout sets in.38:30 – Revisiting roles and expectations: how adaptability sustains families through long-term illness.40:00 – Everyday palliative care: acts of love like cooking, walking a pet, or simply being present.42:00 – Customize your order: bringing your whole self—values, beliefs, and personality—into your care.44:30 – One key question: “What do I need to know about you to give you the best...

Prolonged Fieldcare Podcast
Prolonged Field Care Podcast 239: End of Life Care

Prolonged Fieldcare Podcast

Play Episode Listen Later Jul 21, 2025 69:06


The conversation delves into the complexities of end of life care in combat settings, emphasizing the need for palliative care discussions among military medical personnel. It highlights the challenges faced in recognizing non-survivable injuries, the decision-making process in resuscitation efforts, and the importance of compassionate care for both patients and their loved ones. The discussion also touches on the role of opioids in managing pain and anxiety during end of life care, advocating for a shift in focus from aggressive treatment to comfort and dignity for the patient.TakeawaysEnd of life care is a critical conversation in military medicine.Palliative care is often overlooked in combat settings.Recognizing non-survivable injuries is essential for effective care.Decision-making in resuscitation requires courage and leadership.Compassionate care benefits both the patient and their loved ones.Opioids play a significant role in managing pain in palliative care.Transitioning to palliative care is a necessary step in certain cases.Medical providers must educate themselves on end of life care.Patient autonomy should be respected in decision-making.Compassionate care can alleviate the emotional burden on medical providers.Chapters00:00 Introduction to End of Life Care in Combat02:34 The Challenges of Palliative Care in Military Settings09:57 Recognizing Non-Survivable Injuries19:08 Decision-Making in Resuscitation Efforts35:49 Transitioning to Palliative Care43:03 The Role of Opioids in Palliative Care53:18 Compassionate Care and Patient AutonomyThank you to Delta Development Team for in part, sponsoring this podcast.⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠deltadevteam.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠For more content, go to ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.prolongedfieldcare.org⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Consider supporting us: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠patreon.com/ProlongedFieldCareCollective⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ or ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.lobocoffeeco.com/product-page/prolonged-field-care

OffScrip with Matthew Zachary
D.A.M.M. Good Trouble: Ann Marie Morse

OffScrip with Matthew Zachary

Play Episode Listen Later Jul 15, 2025 43:12


Dr. Anne Marie Morse walks into the studio like a one-woman Jersey Broadway show and leaves behind the best damn TED Talk you've never heard. She's a neurologist, sleep medicine doc, narcolepsy expert, founder of D.A.M.M. Good Sleep, and full-time myth buster in a white coat. We talk about why sleep isn't a luxury, why your mattress does matter, and how melatonin is the new Flintstones vitamin with a marketing budget. We unpack the BS around sleep hygiene, blow up the medical gaslighting around “disorders,” and dig into how a former aspiring butterfly became one of the loudest voices for patient-centered science. Also: naps, kids, burnout, CPAPs, co-sleeping, airport pods, the DeLorean, and Carl Sagan. If you think you're getting by on five hours of sleep and vibes, you're not. This episode will make you want to take a nap—and then call your doctor.RELATED LINKSdammgoodsleep.com: https://www.dammgoodsleep.comLinkedIn: https://www.linkedin.com/in/anne-marie-morse-753b2821/Instagram: https://www.instagram.com/dammgoodsleepDocWire News Author Page: https://www.docwirenews.com/author/anne-marie-morseSleep Review Interview: https://sleepreviewmag.com/practice-management/marketing/word-of-mouth/sleep-advocacy-anne-marie-morse/Geisinger Bio: https://providers.geisinger.org/provider/anne-marie-morse/756868SWHR Profile: https://swhr.org/team/anne-marie-morse-do-faasm/FEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

End-of-Life University
Ep. 509 A Future Path for Hospice and Palliative Care with Ira Byock MD

End-of-Life University

Play Episode Listen Later Jul 14, 2025 57:23


Learn about Dr. Ira Byock’s strategic vision for approaching the major issues facing hospice and palliative care. My guest Dr. Ira Byock is a leading palliative care physician, author, and public advocate for improving care through the end of life. He is the author of the books Dying Well, The Four Things that Matter Most,… Continue reading Ep. 509 A Future Path for Hospice and Palliative Care with Ira Byock MD

ASCO eLearning Weekly Podcasts
Oncology and Suffering: Strategies on Coping with Grief for Health Care Professionals

ASCO eLearning Weekly Podcasts

Play Episode Listen Later Jul 14, 2025 33:26


Drs. Hope Rugo, Sheri Brenner, and Mikolaj Slawkowski-Rode discuss the struggle that health care professionals experience when terminally ill patients are suffering and approaches to help clinicians understand and respond to suffering in a more patient-centered and therapeutic way. TRANSCRIPT Dr. Hope Rugo: Hello, and welcome to By the Book, a monthly podcast series from ASCO that features engaging conversations between editors and authors of the ASCO Educational Book.  I'm your host, Dr. Hope Rugo. I'm director of the Women's Cancers Program and division chief of breast medical oncology at the City of Hope Cancer Center, and I'm also the editor-in-chief of the Educational Book. On today's episode, we'll be exploring the complexities of grief and oncology and the struggle we experience as healthcare professionals when terminally ill patients are suffering. Our guests will discuss approaches to help clinicians understand and respond to suffering in a more patient-centered and therapeutic way, as outlined in their recently published article titled, “Oncology and Suffering: Strategies on Coping With Grief for Healthcare Professionals.” I'm delighted today to welcome Dr. Keri Brenner, a clinical associate professor of medicine, palliative care attending, and psychiatrist at Stanford University, and Dr. Mikołaj Sławkowski-Rode, a senior research fellow in philosophy in the Humanities Research Institute at the University of Buckingham, where he also serves as director of graduate research in p hilosophy. He is also a research fellow in philosophy at Blackfriars Hall at the University of Oxford and associate professor at the University of Warsaw.  Our full disclosures are available in the transcript of this episode. Dr. Brenner and Dr. Sławkowski-Rode, thanks for being on the podcast today. Dr. Keri Brenner: Great to be here, Dr. Rugo. Thank you so much for that kind introduction. Dr. Mikołaj Sławkowski-Rode: Thank you very much, Dr. Rugo. It's a pleasure and an honor. Dr. Hope Rugo: So I'm going to start with some questions for both of you. I'll start with Dr. Brenner. You've spoken and written about the concept of suffering when there is no cure. For oncologists, what does it mean to attune to suffering, not just disease? And how might this impact the way they show up in difficult conversations with patients? Dr. Keri Brenner: Suffering is something that's so omnipresent in the work of clinical oncology, and I like to begin by just thinking about what is suffering, because it's a word that we use so commonly, and yet, it's important to know what we're talking about. I think about the definition of Eric Cassell, who was a beloved mentor of mine for decades, and he defined suffering as the state of severe distress that's associated with events that threaten the intactness of a person. And my colleague here at Stanford, Tyler Tate, has been working on a definition of suffering that encompasses the experience of a gap between how things are versus how things ought to be. Both of these definitions really touch upon suffering in a person-centered way that's relational about one's identity, meaning, autonomy, and connectedness with others. So these definitions alone remind us that suffering calls for a person-centered response, not the patient as a pathology, but the panoramic view of who the patient is as a person and their lived reality of illness. And in this light, the therapeutic alliance becomes one of our most active ingredients in care. The therapeutic alliance is that collaborative, trusting bond as persons that we have between clinician and patient, and it's actually one of the most powerful predictors of meaningful outcomes in our care, especially in oncologic care.  You know, I'll never forget my first day of internship at Massachusetts General Hospital. A faculty lecturer shared this really sage insight with us that left this indelible mark. She shared, “As physicians and healers, your very self is the primary instrument of healing. Our being is the median of the medicine.” So, our very selves as embodied, relationally grounded people, that's the median of the medicine and the first most enduring medicine that we offer. That has really borne fruit in the evidence that we see around the therapeutic alliance. And we see this in oncologic care, that in advanced cancer, a strong alliance with one's oncologist truly improves a patient's quality of life, treatment adherence, emotional well-being, and even surpasses structured interventions like psychotherapeutic interventions. Dr. Hope Rugo: That's just incredibly helpful information and actually terminology as well, and I think the concept of suffering differs so much. Suffering comes in many shapes and forms, and I think you really have highlighted that. But many oncologists struggle with knowing what to do when patients are suffering but can't be fixed, and I think a lot of times that has to do with oncologists when patients have pain or shortness of breath or issues like that. There are obviously many ways people suffer. But I think what's really challenging is how clinicians understand suffering and what the best approaches to respond to suffering are in the best patient-centered and therapeutic way. Dr. Keri Brenner: I get that question a lot from my trainees in palliative care, not knowing what to do. And my first response is, this is about how to be, not about knowing what to do, but how to be. In our medical training, we're trained often how to think and treat, but rarely how to be, how to accompany others. And I often have this image that I tell my trainees of, instead of this hierarchical approach of a fix-it mentality of all we're going to do, when it comes to elements of unavoidable loss, mortality, unavoidable sufferings, I imagine something more like accompaniment, a patient walking through some dark caverns, and I am accompanying them, trying to walk beside them, shining a light as a guide throughout that darkness. So it's a spirit of being and walking with. And it's so tempting in medicine to either avoid the suffering altogether or potentially overidentify with it, where the suffering just becomes so all-consuming like it's our own. And we're taught to instead strike a balance of authentic accompaniment through it. I often teach this key concept in my palli-psych work with my team about formulation. Formulation is a working hypothesis. It's taking a step back and asking, “Why? Why is this patient behaving in this manner? What might the patient's core inner struggle be?” Because asking that “why” and understanding the nuanced dimensions of a patient's core inner struggle will really help guide our therapeutic interactions and guide the way that we accompany them and where we choose to shine that light as we're walking with them. And oftentimes people think, “Well Keri, that sounds so sappy or oversentimental,” and it's not. You know, I'm just thinking about a case that I had a couple months ago, and it was a 28-year-old man with gastric cancer, metastatic disease, and that 28-year-old man, he was actually a college Division I athlete, and his dad was an acclaimed Division I coach. And our typical open-ended palliative care questions, that approach, infuriated them. They needed to know that I was showing up confident, competent, and that I was ready, on my A-game, with a real plan for them to follow through. And so my formulation about them was they needed somebody to show up with that confidence and competence, like the Division I athletes that they were, to really meet them and accompany them where they were on how they were going to walk through that experience of illness. Dr. Hope Rugo: These kinds of insights are so helpful to think about how we manage something that we face every day in oncology care. And I think that there are many ways to manage this.  Maybe I'll ask Dr. Sławkowski-Rode one question just that I think sequences nicely with what you're talking about.  A lot of our patients are trying to think about sort of the bigger picture and how that might help clinicians understand and support patients. So, the whole concept of spirituality, you know, how can we really use that as oncology clinicians to better understand and support patients with advanced illness, and how can that help patients themselves? And we'll talk about that in two different ways, but we'll just start with this broader question. Dr. Mikołaj Sławkowski-Rode: I think spirituality, and here, I usually refer to spirituality in terms of religious belief. Most people in the world are religious believers, and it is very intuitive and natural that religious beliefs would be a resource that people who help patients with a terminal diagnosis and healthcare professionals who work with those patients appeal to when they try to help them deal with the trauma and the stress of these situations.  Now, I think that the interesting thing there is that very often the benefit of appealing to a religious belief is misunderstood in terms of what it delivers. And there are many, many studies on how religious belief can be used to support therapy and to support patients in getting through the experience of suffering and defeating cancer or facing a terminal diagnosis. There's a wealth of literature on this. But most of the literature focuses on this idea that by appealing to religious belief, we help patients and healthcare practitioners who are working with them get over the fact and that there's a terminal diagnosis determining the course of someone's life and get on with our lives and engaging with whatever other pursuits we might have, with our job if we're healthcare practitioners, and with the other things that we might be passionate about in our lives. And the idea here is that this is what religion allows us to do because we sort of defer the need to worry about what's going to happen to us until the afterlife or some perspective beyond the horizon of our life here.  However, my view is – I have worked beyond philosophy also with theologians from many traditions, and my view here is that religion is something that does allow us to get on with our life but not because we're able to move on or move past the concerns that are being threatened by illness or death, but by forming stronger bonds with these things that we value in our life in a way and to have a sense of hope that these will be things that we will be able to keep an attachment to despite the threat to our life. So, in a sense, I think very many approaches in the field have the benefit of religion upside down, as it were, when it comes to helping patients and healthcare professionals who are engaged with their illness and treating it. Dr. Hope Rugo: You know, it's really interesting the points that you make, and I think really important, but, you know, sometimes the oncologists are really struggling with their own emotional reactions, how they are reacting to patients, and dealing with sort of taking on the burden, which, Dr. Brenner, you were mentioning earlier. How can oncologists be aware of their own emotional reactions? You know, they're struggling with this patient who they're very attached to who's dying or whatever the situation is, but you want to avoid burnout as an oncologist but also understand the patient's inner world and support them. Dr. Keri Brenner: I believe that these affective, emotional states, they're contagious. As we accompany patients through these tragic losses, it's very normal and expected that we ourselves will experience that full range of the human experience as we accompany the patients. And so the more that we can recognize that this is a normative dimension of our work, to have a nonjudgmental stance about the whole panoramic set of emotions that we'll experience as we accompany patients with curiosity and openness about that, the more sustainable the work will become. And I often think about the concept of countertransference given to us by Sigmund Freud over 100 years ago. Countertransference is the clinician's response to the patient, the thoughts, feelings, associations that come up within us, shaped by our own history, our own life events, those unconscious processes that come to the foreground as we are accompanying patients with illness. And that is a natural part of the human experience. Historically, countertransference was viewed as something negative, and now it's actually seen as a key that can unlock and enlighten the formulation about what might be going on within the patient themselves even. You know, I was with a patient a couple weeks ago, and I found myself feeling pretty helpless and hopeless in the encounter as I was trying to care for them. And I recognized that countertransference within myself that I was feeling demoralized. It was a prompt for me to take a step back, get on the balcony, and be curious about that because I normally don't feel helpless and hopeless caring for my patients. Well, ultimately, I discovered through processing it with my interdisciplinary team that the patient likely had demoralization as a clinical syndrome, and so it's natural many of us were feeling helpless and hopeless also accompanying them with their care. And it allowed us to have a greater interdisciplinary approach and a more therapeutic response and deeper empathy for the patient's plight. And we can really be curious about our countertransferences. You know, a few months ago, I was feeling bored and distracted in a family meeting, which is quite atypical for me when I'm sharing serious illness news. And it was actually a key that allowed me to recognize that the patient was trying to distract all of us talking about inconsequential facts and details rather than the gravitas of her illness.  Being curious about these affective states really allows us to have greater sustainability within our own practice because it normalizes that human spectrum of emotions and also allows us to reduce unconscious bias and have greater inclusivity with our practice because what Freud also said is that what we can't recognize and say within our own selves, if we don't have that self-reflective capacity, it will come out in what we do. So really recognizing and having the self-awareness and naming some of these emotions with trusted colleagues or even within our own selves allows us to ensure that it doesn't come out in aberrant behaviors like avoiding the patient, staving off that patient till the end of the day, or overtreating, offering more chemotherapy or not having the goals of care, doing everything possible when we know that that might result in medically ineffective care. Dr. Hope Rugo: Yeah, I love the comments that you made, sort of weaving in Freud, but also, I think the importance of talking to colleagues and to sharing some of these issues because I do think that oncologists suffer from the fact that no one else in your life wants to hear about dying people. They don't really want to hear about the tragic cases either. So, I think that using your community, your oncology community and greater community within medicine, is an important part of being able to sort of process. Dr. Keri Brenner: Yes, and Dr. Rugo, this came up in our ASCO [Education] Session. I'd love to double click into some of those ways that we can do this that aren't too time consuming in our everyday practice. You know, within palliative care, we have interdisciplinary rounds where we process complex cases. Some of us do case supervision with a trusted mentor or colleague where we bring complex cases to them. My team and I offer process rounds virtually where we go through countertransference, formulation, and therapeutic responses on some tough cases.  You know, on a personal note, just last week when I left a family meeting feeling really depleted and stuck, I called one of my trusted colleagues and just for 3 minutes constructively, sort of cathartically vented what was coming up within me after that family meeting, which allowed me to have more of an enlightened stance on what to do next and how to be therapeutically helpful for the case. One of my colleagues calls this "friend-tors." They coined the phrase, and they actually wrote a paper about it. Who within your peer group of trusted colleagues can you utilize and phone in real time or have process opportunities with to get a pulse check on where what's coming up within us as we're doing this work? Dr. Hope Rugo: Yeah, and it's an interesting question about how one does that and, you know, maintaining that as you move institutions or change places or become more senior, it's really important.  One of the, I think, the challenges sometimes is that we come from different places from our patients, and that can be an issue, I think when our patients are very religious and the provider is not, or the reverse, patients who don't have religious beliefs and you're trying to sort of focus on the spirituality, but it doesn't really ring true. So, Dr. Sławkowski-Rode, what resources can patients and practitioners draw on when they're facing death and loss in the absence of, or just different religious beliefs that don't fit into the standard model? Dr. Mikołaj Sławkowski-Rode: You're absolutely right that this can be an extremely problematic situation to be in when there is that disconnect of religious belief or more generally spiritual engagement with the situation that we're in. But I just wanted to tie into what Dr. Brenner was saying just before. I couldn't agree more, and I think that a lot of healthcare practitioners, oncologists in particular who I've had the pleasure to talk to at ASCO and at other events as well, are very often quite skeptical about emotional engagement in their profession. They feel as though this is something to be managed, as it were, and something that gets in the way. And they can often be very critical of methods that help them understand the emotions and extend them towards patients because they feel that this will be an obstacle to doing their job and potentially an obstacle also to helping patients to their full ability if they focus on their own emotions or the burden that emotionally, spiritually, and in other ways the illness is for the patient. They feel that they should be focusing on the cancer rather than on the patient's emotions. And I think that a useful comparison, although, you know, perhaps slightly drastic, is that of combat experience of soldiers. They also need to be up and running and can't be too emotionally invested in the situation that they're in. But there's a crucial difference, which is that soldiers are usually engaged in very short bursts of activity with the time to go back and rethink, and they often have a lot of support for this in between. Whereas doctors are in a profession where their exposure to the emotions of patients and their own emotions, the emotions of families of patients is constant. And I think that there's a great danger in thinking that this is something to be avoided and something to compartmentalize in order to avoid burnout. I think, in a way, burnout is more sure to happen if your emotions and your attachment to your patients goes ignored for too long. So that's just following up on Keri's absolutely excellent points. As far as the disconnect is concerned, that's, in fact, an area in which I'm particularly interested in. That's where my research comes in. I'm interested in the kinds of connections that we have with other people, especially in terms of maintaining bonds when there is no spiritual belief, no spiritual backdrop to support this connection. In most religious traditions, we have the framework of the religious belief that tells us that the person who we've lost or the values that have become undermined in our life are something that hasn't been destroyed permanently but something that we can still believe we have a deep connection to despite its absence from our life. And how do you rebuild that sense of the existence of the things that you have perceivably lost without the appeal to some sort of transcendent realm which is defined by a given religion? And that is a hard question. That's a question, I think, that can be answered partly by psychology but also partly by philosophy in terms of looking at who we are as human beings and our nature as people who are essentially, or as entities that are essentially connected to one another. That connection, I believe, is more direct than the mediation of religion might at first suggest. I think that we essentially share the world not only physically, it's not just the case that we're all here, but more importantly, the world that we live in is not just the physical world but the world of meanings and values that helps us orient ourselves in society and amongst one another as friends and foes. And it is that shared sense of the world that we can appeal to when we're thinking about retaining the value or retaining the connection with the people who we have lost or the people who are helping through, go through an experience of facing death. And just to finish, there's a very interesting question, I think, something that we possibly don't have time to explore, about the degree of connection that we have with other people. So, what I've just been saying is something that rings more true or is more intuitive when we think about the connections that we have to our closest ones. We share a similar outlook onto the world, and our preferences and our moods and our emotions and our values are shaped by life with the other person. And so, appealing to these values can give us a sense of a continued presence. But what in those relationships where the connection isn't that close? For example, given the topic of this podcast, the connection that a patient has with their doctor and vice versa. In what sense can we talk about a shared world of experience? Well, I think, obviously, we should admit degrees to the kind of relationship that can sustain our connection with another person. But at the same time, I don't think there's a clear cutoff point. And I think part of emotional engagement in medical practice is finding yourself somewhere on that spectrum rather than thinking you're completely off of it. That's what I would say. Dr. Hope Rugo: That's very helpful and I think a very helpful way of thinking about how to manage this challenging situation for all of us.  One of the things that really, I think, is a big question for all of us throughout our careers, is when to address the dying process and how to do that. Dr. Brenner, you know, I still struggle with this – what to do when patients refuse to discuss end-of-life but they're very close to end of life? They don't want to talk about it. It's very stressful for all of us, even where you're going to be, how you're going to manage this. They're just absolutely opposed to that discussion. How should we approach those kinds of discussions? How do we manage that? How do you address the code discussion, which is so important? You know, these patients are not able to stay at home at end-of-life in general, so you really do need to have a code discussion before you're admitting them. It actually ends up being kind of a challenge and a mess all around. You know, I would love your advice about how to manage those situations. Dr. Keri Brenner: I think that's one of the most piercing and relevant inquiries we have within our clinical work and challenges. I often think of denial not as an all-or-nothing concept but rather as parts of self. There's a part of everyone's being where the unconscious believes it's immortal and will live on forever, and yet we all know intellectually that we all have mortality and finitude and transience, and that time will end. We often think of this work as more iterative and gradual and exposure based. There's potency to words. Saying, “You are dying within days,” is a lot higher potency of a phrase to share than, “This is serious illness. This illness is incurable. Time might be shorter than we hoped.” And so the earlier and more upstream we begin to have these conversations, even in small, subtle ways, it starts to begin to expose the patient to the concept so they can go from the head to the heart, not only knowing their prognosis intellectually but also affectively, to integrate it into who they are as a person because all patients are trying to live well while also we're gradually exposing them to this awareness of mortality within their own lived experience of illness. And that, ideally, happens gradually over time. Now, there are moments where the medical frame is very limited, and we might have short days, and we have to uptitrate those words and really accompany them more radically through those high-affective moments. And that's when we have to take a lot of more nuanced approaches, but I would say the more earlier and upstream the better. And then the second piece to that question as well is coping with our own mortality. The more we can be comfortable with our own transience and finitude and limitations, the more we will be able to accompany others through that. And even within my own life, I've had to integrate losses in a way where before I go in to talk to one of my own palliative care patients, one mantra I often say to myself is, “I'm just a few steps behind you. I don't know if it's going to be 30 days or 30 years, but I'm just a few steps behind you on this finite, transient road of life that is the human experience.” And that creates a stance of accompaniment that patients really can experience as they're traversing these tragedies. Dr. Hope Rugo: That's great. And I think those are really important points and actually some pearls, which I think we can take into the clinic. I think being really concrete when really the expected life expectancy is a few days to a couple of weeks can be very, very helpful. And making sure the patients hear you, but also continuing to let them know that, as oncologists, we're here for them. We're not abandoning them. I think that's a big worry for many, certainly of my patients, is that somehow when they would go to hospice or be a ‘no code', that we're not going to support them anymore or treat them anymore. That is a really important process of that as well. And of course, engaging the team makes a big difference because the whole oncology team can help to manage situations that are particularly challenging like that. And just as we close, I wanted to ask one last question of you, Dr. Brenner, that suffering, grief, and burnout, you've really made the point that these are not problems to fix but dimensions that we want to attend to and acknowledge as part of our lives, the dying process is part of all of our lives. It's just dealing with this in the unexpected and the, I think, unpredictability of life, you know, that people take on a lot of guilt and all sorts of things about, all sorts of emotions. And the question is now, people have listened to this podcast, what can they take back to their oncology teams to build a culture that supports clinicians and their team at large to engage with these realities in a meaningful and sustainable way? I really feel like if we could build the whole team approach where we're supporting each other and supporting the patients together, that that will help this process immeasurably. Dr. Keri Brenner: Yes, and I'm thinking about Dr. Sławkowski-Rode's observation about the combat analogy, and it made me recognize this distinction between suppression and repression. Repression is this unconscious process, and this is what we're taught to do in medical training all the time, to just involuntarily shove that tragedy under the rug, just forget about it and see the next patient and move on. And we know that if we keep unconsciously shoving things under the rug, that it will lead to burnout and lack of sustainability for our clinical teams. Suppression is a more conscious process. That deliberate effort to say, “This was a tragedy that I bore witness to. I know I need to put that in a box on the shelf for now because I have 10 other patients I have to see.” And yet, do I work in a culture where I can take that off the shelf during particular moments and process it with my interdisciplinary team, phone a friend, talk to a trusted colleague, have some trusted case supervision around it, or process rounds around it, talk to my social worker? And I think the more that we model this type of self-reflective capacity as attendings, folks who have been in the field for decades, the more we create that ethos and culture that is sustainable because clinician self-reflection is never a weakness, rather it's a silent strength. Clinician self-reflection is this portal for wisdom, connectedness, sustainability, and ultimately transformative growth within ourselves. Dr. Hope Rugo: That's such a great point, and I think this whole discussion has been so helpful for me and I hope for our audience that we really can take these points and bring them to our practice. I think, “Wow, this is such a great conversation. I'd like to have the team as a whole listen to this as ways to sort of strategize talking about the process, our patients, and being supportive as a team, understanding how we manage spirituality when it connects and when it doesn't.” All of these points, they're bringing in how we process these issues and the whole idea of suppressing versus sort of deciding that it never happened at all is, I think, very important because that's just a tool for managing our daily lives, our busy clinics, and everything we manage. Dr. Keri Brenner: And Dr. Rugo, it's reminding me at Stanford, you know, we have this weekly practice that's just a ritual where every Friday morning for 30 minutes, our social worker leads a process rounds with us as a team, where we talk about how the work that we're doing clinically is affecting us in our lives in ways that have joy and greater meaning and connectedness and other ways that might be depleting. And that kind of authentic vulnerability with one another allows us to show up more authentically for our patients. So those rituals, that small 30 minutes once a week, goes a long way. And it reminds me that sometimes slowing things down with those rituals can really get us to more meaningful, transformative places ultimately. Dr. Hope Rugo: It's a great idea, and I think, you know, making time for that in everybody's busy days where they just don't have any time anymore is important. And you don't have to do it weekly, you could even do something monthly. I think there's a lot of options, and that's a great suggestion. I want to thank you both for taking your time out for this enriching and incredibly helpful conversation. Our listeners will find a link to the Ed Book article we discussed today, which is excellent, in the transcript of this episode. I want to thank you again, Dr. Brenner and Dr. Sławkowski-Rode, for your time and for your excellent thoughts and advice and direction. Dr. Mikołaj Sławkowski-Rode: Thank you very much, Dr. Rugo. Dr. Keri Brenner: Thank you. Dr. Hope Rugo: And thanks to our listeners for joining us today. Please join us again next month on By the Book for more insightful views on topics you'll be hearing at the education sessions from ASCO meetings and our deep dives on new approaches that are shaping modern oncology. Disclaimer: The purpose of this podcast is to educate and to inform. This is not a substitute for professional medical care and is not intended for use in the diagnosis or treatment of individual conditions. Guests on this podcast express their own opinions, experience, and conclusions. Guest statements on the podcast do not express the opinions of ASCO. The mention of any product, service, organization, activity, or therapy should not be construed as an ASCO endorsement. Follow today's speakers:      Dr. Hope Rugo @hope.rugo Dr. Keri Brenner @keri_brenner Dr. Mikolaj Slawkowski-Rode @MikolajRode Follow ASCO on social media:      @ASCO on X (formerly Twitter)      ASCO on Bluesky     ASCO on Facebook      ASCO on LinkedIn      Disclosures:     Dr. Hope Rugo: Honoraria: Mylan/Viatris, Chugai Pharma Consulting/Advisory Role: Napo Pharmaceuticals, Sanofi, Bristol Myer Research Funding (Inst.): OBI Pharma, Pfizer, Novartis, Lilly, Merck, Daiichi Sankyo, AstraZeneca, Gilead Sciences, Hoffman La-Roche AG/Genentech, In., Stemline Therapeutics, Ambryx Dr. Keri Brenner: No relationships to disclose Dr. Mikolaj Slawkowski-Rode: No relationships to disclose    

Turn on the Lights Podcast
The story of palliative care, on the big screen - with Jessica Zitter

Turn on the Lights Podcast

Play Episode Listen Later Jul 11, 2025 37:35


One of the most overlooked but transformative tools in health care is the courage to face hard truths, especially at the end of life. In this episode, Dr. Jessica Zitter shares how burnout and a pivotal confrontation early in her ICU career led her to embrace the palliative care movement and shift toward more human-centered healing. Through her films Extremis, Caregiver: A Love Story, and The Chaplain and the Doctor, she uses storytelling to explore ethical dilemmas, systemic challenges, and the urgent need for holistic care and honest conversations about death. Tune in and learn how emotional honesty, empathy, and art can rehumanize health care, one story at a time! Learn more about your ad choices. Visit megaphone.fm/adchoices

OncLive® On Air
S13 Ep28: Toripalimab Plus De-Intensified Chemo Represents the Potential Future of Nasopharyngeal Cancer Management: With Justine Bruce, MD

OncLive® On Air

Play Episode Listen Later Jul 10, 2025 11:20


In today's episode, supported by Coherus BioSciences, we had the pleasure of speaking with Justine Bruce, MD, about the ongoing evolution of nasopharyngeal carcinoma management. Dr Bruce is a faculty member in the Division of Hematology, Medical Oncology and Palliative Care within the Department of Medicine at the University of Wisconsin, as well as the director of the VA Medical Oncology Clinical Research Program and chair of the Protocol Review and Monitoring Committee at the University of Wisconsin Carbone Cancer Center in Madison. In our exclusive interview, Dr Bruce discussed evolving treatment strategies for nasopharyngeal cancer, emphasizing the shift from chemoradiation followed by adjuvant chemotherapy to induction chemotherapy with gemcitabine and cisplatin. She also noted how toripalimab-tpzi (Loqtorzi) combined with gemcitabine and cisplatin showed improved overall survival (OS) in the first-line setting in the phase 3 JUPITER-02 trial (NCT03581786). Bruce also expressed her preference for OS as the gold standard for determining the efficacy of nasopharyngeal cancer treatments and noted the need for more US-based trials to reflect the local patient population.

Elevate Eldercare
Well-Being as a Framework: Rethinking Communities of Care

Elevate Eldercare

Play Episode Listen Later Jul 9, 2025 59:48


In this episode, Susan Ryan sits down with Rachel Broudy, MD, a passionate physician, innovator, and advocate for transforming eldercare. Her extensive experience includes serving as medical director at two PACE programs and currently as medical director of Pioneer Valley Hospice and Palliative Care and eldercare faculty at Ariadne Labs. This episode explores Dr. Broudy's journey into aging services and her groundbreaking work at Ariadne Labs, where she led the creation of a well-being framework and conversation guide for nursing homes. Developed through Ariadne's Innovation Arc process—research, design, test, and spread—this four-year project culminated in a pilot at two Mississippi nursing homes. The result? A practical, scalable toolkit that empowers staff and centers care on purpose, connection, and meaning. Dr. Broudy also shares her work on the Living Well with Dementia Toolkit, which redefines dementia care as an adaptive, relational journey. The toolkit includes conversation and emotion cards that help families and caregivers explore emotions, relationships, and identity—helping shift how we understand and support those living with dementia. If you're looking for inspiring ideas and practical tools to shift the culture of aging and long-term care, this episode is a must-listen. Some links of interest: Ariadne Labs Innovation Arc: https://www.ariadnelabs.org/about-us/ariadne-labs-arc/ Ariadne Labs Well-being Framework & Conversation Guide: https://www.ariadnelabs.org/resources/downloads/wellbeing-toolkit-conversation-guide/ Ariadne Labs Living Well with Dementia Toolkit: https://www.ariadnelabs.org/dementia-solutions/

OffScrip with Matthew Zachary
The Elastic Life of Gigi Robinson

OffScrip with Matthew Zachary

Play Episode Listen Later Jul 8, 2025 46:02


Gigi Robinson grew up with Ehlers-Danlos syndrome, a disease that turns your joints into overcooked spaghetti. Instead of letting it sideline her, she built a career out of telling the truth about invisible illness. We talk about what it takes to grow up faster than you should, why chronic illness is the worst unpaid internship, and how she turned her story into a business. You'll hear about her days schlepping to physical therapy before sunrise, documenting the sterile absurdity of waiting rooms, and finding purpose in the mess. Gigi's not interested in pity or polished narratives. She wants you to see what resilience really looks like, even when it's ugly. If you think you know what an influencer does, think again. This conversation will challenge your assumptions about work, health, and what it means to be seen.RELATED LINKSGigi Robinson Website: https://www.gigirobinson.comLinkedIn: https://www.linkedin.com/in/gigirobinsonInstagram: https://www.instagram.com/itsgigirobinsonTikTok: @itsgigirobinsonA Kids Book About Chronic Illness: https://akidsco.com/products/a-kids-book-about-chronic-illnessFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Palliative Matters
The Indelible Scourge of Cancer: Survivorship & Implications of Palliative Care

Palliative Matters

Play Episode Listen Later Jul 7, 2025 44:48


Cancer is an identity-shaping experience. Survivors are forever changed and carry both physical and mental scars. In this episode, Dr. John Mulder and Dr. Jason Beckrow talk with special guest Dr. Joseph McCollum. Dr. McCollum is both a medical oncologist and palliative oncologist who is also a part of a survivorship care clinic. He shares how he and his team are working to integrate palliative care concepts into survivorship care, helping those who have overcome this harrowing experience start putting the pieces back together. 

GeriPal - A Geriatrics and Palliative Care Podcast
Should Palliative Care be in the Survivorship Business? A Podcast with Laura Petrillo, Laura Shoemaker

GeriPal - A Geriatrics and Palliative Care Podcast

Play Episode Listen Later Jul 3, 2025 47:31


In this week's episode, we dig into two deceptively simple questions: When does someone become a cancer survivor, and should palliative care be in the business of caring for them? Spoiler: It's more complicated than it seems. We've invited two palliative care doctors to talk about survivorship with us: Laura Petrillo, a physician-researcher at Mass General Hospital and Harvard Medical School, and Laura Shoemaker, an outpatient palliative care doctor at the Cleveland Clinic. This episode is a must-listen for those navigating the evolving landscape of cancer care, and asking not just how we treat cancer, but how we support people who are living with it.  If you want some further reading on survivorship, check out some of these articles: A NEJM article titled “Time to Study Metastatic-Cancer Survivorship” A ASCO publication that includes a section on survivorship - Patient-Centered Palliative Care for Patients With Advanced Lung Cancer A webinar on survivorship - Blending Survivorship and Palliative Care (NCI)

TCN Talks
Plans of Care, Ethics, Robotics, and more! Top News Stories, June 2025

TCN Talks

Play Episode Listen Later Jul 2, 2025 64:18 Transcription Available


What makes Hospice special isn't magic—it's the masterful implementation of coordinated care plans that align interdisciplinary teams with patient priorities.  This month's deep dive into June's most critical Hospice and Palliative Care developments explores how this "secret sauce" remains simultaneously the heart of our philosophy and our most common survey deficiency.  In this episode of TCNtalks, host Chris Comeaux and Cordt Kassner, Publisher of Hospice & Palliative Care Today & CEO and Founder of Hospice Analytics, discuss relevant top news stories in Hospice and Palliative Care for June.They also explore technology's dual-edged potential, suggesting that AI and robotics should enhance, rather than replace, the human elements of Hospice Care.  As Daniel Pink notes, "if a robot can replace you, you should be"—allowing us to focus our irreplaceable human capacity on meaningful connection rather than routine tasks.Dr. Ira Byock's strategic framework for hospice's future emerges as perhaps the most significant development of the month, offering four concrete paths forward: establishing clear clinical standards (like appropriate caseload sizes), creating meaningful data transparency, driving quality-based competition, and embracing our authentic brand as specialists in fostering well-being through the end of life. Subscribe to TCNtalks for monthly insights.  Additionally, we explore leadership strategies for growth and the necessity of a strategic path forward in Hospice and Palliative Care, emphasizing the importance of quality and ethical practices in the field.  We respect your time while keeping you informed on what truly matters.  Join us.Guest:Cordt KassnerPhD, Publisher of Hospice & Palliative Care Today & CEO and Founder of Hospice AnalyticsHost:Chris ComeauxPresident / CEO of TELEIOShttps://www.teleioscn.org/tcntalkspodcast/plans-of-care-ethics-robotics-and-more-top-news-stories-june-2025Teleios Collaborative Network / https://www.teleioscn.org/tcntalkspodcast

Afternoon Drive with John Maytham
Palliative care and assisted dying

Afternoon Drive with John Maytham

Play Episode Listen Later Jul 2, 2025 8:48 Transcription Available


Mike Wills speaks to Leigh Meinert, operations manager at Dignity South Africa and former advocacy manager for the Association of Palliative Care Centres. Leigh is a trained death doula with over 20 years’ experience in making healthcare and compassionate care more accessible — and she’s part of a growing movement calling for South Africa to offer both: excellent palliative care and the legal right to assisted dying for those facing irreversible suffering. Presenter John Maytham is an actor and author-turned-talk radio veteran and seasoned journalist. His show serves a round-up of local and international news coupled with the latest in business, sport, traffic and weather. The host’s eclectic interests mean the program often surprises the audience with intriguing book reviews and inspiring interviews profiling artists. A daily highlight is Rapid Fire, just after 5:30pm. CapeTalk fans call in, to stump the presenter with their general knowledge questions. Another firm favourite is the humorous Thursday crossing with award-winning journalist Rebecca Davis, called “Plan B”. Thank you for listening to a podcast from Afternoon Drive with John Maytham Listen live on Primedia+ weekdays from 15:00 and 18:00 (SA Time) to Afternoon Drive with John Maytham broadcast on CapeTalk https://buff.ly/NnFM3Nk For more from the show go to https://buff.ly/BSFy4Cn or find all the catch-up podcasts here https://buff.ly/n8nWt4x Subscribe to the CapeTalk Daily and Weekly Newsletters https://buff.ly/sbvVZD5Follow us on social media:CapeTalk on Facebook: https://www.facebook.com/CapeTalkCapeTalk on TikTok: https://www.tiktok.com/@capetalkCapeTalk on Instagram: https://www.instagram.com/CapeTalk on X: https://x.com/CapeTalkCapeTalk on YouTube: https://www.youtube.com/@CapeTalk567See omnystudio.com/listener for privacy information.

OffScrip with Matthew Zachary
The Bronx Bleeds Blue: Vanessa Ghigliotty vs. Everyone

OffScrip with Matthew Zachary

Play Episode Listen Later Jul 1, 2025 49:41


Episode Description:If you've ever wondered what happens when a Bronx-born pediatric nurse with stage 4 colon cancer survives, raises a kid, becomes a policy shark, and fights like hell for the ignored, meet Vanessa Ghigliotty. She's not inspirational. She's a bulldozer. We go way back—like pre-Stupid Cancer back—when there was no “young adult cancer movement,” just a handful of pissed-off survivors building something out of nothing. This episode is personal. Vanessa and I built the plane while flying it. She fought to be heard, showed up in chemo dragging her kid to IEP meetings, and never stopped screaming for the rest of us to get what we needed. We talk war stories, progress, side-eyeing advocacy fads, TikTok activism, gatekeeping, policy wins, and why being loud is still necessary. And yeah—she's a damn good mom. Probably a better one than you. You'll laugh. You'll cry. You'll want to scream into a pillow. Come for the nostalgia. Stay for the righteous anger and iced coffee.RELATED LINKSVanessa on LinkedInColorectal Cancer Alliance: Vanessa's StoryZenOnco Interview with VanessaFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

HPNA Podcast Corner
Ep. 48 - From Anxiety to Acceptance: Psychedelics and the Hospice and Palliative Journey Possibilities

HPNA Podcast Corner

Play Episode Listen Later Jul 1, 2025 20:18


What role can psychedelics play in helping terminally ill patients face death with peace, clarity, and meaning?  In this episode, we welcome Hannah Whitmore, PhD, RN, CHPN®, a Registered Nurse and PhD researcher whose work—The Pragmatism of Palliative Care—explores the clinical potential of Psychedelic-Assisted Therapy (PAT) to support death acceptance in patients at the end of life. Dr. Whitmore brings a compassionate and evidence-based lens to a topic that challenges long-standing models of care, offering insight into how PAT could be thoughtfully integrated into palliative and hospice settings.  Together, we explore:  The latest research on PAT for existential distress and death anxiety  Clinical and ethical considerations when working with terminally ill populations  Barriers to implementation and the future possibilities for PAT in end-of-life care  How nursing science is shaping new approaches to healing at the end of life  This episode is a grounded, deeply human conversation at the intersection of medicine, mortality, and meaning—guided by a nurse scientist dedicated to easing suffering when it matters most.      Hannah Whitmore, PhD, RN, CHPN Certified hospice and palliative care nurse and clinician scientist, Dr. Whitmore supports individuals, families, and healthcare teams navigating serious illness and end-of-life transitions. Currently a post-doctoral fellow at the University of California, San Francisco (UCSF), she combines hands-on experience with a holistic approach informed by the latest research, mindfulness practices, and symptom management expertise. Her research focuses on symptom science and the integration of psychedelic-assisted therapy to address existential distress, depression, and promote death acceptance in seriously ill individuals. A member of Sigma Global Nursing Excellence, Dr. Whitmore guides healthcare teams and provides culturally sensitive care to diverse populations. She collaborates with healthcare organizations to enhance palliative care services and empowers individuals and teams to find resilience and dignity in complex end-of-life situations.    Brett Snodgrass, DNP, FNP-C, ACHPN®, FAANP Dr. Brett Snodgrass has been a registered nurse for 28 years and a Family Nurse Practitioner for 18 years, practicing in multiple settings, including family practice, urgent care, emergency departments, administration, chronic pain and palliative medicine. She is currently the Operations Director for Palliative Medicine at Baptist Health Systems in Memphis, TN. She is board certified with the American Academy of Nurse Practitioners. She is also a Fellow of the American Association of Nurse Practitioners and an Advanced Certified Hospice and Palliative Nurse. She completed a Doctorate of Nursing Practice at the University of Alabama – Huntsville. She is a nationally recognized nurse practitioner speaker and teacher. Brett is a chronic pain expert, working for more than 20 years with chronic pain and palliative patients in a variety of settings. She is honored to be the HPNA 2025 podcast host. She is married with two daughters, two son in laws, one grandson, and now an empty nest cat. She and her family are actively involved in their church and she is an avid reader.

Afternoon Drive with John Maytham
Open letter: Why we, as palliative care practitioners, cannot support the drive to legalise assisted dying

Afternoon Drive with John Maytham

Play Episode Listen Later Jul 1, 2025 9:50 Transcription Available


Dr Michelle Meiring spoke to Mike Wills about her open letter opposing the legalisation of assisted dying in South Africa, the ethical concerns raised by palliative care specialists, and why she believes better pain management-not assisted suicide-is the answer. The Money Show is a podcast hosted by well-known journalist and radio presenter, Stephen Grootes. He explores the latest economic trends, business developments, investment opportunities, and personal finance strategies. Each episode features engaging conversations with top newsmakers, industry experts, financial advisors, entrepreneurs, and politicians, offering you thought-provoking insights to navigate the ever-changing financial landscape. Thank you for listening to a podcast from The Money Show Listen live Primedia+ weekdays from 18:00 and 20:00 (SA Time) to The Money Show with Stephen Grootes broadcast on 702 https://buff.ly/gk3y0Kj and CapeTalk https://buff.ly/NnFM3Nk For more from the show, go to https://buff.ly/7QpH0jY or find all the catch-up podcasts here https://buff.ly/PlhvUVe Subscribe to The Money Show Daily Newsletter and the Weekly Business Wrap here https://buff.ly/v5mfetc The Money Show is brought to you by Absa Follow us on social media 702 on Facebook: https://www.facebook.com/TalkRadio702702 on TikTok: https://www.tiktok.com/@talkradio702702 on Instagram: https://www.instagram.com/talkradio702/702 on X: https://x.com/CapeTalk702 on YouTube: https://www.youtube.com/@radio702 CapeTalk on Facebook: https://www.facebook.com/CapeTalkCapeTalk on TikTok: https://www.tiktok.com/@capetalkCapeTalk on Instagram: https://www.instagram.com/CapeTalk on X: https://x.com/Radio702CapeTalk on YouTube: https://www.youtube.com/@CapeTalk567See omnystudio.com/listener for privacy information.

OffScrip with Matthew Zachary
Ask Better Questions or Die Trying: Risa Arin

OffScrip with Matthew Zachary

Play Episode Listen Later Jun 24, 2025 39:21


Risa Arin doesn't just talk about health literacy. She built the damn platform. As founder and CEO of XpertPatient.com (yes, expert with no E), Risa's taking a wrecking ball to how cancer education is delivered. A Cornell alum, cancer caregiver, and ex-agency insider who once sold Doritos to teens, she now applies that same marketing muscle to helping patients actually understand the garbage fire that is our healthcare system. We talk about why she left the “complacent social safety” of agency life, how her mom unknowingly used her own site during treatment, what it's like to pitch cancer education after someone pitches warm cookies, and why healthcare should come with a map, a translator, and a refund policy. Risa brings data, chutzpah, and Murphy Brown energy to the conversation—and you'll leave smarter, angrier, and maybe even a little more hopeful.RELATED LINKS• XpertPatient.com• Risa Arin on LinkedIn• XpertPatient & Antidote Partnership• XpertPatient Featured on KTLA• 2024 Health Award BioFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

End-of-Life University
Ep. 506 Pediatric Palliative Care and the Remarkable Children it Serves with Bob Macauley MD

End-of-Life University

Play Episode Listen Later Jun 23, 2025 54:11


Learn about the specialty of pediatric palliative care and how one doctor has benefitted from his relationship with his seriously ill patients. My guest Dr. Bob Macauley is one of only a few hundred pediatricians in the U.S. specializing in palliative care for children with life-threatening illness. Uniquely Dr. Macauley attended both divinity school and… Continue reading Ep. 506 Pediatric Palliative Care and the Remarkable Children it Serves with Bob Macauley MD

OffScrip with Matthew Zachary
Pediatric Engineering for the Rest of Us: Dr. Jamie Wells

OffScrip with Matthew Zachary

Play Episode Listen Later Jun 17, 2025 39:48


Dr. Jamie Wells is back—and this time, she brought a book. We cover everything from biomedical design screwups to the glorified billing software known as the EHR. Jamie's new book, A Clinical Lens on Pediatric Engineering, is a masterclass in what happens when you stop treating kids like small, drunk adults and start designing medicine around actual human factors. We talk about AI in pediatric radiology, why drug repurposing might save lives faster than biotech IPOs, and the absurdity of thinking one-size-fits-all in healthcare still works.Jamie's a former physician, a health policy disruptor, a bioethicist, an MIT director, and a recovering adjunct professor. She's also a unicorn. We dig into the wonk, throw shade at bad design, and channel our inner Lisa Simpsons. This one's for anyone who ever wondered why kids' hospitals feel like hell and why “make it taste like bubblegum” might be the most important clinical innovation of all time. You'll laugh, you'll learn, and you might get angry enough to fix something.RELATED LINKSJamie Wells on LinkedInBook: A Clinical Lens on Pediatric Engineering (Amazon)Book on SpringerDrexel BioMed ProfileGlobal Blockchain Business CouncilJamie's HuffPost ArticlesFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Pediatric Meltdown
250. Hand in Hand Parenting

Pediatric Meltdown

Play Episode Listen Later Jun 11, 2025 64:42


Is the true heart of pediatrics found in the connection between practitioner and family?In this powerful episode of Pediatric Meltdown, Dr. Lia Gaggino sits down with physician, educator, and hand-in-hand parenting advocate Dr. Pam Oatis, who brings decades of primary care and hospital experience to the forefront. Together, they explore how listening, humility, and authentic relationships transform patient outcomes far beyond medical treatments alone. From the challenges of working in high-need communities to navigating tense family moments and exploring ethics in end-of-life care, this episode delves into the artistry that makes pediatric medicine so uniquely soul-filling. If you've ever questioned whether technical skill is enough—or wondered what truly heals—this conversation will invite you to see the science of medicine through the eyes of connection and compassion. Don't miss the life-changing insights you'll carry into every patient encounter.Be sure to catch the special announcement in the Takeaways.[0:01 - 07:59] Leaning Into Pediatrics: Beginnings, Inspiration, and Learning From FamiliesUnderstand why primary care pediatrics is infinitely rewarding—not just for the broad medical knowledge it demands, but for the lifelong learning about people, relationships, and cultures it provides.Learn the importance of setting parents at ease through open-ended questions and authentic appreciation, establishing trust and safety from the very first visit.Explore how humility and willingness to learn from families reveal the limitations of one-size-fits-all approaches and fuel long-term, mutually respectful relationships.Hear personal stories illustrating the deep impact of simple listening skills, such as appreciating each parent and seeing profound transformation in both relationships and care outcomes.[08:00 -16:40] The Power of Listening and Cultural Humility in Pediatric CareUncover how being attuned to parents' fears and self-doubt allows physicians to connect deeply, providing reassurance and support that transcends medical advice.Examine situations where cultural differences and past experiences inform parenting approaches, challenging providers to pause, listen, and reflect rather than judge.Appreciate how open, honest dialogue about discipline and race can lead to decades-long partnerships founded on mutual respect and understanding.Acknowledge that the wisdom and resilience of families, when honored, can lead to better outcomes than following protocols alone.[16:41 - 26:01] Human Connection: Biology, Society, and the Foundation of CareInvestigate the deep human need for connection, acknowledging our social wiring and the essential role that physical and emotional closeness play from birth through adulthood.Discover why the medical “team sport” approach leads to improved outcomes—not just for children, but for providers and families navigating medical complexity together.Identify the under-recognized burdens society places on parents and why framing parental challenges as cultural rather than personal failures empower families.Explore how respect, dignity, and honest collaboration form the backbone of effective care—and why accurate patient histories and trusting relationships matter as much as diagnostics.[26:02 - 07:59] From Touch to Teamwork: Bioethics, Palliative Care, and Listening PartnershipsLearn how physical touch is not just diagnostic, but profoundly healing, fostering trust and well-being in children and families.Understand the evolution of bioethics and palliative care as disciplines built on listening, respect, and honoring families' definitions of meaning and...

OffScrip with Matthew Zachary
Pinky Swear: Erica Campbell and The Wanted Mastectomy

OffScrip with Matthew Zachary

Play Episode Listen Later Jun 10, 2025 40:59


Erica Campbell walked away from corporate life, took a hard left from the British Embassy, and found her calling writing checks for families nobody else sees. As Executive Director of Pinky Swear Foundation, she doesn't waste time on fluff. Her team pays rent, fills gas tanks, and gives sick kids' parents the one thing they don't have—time. Then, breast cancer hit her. She became the patient. Wrote a book about it. Didn't sugarcoat a damn thing. We talk about parking fees, grief, nonprofit burnout, and how the hell you decide which families get help and which don't. Also: AOL handles, John Hughes, and letters from strangers that make you cry. Erica is part Punky Brewster, part Rosie the Robot, and part Lisa Simpson—with just enough GenX Long Island sarcasm to make it all land. This one sticks.RELATED LINKSPinky Swear FoundationThe Mastectomy I Always Wanted (Book)Erica on LinkedInThink & Link: Erica Campbell“Like the Tale of a Starfish” - Blog Post“Cancer Diagnosis, Messy Life, Financial Support” - Blog PostFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

GeriPal - A Geriatrics and Palliative Care Podcast
Implementing Palliative Care in Nursing Homes

GeriPal - A Geriatrics and Palliative Care Podcast

Play Episode Listen Later Jun 5, 2025 48:06


The need for better palliative care in nursing homes is significant. Consider this: the majority of the 1.4 million adults residing in U.S. nursing homes grapple with serious illnesses, and roughly half experience dementia. Many also suffer from distressing symptoms like pain. In addition, about 25% of all deaths in the United States occur within these facilities. Despite these substantial needs, specialized palliative care beyond hospice is rare in nursing homes. Furthermore, only about half of nursing home residents nearing the end of life receive hospice care. So, how can we improve palliative care for individuals in nursing homes? Today's podcast explores this crucial question with three leading experts: Connie Cole, Kathleen Unroe, and Cari Levy. Our discussion delves into: The specific palliative care needs of nursing home residents. How to think about primary and specialized palliative care in this setting. The obstacles hindering referrals to palliative care services. Practical strategies to overcome these barriers and enhance care. We also take a dive into these 2 articles that Connie first authored: Palliative care in nursing homes: A qualitative study on referral criteria and implications for research and practice. JAGS 2024 Nursing Home Palliative Care Referral Process, Barriers, and Proposed Solutions: A Qualitative Study. 2024 If you are interested in learning more, check out some of our other palliative care in nursing home podcasts including: Discussion of a primary palliative care multinational trial with Lieve Van den Block Understanding the variability in nursing home care A podcast on Palliative Rehab?!? with Ann Henshaw, Tamra Keeney, and Sarguni Singh  

OffScrip with Matthew Zachary
Dr. Allyson Ocean Unfiltered: Science, Colons and Calling BS

OffScrip with Matthew Zachary

Play Episode Listen Later Jun 3, 2025 43:38


Allyson with a Y. Ocean with two Ls. And zero chill when it comes to changing the face of cancer care. Dr. Allyson Ocean has been quietly—loudly—at the center of every major cancer breakthrough, nonprofit board, and science-backed gut punch you didn't know you needed to hear. In this episode, she joins me in-studio for a conversation two decades in the making. We talk twin life, genetics, mitochondrial disease, and why she skipped the Doublemint Twins commercial but still ended up as one of the most recognizable forces in oncology. We cover her nonprofit hits, from Michael's Mission to Let's Win Pancreatic Cancer to launching the American Jewish Medical Association—yes, that's a thing now. We get personal about compassion in medicine, burnout, bad food science, and microplastics in your blood. She also drops the kind of wisdom only someone with her résumé and sarcasm can. It's raw. It's real. It's the kind of conversation we should've had 20 years ago—but better late than never.RELATED LINKS:– Dr. Allyson Ocean on LinkedIn– Let's Win Pancreatic Cancer– NovoCure Leadership Page– Michael's Mission– American Jewish Medical Association– The POLG Foundation– Cancer Buddy App (Bone Marrow and Cancer Foundation)– Dr. Ocean at OncLiveFEEDBACK:Like this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

OffScrip with Matthew Zachary
[BONUS] No One Told Me: COVID and Cancer

OffScrip with Matthew Zachary

Play Episode Listen Later May 30, 2025 4:48


Sponsored by Invivyd, Inc.Nobody wants to hear about COVID-19 anymore. Especially not cancer patients. But if you've got a suppressed immune system thanks to chemo, radiation, stem cell transplants—or any of the other alphabet soup in your chart—then no, it's not over. It never was. While everyone else is getting sweaty at music festivals, you're still dodging a virus that could knock you flat.In this episode, Matthew Zachary and Matt Toresco say the quiet part out loud: many immunocompromised people may not even know they have options beyond vaccines. Why? Because the system doesn't bother to tell them. So we're doing it instead. We teamed up with Invivyd to help get the word out about tools other than vaccines that can help prevent COVID-19. We break down the why, the what, and the WTF of COVID-19 risk for cancer patients and why every oncologist should be talking about this.No fear-mongering. No sugarcoating. Just two guys with mics who've been through it and want to make sure you don't get blindsided. It's fast, funny, and furious—with actual facts. You've got more power than you think. Time to use it.RELATED LINKSExpand Their OptionsInvivydMatt Toresco on LinkedInOut of Patients podcastFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

OffScrip with Matthew Zachary
Constellations and Cancer: A Storytelling Rebellion with Lisa Shufro

OffScrip with Matthew Zachary

Play Episode Listen Later May 27, 2025 40:11


EPISODE DESCRIPTIONLisa Shufro is the storyteller's storyteller. A musician turned innovation strategist, TEDMed curator, and unapologetic truth-teller, Lisa doesn't just craft narratives—she engineers constellations out of chaos. We go way back to the early TEDMed days, where she taught doctors, scientists, and technocrats how not to bore an audience to death. In this episode, we talk about how storytelling in healthcare has been weaponized, misunderstood, misused, and still holds the power to change lives—if done right. Lisa challenges the idea that storytelling should be persuasive and instead argues it should be connective. We get into AI, the myth of objectivity, musical scars, Richard Simmons, the Vegas healthcare experiment, and the real reason your startup pitch is still trash. If you've ever been told to “just tell your story,” this episode is the permission slip to do it your way. With a bow, not a violin.RELATED LINKSLisa Shufro's WebsiteLinkedInSuper Curious ArchiveEight Principles for Storytelling in InnovationStoryCorps InterviewCoursera Instructor ProfileWhatMatters ProjectFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Behind The Knife: The Surgery Podcast
Journal Review and Clinical Challenges in Surgical Palliative Care: Assessing Decision-Making Capacity

Behind The Knife: The Surgery Podcast

Play Episode Listen Later May 22, 2025 25:42


Join the University of Washington Surgical Palliative Care Team for their final episode of this series — a dual journal review and clinical challenges discussion on assessing medical decision-making capacity. Using Dr. Paul Applebaum's foundational framework, the team outlines the four key criteria for evaluating capacity and brings the topic to life through two contrasting standardized patient scenarios. This episode highlights why capacity assessment is not only relevant but essential for surgeons navigating complex, high-stakes decisions.  Hosts:  Dr. Katie O'Connell (@katmo15) is an associate professor of surgery at the University of Washington. She is a trauma surgeon, palliative care physician, director of surgical palliative care, and founder of the Advance Care Planning for Surgery clinic at Harborview Medical Center, Seattle, WA. Dr. Ali Haruta is an assistant professor of surgery at the University of Washington. She is a trauma and emergency general surgeon and palliative care physician. Ali recently completed fellowships in palliative care at the University of Washington and Trauma and Critical Care at Parkland.  Dr. Lindsay Dickerson (@lindsdickerson1) is a PGY6 general surgery resident at the University of Washington with an interest in surgical oncology.   Dr. Virginia Wang is a PGY3 general surgery resident at the University of Washington. Learning Objectives: 1.        Decipher the distinction between the terms “capacity” and “competence”.   2.        Describe the four criteria for assessing medical decision-making capacity presented in Dr. Paul Applebaum's article “Assessment of Patients' Competence to Consent to Treatment.” 3.        Apply the capacity assessment framework to real-world clinical scenarios in surgical practice.  References: 1.        Applebaum, PS. Assessment of Patients' Competence to Consent to Treatment. New England Journal of Medicine 2007; 357(18):1834-1840. https://pubmed.ncbi.nlm.nih.gov/17978292/ 2.        Special thank you to Mr. Mark Fox for his acting contribution to this episode. Please visit https://behindtheknife.org to access other high-yield surgical education podcasts, videos and more.   If you liked this episode, check out our recent episodes here: https://app.behindtheknife.org/listen