Podcasts about Palliative care

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Best podcasts about Palliative care

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Latest podcast episodes about Palliative care

The Disrupted Podcast
Why Atlanta Needs Your Health: Stories, Strategy, and a Broken Healthcare System

The Disrupted Podcast

Play Episode Listen Later Nov 21, 2025 40:51


00:00 – Welcome & Atlanta Traffic Humor03:12 – Why Atlanta's Senior Healthcare System Is “Almost Nonexistent”09:15 – Hospitals begging for help & broken discharge processes14:00 – Upcoming cuts to home health and rehab penalties18:45 – Why therapy services need massive, immediate expansion23:18 – The dementia support group story and the power of proactive care30:52 – How storytelling improves patient and family understanding36:44 – Hospice misconceptions & how Your Health does it differently43:17 – Explosive growth in Atlanta and why competition is failing49:10 – Creativity as a core ingredient of healthcare54:40 – Why every associate needs a mentor immediately59:25 – A call to action: show up, ride along, and support Atlanta providers www.YourHealth.Org

OffScrip with Matthew Zachary
Standard Deviation EP4: The Gamble

OffScrip with Matthew Zachary

Play Episode Listen Later Nov 20, 2025 11:13


Dr. Rachel Gatlin entered neuroscience with curiosity and optimism. Then came chaos. She started her PhD at the University of Utah in March 2020—right as the world shut down. Her lab barely existed. Her advisor was on leave. Her project focused on isolation stress in mice, and then every human on earth became her control group. Rachel fought through supply shortages, grant freezes, and the brutal postdoc job market that treats scientists like disposable parts. When her first offer vanished under a hiring freeze, she doubled down, rewrote her plan, and won her own NIH training grant. Her story is about survival in the most literal sense—how to keep your brain intact when the system built to train you keeps collapsing.RELATED LINKS• Dr. Rachel Gatlin on LinkedIn• Dr. Gatlin's Paper Preprint• Dr. Eric Nestler on Wikipedia• News Coverage: Class of 2025 – PhD Students Redefine PrioritiesFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

The Integrative Palliative Podcast
A Meditation to Make Peace With Grief

The Integrative Palliative Podcast

Play Episode Listen Later Nov 20, 2025 14:29


Grief is tough. It is so very hard when a loved one dies. Whether it is expected because of serious illness or a total shock, grief is painful. And also, grief is part of life. Sometimes people compound their suffering by asking "Why am I still grieving so hard?" or "Shouldn't I be better by now?"Trying to push grief away doesn't help. In fact, it can make grieving even harder. This meditation is an invitation to make peace with grief.If you have ever lost a person, a pet, a prized possession, a job, an identity, or anything else, this meditation is for you.Be sure you're in a safe place (no driving!) when you listen.I'm glad you're here.Doctor Deliawww.DoctorDelia.comCoping Courageously: A Heart-Centered Guide for Navigating a Loved One's Illness Without Losing Yourself is available here: www.copingcourageously.com Please review this podcast wherever you listen and forward your favorite episode to a friend! And be sure to subscribe!Sign up to stay connected and learn about upcoming programs:https://trainings.integrativepalliative.com/IPI-stay-in-touchI'm thrilled to be listed in Feedspot's top 15 palliative podcasts!https://blog.feedspot.com/palliative_care_podcasts/

Our MBC Life
S11 E3 Living Your Best Life with Palliative Care

Our MBC Life

Play Episode Listen Later Nov 19, 2025 48:43


Send us a textToday's episode tackles a topic that is often misunderstood, palliative care. Many people hear the term and immediately think of end-of-life care but that's not what palliative care is. In reality, it's about improving quality of life, managing symptoms, and helping you live as fully and comfortably as possible, no matter where you are in your metastatic breast cancer (MBC) treatment.We're joined by Dr. Jones, a palliative care physician who has worked closely with people living with MBC. He brings not only medical expertise, but also deep compassion and insight into the emotional and physical needs of our community.In this conversation, we explore:What palliative care truly meansHow to access palliative care servicesWhy integrating palliative care early can make such a meaningful differenceWhether you're newly diagnosed or have been living with MBC for many years, this episode offers clarity, reassurance, and practical information to support you on your journey.Visit OurMBCLife.org for episode notes.

OffScrip with Matthew Zachary
Reenactments, Rants, and Really F*cked Up Insurance

OffScrip with Matthew Zachary

Play Episode Listen Later Nov 18, 2025 47:40


EPISODE DESCRIPTIONBefore she was raising millions to preserve fertility for cancer patients, Tracy Weiss was filming reenactments in her apartment for the Maury Povich Show using her grandmother's china. Her origin story includes Jerry Springer, cervical cancer, and a full-body allergic reaction to bullshit. Now, she's Executive Director of The Chick Mission, where she weaponizes sarcasm, spreadsheets, and the rage of every woman who's ever been told “you're fine” while actively bleeding out in a one-stall office bathroom.We get into all of it. The diagnosis. The misdiagnosis. The second opinion that saved her life. Why fertility preservation is still a luxury item. Why half of oncologists still don't mention it. And what it takes to turn permission to be pissed into a platform that actually pays for women's futures.This episode is blunt, hilarious, and very Jewish. There's chopped liver, Carrie Bradshaw slander, and more than one “fuck you” to the status quo. You've been warned.RELATED LINKSThe Chick MissionTracy Weiss on LinkedInFertility Preservation Interview (Dr. Aimee Podcast)Tracy's Story in Authority MagazineNBC DFW FeatureStork'd Podcast EpisodeNuDetroit ProfileChick Mission 2024 Gala RecapFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

PetAbility  Podcast
Rehab Rewind Pet Hospice & Palliative Care - A Rehabber's Perspective with Cathy Symons, CVT, CCRP, CHPT

PetAbility Podcast

Play Episode Listen Later Nov 18, 2025 50:11


We are revisiting this timely topic with a Rehab Rewind.  Since this episode aired in March of 2024 Cathy has proudly earned the title of Certified Hospice and Palliative Care Technician.  Join us as PetAbility hosts, Cathy and Chris, share their expertise around this topic that will undoubtedly touch all our lives in some way, shape, or form.Our pet's are living longer, surviving illnesses and traumas that were unthinkable in the past. If you couple this with our ever-growing attitudes that pets are full-fledged members of our families, then the fields of palliative care and pet hospice become vital. Cathy Symons, CVT, CCRP, deftly explains the integral role that physical rehabilitation plays to 1) alleviate symptoms and stress from medical conditions (palliative care) and 2) compassionately support owners and their pets, physically and emotionally, during their end-of-life journey, while preparing pet parents to let go of their loved one with dignity and grace when the time comes (hospice). For more information, please click on the following links: International Association of Animal Hospice and Palliative CareLap of Love: Veterinary Hospice & In-home Euthanasia Pet Loss Support Hotline and other resourcesOther related PetAbility Podcast episodes include:Pets Are Family - an Impactful Approach to Pet Loss with Erika Sinner, Dog Mom, Author, & CEOPet Hospice with Dr. Becky SchoenbergBelieving in Grieving with Laurie Levine, LMHCEnd-of-life Pet Photography I The Tilly Project with Lauren KennedyDisclaimerVitalVet.org, a platform for all things related to pet rehab - product information, education, and resources abound! MedcoVet (show sponsor) Luma - advanced red-light therapy therapy that puts healing in the hands of the pet owner in the comfort of home! Use Promo Code PETPOD22, to receive discounts from our affiliates! You receive 10% off and PetAbility receives 10% to help support our show (unless stated otherwise)! Ruff Ramp - a safe alternative to stairs. Optimum Pet Vitality - Education/coursework to help you and your pet! Dr. Buzby's - The Senior Dog Company – Toe grips to prevent slipping, Encore Mobility joint supplement, and Brain Boost cognitive supplement. You receive 10% off and PetAbility receives 10% from your first order.Extra love – use this link and the entire 20% goes to support our show! Calm & Cozy Cat Wrap - a...

Annals On Call Podcast
Palliative Care: A Family Perspective

Annals On Call Podcast

Play Episode Listen Later Nov 17, 2025 19:37


Dr. Centor discusses a family perspective on palliative care with Ms. Monica Wright, the author of an On Being a Patient essay.

The Integrative Palliative Podcast
The Mindful Approach to Grief

The Integrative Palliative Podcast

Play Episode Listen Later Nov 14, 2025 14:15


Facing a serious loss after a loved one has died is just so tough. Without meaning to we can compound the stress of it all by how we approach our grief.The mindful approach to grief involves noticing, not judging, and using compassionate curiosity. It makes space for grief because grief is part of life and love. Here is the reference mentioned in the episode: Huang FY, et al. Mindfulness-based cognitive therapy on bereavement grief: Alterations of resting-state network connectivity associate with changes of anxiety and mindfulness. Hum Brain Mapp. 2021 Feb 1;42(2):510-520. I'm glad you're here.Dr. Deliawww.integrativepalliative.comwww.DoctorDelia.com (coming soon)Coping Courageously: A Heart-Centered Guide for Navigating a Loved One's Illness Without Losing Yourself is available here: www.copingcourageously.com Please review this podcast wherever you listen and forward your favorite episode to a friend! And be sure to subscribe!Sign up to stay connected and learn about upcoming programs:https://trainings.integrativepalliative.com/IPI-stay-in-touchI'm thrilled to be listed in Feedspot's top 15 palliative podcasts!https://blog.feedspot.com/palliative_care_podcasts/

Weird Darkness: Stories of the Paranormal, Supernatural, Legends, Lore, Mysterious, Macabre, Unsolved
Palliative Care Nurse Killed Patients to Make His Night Shifts Easier

Weird Darkness: Stories of the Paranormal, Supernatural, Legends, Lore, Mysterious, Macabre, Unsolved

Play Episode Listen Later Nov 13, 2025 13:56 Transcription Available


A German palliative care nurse administered lethal doses of morphine and midazolam to elderly patients simply to reduce his workload during night shifts.READ or SHARE: https://weirddarkness.com/nurse-killed-patients-easier-shifts WeirdDarkness® is a registered trademark. Copyright ©2025, Weird Darkness.#WeirdDarkness #TrueCrime #SerialKiller #GermanCrime #HealthcareHorror #NurseMurderer #MedicalCrime #PalliativeCare #TrueCrimeStory #CriminalNurse

GeriPal - A Geriatrics and Palliative Care Podcast
A Strategic Path Forward for Hospice & Palliative Care: Ira Byock, Kristi Newport, Brynn Bowman

GeriPal - A Geriatrics and Palliative Care Podcast

Play Episode Listen Later Nov 13, 2025 53:05


In June of 2025, hospice and palliative care pioneer Ira Byock published a white paper outlining the urgent challenges facing the field today. In a nutshell, he expressed concerns that the quality of hospice care in the United States has become highly variable, with disturbing frequency of unethical practices and avaricious owners. He also raised concern that the rapid increase in palliative care program growth during the first two decades of this century has stalled, leaving us with understaffed programs that are often inadequately trained.  Along with Ira, we've invited Kristi Newport, a palliative care doctor and Chief Medical Officer of the American Academy of Hospice and Palliative Medicine, and Brynn Bowman, Chief Executive Officer of the Center to Advance Palliative Care, to discuss these issues and outline a strategic path forward for the field.  In particular we talk about Ira's four-part solution to transform the field and restore its integrity: (1) publishing clear clinical and programmatic standards, (2) making meaningful data publicly available to ensure transparency and accountability, (3) fostering quality-based competition among providers, and (4) embracing the authentic brand of hospice and palliative care—expert care that alleviates suffering and fosters well-being.  So take a listen and dive a little deeper with these resources, and dont forget, you too can get involved in AAHPM (click here for opportunities): Ira's paper titled "A Strategic Path Forward for Hospice and Palliative Care: A White Paper on the Potential Future of the Field" Our previous podcast on "Is Hospice Losing Its Way" Our previous podcast on Private Equity Gobbling Up Hospices plus Hospice and Dementia with Melissa Aldridge, Krista Harrison, & Lauren Hunt CAPC's Serious Ilness Scorecard - a state-by-state look at palliative care capacity CAPC's second annual Palliative Pulse survey offers insight into how palliative care professionals across the country are feeling this year and what they're focused on National Hospice Locator and TCMTalks Podcast by Chris Comeaux and Cordt Kassner  

Hochpalliativ
Folge 58 - Quo vadis, Palliative Care?

Hochpalliativ

Play Episode Listen Later Nov 13, 2025 47:27


Quo vadis, Palliative Care? Quo vadis, Hochpalliativ? Wir machen eine Bestandsaufnahme und überlegen, wohin sich die Palliative Care weiterentwickelt hat und was noch auf uns zukommt. In dieser Folge verraten wir euch auch, warum es gerade etwas langsamer als im gewohnten Tempo vorangeht. Wer bis zum Schluss zuhört, bekommt noch zwei wunderbare Leseempfehlungen von uns.

For the Life of the World / Yale Center for Faith & Culture
Dying Alone: Terminal Loneliness, Modern Medicine, and Contemplative Solitude / Lydia Dugdale (SOLO Part 5)

For the Life of the World / Yale Center for Faith & Culture

Play Episode Listen Later Nov 12, 2025 47:31


Living alone may be difficult, but what about dying alone? Physicians and nurses are the new priests accompanying people as they face death. But the experience of nursing homes, assisted living, and palliative wards are often some of the loneliest spaces in human culture.“He said, ‘Someone finally saw me. I've been in this hospital for 20 years and I didn't think anyone ever saw me.'”This episode is part 5 of a series, SOLO, which explores the theological, moral, and psychological dimensions of loneliness, solitude, and being alone.In this episode, Columbia physician and medical ethicist Lydia Dugdale joins Macie Bridge to reflect on loneliness, solitude, and what it means to die—and live—well. Drawing from her clinical work in New York City and the years of research and experience that went into her book The Lost Art of Dying, Dugdale exposes a crisis of unrepresented patients dying alone, the loss of communal care, and medicine's discomfort with mortality.She recalls the medieval Ars Moriendi tradition, where dying was intentionally communal, and explores how virtue and community sustain a good death. Together they discuss solitude as restorative rather than fearful, loneliness as a modern epidemic, and the sacred responsibility of seeing one another deeply. With stories from her patients and her own reflections on family, COVID isolation, and faith, Dugdale illuminates how medicine, mortality, and moral imagination converge on one truth: to die well, we must learn to live well … together.Helpful Links and ResourcesThe Lost Art of Dying: Reviving Forgotten Wisdom by Lydia S. DugdalePew Research Center Study on Loneliness (2025)Harvard Study of Adult Development on LonelinessEpisode Highlights“If you want to die well, you have to live well.”“Community doesn't appear out of nowhere at the bedside.”“He said, ‘Someone finally saw me. I've been in this hospital for 20 years and I didn't think anyone ever saw me.'”“We are social creatures. Human beings are meant to be in relationship.”“Solitude, just like rest or Sabbath, is something all of us need.”About Lydia DugdaleLydia S. Dugdale, MD, MAR is a physician and medical ethicist at Columbia University, where she serves as Professor of Medicine and Director of the Center for Clinical Medical Ethics. She is the author of The Lost Art of Dying: Reviving Forgotten Wisdom and a leading voice on virtue ethics, mortality, and human flourishing in medicine.Show NotesLoneliness, Solitude, and the CityNew York's “unrepresented” patients—those who have no one to make decisions for them.The phenomenon of people “surrounded but unseen” in urban life.“I have a loving family … but I never see them.”Medicine and the PandemicLoneliness intensified during COVID-19: patients dying alone under strict hospital restrictions.Dugdale's reflections on balancing social responsibility with human connection.“We are social creatures. Human beings are meant to be in relationship.”Technology, Fear, and the Online Shadow CommunityPost-pandemic isolation worsened by online echo chambers.One in five adults reports loneliness—back to pre-pandemic levels.The Lost Art of DyingMedieval Ars Moriendi: learning to die well by living well.Virtue and community as the foundation for a good death.“If you don't want to die an impatient, bitter, despairing old fool, then you need to practice hope and patience and joy.”Modern Medicine's Fear of DeathPhysicians unpracticed—and afraid—to talk about mortality.“Doctors themselves are afraid to talk about death.”How palliative care both helps and distances doctors from mortality.Community and MortalityThe man who reconnected with his estranged children after reading The Lost Art of Dying.“He said, ‘I want my kids there when I die.'”Living well so that dying isn't lonely.Programs of Connection and the Body of ChristVolunteer models, day programs, and mutual care as small restorations of community.“The more we commit to others, the more others commit back to us.”Solitude and the Human SpiritDistinguishing solitude, loneliness, and social isolation.Solitude as restorative and necessary: “All of us need solitude. It's a kind of rest.”The contemplative life as vital for engagement with the world.Death, Autonomy, and CommunityThe limits of “my death, my choice.”The communal role in death: “We should have folks at our deathbeds.”Medieval parish customs of accompanying the dying.Seeing and Being SeenA patient long thought impossible to care for says, “Someone finally saw me.”Seeing others deeply as moral and spiritual work.“How can we see each other and connect in a meaningful way?”Production NotesThis podcast featured Lydia DugdaleInterview by Macie BridgeEdited and Produced by Evan RosaHosted by Evan RosaProduction Assistance by Alexa Rollow, Emily Brookfield, and Hope ChunA Production of the Yale Center for Faith & Culture at Yale Divinity School https://faith.yale.edu/aboutSupport For the Life of the World podcast by giving to the Yale Center for Faith & Culture: https://faith.yale.edu/give

Podcasts from the Presbyterian Church in Ireland
2: Graciously Confident: Palliative Care – A Better Way

Podcasts from the Presbyterian Church in Ireland

Play Episode Listen Later Nov 12, 2025 30:14


What if there's a better way to approach the end of life than assisted suicide or euthanasia? In this episode, Will Leitch is joined by Professor Max Watson and Dr Matthew Dore to talk about the real power of palliative care - what it is, what it isn't, and why it offers hope even in life's hardest moments. They unpack the funding challenges facing palliative services, debunk common myths about this kind of care, and explore how it helps people live - and die - well without speeding up the process of death.

OffScrip with Matthew Zachary
Oy Vey! It's Libby Amber Shayo

OffScrip with Matthew Zachary

Play Episode Listen Later Nov 11, 2025 45:17


EPISODE DESCRIPTION:Libby Amber Shayo didn't just survive the pandemic—she branded it. Armed with a bun, a New York accent, and enough generational trauma to sell out a two-drink-minimum crowd, she turned her Jewish mom impressions into the viral sensation known as Sheryl Cohen. What started as one-off TikToks became a career in full technicolor: stand-up, sketch, podcasting, and Jewish community building.We covered everything. Jew camp lore. COVID courtship. Hannah Montana. Holocaust comedy. Dating app postmortems. And the raw, relentless grief that comes with being Jewish online in 2025. Libby's alter ego lets her say the quiet parts out loud, but the real Libby? She's got receipts, range, and a righteous sense of purpose.If you're burnt out on algorithm-friendly “influencers,” meet a creator who actually stands for something. She doesn't flinch. She doesn't filter. And she damn well earned her platform.This is the most Jewish episode I've ever recorded. And yes, there will be guilt.RELATED LINKSLibby's Website: https://libbyambershayo.comInstagram: https://www.instagram.com/libbyambershayoTikTok: https://www.tiktok.com/@libbyambershayoLinkedIn: https://www.linkedin.com/in/libby-walkerSchmuckboys Podcast: https://jewishjournal.com/podcasts/schmuckboysForbes Feature: Modern Mrs. Maisel Vibes https://www.forbes.com/sites/joshweissMedium Profile: https://medium.com/@libbyambershayoFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform.For guest suggestions or sponsorship, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

The Incubator
#375 -

The Incubator

Play Episode Listen Later Nov 11, 2025 13:15


Send us a textThis discussion features Dr. Charada Gowda and Dr. Jessica Fry, leaders in the CHNC collaborative network, highlighting ongoing work within the CDH and Palliative Care & Ethics (PACE) focus groups. The CDH group is developing consensus clinical practice guidelines and has created an outcomes calculator to support more informative prenatal counseling and individualized care planning. The PACE group focuses on improving collaboration between neonatology and palliative care teams and recently surveyed CHNC centers regarding resources to support clinicians after patient loss. Findings emphasize that simply knowing support tools exist improves staff well-being. Both groups model multidisciplinary collaboration that enhances clinical guidance, communication, and family-centered care across the NICU.Support the showAs always, feel free to send us questions, comments, or suggestions to our email: nicupodcast@gmail.com. You can also contact the show through Instagram or Twitter, @nicupodcast. Or contact Ben and Daphna directly via their Twitter profiles: @drnicu and @doctordaphnamd. The papers discussed in today's episode are listed and timestamped on the webpage linked below. Enjoy!

Peaceful Exit
What Dying Can Teach You About Living with Dr. BJ Miller

Peaceful Exit

Play Episode Listen Later Nov 11, 2025 37:40


Palliative care physician Dr. BJ Miller survived a near-death experience and lost three limbs at just 19 years old. In this intimate conversation, he tells Sarah how confronting mortality reshaped his purpose, and opened his heart to awe, humor, creativity, and love. BJ has been on a mission to redefine end-of-life care through his work at Mettle Health and his book, "A Beginner's Guide to the End." He invites you to challenge the fear and silence around death, and imagine a better way to live — and die.

Get Connected
For National Hospice and Palliative Care Month, Calvary Hospital on End-Of-Life Care

Get Connected

Play Episode Listen Later Nov 10, 2025 14:09 Transcription Available


November is National Hospice and Palliative Care Month, a time dedicated to raising awareness about hospice and palliative care and celebrating the professionals and volunteers who provide this essential care. Our guest is Dr. Linda Valentino, Chief Nursing Officer at NY City-based Calvary Hospital. Calvary is the country's only hospital dedicated to providing hospice and palliative care to adult patients with advanced cancer and other life-limiting illness.

The MATTER Podcast
ป่วยหนักแต่มีคุณภาพชีวิตที่ดีได้ กับการดูแลแบบประคับประคอง Palliative care | MTD EP09

The MATTER Podcast

Play Episode Listen Later Nov 9, 2025 40:35


คุณมองเห็นการเจ็บป่วยระยะท้ายแบบไหน ? ระหว่างการที่ได้รับการรักษาทุกรูปแบบโดยอาจจะไม่สามารถสื่อสารกับคนที่รักได้ หรือการที่ได้มีเวลาอยู่กับคนที่รักแบบยังมีสติและสื่อสารบอกความรู้สึกให้กับพวกเขาได้อยู่  . Palliative care หรือชื่อไทยว่าการดูแลแบบประคับประคอง มีคนเข้าใจผิดมากว่าเป็นการไม่รักษาแล้ว แต่ไม่ได้เป็นแบบนั้น ไม่มีการปล่อยจอยไม่รักษาชีวิตผู้ป่วย เพียงแต่ไม่มีการเร่งและไม่ยื้อชีวิต เพื่อต้องการให้ผู้ป่วยวาระท้ายได้มีคุณภาพชีวิตที่ต้องการมากที่สุด เช่น แทนที่จะต้องโดนเสียบสายเพื่อหายใจ เพื่อรักษา เพื่อให้อาหาร แต่เปลี่ยนมาเป็นการได้ได้กินอาหารที่อยากกิน ได้อยู่พูดคุยล้อมรอบด้วยคนที่รักแทน . แล้วการดูแลแบบนี้นั้นมีข้อดีอย่างไร ? วาระที่มีคุณภาพนั้นเป็นแบบไหน ? ควรเข้าไปเริ่มการดูแลตอนไหน แล้วมีโรคอะไรที่ควรเริ่มการดูแลแบบนี้บ้าง ? รายการใน Episode นี้มีคำตอบให้กับทุกคน ดำเนินรายการโดย กอเตย - ปิญชาดา ผ่องนพคุณ - Death Planner นักวางแผนการตายดี และผู้ก่อตั้ง Baojai Family และ แพทย์หญิง นิษฐา เอื้ออารีมิตร  ผู้ก่อตั้งและผู้อำนวยการโรงพยาบาลคูน Learn more about your ad choices. Visit megaphone.fm/adchoices

GeriPal - A Geriatrics and Palliative Care Podcast
Palliative Care in Sickle Cell: Craig Blinderman, Stephanie Kiser, Eberechi Nwogu-Onyemkpa

GeriPal - A Geriatrics and Palliative Care Podcast

Play Episode Listen Later Nov 6, 2025 47:58


Today's topic on palliative care for sickle cell disease may raise eyebrows with some of you.  You might think, wait, now we're doing sickle cell?  On top of liquid cancer and transplant, kidney disease, liver disease, and survivorship?  Where does it end?  Do we have staff for all of this? Well I implore you, dear listeners, to keep an open mind and listen to this podcast.  Our guests do a fabulous job of stating the case for palliative care in sickle cell disease, to the point that we ask: why haven't we been doing this all along? Our guests today are Craig Blinderman, Stephanie Kiser, Eberechi Nwogu-Onyemkpa, three palliative care docs who have been advancing the practice in palliative care for sickle cell for a long time. Our discussion ranges from what is sickle cell; to outcomes; to social determinants and discrimination; to PCAs, ketorolac, and bupenorphine; and to the importance of the interdisciplinary team. I would also encourage you to check out Eberechi's NEJM Perspective on Involving Palliative Care to Improve Outcomes in Sickle Cell, which includes a table of the challenges and action items needed to move the field forward. I'd also encourage you to sample this AAHPM Flight on the same topic (we learned that a flight is similar to a flight of drinks - a quick sampling). As Eberechi notes at the start, we should be grateful for the community of people who are advancing palliative care in sickle cell.  Thank you for being a friend (song hint!). -Alex Smith  

OffScrip with Matthew Zachary
Standard Deviation EP3: The Weight

OffScrip with Matthew Zachary

Play Episode Listen Later Nov 6, 2025 14:56


When the system kills a $2.4 million study on Black maternal health with one Friday afternoon email, the message is loud and clear: stop asking questions that make power uncomfortable. Dr. Jaime Slaughter-Acey, an epidemiologist at UNC, built a groundbreaking project called LIFE-2 to uncover how racism and stress shape the biology of pregnancy. It was science rooted in community, humanity, and truth. Then NIH pulled the plug, calling her work “DEI.” Jaime didn't quit. She fought back, turning her grief into art and her outrage into action. This episode is about the cost of integrity, the politics of science, and what happens when researchers refuse to stay silent.RELATED LINKS• The Guardian article• NIH Grant• Jaime's LinkedIn Post• Jaime's Website• Faculty PageFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Seniority Authority
How Palliative Care Improves Life at Every Stage

Seniority Authority

Play Episode Listen Later Nov 6, 2025 20:18


Palliative care isn't “giving up”—it's teaming up. Nurse practitioner Minerva Sabine explains how comfort, clarity, and support can begin from day one of a serious diagnosis—not just at the end. In this conversation, she demystifies palliative care, outlines who can benefit, and shares how early involvement can ease stress for both patients and families.You'll learn how palliative teams coordinate with doctors, manage symptoms, and guide meaningful conversations about goals and values. Minerva also shares powerful real-world stories that highlight the difference this approach makes in quality of life and peace of mind.Timestamps0:00 - Intro3:25 - What palliative care really is—and how it differs from hospice7:10 - When to involve palliative care and what families can expect10:45 - The interdisciplinary team: medicine, emotion, and spirit14:20 - Common misconceptions and real patient stories18:30 - How palliative care supports families and improves quality of lifeWhat's NextIf palliative care might help you or a loved one, start by asking your doctor for a referral. Visit The Conversation Project to explore free guides that help families talk about wishes and values before a crisis.Stay connected with Seniority Authority on Facebook and Instagram for more practical, positive conversations about growing older with purpose.

Room 64 - A Palliative Care Podcast
Season 7 Episode 6 - A chat with senior dietitian Justine Watts

Room 64 - A Palliative Care Podcast

Play Episode Listen Later Nov 5, 2025 39:45


In this episode of Room 64 we are joined by senior dietitian Justine Watts from the Barwon Health Palliative Care service.Sharing information about her role as a dietitian Justine talks about the team approach to supporting patients to achieve their goals through their palliative care journey. This episode is a rare insight into the unique role of the dietitian, the importance of working with other members of the Palliative Care team and why the dietitian role is an interesting career opportunity.Please take the opportunity to listen to this episode and share through your networks to keep these important conversations happening.

OffScrip with Matthew Zachary
Stand By She: Allison Applebaum

OffScrip with Matthew Zachary

Play Episode Listen Later Nov 4, 2025 39:37


EPISODE DESCRIPTIONAllison Applebaum was supposed to become a concert pianist. She chose ballet instead. Then 9/11 hit, and she ran straight into a psych ward—on purpose. What followed was one of the most quietly revolutionary acts in modern medicine: founding the country's first mental health clinic for caregivers. Because the system had decided that if you love someone dying, you don't get care. You get to wait in the hallway.She's a clinical psychologist. A former dancer. A daughter who sat next to her dad—legendary arranger of Stand By Me—through every ER visit, hallway wait, and impossible choice. Now she's training hospitals across the country to finally treat caregivers like patients. With names. With needs. With billing codes.We talked about music, grief, psycho-oncology, the real cost of invisible labor, and why no one gives a shit about the person driving you to chemo. This one's for the ones in the waiting room.RELATED LINKSAllisonApplebaum.comStand By Me – The BookLinkedInInstagramThe Elbaum Family Center for Caregiving at Mount SinaiFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Peaceful Exit
Season 6 Trailer

Peaceful Exit

Play Episode Listen Later Nov 4, 2025 2:57


Peaceful Exit is back with new episodes starting Tuesday, November 11! Host Sarah Cavanaugh is on a mission to dispel people's natural fear surrounding death, dying and grief. This season, she'll talk with a new slate of exciting guests: writer Mary Roach, palliative care physician Dr. BJ Miller, psychologist Dr. Lucy Hone, grief activist Lisa Keefauver, poet Jenny George, and many others. You'll hear how death has brought each of them meaning, connection, and even moments of joy. Not one of us is getting out of here alive - so we might as well talk about it.

That Tech Pod
Bad Medicine: AI's Deadly Advice with Dr. Ross Albert

That Tech Pod

Play Episode Listen Later Nov 4, 2025 34:19


In this episode of That Tech Pod, Laura and Kevin talk with Kevin's brother, Dr. Ross Albert, Medical Director of Hartford HealthCare at Home Hospice and Palliative Care, about one of the most unsettling trends in the digital age: health misinformation driven by AI. The conversation kicks off with a real case of a man hospitalized after following ChatGPT's bad advice and spirals into the broader question of why people are so quick to trust AI over actual doctors.Ross shares what it's like when patients bring AI-generated “facts” into the exam room, how often he has to correct them, and what happens when politics, ideology, and misinformation collide with medicine. We get into the risks of fake medical citations, the line between bad advice and malpractice, and whether AI companies should be required to include stronger safeguards for health-related content. From hallucinations caused by bromide poisoning to the daily challenges doctors face correcting digital myths, this episode looks at what happens when artificial intelligence meets human vulnerability, and why it's more important than ever to check your sources before taking medical advice from a chatbot.Dr. Ross Albert, MD PhD is the Medical Director of the Hartford HealthCare at Home Hospice and Palliative Care teams. Over the last 15 years, he has practiced in primary care, hospital medicine, and palliative care roles across Connecticut. He holds board certifications in Family Medicine, Hospice and Palliative Medicine. Ross holds faculty positions with the UConn Internal Medicine and Quinnipiac Family Medicine residency programs. He has published numerous articles focused on evidence-based medical care for patients across the spectrum of disease.Note: this episode is for informational purposes only. We talk about how medical misinformation spreads and what we can learn from it, but nothing you hear should be taken as medical advice. If you have questions about your health, talk to a doctor or another qualified healthcare professional. Also the views expressed by our guests are their own. 

Bendy Bodies with the Hypermobility MD
From Palliative Care to Purpose: The Tilly Rose Story (Ep 168)

Bendy Bodies with the Hypermobility MD

Play Episode Listen Later Oct 30, 2025 81:36


In this emotionally charged episode, Dr. Linda Bluestein talks with Tilly Rose, the founder of That Oxford Girl and the author of Be Patient, about what it's like to face palliative care as a young adult and come out the other side fighting for change. They explore how Tilly transformed her private pain into public advocacy, why chronic illness is so often misunderstood in young people, and what happens when you rewrite your identity in the face of a diagnosis. This is a story of resilience, reinvention, and the radical act of showing up when the world doesn't know what to do with you. Takeaways What happens when a diagnosis rewrites your life story and how can you reclaim the pen? Tilly shares the moment that inspired Be Patient and the raw honesty behind turning medical trauma into a memoir. Learn how she balanced life at Oxford with hospital stays and how those parallel worlds reshaped her idea of “achievement.” Why do so many young people with chronic illness feel unseen and what does Tilly believe needs to change? Discover how That Oxford Girl evolved from a quiet act of self-expression into a global movement of validation, empathy, and empowerment. Tilly reveals why sharing her story became both a lifeline and a catalyst for a more compassionate future. References: Order “Be Patient” by Tilly Rose (free international shipping): https://blackwells.co.uk/bookshop/product/Be-Patient-by-Tilly-Rose/9781780726229 Vascular Compression Syndromes: https://scholbach.de/wissenschaft/deutsch-ultraschalldiagnostik/deutsch-gefaskompressionen#gsc.tab=0 Greater National Advocates: https://gnanow.org/ Surgical treatment of abdominal compression syndromes: The significance of hypermobility-related disorders: https://pubmed.ncbi.nlm.nih.gov/34747562/ Want more Tilly Rose? https://www.instagram.com/thattillyrose/?hl=en https://www.facebook.com/people/Tilly-Rose-Author/61575923876707/?_rdr https://www.linkedin.com/in/tillyrose/?originalSubdomain=uk https://www.tiktok.com/@thattillyrose?lang=en Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices

Bendy Bodies with the Hypermobility MD, Dr. Linda Bluestein
From Palliative Care to Purpose: The Tilly Rose Story (Ep 168)

Bendy Bodies with the Hypermobility MD, Dr. Linda Bluestein

Play Episode Listen Later Oct 30, 2025 81:36


In this emotionally charged episode, Dr. Linda Bluestein talks with Tilly Rose, the founder of That Oxford Girl and the author of Be Patient, about what it's like to face palliative care as a young adult and come out the other side fighting for change. They explore how Tilly transformed her private pain into public advocacy, why chronic illness is so often misunderstood in young people, and what happens when you rewrite your identity in the face of a diagnosis. This is a story of resilience, reinvention, and the radical act of showing up when the world doesn't know what to do with you. Takeaways What happens when a diagnosis rewrites your life story and how can you reclaim the pen? Tilly shares the moment that inspired Be Patient and the raw honesty behind turning medical trauma into a memoir. Learn how she balanced life at Oxford with hospital stays and how those parallel worlds reshaped her idea of “achievement.” Why do so many young people with chronic illness feel unseen and what does Tilly believe needs to change? Discover how That Oxford Girl evolved from a quiet act of self-expression into a global movement of validation, empathy, and empowerment. Tilly reveals why sharing her story became both a lifeline and a catalyst for a more compassionate future. Find the episode transcript here. References: Order “Be Patient” by Tilly Rose (free international shipping): https://blackwells.co.uk/bookshop/product/Be-Patient-by-Tilly-Rose/9781780726229 Vascular Compression Syndromes: https://scholbach.de/wissenschaft/deutsch-ultraschalldiagnostik/deutsch-gefaskompressionen#gsc.tab=0 Greater National Advocates: https://gnanow.org/ Surgical treatment of abdominal compression syndromes: The significance of hypermobility-related disorders: https://pubmed.ncbi.nlm.nih.gov/34747562/ Want more Tilly Rose? https://www.instagram.com/thattillyrose/?hl=en https://www.facebook.com/people/Tilly-Rose-Author/61575923876707/?_rdr https://www.linkedin.com/in/tillyrose/?originalSubdomain=uk https://www.tiktok.com/@thattillyrose?lang=en Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices

Real Presence Live
Dr. Christopher DeCock - RPL 10.30.25 1/1

Real Presence Live

Play Episode Listen Later Oct 30, 2025 59:40


Abuses of hospice, how to protect against them, and voluntary stopping of eating and drinking Link to the article: A Guide to Palliative Care and Hospice by Jozef Zalot. Published in Ethics & Medics, a publication of The National Catholic Bioethics Center https://static1.squarespace.com/static/5e3ada1a6a2e8d6a131d1dcd/t/5ec6d60e98a9d10eb4bfbcd8/1590089232347/Ethics%26Medics_vol56_no6.pdf

OffScrip with Matthew Zachary
Sick Days Not Included: Rebecca V. Nellis

OffScrip with Matthew Zachary

Play Episode Listen Later Oct 28, 2025 59:04


EPISODE DESCRIPTIONRebecca V. Nellis never meant to run a nonprofit. She just never left. Twenty years later, she's still helming Cancer and Careers after a Craigslist maternity-leave temp job turned into a lifelong mission.In this 60-minute doubleheader, we cover everything from theater nerdom and improv rules for surviving bureaucracy, to hanging up on Jon Bon Jovi, to navigating cancer while working—or working while surviving cancer. Same thing.Rebecca's path is part Second City, part Prague hostel, part Upper East Side grant writer, and somehow all of that makes perfect sense. She breaks down how theater kids become nonprofit lifers, how “sample sale feminism” helped shape a cancer rights org, and how you know when the work is finally worth staying for.Also: Cleavon Little. Tap Dance Kid. 42 countries. And one extremely awkward moment involving a room full of women's handbags and one very confused Matthew.If you've ever had to hide your diagnosis to keep a job—or wanted to burn the whole HR system down—this one's for you.RELATED LINKSCancer and CareersRebecca Nellis on LinkedIn2024 Cancer and Careers Research ReportWorking with Cancer Pledge (Publicis)CEW FoundationI'm Not Rappaport – Broadway InfoFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship opportunities, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

WGN - Steve Dale's Pet World
Pets Peace of Mind; Pet obesity is occurring more often worldwide; and more

WGN - Steve Dale's Pet World

Play Episode Listen Later Oct 26, 2025


Vera Junge, Volunteer Coordinator of Unity Hospice and Palliative Care, explains their novel program which cares for pets of clients who happen to be in hospice called Pets Peace of Mind.  Volunteers walk dogs, feed pets, change cat litter, play with pets, change the paper for Guinea pigs, whatever it takes. The organization also will drive pets […]

New England Journal of Medicine Interviews
NEJM Interview: Eberechi Nwogu-Onyemkpa on integrating palliative care services and resources into the management of sickle cell disease.

New England Journal of Medicine Interviews

Play Episode Listen Later Oct 22, 2025 9:52


Eberechi Nwogu-Onyemkpa is an assistant professor in the Division of Palliative Medicine at Washington University in St. Louis. Stephen Morrissey, the interviewer, is the Executive Managing Editor of the Journal. E. Nwogu-Onyemkpa and Others. Involving Palliative Care to Improve Outcomes in Sickle Cell Disease. N Engl J Med 2025;393:1553-1556. E. Costa and Others. Thirty Years of Hydroxyurea for Sickle Cell Anemia — Scientific Progress, Global Health Gaps. N Engl J Med 2025;393:1556-1559.

OffScrip with Matthew Zachary
GenX Therapy With Sally Wolf

OffScrip with Matthew Zachary

Play Episode Listen Later Oct 21, 2025 41:12


Sally Wolf is back in the studio and this time we left cancer at the door. She turned 50, brought a 1993 Newsday valedictorian article as a prop, and sat down with me for a half hour of pure Gen X therapy. We dug into VHS tracking, Red Dawn paranoia, Michael J. Fox, Bette Midler, and how growing up with no helmets and playgrounds built over concrete somehow didn't kill us.We laughed about being Jewish kids in the suburbs, the crushes we had on thirty-year-olds playing teenagers, and what it means to hit 50 with your humor intact. This episode is part nostalgia trip, part roast of our own generation, and part meditation on the privilege of being alive long enough to look back at it all. If you ever watched Different Strokes “very special episodes” or had a Family Ties lunchbox, this one's for you.RELATED LINKSSally Wolf Official WebsiteSally Wolf on LinkedInSally Wolf on InstagramCosmopolitan Essay: “What It's Like to Have the ‘Good' Cancer”Oprah Daily: “Five Things I Wish Everyone Understood About My Metastatic Breast Cancer Diagnosis”Allure Breast Cancer Photo ShootTom Wilson's “Stop Asking Me the Question” SongFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Catholic Health USA Podcast
Collaborating in Caring for the Whole Person

Catholic Health USA Podcast

Play Episode Listen Later Oct 21, 2025 23:55


Health Calls Season 6, Episode 4 explores the transformative power of Whole Person Care in the context of palliative care, with guest Lori Dangberg, Executive Vice President of the Alliance of Catholic Health Care in California. Lori shares the origins and impact of a statewide initiative that brings together dioceses, parishes, and health systems to support patients and families through serious illness and end-of-life care. The episode highlights how collaborative education—through a five-module curriculum—empowers parish leaders and clinicians to engage in meaningful conversations around palliative care, Catholic moral teaching, and advanced care planning. With resources available in multiple languages and formats, the initiative fosters dignity, compassion, and informed decision-making. Hosts Brian Reardon and Josh Matejka reflect on the importance of this work as the population ages and the need for holistic care grows. Health Calls is available on the following podcast streaming platforms:Apple PodcastsSpotifyYouTubeLearn more about The Catholic Health Association of the United States at www.chausa.org.

OffScrip with Matthew Zachary
Standard Deviation EP2: Domino Effect

OffScrip with Matthew Zachary

Play Episode Listen Later Oct 16, 2025 10:43


Dr. Nikki Maphis didn't just lose a grant. She lost a lifeline. An early-career Alzheimer's researcher driven by her grandmother's diagnosis, Nikki poured years into her work—only to watch it vanish when the NIH's MOSAIC program got axed overnight. Her application wasn't rejected. It was deleted. No feedback. No score. Just gone.In this episode, Oliver Bogler pulls back the curtain on what happens when politics and science collide and promising scientists get crushed in the crossfire. Nikki shares how she's fighting to stay in the field, teaching the next generation, and rewriting her grant for a world where even the word “diversity” can get you blacklisted. The conversation is raw, human, and maddening—a reminder that the real “war on science” doesn't happen in labs. It happens in inboxes.RELATED LINKS:• Dr. Nikki Maphis LinkedIn page• Dr. Nikki Maphis' page at the University of New Mexico• Vanguard News Group coverage• Nature article• PNAS: Contribution of NIH funding to new drug approvals 2010–2016FEEDBACK:Like this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, visit outofpatients.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Cancer Buzz
LIVE from NOC: Exec Dir on Unleashing Innovation

Cancer Buzz

Play Episode Listen Later Oct 15, 2025 8:29


Live this week from the ACCC's 42nd National Oncology Conference (NOC), CANCER BUZZ speaks with ACCC Executive Director Meagan O'Neill, MS, who previews the week.  Guest:  Meagan O'Neill, MS Executive Director, Association of Cancer Care Centers   Resources:  ACCC 42nd National Oncology Conference Agenda  

Hospice Insights: The Law and Beyond
Making Palliative Care a Win-Win-Win: A Conversation with Dr. Bethany Snider, Chief Medical Officer, Hosparus Health

Hospice Insights: The Law and Beyond

Play Episode Listen Later Oct 15, 2025 50:51


You know those conversations that leave you feeling excited, hopeful, and ready to change the world? This is one of those conversations. In this episode, Husch Blackwell's Meg Pekarske is joined by American Academy of Hospice and Palliative Medicine Fellow Dr. Bethany Snider. Dr. Snider shares how she developed a palliative care program that meets the needs of patients, payors, and her organization at-large. Their wide-ranging conversation covers alternative payment models, the importance of scale, the role of data analytics, and how to stay motivated in today's regulatory environment.

OffScrip with Matthew Zachary
Family Reach: The Charity America Forced Into Existence

OffScrip with Matthew Zachary

Play Episode Listen Later Oct 14, 2025 40:59


Carla Tardiff has spent 17 years as the CEO of Family Reach, a nonprofit that shouldn't have to exist but absolutely does—because in America, cancer comes with a price tag your insurance doesn't cover.We talk about shame, fear, burnout, Wegmans, Syracuse, celebrity telethons, and the godforsaken reality of choosing between food and treatment. Carla's a lifer in this fight, holding the line between humanity and bureaucracy, between data and decency. She's also sharp as hell, deeply funny, and more purpose-driven than half of Congress on a good day.This episode is about the work no one wants to do, the stuff no one wants to say, and why staying angry might be the only way to stay sane.Come for the laughs. Stay for the rage. And find out why Family Reach is the only adult in the room.RELATED LINKSFamily ReachFinancial Resource CenterCarla on LinkedInMorgridge Foundation ProfileAuthority Magazine InterviewSyracuse University FeatureFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Peaceful Exit
The Art of Dying Well with Katy Butler (Replay)

Peaceful Exit

Play Episode Listen Later Oct 14, 2025 48:43


Journalist Katy Butler spent years listening to hundreds of people's stories of good and difficult deaths. She's talked to countless experts in palliative care, geriatrics, hospice, and oncology. Those conversations, paired with lots of research and the story of her own father's challenging death, come together in her deeply practical and existential book, "The Art of Dying Well: A Practical Guide to a Good End of Life." In this episode, Katy tells Sarah what she learned from each of her parents' deaths, what the research says most people want in their final chapters, and what she'd like for the end of her own life.

GeriPal - A Geriatrics and Palliative Care Podcast
GeriPal Live! at CAPC: Karen Bullock, Kim Curseen, Matt Gonzalez

GeriPal - A Geriatrics and Palliative Care Podcast

Play Episode Listen Later Oct 9, 2025 63:25


Eric and I had the pleasure of doing a GeriPal Live! Podcast as the closing keynote for the recent Center to Advance Palliative Care (CAPC) National Assembly in Philadelphia PA. For this podcast, we invited 3 guests to each select an article of interest to them, and engage in a discussion about the article, including questions from the CAPC attendees in the audience. Our guests chose the following articles (in the order discussed) Matt Gonzalez used AI to select an article by Ravi Parikh on algorithm based nudges to default patients with advanced cancer into a palliative care consult, published in JAMA Network Open, finding 44% in the intervention arm received palliative care consults, vs 8% in the control arm.  We discussed use of AI to select the article, nudges, sludge, and the impressive though still less than 50% rate of PC consults. Kim Curseen selected an article by Harry Han in JPSM that surveyed palliative care fellowships, finding that clinical fellows spent 5 weeks in outpatient care and 24 weeks in inpatient care, on average.  We discussed the mismatch between outpatient training, and the needs of people with serious illness who spend most of their lives outside the hospital, and training in inpatient care, where most hospitals have robust services and needs. Training in non-onc palliative care was particularly low. Karen Bullock selected a letter she first authored in response to Ira Byock's white paper on a path forward in hospice and palliative care. We discussed the need to view all issues in geriatrics, hospice, and palliative care through an equity lens, particularly in view of the disparate impact on historically marginalized communities of concerning practices and trends in hospice and palliative care (e.g. private equity gobbling up hospices).  And at the end, we sang a tribute to the Lady Gaga of Palliative Care, with the whole Assembly singing along! Stay tuned for future GeriPal Live! Podcasts, including recordings at the NPCRC Foley Retreat in Banff, and the São Paulo Geriatrics & Gerontology Congress, click here to register.   -Alex Smith  

OffScrip with Matthew Zachary
The Genes of Wrath: Jennifer J. Brown

OffScrip with Matthew Zachary

Play Episode Listen Later Oct 7, 2025 40:46


Jennifer J. Brown is a scientist, a writer, and a mother who never got the luxury of separating those roles. Her memoir When the Baby Is Not OK: Hopes & Genes is a punch to the gut of polite society and a medical system that expects parents to smile through trauma. She wrote it because she had to. Because the people who gave her the diagnosis didn't give her the truth. Because a Harvard-educated geneticist with two daughters born with PKU still couldn't get a straight answer from the very system she trained in.We sat down in the studio to talk about the unbearable loneliness of rare disease parenting, the disconnect between medical knowledge and human connection, and what it means to weaponize science against silence. She talks about bias in the NICU, the failure of healthcare communication, and why “resilience” is a lazy word. Her daughters are grown now. One's a playwright. One's an artist. And Jennifer is still raising hell.This is a conversation about control, trauma, survival, and rewriting the script when the world hands you someone else's lines.Bring tissues. Then bring receipts.RELATED LINKS• When the Baby Is Not OK (Book)• Jennifer's Website• Jennifer on LinkedInFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, visit outofpatients.show.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Room 64 - A Palliative Care Podcast
Season 7 Episode 5 - Connection between allied health and palliative care

Room 64 - A Palliative Care Podcast

Play Episode Listen Later Oct 6, 2025 21:34


In this episode of Room 64 we are joined by occupational therapist Monique Walsh and [hysiotherapist Brendan Illyett from the Barwon Health palliative care service.Sharing information about their roles, Brendan and Monique talk about the team approach to supporting patients to achieve their goals (no matter how small or big) through their palliative care journey. This episode offers a rare insight into the unique role of the allied health team and the importance of working together when it comes to managing patient symptoms and challenges. Please take the opportunity to listen to this episode and share through your networks to keep these important conversations happening.

All Home Care Matters
Jonathan Cottor Founder & CEO of the National Center for Pediatric Palliative Care Homes (NCPPCH)

All Home Care Matters

Play Episode Listen Later Oct 3, 2025 62:47


All Home Care Matters and our host, Lance A. Slatton were honored to welcome Jonathan Cottor as guest to the show.   About Jonathan Cottor, MBA, MPH. :   Jonathan Cottor is a devoted father whose journey with his son Ryan, diagnosed with Spinal Muscular Atrophy at 9 months old, profoundly shaped his life. Ryan defied expectations, living an extraordinary 17 years until his death in December 2018. Inspired by their experience, Jonathan and his wife co-founded Ryan House, a pioneering children's respite, palliative, and hospice care home in Phoenix, Arizona.   After a 30-year career in corporate marketing and leadership, Ryan's death became the catalyst for Jonathan to align his work with his passion. He earned a Master of Public Health (MPH) from the Johns Hopkins Bloomberg School of Public Health, specializing in policy and advocacy, along with a certificate in Maternal and Child Health.   Jonathan is now a recognized national thought leader in pediatric palliative care.   He has been instrumental in building a coalition of community-based pediatric palliative care home models, culminating in the creation of the National Center for Pediatric Palliative Care Homes and its flagship initiative, Children's Respite Homes of America.   About National Center for Pediatric Palliative Care Homes (NCPPCH):   The National Center for Pediatric Palliative Care Homes (NCPPCH) is a national nonprofit advancing an innovative solution: local, community-based homes that provide overnight respite, palliative, and hospice care tailored to the needs of medically fragile children and young adults, particularly those with life-limiting conditions.      

OffScrip with Matthew Zachary
Introducing Standard Deviation EP1: The Impossible Climb

OffScrip with Matthew Zachary

Play Episode Listen Later Oct 2, 2025 9:33


This episode of Standard Deviation features Oliver Bogler in conversation with Dr Na Zhao, a cancer biologist caught in the crossfire of science, politics, and survival. Na's life reads like a brutal lab experiment in persistence.She grew up in China, lost her mother and aunt to breast cancer before she turned twelve, then came to the United States to chase science as both an immigrant and a survivor's daughter. She worked two decades to reach the brink of independence as a cancer researcher, only to watch offers and grants vanish in the political chaos of 2025.Oliver brings her story into sharp focus, tracing the impossible climb toward a tenure-track position and the human cost of a system that pulls the ladder up just as people like Na reach for it. This conversation pulls back the curtain on the NIH funding crisis, the toll on early-career scientists, and what happens when personal tragedy fuels professional ambition.Listeners will walk away with a raw sense of how fragile the future of cancer research really is, and why people like Na refuse to stop climbing.RELATED LINKSDr Zhao at Baylor College of MedicineDr Zhao on LinkedInDr Zhao's Science articleIndirect Costs explained by US CongressFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

TCN Talks
Welcome to Fall Tops News Stories September 2025

TCN Talks

Play Episode Listen Later Oct 1, 2025 50:32 Transcription Available


As the seasons shift, so do the conversations shaping Hospice and Palliative Care.  In this week's episode, host Chris Comeaux and Hospice Analytics expert and co-host Cordt Kassner explore the latest headlines, challenges, and innovations impacting Hospice and Palliative Care.Together, they provide timely insights and thoughtful reflection on what matters most right now for providers, patients, and families, with discussion on the latest trends and insights in Hospice and Palliative Care. Covering a range of topics, including the impact of AI on Hospice Care, the importance of end-of-life visits, and the challenges of Hospice utilization trends.  Also highlights significant events and stories from the Hospice community, such as the launch of a new nursing scholarship program and the impact of Hurricane Helene one year later.More than just a news recap, this episode offers perspective, encouragement, and a reminder of why Hospice and Palliative Care are both urgent and deeply meaningful.  Whether you're a healthcare leader, frontline caregiver, or simply someone passionate about end-of-life care, this conversation will keep you informed and inspired as we enter the fall season.Highlights• Projected RN, LPN, NP shortages through 2032 and what that means for bedside care• Waste, fraud, abuse headlines and the urgency of last week's visit quality• Byock's four pillars as a roadmap for standards, data, competition, and brand• Mental health in palliative care and dignity therapy as practical tools• HOPE implementation and iQIES readiness across hospices• Scholarships and legacy programs to build CNA-to-RN pipelines• AI use cases, editing pitfalls, and critical thinking guardrails• PACE vs hospice at end-of-life and “rehab to death” incentives• Utilization trends, COVID death pull-forward, and state disparities• Disaster preparedness lessons when communications fail• Leadership training gaps and the masterclass: return to fundamentalsCo-host:Cordt Kassner, PhD, Publisher of Hospice & Palliative Care Today & CEO and Founder of Hospice AnalyticsHost:Chris Comeaux, President / CEO of Teleios Collaborative Network, Teleios Consulting GroupPlease subscribe, share TCN Talks with a colleague, and help us reach more hospice and palliative leadersTeleios Collaborative Network / https://www.teleioscn.org/tcntalkspodcast

OffScrip with Matthew Zachary
Sorry, Your Awareness Campaign is Showing

OffScrip with Matthew Zachary

Play Episode Listen Later Sep 30, 2025 43:22


Katie Henry has seen some things. From nonprofit bootstraps to Big Pharma boardrooms, she's been inside the machine—and still believes we can fix it. We go deep on her winding road from folding sweaters at J.Crew to launching a vibrator-based advocacy campaign that accidentally changed the sexual health narrative in breast cancer.Katie doesn't pull punches. She's a born problem solver with zero tolerance for pink fluff and performative empathy. We talk survivor semantics, band camp trauma, nonprofit burnout, and why “Didi” is the grandparent alter ego you never saw coming.She's Murphy Brown with a marimba. Veronica Sawyer in pharma. Carla Tortelli with an oncology Rolodex. And she still calls herself a learner.This is one of the most honest, hilarious, and refreshingly real conversations I've had. Period.RELATED LINKS:Katie Henry on LinkedInKatie Henry on ResearchGateLiving Beyond Breast CancerNational Breast Cancer CoalitionFEEDBACK:Like this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Lois Koffi's Healthy N Wealthy N Wise Podcast
Suicide Awareness Grief Recovery Through Music With Tim Ringgold

Lois Koffi's Healthy N Wealthy N Wise Podcast

Play Episode Listen Later Sep 27, 2025 46:21


September is suicide awareness month and grief recovery is a very important topic at this time Today I interview Tim Ringgold, a grief recovery specialist who knows a LOT about grief Have you ever had a song change your mood before the song was even over? Then you know that music is a powerful tonic for emotional pain and heart ache. My guest today knows this all too well. He is a board certified music therapist with a certificate in Hospice and Palliative Care music therapy, and has been facilitating Grief Retreats since 2007. Tim is also the author of the book, Sonic Recovery: Harness the Power of Music to Stay Sober. Tim was the first person to give a TEDx talk on music therapy in 2012, and is a former Regional President of theAmerican Music Therapy Association. When he's not helping people to reach for music during their toughest times, you can find him on a pickleball court thinking he's still 18, or cheering on his beloved Arsenal Football Club. Joining me from the city of Orange… yes there is a city not just a county named Orange, please welcome my brutha from anotha mutha, Tim Ringgold! HIS FREE GIFT https://5waystoheal.com/ Here is a snapshot of his journey from his website www.TimRinggold.com FIND OUT MORE ABOUT MAGDALENA GRACE HERE or TO SIGN UP FOR HER UPCOMING ABUNDANCE ALCHEMIST IN PERSON WORKSHOPS OR HEALTHY N WEALTHY N WISE RETREATS Our Coed retreat is Oct 30th-Nov 2nd BOOK A RUNES READING AND SIGN UP FOR HER WORKSHOPS & MORE! www.MagdalenaGrace.com JOIN OUR HEALTHY N WEALTHY N WISE ONLINE ACADEMY www.microdosingforhealth.com BUY ME A COFFEE OR DONATE FOR SCHOLARSHIP FUND FOR HEALING CLIENTS IN NEED https://venmo.com/u/lotusthrone MORE ALCHEMY OPPORTUNITIES FOR YOUR BEST HEALTH, WEALTH AND RELATIONSHIPS www.SanDiegoKambo.com www.KundaliniFallbrook.com www.LotusThroneSanctuary.com WANNA SIGN UP AND BE A PLEDGING PATRON FOR HEALTHY N WEALTHY N WISE - SAVING LIVES AND CREATING MORE ABUNDANCE FOR OTHERS? https://patron.podbean.com/magdalena SUBSCRIBE TO HER YOUTUBE CHANNEL:    / @mistymagdalenagrace  

Conversations
What caring for the dying taught Bronnie Ware about living

Conversations

Play Episode Listen Later Sep 25, 2025 51:06


Bronnie Ware was recovering from burnout when she wrote a blog post reflecting on years working as a palliative carer and the epiphanies patients shared with her as they faced death.  It was read by millions and became the basis of her best-selling book, The Top 5 Regrets of the Dying.And the lessons Bronnie learnt from her dying patients also helped her confront some darker elements of her childhood and eventually find peace.The book has become a touchstone for many people all over the world, including influential thinkers like Dr Gabor Mate and Dr Rangan Chaterjee.Bronnie's wildlife vlog can be found on her website bronnieware.comThis episode of Conversations was produced by Jen Leake. Executive Producer is Nicola Harrison.It explores death, dying, palliative care, family, regrets, nature, depression, chronic illness, carer work, Bronnie Ware, The Top 5 Regrets of the Dying, writing,  forgiveness, wildlife, spirituality, memory, meditation.To binge even more great episodes of the Conversations podcast with Richard Fidler and Sarah Kanowski go the ABC listen app (Australia) or wherever you get your podcasts. There you'll find hundreds of the best thought-provoking interviews with authors, writers, artists, politicians, psychologists, musicians, and celebrities.

The Path
"Grief Is Not Meant to Be Healed, Grief Is Meant to Be Held” — Ft: Lanise Shortell

The Path

Play Episode Listen Later Sep 18, 2025 68:43


Send us a textWelcome back to the guest chair Lanise Shortell — a pediatric and perinatal hospice nurse with over 20 years of experience walking families through their most tender moments. She is a global grief advocate who trains physician fellows at Emory University and abroad on the emotional landscapes of pediatric end-of-life care.  Most recently, Lanise became became the Co-Owner of Pediatric Hospice and Palliative Care of Georgia - offering comforting care for families during every step of their journey.Lanise became a student of grief at just 4 years old, after a tragic accident shattered her sense of safety and family overnight. That rupture became a lifelong teacher — one that now informs the way she serves families facing unthinkable loss.This episode is for anyone navigating the quiet ache of loss, or sitting beside someone who is. In this episode, we discussed:The moment Lanise's life drastically changed by unimaginable loss.What it means to honor grief without trying to fix it.How grief can shape — and sometimes become — our life's work.What pediatric hospice work teaches about presence, not performance.Her work globally and nationally training.What we all can do to help families grieving everyday, but especially during the holidays.This conversation is a reminder that grief doesn't need to be rushed, silenced or solved - It simply needs to be held. Connect + Take Action:Instagram: @laniseshortellWebsite: Pediatric Hospice and Palliative Care of Georgia To Sponsor a Family Contact: Becky Loveland @ bloveland76@yahoo.com or contact Lanise Shortell

OffScrip with Matthew Zachary
Miss Diagnosed: Sophie Sargent

OffScrip with Matthew Zachary

Play Episode Listen Later Sep 16, 2025 43:24


Sophie Sargent walked into the studio already owning the mic. A pandemic-era media rebel raised in New Hampshire, trained in Homeland Security (yep), and shaped by rejection, she's built a career out of DM'ing her way into rooms and then owning them. At 25, she's juggling chronic illness, chronic overachievement, and a generation that gets dismissed before it even speaks.We talk Lyme disease, Lyme denial, and the healthcare gaslighting that comes when you “look fine” but your body says otherwise. We dive into rejection as a career accelerant, mental health as content porn, and what it means to chase purpose without sacrificing identity. Sophie's a former morning radio host, country music interviewer, and Boston-based creator with a real voice—and she uses it.No fake podcast voice. No daddy-daughter moment. Just two loudmouths from different planets figuring out what it means to be seen, believed, and taken seriously in a system designed to do the opposite.Spoiler: She's smarter than I was at 25. And she'll probably be your boss someday.RELATED LINKSSophie on InstagramSophie on YouTubeSophie on LinkedInMedium article: “Redefining Rejection”See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

OffScrip with Matthew Zachary
The Uncensored, Unapologetic Olivia Battinelli

OffScrip with Matthew Zachary

Play Episode Listen Later Sep 16, 2025 42:55


What happens when you hand a mic to the most extroverted, uncensored Gen Z career coach in New York? You get Olivia Battinelli—adjunct professor, student advisor, mentor, speaker, and unfiltered truth-teller on everything from invisible illness to resume crimes.We talked about growing up Jewish-Italian in Westchester, surviving the Big Four's corporate Kool-Aid, and quitting a job after 7 months because the shower goals weren't working out. She runs NYU Steinhardt's internship program by day, roasts Takis and “rate my professor” trolls by night, and somehow makes room for maple syrup takes, career coaching, and a boyfriend named Dom who sounds like a supporting character from The Sopranos.She teaches kids how to talk to humans. She's allergic to BS. And she might be the most Alexis Rose-meets-Maeve Wiley-mashup ever dropped into your feed. Welcome to her first podcast interview. It's pure gold.RELATED LINKS:Olivia Battinelli on LinkedInOlivia's Liv It Up Coaching WebsiteOlivia on InstagramNYU Steinhardt Faculty PageFEEDBACK:Like this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.