Podcasts about Palliative care

Trevor Maxwell lived the archetype of masculinity in rural Maine. Big, strong, splitting wood, raising kids, and carrying the load. Then cancer ripped that script apart. In 2018 he was bedridden, emasculated, ashamed, and convinced his family would be better off without him. His wife refused to let him disappear. That moment forced Trevor to face his depression, get help, and rebuild himself. Out of that came Man Up To Cancer, now the largest community for men with cancer, a place where men stop pretending they are bulletproof and start being honest with each other.Eric Charsky joins the conversation. A veteran with five cancers, forty-nine surgeries, and the scars to prove it, Eric lays out what happens when the military's invincible mindset collides with mortality. Together, we talk masculinity, vulnerability, sex, shame, and survival. This episode is blunt, raw, and overdue.RELATED LINKSMan Up To CancerTrevor Maxwell on LinkedInDempsey CenterEric Charsky on LinkedInStupid Cancer FEEDBACKLike this episode? Rate and review Walk It Off on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

A Year of Insight, Impact, and Leadership in Hospice & Palliative Care.  As 2025 comes to a close, we pause to say thank you—to our listeners, leaders, clinicians, and partners who make this work meaningful. This special Christmas Eve episode is our gift back to you: a highlight reel of the most impactful, downloaded, and talked-about TCNtalks episodes of the year.With nearly 45,000 total downloads across TCNtalks and Anatomy of Leadership, this milestone reflects a shared commitment to thoughtful leadership, courageous conversations, and care as it should be. We've curated standout moments from episodes that challenged assumptions, clarified complexity, and pointed toward a better future for serious-illness care.

The most anticipated annual tradition on Out of Patients returns with the 2025 Holiday Podcast Spectacular starring Matthew's twins Koby and Hannah. Now 15 and a half and deep into sophomore year, the twins deliver another unfiltered year end recap that longtime listeners wait for every December. What began as a novelty in 2018 has become a time capsule of adolescence, parenting, and how fast childhood burns off.This year's recap covers real moments from 2025 A subway ride home with a bloodied face after running full speed into that tree that grows in Brooklyn. Broadway obsessions fueled by James Madison High School's Roundabout Youth Ensemble access, including Chess, & Juliet, Good Night and Good Luck, and Pirates of Penzance holding court on Broadway. A Disneylanmd trip where the Millennium Falcon triggered a full system reboot. A New York Auto Show pilgrimage capped by a Bugatti sighting. All the things.The twins talk school pressure, AP classes, learner permit anxiety, pop culture fixation, musical theater devotion, and the strange clarity that comes with turning 15. The humor stays sharp, the details stay specific, and the passage of time stays undefeated. This episode lands where the show works best: family, honesty, and letting young people speak for themselves.FEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Jason Gilley walked into adulthood with a fastball, a college roster spot, and a head of curls that deserved its own agent. Cancer crashed that party and took him on a tour of chemo chairs, pediatric wards, metal taste, numb legs, PTSD, and the kind of late night panic that rewires a kid before he even knows who he is.I sat with him in the studio and heard a story I know in my bones. He grew up fast. He learned how to stare down mortality at nineteen. He found anchors in baseball, therapy, and the strange friendships cancer hands you when it tears your plans apart. He owns the fear and the humor without slogans or shortcuts. Listeners will meet a young man who refuses to let cancer shrink his world. He fights for the life he wants. He names the truth without apology. He reminds us that survivorship stays messy and sacred at the same time. This conversation will stay with you.RELATED LINKS• Jason Gilley on IG• Athletek Baseball Podcast• EMDR information• Children's Healthcare of AtlantaFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Trigger Warning: The content of this episode includes narratives about seriously ill children. If you need to sit this one out, catch up with us on another episode and please take time to care for yourself. In his memoir titled “Because I Knew You: How Some Remarkable Sick Kids Healed a Doctor's Soul”, Dr. Robert Macauley tells the story of the patients who have impacted his life, and how he's changed for good. As a pediatric palliative care physician, Bob walks alongside kids and their parents through serious illnesses. Those experiences have shaped who he is, what he believes and how he practices medicine.   Buy your copy of “Because I Knew You: How Some Remarkable Sick Kids Healed a Doctor's Soul” on Amazon Barnes & Noble   Watch Dr. Macaulay's TEDx talk here.  You can find the Approaching Death Support Kit at bkbooks.com. Find all of Barbara Karnes' products and resources at bkbooks.com. Read Barbara's blog at bkbooks.com. Connect with Barbara Karnes on Facebook IG LinkedIn Twitter (X)  YouTube Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. And we believe you deserve to get good hospice care.  If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you're already receiving, we're here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. Book a session with an expert Hospice Navigator at theheartofhospice.com.   Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook  Twitter  Instagram LinkedIn Email: helen@theheartofhospice.com More podcast episodes: The Heart of Hospice Podcast Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Dr. Sarah Camargos continues her conversation on palliative in movement disorders by interviewing Mr. Victor McConvey. Together they discuss the current state of palliative care in movement disorders including current barriers, challenges, and future goals.

This episode features Professor Nancy Preston (International Observatory on End of Life Care, Lancaster University, Lancaster, UK) and Professor James Downar (Division of Palliative Care, Department of Medicine, University of Ottawa, Ottawa, ON, Canada)   This podcast summarises a editorial which describes the critical intersection of palliative care and assisted dying where legalization has occurred. The authors address how palliative providers are likely to encounter requests for assisted dying, as currently 75–90% of requests come from people who are being treated by palliative care providers or who are admitted to palliative care facilities. The episode challenges the argument for separating these practices, suggesting that integration better supports patient values. It also explores the emotional impact on healthcare workers and the spectrum of their involvement.    Full paper available from:     https://journals.sagepub.com/doi/10.1177/02692163251365440   If you would like to record a podcast about your published (or accepted) Palliative Medicine paper, please contact Dr Amara Nwosu:  a.nwosu@lancaster.ac.uk

This episode features Lily Man Lee Chan (School of Nursing, Li Ka Shing Faculty of Medicine, The University of Hong Kong, Hong Kong SAR).   What is already known about the topic?   Progressive neurologic diseases involve complex, fluctuating symptoms and function decline. Palliative care aims to improve quality of life and symptom control. Access to palliative services is often limited to advanced disease stages or based on prognosis. Palliative care needs among people with progressive neurological diseases are understudied in Asian contexts.   What this paper adds? People with progressive neurological diseases experience significant palliative care needs related to physical, psychosocial, and spiritual concerns from the early stages of illness, highlighting the necessity of early palliative care based on individual needs rather than prognosis. Patients with progressive neurological diseases navigated complex psychospiritual distress, transitioning from negativity to life renegotiation by fostering acceptance, focusing on the present, and embracing a positive outlook despite ongoing disease progression and future uncertainties. Findings underscore the importance of adopting a person-centered holistic approach that incorporates psychospiritual support, suggesting a symptom-based palliative care approach.   Implications for practice, theory or policy Palliative care services should proactively assess and address the multidimensional needs of people with progressive neurological diseases from diagnosis onward, not only at advanced stages. Health professionals need to integrate psychospiritual care and facilitate timely, open conversations about future care preferences before cognitive decline occurs. Policy and service development should enable needs-based, flexible access to palliative care for people with progressive neurological diseases, and promote education for patients, families, and providers on the benefits of early palliative involvement.   Full paper available from:     https://journals.sagepub.com/doi/10.1177/02692163251394908   If you would like to record a podcast about your published (or accepted) Palliative Medicine paper, please contact Dr Amara Nwosu:  a.nwosu@lancaster.ac.uk

Hanako Ogawa, a veterinarian working on Sydney's North Shore, moved to Australia in 2005 to fulfil her childhood dream of living overseas. Having previously worked as a veterinarian in Japan, Ogawa now primarily focuses on emergency and palliative care. This story was first published in November 2021. - シドニーのノース・ショアで獣医として活動する小川華子さんは、子供の頃から描いていた「海外に行く」という夢を実現するため2005年に来豪。日本でも獣医として活動していた小川さんは救急と緩和ケアを主に担当しています。2021年11月放送。

Dr. Marissa Russo trained to become a cancer biologist. She spent four years studying one of the deadliest brain tumors in adults and built her entire research career around a simple, urgent goal: open her own lab and improve the odds for patients with almost no shot at survival. In 2024 she applied for an F31 diversity grant through the NIH. The reviewers liked her work. Her resubmission was strong. Then the grant system started glitching. Dates vanished. Study sections disappeared. Emails went silent. When she finally reached a program officer, the message was clear: scrub the DEI language, withdraw, and resubmit. She rewrote the application in ten days. It failed. She had to start over. Again. This time with her identity erased.Marissa left the lab. She found new purpose as a science communicator, working at STAT News through the AAAS Mass Media Fellowship. Her story captures what happens when talent collides with institutional sabotage. Not every scientist gets to choose a Plan B. She made hers count.RELATED LINKSMarissa Russo at STAT NewsNIH F31 grant story in STATAAAS Mass Media FellowshipContact Marissa RussoFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Are you feeling overwhelmed by the complexity of dementia care? Do you find yourself wishing you had more support navigating medical decisions and planning for the future? You're not alone - and there's specialized help available that many caregivers don't fully understand. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we both wish we had understood what palliative care is and how to leverage it earlier in our journeys. Unfortunately, when palliative care was first explained to us, it was explained incorrectly, and neither of us took advantage of all the great things palliative care has to offer. We recently spoke with Dawn Kolderman, a registered nurse and Senior Clinical Director of Palliative Care Services at Avow, who has more than 30 years of nursing experience with the last 20 focused on palliative and hospice care. Dawn shared invaluable insights about palliative care that we wish we had known sooner. Connect with us and share your tips: Website: https://thecaregiversjourney.org/Donate: https://give.cornerstone.cc/thecaregiversjourneyInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/thecaregiversjourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: sue@thecaregiversjourney.org, nancy@thecaregiversjourney.org Full Show Notes Additional Resources Mentioned Avow Palliative Care LinkSupport the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways Tip 1: Understand What Palliative Care Actually Is The first step is clearing up common misconceptions about palliative care.  Palliative care is a holistic approach to a life-limiting disease. This includes dementia — which is indeed a life-limiting disease.  The key difference between palliative care and hospice care: Palliative care patients are at the beginning of their journey and are still seeking aggressive, curative treatment while seeing all their providers and specialistsHospice care patients are generally at the end of their journey, no longer seeking aggressive treatment, and focusing on comfort care. Palliative care is an additional supportive layer of care that works collaboratively with all your existing medical providers. Most importantly, palliative care focuses heavily on the caregiver. Tip 2: Call Palliative Care In — Here's How Many caregivers don't realize how accessible palliative care is or when to call it in. The answer is simple: the earlier, the better. Tip 3: Understand the Goals of Palliative Care Palliative care has specific, comprehensive goals that address both immediate and long-term needs. Primary goals include: Relieving physical symptoms first Supporting the caregiver and family Education and collaboration Advanced care planning (ACP). This crucial component involves sitting down with the patient, caregiver, and family to discuss important decisions while your loved one can still participate in these conversations. Tip 4: What Else You Need to Know About Palliative Care There are several important aspects of palliative care that many people don't realize. Your loved one won't look sick. The goal is to help them live their life fully. Early intervention builds stronger relationships. The nurse navigator's role is specifically to connect you with community resources you might not know about.  Read More in This Blog here

Are you ready for some real talk about what may be missing in your healthcare experience? Dr. Bob Uslander highlights the “gaps in care” we rarely name — gaps in planning, knowledge, understanding treatment options, and navigating care needs, including hospice. How does poor coordination in our healthcare system limit communication and leave crucial choices, like VSED (Voluntarily Stopping Eating and Drinking), poorly understood and seldom discussed? And how can we better recognize life-enhancing services and therapies that improve quality of life, even while on the path of dying? Ultimately, how do we navigate complex medical situations with clearer information and better understanding of the limitations we will likely face?For more information on Best Life Best Death please visit our website at ⁠⁠www.bestlifebestdeath.com⁠⁠Follow us on our social channels to receive pertinent and helpful resources on death, grieving, and more at:Facebook: ⁠⁠www.facebook.com/bestlifebestdeath⁠⁠Instagram: ⁠⁠www.instagram.com/bestlifebestdeath⁠⁠

In the hospital setting, neurologists may be responsible for managing common end-of-life symptoms. Comprehensive end-of-life care integrates knowledge of the biomedical aspects of disease with patients' values and preferences for care; psychosocial, cultural, and spiritual needs; and support for patients and their families. In this episode, Teshamae Monteith, MD, FAAN, speaks with Claudia Z. Chou, MD, author of the article "End-of-Life Care and Hospice" in the Continuum® December 2025 Neuropalliative Care issue. Dr. Monteith is the associate editor of Continuum® Audio and an associate professor of clinical neurology at the University of Miami Miller School of Medicine in Miami, Florida. Dr. Knox is an assistant professor of neurology and a consultant in the Division of Community Internal Medicine, Geriatrics and Palliative Care at Mayo Clinic in Rochester, Minnesota. Additional Resources Read the article: End-of-Life Care and Hospice Subscribe to Continuum®: shop.lww.com/Continuum Earn CME (available only to AAN members): continpub.com/AudioCME Continuum® Aloud (verbatim audio-book style recordings of articles available only to Continuum® subscribers): continpub.com/Aloud More about the American Academy of Neurology: aan.com Social Media facebook.com/continuumcme @ContinuumAAN Host: @headacheMD Full episode transcript available here Dr Jones: This is Dr Lyell Jones, Editor-in-Chief of Continuum. Thank you for listening to Continuum Audio. Be sure to visit the links in the episode notes for information about earning CME, subscribing to the journal, and exclusive access to interviews not featured on the podcast. Dr Monteith: This is Dr Teshamae Monteith. Today I'm interviewing Dr Claudia Chou about her article on end-of-life care and hospice, which is found in the December 2025 Continuum issue on neuropalliative care. Welcome to our podcast. How are you? Dr Chou: I'm doing well. Thank you for having me. This is really exciting to be here. Dr Monteith: Absolutely. So, why don't you introduce yourself to our audience? Dr Chou: Sure. My name is Claudia Chou. I am a full time hospice and palliative medicine physician at Mayo Clinic in Rochester. I'm trained in neurology, movement disorders, and hospice and palliative medicine. I'm also passionate about education, and I'm the program director for the Hospice and Palliative Medicine fellowship here. Dr Monteith: Cool. So just learning about your training, I kind of have an idea of how you got into this work, but why don't you tell me what inspired you to get into this area? Dr Chou: It was chance, actually. And really just good luck, being in the right place at the right time. I was in my residency and felt like I was missing something in my training. I was seeing these patients who were suffering strokes and had acute decline in functional status. We were seeing patients with new diagnosis of glioblastoma and knowing what that future looked like for them. And while I went into neurology because of a love of neuroscience, localizing the lesion, all of those things that we all love about neurology, I still felt like I didn't have the skill set to serve patients where they perhaps needed me the most in those difficult times where they were dealing with serious illness and functional decline. And so, the serendipitous thing was that I saw a grand rounds presentation by someone who works in neurology and palliative care for people with Parkinson's disease. And truly, it's not an exaggeration to say that by the end of that lecture, I said, I need to do palliative care, I need to rotate in this, I need to learn more. I think this is what I've been missing. And I had plans to practice both movement disorders neurology and palliative care, but I finished training in 2020… and that was not a long time ago. We can think of all the things that were going on, all the different global forces that were influencing our day-to-day decisions. And the way things worked out, staying in palliative care was really what my family and I needed. Dr Monteith: Wow, so that's really interesting. Must have been a great lecturer. Dr Chou: Yes, like one of the best.  Dr Monteith: So why don't you tell me about the objectives of your article? Dr Chou: The objectives may be to fill in some of the gaps in knowledge that may be present for the general neurologist. We learn so much in neurology training, so much about how to diagnose and treat diseases, and I think I would argue that this really is part and parcel of all we should be doing. We are the experts in these diseases, and just because we're shifting to end-of-life or transitioning to a different type of care doesn't mean that we back out of someone's care entirely or transition over to a hospice or palliative care expert. It is part of our job to be there and guide patients and their care partners through this next phase. You know, I'm not saying we all need to be hospice and palliative care experts, but we need to be able to take those first steps with patients and their care partners. And so, I think objectives are really to focus in on, what are those core pieces of knowledge for end-of-life care and understanding hospice so we can take those first steps with patients and their care partners? Dr Monteith: So, why don't you give us some of those essential points in your article? Dr Chou: Yeah. In one section of the article, I talk about common symptoms that someone might experience at the end of life and how we might manage those. These days, a lot of hospitals have order sets that talk us through those symptoms. We can check things off of a drop-down menu. And yet I think there's a little bit more nuance to that. There may be situations in which we would choose one medication over another. There may be medications that we've never really thought of in terms of symptom management before. Something that I learned in my hospice and palliative medicine fellowship was that haloperidol can be helpful for nausea. I know that's usually not one of our go-tos in neurology for any number of reasons. So, I think that extra knowledge can take us pretty far when we're managing end of life symptoms, particularly in the hospital setting. And then I think the other component is the hospice component. A lot of us may have not had experience talking about hospice, talking about what hospice can provide, and again, knowing how to take those first steps with patients. We may be referring to social work or palliative medicine to start those conversations. But again, I think this is something that's definitely learnable and something that should be part of our skill set in neurology. Dr Monteith: Great. And so, when you speak about symptom management and being more comfortable with the tools that we have, how can we be more efficient and more effective at that? Dr Chou: Think about what the common symptoms are at end of life. We may know this kind of intuitively, but what we commonly see are things like pain, nausea, dyspnea, anxiety, delirium or agitation. And so, I think having a little bit of a checklist in mind can be helpful. You know, how can I systematically think through a differential, almost, for why my patient might be uncomfortable? Why they might be restless? Have I thought through these different symptoms? Can I try a medication from my tool kit? See if that works, and if it does, we can continue on. If not, what's the next thing that I can pivot to? So, I think these are common skills for a little bit of a differential diagnosis, if you will, and how to work through these problems just with the end-of-life lens on it. Dr Monteith: So, are there any, like, validated tools or checklists that are freely available? Dr Chou: I don't think there's been anything particularly validated for end-of-life care in neurologic disease. And so, a lot of our treatments and our approaches are empiric, but I don't think there's been anything validated, per se. Dr Monteith: Great. So, why don't we talk a little bit about the approach to discussions on hospice? We all, as you kind of alluded to, want to be effective neurologists, care for our patients, but we sometimes deal with very debilitating diseases. And so, when we think that or suspect that our patient is kind of terminally ill, how do we approach that to our patients? Of course, our patients come from different backgrounds, different experiences. So, what is your approach? Dr Chou: So, when we talk about hospice and when a patient may be appropriate for hospice, we have to acknowledge that we think that they may be in the last six months of their disease. We as the neurologist are the experts in their disease and the best ones to weigh in on that prognosis. The patient and their care partners then have to accept that the type of care that hospice provides is what makes sense for them. Hospice focuses on comfort and treating a patient's comfort as the primary goal. Hospice is not as interested in treating cancer, say, to prolong life. Hospice is not as interested in life-prolonging measures and treatments that are not focused at comfort and quality of life. And so, when we have that alignment between our understanding of a patient's disease and their prognosis and the patient care partner's goal is to focus on comfort and quality of life above all else, that's when we have a patient who might be appropriate for hospice and ready to hear more about what that actually entails. Dr Monteith: And what are some, maybe, myths that neurologist healthcare professionals may have about hospice that you really want us to kind of have some clarity on? Dr Chou: That's a great question. What we often tell patients is that hospice's goal is to help patients live as well as possible in the time that they have left. Again, our primary objective is not life prolongation, but quality of life. Hospice's goal is also not to speed up or slow down the natural dying process. Sometimes we do get questions about that: can't you make this go faster or we're ready for the end. But really, we are there to help patients along the natural journey that their body is taking them on. And I think hospice care can actually be complex. In the inpatient setting, in particular in neurology, we may be seeing patients who have suffered large strokes and have perhaps only days to a few weeks of life left. But in the outpatient setting and in the home hospice setting, patients can be on hospice for many months, and so they will have new care needs, new urinary tract infections, sometimes new rashes, the need to change their insulin regimens around to avoid extremes of hyperglycemia or hypoglycemia. So, there is a lot of complexity in that care and a lot that can be wrapped up under that quality-of-life and comfort umbrella. Dr Monteith: And to get someone to hospice requires a bit of prognostication, right? Six months of prediction in terms of a terminal illness. I know there's some nuances to that. So how can you make us feel more comfortable about making the recommendations for hospice? Dr Chou: I think this is a big challenge in the field. We're normally guided by Medicare guidelines that say when a patient might be hospice-appropriate. And so, for a neurologic disease, this really only encompasses four conditions: ALS, stroke, coma, and Alzheimer's dementia. And we can think of all the other diseases that are not encompassed in those four. And so, I think we say that we paint the picture of what it means to have a prognosis of six months or less. So, from the neurologic side, that can be, what do you know about this disease and what end-stage might look like? What is the pattern of the patient's functional decline? What are they needing more help with? Are there other factors at play such as heart failure or COPD that may in and of themselves not be a qualifying diagnosis for hospice, but when it's taken together in the whole clinical picture, you have a patient who's very ill and one that you're worried may die in the next six months or less? Dr Monteith: Then you also had some nice charts on kind of disease-specific guidelines. Can you take us a little bit through that? Dr Chou: The article does contain tables about specific criteria that may qualify someone for hospice with these neurologic conditions. And they are pretty dense. I know they're a checklist of a lot of different things. And so, how we practice is by trying to refer patients to hospice based on those guidelines as much as possible and then using our own clinical judgment as well, what we have seen through taking care of patients through the years. So, again, really going back to that decline. What is making you feel uncomfortable about this patient's prognosis? What is making you feel like, gosh, this patient could be well supported by hospice, and they could have six months or less? So, all of that should go into your decision as well. And all of that should go into your discussion with the patient and their care partners. Dr Monteith: Yeah. And reading your article, what stood out was all the services that patients can receive under hospice. So, I think sometimes people think, okay, this is terminal illness, let's get to hospice for whatever reasons, but not necessarily all the lists and lists and lists of benefits of hospice. So, I don't know that everyone's aware of all those benefits. So, can you talk to us a little bit about that? Dr Chou: Yeah, I like that you brought that up because that's also something that I often say to patients and their care partners when we're talking about hospice. When the time is right for a patient to enroll in hospice, they should not feel like they're giving anything up. There should be no more clinical trial that they're hoping to chase down, and so they should just feel like they're gaining all of those good supports: care that comes to their home, a team that knows them well, someone that's available twenty-four hours a day by phone and can actually even come into the home setting if needed to help with symptom management. Hospice comes as well with the psychosocial supports for just coping with what dying looks like. We know that's not easy to be thinking about dying for oneself, or for a family member or care partner to be losing their loved one. So, all of those supports are built into hospice. I did want to make a distinction, too, that hospice does not provide custodial care, which I explain to patients as care of the body, those daily needs for bathing, dressing, eating, etc. Sometimes patients are interested in hospice because they're needing more help at home, and I have to tell them that unfortunately, our healthcare system is not built for that. And if that's the sole reason that someone is interested in hospice, we have to think about a different approach, because that is not part of the hospice benefit.  Dr Monteith: Thank you for that. And then I learned about concurrent care. So why don't you tell us a little bit about that? That's a little bit of a nuance, right? Dr Chou: Yeah, that is a little bit of a nuance. And so, typically when patients are enrolling in hospice, they are transitioning from care the way that it's normally conducted in our healthcare system. So, outpatient visits to all of the specialists and to their primary care providers, the chance to go to the ER or the ICU for higher levels of care. And yet there are a subset of patients who can still have all of those cares alongside hospice care. That really applies to two specific populations: veterans who are receiving care through the Veterans Administration, and then younger patients, so twenty six years old and less, can receive that care through, essentially, a pediatric carve out. Dr Monteith: Great. Well, I mean, you gave so much information in your article, so our listeners are going to have to read it. I don't want you to spill everything, but if you can just kind of give me a sense what you want a neurologist to take away from your article, I think that would be helpful. Dr Chou: I think what I want neurologist to take away is that, again, this is something that is part of what we do as neurologists. This is part of our skill set, and this is part of what it means to take good care of patients. I think what we do in this transition period from kind of usual cares, diagnosis, full treatment to end of life, really can have impact on patients and their care partners. It's not uncommon for me to hear from family members who have had another loved one go through hospice about how that experience was positive or negative. And so, we can think about the influence for years to come, even, because of how well we can handle these transitions. That really can be more than the patient in front of us in their journey. That is really important, but it can also have wide-reaching implications beyond that. Dr Monteith: Excellent. And I know we were talking earlier a little bit about your excitement with the field and where it's going. So why don't you share some of that excitement? Dr Chou: Yeah. And so, I think there is a lot still to come in the field of neuropalliative care, particularly from an evidence base. I know we talked a lot about the soft skills, about presence and communication, but we are clinicians at heart, and we need to practice from an evidence base. I know that's been harder in palliative care, but we have some international work groups that really are trying to come together, see what our approaches look like, see where standardization may need to happen or where our differences are actually our strength. I think there can be a lot of variability in what palliative care looks like. So, my hope is that evidence base is coming through these collaborations. I know it's hard to have a conversation these days without talking about artificial intelligence, but that is certainly a hope. When you look at morbidity, when you look at patients with these complicated disease courses, what is pointing you in the direction of, again, a prognosis of six months or less or a patient who may do better with this disease versus not? And so, I think there's a lot to come from the artificial intelligence and big data realm. For the trainees listening out there, there is no better time to be excited about neuropalliative care and to be thinking about neuropalliative care. I said that I stumbled upon this field, and hopefully someone is inspired as well by listening to these podcasts and reading Continuum to know what this field is really about. And so, it's been exponential growth since I joined this field. We have medical students now who want to come into neuropalliative care as a profession. We have clinicians who are directors of neuropalliative care at their institutions. We have an international neuropalliative care society and neuropalliative care at AAN. And I think we are moving closer to that dream for all of us, which is that patients living with serious neurologic illness can be supported throughout that journey. High-quality, evidence-based palliative care. We're not there yet, but I think it is a possibility that we reach that in my lifetime. Dr Monteith: Well, excellent. I look forward to maybe another revision of this article with some of that work incorporated. And it's been wonderful to talk to you and to reflect on how better to approach patients that are towards the end of life and to help them with that decision-making process. Thank you so much.  Dr Chou: Yeah, thank you for having me. And we're very excited about this issue. Dr Monteith: Today. I've been interviewing Dr Claudia Chou about her article on end-of-life care and hospice, which is found in the December 2025 Continuum issue on neuropalliative care. Be sure to check out Continuum Audio episodes from this and other issues, and thank you to our listeners for joining today. Dr Monteith: This is Dr Teshamae Monteith, Associate Editor of Continuum Audio. If you've enjoyed this episode, you'll love the journal, which is full of in-depth and clinically relevant information important for neurology practitioners. Use the link in the episode notes to learn more and subscribe. AAN members, you can get CME for listening to this interview by completing the evaluation at continpub.com/audioCME. Thank you for listening to Continuum Audio.

Have you ever felt overwhelmed because you don't know what information you need, can't find reliable sources, or feel frustrated by too much conflicting advice? We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned having a step-by-step roadmap is crucial for navigating the beginning of your caregiving journey. We recently talked with Jenny Gay, licensed clinical social worker with Emory Integrated Memory Care, about the comprehensive 20-step caregiving journey roadmap guide Navigating Dementia Caregiving: Your Resource Roadmap for Every Stage. This podcast is bringing the first six essential steps to take immediately after diagnosis. Connect with us and share your tips: Donate: https://give.cornerstone.cc/thecaregiversjourney Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/thecaregiversjourneys/ Full Show Notes Here In the Beginning - First Steps - Right after the diagnosis 1. Choose a palliative care organization. This will likely also serve as your hospice organization later in your journey. In your search engine, type ‘Palliative Care' + ‘the name of your country' or, in the US ‘the name of your state'. Schedule an initial consultation with more than one so you can compare. Educate yourself on what palliative care is: 27 minute The Caregiver's Journey (TCJ) podcast: 42. When To Call In Palliative Care 2. Create an Advance Care Plan. Get your legal documents in order and do some initial end of life preplanning with your loved ones input: Contact your attorney or an elder law attorney NAELA.org. Listen to this podcast or read this blog on elder law attorneys: 32 minute TCJ podcast: 31. Elder Law Attorneys Alzheimer's Association legal documents overview: Leverage this End of Life Planning Worksheet. 3. Understand the financial situation. Work with a financial advisor - especially those who focus on seniors. Elder law attorneys can also advise in this area. Alzheimer's Association resources overview of financial planning 4. Find support groups. First and foremost for you. If possible, find a support group you can attend in person: The Alzheimer's Association support group finder has support groups for a variety of types of dementia. If your loved one is interested a support group: Dementia minds has online groups for people living with dementia. Many local senior centers have support groups for your loved one to increase socialization: In the US, go to your ‘countyname'.gov website and search for a senior center. The Alzheimer's Association 24/7 helpline in the US: 1.800.272.3900. 5. Educate yourself on early caregiving journey topics. Listen to these two podcasts or read these two blogs. Memory Loss: 29 minute TCJ podcast: 2. Memory Loss Communication: 20 minute TCJ podcast: 3. Communication – in the Beginning 6. Investigate the US Medicare GUIDE program. Listen to this podcast or read this blog: 23 minute TCJ podcast: 39. Is the Medicare GUIDE program for you Understand if your loved one may be eligible: https://www.cms.gov/priorities/innovation/guide/faqs#ben-cgs. If you think you might be eligible, find a US Medicare GUIDE program provider near you. There may be several who cover your zip code so explore options. Go here to find a GUIDE program: Enter your state. Under models select ‘Guiding an Improved Dementia Experience (GUIDE) Model'. Click ‘Display selected'. You can use the plus and minus signs in the upper right corner to zoom in closer to your area. When you find the location you want, click on the blue dot and detailed contact information will show. The Three Stages of the Dementia Caregiving Journey 1. In the Beginning - Your loved one receives a diagnosis. 2. The Messy Middle - You begin asserting control; this is when it gets messy! 3. Later On - You are managing all aspects of their care. Full blog here

Scott Capozza and I could have been cloned in a bad lab experiment. Both diagnosed with cancer in our early twenties. Both raised on dial-up and mixtapes. Both now boy-girl twin dads with speech-therapist wives and a lifelong grudge against insurance companies. Scott is the first and only full-time oncology physical therapist at Yale New Haven Health, which means if he catches a cold, cancer rehab in Connecticut flatlines. He's part of a small, stubborn tribe of providers who believe movement belongs in cancer care, not just after it. We talked about sperm banking in the nineties, marathon training during chemo, and what it means to be told you're “otherwise healthy” when your lungs, ears, and fertility disagree. Scott's proof that survivorship is not a finish line. It's an endurance event with no medals, just perspective.RELATED LINKSScott Capozza on LinkedIn: https://www.linkedin.com/in/scott-capozza-a68873257Yale New Haven Health: https://www.ynhh.orgExercising Through Cancer: https://www.exercisingthroughcancer.com/team/scott-capozza-pt-msptProfiles in Survivorship – Yale Medicine: https://medicine.yale.edu/news-article/profiles-in-survivorship-scott-capozzaFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Is the Death Doula Movement Dying?   Or Is It Being Called to Grow Up?   There is a quiet question being asked behind the scenes of end-of-life care—by hospices, medical teams, families, and even doulas themselves: Is the death doula movement losing its way? In this powerful episode of ASK A DEATH DOULA, Suzanne B. O'Brien, RN—founder of the Doulagivers Institute and author of the bestselling book THE GOOD DEATH—speaks with honesty, compassion, and clarity about what is really happening within the death doula movement today. This is not an attack. It is a call to integrity.  

EP 2720 Book Review Palliative Care ดูแลด้วยหัวใจ จากไปด้วยความรัก ถึงแม้ว่าจะเป็นหนังสือที่เกี่ยวกับการดูแลผู้ป่วยแบบประคับประคอง แต่ข้อคิดที่ได้สามารถนำมาปรับใช้ได้กับคนที่ยังแข็งแรงอยู่ ลองฟังรีวิวหนังสือเล่มนี้กันครับ

Caring for a loved one with a terminal illness is always difficult - but even more so during the holidays. Jeff talks to Dawn Darvalics (CEO) and Monty Mora of Pikes Peak Hospice and Palliative Care about end of life issues. And dealing with grief during the holidays. https://pikespeakhospice.org/See omnystudio.com/listener for privacy information.

Dr. MaryAnn Wilbur trained her whole life to care for patients, then left medicine behind when it became a machine that punished empathy and rewarded throughput. She didn't burn out. She got out. A gynecologic oncologist, public health researcher, and no-bullshit single mom, MaryAnn walked straight off the cliff her career breadcrumbed her to—and lived to write the book.In this episode, we talk about what happens when doctors are forced to choose between their ethics and their employment, why medicine now operates like a low-resource war zone, and how the system breaks the very people it claims to elevate. We cover moral injury, medical gaslighting, and why she refused to lie on surgical charts just to boost hospital revenue.Her escape plan? Tell the truth, organize the exodus, and build something that actually works. If you've ever wondered why your doctor disappeared, this is your answer. If you're a clinician hiding your own suffering, this is your permission slip.RELATED LINKSMaryAnn Wilbur on LinkedInMedicine ForwardClinician Burnout FoundationThe Doctor Is No Longer In (Book)Suck It Up, Buttercup (Documentary)FEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Key Takeaways1. Hospice isn't about giving up — it's about shifting the goal from cure to comfort.Most misconceptions stem from fear or lack of education. Hospice focuses on maximizing quality of life, not accelerating end of life.2. Timing matters. Early conversations lead to better experiences.Families often wait until crisis mode. Subtle changes — fatigue, weight loss, repeated hospitalizations, shifting goals — are early signs to explore hospice.3. There is an entire team behind every patient and family.Chaplains, social workers, nurses, CNAs, and physicians work together to support medical, emotional, spiritual, and logistical needs.4. Quality of life is unique to each patient.It may mean one last trip, freedom from pain, or simply being able to rest without fear. Hospice focuses on what matters most.5. Families gain relief, clarity, and peace knowing they're not alone.Hospice offers 24/7 support, education, and guidance — reducing anxiety and preventing unnecessary hospital visits.6. Eligibility is flexible and individualized.A prognosis of six months or less is a guideline, not an expiration date. A hospice RN and medical director work together to determine appropriateness based on a full clinical picture.7. Hospice allows sacred, human moments to happen.Final conversations, reconciliation, peaceful transitions — hospice creates space for these moments rather than crisis-driven chaos.8. Education is the antidote to fear.Knowledge gives families confidence, reduces guilt, and empowers them to make aligned decisions for their loved ones. www.YourHealth.Org

Former surgical oncologist Dr. Andrea Wolf joins Dr. John Mulder and Dr. Jason Beckrow to share her journey into holistic palliative care. She discusses how trust, human touch, and integrative techniques—like craniosacral therapy—shape her work with complex conditions such as dysautonomia. Dr. Wolf also highlights inspiring patient stories, including avoiding unnecessary surgery and finding relief during cancer treatment.Show notes: https://synchronygr.com/

This week, we share a Soundings Seminar offered by Rev. Bill Haley over a decade ago on the powerful witness of Mother Teresa. Truly a remarkable soul, there is so much to learn from her about the depths and truths of the Christian life. Bill offers these remarks as a personal thank you for her influence on his life and ministry.Learn More About Spiritual Direction through CoracleView Our Full Archive of Soundings SeminarsExplore the Full Archive of Bill's Sermonsinthecoracle.org  |  @inthecoracleSupport the show

Episode 5 of Standard Deviation with Oliver Bogler on the Out of Patients podcast feed pulls you straight into the story of Dr Ethan Moitra, a psychologist who fights for LGBTQ mental health while the system throws every obstacle it can find at him.Ethan built a study that tracked how COVID 19 tore through an already vulnerable community. He secured an NIH grant. He built a team. He reached 180 participants. Then he opened an email on a Saturday and learned that Washington had erased his work with one sentence about taxpayer priorities. The funding vanished. The timeline collapsed. His team scattered. Participants who trusted him sat in limbo.A federal court eventually forced the government to reinstate the grant, but the damage stayed baked into the process. Ethan had to push through months of paperwork while his university kept the original deadline as if the shutdown had not happened. The system handed him a win that felt like a warning.I brought Ethan on because his story shows how politics reaches into science and punishes the people who serve communities already carrying too much trauma. His honesty lands hard because he names the fear now spreading across academia and how young scientists question whether they can afford to care about the wrong population.You will hear what this ordeal did to him, what it cost his team, and why he refuses to walk away.RELATED LINKSFaculty PageNIH Grant DetailsScientific PresentationBoston Globe CoverageFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Chelsea J. Smith walks into a studio and suddenly I feel like a smurf. She's six-foot-three of sharp humor, dancer's poise, and radioactive charm. A working actor and thyroid cancer survivor, Chelsea is the kind of guest who laughs while dropping truth bombs about what it means to be told you're “lucky” to have the “good cancer.” We talk about turning trauma into art, how Shakespeare saved her sanity during the pandemic, and why bartending might be the best acting class money can't buy. She drops the polite bullshit, dismantles survivor guilt with punchline precision, and reminds every listener that grace and rage can live in the same body. If you've ever been told to “walk it off” while your body betrayed you, this one hits close.RELATED LINKS• Chelsea J. Smith Website• Chelsea on Instagram• Chelsea on Backstage• Chelsea on YouTube• Cancer Hope Network• Artichokes and Grace – Book by Chelsea's motherFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

 KEY TAKEAWAYSHospice isn't a crisis response—it's a planned, values-based care transition.Patients are guided into hospice through ongoing conversations with their care team, not sudden decisions.Your Health's model is uniquely team-based.Clinical teams—NPs, nurses, social workers, CHWs, SSAs—collaborate long before a hospice referral happens.Eligibility is defined by Medicare, but the experience is defined by the patient.Patients choose what services they want: chaplaincy, volunteers, home aides, social work, and moreFamily support is a major part of the program.Hospice helps families avoid panic, emergency room visits, and uncertainty by educating them and offering 24/7 resources.Non-clinical roles are essential.Volunteers, chaplains, and social workers play major roles in emotional, logistical, and spiritual support.Respite care is a game-changer for caregiver burnout.Five-day facility stays covered under the hospice benefit help families regroup, rest, and sustain caregiving.Your Health provides continuity “from pediatrics to end of life.”The organization's ecosystem lets patients receive personalized care at every stage of their life journey. www.YourHealth.Org

What happens when your childhood calling collides with a system that limits your capacity to live it out?In this Echo Episode, Dr. Maria Sturchler shares her extraordinary journey from first-generation college student to educator to medical student, years after being told she “wouldn't make it” in medicine. Now double board-certified in Emergency Medicine and Palliative Care, Maria reveals how serendipity, mentorship, and resilience brought her back to her original dream on her own terms.She and Andrea unpack the realities pushing talented clinicians out of traditional EM practice: night shifts, moral injury, violence in the ED, corporate interference, loss of autonomy, and the identity crisis that comes with stepping away. Maria gives voice to the hidden grief, burnout, and shame physicians carry when “the path” no longer fits.But this is not a story of defeat. Maria now leads an innovative palliative care model embedded inside the emergency department, freeing EM physicians from burdens that don't belong to them, reducing patient suffering, and restoring meaning to clinical work. Her message is equal parts invitation and disruption: medicine is not a prison. It's a “choose-your-own-adventure” and there are more off-ramps, pivots, and second chances than most physicians believe.You'll Hear How They:Reframe imposter syndrome and harmful feedback that derails dreamsNavigate grief when an identity built on EM no longer aligns with personal well-beingDescribe the hidden toll of EM: disrupted circadian rhythm, motherhood challenges, pandemic trauma, and corporate shiftsIntegrate palliative care inside the ED, reducing length of stay, improving communication, and radically supporting EM physiciansUse mentorship, self-inquiry, and values alignment to identify career pivots About the Guest“Medicine is choose-your-own-adventure.” — Dr. Maria SturchlerDr. Maria Sturchler is a dual board-certified physician in Emergency Medicine and Palliative Care, a three-time Ironman competitor, and a former mathematics educator whose doctoral work examined gender disparities in STEM. After being discouraged from medicine early on, serendipity and mentorship led her back to her calling. Today, she helps patients, families, and clinici'hat integrate palliative medicine directly into emergency care.LinkedIn: linkedin.com/in/mariasturchlerWebsite: sturchlermd.comResources + MentionsUnlocking Us podcast — Brené BrownBring 'Em All In (referenced EM mantra)Multidisciplinary collaboration models in palliative and acute careTop 3 Key TakeawaysCareer paths are not linear—nor should they be: Your training is a foundation, not a life sentence. EM skills travel well into palliative care, leadership roles, education, coaching, and hybrid models that better honor your values.Boundaries are not betrayal—they are survival: Choosing your health, family, sleep, identity, and emotional bandwidth is not weakness. It is wisdom. Physicians cannot sustain compassion without protecting their humanity.The future belongs to systems that humanize care: Embedded palliative programs, interdisciplinary partnerships, and values-based innovations reduce burnout, shorten ED holds, and restore dignity to medicine—one conversation at a time.

Learn about a training course for professionals entering the palliative care field to prepare them for the emotional and spiritual demands of this work. My guest Meina Dubetz is a registered nurse specializing in Palliative and Oncology Care and also a Certified Grief Educator and Reiki Master. She is the author of the book When… Continue reading Ep. 530 Six Pillars of Care for Palliative Care Providers with Meina Dubetz RN

Does discussing death actually help us live better? In this episode of the The Gritty Nurse Podcast, Host Amie Archibald-Varley sits down with Penny Hawkins Smith—better known to her millions of followers as Hospice Nurse Penny—to find out. Penny is a certified hospice and palliative care nurse and a "death influencer" who uses social media to combat death anxiety and misinformation. She joins us to share her incredible journey from the ICU to hospice care and to discuss her new memoir, Influencing Death: Reframing Dying for Better Living. Together, we break down the critical (and often misunderstood) differences between hospice and palliative care, debunk common myths about morphine and the dying process, and dive into the "gritty" reality of end-of-life advocacy. Penny also opens up about the mysterious side of dying—including "visioning" and the unexplainable phenomena nurses witness at the bedside. Whether you are a healthcare professional, a caregiver, or just someone looking to understand mortality better, this conversation is an honest, educational, and surprisingly uplifting look at the end of life. In This Episode, We Cover: Hospice vs. Palliative Care: What is the actual difference, and when should you ask for a consult? The "Death Influencer" Phenomenon: How Penny uses TikTok and Instagram to educate millions and fight death phobia. Controversial Topics in Death Care: We tackle the hard questions about withholding food/fluids, pain management, and the stigma surrounding hospice. Mysterious Experiences: Penny shares stories of "visioning" (seeing deceased loved ones) and terminal lucidity. Influencing Death: A look inside Penny's new memoir and how her personal struggles with addiction shaped her compassionate approach to nursing. Advocacy in Action: How nurses can lead the charge in normalizing conversations about death. Resources Mentioned: Book: Influencing Death: Reframing Dying for Better Living by Penny Hawkins Smith Follow Penny: @HospiceNursePenny on TikTok, Instagram, and YouTube. Website: https://www.hospicenursepenny.com/ Listen now to learn why talking about death is the key to a better life. Where to Listen / Watch to THE GRITTY NURSE * Listen on Apple Podcasts – : The Gritty Nurse Podcast on Apple Apple Podcasts  https://podcasts.apple.com/ca/podcast/the-gritty-nurse/id1493290782 * Watch on YouTube –  https://www.youtube.com/@thegrittynursepodcast Stay Connected: Website: grittynurse.com Instagram: @grittynursepod TikTok: @thegrittynursepodcast X (Twitter): @GrittyNurse Collaborations & Inquiries: For sponsorship opportunities or to book Amie for speaking engagements, visit: grittynurse.com/contact Thank you to Hospital News for being a collaborative partner with the Gritty Nurse! www.hospitalnews.com 

Pediatric palliative care reveals both the fragility and strength of the human spirit. In this deeply moving conversation, Dr. Robert Macauley—physician, Episcopal priest, author, and survivor—shares how his journey from childhood trauma to healing led him to care for terminally ill children and their families. Through his acclaimed book Because I Knew You: How Some Remarkable Sick Kids Healed a Doctor's Soul, Dr. Macauley reflects on how these young patients restored his faith, opened his heart, and showed him the transformative power of caring for children at the edge of life. Together, he and Irene explore how love, loss, and service intertwine to bring meaning, connection, and grace even in life's hardest moments.IN THIS EPISODE, YOU'LL HEAR ABOUT THINGS LIKE:The profound impact of trauma from child sexual abuse.The concept of “soul calluses” as a protective mechanism and the journey to regaining emotional sensation.The unexpected path to finding a calling in pediatric palliative care and how it can contribute to personal healing.Inspiring stories of families navigating grief and finding moments of joy and connection amidst unimaginable loss.The importance of expressing feelings and not leaving things unsaid to those you care about.The transformative power of vulnerability and sharing personal stories for collective healing.The redemptive aspect of pain and how past experiences can inform and enhance one's ability to help others.The significance of supporting pediatric palliative care and initiatives for preventing childhood sexual abuse.The ongoing nature of healing and finding meaning in difficult experiences.The wisdom of “bringing forth what is within you” as a path to salvation and preventing self-destruction.WATCH ON YOUTUBE: The Quiet Miracles of Pediatric Palliative Care: https://www.youtube.com/watch?v=34yFATSoY8k&list=PL7judgDzhkAWmfyB5r5WgFD6ahombBvohDon't miss Dr. Macaulay's Because I Knew You. Grab one here: https://bookshop.org/a/93249/9781594981517

When Julia Stalder heard the words ductal carcinoma in situ, she was told she had the “best kind of breast cancer.” Which is like saying you got hit by the nicest bus. Julia's a lawyer turned mediator who now runs DCIS Understood, a new nonprofit born out of her own diagnosis. Instead of panicking and letting the system chew her up, she asked questions the industry would rather avoid. Why do women lose breasts for conditions that may never become invasive? Why is prostate cancer allowed patience while breast cancer gets the knife? We talked about doctors' fear of uncertainty, the epidemic of overtreatment, and what happens when you build a movement while still in the waiting room. Funny, fierce, unfiltered—this one sticks.RELATED LINKS• DCIS Understood• Stalder Mediation• Julia's story in CURE Today• PreludeDx DCISionRT feature• Julia on LinkedInFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

KEY POINTSYour Health is launching a new hospice program to complete the continuum of care.Hospice is not new to leadership—team members have decades of experience.Palliative care and hospice work together:Palliative can continue indefinitelyHospice begins when disease progression reaches an advanced stage and patients choose comfort over curative treatmentHospice helps patients avoid unnecessary ER visits, hospital stays, and stressful care transitions.The new program allows patients to stay with their same care team, maintaining continuity and trust.Eligibility begins with specific diagnoses and a provider's order, supported by clinical and non-clinical indicators like frequent falls, increased symptoms, or significant weight loss.The “six-month rule” is based on normal disease progression, not an exact timeline.The new hospice service enhances value-based care, controlling costs while improving outcomes.Your Health staff play an important role in asking, “**What matters to you?**”The program ultimately expands patient choice and honors their wishes with compassion and dignity. www.YourHealth.Org

Listen to JCO's Art of Oncology article, "Are You Bereaved?" by Dr. Trisha Paul, who is an Assistant Professor in Pediatric Hematology/ Oncology and Palliative Care at University of Rochester Medical Center. The article is followed by an interview with Paul and host Dr. Mikkael Sekeres. Dr Paul reflects on a grieving father's question about her own bereavement. TRANSCRIPT Narrator: Are You Bereaved?, by Trisha Paul, MD, MFA  Dr. Mikkael Sekeres: Welcome back to JCO's Cancer Stories: The Art of Oncology. This ASCO podcast features intimate narratives and perspectives from authors exploring their experience in oncology. I'm your host, Mikkael Sekeres. I'm Professor of Medicine and Chief of the Division of Hematology at the Sylvester Comprehensive Cancer Center, University of Miami. Joining us today is Trisha Paul, an Assistant Professor in Pediatric Hematology Oncology and Palliative Care at University of Rochester Medical Center to discuss her Journal of Clinical Oncology article, "Are You Bereaved?" At the time of this recording, our guest has no disclosures. Trisha, thank you so much for contributing this terrific essay to the Journal of Clinical Oncology and for joining us to discuss your article. Dr. Trisha Paul: Thank you so much for having me today, Dr. Sekeres. Dr. Mikkael Sekeres: So we agreed for everyone listening to call each other by first names, and then Dr. Paul just called me Dr. Sekeres. Dr. Trisha Paul: Still adjusting to being an attending. Dr. Mikkael Sekeres: That is fantastic. Dr. Trisha Paul: Thank you so much for having me, Mikkael. Dr. Mikkael Sekeres: That was great. Well, you already gave us a little bit of a hint. Can we start off by my asking you if you can tell us about yourself - where are you from - and walk us through your career thus far? Dr. Trisha Paul: Sure. I'm originally from Ann Arbor, Michigan, born and raised there, and I completed my undergraduate medical school education at the University of Michigan. I proceeded to do a general pediatrics residency at the University of Minnesota and then went to St. Jude Children's Research Hospital for a combined fellowship in pediatric hematology oncology and hospice and palliative medicine. What brought me into this area of medicine was early experiences as a high school student volunteering at a children's hospital in my hometown. And that's where I found myself in a playroom, spending time with children with cancer and their families. And these experiences of being with patients and families and getting to know them outside of their illnesses was really what brought me to wanting to be not only a pediatric oncologist, but also a palliative care physician who could care for patients holistically. Dr. Mikkael Sekeres: Wow. So you were introduced to this field at a preternaturally young age. Dr. Trisha Paul: Yes, it's been more than a decade that I've been aspiring to be a pediatric oncologist and a palliative care physician, and I feel fortunate to be there now. Dr. Mikkael Sekeres: That's fantastic. And I should say, given your University of Michigan pedigree, 'Go Blue'. Dr. Trisha Paul: Thank you. Go Blue! Dr. Mikkael Sekeres: Although, at the time of this recording, Miami is undefeated in football, so, you know, go us. In your essay, I really love how you draw us as readers into your story. You signed up to volunteer at a writing workshop for bereaved parents of children who died from cancer. Can you set the scene for us? Where did this take place? How many people attended? And why did you sign up for the workshop in the first place? I can imagine this would be an incredibly moving experience. Dr. Trisha Paul: Yes. Day of Remembrance is an annual event hosted at St. Jude Children's Research Hospital. Many hospitals have similar events where we honor patients who have passed away and we invite their families back to campus to honor these patients. And I started my fellowship in 2021, and so we were still coming out of the pandemic. This workshop that I attended was the first time that I was having an opportunity to attend the annual Day of Remembrance. And at the time, I had completed my palliative care training, and I was wrapping up my pediatric oncology fellowship. The annual Day of Remembrance this year was hosted at a convention center on the banks of the Mississippi River, nearby and next to St. Jude Children's Research Hospital. And it was a large convention center that kind of spans the horizon. And it's one of those spaces where you go for medical conferences typically, and it was interesting to walk into this convention center space and all these conference rooms and instead see poster boards that are sharing the stories and the lives of all these children and adolescents who had died over the past several years. One reason I think the timing of this event occurred for me was that I realized that I also knew several patients and families who might be in attendance at this event. I was several years into my fellowship at the time. And so I think the other reason I chose to volunteer at this event was I had spent a lot of time with patients and families whose child was approaching the end of their life, and I had kind of gotten to be with parents and siblings in that period of time. But what often happens for me as a palliative care physician and as an oncologist is the relationship is different after the child dies. And so for many of the patients I cared for as a palliative care physician, or as an oncologist, I wouldn't necessarily see these parents after the death of a child. There are some times where I've been able to see them at a memorial service, but otherwise we spend all this time with families leading up to a child's death. And often there's kind of this black box around them and their lives afterwards. And so I found myself really wanting to better understand the experiences of families after a child's death, which is what led me to participate and volunteer in the annual Day of Remembrance event. I did not want to just attend, I wanted to be able to do something concrete and actionable with these families to learn more about their grief. And for me, as a writer, volunteering at the writing workshop with bereaved parents seemed like a perfect way for me to be able to spend time with them. Dr. Mikkael Sekeres: Many of us as oncologists place boundaries between our interactions with patients, confining them to the workplace, but many do not. That you attended this workshop tells me that you may fall into the latter category. Was this a deliberate decision or something that evolved over time? And do you ever worry that erosion of such boundaries could contribute to burnout, or is it actually the opposite, that it reminds us of why we do what we do? Dr. Trisha Paul: Yeah, I think this is a great question that I have been asking myself for years and that I anticipate spending the rest of my career wondering about and rediscovering for myself each time I have a patient and a family before me that I am exploring what I want those boundaries to look like or what I want those relationships to look like. I think that for me, my thinking about this has evolved even throughout the course of my training. And I think I've better understood that these are decisions that are made on a very personal level as well as decisions that have to be reassessed with each patient and with each family that we get to care for during this time. And so I think I'm always asking myself about, beyond being an oncologist and beyond being a person's palliative care physician, how do I want to care for them as another person? Dr. Mikkael Sekeres: Really nicely said. Did you recognize any of the parents at the writing workshop you attended or at the larger conference when you were there? Dr. Trisha Paul: I did. Dr. Mikkael Sekeres: And what was that like, seeing them out of context? Dr. Trisha Paul: In this specific situation, I think it was a little bit jarring in the sense that it was kind of this surprise, that especially these are patients I had cared for in the past several years, and so there was a little bit of a moment to recognize and place them in where we had seen each other before. And then there was this fleeting wonder about whether they also recognized me. Some of these are patients that I might have met while on service as a palliative care physician for a brief visit or an initial consultation. And so for some of those families that I knew, there was less longevity to the ways in which I had known them. And it was curious to wonder if they remembered me and then to wonder about that memory. Dr. Mikkael Sekeres: Did any of them? Did any of them come up to you and say, "Oh, Dr. Paul, it's good to see you again," or, "Do you remember me?" Dr. Trisha Paul: No, I did not have that happen. Dr. Mikkael Sekeres: I think jarring is a really interesting word to use. A lot of our interactions are so contextual, and I find it difficult when I run into a patient or a family member and I'm outside of work and have to remind myself of, not so much who they are, but where they are in their treatment course. And sometimes you forget because it's out of the context of our clinic rooms. Dr. Trisha Paul: Mm hmm. I think that's exactly right. Dr. Mikkael Sekeres: The author and grieving father who led the workshop in your essay writes in your copy of his book that he thanks you for your work. The way you describe that and isolate that phrase in your essay is to the reader, I will use your word again, jarring. Why was that so jarring to you? Dr. Trisha Paul: It definitely felt jarring when I read those words in my book. There is something about the word work and kind of the connotations of work that separate it from a humanity of caring. It feels a little bit like an obligation or a task or a livelihood. Dr. Mikkael Sekeres: You think of what we do as a calling? Dr. Trisha Paul: I don't think the phrase of it being a calling resonates with me personally that much. But it is more than just a thing I do. I think that's the problem with work. I think it's undermining why a lot of us choose to do this. Which I think for many people, kind of this idea of a calling is how they think of it. I think the calling implies there's a lot more choice than I actually feel. Ever since some of the first patients and families that I met within this space, I understood that these are the people I wanted to spend the rest of my life caring for. And I guess that kind of sounds like a calling. But... Dr. Mikkael Sekeres: I was not going to say it, but it sounds like a calling. You know that word, and I love how you reflect on semantics in this essay. The notion of a calling sounds so highfalutin and almost religious and as if we're being spoken to. But I don't know. I think you could define it as something that just feels right to you and something that you should be doing and that you fall into and you do not have as much deliberate choice in going into this field, but everything just feels right about it. Dr. Trisha Paul: I think that's exactly it. So I think it's just that you do not really question- for people who choose to do this work and to be with these patients and families, a lot of us from the time we arrive at the realization that this is what we want to do, we don't find ourselves really questioning it in a concrete sense because we understand it. It makes sense to us. Dr. Mikkael Sekeres: I think that's a great summary of that. It just makes sense to us. Dr. Trisha Paul: I think it's a mysterious idea to so many other people who don't do this work. And that's part of why it's interesting to a lot of people who just respond and say, "Oh, I can't imagine how you do this." Dr. Mikkael Sekeres: Well, it just feels as if we're contributing something so substantive to humanity by focusing on hematology, oncology, and particularly palliative care. I don't know about you, I do not know if you have children. I have certainly tried to impart to my children to do something meaningful, to do something that makes other people's lives better with whatever career they choose, because it's so meaningful not just to ourselves, but to other people. Dr. Trisha Paul: Mm hmm. Dr. Mikkael Sekeres: We are talking about semantics. In your essay, you reflect on the notion of bereavement. Should we, as medical caregivers, cop to being bereaved, or are we misappropriating a word that really wholly belongs to close family members and friends of a person with cancer? Dr. Trisha Paul: Yes. And I think that this essay was me kind of struggling to wrap my mind around what this question means and kind of what my own reactions to this idea of what it would look like and feel like to call ourselves bereaved. And I don't have an answer to this question. I think it's a question that everyone in this work should consider and think about and what it means for them as an individual. Dr. Mikkael Sekeres: Are there patients you have lost whom you think about even one, two, three years later on a regular basis? Dr. Trisha Paul: Yes, I would definitely say so. I am early in my career, but I anticipate that that is kind of an essential way in which I do this work. It's part of my own practice, and it's dependent on each patient, but I find ways that I keep their legacy alive in my life. Dr. Mikkael Sekeres: Yeah. I thought a lot about your essay since I first read it, and I think it's okay to say that we grieve the loss of our patients. I think that is a form of bereavement. Dr. Trisha Paul: I think so too. I think that it was interesting to realize my own hesitation about specifically calling ourselves bereaved when we do, as clinicians, talk about grief and secondary grief and something about using the language of grief and grieving feels more appropriate and within our purview as clinicians. But something about specifically identifying as bereaved felt like a different step. Dr. Mikkael Sekeres: It's closer, isn't it? I don't know, it feels like more of a personal relationship rather than a professional relationship to be bereaved. Dr. Trisha Paul: And I think that that's simultaneously terrifying and empowering as a way of acknowledging what the loss of a patient can do to us and also honoring the affection we have for people we care for. Dr. Mikkael Sekeres: I hope it's okay that we end on that phrase that you just said: It's both terrifying and empowering to admit to being bereaved and to feel that closeness to one of our patients. It has been such a pleasure to have Trisha Paul, who is an Assistant Professor in Pediatric Hematology, Oncology, and Palliative Care at the University of Rochester Medical Center to discuss her essay, "Are You Bereaved?" Trisha, thank you so much for submitting your article and for joining us today for this enlightening conversation. Dr. Trisha Paul: Thank you so much. Dr. Mikkael Sekeres: If you have enjoyed this episode, consider sharing it with a friend or colleague or leave us a review. Your feedback and support helps us continue to have these important conversations. If you are looking for more episodes and context, follow our show on Apple, Spotify, or wherever you listen, and explore more from ASCO at asco.org/podcasts. Until next time, this has been Mikkael Sekeres for Cancer Stories. The purpose of this podcast is to educate and to inform. This is not a substitute for professional medical care and is not intended for use in the diagnosis or treatment of individual conditions. Guests on this podcast express their own opinions, experience, and conclusions. Guest statements on the podcast do not express the opinions of ASCO. The mention of any product, service, organization, activity, or therapy should not be construed as an ASCO endorsement. Show notes: Like, share and subscribe so you never miss an episode and leave a rating or review. Guest Bio: Dr Trisha Paul is an Assistant Professor in Pediatric Hematology/ Oncology and Palliative Care at University of Rochester Medical Center.

Dr. Rachel Gatlin entered neuroscience with curiosity and optimism. Then came chaos. She started her PhD at the University of Utah in March 2020—right as the world shut down. Her lab barely existed. Her advisor was on leave. Her project focused on isolation stress in mice, and then every human on earth became her control group. Rachel fought through supply shortages, grant freezes, and the brutal postdoc job market that treats scientists like disposable parts. When her first offer vanished under a hiring freeze, she doubled down, rewrote her plan, and won her own NIH training grant. Her story is about survival in the most literal sense—how to keep your brain intact when the system built to train you keeps collapsing.RELATED LINKS• Dr. Rachel Gatlin on LinkedIn• Dr. Gatlin's Paper Preprint• Dr. Eric Nestler on Wikipedia• News Coverage: Class of 2025 – PhD Students Redefine PrioritiesFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Grief is tough. It is so very hard when a loved one dies. Whether it is expected because of serious illness or a total shock, grief is painful. And also, grief is part of life. Sometimes people compound their suffering by asking "Why am I still grieving so hard?" or "Shouldn't I be better by now?"Trying to push grief away doesn't help. In fact, it can make grieving even harder. This meditation is an invitation to make peace with grief.If you have ever lost a person, a pet, a prized possession, a job, an identity, or anything else, this meditation is for you.Be sure you're in a safe place (no driving!) when you listen.I'm glad you're here.Doctor Deliawww.DoctorDelia.comCoping Courageously: A Heart-Centered Guide for Navigating a Loved One's Illness Without Losing Yourself is available here: www.copingcourageously.com Please review this podcast wherever you listen and forward your favorite episode to a friend! And be sure to subscribe!Sign up to stay connected and learn about upcoming programs:https://trainings.integrativepalliative.com/IPI-stay-in-touchI'm thrilled to be listed in Feedspot's top 15 palliative podcasts!https://blog.feedspot.com/palliative_care_podcasts/

Send us a textToday's episode tackles a topic that is often misunderstood, palliative care. Many people hear the term and immediately think of end-of-life care but that's not what palliative care is. In reality, it's about improving quality of life, managing symptoms, and helping you live as fully and comfortably as possible, no matter where you are in your metastatic breast cancer (MBC) treatment.We're joined by Dr. Jones, a palliative care physician who has worked closely with people living with MBC. He brings not only medical expertise, but also deep compassion and insight into the emotional and physical needs of our community.In this conversation, we explore:What palliative care truly meansHow to access palliative care servicesWhy integrating palliative care early can make such a meaningful differenceWhether you're newly diagnosed or have been living with MBC for many years, this episode offers clarity, reassurance, and practical information to support you on your journey.Visit OurMBCLife.org for episode notes.

EPISODE DESCRIPTIONBefore she was raising millions to preserve fertility for cancer patients, Tracy Weiss was filming reenactments in her apartment for the Maury Povich Show using her grandmother's china. Her origin story includes Jerry Springer, cervical cancer, and a full-body allergic reaction to bullshit. Now, she's Executive Director of The Chick Mission, where she weaponizes sarcasm, spreadsheets, and the rage of every woman who's ever been told “you're fine” while actively bleeding out in a one-stall office bathroom.We get into all of it. The diagnosis. The misdiagnosis. The second opinion that saved her life. Why fertility preservation is still a luxury item. Why half of oncologists still don't mention it. And what it takes to turn permission to be pissed into a platform that actually pays for women's futures.This episode is blunt, hilarious, and very Jewish. There's chopped liver, Carrie Bradshaw slander, and more than one “fuck you” to the status quo. You've been warned.RELATED LINKSThe Chick MissionTracy Weiss on LinkedInFertility Preservation Interview (Dr. Aimee Podcast)Tracy's Story in Authority MagazineNBC DFW FeatureStork'd Podcast EpisodeNuDetroit ProfileChick Mission 2024 Gala RecapFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

We are revisiting this timely topic with a Rehab Rewind.  Since this episode aired in March of 2024 Cathy has proudly earned the title of Certified Hospice and Palliative Care Technician.  Join us as PetAbility hosts, Cathy and Chris, share their expertise around this topic that will undoubtedly touch all our lives in some way, shape, or form.Our pet's are living longer, surviving illnesses and traumas that were unthinkable in the past. If you couple this with our ever-growing attitudes that pets are full-fledged members of our families, then the fields of palliative care and pet hospice become vital. Cathy Symons, CVT, CCRP, deftly explains the integral role that physical rehabilitation plays to 1) alleviate symptoms and stress from medical conditions (palliative care) and 2) compassionately support owners and their pets, physically and emotionally, during their end-of-life journey, while preparing pet parents to let go of their loved one with dignity and grace when the time comes (hospice). For more information, please click on the following links: International Association of Animal Hospice and Palliative CareLap of Love: Veterinary Hospice & In-home Euthanasia Pet Loss Support Hotline and other resourcesOther related PetAbility Podcast episodes include:Pets Are Family - an Impactful Approach to Pet Loss with Erika Sinner, Dog Mom, Author, & CEOPet Hospice with Dr. Becky SchoenbergBelieving in Grieving with Laurie Levine, LMHCEnd-of-life Pet Photography I The Tilly Project with Lauren KennedyDisclaimerVitalVet.org, a platform for all things related to pet rehab - product information, education, and resources abound! MedcoVet (show sponsor) Luma - advanced red-light therapy therapy that puts healing in the hands of the pet owner in the comfort of home! Use Promo Code PETPOD22, to receive discounts from our affiliates! You receive 10% off and PetAbility receives 10% to help support our show (unless stated otherwise)! Ruff Ramp - a safe alternative to stairs. Optimum Pet Vitality - Education/coursework to help you and your pet! Dr. Buzby's - The Senior Dog Company – Toe grips to prevent slipping, Encore Mobility joint supplement, and Brain Boost cognitive supplement. You receive 10% off and PetAbility receives 10% from your first order.Extra love – use this link and the entire 20% goes to support our show! Calm & Cozy Cat Wrap - a...

Dr. Centor discusses a family perspective on palliative care with Ms. Monica Wright, the author of an On Being a Patient essay.

Facing a serious loss after a loved one has died is just so tough. Without meaning to we can compound the stress of it all by how we approach our grief.The mindful approach to grief involves noticing, not judging, and using compassionate curiosity. It makes space for grief because grief is part of life and love. Here is the reference mentioned in the episode: Huang FY, et al. Mindfulness-based cognitive therapy on bereavement grief: Alterations of resting-state network connectivity associate with changes of anxiety and mindfulness. Hum Brain Mapp. 2021 Feb 1;42(2):510-520. I'm glad you're here.Dr. Deliawww.integrativepalliative.comwww.DoctorDelia.com (coming soon)Coping Courageously: A Heart-Centered Guide for Navigating a Loved One's Illness Without Losing Yourself is available here: www.copingcourageously.com Please review this podcast wherever you listen and forward your favorite episode to a friend! And be sure to subscribe!Sign up to stay connected and learn about upcoming programs:https://trainings.integrativepalliative.com/IPI-stay-in-touchI'm thrilled to be listed in Feedspot's top 15 palliative podcasts!https://blog.feedspot.com/palliative_care_podcasts/

A German palliative care nurse administered lethal doses of morphine and midazolam to elderly patients simply to reduce his workload during night shifts.READ or SHARE: https://weirddarkness.com/nurse-killed-patients-easier-shifts WeirdDarkness® is a registered trademark. Copyright ©2025, Weird Darkness.#WeirdDarkness #TrueCrime #SerialKiller #GermanCrime #HealthcareHorror #NurseMurderer #MedicalCrime #PalliativeCare #TrueCrimeStory #CriminalNurse

In June of 2025, hospice and palliative care pioneer Ira Byock published a white paper outlining the urgent challenges facing the field today. In a nutshell, he expressed concerns that the quality of hospice care in the United States has become highly variable, with disturbing frequency of unethical practices and avaricious owners. He also raised concern that the rapid increase in palliative care program growth during the first two decades of this century has stalled, leaving us with understaffed programs that are often inadequately trained.  Along with Ira, we've invited Kristi Newport, a palliative care doctor and Chief Medical Officer of the American Academy of Hospice and Palliative Medicine, and Brynn Bowman, Chief Executive Officer of the Center to Advance Palliative Care, to discuss these issues and outline a strategic path forward for the field.  In particular we talk about Ira's four-part solution to transform the field and restore its integrity: (1) publishing clear clinical and programmatic standards, (2) making meaningful data publicly available to ensure transparency and accountability, (3) fostering quality-based competition among providers, and (4) embracing the authentic brand of hospice and palliative care—expert care that alleviates suffering and fosters well-being.  So take a listen and dive a little deeper with these resources, and dont forget, you too can get involved in AAHPM (click here for opportunities): Ira's paper titled "A Strategic Path Forward for Hospice and Palliative Care: A White Paper on the Potential Future of the Field" Our previous podcast on "Is Hospice Losing Its Way" Our previous podcast on Private Equity Gobbling Up Hospices plus Hospice and Dementia with Melissa Aldridge, Krista Harrison, & Lauren Hunt CAPC's Serious Ilness Scorecard - a state-by-state look at palliative care capacity CAPC's second annual Palliative Pulse survey offers insight into how palliative care professionals across the country are feeling this year and what they're focused on National Hospice Locator and TCMTalks Podcast by Chris Comeaux and Cordt Kassner  

Living alone may be difficult, but what about dying alone? Physicians and nurses are the new priests accompanying people as they face death. But the experience of nursing homes, assisted living, and palliative wards are often some of the loneliest spaces in human culture.“He said, ‘Someone finally saw me. I've been in this hospital for 20 years and I didn't think anyone ever saw me.'”This episode is part 5 of a series, SOLO, which explores the theological, moral, and psychological dimensions of loneliness, solitude, and being alone.In this episode, Columbia physician and medical ethicist Lydia Dugdale joins Macie Bridge to reflect on loneliness, solitude, and what it means to die—and live—well. Drawing from her clinical work in New York City and the years of research and experience that went into her book The Lost Art of Dying, Dugdale exposes a crisis of unrepresented patients dying alone, the loss of communal care, and medicine's discomfort with mortality.She recalls the medieval Ars Moriendi tradition, where dying was intentionally communal, and explores how virtue and community sustain a good death. Together they discuss solitude as restorative rather than fearful, loneliness as a modern epidemic, and the sacred responsibility of seeing one another deeply. With stories from her patients and her own reflections on family, COVID isolation, and faith, Dugdale illuminates how medicine, mortality, and moral imagination converge on one truth: to die well, we must learn to live well … together.Helpful Links and ResourcesThe Lost Art of Dying: Reviving Forgotten Wisdom by Lydia S. DugdalePew Research Center Study on Loneliness (2025)Harvard Study of Adult Development on LonelinessEpisode Highlights“If you want to die well, you have to live well.”“Community doesn't appear out of nowhere at the bedside.”“He said, ‘Someone finally saw me. I've been in this hospital for 20 years and I didn't think anyone ever saw me.'”“We are social creatures. Human beings are meant to be in relationship.”“Solitude, just like rest or Sabbath, is something all of us need.”About Lydia DugdaleLydia S. Dugdale, MD, MAR is a physician and medical ethicist at Columbia University, where she serves as Professor of Medicine and Director of the Center for Clinical Medical Ethics. She is the author of The Lost Art of Dying: Reviving Forgotten Wisdom and a leading voice on virtue ethics, mortality, and human flourishing in medicine.Show NotesLoneliness, Solitude, and the CityNew York's “unrepresented” patients—those who have no one to make decisions for them.The phenomenon of people “surrounded but unseen” in urban life.“I have a loving family … but I never see them.”Medicine and the PandemicLoneliness intensified during COVID-19: patients dying alone under strict hospital restrictions.Dugdale's reflections on balancing social responsibility with human connection.“We are social creatures. Human beings are meant to be in relationship.”Technology, Fear, and the Online Shadow CommunityPost-pandemic isolation worsened by online echo chambers.One in five adults reports loneliness—back to pre-pandemic levels.The Lost Art of DyingMedieval Ars Moriendi: learning to die well by living well.Virtue and community as the foundation for a good death.“If you don't want to die an impatient, bitter, despairing old fool, then you need to practice hope and patience and joy.”Modern Medicine's Fear of DeathPhysicians unpracticed—and afraid—to talk about mortality.“Doctors themselves are afraid to talk about death.”How palliative care both helps and distances doctors from mortality.Community and MortalityThe man who reconnected with his estranged children after reading The Lost Art of Dying.“He said, ‘I want my kids there when I die.'”Living well so that dying isn't lonely.Programs of Connection and the Body of ChristVolunteer models, day programs, and mutual care as small restorations of community.“The more we commit to others, the more others commit back to us.”Solitude and the Human SpiritDistinguishing solitude, loneliness, and social isolation.Solitude as restorative and necessary: “All of us need solitude. It's a kind of rest.”The contemplative life as vital for engagement with the world.Death, Autonomy, and CommunityThe limits of “my death, my choice.”The communal role in death: “We should have folks at our deathbeds.”Medieval parish customs of accompanying the dying.Seeing and Being SeenA patient long thought impossible to care for says, “Someone finally saw me.”Seeing others deeply as moral and spiritual work.“How can we see each other and connect in a meaningful way?”Production NotesThis podcast featured Lydia DugdaleInterview by Macie BridgeEdited and Produced by Evan RosaHosted by Evan RosaProduction Assistance by Alexa Rollow, Emily Brookfield, and Hope ChunA Production of the Yale Center for Faith & Culture at Yale Divinity School https://faith.yale.edu/aboutSupport For the Life of the World podcast by giving to the Yale Center for Faith & Culture: https://faith.yale.edu/give

EPISODE DESCRIPTION:Libby Amber Shayo didn't just survive the pandemic—she branded it. Armed with a bun, a New York accent, and enough generational trauma to sell out a two-drink-minimum crowd, she turned her Jewish mom impressions into the viral sensation known as Sheryl Cohen. What started as one-off TikToks became a career in full technicolor: stand-up, sketch, podcasting, and Jewish community building.We covered everything. Jew camp lore. COVID courtship. Hannah Montana. Holocaust comedy. Dating app postmortems. And the raw, relentless grief that comes with being Jewish online in 2025. Libby's alter ego lets her say the quiet parts out loud, but the real Libby? She's got receipts, range, and a righteous sense of purpose.If you're burnt out on algorithm-friendly “influencers,” meet a creator who actually stands for something. She doesn't flinch. She doesn't filter. And she damn well earned her platform.This is the most Jewish episode I've ever recorded. And yes, there will be guilt.RELATED LINKSLibby's Website: https://libbyambershayo.comInstagram: https://www.instagram.com/libbyambershayoTikTok: https://www.tiktok.com/@libbyambershayoLinkedIn: https://www.linkedin.com/in/libby-walkerSchmuckboys Podcast: https://jewishjournal.com/podcasts/schmuckboysForbes Feature: Modern Mrs. Maisel Vibes https://www.forbes.com/sites/joshweissMedium Profile: https://medium.com/@libbyambershayoFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform.For guest suggestions or sponsorship, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Send us a textThis discussion features Dr. Charada Gowda and Dr. Jessica Fry, leaders in the CHNC collaborative network, highlighting ongoing work within the CDH and Palliative Care & Ethics (PACE) focus groups. The CDH group is developing consensus clinical practice guidelines and has created an outcomes calculator to support more informative prenatal counseling and individualized care planning. The PACE group focuses on improving collaboration between neonatology and palliative care teams and recently surveyed CHNC centers regarding resources to support clinicians after patient loss. Findings emphasize that simply knowing support tools exist improves staff well-being. Both groups model multidisciplinary collaboration that enhances clinical guidance, communication, and family-centered care across the NICU.Support the showAs always, feel free to send us questions, comments, or suggestions to our email: nicupodcast@gmail.com. You can also contact the show through Instagram or Twitter, @nicupodcast. Or contact Ben and Daphna directly via their Twitter profiles: @drnicu and @doctordaphnamd. The papers discussed in today's episode are listed and timestamped on the webpage linked below. Enjoy!

Palliative care physician Dr. BJ Miller survived a near-death experience and lost three limbs at just 19 years old. In this intimate conversation, he tells Sarah how confronting mortality reshaped his purpose, and opened his heart to awe, humor, creativity, and love. BJ has been on a mission to redefine end-of-life care through his work at Mettle Health and his book, "A Beginner's Guide to the End." He invites you to challenge the fear and silence around death, and imagine a better way to live — and die.

Today's topic on palliative care for sickle cell disease may raise eyebrows with some of you.  You might think, wait, now we're doing sickle cell?  On top of liquid cancer and transplant, kidney disease, liver disease, and survivorship?  Where does it end?  Do we have staff for all of this? Well I implore you, dear listeners, to keep an open mind and listen to this podcast.  Our guests do a fabulous job of stating the case for palliative care in sickle cell disease, to the point that we ask: why haven't we been doing this all along? Our guests today are Craig Blinderman, Stephanie Kiser, Eberechi Nwogu-Onyemkpa, three palliative care docs who have been advancing the practice in palliative care for sickle cell for a long time. Our discussion ranges from what is sickle cell; to outcomes; to social determinants and discrimination; to PCAs, ketorolac, and bupenorphine; and to the importance of the interdisciplinary team. I would also encourage you to check out Eberechi's NEJM Perspective on Involving Palliative Care to Improve Outcomes in Sickle Cell, which includes a table of the challenges and action items needed to move the field forward. I'd also encourage you to sample this AAHPM Flight on the same topic (we learned that a flight is similar to a flight of drinks - a quick sampling). As Eberechi notes at the start, we should be grateful for the community of people who are advancing palliative care in sickle cell.  Thank you for being a friend (song hint!). -Alex Smith  

When the system kills a $2.4 million study on Black maternal health with one Friday afternoon email, the message is loud and clear: stop asking questions that make power uncomfortable. Dr. Jaime Slaughter-Acey, an epidemiologist at UNC, built a groundbreaking project called LIFE-2 to uncover how racism and stress shape the biology of pregnancy. It was science rooted in community, humanity, and truth. Then NIH pulled the plug, calling her work “DEI.” Jaime didn't quit. She fought back, turning her grief into art and her outrage into action. This episode is about the cost of integrity, the politics of science, and what happens when researchers refuse to stay silent.RELATED LINKS• The Guardian article• NIH Grant• Jaime's LinkedIn Post• Jaime's Website• Faculty PageFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

EPISODE DESCRIPTIONAllison Applebaum was supposed to become a concert pianist. She chose ballet instead. Then 9/11 hit, and she ran straight into a psych ward—on purpose. What followed was one of the most quietly revolutionary acts in modern medicine: founding the country's first mental health clinic for caregivers. Because the system had decided that if you love someone dying, you don't get care. You get to wait in the hallway.She's a clinical psychologist. A former dancer. A daughter who sat next to her dad—legendary arranger of Stand By Me—through every ER visit, hallway wait, and impossible choice. Now she's training hospitals across the country to finally treat caregivers like patients. With names. With needs. With billing codes.We talked about music, grief, psycho-oncology, the real cost of invisible labor, and why no one gives a shit about the person driving you to chemo. This one's for the ones in the waiting room.RELATED LINKSAllisonApplebaum.comStand By Me – The BookLinkedInInstagramThe Elbaum Family Center for Caregiving at Mount SinaiFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

In this emotionally charged episode, Dr. Linda Bluestein talks with Tilly Rose, the founder of That Oxford Girl and the author of Be Patient, about what it's like to face palliative care as a young adult and come out the other side fighting for change. They explore how Tilly transformed her private pain into public advocacy, why chronic illness is so often misunderstood in young people, and what happens when you rewrite your identity in the face of a diagnosis. This is a story of resilience, reinvention, and the radical act of showing up when the world doesn't know what to do with you. Takeaways What happens when a diagnosis rewrites your life story and how can you reclaim the pen? Tilly shares the moment that inspired Be Patient and the raw honesty behind turning medical trauma into a memoir. Learn how she balanced life at Oxford with hospital stays and how those parallel worlds reshaped her idea of “achievement.” Why do so many young people with chronic illness feel unseen and what does Tilly believe needs to change? Discover how That Oxford Girl evolved from a quiet act of self-expression into a global movement of validation, empathy, and empowerment. Tilly reveals why sharing her story became both a lifeline and a catalyst for a more compassionate future. References: Order “Be Patient” by Tilly Rose (free international shipping): https://blackwells.co.uk/bookshop/product/Be-Patient-by-Tilly-Rose/9781780726229 Vascular Compression Syndromes: https://scholbach.de/wissenschaft/deutsch-ultraschalldiagnostik/deutsch-gefaskompressionen#gsc.tab=0 Greater National Advocates: https://gnanow.org/ Surgical treatment of abdominal compression syndromes: The significance of hypermobility-related disorders: https://pubmed.ncbi.nlm.nih.gov/34747562/ Want more Tilly Rose? https://www.instagram.com/thattillyrose/?hl=en https://www.facebook.com/people/Tilly-Rose-Author/61575923876707/?_rdr https://www.linkedin.com/in/tillyrose/?originalSubdomain=uk https://www.tiktok.com/@thattillyrose?lang=en Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices

EPISODE DESCRIPTIONRebecca V. Nellis never meant to run a nonprofit. She just never left. Twenty years later, she's still helming Cancer and Careers after a Craigslist maternity-leave temp job turned into a lifelong mission.In this 60-minute doubleheader, we cover everything from theater nerdom and improv rules for surviving bureaucracy, to hanging up on Jon Bon Jovi, to navigating cancer while working—or working while surviving cancer. Same thing.Rebecca's path is part Second City, part Prague hostel, part Upper East Side grant writer, and somehow all of that makes perfect sense. She breaks down how theater kids become nonprofit lifers, how “sample sale feminism” helped shape a cancer rights org, and how you know when the work is finally worth staying for.Also: Cleavon Little. Tap Dance Kid. 42 countries. And one extremely awkward moment involving a room full of women's handbags and one very confused Matthew.If you've ever had to hide your diagnosis to keep a job—or wanted to burn the whole HR system down—this one's for you.RELATED LINKSCancer and CareersRebecca Nellis on LinkedIn2024 Cancer and Careers Research ReportWorking with Cancer Pledge (Publicis)CEW FoundationI'm Not Rappaport – Broadway InfoFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship opportunities, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.