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In this emotionally charged episode, Dr. Linda Bluestein talks with Tilly Rose, the founder of That Oxford Girl and the author of Be Patient, about what it's like to face palliative care as a young adult and come out the other side fighting for change. They explore how Tilly transformed her private pain into public advocacy, why chronic illness is so often misunderstood in young people, and what happens when you rewrite your identity in the face of a diagnosis. This is a story of resilience, reinvention, and the radical act of showing up when the world doesn't know what to do with you. Takeaways What happens when a diagnosis rewrites your life story and how can you reclaim the pen? Tilly shares the moment that inspired Be Patient and the raw honesty behind turning medical trauma into a memoir. Learn how she balanced life at Oxford with hospital stays and how those parallel worlds reshaped her idea of “achievement.” Why do so many young people with chronic illness feel unseen and what does Tilly believe needs to change? Discover how That Oxford Girl evolved from a quiet act of self-expression into a global movement of validation, empathy, and empowerment. Tilly reveals why sharing her story became both a lifeline and a catalyst for a more compassionate future. References: Order “Be Patient” by Tilly Rose (free international shipping): https://blackwells.co.uk/bookshop/product/Be-Patient-by-Tilly-Rose/9781780726229 Vascular Compression Syndromes: https://scholbach.de/wissenschaft/deutsch-ultraschalldiagnostik/deutsch-gefaskompressionen#gsc.tab=0 Greater National Advocates: https://gnanow.org/ Surgical treatment of abdominal compression syndromes: The significance of hypermobility-related disorders: https://pubmed.ncbi.nlm.nih.gov/34747562/ Want more Tilly Rose? https://www.instagram.com/thattillyrose/?hl=en https://www.facebook.com/people/Tilly-Rose-Author/61575923876707/?_rdr https://www.linkedin.com/in/tillyrose/?originalSubdomain=uk https://www.tiktok.com/@thattillyrose?lang=en Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: https://www.instagram.com/hypermobilitymd/ Facebook: https://www.facebook.com/BendyBodiesPodcast X: https://twitter.com/BluesteinLinda LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ Newsletter: https://hypermobilitymd.substack.com/ Shop my Amazon store https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices
Abuses of hospice, how to protect against them, and voluntary stopping of eating and drinking Link to the article: A Guide to Palliative Care and Hospice by Jozef Zalot. Published in Ethics & Medics, a publication of The National Catholic Bioethics Center https://static1.squarespace.com/static/5e3ada1a6a2e8d6a131d1dcd/t/5ec6d60e98a9d10eb4bfbcd8/1590089232347/Ethics%26Medics_vol56_no6.pdf
EPISODE DESCRIPTIONRebecca V. Nellis never meant to run a nonprofit. She just never left. Twenty years later, she's still helming Cancer and Careers after a Craigslist maternity-leave temp job turned into a lifelong mission.In this 60-minute doubleheader, we cover everything from theater nerdom and improv rules for surviving bureaucracy, to hanging up on Jon Bon Jovi, to navigating cancer while working—or working while surviving cancer. Same thing.Rebecca's path is part Second City, part Prague hostel, part Upper East Side grant writer, and somehow all of that makes perfect sense. She breaks down how theater kids become nonprofit lifers, how “sample sale feminism” helped shape a cancer rights org, and how you know when the work is finally worth staying for.Also: Cleavon Little. Tap Dance Kid. 42 countries. And one extremely awkward moment involving a room full of women's handbags and one very confused Matthew.If you've ever had to hide your diagnosis to keep a job—or wanted to burn the whole HR system down—this one's for you.RELATED LINKSCancer and CareersRebecca Nellis on LinkedIn2024 Cancer and Careers Research ReportWorking with Cancer Pledge (Publicis)CEW FoundationI'm Not Rappaport – Broadway InfoFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship opportunities, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Vera Junge, Volunteer Coordinator of Unity Hospice and Palliative Care, explains their novel program which cares for pets of clients who happen to be in hospice called Pets Peace of Mind. Volunteers walk dogs, feed pets, change cat litter, play with pets, change the paper for Guinea pigs, whatever it takes. The organization also will drive pets […]
Maschinen, Monitore, Beatmung – Intensivstationen sind Orte, an denen Medizin an ihre Grenzen kommt. Doch was passiert, wenn es nicht mehr um Heilung, sondern um Würde geht? In dieser Episode spricht Annemarie Röthig über ihre Forschung zur palliativen Pflege auf Intensivstationen. Sie erklärt, welche Maßnahmen Pflegefachpersonen tatsächlich umsetzen, wo Strukturen fehlen – und warum Palliativpflege kein Endpunkt, sondern Teil guter Versorgung ist.Die Shownotes zu dieser Episode findest du auf unserer HomepageIn eigener SacheSchau dir unseren neuen Videokurs an!Jetzt Übergabe Mitglied werdenWerde Teil der Übergabe-CommunityÜbergabe bei Instagram
Eberechi Nwogu-Onyemkpa is an assistant professor in the Division of Palliative Medicine at Washington University in St. Louis. Stephen Morrissey, the interviewer, is the Executive Managing Editor of the Journal. E. Nwogu-Onyemkpa and Others. Involving Palliative Care to Improve Outcomes in Sickle Cell Disease. N Engl J Med 2025;393:1553-1556. E. Costa and Others. Thirty Years of Hydroxyurea for Sickle Cell Anemia — Scientific Progress, Global Health Gaps. N Engl J Med 2025;393:1556-1559.
Palliative care with homeopathy is the most gentle and beautiful things. The patient may be using other medications, and often if a medication is the reason for the life-ending disease, stopping it may not be possible at this stage. Homeopathy can be used alone or in conjunction with other modalities to ensure the best life-span for the patient as well as a life worth living. All views presented are based on credible sources, but they are explained through the individual's viewpoint. Doing your own research while integrating new information is always important when forming your own viewpoint. Please feel free to contact me and share ideas on any of the topics on this podcast. I would love to hear from you at hownatureheals@gmail.com The information in this podcast is not meant to address individual health needs, it is general in nature and should not be used as medical information for your health unless used in combination with your health practitioner.
Sally Wolf is back in the studio and this time we left cancer at the door. She turned 50, brought a 1993 Newsday valedictorian article as a prop, and sat down with me for a half hour of pure Gen X therapy. We dug into VHS tracking, Red Dawn paranoia, Michael J. Fox, Bette Midler, and how growing up with no helmets and playgrounds built over concrete somehow didn't kill us.We laughed about being Jewish kids in the suburbs, the crushes we had on thirty-year-olds playing teenagers, and what it means to hit 50 with your humor intact. This episode is part nostalgia trip, part roast of our own generation, and part meditation on the privilege of being alive long enough to look back at it all. If you ever watched Different Strokes “very special episodes” or had a Family Ties lunchbox, this one's for you.RELATED LINKSSally Wolf Official WebsiteSally Wolf on LinkedInSally Wolf on InstagramCosmopolitan Essay: “What It's Like to Have the ‘Good' Cancer”Oprah Daily: “Five Things I Wish Everyone Understood About My Metastatic Breast Cancer Diagnosis”Allure Breast Cancer Photo ShootTom Wilson's “Stop Asking Me the Question” SongFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Health Calls Season 6, Episode 4 explores the transformative power of Whole Person Care in the context of palliative care, with guest Lori Dangberg, Executive Vice President of the Alliance of Catholic Health Care in California. Lori shares the origins and impact of a statewide initiative that brings together dioceses, parishes, and health systems to support patients and families through serious illness and end-of-life care. The episode highlights how collaborative education—through a five-module curriculum—empowers parish leaders and clinicians to engage in meaningful conversations around palliative care, Catholic moral teaching, and advanced care planning. With resources available in multiple languages and formats, the initiative fosters dignity, compassion, and informed decision-making. Hosts Brian Reardon and Josh Matejka reflect on the importance of this work as the population ages and the need for holistic care grows. Health Calls is available on the following podcast streaming platforms:Apple PodcastsSpotifyYouTubeLearn more about The Catholic Health Association of the United States at www.chausa.org.
Dr. Nikki Maphis didn't just lose a grant. She lost a lifeline. An early-career Alzheimer's researcher driven by her grandmother's diagnosis, Nikki poured years into her work—only to watch it vanish when the NIH's MOSAIC program got axed overnight. Her application wasn't rejected. It was deleted. No feedback. No score. Just gone.In this episode, Oliver Bogler pulls back the curtain on what happens when politics and science collide and promising scientists get crushed in the crossfire. Nikki shares how she's fighting to stay in the field, teaching the next generation, and rewriting her grant for a world where even the word “diversity” can get you blacklisted. The conversation is raw, human, and maddening—a reminder that the real “war on science” doesn't happen in labs. It happens in inboxes.RELATED LINKS:• Dr. Nikki Maphis LinkedIn page• Dr. Nikki Maphis' page at the University of New Mexico• Vanguard News Group coverage• Nature article• PNAS: Contribution of NIH funding to new drug approvals 2010–2016FEEDBACK:Like this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, visit outofpatients.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Live this week from the ACCC's 42nd National Oncology Conference (NOC), CANCER BUZZ speaks with ACCC Executive Director Meagan O'Neill, MS, who previews the week. Guest: Meagan O'Neill, MS Executive Director, Association of Cancer Care Centers Resources: ACCC 42nd National Oncology Conference Agenda
You know those conversations that leave you feeling excited, hopeful, and ready to change the world? This is one of those conversations. In this episode, Husch Blackwell's Meg Pekarske is joined by American Academy of Hospice and Palliative Medicine Fellow Dr. Bethany Snider. Dr. Snider shares how she developed a palliative care program that meets the needs of patients, payors, and her organization at-large. Their wide-ranging conversation covers alternative payment models, the importance of scale, the role of data analytics, and how to stay motivated in today's regulatory environment.
Carla Tardiff has spent 17 years as the CEO of Family Reach, a nonprofit that shouldn't have to exist but absolutely does—because in America, cancer comes with a price tag your insurance doesn't cover.We talk about shame, fear, burnout, Wegmans, Syracuse, celebrity telethons, and the godforsaken reality of choosing between food and treatment. Carla's a lifer in this fight, holding the line between humanity and bureaucracy, between data and decency. She's also sharp as hell, deeply funny, and more purpose-driven than half of Congress on a good day.This episode is about the work no one wants to do, the stuff no one wants to say, and why staying angry might be the only way to stay sane.Come for the laughs. Stay for the rage. And find out why Family Reach is the only adult in the room.RELATED LINKSFamily ReachFinancial Resource CenterCarla on LinkedInMorgridge Foundation ProfileAuthority Magazine InterviewSyracuse University FeatureFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Journalist Katy Butler spent years listening to hundreds of people's stories of good and difficult deaths. She's talked to countless experts in palliative care, geriatrics, hospice, and oncology. Those conversations, paired with lots of research and the story of her own father's challenging death, come together in her deeply practical and existential book, "The Art of Dying Well: A Practical Guide to a Good End of Life." In this episode, Katy tells Sarah what she learned from each of her parents' deaths, what the research says most people want in their final chapters, and what she'd like for the end of her own life.
"Most people associate cancer with death, so the first question they ask themselves is if they are going to survive, when diagnosed" - Dr. Florence Dedey [Consultant, General Surgeon, Korle Bu Teaching Hospital]
In this episode, Dr. Florence Dedey shares her personal journey through cancer diagnosis, treatment, and recovery. Dr. Abena Sarpong takes us through support systems, palliative care principles, quality of life during treatment, and life after cancer.
Eric and I had the pleasure of doing a GeriPal Live! Podcast as the closing keynote for the recent Center to Advance Palliative Care (CAPC) National Assembly in Philadelphia PA. For this podcast, we invited 3 guests to each select an article of interest to them, and engage in a discussion about the article, including questions from the CAPC attendees in the audience. Our guests chose the following articles (in the order discussed) Matt Gonzalez used AI to select an article by Ravi Parikh on algorithm based nudges to default patients with advanced cancer into a palliative care consult, published in JAMA Network Open, finding 44% in the intervention arm received palliative care consults, vs 8% in the control arm. We discussed use of AI to select the article, nudges, sludge, and the impressive though still less than 50% rate of PC consults. Kim Curseen selected an article by Harry Han in JPSM that surveyed palliative care fellowships, finding that clinical fellows spent 5 weeks in outpatient care and 24 weeks in inpatient care, on average. We discussed the mismatch between outpatient training, and the needs of people with serious illness who spend most of their lives outside the hospital, and training in inpatient care, where most hospitals have robust services and needs. Training in non-onc palliative care was particularly low. Karen Bullock selected a letter she first authored in response to Ira Byock's white paper on a path forward in hospice and palliative care. We discussed the need to view all issues in geriatrics, hospice, and palliative care through an equity lens, particularly in view of the disparate impact on historically marginalized communities of concerning practices and trends in hospice and palliative care (e.g. private equity gobbling up hospices). And at the end, we sang a tribute to the Lady Gaga of Palliative Care, with the whole Assembly singing along! Stay tuned for future GeriPal Live! Podcasts, including recordings at the NPCRC Foley Retreat in Banff, and the São Paulo Geriatrics & Gerontology Congress, click here to register. -Alex Smith
Jennifer J. Brown is a scientist, a writer, and a mother who never got the luxury of separating those roles. Her memoir When the Baby Is Not OK: Hopes & Genes is a punch to the gut of polite society and a medical system that expects parents to smile through trauma. She wrote it because she had to. Because the people who gave her the diagnosis didn't give her the truth. Because a Harvard-educated geneticist with two daughters born with PKU still couldn't get a straight answer from the very system she trained in.We sat down in the studio to talk about the unbearable loneliness of rare disease parenting, the disconnect between medical knowledge and human connection, and what it means to weaponize science against silence. She talks about bias in the NICU, the failure of healthcare communication, and why “resilience” is a lazy word. Her daughters are grown now. One's a playwright. One's an artist. And Jennifer is still raising hell.This is a conversation about control, trauma, survival, and rewriting the script when the world hands you someone else's lines.Bring tissues. Then bring receipts.RELATED LINKS• When the Baby Is Not OK (Book)• Jennifer's Website• Jennifer on LinkedInFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, visit outofpatients.show.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
In this episode of Room 64 we are joined by occupational therapist Monique Walsh and [hysiotherapist Brendan Illyett from the Barwon Health palliative care service.Sharing information about their roles, Brendan and Monique talk about the team approach to supporting patients to achieve their goals (no matter how small or big) through their palliative care journey. This episode offers a rare insight into the unique role of the allied health team and the importance of working together when it comes to managing patient symptoms and challenges. Please take the opportunity to listen to this episode and share through your networks to keep these important conversations happening.
Listen as PeaceHealth Palliative Care Chaplain, Rev. CandaceFrawley, BCC-PCHAC shares about how palliative care can improve your quality of live - hosted by the FPC Health Ministry Team.
All Home Care Matters and our host, Lance A. Slatton were honored to welcome Jonathan Cottor as guest to the show. About Jonathan Cottor, MBA, MPH. : Jonathan Cottor is a devoted father whose journey with his son Ryan, diagnosed with Spinal Muscular Atrophy at 9 months old, profoundly shaped his life. Ryan defied expectations, living an extraordinary 17 years until his death in December 2018. Inspired by their experience, Jonathan and his wife co-founded Ryan House, a pioneering children's respite, palliative, and hospice care home in Phoenix, Arizona. After a 30-year career in corporate marketing and leadership, Ryan's death became the catalyst for Jonathan to align his work with his passion. He earned a Master of Public Health (MPH) from the Johns Hopkins Bloomberg School of Public Health, specializing in policy and advocacy, along with a certificate in Maternal and Child Health. Jonathan is now a recognized national thought leader in pediatric palliative care. He has been instrumental in building a coalition of community-based pediatric palliative care home models, culminating in the creation of the National Center for Pediatric Palliative Care Homes and its flagship initiative, Children's Respite Homes of America. About National Center for Pediatric Palliative Care Homes (NCPPCH): The National Center for Pediatric Palliative Care Homes (NCPPCH) is a national nonprofit advancing an innovative solution: local, community-based homes that provide overnight respite, palliative, and hospice care tailored to the needs of medically fragile children and young adults, particularly those with life-limiting conditions.
In this episode host Karen Summey, ACAPcommunity is joined by Julie Packer, Director of Professional Relations, Carolina Caring. Karen and Julie take a look at Hospice and Palliative Care services, dispel some preconceived notions, get an inside look at what these programs are, how they work, and who is eligible to receive them. It's more than you think! For information on additional podcasts, FREE in-person programs for care partners (caregivers), and more, please visit the ACAPcommunity website here. No chapter in your area? Stay tuned! ACAP is growing nationwide. Check our website often for a chapter near you. Meanwhile, we hope you'll take advantage of our audio podcast archive, our YouTube archive, and more. This episode of The Caregiver Community is made possible by our podcast sponsor, PACE@Home in Newton, NC, and sustaining partner EveryAge.
This episode of Standard Deviation features Oliver Bogler in conversation with Dr Na Zhao, a cancer biologist caught in the crossfire of science, politics, and survival. Na's life reads like a brutal lab experiment in persistence.She grew up in China, lost her mother and aunt to breast cancer before she turned twelve, then came to the United States to chase science as both an immigrant and a survivor's daughter. She worked two decades to reach the brink of independence as a cancer researcher, only to watch offers and grants vanish in the political chaos of 2025.Oliver brings her story into sharp focus, tracing the impossible climb toward a tenure-track position and the human cost of a system that pulls the ladder up just as people like Na reach for it. This conversation pulls back the curtain on the NIH funding crisis, the toll on early-career scientists, and what happens when personal tragedy fuels professional ambition.Listeners will walk away with a raw sense of how fragile the future of cancer research really is, and why people like Na refuse to stop climbing.RELATED LINKSDr Zhao at Baylor College of MedicineDr Zhao on LinkedInDr Zhao's Science articleIndirect Costs explained by US CongressFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
As the seasons shift, so do the conversations shaping Hospice and Palliative Care. In this week's episode, host Chris Comeaux and Hospice Analytics expert and co-host Cordt Kassner explore the latest headlines, challenges, and innovations impacting Hospice and Palliative Care.Together, they provide timely insights and thoughtful reflection on what matters most right now for providers, patients, and families, with discussion on the latest trends and insights in Hospice and Palliative Care. Covering a range of topics, including the impact of AI on Hospice Care, the importance of end-of-life visits, and the challenges of Hospice utilization trends. Also highlights significant events and stories from the Hospice community, such as the launch of a new nursing scholarship program and the impact of Hurricane Helene one year later.More than just a news recap, this episode offers perspective, encouragement, and a reminder of why Hospice and Palliative Care are both urgent and deeply meaningful. Whether you're a healthcare leader, frontline caregiver, or simply someone passionate about end-of-life care, this conversation will keep you informed and inspired as we enter the fall season.Highlights• Projected RN, LPN, NP shortages through 2032 and what that means for bedside care• Waste, fraud, abuse headlines and the urgency of last week's visit quality• Byock's four pillars as a roadmap for standards, data, competition, and brand• Mental health in palliative care and dignity therapy as practical tools• HOPE implementation and iQIES readiness across hospices• Scholarships and legacy programs to build CNA-to-RN pipelines• AI use cases, editing pitfalls, and critical thinking guardrails• PACE vs hospice at end-of-life and “rehab to death” incentives• Utilization trends, COVID death pull-forward, and state disparities• Disaster preparedness lessons when communications fail• Leadership training gaps and the masterclass: return to fundamentalsCo-host:Cordt Kassner, PhD, Publisher of Hospice & Palliative Care Today & CEO and Founder of Hospice AnalyticsHost:Chris Comeaux, President / CEO of Teleios Collaborative Network, Teleios Consulting GroupPlease subscribe, share TCN Talks with a colleague, and help us reach more hospice and palliative leadersTeleios Collaborative Network / https://www.teleioscn.org/tcntalkspodcast
Katie Henry has seen some things. From nonprofit bootstraps to Big Pharma boardrooms, she's been inside the machine—and still believes we can fix it. We go deep on her winding road from folding sweaters at J.Crew to launching a vibrator-based advocacy campaign that accidentally changed the sexual health narrative in breast cancer.Katie doesn't pull punches. She's a born problem solver with zero tolerance for pink fluff and performative empathy. We talk survivor semantics, band camp trauma, nonprofit burnout, and why “Didi” is the grandparent alter ego you never saw coming.She's Murphy Brown with a marimba. Veronica Sawyer in pharma. Carla Tortelli with an oncology Rolodex. And she still calls herself a learner.This is one of the most honest, hilarious, and refreshingly real conversations I've had. Period.RELATED LINKS:Katie Henry on LinkedInKatie Henry on ResearchGateLiving Beyond Breast CancerNational Breast Cancer CoalitionFEEDBACK:Like this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
September is suicide awareness month and grief recovery is a very important topic at this time Today I interview Tim Ringgold, a grief recovery specialist who knows a LOT about grief Have you ever had a song change your mood before the song was even over? Then you know that music is a powerful tonic for emotional pain and heart ache. My guest today knows this all too well. He is a board certified music therapist with a certificate in Hospice and Palliative Care music therapy, and has been facilitating Grief Retreats since 2007. Tim is also the author of the book, Sonic Recovery: Harness the Power of Music to Stay Sober. Tim was the first person to give a TEDx talk on music therapy in 2012, and is a former Regional President of theAmerican Music Therapy Association. When he's not helping people to reach for music during their toughest times, you can find him on a pickleball court thinking he's still 18, or cheering on his beloved Arsenal Football Club. Joining me from the city of Orange… yes there is a city not just a county named Orange, please welcome my brutha from anotha mutha, Tim Ringgold! HIS FREE GIFT https://5waystoheal.com/ Here is a snapshot of his journey from his website www.TimRinggold.com FIND OUT MORE ABOUT MAGDALENA GRACE HERE or TO SIGN UP FOR HER UPCOMING ABUNDANCE ALCHEMIST IN PERSON WORKSHOPS OR HEALTHY N WEALTHY N WISE RETREATS Our Coed retreat is Oct 30th-Nov 2nd BOOK A RUNES READING AND SIGN UP FOR HER WORKSHOPS & MORE! www.MagdalenaGrace.com JOIN OUR HEALTHY N WEALTHY N WISE ONLINE ACADEMY www.microdosingforhealth.com BUY ME A COFFEE OR DONATE FOR SCHOLARSHIP FUND FOR HEALING CLIENTS IN NEED https://venmo.com/u/lotusthrone MORE ALCHEMY OPPORTUNITIES FOR YOUR BEST HEALTH, WEALTH AND RELATIONSHIPS www.SanDiegoKambo.com www.KundaliniFallbrook.com www.LotusThroneSanctuary.com WANNA SIGN UP AND BE A PLEDGING PATRON FOR HEALTHY N WEALTHY N WISE - SAVING LIVES AND CREATING MORE ABUNDANCE FOR OTHERS? https://patron.podbean.com/magdalena SUBSCRIBE TO HER YOUTUBE CHANNEL: / @mistymagdalenagrace
Bronnie Ware was recovering from burnout when she wrote a blog post reflecting on years working as a palliative carer and the epiphanies patients shared with her as they faced death. It was read by millions and became the basis of her best-selling book, The Top 5 Regrets of the Dying.And the lessons Bronnie learnt from her dying patients also helped her confront some darker elements of her childhood and eventually find peace.The book has become a touchstone for many people all over the world, including influential thinkers like Dr Gabor Mate and Dr Rangan Chaterjee.Bronnie's wildlife vlog can be found on her website bronnieware.comThis episode of Conversations was produced by Jen Leake. Executive Producer is Nicola Harrison.It explores death, dying, palliative care, family, regrets, nature, depression, chronic illness, carer work, Bronnie Ware, The Top 5 Regrets of the Dying, writing, forgiveness, wildlife, spirituality, memory, meditation.To binge even more great episodes of the Conversations podcast with Richard Fidler and Sarah Kanowski go the ABC listen app (Australia) or wherever you get your podcasts. There you'll find hundreds of the best thought-provoking interviews with authors, writers, artists, politicians, psychologists, musicians, and celebrities.
Today, we're exploring some of the complexities of real-life palliative care cases that frontline staff have faced in practice. Joining me are four members of the London Ambulance Service's dedicated Palliative and End-of-Life Care Team: Karina Catley, Natalie Nabunya, Rowena Rickson, and Jodie Grace. Together, we'll examine real-life case studies that illustrate the unique challenges of caring for patients and their families during their final moments. From managing uncontrolled seizures in the community to supporting a family's cultural and spiritual wishes after death, these stories highlight the difficulties of decision-making when time is limited, documentation is incomplete, and emotions are intense. Along the way, we'll explore key principles such as the doctrine of double effect, the role of shared decision-making, and the importance of recognising dying in the field. We'll also discuss how clinicians can communicate compassionately, respect cultural values, and navigate the legal and public health frameworks that guide this care. This is a conversation about dignity, humanity, and the privilege of supporting people at the end of their lives, offering lessons for all of us working in pre-hospital care.
It was a stressful journey, but Linda Trummer survived Stage IV mantle cell lymphoma. In 2015, she went to her primary care physician after discovering a lump on her jaw line. That led to a diagnosis of a slow-moving blood cancer, MALtoma. However, further tests revealed a lump under her left arm and the diagnosis was upgraded to Stage IV mantle cell lymphoma, a rare form of blood cancer. She underwent R-Hyper-CVAD, a multi-faceted chemotherapy regimen and just two months later was declared to have No Evidence of Disease. Linda still suffers from the many side effects of her regimen, but is happy to be alive, especially when her prognosis indicated she would only live for another 18 to 24 months. Linda was close to 60 years of age when she first noticed a lump on her jaw line. She initially attributed it to her getting old, but when one day she saw the lump was growing, she sought medical attention. A PET scan showed that she had MALT lymphoma, also known as MALtoma, a cancer associated with the mucosa-associated lymphoid tissue. Linda switched oncologists and the second oncologist called for additional tests. They revealed a lump under her left arm, and she was diagnosed with Stage IV mantle cell lymphoma. Linda was placed on a chemotherapy regimen which included rituximab, doxorubicin, cyclophosphamide, vincristine, dexamethasone and cytarabine. That was followed by six lumbar punctures of methotextrate. Through it all, Linda Tremmer was an active patient. She sought to help other cancer patients on her floor by setting up an arts class. She also wrote poetry and with the aid of a cousin in Oregon, the poetry was set to music, which was played for the patients, who enjoyed getting care from a fellow cancer patient. Linda's regimen led to her being declared NED after two months, but she needed to stay on it and suffered from numerous side effects. She was placed on medication for depression and PTSD, although she says the latter rarely presents a problem. When she was diagnosed, Linda was told she would live another 18 to 24 months, and prepared to die. She sought palliative care and was placed in home hospice. She completed her will, set up cremation and wrote farewell letters to dear friends. But when she got to the 24-month mark, she realized she was still very much alive and started concentrating on living and not dying, which she said was much tougher than it sounds. These days, Linda is happy to be alive, enjoys living with her three dogs and two cats, and advocates for cancer patients through the Leukemia & Lymphoma Society and has a support group on Facebook. By way of advice, she says anyone diagnosed with mantle cell lymphoma should make sure they find an oncologist who knows how to treat mantle cell, which is much easier today than it was in 2015. Additional Resources: Support Group: The Leukemia & Lymphoma Society https://www.lls.org
Send us a textWelcome back to the guest chair Lanise Shortell — a pediatric and perinatal hospice nurse with over 20 years of experience walking families through their most tender moments. She is a global grief advocate who trains physician fellows at Emory University and abroad on the emotional landscapes of pediatric end-of-life care. Most recently, Lanise became became the Co-Owner of Pediatric Hospice and Palliative Care of Georgia - offering comforting care for families during every step of their journey.Lanise became a student of grief at just 4 years old, after a tragic accident shattered her sense of safety and family overnight. That rupture became a lifelong teacher — one that now informs the way she serves families facing unthinkable loss.This episode is for anyone navigating the quiet ache of loss, or sitting beside someone who is. In this episode, we discussed:The moment Lanise's life drastically changed by unimaginable loss.What it means to honor grief without trying to fix it.How grief can shape — and sometimes become — our life's work.What pediatric hospice work teaches about presence, not performance.Her work globally and nationally training.What we all can do to help families grieving everyday, but especially during the holidays.This conversation is a reminder that grief doesn't need to be rushed, silenced or solved - It simply needs to be held. Connect + Take Action:Instagram: @laniseshortellWebsite: Pediatric Hospice and Palliative Care of Georgia To Sponsor a Family Contact: Becky Loveland @ bloveland76@yahoo.com or contact Lanise Shortell
Palliative care doesn't mean giving up. It means getting support—while continuing treatments like chemo, dialysis, or radiation. A lot of people think palliative care is the same as hospice. It's not. Elder Care Coordinator Debra King dives into this topic with Shelby Kelley, a nurse practitioner of palliative care.
Sophie Sargent walked into the studio already owning the mic. A pandemic-era media rebel raised in New Hampshire, trained in Homeland Security (yep), and shaped by rejection, she's built a career out of DM'ing her way into rooms and then owning them. At 25, she's juggling chronic illness, chronic overachievement, and a generation that gets dismissed before it even speaks.We talk Lyme disease, Lyme denial, and the healthcare gaslighting that comes when you “look fine” but your body says otherwise. We dive into rejection as a career accelerant, mental health as content porn, and what it means to chase purpose without sacrificing identity. Sophie's a former morning radio host, country music interviewer, and Boston-based creator with a real voice—and she uses it.No fake podcast voice. No daddy-daughter moment. Just two loudmouths from different planets figuring out what it means to be seen, believed, and taken seriously in a system designed to do the opposite.Spoiler: She's smarter than I was at 25. And she'll probably be your boss someday.RELATED LINKSSophie on InstagramSophie on YouTubeSophie on LinkedInMedium article: “Redefining Rejection”See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
What happens when you hand a mic to the most extroverted, uncensored Gen Z career coach in New York? You get Olivia Battinelli—adjunct professor, student advisor, mentor, speaker, and unfiltered truth-teller on everything from invisible illness to resume crimes.We talked about growing up Jewish-Italian in Westchester, surviving the Big Four's corporate Kool-Aid, and quitting a job after 7 months because the shower goals weren't working out. She runs NYU Steinhardt's internship program by day, roasts Takis and “rate my professor” trolls by night, and somehow makes room for maple syrup takes, career coaching, and a boyfriend named Dom who sounds like a supporting character from The Sopranos.She teaches kids how to talk to humans. She's allergic to BS. And she might be the most Alexis Rose-meets-Maeve Wiley-mashup ever dropped into your feed. Welcome to her first podcast interview. It's pure gold.RELATED LINKS:Olivia Battinelli on LinkedInOlivia's Liv It Up Coaching WebsiteOlivia on InstagramNYU Steinhardt Faculty PageFEEDBACK:Like this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
In this week's episode, Brain & Life Podcast co-host Dr. Katy Peters is once again joined by Kristin Flanary, AKA Lady Glaucomflecken, to continue their conversation from last week. Kristin has advanced training in both cognitive neuroscience and social psychology and now is active on social media, podcasts, and comedy shows with her husband, Dr. Glaucomflecken. Kristin shares more about the term “co-survivor” and the importance of thoughtful doctor/patient communication, based on her own lived experiences. Dr. Peters is then joined by Dr. Jessica McFarlin, is an associate professor of neurology at the University of Kentucky Department of Neurology and Chief of the Division of Palliative Care who is trained in both neurocritical care medicine and palliative care medicine. Dr. McFarlin touches on the role of care partners and medical professionals when it comes to the Neurointensive Care Unit. Additional Resources Lady Glaucomflecken What is the Difference Between Coma, Minimally Conscious State, Persistent Vegetative State, and Brain Death? How to Keep Loved Ones Safe in the Hospital Other Brain & Life Podcast Episodes on These Topics What is an ICU and Neurologic Critical Care? Tips and a Guide for Everyone Nora McInerny on Moving Forward with Grief Advocating for a Multiple Sclerosis Diagnosis with Comedian Kellye Howard We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? · Record a voicemail at 612-928-6206 · Email us at BLpodcast@brainandlife.org Social Media: Guests: Kristin Flanary @ladyglaucomflecken; Dr. Jessica McFarlin @ukadultneuro Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD
This episode is sponsored by Invivyd, Inc.Marc Elia is a biotech investor, the Chairman of the Board at Invivyd, and a Long COVID patient who decided to challenge the system while still stuck inside it. He's not here for corporate platitudes, regulatory shoulder shrugs, or vaccine-era gaslighting. This is not a conversation about politics, but it's about power and choice and the right to receive care and treatment no matter your condition.In this episode, we cover everything from broken clinical pathways to meme coins and the eternal shame of being old enough to remember Eastern Airlines. Marc talks about what it means to build tools instead of just complaining, what Long COVID has done to his body and his patience, and why the illusion of “choice” in healthcare is a luxury most patients don't have.This conversation doesn't ask for empathy. It demands it.RELATED LINKSMarc Elia on LinkedInInvivyd Company SiteMarc's Bio at InvivydFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Doctors often use euphemisms to dance around the 'C' word. But for oncologist Dr Ranjana Srivastava, how you talk to someone with cancer goes beyond "shadows, lumps and lesions". It's all about compassion and clarity, even when honesty is difficult.Ranjana Srivastava was a young doctor in regional Australia, accompanying her consultant on his late night rounds when she heard a patient say something that stopped Ranjana in her tracks.It was in that moment that she finally knew what her speciality was going to be: oncology. Ranjana now works in Melbourne as an oncologist and an author.She often writes about the need for clarity and compassion in doctor-patient conversations, to deliver good news, bad news and everything that falls between.Ranjana had her own experience of being at the receiving end of devastating news when she was pregnant with twins.Ranjana has carried the lesson she received from her own doctor forward, into her work as an oncologist, where bearing witness to the attitudes of her patients has changed the way she sees the world and has helped put her own life in perspective.Further informationRanjana's latest book, Every Word Matters, is published by Simon & Schuster.She has published seven books about cancer and end of life care, including A Better Death, Tell Me the Truth, Dying for a Chat, So It's Cancer: Now What, and After Cancer: A Guide to Living Well.Ranjana also writes a regular column for The Guardian.In 2017, Ranjana was awarded an Order of Australia medal for her work as an oncologist and in improving doctor-patient communication.This episode of Conversations was produced by Meggie Morris. Executive producer is Nicola Harrison.It explores cancer, oncology, the big C, cancerland, breast cancer, bowel cancer, how to survive cancer, incurable cancer, end of life care, palliative care, honest doctors, refusing treatment, chemotherapy, radiation, how to be honest with patients, doctor patient relationship, geriatric oncology, India, migration, motherhood, late term miscarriage, pregnancy, writing, books, origin story, journalism.To binge even more great episodes of the Conversations podcast with Richard Fidler and Sarah Kanowski go the ABC listen app (Australia) or wherever you get your podcasts. There you'll find hundreds of the best thought-provoking interviews with authors, writers, artists, politicians, psychologists, musicians, and celebrities.
In this episode of Room 64 - A Palliative Care Podcast, we are joined by Jess Bosnjak who is sharing her experience with palliative care when her mum Vicki was diagnosed with cancer. Jess is interviewed by Amanda Myring who is a spiritual care worker in the Barwon Health Palliative Care team.This is an insightful conversation with Jess about her mum – her sense of humour, her compassion for others, their love and the importance of those brutal conversations. Jess also shares her experiences of turning 30 while her mum was in the Palliative Care ward at the McKellar Centre, the caring staff and how they went out of their way to make it a memorable month.Jess talks openly about the fear of dying and the importance of education and conversations to help ease the stress and deal with the decision making.This episode was recorded during Dying to Know Week, so please take the opportunity to listen to this episode and share through your networks to keep these important conversations happening.
PJ hears about the explosion of interest in ADHD in Cork, learns about a jobs revolution in offshore wind, talks to Marian who lost her son at 18 to cancer about the Hospice staff who were so kind. And more.... Hosted on Acast. See acast.com/privacy for more information.
Marian says Palliative Care can make all the difference in heartbreaking circumstances and explains how a hospice can go the extra mile to make last days special"Goodbye My Son" by Marian O'Mahony available here and here “Building a Career in Palliative Care” 5-7pm Mon Sep 8th at Marymount University Hospital & Hospice Hosted on Acast. See acast.com/privacy for more information.
Father Dave welcomes author Michael Carlon to discuss his new novel “The Waiting Room” which reframes how we journey with those close to death.
In this week's episode, Brain & Life Podcast co-host Dr. Katy Peters is joined by Kristin Flanary, AKA Lady Glaucomflecken. Kristin has advanced training in both cognitive neuroscience and social psychology and now is active on social media, podcasts, and comedy shows with her husband, Dr. Glaucomflecken. Kristin shares her unique perspective on the healthcare system, having been a patient, a caregiver, and a co-survivor of her husband's medical challenges, including his two cancer occurrences and a sudden cardiac arrest that led to a stay in the Neurological Intensive Care Unit. Dr. Peters is then joined by Dr. Jessica McFarlin, is an associate professor of neurology at the University of Kentucky Department of Neurology and Chief of the Division of Palliative Care who is trained in both neurocritical care medicine and palliative care medicine. Dr. McFarlin explains how Neurological Intensive Care Units provide life-saving care for patients with severe neurologic injuries, such as strokes and brain trauma. Come back next week for part two to hear more about the term “co-survivor” and the importance of thoughtful doctor/patient communication. Additional Resources Lady Glaucomflecken What is the Difference Between Coma, Minimally Conscious State, Persistent Vegetative State, and Brain Death? How to Keep Loved Ones Safe in the Hospital Other Brain & Life Podcast Episodes on These Topics What is an ICU and Neurologic Critical Care? Tips and a Guide for Everyone Nora McInerny on Moving Forward with Grief Advocating for a Multiple Sclerosis Diagnosis with Comedian Kellye Howard We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? · Record a voicemail at 612-928-6206 · Email us at BLpodcast@brainandlife.org Social Media: Guests: Kristin Flanary @ladyglaucomflecken; Dr. Jessica McFarlin @ukadultneuro Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD
Rabbi Dr. Jason Weiner joins the podcast to discuss a new paradigm in palliative care, one that redefines the conversation around end-of-life decisions. This episode explores how two of today's most respected halachic authorities, Rav Asher Weiss and Rav Hershel Schachter, have provided rulings that completely change the game. Rabbi Dr. Weiner unpacks these "never-before-seen" piskei halacha, which allow for a more nuanced approach. The discussion delves into the ethical and practical implications of these rulings for patients, families, and medical professionals. Rabbi Dr. Weiner shares powerful stories from his work as a hospital chaplain, illustrating how this new approach can enable patients to find comfort and dignity in their final days. The episode offers a crucial and timely conversation for anyone grappling with end-of-life care decisions.To learn more about Rabbi Dr. Wiener and what he offers, please view his website: rabbiweiner.com
After years of carrying the weight of lead, Shannon and Cooper find a path out from under the darkness and into the sunlight.LEAD: how this story ends is up to us is an audio docudrama series that tells the true story of one child, his mysterious lead poisoning, and his mother's unwavering fight to keep him safe. A true story written by Shannon Burkett. Directed by Alan Taylor. Starring Merritt Wever, Alessandro Nivola, Cynthia Nixon, and Cooper Burkett.Lead was produced by Shannon Burkett. Co-produced by Jenny Maguire. Featuring Amy Acker, Tom Butler, Dennis T. Carnegie, James Carpinello, Geneva Carr, Dann Fink, Alice Kris, Adriane Lenox, Katie O'Sullivan, Greg Pirenti, Armando Riesco, Shirley Rumierk, Thom Sesma, and Lana Young. Music by Peter Salett. “Joy In Resistance” written by Abena Koomson-Davis and performed by Resistance Revival Chorus. Casting by Alaine Alldaffer and Lisa Donadio. Sound Design by Andy Kris. Recording Engineer Krissopher Chevannes.For corresponding visuals and more information on how to protect children from lead exposure please go to https://endleadpoisoning.org.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
The deficits from the lead poisoning continue to intensify, Shannon channels her anger and grief into holding the people who hurt her son responsible.LEAD how this story ends is up to us is a true story written and produced by Shannon Burkett. Co-produced by Jenny Maguire. Directed by Alan Taylor. Starring Merritt Wever, Alessandro Nivola, Cynthia Nixon, and Cooper Burkett.EP4 features Eboni Booth, Sasha Eden, Kevin Kane, April Matthis, Alysia Reiner, and Mandy Siegfried. Casting by Alaine Alldaffer and Lisa Donadio. Music by Peter Salett. Sound Design by Andy Kris. Recording Engineer Krissopher Chevannes.For corresponding visuals and more information on how to protect children from lead exposure please go to https://endleadpoisoning.org.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
THE GOOD DEATH VIRTUAL BOOK TOUR: Suzanne B. O'Brien RN in Conversation with Jennifer A. O'Brien. Discover the powerful journey of caregiving with Jennifer, a seasoned healthcare administrator with nearly 40 years of experience, whose personal losses and the tender care of her late husband, a hospice doctor battling cancer, shaped her profound perspective on end-of-life care. In this heartfelt conversation, Jennifer shares the wisdom behind her books The Hospice Doctor's Widow and Care Boss, offering invaluable insights into the true meaning of presence during life's most precious moments. Together, we explore the misunderstood nuances of hospice and palliative care, the importance of advanced care planning, and the moral challenges faced by healthcare professionals. This episode invites us to reframe death not as an adversary but as a natural part of life, empowering caregivers and families to lead with compassion, clarity, and courage in the face of life's final chapter. (00:02) Navigating the End-of-Life Care Journey (13:01) Clarifying Hospice and Palliative Care (27:41) Exploring Advanced Care Planning Options (32:10) Empowering Caregivers Through Leadership and Vision Register to join us for FREE: THE GOOD DEATH BOOK CLUB EXPERIENCE: 12 MONTH FREE DEATH AND DYING COURSE Or visit our website here! GET THE GOOD DEATH BOOK Here Meet our guest: Jennifer A. O'Brien Interim Healthcare CEO, Author Website: www.jenniferaobrien.com LinkedIn: Jennifer O'Brien Facebook Group: Hospice Doctor's Widow - Jennifer A. O'Brien, MSOD Instagram: @hospicedoctorswidow Please Share! Know someone who is a caregiver, healthcare worker, or spiritual seeker? Share this episode and invite them to join this sacred and supportive experience. Listen & Subscribe: Available on Apple Podcasts • Spotify • Google Podcasts • YouTube JOIN MY FREE TRAINING AND MEMBERSHIP SITE This is a community-supported group hosted by Suzanne B. O'Brien RN, founder of the International Doulagivers Institute for training those who want to be professional End of Life Doulas, Doulagiver Practitioners and for anyone wanting more EOL education Join Here: 4491664174178077 ⚑ SUBSCRIBE TO MY CHANNEL ⚑ If you want to do great things you need to have a great environment. Create the life you want by surrounding yourself with positivity and watching daily. Click here to subscribe! ツ CONNECT WITH ME ツ Leave a comment on this video and it'll get a response. Or you can connect with me on different social platforms too: Instagram Facebook TikTok Website Podcast #deathdoula #deathdoultraining #dyingwell #death #life #deatheducation #doulagivers #hospice #hospicecare #hospicenurse #deathdoula #soulmidwife #deathmidwife #endoflifeplanning #healthcareproxy #funerals #fearofdeath #endoflifedoula #thegooddeath #hospice #grief #deathawareness #birth #endoflife #deathpositivity #consciousdying #dying #advanceplanning #deathpositive #gooddeath #consciousliving #endoflifedirective #palliativecare #advancedirective #livefully #suzannebobrien. #lifecafe #consciousness #awarenes
The effects of the neurotoxin are taking their toll on Cooper as Shannon desperately tries to navigate the severity of their new reality.LEAD how this story ends is up to us is a true story written and produced by Shannon Burkett. Co-produced by Jenny Maguire. Directed by Alan Taylor. Starring Merritt Wever, Alessandro Nivola, Cynthia Nixon, and Cooper Burkett.E43 features Jenny Maguire, JD Mollison, Laith Nakli, Deirdre O'Connell, Carolyn Baeumler, Zach Shaffer, and Monique Woodley. Casting by Alaine Alldaffer and Lisa Donadio. Music by Peter Salett. Sound Design by Andy Kris. Recording Engineer Krissopher Chevannes.For corresponding visuals and more information on how to protect children from lead exposure please go to https://endleadpoisoning.org.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
In this episode, Kelsi Sheren hosts Tammy Porisky, a former registered nurse, and Alex Schadenberg to discuss the troubling changes in the healthcare system, particularly regarding palliative care and the MAID (Medical Assistance in Dying) legislation. Tammy shares her experiences in nursing, the shift in the definition of palliative care, and the ethical dilemmas faced by healthcare professionals. The conversation highlights the lack of safeguards for nurses and patients, the misapplication of the term 'palliative,' and the broader implications of a healthcare system that seems to prioritize death over life. The episode serves as a call to action for listeners to be aware of these issues and advocate for better care and support for patients.Substack: https://substack.com/@kelsisheren - - - - - - - - - - - -SUPPORT OUR SPONSORS - - - - - - - - - - - -RHO Nutrition - Code: KELSI20 - https://rhonutrition.com/KELSIKetone IQ- 30% off with code KELSI - https://ketone.com/KELSIGood Livin- 20% off with code KELSI - https://www.itsgoodlivin.com/?ref=KELSIBrass & Unity - 20% off with code UNITY - http://brassandunity.com - - - - - - - - - - - - -SHOPB&U Jewelry & Eyewear: https://brassandunity.com - - - - - - - - - - - - -Follow #thekelsisherenperspective- - - - - - - - - - - - -CHARITYHeroic Hearts Project - https://www.heroicheartsproject.orgAll Secure Foundation - http://allsecurefoundation.orgDefenders of Freedom -https://www.defendersoffreedom.usBoot Campaign - https://bootcampaign.org
Jonathan Cottor and his family were living in England when his son Ryan was diagnosed with Spinal Muscular Atrophy when he was 9 months old in 2001. Ryan was not expected to live past his 2nd birthday but lived 15 years longer than expected, passing away in December of 2018. While in England , Jonathan and his wife Holly saw a Respite Home that was common in England but was unheard of in the United States. Jonathan moved his family to his original roots in Phoenix Arizona in 2003, where he and Holly created the Ryan house, which was similar to the home that they saw and that Ryan lived in on occasion in London. After Ryan's passing, Jonathan has dedicated his life to coming up with programs that would lead to the building of these Palliative Care Respite homes across the United States and hopes to have 50 programs completed and 50 houses built, one in each state within 5 years.
As the lead wreaks havoc on Cooper's development, Shannon searches for answers. Desperate to get a handle on what was happening to her son, she grabs onto a lifeboat - nursing school. Andy tries to piece together the past to make sense of the present.LEAD how this story ends is up to us is a true story written and produced by Shannon Burkett. Co-produced by Jenny Maguire. Directed by Alan Taylor. Starring Merritt Wever, Alessandro Nivola, Cynthia Nixon, and Cooper BurkettEP2 features Keith Nobbs and Frank Wood. Music by Peter Salett. Sound Design by Andy Kris. Recording Engineer Krissopher Chevannes. Casting by Alaine Alldaffer and Lisa Donadio.For corresponding visuals and more information on how to protect children from lead exposure please go to https://endleadpoisoning.org.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
A mysterious dust fills a young family's apartment. The truth begins to unravel when the mother gets a call from the pediatrician - the monster deep within the walls has been unleashed. LEAD how this story ends is up to us is a true story written and produced by Shannon Burkett. Co-produced by Jenny Maguire. Directed by Alan Taylor. Starring Merritt Wever, Alessandro Nivola, Cynthia Nixon, and Cooper Burkett. EP1 features Zak Orth, Jenny Maguire, Daphne Gaines, and Micheal Gaston. Music by Peter Salett. Sound Design by Andy Kris. Recording Engineer Krissopher Chevannes. Casting by Alaine Alldaffer and Lisa Donadio.For corresponding visuals and more information on how to protect children from lead exposure please go to https://endleadpoisoning.org.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.