The Real Mamas of the NICU Podcast

Hello! It's been a while (almost an entire year)Please listen in to our BIG ANNOUCEMENT!! https://blog.feedspot.com/nicu_podcasts/- 7th Ranked Podcast of 2023@realmamasofthenicu- InstagramSearch:The Real Mamas Of The NICU - Facebook

Explore the transformative AEA reform with Representative Molly Buck, an Iowa Legislator with over two decades of experience in education. Representing District 41 as a Democratic State Representative, Molly provides a wealth of knowledge as she supports multiple committees on education legislation. In this episode, Molly candidly shares her experiences as an educator and as a legislature. We talked about what services and programs AEA provided in its original state.  We then took a look at what is being changed and how that might impact our listeners. Our conversation is so impactful! The goal was to bring our audience information from a high-level perspective. We want our listeners to be able to create their own informed decisions. https://blog.feedspot.com/nicu_podcasts/- 7th Ranked Podcast of 2023@realmamasofthenicu- InstagramSearch:The Real Mamas Of The NICU - Facebook

This week Masse sits down with Dannie Fego (@nursedanniee) to talk about the fight to be able to care for her daughter (Luna) as a nurse and be paid. We chat about selfcare and the importance of taking care of yourself when taking care of a medically complex child. Lastly, Dannie shares how her Muslim religion has influenced the way she parents! Give this episode a listen and then go follow Dannie on Instagram!https://blog.feedspot.com/nicu_podcasts/- 7th Ranked Podcast of 2023@realmamasofthenicu- InstagramSearch:The Real Mamas Of The NICU - Facebook

It's been a second, friends! but, we're BACK +  are thrilled to dive deep into conversation with our guest Jade Ewoldt, a former NICU mom to twin girls, who share such a incredible story from the day they were born. In this episode, we will celebrate World Autism Awareness Day + chat about what life has been like for this family since the diagnosis of Autism & how Jade is a super-mama when it comes to advocating, supporting + creating awareness for Autism, not only today - but everyday! https://blog.feedspot.com/nicu_podcasts/- 7th Ranked Podcast of 2023@realmamasofthenicu- InstagramSearch:The Real Mamas Of The NICU - Facebook

Part 2 of Jamie Bell's Interview continues this week! Listen in to learn about her son Miles and the journey that took them to Philadelphia, learn about "2nd birth" and updates on where he is today + what the future looks like for him! https://blog.feedspot.com/nicu_podcasts/- 7th Ranked Podcast of 2023@realmamasofthenicu- InstagramSearch:The Real Mamas Of The NICU - Facebook

Today Masse and Taylor chat with Jamie Bell about her son, Miles! Miles was diagnosed with Spina Bifida at Jamie's 20 week anatomy scan. They were forced with the decision of termination, surgery in-utero or surgery after he was born. Ultimately their decision led them to CHOP in Philadelphia, PA, where they performed surgery on Miles in-utero! Listen to part one of Jamie's story and prepare to be amazed by medicine and technology in the United States!! https://blog.feedspot.com/nicu_podcasts/- 7th Ranked Podcast of 2023@realmamasofthenicu- InstagramSearch:The Real Mamas Of The NICU - Facebook

In current events, Kyte Baby made headlines when their employee was fired when the company wouldn't allow her to work remotely from the NICU.  The Today Show explained that, " Ying Liu posted two apology videos on TikTok, saying she made a 'terrible mistake' in how she treated the new mom." Taylor and Masse dish on this hot topic. What do you think?https://blog.feedspot.com/nicu_podcasts/- 7th Ranked Podcast of 2023@realmamasofthenicu- InstagramSearch:The Real Mamas Of The NICU - Facebook

Today Taylor shares Liam's Diagnosis and what that means for their family's next steps. Please keep Taylor, Brady and Liam in your thoughts as they travel to Washington DC next week to meet with a specialist who has been studying Liam's Rare Disease, SAVI (Sting Associated Vasculopathy with Onset in Infancy.  https://blog.feedspot.com/nicu_podcasts/- 7th Ranked Podcast of 2023@realmamasofthenicu- InstagramSearch:The Real Mamas Of The NICU - Facebook

Taylor and Masse discuss random thoughts and laugh about Christmas movies. Masse gives a little Noah update while Taylor drops a hint to new Liam updates. You never know what these two will say. Come join along!  https://blog.feedspot.com/nicu_podcasts/- 7th Ranked Podcast of 2023@realmamasofthenicu- InstagramSearch:The Real Mamas Of The NICU - Facebook

It's been a freaking minute! Taylor and Masse have so many fun and interesting topic heading into 2024.  In this episode we discuss our 2024 goals and how we ended up on the Feedspot's Top 20  NICU Podcasts! https://blog.feedspot.com/nicu_podcasts/- 7th Ranked Podcast of 2023@realmamasofthenicu- InstagramSearch:The Real Mamas Of The NICU - Facebook

The gang is back together!!! Taylor and Masse provide some Liam and Noah updates. Taylor chats about how Feeding and Behavior Therapy has been extremely important in Liam's learning and growth process. Also, did someone mention vacations, moving, Noah Girl launch, and bachelorette parties?????

This week we talk to Ashley Thilges about her son Jacob. Ashley talks about HELLP Syndrome and the journey that led to Jacob's early arrival, long NICU stay, and continuous health complications.  We know this episode will resonate with others!

Masse & Taylor are back on the mic TOGETHER! In this episode they interview one of their dear friends from the NICU, Mady Schmidt. Mady talks about her son Cooper's journey through the NICU, PICU, Kidney Transplant and Trach Decannulation! This episode meant SO much to both of us!  Mady is a one-of-a-kind and you'll love it! 

Taylor sits down with Kellie {with a drink} and does a deep dive into the NICU journey of Freddie! Kellie takes us through her traumatic birth experience, a glimpse into their NICU stay, and what services Freddie still follows today. Taylor and Kellie are hysterical together and you won't want to miss it! 

Masse talks to one of our sponsors about her NICU journey with her son Rowan that ended up being a business adventure! She walks us through her experience and how she turned her trauma into a creative distraction! 

Masse brings back Kylie Collins to give us all the updates on her nonprofit Walk With You. Walk With You is a nonprofit organization that walks with those grieving after a child has passes away. Please remember Kyle's mission in your life's journey. Website: walkwithyounonprofit.orgInstagram: walkwithyounonprofitFacebook: Walk With You Nonprofit

In this interview Masse sits down with Author, Natalie Skye. Natalie wrote the book NICU Mom: You Make Me Brave. Link: NICU Mom: You Make Me Brave: Skye, Natalie: 9781662872303: Amazon.com: Books

Masse sits down with Courtney Woodley as she talks about her son Cohen.  Cohen is a miracle baby born at 22 weeks and saved by the University of Iowa Hospital and Clinics. She shares her experience and how Cohen is doing today! This is one you DON'T want to miss! 

Masse sits down with Debbie where she shares the story of Nolan. Nolan has a story that is much different than Liam and Noah. Listen in to learn about how Debbie advocated and researched the perfect feeding plan for Nolan! 

Masse sits down with Mattye Coulter as she tells the story of her son, Braxtyn. Braxtyn was born at 37 weeks but has struggled with medical complexities since the day he was born. Mattye shares how she advocates for him to find answers. As they await genetic testing, she talks about her hopes for their future! 

In this episode, Taylor and Masse are so excited you are here! They discuss their goals for the upcoming year. They've already earned a few sponsorships and started social media platforms. Taylor and Masse share their path summer experiences. 

Taylor and Masse speak to what medical appointments look like after the NICU. Who helps coordinate the care? How much responsibility falls on us as parents? They dive into Noah's surgery just a little bit and talk about Liams upcoming surgery! 

We continue our conversation with the University of Iowa's Neonatal Physical Therapist, Kathi Anderson. Kathi talks speaks to the idea of how Physical Therapy is perceived in the world of neonatology. Kathi then gets personal and talks about how she adopted the perfect little boy from the NICU. It's a beautiful story and you don't want to miss it!  

Masse sits down with Kathi Anderson  to talk about pediatric Physical Therapy in the NICU.  Kathi is the first exclusive PT to work in the NICU at the University of Iowa. Kathi talks about her path to the NICU and her experiences. Enjoy this episode- as it's one you won't want to miss! 

In the 10th episode Masse and Taylor talk about their "real" jobs, Taylor and Brady are ENGAGED and Noah is getting decannulated! We celebrate all the wins! These are really big announcements and we are so excited for all the great things ahead! 

This week Taylor and Masse speak to Parent Centered Rounds. They talk about what questions to ask and how to prepare. They talk about how overwhelming it can be, but also how incredibly important it is to be able to be a part of your baby's care team! 

Take a listen to the 10 things NOT to say to a NICU mama.  As a support person, take a listen to things that aren't taken as joke to a member of the NICU community. Taylor and Masse laugh about some of the comments in this light hearted episode! 

The real dads of the NICU join the podcast! Listen to the NICU perspective of these two dads. They share their experiences of trauma, how they navigated self care, and advice they have for other NICU dads. Take a listen!  

Time passes so quickly and summer gets busy! Catch up with Taylor and Masse's life with new challenges and milestones!  

Taylor and Masse get real about how sick their babies were in the NICU. They explain some of their babies worst days and how they coped during that time. 

In this episode Taylor and Masse talk about our experiences with NICU nurse.  We discuss the good and bad experiences, ways to treat. Masse interviews our first ever Real Mamas of the NICU guest- Kylie Collins. Kylie discusses her experiences as a NICU nurse and now as a  she begins her journey with her passion project. 

Taylor and Masse chat about parenting styles in the NICU.  Hospitals should have ways to help parents feel included and valued. This episode talks about ways for parents to advocate and feel a part of the team.

Taylor talks about Liam's nose canula and Masse talks trachs! These are the ways that literally keeps our babies breathing! Learn about all the medical equipment, the process and our outcomes. 

 Taylor and Masse discuss the traumatic birth stories of Liam and Noah. While Liam and Noah both had premature births, their stories are very different. Listen to the emotional stories from these mama's perspectives (Dad's are a different day).  This is one you DON'T want to miss!