Podcasts about Spina bifida

Our guest this week is Jim Littlefield-Dalmares of Louisville, KY who is Director of Market Development at BNI Middle Tennessee, author, podcast host, founder of Seeing Ability and perhaps most importantly, father of two including a child with Cerebral Palsy. Jim and his wife, LeAnn, have been married for 27 years and are the proud parents of two: Peter (21) and Sophia (25) who was born very prematurely, diagnosed early on with Spina Bifida and who has Cerberal Palsy.  Professionally, Jim is the Director of Market Development at BNI of Middle Tennessee.  He is also author of the book: Seeing Ability: Finding Your Path In Parenting A Child With Special Needs and host of the Seeing Ability Podcast.  More recently, Jim has also created the Seeing Ability Foundation.We'll hear Jim's life story and all about the Seeing Ability book, podcast and foudnation all on this episode of the SFN.Dad to Dad Podcast.Show Notes - Phone – (502) 528-0894Email – jimld858@aol.comLinkedIn –  https://www.linkedin.com/in/jimld/Website – https://seeingability.com/Book – Seeing Ability: Finding Your Path In Parenting A Child With Special Needs - https://tinyurl.com/2fpfw4vpPodcast - https://seeingability.com/podcast/Register for the 6th Annual SFN Dads Virthual Conference on May 10, 2025: https://us02web.zoom.us/meeting/register/TLkN_ViJTTqnaK-M8pHPNA After registering, you will receive a confirmation email containing information about joining the meeting.Special Fathers Network -SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 800+ SFN Mentor Fathers, who are raising kids with special needs, have said: "I wish there was something like this when we first received our child's diagnosis. I felt so isolated.  There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through."SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations.Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channel/UCzDFCvQimWNEb158ll6Q4cA/videosPlease support the SFN. Click here to donate: https://21stcenturydads.org/donate/Special Fathers Network: https://21stcenturydads.org/  

In today's episode, host Lori Boll speaks with Vanessa Vanek—a fiber and digital media artist, international educator, and proud disabled woman—on the SENIA Happy Hour Podcast.Vanessa shares how her lived experience with Spina Bifida has shaped both her art and her teaching. From Kansas to Shanghai, her story is a powerful reminder that beauty doesn't live in society's view of perfection—it lives in authenticity, vulnerability, and bold creative expression.We talk about:How art can challenge ideas of beauty and normalcyWhat it's like teaching across cultures as a disabled educatorWhy inclusive classrooms need representation in every brushstrokePractical tips for teachers who want to bring disability inclusion into the art roomYou don't want to miss this one. Tune in and be inspired.Connect:Vanessa's emailVanessa's PortfolioLinkedInResources From Today's Show:UNICEF Video

April 2025 Show Notes Drs. Jill Larson and Vineeta Swaroop from Northwestern University and Lurie Children's Hospital in Chicago join the podcast for a journal club-style discussion of their group's studies concerned with care for children with Spina Bifida and Neuromuscular Conditions. The lightening round articles touch on determination of femoral anteversion in the operating room, regional anesthesia for hip surgeries, and the value of tapping for pedicle screws during spine deformity surgery.   Your hosts are Craig Louer (Vanderbilt University), Carter Clement (Manning Family Children's Hospital in New Orleans), Tyler McDonald (University of South Alabama), and Will Morris (Scottish Rite for Children).   Main Event – Spina Bifida Journal Club   Dias LS, Swaroop VT, de Angeli LRA, Larson JE, Rojas AM, Karakostas T. Myelomeningocele: a new functional classification. J Child Orthop. 2021;15(1):1-5. doi:10.1302/1863-2548.15.200248   May JM, DeMaio EL, Larson JE. Long-term Clinical and Radiographic Results of Posteromedial Lateral Release for Neuromuscular Clubfoot Deformity. J Pediatr Orthop. 2025;45(2):87-92. doi:10.1097/BPO.0000000000002848   Poggiali P, May JM, Larson JE, Dias LS. Talectomy for the Treatment of Rigid Nonidiopathic Clubfoot Deformity: Long-term Follow-up. Journal of the Pediatric Orthopaedic Society of North America, Volume 9, 100112   Arkin C, Ihnow S, Dias L, Swaroop VT. Midterm Results of the Ponseti Method for Treatment of Clubfoot in Patients With Spina Bifida. J Pediatr Orthop. 2018;38(10):e588-e592. doi:10.1097/BPO.0000000000001248   Thompson RM, Foley J, Dias L, Swaroop VT. Hip Status and Long-term Functional Outcomes in Spina Bifida. J Pediatr Orthop. 2019;39(3):e168-e172. doi:10.1097/BPO.0000000000001266     Lightning Round   Yao B, Li D, Cui J, et al. Establishment of an Accurate and Precise Alternative Intraoperative Technique for Determination of Femoral Version. J Pediatr Orthop. Published online March 21, 2025. doi:10.1097/BPO.0000000000002920'   Reysner M, Reysner T, Janusz P, et al. Pericapsular Nerve Group (PENG) Block Versus Lumbar Erector Spinae Plane Block (ESPB) in Pediatric Hip Surgery: A Randomized, Double-Blinded, Controlled Trial. J Pediatr Orthop. 2025;45(4):e324-e330. doi:10.1097/BPO.0000000000002882   Tate A, Brouillet K, Braithwaite Iv HC, Luhmann SJ. Pedicle Screw Placement in Pediatric and Adolescent Spinal Deformity Surgery: Does Tapping of the Pedicle Screw Tract Increase Safety?. J Pediatr Orthop. 2025;45(5):269-273. doi:10.1097/BPO.0000000000002909

The U.S. Senate approved the nomination of Danté Quintin Allen to lead the U.S. Department of Education's Rehabilitative Services Administration (RSA). Until his confirmation, Allen had been serving as executive director for CalABLE, California's ABLE Act savings and investment program for people with disabilities. Under his five-year leadership, CalABLE was the fastest growing ABLE Act program in the country. Prior to leading CalABLE, Allen was a communications leader for organizations including Kaiser Permanente and the California Department of Public Health's Office of Health Equity. A fulltime wheelchair user, Allen is a well-known advocate for disability rights and equity. Upon his confirmation, Secretary of Education Miguel Cardona remarked, “I look forward to working together with Mr. Allen to provide individuals with disabilities and all students with equitable access to the education and training they need to find good-paying jobs; achieve economic security; and lead healthy, independent lives.”©2025 Building Abundant Success!!©2025 All Rights ReservedJoin Me on ~ iHeart Media @ https://tinyurl.com/iHeartBASJoin me on Spotify: https://tinyurl.com/yxuy23baAmazon Music ~ https://tinyurl.com/AmzBASAudacy:  https://tinyurl.com/BASAud

Campaign groups representing families of children who have undergone surgery and those on waiting lists have called for a full public inquiry into spina bifida and scoliosis care at Children's Health Ireland. Our reporter Una Kelly was at the press conference in Dublin.

Kieran has left Newstalk headquarters and is in Buswells as the Spina Bifida and Hydrocephalus Paediatric Advocacy Group and Scoliosis Advocacy Network are holding a press conference calling on action in continued failures on paediatric care.Una Keightley, Co-Lead Spina Bifida and Hydrocephalus Paediatric Advocacy Group, and Claire Cahill Co-Founder of Scoliosis Advocacy Network join to discuss.Image: @mulvanypeopleb1 on Twitter

Six-year-old Zoey, who has spina bifida, was due to fly to New York for spinal surgery, but is now too unwell to travel. She now awaits treatment in Ireland. Una Kelly spoke to her mother Lorraine Russell.

This week, we meet an extraordinary young hero: 6-year-old Nikos Kaymakcian, New Jersey's 2025 Children's Miracle Network Champion. Diagnosed with the most serious form of Spina Bifida before birth, Nikos has overcome tremendous challenges with the support of his family and care team at Children's Specialized Hospital. A wheelchair basketball player, NY Giants superfan, and proud big brother, Nikos brings determination and joy to every part of his life.We speak with Nikos and his mom, Nicole, about their journey and what hope looks like for families of children with complex medical needs.

This week, we meet an extraordinary young hero: 6-year-old Nikos Kaymakcian, New Jersey's 2025 Children's Miracle Network Champion. Diagnosed with the most serious form of Spina Bifida before birth, Nikos has overcome tremendous challenges with the support of his family and care team at Children's Specialized Hospital. A wheelchair basketball player, NY Giants superfan, and proud big brother, Nikos brings determination and joy to every part of his life.We speak with Nikos and his mom, Nicole, about their journey and what hope looks like for families of children with complex medical needs.

In this inspiring episode of the Work From Home Forever, host Don sits down with Marlee Kivens, a Pampered Chef Independent Consultant who turned a simple kitchenware party into a thriving remote career.Marlee shares how Pampered Chef's accessible products helped her gain independence as a person with Spina Bifida, allowing her to cook without assistance.She discusses her transition from in-home demonstrations to fully virtual events, the skills she had to learn—like social media and Zoom—and how working remotely gives her the flexibility to manage her health.Marlee's story is a powerful example of how remote work can empower individuals with disabilities to build successful, fulfilling careers on their own terms.Connect with Marlee:Pampered Chef: KivensKitchenKornerFacebook: KivensKitchenKorner⁠________________________ Do you love the show? Check out our⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠official merch page⁠⁠⁠ ⁠on Etsy⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ and support the show!________________________

The beautiful mother of 3 and one of the most incredible women I know, Amy Young, is on this episode with me and I cannot thank her enough for her vulnerability in sharing her story about her daughter's diagnosis of spina bifida and how she is doing today.  She shares the incredible clinical trial they were a part of in Texas which helped change her daughter's future mobility, amongst many other things and how that experience affected her family in many positive ways.  This family is truly an inspiration.  Halfway through we unknowingly do a deep dive into our faith and Amy shares how her relationship with Jesus and how her constant growing faith and desire to know Him and his story even more has completely changed her life for the better and I couldn't agree more.  Thank you Amy and cannot wait to have you back on to check in on you and sweet Madison!If you are in need of a great spray tan, Forever Young Spray Tan is Amy's mobile spray tan company!  You can find her on instagram @foreveryoungspraytan (https://www.instagram.com/foreveryoungspraytan/) or email her @ foreveryoungspraytan@gmail.com

Blaise dusts off some of his favorite interviews from his college days at The College of Saint Rose. Given all the chaos happening in the world why not have a couple of light hearted chats about wheelchair sports and writing. In March 2014 Blaise spoke with Joe Slaninka -- a person with Spina Bifida who is a multi-sport wheelchair athlete. Then we hear another chat from 2014 with John Evans -- a writer and poet who is blind. What was your favorite part about their blasts from the past? Share on Facebook @blaisinshows! Don't forget to rate, review, subscribe, and share! Support Blaisin' Access Podcast by contributing to their tip jar: https://tips.pinecast.com/jar/blaisin-access-podcast Send us your feedback online: https://pinecast.com/feedback/blaisin-access-podcast/2f50e2cd-39bf-4c31-b60a-d3c07cc9519cRead transcript

Sent us text! We would love to hear from you!Through the challenges of modern life we should strive to be as optimistic as possible. Look for the good in people; don't be overly consumed by evil-doers who pop up every now and then. In a classic case of being dumb and even dumber, elements within the U.S. Department of Defense decided to avoid one of the premier sources of top candidates for engineering positions within the military simply because the name of the event had the word  “Black” in the title. At a time when American-born engineers graduating from accredited institutions is at an all time low and declining levels, a component of the institutional leadership decided they would rather decrease the ranks of certified engineers rather than be associated with a group that has traditionally been a primary source of engineering talent for many years. These engineers will have plenty of options that command salaries far above what is available from the government. Oh well. On a positive note, consider that Fetoscopic surgery allows surgeons to open a women's uterus and apply corrective measures to reduce of eliminate the damaging effects of Spina Bifida, then close the fetus and make things suitable for a normal birth. Children are losing physical dexterity by focusing too much on screens and not using their hands and fingers enough to develop and refine their fine motor skills. The solution is simple, get physical; just move. Some of the top hotels in the U.S. are available, with the Ritz Carlton in New York City, surprisingly not being the most expensive one. Meet a wingman who donated a fortune to a small town of people he never met. 

This episode of the three-part mini-series with Dr Glenn Gardener delves into the success of in-utero spina bifida surgery at Mater's Maternal Fetal Medicine Unit.Dr Gardener successfully performed Australia's first in-utero surgery to correct a developing baby's spinal cord at Mater in 2016.Since then, more than 200 similar surgeries have been performed, reducing the risk of nerve damage and lifetime mobility restrictions.Mater's Maternal Fetal Medicine Unit remains the only site in Australia and New Zealand to provide the complex surgery.GP Education activity log:Podcast title - sMater: Spina BifidaProvider - Mater Misericordiae Ltd Date published - February 21, 2025Certificate of completion - click here To learn more about Mater, visit https://www.mater.org.au/

Her daughter was diagnosed with spina bifida during a tenuous spinal surgery and then she was diagnosed with breast cancer. As the mom of eight, Britt Fisk knows a thing or two about surrendering control. Her perspective was hard won and in this interview, Britt shares how laying down hard things helped her pick herself back up, and live again.  

About Mandy Mandy is the wife to Dustin and mom to Dylan, 11, and Madison, 14, who was born with Spina Bifida. Professionally, she has been a high school teacher for nearly 20 years and loves working with students in FCCLA, the student organization she sponsors. Personally speaking, she's obsessed with Christmas, loves to shop and entertain in our home, and is a huge Elvis fan. Her family is very active in their church. About the Episode As special-needs parents, we have to make decisions daily for our children regarding their care. There are times when decisions come our way that may have life-altering effects. What do you do when those decisions come your way? How do you process through making difficult decisions regarding our children with disabilities? Related Links Rising Above Family Resources  

Hello and welcome to our final episode of season 10.We're talking with Claire about her experience of multiple (3) TFMRs, two for a rare genetic condition that both Claire and her husband carry recessed genes for, and one for Spina Bifida.Claire talks us through what happened and how it has impacted and changed her.This is a really lovely episode about resilience and learning how to live with the uncertainty of life.We really hope you enjoy this episode, that it gives you hope for the future, whatever may come.You know we love to hear from you, so please get in touch and let us know what you think.Social media: Instagram @TimeToTalkTFMR.Email is TalkTFMR@yahoo.comThis episode is supported by Antenatal Results and Choices. For more information on how they support women and couples click here or call them on 0207 713 7486.

durée : 00:02:47 - nico-handiroutard.com - Nicolas Linder, atteint du Spina Bifida et malvoyant, se lance des challenges et des aventures dans le monde entier. Il a même porté la Flamme Olympique le 26 juin 2024. Pour ses 40 ans, il veut traverser le Cercle Polaire, en solitaire. Il raconte tout sur son site internet.

Christine Hempelmann hat in der 20. Schwangerschaftswoche die Diagnose "offener Rücken" bekommen. Das hat alles verändert. Spina Bifida ist eine angeborene Fehlbildung der Wirbelsäule, die zu Einschränkungen in der Beweglichkeit und verschiedenen gesundheitlichen Herausforderungen führen kann. Christine teilt ihre persönlichen Erfahrungen, Herausforderungen, Ängste, Sorgen und Erfolge auf dem Weg zu mehr Selbstständigkeit und Lebensfreude. Ein inspirierendes Gespräch über die Möglichkeiten der pränatalen Operationsmöglichkeiten und den Umgang mit vorgeburtlichen Erkrankungen.

Jaden Movold is an enigma I was lucky enough to meet some 9-10 years ago. Despite lower-limb paralysis due to Spina Bifida and 33 major surgeries, Jaden is a internationally ranked competitive athlete, as well as an ambassador, advocate, and public speaker all at the ripe old age of 20 ! A natural-born leader passionate about creating positive social change and a more inclusive society for people with disabilities.

Tracy DiNunzio is an entrepreneur and investor, and founder of luxury resale marketplace Tradesy. She's sold billions of dollars of pre-owned fashion, raised $150M in venture capital, and taught herself everything from marketing to coding to get there. But according to Tracy, being an entrepreneur has always been her second job; her first is managing a lifelong health condition. Living with Spina Bifida while building her career, Tracy felt like she couldn't tell the world about her disability. But when she finally opened up about it, the reaction wasn't at all what she expected. Today, Tracy shares with Nicole the surprising way that she found strength in vulnerability and learned to be a better leader. She also shares fundraising tips and tricks for anyone trying to raise money for their company, and previews the week ahead as she takes Nicole's seat to guest host an exciting week of Money Rehab. 

Guest: Dr. Michael Bohl Neurosurgeon Carolina NeuroSurgery & Spine Associates   In this episode:  Explain two key differences between an orthopedic spine surgeon and a neurosurgeon List three physical signs that may indicate a patient has a tethered spinal cord in the neonatal period Outline four steps to improve access to specialty care to disadvantaged populations This episode is eligible for CEUs. Visit https://handtohold.org/resources/podcasts/nicu-heroes/ to complete the questionnaire. It is the sole responsibility of the individual to verify if this credit is valid and eligible for use in your State and/or for your discipline for licensure or certification renewal.  

Katrina, the host of "Living with Disabilities," shares her insights on the Spina Bifida "Empowerment" Retreat, outlining the event's benefits and drawbacks. We're glad you're here! Make sure to stay connected with us every first and third Friday of the month for new episodes. Thank you for listening! The Spina Bifida Resources Network International Suicide Hotline ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://blog.opencounseling.com/suicide-hotlines/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Becoming a guest form ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://docs.google.com/forms/d/e/1FAIpQLScN0j1lThH8KaknxmeXIESTBC5NJWJjj9V0jubnYT5yMAffiw/viewform?usp=sf_link⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ The Living with Disabilities Official Website ⁠⁠⁠⁠⁠https://sites.google.com/view/livingwithdisabilities/home⁠⁠⁠⁠⁠ Any amount of support is appreciated for the show. ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://www.paypal.com/paypal.me/TrinaSmith16⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Spreading awareness will go a long way toward creating a solid foundation for those who desire to pursue higher education. Your purchase is important! ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://www.bonfire.com/shirts-bring-me-into-inclusion/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ If you need online support, ⁠⁠⁠⁠⁠⁠Disability Safe Haven⁠⁠⁠⁠⁠⁠ is great for receiving support. The We Care Team is very protective of its members and asks everyone who joins, to have a profile picture and answer the security questions. Another online support, ⁠⁠⁠⁠⁠⁠Living With Cerebral Palsy⁠⁠⁠⁠⁠⁠, is great for people with cerebral palsy and for family and friends who want to learn more about different types of cerebral palsy and how to support their loved ones who have it. This group has open and closing hours and a 24/7 chatroom. Open and closing hours are based on United States time zones.

Tom Mattice shares his journey of overcoming physical challenges and finding strength in the face of adversity. Born with spina bifida, Tom underwent multiple surgeries and battled infections, but never let his injuries define him. He learned to push through the pain and setbacks, finding inspiration in mentors and refusing to be a victim. Tom's story is a testament to resilience and the power of a positive mindset. The conversation explores the importance of embracing the journey and finding purpose in life. It emphasizes the value of small things and the learning aspect of struggles. The concept of Still Here is introduced as a way to show others that there are no boundaries and to inspire them to push through challenges. The conversation also touches on the need to avoid comparison and victimhood, and instead focus on personal growth and helping others. Practical advice is given to push through difficult days and find motivation by discovering one's why. The importance of self-improvement, embracing the present moment, and connecting with nature is highlighted. Tom Mattice shares his personal journey of overcoming challenges and finding purpose in life. He reflects on the moments of anger and frustration he experienced due to his condition, Spina Bifida, but eventually realized that he could use his strength to inspire others. Tom emphasizes the importance of inner happiness and encourages people to keep moving forward, even in the face of adversity. He shares stories of his clients who have overcome their own struggles and highlights the significance of having a support system. Tom also discusses the role of a coach in helping individuals navigate their inner demons and achieve their goals.   Follow Tom on IG: @__feast   If you are a coach, sign up now for The Real Coaches Summit 2025 in Las Vegas this April, organized by yours truly - Aram Grigorian.  The speaker lineup is insane, and don't forget macro friendly breakfast, lunch, and dinner is provided, as well as a top shelf open bar happy hour each evening to network and meet the speakers.  No VIP - we are all equals at this event!     You can find us on Instagram: Aram: @4weeks2thebeach Jim: @jimmynutrition   Grab some Serenity Gummies: CuredNutrition.com Code: OSL for 20% OFF Get some t-shirts/tanks/hoodies at:   https://www.othersidelifestyle.com/shop If you'd like to reach out to Aram, you can find him at:  https://www.4weeks2thebeach.com/work-with-me If you'd like to reach out to Jim, you can find him at:  https://www.othersidelifestyle.com/schedule Go get some supplements: www.legionathletics.com, use code: ARAM

Dr. Mitzi Williams is a pediatric foot and lower extremity surgeon who specializes in congenital deformities. Dr. Williams directs the Pediatric and Infant Foot Deformity Clinic at Kaiser Permanente in Oakland, California. She is an attending surgeon at the SF Bay Area Foot and Ankle Residency Program. She completed her undergraduate degree from the University of Arizona in veterinary science and chemistry. She went on to complete her podiatric medical degree at Rosalind Franklin University Schol College of Podiatric Medicine and then went on to complete her 3 yr surgical residency program with Scripps Mercy Podiatric Residency in San Diego.   Dr. Williams is greatly involved advancing treatment for children with Cerebral Palsy/ spasticity, Arthrogryposis, Spina Bifida and genetic conditions. Tune in as we discuss “all things podiatric medicine” including her creation of children's books to empower and educate children on musculoskeletal conditions. Dr. Williams is internationally recognized for her expertise in treating pediatric foot and lower extremity deformities. She takes pride in treating children, teaching surgeons worldwide and advancing the field of pediatric foot and ankle surgery. She has extensive experience in treating clubfoot, vertical talus, metatarsus adductus, tarsal coalitions, pediatric flatfoot, neuromuscular conditions, pediatric trauma, and numerous other congenital foot conditions. Join us, as we dive into her story and listen as she talks about how a chance meeting with Dr. Igancio Ponseti helped shape her career. Dr Williams serves as a board member for the American College of Foot and Ankle Surgeons. Her scholarly work also includes numerous textbook chapters on various pediatric conditions, research publications as well as section editor for pediatrics, in the Journal of Foot and Ankle Surgery. We hope you enjoy this episode! https://www.drmitziwilliams.com/ https://www.instagram.com/paleyinstitute/p/C87fSPAuxXh/?img_index=1 https://www.instagram.com/paleyinstitute/p/C4Bca4iOPMk/ https://www.linkedin.com/in/mitzi-williams-961b4698/ https://residency-ncal.kaiserpermanente.org/residency/podiatry/bayarea/ https://www.acfas.org/membership  

We discuss some of the main urologic goals for our pediatric patients with spina bifida. In addition to different treatment options and management considerations, we address the importance of multidisciplinary care.

For this week's disability segment, Blaise Bryant is joined by Julia Duff, Executive Director of the Spina Bifida Association of New York State. This is an edited version of their chat. For the full version visit blaisinshows.com and click on the Blaisin' Access Podcast or subscribe on your favorite app.

In this episode, leaders from the multidisciplinary Spina Bifida Center at Lurie Children's  discuss their innovative approaches to spina bifida care in the areas of fetal surgery, neurosurgery, orthopedics, and urology. Learn about the latest advancements from the center, including a new orthopedic classification system that's shaping the future of spina bifida treatment.

For today's Trivia Tuesday Blaise is joined by Julia Duff, Exec. Director of the Spina Bifida Association of NYS. What did you learn about Spina Bifida during this awareness month segment? Let Blaise know, subscribe, rate/review, and support the show! More info and to get in touch with the Spina Bifida Association of NYS: https://sbanys.org/ Support Blaisin' Access Podcast by contributing to their tip jar: https://tips.pinecast.com/jar/blaisin-access-podcast Send us your feedback online: https://pinecast.com/feedback/blaisin-access-podcast/2119e33d-d1b5-4cc8-bd54-cdad922ff45fRead transcript

Did you know that approximately 1 in 5 children experience learning and attention issues, but only a fraction of them receives an official diagnosis? In this episode of the MCG Pediatric Podcast, hosts Rishab Chawla and Dr. Jennifer Poon delve into the topic of Specific Learning Disorders (SLDs). They discuss the prevalence, diagnostic criteria, assessment methods, and treatment interventions for SLDs. The conversation aims to provide a comprehensive understanding of SLDs and highlight the importance of early intervention and support. CME Credit (requires free sign up): Link coming soon! References: Barto, A. The State of Learning Disabilities: Understanding the 1 in 5. Available from: https://ldaamerica.org/lda_today/the-state-of-learning-disabilities-today/. Dominguez, O. and P. Carugno, Learning Disability, in StatPearls. 2024, StatPearls Publishing: Treasure Island (FL). About learning disorders and disabilities. Available from: https://www.childrenshospital.org/conditions/learning-disorders-and-disabilities. Learning Disabilities: Overview. Available from: https://www.nhs.uk/conditions/learning-disabilities/. Intellectual Developmental Disorder (Intellectual Disability). 2022, American Psychiatric Association. Developmental, A.S.o. and B. Pediatrics, AAP Developmental and Behavioral Pediatrics, ed. R.G. Voigt, et al.: American Academy of Pediatrics. Burns, M.K., et al., Toward a Unified Response-to-Intervention Model: Multi-Tiered Systems of Support, in Handbook of Response to Intervention: The Science and Practice of Multi-Tiered Systems of Support, S.R. Jimerson, M.K. Burns, and A.M. VanDerHeyden, Editors. 2016, Springer US: Boston, MA. p. 719-732. Health Issues & Treatments for Spina Bifida. 2023; Available from: https://www.cdc.gov/NCBDDD/spinabifida/treatment.html. Leonard, H., et al., A systematic review of the biological, social, and environmental determinants of intellectual disability in children and adolescents. Frontiers in Psychiatry, 2022. 13. Snowling, M.J., A. Gallagher, and U. Frith, Family risk of dyslexia is continuous: individual differences in the precursors of reading skill. Child Dev, 2003. 74(2): p. 358-73. Felitti, V.J., et al., Relationship of Childhood Abuse and Household Dysfunction to Many of the Leading Causes of Death in Adults: The Adverse Childhood Experiences (ACE) Study. American Journal of Preventive Medicine, 1998. 14(4): p. 245-258. Zarei, K., et al., Adverse Childhood Experiences Predict Common Neurodevelopmental and Behavioral Health Conditions among U.S. Children. Children (Basel), 2021. 8(9). CDC's Developmental Milestones. 2023; Available from: https://www.cdc.gov/ncbddd/actearly/milestones/index.html. Lipkin, P.H., et al., Promoting Optimal Development: Identifying Infants and Young Children With Developmental Disorders Through Developmental Surveillance and Screening. Pediatrics, 2020. 145(1). IEP and 504 plans. Available from: https://www.choa.org/-/media/Files/Childrens/patients/school-program/iep-504-resource-page.pdf?la=en&hash=BF719764C11B474F8659306C061E00FD938CE5D0. Individuals with Disabilities Education Act Sec. 300.8 Child with a disability. 2018. Affects focus, attention and behavior and can make learning challenging. Available from: https://ldaamerica.org/disabilities/adhd/. Sahoo, M.K., H. Biswas, and S.K. Padhy, Psychological Co-morbidity in Children with Specific Learning Disorders. Journal of Family Medicine and Primary Care, 2015. 4(1): p. 21-25. Ee, J., B. Stenfert Kroese, and J. Rose, A systematic review of the knowledge, attitudes and perceptions of health and social care professionals towards people with learning disabilities and mental health problems. British Journal of Learning Disabilities, 2022. 50(4): p. 467-483. From the Boston Globe: "How to Support your Dyslexic Child". 2021; Available from: https://dyslexia.yale.edu/boston-globe-support-dyslexic-child/. Resources https://ldaamerica.org/resources/ American Academy of Pediatrics. https://www.healthychildren.org/English/health-issues/conditions/learning-disabilities/Pages/default.aspx

Join Dylan Alcott and Angus O'Loughlin as they speak with Andrew Dewberry, better known as DJ Dewbs! In this episode, Andrew shares his unique journey as a rising star in the music scene while living with Spina Bifida. Discover the heart behind his music and the vital role of Ability Fest in promoting inclusivity. The trio dives into the ongoing challenges of accessibility in the music industry and tackles common misconceptions about artists with disabilities, breaking down barriers and shining a light on talent that deserves to be heard! Plus, Dylan has a special surprise for Dewbs at the end of the episode that you definitely won't want to miss! GET YOUR TICKETS TO ABILITY FEST HERE :) Melbourne: https://megatix.com.au/events/ability-festival-vic-2024 Brisbane: https://megatix.com.au/events/ability-festival-qld-2024 Want to show your support for Dewbs? Following him on Instagram here: https://www.instagram.com/andrew.dewbs/ Watch the Full Episode with Captions Here: https://youtu.be/s_3-gtj_E3g Grab our first merch release at our website From Your Pocket https://fromyourpocket.com.au/work/listenable/merch Recorded, edited and produced by Angus' Podcast Company: www.sessioninprogress.com.au  See omnystudio.com/listener for privacy information.

In honor of Hispanic Heritage Month, host Joanna Pineda brought back Josie Hernandez, President of Association Latinos. Josie discusses:How Association Latinos came to be. Association Latinos was founded as a LinkedIn community in 2020 and became a 501(c)(3) nonprofit in 2022.Association Latinos' mission to advance Latino leadership and representation in the association space.Their transition from an informal group to a structured organization with governance and planning.How volunteers play a critical role in the organization's success, leveraging their strengths for growth and governance.Association Latinos upcoming summit called Conexiones on October 30, 2024, in Washington, DC., focused on skill development, embracing cultural wealth, and advancing Latino leadership.The Workforce Trend Survey, sponsored by Association Latinos, that is providing real demographic and advancement data about association executives for the first time ever.How Latinos contributed 41.4% of the growth in real U.S. GDP, despite comprising just 19.2% of the U.S. population. https://latinogdp.us/ The story of her parents navigating challenges, especially with her sister born with Spina Bifida. Josie reflects on her parents, and their influence on her leadership.The importance of supporters and allies in the success of Association Latinos.How Josie is celebrating Hispanic Heritage Month this year!References:Association Latinos WebsiteJosie Hernandez Associations Thrive Episode 59Workforce Trends Survey Special EpisodeAssociation Latinos LinkedIn community page

This month, the discussion will be centered around tethered spinal cord. Each week, listen to the discussion between host Paul Wirkus, MD, FAAP, and Rajiv Iyer. In week one they will discuss spina bifida.Have a question? Email questions@vcurb.com. Your questions will be answered in week four.For more information about available credit, visit vCurb.com.ACCME Accreditation StatementThis activity has been planned and implemented in accordance with the accreditation requirements and policies of the Colorado Medical Society through the joint providership of Kansas Chapter, American Academy of Pediatrics and Utah Chapter, AAP.  Kansas Chapter, American Academy of Pediatrics is accredited by the Colorado Medical Society to provide continuing medical education for physicians. AMA Credit Designation StatementKansas Chapter, American Academy of Pediatrics designates this live activity for a maximum of 1.0 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

This week on Walk and Roll Live - Disability Stories, we sit down with Eddie Flores, a Spina Bifida survivor who has faced life's ups, downs, twists, and turns head-on. Eddie opens up about the good, the bad, and the ugly moments that have shaped his journey. How is he doing today? You'll have to listen to find out. Join us for an honest and inspiring conversation with someone who knows what it means to keep rolling forward. Walk and Roll Live 

Find out on the Alex Garrett Podcast Network how David Jensen and Elysia Everett Burns are making sports and life more accessible through their app, Friendly Like Me! Find out more about the App here : https://www.friendlylikeme.com/Great conversation with Yankees Twitter member Jacob P.M., about what to expect in 2024. In addition, we go BTS with Jacob about his life off twitter and his public speaking experience discussing his overcoming of cancer.Thanks to Danny Voyes (human_transformer_90 on Instagam) and Derrek Cooke, owner of Derrek's Bags , for joining the Alex Garrett Podcast Nework. Derrek's Bags is an online store you can visit here: https://www.etsy.com/shop/DerreksBags. We talk about Spina Bifida and the love of baseball! I implore to also visit the New York State Spina Bifida Assocation here: https://sbanys.org/Thanks also to Anthony Fitzgerald , Mike Vaccarro, Mary Johnson and Lou Terminello as well as Yankee pitcher Jim Abbott for their discussions surrounding adaptability and Americans With Disabilities Act anniversary!I present to you these conversations in hopes of finding that you are not alone on your journey as well as resources you may not have known about prior to this podcast! Thanks for listening!

In perhaps our most important and most meaningful episode yet, this week we sat down to chat with Jennifer Allen from @Wonders_Within_Reach about what accessible travel and inclusion looks like for those with disabilities. As a Spina Bifida mom, Jennifer is no stranger to a travel world that is often not created with accessibility in mind. She has dedicated her life to finding accessible options for all, and sharing her experiences with others. We talk about their journey using credit card points and miles to help navigate the world of adoption, as well as many tips and tricks to make travel easier for those with both visible and invisible disabilities. Jennifer shares some of her family's experiences with international travel where the kindness of strangers has been paramount to the success of the trips. We hope to bring awareness to the challenges travelers with disabilities face, share a perspective that not everyone considers, and empower individuals with differing abilities (and their families) to get out and see the world. We hope you enjoy this episode as much as we loved recording it!Join our Facebook CommunitySign up for our newsletterFind us on Instagram:Podcast InstagramJoMary EllenJenniferIn This Episode@Accessible.AdventuresWonders Within Reach BlogBecoming RentABLEReferral LinksWorld of Hyatt Business Credit CardSouthwest Airlines Credit CardChase Sapphire Preferred or ReserveChase Ink CardsVenture X CardAmex GoldAMEX Platinum

Thanks to Danny Voyes (human_transformer_90 on Instagam) and Derrek Cooke, owner of Derrek's Bags , for joining the Alex Garrett Podcast Nework. Derrek's Bags is an online store you can visit here: https://www.etsy.com/shop/DerreksBags. We talk about Spina Bifida and the love of baseball! I implore to also visit the New York State Spina Bifida Assocation here: https://sbanys.org/In addition, in honor of Dysphagia Awareness month, Danny and I talk about his progress made in swallow therapy.I present to you these conversations in hopes of finding that you are not alone on your journey as well as resources you may not have known about prior to this podcast! Thanks for listening! 

Pain and suffering were a major part of Estella Patrick's life ever since she was born with Spina Bifida in 2004. Fortunately Estella had surgery to correct this Spinal Cord disease when she was 3 months old and now is an extremely talented and successful artist and illustrator. Her illustrations have appeared in 3 books which have been published by authors who are well known members of the Pediatric Cancer community. 

On Ask Kati Anything, your mental health podcast episode 219, Licensed therapist Kati Morton talks a lot about trauma therapy this week. She dives into how to start our trauma work, if there is ever a thing as too much trauma for therapy, and why it can be so hard for us to change our minds. She then explains ways we can show our bodies compassion, whether or not we can actually erase memories from our mind, and what we can do when our eating disorder changes. Audience questions: 1. Can you please talk about opening up to your therapist when you have a nervous laugh, dark humor and even darker trauma? I've only just started diving into my trauma in therapy but I don't know how to properly articulate how everything is affecting me. I just laugh and make jokes because... 00:37 2. I've sought out two "Trauma based therapists" who have both told me they aren't equipped to handle my level of trauma. For reference, SA from ages 8-16ish with + preg & subsequent loss as a young teen, and Dissociation during that time. No DPDR, DID, etc. So what do you do when... 09:29 3. Why is it so hard for me to change my mind? I feel once I agree to do something for/with with someone I don't feel like I can change my mind, I feel like sometimes this is due to not wanting to disappoint others.... 16:29 4. How can I show my body compassion…? I was approved to go to PHP at Center for Discovery in Southern CA. While I am grateful beyond belief that Medi/Medi is covering it, I have SO MANY mixed emotions…I've said before that I was born with Spina Bifida. From day 1 my body has not fully functioned, but I'm at the point where I'm probably on no less than 15 medications... 21:56 5. What are the chances I could [completely] erase some traumatic episodes from my memory? I do EMDR and it seems like we are searching for something with my therapist but at times I just feel like there isn't anything there and I don't have any specific memories of those traumatic events. I do remember facts of consistent systematic physical and emotional abuse, but not too many specific episodes that we could process in our sessions. My therapist also suspects... 26:19 6. How do I stop overeating sweets?! I was anorexic for a couple years and have physically “recovered” but now it seems that my eating disorder has gone in the opposite direction. I have meals, although sometimes minimal ones, and find that I eat / overeat foods that I'm ashamed of (usually sweets or junk food) when I'm alone and/or at night... 34:38 PUBLISHED BOOKS Traumatized https://geni.us/Bfak0j Are u ok? https://geni.us/sva4iUY A great way to support my channel is to check out our sponsors by using these links: Amazon: https://geni.us/4J8wb Instacart: https://instacart.oloiyb.net/y2j2GB ONLINE THERAPY While I do not currently offer online therapy, BetterHelp can connect you with a licensed, online therapist: https://betterhelp.com/kati (enjoy 10% off your first month) SOCIAL X: https://twitter.com/KatiMorton TikTok: https://www.tiktok.com/@katimorton Facebook: https://www.facebook.com/katimorton1/ Instagram: https://www.instagram.com/katimorton Pinterest: https://www.pinterest.com/katimorton1/ Support on Patreon: https://www.katimorton.com/kati-morton-patreon/ PARTNERSHIPS Linnea Toney linnea@underscoretalent.com --- Send in a voice message: https://podcasters.spotify.com/pod/show/askkatianything/message Support this podcast: https://podcasters.spotify.com/pod/show/askkatianything/support

Hear Joni speak about an exciting new wheelchair called the Cub Chair that Joni and Friends is now offering to children living with disabilities. If you'd like to find out more about it or how you can gift this wheelchair to a child along with the Gospel, go to joniradio.org. -------- Thank you for listening! Your support of Joni and Friends helps make this show possible.   Joni and Friends envisions a world where every person with a disability finds hope, dignity, and their place in the body of Christ. Become part of the global movement today at www.joniandfriends.org.   Find more encouragement on Instagram, TikTok, Facebook, and YouTube.

Dan McCoy's journey embodies resilience and triumph. Despite being born with Spina Bifida and Hydrocephalus, he soared to victory with Team USA's Paralympic Sled Hockey Team in 2014, securing a cherished Gold Medal.    This triumph ignited his passion for fitness and nutrition, driving him to empower others, irrespective of their challenges, to embrace healthier lifestyles. As a certified personal trainer,     Dan dedicates himself to guiding individuals towards their fitness goals with compassion and understanding.Touched by this episode?  Donate to LYM Podcast:https://www.buymeacoffee.com/leaveyourmarkReach out to us on our website!https://www.leaveyourmarkvc.com/contactAll LYM online pages:www.Linktr.ee/VinniecVince Cortese, Author: My Story about Courage and FaithBad Days are Really Good Days in Disguisehttps://amzn.to/3TB6VBPJoin LYM Newsletter:http://bit.ly/JoinMEonLYMWatch on YouTubeSponsors of this episode:Affiliate Link in this episode:Support the Show.

Una Keightley, Spina Bifida Hydrocephalus Pediatric Advocacy Group

Can you help us brighten Bert's Big Adventure kiddo Abby's day? Abby was diagnosed with Spina Bifida and joined us on Bert's Big Adventure in 2011! She has spent over 150 days in the hospital since this time last year and could use some cheering up. Will you help us help Abby? Click here to send Abby a SmileGram: https://www.choa.org/visitors/contacting-a-patient/send-a-smilegram Full Name: ABBY GILMORE Hospital: SCOTTISH RITE Room Number: 184 Learn more about your ad choices. Visit megaphone.fm/adchoices

To have your question featured in a future video, please email: questions@drmdc.health

The latest scandal engulfing RTÉ and Minister for Media Catherine Martin may be more cock-up than conspiracy, but it is no less damaging for that. The fallout from the dispute over who knew what, when about retirement payments to outgoing executives has already resulted in the departure of RTÉ board chair Siún Ní Raghallaigh. Just how much damage the affair will do to the Minister remains to be seen. Minister for Health Stephen Donnelly has complained that €19 million of funding allocated to reduce waiting times for children in need of spinal surgery may not have been used as intended. Delays in the treatment of childhood Spina Bifida and scoliosis have been one of the worst features of our healthcare system, resulting in much pain and suffering. And we remember our colleague, former political correspondent and regular Inside Politics panelist Michael O'Regan, who died last week. Plus the panel pick their Irish Times pieces of the week: Finn McRedmond on the drinking habits of the youngAn expert weighs in on whether a snail could outpace the development of Dublin's Metro And Miriam Lord 's dissection of a frustrating Dáil squabble Hosted on Acast. See acast.com/privacy for more information.

On this episode, we talked about: Intentional movement plays a crucial role in baby brain development Parents can influence their baby's brain development through activities such as tummy time Nutrition is essential for optimal brain development Keeping babies' hands and feet uncovered allows for sensory input and promotes healthy brain development. Tips for baby's brain development even before birth by engaging in movement The importance of faith and intention in protecting and guiding children   "We have so much to do with their brain development in the environment that we give them, in the food that we give them."   "Our movement is huge, and the vestibular system actually starts developing in utero. So the more that we move, the more we increase blood flow to not only our brains but our babies' brains."    "If we can have kids who are truly present to their parents, they're going to have less trauma."   About Dr. Stefanie: Hello! I'm Dr. Stefanie, a dedicated Pediatric Chiropractor driving Building Brilliant Brains. Meet myfamily-supportive husband Nick, and our kids: Alex (5), Phoenix (3), and baby Aria (8 months). With 15years in Pediatric Chiropractic care, mypassion stems from a fascination with baby brain development.Growing up with a brother born with Spina Bifida ignited my commitment to targeted brain and physicalexercises. Inspired by "How to Teach Your Baby to Be Physically Superb," I integrated the DomanMethod into my practice. My own kids flourished, motivating me to share these transformative activitieswith fellow parents.Website / Social Media Handles: Www.buildingbrilliantbrains.us     PS. Reviews are like a virtual hug and you know I  LOVE hugs! It would mean the world to me if you could please write me an honest review so more women can find this show

Sally Jean Mart struggled with infertility for years and finally resorted to adoption. But not just a regular adoption, she took babies and children with disabilities. 17 of them! From blindness to Cerebral Palsy, limb deformities, and Autism.....Down Syndrome and ADHD, and Spina Bifida. And that doesn't even scrape the surface of the emotional and psychological attachment issues that often come with adoption and previous abuse. Katie Mart, who was adopted at birth and is wheelchair bound, talks lovingly of her mother, who dedicated her life to kids who needed her 24 hour attention physically and mentally. You're about to meet ONE GRITTY MAMA!

24-year-old Lauren Bell, from our Homewood, Alabama community, shares her journey of living with caudal regression, a rare form of spina bifida, and how God gave her the freedom she so desperately wanted to walk in peace. Lauren will sweetly remind you that we are each made uniquely in the image of God, and we were each created to bring Him glory.   IN THIS EPISODE YOU WILL LEARN: God calls you to a life of freedom - one where you rest soundly in His plan for your life Every part of your body (even the parts you aren't so thrilled with) was knitted together by God. God wants to meet you in the middle of your frustrations and speak truth to you.   Legacy School of Discipleship  Song "Goodness of God" Book The Final Quest Give to StoryTellers Live Join us at the 2024 Stories of HOPE Luncheon Become a Patreon Insider  

Do you have times when things are chaotic, and you wonder if God is even there? Looking back on her earlier parenting, Carrie discusses three things she wished she knew and fully understood as a mom to a medically fragile child: giving herself grace as she prioritized different things in life, releasing self-criticism, and living fully in the midst of life's chaos with the overarching theme of seeing God's presence in every circumstance and difficulty. Don't miss this episode.Ep.153; January 9, 2024Key Moments:[0:40] Somethings you have to experience to learn them[3:50] Balance in life is a myth[7:10] Waiting for life to be calm [9:30] Look for Him in chaosResources:Scriptures Mentioned: Job 23:8-10; Psalm 91:1-2The Bible Recap by Tara Leigh-CobbleJulian ConsultingEpisode 147: How Creativity Keeps Us Grounded & PresentIf you enjoyed the show:Have you purchased our new book, The Other Side of Special? Subscribe to our newsletter on the Take Heart WebsiteGet our free resource on finding Gratitude, Peace, and HopeReview and like us on Apple Podcasts Share us with others from wherever you listen to podcastsFollow us on Instagram @takeheartspecialmomsFind Amy at www.amyjbrown.com/  or on Instagram @amyjbrown_writerFind Carrie at www.carriemholt.com or on Instagram @carriemholtFind Sara at www.saraclime.com or on Instagram @saraclimeSupport the show

Episode Notes For E345, Andrew decided to do another Episode of “What's Your Condition?” where we explore the history, mythology and day to day experiences of people with Spina Bifida.  We learn that it has been around thousands of years, learn what you find when you Google it, learn about the most common myths, we learn how sexual function is understood in people with SB + so much more!  Enjoy!  Episode Sponsors Clone-A-Willy or Clone-A-Pussy all your own and get 20% off sitewide by using coupon code DARKPOD at Checkout. www.cloneawillycom.  Get 15% off your next purchase of sex toys, books and DVDs by using Coupon code AFTERDARK at checkout when you shop at trans owned and operated sex shop Come As You Are www.comeasyouare.com  Leave a 5 star review with Apple, Spotify or wherever you podcast! This podcast is powered by Pinecast.