Podcasts about Spina bifida

Episode Summary: If you have ever been in a place where you just feel like you've hit rock bottom, I’m glad you’re here. Last week we talked to Julie Seals who was born with Spina Bifida, had her leg amputated, lost her father, became addicted to drugs, lost custody of her son, and ended up in Federal Prison for trafficking illegal drugs. But God was not done with Julie! This episode is part 2 of Julie’s story, and I promise you will be encouraged that God can turn your biggest messes into something beautiful! Quotables from the episode: I was sitting in prison sitting on the metal bunk bed and crying and I forgot that the night before I crossed the border I had cried out to God and said, "I'm done. I need you, come into my life and change everything." And all I was looking at were my current circumstances. And in comes this group of women doing prison ministry. And one of them looked at me crying on my bunk and she marched over and sat down on my bunk. And she said, "Did you know that Jesus loves you very much. And I said, "Not me!" And I'm crying. And she kept insisting that no matter what I did, no matter what had happened, that Jesus Christ loved me and that if I would repent of my sin and turn towards him and ask him to be my Lord and Savior, he would make me a brand new person. I felt hope rise in my heart as this woman was speaking. And that evening, as all the other inmates were off eating dinner, I stayed behind at my prison bunk and I got down on my knees on that cold hard cement prison floor and I was weeping and I asked Jesus Christ to become my lord and my savior and forgive me or everything I had done wrong, and I felt freedom. I literally, I felt chains, invisible chains break off my chest and tears of repentance turned into tears of freedom and joy. I thought I was going to do life in prison when I got up from that prayer but all of a sudden, I had this realization that I was a free woman on the inside and I had joy real joy for the first time in my life. All of a sudden, I had the Holy Spirit living in me and the joy of the Lord and the Holy Spirit was now going to take me through the challenging journey of dealing with my past and realizing oops, I made a whole bunch of mistakes that got me here. So now we move forward in strength and in power and in victory with hope. I read the Word every day, and I spoke the Word out loud every day over my life and circumstances. And as I did, my faith in God’s Word became unshakeable. The One who rescued me from addiction and darkness saw my great grief. And He loved me so much that when I was cut off from society, living in a razor-wire-enclosed cage, He gave me what can only be described as a miraculous message. Other inmates began to notice that one-legged lady who passionately loved Jesus was working hard to keep her heart pure. Those inmates came to me and started asking me about this Jesus that I loved so much. They were noticing that I was a new person, and even in federal prison, facing a life sentence, I had crazy, ridiculous joy. I smiled constantly. I laughed often. The joy on the inside of me was so infectious that everyone around me wanted some of it. I was hurting. My mom was gone. She was dead, I was like just desperate, broken, I didn't think anybody, there was nobody for me there. And as I looked at that computer screen, I didn't see a patent because on that computer screen were written different scriptures from the Psalms and encouraging things that talk about how God heals the brokenhearted. He binds up their wounds. He sees us. He saves our tears. I started screaming for the other ladies, the other inmates. I'm like, God's talking to me on my computer! I read this love letter from God, who saw me in this 40 acre cage prison and came to me in my moment of desperation to let me know he saw me. He loved me and he was right there beside me in my most broken place. It was God himself speaking to me, one little one-legged, ex -addict federal inmate inside of a federal prison locked away from society. That God who rescued me, gave me joy and saved my soul came to me in that dark moment to tell me and remind me that he loved me and that there was still hope for my future. At a time where you felt lost and unseen, you no longer had your mother or your father or anyone else around you. Right. God made sure that you knew that he saw you and he was with you. Friends, if that is not an encouragement to you, Julie has been sharing how the seemingly impossible happened time after time after time again, but her heart was surrendered. One of the things that drew me to you and your story is your perspective. You wrote in the book, life is so good. Now friends, what I want you to know is this was her perspective sitting in federal prison. “Life is so good. I had a great job. I had a new leg. I was clean and sober and healthy. For the first time in 17 years, it mattered not to me that I was on the wrong side of the razor wire fence. I was sober, happy, and even in prison, I was free." That's an incredible statement, that you could find freedom within the razor walls of prison. Forgiveness is like a chain around our neck or unforgiveness is and if we are able to let go and especially towards our self. You know, I had so much shame, I had so much guilt and at times it was tormenting and in those moments what I learned is that I needed to stop looking inward at myself and at what I had done. I had to stop looking in the rearview mirror at my past and simply look up to the Savior who forgave it all and washed me clean. I made up my mind I was going to replace my old stinking thinking with God's thinking and I was in my Bible probably up to five hours a day. It was like Jesus boot camp…I would get index cards and I would write the scripture on an index card and I was on the bottom metal bunk of a two, bunk, metal bunk bed. And I taped like wallpaper all the way around my bunk bed on the inner little ledge and every day at lunch I would not eat lunch I would come to my room sit on the bed and I would start at one place and I would go through every single card and read every single scripture out loud speaking it out loud over my life. I've been out of prison for 23 years and I've been married to my prison chaplain husband for 19 years. We are prison ministers, we're ordained ministers and 11 years ago my husband drove me to the Jacksonville, Florida International Airport and my son at the age of 20 years old got off a plane and came running to his mama arms wide, open, and full forgiveness. Not only is he saved, not only is he a Christian, but his moment of giving his life to Jesus happened exactly the way I prayed. When he told me about it, he said, "You're going to think this is weird, mom, but..." And it was exactly what I prayed. This is the favorite part of my story. And the part of my story that gives me probably the most joy. God delivered me from the pit of prison so that I could spend the rest of my life going back in. When I was in prison, I told God, I made him a promise, and I said, "If you let me out of here, I will spend the rest of my life going back in," and telling inmates who are hopeless, who think that they have messed up beyond repair, who think there is no way out of their situation that Jesus died to set the captive free and make them a new creation and that there is hope in him. And God let me do that. Scripture References: Psalm 18:16-19 “He reached down from heaven and rescued me; he drew me out of deep waters…He led me to a place of safety; he rescued me because he delights in me.” Isaiah 61:1 “The Spirit of the Sovereign Lord is upon me, for the LORD has anointed me to bring good news to the poor. He has sent me to comfort the brokenhearted and to proclaim that captives will be released and prisoners will be freed.” Recommended Resources: All My Hope: A Prisoner No More by Julie Seals Sacred Scars: Resting in God’s Promise That Your Past Is Not Wasted by Dr. Michelle Bengtson The Hem of His Garment: Reaching Out To God When Pain Overwhelms by Dr. Michelle Bengtson, winner AWSA 2024 Golden Scroll Christian Living Book of the Year and the 2024 Christian Literary Awards Reader’s Choice Award in the Christian Living and Non-Fiction categories YouVersion 5-Day Devotional Reaching Out To God When Pain Overwhelms Today is Going to be a Good Day: 90 Promises from God to Start Your Day Off Right by Dr. Michelle Bengtson, AWSA Member of the Year, winner of the AWSA 2023 Inspirational Gift Book of the Year Award, the 2024 Christian Literary Awards Reader’s Choice Award in the Devotional category, the 2023 Christian Literary Awards Reader’s Choice Award in four categories, and the Christian Literary Awards Henri Award for Devotionals YouVersion Devotional, Today is Going to be a Good Day version 1 YouVersion Devotional, Today is Going to be a Good Day version 2 Revive & Thrive Women’s Online Conference Revive & Thrive Summit 2 Trusting God through Cancer Summit 1 Trusting God through Cancer Summit 2 Breaking Anxiety’s Grip: How to Reclaim the Peace God Promises by Dr. Michelle Bengtson, winner of the AWSA 2020 Best Christian Living Book First Place, the first place winner for the Best Christian Living Book, the 2020 Carolina Christian Writer’s Conference Contest winner for nonfiction, and winner of the 2021 Christian Literary Award’s Reader’s Choice Award in all four categories for which it was nominated (Non-Fiction Victorious Living, Christian Living Day By Day, Inspirational Breaking Free and Testimonial Justified by Grace categories.) YouVersion Bible Reading Plan for Breaking Anxiety’s Grip Breaking Anxiety’s Grip Free Study Guide Free PDF Resource: How to Fight Fearful/Anxious Thoughts and Win Hope Prevails: Insights from a Doctor’s Personal Journey Through Depression by Dr. Michelle Bengtson, winner of the Christian Literary Award Henri and Reader’s Choice Award Hope Prevails Bible Study by Dr. Michelle Bengtson, winner of the Christian Literary Award Reader’s Choice Award Free Webinar: Help for When You’re Feeling Blue Social Media Links for Host: Connect with Julie Seals: Website / Facebook / Instagram / YouTube For more hope, stay connected with Dr. Bengtson at: Order Book Sacred Scars / Order Book The Hem of His Garment / Order Book Today is Going to be a Good Day / Order Book Breaking Anxiety’s Grip / Order Book Hope Prevails / Website / Blog / Facebook / Twitter (@DrMBengtson) / LinkedIn / Instagram / Pinterest / YouTube / Podcast on Apple Guest: Julie Seals is an ordained minister and prison evangelist. Having left her life as a drug addict and dealer behind, Julie Seals is now a Hope Dealer as she inspires and challenges people from all walks of life to encounter, know, and live for Jesus. She co-founded Her Hope Recovery Ministry in 2022. Julie is married to prison chaplain, Mike Seals. Hosted By: Dr. Michelle Bengtson Audio Technical Support: Bryce Bengtson Discover more Christian podcasts at lifeaudio.com and inquire about advertising opportunities at lifeaudio.com/contact-us.

Úna Keightley, Co-lead, Spina Bifida and Hydrocephalus Paediatric Advocacy Group outlines her group's demands ahead of today's confirmation of a statutory inquiry into the treatment of children with spina bifida and scoliosis.

Cúrsaí polaitíochta an lae - fiosrúchán le bunú faoi chúram leighis pháistí le scólóis & Spina Bifida..

UAB has one of the few clinics in North America that coordinates care for adults with spina bifida. Jeffrey Blount, M.D., Daniel Harmon, M.D., and Betsy Hopson, MSHA, explain how the adult clinic builds on a continuum of care that includes maternal-fetal medicine and pediatric services at Children's of Alabama. Learn how they've used evidence-based programming and a multidisciplinary approach to improve care for this growing population.

The Government has confirmed it will launch a statutory inquiry into the care of children with scoliosis and spina bifida at Children's Health Ireland.The announcement follows months of emotional campaigning by parents, including the family of Harvey Sherratt, who tragically passed away in July.Families have long called for answers about the treatment, and today's decision marks a significant step toward accountability.Andrea is joined by Advocate with Access for All Ireland, Bernard Mulvany, Core member of the Spina Bifida Hydrocephalus Paediatric Advocacy Group, Orlaith Maher Lalor and listeners to discuss…

In this week's episode, Amanda and Cody Allen join me for an honest, eye opening conversation about life with spina bifida, the condition their young daughter lives with. They share what day to day care looks like, the extra steps they take to support her health, and the bright, surprising joys that come with raising a child whose needs are a little different.We also talk about their baking company, which serves up sweet treats while raising awareness for spina bifida in their community. Amanda and Cody are the kind of parents who turn challenges into fuel, doing everything they can to help their daughter live her fullest, happiest life.Chloe's Sweet Treats & More https://www.facebook.com/profile.php?id=100086255055995 Sponsor https://jacobsonrealestatecompany.com Brews & Cruise Podcast https://brewsandcruisepodcast.com

 Disability Employment MonthDante Q. Allen was appointed by Governor Newsom to his new role of Deputy Director of the California Department of Rehabilitation Services on April 18, 2025 and sworn in by Director Kim Rutledge on May 5, 2025 Congratulations Danté!The U.S. Senate approved the nomination of Danté Quintin Allen to lead the U.S. Department of Education's Rehabilitative Services Administration (RSA). Until his confirmation, Allen had been serving as executive director for CalABLE, California's ABLE Act savings and investment program for people with disabilities. Under his five-year leadership, CalABLE was the fastest growing ABLE Act program in the country. Prior to leading CalABLE, Allen was a communications leader for organizations including Kaiser Permanente and the California Department of Public Health's Office of Health Equity. A fulltime wheelchair user, Allen is a well-known advocate for disability rights and equity. Upon his confirmation, Secretary of Education Miguel Cardona remarked, “I look forward to working together with Mr. Allen to provide individuals with disabilities and all students with equitable access to the education and training they need to find good-paying jobs; achieve economic security; and lead healthy, independent lives.”© 2025 Building Abundant Success!!© 2025 All Rights ReservedJoin Me on ~ iHeart Media @ https://tinyurl.com/iHeartBASJoin me on Spotify: https://tinyurl.com/yxuy23baAmazon Music ~ https://tinyurl.com/AmzBASAudacy:  https://tinyurl.com/BASAud

Send us a text“Every experience, “good” or “bad”, has a lesson in it. We need to continually ask ourselves, “What can I learn from this?” “ ~ Ed DohertyREMARKABLE OFFER 1: Save 30% to 80% on EVERYTHING you order at MyPillow.com with Free Promo Code, “REMARKABLE“. Yes, that's right! Use the best My Pillow promo code out there to save a TON of money on all 200+ quality, comfortable, cozy home goods at MyPillow.com/Remarkable, or by calling 1-800-644-6612. From sheets, to blankets, to pillows, to mattress toppers, be ready to sleep better and live more comfortably than you ever have before!REMARKABLE OFFER 2: Your Exclusive Offer: Save Big on Your Console Vault In-Vehicle Safe. With our exclusive promo code, “REMARKABLE“, you will Save 10% or more on all Console Vault anti-theft vehicle safes you order. And sometimes, you'll receive Free Shipping too!  Just make sure to use the free Console Vault discount code, “REMARKABLE” at checkout.Key Points (Timestamps & Titles):00:03:01 – 00:03:04: The Core Philosophy: “Nothing can take the place of persistence.”00:06:57 – 00:07:40: Lesson 1: Accountability and the Paper Route.00:11:50 – 00:13:34: Lesson 2: Overcoming the Crushing Disappointment of Being Cut from the Baseball Team.00:14:32 – 00:15:20: Persistence in Athletics: From the “Fifth Line” to Hockey All-Star.00:55:32 – 00:56:00: The Ultimate Test: Finding Steel in the Struggle of Raising a Son with Spina Bifida.01:06:19 – 01:06:37: Late-Life Achievements: Running a Marathon at 70 and Writing a Book at 72.Support the showTHE NOT-SO-FINE-PRINT DISCLAIMER: While we are very thankful for all of our guests, please understand that we do not necessarily share or endorse the same beliefs, worldviews, or positions that they may hold. We respectfully agree to disagree in some areas, and thank God for the blessing and privilege of free will. For more Remarkable Episodes, Inspiration, and Motivation, please visit https://davidpasqualone.com/remarkable-people-podcast/ now!

October highlights many disabilities as awareness days/month in the US, and this month's podcast seeks to create awareness on one family's experience with Spina Bifida. Kevin Deutsch, an On Behalf of All (OBOA) Initiative pilot parish liaison, shares how he and his wife Nicole met a test of faith early in their pregnancy when their daughter Kora was confirmed to have Spina Bifida. Turning to God in their challenging moments, seeking pastoral guidance from their priest, and enjoying their daughter as a blessing in their community, has helped them grow in their trust of God, and in understanding of what it means to be fully human.

Josh Turek knows how to win. A U.S. Senate candidate, current Iowa State Legislator, and two-time Paralympic gold medalist for Team USA, Josh joins Andrew Vontz & Jonathan Kaplan on United States of Sweat presented by Choose the Hard Way. This is the show where politicians and policymakers share stories about fitness, health and the sports they love playing.  Josh has faced adversity his entire life. Born with Spina Bifida after his dad was exposed to Agent Orange in Vietnam, he overcame 21 surgeries by the age of 12. Later he was cut from the Team USA wheelchair basketball squad six times.  Relentless in his training and as a top professional wheelchair basketball player, Josh kept coming back.  He finally made the team and went on to represent the U.S. at four Para-Olympics where he won two gold medals. After his basketball career ended with a gold medal in Tokyo in 2021, Josh campaigned to represent his hometown of Council Bluffs in the state legislature.  Competing in a district that Donald Trump won twice, Josh pushed his chair up hills and crawled up stairs to talk to Iowans of all political stripes, eventually winning his first race by six votes.  He was re-elected by a five-point margin at the same time Trump was winning the seat by eight points, not only because of his work ethic but because he's developed a reputation as a common-sense, bipartisan legislator. --------- Jonathan Kaplan is the founder of WRITE CADENCE STRATEGIES, helping individuals and organizations navigate Washington, shape policy and manage reputational risk. He also writes RIDING WITH, a newsletter and podcast exploring the intersection of pro cycling, media, business and politics. Find that at ridingwithkaplan.substack.com. --------- The number one way to support Choose the Hard Way is to become a paid subscriber to  alwaysthehardway.substack.com. That's where Andrew Vontz shares his reflections on these interviews and writes about engaged mindfulness, bikes and life.  --------- For senior execs, pro athletes, and political leaders, podcasts aren't optional anymore. They're mission-critical. At One Real Voice, Andrew Vontz coaches leaders 1:1 to help them thrive as storytellers and stand out in the long-form podcast conversations where real influence is built.  When you're ready to be great, DM him @hardwaypod or email hello@onerealvoice.com. --------- Wherever you're listening to this podcast, please subscribe and hit 5 stars. ------------- Crypto curious? With over $1 trillion in transactions to date, https://www.blockchain.com/ is your trusted partner on your crypto journey. Create your free wallet and get up to 10% in annual rewards by putting your crypto to work. Go to Blockchain.com to get started today, no experience required. ------------- Choose the Hard Way Newsletter: https://alwaysthehardway.substack.com/ ------------- One Real Voice podcast coaching & strategy: https://www.onerealvoice.com/

Gillian Sherratt, mother of the late Harvey Morrison, discusses the details of an upcoming inquiry into the care of spina bifida and scoliosis patients at Children's Health Ireland.

Naoise Ó Muiri, Fine Gael TD for Dublin Bay North; Ciaran Ahern, Labour TD for Dublin South West; Pa Daly, Sinn Féin TD for Kerry; Christina Finn, Political Editor for The Journal

„Die Diagnose Spina bifida schlug ein wie eine Bombe“, erinnert sich Stefan Spiecker. Während einer Alpenüberquerung erfuhr er vom offenen Rücken seines Sohnes – der Schock saß tief. Doch als Trainer für Positive Psychologie wusste er, wie wichtig Akzeptanz und Verbundenheit in Krisen sind und wie sehr sie zu ihrer Überwindung beitragen können. Nicht im Negativen zu verharren, sondern trotz aller Herausforderungen mit Zuversicht nach vorne zu blicken und dabei das Alltagsglück nicht zu übersehen – das ist ein weiterer Baustein auf seinem Weg als glücklicher Vater. In dieser Folge erzählt Stefan, wie er trotz Corona-Besuchsverbot einen unvergesslichen Geburtstagsmoment in der Klinik schuf oder wie Rugby mit Orthesen seinem Sohn Selbstvertrauen schenkt. Außerdem spricht Stefan darüber, warum auch unangenehme Gefühle ihren Platz haben und für ein erfülltes Leben sogar wichtig sind. Eine Folge für alle, die praktische Impulse suchen, um mehr Leichtigkeit und Glück in ihren Pflegealltag zu bringen, ohne die Realität schönzureden.

Oftentimes one interview leads to another, to another. As is the case with Alyssa. The CEO at the YMCA, Jeff Scott, oriented me in the direction of this sweet, smart, savvy mom and director of the incredible local resource, Larkin's Place. Listen as the Chicago suburb transplant talks about growing up in a home with a sister who has a disability, picking a career path in special education, becoming a medical mom, directing a local resource center for children with special needs, fetal surgery, making your  expectations clear at the hospital, Spina Bifida, clubfeet and her two beloved children. I continue to be absolutely amazed by the strength parents have when it comes to their kiddos. Alyssa is a powerhouse of love and advocacy for Millie and the many others in need of resources and advocates.Thank you so much for listening! However your podcast host of choice allows, please positively: rate, review, comment and give all the stars! Don't forget to follow, subscribe, share and ring that notification bell so you know when the next episode drops! Also, search and follow hyperlocalscu on all social media. If I forgot anything or you need me, visit my website at HyperLocalsCU.com. Byee.

Sinn Féin leader Mary Lou McDonald has called on Tánaiste Simon Harris to meet with the parents of nine-year-old Harvey Morrison Sherratt from Clondalkin in Dublin, who died last month following many delays in accessing urgent scoliosis surgery.What can be done to resolve the issue of scoliosis treatment in this country?Joining Kieran to discuss is David Cullinane, Sinn Féin's Health Spokesperson and Amanda Coughlan, Co-Lead of the Spina Bifida and Hydrocephalus Pediatric Advocacy Group.

Today on the show, Lisa was joined by Eric Tobin. If you are unfamiliar with Eric Tobin, he is the head of A&R of Hopeless Records. We chatted about how music provided the pathway to conversation, how Hopeless Records has a history of walking the walk with mental health awareness, how Eric copes with living with Spina Bifida and so much more. -----------------------------------------------------------------Find all things Eric Tobin:Hopeless Records:https://www.hopelessrecords.com/Hopeless Instagram: https://www.instagram.com/hopelessrecordsSummer School Tour:https://www.summerschooltour.com/Spina Bifida Association:https://sbfv.org.au/?gad_source=1&gad_campaignid=22308190203&gbraid=0AAAAAqUrXvSqMLEcoAMaCCkfjPkxql8fS&gclid=Cj0KCQjwtMHEBhC-ARIsABua5iTFobn73Ju3jUDHNktLBE0XFNcMV5oVoyXErQYV_CpN8JBE14NlL-8aApYkEALw_wcBWalk N Roll for Spina Bifida: https://www.eventcreate.com/e/walknrollforsb------------------------------------------------------Find Stereo Therapy:Instagram:https://www.instagram.com/stereo.therapyWebsite:https://www.stereotherapypod.com-----------------------------------------------------------This show is part of the Never A Phase Network! follow the network hereinstagram:https://www.instagram.com/neveraphasenetworkwebsite: https://www.neveraphasenetwork.com----------------------------------------------Theme Song by Walwin!Insta: https://www.instagram.com/walwin.mp3

Interview with Nienke Dosa, MD, and Julia Duff

Aujourd'hui je reçois Marion dans mon espace. Marion est sophrologue, doula et également maman de trois enfants, dont Timothé, son second enfant qui aura "6 mois in utéro dans l'éternel" (selon ses mots), puisqu'il est décédé des suites d'une Interruption Médicale de Grossesse (I.M.G).Marion m'a contactée il y a quelques mois pour me conter son histoire et celle de Timothé avec des mots qui m'ont littéralement happée. C'est un réel cri du cœur que j'ai ressenti et qui m'a touchée dans son témoignage. En effet, Marion vient avec une pureté extrêmement touchante mettre les mots sur chacune de ses naissances de maman. Elle témoigne en profondeur et avec une émotion encore vive des ressentis qu'elle a connus à chaque étape du deuil périnatal qui a touché son foyer.Marion est venue à mon micro avec cette démarche prédéfinie de lever le voile sur l'incompréhension et la solitude qu'elle a connues après avoir fait le choix de l'I.M.G. pour Timothé qui souffrait d'une malformation connue sous le nom de Spina Bifida.Dans le témoignage de Marion, vous serez transporté par les synchronicités non sans hasard entre les dates, le deuil de sa grand-mère concomitant à la découverte de sa seconde grossesse... Des résonances temporelles et intemporelles que Marion décrit avec beaucoup de hauteur et d'ancrage à la fois...Je tiens à remercier encore une fois Marion d'avoir choisi MAM'ELLES LE PODCAST pour déposer ses mots/maux sur cette traversée qui touche tant de femmes, de couples... Je vous souhaite une belle écoute les MaMaS !Pour retrouver Marion Alix sur Instagram : @marionallix_sophrodoulaPour retrouver MAM'ELLES sur Instagram : @mamelles_lepodcastSur YOUTUBE et Facebook :  MAM'ELLESMon site internet : mamelles.frMAM'ELLES est un podcast réalisé par Marion TERTEREAU. Vous pouvez retrouver tous les épisodes sur votre plateforme d'écoute préférée ainsi que sur YouTube. On se retrouve chaque vendredi !Hébergé par Ausha. Visitez ausha.co/politique-de-confidentialite pour plus d'informations.

Today's guest is Julie Seals. She is a speaker and a prison minister. Her memoir, All My Hope: A Prisoner No More, tells of her dysfunctional childhood, her lifelong health challenges, getting hooked on meth as a teen, hanging out with the Mafia, and serving time in prison for carrying meth across the border. God followed her every step of the way, wooing her to choose Him. After she accepted Christ in prison, Julie dove into His Word, learning everything she could about her identity and life in Him.Julie truly is a HOPE DEALER who is on a mission to offer the hope found in the gospel to all who don't know Jesus.Notable quotes by Julie Seals:·       “I felt the Holy Sprit descend into my living room while I was there on my knees at my lowest point.”·       “We serve a big God who will take us up on our big words of surrender.”·       “Federal prison was one of the best things to ever happen to me.”Bible verses:·       Revelation 12:11·       Matthew 11:12 (Julie's fight verse)Connect with Julie: ·       on her website at julieseals.com·       on Facebook at facebook.com/profile.php?id=100093057408356·       on Instagram at instagram.com/julie_sealsSend me a COMMENT or QUESTION!THANK YOU FOR LISTENING! Have a comment about this episode? Click HERE and complete the form.

Happy ADA 35Dante Q. Allen was appointed by Governor Newsom to his new role of Deputy Director of the California Department of Rehabilitation Services on April 18, 2025 and sworn in by Director Kim Rutledge on May 5, 2025 Congratulations Danté!The U.S. Senate approved the nomination of Danté Quintin Allen to lead the U.S. Department of Education's Rehabilitative Services Administration (RSA). Until his confirmation, Allen had been serving as executive director for CalABLE, California's ABLE Act savings and investment program for people with disabilities. Under his five-year leadership, CalABLE was the fastest growing ABLE Act program in the country. Prior to leading CalABLE, Allen was a communications leader for organizations including Kaiser Permanente and the California Department of Public Health's Office of Health Equity. A fulltime wheelchair user, Allen is a well-known advocate for disability rights and equity. Upon his confirmation, Secretary of Education Miguel Cardona remarked, “I look forward to working together with Mr. Allen to provide individuals with disabilities and all students with equitable access to the education and training they need to find good-paying jobs; achieve economic security; and lead healthy, independent lives.”©2025 Building Abundant Success!!©2025 All Rights ReservedJoin Me on ~ iHeart Media @ https://tinyurl.com/iHeartBASJoin me on Spotify: https://tinyurl.com/yxuy23baAmazon Music ~ https://tinyurl.com/AmzBASAudacy:  https://tinyurl.com/BASAud

I know we say this with a lot of our podcast guests, but Adam Sheppard is truly remarkable. Born with Spina Bifida, Adam has never walked in his life and is an Australian record holder and recipient of the Australian Sports Medal. A couple of years ago after suffering ongoing leg issues, he made the courageous decision to have them removed and his zest for life is utterly contagious. Additionally, since we recorded this chat, he's now qualified for the Olympics!See omnystudio.com/listener for privacy information.

Our guest this week is Steve Harris of Lanesboro, MN a free-lance writer, widower, author and father of two sons with disabilities.  Part 1.Steve and his wife, Susan, have married for 17 years.  Steve and his first wife, Pam, were together for 30 years, before she passed away in 2012 due to a rare neurological disorder.  Steve and Pam had two boys: Matthew who was born in 1980 with Spina bifida and younger son, Andrew, who is 37 and who has Cerebral Palsy.  Both boys would eventually be diagnosed with PMD or Pelizaeus Merzbacher Disease, a rare neurological disease, where there is a lack of myelin covering the nerves.Very sadly, Matthew passed away in October 2020 four days short of his 40th birthday. Steve's career included being a pastor, a middle school teacher and for 20 years, director of communications at Twin Cities YMCA .  All along Steve has been a writer who morer recently has published two books: Dads Like Us: A Survival Guide For Fathers Raising Children With Disabilities (2024)Lanesboro, Minnesota (2018)We also learn about a wide range of supporting organizations the family has benefited from, including: Spina Bifida Association,      Boston Children's Hospital, University of MA Medical Center, Genetic Counseling Gillette Children's Hospital (St. Paul),     Wanna Meonie's School (Palo Alto) inclusive, and   MN Accessible sports.One of Steve's superpowers is his resilience through some of life's greatest challenges. This week's episode of the SFN Dad To Dad Podcast is Part 1.Show Links:Phone – (952) 836-7904Email – sharris1962@msn.comLinkedIn –  https://www.linkedin.com/in/steve-harris-44101315/Website – https://steveharrisauthor.com/Books –Dads Like Us: A Survival Guide For Fathers Raising Children With Disabilities  (2024) https://tinyurl.com/mrxact2yLanesboro, Minnesota (2018) https://tinyurl.com/2zfbv24sSpecial Fathers Network -SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 800+ SFN Mentor Fathers, who are raising kids with special needs, have said: "I wish there was something like this when we first received our child's diagnosis. I felt so isolated.  There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through."SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations.Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channel/UCzDFCvQimWNEb158ll6Q4cA/videosPlease support the SFN. Click here to donate: https://21stcenturydads.org/donate/Special Fathers Network: https://21stcenturydads.org/  SFN Mastermind Group - https://21stcenturydads.org/sfn-mastermind-group/

About Dustin Dustin Rawls is married to Mandy Smith Rawls and has two children, Dylan 11 and Madison 14 who was born with Spina Bifida. Dustin serves as the Men's Ministry director at his church and has a passion for discipleship. He works for the financial aid arm of the Tennessee Higher Education Commission and has never met an audience he didn't love. Whether it was bowling a perfect 300, becoming the first ever homecoming king at MTSU, or finishing his fourth degree, clearly Dustin has a need to prove something that nobody else cares about.   About the Episode In this engaging conversation, Becky Davidson and Dustin Rawls explore the emotional journey of parenting a child with special needs, the importance of community support, and the role of faith in our lives. The discussion highlights the significance of vulnerability, the need for open communication in relationships, and the joy found in caregiving. In this conversation, Dustin Rawls shares his journey of navigating the complexities of marriage and parenting a child with special needs. He discusses the transformative impact of faith on his relationships, the challenges faced in his marriage, and the importance of finding joy amidst difficulties. The dialogue emphasizes the significance of love, support, and faith in overcoming life's challenges. Related Links Common Man, Extrordinary Call Rising Above Dad podcast    

 Meet JeremySurvivor. Content Creator. WriterHe was born with Spina Bifida and his parents were told he would never walk let alone live. He is now in his 40's.He was 5 years old when his female abuser first started grooming, manipulating and then abusing him. This was to go on for over 4 years, until he became hospitalised and eventually home schooled.For more information, resources, or coaching — whether you are a survivor or a supporter, visit: handingtheshameback.orgWe are on all social media platforms:Facebook: https://www.facebook.com/HandingtheShameBackInstagram: https://www.instagram.com/handingtheshameback/X: https://x.com/HandinShameBackYouTube: https://www.youtube.com/@handingtheshamebackTikTok: https://www.tiktok.com/@handingshamebackLinkedIn: https://www.linkedin.com/company/handing-the-shame-back #HandingTheShameBack #HandSign4Kids #LetsSaveSomeKids

Try our FREE burnout quiz.Grab your burnout workbook HERE. If you would like us to work with your team book a 30 min chat HERE. The relationship between disability and personal identity is incredibly complex and navigating that can take a lot of work and self-analysis.For Skye Shannon, growing up with Spina Bifida had an obvious impact on her life, but it wasn't until she underwent an amputation in her adult years that she really felt the impact on her personal identity.In this conversation, Skye Shannon shares her profound journey living with Spina Bifida, detailing her experiences from childhood through adulthood. She discusses the challenges of growing up with a disability, the impact of social dynamics in school, and the numerous surgeries she underwent to manage her condition. Skye reflects on her identity, the emotional toll of her amputation, and the ongoing struggle with phantom pain. Her story is one of resilience, independence, and the complex relationship between disability and self-perception. In this episode she shares: - What it was like growing up with Spina Bifida- What is Spina Bifida- The impact of her disability on her personal identity- Her journey to find someone who would help her do the surgery she needed- Life after her amputation and the difficulties she encountered- Her experiences with phantom pain- Understanding the impact of amputation- Her fears and challenges in daily life now- Her advice for those facing similar challenges Key Quotes “I ended up with maggots in my toes.” “It had gotten to the stage where my hip had completely disintegrated.” More Information about Skye Follow her on Linkedin. You can get involved with the podcast online On facebook in our community: https://www.facebook.com/groups/challengesthatchangeusOr on Instagram: @challengesthatchangeusIf you want to contact the podcast, email us here: support@challengesthatchangeus.comOr check out our website: www.Challengesthatchangeus.com If you want to find out more about what Ali does, check out her business via the website:http://www.trialtitudeperformance.com.au Interested in DISC personality profiling or a Burnout workshop for your team, get in touch with Ali today. Hosted on Acast. See acast.com/privacy for more information.

On this week's inspiring episode of I AM HOME, our hosts Tyler and Hilary are joined by Chase Harris, a devoted father whose journey with his son, who has spina bifida, has shaped his perspective on parenting, confidence, and resilience. Chase opens up about the importance of instilling self-assurance in his children, ensuring that life's challenges never become barriers to their success. He shares his philosophy on fatherhood, emphasizing the power of affirmation and values over societal standards. Tune in for a conversation full of wisdom, hope, and determination. Resources: TikTok - https://www.tiktok.com/@chase_cashman IG - https://www.instagram.com/bubba_cashman13 Mavs Article - https://www.mavs.com/cash/ Mavs Article - https://www.mavs.com/cashinspiresfolks/ Colorado Article - https://gazette.com/sports/cu-buffs/young-buffs-super-fan-with-spina-bifida-meets-cu-star-travis-hunter-head-coach-deion/article_4127014c-a4a5-11ef-87b4-4f72cad25390.html Carly's blog - https://fearfullynwonderfullyblog.wordpress.com/ GMA Feature - https://www.facebook.com/watch/?v=1680927666072421

Our guest this week is Jim Littlefield-Dalmares of Louisville, KY who is Director of Market Development at BNI Middle Tennessee, author, podcast host, founder of Seeing Ability and perhaps most importantly, father of two including a child with Cerebral Palsy. Jim and his wife, LeAnn, have been married for 27 years and are the proud parents of two: Peter (21) and Sophia (25) who was born very prematurely, diagnosed early on with Spina Bifida and who has Cerberal Palsy.  Professionally, Jim is the Director of Market Development at BNI of Middle Tennessee.  He is also author of the book: Seeing Ability: Finding Your Path In Parenting A Child With Special Needs and host of the Seeing Ability Podcast.  More recently, Jim has also created the Seeing Ability Foundation.We'll hear Jim's life story and all about the Seeing Ability book, podcast and foudnation all on this episode of the SFN.Dad to Dad Podcast.Show Notes - Phone – (502) 528-0894Email – jimld858@aol.comLinkedIn –  https://www.linkedin.com/in/jimld/Website – https://seeingability.com/Book – Seeing Ability: Finding Your Path In Parenting A Child With Special Needs - https://tinyurl.com/2fpfw4vpPodcast - https://seeingability.com/podcast/Register for the 6th Annual SFN Dads Virthual Conference on May 10, 2025: https://us02web.zoom.us/meeting/register/TLkN_ViJTTqnaK-M8pHPNA After registering, you will receive a confirmation email containing information about joining the meeting.Special Fathers Network -SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 800+ SFN Mentor Fathers, who are raising kids with special needs, have said: "I wish there was something like this when we first received our child's diagnosis. I felt so isolated.  There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through."SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations.Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channel/UCzDFCvQimWNEb158ll6Q4cA/videosPlease support the SFN. Click here to donate: https://21stcenturydads.org/donate/Special Fathers Network: https://21stcenturydads.org/  

In today's episode, host Lori Boll speaks with Vanessa Vanek—a fiber and digital media artist, international educator, and proud disabled woman—on the SENIA Happy Hour Podcast.Vanessa shares how her lived experience with Spina Bifida has shaped both her art and her teaching. From Kansas to Shanghai, her story is a powerful reminder that beauty doesn't live in society's view of perfection—it lives in authenticity, vulnerability, and bold creative expression.We talk about:How art can challenge ideas of beauty and normalcyWhat it's like teaching across cultures as a disabled educatorWhy inclusive classrooms need representation in every brushstrokePractical tips for teachers who want to bring disability inclusion into the art roomYou don't want to miss this one. Tune in and be inspired.Connect:Vanessa's emailVanessa's PortfolioLinkedInResources From Today's Show:UNICEF Video

April 2025 Show Notes Drs. Jill Larson and Vineeta Swaroop from Northwestern University and Lurie Children's Hospital in Chicago join the podcast for a journal club-style discussion of their group's studies concerned with care for children with Spina Bifida and Neuromuscular Conditions. The lightening round articles touch on determination of femoral anteversion in the operating room, regional anesthesia for hip surgeries, and the value of tapping for pedicle screws during spine deformity surgery.   Your hosts are Craig Louer (Vanderbilt University), Carter Clement (Manning Family Children's Hospital in New Orleans), Tyler McDonald (University of South Alabama), and Will Morris (Scottish Rite for Children).   Main Event – Spina Bifida Journal Club   Dias LS, Swaroop VT, de Angeli LRA, Larson JE, Rojas AM, Karakostas T. Myelomeningocele: a new functional classification. J Child Orthop. 2021;15(1):1-5. doi:10.1302/1863-2548.15.200248   May JM, DeMaio EL, Larson JE. Long-term Clinical and Radiographic Results of Posteromedial Lateral Release for Neuromuscular Clubfoot Deformity. J Pediatr Orthop. 2025;45(2):87-92. doi:10.1097/BPO.0000000000002848   Poggiali P, May JM, Larson JE, Dias LS. Talectomy for the Treatment of Rigid Nonidiopathic Clubfoot Deformity: Long-term Follow-up. Journal of the Pediatric Orthopaedic Society of North America, Volume 9, 100112   Arkin C, Ihnow S, Dias L, Swaroop VT. Midterm Results of the Ponseti Method for Treatment of Clubfoot in Patients With Spina Bifida. J Pediatr Orthop. 2018;38(10):e588-e592. doi:10.1097/BPO.0000000000001248   Thompson RM, Foley J, Dias L, Swaroop VT. Hip Status and Long-term Functional Outcomes in Spina Bifida. J Pediatr Orthop. 2019;39(3):e168-e172. doi:10.1097/BPO.0000000000001266     Lightning Round   Yao B, Li D, Cui J, et al. Establishment of an Accurate and Precise Alternative Intraoperative Technique for Determination of Femoral Version. J Pediatr Orthop. Published online March 21, 2025. doi:10.1097/BPO.0000000000002920'   Reysner M, Reysner T, Janusz P, et al. Pericapsular Nerve Group (PENG) Block Versus Lumbar Erector Spinae Plane Block (ESPB) in Pediatric Hip Surgery: A Randomized, Double-Blinded, Controlled Trial. J Pediatr Orthop. 2025;45(4):e324-e330. doi:10.1097/BPO.0000000000002882   Tate A, Brouillet K, Braithwaite Iv HC, Luhmann SJ. Pedicle Screw Placement in Pediatric and Adolescent Spinal Deformity Surgery: Does Tapping of the Pedicle Screw Tract Increase Safety?. J Pediatr Orthop. 2025;45(5):269-273. doi:10.1097/BPO.0000000000002909

The U.S. Senate approved the nomination of Danté Quintin Allen to lead the U.S. Department of Education's Rehabilitative Services Administration (RSA). Until his confirmation, Allen had been serving as executive director for CalABLE, California's ABLE Act savings and investment program for people with disabilities. Under his five-year leadership, CalABLE was the fastest growing ABLE Act program in the country. Prior to leading CalABLE, Allen was a communications leader for organizations including Kaiser Permanente and the California Department of Public Health's Office of Health Equity. A fulltime wheelchair user, Allen is a well-known advocate for disability rights and equity. Upon his confirmation, Secretary of Education Miguel Cardona remarked, “I look forward to working together with Mr. Allen to provide individuals with disabilities and all students with equitable access to the education and training they need to find good-paying jobs; achieve economic security; and lead healthy, independent lives.”©2025 Building Abundant Success!!©2025 All Rights ReservedJoin Me on ~ iHeart Media @ https://tinyurl.com/iHeartBASJoin me on Spotify: https://tinyurl.com/yxuy23baAmazon Music ~ https://tinyurl.com/AmzBASAudacy:  https://tinyurl.com/BASAud

Campaign groups representing families of children who have undergone surgery and those on waiting lists have called for a full public inquiry into spina bifida and scoliosis care at Children's Health Ireland. Our reporter Una Kelly was at the press conference in Dublin.

Kieran has left Newstalk headquarters and is in Buswells as the Spina Bifida and Hydrocephalus Paediatric Advocacy Group and Scoliosis Advocacy Network are holding a press conference calling on action in continued failures on paediatric care.Una Keightley, Co-Lead Spina Bifida and Hydrocephalus Paediatric Advocacy Group, and Claire Cahill Co-Founder of Scoliosis Advocacy Network join to discuss.Image: @mulvanypeopleb1 on Twitter

Six-year-old Zoey, who has spina bifida, was due to fly to New York for spinal surgery, but is now too unwell to travel. She now awaits treatment in Ireland. Una Kelly spoke to her mother Lorraine Russell.

In this inspiring episode of the Work From Home Forever, host Don sits down with Marlee Kivens, a Pampered Chef Independent Consultant who turned a simple kitchenware party into a thriving remote career.Marlee shares how Pampered Chef's accessible products helped her gain independence as a person with Spina Bifida, allowing her to cook without assistance.She discusses her transition from in-home demonstrations to fully virtual events, the skills she had to learn—like social media and Zoom—and how working remotely gives her the flexibility to manage her health.Marlee's story is a powerful example of how remote work can empower individuals with disabilities to build successful, fulfilling careers on their own terms.Connect with Marlee:Pampered Chef: KivensKitchenKornerFacebook: KivensKitchenKorner⁠________________________ Do you love the show? Check out our⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠official merch page⁠⁠⁠ ⁠on Etsy⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ and support the show!________________________

The beautiful mother of 3 and one of the most incredible women I know, Amy Young, is on this episode with me and I cannot thank her enough for her vulnerability in sharing her story about her daughter's diagnosis of spina bifida and how she is doing today.  She shares the incredible clinical trial they were a part of in Texas which helped change her daughter's future mobility, amongst many other things and how that experience affected her family in many positive ways.  This family is truly an inspiration.  Halfway through we unknowingly do a deep dive into our faith and Amy shares how her relationship with Jesus and how her constant growing faith and desire to know Him and his story even more has completely changed her life for the better and I couldn't agree more.  Thank you Amy and cannot wait to have you back on to check in on you and sweet Madison!If you are in need of a great spray tan, Forever Young Spray Tan is Amy's mobile spray tan company!  You can find her on instagram @foreveryoungspraytan (https://www.instagram.com/foreveryoungspraytan/) or email her @ foreveryoungspraytan@gmail.com

Blaise dusts off some of his favorite interviews from his college days at The College of Saint Rose. Given all the chaos happening in the world why not have a couple of light hearted chats about wheelchair sports and writing. In March 2014 Blaise spoke with Joe Slaninka -- a person with Spina Bifida who is a multi-sport wheelchair athlete. Then we hear another chat from 2014 with John Evans -- a writer and poet who is blind. What was your favorite part about their blasts from the past? Share on Facebook @blaisinshows! Don't forget to rate, review, subscribe, and share! Support Blaisin' Access Podcast by contributing to their tip jar: https://tips.pinecast.com/jar/blaisin-access-podcast Send us your feedback online: https://pinecast.com/feedback/blaisin-access-podcast/2f50e2cd-39bf-4c31-b60a-d3c07cc9519cRead transcript

Sent us text! We would love to hear from you!Through the challenges of modern life we should strive to be as optimistic as possible. Look for the good in people; don't be overly consumed by evil-doers who pop up every now and then. In a classic case of being dumb and even dumber, elements within the U.S. Department of Defense decided to avoid one of the premier sources of top candidates for engineering positions within the military simply because the name of the event had the word  “Black” in the title. At a time when American-born engineers graduating from accredited institutions is at an all time low and declining levels, a component of the institutional leadership decided they would rather decrease the ranks of certified engineers rather than be associated with a group that has traditionally been a primary source of engineering talent for many years. These engineers will have plenty of options that command salaries far above what is available from the government. Oh well. On a positive note, consider that Fetoscopic surgery allows surgeons to open a women's uterus and apply corrective measures to reduce of eliminate the damaging effects of Spina Bifida, then close the fetus and make things suitable for a normal birth. Children are losing physical dexterity by focusing too much on screens and not using their hands and fingers enough to develop and refine their fine motor skills. The solution is simple, get physical; just move. Some of the top hotels in the U.S. are available, with the Ritz Carlton in New York City, surprisingly not being the most expensive one. Meet a wingman who donated a fortune to a small town of people he never met. 

Her daughter was diagnosed with spina bifida during a tenuous spinal surgery and then she was diagnosed with breast cancer. As the mom of eight, Britt Fisk knows a thing or two about surrendering control. Her perspective was hard won and in this interview, Britt shares how laying down hard things helped her pick herself back up, and live again.  

About Mandy Mandy is the wife to Dustin and mom to Dylan, 11, and Madison, 14, who was born with Spina Bifida. Professionally, she has been a high school teacher for nearly 20 years and loves working with students in FCCLA, the student organization she sponsors. Personally speaking, she's obsessed with Christmas, loves to shop and entertain in our home, and is a huge Elvis fan. Her family is very active in their church. About the Episode As special-needs parents, we have to make decisions daily for our children regarding their care. There are times when decisions come our way that may have life-altering effects. What do you do when those decisions come your way? How do you process through making difficult decisions regarding our children with disabilities? Related Links Rising Above Family Resources  

Hello and welcome to our final episode of season 10.We're talking with Claire about her experience of multiple (3) TFMRs, two for a rare genetic condition that both Claire and her husband carry recessed genes for, and one for Spina Bifida.Claire talks us through what happened and how it has impacted and changed her.This is a really lovely episode about resilience and learning how to live with the uncertainty of life.We really hope you enjoy this episode, that it gives you hope for the future, whatever may come.You know we love to hear from you, so please get in touch and let us know what you think.Social media: Instagram @TimeToTalkTFMR.Email is TalkTFMR@yahoo.comThis episode is supported by Antenatal Results and Choices. For more information on how they support women and couples click here or call them on 0207 713 7486.

Jaden Movold is an enigma I was lucky enough to meet some 9-10 years ago. Despite lower-limb paralysis due to Spina Bifida and 33 major surgeries, Jaden is a internationally ranked competitive athlete, as well as an ambassador, advocate, and public speaker all at the ripe old age of 20 ! A natural-born leader passionate about creating positive social change and a more inclusive society for people with disabilities.

Tracy DiNunzio is an entrepreneur and investor, and founder of luxury resale marketplace Tradesy. She's sold billions of dollars of pre-owned fashion, raised $150M in venture capital, and taught herself everything from marketing to coding to get there. But according to Tracy, being an entrepreneur has always been her second job; her first is managing a lifelong health condition. Living with Spina Bifida while building her career, Tracy felt like she couldn't tell the world about her disability. But when she finally opened up about it, the reaction wasn't at all what she expected. Today, Tracy shares with Nicole the surprising way that she found strength in vulnerability and learned to be a better leader. She also shares fundraising tips and tricks for anyone trying to raise money for their company, and previews the week ahead as she takes Nicole's seat to guest host an exciting week of Money Rehab. 

Guest: Dr. Michael Bohl Neurosurgeon Carolina NeuroSurgery & Spine Associates   In this episode:  Explain two key differences between an orthopedic spine surgeon and a neurosurgeon List three physical signs that may indicate a patient has a tethered spinal cord in the neonatal period Outline four steps to improve access to specialty care to disadvantaged populations This episode is eligible for CEUs. Visit https://handtohold.org/resources/podcasts/nicu-heroes/ to complete the questionnaire. It is the sole responsibility of the individual to verify if this credit is valid and eligible for use in your State and/or for your discipline for licensure or certification renewal.  

Tom Mattice shares his journey of overcoming physical challenges and finding strength in the face of adversity. Born with spina bifida, Tom underwent multiple surgeries and battled infections, but never let his injuries define him. He learned to push through the pain and setbacks, finding inspiration in mentors and refusing to be a victim. Tom's story is a testament to resilience and the power of a positive mindset. The conversation explores the importance of embracing the journey and finding purpose in life. It emphasizes the value of small things and the learning aspect of struggles. The concept of Still Here is introduced as a way to show others that there are no boundaries and to inspire them to push through challenges. The conversation also touches on the need to avoid comparison and victimhood, and instead focus on personal growth and helping others. Practical advice is given to push through difficult days and find motivation by discovering one's why. The importance of self-improvement, embracing the present moment, and connecting with nature is highlighted. Tom Mattice shares his personal journey of overcoming challenges and finding purpose in life. He reflects on the moments of anger and frustration he experienced due to his condition, Spina Bifida, but eventually realized that he could use his strength to inspire others. Tom emphasizes the importance of inner happiness and encourages people to keep moving forward, even in the face of adversity. He shares stories of his clients who have overcome their own struggles and highlights the significance of having a support system. Tom also discusses the role of a coach in helping individuals navigate their inner demons and achieve their goals.   Follow Tom on IG: @__feast   If you are a coach, sign up now for The Real Coaches Summit 2025 in Las Vegas this April, organized by yours truly - Aram Grigorian.  The speaker lineup is insane, and don't forget macro friendly breakfast, lunch, and dinner is provided, as well as a top shelf open bar happy hour each evening to network and meet the speakers.  No VIP - we are all equals at this event!     You can find us on Instagram: Aram: @4weeks2thebeach Jim: @jimmynutrition   Grab some Serenity Gummies: CuredNutrition.com Code: OSL for 20% OFF Get some t-shirts/tanks/hoodies at:   https://www.othersidelifestyle.com/shop If you'd like to reach out to Aram, you can find him at:  https://www.4weeks2thebeach.com/work-with-me If you'd like to reach out to Jim, you can find him at:  https://www.othersidelifestyle.com/schedule Go get some supplements: www.legionathletics.com, use code: ARAM

Dr. Mitzi Williams is a pediatric foot and lower extremity surgeon who specializes in congenital deformities. Dr. Williams directs the Pediatric and Infant Foot Deformity Clinic at Kaiser Permanente in Oakland, California. She is an attending surgeon at the SF Bay Area Foot and Ankle Residency Program. She completed her undergraduate degree from the University of Arizona in veterinary science and chemistry. She went on to complete her podiatric medical degree at Rosalind Franklin University Schol College of Podiatric Medicine and then went on to complete her 3 yr surgical residency program with Scripps Mercy Podiatric Residency in San Diego.   Dr. Williams is greatly involved advancing treatment for children with Cerebral Palsy/ spasticity, Arthrogryposis, Spina Bifida and genetic conditions. Tune in as we discuss “all things podiatric medicine” including her creation of children's books to empower and educate children on musculoskeletal conditions. Dr. Williams is internationally recognized for her expertise in treating pediatric foot and lower extremity deformities. She takes pride in treating children, teaching surgeons worldwide and advancing the field of pediatric foot and ankle surgery. She has extensive experience in treating clubfoot, vertical talus, metatarsus adductus, tarsal coalitions, pediatric flatfoot, neuromuscular conditions, pediatric trauma, and numerous other congenital foot conditions. Join us, as we dive into her story and listen as she talks about how a chance meeting with Dr. Igancio Ponseti helped shape her career. Dr Williams serves as a board member for the American College of Foot and Ankle Surgeons. Her scholarly work also includes numerous textbook chapters on various pediatric conditions, research publications as well as section editor for pediatrics, in the Journal of Foot and Ankle Surgery. We hope you enjoy this episode! https://www.drmitziwilliams.com/ https://www.instagram.com/paleyinstitute/p/C87fSPAuxXh/?img_index=1 https://www.instagram.com/paleyinstitute/p/C4Bca4iOPMk/ https://www.linkedin.com/in/mitzi-williams-961b4698/ https://residency-ncal.kaiserpermanente.org/residency/podiatry/bayarea/ https://www.acfas.org/membership  

We discuss some of the main urologic goals for our pediatric patients with spina bifida. In addition to different treatment options and management considerations, we address the importance of multidisciplinary care.

Did you know that approximately 1 in 5 children experience learning and attention issues, but only a fraction of them receives an official diagnosis? In this episode of the MCG Pediatric Podcast, hosts Rishab Chawla and Dr. Jennifer Poon delve into the topic of Specific Learning Disorders (SLDs). They discuss the prevalence, diagnostic criteria, assessment methods, and treatment interventions for SLDs. The conversation aims to provide a comprehensive understanding of SLDs and highlight the importance of early intervention and support. CME Credit (requires free sign up): Link coming soon! References: Barto, A. The State of Learning Disabilities: Understanding the 1 in 5. Available from: https://ldaamerica.org/lda_today/the-state-of-learning-disabilities-today/. Dominguez, O. and P. Carugno, Learning Disability, in StatPearls. 2024, StatPearls Publishing: Treasure Island (FL). About learning disorders and disabilities. Available from: https://www.childrenshospital.org/conditions/learning-disorders-and-disabilities. Learning Disabilities: Overview. Available from: https://www.nhs.uk/conditions/learning-disabilities/. Intellectual Developmental Disorder (Intellectual Disability). 2022, American Psychiatric Association. Developmental, A.S.o. and B. Pediatrics, AAP Developmental and Behavioral Pediatrics, ed. R.G. Voigt, et al.: American Academy of Pediatrics. Burns, M.K., et al., Toward a Unified Response-to-Intervention Model: Multi-Tiered Systems of Support, in Handbook of Response to Intervention: The Science and Practice of Multi-Tiered Systems of Support, S.R. Jimerson, M.K. Burns, and A.M. VanDerHeyden, Editors. 2016, Springer US: Boston, MA. p. 719-732. Health Issues & Treatments for Spina Bifida. 2023; Available from: https://www.cdc.gov/NCBDDD/spinabifida/treatment.html. Leonard, H., et al., A systematic review of the biological, social, and environmental determinants of intellectual disability in children and adolescents. Frontiers in Psychiatry, 2022. 13. Snowling, M.J., A. Gallagher, and U. Frith, Family risk of dyslexia is continuous: individual differences in the precursors of reading skill. Child Dev, 2003. 74(2): p. 358-73. Felitti, V.J., et al., Relationship of Childhood Abuse and Household Dysfunction to Many of the Leading Causes of Death in Adults: The Adverse Childhood Experiences (ACE) Study. American Journal of Preventive Medicine, 1998. 14(4): p. 245-258. Zarei, K., et al., Adverse Childhood Experiences Predict Common Neurodevelopmental and Behavioral Health Conditions among U.S. Children. Children (Basel), 2021. 8(9). CDC's Developmental Milestones. 2023; Available from: https://www.cdc.gov/ncbddd/actearly/milestones/index.html. Lipkin, P.H., et al., Promoting Optimal Development: Identifying Infants and Young Children With Developmental Disorders Through Developmental Surveillance and Screening. Pediatrics, 2020. 145(1). IEP and 504 plans. Available from: https://www.choa.org/-/media/Files/Childrens/patients/school-program/iep-504-resource-page.pdf?la=en&hash=BF719764C11B474F8659306C061E00FD938CE5D0. Individuals with Disabilities Education Act Sec. 300.8 Child with a disability. 2018. Affects focus, attention and behavior and can make learning challenging. Available from: https://ldaamerica.org/disabilities/adhd/. Sahoo, M.K., H. Biswas, and S.K. Padhy, Psychological Co-morbidity in Children with Specific Learning Disorders. Journal of Family Medicine and Primary Care, 2015. 4(1): p. 21-25. Ee, J., B. Stenfert Kroese, and J. Rose, A systematic review of the knowledge, attitudes and perceptions of health and social care professionals towards people with learning disabilities and mental health problems. British Journal of Learning Disabilities, 2022. 50(4): p. 467-483. From the Boston Globe: "How to Support your Dyslexic Child". 2021; Available from: https://dyslexia.yale.edu/boston-globe-support-dyslexic-child/. Resources https://ldaamerica.org/resources/ American Academy of Pediatrics. https://www.healthychildren.org/English/health-issues/conditions/learning-disabilities/Pages/default.aspx

In honor of Hispanic Heritage Month, host Joanna Pineda brought back Josie Hernandez, President of Association Latinos. Josie discusses:How Association Latinos came to be. Association Latinos was founded as a LinkedIn community in 2020 and became a 501(c)(3) nonprofit in 2022.Association Latinos' mission to advance Latino leadership and representation in the association space.Their transition from an informal group to a structured organization with governance and planning.How volunteers play a critical role in the organization's success, leveraging their strengths for growth and governance.Association Latinos upcoming summit called Conexiones on October 30, 2024, in Washington, DC., focused on skill development, embracing cultural wealth, and advancing Latino leadership.The Workforce Trend Survey, sponsored by Association Latinos, that is providing real demographic and advancement data about association executives for the first time ever.How Latinos contributed 41.4% of the growth in real U.S. GDP, despite comprising just 19.2% of the U.S. population. https://latinogdp.us/ The story of her parents navigating challenges, especially with her sister born with Spina Bifida. Josie reflects on her parents, and their influence on her leadership.The importance of supporters and allies in the success of Association Latinos.How Josie is celebrating Hispanic Heritage Month this year!References:Association Latinos WebsiteJosie Hernandez Associations Thrive Episode 59Workforce Trends Survey Special EpisodeAssociation Latinos LinkedIn community page

This month, the discussion will be centered around tethered spinal cord. Each week, listen to the discussion between host Paul Wirkus, MD, FAAP, and Rajiv Iyer. In week one they will discuss spina bifida.Have a question? Email questions@vcurb.com. Your questions will be answered in week four.For more information about available credit, visit vCurb.com.ACCME Accreditation StatementThis activity has been planned and implemented in accordance with the accreditation requirements and policies of the Colorado Medical Society through the joint providership of Kansas Chapter, American Academy of Pediatrics and Utah Chapter, AAP.  Kansas Chapter, American Academy of Pediatrics is accredited by the Colorado Medical Society to provide continuing medical education for physicians. AMA Credit Designation StatementKansas Chapter, American Academy of Pediatrics designates this live activity for a maximum of 1.0 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Can you help us brighten Bert's Big Adventure kiddo Abby's day? Abby was diagnosed with Spina Bifida and joined us on Bert's Big Adventure in 2011! She has spent over 150 days in the hospital since this time last year and could use some cheering up. Will you help us help Abby? Click here to send Abby a SmileGram: https://www.choa.org/visitors/contacting-a-patient/send-a-smilegram Full Name: ABBY GILMORE Hospital: SCOTTISH RITE Room Number: 184 Learn more about your ad choices. Visit megaphone.fm/adchoices