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I love poetry. It reminds me of music, in away that it has its own deep language and it has the power to move you like music does. When I came across poet Camisha L. Jones’ work, I was immediately moved and struck by its power and heart. I knew that I had to invite her on Painiac to share more of her art and her story. I hope you enjoy this conversation, and I know you’ll enjoy her poetry. Accessibility: to read a transcript of this episode, please go to: https://bit.ly/3kiPeTd ----- Camisha L. Jones is the author of the poetry chapbook Flare (Finishing Line Press, 2017) and a recipient of a 2017 Spoken Word Immersion Fellowship from The Loft Literary Center. Through both, she breaks silence around issues of disability as someone living with hearing loss and chronic pain. Her poems can be found at The New York Times, Poets.org, Button Poetry, The Deaf Poets Society, Beltway Poetry Quarterly, Typo, Rogue Agent, pluck!, Unfolding the Soul of Black Deaf Expressions, and The Quarry, Split This Rock’s social justice poetry database. She is also published in Let’s Get Real: What People of Color Can’t Say and Whites Won’t Ask about Racism, Class Lives: Stories from Across Our Economic Divide, and The Day Tajon Got Shot. A fellow of The Watering Hole and a representative of Slam Richmond at the 2013 National Poetry Slam, Camisha is Managing Director at Split This Rock, a national non-profit in DC that cultivates, teaches, and celebrates poetry that bears witness to injustice and provokes social change. Find her on Facebook as Poet Camisha Jones and on Twitter and Instagram as 1Camisha. We talk about: The intersection between chronic pain and social justice Living with a chronically ill body and the grief that comes with learning how to live with a body that’s no longer like what it used to be. Writing as form of release and catharsis and pain management Enjoy the episode!
In this episode, we explore what it means to get better. I’ve been thinking a lot about healing and recovery, and what it means to get better. Last month marked my 12 years anniversary of living with debilitating chronic pain, and this past May marked the 3 year anniversary of my most recent and most invasive surgery. When I look back at how I had imagined myself to feel at this stage, I hadn’t been able to see clearly; it was all a blur of grey. I could barely see beyond the initial hospital stay, let alone the long uphill journey of rehabilitation. When I was able to imagine the recovery, I focused my energy on the end game, the final stretch in the marathon. I imagined myself fully restored, and maybe even, if I can say it, healed and full of energy and vitality. The truth is, I don’t feel that way, well at least not yet. And I’m not sure if I’ll ever feel that way, really. Let's talk about how a life with pain isn't just so simple; it isn't good or bad, and it isn't that if we feel better we don't also feel pain. And if we don't feel pain, it doesn't mean that the wisdom of pain disappears. It's deeper and more wild than that. If you'd like to connect about what you hear on Painiac, suggest a guest, sponsor the show, or make a donation, reach out at www.painiacpodcast.com. Painiac is a labor of love, and is and always will be a free resource for people living with pain. It costs money to produce this show and bring it to you, and I hope you consider making a contribution at www.painiacpodcast.com If everyone who listens donates $1, the show would be funded for a third season. If you can, please help me keep making Painiac. Thank you in advance!---Shelly THANK YOU TO OUR PODCAST SPONSOR: THE LEMONAYDE APP Lemonayde makes dating and socializing when you live with chronic pain or illness a whole lot easier. Visit www.SupportLemonayde.com to learn more and to support their Kickstarter. Let's help them raise $50,000!
Do you know your rights to request accommodations in the workplace? Did you know that you even have rights to request accommodations to make your job more comfortable? I’ll be honest, I had no idea that I had these kinds of rights back when I wasn’t self-employed, and chances are you don’t aren’t in the know either. That’s why I can’t wait for you to listen to this episode where I talk all about this topic with Dr. Beth Loy, a Principal Consultant with the Job Accommodation Network (JAN), a free consulting service funded by the U.S. Department of Labor's Office of Disability Employment Policy. In this capacity, she leads JAN's external evaluation process and internal continuous improvement process, providing leadership to JAN's teams of service delivery and information systems. This includes JAN's outreach and education, training programs, and Website development. Beth has been with JAN since 1996 and is a member of the Management Team. Beth is a national researcher and speaker in the disability field and has a Ph.D. in Resource Economics with a specialization in social policy. At JAN, she provides research, writing, and statistics support regarding accommodation benefits and costs and the economic impact of the Americans with Disabilities Act (ADA). Beth is a member of the Rehabilitation Engineering and Assistive Technology Society of North America (RESNA). The Job Accommodation Network (JAN) is the leading source of free, expert, and confidential one-on-one guidance on reasonable accommodation (RA) in the workplace, the Americans with Disabilities Act (ADA) and related legislation, and disability employment issues. Working toward practical solutions that benefit both employer and employee, JAN helps people with disabilities enhance their employability and shows employers how to capitalize on the value and talent that people with disabilities add to the workplace. This is important, as disability impacts us all. One in five American adults has a disability. (US Census Bureau) JAN is one of several technical assistance services provided by the U.S. Department of Labor's Office of Disability Employment Policy (ODEP). Its development has been achieved through the collaborative efforts of ODEP, West Virginia University, and private industry throughout North America. https://askjan.org/index.cfm ASK JAN https://askjan.org/contact-us.cfm _____ If you'd like to connect about what you hear on Painiac, suggest a guest, sponsor the show, or make a donation, reach out at www.painiacpodcast.com. Painiac is a labor of love and is, and always will be, a free resource for people living with pain. It costs money to produce this show and bring it to you, and I hope you consider making a contribution at www.painiacpodcast.com. If everyone who listens donates $1, the show would be fully funded for a third season. If you can, please help me keep making Painiac. Thank you in advance!---Shelly
Painsomnia the difficulty of falling and staying asleep when dealing with chronic pain is a real challenge for painiacs. Research shows that one of the most important predictors for pain intensity is the number of hours slept the night before. If you sleep poorly, your pain will likely be worse the next day. Years ago, when the pain I live with was at its worst, I was unable to lie down flat in a bed. My back was so rigid and contorted in spasms that In fact, it was so impossible for me to lit flat that I had to get an MRI under anesthesia so that I could fit inside of the MRI machine. I would dread going to sleep at night. Whenever it would get dark, I would tense up and get nervous about the idea of trying to go to sleep. I started to develop simple practices that helped me find comfort, which started to change my sleep habits. In preparation for this episode, I asked some of our Painiac community members to share their personal tips for sleeping well with chronic pain. I hope that this episode offers you some new and creative ways to rest better and sleep well. So grab a cup of tea or a cozy blanket and curl up while we explore the world of sleep.
Welcome back to Painiac! In this short episode, Shelly kicks off Season Two of Painiac the Podcast. Learn more about what you can expect from this upcoming season!
Shelly is a business coach, content writer, and brand strategist, and the Co-Founder of The Look & The Feel, a full-service branding studio. She also hosts the popular show, Painiac, the podcast about living well even when life hurts. The blend of her interests and background results in a gentle approach to taking care and living and working with intention and authenticity. Shelly has an MBA and is a certified professional coach. She lives on Lummi Island, WA, with her husband and their very fluffy cat. Shelly shares how she was able to not only thrive after breaking her when her doctors told her a wheelchair was as good as it gets, but build a business that supported her journey to feeling better. Get shelly’s tips on being an advocate for your health and how to feel better doing what you love.
Hi, this is Shelly. I hear you loud and clear, painiacs. You're ready for season two to start, and I'm ready to get it off the ground. Join me for an update on season two of Painiac, and hear how you can help support the continuation of the show. Painiac the podcast is free and widely available to anyone in the world who has access to a wifi connection. My mission is that Painiac is, and always will be, a free resource for people who need it because more people need free, accessible resources for pain management, and that’s where you come in. I’ve started an online fundraiser on GoFundMe. We’re looking to raise some money to help cover the cost of editing services, hosting, and recording equipment. I love Painiac, but it’s a project that takes an enormous amount of time, energy, and my own resources to produce. I’m asking that if you love Painiac, and you’ve gotten anything from its message, that you please make a donation today. When you contribute to Painiac, you’ll help me and my team continue to reach more people who need support. Ready to contribute? Head to http://bit.ly/2xfE9h6 to easily donate to Painaic season two. If you aren't able to make a financial contribution today, please share this link with your community, and write a review for Painiac in iTunes. Thanks in advance, Shelly
In this season one finale episode of Painiac the Podcast, Shelly reflects back on what we've learned, discussed, and shared in the inaugural season of the show. She also shares wisdom about what it means to continue on the path of mindful pain management and encourages listeners to commit to changing their relationship to pain. Be sure to download the supplemental mp3 Body Scan Meditation for Pain Management on our website at www.peacefulbodycoaching.com
Why is asking for help so hard? In this week’s episode, Shelly talks about the reality of what it means when we don’t ask for help when we really need it. She’ll help you determine how to effectively reach out and get the help you need to make living with chronic pain or illness more manageable. Although Shelly Jackson is a certified professional coach, she is not providing medical advice. The pain management information on Painiac the Podcast for Mindful Pain Management is provided by Peaceful Body Coaching solely for informational purposes as a public service to promote wellness, and to support people living with chronic pain. It is not meant to provide medical advice tailored to you in any way. It does not constitute medical advice and is not intended to be a substitute for proper medical care provided by a physician or other licensed healthcare practitioner. Shelly Jackson, Peaceful Body Coaching, and the guests on Painiac assume no responsibility for any circumstances arising out of the use, misuse, interpretation or application of any information shared on Painiac the Podcast for Mindful Pain Management. Always consult with your doctor or healthcare practitioner for appropriate examinations, treatment, testing, and care recommendations. Do not rely on information on this site as a tool for self-diagnosis. If you have a medical emergency, please call 911. Theme music provided by www.bensound.com
Join Shelly in a conversation with Mindfulnessbased Stress Reduction (MBSR) facilitator and fellow painiac Cecily McGaw. M BSR and its curriculum integrates both seated and walking meditation, gentle movement, and simple bodyawareness practices. T he MBSR program started in the Stress Reduction Clinic at the University of Massachusetts Medical Center in 1979 and is now offered in hundreds of hospitals and clinics around the world. MBSR is an inspiring tool for pain management because it emphasizes the need for a patient, practitioner partnership in healthcare. This approach allows the patient to tap into their own deepest inner resources for learning, growing, healing, and transformation, which ultimately can significantly empower people living with pain. Mindfulness has a hugely powerful impact on pain reduction. Researchers have found that mindfulness meditation reduces pain by activating the orbital frontal cortex and the anterior cingulate cortex, and these brain areas are associated with the self-control of pain and mindfulness also helps to deactivate the thalamus, which is considered a filter, it determines which sensory information is sent to the higher centers of the brain. These new studies are showing that pain relief is actually going beyond the placebo effect. And because of this research we are now able to do imaging of the brain and we can actually see and track how the brain is changing as a result of these practices. Mindfulness can reduce pain levels in daily life and help you feel better equipped at handling flareups, challenging days, and difficult emotions that arise while living with pain, so that you can feel more like yourself and less like a patient. Although Shelly Jackson is a certified professional coach, she is not providing medical advice. The pain management information on Painiac the Podcast for Mindful Pain Management is provided by Peaceful Body Coaching solely for informational purposes as a public service to promote wellness, and to support people living with chronic pain. It is not meant to provide medical advice tailored to you in any way. It does not constitute medical advice and is not intended to be a substitute for proper medical care provided by a physician or other licensed healthcare practitioner. Shelly Jackson, Peaceful Body Coaching, and the guests on Painiac assume no responsibility for any circumstances arising out of the use, misuse, interpretation or application of any information shared on Painiac the Podcast for Mindful Pain Management. Always consult with your doctor or healthcare practitioner for appropriate examinations, treatment, testing, and care recommendations. Do not rely on information on this site as a tool for self-diagnosis. If you have a medical emergency, please call 911 Theme music provided by www.bensound.com
Last week, we explored about what it means to change the vocabulary we use to talk about pain. Today, we’ll talk about the nitty gritty reality of limiting beliefs and the false truths we tell ourselves and how they keep us from doing what we are capable of. Fear not, Shelly will help you learn how to move beyond these unhelpful thoughts, expectations, and difficult emotions, so that you can start to feel better and more empowered to change your relationship to pain. Although Shelly Jackson is a certified professional coach, she is not providing medical advice. The pain management information on Painiac the Podcast for Mindful Pain Management is provided by Peaceful Body Coaching solely for informational purposes as a public service to promote wellness, and to support people living with chronic pain. It is not meant to provide medical advice tailored to you in any way. It does not constitute medical advice and is not intended to be a substitute for proper medical care provided by a physician or other licensed healthcare practitioner. Shelly Jackson, Peaceful Body Coaching, and the guests on Painiac assume no responsibility for any circumstances arising out of the use, misuse, interpretation or application of any information shared on Painiac the Podcast for Mindful Pain Management. Always consult with your doctor or healthcare practitioner for appropriate examinations, treatment, testing, and care recommendations. Do not rely on information on this site as a tool for self-diagnosis. If you have a medical emergency, please call 911
On this week’s episode, we’re discussing how our vocabulary can affect how our bodies perceive and experience sensations and pain. We’ll also talk about what it means to take back the story and rewrite your personal narrative, so that your story is less about pain and more about power and resilience. Although Shelly Jackson is a certified professional coach, she is not providing medical advice. The pain management information on Painiac the Podcast for Mindful Pain Management is provided by Peaceful Body Coaching solely for informational purposes as a public service to promote wellness, and to support people living with chronic pain. It is not meant to provide medical advice tailored to you in any way. It does not constitute medical advice and is not intended to be a substitute for proper medical care provided by a physician or other licensed healthcare practitioner. Shelly Jackson, Peaceful Body Coaching, and the guests on Painiac assume no responsibility for any circumstances arising out of the use, misuse, interpretation or application of any information shared on Painiac the Podcast for Mindful Pain Management. Always consult with your doctor or healthcare practitioner for appropriate examinations, treatment, testing, and care recommendations. Do not rely on information on this site as a tool for self-diagnosis. If you have a medical emergency, please call 911
Today we’re talking about what it means to manage pain mindfully, so that you can maximize your ability to reduce anxiety, lower stress, and shift how your mind and body respond to pain. Although Shelly Jackson is a certified professional coach, she is not providing medical advice. The pain management information on Painiac the Podcast for Mindful Pain Management is provided by Peaceful Body Coaching solely for informational purposes as a public service to promote wellness, and to support people living with chronic pain. It is not meant to provide medical advice tailored to you in any way. It does not constitute medical advice and is not intended to be a substitute for proper medical care provided by a physician or other licensed healthcare practitioner. Shelly Jackson, Peaceful Body Coaching, and the guests on Painiac assume no responsibility for any circumstances arising out of the use, misuse, interpretation or application of any information shared on Painiac the Podcast for Mindful Pain Management. Always consult with your doctor or healthcare practitioner for appropriate examinations, treatment, testing, and care recommendations. Do not rely on information on this site as a tool for self-diagnosis. If you have a medical emergency, please call 911
Welcome to Painiac! In our inaugural episode you’ll learn more about this podcast and what you can expect from subscribing. Living with pain can be an isolating, frustrating, and exhausting experience. It can feel like no one understands and nothing helps. We understand what it means to live with pain, so we made a podcast about it. Join Shelly as she explores the reality of life as a painiac with healthy doses of confidence, humor, and grace. Although Shelly Jackson is a certified professional coach, she is not providing medical advice. The pain management information on Painiac the Podcast for Mindful Pain Management is provided by Peaceful Body Coaching solely for informational purposes as a public service to promote wellness, and to support people living with chronic pain. It is not meant to provide medical advice tailored to you in any way. It does not constitute medical advice and is not intended to be a substitute for proper medical care provided by a physician or other licensed healthcare practitioner. Shelly Jackson, Peaceful Body Coaching, and the guests on Painiac assume no responsibility for any circumstances arising out of the use, misuse, interpretation or application of any information shared on Painiac the Podcast for Mindful Pain Management. Always consult with your doctor or healthcare practitioner for appropriate examinations, treatment, testing, and care recommendations. Do not rely on information on this site as a tool for self-diagnosis. If you have a medical emergency, please call 911