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Healing and Hope in Pediatric Cancer Care with guest Dr. Prasanna Ananth January 26, 2025 Yale Cancer Center visit: http://www.yalecancercenter.org email: canceranswers@yale.edu call: 203-785-4095
Dr. Crystal Mackall, the Ernest and Amelia Gallo Family Professor of Pediatrics and Medicine at Stanford University, will be joining us today to discuss childhood cancer during September's Childhood Cancer Awareness Month. Dr. Mackall will share insights into her journey in pediatric oncology, focusing on pediatric cancer research. Our conversation will delve into the disparities between advancements in adult cancer treatment versus the limited progress in pediatric cancer care. Topics will include the current landscape of pediatric cancer, common types affecting children, distinctions from adult cancers, access to care, ongoing research initiatives, challenges in addressing certain diseases, and upcoming clinical trials. Read Transcript CME Information: https://stanford.cloud-cme.com/medcastepisode88 Claim CE: https://stanford.cloud-cme.com/Form.aspx?FormID=2045
The Do One Better! Podcast – Philanthropy, Sustainability and Social Entrepreneurship
Luke Thomas, CEO of World Child Cancer: Bridging the Gap in Pediatric Cancer Care We delve into the critical work of World Child Cancer, an organization dedicated to improving the diagnosis and treatment of childhood cancer in low to middle-income countries. World Child Cancer was established in 2007 to address the significant disparity in survival rates between children diagnosed with cancer in high-income countries and those in low-income regions. While survival rates in countries like the UK and the US are around 80-90%, they drop to 20-30% in the regions where World Child Cancer operates. The organization's mission is to bridge this gap by providing comprehensive support that includes improving early diagnosis, offering training to healthcare professionals, and enhancing infrastructure. Operating in 13 countries across Sub-Saharan Africa, Asia, and Latin America, World Child Cancer collaborates closely with local hospitals and governments. They are not just grant makers but are also deeply involved in service delivery. Their approach includes training local pediatric oncologists, nurses, and pharmacists to ensure that high-quality care is available. They also address logistical challenges, such as ensuring the availability of medications and overcoming geographical barriers that prevent children from accessing treatment. The podcast explores the key challenges faced by World Child Cancer, including the lack of awareness about pediatric cancer among healthcare professionals and the general public, which often leads to misdiagnoses or delayed diagnoses. Geographical barriers and the availability of diagnostic equipment and expertise are also significant hurdles. Many families in rural areas struggle to reach hospitals due to distance and financial constraints, complicating the early and accurate diagnosis of cancer. World Child Cancer is currently undergoing a strategic review to better address these challenges, with a particular focus on improving early diagnosis. The organization recognizes that approximately 50% of children with cancer in low to middle-income countries never receive a diagnosis, and they are looking for partners to help fill gaps and provide comprehensive care. The episode also highlights the successes of World Child Cancer, such as their strong partnerships with local institutions and their holistic approach to patient care. This includes providing psychosocial support to families, ensuring that children adhere to treatment protocols and receive the comprehensive care they need. Despite these successes, the organization continues to seek improvements, particularly in early diagnosis. Luke Thomas shares his personal journey from a career in corporate headhunting to his current role in the non-profit sector, driven by a desire to make a meaningful impact and inspired by his mother's battle with cancer. His story underscores the passion and commitment that fuels World Child Cancer's mission. Thank you for downloading this episode of the Do One Better Podcast. Visit our Knowledge Hub at Lidji.org for information on 250+ case studies and interviews with remarkable leaders in philanthropy, sustainability and social entrepreneurship.
Barbara Rios has lived in Puerto Rico for her entire life. On today's podcast Barbara will talk about the nearly 20 years that she has been involved with the American Cancer Society and her work in developing and running many programs for Pediatric Cancer patients and their families in Puerto Rico. Barbara will discuss the difficulties that these patients and families can face because of being far away location wise from the 4 Pediatric Cancer Care hospitals on the Island, but will also discuss some of her successful programs as well as the great individual care that these patients receive.
Nancy Robey spent 34 years as a Physicians Assistant at Johns Hopkins in Maryland. Now retired, she has a wealth of experience with pediatric transplant patients. She's here today to offer her tips and best practices to care for them.In the pediatric transplant world, the procedure may be for something other than cancer, and many patients and families don't have the knowledge base that cancer patients do. Education is so important.Speaking of education, how do you navigate a patient being out of school for so long? Nancy talks about different strategies she's seen, from private tutors, to virtual classrooms, and more - running through the pros and cons of each.One key is interaction with other children and peers. Unfortunately, some friends will fade away, but social interaction is vital to a patient in isolation. This can be achieved through handwritten notes, Zoom and Facetime calls, and even now through video games and social media.Nancy also talks about the hospital room itself. While each facility has its own rules, she talks about ways to brighten up patients' rooms with pictures, decorations, personal items, and more.At Johns Hopkins in particular, they have a Child Life Services team, offering support to children of all ages. Your hospital may have something similar. You can learn more here: https://www.hopkinsmedicine.org/johns-hopkins-childrens-center/patients-and-families/child-life/Nancy walks us through various aspects of the hospital stay, as well as the isolation period that follows. It's important not to be disheartened if your patient is re-admitted. That's often a minor setback and just part of the process. After all, that's why you're close by!We wrap up with a couple of Nancy's book recommendations, for kids of various ages and their families.For the younger set and families: More Than You Can Handle: A Rare Disease, A Family in Crisis, and The Cutting-Edge Medicine That Cured The Uncureable - https://www.amazon.com/More-Than-You-Can-Handle/dp/0593085914For older kids and young adults: Between Two Kingdoms, a Memoir of a Life Interrupted: https://www.amazon.com/Between-Two-Kingdoms-Suleika-Jaouad/dp/0399588582Other ResourcesNational Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINKnbmtLINK YouTube Page can be found by clicking here.Thank you to this season's sponsors:The Leukemia & Lymphoma Society, www.lls.orgSanofi: https://www.sanofi.com/
In the last part of our series with Dr. Bonni Goldstein, we focus on cannabis treatments for pediatric cancer patients.Bonni Goldstein, M.D., is the owner and medical director of Canna-Centers Wellness and Education, a medical practice devoted to educating patients about the use of cannabis for serious and chronic medical conditions. She is also a medical advisor to Weedmaps.com, the first and largest global technology and media company in the cannabis space.Unfortunately more research on cannabis & pediatric cancer can't be done until federal regulations change, but Dr. Goldstein and Dr. Leigh Vinocur use this episode to talk about Dr. Goldstein's cancer patients, a documentary that features her work called "Weed The People," and the need for more clinical research in humans.
In the last part of our series with Dr. Bonni Goldstein, we focus on cannabis treatments for pediatric cancer patients.In the last part of our series with Dr. Bonni Goldstein, we focus on cannabis treatments for pediatric cancer patients.Bonni Goldstein, M.D., is the owner and medical director of Canna-Centers Wellness and Education, a medical practice devoted to educating patients about the use of cannabis for serious and chronic medical conditions. She is also a medical advisor to Weedmaps.com, the first and largest global technology and media company in the cannabis space.Unfortunately more research on cannabis & pediatric cancer can't be done until federal regulations change, but Dr. Goldstein and Dr. Leigh Vinocur use this episode to talk about Dr. Goldstein's cancer patients, a documentary that features her work called "Weed The People," and the need for more clinical research in humans.
Wendy Hein, a Pediatric Nurse Practitioner, leads a discussion focusing on survivorship care, and the program Survive and Thrive: a post-cancer pediatric care clinic that focuses on the specific needs of these patients.
For Childhood Cancer Awareness Month our guest is Dr. Elizabeth Raetz, who joined Hassenfeld Children's Hospital at NYU Langone in 2018 to lead its cancer care and research initiatives. Under her direction, over 2,000 children receive care and ongoing treatment each year. 106.7 is proud to join Hassenfeld Children's Hospital's GO GOLD campaign, supporting pediatric cancer care and research. We hope you'll join us in this important cause, by visiting litefm.com/go gold.
For Childhood Cancer Awareness Month our guest is Dr. Elizabeth Raetz, who joined Hassenfeld Children's Hospital at NYU Langone in 2018 to lead its cancer care and research initiatives. Under her direction, over 2,000 children receive care and ongoing treatment each year. 106.7 is proud to join Hassenfeld Children's Hospital's GO GOLD campaign, supporting pediatric cancer care and research. We hope you'll join us in this important cause, by visiting litefm.com/go gold.
September is Pediatric Cancer Awareness Month. Today's episode will provide a brief overview of pediatric cancer types and treatments and discuss the role of music therapy to support patients receiving treatment. Two frameworks are discussed: Contextual Support Model of Music Therapy and The Resilience in Illness Model. Links to those can be found here: RIM:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3758400/#:~:text=The%20Resilience%20in%20Illness%20Model%20(RIM)%20was%20developed%20from%20a,meaning)%20may%20influence%20resilience%20outcomes. Contextual Support Model: https://pubmed.ncbi.nlm.nih.gov/10932125/ Therapeutic Music Video: https://pubmed.ncbi.nlm.nih.gov/24469862/ Check out Dr. Sheri Robb Research and stay updated on new projects here: https://www.facebook.com/SheriRobbTeamResearch --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app Support this podcast: https://anchor.fm/caitlin-krater/support
With fewer children seeking care due to physical distancing, the early detection of pediatric cancers is being impacted. Julie Stern, MD, Director of Outreach Services for the Division of Oncology at Children's Hospital of Philadelphia, discusses how children with cancer may present differently during the COVID-19 pandemic and how pediatricians can optimize physical exams in telemedicine settings to screen for malignancies, common early presentations of a malignancy to watch for, what to include in initial lab workups, how to reassure parents it's safe to seek care in this time and more. Published June 2020. This podcast is for general informational and educational purposes only and is not to be considered as medical advice for any particular patient. Clinicians must rely on their own informed clinical judgment in making recommendations to their patients. ©2020 by Children's Hospital of Philadelphia, all rights reserved.
In this podcast, William Slayton, MD discusses Immunotherapy for Pediatric Leukemia Patients. He will tell us the story behind the current outstanding cure rates for acute lymphoblastic leukemia. He will help us to understand the reasons why 10% of patients still relapse. He will examine the awesome power of immunotherapy in relapsed patients with acute lymphoblastic leukemia and he will share current trials using immunotherapy to improve cure rates in newly diagnosed patients.
A cancer diagnosis is devastating for families of adolescents and young adults. Dr. Elizabeth Cull and Dr. Aniket Saha discuss the AYA Cancer Program for adolescents and young adults.
Dr. Carlos Rodriguez-Galindo and Dr. Sima Jeha with Global Pediatric Medicine at St. Jude Children's Research Hospital speak with host Rebecca Ward and VOA Medical Correspondent Carol Pearson about treating pediatric cancer patients in the most dire of circumstances - as refugees. They tell VOA that they have successfully treated hundreds of patients at the largest refugee camp in the world in Lebanon, and now hope to ramp up their efforts worldwide to provide treatment to other child refugees with cancer.
As the number of pediatric cancer survivors continues to grow as treatments become more effective, considerations regarding the long-term effects of therapy have become more important—though the effects may be unpredictable. Dr. Holly Hoefgen joins the show to discuss how fertility preservation offers young cancer survivors options to have children in the future.
Jonathan Jaques Children’s Cancer Center (JJCCC) at Miller Children’s & Women’s Hospital Long Beach doesn’t stop caring for patients with cancer and their families once their treatment is completed. Its survivorship program supports the unique needs of kids with cancer so they can thrive in school, work and at play after cancer treatment. Programs are also in place to help children deal with late effects of cancertreatment.
This year, about 10,000 children in the United States under the age of 15 will be diagnosed with cancer — 1,250 of these children are expected to die. For the children that survive childhood cancer, the battle is never over. Maritza Ruiz, MD is here to explain the Childhood Cancer Survivorship Programs.