Podcasts about fontan procedure

How safe is it for a woman born with hypoplastic right heart syndrome to get pregnant and carry a baby to term? What considerations need to be made when Heart Warriors with complex CHDs decide to get pregnant? What advice does a Heart Warrior Mom have for others considering having a baby?Katelynn Scoggins was born with a critical congenital heart defect known as hypoplastic right heart syndrome. Unlike many people born with HRHS, she has not had the Fontan Procedure. She has done very well medically. Katie was homeschooled and she and I have known each other forever! She is a Texan, and she was an intern with Hearts Unite the Globe for a while and I even got her to attend Toastmasters meetings with me in Gatesville. We also worked together with the Texas Chapter of the Children's Heart Foundation. Katie and Christopher Scoggins were married in May 2018. They welcomed their son, Isaiah, into the world in December 2019. She's coming on the show today to tell us about her journey to parenthood. Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

What is plastic bronchitis? What are the red flags that lead to a diagnosis of plastic bronchitis and how is it diagnosed? More importantly, what can be done about it? Today’s guest will answer those questions for us and more!Molly Fee is a mom of two boys and lives SE of Pittsburg. Her 9-year-old younger son, Marshall, was born with hypoplastic left heart syndrome or HLHS. Marshall had his Fontan Procedure at age 4, and also has a repaired tricuspid valve. About 18 months ago, Marshall was diagnosed with a rare complication associated with complex congenital heart defects, called “plastic bronchitis.” In today’s program, we’re going to learn what plastic bronchitis is, how one American family has dealt with this condition, and what advice they have for others living with plastic bronchitis.Link mentioned in this podcast:CHOP Lymphatic System page: https://www.chop.edu/centers-programs/jill-and-mark-fishman-center-lymphatic-disordersAnna Buzzsprout Affiliate Link: https://www.buzzsprout.com/?referrer_id=16817Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2MeWe: https://mewe.com/i/annajaworskiFacebook: https://www.facebook.com/HearttoHeartwithAnna/Instagram: https://www.instagram.com/hearttoheartwithanna/Twitter: https://twitter.com/AnnaJaworskiYouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwInstagram: https://www.instagram.com/hearttoheartwithanna/ Website: https://www.hug-podcastnetwork.com/Support the show (https://www.patreon.com/HearttoHeart)

Ten years ago two strangers met at a camp for children born with heart defects and became fast friends. The seed of a project was also planted at that time. In this episode of "Heart to Heart with Anna," we'll meet Producer, Director, and Sound Technician James Eric and Heart Warrior Jeni Bust as they share with Anna what it was like to create a documentary about Jeni's life. James Eric is a heart patient, a director and the producer of Journey’s Beginning, a documentary about Jeni Busta and her life with hypoplastic left heart syndrome or HLHS.James was a sound technician, producer, writer and director in Hollywood, California until he had a heart attack in 2008. After recovering from quad bypass surgery, he met counselors and campers from Camp Del Corazon on the set of ER and volunteered at the camp the following year. That’s where he met Jeni Busta and learned that a person could actually live with half a heart. A year later, Mr. Eric’s cousin and his wife discovered they were expecting a little girl with hypoplastic left heart syndrome (or HLHS), and decided to continue the pregnancy despite advice from others to terminate.Jeni and James took a road trip to Colorado to meet his cousin and their daughter. They filmed the journey and created the documentary almost 10 years ago.Jeni Busta was born with HLHS in 1985. She had her Norwood Procedure at 1 day of age and the Fontan Procedure at 17 months of age. She received a pacemaker when she was 3 years old and has had numerous pacemaker replacements and heart catheterizations since then. Jeni, her parents Jill and Paul Sorensen, and her husband Nick Busta have all been strong advocates in the congenital heart defect community. Perhaps the biggest project for Jeni, to date, has been her participation in the making of the documentary Journey’s Beginning.To view this documentary, use this link: https://youtu.be/JisLUAfTATcOn Facebook: https://www.facebook.com/Journeys-Beginning-119486121504657/Here are links of other programs with Jeni Busta mentioned in this episode:Adults with Congenital Heart Defects Finding Love: https://tinyurl.com/vr25msbSurviving the Teenage Years with a Congenital Heart Defect: https://tinyurl.com/w49uuz3Please take a moment to follow us on your preferred social media platforms:Apple Podcasts (https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2)Facebook (https://www.facebook.com/HearttoHeartwithAnna/)YouTube (https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw)Instagram (https://www.instagram.com/hugpodcastnetwork/)If you enjoy this program and would like to be a Patron, please check out our Patreon page (https://www.patreon.com/HeartToHeart)Support the show (https://www.patreon.com/HearttoHeart)

In the cardiac lesion series, pediatric intensivist, Dr. Laura Ortmann, describes the background of the cardiac lesion, what it looks like clinically, the most common complications post-operatively, and how the lesion is managed. In this episode, she will discuss the stage three palliation, commonly referred to as the Fontan Procedure, as part three of a three-episode series discussing the single ventricle pathway. Dr. Ortmann describes the inter-stage period between the Glenn and the Fontan, the surgery itself, the most common complications post-operatively, and management. The information provided in this podcast is general in nature and is intended as a training tool for Children's Hospital & Medical Center personnel. This podcast is not intended to be a substitute for professional medical advice, diagnosis or treatment. Each patient is unique and information provided in any educational forum must be tailored to each patient's unique situation. By recording this podcast, neither Children's, nor any provider, is engaged in the practice of medicine, nursing or any other health care service. Medical professionals and individual patient families should not attempt to use or rely upon any of the information provided to make medical decisions or to provide health care services. If you are a Children's employee and you have any questions about the content of this podcast, please discuss these with your supervisor. By listening to the podcast, you are agreeing with the terms of this disclaimer. All rights to this podcast are reserved. Copyright Children's Hospital & Medical Center 2019.

Most people today (2019) with a single ventricle heart typically have one of two courses of treatment for their heart condition: 1) a series of surgeries culminating with the Fontan Procedure or 2) a heart transplant. That is not the case with our Guest in this episode. Born in 1970, returning Guest Laura Ryan, talks about what her life has been like growing up with a single ventricle heart palliated in a rather unusual way -- with a Potts shunt, a Waterston shunt and a Bi-Directional Glenn shunt. In this episode she shares what it was like for her as a child and what her endurance was like. She talks about how she interacted with her siblings and friends. She then moves on to share what it was like for her once she decided she wanted to start her family. In this very candid interview, Laura shares some of the travails she endured and what helped to her make it through the difficult times.Finally, Laura shares how she feels pregnancy affected her body and her heart. She also shares her doctor's prognosis for her future, especially given her sequence of medical events thus far. Laura's story is one of inspiration and hope.Please take a moment to follow us on your preferred social media platforms:iTunes: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2Facebook: https://www.facebook.com/HearttoHeartwithAnna/YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwInstagram: https://www.instagram.com/hugpodcastnetwork/If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeartSupport the show (https://www.patreon.com/HearttoHeart)

Kathy Ware was born in 1974 with tricuspid atresia and pulmonary stenosis. Her first surgery occurred in her first year of life when she had a Potts shunt. At age 5, she had a central shunt inserted. In 1989 she had a Potts reconstruction and modified Blalock-Taussig shunt and then a classic Glenn procedure. All of these surgeries were done with the plan of having a Fontan Procedure, but she developed pulmonary stenosis and has never had the Fontan.In this episode of Heart to Heart with Anna, Kathy Ware talks with Anna about what it was like to be diagnosed with a learning disability and how she overcame her issues to become a college professor. She gives advice to other heart families about dealing with congenital heart defects and learning disabilities. She also demonstrates through her own life how perseverance and determination can allow people to overcome seemingly insurmountable obstacles.Please take a moment to follow us on your preferred social media platforms:iTunes: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2Facebook: https://www.facebook.com/HearttoHeartwithAnna/YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwInstagram: https://www.instagram.com/hugpodcastnetwork/If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeartSupport the show (https://www.patreon.com/HearttoHeart)

Kathleen Simpson, MD  discusses why the Fontan Clinic at St. Louis Children’s Hospital was established, what a referring provider can expect from the Fontan Clinic team and she offers hope and support for patients after Fontan Procedure.

Shannon Arriaga is the mother of a child who was born with a critical, congenital heart defect. Eric was born with hypoplastic left heart syndrome and he ended up having a Fontan Procedure. Shortly after the Fontan Procedure, he developed a life-threatening condition known as protein-losing enteropathy or PLE. For more information about PLE, check out this link: https://www.chop.edu/conditions-diseases/protein-losing-enteropathy-ple but to explain it very simply, this is a condition where the body is unable to process proteins properly and, if it's serious enough, a person can die due to lack of growth and development. When Eric's condition became dire enough, the family turned to their last option -- a heart transplant. Shannon tells Anna about the wait for a heart and what happened to Eric after he received the gift of life. Most importantly, she shares what happened to Eric's PLE after the heart transplant process.Support the show (https://www.patreon.com/HearttoHeart)

In this episode, I sit down with Lizzie Lindberg to talk about healing and grief. Lizzie Lindberg is a Mama to two little boys, a widow, and a lover of words & coffee. As a part-time communications director and graphic designer at her church, she is excited about cultivating creativity and consistency. When she's home, Lizzie excels at making mayonnaise, composing dinosaur noises, and crafting lego spaceships. Lizzie writes about motherhood, grief, and God's faithful love. #itsagoodthing Lizzie Lindberg  Blog // lizziejlindberg.com Instagram // @lizziejlindberg A note from Lizzie: "Somehow between recalling what was actually true of the condition of Eric’s heart and letting it come through my mouth, I got all the details mixed up for the podcast recording. Here are the actual details about Eric’s heart condition: Eric was born with a condition known as Transposition of the Great Arteries. This means that the two major arteries that lead away from the heart were transposed or “switched.” This had to be corrected with a surgery called a Fontan Procedure, which he had at 3 years old. In this corrective surgery the two ventricles of the heart were allowed to combine to do what would normally be one ventricle’s job. Blood is not pumped directly by the heart to the lungs. Some would say the blood 'falls' into the lungs (gravity), but it's mostly the pressure in the veins that gets it there.” Isaiah 41:10 “Fear not, for I am with you; be not dismayed, for I am your God; I will strengthen you, I will help you, I will uphold you with my righteous right hand.” (ESV) Resources Lizzie Recommends: https://www.griefshare.org When God Doesn’t Fix It - Laura Story Option B - Sheryl Sandberg Lizzie's Loss Spotify Playlist  

In this episode, I sit down with Lizzie Lindberg to talk about healing and grief. Lizzie Lindberg is a Mama to two little boys, a widow, and a lover of words & coffee. As a part-time communications director and graphic designer at her church, she is excited about cultivating creativity and consistency. When she's home, Lizzie excels at making mayonnaise, composing dinosaur noises, and crafting lego spaceships. Lizzie writes about motherhood, grief, and God's faithful love. #itsagoodthing Lizzie Lindberg  Blog // lizziejlindberg.com Instagram // @lizziejlindberg A note from Lizzie: "Somehow between recalling what was actually true of the condition of Eric’s heart and letting it come through my mouth, I got all the details mixed up for the podcast recording. Here are the actual details about Eric’s heart condition: Eric was born with a condition known as Transposition of the Great Arteries. This means that the two major arteries that lead away from the heart were transposed or “switched.” This had to be corrected with a surgery called a Fontan Procedure, which he had at 3 years old. In this corrective surgery the two ventricles of the heart were allowed to combine to do what would normally be one ventricle’s job. Blood is not pumped directly by the heart to the lungs. Some would say the blood 'falls' into the lungs (gravity), but it's mostly the pressure in the veins that gets it there.” Isaiah 41:10 “Fear not, for I am with you; be not dismayed, for I am your God; I will strengthen you, I will help you, I will uphold you with my righteous right hand.” (ESV) Resources Lizzie Recommends: https://www.griefshare.org When God Doesn’t Fix It - Laura Story Option B - Sheryl Sandberg Lizzie's Loss Spotify Playlist  

Commentary by Dr. Valentin Fuster

Commentary by Dr. Valentin Fuster

This episode features two very special Guests -- Michelle Steltzer is a nurse and the sister of a Heart Warrior born with a single ventricle heart in the 1970s. Susan Romanesko is Michelle and Greg's mother. She talks with Anna about what it was like to give birth to a Heart Warrior in the 1970s, and how, as an infant and even into adulthood, medical technology and treatments seemed to be just a step ahead of where her son, Greg, needed to be in order to save her son's life. Michelle also shares important observations with Anna about the trends she sees in family-centered care centers and why families have needed to become a more vital part of any care plan for a child with a congenital heart defect, especially for those born with complex congenital heart defects.Support the show (https://www.patreon.com/HearttoHeart)

The Fontan Procedure has been used since the 1970s to treat people with a single ventricle physiology -- also known as a univentricular heart. It has also been used in the last few decades to treat hypoplastic left heart syndrome (HLHS) or hypoplastic right heart syndrome (HRHS). Now there are enough long-term survivors of the Fontan Procedure for the medical establishment to know what kinds of consequences having such a radical physiology poses. When the heart's sole function is to pump blood to the body, and it travels passively to the lungs for oxygen, how does that anatomy affect other organs, specifically the liver? Dr. Fred Wu of Boston Children's Hospital is an expert in working with adults with congenital heart defects with liver involvement. Today's episode is a continuation of the conversation he had with Anna last week. In today's program he talks about whether or not Stage IV of the Fontan is actually transplantation, what advice he feels Fontan Survivors and parents of children born with single ventricle hearts need to hear and finally, he gives us his prediction for what the future holds for this unique population.Support the show (https://www.patreon.com/HearttoHeart)

The Fontan Procedure has been used since the 1970s to treat people with a single ventricle physiology -- also known as a univentricular heart. It has also been used in the last few decades to treat hypoplastic left heart syndrome (HLHS) or hypoplastic right heart syndrome (HRHS). Now there are enough long-term survivors of the Fontan Procedure for the medical establishment to know what kinds of consequences having such a radical physiology poses. When the heart's sole function is to pump blood to the body, and it travels passively to the lungs for oxygen, how does that anatomy affect other organs, specifically the liver? Dr. Fred Wu of Boston Children's Hospital is an expert in working with adults with congenital heart defects with liver involvement. He explains what about the Fontan heart makes involvement with other organs something to be expected and prepared for. He will explain what kind of consequences are commonplace when dealing with a Fontan heart and what kind of monitoring should be done to help patients live healthy, happy lives.Support the show (https://www.patreon.com/HearttoHeart)

The Fontan Procedure was first described in 1971 as a treatment for tricuspid atresia. In the last 45 years, the Fontan Procedure has grown and changed and is currently used to save the lives of people born with a number of single ventricle diagnoses -- including tricuspid atresia, hypoplastic left (and right) heart syndrome, common-inlet left ventricle or double-inlet left ventricle. Survivors of this procedure are increasing as the surgical techniques, mediations used, devices used to enhance life and diagnostic methods have improved. What does this mean for long-term survivors? What are common complications? What red flags should Survivors and their parents' (and doctors) be aware of? Today's episode features two Guests: Dr. Wilson Lam, electrophysiologist at Baylor College of Medicine and Lauren Bednarz, 29 year old Fontan Survivor. They will share their experiences and advice with us in this show.Support the show (https://www.patreon.com/HearttoHeart)