Podcasts about Fontan

This week we venture back in time to 2023 to review the results of the update of the Single Ventricle Reconstruction trial, specifically SVR III. How are HLHS patients are faring post Norwood at age 12? What is the overall transplant-free survival rate in this group? Are there differences in survival seen at 12 years between BTTT shunt patients and RV-PA conduit shunt patients? How do they compare in exercise capabilities? What about rates of PLE or arrhythmias seen? Are there interventions that may improve outcomes going forward? These are amongst the questions reviewed this week with the first author, Dr. Caren Goldberg who is Professor of Pediatrics at the University of Michigan. DOI: https://doi.org/10.1161/circulationaha.123.065192

Darshan H. Brahmbhatt, Podcast Editor of JACC: Advances, discusses a recently published original research paper on Prevalence, Risk Factors, and Prognosis for Fontan-Associated Liver Disease: A Systematic Review and Exploratory Meta-Analysis.

Du lundi au vendredi, dans un podcast inédit, l'invité(e) du jour se confie au micro de RTL avant même son passage dans l'émission ! L'occasion d'en apprendre un peu plus sur lui, sur ses projets et sur ses souvenirs de l'émission "Les Grosses Têtes". Retrouvez tous les jours le meilleur des Grosses Têtes en podcast sur RTL.fr et l'application RTL. Distribué par Audiomeans. Visitez audiomeans.fr/politique-de-confidentialite pour plus d'informations.

Face à Élodie Fontan, ce 6 mai 2025, Marc-Antoine Le Bret a notamment imité Emmanuel Macron, Gabriel Attal ou encore Jean-Luc Reichmann. Retrouvez tous les jours le meilleur des Grosses Têtes en podcast sur RTL.fr et l'application RTL.Distribué par Audiomeans. Visitez audiomeans.fr/politique-de-confidentialite pour plus d'informations.

podcast recorded with enacast.com

Élodie Fontan, à l'affiche du film "Anges & Cie" est l'actrice de la semaine Ecoutez Laissez-vous tenter - Première avec Stéphane Boudsocq du 05 mai 2025.Distribué par Audiomeans. Visitez audiomeans.fr/politique-de-confidentialite pour plus d'informations.

À l'occasion de la sortie du film "Anges & Cie" le 7 mai au cinéma, Elodie Fontan était l'invitée de Bernard Montiel dimanche 4 mai sur RFM.Distribué par Audiomeans. Visitez audiomeans.fr/politique-de-confidentialite pour plus d'informations.

Chaque samedi pendant une heure, la spécialiste cinéma d'Europe 1 Laurie Cholewa et ses chroniqueurs font le tour de l'actualité du septième art. Distribué par Audiomeans. Visitez audiomeans.fr/politique-de-confidentialite pour plus d'informations.

Entouré de ses chroniqueurs et d'Anissa Haddadi, Thomas Isle reçoit celles et ceux qui font l'actualité culturelle et médiatique : dirigeants de chaînes, producteurs, animateurs, journalistes, chanteurs, acteurs, etc. Les auditeurs retrouvent "leurs indispensables" avec les signatures de la station. Une émission de 1h30 enrichie de débats autour des questions médiatiques, d'un jeu interactif et de nouvelles séquences donnant la parole aux auditeurs. Distribué par Audiomeans. Visitez audiomeans.fr/politique-de-confidentialite pour plus d'informations.

Tous les jours dans Culture Médias, Thomas Isle dresse le portrait sonore de l'invité. Ce vendredi, c'est Romain Lancry et Élodie Fontan, pour le film "Anges et compagnie" dans les salles le 7 mai. Distribué par Audiomeans. Visitez audiomeans.fr/politique-de-confidentialite pour plus d'informations.

Entouré de ses chroniqueurs et d'Anissa Haddadi, Thomas Isle reçoit celles et ceux qui font l'actualité culturelle et médiatique : dirigeants de chaînes, producteurs, animateurs, journalistes, chanteurs, acteurs, etc. Les auditeurs retrouvent "leurs indispensables" avec les signatures de la station. Une émission de 1h30 enrichie de débats autour des questions médiatiques, d'un jeu interactif et de nouvelles séquences donnant la parole aux auditeurs. Distribué par Audiomeans. Visitez audiomeans.fr/politique-de-confidentialite pour plus d'informations.

Tous les jours dans Culture Médias, Thomas Isle dresse le portrait sonore de l'invité. Ce vendredi, c'est Romain Lancry et Élodie Fontan, pour le film "Anges et compagnie" dans les salles le 7 mai. Distribué par Audiomeans. Visitez audiomeans.fr/politique-de-confidentialite pour plus d'informations.

La comédie "Anges & Cie", réalisée par Vladimir Rodionov, débarque en salles mercredi 7 mai. Ecoutez L'invité de 9h40 avec Thomas Sotto et Céline Landreau du 01 mai 2025.Distribué par Audiomeans. Visitez audiomeans.fr/politique-de-confidentialite pour plus d'informations.

La comédie "Anges & Cie", réalisée par Vladimir Rodionov, débarque en salles mercredi 7 mai. Ecoutez L'invité de 9h40 avec Thomas Sotto et Céline Landreau du 01 mai 2025.Distribué par Audiomeans. Visitez audiomeans.fr/politique-de-confidentialite pour plus d'informations.

Send us a textIn dieser speziellen deutschsprachigen Episode von 'Herz zu Herz mit Anna' spricht Jodi Alderfel mit Marina Lohri, die mit Trikuspidalatresie, ASD und VSD geboren wurde und eine modifizierte Fontan-Operation überlebte. Marina teilt ihre lebenslange Reise, von ihrer Herzoperation als Baby bis hin zu ihrer Karriere bei atHeart Medical, einem Unternehmen, das Geräte zur Behandlung von ASD entwickelt. Die Episode erörtert auch Marinas Erfahrungen mit Vorhofflimmern und einer Ablation im Jahr 2018. Marinas persönliche und berufliche Erfahrungen bieten wertvolle Einblicke für andere Patienten mit angeborenen Herzfehlern und zeigen, wie sie durch Mut und Entschlossenheit ein sinnvolles Leben führt.(Besonderer Dank geht an Jodi Alderfel, die uns in dieser Folge als Gastmoderatorin zur Seite stand.)In this special German-language episode of 'Heart to Heart with Anna,' Jodi Alderfel speaks with Marina Lohri, who was born with tricuspid atresia, ASD, and VSD and survived a modified Fontan procedure. Marina shares her lifelong journey, from her heart surgery as a baby to her career at atHeart Medical, a company developing devices to treat ASD. The episode also discusses Marina's experience with atrial fibrillation and an ablation in 2018. Marina's personal and professional experiences offer valuable insights for other patients with congenital heart disease and show how she leads a meaningful life through courage and determination.Here is a link to Marina's episode in English with Anna: https://tinyurl.com/Marina-LohriSheri Turner is our newest Defender Patron and she also serves as a HUG Volunteer. Thank you so much for your generosity and all you do, Sheri!Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

Darshan H. Brahmbhatt, Podcast Editor of JACC: Advances, discusses a recently published original research paper on Increased Endothelin-1 Is Associated With Morbidity in Single Ventricle Heart Disease in Children Undergoing Fontan Palliation.

Darshan H. Brahmbhatt, Podcast Editor of JACC: Advances, discusses a recently published original research paper on Characteristics and Survival Outcomes of Hepatocellular Carcinoma After the Fontan Operation.

This week we review a study assessing the impact of bundle branch block (BBB) on exercise tolerance amongst the single ventricle Fontan patient cohort. Why would this be associated with worse outcomes for exercise? How should the cardiologist use this datum of BBB in a single ventricle patient to inform clinical decision making in this patient group? Why is cardiac resynchronization therapy so challenging in this patient group? Dr. Omar Meziab of The University of Arizona shares his deep insights this week. https://doi.org/10.1007/s00246-024-03500-1

Darshan H. Brahmbhatt, Podcast Editor of JACC: Advances, discusses a recently published original research paper on Acute Effects of Enhanced External Counterpulsation in Adults With Fontan Circulation.

A pediatric thoracic surgeon at Indiana University, has spent decades fixing broken hearts. And his research led him to a team of engineers at NASA.

This week we step back in time 3 years ago to review an important cardiac MRI report on Fontan geometry and hemodynamics as measured by computational fluid dynamic analysis. How do factors like Fontan geometry or 'power loss' relate to quality of life for the Fontan young adult patient? How do these data inform imaging in the operating room during these palliations? We speak with the first author of this work, Associate Professor of Pediatrics at U. Penn, Dr. Laura Mercer-Rosa about this important and intriguing work. https://doi.org/10.1016/j.athoracsur.2022.01.017

This week we review a recent large scale, multicenter adult congenital heart study on outcomes of HLHS Fontan patients versus other single RV Fontan patients. How do the two groups compare in regards to thromboembolic risk, risk for arrhythmia or risk for death and heart transplantation? Why might there be differences between these single RV patient groups? How can these results inform management? We speak with Assistant Professor of Medicine and Pediatrics at The Icahn School of Medicine at  Mount Sinai, ACHD expert Dr. Kali Hopkins. doi: 10.1161/JAHA.124.034757. Epub 2024 Nov 27

En este episodio: nos despedimos del sobreviviente Fermín Fontanés; lo último de la Extraordinaria; quién gana y quién pierde en el escrutinio y las movidas de la burócrata nivel sayayín Yanira Raíces para atornillarse en Educación. - ¡Vota AHORA en los PPP Awards en podcastppp.com! - Si fueras partes de nuestro patreon, hubieras escuchado este episodio ayer martes. ¡Únete a la mejor comunidad del internet boricua en patreon.com/puestospalproblema! Aprovheca la oferta de Cyber Week todo el mes de diciembre. - Presentado por el mejor internet de Puerto Rico - AeronetPR.com. Cambiate ahora llamando al 787 273 4143. Nuestros Patroncitos PYMES de hoy: High Quality Solutions es un equipo especializado en la impermeabilización de techos y pintura en PR. En el sellado de techo, nos enfocamos en preparar y reparar las superficies, utilizando materiales destinados para este uso y de alta calidad. Ofrecemos varios sistemas de sellado, como para techos regulares y/o transitables. Sistemas en Silicona y Poliuretanos, Cementicios y otros. LLEGAN AL TECHO ORIGINAL! LIMPIAN TODO ANTES DE PONER EL TRATAMIENTO. Nuestros sistemas son perfectos para residencias, comercios, terrazas, Airbnb, estacionamientos, cisternas, entre otros. Preparamos de forma efectiva ante cualquier inclemencia del tiempo, como lluvias, tormentas y huracanes. Evitar humedad y filtraciones, que afectan la calidad de vida. También realizamos trabajos de pintura, con productos de compañías prestigiosas. Mejoramos el aspecto estético, transformando el entorno en uno renovado. Nos encargamos de convertir la visión de nuestros clientes en realidad. En High Quality Solutions ofrece servicios que garantizan la durabilidad y seguridad de la inversión. Brindamos garantías para nuestros trabajos y estamos certificados por DACO, Seguro de Responsabilidad Pública y El Fondo de Seguro del Estado, para mantener la confianza de nuestros clientes. Pueden comunicarse con José R. Nieves Solís, contratista al 787-223-8960 o al cel.787-552- 4631. Puedes acceder a nuestra página hqsolutionspr.com, para más información. También puede buscarnos en Instagram y Facebook como High Quality Solutions. Bright International Investments ofrece servicios relacionados a las finanzas. Específicamente creamos y manejamos carteras de portafolios de inversión a clientes particulares que deseen invertir su dinero en la Bolsa de Valores de Nueva York. Tú haces la inversión y nosotros nos encargamos del resto. Este 2024 sácale dinero a tu dinero y hazte cargo de tu futuro. ¡Bright International Investments es tu solución! ¡Por un futuro brillante! Para más información visita brightinternationalinvestments.com. Suscríbete a nuestro Patreon y recibe contenido exclusivo, artículos: https://patreon.com/puestospalproblemaSee omnystudio.com/listener for privacy information.

In this episode, Dr. Valentin Fuster discusses a groundbreaking study on cardiac MRI predictors of arrhythmic sudden cardiac events in patients with Fontan circulation, highlighting key risk factors for these life-threatening incidents. The study, part of the multi-center FORCE registry, reveals significant findings, including the impact of clinical status and ventricular function, while emphasizing the importance of large-scale research in improving outcomes for single ventricle patients.

In this episode, Dr. Valentin Fuster highlights five cutting-edge cardiology studies from the December 2024 issue of JACC, covering topics such as cardiac MRI's role in predicting sudden cardiac events in Fontan patients, the impact of oxidized phospholipids on calcific aortic valve disease, and the effects of renal and liver function on outcomes after tricuspid valve repair. With insights on mortality risks from influenza in heart failure patients and the outcomes of anatomical versus physiological repair for congenital heart defects, the episode offers a comprehensive look at critical advancements in cardiovascular care.

This week we delve into the world of adult congenital heart disease to review the topic of liver disease in the Fontan patient and specifically, hepatocellular carcinoma (HCC). What is the prevalence of this disease in the Fontan single ventricle adult patient? How effective are scores like the MELD-XI or Fibrosis-4 Index at identification of HCC in the Fontan patient? How should the Fontan adult patient be surveilled for this form of cancer? What evidence is there that earlier identification of HCC is associated with better outcomes? What may prove to be the most important factor in protection of the liver in the Fontan patient? Dr. Yuli Kim, Director of the ACHD program at The University of Pennsylvania shares her deep insights this week into this important topic. DOI: 10.1093/eurheartj/ehad788

Darshan H. Brahmbhatt, Podcast Editor of JACC: Advances discusses a recently published original research paper on liver imaging in fontan patients, comparing ultrasound to cross-sectional imaging.

This week on The Beat, CTSNet Editor-in-Chief Joel Dunning discusses the latest salaries and conditions of cardiothoracic surgeons in the United States. He explores the highest versus lowest compensation areas, areas with the highest growth for compensation, and where cardiothoracic surgeons rank among other surgeons. He also highlights the highest paid specialties, burnout rates, early retirement, and noncompete clauses.   Joel also reviews recent JANS articles on transcatheter aortic valve replacement for asymptomatic severe aortic stenosis, transcatheter aortic valve replacement in patients with systolic heart failure and moderate aortic stenosis, valve-in-valve transcatheter aortic valve replacement versus isolated redo surgical aortic valve replacement, and the seven pillars of techniques to treat and repair tricuspid endocarditis.  In addition, Joel explores surgical aortic annulus enlargement using a balloon technique, quadruple valve replacement for carcinoid heart disease, and Fontan conversion in a patient with hypoplastic left heart syndrome. Before closing, he highlights upcoming events in CT surgery. JANS Items Mentioned  1.) Transcatheter Aortic-Valve Replacement for Asymptomatic Severe Aortic Stenosis—EARLY TAVR Trial  2.) Transcatheter Aortic Valve Replacement in Patients With Systolic Heart Failure and Moderate Aortic Stenosis: TAVR UNLOAD  3.) Valve-in-Valve Transcatheter Aortic Valve Replacement Versus Isolated Redo Surgical Aortic Valve Replacement  4.) The Seven Pillars of Techniques to Treat and Repair Tricuspid Endocarditis  CTSNET Content Mentioned  1.) Surgical Aortic Annulus Enlargement Using a Balloon Technique  2.) Quadruple Valve Replacement for Carcinoid Heart Disease  3.) Fontan Conversion in a Patient With Hypoplastic Left Heart Syndrome: A 38-Year-Old Norwood Saga  Other Items Mentioned  1.) Doximity Pay Report 2023   2.) CTSNet Events Calendar  Disclaimer The information and views presented on CTSNet.org represent the views of the authors and contributors of the material and not of CTSNet. Please review our full disclaimer page here.

Darshan H. Brahmbhatt, Podcast Editor of JACC: Advances, discusses a recently published original research paper about high-performing Fontan patients in a Fontan outcome registry by cardiac magnetic resonance imaging study.

Send us a textMeet Marina Lohri, a true trailblazer in the world of congenital heart defects (CHDs). Born with tricuspid atresia, a ventricular septal defect, and an atrial septal defect, Marina's journey from a life-saving C-section to being among the first in Switzerland to undergo a modified-Fontan procedure at just 11 months old is nothing short of miraculous. In our conversation, Marina unfolds her inspiring story and shares her passion for working at atHeart Medical, where she is dedicated to promoting innovative solutions for those with similar heart conditions.Navigating the complexities of living with Atrial Fibrillation (AFib) and congenital heart defects is no small feat. Marina opens up about her personal experiences with rapid heart rates and the profound decision to undergo an ablation. As she contemplates the intricate considerations surrounding pregnancy with a congenital heart condition, we delve into the evolving medical advice she received and the diverse perspectives of healthcare professionals. Marina's story is a testament to the importance of specialized care and the expertise found at top hospitals in Switzerland.From finance to the medical field, Marina's career journey is a testament to aligning work with personal values and health needs. As she shares her transition to atHeart Medical, a startup focused on congenital heart defects, Marina highlights the rewards of working in a supportive environment that truly understands the challenges of living with CHD. Her advocacy extends beyond her professional life, as she continues to inspire others with similar heart conditions to pursue their passions and find purpose in their careers. Marina's resilience shines through as she navigates life's challenges with a positive attitude and a commitment to the CHD community.Helpful Links:atHeart Medical website: https://atheartmedical.comSupport Organizations:Mended Hearts: https://mendedhearts.org(In German)Herznetz: https://www.herznetz.ch/Fontanherzen: https://fontanherzen.ch/Swiss Heart: https://swissheart.ch/Thanks to our newest HUG Patron, Ayrton Beatty and long-standing Patrons: Laura Redfern, Pam Davis, Michael Liben, Nancy Jensen, Alicia Lynch, Deena Barber, Carlee McGuire, Carter & Faye Mayberry, and Frank Jaworski. We appreciate you!Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

Few people will have a Founder's story like Olivia's.  Born with hypoplastic left heart syndrome Olivia was part of the early patient cohort to progress from Norwood through to Fontan under the care of Birmingham Children's Hospital.   After experiencing first-hand the inadequacies of the existing hospital gowns she has set about redesigning patient-wear with patients in mind.  Revising everything from comfort to clinician access to carbon cycle impact, Olivia has built her company Hypoplas to provide patient-wear that works for the twenty-first century.   Connect to Olivia Burns on Linked In:               linkedin.com/in/olivia-burns-hypopolas            Website:         hypoplas.com      (The website is undergoing a little reconstructive work at the moment so an alternative contact email is in operation for enquiries in the meantime: www.hypoplas@gmail.com) SCTS Education Podcast:  Email: sctseducationpodcast@gmail.com X: @podcast_scts  

This week we delve into the world of the single ventricle when we speak with Dr. David Hoganson, Assistant Professor of Surgery at Harvard Medical School about a recent work he co-published with investigators from Boston Children's Hospital on computational fluid dynamic modeling in the planning of the Fontan operation. Single ventricle heterotaxy patients with interrupted IVC are at enhanced risk for the development of pulmonary AVM's due to flow maldistribution to the pulmonary arteries from the hepatic veins in a Fontan. Can a computational fluid dynamic model predict which operative approach would result in the most balanced hepatic venous flow distribution? Can this reduce the incidence of pulmonary AVM's? How well did the models predict the actual pulmonary flow measured after surgery on CMR? Who beyond the heterotaxy patient might benefit from this approach? Dr. Hoganson offers us a peek into the world of personalized surgery in this week's exciting episode.         DOI: 10.1016/j.jacadv.2024.101057

This week we turn back the clocks to re-review a recent research letter from the team at the Harvard Congenital Heart Program about venous insufficiency in the Fontan patient. Why do patients with Fontan circulation develop chronic venous insufficiency and what are the implications of this problem in the Fontan patient? What sort of evaluation should be performed on the Fontan patient presenting with lower extremity venous changes? How worried should the cardiologist be when presented with a Fontan patient with these changes? These are amongst the questions reviewed on this topic with this week's guest, Associate Professor at Baylor University, Dr. Tony Pastor.JACC Adv 2022 Mar, 1 (1) 100002

Commentary by Dr. Candice Silversides

This week we review a recent paper from last 2023 about outcomes of cardiac transplantation in the adult congenital heart patient (ACHD). Little has been written on this topic until this very robust and large scale report. How do single ventricle ACHD patients fair at transplant and how do they compare to non-ACHD heart transplant recipients? Why might 1 and 3 year outcomes not be a 'fair' method of assessing outcomes in this very high risk patient group? How do HLHS patient outcomes compare with other single ventricles? Are there better ways to measure risk in this patient group and how might the data in this work inform risk stratification and management of failing Fontan patients in whom transplantation is being considered? These are amongst the questions posed this week to the week's expert, Dr Daphne Hsu who is Professor of Pediatrics at the Albert Einstein College of Medicine at The Children's Hospital at Montefiore. https://doi.org/10.1016/j.jacc.2023.06.037For those interested in learning more about Dr. Hsu, take a listen to episode #166 from June, 2021:https://www.spreaker.com/episode/pediheart-podcast-166-a-conversation-with-professor-daphne-hsu--45144274

Noticias Con Café 21/06/2024 La culpa en el Gobierno de Pierluisi es huérfana. La insistencia de Fermín Fontanés de no asumir responsabilidad por el mal trabajo de LUMA. Violencia de Estado y violación de derechos humanos el fracaso de la privatización de energía ante Comité de Descolonización de la ONU. Pierluisi inaugura “obras” con AAA, agencia que nunca ha respondido por los permisos que otorgó para desarrollos de terrenos protegidos en Salinas. El lunes se demolerá la primera de muchas construcciones ilegales. ¡Sintoniza y Comparte! #periodismoindependiente #periodismodigital #puertorico #anairmariveralassen #ferminfontanes #jessikapadilla

Noticias Con Café 21/06/2024 La culpa en el Gobierno de Pierluisi es huérfana. La insistencia de Fermín Fontanés de no asumir responsabilidad por el mal trabajo de LUMA. Violencia de Estado y violación de derechos humanos el fracaso de la privatización de energía ante Comité de Descolonización de la ONU. Pierluisi inaugura “obras” con AAA, agencia que nunca ha respondido por los permisos que otorgó para desarrollos de terrenos protegidos en Salinas. El lunes se demolerá la primera de muchas construcciones ilegales. ¡Sintoniza y Comparte! #periodismoindependiente #periodismodigital #puertorico #anairmariveralassen #ferminfontanes #jessikapadilla

Noticias Con Café 19/06/2024 El desempeño de Fermín Fontanés frente a las Alianzas Público Privadas que se supone que fiscalicen los contratos de privatizadores. ¿Será similar al de Luma Energy? El análisis de sus expresiones ayer. Lo que dijo de la contratación para construir una planta de gas metano en PR que negocia en NYC con tres proveedores. Las regalías de los músicos, más allá de la orquesta y de sus dueños. La crisis de energía mata a gente, dicen los portavoces de proveedores de servicios de salud. ¡Sintoniza y Comparte! #periodismoindependiente #periodismodigital #puertorico #rafaelithier #ferminfontanes #anaescobar

Noticias Con Café 19/06/2024 El desempeño de Fermín Fontanés frente a las Alianzas Público Privadas que se supone que fiscalicen los contratos de privatizadores. ¿Será similar al de Luma Energy? El análisis de sus expresiones ayer. Lo que dijo de la contratación para construir una planta de gas metano en PR que negocia en NYC con tres proveedores. Las regalías de los músicos, más allá de la orquesta y de sus dueños. La crisis de energía mata a gente, dicen los portavoces de proveedores de servicios de salud. ¡Sintoniza y Comparte! #periodismoindependiente #periodismodigital #puertorico #rafaelithier #ferminfontanes #anaescobar

Send us a Text Message.When my daughter Hope graced the podcast with her presence, her story wasn't just a chronicle of living with a single ventricle heart at 29—it was a profound testament to her strength amid her gender transition. Our conversation unveils the seamless integration of her heart health with her journey of self-discovery, all while providing tangible advice for those who feel the pull of the pen and the thrill of authorship. Hope's insights on her upcoming book light the way for aspiring writers, proving that even with life's hurdles, one's voice and story are paramount.Flipping through the pages of Hope's past, we're reminded of the days when storytelling was a fledgling passion, cultivated through pen pals and children's magazines. The revelation of a bucket list in college sparked a monumental shift from engineering to writing, a decision that charted the course for my current literary adventures. Sharing these moments isn't just about nostalgia—it's about tracing the delicate threads that weave together to form a writer's identity, culminating in the excitement of discussing her latest book.For anyone out there who's ever doubted the path of a writer, let this episode serve as a beacon. We'll journey through the landscape of crafting narratives, the role of supportive writing communities, and the reality of financial expectations in the writing world. The serendipity of connecting with a publisher keen on LGBT+ stories is a reminder that sometimes, the stars align in unexpected ways, providing the chance to see one's work in the hands of eager readers. Join us for a heart-to-heart that celebrates the written word and the unwavering spirit of those who dare to write it.Hope's previous Heart to Heart with Anna Appearances:Congenital Heart Defects and Gender Identity: https://www.buzzsprout.com/62761/11506572Celebrating 300 Episodes of “Heart to Heart with Anna"https://www.buzzsprout.com/62761/8240177Sports and Extra-Curricular Activities for CHD Survivorshttps://www.buzzsprout.com/62761/398939Surviving a Long Hospital Stayhttps://www.buzzsprout.com/62761/398934Writer's League of Texas Agents and Editor's Conference (2024)https://writersleague.org/calendar/2024-agents-editors-conference/Armadillocon (2024)https://armadillocon.org/d46/Rattling Good Yarnshttps://rattlinggoodyarns.com/Slug Tribehttp://www.slugtribe.org/We appreciate it when people support Hearts Unite the Globe podcasts. Thank you to our newest supporters -- Annie Ulchak (Patreon) and Judy Miller (Buzzsprout)!Support the Show.Anna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

Commentary by Dr. Candice Silversides

In episode 45 of The Heart Chamber Podcast, we dive into Aimee Mackovic's inspiring journey through a triple organ transplant during the pandemic. An accomplished poet and English professor from Austin, Texas, Aimee shares her battle with a congenital heart defect and subsequent heart and liver failures. Her memoir, "Contains Recycled Parts," available on Amazon, details this life-altering experience. Aimee was born with a congenital defect and needed the Fontan procedure at 15 months old. To her surprise, she learned at age 44, she would need a new heart and liver and then, eventually, a new kidney. We discuss the challenges she faced, including recovery, the importance of understanding medical information, and the invaluable role of community support. Aimee emphasizes the significance of emotional readiness and the impact of writing as a healing tool. Tune in to hear her incredible story of resilience and the life-saving power of organ donation.A Little More About Today's GuestAimee Mackovic was born with a congenital defect (a hole in the middle of her heart) and underwent her first open heart surgery at 15 months for a pulmonary banding, which was a temporary fix. That "fix" lasted until she was 22 years old. At 22, Aimee underwent another open-heart surgery to potentially now repair the hole. Due to the nature of the defect, a full repair was not possible, so they did a newly touted Fontan procedure, which was meant to be a bridge surgery to an eventual heart transplant. Well, another 22 years later with another hospital stay, she is admitted to Dell's Children Hospital in Austin, TX with heart and liver failure. The very complex and urgent nature of her case caused her to be taken on by Stanford Hospital in California, where she received her heart and liver on December 13th, 2019. She received a kidney transplant in June of 2022. In June of 2023, she moved back to Austin, TX, where she resumed her teaching life at Austin Community College and her social life with her friends. Her memoir, Contains Recycled Parts, is a humorous, gut-wrenching look at her triple-transplant journey.How to connect with AimeeInstagram: @aimeemackovicWebsite: www.aimeemackovic.comBook: Contains Recycled Parts - https://twosisterswriting.com/book/contains-recycled-parts/**I am not a doctor and this is not medical advice. Be sure to check in with your care team about all the next right steps for you and your heart.**How to connect with BootsEmail: Boots@theheartchamberpodcast.comInstagram: @openheartsurgerywithboots or @boots.knightonLinkedIn: linkedin.com/in/boots-knightonBoots KnightonIf you enjoyed this episode, take a minute and share it with someone you know who will find value in it as well. You can share directly from this platform or send them to:Open Heart Surgery with Boots

This week we review a recent survey study on the topic of junctional rhythm and sinus node dysfunction in the Fontan. How important is this finding in our Fontan patients? When should a patient with a Fontan undergo pacemaker insertion? Is the loss of AV synchrony the more important hemodynamic effect of junctional rhythm or is it chronotropic incompetence? Who should be considered for a possible endocardial, transvenous atrial pacemaker in the Fontan patient? These are amongst the questions posed to this week's guest, noted pediatric electrophysiologist and Professor of Pediatrics at OHSU, Dr. Seshadri Balaji. https://doi.org/10.1007/s00246-023-03296-6

This week we delve into the world of interventional cardiology and the Fontan when we review a recent report from the Children's Hospital of Philadelphia on the use of the "MitraClip" for the treatment of AV valve regurgitation in the congenital heart patient. Who would be a good candidate for this novel approach? What are the steps in planning or consideration of this technique in a congenital heart patient? How durable is this form of repair? These are amongst the many questions reviewed this week with this week's senior author, Professor of Pediatrics at the Children's Hospital of Philadelphia, Dr. Matthew J. Gillespie. DOI: 10.1002/ccd.30935

This week we enter the world of the adult congenital heart patient when we discuss Fontan associated liver disease with an ACHD expert, Dr. Katia Bravo-Jaimes of the Mayo Clinic. In this episode we discuss the role of intrahepatic transcriptomics and how genetic analysis of liver biopsy tissue may provide new insights into the pathophysiology of this disease process. How can differential gene expression in the liver of Fontan patients help to explain why some patients have mild versus others severe fibrosis or even frank cirrhosis? Can these insights provide hope for improved surveillance or therapy for this problem? Dr. Bravo-Jaimes provides the answers this week. https://doi.org/10.1016/j.jacc.2023.12.005

This week we enter the world of the adult congenital heart patient when we discuss Fontan associated liver disease with an ACHD expert, Dr. Katia Bravo-Jaimes of the Mayo Clinic. In this episode we discuss the role of intrahepatic transcriptomics and how genetic analysis of liver biopsy tissue may provide new insights into the pathophysiology of this disease process. How can differential gene expression in the liver of Fontan patients help to explain why some patients have mild versus others severe fibrosis or even frank cirrhosis? Can these insights provide hope for improved surveillance or therapy for this problem? Dr. Bravo-Jaimes provides the answers this week. https://doi.org/10.1016/j.jacc.2023.12.005

Commentary by Dr. Valentin Fuster

#25 Join host Boots Knighton as she welcomes Leigh Kamping-Carder, the mind behind The Heart Dialogues, to delve into the realities of living with a complex heart defect. She shares her journey of childhood surgeries from tricuspid atresia to navigating the uncharted waters of adult care. Leigh sheds light on the emotional toll of her condition, while offering hope and support to others facing similar battles. A Little More About Today's GuestLeigh Kamping-Carder is the writer of The Heart Dialogues, a free newsletter featuring candid conversations and writing for people born with heart conditions (and the people who care about them). She was born with a complex heart defect called tricuspid atresia and had three heart surgeries before the age of 4, including a Fontan operation. She is also a professional journalist, currently heading up the newsletters team at one of the top newspapers in the U.S. She has been a reporter, editor and digital journalist for a decade and a half, covering everything from luxury homes to innovation to arts and culture. How to connect with LeighNewsletter: theheartdialogues.substack.comTwitter: @Leigh_KC**I am not a doctor and this is not medical advice. Be sure to check in with your care team about all the next right steps for you and your heart.**How to connect with BootsEmail: Boots@theheartchamberpodcast.comInstagram: @openheartsurgerywithboots or @boots.knightonLinkedIn: linkedin.com/in/boots-knightonBoots KnightonIf you enjoyed this episode, take a minute and share it with someone you know who will find value in it as well. You can share directly from this platform or send them to:Open Heart Surgery with Boots

CardioNerds (Amit Goyal and Daniel Ambider) ACHD series co-chair Dr. Daniel Clark (Vanderbilt University), cardiology FIT lead Dr. Stephanie Fuentes (Houston Methodist Hospital), and Dr. Frank Fish, a Pediatric Electrophysiologist and the Director of the Pediatric Electrophysiology (EP) Lab at Monroe Carrell Jr Children's Hospital at Vanderbilt University. He is a board certified Adult Congenital Heart Disease (ACHD) physician and has a wealth of experience performing EP procedures in adults living with congenital heart disease. Audio editing was performed by student Dr. Shivani Reddy. In this episode, we discuss key concepts and management of electrophysiologic issues that we can encounter when caring for adults with congenital heart disease.  Arrythmias in adults with congenital heart disease can be intrinsic due to the defect itself or as a consequence of the interventions that they have undergone to palliate and/or repair these defects. The complex anatomy of these patients and the years of pressure and volume load make them not only exquisitely hemodynamically sensitive to arrhythmias (that may otherwise not be of much consequence to the general population) but they also make interventions (catheter ablation or device implant) complex. We therefore embark in a case-based discussion of patients with ACHD (Fontan circulation, Ebstein's anomaly and Tetralogy of Fallot) in an effort to highlight the presentation of arrythmias and the management strategy in this very important group of patients. The CardioNerds Adult Congenital Heart Disease (ACHD) series provides a comprehensive curriculum to dive deep into the labyrinthine world of congenital heart disease with the aim of empowering every CardioNerd to help improve the lives of people living with congenital heart disease. This series is multi-institutional collaborative project made possible by contributions of stellar fellow leads and expert faculty from several programs, led by series co-chairs, Dr. Josh Saef, Dr. Agnes Koczo, and Dr. Dan Clark. The CardioNerds Adult Congenital Heart Disease Series is developed in collaboration with the Adult Congenital Heart Association, The CHiP Network, and Heart University. See more CardioNerds Adult Congenital Heart Disease PageCardioNerds Episode PageCardioNerds AcademyCardionerds Healy Honor Roll CardioNerds Journal ClubSubscribe to The Heartbeat Newsletter!Check out CardioNerds SWAG!Become a CardioNerds Patron! Pearls - Electrophysiology in ACHD Patients with Fontan circulation have a high risk of developing atrial (and ventricular) arrhythmias and they are highly sensitive to the hemodynamic consequences that these arrythmias ensue.  The goal of therapy then should be to achieve sinus or atrial paced rhythm. Rate control should NOT the goal. Patients with Ebstein's anomaly have high arrhythmic potential. They can have multiple accessory pathways (especially right sided) which can in turn be associated with sudden cardiac death. We should have low threshold for EPS +/- catheter ablation in patients with WPW pattern. Patients with Tetralogy of Fallot have a unique risk for SCD that warrant ICD implant apart from the standard criteria (LVEF 180 ms) and surgical repair approach. Patient's anatomy is the major consideration when implanting devices (PPM/ICD). We ought to assess for residual intracardiac shunt at the atrial level and consider closing if feasible prior to placing a device. CRT has merit in systemic LV but less so in systemic RV. Notes- Electrophysiology in ACHD What should we know about atrial arrhythmias in a Fontan patient? Intraatrial re-entrant tachycardia (IART) is slower than typical atrial flutter with atrial rates generally

Today on Mushroom Hour we are blessed once more by the presence of Mycomaterial Specialist Ashley Granter. Along with Biofashion Designer Aurelie Fontan, Ashley is a founder of Osmose Studios - a multidisciplinary design studio dedicated to exploring how society should draw inspiration and processes from Mother nature. Working with mycelium as well as natural dyes and fabrics, they aim to bring forward beautiful design that doesn't cost the planet and actually fosters the regeneration of lost ecosystems.    TOPICS COVERED:   Birth of Osmose Studios    Working with Classic Biomaterials in New Ways    Fashion, Materials, Regenerative Design    Future of Biomaterials Rooted in Technologies of the Past?   Product Design Grounded in Consumer Experience    Dresses Made with Kombucha & Mycelium Leather   Interior Design made with Mycelium    Diverse Landscape of the Biomaterials Industry    Scaling Sustainably and Decentralized – like a Fungus   Integrating Waste Streams into New Materials    Genetic Modification vs Directed Evolution    Business' Role in Preserving Ecosystems and Biodiversity   Biomaterials as a Craft vs Mass Production   Working with Your Life Partner as a Business Partner    EPISODE RESOURCES:   Osmose Studio IG: https://www.instagram.com/osmose_labs/   Armillaria (fungal genus): https://en.wikipedia.org/wiki/Armillaria   Cantharellus (fungal genus): https://en.wikipedia.org/wiki/Cantharellus   Francis Crick's books: https://www.thriftbooks.com/a/francis-crick/219274/   "Synthetic Aesthetics" by Alexandra Daisy Ginsberg: https://www.daisyginsberg.com/work/synthetic-aesthetics-book