Patient Critical Podcast

AMS Healthcare ‘Hearing Your Voices’ panel on equity in digital healthcare & ensuring patients, physicians, and providers are supported. Held Nov. 4, 2020. With Alika Lafontaine, Dominik Nowak, Melissa Ngo, Laura Williams, PJ Mierau and Julie Drury. Visit AMS Healthcare to learn more.

Anna Foat understands business and technology, cares about patient rights and works to create better collaboration in digital health. An exploration of how to avoid past mistakes for a ‘made in Canada’ digital healthcare system that works. This wide ranging discussion with Anna includes specific advice for patients and a call to action everyone can take on!    

A couple weeks back the Infoway Digital Podcast delved into into Patient Empowerment with Annette McKinnon, Aidan Scott & our own PJ Mierau.   This is a frank, raw conversation exploring how digital interoperability, patient interoperability & government response are colliding in the age of COVID 19.

In the battle against COVID-19, caregivers and families are collateral damage. Their absence is being felt in harms to patients, extra duties and financial impacts for care providers and serious trauma for all involved. A roundtable on the urgent need for healthcare to involve caregivers, featuring Patient Critical Co-op members Julie Drury, Maggie Kerestici and Claire Snyman. Moderated by PJ ...

Internet professional Jesse Hirsh explores how COVID-19 is accelerating the maturity of peer to peer networks, relationships and trust–while at the same time flattening hierarchy of silos in society. Web | Twitter  

Cormac Russell discusses the enduring lessons of COVID-19, and how community and grassroots organizers are critical components of health, well-being and caring for each other. Twitter: @CormacRussell  |  Web: NurtureDevelopment.org

Doctor Danyaal Raza is an advocate for Pharmacare and evidence-based, values-based healthcare reform. He is chair of Canadian Doctors for Medicare and believes we live in a unique moment in time to finally accomplish Pharmacare. 170 organizations support Pharmacare Now. You can help! Contact your MP or MPP (Open North representative tool) and tell them what matters to you!

We talk with Susannah Fox, former Chief Technology Officer of the U.S. Department of Health and Human Services. Susannah is a vocal advocate of peer to peer communities’ ability to increase people’s access to information, data, & tools necessary to solve their own problems related to health & well-being.

A round-table podcast about Improving Patient Partnerships and avoiding pitfalls. With Jana Buhlmann, Mathieu Jackson, Nadia Hillier and Julie Drury, Inspired in part by Jennifer Johannesen‘s Cochrane Colloquium  and BC Support Unit keynotes. We explore the growing opportunities for meaningful patient paraticipation in the design and delivery of our healthcare…as well as the need to challenge institutional blind spots and ...

A discussion with Cormac Russell of Nurture Development, exploring the loneliness epidemic through a lens of community, strategies to move care to the communities where people live, and people powered health.

Exploring Basic Income, Pharmacare and other Big Ideas in healthcare with family physician, associate professor, author, advocate and Executive Vice President of Women’s College Hospital Danielle Martin.

Our discussion with Canadian Medical Association President Dr. Gigi Osler.  We cover a lot-including but not limited to expanding the scope of what we call healthcare, patients as partners in their care, the importance of Doctors considering politics, and voters demanding promises from politicians before the coming national Federal election.    

A discussion with Canadian journalist and author Andre Picard, exploring healthcare policy, what matters to Canadians and the importance of collective responsibility in culture change.

Exploring the value of peer-to-peer and online communities for patients, caregivers and healthcare advocates. A round-table discussion with Claire Snyman, Rachel Martens, Maggie Keresteci and Robin McGee. Show Notes: Story Library at Patient Revolution Storytelling and Medicine After Dr Google: peer-to-peer health care Involving disabled children and young people as partners in research: a systematic review Peer-to-peer Health Advice, Susannah ...

“A Canadian (Drug) sticker price that comes down -at all- is a big threat south of the border (to the US’s) automobile dealership sales technique for drugs (&) the world’s most inflated, most ridiculous, if I can say, list prices of medicines.” Steve Morgan believes National Pharmacare would serve Canadians better than the current system. Today Canada’s drug coverage is ...

An eye-opening discussion Internet researcher, speaker & technology commentator Jesse Hirsh. We explore how profitable ‘free’ services like GMail & Facebook really are, why companies with strong regulations & privacy laws create stronger businesses and industries, how Google knows when you’ve had your coffee & much more.  

Ed Brown is the Founder and CEO of Ontario Telemedicine, one of the largest, most active and integrated Telemedicine networks in the world. We explore ways Telemedicine and Digital Health is (sometimes slowly) transforming Healthcare for Canadians.

A conversation with KidsHelpPhone Vice President Alisa Simon (Service Innovation & Chief Youth Officer) about the evolution of Kids Help Phone into apps, online services & text-messaging in order to achieve their goal: to help children and youth in crisis across Canada.

Seema Nayani, practicing pharmacist & Pharmacist Leader at Canada Health Infoway working on PrescribeIT digital prescription service describes the goals, priorities & values behind PrescribeIT, a digital prescription system in Canada.

Aidan Scott wants to make mental health and digital health more understood and accessible. We discuss the possibilities of digital health in overcoming limitations of our healthcare system, and the need for transparency, inclusivity and regulations to guide the future of care.

Julie Drury (Twitter) is a caregiver, patient advocate, bereaved mom, inaugural chair of the Ontario Minister’s Patient and Family Advisory Council, a speaker & a runner. Julie occupies a unique intersection of patient and policymaking & shared her insights with us at the beginning of Digital Health Week 2018 (Nov 12, 2018).

Victor Montori is a clinician and researcher who believes a revolution of kindness & care is necessary to address corruption & dehumanizing industrialization in healthcare.

Alika Lafontaine is a social-media savvy physician and healthcare advocate interested in systems change, and the social determinants of health. Web: AlikaMD  | Twitter @AlikaMD “With the advances in technology and the way we transfer knowledge…it’s now achievable to create change in systems (and) mindsets…Patients, especially Indigenous patients, are feeling more and more that they have a voice, and that ...

Jane Thornton (Twitter) is an MD, Olympian & World Champion in Rowing. She is also founder of @MyActivIngrednt and an advocate for physical fitness and activity as a pillar of health and healthcare. Physical inactivity has been identified as a global pandemic: the fourth leading risk factor for death, worldwide. Is it time to start prescribing physical fitness? Show notes: Running man: ...

Sir Michael Marmot, past President, British Medical Association, Chair of the World Health Organization’s commission on the Social Determinants of Health (SDOH) joins us to discuss his seminal research. Released on the 70th anniversary of the founding of the UK’s National Health Service. We discuss the changing roles and targets of governments in creating better health, not simply care, and ...

Kidney cancer survivor, health policy advisor and patient engagement advocate Dave deBronkart discusses responsive design as metaphor for co-designed patient care, digital health, patient empowerment & reducing medical error, while keeping healthcare healthy by embracing patients as partners.

Dr. Christine Chambers is a Canada Research Chair, Professor of Pediatrics & Psychology…and mom. She’s passionate about helping children, engaging patients in research via social media & proving to people #itdoesnthavetohurt (web). We talk about meaningful inclusion of patients & all stakeholders in healthcare research, and much more. Find Dr. Chambers on Twitter or learn more about her.

Rachel Martens is a mother, parent engagement facilitator, patient research advocate & social media pioneer in Calgary, Alberta. Social media helped her learn to care for her son’s rare disease, and later became her voice to advocate for others. Coffee And Research (blog) Finding Community: Social Media for Families of Children with Disabilities (webinar) Twitter: @Raeofsunshine79

Australian Tim Blake is an engaged patient, former CIO for Tasmanian Department of Health & Human Services & founder of Semantic Consulting. Tim believes Engaged Patients are critical to the Digital Transformation in Healthcare. Read Tim’s thoughts on What Exactly Is Digital Health? Twitter: @timblake1978.

Digital Healthcare, from Healthcare Innovation Strategist Zayna Khayat’s Point of View. Zayna tackles Digital Health from innovation and business perspectives, having worked with Mars Innovation Hub, University of Toronto, Saint Elizabeth Healthcare & the Rotman School of Business in Canada, as well as REShape at Radboud University Medical Center in the Netherlands. Twitter: @ZaynaKhayat.

Patient Advocate Liz Salmi (TheLizArmy.com, Twitter, Facebook) & University Health Network’s Selina Brudnicki (myUHN, Selina on Twitter) discuss the #OpenNotes (twitter, web) movement promoting patient ownership & access to their health data.

Shanon McQuitty describes how, after her diagnosis of Rheumatoid Arthritis, she found a lifeline on social media. Now a Patient Advisory Board member at the Arthritis Research Canada, Shanon works in patient advocacy to help others. Twitter: @shanonmc.

J Tyler Moss is a patient, researcher & participant in Saskatchewan’s CHIP pilot. We discuss the value of patient access to labs, prescriptions, hospital & acute care visits, as well as empowering patients to add personal health information, set medication reminders and record upcoming appointments.

Aidan Scott is a TEDx speaker and lived experience voice for better #mentalhealth and #mhealth. Founder of speakbox.ca (in development). Aidan talks with us about the role of digital health, the importance of proactive healthcare & early interventions. Twitter: @aidanbox

TeachandLearnFM’s Dr. Daniel Pepe and his team create learning resources to answer questions submitted by patients. Their goal? To empower patients to take an active role in their healthcare.

A discussion with Alberta patient advocate Teri Price: When her brother Greg lost his fight with cancer, this compassionate & dedicated family created HealthArrows to honor his memory and advocate for other patients. (Twitter: @Gregswings). More about Alberta patient advocacy: imaginecitizens.ca. More about Greg’s journey: gregswings.ca.

A discussion with Robin McGee: Nova Scotia cancer survivor, advocate, psychologist & author (The Cancer Olympics). Robin shares her story of medical error & the importance of patients advocating for their care, in partnership with their care providers. (Twitter: @TCORobin).

Finance Minister Bill Morneau’s proposed tax changes, a primer on physicians running corporations & an interview with Ontario Medical Association President (Twitter: @shawn_watley). Links discussed in the episode: Fed Crackdown Will Nail Ontario Doctors and Cut Care, Medical Association Warns Will Bill Morneau’s Crackdown on Tax Avoidance Work? Some Doctors Have Tax Complaint But They’re Off Base Finance Minister Bill ...

Isobel Jordan (Twitter: @seastarbatita) & Donald Lepp (Twitter @DonaldLepp) share their journey as caregivers for their families. A fascinating glimpse into healthcare in Canada, full of insight for all who depend on Healthcare-now or in the future.