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Our final episode of Season 4 features our conversation with brain tumor survivor, author and patient advocate, Claire Snyman. Hsien, Sammy and Claire talk about her experience living through a serious illness, how helpful peer support can be for patients and families and her best advice for patient and families with a brain injury or tumor. For more information visit: waitingroomrevolution.com Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
Claire Snyman is an author, blogger and advocate for patient and healthcare collaboration. She is passionate about inspiring people to put their health in their own hands as a result of her own lived experience as an individual with a brain tumour and other chronic health conditions. She has co-authored a scientific study between neurosurgeons and patients and has developed The “TEAM Approach” to help people become more health confident in their health and health care. Claire is a TEDx Speaker, a member of the Canadian Medical Association's Patient Voice and is always looking for ways to increase communication and collaboration between patients, families and caregivers and the healthcare system to improve the patient experience. Her books Two Steps Forward – Embracing life with a brain tumor and most recently published, How to Save your Life in a Complex Health Care System, can be purchased on Amazon.com.
We have a special mini-series we're releasing this week: Engaging in Storytelling: A 3-part collaborative podcast series with SPOR Cast, Matters of Engagement and PEP Talks. We each cover a different angle on patient stories and storytelling - together they provide a rich picture of some of the challenges, concerns, and also opportunities when it comes to engaging in storytelling. We will be sharing all three episodes on our platforms. This is the first of 3, and it's produced by our friends at SPORCast: The Patient Story Experience: Cost or Benefit? In this episode, Bev hosts a conversation between an activated Patient Partner and a Trauma Informed Practice expert on patient storytelling; which is quite often the entry point of patient engagement in healthcare. We hope you enjoy it! If you're listening in order, The Matters of Engagement episode is up next (Wednesday), followed by PEPTalks (Thursday). [download transcript] Claire Snyman on twitter Marika Sandrelli on twitter SPORcast on twitter PEP Talks on twitter
In the battle against COVID-19, caregivers and families are collateral damage. Their absence is being felt in harms to patients, extra duties and financial impacts for care providers and serious trauma for all involved. A roundtable on the urgent need for healthcare to involve caregivers, featuring Patient Critical Co-op members Julie Drury, Maggie Kerestici and Claire Snyman. Moderated by PJ ...
Claire Snyman is an author, blogger and advocate for patient and healthcare collaboration. She is passionate about guiding people to put their health in their own hands. After her diagnosis with a non-malignant brain tumor, she realized the importance of partnering with her health care team and being her own advocate. CONNECT with Claire HERE - LISTEN to Claire's TEDx talk HERE - BeTheTalk is a 7 day a week podcast where Nathan Eckel chats with talkers from TEDx & branded events. Tips tools and techniques that can help you give the talk to change the world at BeTheTalk.com !
Claire Snyman is an author, blogger and advocate for patient and healthcare collaboration. She is passionate about guiding people to put their health in their own hands. After her diagnosis with a non-malignant brain tumor, she realized the importance of partnering with her health care team and being her own advocate. CONNECT with Claire HERE - LISTEN to Claire's TEDx talk HERE - BeTheTalk is a 7 day a week podcast where Nathan Eckel chats with talkers from TEDx & branded events. Tips tools and techniques that can help you give the talk to change the world at BeTheTalk.com !
Claire Snyman from Canada, talks about her personal experience when she was diagnosed with a rare benign brain tumour, a colloid cyst.. Claire went on to write the book ‘Two Steps Forward – Embracing life with a brain tumor’. She was inspired to start to write her book based off her journals. Two years later, and 70 000 words later, Two Steps Forward is now available in e-book and print copy! "It was in 2010, after a vertigo attack and the onset of migraines, that I was diagnosed with a rare benign brain tumour, a colloid cyst. I was 34 at the time and the mother of a 4-year-old and I heard the words that no one ever wants to hear: “You have a brain tumor.” My first thoughts were of my husband and son. I felt numb. As part of my treatment, I became part of the group of ‘watch and wait’ brain tumor patients around the world who are monitored with yearly MRI scans" Don't forget to check out the Aunty M Brain Tumours Website. (This Recording was held at Croydon Radio as a part of the Brain Tumour Thursday Show, Dates between 2013 and 2016)
This week, I spoke with Claire Snyman. Claire is a patient advocate with lived experience from the brain tumor community with a passion for inspiring people to put their health in their own hands. We talked about her personal experience, the pitfalls she discovered, and the TEAM approach she has developed to help herself and countless others navigate the medical system. You can find her online at http://twosteps.ca/ and on Twitter @clairehsnyman. You can also watch her TEDx talk here: https://www.youtube.com/watch?v=auocWaG2yHY.
Exploring the value of peer-to-peer and online communities for patients, caregivers and healthcare advocates. A round-table discussion with Claire Snyman, Rachel Martens, Maggie Keresteci and Robin McGee. Show Notes: Story Library at Patient Revolution Storytelling and Medicine After Dr Google: peer-to-peer health care Involving disabled children and young people as partners in research: a systematic review Peer-to-peer Health Advice, Susannah ...
In this episode, I have the pleasure to connect with Claire Snyman. We learn about the importance of creating your own health care team, not being afraid to ask questions and insisting for further tests when you know/feel that something is wrong with your health. Claire has been a victim of medical errors that happen too often in our healthcare system. After being diagnosed with a brain tumor, she decided to take her health into her own hands. Join us and listen to this inspiring story. You can also learn more about Claire Snyman, her books, blogs, presentation, workshop and more. Check out her website twosteps.ca.
Claire Snyman is an author, blogger and advocate for patient and healthcare collaboration. She is passionate about guiding people to put their health in their own hands. After her diagnosis with a non-malignant brain tumor, she realized the importance of partnering with her health care team and being her own advocate. CONNECT with Claire HERE - LISTEN to Claire's TEDx talk HERE - BeTheTalk is a 7 day a week podcast where Nathan Eckel chats with talkers from TEDx & branded events. Tips tools and techniques that can help you give the talk to change the world at BeTheTalk.com !
Claire Snyman is an author, blogger and advocate for patient and healthcare collaboration. She is passionate about guiding people to put their health in their own hands. After her diagnosis with a non-malignant brain tumor, she realized the importance of partnering with her health care team and being her own advocate. CONNECT with Claire HERE - LISTEN to Claire's TEDx talk HERE - BeTheTalk is a 7 day a week podcast where Nathan Eckel chats with talkers from TEDx & branded events. Tips tools and techniques that can help you give the talk to change the world at BeTheTalk.com !
Maureen touches upon the Humboldt Broncos tragedy and speaks with a survivor of a brain cancer diagnosis. Maureen talks with her guest, Claire Snyman, about persistence and perseverance in the face of medical errors.
Claire Snyman is an author, blogger and advocate for patient and healthcare collaboration. She is passionate about inspiring people to put their health in their own hands. Since being diagnosed in 2010 with a non-malignant brain tumor and brain surgery in 2012, she realized the importance of partnering with her healthcare team and becoming her body’s own advocate. She co-authored a collaborative study between patients and neurosurgeons at Johns Hopkins University: The impact of surgical resection on headache disability and quality of life in patients with colloid cyst (Cephalalgia, May 10, 2016). She presented this work at MedX-Ed in April 2017: Patient and health care professional collaborations – shaping the future. She recently initiated a new study focused on quality of life in patients with glioblastoma muiltforme, keen to ensure more information is available about this aggressive form of brain cancer. Her key focus is looking for ways to guide people to put their health in their hands and work with their healthcare partners to achieve better outcomes. She currently volunteers with the Brain Tumour Foundation of Canada as the chair of the BrainWAVE BC program. She can be found at www.twosteps.ca.