Podcasts about patient empowerment

In today's bonus episode of Out of Patients, I welcome back to the studio returning champion Gail Zahtz. We recently attended a super wonky, jargon-filled trade show, and we're here to break it all down for you—the listener— in ordinary human lay speak. The Association for Value-Based Cancer Care (AVBCC) is a behind-the-scenes organization deep in the subbasement of healthcare. Their purpose is to ensure that the "right patients" get prescribed the "right medicine" at the "right time," hopefully with minimal drama, while avoiding anyone going bankrupt. That's the gist. So strap in as we attempt to de-wonkify a bunch of acronyms in corporate bingo land, and maybe—we hope— you learn something along the way that can make your healthcare experiences suck a little less. Enjoy the show.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Dr. Siegel, who prefers to be called Bernie, not Dr. Siegel, was born in Brooklyn, NY. His surgical training took place at Yale New Haven Hospital, West Haven Veteran's Hospital and the Children's Hospital of Pittsburgh. He retired from practice as an assistant clinical professor of surgery at Yale of general and pediatric surgery in 1989 to speak to patients and their caregivers. In 1978, he originated Exceptional Cancer Patients, a specific form of individual and group therapy utilizing patients' drawings, dreams, images and feelings. ECaP is based on “carefrontation,” a safe, loving therapeutic confrontation, which facilitates personal lifestyle changes, personal empowerment and healing of the individual's life. The physical, spiritual and psychological benefits which followed led to his desire to make everyone aware of his or her healing potential. He realized exceptional behaviour is what we are all capable of. In 1986 his first book, Love, Medicine & Miracles was published. This event redirected his life. Many more books followed including Peace, Love & Healing, How to live Between Office Visits & Prescriptions for Living. He is currently working on other books with the goal of humanizing medical education and medical care, as well as, empowering patients and teaching survival behaviour to enhance immune system competency. Bernie wants to help people fix their lives before they are broken, and thus not have to become strong at the broken places. http://berniesiegelmd.com/

Welcome to the series finale of The Cancer Mavericks. In this final episode, we reflect on the first seven episodes through the lens of history and progress with a series of insightful conversations featuring some of healthcare's most influential and visionary voices across the past four decades. If history is a teacher, we have learned that change can happen, albeit slowly. But it is only when the people stand up, organize and activate their voices demanding change, that the culture will shift, the institutions will pivot, and the very system itself will be forced by the will of the citizens to bend towards the arc of justice. Thank you for joining us for this groundbreaking series. If you like this series, please leave a review and a rating on your favorite podcast app. To learn more about The Cancer Mavericks, visit https://CancerMavericks.com. To learn more about OffScrip Health, visit https://OffScrip.com.FEATURED VOICESGil BasheChair Global Health and Purpose, FINN PartnersJohn D. Carpten, Ph.D.President's Cancer Panel (Emeritus)Director, Institute of Translational GenomicsKeck School of Medicine at USCDeanna DarlingtonPresident at Links2EquityKenny KaneYoung Adult Cancer Advocacy PioneerCo-Founder/CEO, Stupid Cancer (Former)Margaret LawsPresident and CEO, Hope LabLisa C. Richardson, MD, MPHDivision Director, Cancer Prevention and Control at The CDCCatharine Young, Ph.D.Assistant Director of Cancer Moonshot Engagement and PolicyThe White HouseSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

In this episode, Jodie Lisenbee and I are talking all about reproductive health and patient empowerment. Jodie and I met back in college. We studied human development together at UC Davis and well, let's just say she hasn't stopped studying since! Jodie Lisenbee is a PhD Candidate in Clinical Health Psychology at the University of North Carolina at Charlotte. Her research centers on psychosocial stress during the perinatal period, especially labor and delivery experiences. Clinically, Jodie specializes in perinatal mood and anxiety disorders (PMADs) and childbirth trauma. She is currently an Obstetric Psychology Intern at Atrium Health in Charlotte, North Carolina, where she provides psychotherapy to women who are pregnant, postpartum, or experiencing other reproductive health challenges. Jodie is also a DONA-certified birth doula, and before graduate school, she volunteered in this capacity for several years with the San Francisco Homeless Prenatal Program and at San Francisco General Hospital. Jodie has a strong lifelong commitment to birth equity and reproductive justice work, and her passion for empowering others shines through in all that she does. Jodie holds an MA in Psychology from the University of North Carolina at Charlotte and two BS degrees in Psychology and Human Development from the University of California at Davis. In her free time, Jodie enjoys spending time with her partner and their two Mini Australian Shepherds exploring the outdoors and learning new tricks.  In this episode, we'll chat about:  How we can better support women mentally and emotionally during pregnancy and postpartum  The power in validating each other's experiences and helping people feel like they aren't alone  The outside pressures and expectations of what certain seasons in life are supposed to be like Taking care of ourselves and showing self compassion is actually a great way to show compassion to others How to be more empowered while getting medical care and taking medical advice  Her method on how to ask informed questions in medical situations: use your B.R.A.I.N. Resources:  Postpartum Support International (PSI): https://www.postpartum.net/ Information, social support, and informed professional care to deal with mental health issues related to childbearing. 20+ free online support groups: https://www.postpartum.net/get-help/psi-online-support-meetings/ National Maternal Mental Health Hotline: https://mchb.hrsa.gov/national-maternal-mental-health-hotline 24/7, free, confidential hotline for pregnant and new moms in English and Spanish Call or text 1-833-9-HELP4MOMS (1-833-943-5746)   Links:  Start a Squarespace site today! [affiliate link] Shop Spark*l Bands (Use Code Kiah10 for 10% off) SparklBands - Luxury Hand Crafted Bands for your Apple Watch – Spark*l [affiliate link] Sign up for my email newsletter! Join the Women's Retreat waitlist! FREE Habit Tracker Check out the Backroad Cowgirls site! Shop the Coach Kiah Store. Use code climb10 for 10% off your first purchase! Let's hang out on social media and keep the conversation going! Connect with me on Instagram and Facebook. Some of the links mentioned are affiliate links, which helps to support this podcast at no additional cost to you. Make sure to hit subscribe so you don't miss out on future episodes. If you like what you heard, take a moment to leave a 5-star review! Find the complete show notes here: https://www.coachkiah.com/blog/reproductive-health-and-patient-empowerment-with-jodie-lisenbee

Today, I proudly welcome my cancer survivor comrade at arms, Jen Singer. Jen's got the trifecta of "shit happens," having survived cancer, heart failure, and "COVID Classic" back in February of 2020 when no one had any idea what the hell was going on. She is the creator of "How To Be Sick," patient-friendly ebooks called "The Just Diagnosed Guides" to provide the newly diagnosed with the information they really need to know now. Because who actually knows what they need to know when they never knew they needed to know it? She's an outspoken professional despiser of Dr. Google, which I think we could all agree is the worst place to go when bad things happen. And as fellow cancer survivors, we bonded over how the hell we're both still alive all these years later through humor, empathy, and virtual cocktails. Enjoy the show.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

I was privileged to welcome Dr. Danielle Carnival, White House Cancer Moonshot Coordinator, to the studio. We talked about the President's priorities, principal directives, and legislative strategies, as well as what Americans can look forward to in the coming months and years through this ambitious and transformational National initiative. Carnival, who has a Ph.D. in neuroscience, served as chief of staff and senior policy director for the 2016-2017 White House Cancer Moonshot Task Force. Subsequently, she served as vice president of the Biden Cancer Initiative. She's also a friend of Wegman's. So there's that, too. To learn more about the Whitehouse Cancer Moonshot initiative, visit https://www.whitehouse.gov/cancermoonshot. Enjoy the show.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Today on the show, I welcome Vikram Bhaskaran, and Dr. Rohan Ramakrishna (Chief of Neurological Surgery at New York Presbyterian) live in-studio to talk about Roon, their intriguing new cancer navigation platform for patients and caregivers. Roon is personal to Vikram as his whole career shifted from Pinterest executive to caring for his Father when he was diagnosed with ALS. Roon claims to be "the most supportive place online for people navigating complex health conditions, starting with Glioblastoma." so we power-test how that holds up against unmet patient needs. Rohan is only the second neurosurgeon I've had on the show, so, as a brain cancer survivor, I naturally asked him all sorts of pointed questions like, "What's it like to touch someone's brain?" These guys are the real deal with core compassion for empathy in medicine and helping patients in need access what they never knew they needed. Enjoy the show.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Today we're dropping a very special throwback to an early episode of Out of Patients.Too often, patients are blatantly taken advantage of by Industry who profit off of our stories and our experience dealing with a disease we didn't ask to have. If our experience is so critical to Industry's bottom line, there should exist fundamental compensation standards under which which they operate. Period.Matthew Zachary welcomes OffScrip Media Senior Producers Andrew MacDowell (Co-Founder and COO,) Jen Horonjeff (Founder/CEO of Savvy Coop) and Sandy Vassos (Nonprofit Executive and OffScrip Media Advisor for Strategic Relationships)See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

The amazing Victoria Fenton joins me today from across the pond in England to share one of the greatest British accents I've ever welcomed to the program. Well, that and the fabulous feeling when you know something is wrong with your body, and no medical professional will take you seriously while regurgitating back to you that it's all in your head. Victoria was misdiagnosed for over a decade as a teenager while suffering from all sorts of life-threatening symptoms. Consistently greeted with "You have mental health issues. Get over it." she was finally diagnosed with Ehlers-Danlos Syndrome (EDS), a group of hereditary disorders of connective tissue. She realized that when you have no control over something, it helps you take control of it. She chose to immerse herself in natural language processing and cognitive behavioral therapy. She soon realized the obvious: Our minds and our bodies can control the way we interact with the universe around us. Not heal. Not sure. But help manage the way we deal with stressors. Enjoy the show.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Today we're dropping a very special throwback to a bonus episode of Out of Patients. Out of Patients is just one of many shows on the OffScrip Health network – and we want to make sure all of our excellent podcasts are on your radar!The Heart of Healthcare is a show that explores the social determinants of health, including our food system, housing, climate change, and more. It's hosted by long-time healthcare advocate Halle Tecco. Halle recently had the opportunity to welcome Mark Cuban to the show. The two hit it off and talked about the soaring costs of prescription drugs and his new venture – Mark Cuban Cost Plus Drug Company. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

My guest today is Dr. Selin Kurnaz, Founder and CEO of Massive Bio, a company that is as impressive as it sounds. Its mission is to solve one of the single most critical scathing holes in healthcare: the "last mile" of clinical trial enrollment. What does that mean? You'll find out during our conversation, and rightfully so; the explanation will further deepen your pre-existing disdain for "the system." Selin is a no-BS serial entrepreneur who defines herself as a "non-status-quo businesswoman." whose sole purpose is to ensure every cancer patient gets access to a clinical trial; because only 20% of all patients that qualify for a clinical trial never actually fully enroll in that trial. And that is not OK. All that and more on the show today, let's get started.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Mat The W and Elura Thou Nanos talk about celebrity musician forays into mental health advocacy, doctors doing really bad things and recent SCOTUS arguments on California's pork regulations. Oink!See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

On the show today, Matthew is joined live in-studio by Larry Reines, a young adult rare disease advocate and Founding Member of the Aaron Myer Consulting Group. From humble beginnings as a 12-year-old paperboy learning the ropes of supply chain, customer service, and accounting, his life took a nasty turn when he was diagnosed with an extremely rare condition known as Progressive Myeloproliferative Disorder. 27 years later, he's still here and is thriving as USA Swimming certified coach, and master of his own domain as a business leader, philanthropist and patient advocate for young adults and the rare disease community.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Elura and Matthew are joined by PrEP advocate and Tub Talks host Damon Jacobs, LMFT to give a monkeypox update and discuss two stories relating to the Affordable Care Act. Damon also tells his own story of trying to access the monkeypox vaccine in New York earlier this summer.Here are the three extra headlines you don't want to miss:Your dog's nose knows if you're feeling stressed out via NBCRecord numbers of nurses are quitting the NHS in England, figures show via BBCBiden Vaccine Mandate for Health Workers Survives Supreme Court Appeal via BloombergSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Elura and Matthew are joined by PrEP advocate and Tub Talks host Damon Jacobs, LMFT to give a monkeypox update and discuss two stories relating to the Affordable Care Act. Damon also tells his own story of trying to access the monkeypox vaccine in New York earlier this summer.Here are the three extra headlines you don't want to miss:Your dog's nose knows if you're feeling stressed out via NBCRecord numbers of nurses are quitting the NHS in England, figures show via BBCBiden Vaccine Mandate for Health Workers Survives Supreme Court Appeal via BloombergSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

In today's special bonus episode, Matthew welcomes the venerable Dr. Mitzi Krockover to the show. Mitzy is a board-certified internist, former VP of Women's health at Humana, and the Founding Medical Director of the Iris Cantor-UCLA Women's Health Center. What makes this episode even more remarkable is that Mitzi's acclaimed podcast, Beyond The Paper Gown, has joined the OffScrip Health podcast network as one of our flagship programs. Beyond The Paper Gown—available wherever you listen to your podcasts—is committed to engaging, educating, and inspiring a community of women to achieve optimal health and well-being and to effect meaningful change on the systems that impact women's health. Her guests have included some of the most influential and inspirational entrepreneurs leaning into today's age of digital health, diagnostics technology, and appreciation for how social media has transformed how patients engage with—and trust—medicine. Today's conversation focuses on a recent episode of her show entitled "Aftershocks: Unexpected Consequences Of The Roe v. Wade Decision." See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Dr. David Fajgenbaum is many things, but for the purposes of this episode, let's just say he went from an all-star college athlete to being read his last rites in a matter of weeks. In addition to his tenure as an Assistant Professor of Medicine at UPenn's Perelman School of Medicine, David is the author of Chasing My Cure: A Doctor's Race To Turn Hope Into Action. Why? Well, because he experimented on himself to discover the very medicine that would save his life and others. Born of his condition, David then co-founded the Castleman Disease Collaborative Network, a global initiative dedicated to accelerating research and treatment for Castleman disease (CD) to improve survival for all patients with CD. He's young. He's smart. He's funny. And he's someone you're definitely going to want to be friends with. Enjoy the show.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

P4A's 2 part -Patient Empowerment podcast series has been released. Our incredible panel of experts Laurence Woollard, Neil Bertelsen & Sophie Schmitz are back with us to carry on the discussion in part 2 on true patient empowerment and really looking at the WHY's! Why should drug manufacturers involve & listen to and involve the patients. What are the implications, if any, for drug manufacturers who do not include the patient voice. How can we bring all stakeholders together to work completely new approaches to medicine approval and patient access. Lastly, we will look at initiatives or services our panel are offering to try to bridge the gaps and barriers for sustainable patient access. P4A's''Let's talk rare'' monthly podcasts are available wherever you listen to your podcasts. If you are a drug manufacturer and you haven't yet listened, this needs to be at the top of your to do list! If you missed out on part 1 - listen here: https://spotifyanchor-web.app.link/e/hOBI3UqkPtb Hosts: Georgie Rack (G-Rack) & Owen Bryant (OB1) Produced by: Operations Team Links: P4A's PCAC: https://partners4access.com/services/pc-council/ Part One: Patient Empowerment: https://spotifyanchor-web.app.link/e/hOBI3UqkPtb ABPI article in recognition of Rare Disease Day 2022 - “Moving beyond box-ticking and lip-service - why patient involvement matters in a new era of ATMPs for rare diseases” James Lind Alliance Priority Setting Partnership - “Setting priorities for bleeding disorders - Final report” (2018) “More than a Top 10: How James Lind Alliance Priority Setting Partnerships transform research, people and organisations” (2019)

Matthew Zachary and Elura Nanos discuss an uptick in longterm birth control use by teens, how the CDC is subtly changing its COVID messaging in plain sight, and how one hospital in Virginia deserves lots of attention for the fuckery it's caused its patients.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.