MS Warrior, Brain Surgery Survivor, Trigeminal Neuralgia Warrior, Filmmaker, CEO. Join me as take on this wild journey called life.Living with Chronic Illness: It's not just about the tough days, but also about the triumphs, big and small. I'll share my stories, the highs, the lows, and everything in between. From personal struggles to unexpected joys, it's all here, raw and unfiltered.Searching for Grace: How do we find grace in the chaos? Together, we'll explore strategies to cope, ways to embrace our realities, and how to thrive despite the challenges. This podcast is more than just about coping; it's about flourishing. Whether you're someone living with a chronic illness, know someone who is, or are just curious about this journey, this podcast is for you. Let's laugh, cry, and learn together.
Send us a textIn this episode, I'm diving into the wild world of dating in your 40s—while living with a chronic illness. I'll be sharing some personal stories from my latest birthday, those awkward 'getting to know you' moments, and how self-care has become my top priority as I navigate relationships. I'll also talk about the ups and downs of opening up about my health with potential partners. Spoiler alert: it's not always easy! But through it all, I'm learning to give myself (and others) a little more grace on this journey of love and life. Tune in for some laughs, real talk, and a reminder that we're all just figuring it out as we go!Follow me on Instagram @martis_mslifeVideo Pod: https://youtu.be/-Pl4AV5LUm4?si=nXznLhHzm7F9a8sMSend me a question and I will share it on the pod!: marti@marthines.com www.martihines.comProduced by Natalie Byrdsong
Send us a Text Message.In this episode, I open up about my journey with multiple sclerosis, starting from my diagnosis story to where I am today. I share the early symptoms I experienced, the shock of the diagnosis, and how I've gradually moved towards acceptance and advocacy. I talk about the importance of giving ourselves grace and making room for the wide range of emotions that come with living with a chronic illness. I also emphasize the urgent need for more resources and support for the MS community.Follow me on Instagram @martis_mslifeVideo Pod: https://youtu.be/-Pl4AV5LUm4?si=nXznLhHzm7F9a8sMSend me a question and I will share it on the pod!: marti@marthines.com www.martihines.comProduced by Natalie Byrdsong
Send us a Text Message.In this episode, I open up about my feelings of resentment, anger, and bitterness towards others who complain about their problems. I discuss the shame and secrecy that often surround these emotions and the ongoing nature of living with MS. While I strive to be positive and hopeful, I share my struggles with the darkness and hopelessness that sometimes take over. I emphasize how important it is to feel validated and heard during low moments and remind you to give yourself grace. Remember, your loved ones will be there for you, even in the toughest times.Follow me on Instagram @martis_mslifeVideo Pod: https://youtu.be/-Pl4AV5LUm4?si=nXznLhHzm7F9a8sMSend me a question and I will share it on the pod!: marti@marthines.com www.martihines.comProduced by Natalie Byrdsong
Send us a Text Message.In this episode, I'm thrilled to share my recent trip to San Francisco, where I was invited by Kyverna Pharmaceuticals to learn about their pioneering CAR T cell therapy, currently in clinical trials. This therapy holds incredible promise for those of us living with multiple sclerosis and other chronic illnesses. My visit left me filled with hope and excitement for the potential breakthroughs in treatment that could bring much-needed relief and even a cure. Join me as I delve into the fascinating world of CAR T cell therapy, explore its potential impact on our lives, and discuss what this could mean for the future of chronic illness treatment. This is an episode you won't want to miss!Follow me on Instagram @martis_mslifeVideo Pod: https://youtu.be/-Pl4AV5LUm4?si=nXznLhHzm7F9a8sMSend me a question and I will share it on the pod!: marti@marthines.com www.martihines.comProduced by Natalie Byrdsong
In this episode, Katie Cavan shares her journey with long COVID and POTS, discussing the challenges of securing a diagnosis and managing a range of debilitating symptoms. She emphasizes the importance of self-advocacy in the face of skepticism and setbacks. Katie opens up about the struggle for validation and the need for support while navigating this complex journey. Tune in to hear her insights and advice for others facing similar battles, offering a message of resilience and as always giving oneself grace.Follow me on Instagram @martis_mslifeVideo Pod: https://youtu.be/-Pl4AV5LUm4?si=nXznLhHzm7F9a8sMSend me a question and I will share it on the pod!: marti@marthines.com www.martihines.comProduced by Natalie Byrdsong
In this episode, I delve into the recent changes to Disney's Disability Access Service (DAS), sharing my personal experiences and frustrations. Despite facing a lack of empathy from a cast member during a Zoom interview and an unhelpful response from guest services, I remain resolute in advocating for change. I recount the surprising moment when Disney's President, Bob Iger, replied to me, underscoring the importance of speaking up. Tune in to hear my experience and my call to action for inclusivity and accessibility at Disney parks.Follow me on Instagram @martis_mslifeVideo Pod: https://youtu.be/-Pl4AV5LUm4?si=nXznLhHzm7F9a8sMSend me a question and I will share it on the pod!: marti@marthines.com www.martihines.comProduced by Natalie Byrdsong
In this episode, I open up about my recent health struggles and the profound emotional toll they've taken on me. Living with an incurable disease has been incredibly challenging, especially coming to terms with situations that can't be fixed or where answers are elusive. I share my personal journey with optic neuritis, the constant fear of relapse, and the irreversible damage revealed by my MRI results. Through candid reflections on anger, resentment, and grief, I navigate the invisible losses that accompany chronic illness. Join me as I emphasize the importance of self-compassion and discovering meaningful ways to live fully despite the pain.Follow me on Instagram @martis_mslifeVideo Pod: https://youtu.be/-Pl4AV5LUm4?si=nXznLhHzm7F9a8sMSend me a question and I will share it on the pod!: marti@marthines.com www.martihines.comProduced by Natalie Byrdsong
In this episode, I open up about my personal fertility journey, sharing the challenges and emotional decisions I've faced. From freezing my eggs to navigating IVF, and the complexities of finding a sperm donor, I discuss it all. I'll also touch on how my health has influenced my path and the tough choices I've had to make. Join me as I explore the importance of giving oneself grace and the acceptance that changing one's mind is part of the journey.Follow me on Instagram @martis_mslifeVideo Pod: https://youtu.be/-Pl4AV5LUm4?si=nXznLhHzm7F9a8sMSend me a question and I will share it on the pod!: marti@marthines.com www.martihines.comProduced by Natalie Byrdsong
In this episode, I reflect on my three-month podcast journey and the joy it has brought me. I share my recent travel experiences, revealing how I managed to fly first class for most of my flights using points and miles. I emphasize the importance of understanding the points game and provide valuable resources and tips for maximizing travel rewards. I encourage all listeners to take advantage of these opportunities for comfort and ease while traveling. Join me for an enlightening conversation on enjoying the perks of travel without breaking the bank.References:IG @pizzainmotion@mommypoints@kerrpoints Slack GroupPizza Talks https://launchpass.com/pizzatalkstravel/monthlytrialPodcast Miles to Gohttps://podcasts.apple.com/us/podcast/miles-to-go-travel-tips-news-reviews-you-cant-afford-to-miss/id1357202594Follow me on Instagram @martis_mslifeVideo Pod: https://youtu.be/-Pl4AV5LUm4?si=nXznLhHzm7F9a8sMSend me a question and I will share it on the pod!: marti@marthines.com www.martihines.comProduced by Natalie Byrdsong
In today's episode, I dive deep into how turning 40 has reshaped my relationships and the way I navigate friendships, especially in light of my journey with multiple sclerosis (MS). I'll share the challenges I've faced in maintaining these connections and why setting boundaries has become essential for my well-being. We'll explore the importance of being transparent and communicative and how these tools help manage the shifts in my personal life. Join me as we discuss the delicate balance of self-care and relationship management, and why it's crucial to prioritize peace over pleasing everyone.Follow me on Instagram @martis_mslifeVideo Pod: https://youtu.be/-Pl4AV5LUm4?si=nXznLhHzm7F9a8sMSend me a question and I will share it on the pod!: marti@marthines.com www.martihines.comProduced by Natalie Byrdsong
As I dive into the latest headlines, I'm hit hard by the news of Harvey Weinstein's overturned verdict. It's a gut-wrenching reminder of the uphill battle survivors face. Sharing my own story of assault, I confront the power imbalances and systemic hurdles within the entertainment world. Through the pain, I find solace in the notion of self-forgiveness and the promise of a brighter tomorrow. Join me on this journey as we navigate through the shadows, seeking light and justice in a world that often denies both.Follow me on Instagram @martis_mslifeVideo Pod: https://youtu.be/-Pl4AV5LUm4?si=nXznLhHzm7F9a8sMSend me a question and I will share it on the pod!: marti@marthines.com www.martihines.com
Come along with me for a heartfelt conversation with Hillary Lofton-Mosley, where we dive into her journey with multiple sclerosis (MS). From the whirlwind of diagnosis to unexpected surprises like a surprise pregnancy, Hillary shares her story with honesty and a sprinkle of humor. We'll laugh, we'll cry, and we'll navigate the twists and turns together, exploring resilience, finding support, and learning to embrace life's surprises. So settle in and join us as we share moments of strength and the importance of finding joy in the midst of challenges. This is an episode you won't want to miss!Follow Hillary @hillaryerinl13Follow me on Instagram @martis_mslifeVideo Pod: https://youtu.be/-Pl4AV5LUm4?si=nXznLhHzm7F9a8sMSend me a question and I will share it on the pod!: marti@marthines.com www.martihines.com
In this heartfelt chat, my sister Alisha and I dive deep into the impact of my MS diagnosis on our sisterhood. We go back in time and reflect on the rollercoaster of emotions we've experienced, from denial to acceptance, and how it's reshaped our relationship. Through laughter and tears, we share the little moments of understanding and support that have carried us through. It's a story of love, growth, and learning to communicate in a whole new way. Join us for a cozy chat filled with warmth, sisterly love, and a dash of courage.Follow Dr. Hines on IG @_dralishajoy_Follow me on Instagram @martis_mslifeVideo Pod: https://youtu.be/-Pl4AV5LUm4?si=nXznLhHzm7F9a8sMSend me a question and I will share it on the pod!: marti@marthines.com www.martihines.com
In this episode, I share a journey that's close to my heart—MS Awareness Month. It's a time filled with activities and events I'm deeply involved in, all aimed at raising awareness for Multiple Sclerosis (MS), a condition that's part of my life. I'm incredibly thankful for the support I receive; it means the world to me. Yet, I won't shy away from admitting the anxiety that comes with asking for help. This month, I remind myself and all of you about the importance of self-care. It's easy to forget, especially when you're fighting for a cause so personal.Living with MS is unpredictable. The fear of flares is a constant shadow, but it's not all doom and gloom. I've learned that while MS doesn't define us, it undeniably shapes our lives. This episode is a reflection of the strength and resilience found within the MS community—a community I'm proud to be a part of.Follow me on Instagram @martis_mslifeVideo Pod: https://youtu.be/-Pl4AV5LUm4?si=nXznLhHzm7F9a8sMSend me a question and I will share it on the pod!: marti@marthines.com www.martihines.com
Curious about life with narcolepsy? Join me in an eye-opening conversation with my dear friend Lauren Thomas. We unpack her journey living with Narcolepsy Cataplexy, from navigating treatment to her unforgettable experience speaking at the White House. Tune in as we explore the importance of advocating for sleep equity and the personal challenges of seeking diagnosis. Lauren's story is a testament to resilience and the power of advocacy. Don't miss out on this insightful discussion that sheds light on the realities of living with multiple chronic illnesses and the importance of support. Check out out our first episode together https://youtu.be/HJjbZYJs1tA?si=imAcqyzk4CtAcmg3Follow Lauren on IG @lmt826Follow Cheurlin Champagne @cheurlin1788Follow me on Instagram @martis_mslifeVideo Pod: https://youtu.be/-Pl4AV5LUm4?si=nXznLhHzm7F9a8sMSend me a question and I will share it on the pod!: marti@marthines.com www.martihines.com
In this chat, I get real with my friend Kyle about our wild ride with multiple sclerosis and how we tackled the Run Disney Marathon together. Picture this: we met during those crazy pandemic times, thanks to a friend who thought we'd hit it off – and boy, were they right. Kyle spills the beans on what went down when he first got his diagnosis and we dive into why it's super important to have people in your corner and how accepting something like MS is a journey all on its own. And running? For Kyle, it turned out to be the best kind of escape. Fast forward to us braving the Disney Marathon, and let me tell you, it was no walk in the park. We're talking overheating, the whole nine yards, and even why gummy bears became our go-to race fuel. But it wasn't all about the run; we also share the scoop on how we do Disney with MS, like finding the best spots to chill and why sometimes, you've just gotta listen to your body and take it easy. So, if you're up for a mix of laughs, some honest-to-goodness advice, and how to keep going when things get tough, you're gonna want to tune in to this one.Follow Kyle on IG instagram.com/therealkylestephenSubscribe to Kyle's YouTube https://youtu.be/8SkQqs4tEOo?si=0Wbu3pODDOme1zKoFollow me on Instagram @martis_mslifeVideo Pod: https://youtu.be/-Pl4AV5LUm4?si=nXznLhHzm7F9a8sMSend me a question and I will share it on the pod!: marti@marthines.com www.martihines.com
In this episode, I open up about the silent battles with MS pain and its sneaky way of messing with friendships and daily life. I touch on the tricky bits of explaining what this pain feels like and the extra stuff you've got to juggle when you're living with a chronic illness. It's a bit about the loneliness and the guilt trips, too, and those hidden struggles that aren't always obvious. I challenge the idea that being good at handling pain means it doesn't hurt as much, stressing the need for more empathy and understanding. I wrap up by encouraging folks with MS to seek support and be easy on themselves, highlighting the unbeatable strength it takes to face chronic pain day in, day out.Follow me on Instagram @martis_mslifeVideo Pod: https://youtu.be/-Pl4AV5LUm4?si=nXznLhHzm7F9a8sMSend me a question and I will share it on the pod!: marti@marthines.com www.martihines.com
In this episode, I'm letting you in on a journey that turned my world upside down. It's about my fight with trigeminal neuralgia, a term that was as foreign to me as the unimaginable pain it brought into my life. This isn't just a story about physical pain, though. It's about hitting roadblocks when you're desperately seeking help, making tough choices that feel like gambles, and finding light in the darkest of places. I've had moments of feeling utterly lost, battling not just the condition but the very people supposed to help me navigate it. Through all the turbulence, I discovered not just the power of self-advocacy but the deep resilience within me. So, come along as I share the raw, unfiltered chapters of this journey, with all its ups and downs, and how it's reshaped my outlook on life.Additional Links on TN and Brain Surgery: https://youtu.be/eOeTLcOskx0?si=OIqCizPu3n-twwtXhttps://youtu.be/4GfpwU3meHE?si=nyVUzm6yFD12Rw5sFollow me on Instagram @martis_mslifeVideo Pod: https://youtu.be/-Pl4AV5LUm4?si=nXznLhHzm7F9a8sMSend me a question and I will share it on the pod!: marti@marthines.com www.martihines.com
Navigating the dating world in 2024 with a chronic illness is like embarking on an unpredictable journey, where every interaction feels like stepping onto uncharted territory. Gone are the days of swiping right for me; now, it's about finding genuine connections in real-life encounters. Deciding when to reveal my illness is a delicate dance, akin to timing a pivotal scene in my own story. Yet, through this process, I've learned to embrace every facet of myself, seeing my condition not as a barrier but as part of my unique narrative. It's about finding someone who appreciates the full, unedited version of me.Follow me on Instagram @martis_mslifeSend me a question and I will share it on the pod! marti@marthines.com
Just wrapped up the first month of 2024, and honestly, it's been a struggle. After enduring 17 long months filled with pain and feeling like no one really got what I was going through, I've finally gotten some answers. But now, I'm left wondering, "What comes next?" It's like standing at a crossroads after a long, tiring journey, trying to figure out the direction to head in. It's a mix of relief at having some clarity but also uncertainty about the future.Follow me on Instagram @martis_mslifeSend me a question and I will share it on the pod! marti@marthines.com
Welcome to my very first podcast episode!Who am I? I'm just like you – someone navigating the unpredictable waves of life but with a little twist. I live with a chronic illness, a companion that's as challenging as it is enlightening. In this debut episode, I'm throwing open the doors to my world, inviting you to join me on a journey that's as real as it gets.Living with Chronic Illness: It's not just about the tough days, but also about the triumphs, big and small. I'll share my stories, the highs, the lows, and everything in between. From personal struggles to unexpected joys, it's all here, raw and unfiltered.Searching for Grace: How do we find grace in the chaos? Together, we'll explore strategies to cope, ways to embrace our realities, and how to thrive despite the challenges. This podcast is more than just about coping; it's about flourishing.Join Me: Whether you're someone living with a chronic illness, know someone who is, or are just curious about this journey, this podcast is for you. Let's laugh, cry, and learn together.Here's to the first of many episodes – where real talk meets real life. Can't wait to have you along for the ride!
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