Podcasts about capitol hill day

After being diagnosed with psoriasis and psoriatic arthritis, finding a community that understood how life changed meant everything to Jody Quinn, Ben and Kathryn Rifenbark.          Join host Alan Simmons as he addresses life with psoriasis and psoriatic arthritis before and after finding the National Psoriasis Foundation with 3 amazing volunteers – Jody Quinn, Ben and Kathryn Rifenbark. Hear their story from struggles with initial diagnosis, being an advocate for their own health care, to how they chose to become part of a community and help others with the disease to support the mission of the National Psoriasis Foundation. Being part of NPF truly changed their lives!  This episode features how 3 volunteers changed their lives to navigate the challenges of being diagnosed with psoriatic disease to taking steps to help others in need and the mission of the National Psoriasis Foundation.   Timestamps: ·       (0:00)          Intro to Psoriasis Uncovered & guest welcome Jody Quinn, Ben and Kathryn Rifenbark. ·       (0:59)          What life was like for Ben and Kathryn from diagnosis to finding a community through NPF. ·       (2:42)          Facing psoriatic arthritis first and being undiagnosed for years was challenging for Jody. ·       (4:48)          Finding control over psoriatic disease by becoming an advocate for change. ·       (6:15)          Diving into the deep end to help fundraising efforts. ·       (7:03)          Becoming a One to One mentor to help answer questions from others and share the positive impact NPF makes in                       our lives. ·       (8:52)          Making connections to help raise awareness about psoriatic disease from resolutions to public service                             announcements and lighting bridges in NPF's colors -- orange and blue.  ·       (10:40)        Receiving the NPF Volunteer Innovator award and being a Psoriatic Ambassador Honoree. ·       (12:04)        Benefits we received from attending the IMPACT Summit Volunteer Leadership Conference. ·       (15:11)        Jody's single most life-changing event was attending the FDA Drug Development meeting. ·       (17:23)        It's important to advocate for your own health care needs while continuing to learn from others and resources                            available through the NPF. ·       (19:14)        Every step no matter how small or large makes an impact and is important. Key Takeaways: ·       Being diagnosed with psoriasis and psoriatic arthritis is a life-long journey which can be made easier by finding the right health care, education and resources, as well as a community that understands what it means to live with psoriatic disease. You are not alone.   ·       You can take control over your disease by advocating for policy changes that affect all patients regardless of what chronic disease they may have. Let your voice be heard.   ·        Every step you take no matter how small or large makes a difference – whether it's learning more about psoriatic disease, sharing your story, or participating as a volunteer. You can make an impact. Start your journey with NPF today! Become a volunteer. Guest Bios: Jody Quinn has a long history of involvement with NPF as a volunteer. She first became a volunteer in 2012 after seeking to connect with others who have psoriatic disease during a Walk event. She remembers meeting an inspirational group of volunteers. Wanting to learn more about her disease she attended More Than Skin Deep and Be Joint Smart events and served as a moderator. Continuing her path of involvement she attended Volunteer Conferences in Chicago and San Francisco. In 2016 she attended her first Capitol Hill Day followed by the FDA Patient Focused Drug Development (PFDD) meeting. Her involvement was so profound she remains an active advocate promoting research and legislation to enhance access to treatments and health care services. Jody has been so successful in promoting awareness about psoriatic disease, she was awarded the NPF Volunteer Innovator Award in 2017. In 2025 she was also named as the New England Soiree Psoriatic Ambassador Honoree for her impactful service and tireless advocacy. In her words, "I volunteer because it gives me some control over what often feels like a completely uncontrollable disease. It allows me to have a say in what is happening with my life and my disease, which I didn't have before. I also volunteer so that others don't have to go through the same long and difficult journey to diagnosis and treatment that I did." Kathryn & Ben Rifenbark discovered the NPF after many challenges with finding the right diagnosis for Ben's psoriasis.  Through a local NPF Take ACTION event Ben quickly learned he wasn't alone in living with his disease, while Mom, Kathryn, gained as much information as she could. After the event, they soon became part of the NPF community with Ben serving as the 2024 Take ACTION Ambassador and a leading peer-to-peer fundraiser. He shared his story and a motivational message at last year's Take ACTION event to help encourage others to support the mission of the NPF. Ben is also an IMPACT Ambassador learning how to advocate for himself and has participated in the IMPACT Summit representing the amazing youth who are part of our NPF Community. Kathryn is now a mentor sharing what she's learned with other parents. Resources:   Volunteer Spotlight: Jody Quinn May 1, 2025 Ambassador, Advocate and Mentor Advance Online December 11, 2025.  (Ben & Kathryn Rifenbark) Her Nails Held the Secret to Her PsA  Advance Online Updated September 29, 2025.    

Allergy & Asthma Network has spent more than four decades helping people living with asthma, allergies, and related immune conditions navigate care, access trustworthy education, and make their voices heard. In this episode, we talk with Lynda Mitchell, CEO of Allergy & Asthma Network. Lynda shares how becoming a food allergy and asthma mom in the early 1990s shaped her career and led her into patient advocacy work. We get into how Allergy & Asthma Network supports patients and families through four mission pillars: education, outreach, advocacy, and research. What we cover in our episode about Allergy & Asthma Network Trusted Messengers and culturally responsive education, and why information is more effective when it comes from people who reflect and understand the community Free virtual asthma coaching, and how one-on-one self-management education helps people improve daily asthma control and reduce emergency care Patient voice research, what it is, how it differs from clinical trials, and why diversity in clinical trial participation matters Advocacy efforts like Capitol Hill Day and PALI, and how patient stories influence laws and policies that affect asthma and allergy care Ways to get involved, including resources for patients, caregivers, and healthcare providers who want to support or participate in Allergy & Asthma Network's work More resources about Allergy & Asthma Network Allergy & Asthma Network  Sign-up for the Allergy & Asthma Network's Newsletter  Get involved with clinical trials and research  More about the PALI information session (February 18, 2026) Advocacy information Virtual asthma coaching program (free asthma self-management education) *********** Made in partnership with The Allergy & Asthma Network.

Shortly after the association's second-annual Smart Home on Capitol Hill Day – and on the heels of the "Liberation Day" announcements – we sat down with CEDIA to talk about the issues that are impacting the custom integration channel. Daryl Friedman, global president and CEO, and Darren Reaman, director of government relations, recap the event, talk tariffs, and much more on this week's episode.

Live this week from the ACCC 51st Annual Meeting and Cancer Center Business Summit (AMCCBS), CANCER BUZZ speaks with Wade Swenson, MD, MPH, MBA, FACP about Capitol Hill Day and how engaging in advocacy positively impacts oncology.   Guest: Wade T. Swenson, MD, MPH, MBA, FACP Medical Director Lakewood Health System Staples, MN   Resources: ACCC OSS Advocacy Engagement Initiative ACCC Legislative Action Center

Members of the Association of Cancer Care Centers (ACCC) are preparing for a day of cancer care advocacy on Capitol Hill during its 51st Annual Meeting and Cancer Center Business Summit (AMCCBS) in Washington, DC between March 5-7, 2025. In this episode, CANCER BUZZ speaks with Nicole Tapay, JD, director of Cancer Care Delivery & Health Policy at ACCC about key policy issues that members will address during ACCC's Capitol Hill Day, including drug shortages, Medicare reimbursement for patient navigation, and concerns over the Inflation Reduction Act's impact on provider reimbursement for infused medications. “[Capitol] Hill Day is a chance for cancer care providers to directly engage in the policymaking process—it's not part of their normal day jobs, but they find it incredibly rewarding." –  Nicole Tapay, JD   "When cancer care providers visit the Hill in person, it's a very valuable part of the process; they share firsthand experiences that truly illustrate the impact of policy decisions." –  Nicole Tapay, JD   Nicole Tapay, JD Director, Cancer Care Delivery & Health Policy Association of Cancer Care Centers   Additional Resources ACCC Capitol Hill Day (https://www.accc-cancer.org/home/attend/capitol-hill-day) 2024 Policy Wrap-Up – Oncology Issues, Vol.40, No 1, 2025 (https://journals.accc-cancer.org/view/2024-policy-wrap-up?_gl=1*ael8au*_gcl_aw*R0NMLjE3Mzg2OTM3MDUuQ2owS0NRaUFrb2U5QmhEWUFSSXNBSDg1Y0RPekNiaW1WYkJ0TGw1dEtwV0s3ZzFtbWZ3b0tFMkxENTUwMVRkZGZUQzByOUFCS1FUeVpVSWFBa3dvRUFMd193Y0I.*_ga*MTIxNzU0NTA2MC4xNjkxNzY0Mjg0*_ga_HW05FVSTWC*MTc0MDA2NjkzMS41Ni4xLjE3NDAwNjc2NzEuNTIuMC4w) Register for the 51st Annual Meeting and Cancer Care Business Summit (https://events.accc-cancer.org/event/90b42ca3-a5fd-4f87-a1eb-fe4e00d2e9de/overview?RefId=LIP&utm_campaign=2025AM&utm_campaign=CMI%20%7C%20CMA-22-ACCC010%20%7C%20AMCCBS%2025%20%7C%20EV&utm_medium=paid&utm_medium=ppc&utm_source=google&utm_source=adwords&utm_term=accc%20annual%20meeting&hsa_acc=3682411462&hsa_cam=22029487582&hsa_grp=175156250827&hsa_ad=725387102374&hsa_src=g&hsa_tgt=kwd-2265122107589&hsa_kw=accc%20annual%20meeting&hsa_mt=p&hsa_net=adwords&hsa_ver=3&gad_source=1&gclid=CjwKCAiAn9a9BhBtEiwAbKg6fhOf1fzDdOci-BU8AdIjtS9Y9domwiVkSlasNVK7jVaYE2yv799cHRoC_k4QAvD_BwE) View Agenda for the 51st Annual Meeting and Cancer Care Business Summit (https://agenda.mjhlifesciences.com/agenda/accc/e02ac0e0-7646-4ff5-b872-e3e2ee8b7e22?_gl=1*1k3a1eu*_gcl_aw*R0NMLjE3NDAwMDE0ODcuQ2p3S0NBaUFuOWE5QmhCdEVpd0FiS2c2ZmhPZjFmekRkT2NpLUJVOEFkSWp0UzlZOWRvbXdpVmtTbGFzTlZLN2pWYVlFMnl2Nzk5Y0hSb0NfazRRQXZEX0J3RQ..*_ga*MTU3NjkxMTU5Mi4xNzM2MTc4MTQy*_ga_HW05FVSTWC*MTc0MDAwMDc4NS43Mi4xLjE3NDAwMDE0ODguNDQuMC4w)

In this special Youth Advocacy Month episode, join host Kobe as they sit down with HAEA Youth Advocacy Network Regional Leaders, Ally and Luke, to discuss their impactful experiences as young advocates during HAEA's Capitol Hill Day and advocacy training workshops. Ally and Luke share what it's like to participate in legislative visits, why it's crucial for young people to be involved in advocacy, and how their passion for legislative change drives their work in the HAE community. As seasoned advocates, they open up about their journey, the challenges they've faced, and the lasting impact they aim to make through their advocacy efforts. Tune in to be inspired by their dedication to making a difference and learn how you, too, can take action for the HAE community. This is a must-listen episode for young people ready to amplify their voices and lead the way in legislative advocacy! This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, ⁠⁠⁠www.haea.org⁠⁠⁠. Thank you to our sponsors CSL Behring and ⁠Takeda⁠⁠⁠.

On this episode of the ACB Advocacy Update, Claire and Swatha reflect on the Capitol Hill Day at the 2024 Leadership Conference and Legislative Seminar with some ACB members. We discuss particular issues that stood out to Congressional staff, the return to in-person office visits, and advice these three individuals have for anyone that wants to advocate with Congress with ACB in the future.

Josh Basile is joined by Haley Waggoner, a Special Olympics athlete and employee, Rep. Nikki Budzinski (IL-13), Rep. Brian Fitzpatrick (PA-1), who talk about the value of having meaningful conversations with lawmakers to advance access and inclusion for all.

So with Covid-19 in person anything has been a pipe dream. This coming year CADCA (Community Anti-Drug Coalitions of America) is holding their annual conference called Forum in person this year. This particular annual conference is so highly attended is because of the inclusion of Capitol Hill Day. This Capitol Hill Day event happens in Washington D.C. and coalitions get face to face time with the Federal leaders of their region in an effort to hammer home the vital importance of Drug and Alcohol Prevention Programs. This years Forum has some odd rules that may not fly with every Idaho Coalition and has restructured Capitol Hill Day in an odd way. This podcast goes over those issues and how coalitions can best prepare this year! --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app

How do you observe Black History Month? Thinking of your (or your child's/friend's/relative's) school, was it celebrated at an individual or school-wide level? In a time when so many are unsure of what to do, Capitol Hill Day School (CHDS) has figured out ways for all students and faculty to participate in month-long activities and celebrating, that's woven into the curricula. Meet Leslie Sinsay and Jamayca Williams of CHDS, a place where participating in BHM is not optional, where every teacher and class takes part, where they take BHM seriously, SO SERIOUSLY that planning for it starts in October! Leslie & Jamayca share some of what they do, how and why they do it, and tips to help other educators do the same. We'll also hear what some experts and professors think of BHM, including educators Rebecca Horwitz-Willis and Anri Wheeler and parent Adelle Harris, plus a statement from NAIS VP of Equity and Justice, Caroline Blackwell. from a CHDS parent, and I'll read a statement provided on this topic by the VP of Equity and Justice for the NAIS. Let this episode help you think ways to approach heritage months and other days to recognize. --- Send in a voice message: https://anchor.fm/dailybordercrossings/message

The world as we know is changing daily and so did the traditional NPF Capitol Hill Day. Learn about the policies we supported to improve access to care for the psoriatic disease community and how easy it is to advocate from home. To learn more and join our efforts visit advocate.psoriasis.org. 

Episode 2 was recorded live in Washington, DC during the Hereditary Angioedema Association's Capitol Hill Day. This is a day when over 90 HAE patients and caregivers from across the nation come together in our nation’s capitol and meet with their congressional representatives to advocate for continuous support for HAE patients and their needs. Hear from hosts, Jack, Ava, and Stephen as they talk about what it means to be a young person participating in this event and advocating to their congressional leader. Each host shares a story about their experience and talks about why advocating is so important to our community. This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, www.haea.org.

On March 14, advocates for community cancer centers took to Capitol Hill to speak with legislators and advocate for the issues important to them and their patients. At the Association of Community Cancer Centers' (ACCC) 44th Annual Meeting and Cancer Business Summit, Blaire Burnett of ACCC, George Spurlock of Southern Cancer Center, and Randall Oyer, MD, of Lancaster General Health, discussed their experiences with Capitol Hill Day and what issues they discussed with legislators. For coverage of sessions and interviews with speakers from the ACCC 44th Annual Meeting and Cancer Business Summit, visit our conference page: http://www.ajmc.com/conferences/accc-2018.

In this episode we cover the 2-year budget deal passed in Congress and what it means for some of the major science funding agencies; new sexual harassment policies being proposed by the NSF and the NIH; and the National Science Board’s policy companion statement on U.S. need for a STEM-capable workforce. ASBMB Today science writer John Arnst makes his debut on the podcast to talk about his feature article for the February edition of the magazine on work funded by the National Institute on Minority Health and Health Disparities. Interested in science policy? Applications are open for ASBMB's annual Capitol Hill Day. The deadline to apply is Feb. 26. Go to policy.asbmb.org for more information. NSF sexual harassment notice: https://www.nsf.gov/pubs/issuances/in144.jsp?org=NSF NIH revamps its sexual harassment policy: https://nihrecord.nih.gov/newsletters/2017/01_27_2017/story4.htm NSB policy companion statement on U.S. need for STEM-capable workforce: https://www.nsf.gov/news/news_summ.jsp?cntn_id=244391&WT.mc_id=USNSF_62&WT.mc_ev=click Follow your Pipettes & Politics hosts Twitter and share your thoughts on this episode using #PipettesAndPolitics: -Benjamin Corb | @bwcorb -Andre Porter | @anporter_ -Daniel Pham | @dpham20

Adult education champion Reecie Stagnolia joins Susan to discuss his time at Capitol Hill Day, AEFL Week, and changes in the air in adult education nationwide.  Welcome, Reecie, to Live and Learn!

Podcast veteran Kristi Messina joined me in Baltimore to talk about her experiences during Capitol Hill Day 2016 and much, much more.  

John Palatiello (his company is our Government Affairs consultant) is going to joins Curt for a wrap-up of the NSPS activities in the federal arena in 2015. They talk some about our 2016 conference coming up in March, during which we will hold our annual Capitol Hill Day visits for our members with their respective legislators in DC (fun, fun, fun).

These are some highlights from our SDPA Capitol Hill Day. This was an activity which took place at the 2011 Summer Conference in Washington, DC.