Podcasts about Hae

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Best podcasts about Hae

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Latest podcast episodes about Hae

Korean Drama Podcast
Heavenly Ever After #8

Korean Drama Podcast

Play Episode Listen Later Sep 10, 2025 70:33


On this episode, we recap another low-key episode of the K-Drama Heavenly Ever After, where surprisingly a lot happens to our characters as we continue setting up for the drama's last act, including more revelations for Som-i and her mysterious powers. Will we finally find out what her deal is?Episode 8: Hae-sook throws herself into church life as tension at home mounts; Som-i begins to experience forbidden emotions while trying to regain her memories.Watch it now on Netflix--Follow us on twitter at @koreandramapodSubscribe to the podcast on Apple Podcasts, Spotify, or copy our RSS Feed into your favorite podcast player!Korean Drama Podcast is a part of the Potluck Podcast CollectiveProduced by HappyEcstatic Media

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Korean Drama Podcast
Heavenly Ever After #7

Korean Drama Podcast

Play Episode Listen Later Sep 4, 2025 58:11


We kick off the back half of Heavenly Ever After with a more mellow episode 7. On this episode, join us as we learn more about what makes KDrama heaven tick, get to know more about various characters, and follow along as the show sets up some story lines that we hope get resolved soon.Episode 7: Overwhelmed by anxiety, Hae-sook welcomes an intimidating guest; Som-i tries to make sense of the ominous man she's been seeing in her visions.Watch it now on Netflix--Follow us on twitter at @koreandramapodSubscribe to the podcast on Apple Podcasts, Spotify, or copy our RSS Feed into your favorite podcast player!Korean Drama Podcast is a part of the Potluck Podcast CollectiveProduced by HappyEcstatic Media

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Korean Drama Podcast
Heavenly Ever After #6

Korean Drama Podcast

Play Episode Listen Later Aug 27, 2025 57:03


On episode 6 of Heavenly Ever After, we escape the darkness of K-Drama hell back to the saturated hues of K-Drama heaven as our crew continues to unravel the mysteries and systems that govern the afterlife and learning more about Hae-sook's life and journey. Episode 6: As Hae-sook suddenly returns to Heaven with Lee Young-ae, Som-I questions her own identity. Soon, Hae-sook meets folks whose lives she impacted on Earth.Watch it now on Netflix--Follow us on twitter at @koreandramapodSubscribe to the podcast on Apple Podcasts, Spotify, or copy our RSS Feed into your favorite podcast player!Korean Drama Podcast is a part of the Potluck Podcast CollectiveProduced by HappyEcstatic Media

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#BeyondHAE Youth Produced Podcast
#BeyondHAE Podcast: Advocating for Yourself As You Transition into College

#BeyondHAE Youth Produced Podcast

Play Episode Listen Later Aug 25, 2025 13:10


In this inspiring episode of the #BeyondHAE Podcast, HAEA Youth member Ally takes the mic to share an exciting update on the newly revamped HAEA College Transition Guide, designed to support students with HAE who are moving away from home to attend college.Ally is joined by fellow HAEA Youth Leader Paige for an honest and insightful conversation about their own college journeys. Together, they discuss the unique challenges of living in the dorms with HAE, from managing symptoms to balancing academic and social life. They share practical strategies they've used to navigate campus living, advocate for their needs, and stay healthy while embracing independence.Whether you're a high school senior preparing for the big move, a current college student, or a parent supporting your child's transition, this episode offers valuable tips, relatable experiences, and reassurance that you're not alone in this new chapter.Tune in for empowering advice and a fresh perspective on making the most of your college experience while living with HAE!This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, ⁠⁠⁠www.haea.org⁠⁠⁠.Thank you to our sponsors, ⁠⁠⁠⁠⁠⁠⁠KalVista⁠⁠⁠⁠⁠⁠⁠ and ⁠⁠⁠⁠Pharvaris⁠⁠⁠⁠.

DocTalk Podcast
HCPLive 5 Stories in Under 5: Week of 08/17

DocTalk Podcast

Play Episode Listen Later Aug 22, 2025 4:36


Welcome to HCPLive's 5 Stories in Under 5—your quick, must-know recap of the top 5 healthcare stories from the past week, all in under 5 minutes. Stay informed, stay ahead, and let's dive into the latest updates impacting clinicians and healthcare providers like you! Interested in a more traditional, text rundown? Check out the HCPFive! Top 5 Healthcare Headlines for August 17-23, 2025: 1. FDA Approves Donidalorsen to Prevent Hereditary Angioedema Attacks The FDA approved donidalorsen (DAWNZERA) for preventing HAE attacks in patients 12 years and older, supported by phase 3 OASIS trial data. 2. FDA Grants Atumelnant Orphan Drug Designation for Congenital Adrenal Hyperplasia Atumelnant received FDA Orphan Drug Designation after phase 2 results showed rapid, sustained reductions in key biomarkers for congenital adrenal hyperplasia. 3. Semaglutide Reduces Medical Costs, Healthcare Resource Utilization in Heart Failure A real-world analysis found semaglutide 2.4 mg reduced all-cause medical costs by 28% and inpatient hospitalization costs by 55% in patients with obesity and heart failure. 4. RE104 Reduces Postpartum Depression Symptoms by Day 7 in Phase 2 RECONNECT RE104 significantly reduced depressive symptoms by day 7 in patients with postpartum depression, meeting the phase 2 RECONNECT trial's primary endpoint. 5. Dyslipidemia, Other Metabolic Syndrome Factors May Raise Parkinson's Disease Risk People with metabolic syndrome had about a 40% higher risk of developing Parkinson's disease compared with those without the condition.

HAE Speaks
Episode 56: Understanding Medicare Enrollment

HAE Speaks

Play Episode Listen Later Aug 21, 2025 21:30


In this episode, HAE Health Services Manager Troyce Venturella sits down with Marie, an individual living with HAE who has navigated the complexities of Medicare enrollment firsthand. Together, they discuss the key steps, challenges, and considerations in selecting the right Medicare plan, offering valuable insights for others in the HAE community as they make important healthcare decisions.

Korean Drama Podcast
Heavenly Ever After #5

Korean Drama Podcast

Play Episode Listen Later Aug 20, 2025 78:03


After spending 4 episodes trying to sus out K-Drama heaven, we finally find our way into K-Drama hell on episode 5 of Heavenly Ever After. Join our hosts as they follow Hae-sook's orientation through the many different hells and the stories of the people that reside there.Episode 5: After receiving another infraction, Hae-sook descends into Hell, where she encounters a familiar face. Nak-joon makes his way into Hell to save her.Watch it now on Netflix--Follow us on twitter at @koreandramapodSubscribe to the podcast on Apple Podcasts, Spotify, or copy our RSS Feed into your favorite podcast player!Korean Drama Podcast is a part of the Potluck Podcast CollectiveProduced by HappyEcstatic Media

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Korean Drama Podcast
Heavenly Ever After #4

Korean Drama Podcast

Play Episode Listen Later Aug 13, 2025 61:51


We continue to explore k-drama heaven on episode 4 of Heavenly Ever After as the crew continues to learn about the (oh so many) rules of heaven and hell, as well as meet a bunch of good boys!Episode 4: Hae-sook slowly gains sympathy for Som-i, believing that that she reminds her of someone dear, and later welcome a new attendee with her pastor.Watch it now on Netflix--Follow us on twitter at @koreandramapodSubscribe to the podcast on Apple Podcasts, Spotify, or copy our RSS Feed into your favorite podcast player!Korean Drama Podcast is a part of the Potluck Podcast CollectiveProduced by HappyEcstatic Media

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ReachMD CME
From Theory to Practice: Real-World Challenges in Personalized HAE Care

ReachMD CME

Play Episode Listen Later Aug 11, 2025


CME credits: 1.00 Valid until: 11-08-2026 Claim your CME credit at https://reachmd.com/programs/cme/program-name/35986/ Hereditary angioedema (HAE) is a rare, potentially life-threatening genetic disorder characterized by recurrent episodic swelling of the skin, gastrointestinal tract, and airways. The core approach to treating HAE prioritizes the availability of effective on-demand acute therapy, early treatment to prevent attack progression, treatment of attacks, and long-term prophylaxis. Early treatment of all breakthrough attacks, regardless of severity and site, is critical to maximize efficacy and reduce morbidity and mortality. Ongoing management of HAE should include evaluation of breakthrough attacks and any concerns with the disease course and current therapy to decide if a therapy adjustment is warranted. In this educational series, expert faculty discuss the importance of early treatment and personalizing therapy, best practice for managing breakthrough attacks, and current and emerging therapies for HAE.

ReachMD CME
The Personal Touch: Advancing Personalized Treatment in HAE

ReachMD CME

Play Episode Listen Later Aug 11, 2025


CME credits: 1.00 Valid until: 11-08-2026 Claim your CME credit at https://reachmd.com/programs/cme/program-name/35985/ Hereditary angioedema (HAE) is a rare, potentially life-threatening genetic disorder characterized by recurrent episodic swelling of the skin, gastrointestinal tract, and airways. The core approach to treating HAE prioritizes the availability of effective on-demand acute therapy, early treatment to prevent attack progression, treatment of attacks, and long-term prophylaxis. Early treatment of all breakthrough attacks, regardless of severity and site, is critical to maximize efficacy and reduce morbidity and mortality. Ongoing management of HAE should include evaluation of breakthrough attacks and any concerns with the disease course and current therapy to decide if a therapy adjustment is warranted. In this educational series, expert faculty discuss the importance of early treatment and personalizing therapy, best practice for managing breakthrough attacks, and current and emerging therapies for HAE.

ReachMD CME
Breakthrough Attacks: Why Prophylaxis Isn't Always Enough

ReachMD CME

Play Episode Listen Later Aug 11, 2025


CME credits: 1.00 Valid until: 11-08-2026 Claim your CME credit at https://reachmd.com/programs/cme/program-name/35987/ Hereditary angioedema (HAE) is a rare, potentially life-threatening genetic disorder characterized by recurrent episodic swelling of the skin, gastrointestinal tract, and airways. The core approach to treating HAE prioritizes the availability of effective on-demand acute therapy, early treatment to prevent attack progression, treatment of attacks, and long-term prophylaxis. Early treatment of all breakthrough attacks, regardless of severity and site, is critical to maximize efficacy and reduce morbidity and mortality. Ongoing management of HAE should include evaluation of breakthrough attacks and any concerns with the disease course and current therapy to decide if a therapy adjustment is warranted. In this educational series, expert faculty discuss the importance of early treatment and personalizing therapy, best practice for managing breakthrough attacks, and current and emerging therapies for HAE.

ReachMD CME
Optimizing Acute Treatment in the Era of Breakthrough Attacks

ReachMD CME

Play Episode Listen Later Aug 11, 2025


CME credits: 1.00 Valid until: 11-08-2026 Claim your CME credit at https://reachmd.com/programs/cme/program-name/35988/ Hereditary angioedema (HAE) is a rare, potentially life-threatening genetic disorder characterized by recurrent episodic swelling of the skin, gastrointestinal tract, and airways. The core approach to treating HAE prioritizes the availability of effective on-demand acute therapy, early treatment to prevent attack progression, treatment of attacks, and long-term prophylaxis. Early treatment of all breakthrough attacks, regardless of severity and site, is critical to maximize efficacy and reduce morbidity and mortality. Ongoing management of HAE should include evaluation of breakthrough attacks and any concerns with the disease course and current therapy to decide if a therapy adjustment is warranted. In this educational series, expert faculty discuss the importance of early treatment and personalizing therapy, best practice for managing breakthrough attacks, and current and emerging therapies for HAE.

ReachMD CME
Prophylaxis Reimagined: Overcoming Challenges in Long-Term HAE Management

ReachMD CME

Play Episode Listen Later Aug 11, 2025


CME credits: 1.00 Valid until: 11-08-2026 Claim your CME credit at https://reachmd.com/programs/cme/program-name/35989/ Hereditary angioedema (HAE) is a rare, potentially life-threatening genetic disorder characterized by recurrent episodic swelling of the skin, gastrointestinal tract, and airways. The core approach to treating HAE prioritizes the availability of effective on-demand acute therapy, early treatment to prevent attack progression, treatment of attacks, and long-term prophylaxis. Early treatment of all breakthrough attacks, regardless of severity and site, is critical to maximize efficacy and reduce morbidity and mortality. Ongoing management of HAE should include evaluation of breakthrough attacks and any concerns with the disease course and current therapy to decide if a therapy adjustment is warranted. In this educational series, expert faculty discuss the importance of early treatment and personalizing therapy, best practice for managing breakthrough attacks, and current and emerging therapies for HAE.

ReachMD CME
Challenges in the Management of Difficult-to-Treat HAE

ReachMD CME

Play Episode Listen Later Aug 11, 2025


CME credits: 1.00 Valid until: 11-08-2026 Claim your CME credit at https://reachmd.com/programs/cme/program-name/35990/ Hereditary angioedema (HAE) is a rare, potentially life-threatening genetic disorder characterized by recurrent episodic swelling of the skin, gastrointestinal tract, and airways. The core approach to treating HAE prioritizes the availability of effective on-demand acute therapy, early treatment to prevent attack progression, treatment of attacks, and long-term prophylaxis. Early treatment of all breakthrough attacks, regardless of severity and site, is critical to maximize efficacy and reduce morbidity and mortality. Ongoing management of HAE should include evaluation of breakthrough attacks and any concerns with the disease course and current therapy to decide if a therapy adjustment is warranted. In this educational series, expert faculty discuss the importance of early treatment and personalizing therapy, best practice for managing breakthrough attacks, and current and emerging therapies for HAE.

ReachMD CME
Emerging Therapies for Acute HAE: New Target, New Therapies

ReachMD CME

Play Episode Listen Later Aug 11, 2025


CME credits: 1.00 Valid until: 11-08-2026 Claim your CME credit at https://reachmd.com/programs/cme/program-name/35991/ Hereditary angioedema (HAE) is a rare, potentially life-threatening genetic disorder characterized by recurrent episodic swelling of the skin, gastrointestinal tract, and airways. The core approach to treating HAE prioritizes the availability of effective on-demand acute therapy, early treatment to prevent attack progression, treatment of attacks, and long-term prophylaxis. Early treatment of all breakthrough attacks, regardless of severity and site, is critical to maximize efficacy and reduce morbidity and mortality. Ongoing management of HAE should include evaluation of breakthrough attacks and any concerns with the disease course and current therapy to decide if a therapy adjustment is warranted. In this educational series, expert faculty discuss the importance of early treatment and personalizing therapy, best practice for managing breakthrough attacks, and current and emerging therapies for HAE.

ReachMD CME
Next-Generation Therapies for Long-Term Prophylactic Treatment of HAE

ReachMD CME

Play Episode Listen Later Aug 11, 2025


CME credits: 1.00 Valid until: 11-08-2026 Claim your CME credit at https://reachmd.com/programs/cme/program-name/35992/ Hereditary angioedema (HAE) is a rare, potentially life-threatening genetic disorder characterized by recurrent episodic swelling of the skin, gastrointestinal tract, and airways. The core approach to treating HAE prioritizes the availability of effective on-demand acute therapy, early treatment to prevent attack progression, treatment of attacks, and long-term prophylaxis. Early treatment of all breakthrough attacks, regardless of severity and site, is critical to maximize efficacy and reduce morbidity and mortality. Ongoing management of HAE should include evaluation of breakthrough attacks and any concerns with the disease course and current therapy to decide if a therapy adjustment is warranted. In this educational series, expert faculty discuss the importance of early treatment and personalizing therapy, best practice for managing breakthrough attacks, and current and emerging therapies for HAE.

ReachMD CME
How to Build A Multidisciplinary Team in HAE to Optimize Patient Care

ReachMD CME

Play Episode Listen Later Aug 11, 2025


CME credits: 1.00 Valid until: 11-08-2026 Claim your CME credit at https://reachmd.com/programs/cme/program-name/35993/ Hereditary angioedema (HAE) is a rare, potentially life-threatening genetic disorder characterized by recurrent episodic swelling of the skin, gastrointestinal tract, and airways. The core approach to treating HAE prioritizes the availability of effective on-demand acute therapy, early treatment to prevent attack progression, treatment of attacks, and long-term prophylaxis. Early treatment of all breakthrough attacks, regardless of severity and site, is critical to maximize efficacy and reduce morbidity and mortality. Ongoing management of HAE should include evaluation of breakthrough attacks and any concerns with the disease course and current therapy to decide if a therapy adjustment is warranted. In this educational series, expert faculty discuss the importance of early treatment and personalizing therapy, best practice for managing breakthrough attacks, and current and emerging therapies for HAE.

Korean Drama Podcast
Heavenly Ever After #3

Korean Drama Podcast

Play Episode Listen Later Aug 6, 2025 69:25


The feels and tears continue to flow as the crew dives deeper into their watch of Heavenly Ever After, but so do the bad vibes as the mysteries (and red tape) of the K-Drama afterlife deepen. Episode 3: The arrival of a mysterious woman looking for Nak-joon upends Hae-sook's bliss, and she later embarks on a journey to revisit her past.Watch it now on Netflix--Follow us on twitter at @koreandramapodSubscribe to the podcast on Apple Podcasts, Spotify, or copy our RSS Feed into your favorite podcast player!Korean Drama Podcast is a part of the Potluck Podcast CollectiveProduced by HappyEcstatic Media

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It Happened To Me: A Rare Disease and Medical Challenges Podcast
#65 Invisible Swells: Surviving with Hereditary Angioedema Type III

It Happened To Me: A Rare Disease and Medical Challenges Podcast

Play Episode Listen Later Aug 4, 2025 50:52


In this episode of It Happened To Me, we sit down with the multi-talented Sally Pirie, a comic artist, painter, professor, toymaker, and rare disease advocate, to explore her journey living with Hereditary Angioedema Type III (HAE-3). Sally's path to diagnosis was long, painful, and emotionally fraught, culminating in a deeply moving feature in The New York Times that helped shine a national spotlight on HAE and the broader diagnostic odyssey that so many rare disease patients face.   Sally opens up about the unpredictable flares of HAE, the mental toll of being misunderstood by the medical system, and how she channels her experiences into art, humor, and education.    She is also Professor of Child and Family Studies and Director and Master Artist at the Comics-Based Research Lab at the University of Massachusetts, Amherst. An award-winning newspaper cartoonist and an anthropologist of childhood and infancy, she received her PhD from the University of Colorado, Boulder and is a graduate of Punahou School and Grinnell College. Her areas of expertise include comics-based research methods, ethnographic research and transgender childhoods. She was the 2020 Distinguished Visiting Professor of Liberal Arts at the University of Minnesota, Morris and the 2021 recipient of the Grinnell College Alumni Award in recognition of her lifetime of public service. She once went to New Year's Eve fireworks dressed as a huge blue pufferfish because why not. Life should be suffused with art and joy.    Topics We Cover: What is Hereditary Angioedema Type III, and how is it different from other forms? Sally's early symptoms, misdiagnoses, and emotional health during the diagnostic odyssey Her daughter's experience with HAE while taking gender-affirming estrogen and being the only documented transgender person with the condition  The significance of her New York Times feature  What it feels like to experience an HAE attack and how deadly it can be Navigating academia and advocacy while managing a chronic illness How comics and illustration became a therapeutic and educational tool Invisible illness misconceptions and systemic barriers in rare disease care The importance of laughter, joy, and resilience in the face of adversity Advice for undiagnosed patients and caregivers supporting loved ones with rare conditions You can learn more about Sally on her website. She also highly recommends the Hereditary Angioedema Association for resources. And be sure to read her feature in the New York Times here.    Stay tuned for the next new episode of “It Happened To Me”! In the meantime, you can listen to our previous episodes on Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “It Happened To Me”.    “It Happened To Me” is created and hosted by Cathy Gildenhorn and Beth Glassman. DNA Today's Kira Dineen is our executive producer and marketing lead. Amanda Andreoli is our associate producer. Ashlyn Enokian is our graphic designer.   See what else we are up to on Twitter, Instagram, Facebook, YouTube and our website, ItHappenedToMePod.com. Questions/inquiries can be sent to ItHappenedToMePod@gmail.com. 

Korean Drama Podcast
Heavenly After After #2

Korean Drama Podcast

Play Episode Listen Later Jul 30, 2025 63:42


Our crew is blindsided with some heavy feels in this second episode of the hit K-Drama Heavenly Ever After, but not before discussing the age-gap hi-jinks of the show's setup as well as the somehow capitalist bureaucracy of Korean heaven.Episode 2: Hae-sook reunites with the young Nak-joon, struggles to get used to their age gap and finds herself haunted by a mysterious woman.Watch it now on Netflix--Follow us on twitter at @koreandramapodSubscribe to the podcast on Apple Podcasts, Spotify, or copy our RSS Feed into your favorite podcast player!Korean Drama Podcast is a part of the Potluck Podcast CollectiveProduced by HappyEcstatic Media

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Grandes Reportajes de RFI
Lengua viva, beat profundo: el guaraní en clave de rap

Grandes Reportajes de RFI

Play Episode Listen Later Jul 14, 2025 14:45


En el corazón de Sudamérica, una lengua ancestral se reinventa al ritmo del beat. El guaraní, hablado por millones y cargado de historia, hoy también suena en clave de rap. Desde las aldeas de Misiones hasta los barrios de Asunción, jóvenes raperos lo convierten en poesía, resistencia y futuro. En Europa, todavía hay quienes piensan que los pueblos indígenas de América fueron exterminados durante la colonización. Pero la verdad es completamente diferente: millones sobreviven. Luchando. Resistiendo.  Y con ellos, sus culturas. Sus lenguas. Una de esas lenguas es el guaraní. Tan importante para América del Sur -y para la ciencia- como lo fueron el latín o el griego. De hecho, después de estos, el guaraní es el idioma más utilizado en la nomenclatura científica internacional para referirse a animales y plantas. Se habla a diario en millones de hogares de Paraguay, en el sur de Brasil, en Bolivia y en el norte de Argentina. Pero es en Paraguay donde su fuerza es mayor. Allí, lo hablan seis millones y medio de personas y se escucha tanto —o más— que el castellano. Palabras como mburucuyá, yaguareté o tucán vienen del guaraní. En este país tanto el español como el guaraní son lenguas oficiales. Se usan en el Senado, en los supermercados, en los medios, en los memes. En la tele, en la calle y en casa. Tiene literatura escrita desde hace siglos. Y sí, también tiene rap. ¿Cómo suena el guaraní cuando se sube a una base de trap? ¿Cómo se convierte en arma de identidad? ¿En denuncia? ¿En poesía? Durante siglos, el guaraní y su antecesor cercano -el tupí-guaraní- recorrieron el continente de norte a sur, como los grandes ríos de Sudamérica. Del Caribe a la Amazonía. Del norte de Brasil al corazón del sur: Paraguay. Del corazón al beat Ananá. Caracú. Maraká. Urubú. Palabras que suenan familiares, que muchos usamos sin saber que son guaraníes.  En Brasil, urubú es el buitre. En Argentina, ananá es la piña. Caracú es el centro o el tuétano del hueso. Y es justamente en Argentina, en la aldea Mbororé, del pueblo mbya guaraní, donde comienza esta historia. Luis y Fabián tienen 24 y 26 años. Escucharon rap por primera vez en sus celulares. Veían a Porta, el rapero español, en YouTube o a los Bro MCs, raperos indígenas de Brasil. Así empezaron a rimar. En guaraní. El grupo se llama Hae kuera, ñande kuera. Ellos. Nosotros. “En realidad, nosotros decimos cosas verdaderas. Todo lo que está pasando nomás. La historia. Antes teníamos muchos más monte... Desde hace un tiempo entró gente de afuera, de la sociedad blanca. Entraron e invadieron nuestra selva. Con la motosierra, inclusive ahora mismo estamos escuchando la motosierra. Creo que está haciendo los tablones y eso porque venden todas las cosas y todas las movidas”, explica Luis a RFI. Están en la provincia de Misiones, muy cerca de la triple frontera entre Argentina, Brasil y Paraguay, donde resisten a la deforestación ilegal cuidando sus bosques como los galos Asterix y Obelix resistían a los romanos. El guaraní es una lengua aglutinante, polisintética, como el alemán. Puede expresar ideas complejas en una sola palabra. Tiene sonidos guturales, nasales, glotales… que no existen en español. Como 'y', que significa 'agua'; 'y guasu', 'agua gigante'. Así se llaman las cataratas del Iguazú. Las mismas que casi se escuchan desde la aldea de Luis y Fabián. Desde allí rapean su rabia, su dignidad. Mientras le visita RFI hace una humedad fresca, huele a selva y a tierra mojada. Ellos escriben junto a un arroyo, mientras su madre les prepara reviro: harina frita sobre leña. “Algunos dicen que los mbya solo quieren ayuda. Que no trabajan. Los políticos sobre todo dicen que nosotros siempre estamos pidiendo. Pero en realidad, no. Si no trabajáramos, no existiríamos hoy. Nosotros estamos en esa resistencia todos todavía. Estamos resistiendo todavía", prosigue Luis.  “La gente de la sociedad blanca a nosotros no les importamos. Al revés, les damos asco por nuestra piel. Porque somos mbya. Que sé yo, hay mucho prejuicio. No podemos salir y caminar tranquilos en la ciudad. Hay mucho odio. Mucha rabia. Mucho prejuicio”, prosigue.  Vivir la vida buscando plenitud Del otro lado del Paraná, a las afueras de Asunción, Paraguay, una calle de piedras y un caminito de tierra roja nos lleva lleva hasta la bella casa de Conan y Miguel, artistas del colectivo Tekovete. Ella pinta murales. Él escribe y rapea. Juntos hacen poesía en guaraní. Y como ellos, muchos jóvenes encuentran en su lengua materna una llave. Una que abre otras puertas. Así lo cuenta Miguel: “'Tekovete' sería desenfocar la palabra hacia la vida en plenitud. Es ser uno mismo, vivir en plenitud. 'Tekove' es 'vida'. 'Teko' es la 'forma de vivir'. Y 'ete' viene de 'verdadero'. Lo que es real, lo que es auténtico. Entonces 'Tekovete' es 'vivir la vida en esa búsqueda de plenitud siendo uno mismo'”. “De eso se trata la plenitud, el poder de contemplación, de estar en un sitio, de compartir, de sentarse en una ronda, tomar un tereré, estar en una ronda del brasero contando en nuestras vivencias, nuestras historias Conan continua: “De eso se trata la plenitud, el poder de contemplación, de estar en un sitio, de compartir, de sentarse en una ronda, tomar un tereré, estar en una ronda del brasero contando en nuestras vivencias, nuestras historias. Antes, por ejemplo, las familias paraguayas se reunían y contaban el famoso caso ñemonbeú, que es como anécdotas de su vida y  veces también con un poco de fábula, como para darle también emoción al cuento. Yo creo que todo eso ese 'Tekovete' tiene mucho que ver con eso con el trovador, el que te cuenta las historias”.  Tekovete hace rap urbano, nacido en la periferia, con historias que hablan de su barrio, de su generación. Sin parar de mutar. Como el propio guaraní, que en Paraguay muchas veces se habla mezclado con el español. Esa fusión se llama jopara. “Vos sabes que antes de hacer rap yo no me sentía representado con lo que escuchaba, con lo que decía, la manera que decían -explica Miguel-. Entonces yo le decía a Conan, yo voy a rapear en guaraní. Voy a hacer temas de que hablen justamente de esos momentos, de nuestro entorno, de cómo vemos nuestra realidad. Tekovete como proyecto es eso, es comentar esos pequeños detalles, que muchas veces no vemos. Es narrar la realidad de nuestras propias vivencias, siendo parte de eso". Hay que cuidar mucho la palabra, porque para los guaraníes originarios la palabra es sagrada "Gracias a esa necesidad de reivindicar, no reivindicar, fortalecer el guaraní,  porque sí, todavía hasta ahora está entre nosotros, pero representarlo de una manera bien estudiada también. Porque hay que cuidar mucho la palabra, porque para los guaraníes originarios la palabra es sagrada. Entonces también Tekovete trata de mantener ese respeto y cuidado hacia la palabra”, aclara.  En la inmensa mayoría de las familias y escuelas son las mujeres -abuelas, madres- quienes transmiten el guaraní. “Sabiendo que hay un poder en la palabra que es el guaraní, que los paraguayos tenemos esa grandiosa herencia maternal y llevamos con nosotros, entonces esa necesidad de poder mostrarle al mundo lo que se puede hacer con el guaraní, que el rap en guaraní puede sonar tan bueno y con tanto estilo y con tanto flow como pueden sonar un rap en Estados Unidos, en Chile, en Perú, en Alemania, sea el idioma que sea", zanja Miguel. Hoy, jóvenes paraguayos y guaraní-hablantes como Miguel y Conan están llevando ese legado a las redes. como TikTok, Instagram o YouTube. Ahí enseñan guaraní, hacen chistes, doblajes, sketches bilingües. Creatividad pura, en dos lenguas que a veces son una. Hay más. Mucho más. El guaraní se canta desde hace mucho en forma de guarania y jahe'o, músicas nacidas en Paraguay y que pocos conocen fuera. Hay hasta blues y hevy metal en guaraní. Incluso Mafalda ha sido traducida a esta lengua. Os invitamos a no dejar de escucharla. A veces está más cerca de lo que crees. En el subte en Buenos Aires, en la Sorbona de París o en un mercado de Madrid, ahí se escucha guaraní.

MPR Weekly Dose
MPR Weekly Dose Podcast #241 — RFK Jr Sued Over Vaccine Policy Changes; Hereditary Angioedema Tx Approved; New OTC Blood Pressure Monitor; Kisunla Dosing Regime; REMS removed for ERA meds

MPR Weekly Dose

Play Episode Listen Later Jul 11, 2025 12:20


Lawsuit filed against RFK Jr over vaccine policy changes; oral on-demand treatment approved for HAE; OTC cuffless blood pressure monitor gets greenlit; dosing schedule update for Alzheimer treatment; REMS requirement removed for endothelin receptor antagonist meds.

HAE Speaks
Episode 55: CHAPTER-3 , Pharvaris Oral Prophylaxis Phase 3 Study

HAE Speaks

Play Episode Listen Later Jul 7, 2025 12:30


In this episode of the HAE Speaks Podcast, Dr. Raffi Tachdjian (UCLA) and Pharvaris discuss the HAE CHAPTER-3 Study — a new HAE attack prevention trial currently enrolling. The study explores the safety and effectiveness of deucrictibant, an investigational once-daily oral treatment aimed at preventing HAE attacks.Thank you to Pharvaris for sponsoring this episode of the HAE Speaks Podcast!

#BeyondHAE Youth Produced Podcast
#BeyondHAE Podcast: A Family's Journey with HAE

#BeyondHAE Youth Produced Podcast

Play Episode Listen Later Jun 30, 2025 9:53


In this episode of the #BeyondHAE podcast, host Ohm shares a deeply personal perspective on growing up with hereditary angioedema (HAE), first as a witness to his mother's unexplained medical struggles, and later as someone diagnosed himself. Ohm reflects on how HAE has shaped his childhood, family dynamics, and understanding of what it means to live with a rare and unpredictable condition. From missed birthdays to emergency hospital visits, Ohm opens up about the emotional weight of watching a loved one suffer, the power of preparation, and how his family turned chaos into control. He also discusses the importance of community, advocacy, and hope for future treatments like gene therapy. Whether you're navigating a new diagnosis or have been living with HAE for years, this episode is a powerful reminder that while HAE brings uncertainty, no one has to face it alone.This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, ⁠⁠⁠www.haea.org⁠⁠⁠.Thank you to our sponsors, ⁠⁠⁠⁠⁠⁠⁠KalVista⁠⁠⁠⁠⁠⁠⁠ and ⁠⁠⁠⁠Pharvaris⁠⁠⁠⁠.

Zdrowa rozmowa
Dlaczego puchniemy? Skąd biorą się obrzęki

Zdrowa rozmowa

Play Episode Listen Later Jun 25, 2025 21:04


Obrzęk, czyli potocznie opuchlizna, to gromadzenie się wody w danym miejscu czy części ciała. Często powoduje, że czujemy się ociężali. Czym dokładnie są obrzęki? Jak powstają? I jak sobie z nimi radzić? Margit Kossobudzka tłumaczy też na czym polega HAE - dziedziczny obrzęk naczynioruchowy. Rozprawia się także z mitem, że żylaki to tylko kwestia estetyczna i nie trzeba ich leczyć.

z Wiatrem w grzywie
#138 Relacja z naturą, ciałem i działania aktywistyczne – rozmowa z Dagmarą Bałusz - Z wiatrem w grzywie - podcast

z Wiatrem w grzywie

Play Episode Listen Later Jun 10, 2025 43:50


Zapraszam na rozmowę z Dagmarą Bałusz, uczestniczkę programów HorseSense i byłą wiceprezeskę Zarządu Fundacji Osoba Odra. Zaprosiłam Dagmarę do rozmowy o jej drodze rozwojowej, a także ścieżce serca, którą w szczególności jest działanie aktywistyczne. Rozmawiamy jak to się zaczęło i co Dagmara robi, aby się w tej drodze nie wypalić oraz jakie inspiracje można czerpać patrząc na rzekę, ale także na ludzką cielesność. Osoba Odra, inicjatywa, którą zajmowała się Dagmara dąży do tego, by nadać rzece osobowość prawną jako odpowiedź, między innymi na katastrofę ekologiczną z 2020 roku. Czy to możliwe, by rzeka mogła mieć zagwarantowane swoje prawa?Rozmawiamy o działaniach aktywistycznych, które wyprzedzają swój czas – często przynosząc efekty dopiero po wielu latach. O tym, jak nadanie głosu naturze staje się także aktem uzdrawiania.Dotykamy też głębszych warstw – relacji między troską o rzekę a troską o siebie. Mówimy o narzędziach regulacji układu nerwowego, o teorii poliwagalnej i o tym, jak praktyki szamańskie pomagają usłyszeć głos serca. Pojawia się także wątek traumy i doświadczeń traumatycznych, jakie zgodnie z najnowszymi badaniami są udziałem wielu osób w Polsce. Zastanawiamy się jak te złożone i wielowarstwowe procesy, ściśle związane z ciałem i odczuwaniem, mogą zaburzać kontakt z własną wrażliwością – również tą, która otwiera nas na naturę.Ten odcinek to opowieść o wodzie jako wartości, o prawie jako narzędziu zmiany – i o tym, jak odzyskać wewnętrzną integralność w świecie, który sam potrzebuje uzdrowienia.---O działaniach aktywistycznych i jak są powiązane ze ścieżką serca. I inne wątki tego odcinka:Fundacja Osoba Odra jako odpowiedź na wielką ekologiczną katastrofę z 2020 roku – dlaczego nadanie osobowości prawnej rzece jest ważne dla jej ochrony.Unikalne i bezprecedensowe działania aktywistów dotyczące natury, które często odnoszą skutek po wielu latach lub nawet kilku pokoleniach.Gdy rzeka nie może o siebie zadabać, bo jej naturalny rytm jest naruszany – jak podarowanie swojej energii na rzecz ochrony rzeki łączy się z procesami własnego uzdrawiania.O wadze budowania świadomości jaką wartością jest woda i rzeka oraz jak systemowe działania prawne mogą wpływać na całość.Gdy sytuacja wymaga regeneracji i zadbania o siebie – o narzędziach związanych z układem nerwowym, teorią poliwagalną.O połączeniu z naturą, które umożliwia pozostanie w harmonii i zachowanie wewnętrznej integralności.Złożone mechanizmy traumy, których wynikiem może być odcięcie nas od subtelnych poruszeń wewnętrznych – także od wrażliwości na świat natury.Jak pojawia się głos serca? O ścieżce szamańskiej.O mojej rozmówczyni: Dagmara Bałusz – ma korpoprzeszłość na stanowiskach menedżerskich (także międzynarodowych). Obecnie jest członkinią Plemienia Odry. Koordynowała działania dla Odry w województwie pomorskim. W internecie zaprasza do przestrzeni „Dagmara Bałusz – Życie na miękko” oraz na stronę inicjatywy Osoba odra.Podobał Ci się ten odcinek?Jeśli uważasz go za wartościowy, podziel się nim, daj znać swoim znajomym na Facebooku, Instagramie i w innych social mediach lub WYŚLIJ PRZYJACIÓŁCE >>Czekam na Twój komentarz :) na stronie podcastu:***https://www.horsesense.pl/podcast138/

Asian Cinema Film Club's Podcast
A.C. Film Club #141- Bedevilled

Asian Cinema Film Club's Podcast

Play Episode Listen Later May 6, 2025 71:44


Elwood and Stephen look at the South Korean revenge thriller Bedevilled as bank clerk Hae-won returns to the island she spent her childhood on after a public meltdown at her work put her on enforced leave. Now reconnecting with her childhood friend Bok-nam she slowly starts to realise the backwards nature of the island and how close her friend is to reaching breaking point.Review: 00:34:28---Opening Theme - Coffee DateBeat Provided By https://freebeats.ioProduced By White Hot---⁠⁠Buy us a coffee and support the show⁠⁠Check out our sponsor: ⁠⁠Yes Please Vintage

HAE Speaks
Episode 52: End of Progression: Understanding the Full Spectrum of a Bradykinin-mediated Angioedema Attack

HAE Speaks

Play Episode Listen Later May 5, 2025 19:47


In this month's episode of the HAE Speaks Podcast, please join Raffi Tachdjian, MD, MPH, Associate Clinical Professor, David Geffen School of Medicine at UCLA, and Kenny Robinson, MD, Head of Medical Affairs, North America at Pharvaris, for a discussion about the full spectrum of a bradykinin-mediated angioedema attack. This podcast episode highlights the experience of the physician and those living with bradykinin-mediated angioedema, explores the nuances of attack progression and resolution, and shares strategies to inform clinical assessment and improve outcomes for individuals with HAE.We would like to thank Pharvaris for sponsoring this episode of the HAE Speaks Podcast.

#BeyondHAE Youth Produced Podcast
#BeyondHAE Podcast: Young Advocates on Capitol Hill Fighting for Rare Disease Policy

#BeyondHAE Youth Produced Podcast

Play Episode Listen Later May 1, 2025 21:49


In this special episode of the #BeyondHAE podcast, we hear from three passionate young advocates, Zach, Angel, and Arabel who took their voices to Capitol Hill during the EveryLife Foundation's Rare Disease Week events. Representing the HAEA community, they met with legislators to push for policies that improve the lives of people with rare diseases and their families.Tune in as they share their experiences from the event, discuss the importance of Rare Disease Day, and break down the key issues they advocated for. They'll also explore ways that you, no matter where you are, can get involved in rare disease advocacy from home.Join us for an inspiring conversation about the power of young advocates, the policies that matter, and the impact they hope to make for the HAE and rare disease community!This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, ⁠⁠⁠www.haea.org⁠⁠⁠.Thank you to our sponsors, ⁠⁠⁠⁠⁠⁠⁠KalVista⁠⁠⁠⁠⁠⁠⁠ and ⁠⁠⁠⁠Pharvaris⁠⁠⁠⁠.

HAE Speaks
Episode 51: Legislative Series - Insights from Two Grassroots Leaders

HAE Speaks

Play Episode Listen Later Apr 3, 2025 36:23


In this month's episode of the HAE Speaks Podcast, we hear from Craig, a person with HAE, and his wife and caregiver, Melissa. They reflect on their powerful experiences during Rare Disease Week in Washington, D.C.Tune in to hear how their partnership, perseverance, and passion are helping to raise awareness, influence change, and bring the voice of the HAE community to policymakers on Capitol Hill. 

Rare Disease Discussions
Consider Rare: Suspecting and Diagnosing Hereditary Angioedema (HAE)

Rare Disease Discussions

Play Episode Listen Later Mar 7, 2025 24:37


Hereditary angioedema (HAE) is a rare condition often due to reduced levels C1-inhibitor, which is a protein involved in various physiological processes in plasma, most notably with the complement system. C1-inhibitor also binds and inhibits plasma kallikrein and factor XIa, thereby affecting bradykinin production. It is believed that the disruptions of these processes cause fluid to leak from the blood to connective tissue, leading to HAE attacks. Owing to its rarity, HAE is often poorly recognized, leading to misdiagnoses and significant diagnostic delays. Being aware of the early signs and symptoms of this condition can lead to faster diagnosis and the use of effective therapies.This program is supported by independent medical education grants from Takeda. To earn CME credit please visit https://checkrare.com/learning/p-consider-rare-suspecting-and-diagnosing-hereditary-angioedema/lessons/consider-rare-suspecting-and-diagnosing-hereditary-angioedema-module/  Target AudienceThis activity has been designed to meet the educational needs of physicians specializing in primary care, pediatrics, emergency care, otolaryngology, gastroenterology, and dermatology .Other members of the care team may also participate.Learning ObjectivesAfter participating in the activity, learners should be better able to:- Describe the early symptoms of HAE and its clinical relevance.- Apply best practices to diagnose HAE more efficiently to reduce diagnostic delays. Faculty Jonathan A Bernstein, MDProfessor of MedicineUniversity of Cincinnati Department of Internal MedicineDivision of Immunology, Allergy SectionPartner Advanced Allergy Services, LLCPartner Bernstein Clinical Research Center Disclosure StatementAccording to the disclosure policy of the Academy, all faculty, planning committee members, editors, managers and other individuals who are in a position to control content are required to disclose any relationships with any ineligible company(ies). The existence of these relationships is not viewed as implying bias or decreasing the value of the activity. Clinical content has been reviewed for fair balance and scientific objectivity, and all of the relevant financial relationships listed for these individuals have been mitigated.Disclosure of relevant financial relationships are as follows:Dr. Bernstein discloses the following relevant financial relationships with ineligible companies:Advisory Board Consultant: Takeda/Shire, CSL Behring, KalVista, Pharming, Biocryst, Ionis, Intellia, Pharvaris, Astria and BiomarinGrant/Research Support: Takeda/Shire, CSL Behring, KalVista, Pharming, Biocryst, Ionis, Intellia, Pharvaris, Astria and BiomariSpeaker's Bureau: PharmingPlanners for this activity have no relevant financial relationships with any ineligible companies.This activity will review off-label or investigational information.The opinions expressed in this educational activity are those of the faculty, and do not represent those of the Academy or CheckRare CE. This activity is intended as a supplement to existing knowledge, published information, and practice guidelines. Learners should appraise the information presented critically, and draw conclusions only after careful consideration of all available scientific information.Accreditation and Credit DesignationIn support of improving patient care, this activity has been planned and implemented by American Academy of CME, Inc. and CheckRare CE. American Academy of CME, Inc. is Jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.PhysiciansAmerican Academy of CME, Inc., designates this enduring material for a maximum of 0.50 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity. Other HCPsOther members of the care team will receive a certificate of participation.There are no fees to participate in the activity. Participants must review the activity information including the learning objectives and disclosure statements, as well as the content of the activity. To receive CME credit for your participation, please complete the pre and post-program assessments. Your certificate will be emailed to you within 30 days.ContactFor any questions, please contact: CEServices@academycme.orgCopyright© 2025. This CME-certified activity is held as copyrighted © by American Academy of CME and CheckRare CE. Through this notice, the Academy and CheckRare CE grant permission of its use for educational purposes only. These materials may not be used, in whole or in part, for any commercial purposes without prior permission in writing from the copyright owner(s).

#BeyondHAE Youth Produced Podcast
#BeyondHAE Podcast: A Letter to my 10 year old Self

#BeyondHAE Youth Produced Podcast

Play Episode Listen Later Mar 4, 2025 15:36


As we step into March, we're excited to bring you a brand-new episode of the #BeyondHAE youth-produced podcast! This episode is hosted by 18-year-old Luke, who was diagnosed with HAE at the age of 9, alongside his mom, Mandy, who has been a vital part of his journey.In this special "Letter to My 10-Year-Old Self" episode, Luke reflects on his diagnosis, the challenges he faced, and how his life has evolved since then. He shares the wisdom he has gained along the way and the lessons he wishes he could have told his younger self.Join us as Luke and Mandy take you on a heartfelt journey, looking back at how their experiences with HAE have shaped them over time and offering advice for those who are newly diagnosed. Don't miss this inspiring conversation!This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, ⁠⁠⁠www.haea.org⁠⁠⁠.Thank you to our sponsors, ⁠⁠⁠⁠⁠⁠⁠KalVista⁠⁠⁠⁠⁠⁠⁠ and ⁠⁠⁠⁠Pharvaris⁠⁠⁠⁠.

#BeyondHAE Youth Produced Podcast
#BeyondHAE: Meet 2024 Social Media Interns - Jason and Tyler

#BeyondHAE Youth Produced Podcast

Play Episode Listen Later Feb 28, 2025 8:59


In this episode of the #BeyondHAE youth-produced podcast, we highlight two incredible young HAE caregivers, Tyler and Jason, who have been longtime members of the HAE community. As dedicated advocates for their loved ones, they joined the HAEA social media internship in 2024 to raise awareness about HAE and amplify the voices of those affected. Tyler and Jason share their experiences as caregivers, the challenges they've navigated, and their passion for making a difference. Tune in for an inspiring conversation about advocacy, resilience, and the impact of supporting a loved one with HAE.This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, ⁠⁠⁠www.haea.org⁠⁠⁠.Thank you to our sponsors, ⁠⁠⁠⁠⁠⁠KalVista⁠⁠⁠⁠⁠⁠ and ⁠⁠⁠Pharvaris⁠⁠⁠.

#BeyondHAE Youth Produced Podcast
#BeyondHAE: Meet the Newest Members of the HAEA's Youth Leadership Council Kaylee and Kiarra

#BeyondHAE Youth Produced Podcast

Play Episode Listen Later Feb 14, 2025 9:50


In this episode of the #BeyondHAE youth-produced podcast, we connect with Kaylee and Kiara, two passionate advocates whose lives have been shaped by hereditary angioedema (HAE). Both Kaylee and Kiara have been living with HAE and understand the challenges of managing a rare disease. Now, as new members of the HAEA Youth Leadership Council, they are eager to use their voices to empower and support other young people in the HAE community. Tune in for an inspiring conversation about resilience, leadership, and the importance of sharing your story to create meaningful connections.This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, ⁠⁠⁠www.haea.org⁠⁠⁠.Thank you to our sponsors, ⁠⁠⁠⁠⁠KalVista⁠⁠⁠⁠⁠ and ⁠⁠Pharvaris⁠⁠.

newest hae kiarra youth leadership council
#BeyondHAE Youth Produced Podcast
#BeyondHAE: Meet HAEA Youth Leadership Council Members - Kati and Ella

#BeyondHAE Youth Produced Podcast

Play Episode Listen Later Feb 3, 2025 10:59


In this episode of the #BeyondHAE youth-produced podcast, we connect with Ella and Kati, two passionate advocates whose lives have been shaped by hereditary angioedema (HAE). Ella, a devoted caregiver to her mother, shares her perspective on supporting a loved one with HAE and the impact it has had on her journey. Kati, who has been living with HAE since childhood, reflects on her experiences, the obstacles she has faced, and the strength she has found within the HAEA community. As new members of the HAEA Youth Leadership Council, both Ella and Kati are committed to raising awareness and supporting others in the HAE community. Tune in for an inspiring conversation about caregiving, resilience, and the power of connection. This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, ⁠⁠⁠www.haea.org⁠⁠⁠. Thank you to our sponsors, ⁠⁠⁠⁠KalVista⁠⁠⁠⁠ and ⁠Pharvaris⁠.

council members hae youth leadership council
#BeyondHAE Youth Produced Podcast
#BeyondHAE Podcast: Meet the Newest Members of the HAEA's Youth Leadership Council

#BeyondHAE Youth Produced Podcast

Play Episode Listen Later Jan 31, 2025 9:58


In this episode of the #BeyondHAE youth produced podcast, we connect with Skylar and Cassidy, two remarkable individuals whose lives have been shaped by hereditary angioedema (HAE) in different ways. Skylar, a dedicated caregiver to her mother and sister, shares her experiences of supporting her family members with HAE. Cassidy, diagnosed with HAE two years ago, reflects on her journey, the challenges she has overcome, and the support she has found within the HAEA community. Together, they offer powerful insights into resilience, caregiving, and the strength of the HAE community. Tune in for an inspiring conversation about perseverance, connection, and hope. This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, ⁠⁠⁠www.haea.org⁠⁠⁠. Thank you to our sponsors, ⁠⁠⁠KalVista⁠⁠⁠ and Pharvaris.

newest hae youth leadership council
Rare Disease Discussions
Improving Health Equity in Hereditary Angioedema (HAE): A Panel Discussion

Rare Disease Discussions

Play Episode Listen Later Jan 27, 2025 61:37


This educational program is made possible by an unrestricted grant from Takeda Pharmaceuticals.Hereditary angioedema (HAE) is a rare genetic disease that results in immunologic attacks that can be life-threatening. HAE is the result of reduced levels of C1-inhibitor, a protein involved in various physiological processes in plasma, most notably with the complement system. C1-inhibitor also binds and inhibits plasma kallikrein and factor XIa, thereby affecting bradykinin production. It is believed that the disruptions of these processes lead to fluid leaking from the blood to connective tissue which leads to HAE attacks. It is these HAE attacks that tend to put persons in the emergency department or unable to attend work or school.Numerous therapies are now available for patients with HAE to both treat acute attacks and prevent attacks via prophylactic treatment.With so many treatment options now available, is it disheartening to learn that not all patients with HAE are receiving equal care or access to care. Patients with HAE living in rural areas as patients from underrepresented racial or ethnic backgrounds are not provided the same level of care as patients, especially Caucasian patients,  living in more affluent areas. This panel discussion by three clinical research leaders in HAE, Drs. Aleena Banerji, Timothy Craig, and Marc Riedl, provide an overview of the discrepancies in care observed in certain patient populations, as well as a discussion on best practices to reduce those inequalities moving forward.To view this program in video format, go to https://checkrare.com/improving-health-equity-in-hereditary-angioedema-hae-a-panel-discussion/

#BeyondHAE Youth Produced Podcast
#BeyondHAE: Meet 2024 Social Media Intern - Kailani

#BeyondHAE Youth Produced Podcast

Play Episode Listen Later Jan 17, 2025 10:00


In this episode, we sit down with Kailani, a dedicated caregiver to her mother living with hereditary angioedema (HAE). Kailani shares her unique perspective on balancing caregiving responsibilities with her personal goals and how her experiences have shaped her outlook on life. As an HAEA social media intern in 2024, Kailani also discusses her involvement with the HAEA community and the importance of raising awareness about HAE. Tune in to hear her inspiring story of compassion, resilience, and the power of connection within the HAE community. This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, ⁠⁠⁠www.haea.org⁠⁠⁠. Thank you to our sponsor, ⁠⁠KalVista⁠⁠.

#BeyondHAE Youth Produced Podcast
#BeyondHAE: Meet Youth Leadership Council Members - Caroline and Avery

#BeyondHAE Youth Produced Podcast

Play Episode Listen Later Jan 10, 2025 9:05


The #BeyondHAE youth-produced podcast kicks off January 2025 with an exciting series of episodes spotlighting the newest members of the Youth Leadership Council who joined in 2024. Meet Caroline, who was diagnosed with HAE as a young child, and Avery, a dedicated caregiver for her brother. Both joined the YLC in 2024 and are excited to serve as leaders in the HAE community. With new episodes releasing weekly throughout January and February, listeners will get to know these inspiring young leaders and discover what fuels their passion for HAE advocacy. This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, ⁠⁠⁠www.haea.org⁠⁠⁠. Thank you to our sponsor, ⁠KalVista⁠.

council members hae ylc youth leadership council
Cinematography for Actors
Doing it Scared & Faking it 'Til You Make It with Writer / Producer Jason Shuman

Cinematography for Actors

Play Episode Listen Later Jan 7, 2025 44:21 Transcription Available


Hae chats with Jason Shuman, a film industry veteran who's transition from the bustling world of production to the contemplative realm of writing offers a rare glimpse into the intricacies of storytelling and the crucial interplay between departments in the industry.Explore his trajectory as a young, determined filmmaker finding his voice amidst the chaotic yet thrilling landscape of Hollywood. Jason shares how his strategic educational choices and early career steps, including pivotal internships with industry giants like Joel Silver, and Arnold Kopelson laid a foundation for success. His anecdotes paint a vivid picture of how educational freedom and real-world experiences converge to shape a unique creative identity, highlighting the importance of not just learning, but living.He reflects on the significance of networking, unexpected success stories, and key lessons from selling TV pilots. Through personal stories and professional insights, Jason underscores the symbiotic relationship between writers and producers and the necessity of understanding screenplay structures. This episode is a treasure trove for aspiring filmmakers and storytellers, offering practical advice and inspiration to navigate the ever-changing world of film.Send us a textFor our listeners, CFA's teamed up with We Make Movies to get you a discount on production management services, including access to comprehensive production insurance and workers' comp for your next shoot. Visit wemakemovies.org/insurance and use code CFA23 on your intake form for 10% off your quote.Calling all actors! Take 25% off your membership at WeAudition with code: CFA25 Website: www.cinematographyforactors.com Instagram: https://www.instagram.com/cinematographyforactors TikTok: https://www.tiktok.com/@cinematographyforactors Cinematography for Actors is a community aimed at bridging the gap between talent & crew through our weekly podcast & community events. Our weekly show supports the filmmaking community through transparent, honest & technically focused interviews with the goal of elevating the art of effective storytelling.

#BeyondHAE Youth Produced Podcast
#BeyondHAE Podcast: Meet the HAEA's Youth Leadership Council's Newest Members

#BeyondHAE Youth Produced Podcast

Play Episode Listen Later Dec 30, 2024 10:41


The #BeyondHAE youth-produced podcast kicks off January 2025 with an exciting series of episodes spotlighting the newest members of the Youth Leadership Council who joined in 2024. This episode features Sully, a dedicated caregiver to his mother who has HAE, as he shares his unique perspective and experiences in the HAE community. With new episodes releasing weekly throughout January and February, listeners will get to know these inspiring young leaders and discover what drives their passion for HAE advocacy. This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, ⁠⁠⁠www.haea.org⁠⁠⁠. Thank you to our sponsor, KalVista.

newest sully hae youth leadership council
Based in Fact
Episode 14 - MD v Adnan Masud Syed, with Robb Chadwick: A Victory for Victims' Rights in Maryland

Based in Fact

Play Episode Listen Later Dec 28, 2024 129:02


This episode is dedicated to Robb Chadwick, who passed away in mid-December. Robb was a great friend, a supporter of this podcast and a true Southern gentleman. His insight and knowledge of the facts of many cases, along with his kind and calm debate strategy will be missed by many. RIP, Robb.In Episode 14, State of Maryland v. Adnan Masud Syed, Lisa was joined by Robb Chadwick, a former journalist with a life-long interest in the truth of true crime and fairness for victims. Since his retirement, Robb has researched and written about a number of cases — but none more than the case of the day: the murder of Hae Min Lee by Adnan Masud Syed. On January 13, 1999, Hae Min Lee disappeared after leaving Woodlawn High School, where she was a popular athlete and scholar. Police looking for her questioned several people, including her current boyfriend and ex-boyfriend, Adnan Syed. On February 9, 1999, Hae's body was found partially buried in a shallow grave in Leakin Park, in Baltimore City, Maryland. Three days later, on February 12, an anonymous tip led police to put Adnan Syed at the top of their suspect list. On February 27, 1999, Jay Wilds, an acquaintance of Syed, was interviewed by police and, early on the morning of February 28, 1999, led police to Hae's missing vehicle. Syed was convicted and sentenced to Life, plus 30 years in 2000. The case has been the topic of multiple podcasts over the years and in 2022, his conviction was vacated by a pro-defendant judge in a fixed hearing at which no one represented the interests of Hae Min Lee, or her family. On August 30, 2024, the Supreme Court of Maryland affirmed the Appellate Court of Maryland's reinstatement of Syed's conviction and held that Hae's brother, Young Lee, had the right to be heard at any future hearing seeking to vacate Syed's conviction.

The Doric Express
Doric Express 06/12/24

The Doric Express

Play Episode Listen Later Dec 6, 2024 15:33


A wee puckly stories from today's P&J on the 6th of December 2024. Hae a dandy weekend, thanks for listening, cheers, Allan

#BeyondHAE Youth Produced Podcast
#BeyondHAE Podcast: A Day in the Life - Jasmeen's Journey of Resilience

#BeyondHAE Youth Produced Podcast

Play Episode Listen Later Nov 4, 2024 18:23


In this episode of the #BeyondHAE podcast, HAEA Youth Leadership Council member Carlie chats with Youth Advocate Jasmeen about her personal journey with HAE. Diagnosed as a teenager, Jasmeen shares how she has learned to manage her condition while balancing the demands of school, work, and everyday life. Tune in to hear an inspiring conversation about resilience, growth, and navigating life with HAE. This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, ⁠⁠⁠www.haea.org⁠⁠⁠. Thank you to our sponsors CSL Behring and ⁠Takeda⁠⁠⁠.

#BeyondHAE Youth Produced Podcast
#BeyondHAE BONUS Episode: Empowering Youth Voices: Ally & Luke's Journey in Legislative Advocacy

#BeyondHAE Youth Produced Podcast

Play Episode Listen Later Oct 1, 2024 17:50


In this special Youth Advocacy Month episode, join host Kobe as they sit down with HAEA Youth Advocacy Network Regional Leaders, Ally and Luke, to discuss their impactful experiences as young advocates during HAEA's Capitol Hill Day and advocacy training workshops. Ally and Luke share what it's like to participate in legislative visits, why it's crucial for young people to be involved in advocacy, and how their passion for legislative change drives their work in the HAE community. As seasoned advocates, they open up about their journey, the challenges they've faced, and the lasting impact they aim to make through their advocacy efforts. Tune in to be inspired by their dedication to making a difference and learn how you, too, can take action for the HAE community. This is a must-listen episode for young people ready to amplify their voices and lead the way in legislative advocacy! This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, ⁠⁠⁠www.haea.org⁠⁠⁠. Thank you to our sponsors CSL Behring and ⁠Takeda⁠⁠⁠.

Above Par
Making People Neutral on the Golf Course

Above Par

Play Episode Listen Later Sep 4, 2024 12:17


Hae you ever played golf with people who just bug the heck out of you? Unless you play with the same group with your favorite people every round, you like have played with "challenging people". In this episode of Think Above Par, Kathy dives into the mental game of golf by exploring how to make fellow golfers and various on-course interactions neutral (neither golf nor bad). She shares personal anecdotes and offers practical advice on how to manage your thoughts and reactions to different personalities, ensuring that your golf experience is controlled by your mindset, not the people around you.Learn strategies to keep your focus, maintain your calm, and build mental resilience both on and off the golf course.

Truth & Justice with Bob Ruff
S14 Ep20: The Prosecutors V. Adnan - Pt. 14

Truth & Justice with Bob Ruff

Play Episode Listen Later Mar 10, 2024 72:13


In this series finale, Bob breaks down The Prosecutors' final theories episode.  This shocking conclusion will leave you wondering how anyone was ever convinced that Adnan was guilty . . . while at the same time giving you a full understanding of how they did it.  In the final segment, Bob shares his detailed theory about what he believes happened to Hae. To join our Patreon community, click THIS LINK.  At the $5/month level you'll get access to lots of Patreon Only BONUS EPISODES, Ad Free versions of all episodes, an hour of Patreon Exclusive video content every week, and our new weekly podcast “Pre-Game”, which drops every Wednesday. Today's Sponsors: Factor – Go to FactorMeals.com/truth50 and use code “truth50” to get 50% off. FÜM – Go to TryFum.com/truth a use code “truth” for 10% off.

Truth & Justice with Bob Ruff
S14 Ep19: The Prosecutors V. Adnan - Pt. 13

Truth & Justice with Bob Ruff

Play Episode Listen Later Mar 3, 2024 63:25


In Part 13, The Prosecutors aim to eliminate all suspects other than Adnan.  In Bob's response he delivers a detailed profile of Hae's killer.  He takes a deep dive into lividity and the double-diamond pressure marks.  And lays out the reasons why he personally believes that Don should not be eliminated as a suspect without further investigation. To join our Patreon community, click THIS LINK.  At the $5/month level you'll get access to the current episodes of Bob's Reply Brief series on the Adnan Syed case, Ad Free versions of all episodes, an hour of Patreon Exclusive video content every week, and our new weekly podcast “Pre-Game”, which drops every Wednesday.

Truth & Justice with Bob Ruff
S14 Ep17: The Prosecutors V. Adnan - Pt. 11

Truth & Justice with Bob Ruff

Play Episode Listen Later Feb 18, 2024 43:23


In part 11 of The Prosecutors' series, Brett and Alice aim to discredit any theories or elements of the case that could lead away from a guilty narrative.  The plot points on this one are: 1.  The reliability of incoming calls.  2.  When did Jay tell Jenn about the murder?  3.  Was there a pay phone at Best Buy?  4.  Did Jay lead the police to Hae's car?  And 5.  Did Jay and Adnan visit Kristi Vinson on the night of the murder?  This is part of their "process of elimination" approach to leaving you with no other options besides a guilty Adnan.  Bob addresses every element and easily points out the flaws in The Prosecutors' arguments. To binge the Reply Brief series ahead of the main feed drops, you can JOIN OUR PATREON community at the $5/month level.  Right now you can binge all the way through the end of the series!  When you join Patreon, you'll also get all of our episodes ad free, and an hour of Patreon exclusive video content every week, as well as our NEW WEEKLY PODCAST “Pre-Game” with new episodes dropping every Wednesday for Patrons. Today's Sponsor: Better Help - Go to BetterHelp.com/truth to get 10% off your first month.

Truth & Justice with Bob Ruff
S14 Ep14: Jennifer Pusateri Full Recorded Interview

Truth & Justice with Bob Ruff

Play Episode Listen Later Jan 28, 2024 86:19


This is Jennifer Pusateri's full and unedited interview from 2/27/99.  According to the official record, Jenn was first approached by Police at her house on the evening of Feb. 26.  At that point, she told them that she was busy, but agreed to go down to the station to be interviewed later.  She then went to the police station around 9pm on the 26th.  In that interview she told the Detectives that she didn't know anything about Hae's murder.  The next morning, Jenn and her mother met the Detectives at her attorney's home where she was interviewed a second time.  After that, everyone went to the Police station and Jenn was interviewed a third time.  That third interview was recorded, and that's what you will be hearing in this episode. To binge the Reply Brief series ahead of the main feed drops, you can JOIN OUR PATREON community at the $5/month level.  Right now you can binge all the way through the end of the series!  When you join Patreon, you'll also get all of our episodes ad free, and an hour of Patreon exclusive video content every week, as well as our NEW WEEKLY PODCAST “Pre-Game” with new episodes dropping every Wednesday for Patrons.