Podcasts about Hae

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Best podcasts about Hae

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Latest podcast episodes about Hae

#BeyondHAE Youth Produced Podcast
#BeyondHAE: High-Fiving Palm Trees

#BeyondHAE Youth Produced Podcast

Play Episode Listen Later Nov 3, 2025 13:28


In this episode of the #BeyondHAE podcast, host Zach shares his powerful journey growing up with Hereditary Angioedema (HAE). His story chronicles his experience dealing with an especially challenging attack after high-fiving a palm tree, learning self-infusions as a teen, and finally discovering a sense of freedom through modern treatments. Sponsored by KalVista Pharmaceuticals, this episode takes listeners inside Zach's experience with the oral on-demand treatment EKTERLY®, which transformed the way he manages HAE. Through resilience, advocacy, and hope, Zach's story offers inspiration to anyone navigating life with a rare disease.This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, ⁠⁠⁠www.haea.org⁠⁠⁠.Thank you to our sponsor, ⁠⁠⁠⁠⁠⁠⁠KalVista.

Fluent Fiction - Korean
Jacket Dilemmas: A Stylish Adventure at COEX Mall

Fluent Fiction - Korean

Play Episode Listen Later Oct 24, 2025 13:34 Transcription Available


Fluent Fiction - Korean: Jacket Dilemmas: A Stylish Adventure at COEX Mall Find the full episode transcript, vocabulary words, and more:fluentfiction.com/ko/episode/2025-10-24-22-34-02-ko Story Transcript:Ko: 가을의 쌀쌀한 바람이 솔솔 부는 날, 지수, 민호, 그리고 해은은 서울의 복잡한 코엑스 몰에 있었다.En: On a day when the chilly autumn wind was gently blowing, Jisoo, Minho, and Hae-eun were at the bustling COEX Mall in Seoul.Ko: 그들은 다가오는 겨울을 대비하여 따뜻한 옷을 사러 온 것이다.En: They had come to buy warm clothes in preparation for the upcoming winter.Ko: 코엑스 몰은 밝은 가게들과 화려한 화면으로 무장되어 있었다.En: The COEX Mall was equipped with bright stores and dazzling screens.Ko: 가을과 겨울 컬렉션들이 쇼윈도에 매달려, 지나가는 사람들의 눈길을 붙잡았다.En: Autumn and winter collections were hung in the shop windows, capturing the attention of passersby.Ko: 지수는 완벽한 겨울 자켓을 찾는 것이 목표였다.En: Jisoo's goal was to find the perfect winter jacket.Ko: 그녀는 세심하고 약간은 불안해하는 성격이다.En: She has a meticulous and somewhat anxious personality.Ko: 예산에 맞으면서도 스타일 있는 자켓을 원했다.En: She wanted a jacket that was stylish yet within her budget.Ko: 그녀의 옆에는 언제나 여유로운 민호가 있었다.En: Beside her was the ever-relaxed Minho.Ko: 그는 지수의 고민을 이해하려 노력했지만, 그저 친구와 함께 있는 것만으로도 즐거웠다.En: He tried to understand Jisoo's dilemma but was simply happy to be with his friend.Ko: 그리고 세 사람 중 가장 패션에 관심 많은 해은이 있었다.En: And there was Hae-eun, the most fashion-conscious of the three.Ko: 그녀는 최신 유행에 맞게 겨울 옷장을 꾸미고 싶었다.En: She wanted to update her winter wardrobe according to the latest trends.Ko: 시간이 지나고, 지수는 자켓을 찾기가 점점 어려워지고 있다는 것을 느꼈다.En: As time passed, Jisoo began to feel that finding a jacket was becoming increasingly difficult.Ko: 그녀의 사이즈는 좋은 품목들이 빠르게 매진되고 있었다.En: Her size was selling out quickly.Ko: 고민의 시간이 길어지자, 지수는 뒤늦게나마 결단을 내려야 했다.En: As the period of indecision grew longer, Jisoo realized she had to make a decision sooner rather than later.Ko: 마침내, 그녀는 한 가게에서 마음에 드는 자켓을 발견했다.En: Finally, she found a jacket she liked at a store.Ko: 그것은 따뜻하고 스타일리시하며 그녀의 예산을 살짝 넘기는 가격이었다.En: It was warm, stylish, and slightly over her budget.Ko: 지수는 살짝 망설였지만, 자켓이 마지막 한 벌임을 알아차렸다.En: Jisoo hesitated a little but noticed it was the last piece available.Ko: 동시에 다른 손님이 그 자켓에 관심을 보이기 시작했다.En: At the same time, another customer began to show interest in the jacket.Ko: 지수는 그 순간 빨리 결정을 내려야 했다.En: At that moment, Jisoo had to make a quick decision.Ko: 그녀는 자켓을 잡아 시원하게 웃으며 계산대로 갔다.En: She grabbed the jacket and, with a refreshing smile, headed to the checkout counter.Ko: 드디어 그녀는 원하던 바람직한 선택을 했다.En: At last, she made the desirable choice she wanted.Ko: 집에 가는 길에 지수는 만족스러워지는 것을 느꼈다.En: On the way home, Jisoo felt satisfied.Ko: 이제는 더 빠르게 판단하고 자신감을 갖게 되었다.En: Now, she was able to make quicker decisions and gained confidence.Ko: 그렇게 지수, 민호, 해은은 함께 웃으며 쇼핑을 마치고, 코엑스 몰을 나섰다.En: Thus, Jisoo, Minho, and Hae-eun finished their shopping with laughter and exited COEX Mall.Ko: 가을의 황혼이 몰 안을 비추며, 그들의 마음은 따뜻하게 빛났다.En: As the autumn dusk illuminated the inside of the mall, their hearts glowed warmly.Ko: 이로써 지수는 더 이상 망설이는 사람이 아닌, 기회를 붙잡는 법을 알게 된 것이다.En: With this, Jisoo was no longer someone who hesitated but someone who learned how to seize the opportunity. Vocabulary Words:chilly: 쌀쌀한bustling: 복잡한equipped: 무장되어dazzling: 화려한meticulous: 세심한anxious: 불안해하는dilemma: 고민fashion-conscious: 패션에 관심 많은indecision: 고민hesitated: 망설였다desirable: 바람직한confidence: 자신감seize: 붙잡는opportunity: 기회solace: 위안illuminated: 비추는refreshing: 시원하게equipped: 갖추어진collections: 컬렉션capture: 붙잡다passersby: 지나가는 사람들relaxed: 여유로운update: 꾸미다trends: 유행exited: 나섰다dusk: 황혼glow: 빛나다budget: 예산wardrobe: 옷장

Korean Drama Podcast
Heavenly Ever After #12

Korean Drama Podcast

Play Episode Listen Later Oct 9, 2025 94:00


We've finally made it to our season 6 finale! Join Kim, Candice, and Jane one last time as we recap episode 12 of Heavenly Ever After, and man what an ending it was, filled willed with heartfelt moments and actual closure! Stay tuned to the end of the podcast to hear out hosts reflect on the drama as a whole for our post-season debrief!Episode 12: After weathering their biggest storm in heaven, Nak-joon and Hae-sook receive a special opportunity, but a heavy truth might weigh them down.Watch it now on Netflix--Follow us on twitter at @koreandramapodSubscribe to the podcast on Apple Podcasts, Spotify, or copy our RSS Feed into your favorite podcast player!Korean Drama Podcast is a part of the Potluck Podcast CollectiveProduced by HappyEcstatic Media

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HAE Speaks
Episode 58: 10 Must-Ask Insurance Questions for HAE

HAE Speaks

Play Episode Listen Later Oct 9, 2025 29:33


In this episode, HAEA Nurse Case Managers, Troyce Venturella and Mandy Granat, share their 10 must-ask insurance questions for people living with HAE. Learn how to better understand your coverage, prepare for renewals, and advocate for the care you need. Navigating insurance can be challenging, but you don't have to do it alone!

Korean Drama Podcast
Heavenly Ever After #11

Korean Drama Podcast

Play Episode Listen Later Oct 1, 2025 81:01


What a wild ride it has been as we recap the penultimate episode of Heavenly Ever After. On Episode 11, the mysterious origins of Som-i and her relation to Nak-joon and Hae-sook are finally revealed in climactic fashion, and it is even more dramatic than we could ever have imagined!Episode 11: As a result of her agonising memories related to Nak-joon, Som-i starts to resent Hae-sook, but soon learns that the truth is different from what it seems.Watch it now on Netflix--Follow us on twitter at @koreandramapodSubscribe to the podcast on Apple Podcasts, Spotify, or copy our RSS Feed into your favorite podcast player!Korean Drama Podcast is a part of the Potluck Podcast CollectiveProduced by HappyEcstatic Media

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Korean Drama Podcast
Heavenly Ever After #10

Korean Drama Podcast

Play Episode Listen Later Sep 24, 2025 64:55


Wowowow, things are really heating up as we get into the final arc of Heavenly Ever After! Join us as we recap a revelation packed episode 10 where we finally get some answers to our burning questions, as well as dive into the history of Korean transnational adoption (with some personal perspectives from Kim as an adoptee herself)!Episode 10: Som-i reveals a strange memory to Nak-joon, triggering a deeply buried trauma, and Hae-sook enters heaven's Lotto Festival, hoping to help Young-ae.Watch it now on Netflix--Follow us on twitter at @koreandramapodSubscribe to the podcast on Apple Podcasts, Spotify, or copy our RSS Feed into your favorite podcast player!Korean Drama Podcast is a part of the Potluck Podcast CollectiveProduced by HappyEcstatic Media

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Korean Drama Podcast
Heavenly Ever After #8

Korean Drama Podcast

Play Episode Listen Later Sep 10, 2025 70:33


On this episode, we recap another low-key episode of the K-Drama Heavenly Ever After, where surprisingly a lot happens to our characters as we continue setting up for the drama's last act, including more revelations for Som-i and her mysterious powers. Will we finally find out what her deal is?Episode 8: Hae-sook throws herself into church life as tension at home mounts; Som-i begins to experience forbidden emotions while trying to regain her memories.Watch it now on Netflix--Follow us on twitter at @koreandramapodSubscribe to the podcast on Apple Podcasts, Spotify, or copy our RSS Feed into your favorite podcast player!Korean Drama Podcast is a part of the Potluck Podcast CollectiveProduced by HappyEcstatic Media

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The KDrama Show with Ashley and Kim
519. No Gain No Love

The KDrama Show with Ashley and Kim

Play Episode Listen Later Sep 10, 2025 100:02


A full show review.Hae-yeong and Ji-uk are opposite in so many ways. Hae-yeong calculates every move, weighing the gains and losses for every relationship. Ji-uk is known as being an "angelic dog". He is kind and helpful to everyone around him. Together they try to pull off a fake relationship but is there something more between them? Bok Gyu-hyun and Nam Ja-yeon don't know each other. Ja-yeon is a "spicy" writer and Gyu-hyun finds the content to be an offense to anyone learning about literacy. Despite where they started, they see each other in a new light and as something more.Find us on YouTube, Apple Podcasts and Amazon Music Follow us on Instagram @thekdramashow https://www.instagram.com/thekdramashow/ Email : the kdramashowashandkim@gmail.com Thanks for listening!!!

Korean Drama Podcast
Heavenly Ever After #7

Korean Drama Podcast

Play Episode Listen Later Sep 4, 2025 58:11


We kick off the back half of Heavenly Ever After with a more mellow episode 7. On this episode, join us as we learn more about what makes KDrama heaven tick, get to know more about various characters, and follow along as the show sets up some story lines that we hope get resolved soon.Episode 7: Overwhelmed by anxiety, Hae-sook welcomes an intimidating guest; Som-i tries to make sense of the ominous man she's been seeing in her visions.Watch it now on Netflix--Follow us on twitter at @koreandramapodSubscribe to the podcast on Apple Podcasts, Spotify, or copy our RSS Feed into your favorite podcast player!Korean Drama Podcast is a part of the Potluck Podcast CollectiveProduced by HappyEcstatic Media

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Korean Drama Podcast
Heavenly Ever After #6

Korean Drama Podcast

Play Episode Listen Later Aug 27, 2025 57:03


On episode 6 of Heavenly Ever After, we escape the darkness of K-Drama hell back to the saturated hues of K-Drama heaven as our crew continues to unravel the mysteries and systems that govern the afterlife and learning more about Hae-sook's life and journey. Episode 6: As Hae-sook suddenly returns to Heaven with Lee Young-ae, Som-I questions her own identity. Soon, Hae-sook meets folks whose lives she impacted on Earth.Watch it now on Netflix--Follow us on twitter at @koreandramapodSubscribe to the podcast on Apple Podcasts, Spotify, or copy our RSS Feed into your favorite podcast player!Korean Drama Podcast is a part of the Potluck Podcast CollectiveProduced by HappyEcstatic Media

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#BeyondHAE Youth Produced Podcast
#BeyondHAE Podcast: Advocating for Yourself As You Transition into College

#BeyondHAE Youth Produced Podcast

Play Episode Listen Later Aug 25, 2025 13:10


In this inspiring episode of the #BeyondHAE Podcast, HAEA Youth member Ally takes the mic to share an exciting update on the newly revamped HAEA College Transition Guide, designed to support students with HAE who are moving away from home to attend college.Ally is joined by fellow HAEA Youth Leader Paige for an honest and insightful conversation about their own college journeys. Together, they discuss the unique challenges of living in the dorms with HAE, from managing symptoms to balancing academic and social life. They share practical strategies they've used to navigate campus living, advocate for their needs, and stay healthy while embracing independence.Whether you're a high school senior preparing for the big move, a current college student, or a parent supporting your child's transition, this episode offers valuable tips, relatable experiences, and reassurance that you're not alone in this new chapter.Tune in for empowering advice and a fresh perspective on making the most of your college experience while living with HAE!This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, ⁠⁠⁠www.haea.org⁠⁠⁠.Thank you to our sponsors, ⁠⁠⁠⁠⁠⁠⁠KalVista⁠⁠⁠⁠⁠⁠⁠ and ⁠⁠⁠⁠Pharvaris⁠⁠⁠⁠.

DocTalk Podcast
HCPLive 5 Stories in Under 5: Week of 08/17

DocTalk Podcast

Play Episode Listen Later Aug 22, 2025 4:36


Welcome to HCPLive's 5 Stories in Under 5—your quick, must-know recap of the top 5 healthcare stories from the past week, all in under 5 minutes. Stay informed, stay ahead, and let's dive into the latest updates impacting clinicians and healthcare providers like you! Interested in a more traditional, text rundown? Check out the HCPFive! Top 5 Healthcare Headlines for August 17-23, 2025: 1. FDA Approves Donidalorsen to Prevent Hereditary Angioedema Attacks The FDA approved donidalorsen (DAWNZERA) for preventing HAE attacks in patients 12 years and older, supported by phase 3 OASIS trial data. 2. FDA Grants Atumelnant Orphan Drug Designation for Congenital Adrenal Hyperplasia Atumelnant received FDA Orphan Drug Designation after phase 2 results showed rapid, sustained reductions in key biomarkers for congenital adrenal hyperplasia. 3. Semaglutide Reduces Medical Costs, Healthcare Resource Utilization in Heart Failure A real-world analysis found semaglutide 2.4 mg reduced all-cause medical costs by 28% and inpatient hospitalization costs by 55% in patients with obesity and heart failure. 4. RE104 Reduces Postpartum Depression Symptoms by Day 7 in Phase 2 RECONNECT RE104 significantly reduced depressive symptoms by day 7 in patients with postpartum depression, meeting the phase 2 RECONNECT trial's primary endpoint. 5. Dyslipidemia, Other Metabolic Syndrome Factors May Raise Parkinson's Disease Risk People with metabolic syndrome had about a 40% higher risk of developing Parkinson's disease compared with those without the condition.

HAE Speaks
Episode 56: Understanding Medicare Enrollment

HAE Speaks

Play Episode Listen Later Aug 21, 2025 21:30


In this episode, HAE Health Services Manager Troyce Venturella sits down with Marie, an individual living with HAE who has navigated the complexities of Medicare enrollment firsthand. Together, they discuss the key steps, challenges, and considerations in selecting the right Medicare plan, offering valuable insights for others in the HAE community as they make important healthcare decisions.

Korean Drama Podcast
Heavenly Ever After #5

Korean Drama Podcast

Play Episode Listen Later Aug 20, 2025 78:03


After spending 4 episodes trying to sus out K-Drama heaven, we finally find our way into K-Drama hell on episode 5 of Heavenly Ever After. Join our hosts as they follow Hae-sook's orientation through the many different hells and the stories of the people that reside there.Episode 5: After receiving another infraction, Hae-sook descends into Hell, where she encounters a familiar face. Nak-joon makes his way into Hell to save her.Watch it now on Netflix--Follow us on twitter at @koreandramapodSubscribe to the podcast on Apple Podcasts, Spotify, or copy our RSS Feed into your favorite podcast player!Korean Drama Podcast is a part of the Potluck Podcast CollectiveProduced by HappyEcstatic Media

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Korean Drama Podcast
Heavenly Ever After #4

Korean Drama Podcast

Play Episode Listen Later Aug 13, 2025 61:51


We continue to explore k-drama heaven on episode 4 of Heavenly Ever After as the crew continues to learn about the (oh so many) rules of heaven and hell, as well as meet a bunch of good boys!Episode 4: Hae-sook slowly gains sympathy for Som-i, believing that that she reminds her of someone dear, and later welcome a new attendee with her pastor.Watch it now on Netflix--Follow us on twitter at @koreandramapodSubscribe to the podcast on Apple Podcasts, Spotify, or copy our RSS Feed into your favorite podcast player!Korean Drama Podcast is a part of the Potluck Podcast CollectiveProduced by HappyEcstatic Media

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ReachMD CME
How to Build A Multidisciplinary Team in HAE to Optimize Patient Care

ReachMD CME

Play Episode Listen Later Aug 11, 2025


CME credits: 1.00 Valid until: 11-08-2026 Claim your CME credit at https://reachmd.com/programs/cme/How-to-Build-A-Multidisciplinary-Team-in-HAE-to-Optimize-Patient-Care/35993/ Hereditary angioedema (HAE) is a rare, potentially life-threatening genetic disorder characterized by recurrent episodic swelling of the skin, gastrointestinal tract, and airways. The core approach to treating HAE prioritizes the availability of effective on-demand acute therapy, early treatment to prevent attack progression, treatment of attacks, and long-term prophylaxis. Early treatment of all breakthrough attacks, regardless of severity and site, is critical to maximize efficacy and reduce morbidity and mortality. Ongoing management of HAE should include evaluation of breakthrough attacks and any concerns with the disease course and current therapy to decide if a therapy adjustment is warranted. In this educational series, expert faculty discuss the importance of early treatment and personalizing therapy, best practice for managing breakthrough attacks, and current and emerging therapies for HAE.

ReachMD CME
How to Build A Multidisciplinary Team in HAE to Optimize Patient Care

ReachMD CME

Play Episode Listen Later Aug 11, 2025


CME credits: 1.00 Valid until: 11-08-2026 Claim your CME credit at https://reachmd.com/programs/cme/How-to-Build-A-Multidisciplinary-Team-in-HAE-to-Optimize-Patient-Care/35993/ Hereditary angioedema (HAE) is a rare, potentially life-threatening genetic disorder characterized by recurrent episodic swelling of the skin, gastrointestinal tract, and airways. The core approach to treating HAE prioritizes the availability of effective on-demand acute therapy, early treatment to prevent attack progression, treatment of attacks, and long-term prophylaxis. Early treatment of all breakthrough attacks, regardless of severity and site, is critical to maximize efficacy and reduce morbidity and mortality. Ongoing management of HAE should include evaluation of breakthrough attacks and any concerns with the disease course and current therapy to decide if a therapy adjustment is warranted. In this educational series, expert faculty discuss the importance of early treatment and personalizing therapy, best practice for managing breakthrough attacks, and current and emerging therapies for HAE.

ReachMD CME
Next-Generation Therapies for Long-Term Prophylactic Treatment of HAE

ReachMD CME

Play Episode Listen Later Aug 11, 2025


CME credits: 1.00 Valid until: 11-08-2026 Claim your CME credit at https://reachmd.com/programs/cme/program-name/35992/ Hereditary angioedema (HAE) is a rare, potentially life-threatening genetic disorder characterized by recurrent episodic swelling of the skin, gastrointestinal tract, and airways. The core approach to treating HAE prioritizes the availability of effective on-demand acute therapy, early treatment to prevent attack progression, treatment of attacks, and long-term prophylaxis. Early treatment of all breakthrough attacks, regardless of severity and site, is critical to maximize efficacy and reduce morbidity and mortality. Ongoing management of HAE should include evaluation of breakthrough attacks and any concerns with the disease course and current therapy to decide if a therapy adjustment is warranted. In this educational series, expert faculty discuss the importance of early treatment and personalizing therapy, best practice for managing breakthrough attacks, and current and emerging therapies for HAE.

ReachMD CME
The Personal Touch: Advancing Personalized Treatment in HAE

ReachMD CME

Play Episode Listen Later Aug 11, 2025


CME credits: 1.00 Valid until: 11-08-2026 Claim your CME credit at https://reachmd.com/programs/cme/program-name/35985/ Hereditary angioedema (HAE) is a rare, potentially life-threatening genetic disorder characterized by recurrent episodic swelling of the skin, gastrointestinal tract, and airways. The core approach to treating HAE prioritizes the availability of effective on-demand acute therapy, early treatment to prevent attack progression, treatment of attacks, and long-term prophylaxis. Early treatment of all breakthrough attacks, regardless of severity and site, is critical to maximize efficacy and reduce morbidity and mortality. Ongoing management of HAE should include evaluation of breakthrough attacks and any concerns with the disease course and current therapy to decide if a therapy adjustment is warranted. In this educational series, expert faculty discuss the importance of early treatment and personalizing therapy, best practice for managing breakthrough attacks, and current and emerging therapies for HAE.

ReachMD CME
From Theory to Practice: Real-World Challenges in Personalized HAE Care

ReachMD CME

Play Episode Listen Later Aug 11, 2025


CME credits: 1.00 Valid until: 11-08-2026 Claim your CME credit at https://reachmd.com/programs/cme/program-name/35986/ Hereditary angioedema (HAE) is a rare, potentially life-threatening genetic disorder characterized by recurrent episodic swelling of the skin, gastrointestinal tract, and airways. The core approach to treating HAE prioritizes the availability of effective on-demand acute therapy, early treatment to prevent attack progression, treatment of attacks, and long-term prophylaxis. Early treatment of all breakthrough attacks, regardless of severity and site, is critical to maximize efficacy and reduce morbidity and mortality. Ongoing management of HAE should include evaluation of breakthrough attacks and any concerns with the disease course and current therapy to decide if a therapy adjustment is warranted. In this educational series, expert faculty discuss the importance of early treatment and personalizing therapy, best practice for managing breakthrough attacks, and current and emerging therapies for HAE.

ReachMD CME
Breakthrough Attacks: Why Prophylaxis Isn't Always Enough

ReachMD CME

Play Episode Listen Later Aug 11, 2025


CME credits: 1.00 Valid until: 11-08-2026 Claim your CME credit at https://reachmd.com/programs/cme/program-name/35987/ Hereditary angioedema (HAE) is a rare, potentially life-threatening genetic disorder characterized by recurrent episodic swelling of the skin, gastrointestinal tract, and airways. The core approach to treating HAE prioritizes the availability of effective on-demand acute therapy, early treatment to prevent attack progression, treatment of attacks, and long-term prophylaxis. Early treatment of all breakthrough attacks, regardless of severity and site, is critical to maximize efficacy and reduce morbidity and mortality. Ongoing management of HAE should include evaluation of breakthrough attacks and any concerns with the disease course and current therapy to decide if a therapy adjustment is warranted. In this educational series, expert faculty discuss the importance of early treatment and personalizing therapy, best practice for managing breakthrough attacks, and current and emerging therapies for HAE.

ReachMD CME
Optimizing Acute Treatment in the Era of Breakthrough Attacks

ReachMD CME

Play Episode Listen Later Aug 11, 2025


CME credits: 1.00 Valid until: 11-08-2026 Claim your CME credit at https://reachmd.com/programs/cme/program-name/35988/ Hereditary angioedema (HAE) is a rare, potentially life-threatening genetic disorder characterized by recurrent episodic swelling of the skin, gastrointestinal tract, and airways. The core approach to treating HAE prioritizes the availability of effective on-demand acute therapy, early treatment to prevent attack progression, treatment of attacks, and long-term prophylaxis. Early treatment of all breakthrough attacks, regardless of severity and site, is critical to maximize efficacy and reduce morbidity and mortality. Ongoing management of HAE should include evaluation of breakthrough attacks and any concerns with the disease course and current therapy to decide if a therapy adjustment is warranted. In this educational series, expert faculty discuss the importance of early treatment and personalizing therapy, best practice for managing breakthrough attacks, and current and emerging therapies for HAE.

ReachMD CME
Prophylaxis Reimagined: Overcoming Challenges in Long-Term HAE Management

ReachMD CME

Play Episode Listen Later Aug 11, 2025


CME credits: 1.00 Valid until: 11-08-2026 Claim your CME credit at https://reachmd.com/programs/cme/program-name/35989/ Hereditary angioedema (HAE) is a rare, potentially life-threatening genetic disorder characterized by recurrent episodic swelling of the skin, gastrointestinal tract, and airways. The core approach to treating HAE prioritizes the availability of effective on-demand acute therapy, early treatment to prevent attack progression, treatment of attacks, and long-term prophylaxis. Early treatment of all breakthrough attacks, regardless of severity and site, is critical to maximize efficacy and reduce morbidity and mortality. Ongoing management of HAE should include evaluation of breakthrough attacks and any concerns with the disease course and current therapy to decide if a therapy adjustment is warranted. In this educational series, expert faculty discuss the importance of early treatment and personalizing therapy, best practice for managing breakthrough attacks, and current and emerging therapies for HAE.

ReachMD CME
Challenges in the Management of Difficult-to-Treat HAE

ReachMD CME

Play Episode Listen Later Aug 11, 2025


CME credits: 1.00 Valid until: 11-08-2026 Claim your CME credit at https://reachmd.com/programs/cme/program-name/35990/ Hereditary angioedema (HAE) is a rare, potentially life-threatening genetic disorder characterized by recurrent episodic swelling of the skin, gastrointestinal tract, and airways. The core approach to treating HAE prioritizes the availability of effective on-demand acute therapy, early treatment to prevent attack progression, treatment of attacks, and long-term prophylaxis. Early treatment of all breakthrough attacks, regardless of severity and site, is critical to maximize efficacy and reduce morbidity and mortality. Ongoing management of HAE should include evaluation of breakthrough attacks and any concerns with the disease course and current therapy to decide if a therapy adjustment is warranted. In this educational series, expert faculty discuss the importance of early treatment and personalizing therapy, best practice for managing breakthrough attacks, and current and emerging therapies for HAE.

ReachMD CME
Emerging Therapies for Acute HAE: New Target, New Therapies

ReachMD CME

Play Episode Listen Later Aug 11, 2025


CME credits: 1.00 Valid until: 11-08-2026 Claim your CME credit at https://reachmd.com/programs/cme/program-name/35991/ Hereditary angioedema (HAE) is a rare, potentially life-threatening genetic disorder characterized by recurrent episodic swelling of the skin, gastrointestinal tract, and airways. The core approach to treating HAE prioritizes the availability of effective on-demand acute therapy, early treatment to prevent attack progression, treatment of attacks, and long-term prophylaxis. Early treatment of all breakthrough attacks, regardless of severity and site, is critical to maximize efficacy and reduce morbidity and mortality. Ongoing management of HAE should include evaluation of breakthrough attacks and any concerns with the disease course and current therapy to decide if a therapy adjustment is warranted. In this educational series, expert faculty discuss the importance of early treatment and personalizing therapy, best practice for managing breakthrough attacks, and current and emerging therapies for HAE.

ReachMD CME
Next-Generation Therapies for Long-Term Prophylactic Treatment of HAE

ReachMD CME

Play Episode Listen Later Aug 11, 2025


CME credits: 1.00 Valid until: 11-08-2026 Claim your CME credit at https://reachmd.com/programs/cme/program-name/35992/ Hereditary angioedema (HAE) is a rare, potentially life-threatening genetic disorder characterized by recurrent episodic swelling of the skin, gastrointestinal tract, and airways. The core approach to treating HAE prioritizes the availability of effective on-demand acute therapy, early treatment to prevent attack progression, treatment of attacks, and long-term prophylaxis. Early treatment of all breakthrough attacks, regardless of severity and site, is critical to maximize efficacy and reduce morbidity and mortality. Ongoing management of HAE should include evaluation of breakthrough attacks and any concerns with the disease course and current therapy to decide if a therapy adjustment is warranted. In this educational series, expert faculty discuss the importance of early treatment and personalizing therapy, best practice for managing breakthrough attacks, and current and emerging therapies for HAE.

ReachMD CME
How to Build A Multidisciplinary Team in HAE to Optimize Patient Care

ReachMD CME

Play Episode Listen Later Aug 11, 2025


CME credits: 1.00 Valid until: 11-08-2026 Claim your CME credit at https://reachmd.com/programs/cme/program-name/35993/ Hereditary angioedema (HAE) is a rare, potentially life-threatening genetic disorder characterized by recurrent episodic swelling of the skin, gastrointestinal tract, and airways. The core approach to treating HAE prioritizes the availability of effective on-demand acute therapy, early treatment to prevent attack progression, treatment of attacks, and long-term prophylaxis. Early treatment of all breakthrough attacks, regardless of severity and site, is critical to maximize efficacy and reduce morbidity and mortality. Ongoing management of HAE should include evaluation of breakthrough attacks and any concerns with the disease course and current therapy to decide if a therapy adjustment is warranted. In this educational series, expert faculty discuss the importance of early treatment and personalizing therapy, best practice for managing breakthrough attacks, and current and emerging therapies for HAE.

ReachMD CME
Prophylaxis Reimagined: Overcoming Challenges in Long-Term HAE Management

ReachMD CME

Play Episode Listen Later Aug 11, 2025


CME credits: 1.00 Valid until: 11-08-2026 Claim your CME credit at https://reachmd.com/programs/cme/program-name/35989/ Hereditary angioedema (HAE) is a rare, potentially life-threatening genetic disorder characterized by recurrent episodic swelling of the skin, gastrointestinal tract, and airways. The core approach to treating HAE prioritizes the availability of effective on-demand acute therapy, early treatment to prevent attack progression, treatment of attacks, and long-term prophylaxis. Early treatment of all breakthrough attacks, regardless of severity and site, is critical to maximize efficacy and reduce morbidity and mortality. Ongoing management of HAE should include evaluation of breakthrough attacks and any concerns with the disease course and current therapy to decide if a therapy adjustment is warranted. In this educational series, expert faculty discuss the importance of early treatment and personalizing therapy, best practice for managing breakthrough attacks, and current and emerging therapies for HAE.

ReachMD CME
Emerging Therapies for Acute HAE: New Target, New Therapies

ReachMD CME

Play Episode Listen Later Aug 11, 2025


CME credits: 1.00 Valid until: 11-08-2026 Claim your CME credit at https://reachmd.com/programs/cme/program-name/35991/ Hereditary angioedema (HAE) is a rare, potentially life-threatening genetic disorder characterized by recurrent episodic swelling of the skin, gastrointestinal tract, and airways. The core approach to treating HAE prioritizes the availability of effective on-demand acute therapy, early treatment to prevent attack progression, treatment of attacks, and long-term prophylaxis. Early treatment of all breakthrough attacks, regardless of severity and site, is critical to maximize efficacy and reduce morbidity and mortality. Ongoing management of HAE should include evaluation of breakthrough attacks and any concerns with the disease course and current therapy to decide if a therapy adjustment is warranted. In this educational series, expert faculty discuss the importance of early treatment and personalizing therapy, best practice for managing breakthrough attacks, and current and emerging therapies for HAE.

ReachMD CME
Challenges in the Management of Difficult-to-Treat HAE

ReachMD CME

Play Episode Listen Later Aug 11, 2025


CME credits: 1.00 Valid until: 11-08-2026 Claim your CME credit at https://reachmd.com/programs/cme/program-name/35990/ Hereditary angioedema (HAE) is a rare, potentially life-threatening genetic disorder characterized by recurrent episodic swelling of the skin, gastrointestinal tract, and airways. The core approach to treating HAE prioritizes the availability of effective on-demand acute therapy, early treatment to prevent attack progression, treatment of attacks, and long-term prophylaxis. Early treatment of all breakthrough attacks, regardless of severity and site, is critical to maximize efficacy and reduce morbidity and mortality. Ongoing management of HAE should include evaluation of breakthrough attacks and any concerns with the disease course and current therapy to decide if a therapy adjustment is warranted. In this educational series, expert faculty discuss the importance of early treatment and personalizing therapy, best practice for managing breakthrough attacks, and current and emerging therapies for HAE.

ReachMD CME
Optimizing Acute Treatment in the Era of Breakthrough Attacks

ReachMD CME

Play Episode Listen Later Aug 11, 2025


CME credits: 1.00 Valid until: 11-08-2026 Claim your CME credit at https://reachmd.com/programs/cme/program-name/35988/ Hereditary angioedema (HAE) is a rare, potentially life-threatening genetic disorder characterized by recurrent episodic swelling of the skin, gastrointestinal tract, and airways. The core approach to treating HAE prioritizes the availability of effective on-demand acute therapy, early treatment to prevent attack progression, treatment of attacks, and long-term prophylaxis. Early treatment of all breakthrough attacks, regardless of severity and site, is critical to maximize efficacy and reduce morbidity and mortality. Ongoing management of HAE should include evaluation of breakthrough attacks and any concerns with the disease course and current therapy to decide if a therapy adjustment is warranted. In this educational series, expert faculty discuss the importance of early treatment and personalizing therapy, best practice for managing breakthrough attacks, and current and emerging therapies for HAE.

ReachMD CME
Breakthrough Attacks: Why Prophylaxis Isn't Always Enough

ReachMD CME

Play Episode Listen Later Aug 11, 2025


CME credits: 1.00 Valid until: 11-08-2026 Claim your CME credit at https://reachmd.com/programs/cme/program-name/35987/ Hereditary angioedema (HAE) is a rare, potentially life-threatening genetic disorder characterized by recurrent episodic swelling of the skin, gastrointestinal tract, and airways. The core approach to treating HAE prioritizes the availability of effective on-demand acute therapy, early treatment to prevent attack progression, treatment of attacks, and long-term prophylaxis. Early treatment of all breakthrough attacks, regardless of severity and site, is critical to maximize efficacy and reduce morbidity and mortality. Ongoing management of HAE should include evaluation of breakthrough attacks and any concerns with the disease course and current therapy to decide if a therapy adjustment is warranted. In this educational series, expert faculty discuss the importance of early treatment and personalizing therapy, best practice for managing breakthrough attacks, and current and emerging therapies for HAE.

ReachMD CME
From Theory to Practice: Real-World Challenges in Personalized HAE Care

ReachMD CME

Play Episode Listen Later Aug 11, 2025


CME credits: 1.00 Valid until: 11-08-2026 Claim your CME credit at https://reachmd.com/programs/cme/program-name/35986/ Hereditary angioedema (HAE) is a rare, potentially life-threatening genetic disorder characterized by recurrent episodic swelling of the skin, gastrointestinal tract, and airways. The core approach to treating HAE prioritizes the availability of effective on-demand acute therapy, early treatment to prevent attack progression, treatment of attacks, and long-term prophylaxis. Early treatment of all breakthrough attacks, regardless of severity and site, is critical to maximize efficacy and reduce morbidity and mortality. Ongoing management of HAE should include evaluation of breakthrough attacks and any concerns with the disease course and current therapy to decide if a therapy adjustment is warranted. In this educational series, expert faculty discuss the importance of early treatment and personalizing therapy, best practice for managing breakthrough attacks, and current and emerging therapies for HAE.

ReachMD CME
The Personal Touch: Advancing Personalized Treatment in HAE

ReachMD CME

Play Episode Listen Later Aug 11, 2025


CME credits: 1.00 Valid until: 11-08-2026 Claim your CME credit at https://reachmd.com/programs/cme/program-name/35985/ Hereditary angioedema (HAE) is a rare, potentially life-threatening genetic disorder characterized by recurrent episodic swelling of the skin, gastrointestinal tract, and airways. The core approach to treating HAE prioritizes the availability of effective on-demand acute therapy, early treatment to prevent attack progression, treatment of attacks, and long-term prophylaxis. Early treatment of all breakthrough attacks, regardless of severity and site, is critical to maximize efficacy and reduce morbidity and mortality. Ongoing management of HAE should include evaluation of breakthrough attacks and any concerns with the disease course and current therapy to decide if a therapy adjustment is warranted. In this educational series, expert faculty discuss the importance of early treatment and personalizing therapy, best practice for managing breakthrough attacks, and current and emerging therapies for HAE.

Korean Drama Podcast
Heavenly Ever After #3

Korean Drama Podcast

Play Episode Listen Later Aug 6, 2025 69:25


The feels and tears continue to flow as the crew dives deeper into their watch of Heavenly Ever After, but so do the bad vibes as the mysteries (and red tape) of the K-Drama afterlife deepen. Episode 3: The arrival of a mysterious woman looking for Nak-joon upends Hae-sook's bliss, and she later embarks on a journey to revisit her past.Watch it now on Netflix--Follow us on twitter at @koreandramapodSubscribe to the podcast on Apple Podcasts, Spotify, or copy our RSS Feed into your favorite podcast player!Korean Drama Podcast is a part of the Potluck Podcast CollectiveProduced by HappyEcstatic Media

spotify netflix kdrama nak hae potluck podcast collectiveproduced
It Happened To Me: A Rare Disease and Medical Challenges Podcast
#65 Invisible Swells: Surviving with Hereditary Angioedema Type III

It Happened To Me: A Rare Disease and Medical Challenges Podcast

Play Episode Listen Later Aug 4, 2025 50:52


In this episode of It Happened To Me, we sit down with the multi-talented Sally Pirie, a comic artist, painter, professor, toymaker, and rare disease advocate, to explore her journey living with Hereditary Angioedema Type III (HAE-3). Sally's path to diagnosis was long, painful, and emotionally fraught, culminating in a deeply moving feature in The New York Times that helped shine a national spotlight on HAE and the broader diagnostic odyssey that so many rare disease patients face.   Sally opens up about the unpredictable flares of HAE, the mental toll of being misunderstood by the medical system, and how she channels her experiences into art, humor, and education.    She is also Professor of Child and Family Studies and Director and Master Artist at the Comics-Based Research Lab at the University of Massachusetts, Amherst. An award-winning newspaper cartoonist and an anthropologist of childhood and infancy, she received her PhD from the University of Colorado, Boulder and is a graduate of Punahou School and Grinnell College. Her areas of expertise include comics-based research methods, ethnographic research and transgender childhoods. She was the 2020 Distinguished Visiting Professor of Liberal Arts at the University of Minnesota, Morris and the 2021 recipient of the Grinnell College Alumni Award in recognition of her lifetime of public service. She once went to New Year's Eve fireworks dressed as a huge blue pufferfish because why not. Life should be suffused with art and joy.    Topics We Cover: What is Hereditary Angioedema Type III, and how is it different from other forms? Sally's early symptoms, misdiagnoses, and emotional health during the diagnostic odyssey Her daughter's experience with HAE while taking gender-affirming estrogen and being the only documented transgender person with the condition  The significance of her New York Times feature  What it feels like to experience an HAE attack and how deadly it can be Navigating academia and advocacy while managing a chronic illness How comics and illustration became a therapeutic and educational tool Invisible illness misconceptions and systemic barriers in rare disease care The importance of laughter, joy, and resilience in the face of adversity Advice for undiagnosed patients and caregivers supporting loved ones with rare conditions You can learn more about Sally on her website. She also highly recommends the Hereditary Angioedema Association for resources. And be sure to read her feature in the New York Times here.    Stay tuned for the next new episode of “It Happened To Me”! In the meantime, you can listen to our previous episodes on Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “It Happened To Me”.    “It Happened To Me” is created and hosted by Cathy Gildenhorn and Beth Glassman. DNA Today's Kira Dineen is our executive producer and marketing lead. Amanda Andreoli is our associate producer. Ashlyn Enokian is our graphic designer.   See what else we are up to on Twitter, Instagram, Facebook, YouTube and our website, ItHappenedToMePod.com. Questions/inquiries can be sent to ItHappenedToMePod@gmail.com. 

Korean Drama Podcast
Heavenly After After #2

Korean Drama Podcast

Play Episode Listen Later Jul 30, 2025 63:42


Our crew is blindsided with some heavy feels in this second episode of the hit K-Drama Heavenly Ever After, but not before discussing the age-gap hi-jinks of the show's setup as well as the somehow capitalist bureaucracy of Korean heaven.Episode 2: Hae-sook reunites with the young Nak-joon, struggles to get used to their age gap and finds herself haunted by a mysterious woman.Watch it now on Netflix--Follow us on twitter at @koreandramapodSubscribe to the podcast on Apple Podcasts, Spotify, or copy our RSS Feed into your favorite podcast player!Korean Drama Podcast is a part of the Potluck Podcast CollectiveProduced by HappyEcstatic Media

spotify netflix korean nak hae potluck podcast collectiveproduced
MPR Weekly Dose
MPR Weekly Dose Podcast #241 — RFK Jr Sued Over Vaccine Policy Changes; Hereditary Angioedema Tx Approved; New OTC Blood Pressure Monitor; Kisunla Dosing Regime; REMS removed for ERA meds

MPR Weekly Dose

Play Episode Listen Later Jul 11, 2025 12:20


Lawsuit filed against RFK Jr over vaccine policy changes; oral on-demand treatment approved for HAE; OTC cuffless blood pressure monitor gets greenlit; dosing schedule update for Alzheimer treatment; REMS requirement removed for endothelin receptor antagonist meds.

HAE Speaks
Episode 55: CHAPTER-3 , Pharvaris Oral Prophylaxis Phase 3 Study

HAE Speaks

Play Episode Listen Later Jul 7, 2025 12:30


In this episode of the HAE Speaks Podcast, Dr. Raffi Tachdjian (UCLA) and Pharvaris discuss the HAE CHAPTER-3 Study — a new HAE attack prevention trial currently enrolling. The study explores the safety and effectiveness of deucrictibant, an investigational once-daily oral treatment aimed at preventing HAE attacks.Thank you to Pharvaris for sponsoring this episode of the HAE Speaks Podcast!

#BeyondHAE Youth Produced Podcast
#BeyondHAE Podcast: A Family's Journey with HAE

#BeyondHAE Youth Produced Podcast

Play Episode Listen Later Jun 30, 2025 9:53


In this episode of the #BeyondHAE podcast, host Ohm shares a deeply personal perspective on growing up with hereditary angioedema (HAE), first as a witness to his mother's unexplained medical struggles, and later as someone diagnosed himself. Ohm reflects on how HAE has shaped his childhood, family dynamics, and understanding of what it means to live with a rare and unpredictable condition. From missed birthdays to emergency hospital visits, Ohm opens up about the emotional weight of watching a loved one suffer, the power of preparation, and how his family turned chaos into control. He also discusses the importance of community, advocacy, and hope for future treatments like gene therapy. Whether you're navigating a new diagnosis or have been living with HAE for years, this episode is a powerful reminder that while HAE brings uncertainty, no one has to face it alone.This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, ⁠⁠⁠www.haea.org⁠⁠⁠.Thank you to our sponsors, ⁠⁠⁠⁠⁠⁠⁠KalVista⁠⁠⁠⁠⁠⁠⁠ and ⁠⁠⁠⁠Pharvaris⁠⁠⁠⁠.

Zdrowa rozmowa
Dlaczego puchniemy? Skąd biorą się obrzęki

Zdrowa rozmowa

Play Episode Listen Later Jun 25, 2025 21:04


Obrzęk, czyli potocznie opuchlizna, to gromadzenie się wody w danym miejscu czy części ciała. Często powoduje, że czujemy się ociężali. Czym dokładnie są obrzęki? Jak powstają? I jak sobie z nimi radzić? Margit Kossobudzka tłumaczy też na czym polega HAE - dziedziczny obrzęk naczynioruchowy. Rozprawia się także z mitem, że żylaki to tylko kwestia estetyczna i nie trzeba ich leczyć.

HAE Speaks
Episode 52: End of Progression: Understanding the Full Spectrum of a Bradykinin-mediated Angioedema Attack

HAE Speaks

Play Episode Listen Later May 5, 2025 19:47


In this month's episode of the HAE Speaks Podcast, please join Raffi Tachdjian, MD, MPH, Associate Clinical Professor, David Geffen School of Medicine at UCLA, and Kenny Robinson, MD, Head of Medical Affairs, North America at Pharvaris, for a discussion about the full spectrum of a bradykinin-mediated angioedema attack. This podcast episode highlights the experience of the physician and those living with bradykinin-mediated angioedema, explores the nuances of attack progression and resolution, and shares strategies to inform clinical assessment and improve outcomes for individuals with HAE.We would like to thank Pharvaris for sponsoring this episode of the HAE Speaks Podcast.

#BeyondHAE Youth Produced Podcast
#BeyondHAE Podcast: Young Advocates on Capitol Hill Fighting for Rare Disease Policy

#BeyondHAE Youth Produced Podcast

Play Episode Listen Later May 1, 2025 21:49


In this special episode of the #BeyondHAE podcast, we hear from three passionate young advocates, Zach, Angel, and Arabel who took their voices to Capitol Hill during the EveryLife Foundation's Rare Disease Week events. Representing the HAEA community, they met with legislators to push for policies that improve the lives of people with rare diseases and their families.Tune in as they share their experiences from the event, discuss the importance of Rare Disease Day, and break down the key issues they advocated for. They'll also explore ways that you, no matter where you are, can get involved in rare disease advocacy from home.Join us for an inspiring conversation about the power of young advocates, the policies that matter, and the impact they hope to make for the HAE and rare disease community!This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, ⁠⁠⁠www.haea.org⁠⁠⁠.Thank you to our sponsors, ⁠⁠⁠⁠⁠⁠⁠KalVista⁠⁠⁠⁠⁠⁠⁠ and ⁠⁠⁠⁠Pharvaris⁠⁠⁠⁠.

HAE Speaks
Episode 51: Legislative Series - Insights from Two Grassroots Leaders

HAE Speaks

Play Episode Listen Later Apr 3, 2025 36:23


In this month's episode of the HAE Speaks Podcast, we hear from Craig, a person with HAE, and his wife and caregiver, Melissa. They reflect on their powerful experiences during Rare Disease Week in Washington, D.C.Tune in to hear how their partnership, perseverance, and passion are helping to raise awareness, influence change, and bring the voice of the HAE community to policymakers on Capitol Hill. 

#BeyondHAE Youth Produced Podcast
#BeyondHAE Podcast: A Letter to my 10 year old Self

#BeyondHAE Youth Produced Podcast

Play Episode Listen Later Mar 4, 2025 15:36


As we step into March, we're excited to bring you a brand-new episode of the #BeyondHAE youth-produced podcast! This episode is hosted by 18-year-old Luke, who was diagnosed with HAE at the age of 9, alongside his mom, Mandy, who has been a vital part of his journey.In this special "Letter to My 10-Year-Old Self" episode, Luke reflects on his diagnosis, the challenges he faced, and how his life has evolved since then. He shares the wisdom he has gained along the way and the lessons he wishes he could have told his younger self.Join us as Luke and Mandy take you on a heartfelt journey, looking back at how their experiences with HAE have shaped them over time and offering advice for those who are newly diagnosed. Don't miss this inspiring conversation!This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, ⁠⁠⁠www.haea.org⁠⁠⁠.Thank you to our sponsors, ⁠⁠⁠⁠⁠⁠⁠KalVista⁠⁠⁠⁠⁠⁠⁠ and ⁠⁠⁠⁠Pharvaris⁠⁠⁠⁠.

#BeyondHAE Youth Produced Podcast
#BeyondHAE: Meet 2024 Social Media Interns - Jason and Tyler

#BeyondHAE Youth Produced Podcast

Play Episode Listen Later Feb 28, 2025 8:59


In this episode of the #BeyondHAE youth-produced podcast, we highlight two incredible young HAE caregivers, Tyler and Jason, who have been longtime members of the HAE community. As dedicated advocates for their loved ones, they joined the HAEA social media internship in 2024 to raise awareness about HAE and amplify the voices of those affected. Tyler and Jason share their experiences as caregivers, the challenges they've navigated, and their passion for making a difference. Tune in for an inspiring conversation about advocacy, resilience, and the impact of supporting a loved one with HAE.This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, ⁠⁠⁠www.haea.org⁠⁠⁠.Thank you to our sponsors, ⁠⁠⁠⁠⁠⁠KalVista⁠⁠⁠⁠⁠⁠ and ⁠⁠⁠Pharvaris⁠⁠⁠.

#BeyondHAE Youth Produced Podcast
#BeyondHAE: Meet the Newest Members of the HAEA's Youth Leadership Council Kaylee and Kiarra

#BeyondHAE Youth Produced Podcast

Play Episode Listen Later Feb 14, 2025 9:50


In this episode of the #BeyondHAE youth-produced podcast, we connect with Kaylee and Kiara, two passionate advocates whose lives have been shaped by hereditary angioedema (HAE). Both Kaylee and Kiara have been living with HAE and understand the challenges of managing a rare disease. Now, as new members of the HAEA Youth Leadership Council, they are eager to use their voices to empower and support other young people in the HAE community. Tune in for an inspiring conversation about resilience, leadership, and the importance of sharing your story to create meaningful connections.This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, ⁠⁠⁠www.haea.org⁠⁠⁠.Thank you to our sponsors, ⁠⁠⁠⁠⁠KalVista⁠⁠⁠⁠⁠ and ⁠⁠Pharvaris⁠⁠.

newest hae kiarra youth leadership council
#BeyondHAE Youth Produced Podcast
#BeyondHAE: Meet HAEA Youth Leadership Council Members - Kati and Ella

#BeyondHAE Youth Produced Podcast

Play Episode Listen Later Feb 3, 2025 10:59


In this episode of the #BeyondHAE youth-produced podcast, we connect with Ella and Kati, two passionate advocates whose lives have been shaped by hereditary angioedema (HAE). Ella, a devoted caregiver to her mother, shares her perspective on supporting a loved one with HAE and the impact it has had on her journey. Kati, who has been living with HAE since childhood, reflects on her experiences, the obstacles she has faced, and the strength she has found within the HAEA community. As new members of the HAEA Youth Leadership Council, both Ella and Kati are committed to raising awareness and supporting others in the HAE community. Tune in for an inspiring conversation about caregiving, resilience, and the power of connection. This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, ⁠⁠⁠www.haea.org⁠⁠⁠. Thank you to our sponsors, ⁠⁠⁠⁠KalVista⁠⁠⁠⁠ and ⁠Pharvaris⁠.

council members hae youth leadership council
#BeyondHAE Youth Produced Podcast
#BeyondHAE Podcast: Meet the Newest Members of the HAEA's Youth Leadership Council

#BeyondHAE Youth Produced Podcast

Play Episode Listen Later Jan 31, 2025 9:58


In this episode of the #BeyondHAE youth produced podcast, we connect with Skylar and Cassidy, two remarkable individuals whose lives have been shaped by hereditary angioedema (HAE) in different ways. Skylar, a dedicated caregiver to her mother and sister, shares her experiences of supporting her family members with HAE. Cassidy, diagnosed with HAE two years ago, reflects on her journey, the challenges she has overcome, and the support she has found within the HAEA community. Together, they offer powerful insights into resilience, caregiving, and the strength of the HAE community. Tune in for an inspiring conversation about perseverance, connection, and hope. This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, ⁠⁠⁠www.haea.org⁠⁠⁠. Thank you to our sponsors, ⁠⁠⁠KalVista⁠⁠⁠ and Pharvaris.

newest hae youth leadership council
#BeyondHAE Youth Produced Podcast
#BeyondHAE: Meet 2024 Social Media Intern - Kailani

#BeyondHAE Youth Produced Podcast

Play Episode Listen Later Jan 17, 2025 10:00


In this episode, we sit down with Kailani, a dedicated caregiver to her mother living with hereditary angioedema (HAE). Kailani shares her unique perspective on balancing caregiving responsibilities with her personal goals and how her experiences have shaped her outlook on life. As an HAEA social media intern in 2024, Kailani also discusses her involvement with the HAEA community and the importance of raising awareness about HAE. Tune in to hear her inspiring story of compassion, resilience, and the power of connection within the HAE community. This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, ⁠⁠⁠www.haea.org⁠⁠⁠. Thank you to our sponsor, ⁠⁠KalVista⁠⁠.