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OverviewLast episode as of Dec 2023Emily Ana Levy is a distinguished social impact entrepreneur, renowned patient advocate, healthcare Key Opinion Leader, and acclaimed international public speaker. Emily's journey led her to co-found Mighty Well in 2016. It's a startup driven by her personal experiences as a patient grappling with chronic neurological Lyme disease and autoimmune conditions, along with the challenges of managing vascular access devices. Mighty Well's direct-to-patient brand offers innovative medical products and comprehensive digital learning on vascular access, empowering patients to confidently navigate their health journey. With an unwavering commitment, Levy and her team have successfully launched seven adaptive medical products, notably the Class 1 FDA-registered PICCPerfect® Pro. Emily and Mighty Well's impact has been featured across various media outlets such as The New York Times, The Wall Street Journal, Who What Wear, The Boston Globe, PBS, Forbes, and more. In 2021, inspired by her transformative healing journey in the Amazon and stepping into her gifts as a seer, medium, and deathwalker, Emily established Hamsa Healing. In her practice, she is dedicated to facilitating clients in experiencing profound healing practices from the Amazon and the spiritual realm — practices that played a vital role in saving her life and putting her chronic illnesses into remission. Currently residing in Providence, the heart of the Ocean State of Rhode Island, Emily finds solace in cold water plunges that invigorate her senses and ground her in the present moment. She cherishes moments at home with her two adopted poodles, a warm blanket, and a cup of tea; valuing introspection over bustling networking events. Emily remains devoted to self-discovery, eager to share her insights with folks who, like her, have felt marginalized within a business and medical system that often overlooks their needs for visibility, understanding, and validation. What started as an entrepreneurial journey to 'turn sickness into strength' has now become one of learning strength from sickness.Key LinksMighty WellDr. Casey Kelley on UP - Ep 118TakeawayTune in as Emily shares:* that she'd blocked out a memory of being bitten by a tick at the age of six; she was bitten again at the age of 12, alongside having confirmed EBV* what her initial symptoms were like* how she was overlooked because of her age and gender — and initially put on birth control to control her “hormones”* that she finally found a Lyme-literate NP in her home state when in college — and received the diagnosis of Lyme and tick-borne illnesses at the age of 19* her additional diagnoses: POTS/dysautonomia, Hashimoto's disease, CIDP (chronic inflammatory demyelinating neuropathy), C-PTSD, and Gilbert's syndrome* that she went to see Dr. Casey Kelley after hearing her episode of the show!* how her lived experience informs the creation of adaptive devices and wearables for Mighty Well* how she was able to embody her identity as a disabled person — coming from a family of athletes* that she had a lot of Lyme support in college, but also felt “othered” in the sense that she had to advocate for her health for the first time* what a typical day was like for her before remission* her rumination on the invisibility of her diagnoses — and their few visible signifiers, which included her PICC line and chest port, as well as her occasional use of a cane* how exhausting it can be to tell people your life story when you live with invisible illness and have to provide validation to others* the epidemic affecting women in healthcare: acute infections, especially those presenting with multiple and varied symptoms — and how important it is to listen to and include women, both in treatment and in research* how her family background in textiles informed the Mighty Well product line* her advice for fellow spoonies and entrepreneurs* why living near the water is so important for her* that she has trained her dog, Olive, as a medical alert service animal* her belief that ketamine therapy saved her life, with regard to the diagnosis of C-PTSD* her endorsement of plant medicines and herbs, and why she has moved in that direction where her ongoing treatment is concerned Get full access to Uninvisible Pod at uninvisiblepod.substack.com/subscribe
In this session, Judy and Blake talk to Emily Levy (Co- Founder of Mighty Well), and Emma Widmar (Mighty Well Ambassador) regarding the AVA / Mighty Well partnership and the Ultimate Guide to PICCs, created by Mighty Well for Patients and caregivers.Support the show (https://www.avainfo.org/donations/donate.asp?id=12834)
On this episode of the Two Much Lyme Podcast, Maddy and Julia talk to Emily Levy, Lyme Warriror and Co-Founder of the Mighty Well adaptive wear company and community. Emily started the company out of necessity after beginning IV therapies and struggling to find comfortable covers to keep her PICC line safe. Mighty Well has expanded to all types of products that make the lives of patients so much easier. Emily speaks to the challenges of starting a business while chronically ill, the tips she has for anyone with an idea, and how she ultimately combined her passion and illness into a company that fights to ensure patients live with confidence, comfort, and dignity. Learn more about Mighty Well: https://mighty-well.com/pages/our-mission The Global Lyme Alliance: https://www.globallymealliance.org/donate-today/?hsLang=en Connect with Us: Instagram: @two.muchlyme podcast Website: twomuchlymepodcast.com
Emily Levy, a Lyme warrior, turned a personal need to ease her chronic illness journey into a mission to create innovative products that help those battling chronic illnesses. She found that taking care of her PICC line and living a normal college life was a difficult combo since the line was getting caught on various things throughout her day. Her background in fashion and attentive nature inspired her to create the solution. Mighty Well creates products by applying sportswear-fabric technology to the medical industry. Emily and her work at Mighty Well are leading a global charge to help patients and caregivers feel empowered rather than demotivated by their sickness.Tune in to hear how Emily saw a need for Lyme warriors to have better adaptive wear, her experience with ketamine treatment, and why there is a power in releasing emotional baggage and taking charge of your healing.
Emily Levy is the 27-year-old visionary female entrepreneur and co-founder of Mighty Well. Mighty Well is a medical wearables company that grew from a vascular access equipment company (PicPerfect) to a community that has defined the Adaptive Fashion industry. Ms. Levy's journey to CEO of a venture capital backed category king began when she was bitten by a tick at the age of 6. For the following 6 years, untreated Lyme disease presented as chronic illness without a diagnosis until the end of Ms. Levy's first year of college. The many trials faced by Ms. Levy and her 2 best friends and caregivers during their collective college experiences became the inspiration for the three to start a movement “to change the perception of patients from victims to fighters.” If you would like to learn more about how functional and stylish apparel, accessories and medical wearables were manifested by Lyme disease and the love that developed between 3 college classmates, then tune in now!
Good vibes only and positivity is a concept where people believe in keeping only the positive and rejecting any negative thoughts and notions. This approach also believes that you’re in control of your body and what happens to you and that you can simply remove yourself from negative situations. You’re to blame if you stay in the negative situation or thoughts, and you’re to blame for bringing up negativity. It is the stigma that bad feelings are well, bad! Having unrealistic hopes is self-destructive, as you are putting mental and emotional energy into making it happen, and are likely to be disappointed when you fail to reach your goal. Can you already see where this is going to fail? In this week's podcast episode, Marni travelled virtually to New York to speak with Kayla Juettner. Chronic illness and disability advocate, and the woman behind the Instagram account @chronically.kayla. Being born sick made Kayla create unique challenges and outlook on the world. Dealing with appointments, and hospitals rooms, and disability can be lonely; thus, @chronically.kayla was born. She wanted to create a space to foster conversations and community around living with chronic illness and disability. Inspiration Porn peak ableism that can’t help but damage people living with skin conditions and disabilities. Many people perpetuate toxic positivity without realising what they are doing, many times as a form of ableism. Join us in this episode as Kayla talks about toxic positivity, ableism and realistic optimism. Learn more about Kayla Juettner here: Instagram and Tiktok: @chronically.kayla Twitter: @chronic_kayla Special Gift for Dermhealth.co Listeners: Use kaylaj10 at Mighty Well for 10% off. Brand mentioned: https://slickchicksonline.com/ Be sure to subscribe to the podcast! And follow us on Instagram @dermhealth.co or visit us online at https://www.dermhealth.co/ --- Send in a voice message: https://anchor.fm/dermhealthco/message
Lyme Voice Radio, Discussing your Lyme Disease Journey with Aaron & Sarah Sanchez
About My Guest: CEO and founder of The Mighty a platform in which people can write about their own experience with health-related issues. Bio: Emily Levy is an award-winning social impact entrepreneur and patient advocate through her work as the CEO and Co-Founder of Mighty Well. Mighty Well creates innovative products in the emerging Adaptive Wear market that is focusing on inclusivity in the chronic illness and disability communities which affect 1 in 3 Americans. As patients and caregivers ourselves, we apply sportswear fabric technology to the medical industry and building a digital supportive community of Friends in the Fight for our consumers. Levy and the team are leading the global charge of helping patients and caregivers turn sickness into strength with the vision of Mighty Well being the Under Armour of Health Care. While Emily does love speaking and inspiring health care professionals, she loves her husband, Yousef, and dog, Olive, more. Together, they live in New York City. Key Takeaways: It took 7 years to get an accurate diagnosis of Lyme disease and co-infections. After getting sick in 7th grade I couldn’t finish that year of school. When showering hurts. Instead of being an athlete and playing three sports, I could barely walk to class. Chronic pain, light sensitivities, extreme fatigue became part of everyday living. Mighty Well the company came from an entrepreneurial upbringing. I think of patients as athletes. “I love my life, but I wouldn’t wish it on anyone”-Jessica Donaldson Learn to use your voice to help others. Sometimes your health has to come first. Maybe I need to take a few days off, but I’ll be back. Created Mighty Pack Backpack for easy IV infusions as well as an antimicrobial PICC line cover sleeve. Connect With My Guest: Website https://themighty.com/ www.mightywell.com Email: emily@mighty-well.com Resources Mentioned: The Joy of Living Bitten by Kris Newby Links Kangen Water- http://www.lymewater.com/ Envita Medical –Envita Medical Lyme Voice Facebook The Lyme Voice Podcast- Lymevoice.com Lyme Documentary-Disappearing From Society, Life with chronic Lyme in 14 minutes…Documentary Little Bite, BIG TROUBLE, available on Amazon –Children’s book about Lyme disease Organic coffee! https://www.ovaldogs.com
Mighty Well has been featured in Forbes, Entrepreneurship, and the Boston Globe. The company has also won Babson's prestigious Beta Challenge, as well as the Breakaway Challenge. In this episode Emily Levy, Babson class of 2016, tells of her experience building Mighty Well, which has a growing line of medical accessories that put strength, confidence, and mobility back into the toolkit for spoonies and anyone else coping with a health setback.
Host Ryan Crombie is joined by Killie Cal and the upbeat Lewis Birrell to analyse another weekend of Scottish football.
On this episode, we talk with Emily Levy, the Co-Founder, and CEO of Mighty Well. Mighty Well creates functional and stylish apparel and accessories to help patients turn sickness into strength. Mighty Well was started out of a need that Emily had herself after she was diagnosed with Chronic Neurological Lyme Disease and had a PICC line put in. She noticed that all the options available to cover it weren’t conducive to living a functional and “normal” life. Emily decided that she needed to create a solution… and Mighty Well was it. They currently have six products out so far and have raised around $500,000 from investors like Breakaway Ventures, Tim Draper and crowdfunding platform, Republic. We focus in on Mighty Well’s experience raising money as a woman-led team, the unique aspect of developing a super personal product, how to build an engaging and community-driven brand, and much more!
Emily Levy is an award-winning social impact entrepreneur and keynote speaker who is passionate about advocating for the patient perspective in healthcare. She was diagnosed with Chronic Neurological Lyme Disease during her sophomore year of college. She used a college project, her own personal need and created an amazing company. Mighty Well is a growing line of medical accessories. ⠀ --- Send in a voice message: https://anchor.fm/therealcapitalist/message
With our second episode in the career-finding guidebook of this themed-group, the focus goes right to entrepreneurship, and all of you young adults that want to build your own businesses. Because really…who could make a better understanding supervisor about balancing work and health struggles than you as the boss? And this episode gets to be fun for two reasons: our special guest is in-studio, AND like our founder, she’s a fellow #bosslady friend named Emily Levy. As the CEO of Mighty Well, a line of fashionably functional medical accessories, Emily as learned the ropes of building a company while also balancing her Neurological Lyme Disease, and she’s only 24 years old. In this episode, Dominique and Emily talk about the best health hacks of organizing that work and medical schedule—with lots of timer-reminders and color-coordination, the differences between going solo vs having co-founders when you are an owner with illness, how to chat up AND rock your spoonie boss status with those questioning how you can “do it all” with illness/disability, the powers behind inclusive representation in hiring anyone from employees to interns and volunteers that have all sorts of illnesses, and giving out tips on how to take your passions to motivate your work when you’re having back health days—whether that’s having a back-up plan of working from bed, or building days of rest into the company schedule. It’s a girl power episode with #InvisiYouth today, and it’s one that’s jam-packed with fun and facts till the very last second. See acast.com/privacy for privacy and opt-out information.
Emily Levy of wellness company Mighty Well joins the show to talk about living with Neurological Lyme Disease, starting a company, and becoming a 24 year old CEO. Inspired by her own dissatisfaction with PICC covers, she set out to create something new.
Starting a successful new company is impressive enough. But opening a new market is even more so, especially when the founder happens to be a college student. That's what Emily Levy accomplished as the CEO and co-founder of Mighty Well — a company at the intersection of fashion, lifestyle, and disease management. But that's just part of her story. While a student at Babson College Emily won our 2015 Beantown Throwdown and this year she returned as one of the judges of the 2017 Beantown Throwdown. Her selection as a judge made a lot of sense given that she has won 15 pitch-offs altogether — in addition to the $200,000 Mighty Well has received so far in venture capital. But Emily is not only the CEO and co-founder of her new company. She is also a customer. It turns out that Mighty Well wasn't just a solution to a problem identified through a market study — although her team has certainly conducted a number of those. It is also a solution to a problem she had to face personally.
Starting a successful new company is impressive enough. But opening a new market is even more so, especially when the founder happens to be a college student. That’s what Emily Levy accomplished as the CEO and co-founder of Mighty Well — a company at the intersection of fashion, lifestyle, and disease management. But that’s just part of her story. While a student at Babson College Emily won our 2015 Beantown Throwdown and this year she returned as one of the judges of the 2017 Beantown Throwdown. Her selection as a judge made a lot of sense given that she has won 15 pitch-offs altogether — in addition to the $200,000 Mighty Well has received so far in venture capital. But Emily is not only the CEO and co-founder of her new company. She is also a customer. It turns out that Mighty Well wasn’t just a solution to a problem identified through a market study — although her team has certainly conducted a number of those. It is also a solution to a problem she had to face personally.
How does a class project in college become a funded, scaling startup? Just ask Maria Gomez from Mighty Well. Maria, CEO Emily Levy, and team blew the doors off a KickStarter they launched for a PICC line cover that was both fashionable and functional. Now, with degrees from Babson College in hand, Maria is helping turn Mighty Well into a multi-product brand with global ambitions. You can reach Maria @LiveMightyWell. Make sure to tweet me @JohnnyStartup with the hashtag #EarlyStage with questions, banter, and recommendations for guests on the show.