Podcasts about thalassaemia

Peter is of Greek descent and shows resilience and strength in facing the challenges of living with Beta Thalassaemia. Peter is passionate about supporting and advocating for others who share his condition. As an Early Childhood teacher, Peter uses his knowledge and personal experiences to assist families navigating the complexities of the health system and accessing vital services. He is a dedicated advocate for patients and the community, providing guidance and support to those in need. Peter enjoys participating in awareness days to educate the community around what it's like living with thalassaemia and to increase awareness of genetic blood conditions. Peter serves as a consumer advisor for the Monash Health Blood Committee, helping to shape policies and initiatives that benefit individuals with blood conditions. Despite some health challenges he faces just like many others living with the condition, Peter remains positive and dedicated to making a difference in the lives of those around him. Sally is an enthusiastic Health Promotions Officer at Thalassaemia and Sickle Cell Australia. She takes great pride in her work as she educates the community about genetic blood conditions, carrier testing and blood donations. She also loves connecting with people, supporting those affected by these conditions. Sally is dedicated to creating a positive impact in the lives of people across Australia. When she's not working, Sally enjoys camping, hiking and being surrounded by nature. She also loves time with family and reading a good book at home Peter Verveniotis, who has been living with thalassemia major for nearly 50 years, and Sally Barton, a health promotions officer at Thalassemia and Sickle Cell Australia. The discussion covers various aspects of thalassemia, including diagnosis, treatment, community attitudes, and future perspectives. Key points include: Peter's experience with regular blood transfusions and the physiological challenges of thalassemia major The impact of diagnosis on family dynamics and community stigma Sally's role in educating high school and university students about thalassemia Advancements in treatment options, including chelation therapy and potential gene therapy The importance of coordinated, multidisciplinary care for thalassemia patients The role of community support in helping patients feel less isolated Proposals for future initiatives, including an international conference and journal editorials The episode provides valuable insights into living with thalassemia and the ongoing efforts to improve care and awareness for this rare genetic condition.

On this episode, we speak with Dr. Androulla Eleftheriou, the Executive Director of the Thalassaemia International Federation as well as Dr. Khaled Musallam, Chief Research Officer at the Burjeel Hospital at Burjeel Medical City in Abu Dhabi, UAE. We discuss the Thalassaemia International Foundation guidelines on non-transfusion dependent thalassemia. SHOW DESCRIPTION Thal Pals: The Alpha Beta Revolution Podcast is intended for patients, caregivers, providers, and the greater community of people who are impacted by Thalassemia.  Each episode, Thal Pals strives to provide listeners with critical education, the latest scientific updates, and voices from the Thalassemia community.   TRANSPARENCY STATEMENT  Thal Pals: The Alpha Beta Revolution Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guests featured in this episode have been compensated for their time.  

This episode covers thalassaemia.Written notes can be found at https://zerotofinals.com/medicine/haematology/thalassaemia/ or in the haematology section of the 2nd edition of the Zero to Finals medicine book.The audio in the episode was expertly edited by Harry Watchman.

For a long time, couples who carried the thalassaemia gene - either in one or both parents - had few options when it came to starting a family, and these options often came with difficult decisions. Preimplantation genetic testing, along with in-vitro fertilisation, has given couples the chance to reduce the risk of having a baby with thalassaemia. We explore how preimplantation genetic testing is done, and address the most common concerns regarding this procedure, with Dr Eeson Sinthamoney, Director & Fertility Specialist; and Michelle Lim, Senior Pre-Implantation Genetic Testing Specialist, from Sunfert International Fertility Centre.This show is brought to you by EP Plus Group Sdn Bhd. For more information visit https://www.sunfert.com

International Thalassaemia Day 2021 Special Podcast

This episode covers thalassaemia.Written notes can be found at https://zerotofinals.com/paediatrics/haematology/thalassaemia/ or in the haematology section of the Zero to Finals paediatrics book.The audio in the episode was expertly edited by Harry Watchman.

Thalassaemia is a rare blood disorder which causes the blood to have less haemoglobin. Children suffering from thalassemia need regular blood transfusions- once every fortnight to 20 days. In some cities of the country such as Mumbai and Bengaluru, the children were getting an assured blood supply for their needs. Some non-profits who worked with these children, were organising blood donation camps regularly to ensure good supply for those who need blood transfusion. But since the COVID-19 pandemic began, this system has gone for the toss. The large blood donation camps have stopped completely. The non-profits are now struggling to get donors. This has played havoc in the lives of these children. In this episode of Rare Lives, senior reporter, Menaka Rao speaks with Vinay Shetty from THINK foundation in Mumbai, Rajat Agarwal from Sankalp foundation in Bengaluru and Atul Gera from Ranchi. These activists are trying hard to keep the blood supply in their cities going. We also speak with a 13-year thalassemia patient, Ira Sukheja and a Rajshekhar, parent of a 9-year old thalassemia patient, Rajeshwari. See sunoindia.in/privacy-policy for privacy information.

Host Helen McKenna sits down with Professor Dame Elizabeth Anionwu to talk about what drew her to nursing, becoming the first Sickle Cell and Thalassaemia nurse specialist in the UK, and how to remain positive in the face of adversity. Related reading The courage of compassion: Supporting nurses and midwives to deliver high-quality care Professor David Williams on racism, discrimination and the impact they have on health Workforce race inequalities and inclusion in NHS providers

In this episode I cover thalassaemia.If you want to follow along with written notes on thalassaemia go to zerotofinals.com/medicine/haematology/thalassaemia/ or the haematology section in the Zero to Finals medicine book.This episode covers the definitions, types, tests, causes and treatments of thalassaemia. The audio in the episode was expertly edited by Harry Watchman.

Our discussion covers the background, pathophysiology and historic treatment options for patients with Thalassaemia. A new drug, LentiGlobin, has been used recently in clinical trials at UCLH. It involves genetically modifying autologous stem cells to produce sufficient Red blood cells, and takes away the need for blood transfusions. Prof John Porter is a well-recognised consultant haematologist and expert on red cell haematology. He is Professor of Haematology at UCL and Head of the Red Cell Unit for UCLH and Whittington Hospitals, and has received a British Society of Haematology Gold Medal award.

In this podcast Dr Nick Brown, global health editor, talks to Dr Rob Klaassen about his paper recently published in the journal. They discuss Thalasseemia in developing countries, availability of medication and various methods to treat excess iron. Full paper http://adc.bmj.com/content/early/2015/08/19/archdischild-2014-308112.full

This unit looks at the methods that have been developed by organisms for the uptake, transport and storage of iron: a process made more complicated by the insolubility of its oxides and hydroxides. You will examine iron storage in mammals, including humans, is achieved by ferritin, which stores iron as a hydrated iron (III) oxide – an example of biomineralisation. This study unit is just one of many that can be found on LearningSpace, part of OpenLearn, a collection of open educational resources from The Open University. Published in ePub 2.0.1 format, some feature such as audio, video and linked PDF are not supported by all ePub readers.

Transcript -- Find out how maths is used to measure haemoglobin levels. Plus, what is the public's perception of maths?

Find out how maths is used to measure haemoglobin levels. Plus, what is the public's perception of maths?

Transcript -- Discover the importance and responsibilities of the porters and cleaners in The Whittington Hospital and how maths is used throughout the hospital..

Discover the importance and responsibilities of the porters and cleaners in The Whittington Hospital and how maths is used throughout the hospital..

Transcript -- Find out how maths is used to measure haemoglobin levels. Plus, what is the public's perception of maths?

Find out how maths is used to measure haemoglobin levels. Plus, what is the public's perception of maths?

Transcript -- Discover the importance and responsibilities of the porters and cleaners in The Whittington Hospital and how maths is used throughout the hospital..

Discover the importance and responsibilities of the porters and cleaners in The Whittington Hospital and how maths is used throughout the hospital..