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This week on MIA Radio, we present a special episode of the podcast to join in the many events being held for World Benzodiazepine Awareness Day, July 11, 2018. In part 1, we chat with W-BAD Lead Operations Volunteer and Virginia Representative Nicole Lamberson who talks about the events being held for W-BAD. We hear from psychiatrist Dr Josef Witt-Doerring, who talks about a recent paper he co-authored entitled “Online Communities for Drug Withdrawal: What Can We Learn?”. We also hear from therapist and campaigner Chris Paige who discusses his own experiences taking and withdrawing from benzodiazepines. Finally, in part 2 of the interview, we get to chat with Robert Whitaker, science journalist and author of the books Mad in America and Anatomy of an Epidemic. First, I am very fortunate to have had the chance to talk with Nicole Lamberson. Nicole is Lead Operations Volunteer and Virginia Representative for W-BAD and she has kindly taken time out of her busy preparations to talk about how she became involved with W-BAD, some of the events and campaigns being held around the world and how people can get involved. Nicole has an immense passion for benzodiazepine awareness and its victims and hopes that her efforts ultimately spare many others from taking this painful, senseless, and totally preventable iatrogenic “journey”. We discuss: How Nicole first became involved with W-BAD. How discovering personal testimonies encouraged her to reach out to find out more about an awareness day held on the birthday of Dr Heather Ashton - July 11. What it feels like to be part of the benzodiazepine community. How there is is still no medical consensus about the effects of both taking and withdrawing from benzodiazepines. The W-BAD T-shirt campaign, which was organised in partnership with the Benzodiazepine Information Coalition and As Prescribed, an in-production documentary by Holly Hardman. Pamphlet distributions happening in Auckland, Paris, Boston and Torrington. That Wayne Douglas, W-BAD founder is on the Dr Peter Breggin hour on July 11 at 4pm New York time. That people can visit W-BAD events to find out more. That on social media, people can follow events using @WorldBenzoDay and the hashtag #WorldBenzoDay. That people can participate in many ways and that one of the most important ways to participate is to submit reports of adverse effects and withdrawal reactions to the appropriate regulator, links to which can be found on the W-BAD website. How important it is to share stories and personal experiences. That W-BAD is for anybody, not just those who are damaged by the drugs but also for families and friends and those recovered too. Relevant links: W-BAD [IN]VISIBLE T-shirt campaign How to participate in W-BAD Benzodiazepine Information Coalition As Prescribed by Holly Hardman (documentary film in production) International Task Force on Benzodiazepines Dr Heather Ashton The 2017 W-BAD podcast featuring Professor Malcolm Lader, Jocelyn Pedersen and Barry Haslam. Next, we chat with psychiatrist Dr Josef Witt-Doerring. Josef trained in Queensland, Australia before becoming a psychiatric resident at Baylor College of Medicine, Houston, Texas. He co-authored a paper published in Psychiatric Times entitled “Online Communities for Drug Withdrawal: What Can We Learn?” which received praise for openly addressing the issues of dependence and withdrawal and identifying the support activity that goes on in forums like Benzo Buddies and Surviving Antidepressants. We discuss: What led Dr Witt-Doerring to become a psychiatric trainee after attending medical school in Queensland, Australia. How reading Anatomy of an Epidemic led to an awareness of some of the consequences of psychiatric drug use from a critical perspective. What led to his research into online support forums for those who are seeking support for psychiatric drug withdrawal. That Josef was surprised at the amount of support activity in online forums like Benzo Buddies and Surviving Antidepressants. How the paper that Josef co-authored on learning from online communities found a great deal of support both amongst colleagues and patient advocacy organisations. How he feels that there is a general lack of awareness of dependence and withdrawal issues because the messages can be drowned out by more strident communications in marketing or promotional material. That the idea of ‘treatment resistant’ conditions is probably much more on a general doctors mind than adverse reactions or protracted withdrawal experiences. How Josef’s experiences have influenced his approach to prescribing central nervous system drugs. That he would like to think that if a doctor and patient can talk frankly and openly about the pros and cons of treatment, then that is likely to lead to a better relationship and a better outcome. That there is a dearth of support services for people struggling with the drugs, particularly at the end of treatment. How academic detailing programmes could help raise awareness and disseminate information that would lead to doctors being more confident about de-prescribing. How the language of addiction and dependence can sometimes be a barrier to recognition of drug withdrawal issues. That it may be better to look through a neurological injury lens rather than an addiction lens both in terms of understanding experiences but also to enable better treatment and support options. That the community of those affected should continue to share their stories and to raise petitions with professional organisations, such as the boards that licence psychiatrists and OBGYN’s. How, because of the huge variation in patient experience, it would be very difficult to mandate short-term prescribing. Relevant links: Online Communities for Drug Withdrawal: What Can We Learn? Benzo Buddies Benzodiazepine Information Coalition Surviving Antidepressants Malcolm Lader: Anxiety or depression during withdrawal of hypnotic treatments Our next guest is Chris Paige. Chris has a bit of an 'inside' perspective to add to the conversation for World Benzodiazepine Awareness Day in that he is a licensed therapist of over 20 years who was iatrogenically injured by a prescribed benzodiazepine. Chris has practised in a variety of settings including hospitals, schools, and foster homes and has taught at the undergraduate and graduate level. He has presented papers at national and international conferences, appeared on Dateline NBC for his work with children of divorce and had his own national magazine column called 'On The Couch with Chris Paige'. Chris is on the board the Benzodiazepine Information Coalition, a non-profit organization that advocates for greater understanding of the potentially devastating effects of commonly prescribed benzodiazepines as well as prevention of patient injury through medical recognition, informed consent, and education. Chris currently resides and practices in Florida. We discuss: How Chris first came to be prescribed a benzodiazepine in 2000. His recollections of being prescribed Klonopin (Clonazepam) for anxiety, taking between 1 and 2 milligrams per day. How, after three years use, he started to notice tremors and memory loss. That a neurologist explained that his symptoms may be medication related and advised a taper but gave no specific instructions. How Chris came off the Klonopin fairly rapidly but didn’t find it too difficult at the time. How, some years later, he was given an antibiotic for a prostate infection but rapidly developed psychiatric symptoms including anxiety, agitation and insomnia. That this led Chris to consult a doctor for some Klonopin tablets to manage this and that he took a total of 16 milligrams over the next 10 weeks. That he understands now that the antibiotic and the Klonopin compete at the same receptor in the brain, leading immediately to a tolerance to the drug. That because of this tolerance he became more sleepless, more agitated and more anxious and working was becoming increasingly difficult. How he came to be in a five-day detox programme in Vermont, where they took him off one and a quarter milligrams of Klonopin in just five days. How Chris realised that the detox approach was not right and wanted to leave. How the detox programme decided to replace the Klonopin with four different psychiatric drugs, two of which he has now ceased with two still to taper. That he felt that his brain and nervous system were severely shocked by making such rapid medication changes. How this led to Chris being admitted to psychiatric hospital which he describes as “possibly one of the most humiliating experiences he has ever endured.” How Chris felt when experiencing akathisia which was a relentless compulsion to move and gave him a feeling as if his whole body was being electrocuted and that he had been lit on fire. That he initially felt supported by friends and family but that quickly eroded when he didn't get better or accept harmful and dangerous treatment advice. That this led to the misunderstanding of his injury and it being mislabeled as an addiction problem. That ultimately the only places he found validation and support were online support forums. The losses that Chris endured during his struggles including his health, his psychotherapy practice and even his reputation. That Chris’s message is that there is hope for the future and the importance of reconnecting with the simple things in life. The lack of acknowledgement of the impact of trauma on a person’s life. Relevant links: Benzodiazepine Information Coalition Chris's profile at BIC In part 2 of this podcast, we will hear from science journalist and author Robert Whitaker.
The RunRunLive 4.0 Podcast Episode 4-378 – End of Season Contemplation with my Coach (Audio: link) audio:http://www.RunRunLive.com/PodcastEpisodes/epi4378.mp3] Link MarathonBQ – How to Qualify for the Boston Marathon in 14 Weeks - Hello, and welcome to the RunRunLive Podcast episode 4-378, This is your dear friend Chris. How is everything going? I’m trying very hard to get back on my publishing schedule. To get back in balance. Not just because I believe consistency is a big part of quality in the product you consume here. I do appreciate your attention and I’m grossly aware of my duty! I also need to keep writing to keep my own creative furnace fueled – which is why I started doing this in the first place – partly to help people, and myself, become better versions of themselves by sharing some of the tribal knowledge I’ve accumulated over the eons that I’ve been a practicing amateur endurance athlete. But also to keep my communication skills tuned up – writing as well as reading this copy to you with as much gusto as I can recruit! Well maybe not gusto, but at least enviable sincerity. Today we catch up with my coach, Jeff. He and I talk through the ups and downs of my 2017 training season. I like to use myself as a test subject to see what worked and what didn’t. It’s always important to look back at your training, your successes and your failures, to see if you can learn anything. You’re never too old to learn. We talked for a long time. I’m going to edit it down to a reasonable size, but I’ll post the raw interview on the members feed. In Section One we will talk about over-training. How to realize when you’re getting over-trained, what the symptoms are and how to avoid it. In Section Two I’ll tell you 10 things you don’t know about me. Like one of those Facebook posts. It’s cold up here in New England now. We are in full on Winter. We’ve had some good snow to make everything festive. It’s below zero Fahrenheit this week. More importantly how is Buddy the old wonder dog? Well, he just turned 14 years old. Which is pretty damn old for a border collie. He’s and old man! His hips don’t work so well and he’s deaf but he’s still mentally sharp. He gets skinnier every day. Skinny old man. The kids dress him in sweaters this time of year. They use him as a blanket to stay warm when they’re watching TV. He is very warm. He is well loved. He barks a lot. Just like an old man, he wants to be heard and doesn’t have time for niceties. He’ll stand in the front yard and bark at the woods at night. Picture it as a 98 year old man in his underwear yelling at the coyotes to stay off his lawn. “…when I was a boy… we had real coyotes, not these namby pamby city coyotes they got now…” … I ran out of podcasts to listen to last week. I’ve been changing phones a lot and have lost some of the regular ones I used to listen to. Some house cleaning and some pruning. Podcasts come and go. It’s an industry now and the old amateurs like myself are the anomaly. I opened the app and was looking around and went to see what Steve was doing over at . The app sorted with oldest first, and I downloaded a couple of his marathon race reports from 2005. The BayState Marathon and the Cape Cod Marathon. Steve did a great job with those old podcasts. Compelling and interesting stuff. Really well produced. Entertaining. You can hear how much in love he is with his training and racing and the newness of the sport and the community. If you listen to the Baystate race episode you’ll hear my buddy Frank calling out Steve’s name at one of the first water stops, the one with the rock music playing. That’s the same Frank who ironically qualified at Baystate with me a few weeks ago. I wasn’t at the water stop in 2005. I was running the race. I think I ran both those races and came up short in both. I think that year I ran a race in Maryland around Thanksgiving to finally get my qualification. That was a year and a half before I started podcasting but I would have been in the process of publishing my first book of running stories, The Mid-Packer’s Lament, (which is still available on Amazon). I love that about the podcasting thing. Being able to capture a moment of time. Being able to freeze the river of time and that person you were. It’s a slice of self-awareness. That Steve didn’t know what the future would hold. That Chris didn’t know either. In our hopeful narratives we saw that moment as a waypoint on an upward slope into the future. I think the one important take away for me is to understand that today, this race, this fitness, this Chris is a unique thing and may very well be as good as it gets. Think about that. How would you run your race? How would you live your life if today was as good as it gets? Seize the day. Savor that day. Today is all you have. The past is a old movie spinning sepia images across time. The future is nobody’s business. Today is your day. Use it. Enjoy it. On with the show. … I’ll remind you that the RunRunLive podcast is ad free and listener supported. What does that mean? It means you don’t have to listen to me trying to sound sincere about Stamps.com or Audible.. (although, fyi, my MarathonBQ book is on audible) We do have a membership option where you can become a member and as a special thank you, you will get access to member’s only audio. There are book reviews, odd philosophical thoughts, zombie stories and I curate old episodes for you to listen to. I recently added that guy who cut off is foot so he could keep training and my first call with Geoff Galloway. “Curated” means I add some introductory comments and edit them up a bit. So anyhow – become a member so I can keep paying my bills. … The RunRunLive podcast is Ad Free and listener supported. We do this by offering a membership option where members get Access to Exclusive Members Only audio and articles. Member only race reports, essays and other bits just for you! Links are in the show notes and at RunRunLive.com … Section one – The Symptoms of over-training - Voices of reason – the conversation Coach Jeff Kline “Coach” as he is referred to by athletes has been training runners and triathletes globally for 20 years. The Coach is the founder and designer of Daily Fit Book. Although he is fully committed to the development and growth of DFB he will take on athletes of all levels that show a commitment and a strong desire to achieve new dreams and goals. @dailyfitbook (twitter) fitbook2 (instagram) Section two – 10 things about me - Outro Ok my friends you have wound down your training season to the end of 2017 and to the end of episode 4-378 of the RunRunLive Podcast. Well done. What have we got going in the new year? Actually, big things! I decided I needed to set myself up with a running goal that was a challenge. I signed up for the Burning River 100 in July and will chronicle my training for the race. Yeah, I know I said I’d never do it, but you hear in my conversation with coach that turning point. Why not? I’ve done a lot of stuff in my life but I don’t have a belt buckle. And, there’s a good chance I’ll fail spectacularly either in my training or in the race itself. If so are going to set BHAGs you have to have a good chance of failure. That failure is the stuff that teaches you and forces you out of your comfort zone and forces you to grow. So, calling all my ultra friends, I’m going to need advice, support and pacers! Here’s your chance VeganRunningMom, DirtDawg, Cooker, Leadfoot and all the others. Once in a lifetime opportunity to watch Chris Maddog Russell cry like a baby and soli himself. In addition to this I’ll be running my 20th Boston marathon. And, yes, I am qualified. We’ll have to schedule something fun for that. Oh, and I committed to finishing my zombie novel. There are some personal and professional goals that you don’t care about that I’ll be chasing as well. 2018 is going to be epic! (one way or the other) But, that’s all in the future. I’ll be wrapping up my 2017 season with the Groton Marathon. I’ve got 5 folks who said they were running with me. We’ll see who shows up because it’s going to be single-digit cold. But, you know my theory…If you do something truly stupid people will show up. On the first of the year I’ll run the Hangover Classic with Teresa and then jump into the Atlantic Ocean, because that’s what you do, right? And last but not least, I’m kicking off a 30 day Diet reboot on January first with my nutrition coach Rachel. I’ll be logging my food and stats and blogging about it every day. I’ll catch up with Rachel each week to review progress. I’ll probably record those weekly chats and put them up on the podcast feed. I thought it would be useful for people to hear my/our point of view on clean eating for endurance athletes. Think that’s enough? Another one of my theories is when you have too much to do, schedule more stuff and it will sort itself out! … I’ve been listening to a meditation podcast on the train in the morning called the . Episode 2 is about using meditation to clarify your vision, i.e figure out what you want to do. This is a great exercise to create goals for the new year. She walks you into a meditative state. Then brings you into the future so that you are looking back on your life. And asks the simple question “What are three things that you wish you had done?” I found that context very helpful to sort out the things I’m working on and what is important and what will make a difference. Try it. Don’t put off your dreams. Put them down on paper and find a way to get them done in 2018. And I’ll see you out there. MarathonBQ – How to Qualify for the Boston Marathon in 14 Weeks -
This week on MIA Radio, we interview Chris Hansen. Chris started working in New Zealand as an activist after a psychiatric hospitalization 20 years ago. She has provided advice and media comment locally, regionally and nationally, including work with the New Zealand Mental Health Commission and Ministry of Health. She was a member of the New Zealand delegation to the United Nations for the development of the Convention for the Rights of Persons with Disabilities, as well as working as a board member for the World Network of Users and Survivors of Psychiatry. For the past 12 years, she has worked with Shery Mead developing Intentional Peer Support and is currently in the role of director. In this interview, we talk about Chris’s personal experiences of the mental health system and how Intentional Peer Support approaches contrast with mainstream psychiatry. In the episode we discuss: How Chris was working in the mental health system, before herself experiencing a psychiatric hospitalization. How she experienced personal loss during the time that she was hospitalized. How Chris found that her experiences led to a realisation that she didn't want to work on the medical side of the mental health system and instead focussed her efforts on peer support. That Chris’s experiences led to her becoming an activist, working locally, regionally and nationally in advisory and contract positions, including the NZ Mental Health Commission and Ministry of Health. That peer support gave Chris the hope, the inspiration and the desire to recover from her traumatic experiences of forced hospitalization and treatment with psychiatric drugs. How involvement with advocacy for the abolishment of forced treatment led Chris to work with the United Nations for the development of the Convention for the Rights of Persons with Disabilities, as well as working as a board member for the World Network of Users and Survivors of Psychiatry. How Intentional Peer Support works to makes connections with and support those who struggle with their mental health. How IPS supports and trains a wide range of organisations such as the mental health services, the police and people in the disability sector amongst others. How peer support distinguishes itself from mainstream psychiatric or psychological approaches. That learning to reconnect with people is vitally important in recovery. Relevant links: Intentional Peer Support Intentional Peer Support, a personal perspective by Shery Mead Intentional Peer Support: Creating Relationships, Creating Change Intentional Peer Support, upcoming trainings To get in touch with us email: podcasts@madinamerica.com © Mad in America 2017