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Sarc Fighter: Living with Sarcoidosis and other rare diseases
Betsy Bennett is fighting Sarcoidosis. That might seem easy after breast cancer led to a double mastectomy. But now the fatigue and ongoing battle with Sarc are taking a big toll on her quality of life. Listen in as she shares the story of how she thought she was disease free for just a brief time. Show Notes www.kinevant.com www.sarcoidosistrial.com Click here for information on how to sign up for the clinical trial: https://bit.ly/3DaVsR6 ClinicalTrials.gov listing for RESOLVE-Lung: https://clinicaltrials.gov/ct2/show/NCT05314517 ClinicalTrials.gov listing for RESOLVE-Heart: https://clinicaltrials.gov/ct2/show/NCT05351554 Betsy on Youtube: www.youtube.com/@DrBetsyB Sarcoidosis Awareness Month Info: https://www.stopsarcoidosis.org/standupforsarc/ Attend the FSR Crystal Awards Gala: https://www.stopsarcoidosis.org/gala-2023/ Royce's Cycle4Sarc page: https://stopsarcoidosis.rallybound.org/cycle4sarc?tab=Dashboard&fbclid=PAAaa9zWEjpGVyS1Q5Swa8mm5JT0t7JH13dfxVxdW1QlBMmbiRmc00Ol-uu-c Royce Robertsons original interview: https://beatsarc.podbean.com/e/episode-79a-royce-robertson-is-fighting-sarcoidosis-from-the-seat-of-his-bike/ Help FSR further its mission by becoming an Alliance Volunteer: www.stopsarcoidosis.org/gsca-leaders/ Become a community outreach leader: https://www.stopsarcoidosis.org/gsca-leaders/ MORE FROM JOHN Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/ Do you like the official song for the Sarc Fighter podcast? It's also an FSR fundraiser! If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account. (Kick In to Stop Sarcoidosis) 100-percent of the money goes to the Foundation. https://stopsarcoidosis.rallybound.org/MarkSteier The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/ Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/ email me carlinagency@gmail.com email Royce Robertson roycelrobertson@gmail.com
Everyone wants to be patient-centric these days. Betsy Bennett is a health psychologist and behavior change strategist. And, as you'll discover in this episode, she has been a patient with a serious disease- twice. She has some thoughts about how companies can be helpful to patients over the course of their illness.There are so many good nuggets in this conversation, I'll summarize a few of them here, but you should really listen to the whole thing. It's very powerful to hear from someone who has actual experience and is trained to help people in similar situations.Missing piecesA symptom tracker can be useful. What's missing is helping patients know how to give useful information to their physicians.…there are ways that you can distill that data and put it into sort of snackable chunks for your doctor so that you can get some of the answers that you're looking for. But what I don't see is anyone really teaching patients how to do that, or even more important. That might be something that I could do, but it might not be something that my elderly aunt could do. So in that case, I need to teach her how to identify people in her environment who could do that for you, help you prepare for this appointment, and who do you need to have with you to provide these snackable chunks to your physician.Gratitude - Read the RoomNo one with cancer, while there are probably things to be grateful for, wants to be told to embrace gratitude. Not helpful.Unbranded ContentHere is a real opportunity.…in my experience, one of the most successful things that I've been involved in, and not just once, but multiple times, basically, unbranded campaigns where, if you really connect with a group of patients and really give them something that they're not getting anywhere else…if you can provide that kind of education and even support for patients, and then you follow up with eventually a link to, or some sort of connection to branded content, you at a minimum have their eyeballs.She's not talking here about healthy eating, fun recipes, and gentle exercise. Those can be found anywhere.Not subscribed yet? Why not? You won't regret it.The Emotional JourneyThere is a huge emotional burden that comes with a diagnosis. The opportunity is to let patients know what they might expect around this.There is something that causes many patients to say to themselves, “I don't even know who I am anymore. You know, I used to be so upbeat. I used to be, you know, this or that, and now I'm, I'm weepy, I'm grumpy.” And so even being able to teach patients about this…All of that is on top of having even close relationships change because some people will be unprepared to deal with someone else's illness.Advice for AgenciesHire older writers. The young folks may be clever, work all night and be less expensive but unless they've grown up with a sick parent or grandparent, they probably lack some perspective. Find people who understand what even a minor health challenge means for how one lives their life.Listen to the full episode. I promise it will change the way you think about some things.Connect with Betsy on Linkedin and check out her YouTube channel. Chat with Chris about content.Intro Music stefsax / CC BY 2.5 This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit cclifescience.substack.com
MotorTrend Group Experiential and Events producer Betsy Bennett joins Dane Neal “On The Road”. Hear as Betsy shares how Drag Week is BACK and in full effect with events this week and Finals on Friday. Fans will experience all the action live at raceway locations and on line at the MotorTrend YouTube Channel. Listen as […]
Many Black people in the U.S. are born into a life of trauma, stemming from a history of repression, violence, and injustice. This trauma is not something any of us who have not been Black in America can ever fully understand; it is a very personal, lived experience. In this panel discussion, Napoleon Higgins, MD; Betsy Bennett, PhD; and Kimone James, MD, uncover and examine the adverse psychological and physical impacts of racism. One issue they consider is that of microaggressions in the context of systemic racism. Moderated by Caroline Jones, PhD, Senior Medical Science Liaison for the Otsuka Field Medical Affairs team, the webinar serves as a forum in which the discussants share their experiences of addressing racism and explore what transformational change needs to occur to break the cycle of racism and trauma. Napoleon Higgins, MD; Betsy Bennett, PhD; and Kimone James, MD, are paid consultants of Otsuka Pharmaceutical Development & Commercialization, Inc. Carolyn Jones, PhD, is a paid employee of Otsuka Pharmaceutical Development & Commercialization, Inc.
OUT OF CONTROL. UNSTOPPABLE. TOO HOT TO HANDLE. That describes the first hour of this episode, and then eventually there's a plot about an evil car. Don't worry about it.Betsy Bennett is played by Addison PeacockJeremy Normalson is played by Tim WoernerHowie Goldman is played by Andrew GiottaThe Keeper is Alex FlaniganAudio editing and sound design by Ryan Boelter. Thanks, Ryan!Music: Guardian by Mikael Hellman Link: https://filmmusic.io/song/6288-guardian License: http://creativecommons.org/licenses/by/4.0/
A sterile testing facility in the middle of nowhere! A rapidly unraveling conspiracy! Literal dozens of Jon Hamms! Will our beloved teenyboppers break out before The Man gets them in his clutches? Will Howie ever successfully bluff his way out of a conversation? Does Jeremy know what animals are supposed to look like? THE HORROR! THE SUSPENSE!CONTENT WARNING: gun violence, medical malpractice, body horror, claustrophobia, implied parental violenceNo announcements today! Happy Thanksgiving to our American listeners!Betsy Bennett is played by Addison PeacockJeremy Normalson is played by Tim WoernerHowie Goldman is played by Andrew GiottaThe Keeper is Alex FlaniganAudio for this episode was edited by Val PetroneGo donate on Patreon!
DANGER! ROMANCE! DOZENS OF STAT CHECKS! THE YEAR IS 1956. The moon is full, the summer is long, and 3 teens with dangerous secrets find themselves face-to-face with the kind of terror that only teens at a lakeside getaway in the 50s could possibly understand! We rejoin Howie the werewolf, Betsy the teenaged witch, and Jeremy the normal human boy as they escape to their friend Lillian's cabin for the weekend--but when a strange whistle and a mysterious figure in the water draw them out onto the lake's surface, things get a bit--well, hairy. Betsy Bennett is played by Addison Peacock Jeremy Normalson is played by Tim Woerner Howie Goldman is played by Andrew Giotta The Keeper is Alex Flanigan
The guys open the week with the Weekend Recap including the weekend from the Cubs and Ken's first car, Brian Ohorilko from the Iowa Racing and Gaming Commission on Iowa Sports Gambling and Good Guys with Betsy Bennett
The guys open the week with the Weekend Recap including the weekend from the Cubs and Ken's first car, Brian Ohorilko from the Iowa Racing and Gaming Commission on Iowa Sports Gambling and Good Guys with Betsy Bennett --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app
WE'VE GOTTA GO BACK....TO THE FUTURE! Well, the past. Yeah no it's 100% the past. Specifically, one certain summer in the 1950s... We rejoin Jeremy, Howie, and Betsy at the peak of their Best Summer Ever, with all the freedom and pocket money they can ask for, sweet part-time jobs, and no sight of their former schoolyard bullies. But when a morning at the diner goes suddenly haywire, can our favorite kids bust this ghost? Or are they in for a shock? Originally aired as a livestream exclusive with patron Q&A, the second chapter of the Summer Frights story is now available for the first time ever in glorious m4a audio format. Download it to your jukebox or wherever home podcasts are enjoyed. Betsy Bennett is played by Addison Peacock Jeremy Normalson is played by Tim Woerner Howie Goldman is played by Andrew Giotta The Keeper is Alex Flanigan Theme music is "A Horror Borealis Theme: Buddy Holly Redux" by Andrew Giotta.
Betsy Bennett fills us in on all things “Good Guys Rod and Custom”. Von Hotrod celebrates his 30 years at SEMA with the Skidmarks Show boys. The crew from Speed Digital stops by the stage and talks collector car websites. Plus Ralph Holguin from the hit tv series “RMD Garage” fills us in on his five builds at the SEMA Show. This high school drop out shares how he got his start and got to where he is now. Hezy Shaked known in the hyper car circles, shares stories about his amazing collection of one-off, rare, seven figure cars from owning the first Bugatti Chiron in the US to the one-of-one Bugatti Vision Gran Turismo (that you can even build as a Lego). His collection will make your jaw drop. Really it is jaw dropping…. Skid Marks Show brings you a bi-weekly Automotive and Rock-n-Roll radio show broadcasting all year long. With your hosts Jeff Allen from CNBC’s “The Car Chasers” and owner of Flat 12 Gallery and Ethan D. host of the morning radio show “The Rock Show” on FMX. Skidmarks Show is now award winning! Thanks to the Texas Auto Writers Association for recognizing us in automotive radio! SKIDMARKS SHOW is on iTunes, Podbean, Soundcloud, Podcastcharts.com, Castbox for Androids and SkidmarksShow.com Powered by Pennzoil #SkidmarksShow
Car Shows across the country are exciting to attend and are a great way to enjoy with family and friends. The amazing amount of planning and behind the scenes work to coordinate is a tremendous undertaking! On this week's show we are privileged to have special guest Betsy Bennett, veteran communications director of one of the premier car shows across the country, GoodGuys Rod & Custom!
3Valve 5.4L spark plug removal tips ~ swollen lug nuts ? And this week’s show topic ~special guest Betsy Bennett of Goodguys Racing Car Shows ~ join us LIVE from Inside The Garage ~The Parts Authority GIVEAWAY details
Betsy Bennett has worked as the Communications Director for Goodguys (@goodguys) for 26 years, and she has never gotten tired of her job. That's not surprising, given that she gets to see the best of the best in the vintage car world. Listen in to hear more about upcoming Goodguys events.
We meet the 4 baby lion cubs at the NC Zoo. Dr. Betsy Bennett talks about receiving a 2014 NC Award. The NC Museum of Art unveils a new exhibit focusing on small works of art - the exhibit's curator, Dennis Weller, gives us a preview.
"Leaving Tuscaloosa" is the debut novel of Walter Bennett, a former lawyer and judge and also known as the husband of retiring North Carolina Science Museum director Betsy Bennett. Walter Bennett tells us about his two young men, one black and one white, facing their destinies and dramas in 1962, in the South, on North Carolina Bookwatch.