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Today’s show is with Marcia Burr who is on the Board of Directors for ElderCareOptions in Florida. This show is dedicated to Gaydona who was Marcia’s wife. Marcia Burr discusses what she is doing now and gives excellent advice to caregivers for thriving in this journey! Marcia Burr was Betsy’s first mentor in Dementialand. Marcia also discusses her videos which I highly recommend watching! For more iinformation and copntacr:https://bit.ly/3orrQWZ
Head talk is not always bad – those voices that seem louder than the outside noise when needed. I have two voices in particular that visit me often. This podcast is dedicated to my two mentors, my intimate friends, and creative counselors. Picasso and Gulley Jimson. Picasso Voice: Steve Heyl Gulley Jimson Voice: Marc Biagi Based on the book: Wonders In Dementialand available on Amazon Don’t forget to SUBSCRIBE and check ‘thumbs-up’ Check out the Dementialand video on YouTube #Picasso #paintings #storytelling
Did you know, a Wink is a signal of a Shared Secret, inspired from the story of Odin the Norse god? Odin gave his eye in exchange for a drink from the well of Mimir - a drink which would give him the gift of great wisdom and knowledge. The Wink is my favorite Thanksgiving day story. I hope you enjoy it. Crowd: Albert Cristy Based on the book: Wonders In Dementialand available on Amazon Don’t forget to SUBSCRIBE and check ‘thumbs-up’ Dementialand on other platforms: iTunes, Spotify, Stitcher, Apple Podcasts
Wonders in Dementialand - a book, podcast and film in the making about love, strength and vulnerability between a daughter and her mother while living with the dementias. Lori La Bey talks with Suzka, Author and Podcaster of "Wonders in Dementialand" and Radek Wegrzyn who is a founding member of Magical Realist Film’s filmography. This hour will fly by with a fun and uplifting conversation filled with hope, love and passion. Contact our guests at: Suzka: Email: suzka@dementialand.com Book: Wonders In Dementialand - available on Amazon Dementialand Podcast: Subscribe https://www.youtube.com/channel/UC-_h6Dr_ivYEob-F4pvqIgA Dementialand's Special Powers: https://youtu.be/9ACIcO1Twvs Radek Wegrzyn Website: www.magical-realist.com Email: mail@magical-realist.com Contact Lori La Bey Lori@AlzheimersSpeaks.com with questions or branding needs and visit Alzheimer’s Speaks www.AlzheimersSpeaks.com Alzheimer's Speaks Radio delivering sounds news, not just sound bites since 2011.
This podcast will definitely put a smile on your face. A lighthearted story about Violet, beauty pageants, Queens and winning the crown. Whether you know anyone living in or near Dementialand, this podcast is worth sharing. I can’t think of a more important time than NOW, to lighten-up someone’s day. Take care. Be kind and wear your mask.… Enjoy. Pageant Announcer: Albert Cristy Sovina Voice: Mimi Based on the book: Wonders In Dementialand available on Amazon Don’t forget to SUBSCRIBE and check ‘thumbs-up’ Check out the Dementialand video on YouTube
Violet pulled out an album that was tucked into the side cushions. The album contained family photos and pictures cut out from magazines of people my mother added, officially making them part of our family. Paper people I called them, each with elaborate stories. Stories that gave my mother a dimension that was real and honest. Enjoy Based on the book: Wonders In Dementialand available on Amazon Check out the Dementialand video on YouTube
“Violet lifted her eyes and fixed them on a strange man who was standing in front of her. She twisted her drinking straw, trying to remember if he was a man she should know ....someone perhaps who was hidden in her memory's blind spot.” I loved this visit. My mother's words skip around like a young lamb, equivalent to a genius who had overcome the conventional boundaries of facts. Yet its bizarre intensity had a delightfully honest quality, that is often found in dementia’s splendor. Another wonder found in Dementialand. Enjoy. Murray: Albert Cristy Flo’s Voice: Stacey Murray Vida’s Voice: Cristi Ritter Loper Based on the book: Wonders In Dementialand available on Amazon Check out the Dementialand video on YouTube
TOMA: DRUMROLL please.... Welcome to Episode 3 of The Republic of Toma podcast presented by ASPIRE DESIGN AND HOME magazine! I sit down with German Producer, Director and Writer Radek Wegrzyn and American Author, Artist and Podcaster Suzka Susan Collins to discuss their upcoming film Wonders in Dementialand. Coming from 3 different locations — me in Venice, Radek in Berlin and Suzka in Los Angeles — we discuss how life in the times of the Coronavirus feels like an altered reality. Wonders in Dementialand is the name of Suzka’s book, which discusses the other side of dementia. Suzka writes in her book, “Dementialand is a topsy turvy place of secrets and discovery where I often found myself in the mirror of dementia. Its sense of reversal showed me the other side of everything and the other side of myself.” I draw comparison to this time of the pandemic as an opportunity to reveal us to ourselves as we’re faced with a new way of living. Meet TOMA: https://www.republicoftoma.com/about Producer: Radek Wegrzyn: http://www.magical-realist.com Don’t forget to SUBSCRIBE to Dementialand Podcast: https://www.youtube.com/channel/UC-_h6Dr_ivYEob-F4pvqIgA The Republic of Toma Podcast: https://www.republicoftoma.com/podcasts ‘Wonders In Dementialand’ BOOK Available on Amazon: https://www.amazon.com/Wonders-Dementialand-Suzka/dp/0692795243/ref=sr_1_1?ie=UTF8&qid=1478277633&sr=8-1&keywords=dementialand
Toma Clark Haines - host of The Republic of Toma podcast presented by ASPIRE DESIGN AND HOME magazine - sits down with German Producer, Director and Writer Radek Wegrzyn and American Author, Artist and Podcaster Suzka Collins to discuss their upcoming film Wonders in Dementialand. Coming from 3 different locations - Toma in Venice, Radek in Berlin and Suzka in Los Angeles they discuss how life in the times of the Coronavirus feels like an altered reality. Wonders in Dementialand is the name of Suzka’s book which discusses the other side of dementia. Suzka writes in her book, “Dementialand is a topsy turvy place of secrets and discovery where I often found myself in the mirror of dementia. Its reverseness showed me the other side of everything and the other side of myself.” Toma draws comparison to this time of the pandemic as an opportunity to reveal us to ourselves as we’re faced with a new way of living. When living with and caring for her mother, Suzka decided to embrace the dementia and step into her mothers world. Toma discusses learning to embrace solitude in these times but also her personal struggles with loneliness in quarantine. While Radek, as a writer who typically spends large quantities of time alone writing, looking inward, says in many ways he feels that the rest of the world as they went into self sheltering were seeing how he typically lives as a creative entrepreneur. He explained how this pandemic has brought him closer to his extended family and actually pulled him out into more familial socialization and regular routine than he normally experiences. Sharing 3 unique experiences during the pandemic from 3 different countries, these friends laugh, share experiences, but also share themselves. ABOUT: Suzka is a painter and a writer. Her work evokes a vibrant magical world that exists just a step outside reality. In her quirky, heart-warming debut book Wonders in Dementialand Suzka takes her readers on an exhilarating journey into the world of dementialand. Suzka’s novel is a thoughtful exploration, a testament to the author’s unique insight into her personal visit to Dementialand. Chicago born, Suzka studied at the Chicago Academy of Art and received a degree from Northern Illinois University. In Chicago Suzka was involved in theater, both directing and producing; a performer of Mime for the city of Chicago, and a student of ‘improv’ from Chicago's Second City Company. As a published cartoonist, Suzka moved to California in 1986 to write/create her second book but fell in love with paint instead. She never returned to Chicago and never returned to the small boxes of her cartoon characters. As a painter, Suzka has exhibited her work in numerous one-woman shows. Her huge installations have been exhibited at Chicago‘s Navy Pier and throughout the Monterey Peninsula and has a dedicated following of collectors throughout the country. Suzka is the stage set designer and painter for the Monterey Jazz Festival since 1996 and has delighted the Monterey jazz audiences with her powerful architectural aesthetic for over two decades. https://www.suzka.com/copy-of-work Radek Wegrzyn Before receiving a masters degree for directing from the Film University Babelsberg, Radek Wegrzyn, co-founder of MAGICAL REALIST, studied political science in Bonn (Germany), working part time jobs as chimney sweep, night porter, insurance rejection letter typist, Chai Wallah and dishwasher. Professional storytelling really was the next logical step. His credits as writer, director and executive producer include the award winning tragicomedy FATHER, SON & HOLY COW as well as the theatrical documentaries VIOLINISSIMO and THE SCHOOL ON MAGIC MOUNTAIN. Radek is also alumnus of the Maine Media College and the Documentary Campus Master School program. http://www.magical-realist.com/
There is a place not mentioned in any travel magazines or listed in any search engine under top spot for summer travelers. But this growing world wide destination offers a compelling reason to visit. Maybe part of its fascination is their unfaithfulness to the status quo or possibly, it’s the Gypsy Sundowners who simply pop-in unannounced. For whatever reason, this destination has a lot to offer. Another wonder found in Dementialand - a vacation spot for Sundowners. Enjoy. Based on the book: Wonders In Dementialand available on Amazon Don’t forget to SUBSCRIBE and check ‘thumbs-up’ Check out the Dementialand video on YouTube
Suzka's producer Radek Wegrzyn discusses why he decided to produce Dementialand as a movie.
#covid19 #coronavirus #dementia I don’t have a clue how this happened but this Podcast is in two parts. Two stories not even slightly related to each other. I blame it all on ‘CovidBrain’. I’m totally disorganized. One of the side effects from extended isolation and quarantine. The COVID19 isolation has similarities to the prosperities of Dementialand – a topsy-survey place where everything is turned upside down. The unknown and letting go of the predictable is obvious which in the past has been reserved for the young and the ‘trusting adventurers’ in the world. So this podcast starts with a story titled: The HORSE KEEPER and the carousel ride back to innocence. Maybe It’s time for all of us to grab the brass ring and get ready for some changes. Hold on and let the races begin… Enjoy. Horse Keeper’s Voice: Albert Cristy Based on the book: Wonders In Dementialand available on Amazon Don’t forget to SUBSCRIBE and check ‘thumbs-up’ YouTube, Spotify, Podcast.com: Dementialand
iTunes —> Episode#24: Espionage The Stake-Out #dementia #espionage #paranoia At times her thoughts were more of a suspicious nature. Paranoia just laughed and threw in all kinds of scenarios to keep Violet distracted. This perhaps this was another distraction..... Written and produced by Suzka. Based on the book: Wonders In Dementialand available on Amazon Don’t forget to SUBSCRIBE and check ‘thumbs-up’ Enjoy YouTube, Spotify, Podcast.com: DementialandWritten and produced by Suzka. Eszter’s Voice:Natasa Warasch Sovina Voice: Alisa Hidalgo Based on the book: Wonders In Dementialand available on Amazon Don’t forget to SUBSCRIBE and check ‘thumbs-up’ Enjoy YouTube, Spotify, Podcast.com: Dementialand
Al, Flo and Vida speak out regarding the COVID Virus. Al's voice: Albert Cristy Flo’s Voice: Stacey Murray, ‘Soul Songress’ Detroit Jazz Singer of the Year 2019 Vida’s Voice: Cristi Ritter Loper Call-in voice: Suzka Thank you. For additional information: https://www.cdc.gov/coronavirus/2019-...
It certainly hasn’t been easy writing this podcast when the world around me is falling apart. The unreal has become very real. Right now keeping myself open is the best I can do because something is being born that is still shapeless, and undefined. I hope you enjoy the Dementialand Podcast. Adding a little humor and maybe even insight to situations that turn our world upside down is what we need right now. My name is Suzka and this is my story. Written and produced by Suzka. Eszter’s Voice:Natasa Warasch Sovina Voice: Alisa Hidalgo Based on the book: Wonders In Dementialand available on Amazon Don’t forget to SUBSCRIBE and check ‘thumbs-up’ Enjoy YouTube, Spotify, Podcast.com: Dementialand
#worms #mystics #caregivers ‘Ya can’t do this alone’. This was an eye opener. Hiring a caregiver was a very good idea. And I believe it took pressure off my mother. She didn’t feel like she was a burden on her children, even if she didn’t know who I was. Written and produced by Suzka. Fiona’s Voice: Lola Cheatham Flo’s Voice: Stacey Murray, ‘Soul Songress’ Detroit Jazz Singer of the Year 2019 Vida’s Voice: Cristi Ritter Loper AD Reader Voice: Albert Cristy Based on the book: Wonders In Dementialand available on Amazon Don’t forget to SUBSCRIBE and check ‘thumbs-up’ Enjoy YouTube, Spotify, Podcast.com: Dementialand
#memory #dementia #storytelling After the Barbara’s visit (Episode#19) I went back to the grocery store. This situation was bigger and more serious than I had thought. I bought Lewy, Parker and Honey Hunter. I had to hit this head on, I was not going to be caught off guard. So, I gathered all the airheads and placed them in a straight line; a line that started at the front door and ended where my mother was sitting in the back room, the area I called Dementialand. Everyone was taken aback by the mob of inflated characters. No one could avoid their compelling presence. It was a brilliant distraction around Violet’s muted recollections. Written and produced by Suzka. Flo’s Voice: Stacey Murray, ‘Soul Songress’ Detroit Jazz Singer of the Year 2019 Vida’s Voice: Cristi Ritter Loper AL, Lewy and Parker’s voices: Albert Cristy Based on the book: Wonders In Dementialand available on Amazon Enjoy
Suzka is a fine artist who lived in California until her mother needed caregiving in Chicago. From the start, Suzka experienced her mother’s dementia not as a loss, but as an opportunity to have a very different relationship and live in her mother’s memory-less world. She found the experience enlightening and profound. Her book, “Wonders in Dementialand” is being made into a movie. Suzka also has a podcast on YouTube called Dementialand. Find out more about the Zestful Aging Podcast at ZestfulAging.com.
#jazz #barber #storytelling Barbara the Barber visits Violet. Violet is a bit nervous. She does not recognize her visitor. Two airheads (balloons), Flo and Vida protect her from interrogating questions and overall attitude. Written and produced by Suzka. Flo’s Voice and song: Stacey Murray, ‘Soul Songress’ Detroit Jazz Singer of the Year 2019 Vida’s Voice: Cristi Ritter Loper Al and Interviewer’s voice; Albert Cristy Based on the book: Wonders In Dementialand available on Amazon Don’t forget to SUBSCRIBE and check ‘thumbs-up’ Enjoy iTunes, Spotify, Podcast.com: Dementialand
Everyday, we walk around this world, bumping into people, smiling at strangers (hopefully) and never really thinking about what one person may have to say, that you need hear or feel or know. One day a few years ago, I walked into a Starbucks in San Diego, and was drawn to this beautiful woman, writing at the counter. I sat next to her and we began talking. I love connecting with people, but I just felt like I HAD TO connect with her. So I did. And as it turns out, we both had aha moments that day. You have certain talents and gifts to offer the world. Unique gifts, not that only one person has, but that only one human being, YOU, possesses in the exact way that you do. And you have everything you need to take those talents and strengths, and make the world a better place! On this episode I chat with Suzka, a successful writer and artist about how attitude is everything, you have to take chances, and you're always exactly where you're supposed to be. Suzka's creative boundaries appear to be endless. She is a picaresque artist, a painter, writer and author. Every stroke, every word she creates is irreverent, imaginative, funny, delightfully manic and brimming with color. Suzka studied at the Chicago Academy of Art and received a degree from Northern Illinois University. In Chicago, she was active in theater, directing and producing, a performer of Mime and a student of ‘improv’ from Chicago's Second City Company. But while working in California, she fell in love with paint and never returned to Chicago. Suzka has exhibited paintings in numerous one-woman shows and installations throughout California as well as Chicago‘s Navy Pier. She is best known in the jazz world as the designer/creator of Monterey Jazz Festival’s stages for over 25 years. In 2013, fate changed Suzka's course. After caring for her mother who had dementia, Suzka began to write and authored, 'Wonders in Dementialand', the other side of dementia no one is talking about. Suzka is presently the writer/producer for the Dementialand Podcast and part of the scriptwriting team for the movie to be filmed in Berlin/Hanover and the US. Suzka’s works brilliantly uncovers the other side of everything that one dares to imagine.
It started with one airhead, a huge round balloon... Popping out from the top of its head were two black eyes painted on transparent eye sockets. The balloon was filled with helium and was held in space by a thin gift ribbon that was clipped to the magazine rack at the grocery's checkout counter. A card attached to his rubberneck read SKU 44751. I couldn't resist buying it. It looked as if it could pick you up, suck you out of yourself and carry you away; away from computers, canvases and slippery couches with unruly fallen sheets; away from mothers everywhere, mosquitoes and the dementias. It might sound strange....but I liked this little guy. And that was just the beginning of the community of airheads moving into Dementialand. Written and produced by Suzka. Voices of neighbors: Albert Cristy and Natasa Warasch Based on the book: Wonders In Dementialand available on Amazon Please RATE AND REVIEW this podcast ALSO: YouTube Channel: Dementialand Enjoy
For the past month I have been reorganizing the Dementialand podcast. Some previous episodes got merged into one and I added images to the early podcasts. I think you like them. The timing is perfect. In the following episodes, we will be moving officially move into Dementialand. I’ll keep you posted. Check back and even better... subscribe. It’s easy, just click the button. See you in Episode #14
Let me introduce myself. My name is Suzka. I am an artist, a painter and author, obsessed with a story that needed to be written. A story that begins the day I left my converted warehouse in California and moved into Dementialand located in Chicago where my mother lived. I moved myself to a place where I was no more a daughter but rather part of an oddball cast one would expect to see in a Fellini movie. That time was extraordinary. But it was actually during my flight back to the states when I first realized the enormity of the subject and how important it is to tell this story. There's another side of dementia that no one is talking about. I wrote the book I needed to read during that time caring for my mother titled, ‘Wonders In Dementialand’ and now it is a serial podcast. Today more than 47.5 million are living with Dementia worldwide. Multiply that number by the family members and caregivers affected by dementia directly, day in and day out and you have a universe of people living in or near Dementialand. This is my story.
Thank you for listening to this podcast ‘She Cannot Live Alone’. For me, it is the most important episode, the turning point in my story. My life in Dementialand started in 2007 and after a decade, I still remember the weight of those 4 words – 'she cannot live alone'. It was devastating to hear. I was scared to death. But I must tell you, moving in with my mother to that place I called Dementialand was more amazing than horrifying. There is a certain amount of freedom that comes with memory loss. I wrote a note on a paper napkin during that time, "I learned to see my mother with my eyes opened and not curtained by her motherhood or my ego. I let go of that daughter I thought I was suppose to be. We met each other for the first time ....almost daily.” To this day I try to carry a little bit of Dementialand with me. My name is Suzka. The writer and producer of the Dementialand Podcasts Voice by Doctor: William McCray Based on the book: Wonders In Dementialand™ Please RATE AND REVIEW this podcast ALSO, check out YouTube’s Dementialand’s Channel. Enjoy
The words that doctor told me regarding my mother.... 'she cannot live alone' piled up on top of each other and stuck in my head. I could not breathe. I felt faint and damp. I blinked fast as not to cry…. "If your name is chosen, there is no turning back. As from this moment, the Triwizard Tournament has begun." – Albus Dumbledore My name is Suzka. The writer and producer of the Dementialand Podcasts Voice of Doctor: William McCray Voice of Dumbledore: Albert Cristy Voice of Nurse Lucy: Precious Mizell Voice of Miss Blanchard: Crystal Welch Based on the book: Wonders In Dementialand™ Please RATE AND REVIEW this podcast ALSO, check out YouTube’s Dementialand’s Channel. Enjoy
The Aged Oak Pavilion from the linoleum side. Not sure I ever told you how I started the Dementialand podcast. It is my version of the audio book Wonders In Dementialand. Episodes are short 10-15 minute in length created for the very, very busy listeners. Let me know your thoughts in the comment section or email me directly. Thank you. Suzka Written and produced by Suzka. Based on the book: Wonders In Dementialand™ Please RATE AND REVIEW this podcast Check and Like on YouTube: Dementialand Channel
My thinking: Something happened to me during the time when I was living with my mother’s dementias that I can’t explain. Maybe it started when I dropped my daughterness and met this woman who use to be my mother. Written and produced by Suzka. Check and Like on Facebook: Dementialand Channel And don’t forget to subscribe.
#memories #painting #mentor A picturesque story about Suzka, the painter, whose struggle with life and its unpredictable conditions, led her decades later to Dementialand. Episode#9 Voice of snowplow engineer and Mentor: Albert Cristy Written and produced by Suzka. Based on the book: Wonders In Dementialand™ Please RATE AND REVIEW this podcast Check and Like on YouTube: Dementialand Channel
On this episode I sit down with Dr. Elaine Eshbaugh who is an Associate Professor of Gerontology and Family Studies at the University of Northern Iowa. Elaine is an expert in Dementia and Alzheimer's as well as the author of the blog "Welcome to Dementialand" (https://welcometodementialand.com/)