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Dr Daniel Ghougassian talks with Carol Ireland, CEO and Managing Director of Epilepsy Action Australia, about epilepsy. What is epilepsy? Who does it affect? Frequency of chronic epilepsy, anxiety about diagnosis and how can Epilepsy Action Australia assist sufferers and their loved ones. Տոքթ Տանիէլ Ղուկասեանի հարցազրոյցը Epilepsy Action Australia-ի Գործադիր Տնօրէն Carol Ireland-ի հետ վերնոտութեան մասին:
In honour of Erin's incredible fundraising for Epilepsy Action Australia (follow the link to donate), we wanted to revisit this incredible episode. Erin will be running a marathon, be sure to follow her on Little Lulu Love for all the updates. While Jordana is away we will be sharing some of our past episodes, be back live in your ears soon. Erin is the mother of Luella, a gorgeous 18-month-old who suffers from West Syndrome. What gets her through her day, is the support she receives from her mum, Wendy. Luella has a rare type of epilepsy called West syndrome which causes her to suffer through hundreds of seizures/spasms a day. She is making meeting milestones that, in her original prognosis, wasn't possible thanks in large part to Erin and the wonderful intense therapies she goes to at NAPA.Wendy is a very hands-on grandmother and mother, which has helped Erin through her postnatal depression, she allows Erin and her husband Dave, a night off every now and again, which is really essential for any parent, let alone parents who have to manage the added stresses of Luella's condition. As Erin says "Luella isn't a burden, it's her seizures that are a burden!"There were many tears during this episode, but Erin has always been happy to push through the tears, so that, as a mum, and also as Luella's voice, she is heard. There needs to be more research and funding into West Syndrome and giving parents and guardians more support through NDIS.This conversation has two-parts: listen now to part 2 of this conversation with an amazing mother and daughter. Thank you again to Erin and Wendy for sharing their story and being the most amazing advocates for Luella.If you have an amazing story to share with us, please DM or email us. If you would like to be a sponsor, please email mothersanddaughterspod@gmail.comThanks for tuning in, stay safe. Hosted on Acast. See acast.com/privacy for more information.
In episode 163 and 164 we discussed hiking with Injuries and disabilities but where does epilepsy fit into the mix given that around 3.5% of Australians will experience epilepsy at some point in their lives. In today's episode we talk to Carol Ireland, the CEO of Epilepsy Action Australia about her organisation, the impact that epilepsy has on activities like hiking, and provide an overview of their upcoming fundraising hike on the Larapinta Trail that will take place from 16-22 August 2021. In addition, we will also be catching up with Nicole who participated in the Great Wall of China Hike for Epilepsy Action Australia in 2014. As someone with Epilepsy Nicole will be able to give us an upfront and personal insight of the considerations and management involved when undertaking a physical challenge such as hiking. www.australianhiker.com.au Australian Hiker can also be found on our various social media platforms Australian Hiker Facebook Australian Hiker Instagram Australian Hiker Twitter Australian Hiker Pintrest Australian Hiker Youtube
Part 1 of 2 parts 94.4FM Salford City Friday Sports show with Jimmy Petruzzi interviews Paul Wade listen to the full interview on Youtube https://youtu.be/0wiIqaGyGUk In case you missed tonight’s sports show or would like to 94.4FM Salford City Friday Sports show with Jimmy Petruzzi interviews Paul Wade Paul Wade BIO The challenges and triumphs he faced as the captain of the Socceroos, as well as with his own personal struggles in dealing with epilepsy has given Paul Wade a unique life experience. Paul Wade is a gifted, highly entertaining speaker, capable of delivering relevant messages on a range of different subjects tailored to suit your event’s needs. He incorporates a fun, motivational, school, business or corporate orientated message. Paul is one of the most highly experienced and sought after speakers in the industry, and with 118 appearances for the Socceroos, the 1988 Olympic Games, two world cup campaigns, two National Soccer League championships and the NSL player of the year in 1988, offers a unique insight into the world of professional sport, and how the principles he learnt can be applied to everyday life. Paul Wade through Paul Wade Life Skills also presents to High School and Primary School students. Paul’s most popular presentations for primary schools are Life Skills and Moving onto High School, where he provides students with a number of scenarios around choices and consequences, friendships, team work, communication, respect and resilience. Paul Wade Bio Extended Paul Wade is one of Australia’s greatest and longest serving Socceroos. ‘Wadey’ as he is known around the world has had a remarkable international career including the Seoul Olympic Games in 1988, two World Cup campaigns in 1990 & 1994 and one of the toughest tasks in world football, to mark ‘Diego Maradona’ in the two legged World Cup play off with Argentina. During his 10 year international career he was also the captain of the Australian team and played over 118 games. Born in Cheshire, England, Paul moved to Australia with his parents at age 11. By 1984, he attained Australian citizenship and represented Australia for the first time in Australia’s ‘B’ side against Tasmania. That same year, he made his debut in the National Soccer League with the Green Gully Cavaliers. Paul’s club career was spent entirely in Australia, a rarity for players who often go to Europe on the lure of a better quality game, more passionate fan support and higher salaries. Paul’s experience and passion allowed him an easy transition into a career as a sports commentator. He has worked with all major Australian networks and has covered National Soccer League (NSL), A-League, and Socceroos & Matildas internationals. Paul is currently a commentator on ABC Radio for and is a regular contributor on TV for Internationals and special comments. In 1995 Paul released his autobiography ‘Captain Socceroo: The Paul Wade Story’. Paul has epilepsy and often makes appearances at functions dedicated to promoting awareness of the condition and his Motivational Presentations include the story of this emotional and at times difficult journey. Paul through his company ‘Paul Wade Life Skills’ spends a lot of time visiting and inspiring students in schools and young people in sporting clubs, within the metro areas of our major capitals as well as rural and remote areas of Australia. Paul has extensive experience working with young people at risk and students from Indigenous and refugee backgrounds. Paul uses his many jerseys that he has collected throughout his career to support his entertaining and motivating life skill stories. Paul is also a notable Keynote Presenter and works with many medium to large organisations throughout Australia. This can also include team building sessions and practical activities. Paul Wade through Paul Wade Life Skills also presents to High School and Primary School students. Paul’s most popular presentations for primary schools are Life Skills and Moving onto High School, where he provides students with a number of scenarios around choices and consequences, friendships, team work, communication, respect and resilience. For High School Students Paul’s most popular presentations are Employability and Life Skills where he provides students with a number of scenarios around choices and consequences, team work, communication, respect and resilience. Paul also has a newly developed “Boys” presentation focusing on what it is to be a man and the importance of respect. Paul is also currently ratified as an active supporter of Epilepsy Action Australia, is Patron of the Cerebral Palsy International Sporting and Recreation Association (CPISRA) and an ambassador for Don’t DIS my ABILITY Click on the following link to tune in to this fascinating, interesting and informative interview Or the following link 94.4FM Salford City Radio Friday sports show Bringing you all the latest news from around the local area and around the world: Making a difference through sport We also feature segment speaking to some of the world’s most influential professionals in the field of psychology and related field
Patrick Tsang interviews David Boehm, the Co-Founder and Chairman of The Hub Children and Youth Centre, Vice-Chairman of the Childline Thailand Foundation, Co-Founder of Shwe Ya Min Foundation, and Director of Epilepsy Action Australia. He is also CEO of Miskawaan Health Group, a holistic healthcare services organization. Listen to David talk about his childhood growing up in Australia, his first overseas working experience, his love for connecting with people, and his passion for helping underprivileged children live a better life. He has extensive experience in natural resources, property, and hospitality (all based in S.E. Asia) and the business of thoroughbred horse racing (Hong Kong, Singapore, and Australasia). He is a Certified Public Accountant (Hong Kong) and Chartered Accountant (Australia), based in Hong Kong for over 30 years. Find out more about David Boehm: https://en.thehubhk.org https://www.miskawaanhealth.com Follow Patrick Tsang: WEBSITE: http://anythingispossible.global LINKEDIN: http://linkedin.com/in/patrickpltsang FACEBOOK: https://www.facebook.com/anythingispo... TWITTER: http://twitter.com/patpltsang NEWSLETTER: https://anythingispossible.global/con...
What does it take to create a truly good idea?In episode 22 of the B-side, I speak to Alex Wadelton, a creative director and author from Melbourne, with over 20 years experience in the advertising industry.Alex has created award-winning advertising campaigns for clients such as the AFL, Cricket Australia, Wrigley's, The University of Melbourne, Gatorade, and Schweppes. And he's come up with some ideas, that have done a world of good too.Like the statue of indigenous AFL superstar, Nicky Winmar's iconic and defiant stance against racism. The Future Landfill campaign. Where he took on the might of Woolworths and their ‘Ooshies' collectibles, highlighting how a short-term sales promotion, featuring crappy little plastic toys, can cause long-term damage to the environment.And he's just launched the ‘Million-dollar teddy bear' for Epilepsy Action Australia to help support people of all ages with epilepsy.His first book ‘The Right-brain Workout', which he co-wrote with Russell Howcroft, was a bestseller and they've recently launched the follow up ‘The Right-brain workout 2'. Alex is a passionate, humble and super nice guy, doing some incredibly good work that we should all get behind, and be inspired by. I really enjoyed our chat, and I'm sure you will too.Learn more about Alex and his awesome initiatives, like the ‘Million Dollar Teddy Bear' below:https://milliondollarteddybear.com/https://www.stuffbyalexwadelton.com/nickywinmarstatuehttps://www.stuffbyalexwadelton.com/the-melbourne-shuffle-marathonhttps://www.stuffbyalexwadelton.com/futurelandfill Our GDPR privacy policy was updated on August 8, 2022. Visit acast.com/privacy for more information.
Happy 4/20 day everyone! In this episode we dedicate an entire show about cannabis and our Endocannabinoid System (ECS) with Krista. We discuss how the ECS regulates our mood; our appetite; our immune function; our stress response; our energy balance and more. We also take a look into some of the misinformation, misunderstandings, and misnomers about cannabis as well as future tech and research into medical marijuana. If you enjoyed this podcast and have further questions for Krista on the topics discussed, you can contact her by email at: krista.mabagos@gmail.com. Subscribe, follow, or email us if you have any comments, suggestions, queries or want to be on the podcast: https://strangefrequency.podbean.comEmail: strangefrequencypodcast@gmail.comRed Earth Radio: www.facebook.com/RedEarthRadioFMCheckout our other burner family podcasts:Burner Podcast: http://www.burnerpodcast.comInto The Fire: https://intothefirebm.comShouting Fire: https://shoutingfire.comBuild To Burn: https://buildtoburn.podbean.comAccuracy Third: https://accuracythird.comAlkaline: http://www.burnerpodcast.com/alkaline.htmlhttps://soundcloud.com/burnerpodcast/sets/alkaline Further reading: False claim: Marijuana kills coronavirus - https://www.reuters.com/article/uk-factcheck-coronavirus-marijuana/false-claim-marijuana-kills-coronavirus-idUSKBN2133TZ A Review on Studies of Marijuana for Alzheimer’s Disease – Focusing on CBD, THC - http://www.journal-pharm.com/sub/view/301 Cannabinoid receptor 2 activation alleviates septic lung injury by promoting autophagy via inhibition of inflammatory mediator release - https://www.sciencedirect.com/science/article/abs/pii/S0898656820300334 Overview of cannabidiol (CBD) and its analogues: Structures, biological activities, and neuroprotective mechanisms in epilepsy and Alzheimer’s disease - https://www.sciencedirect.com/science/article/abs/pii/S0223523420301306?via%3Dihub Adding medical cannabis to standard analgesic treatment for fibromyalgia: a prospective observational study - https://www.clinexprheumatol.org/article.asp?a=14785 The Efficacy of Medical Marijuana in the Treatment of Cancer-Related Pain - https://www.liebertpub.com/doi/full/10.1089/jpm.2019.0374 Overview of cannabidiol (CBD) and its analogues: Structures, biological activities, and neuroprotective mechanisms in epilepsy and Alzheimer’s disease - https://www.sciencedirect.com/science/article/abs/pii/S0223523420301306?via%3Dihub Cannabis Use, a Self-Management Strategy Among Australian Women With Endometriosis: Results From a National Online Survey - https://www.sciencedirect.com/science/article/abs/pii/S1701216319308084 Show Notes (all timestamps are approximates only)Intro: Corporate World - Dust Brothers (1999) Passion for cannabis [~03:10] Endocannabnoid system [~05:10] How did you get to know about the burn community? [~09:50] Real stories [~14:00] What was the experience like to be flying/traveling solo at burning seed [~20:00] How would you describe the experience of a burn to somebody who is not familiar with it? [~22:30] How did you prepare for this seed? [~23:45] What impressed you at seed this year? [~25:10] Cannabis and the burn community [~28:20] Legality of cannabis [~30:10] Cultural history of cannabis [~33:50] THC vs CBD [~37:50] Importance of endocannabnoid system [~39:45] Young adults & infants with cannabis [~43:00] Misinformation, misunderstandings, myths, misnomer, or sterotypes of cannabis [~47:50] Cannabis and work [~52:55] Global growth of cannabis [~54:50] Strains [~60:30] What’s the situation of the current Australian laws?[~64:20] Medical marijuana and research [~67:30] Cannabis bill [~72:10] Vaping [~75:05] Name three personalities (living or dead) that you'd invite to your own dinner party? Why? [~79:10] Research and studies [~83:30] Epilepsy Action Australia [~84:40] Medical conditions [~88:35] Future tech [~91:40] Trichomes [~94:35] Hemp [~96:30] What other regional burns are you fascinated by [~97:30] What are you missing in your research? [~99:45] Random drug testing [~103:15] Extra chatter [~108:00] This podcast was recorded back in November, 2019.
Carol Ireland, CEO and Managing Director, Epilepsy Action Australia spoke at the NSWNMA's recent Medicinal Cannabis: Debunking the Myths Forum. Here she speaks about the Epilepsy Journey and the positive effects Medicinal Cannabis has had on those living with epilepsy.
With nearly one-third of people with epilepsy having forms resistant to current medication, some people turn to medical cannabis, driven by hope – and anecdotal evidence claiming – that it will work. Now researchers at the University of Sydney’s Lambert Initiative, in partnership with Epilepsy Action Australia, are seeking out parents who use cannabis-based medicines to treat their child’s epilepsy.
With nearly one-third of people with epilepsy having forms resistant to current medication, some people turn to medical cannabis, driven by hope – and anecdotal evidence claiming – that it will work. Now researchers at the University of Sydney’s Lambert Initiative, in partnership with Epilepsy Action Australia, are seeking out parents who use cannabis-based medicines to treat their child’s epilepsy.
With nearly one-third of people with epilepsy having forms resistant to current medication, some people turn to medical cannabis, driven by hope – and anecdotal evidence claiming – that it will work. Now, researchers at the University of Sydney’s Lambert Initiative, in partnership with Epilepsy Action Australia, are seeking out parents who use cannabis-based medicines to treat their child’s epilepsy.
The duo of Autonomy and Lollydoc talk a few topics today - namely the ideas of co-operation between genders, the rights of IVF clinics to ask if they can ask someone is pregnant, and . They also have a few special guests on the show as well: Carol Ireland, CEO of Epilepsy Action Australia to talk about ideas on treating epilepsy in children, and Professor Lea Waters, the Director of the Centre for Positive Psychology, comes into the studio to chat about strength-based parenting.
Currently in Australia it is estimated that there are over 250,000 people living with epilepsy and each year around 25,000 people are diagnosed with the condition for the first time. Approximately 3% of Australian's could experience epilepsy within their lifetime. It is a serious brain condition which can limit people's ability to get and have a driver's license, it may limit the type of work they do and can results in other significant social, physical and psychological difficulties. So what actually is epilepsy, what is it caused by, and what impact can it have on the individual, and what what can be done to help people with this condition? To answer these questions and more we are going to be joined on the show by Carol Ireland the CEO of Epilepsy Action Australia. For more information about Epilepsy and Purple day visit: https://www.facebook.com/epilepsyactionaustralia/ http://www.epilepsy.org.au Originally broadcast on Triple H 100.1 FM on Tuesday March 22, 2016