Podcasts about Epilepsy

Dominic Carter brings his wife on to talk about their son's special needs conditions. Learn more about your ad choices. Visit megaphone.fm/adchoices

Happy Holidays and Happy New Year from your Talk About It family! We are closing an incredible year with a great episode that features people leading the charge from the next generation. The young adults who are receiving the torch to advocate for epilepsy awareness into the future! Greg chats with Abigayle Weitl and Chels Scantland from the Young Adults with Epilepsy organization that aims to provide young adults with resources to gain independence and break stigmas through education, awareness, mental health counseling, and so many incredible programs that they offer. They discuss each of their journeys with epilepsy and how they got involved in the organization, and how they have used their own experiences to impact the lives of the next generations. They also discuss tips for new years celebrations if you have epilepsy, strategies for preserving mental health in a social media world, and the importance of belonging when diagnosed with a condition like epilepsy. Greg then gives thanks for an incredible year we have had and sets his sights on the big things happening next year at Talk About It. We need your help! Like and share this episode, follow Talk About It on YouTube, and get involved in great organizations like Young Adults with Epilepsy! Have a safe and happy holiday season, and we will see you in the new year! Talk About It with Greg Grunberg is excited to be sponsored by Neurelis and by Jazz Pharmaceuticals.

In a Petrie Dish collaboration with Public Health Watch, we explore what happens if you have a chronic illness like epilepsy in a state that has rejected the Medicaid expansion.

Barb Mack & Loretta Campbell, both EEG Epilepsy Advocate Board Members about Epilepsy, what it is, who it affects and the support groups that are available to the community. They discussed the monthly meeting that was to be held this month, where Campbell would be speaking about Sudden Unexpected Death in Epilepsy (SUDEP). They also invited the public to a large Community Awareness Expose' coming in January that will feature local resources and professionals who will provide information and answer questions about epilepsy to those who are living with or providing support to those living with the disease.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Jay Gunkelman (500,000+ brains) & Dr. Mari Swingle (i-Minds) answer live viewer questions:✅ Photobiomodulation (red light) for dementia — real studies vs hype✅ Neurostimulation types: TMS, coils, photobio — epilepsy contraindication warning✅ Epilepsy: discharges shift sides, SMR beats surgery, Isabella case✅ Manual thresholds & learning curves — essential for real progress✅ ADHD/ASD evidence: strong for ADHD, emergent for autism (70% epileptiform)✅ Labels vs EEG: “missed learning phase” “learning disability”✅ Sensory processing: it depends — quiet or stimulate?

.

Hey my names Danyele. Im 32, and disabled. I have Epilepsy, a neurogenic bladder, and bilateral medullary sponge kidney. I am a mother, and a wife. I struggle not only with my physical health, but especially my mental health.  I like to joke that I'm a cockroach, because there's been many times where I could've died. But I haven't, life has other plans for me. I am grateful for my supportive husband, and my loving children. TikTok @dumpster.fire.danyele

Good morning from Pharma Daily: the podcast that brings you the most important developments in the pharmaceutical and biotech world. Today, we delve into a series of compelling advancements and challenges that are shaping this dynamic industry.Pfizer has recently unveiled phase 3 results for its hemophilia drug Hympavzi, positioning it as a formidable competitor against Sanofi's Qfitlia and Novo Nordisk's Alhemo. The data suggests Hympavzi offers robust efficacy, potentially revolutionizing hemophilia treatment and enhancing patient outcomes significantly. This development is not just about competition; it represents a critical stride forward in patient care for those affected by this debilitating condition.UCB plans to seek regulatory approval for Fintepla to treat an additional epileptic disorder following positive phase 3 trial results in patients with CDKL5 deficiency disorder. This decision reflects promising results and could offer new hope to patients with limited treatment options, further cementing Fintepla's position in epilepsy management.Gene therapy continues to shine with CSL's Hemgenix demonstrating sustained long-term benefits. After five years of follow-up, a single dose has reduced annualized bleeding rates by an impressive 90% in hemophilia B patients within the Hope-B study. Such long-term efficacy highlights gene therapy's transformative potential, offering lasting improvements in quality of life for patients with genetic disorders.Regulatory frameworks are also evolving, as evidenced by the CDC's Advisory Committee on Immunization Practices (ACIP) voting to modify hepatitis B vaccine guidance for newborns. This decision advocates an individualized approach, sparking debate over vaccination strategies, which reflects the complexities and delicate balance required in public health policies today.Regeneron is making strides to simplify treatment regimens for T-cell engagers Lynozyfic and Ordspono. By reducing regimen complexity, they aim to improve patient compliance and expand access, thus enhancing the potential impact on cancer care—a crucial step toward broader therapeutic accessibility.In an effort to address cost barriers and stimulate domestic production of generics, Mark Cuban has proposed lowering FDA fees. This proposal highlights ongoing discussions around regulatory reforms needed to boost generics manufacturing in the United States. Such initiatives align with broader industry goals of increasing access to affordable medications.Despite these advancements, industry insiders have expressed concerns about "unprecedented turmoil" within the FDA. These challenges underscore the critical role of stable leadership in maintaining public trust and ensuring effective regulation amidst rapid scientific progress.Obesity treatments are gaining significant attention as companies like Wave Life Sciences and Structure Therapeutics report promising data, capturing increased investor interest. This trend underscores a growing focus on innovative pharmacological approaches to address obesity—a complex, multifactorial condition that affects millions globally.The strategic landscape of cancer diagnostics is also evolving, as evidenced by Natera's acquisition of Foresight Diagnostics. This deal underscores ongoing industry consolidation efforts aimed at enhancing technological capabilities and expanding market presence—a testament to the critical role diagnostics play in comprehensive cancer care strategies.As we observe these developments, it's clear that scientific innovation coupled with strategic regulatory maneuvers is shaping the future of healthcare. These advancements offer profound implications for patient care, providing new hope through advanced therapies while highlighting the importance of effective regulation and strategic partnerships.Precision medicine continues to extend beyond oncology into fields like cardiometabolic and neSupport the show

Beth Zupec-Kania is a leading global expert in ketogenic therapy, known for her decades of clinical experience and clear, compassionate guidance. A registered and certified dietitian-nutritionist, she has spent more than 30 years helping clinicians, patients, and families use therapeutic ketosis safely and effectively for neurological, psychiatric, metabolic, and even select cancer-related conditions. In this episode, Dr. Tro, Dr. Brian, and Beth talk about… (00:00) Intro (02:23) What The Charlie Foundation is and how Beth first became involved (05:09) The frustrations Beth faced as a nutritionist promoting an, at the time, very taboo diet in the ketogenic diet (09:37) How Beth initially came to see the power of keto as a therapy for people with epilepsy (12:16) The evolution of the keto diet over the decades (18:40) How the keto diet can be life changing for children with epilepsy (27:28) Epilepsy patients weaning off of the keto diet (30:22) Why a supplemental or drug cannot replace the keto diet for epilepsy patients (32:44) How sugar and the microbiome play into epilepsy and seizure disorders (41:28) Beth's personal experience with the ketogenic diet (47:38) HRT, women's health, and the keto diet (51:54) Addiction and denial (56:55) Fatty liver disease and the keto diet (01:00:02) The new dietary guidelines (01:04:04) Eating REAL fats (01:05:52) For more information, please see the links below. Thank you for listening! Links: Please consider supporting us on Patreon: https://www.lowcarbmd.com/ Beth Zupec-Kania: The Charlie Foundation: https://charliefoundation.org/ Website: https://www.bethzupeckania.com/ Keto Mastery: https://www.ketomastery.pro/ Dr. Brian Lenzkes:  Website: https://arizonametabolichealth.com/ Twitter: https://twitter.com/BrianLenzkes?ref_src=twsrc^google|twcamp^serp|twgr^author Dr. Tro Kalayjian:  Website: https://www.doctortro.com/ Twitter: https://twitter.com/DoctorTro IG: https://www.instagram.com/doctortro/ Toward Health App Join a growing community of individuals who are improving their metabolic health; together.  Get started at your own pace with a self-guided curriculum developed by Dr. Tro and his care team, community chat, weekly meetings, courses, challenges, message boards and more.  Apple: https://apps.apple.com/us/app/doctor-tro/id1588693888  Google: https://play.google.com/store/apps/details?id=uk.co.disciplemedia.doctortro&hl=en_US&gl=US Learn more: https://doctortro.com/community/ 

In today's episode, I'm opening the first chapter of what I believe is the most important series I've ever created — a deep dive into progesterone and why it became the heart of my medical practice. For more than 20 years, I've watched this “simple, humble hormone” transform women's lives in ways most conventional medicine overlooks. What started in two small treatment rooms has grown into a 25,000 sq ft facility, and the core of our success comes down to understanding progesterone's impact on the female brain, stress response, and emotional resilience. In this episode, I break down: Why progesterone is far more than a reproductive hormone How it regulates the female stress response (amygdala, hippocampus, prefrontal cortex) Why anxiety, insomnia, irritability, and emotional overwhelm often map directly to progesterone decline Why so many women feel “unraveled” in their 40s — and why it's not their fault The science behind oral vs. sublingual progesterone (and why I use troches) How conventional medicine often misses the root cause The importance of physicians showing their work, their data, and their citations The lived stories and clinical outcomes that changed how I practice medicine If you've ever felt dismissed, unseen, or told that your anxiety or mood changes are “just stress,” this episode is for you. This is the beginning of a 7-part series where I break down the neurobiology, endocrinology, testing, dosing, delivery methods, breast health, perimenopause, and more.   Citations: Brinton, Roberta Diaz, et al. “Neurosteroids and Brain Function.” Steroids, vol. 81, 2014, pp. 61–78. Epperson, C. Neill, et al. “New Insights into Perimenopausal Depression: A Neuroendocrine Vulnerability Framework.” The Lancet Psychiatry, vol. 9, no. 2, 2022, pp. 110–118. Frye, Cheryl A. “Neurosteroids—Endogenous Modulators of GABA_A Receptors.” Pharmacology & Therapeutics, vol. 116, no. 1, 2007, pp. 58–76. Genazzani, Andrea R., et al. “Progesterone, Stress, and the Brain.” Human Reproduction Update, vol. 16, no. 6, 2010, pp. 641–655. Meeker, John D., et al. “Environmental Endocrine Disruptors: Their Effects on Human Reproduction and Development.” Reproductive Toxicology, vol. 25, 2008, pp. 1–7. Mellon, Stanley H. “Neurosteroid Regulation of Central Nervous System Development.” Pharmacology & Therapeutics, vol. 116, 2007, pp. 107–124. Mizrahi, Romy, et al. “The Role of Allopregnanolone in Stress, Mood, and Trauma.” Neurobiology of Stress, vol. 11, 2019, 100198. Paul, Steven M., and Graziano Pinna. “Allopregnanolone: From Molecular Pathways to Therapeutic Applications.” Current Opinion in Neurobiology, vol. 48, 2018, pp. 90–96. Pluchino, Nicoletta, et al. “Progesterone and Allopregnanolone: Effects on the Central Nervous System in the Luteal Phase and in Perimenopause.” Gynecological Endocrinology, vol. 36, no. 6, 2020, pp. 441–445. Rasgon, Natalie L., et al. “Perimenopausal Changes in the Brain and Mood: A Review.” Journal of Clinical Endocrinology and Metabolism, vol. 107, no. 4, 2022, pp. 1120–1134. Reddy, Doodipala Samba. “The Neurosteroid Allopregnanolone and GABA-A Receptor Modulation in Epilepsy and Mood Disorders.” Frontiers in Neuroscience, vol. 12, 2018, 933. Schiller, Crystal E., et al. “The Neuroendocrinology of Perimenopausal Depression.” Trends in Neurosciences, vol. 44, no. 2, 2021, pp. 119–135. Schumacher, Michael, et al. “Neuroprotective Effects of Progesterone and Its Metabolites.” Frontiers in Neuroendocrinology, vol. 33, 2012, pp. 415–439. Selye, Hans. “The General Adaptation Syndrome and the Diseases of Adaptation.” Journal of Clinical Endocrinology, vol. 6, no. 2, 1946, pp. 117–230. Sheng, Jun, and György Buzsáki. “Neuronal Firing and Theta Oscillations in the Amygdala During Fear Conditioning.” Neuron, vol. 53, 2007, pp. 653–667. Smith, Sheryl S. “Progesterone Withdrawal Increases Neuronal Excitability in the Hippocampus: A GABA_A Mechanism.” Journal of Neuroscience, vol. 28, 2008, pp. 10171–10179. Snyder, Jonathan S., et al. “Adult Hippocampal Neurogenesis and Stress Regulation.” Nature Reviews Neuroscience, vol. 12, 2011, pp. 1–9. Stanczyk, Frank Z., and Jerilynn C. Prior. “Progesterone and Progestins: A Review of Pharmacology, PK, and Clinical Use.” Steroids, vol. 82, 2014, pp. 1–8. Tu, Ming-Je, et al. “Oral, Vaginal, and Transdermal Progesterone: PK, Metabolism, and Tissue Distribution.” Drug Metabolism Reviews, vol. 52, no. 2, 2020, pp. 1–28. Wang, Jun, et al. “Stress, Amygdala Plasticity, and the Neuroendocrine Interface.” Nature Neuroscience, vol. 10, 2007, pp. 1093–1100. Weinstock, Marta. “The Hippocampus and Chronic Stress.” Neurochemical Research, vol. 42, 2017, pp. 1–12. World Health Organization. Progesterone and Reproductive Function: Clinical Perspectives. WHO, 2019.   Dr. Brendan McCarthy is the founder and Chief Medical Officer of Protea Medical Center in Arizona. With over two decades of experience, he's helped thousands of patients navigate hormonal imbalances using bioidentical HRT, nutrition, and root-cause medicine. He's also taught and mentored other physicians on integrative approaches to hormone therapy, weight loss, fertility, and more. If you're ready to take your health seriously, this podcast is a great place to start.  

The Revolutionary Role of the Vagus Nerve in Bioelectronic Medicine: Dr. Kevin J. Tracey, president and CEO at the Feinstein Institutes for Medical Research and author of "The Great Nerve: The New Science of the Vagus Nerve and How to Harness Its Healing Reflexes,” details the historical context and recent advancements in harnessing the power of the vagus nerve to control inflammation without causing immunosuppression. The conversation explores the journey from early experimental stages to the recent FDA approval for treating rheumatoid arthritis through vagus nerve stimulation (VNS) devices. He also delves into the potential applications of VNS in treating other inflammatory conditions, mood disorders, and the science behind non-invasive lifestyle techniques and commercially available devices. The episode provides valuable insights into the future of bioelectronic medicine and its potential to revolutionize medical treatments.

Dr. Hoffman continues his conversation with Dr. Kevin J. Tracey, president and CEO at the Feinstein Institutes for Medical Research and author of "The Great Nerve: The New Science of the Vagus Nerve and How to Harness Its Healing Reflexes.”

Journalist Lauren Aguirre and Dr. Elizabeth Thiele, the authors of the recently published “Epilepsy for Dummies,” discuss their collaboration and explain why their perspectives as epilepsy patient/parent and provider were essential in creating a reliable resource for those living with epilepsy and those who love them.

When your child receives a medical diagnosis, your whole world shifts. In this episode, Val sits down with Constance Lewis, author, mother of three, and creator of the children's book series celebrating her son, who wears a hero cape for good reason.Constance opens up about the emotional and practical realities of parenting a child with epilepsy while still needing to be present for her other children. She shares what medical motherhood feels like behind the scenes : the fear, the strength you never knew you had, and the importance of helping siblings feel seen, valued, and emotionally supported.If you are a mom walking through chronic illness, long-term medical care, or trauma in motherhood, this episode will remind you:➡️ You're not alone.➡️ You're stronger than you think.➡️ Your presence matters more than your perfection.

November is Epilepsy Awareness Month, and to help raise awareness, TSC Now host Dan Klein talks to Starr Phipps, an adult living with drug-resistant epilepsy. She shares her story, including how she faced stigma as a child, how her lack of control over her seizures impacted her emotional and physical well-being, and how continuing to … Continue reading Episode 51: Drug-Resistant Epilepsy (Sponsored by LivaNova) →

Welcome to the NeurologyLive® Mind Moments® podcast. Tune in to hear leaders in neurology sound off on topics that impact your clinical practice. In this episode, "Understanding Variability in Infantile Spasms Care," Christina Briscoe, MD, epileptologist at Boston Children's Hospital, discusses new multi-center findings on current treatment practices for infantile epileptic spasms syndrome (IESS). Briscoe outlines why first- and second-line therapies remain largely standardized, yet significant variability emerges once hormonal therapy and vigabatrin fail. She details the evidence gaps driving inconsistent third-line and fourth-line decision-making, including limited clinical trial data, uneven access to ketogenic diet programs and epilepsy surgery, and historically low industry investment in infant-specific trials. Additional discussion focuses on ongoing research from the Pediatric Epilepsy Research Consortium, national and global comparisons in treatment pathways, barriers to study scalability in rare pediatric epilepsies, and the practical challenges of implementing timely diagnosis and standardized care across diverse healthcare settings. Briscoe also highlights under-recognized issues such as incorporation of ketogenic diet and early surgical evaluation into treatment pathways, and emphasizes the need for broader infrastructure, funding, and multi-center collaboration to improve outcomes for children with IESS. Looking for more Epilepsy discussion? Check out the NeurologyLive® Epilepsy clinical focus page. Episode Breakdown: 1:05 – Origins of the study, need to pursue more standardized care in IESS 4:40 – Reasons behind treatment variability after first and second-line options 8:00 – What research is needed to guide sequencing and standardize care 12:05 – Neurology News Minute 14:30 – What makes IESS studies difficult and how infrastructure can improve 18:50 – Lesser-discussed gaps, including ketogenic diet and surgical evaluation The stories featured in this week's Neurology News Minute, which will give you quick updates on the following developments in neurology, are further detailed here: Positive Phase 3 OCEANIC-STROKE Data Position Asundexian for Upcoming FDA Submission FDA Approves New Intrathecal Administration Route for Spinal Muscular Atrophy Gene Therapy GLP-1 Semaglutide Fails to Outperform Placebo in Phase 3 EVOKE Trial of Alzheimer Disease Thanks for listening to the NeurologyLive® Mind Moments® podcast. To support the show, be sure to rate, review, and subscribe wherever you listen to podcasts. For more neurology news and expert-driven content, visit neurologylive.com.

In this episode of Better Edge, a Northwestern Medicine Neurology panel including Niccolo Mencacci, MD, PhD, Sarah Brooker, MD, PhD, and Elizabeth Gerard, MD, discuss their groundbreaking research surrounding the NUS1 gene and its impact on neurological disorders.Their recently published research, The Spectrum of Neurologic Phenotypes Associated With NUS1 Pathogenic Variants: A Comprehensive Case Series, covers a comprehensive case series of 41 patients with pathogenic variants in the NUS1 gene, highlighting a spectrum of neurological phenotypes that include developmental delays, epilepsy, and various movement disorders. Notably, the study emphasizes the lack of genotype-phenotype correlations, suggesting the influence of additional genetic and environmental factors on clinical presentations.

Send comments and feedbackAbout one-third of people with epilepsy will continue having seizures despite medications. What is the clinical definition of drug-resistant epilepsy? Why does it occur, and is it possible to predict? Dr. Cecilie Nome interviews Dr. Patrick Kwan.Relevant papers:Definition of drug resistant epilepsy: Consensus proposal by the ad hoc Task Force of the ILAE Commission on Therapeutic Strategies - Kwan - 2010 - Epilepsia - Wiley Online LibraryThe costs of epilepsy in Australia | Neurology Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice.Let us know how we're doing: podcast@ilae.org.The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, Instagram, and LinkedIn.

In this episode, Geoff Marsh speaks to Dr. Steven Miller about our Collection on Epilepsy and Seizures. Hosted on Acast. See acast.com/privacy for more information.

Dr. Asim Mohammad Shahid discusses seizures and epilepsy that can impact children. He goes over febrile seizures, their causes, and addresses the misconceptions surrounding its occurrence related to vaccinations. He provides an overview of the common types of seizures that parents may see their child experience and how to best manage the frightening experience. He also emphasizes the importance of timely medical intervention when epilepsy occurs.To schedule with Dr. Asim Mohammad Shahid 

Carolyn McMakin, MA, DC - https://frequencyspecific.com/  Kim Pittis, LCSP, (PHYS), MT - https://fsmsports365.com/ 00:26 Dr. Carol's Costa Rica Experience 04:48 Unexpected Healing Pathways 06:10 Connecting the Dots in Treatment 13:22 Emotional Components of Treatment 19:37 Addressing Epilepsy and FSM 25:10 FSM Device Safety and Guidelines 31:00 Social Media and FSM Community 32:11 Clarifying Sleep Issues 33:27 Sleep Hygiene Tips 35:50 Concussion Protocols and Sleep 37:57 FSM and Device Usage 41:00 Vestibular Injuries and Treatment 49:11 Advanced Course and Symposium 51:53 Final Thoughts on Pain and Treatment Understanding and Managing Pain Changes A recurring theme in patient care is the unexpected change in pain patterns. Pain shouldn't always be seen as a sign of something terrible; rather, it's an indicator of what the body needs next. A common misconception is that the healing process is linear. However, practitioners must recognize that healing can be non-linear, especially when working with conditions like connective tissue disorders. When patients experience new symptoms, it suggests that the body's compensatory mechanisms are shifting, often revealing underlying issues that need attention. When working with patients, it's essential to communicate that changes in pain are a natural part of the healing process. Medical practitioners are encouraged to adopt a mindset of curiosity over concern, using new symptoms as clues for subsequent treatment steps. Emphasizing a holistic approach, practitioners should explore all potential sources of discomfort, including postural imbalances or previous injuries, and encourage patients not to panic but rather to view these changes as part of their healing journey. Effective Treatment Protocols FSM treatments are most effective when practitioners are adaptable and ready for shifts in patient conditions. Regularly revisiting and altering treatment plans is crucial. While some patients might experience immediate relief, others could face new challenges as the body adjusts. Practitioners should prepare for these scenarios, ensuring an ongoing dialogue with patients to address arising concerns and adjust treatment protocols accordingly. For some, the path to relief involves twice-weekly sessions for several weeks to address compensations and emergent conditions. The approach should be iterative; assess, treat, and reevaluate continually as new symptoms present themselves. Handling Specific Clinical Scenarios 1. **Vestibular and Neurological Concerns**: When using protocols such as "94 and 94" frequencies, some patients may report dizziness or discomfort due to vestibular system reactions. Thus, it's vital to perform a vestibular screen before initiating treatment. If any vestibular issues are detected, utilizing calming frequencies like "40 and 44" can stabilize the patient's condition. 2. **Epilepsy and Seizure Disorders**: There is some concern about treating epileptic patients with FSM. It's important to avoid direct current paths through the brain but focus on peripheral treatments such as the concussion protocol, which can aid in managing seizure disorders. Practitioners must weigh these treatment options carefully and seek clarification where needed—especially if misinformation has been disseminated through other channels. Advancements in Sleep Management Sleep issues are widespread; hence, understanding their underlying causes is crucial. Practitioners should probe beyond superficial sleep complaints to determine whether pain, anxiety, or lifestyle factors contribute to the problem. For instance, addressing pain with specific FSM protocols can significantly enhance sleep quality. Moreover, discussing sleep hygiene with patients is essential.

Send comments and feedbackNearly 1 in 4 people with epilepsy experiences depression, which affects quality of life, seizure control, and adherence to treatment. Depressive symptoms - including suicidality - are one of the strongest predictors of poor quality of life in people with epilepsy, and they can be overlooked or minimized both by people with epilepsy and by clinicians. Sharp Waves spoke with Dr. Rosa Michaelis about the role of neurologists in discussing, screening, diagnosing, and treating depression as a crucial part of patient care. Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice.Let us know how we're doing: podcast@ilae.org.The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, Instagram, and LinkedIn.

Join us for an incredibly candid and informative conversation with Audrey Vernick, a passionate advocate and the Director of Patient and Family Advocacy for the Pediatric Epilepsy Surgery Alliance. Audrey shares the powerful 21-year journey of her son, Bennett, who suffered a stroke in utero and was later diagnosed with the catastrophic epilepsy known as Infantile Spasms. Audrey recounts the emotional process from the difficult labor and early concerns dismissed as normal reflexes, to the terrifying moment she saw his MRI and realized half of his brain was black due to a massive stroke. This episode is an essential listen for any parent navigating a serious pediatric diagnosis, especially those dealing with seizures. Audrey shares her family's ultimate decision to pursue a hemispherectomy after two years of failed medications, and the immediate, miraculous developmental explosion in her son's language and physical abilities post-surgery. Key Takeaways and Actionable Advice Trust Your Parental Instinct: If you think something is wrong with your child's movements, something probably is. Demand a Specialist: If you suspect Infantile Spasms, go to the ER and demand to speak to a neurologist or epileptologist. Request video EEG monitoring. Video & Log Everything: Record videos of suspicious movements and log details (time, duration, what you observed) to help clinicians with diagnosis and treatment planning. The Difference Between a Consult and Surgery: A surgical consult is not a surgery. Referring for a pre-surgical workup opens up a new toolbox of solutions and gives you access to a world-renowned team of specialists for a more detailed look at your child's case. Drug-Resistant Epilepsy (DRE): Epilepsy is considered DRE if a child has uncontrolled seizures after appropriately failing two seizure medications. This increases the risk of SUDEP (Sudden Unexplained Death due to Epilepsy). Decision-Making: Understanding your partner's decision-making style is crucial when navigating complex medical choices. Guest Information & Resources Guest: Audrey Vernick, Director of Patient and Family Advocacy at the Pediatric Epilepsy Surgery Alliance. Organization: Pediatric Epilepsy Surgery Alliance Website: epilepsysurgeryalliance.org. Resources: Offers a Parent Support Navigator Program (trained peers), financial aid for travel to a Level Four epilepsy center for pre-surgical workups, webinars, and more. Infantile Spasms Resource: Audrey also mentions the Infantile Spasms Action Network for resources on recognizing and acting on infantile spasms.   Time Stamp Description Key Information 00:00:43 Critical Advice: Surgery Consult vs. Surgery Audrey shares the core message that a surgery consult is different than a surgery, and there is no harm in seeking a consultation for any diagnosis. 00:01:54 Bennett's Diagnosis and Surgery Audrey introduces her son, Bennett (21), who had a stroke in utero, infantile spasms, and ultimately a hemispherectomy. 00:04:50 The Early Months: Colic vs. Seizures Audrey describes the first five months, where unusual movements and fussiness were initially dismissed as normal reflexes and colic by her pediatrician. 00:12:08 Emergency EEG & Stroke Discovery The night she called a new neurologist, they were admitted for a 48-hour video EEG monitoring. The next day, an MRI revealed a massive stroke in the right hemisphere. 00:14:50 Infantile Spasms: Recognize the Signs Audrey, as a leader of the PESA, stresses that Infantile Spasms is a medical emergency. She describes the signs: head drop/nod, flexing, and subtle movements that happen in clusters. 00:17:10 Advocacy: How to Get Help Advice for parents: Take videos, take logs, and at the ER, demand to see a neurologist or epileptologist. 00:22:15 The Surgical Seed is Planted Bennett's first neurologist mentioned a hemispherectomy when he was only five months old, which her husband immediately dismissed, but planted a "seed" for future research. 00:24:09 Choosing Surgery and the "Elmo Song" Miracle The family begged for surgery and two days later Bennett had his hemispherectomy. Two weeks later on the plane home, Bennett, whose speech was suppressed, sang the entire Elmo song, signaling the impact the seizures had been having. 00:30:52 Defining Drug-Resistant Epilepsy (DRE) DRE is when a child has seizures after failing two appropriately dosed medications. DRE is harmful to development and carries the highest risk of SUDEP (Sudden Unexplained Death due to Epilepsy). 00:42:55 Final Message: Trust Yourself Audrey's final, powerful advice to parents: You are the expert in your own child; trust yourself and use that expertise as a tool on your journey.   Support the Host & Show If you found value in this conversation, please check out host Katie Taylor's work and community resources: Join Katie Taylor's Substack for in-depth insights and articles: Join here Get the SupportSpot App—a helpful tool to support your child through their healthcare journey: Check it out The Child Life On Call Podcast is for informational and educational purposes only. The content shared in each episode, including stories, discussions, and interviews, is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay seeking it because of something you heard on this podcast. The views and opinions expressed by guests on the Child Life On Call Podcast are their own and do not necessarily reflect those of Child Life On Call. Child Life On Call does not endorse any specific medical treatments, procedures, or opinions shared in the podcast. If you or your child is experiencing a medical emergency, call 911 or seek immediate medical attention. By listening to this podcast, you acknowledge that Child Life On Call and its affiliates are not responsible for any decisions made based on the information provided.  

This week, Bobbi Conner talks with MUSC's Dr. Sarah Schmitt about epilepsy and common triggers that may initiate a seizure in individuals with epilepsy.

Epilepsy, UK Health System VS US, and How We Can Do Better: Conversation With Célestine LaurinSummaryIn this conversation, the speakers delve into the complexities of living with epilepsy and chronic illness, particularly focusing on the experiences of children and young adults. They discuss the challenges of diagnosis, the importance of support from family and friends, and the role of therapy in managing mental health. The conversation also touches on the stigma surrounding chronic illness, the impact of bullying, and practical advice for managing seizures and advocating for oneself in educational and social settings. Additionally, they explore how epilepsy is represented in the media and the need for better understanding and communication around the condition. This conversation delves into the complexities of living with epilepsy, particularly focusing on the challenges faced by women regarding medication and pregnancy. The speakers share personal experiences with the impact of epilepsy on their lives, careers, and the healthcare system. They discuss the stigma surrounding chronic illness, the importance of open communication with clients in business, and the differences in healthcare systems across countries. The conversation highlights the need for greater awareness and understanding of disability and chronic illness. In this conversation, the speakers discuss the challenges faced by individuals with disabilities, the impact of overprotection on children, and the need for inclusive spaces and universal design. They explore the healthcare systems in different countries, highlighting the disparities in access and affordability. The conversation emphasizes the importance of disability advocacy in health policy and the need for a more inclusive approach to legislation that considers the needs of all individuals, particularly those with chronic illnesses.Keywordsepilepsy, chronic illness, mental health, therapy, support, bullying, childhood illness, accommodations, media representation, epilepsy, medication, women's health, chronic illness, disability, healthcare, personal stories, photography, career choices, mental health, disability, healthcare, universal design, overprotection, advocacy, inclusivity, chronic illness, education, mental health, accessibility Hosted on Acast. See acast.com/privacy for more information.

Epilepsy affects up to 2% of people, and for some patients, medications are not effective. Adeel Ilyas, M.D., a neurosurgeon, explains how referral to a Level 4 epilepsy center offers hope to patients with drug-resistant epilepsy. Learn how UAB's multidisciplinary team, including neurologists, neurosurgeons, and neuropsychologists, uses both surgical and neuromodulatory approaches to manage seizures.

As a level 4 epilepsy center, Rush University Medical Center meets the highest standards for seizure diagnosis and care. Rush clinicians treat patients with seizures and those who have drug-resistant epilepsy through optimized medical management, surgical evaluation, neuromodulation devices and innovative dietary treatments. Rush also offers specialized programs for women with epilepsy and operates Illinois' only Spanish-speaking epilepsy clinic to address health care disparities in the community.  Antoaneta Balabanov, MD, is a neurologist and medical director of the Rush Epilepsy Clinic, director of the Clinic of Dietary Treatments of Epilepsy, and director of the epilepsy fellowship program at Rush. In addition to providing medical, surgical and brain stimulation treatments for patients with epilepsy, Dr. Balabanov is involved in research clinical trials in these areas. She has special interest in alternative treatments of epilepsy, especially dietary treatments.   

Rush University Medical Center offers a comprehensive range of surgical options for patients with drug-resistant epilepsy and complex brain tumors, using advanced techniques that include stereo EEG monitoring, laser ablation, resection, and neuromodulation devices such as responsive nerve stimulation and deep brain stimulation.   Arka Mallela, MD, is an epileptic neurosurgeon at Rush. He leads the epilepsy surgery and brain mapping practices where he evaluates and treats patients with drug-resistant epilepsy and brain tumors. In addition, Dr. Mallela specializes in removing difficult brain tumors located near areas that control speech, movement and cognition. He uses brain mapping techniques to safely remove as much of the tumor as possible while protecting these important functions. 

Jennifer Williams, Executive Director of the Equilibrium Epilepsy Group talks about November being Epilepsy Awareness Month in addition to several events taking place this month. Jennifer also previews their community awareness event in JanuarySee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Taking folic acid prior to conception and during pregnancy can help protect the unborn baby from developing abnormalities. Supplements are particularly important for women who have epilepsy, as anti-seizure medication (previously known as anti-convulsants or anti-epileptic drugs) can lead to a deficiency in folic acid. Until 2023, high doses of 4-5 mg per day were recommended. However, this has changed as the data has changed. Did you know the SMFM no longer recommends “high dose” folic acid preconceptionally for patients on seizure medications? This is also highlighted in a recently released epub from Obstetrics and Gynecology (Green Journal) on October 31, 2025. Listen in for details. 1. Mokashi, Mugdha MD, MPH; Cozzi-Glaser, Gabriella MD; Kominiarek, Michelle A. MD, MS. Dietary Supplements in the Perinatal Period. Obstetrics & Gynecology ():10.1097/AOG.0000000000006098, October 31, 2025. | DOI: 10.1097/AOG.00000000000060982. Asadi-Pooya AA. High dose folic acid supplementation in women with epilepsy: are we sure it is safe? Seizure. 2015 Apr;27:51-3. doi: 10.1016/j.seizure.2015.02.030. Epub 2015 Mar 7. PMID: 25891927.3. https://aesnet.org/about/aes-press-room/press-releases/guideline-issued-for-people-with-epilepsy-who-may-become-pregnant4. Turner C, McIntosh T, Gaffney D, Germaine M, Hogan J, O'Higgins A. A 10-year review of periconceptual folic acid supplementation in women with epilepsy taking antiseizure medications. J Matern Fetal Neonatal Med. 2025 Dec;38(1):2524094. doi: 10.1080/14767058.2025.2524094. Epub 2025 Jun 30. PMID: 40588438.5. https://www.aan.com/PressRoom/Home/PressRelease/5170#:~:text=The%20guideline%20recommends%20that%20people,and%20possibly%20improve%20neurodevelopmental%20outcomes.6. https://aesnet.org/about/aes-press-room/press-releases/guideline-issued-for-people-with-epilepsy-who-may-become-pregnant

Jessica Warner Judd suffered a tonic clonic seizure at the European track and field championships in 2024 and stuggled with symptoms in early 2025. She decided to leave the track to focus on making her marathon debut in New York City. She stopped by the HOKA Flagship Store on 5th Avenue to discuss her preparations for the race.____________Host: Chris Chavez | ⁠⁠⁠⁠@chris_j_chavez on Instagram⁠⁠⁠Guest: Jessica Warner Judd | @jesswarnerjuddxx on InstagramProduced by: Mac Fleet | @macfleet on Instagram + Jasmine Fehr |⁠⁠ ⁠⁠⁠@jasminefehr on Instagram⁠⁠⁠⁠⁠____________SUPPORT OUR SPONSORSHOKA: CITIUS MAG is proud to partner with HOKA for another year of programming out of the ⁠HOKA flagship store at 579 5th Avenue⁠, including: giveaways of commemorative HOKA x NYC 2025 merchandise including shirts, tote bags, and more; an easy run with Sofar Sounds + secret concert experience, tonight at 6:00pm; and opportunities to test and shop the HOKA Mach X 3 and the Rocket X 3. HOKA will also have a hub at the marathon expo. Plus, the HOKA Flagship store will host CITIUS MAG's coverage of the elite races. ⁠Register or get more details for all of the events here.

Send comments and feedbackIs there a fast, simple way to measure whether someone with epilepsy is doing "better" or "worse" compared with a past clinic visit? Not really. Seizure count is often considered a standard, but multiple small seizures may have less impact on someone's life than a single generalized tonic-clonic seizure. In this episode, we talk with authors of a study on an outcome measure that factors the impact of seizures as well as the impact of treatments.The study: Validation of the seizure-related impact assessment scale  Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice.Let us know how we're doing: podcast@ilae.org.The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, Instagram, and LinkedIn.

Dr. Katie Krulisky and Dr. Rosemary Dray-Spira discuss the trends in prenatal exposure to antiseizure medications over the past decade.  Show reference: https://www.neurology.org/doi/10.1212/WNL.0000000000213933  Citation:  Pouneh S, Jérôme D, Sara M, et al. Trends in Prenatal Exposure to Antiseizure Medications Over the Past Decade: A Nationwide Study. Neurology. 2025;105(4): e213933. 

A Nemours neurologist receives a prestigious grant from the National Institutes of Health.The funding will be used to study brain patterns that could lead to shared therapies for autism, epilepsy and Alzheimer's disease patients.On this edition of Enlighten Me, Delaware Public Media's Joe Irizarry sits down with Nemours Children's Health Chief of Neurology Dr. Rodney Scott to discuss how his work can help patients.

Welcome to the NeurologyLive® Mind Moments® podcast. Tune in to hear leaders in neurology sound off on topics that impact your clinical practice. In this episode, "Building Safer, Smarter, and More Personalized Epilepsy Care," Orrin Devinsky, MD, discusses major areas of progress and ongoing challenges in epilepsy care. Devinsky, a professor in the departments of neurology, neurosurgery, and psychiatry at NYU Grossman School of Medicine, reflects on how the treatment landscape has evolved in recent years, including advances in medication, awareness of SUDEP, and patient counseling. Devinsky also weighs in on the current treatment hierarchy for antiepileptic drugs and whether first-line therapeutic strategies should change. Additional discussion touches on the state of gene therapy development, the need for greater research in disease prevention, the implications of GLP/GIP agents in neurological care, and how neurodevelopmental management is advancing for pediatric patients with epilepsy. Looking for more Epilepsy discussion? Check out the NeurologyLive® Epilepsy clinical focus page. Episode Breakdown: 0:55 – How epilepsy care has evolved and where progress has been made 5:30 – Whether first-line therapy choices for epilepsy should be re-evaluated 8:35 – Why gene therapy progress has been slower than expected in epilepsy 12:05 – Neurology News Minute 14:10 – What areas of epilepsy research deserve greater attention and funding 17:10 – How GLP/GIP agents could intersect with neurological and epilepsy care 20:00 – How clinicians can better address neurodevelopmental challenges in patients with epilepsy The stories featured in this week's Neurology News Minute, which will give you quick updates on the following developments in neurology, are further detailed here: Neflamapimod Advances to Phase 3 Trial in Dementia With Lewy Bodies After Positive RewinD-LB Results FDA Delays Review Deadline for Hunter Syndrome Agent Tividenofusp Alfa FDA Clears Roche's Elecsys pTau181 Test for Ruling Out Alzheimer-Related related Amyloid Pathology Thanks for listening to the NeurologyLive® Mind Moments® podcast. To support the show, be sure to rate, review, and subscribe wherever you listen to podcasts. For more neurology news and expert-driven content, visit neurologylive.com.

Welcome to part two of embracing our dummy-ness! In this episode, Greg continues the conversation with Dr. Elizabeth Thiele, a neurologist and epileptologist, and Lauren Aguirre, an author, journalist, epilepsy patient and caregiver to her children that also have epilepsy. They authored the next installment of the incredibly popular "For Dummies" series of books from Wiley, and their book "Epilepsy for Dummies" will be everywhere books are sold at the end of the month, but you can pre-order or download it in digital formats NOW! In this part two, they discuss looking at epilepsy from the perspective of both the patient and the medical professional which really helped them take a wholistic look at the condition for the book, the ketogenic diet, all of the valuable information that can be found within the book, new research in TSC, and stick around for the end because they take rapid fire questions from Greg about epilepsy and caregiving. There is so much valuable information in this episode, which is just a taste of what you will find within the pages of their new book. Seriously, folks, whether you are a patient with epilepsy, a caregiver, an educator, or just a good citizen, you NEED to get your copy!  Talk About It with Greg Grunberg is excited to be sponsored by Neurelis and by Jazz Pharmaceuticals.

For Tim Cummings, growing up with a brother who lived with epilepsy often felt like there was a mysterious presence in their shared childhood room. Seizures would often affect his brother Matthew in the middle of the night, a terrifying experience for young Tim to witness. It felt like there was a doorway or a portal opening, connecting Matthew to an unseen realm. This feeling would haunt Tim well into adulthood, particularly after the tragic loss of his brother when Tim was 24. After 40 years as a professional actor, Tim knew he had his own stories to tell. He went back to school, getting his masters in writing, and recently released a new novel inspired by his childhood experiences with Matthew. In The Lightening People Play, fourteen-year-old Kirby writes and produces a play to raise money for a seizure-alert dog for his younger brother Baxter. This production opens a portal through which mysterious figures and symbols appear. This story allows Tim to reckon with his past, immortalizing his brother while allowing for a more uplifting end to his brother's story. In this episode of the Major Pain podcast, Tim recounts the personal history that inspired his new novel, reflecting on how his brother's epilepsy impacted their lives. We discuss the creation of The Lightening People Play and the ways in which chronic illness can affect not only the lives of those living through health challenges, but the lives of their loved ones. Learn more about The Lightening People Play on Tim's website: https://www.timcummings.ink/ Join Tim for an event on 10/26 at The Village Well in Culver City with two stars from the TV show GRIMM, called Spooky Magic in Storytelling. Tickets at https://www.eventbrite.com/e/spooky-magic-in-storytelling-w-tim-cummings-tickets-1743861439509 November is Epilepsy Awareness Month, and if anyone wants to join in a 34-mile run/walk to support, they can sign up here: https://www.facebook.com/EpilepsyFoundationofAmerica/posts/-your-34-mile-walkrun-challenge-november-1-30-take-on-the-challenge-and-raise-fu/927116259443626/ The eBook for The Lightening People Play is now available on OverDrive, which serves more than 81,000 libraries and schools in 106 countries with the industry's largest digital catalog. https://www.overdrive.com/media/12388451/the-lightning-people-play PlayWatch the episode on YouTube, listen on your favorite podcast platform or here on our website.

In this episode of The Joy of Football, Jay Bothroyd joins Martin Tyler and Neil Barnett to reflect on an extraordinary career that took him from Arsenal's academy to the England team, and across the world to Italy, Thailand and Japan.Jay opens up about the anger that ended his Arsenal dream, the call from Dave Jones that saved his career, and his life-changing decision to finally reveal that he kept epilepsy a secret for his entire career.From winning the FA Youth Cup with Arsenal, to sharing a dressing room with Gadaffi's Son, facing Paolo Maldini, and swapping shirts with Andrés Iniesta, this is Jay Bothroyd's incredible football journey, told with honesty, humour and heart.This episode is an incredible conversation, and NOT to be missed.[CHAPTERS]00:00 Discovering The Love For Football05:01 How Arsène Wenger Changed Arsenal07:50 Bothroyd's Secret Lunches At Arsenal09:04 “Arsène Brought The Joy To Football”12:40 Winning the FA Youth Cup With Arsenal19:27 The Shirt That Changed Everything (Getting Sold by Arsenal)24:14 Signing For Coventry (Gordon Strachan Phone Call)28:15 Making His Premier League Debut Vs Manchester United31:56 “I Kept Epilepsy A Secret My Entire Career” – Jay Bothroyd's Epilepsy Journey43:31 How Cardiff & Dave Jones Saved Jay's Career + Fall Out At Wolves52:14 “Going to Cardiff Was The BEST Decision For Me”54:17 Jay Bothroyd's England Call-Up1:00:17 Craig Bellamy: “You Either Love Him Or Hate Him – I Loved Him”1:01:56 Making An Impression In England Training1:04:24 “You Definitely Would've Played For Me” – Wenger Reunites With Jay1:08:20 Playing In Serie A For Perugia – Life & Culture In Italy1:15:27 Playing Against Maldini (“Best Defender Ever”)1:18:23 Colonel Gaddafi's Son Was My Teammate1:21:27 The Standard Of The Thailand League1:23:38 Moving To Japan & Playing In The J-League1:31:46 Swapping Shirts With Iniesta1:32:14 “I Could've Played 100 Games For Arsenal” – Reflection On Career1:35:43 Jay Bothroyd Played In The “Aguerooo” Game1:41:02 What's Jay's Best Moment?1:43:20 Young Epilepsy Ambassador1:46:28 Martin Tyler's Letter From The Gantry (Everton)Join Neil Barnett (former Chelsea touch-liner announce and football journalist) alongside the voice of the Premier League Martin Tyler in celebrating the greatest addiction in the World!Hosted by The Revive Lounge Ltd UCsdye1hUxP4xhgBx9zvuSjgSubscribe to https://youtube.com/@TheReviveLounge?si=L5ddzrJrtSmErtJ5Support the Pod https://patreon.com/TheJoysofFootballPodcast?utm_medium=unknown&utm_source=join_link&utm_campaign=creatorshare_creator&utm_content=copyLinkRead us on Substack https://martintylerandneilbarnett.substack.com/Follow our Twitter https://x.com/TheJOFFollow our Tik Tok https://www.tiktok.com/@joy_of_football_pod?is_from_webapp=1&sender_device=pcFollow our Instagram https://https://www.instagram.com/joy_of_football_pod/Contact us via: therevivelounge@gmail.comMusic by Arron Clague - https://www.instagram.com/arronclague?igsh=aHg1bjQ3OHpmaXIzIntro Sequence by Wellong Sadewo (wells.illustration): https://www.instagram.com/wells.illustration/For incredible football artwork, check out: https://linktr.ee/marclobodaartSend us a textSupport the show

Send comments and feedbackClosing the epilepsy treatment gap relies heavily on social and cultural acceptance of epilepsy as a brain disorder that can be managed with medication or other therapies. Dr. Rugare Mugumbate discusses the five disadvantages faced by people with epilepsy, as well as the important role of social workers and the need to focus on lessons learned from previous pilot projects and awareness campaigns.Dr. Mugumbate's book - Epilepsy in Resource Limited Settings: Managing Quality of Life - provides a thorough examination of the impact and understanding of epilepsy in resource-limited areas.Aimed at a wide variety of health practitioners and stuents, The book is available in multiple formats. Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice.Let us know how we're doing: podcast@ilae.org.The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, Instagram, and LinkedIn.

Refractory epilepsy in veterinary medicine refers to a condition in which an animal with epilepsy fails to attain satisfactory seizure control or suffers intolerable side effects despite appropriate therapy with conventional anti-seizure drugs. Refractory epilepsy is an important problem in small animal practice as it occurs in approximately one-third of dogs with epilepsy. In this session, we discuss the reasons underlying this challenging situation in an individual patient and how this knowledge can help us develop improved therapeutic strategies.

Hidden Horns

Epilepsy is the fourth most common neurological disorder, with 1 in 26 Americans experiencing some form of in their lifetimes. Christopher Jones has the condition, and one hell of a survival story.Become a supporter of this podcast: https://www.spreaker.com/podcast/true-stories-with-seth-andrews--5621867/support.

Join Jay Gunkelman, QEEGD (the man who has analyzed over 500,000 brain scans), Dr. Mari Swingle (author of i-Minds and developer of Swingle Sonic Apps), and host Pete Jansons for another engaging NeuroNoodle Neurofeedback Podcast episode discussing neuroscience, psychology, mental health, and brain training.✅ Topic 1 Explained: Concussion risk and gender differences in sports—why female athletes face higher risks and what adaptations can help.✅ Topic 2 Deep Dive: 40 Hz Gamma (“Neureka”) training—benefits, risks, and what persistent gamma can signal in epilepsy, lesions, and movement disorders.✅ Topic 3 Insights: Mislearning vs. true learning disabilities—how EEG markers reveal critical distinctions and improve outcomes.✅ Additional Topics:

In this episode we speak with three runners from Team Abbott — a community of runners who have faced serious health challenges but didn't let those challenges define them! [powerpress] About Our Guests Elizabeth Pehota (Boston, MA): Three days out from running the 2022 Berlin Marathon, Elizabeth Pehota experienced a feeling of pins and needles in her hands, feet and thighs, and an unnatural resistance while running. Soon after, she was diagnosed with Multiple Sclerosis (MS), a chronic, unpredictable disease of the central nervous system. As someone who shares her daily life on social media, Elizabeth, @healthy_cheers on Instagram, only recently opened up about her diagnosis, but has already formed relationships with other MS patients around the world. Elizabeth is an Abbott World Marathon Major Six Star Finisher and received her seventh star in Sydney. Ed Barnes (Douglas, MA): Ed was born with a congenital heart condition and at age 15 he started to experience frequent dizziness - to the point of nearly passing out - leading him to undergo open heart surgery to receive an Abbott artificial aortic heart valve. This year, after completing the Boston Marathon, Ed became the first person with an artificial heart valve to finish all seven Abbott World Marathon Majors.   Mary Tawney Suarez (Fullerton, CA): Just before the pandemic, Mary started experiencing seizures and was diagnosed with Epilepsy and a brain cyst. One year later, she started experiencing back pain and numbness in her legs, which was revealed to be the degeneration of the cerebral and lower part of her spine. Despite these obstacles, Mary has continued running, and just finished the Berlin Marathon. [box] Links Mentioned in This Episode Run Coaching. Work with an expert MTA running Coach. MetPro.co -For the first time ever, MetPro is offering MTA listeners a full 30-day experience for just $95 with absolutely no strings attached! See what it's like working with your own metabolic coach. Limited to the first 30 people. AG1 Next Gen has new flavors: new flavors: Citrus, Tropical, and Berry. Get a free Welcome Kit with your first order which includes 5 AG1 Travel Packs, a shaker bottle, metal canister, and a bottle of AG Vitamin D3+K2. The Virginia Credit Union River City Half -March 7 in Richmond, Virginia. Drury Hotels -Get 10% off your stay with our link or use the code RN2025. Team Abbott -a community of runners, many of whom have overcome health challenges, who are committed to inspiring others through their running journeys. To submit your story for a chance to join Team Abbott, visit abbott.com/marathons. [/box]

In this episode, editor in chief Joseph E. Safdieh, MD, FAAN, highlights articles about pegivirus's potential role in Parkinson's disease pathology, the impact of GLP-1 receptor agonistst on idiopathic intracranial hypertension, and the geographic spread of epilepsy specialists.

Do you feel like a dummy sometimes? Are you someone living with epilepsy, caregiving for someone with epilepsy, or want to know what to do in case you have to administer aid to someone having a seizure? Are you a teacher, coach, family member or friend of somebody who has epilepsy and you feel uninformed about epilepsy and wish there was a comprehensive guide for... well.. dummies? FINALLY, the book that everybody needs has arrived! From Wiley, the makers of the "For Dummies" series of books, comes a new installment:  Epilepsy for Dummies! Your complete guide to understanding all aspects of the epilepsy journey. Greg sits down with the authors of this book - Dr. Elizabeth Thiel, a neurologist and epileptologist, and Lauren Aguirre, an author, journalist, epilepsy patient and caregiver to her children that also have epilepsy - for a very special TWO PART series that dives into the book and the process of writing it. In part one, they discuss the inspiration for writing it, the rapidly-expanding knowledge of epilepsy and potential genetic causes of seizures, wearable technology and the future of epilepsy treatment, qualities of a doctor that patients value, and so much more! There is so much expertise between these two authors, you NEED this book and this podcast! Pre-order Epilepsy for Dummies now, or own it immediately in digital format! Talk About It with Greg Grunberg is excited to be sponsored by Neurelis and by Jazz Pharmaceuticals.

Nick is STILL in control and Grunny isn't liking it! On this episode of Talk About It, we conclude this short two-part series in which Nick asks Greg questions that have come in over time from caregivers, people living with epilepsy, and even questions that Nick has for Greg. If you missed part one, we encourage you to go back and hear Greg speak candidly about his family's experience on the journey with Jake and reminding you that you are not alone and there is support for you. This episode gets more practical - discussing Jake's routines that he has established to minimize the potential for a seizure, how to talk to medical professionals when you have appointments, how to research treatements, and what is in store for the future of Talk About It! Get your notebooks out and be ready for all the invaluable information that you are about to hear! Talk About It with Greg Grunberg is excited to be sponsored by Neurelis and by Jazz Pharmaceuticals.  

My guest is Dr. Sergiu Pașca, MD, professor of psychiatry and behavioral sciences at Stanford University. We discuss the biology and genetics of autism, why autism diagnoses are increasing and recent progress in using stem cells to understand and treat profound autism and other brain disorders. Dr. Pașca explains “organoids and assembloids”—human stem cell–derived tools he pioneered to study, treat and cure complex brain diseases. We also discuss ethical and safety issues with using gene editing and stem cells in humans. Read the episode show notes at hubermanlab.com. Thank you to our sponsors AG1: https://drinkag1.com/huberman David: https://davidprotein.com/huberman Helix: https://helixsleep.com/huberman BetterHelp: https://betterhelp.com/huberman Function: https://functionhealth.com/huberman Timestamps (00:00) Sergiu Pașca (02:08) Autism Spectrum Disorder, Incidence, Genetics (07:16) Is Autism More Common in Males? (09:35) Sponsors: David & Helix Sleep (11:56) Eye Contact in Babies, Fever; Proposed Causes of Autism; Genes (18:48) Genetic or Idiopathic Autism Diagnoses, Timothy Syndrome (21:37) Rise in Autism Diagnoses (26:46) Cause, Correlation & Neurological Disease; Schizophrenia, Do Vaccines Cause Autism? (31:34) Global Increase in Autism; Gene Therapy, CRISPR, Follistatin (41:05) Sponsors: AG1 & BetterHelp (43:41) Stem Cells, Ethics, Yamanaka Factors, Human Stem Cell Models (52:03) Umbilical Stem Cells; Stem Cell Injections & Dangers, Autistic Kids (59:30) Organoids, Modeling Brain Development, Intrinsic Development Timer (1:12:22) Assembloids, Brain Cell Migration & Circuit Formation, Self-Organization (1:21:22) Four-Part Assembloid, Sensory Assembloid, Pain Conditions (1:25:45) Sponsor: Function (1:27:33) Future Medical Therapies, Cell Banking, Immortalize Tissues, Rejuvenate Cells (1:34:56) Assembloids & Ethics, Importance of Nomenclature, Science Collaboration & Self-Correction (1:45:38) Cell Transplantation & Ethics, Timing (1:55:05) Genetic Testing for Parents, Genetic Penetrance (2:02:36) Assembloids, Timothy Syndrome, Epilepsy, Schizophrenia, Dystonia (2:14:30) Scientific Career, Walking, Art, Medical School (2:20:44) Zero-Cost Support, YouTube, Spotify & Apple Follow & Reviews, Sponsors, YouTube Feedback, Protocols Book, Social Media, Neural Network Newsletter Disclaimer & Disclosures Learn more about your ad choices. Visit megaphone.fm/adchoices