Podcasts about Epilepsy

A young inventor has taken home the top honours at the James Dyson Awards for a pair of glasses made to tackle epilepsy. University of Canterbury engineering student Mark Campbell has developed ‘Lensare', which uses smart LCD lenses that detect harmful light patterns and instantly darken, providing protection for people with epilepsy and photophobia. Campbell told Mike Hosking it's still in the early stages of development, but the aim is to make it as bulletproof as possible. He says the next steps are to make the prototype as robust and unobtrusive as possible, but after that there's the potential to commercialise it. LISTEN ABOVE See omnystudio.com/listener for privacy information.

This month, as the eLife Podcast hits its century, we hear how getting frog dads to cross-foster tadpoles has revealed the way in which some frogs come by their microbiomes, the ants that do gene therapy, signs that disease causes a breakdown in nutrient exchange between the elements of the microbiome, how fungi reprogram immune cells to cause over-reactions in sepsis, and new insights into how tapeworm larvae in the brain cause seizures... Get the references and the transcripts for this programme from the Naked Scientists website

Send comments and feedbackIn a retrospective study of 31 patients with highly refractory epilepsy, 29% had more than a 50% reduction in seizures for at least 12 months after being treated with immunotherapy. Three of these patients became seizure free. Other than a trend toward a diagnosis of focal epilepsy, researchers did not identify any specific features predictive of treatment response. Sharp Waves spoke with the first author about the study and its implications.The study was published in Epilepsia in April 2025. Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice.Let us know how we're doing: podcast@ilae.org.The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, Instagram, and LinkedIn.

In this episode, we dive into the world of epilepsy dyskinesia syndrome (EDS) with our guest, Dr. Darius Ebrahimi-Fakhari. Listen as he unpacks the findings from one of the largest multinational studies to date, involving over 600 patients across 25 countries. Read the article.

In this episode, Emily Kircher-Morris has a heartfelt conversation with Lake Bell, an award-winning actress, writer, and director, who opens up about her journey as a mother navigating her daughter Nova's epilepsy diagnosis. Emily and Lake talk about the challenges of living with neurodiversity, and discuss ways to turn them into victories. Lake shares the impact of seizures on Nova's identity, and she reflects on her own experiences with dyslexia. They talk about the importance of reframing neurodiversity, and the role of advocacy in destigmatizing conditions like epilepsy. TAKEAWAYS Finding the right epilepsy medication can be challenging. Epilepsy can positively impact and shape family dynamics. Unique strengths are created in challenging situations. Stigmas surrounding epilepsy are an ongoing challenge. Uniqueness is just a difference, not a weakness. Join us for our free event, Creating Neurodiversity-Affirming Schools, a learning and continuing education opportunity. The event is Tuesday, September 9th at 8pm Eastern/5pm Pacific. It will feature a presentation by Emily Kircher-Morris and Amanda Morin, and you'll hear from a panel of experts about the future of education. Register now! Lake Bell is an award-winning actress, writer, and director known for her work across film, television, and audio storytelling. She stars in HBO's upcoming series The Chair Company opposite Tim Robinson and recently received the Hollywood Critics Association Award for her directing work on the Emmy-nominated limited series Pam and Tommy. Bell is also the author and narrator of Inside Voice: My Obsession With How We Sound, an acclaimed audiobook produced by Malcolm Gladwell's Pushkin Media. Bell made her directorial debut with In a World…, which premiered at the 2013 Sundance Film Festival and earned the Waldo Salt Screenwriting Award along with widespread critical praise. Her second feature film, I Do... Until I Don't, showcased her talents as a writer, director, and lead actress. Her acting credits include roles in Mother Couch, No Escape, Man Up, It's Complicated, Home Again, and the Harley Quinn and Marvel's What If animated series. A graduate of The Rose Bruford College in London, Bell is also a dedicated advocate, serving on the board of Women in Film and as a global ambassador for Women for Women International, championing the voices of women survivors of war. BACKGROUND READING Instagram, Wikipedia, All About Brains: A Book About People The Neurodiversity Podcast is on Facebook, Instagram, BlueSky, and you're invited to join our Facebook Group.

It's a difficult week for P.J. as his family is faced with a medical emergency that had to cut this episode short. A quick but meaningful conversation transpires. Travis tells a tall tale that might just get you hooked. Great Law. Less Legal. Law Done Lite!

This episode is like no other.  In this episode of Talking Smack 415, Jamie the great and I sit down with Dawn Geller.  Dawn recently experienced every mother's worst nightmare, the sudden tragic death of her 20 year old son Dylan. This interview is raw, the pain cuts through your soul, and Dawn is beyond courageous to share her story.  We retrace the phone calls and the experience the day of Dylan's deathWe dive into grief and grief counseling We talk about the funeral and being supported by a village And we remember Dylan - the light he was in the world, how he lived with compassion, resilience, a deep commitment to helping others, and he always rooted for the underdog. He leaves behind his legacy and  continues to sprinkle his fairy dust ( as Jamie the Great says) through the Do it Like Dylan Non Profit .Do It Like Dylan was established by the siblings of Dylan Geller to honor his memory. Their mission is to advance Epilepsy research, provide scholarships for students pursuing degrees in Special Education, and advocate for critical Epilepsy safety legislation. Through these efforts, the family strives to continue Dylan's legacy of kindness, inclusion, and lasting impact.You can donate here or volunteer here . In addition through Dylan's organ donations he saved 150 lives that night. If you happen to be one of the lucky recipients of Dylan's organs please reach out.  The family would love to meet you.    It's a heartbreaking and uplifting episode, grab your tissues .May his memory be a blessing. זיכרונם לברכה / zikhronam livrakhaIf you or anyone you know has epilepsy please share this episode and make sure they are wearing a Level 1 Life Jacket in the water- it's life saving and will turn most unconscious wearers face-up in water. It's not epilepsy that kills you it's what you're doing when epilepsy strikes that kills you. Learn more about Do it Like Dylan on facebook & InstagramPS- SAVE THE DATE - The Do It Like Dylan 5k run/ family walk is Saturday, November 15th.  Location information to come.  Share this episode with your friends and family who love to laugh. Subscribe to Talking Smack 415 and leave us a rating and review so more peeps can find us for laughter and friendship to feed your soul!

Asst. Prof. Simona Balestrini, an adult and paediatric neurologist, shares her epilepsy research into the use of transcranial magnetic stimulation (TMS) as a tool for understanding genetic forms of epilepsy! She explains the methodology of TMS, its applications in clinical and research settings, and the importance of safety in its use for people with an epilepsy. The chat also explores future directions for TMS, including its potential as a treatment option!

The power to change lives and save lives: expert advice on how to recognize where action needs to be taken and what to do. Credit available for this activity expires: 9/2/26 Earn Credit / Learning Objectives & Disclosures: https://www.medscape.org/viewarticle/1002731?ecd=bdc_podcast_libsyn_mscpedu

Let us know what you think! Text us!In this inspiring episode of Security Halt!, host Deny Caballero sits down with Green Beret veteran and firefighter Zachary Garner to explore his extraordinary journey of resilience, faith, and personal growth. From the battlefield to the firehouse, Zach has faced life-altering challenges—including a battle with epilepsy and a near-fatal infection—that tested his strength and determination.Through it all, Zach found healing and purpose in endurance sports, community support, and faith. His story is a testament to perseverance, overcoming adversity, and the power of sharing personal struggles to inspire others. This conversation dives deep into mental health, brotherhood, and the courage it takes to keep moving forward—no matter the obstacle.

The September 2025 Recall replay highlights four previously released episodes focused on epilepsy. Dr. Halley Alexander begins the series with Dr. Juan Luis Alcala-Zermeno, discussing outcomes of epilepsy surgery in patients with tonic-clonic seizures. She then speaks with Dr. Samuel W. Terman about patients' perceived seizure risk, seizure risk tolerance, and approaches to risk counseling. In the third episode, Dr. Alexander is joined by Dr. Vineet Punia to explore factors influencing the decision to continue or discontinue anti-seizure medications at discharge for patients hospitalized with acute symptomatic seizures. The replay concludes with Dr. Katie Krulisky's conversation with Dr. Leah Blank on how outpatient follow-up impacts readmission rates in older adults with epilepsy or seizures Podcast links:  The Effect of Epilepsy Surgery on Tonic–Clonic Seizures  Patient Perspectives on Antiseizure Medication Discontinuation  Understanding Acute Symptomatic Seizures    Outpatient Follow-Up With 30-Day Readmission After Epilepsy or Seizure Discharge  Article links:  The Effect of Epilepsy Surgery on Tonic–Clonic Seizures Patient Perspectives on Antiseizure Medication Discontinuation  Antiseizure Medication Use and Outcomes After Suspected or Confirmed Acute Symptomatic Seizures Association of Outpatient Follow-Up With 30-Day Readmission After Epilepsy or Seizure Discharge in Medicare Beneficiaries Aged 65 and Older   Disclosures can be found at Neurology.org. 

Steven Carnuccio from the Epilepsy Foundation joins Pat to talk about this year's Walk for Epilepsy.See omnystudio.com/listener for privacy information.

In this episode of sMater, Professor Aileen McGonigal, from Mater's Epilepsy Unit, discusses the groundbreaking Australian Epilepsy Project—set to be the world's largest epilepsy study. Discover how cutting-edge imaging, genetics, and AI are transforming diagnosis and treatment, and why GPs and clinicians across Australia should tune in.To learn more about Mater, visit https://www.mater.org.au/

Nutritionist Leyla Muedin discusses the critical role of mitochondrial health throughout the lifespan, citing Dr. Jeffrey Bland's insights on mitochondria as a cornerstone of 21st-century health. The episode explores the benefits of ketosis and the ketogenic diet, particularly in supporting neurological health and conditions like epilepsy, Alzheimer's, and multiple sclerosis. Leyla highlights how ketogenic diets stimulate mitochondrial biogenesis and improve mitochondrial function while addressing potential contraindications for specific populations. The importance of a functional medicine approach and personalized interventions is emphasized for optimal health outcomes.

Take cover, everybody, Producer Nick has the reigns! Over the years, Talk About It has received so many questions from viewers ranging from how to deal with an epilepsy diagnosis, to what to do if you are a caregiver, to practical quesitons about establishing routines and how to prevent seizures. Every episode, we are all privileged to hear these incredible conversations from a range of guests and experts, but we have an expert sitting right there, every time: Greg! He has gone through what caregivers go through, he has dealt with medication and emerging treatments, he has become an expert on what to do when his son Jake has a seizure, and so has his family. In this special two-part AMA series of Talk About It, Greg will be in the guest seat answering questions in a real and candid way to provide a peek behind the curtain of his experiences and offer advice from one person in the community to another.  This is part one, and you don't want to miss it!  Talk About It with Greg Grunberg is excited to be sponsored by Neurelis and by Jazz Pharmaceuticals.

In this week's episode, Brain & Life Podcast hosts Dr. Daniel Correa and Dr. Katy Peters discuss some of their favorite articles in the most recent issue of Brain & Life Magazine. The dive into the effects of ultra-processed foods, helpful innovations like smartphone apps and specialized gyms, and the support sibling caregivers provide to their loved ones. If you would like to read these articles and more, check out the latest issue!   Brain & Life Articles Mentioned How Ultra-processed Foods Can Have a Negative Effect on Brain Health Smartphone Apps Can Help Manage Parkinson's, Migraines, Epilepsy, and More How Specialized Gyms Empower People with Neurologic Conditions Sibling Caregivers are Supporting Brothers and Sisters Through Chronic Conditions   Other Brain & Life Podcast Episodes on These Topics The Many Faces of Cerebral Palsy with Micah Fowler, Phoebe Rae Taylor, and Kelsey Cardona We Are Brave Together with Jessica Patay Cheryl Hile is Running Around the World with Multiple Sclerosis Exploring Longevity with Author Dan Buettner   We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? ·       Record a voicemail at 612-928-6206 ·       Email us at BLpodcast@brainandlife.org   Social Media:   Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

An epilepsy specialist neurologist develops an epilepsy! In this fascinating episode, we delve into the extraordinary journey of Dr. Jim Morrow, a retired consultant neurologist who ends up developing the disease himself! Jim shares his unique perspective on the challenges and ironies of navigating life with an epilepsy; from his initial diagnosis of Autoimmune Limbic Encephalitis due to a Voltage-Gated Potassium Channel Antibody, to the impact on his professional and personal life. Tune in also to learn about Jim's fun, fictional books (with a medical twist) - out now!

Hear about cutting-edge advances in regenerative medicine, from lab breakthroughs to patient impact. Catriona Jamieson, MD, PhD, introduces efforts at the Sanford Stem Cell Institute to develop therapies that enhance the body's ability to heal itself. Dan Kaufman, MD, PhD, shares progress in cancer immunotherapy using engineered natural killer cells derived from pluripotent stem cells. Karen Christman, PhD, explains how her team creates injectable hydrogels from pig heart tissue to support heart repair and regeneration after a heart attack. Tiffani Manolis highlights industry support for making cell and gene therapies more accessible. Patient advocate Justin Graves describes his life-changing experience receiving a stem cell-based therapy for epilepsy, underscoring the real-world promise of these innovations. Series: "Stem Cell Channel" [Health and Medicine] [Science] [Show ID: 40705]

Hear about cutting-edge advances in regenerative medicine, from lab breakthroughs to patient impact. Catriona Jamieson, MD, PhD, introduces efforts at the Sanford Stem Cell Institute to develop therapies that enhance the body's ability to heal itself. Dan Kaufman, MD, PhD, shares progress in cancer immunotherapy using engineered natural killer cells derived from pluripotent stem cells. Karen Christman, PhD, explains how her team creates injectable hydrogels from pig heart tissue to support heart repair and regeneration after a heart attack. Tiffani Manolis highlights industry support for making cell and gene therapies more accessible. Patient advocate Justin Graves describes his life-changing experience receiving a stem cell-based therapy for epilepsy, underscoring the real-world promise of these innovations. Series: "Stem Cell Channel" [Health and Medicine] [Science] [Show ID: 40705]

Hear about cutting-edge advances in regenerative medicine, from lab breakthroughs to patient impact. Catriona Jamieson, MD, PhD, introduces efforts at the Sanford Stem Cell Institute to develop therapies that enhance the body's ability to heal itself. Dan Kaufman, MD, PhD, shares progress in cancer immunotherapy using engineered natural killer cells derived from pluripotent stem cells. Karen Christman, PhD, explains how her team creates injectable hydrogels from pig heart tissue to support heart repair and regeneration after a heart attack. Tiffani Manolis highlights industry support for making cell and gene therapies more accessible. Patient advocate Justin Graves describes his life-changing experience receiving a stem cell-based therapy for epilepsy, underscoring the real-world promise of these innovations. Series: "Stem Cell Channel" [Health and Medicine] [Science] [Show ID: 40705]

Hear about cutting-edge advances in regenerative medicine, from lab breakthroughs to patient impact. Catriona Jamieson, MD, PhD, introduces efforts at the Sanford Stem Cell Institute to develop therapies that enhance the body's ability to heal itself. Dan Kaufman, MD, PhD, shares progress in cancer immunotherapy using engineered natural killer cells derived from pluripotent stem cells. Karen Christman, PhD, explains how her team creates injectable hydrogels from pig heart tissue to support heart repair and regeneration after a heart attack. Tiffani Manolis highlights industry support for making cell and gene therapies more accessible. Patient advocate Justin Graves describes his life-changing experience receiving a stem cell-based therapy for epilepsy, underscoring the real-world promise of these innovations. Series: "Stem Cell Channel" [Health and Medicine] [Science] [Show ID: 40705]

Hear about cutting-edge advances in regenerative medicine, from lab breakthroughs to patient impact. Catriona Jamieson, MD, PhD, introduces efforts at the Sanford Stem Cell Institute to develop therapies that enhance the body's ability to heal itself. Dan Kaufman, MD, PhD, shares progress in cancer immunotherapy using engineered natural killer cells derived from pluripotent stem cells. Karen Christman, PhD, explains how her team creates injectable hydrogels from pig heart tissue to support heart repair and regeneration after a heart attack. Tiffani Manolis highlights industry support for making cell and gene therapies more accessible. Patient advocate Justin Graves describes his life-changing experience receiving a stem cell-based therapy for epilepsy, underscoring the real-world promise of these innovations. Series: "Stem Cell Channel" [Health and Medicine] [Science] [Show ID: 40705]

Hear about cutting-edge advances in regenerative medicine, from lab breakthroughs to patient impact. Catriona Jamieson, MD, PhD, introduces efforts at the Sanford Stem Cell Institute to develop therapies that enhance the body's ability to heal itself. Dan Kaufman, MD, PhD, shares progress in cancer immunotherapy using engineered natural killer cells derived from pluripotent stem cells. Karen Christman, PhD, explains how her team creates injectable hydrogels from pig heart tissue to support heart repair and regeneration after a heart attack. Tiffani Manolis highlights industry support for making cell and gene therapies more accessible. Patient advocate Justin Graves describes his life-changing experience receiving a stem cell-based therapy for epilepsy, underscoring the real-world promise of these innovations. Series: "Stem Cell Channel" [Health and Medicine] [Science] [Show ID: 40705]

Hear about cutting-edge advances in regenerative medicine, from lab breakthroughs to patient impact. Catriona Jamieson, MD, PhD, introduces efforts at the Sanford Stem Cell Institute to develop therapies that enhance the body's ability to heal itself. Dan Kaufman, MD, PhD, shares progress in cancer immunotherapy using engineered natural killer cells derived from pluripotent stem cells. Karen Christman, PhD, explains how her team creates injectable hydrogels from pig heart tissue to support heart repair and regeneration after a heart attack. Tiffani Manolis highlights industry support for making cell and gene therapies more accessible. Patient advocate Justin Graves describes his life-changing experience receiving a stem cell-based therapy for epilepsy, underscoring the real-world promise of these innovations. Series: "Stem Cell Channel" [Health and Medicine] [Science] [Show ID: 40705]

Hear about cutting-edge advances in regenerative medicine, from lab breakthroughs to patient impact. Catriona Jamieson, MD, PhD, introduces efforts at the Sanford Stem Cell Institute to develop therapies that enhance the body's ability to heal itself. Dan Kaufman, MD, PhD, shares progress in cancer immunotherapy using engineered natural killer cells derived from pluripotent stem cells. Karen Christman, PhD, explains how her team creates injectable hydrogels from pig heart tissue to support heart repair and regeneration after a heart attack. Tiffani Manolis highlights industry support for making cell and gene therapies more accessible. Patient advocate Justin Graves describes his life-changing experience receiving a stem cell-based therapy for epilepsy, underscoring the real-world promise of these innovations. Series: "Stem Cell Channel" [Health and Medicine] [Science] [Show ID: 40705]

Hear about cutting-edge advances in regenerative medicine, from lab breakthroughs to patient impact. Catriona Jamieson, MD, PhD, introduces efforts at the Sanford Stem Cell Institute to develop therapies that enhance the body's ability to heal itself. Dan Kaufman, MD, PhD, shares progress in cancer immunotherapy using engineered natural killer cells derived from pluripotent stem cells. Karen Christman, PhD, explains how her team creates injectable hydrogels from pig heart tissue to support heart repair and regeneration after a heart attack. Tiffani Manolis highlights industry support for making cell and gene therapies more accessible. Patient advocate Justin Graves describes his life-changing experience receiving a stem cell-based therapy for epilepsy, underscoring the real-world promise of these innovations. Series: "Stem Cell Channel" [Health and Medicine] [Science] [Show ID: 40705]

Welcome to the NeurologyLive® Mind Moments® podcast. Tune in to hear leaders in neurology sound off on topics that impact your clinical practice. In this episode, "Navigating Transition: Supporting Young Adults With Epilepsy Into Adult Care," Danielle Andrade, MD, MSc, adult neurologist at the University of Toronto and co-chair of the ILAE Transition Task Force, discussed the critical process of moving pediatric patients with epilepsy into adult care. She highlighted findings from the task force's global survey on transition practices, revealing major differences across regions. Andrade also shared important considerations for students with epilepsy entering college, including lifestyle management and the “perfect storm” of seizure triggers like sleep deprivation, alcohol, and medication adherence. She spoke on the vital role of reproductive health discussions, the utility of readiness questionnaires, and the challenges of coordinating multi-specialty care. Finally, Andrade underscored the importance of clear communication between pediatric and adult neurologists, as well as the need for stronger guidelines and education worldwide. Looking for more Epilepsy discussion? Check out the NeurologyLive® Epilepsy clinical focus page. Episode Breakdown: 1:00 – Global survey findings on epilepsy transition of care 2:10 – Key considerations for students with epilepsy entering college 3:50 – Ensuring continuity of care during transition into adulthood 5:45 – Neurology News Minute 7:30 – Common challenges and strategies to overcome them 9:30 – Final thoughts on back-to-school care and global survey insights The stories featured in this week's Neurology News Minute, which will give you quick updates on the following developments in neurology, are further detailed here: Ianalumab Meets Primary End Points in Phase 3 NEPTUNUS Trials of Sjögren's Disease Praxis' Vormatrigine Shows Significant Ability to Reduce Seizure Incidence in Phase 2 RADIANT Study FDA Denies Approval for Friedreich Ataxia Agent Vatiquinone, Citing More Efficacy Needed Thanks for listening to the NeurologyLive® Mind Moments® podcast. To support the show, be sure to rate, review, and subscribe wherever you listen to podcasts. For more neurology news and expert-driven content, visit neurologylive.com.

In this episode of the Brain and Life podcast, Dr. Daniel Correa is joined by guest co-host Dr. Proleta Datta, assistant professor and epileptologist at Oregon Health & Science University who specializes in hard‑to‑treat seizures and improving access to epilepsy care. They delve into the complex relationship between epilepsy and driving safety, discussing the latest guidelines and recommendations while highlighting the importance of personalized care for all people living with epilepsy. Tune in to learn about the legal and practical aspects of driving with epilepsy, and discover resources available to support independence and mobility for all.   Additional Resources New Position Statement: When People with Epilepsy Can Safely Drive Again Navigating Life with Epilepsy When Is It Time to Stop Driving Because of a Neurologic Condition?   Other Brain & Life Podcast Episodes on Similar Topics JenVon Cherry on Educating Communities of Color About Epilepsy Actor Cameron Boyce's Legacy and Raising Awareness About SUDEP Tiffany Kairos on Finding Her Voice in Epilepsy Advocacy   We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? Record a voicemail at 612-928-6206 Email us at BLpodcast@brainandlife.org Social Media Guests: Dr. Proleta Datta @oshunews  Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

Send us a textWelcome to Celebrate Creativity Episode 441 - Did Poe Have Epilepsy?As many of you know, I used to work at the Edgar Allan Poe Museum in Richmond Virginia - my favorite room in the entire museum, and one of my favorite places in the entire world, is the Virginia Poe room name for the mother of Edgar Allan Poe.  Now this building contains  an excellent collection of the writers works - original editions of everything from Hans Pfall - for obvious reasons, the museum takes stringent security measures - security concerns and actions which I don't even begin to understand - nor would I want to.  The reason that I am talking about this collection is that it was given to the museum by a Dr.  John Robertson - he not only had deep pockets, but was a neurologist - a brain doctor - and a genuine expert on the life and works of Edgar Allan Poe. He wrote a huge book about Poe's life - especially from from a neurological standpoint - and in the following episodes I would like to address some of his findings regarding America's Shakespeare - especially where Dr. John Robertson connected his medical expertise to his passion for Poe's works.  And a look at Dr. Robertson's findings are especially relevant when looking at any possible connection of Edgar Allan Poe and seizure disorders.As mentioned before, Dr. John W. Robertson's (1856-1934) was a neurologist and author who was a prominent Poe collector. His collection of Poe's works and memorabilia was substantial and is noted to have included original manuscripts and rare editions. He was a benefactor of the Poe Museum in Richmond and is also listed as having placed a plaque at a cemetery with the museum's founder, James H. Whitty. This deep interest in Poe's life and his writings went beyond simple collection; it fueled his professional endeavors.Support the showThank you for experiencing Celebrate Creativity.

The book, Racing Uphill: Confronting a Life with Epilepsy (U of Minnesota Press, 2025), is a memoir and an educational resource, which tells the story of an Emmy Award-winning TV news Journalist, Stacia Kalinoski. The author's aim is beyond giving an account of her experience of epilepsy, her goal is to sensitize readers and inspire epileptic patients and other people battling with ailments that carry social stigma, emphasizing the importance of taking control of one's health. In the book, Stacia Kalinoski recounts her experience of visual distortions and feelings of déjà vu and jamais vujamais vu, which are auras that often precede more severe seizures. She discusses the physical injuries and memory loss resulting from her condition, particularly from temporal lobe seizures. Stacia's narrative underscores the complexities of living with epilepsy and the potential for personal growth and empowerment through adversity. She highlights the effects of frequent episodes of seizure on maintenance of social relationships and the ability to reminisce about the past. Relating her experience, Stacia dwells on the importance of confronting the reality of living with epilepsy, she emphasizes the significance of understanding seizures to combat the stigma and fear surrounding the condition, and how surgery can improve memory loss and allow People Living with Epilepsy reconnect with their past.  Mariam Olugbodi is a university teacher and a writer, she is the author of the monograph titled Stylistic Features in the 2011 and 2012 Final Matches Commentaries in the UEFA Champions League, published by Grin Verlag. Mariam's greatest dream is seeing a world where knowledge is accessible to all. She does this through her volunteering roles on open knowledge platforms as a host and an editor. As part of her effort to maintain inclusion and diversity in knowledge transmission, she volunteers as a teacher in crises contexts. Learn more and connect with Mariam through her social links @ (22) Olugbodi Mariam | LinkedIn, Mariam Olugbodi (0000-0001-5027-6644) - ORCID and User:Margob28 - Meta Learn more about your ad choices. Visit megaphone.fm/adchoices Support our show by becoming a premium member! https://newbooksnetwork.supportingcast.fm/popular-culture

The book, Racing Uphill: Confronting a Life with Epilepsy (U of Minnesota Press, 2025), is a memoir and an educational resource, which tells the story of an Emmy Award-winning TV news Journalist, Stacia Kalinoski. The author's aim is beyond giving an account of her experience of epilepsy, her goal is to sensitize readers and inspire epileptic patients and other people battling with ailments that carry social stigma, emphasizing the importance of taking control of one's health. In the book, Stacia Kalinoski recounts her experience of visual distortions and feelings of déjà vu and jamais vujamais vu, which are auras that often precede more severe seizures. She discusses the physical injuries and memory loss resulting from her condition, particularly from temporal lobe seizures. Stacia's narrative underscores the complexities of living with epilepsy and the potential for personal growth and empowerment through adversity. She highlights the effects of frequent episodes of seizure on maintenance of social relationships and the ability to reminisce about the past. Relating her experience, Stacia dwells on the importance of confronting the reality of living with epilepsy, she emphasizes the significance of understanding seizures to combat the stigma and fear surrounding the condition, and how surgery can improve memory loss and allow People Living with Epilepsy reconnect with their past.  Mariam Olugbodi is a university teacher and a writer, she is the author of the monograph titled Stylistic Features in the 2011 and 2012 Final Matches Commentaries in the UEFA Champions League, published by Grin Verlag. Mariam's greatest dream is seeing a world where knowledge is accessible to all. She does this through her volunteering roles on open knowledge platforms as a host and an editor. As part of her effort to maintain inclusion and diversity in knowledge transmission, she volunteers as a teacher in crises contexts. Learn more and connect with Mariam through her social links @ (22) Olugbodi Mariam | LinkedIn, Mariam Olugbodi (0000-0001-5027-6644) - ORCID and User:Margob28 - Meta Learn more about your ad choices. Visit megaphone.fm/adchoices Support our show by becoming a premium member! https://newbooksnetwork.supportingcast.fm/new-books-network

The book, Racing Uphill: Confronting a Life with Epilepsy (U of Minnesota Press, 2025), is a memoir and an educational resource, which tells the story of an Emmy Award-winning TV news Journalist, Stacia Kalinoski. The author's aim is beyond giving an account of her experience of epilepsy, her goal is to sensitize readers and inspire epileptic patients and other people battling with ailments that carry social stigma, emphasizing the importance of taking control of one's health. In the book, Stacia Kalinoski recounts her experience of visual distortions and feelings of déjà vu and jamais vujamais vu, which are auras that often precede more severe seizures. She discusses the physical injuries and memory loss resulting from her condition, particularly from temporal lobe seizures. Stacia's narrative underscores the complexities of living with epilepsy and the potential for personal growth and empowerment through adversity. She highlights the effects of frequent episodes of seizure on maintenance of social relationships and the ability to reminisce about the past. Relating her experience, Stacia dwells on the importance of confronting the reality of living with epilepsy, she emphasizes the significance of understanding seizures to combat the stigma and fear surrounding the condition, and how surgery can improve memory loss and allow People Living with Epilepsy reconnect with their past.  Mariam Olugbodi is a university teacher and a writer, she is the author of the monograph titled Stylistic Features in the 2011 and 2012 Final Matches Commentaries in the UEFA Champions League, published by Grin Verlag. Mariam's greatest dream is seeing a world where knowledge is accessible to all. She does this through her volunteering roles on open knowledge platforms as a host and an editor. As part of her effort to maintain inclusion and diversity in knowledge transmission, she volunteers as a teacher in crises contexts. Learn more and connect with Mariam through her social links @ (22) Olugbodi Mariam | LinkedIn, Mariam Olugbodi (0000-0001-5027-6644) - ORCID and User:Margob28 - Meta Learn more about your ad choices. Visit megaphone.fm/adchoices Support our show by becoming a premium member! https://newbooksnetwork.supportingcast.fm/medicine

The book, Racing Uphill: Confronting a Life with Epilepsy (U of Minnesota Press, 2025), is a memoir and an educational resource, which tells the story of an Emmy Award-winning TV news Journalist, Stacia Kalinoski. The author's aim is beyond giving an account of her experience of epilepsy, her goal is to sensitize readers and inspire epileptic patients and other people battling with ailments that carry social stigma, emphasizing the importance of taking control of one's health. In the book, Stacia Kalinoski recounts her experience of visual distortions and feelings of déjà vu and jamais vujamais vu, which are auras that often precede more severe seizures. She discusses the physical injuries and memory loss resulting from her condition, particularly from temporal lobe seizures. Stacia's narrative underscores the complexities of living with epilepsy and the potential for personal growth and empowerment through adversity. She highlights the effects of frequent episodes of seizure on maintenance of social relationships and the ability to reminisce about the past. Relating her experience, Stacia dwells on the importance of confronting the reality of living with epilepsy, she emphasizes the significance of understanding seizures to combat the stigma and fear surrounding the condition, and how surgery can improve memory loss and allow People Living with Epilepsy reconnect with their past.  Mariam Olugbodi is a university teacher and a writer, she is the author of the monograph titled Stylistic Features in the 2011 and 2012 Final Matches Commentaries in the UEFA Champions League, published by Grin Verlag. Mariam's greatest dream is seeing a world where knowledge is accessible to all. She does this through her volunteering roles on open knowledge platforms as a host and an editor. As part of her effort to maintain inclusion and diversity in knowledge transmission, she volunteers as a teacher in crises contexts. Learn more and connect with Mariam through her social links @ (22) Olugbodi Mariam | LinkedIn, Mariam Olugbodi (0000-0001-5027-6644) - ORCID and User:Margob28 - Meta Learn more about your ad choices. Visit megaphone.fm/adchoices Support our show by becoming a premium member! https://newbooksnetwork.supportingcast.fm/biography

The book, Racing Uphill: Confronting a Life with Epilepsy (U of Minnesota Press, 2025), is a memoir and an educational resource, which tells the story of an Emmy Award-winning TV news Journalist, Stacia Kalinoski. The author's aim is beyond giving an account of her experience of epilepsy, her goal is to sensitize readers and inspire epileptic patients and other people battling with ailments that carry social stigma, emphasizing the importance of taking control of one's health. In the book, Stacia Kalinoski recounts her experience of visual distortions and feelings of déjà vu and jamais vujamais vu, which are auras that often precede more severe seizures. She discusses the physical injuries and memory loss resulting from her condition, particularly from temporal lobe seizures. Stacia's narrative underscores the complexities of living with epilepsy and the potential for personal growth and empowerment through adversity. She highlights the effects of frequent episodes of seizure on maintenance of social relationships and the ability to reminisce about the past. Relating her experience, Stacia dwells on the importance of confronting the reality of living with epilepsy, she emphasizes the significance of understanding seizures to combat the stigma and fear surrounding the condition, and how surgery can improve memory loss and allow People Living with Epilepsy reconnect with their past.  Mariam Olugbodi is a university teacher and a writer, she is the author of the monograph titled Stylistic Features in the 2011 and 2012 Final Matches Commentaries in the UEFA Champions League, published by Grin Verlag. Mariam's greatest dream is seeing a world where knowledge is accessible to all. She does this through her volunteering roles on open knowledge platforms as a host and an editor. As part of her effort to maintain inclusion and diversity in knowledge transmission, she volunteers as a teacher in crises contexts. Learn more and connect with Mariam through her social links @ (22) Olugbodi Mariam | LinkedIn, Mariam Olugbodi (0000-0001-5027-6644) - ORCID and User:Margob28 - Meta Learn more about your ad choices. Visit megaphone.fm/adchoices

The book, Racing Uphill: Confronting a Life with Epilepsy (U of Minnesota Press, 2025), is a memoir and an educational resource, which tells the story of an Emmy Award-winning TV news Journalist, Stacia Kalinoski. The author's aim is beyond giving an account of her experience of epilepsy, her goal is to sensitize readers and inspire epileptic patients and other people battling with ailments that carry social stigma, emphasizing the importance of taking control of one's health. In the book, Stacia Kalinoski recounts her experience of visual distortions and feelings of déjà vu and jamais vujamais vu, which are auras that often precede more severe seizures. She discusses the physical injuries and memory loss resulting from her condition, particularly from temporal lobe seizures. Stacia's narrative underscores the complexities of living with epilepsy and the potential for personal growth and empowerment through adversity. She highlights the effects of frequent episodes of seizure on maintenance of social relationships and the ability to reminisce about the past. Relating her experience, Stacia dwells on the importance of confronting the reality of living with epilepsy, she emphasizes the significance of understanding seizures to combat the stigma and fear surrounding the condition, and how surgery can improve memory loss and allow People Living with Epilepsy reconnect with their past.  Mariam Olugbodi is a university teacher and a writer, she is the author of the monograph titled Stylistic Features in the 2011 and 2012 Final Matches Commentaries in the UEFA Champions League, published by Grin Verlag. Mariam's greatest dream is seeing a world where knowledge is accessible to all. She does this through her volunteering roles on open knowledge platforms as a host and an editor. As part of her effort to maintain inclusion and diversity in knowledge transmission, she volunteers as a teacher in crises contexts. Learn more and connect with Mariam through her social links @ (22) Olugbodi Mariam | LinkedIn, Mariam Olugbodi (0000-0001-5027-6644) - ORCID and User:Margob28 - Meta Learn more about your ad choices. Visit megaphone.fm/adchoices

Tony (11, M) Story.  Now we sleep with the alarm on every night.   Elopement:  involves leaving a safe or supervised area without permission. poses a risk to the individual's safety. can occur in various settings. is a common behavior in individuals with ASD. Virginie (10, M) Stories and Service Dog.   Single Mom (9, M) heading to the judge and calls me asking for papers.  Here you go…   Let's note that Elopement was masked behind broader buckets and I think this is a miss.  We need to name and discuss this very challenging behavior.   FB Survey.  4 hours.  100+ votes, 100 comments.   https://www.facebook.com/groups/syngap/posts/1734514154096968/ 76% of respondents eloped (35% F, 41% M) 24% didn't (17% F, 7% M)   11 F, no elopement at home - but sometimes tries to elope while at school. C ( has always been an eloper - kid has a sixth sense for when someone leaves the door unlocked C elopes and age 16 years old H 9 girl constantly running away B-7.5 years old Girl - 3 Fourteen. She doesn't anymore, but used to. Not to the degree that other families struggle, but we definitely had to keep an extra close eye/ear. Had bells on all our doors, etc. Did get a call from our neighbor once while I was making dinner saying that S had just walked into her house, that she was safe, and was helping to give their baby a bath. Thankfully they were very good friends and took it in stride. (S was about four at the time.) Boys age 7. He has for awhile Boy, age 8.5. Just started eloping more so recently, in the last year. 11, girl Boy age 15 13 year old girl Girl-3 Ty 10 elopes since he can walk. It's our biggest problem. Boy age 8 but has been doing it for a while Age 7, girl. Boy - 14y/o Boy age 9… he's a track star! Boy age 12, has eloped since he could walk/run. It probably peaked around age 6 and got better with meds. Elopement is less frequent now but scarier now that he's older and higher. Boy 10. Always has wandered and will still now run off knowing he's not suppose to Any chance he gets 13 My boy (22 y/o) always was and is now a master of escape, he can hear if I turn the key in the door, front door has an alarm fitted just in case Boy , 25 the risk is high because he looks typical 25 yo female, requiring alarms, cameras,and specialized door locks.  In a state that says that these measures are unlawful restraint and invasion of privacy   Frazier, 2025. Extremely High finding as a Symptom of SYNGAP1.  See Table 2 of Quantifying neurobehavioral profiles across neurodevelopmental genetic syndromes and idiopathic neurodevelopmental disorders https://onlinelibrary.wiley.com/doi/10.1111/dmcn.16112   McKee, 2025.  Notes the significantly heightened enrichment of Autistic Behavior and Behavioral Abnormality vs. Rett, Angelman or Epilepsy cohorts.  See Figure 2B of Clinical signatures of SYNGAP1-related disorders through data integration. https://www.gimjournal.org/article/S1098-3600(25)00066-8/abstract   Cunnanne, notes impulsivity (which is a euphemism for elopement if I have ever heard one) and has three quotes in Table 1 (see below), but also notes in Figure 2 that both ASD and lack of danger awareness came up in almost every interview.  See SYNGAP1-Related Intellectual Disability: Meaningful Clinical Outcomes and Development of a Disease Concept Model Draft.  https://papers.ssrn.com/sol3/papers.cfm?abstract_id=5098346   Impulsivity quotes:   Runs toward streets - “He wouldn't stop himself from running into the road. He climbs things in that house that you're like‘oh my god, how are you going to get out of that?'”   Jumps into pools - “He would walk into a pond. We were at the pool the other day…and he just walked off the edge and just fell into the water and was like… he would have just drowned.”   Runs toward crowds - “She was a bolter. So that was always scary. We had a few scares where you look away for a moment, I mean, we always had somebody with her, but it could be a moment's time and it's like where'd you go, you thought she was right there.”   FUNDRAISING 3 events in 3 states… https://mailchi.mp/curesyngap1.org/3-events-1-mission-support-syngap1-families-this-fall?e=e95ed9a1c4  Gala for SYNGAP1 August 22, 2025 - Farmingdale, NJ cureSYNGAP1.org/Gala5 Beacon of Hope September 12, 2025 - Boston, MA cureSYNGAP1.org/Beacon25 Scramble for SYNGAP October 4, 2025 - Greer, SC cureSYNGAP1.org/Scramble   Also, Conference is in 107 Days https://curesyngap1.org/events/conferences/cure-syngap1-conference-2025-hosted-by-srf/   STUDIES - MATTER https://docs.google.com/presentation/d/1yRPHMRY3pXPgbOacDM9Sr906VejdJWsonUWvqRD9VVI/edit?usp=sharing    Pubmed is at 37 (One a week!) https://pubmed.ncbi.nlm.nih.gov/?term=syngap1&filter=years.2025-2025&timeline=expanded&sort=date&sort_order=asc   SHARE BLOOD TO THE SRF BIOBANK AT CB! Read here for more information: https://curesyngap1.org/blog/fueling-research-syngap1-combinedbrain-biorepository-roadshow/    VOLUNTEER  Join us: https://curesyngap1.org/volunteer-with-srf/    SOCIAL MATTERS - 4,283 LinkedIn.  https://www.linkedin.com/company/curesyngap1/  - 1,420 YouTube.  https://www.youtube.com/@CureSYNGAP1    - 11,303 Twitter https://twitter.com/cureSYNGAP1  - 46k Insta https://www.instagram.com/curesyngap1/    NEWLY DIAGNOSED? Next New Family Webinar - Tuesday Sept. 9th, 2025, 5 PM Pacific scheduled! https://curesyngap1.org/resources/webinars/webinar-105-syngap-research-fund-quarterly-webinar-new-syngap1-family-orientation/   Resources https://curesyngap1.org/syngap1-resources-for-newly-diagnosed-families   Podcasts, give all of these a five star review! https://cureSYNGAP1.org/SRFApple   https://podcasts.apple.com/us/channel/syngap1-podcasts-by-srf/id6464522917    Episode 178 of #Syngap10  #Advocate #PatientAdvocacy #UnmetNeed #SYNGAP1 #SynGAP #SynGAProMMiS

My guest is Dr. Sergiu Pașca, MD, professor of psychiatry and behavioral sciences at Stanford University. We discuss the biology and genetics of autism, why autism diagnoses are increasing and recent progress in using stem cells to understand and treat profound autism and other brain disorders. Dr. Pașca explains “organoids and assembloids”—human stem cell–derived tools he pioneered to study, treat and cure complex brain diseases. We also discuss ethical and safety issues with using gene editing and stem cells in humans. Read the episode show notes at hubermanlab.com. Thank you to our sponsors AG1: https://drinkag1.com/huberman David: https://davidprotein.com/huberman Helix: https://helixsleep.com/huberman BetterHelp: https://betterhelp.com/huberman Function: https://functionhealth.com/huberman Timestamps (00:00) Sergiu Pașca (02:08) Autism Spectrum Disorder, Incidence, Genetics (07:16) Is Autism More Common in Males? (09:35) Sponsors: David & Helix Sleep (11:56) Eye Contact in Babies, Fever; Proposed Causes of Autism; Genes (18:48) Genetic or Idiopathic Autism Diagnoses, Timothy Syndrome (21:37) Rise in Autism Diagnoses (26:46) Cause, Correlation & Neurological Disease; Schizophrenia, Do Vaccines Cause Autism? (31:34) Global Increase in Autism; Gene Therapy, CRISPR, Follistatin (41:05) Sponsors: AG1 & BetterHelp (43:41) Stem Cells, Ethics, Yamanaka Factors, Human Stem Cell Models (52:03) Umbilical Stem Cells; Stem Cell Injections & Dangers, Autistic Kids (59:30) Organoids, Modeling Brain Development, Intrinsic Development Timer (1:12:22) Assembloids, Brain Cell Migration & Circuit Formation, Self-Organization (1:21:22) Four-Part Assembloid, Sensory Assembloid, Pain Conditions (1:25:45) Sponsor: Function (1:27:33) Future Medical Therapies, Cell Banking, Immortalize Tissues, Rejuvenate Cells (1:34:56) Assembloids & Ethics, Importance of Nomenclature, Science Collaboration & Self-Correction (1:45:38) Cell Transplantation & Ethics, Timing (1:55:05) Genetic Testing for Parents, Genetic Penetrance (2:02:36) Assembloids, Timothy Syndrome, Epilepsy, Schizophrenia, Dystonia (2:14:30) Scientific Career, Walking, Art, Medical School (2:20:44) Zero-Cost Support, YouTube, Spotify & Apple Follow & Reviews, Sponsors, YouTube Feedback, Protocols Book, Social Media, Neural Network Newsletter Disclaimer & Disclosures Learn more about your ad choices. Visit megaphone.fm/adchoices

Send us a textWelcome to Celebrate Creativity - Episode 437 - Epilepsy and Famous WritersToday, Celebrate Creativity is beginning a new series, one that peels back the layers on a topic rarely discussed in   the hallowed halls of literature. We're going to talk about famous writers who lived with epilepsy.Now I did not just randomly choose the topic of creativity and epilepsy. You see, as some of you may know, my family and I went to Washington DC when I was in the eighth grade, and saw Bob Dylan.  The next day, I came back to my high school and had my first epileptic seizure while walking down the hall - I think I've said before, my dear mother always believed from that point on that Bob Dylan caused my seizure - his music may be powerful, but I doubt that it is that powerful.  Anyway I spent several weeks at the University of Virginia Hospital, and was prescribed Dilantin - a drug that controlled my seizures for the most part.  A few years later, the doctors changed my anticonvulsant medication to Depakote - a much newer drug that was ironically smuggled into the United States by a neurologist.  It had been used with great success in Europe, and since I started taking Depakote, I have not had any seizures.  No I don't wanna give anybody false hope and say that you might get the same results if you were in a similar situation, but I can say I know what it's like to go through years where I did not know if I would remain conscious or not - I didn't particularly view epilepsy as a gift.  So those experiences have led me to examine if creativity and epilepsy were related in various talented individuals from the past in this podcast. And to my surprise, there does seem to be some connection between creativity and epilepsy - this is still rather controversial.  I found many great individuals who suffered from epilepsy - far more than I could deal with in a few episodes - so initially I am confining my exploration of individuals with epilepsy to only writers with a seizure disorder- I hope to get into some other areas - such as artists and musicians - in the future - but in this series, I am going to try and concentrate on writers although I know I'm gonna wander off into other disciplines now and then.Support the showThank you for experiencing Celebrate Creativity.

Our guest this week is Chris Losacco of Evergreen, CO who is owner of Elemental Forge, a blacksmith & knife maker as well as the father of two young children, including a son with a very rare genetic disorder.  Chris and his wife, Evan, have married for nearly 10 years and are the proud parents of two young children: daughter Elliot (4) and son Wilder (3), who has a rare genetic disorder known as MEF2C, which commonly includes: intellectual disability and developmental delays, motor skill difficulties, limited or absent speech development, Epilepsy, and Autistic-like behavior. Chris is also owns Elemental Forge, a blacksmith and knife maker, is active with the MEF2C Family Foundation as well as the SFN Mastermind Group in Denver.We'll hear all about the insightful and authentic Losacco family story on this episode of the SFN Dad To Dad Podcast. Show Links -Phone – (847) 525-7332Email – christmastaco@duck.com Email #2 - Chris@ElementalForge.usWebiste - https://www.elementalforge.us/U.S. MEF2C Foundation - https://www.usmef2cfoundation.org/MEF2C Family Foundation – https://www.mef2cfamilyfoundation.org/  Special Fathers Network -SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 800+ SFN Mentor Fathers, who are raising kids with special needs, have said: "I wish there was something like this when we first received our child's diagnosis. I felt so isolated.  There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through."SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations.Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channel/UCzDFCvQimWNEb158ll6Q4cA/videosPlease support the SFN. Click here to donate: https://21stcenturydads.org/donate/Special Fathers Network: https://21stcenturydads.org/  SFN Mastermind Group - https://21stcenturydads.org/sfn-mastermind-group/

The Guru Returns! Welcome to the concluding episode of this two-part series with health and fitness trainer/ influencer Dylan Holvey. Dylan has a private practice in the Los Angeles area where he consults with clients about workout regiments and diet, but he has also built an impressive social media following that educates his followers about healthy living. In addition, he has a weekly podcast called The Holvey Hour that is available everywhere you get your podcasts, and you should definitely be listening to every episode. This episode gets deeper into the steps that we can all take to build habits and a lifestyle that makes positive changes. It's not about taking big swings or starting programs that are unsustainable, it's about doing one thing a day to improve your diet or exercise, and then building on that to create habits. As Dylan says, if it feels too daunting to be able to do for 30 years, then don't even bother trying it for 30 days. Move that mountain one stone at a time. They also discuss the social media swindlers that are just trying to promote their own products or diet pills, and how to identify those that you shouldn't be listening to. Follow Dylan on his instagram at @dylanholveyfitness, and be sure to download his podcast, “The Holvey Hour” Talk About It with Greg Grunberg is excited to be sponsored by Neurelis and by Jazz Pharmaceuticals.

Dr. Halley Alexander and Dr. Juan Luis Alcala-Zermeno discuss the outcomes of epilepsy surgery, specifically for patients with tonic-clonic seizures.  Show references:  https://onlinelibrary.wiley.com/doi/10.1111/epi.18243  https://onlinelibrary.wiley.com/doi/full/10.1111/epi.17452  https://directory.libsyn.com/episode/index/id/26286819 

Dr. Halley Alexander talks with Dr. Juan Luis Alcala-Zermeno about the outcomes of epilepsy surgery, specifically for patients with tonic-clonic seizures.  Read the related article in Epilepsia.  Read the additional related article in Epilepsia.  Listen to the previous podcast episode mentioned in this episode.  Disclosures can be found at Neurology.org.   

Turns out, the most dangerous thing on TV in the ‘90s wasn't violence—it was Pikachu. In December, 1997, nearly 700 kids in Japan were rushed to the hospital after watching a single episode of Pokémon. No, this isn't an urban legend—it actually happened, and it was electrifying (lol). This week, Jer walks the fellas headfirst into the wild, true story of the Pokémon seizure panic, how Pikachu literally short-circuited a nation, and why poor ol' Porygon got wrongfully canceled before being canceled was cool.We break down the science of photosensitive epilepsy, uncover how a cartoon nearly led to a nationwide media meltdown. Justice for Porygon. Blame Pikachu. You can watch this entire episode over on YouTube!Follow Sickboy on Instagram, TikTok and Discord

Wed July 30, 2025 Audience: Any family with a DEE who has a kid who has seizures, yes SYNGAP1 is a DEE and you are always my first audience.   See #S10e133 if you are curious about DEE vs other names. https://curesyngap1.org/podcasts/syngap10/what-is-this-syngap1-illness-disease-syndrome-ndd-dee-mrd5-nsid-actually-called-s10e133/   Action: If your kid has motor seizures, fill out the screener and join this amazing study. Link here: https://www.resiliencestudies.com/emerald   A motor seizure is a seizure where you can see something moving – including head drops, drops, convulsive, etc. – only excluded seizures are absence, myoclonia and infantile spasms.  You don't need to figure this out, just fill in the screener, let the doctors figure it out.   Questions: Come to live webinar tomorrow, it will not be recorded, so you have to come register here: https://curesyngap1.org/resources/webinars/webinar-111-introduction-to-praxiss-emerald-study-for-syngap1-patients/   TRIAL. Any DEE patient with 4 motor seizures a month, minimum. Age 2-65.  Adults are you listening? 24 weeks (6 months) weeks, placebo controlled but everyone will get drug at some point in the trial. 28 weeks (7 months) week OLE, with a chance for expanded access, so if it works, you can stay on. Fully decentralized, you don't have to go to a site if you don't want to. One US site open so far in Bethesda, there will be others.  Int'l sites in 2026.  US ENROLLING NOW. DRUG. Lots of science and big words in the links below, but here is what you need to know as a parent. It's a liquid, can go oral or in a g-tube. There is no ramp up, you put it in and it works.  In terms of speed, think Lorazepam not Lamotrigine. It's potent and specific, which means small volume.  Roughly 1ml for 10 kg.  This will be a rounding error in the face of a normal SynGAPian med regime. Even though this is a sodium channel drug, it should benefit all DEEs b/c, good to clarify tomorrow, all seizures end with a hyperactive sodium channel firing and that is what Relutragine focuses on.   PRAXIS. Serious people, lots of work on Epilepsy.  Connected to SYNGAP1 and DEEs, just need to move faster on SYNGAP1 ASO! CSO is Steve Petrou, works with SRF AUS and knows they are waiting. KD and AN started a company for SCN2A and it was absorbed by Praxis, they are still there and are relentless. Work on both small molecules and ASO, this is a way for them to see our team in action.   Cool links: AES 2024 Story. https://eppro01.ativ.me/web/page.php?page=session&project=AES24&id=2894147 Embold read out: https://www.neurologylive.com/view/relutrigine-shows-promise-phase-2-embold-study-scn2a-dee-scn8a-dee FDA Breakthrough. https://www.globenewswire.com/news-release/2025/07/17/3117145/0/en/Praxis-Precision-Medicines-Receives-FDA-Breakthrough-Therapy-Designation-for-Relutrigine-for-the-Treatment-of-Seizures-Associated-with-SCN2A-and-SCN8A-Developmental-and-Epileptic-E.html More links. https://delta.larvol.com/Products/?ProductId=05ccb036-a308-4249-abf6-e03b120839da   Why am I doing this? We need better meds and the way to meds is through trials. We need to jump at every trial, every time. 3. This one is decentralized, so minimum burden. If you get in now, this will be over before it's ASO trial time, so you could do both. Our Syngapians with motor seizures tend to be our most severe, we have to make sure we find out if this drug can help.  All our kids may progress to this point.   See you at the webinar, fill out the screener now: https://www.resiliencestudies.com/emerald

Turns out, the most dangerous thing on TV in the ‘90s wasn't violence—it was Pikachu. In December, 1997, nearly 700 kids in Japan were rushed to the hospital after watching a single episode of Pokémon. No, this isn't an urban legend—it actually happened, and it was electrifying (lol). This week, Jer walks the fellas headfirst into the wild, true story of the Pokémon seizure panic, how Pikachu literally short-circuited a nation, and why poor ol' Porygon got wrongfully canceled before being canceled was cool.We break down the science of photosensitive epilepsy, uncover how a cartoon nearly led to a nationwide media meltdown. Justice for Porygon. Blame Pikachu. You can watch this entire episode over on YouTube!Follow Sickboy on Instagram, TikTok and Discord

FORGIVE & FORGET: My Cousin Is Exploiting My Daughter's Seizure For TikTok Clout full 744 Fri, 25 Jul 2025 14:06:55 +0000 B2EDpTT9sz8A57fIUHHEtbQSHElLVjHV tiktok,epilepsy,seizure,forgive and forget,kramer and jess,tiktok clout,music,society & culture,news Kramer & Jess On Demand Podcast tiktok,epilepsy,seizure,forgive and forget,kramer and jess,tiktok clout,music,society & culture,news FORGIVE & FORGET: My Cousin Is Exploiting My Daughter's Seizure For TikTok Clout Highlights from the Kramer & Jess Show. 2024 © 2021 Audacy, Inc. Music Society & Culture News False https://play

Clement Manyathela chats to Dr Futhi Mahlase who is a paediatrician to better understand how epilepsy manifests in children and how parents can help their children handle it. The Clement Manyathela Show is broadcast on 702, a Johannesburg based talk radio station, weekdays from 09:00 to 12:00 (SA Time). Clement Manyathela starts his show each weekday on 702 at 9 am taking your calls and voice notes on his Open Line. In the second hour of his show, he unpacks, explains, and makes sense of the news of the day. Clement has several features in his third hour from 11 am that provide you with information to help and guide you through your daily life. As your morning friend, he tackles the serious as well as the light-hearted, on your behalf. Thank you for listening to a podcast from The Clement Manyathela Show. Listen live on Primedia+ weekdays from 09:00 and 12:00 (SA Time) to The Clement Manyathela Show broadcast on 702 https://buff.ly/gk3y0Kj For more from the show go to https://buff.ly/XijPLtJ or find all the catch-up podcasts here https://buff.ly/p0gWuPE Subscribe to the 702 Daily and Weekly Newsletters https://buff.ly/v5mfetc Follow us on social media: 702 on Facebook https://www.facebook.com/TalkRadio702 702 on TikTok https://www.tiktok.com/@talkradio702 702 on Instagram: https://www.instagram.com/talkradio702/ 702 on X: https://x.com/Radio702 702 on YouTube: https://www.youtube.com/@radio702 See omnystudio.com/listener for privacy information.

Send comments and feedbackIn use since the 1970s, valproate is highly effective for genetic generalized epilepsies and some forms of pediatric epilepsy. The medication also is associated with a 10% risk of birth defects in children exposed to it in utero, as well as a 30% to 40% risk of neurodevelopmental issues, including autism. Sharp Waves spoke with Dr. Tony Marson about the reproductive risks for women and men taking valproate, discussing UK policies meant to ensure appropriate prescription of valproate and communication about its risks. The recent policy regarding men who take valproate, and the evidence used to support that policy, is discussed near the end of the episode.Since the episode was recorded, the UK has changed its policy regarding men taking valproate; see this link for more information: February 2025 update on valproate policy in the UKUK Drug Safety Update page - June 2025February 2025 update on valproate policy in the UKRegulatory safety and educational materials on valproate - for health care professionals and patientsPublic assessment report: Managing reproductive risks in males under 55 taking valproate Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice.Let us know how we're doing: podcast@ilae.org.The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, Instagram, and LinkedIn.

In this compelling episode, we speak with Ameena Aimen, a Pakistani medical student, person living with juvenile myoclonic epilepsy, and the visionary founder of Brain Bridge—an initiative working to transform epilepsy awareness through education, empowerment, and community outreach.Ameena Aimen, a Pakistani medical student, person living with juvenile myoclonic epilepsy, and the visionary founder of Brain Bridge—an initiative working to transform epilepsy awareness through education, empowerment, and community outreach.Ameena's LinkedINwww.linkedin.com/in/ameena-aimen-284005302Arizona's first Brain Capital Conference is September 6th, 2025 in Phoenix/Avondale, AZ. Visit lyricsnleadership.org/bcc for more info. Sponsorship opportunities are available. Seats are limited. Register today!The Lyric's 'N Leadership Institute teaches leadership, brain health and NeuroSomatic Creativity® inspired by the work of iconic artists! Learn more about our Lyrics 'N Leadership Institute at lyricsnleadereship.org.Listen to more episodes on Mission Matters:https://missionmatters.com/author/genein-letford/

Epilepsy is a neurological condition that causes seizures, but throughout history, it was thought to be caused by demonic possession, angry gods and evil spirits. In this episode we discuss what Epilepsy is, and its medical and social history.