Hey everybody, my name is DJ Stewart and I'm 32 years old. I live in an RV with my wife and two dogs and travel the country for our local Non-Profit, Head for the Cure. I skateboard, ride motorcycles and all around like to have a good time. Oh yeah, and I'm also a Grade 4 Glioblastoma survivor. In 2019, a bunch of doctors gave me 11-13 months to live but I gave that prognosis the bird. Listen along while I travel the USA, searching for inspiring people to share their story to help others ignite hope and live an epic life like I try to. Â
The Rare Enough podcast has the power to touch and change lives across the country. From its genuine heart and passion for giving a true platform to people affected by HFTC (Head for the Cure) and the brain tumor community, this podcast has the potential to elevate this community to new levels. The show's dedication to truly meeting people where they're at and letting their voice be heard is commendable, as it assures those going through similar experiences that they are not alone. The impact of this podcast is truly remarkable, and it's wonderful to see such a dedicated team behind it.
One of the best aspects of The Rare Enough podcast is its ability to create a genuine connection with its audience. Through sharing personal experiences and inviting guests from the HFTC and brain tumor community, listeners can feel a sense of relatability and empathy. This connection helps break down barriers, creating an environment where individuals can openly share their stories without fear or judgment. The hosts' dedication to giving a voice to those who may not have had one otherwise is inspiring, bringing comfort, understanding, and support to listeners across the country.
Furthermore, The Rare Enough podcast stands out for its honesty in sharing personal experiences. By opening up about their own journey with brain surgery five years ago, the hosts create an atmosphere of authenticity that fosters trust between themselves and their audience. This vulnerability allows listeners to connect on a deeper level, knowing that they are not alone in their struggles. Such raw honesty has a profound impact on individuals facing similar challenges by providing them with hope and strength.
While it is difficult to find any significant negatives about The Rare Enough podcast, one minor aspect that could be improved upon is diversifying guest perspectives even further. While the show does an excellent job of featuring individuals from various backgrounds within the HFTC community, there might be room for more diversity in terms of representation across different age groups or types of brain tumors. Expanding the range of experiences shared on the podcast could further enrich the conversation and widen its reach.
In conclusion, The Rare Enough podcast is a remarkable show that has the power to change lives. With its genuine heart and passion for giving a platform to HFTC and the brain tumor community, it elevates this community by creating connections and letting voices be heard. The honesty in sharing personal experiences is both moving and inspiring, providing comfort to those facing similar challenges. The impact of this podcast is truly remarkable, and it's exciting to see such a dedicated team behind it. Keep up the great work!
Send us a textIn episode 26 of the Rare Enough podcast, Drew Houts joins us to share his journey as a caregiver to his wife, Julie, during her fight with glioblastoma. Through the challenges they faced together, Drew discovered the gaps in support for patients and caregivers and turned that insight into action. He then helped lead the creation of Join Your Path to Hope (JPH), a personalized tool offering guidance and support for others navigating a brain cancer diagnosis. You won't want to miss this heartfelt and empowering conversation.Support the showRare Enough is a podcast powered by Head for the Cure, sharing real stories of resilience, hope, and community from those facing brain tumors and the people who walk beside them. Subscribe, listen, and share, because every story matters, and no one should face brain cancer alone. Follow on Instagram @RareEnoughPodcast Learn more at BrainsfortheCure.org
Send us a textMay is Brain Tumor Awareness Month, and in this episode, we share the story of Erin Gaffney, an incredible Oligodendroglioma fighter who gets real about her journey, including undergoing an awake craniotomy, navigating the weight of survivor's guilt, and learning to give herself grace through it all. Listen along and be inspired by her strength and vulnerability.Support the show
Send us a textIn this episode we sit down with firefighter Zach Toole, who shares his heartfelt journey as a caregiver to his mother during her battle with glioblastoma. Though she has since passed, Zach continues to honor her legacy by fiercely advocating for brain cancer awareness. Tune in as he reflects on the challenges of caregiving, the strength he found in his role, and how he now carries her torch in everything he does.Support the show
Send us a textAs we recognize April as Occupational Therapy month, we welcome Ally Ponticello, a licensed Occupational Therapist and caregiver to her mom, who is battling glioblastoma. Ally shares invaluable insights into the world of occupational therapy, offering practical tips and simple strategies to make daily life easier—whether you're a patient, caregiver, or just looking to improve your routine. Tune in to learn how small adjustments can make a big impact!Support the show
Send us a textThis mini episode features Ray and Melissa Lambert—a couple with an extraordinary story. Both diagnosed with brain tumors, they've each taken on the dual role of patient and caregiver, supporting one another through surgeries, treatment, and recovery.Support the show
Send us a textThis month, we sit down with Aaron Closson, whose battle with brain cancer led him on an unexpected and meaningful path. After facing his own diagnosis, Aaron found a calling in helping others navigate the emotional and spiritual challenges that come with a life-changing illness. Now serving as a chaplain, he offers comfort, guidance, and hope to those on similar journeys.Support the show
Send us a textIn this mini episode, we're joined by Jo Singleton, Team Captain for the Charleston community, as she shares the story behind Team Kyla and her dedication to raising brain cancer awareness. Jo opens up about what fuels her passion for advocacy, the impact of community-driven efforts, and how Team Kyla continues to honor a legacy while inspiring others.Support the show
Send us a textIn this episode we welcome Dr. Na Tosha Gatson, Director of Neuro-Oncology & Professor of Neurology and Medicine at IU Health. A leader in the field, Dr. Gatson shares insights on advancements in neuro-oncology, the impact of brain tumors on women's health, addressing health disparities, and the importance of quality-of-life care. Support the show
Send us a textIn this episode of Rare Enough, Maggie Haynes, Director of Events at Head for the Cure, shares the secrets behind the "playbook" of organizing meaningful events that fuel hope, inspire action, and raise critical funds for brain cancer research. From 5Ks to special initiatives, Maggie discusses the passion, creativity, and strategy that turn each event into a powerful experience for the brain cancer community.Support the show
Send us a textIn this episode we interview Dr. Doug Burton, a renowned spine surgeon and Professor at the University of Kansas, who shares his transformative journey from physician to patient after his own brain cancer diagnosis. Dr. Burton reflects on how this experience reshaped his perspective on care and the patient-provider relationship.
Send us a textIn the final Rare Enough Podcast episode of the year, we sit down with Matt Anthony, founder of Head for the Cure, to reflect on the journey from the foundation's early days to where it stands today. Join us as we celebrate the incredible successes of the 2024 event season, discuss the milestones achieved, and look ahead to the future of the organization. This heartfelt conversation captures the essence of hope, progress, and the power of community.
Send us a textIn this episode, we have a heartfelt conversation with Luke Anderson, the son of Lori Stevens, who bravely fought but ultimately lost her battle with brain cancer. Luke shares his personal journey and the creation of the Lori Project, an initiative dedicated to bringing awareness and support for navigating end-of-life care. Join us as we learn how Luke's mission is making a difference for families facing similar challenges.
Send us a textIn this episode we introduce Brian and Emily Godawski- an inspiring duo who faced brain cancer with unwavering resilience. Brian, a brain cancer survivor, and Emily, his devoted caregiver, overcame immense challenges by embracing "faith over fear." Their shared story offers hope and inspiration, showcasing the power of love, strength, and unwavering belief in each other.
Send us a textIn honor of Childhood Brain Cancer Awareness Month, we introduce Kelly and Evie Fisher. Kelly and Evie share the poignant and inspiring story of Allie, Kelly's daughter and Evie's little sister, who bravely battled brain cancer. Through their journey, Kelly and Evie have shown remarkable strength and resilience, navigating their profound loss with courage. They continue to honor Allie's legacy by advocating for increased awareness and support for families affected by childhood brain cancer.
Send us a Text Message.Meet Simon Khagi, MD, Medical Director of Neuro-Oncology at Hoag Family Cancer Institute and a triple-board-certified oncologist. He specializes in primary brain, spine, lung, and advanced skin cancers and has extensive experience with glioblastoma, astrocytoma, oligodendroglioma, meningioma, ependymoma, medulloblastoma, brain metastases, and rare brain tumors.
Send us a Text Message.This is a special anniversary episode celebrating the first year of the Rare Enough Podcast! For our fourteenth episode, we introduce Michael and Vanessa Hugo! The Hugo's are a patient and caregiver dynamic duo that work day in and day out on advocating for others in the brain cancer community. Learn all about their journey with glioblastoma and how they have never given up.
Send us a Text Message.For this episode, we introduce Colin Gerner, the CEO and co-founder of StacheStrong, who is leading a dedicated fight against brain cancer. Under his leadership, StacheStrong has become a prominent force in raising awareness and funding for critical research, driven by a personal mission to transform lives and find a cure.
Send us a Text Message.For Brain Tumor Awareness Month, we are highlighting not just one but three incredible brain cancer survivors! Our latest survivor episode features three extraordinary individuals: Blake Burke (Oligodendroglioma), Molly Marco (Astrocytoma), and Josiah Mihok (Glioblastoma), each with different tumors and different treatments. Listen along as they share their journey with brain cancer.
Meet Frank Leonard, the President for Novocure Oncology. Frank leads the global business operations for a medical device company pioneering innovative treatment modalities for solid tumor cancers, including glioblastoma. Learn about Tumor Treating Fields and much more!
In our tenth episode, we introduce Laura Dill, full time caregiver to both of her parents who were diagnosed with the same incurable brain cancer only 14 days apart. Listen along to see how she triumphantly turned her tragedy around to not only help herself, but to also help others facing a similar experience.
Meet Zach Round, a survivor and thriver who triumphed over brain cancer. In recounting his story, Zach reveals how he faced adversity head-on, while never allowing obstacles to stop him from living his best life.“I have had to dig deep every day to keep moving forward and sharing my journey helps to let everyone know that you are not alone and that you have a purpose – show up for it.”-Zach
This episode, we introduce Shane Brown, President at GT Med Tech, who has devoted his career to combating brain cancer. Shane is driven by his profound commitment to the company's mission of enhancing the lives of individuals with brain tumors through the innovative solutions offered by GT Medical Technologies. Listen along to learn all about the impact and intricacies of the Gamma Tile.
Get to know Anthony Ferraro, a remarkable individual who defies expectations as a Blind pro athlete and inspirational speaker. Ferraro shares his journey of overcoming adversity and the unique challenges he has faced in his pursuit of success. Listen along to hear how he encourages others to break barriers and redefine what is possible.
Meet Michelle, a fellow caregiver in the brain cancer community. Michelle's story takes a unique turn—starting her career at the Ivy Brain Tumor Center just as her own mother is diagnosed with Glioblastoma (GBM). Hear about her experiences, challenges, and unwavering commitment to the fight against brain cancer.
Meet Dr. Puduvali, a renowned Neuro-Oncologist and a proud supporter of Head for the Cure. Discover his passion for understanding and addressing the complexities of brain tumors and making a significant impact in the field of neuro-oncology.
Meet Harry Campbell: a distinguished board member of Head for the Cure, renowned speaker and writer on leadership, culture, and mindset, and the loving husband of Kris Campbell, a brain cancer survivor.In this episode, we explore Harry's extraordinary journey, from his impactful work in the fight against brain cancer to his profound insights on leadership. Delve into his inspiring story and discover the transformative power of resilience and joy.
Anna was just twelve years old when she was diagnosed with a ganglioglioma (slow-growing brain tumor) the size of a golf ball. Listen along as her story unfolds where she talks about her countless struggles and how she coped with her diagnosis at such a young age.
Courtney Watson was a caregiver to her mom in her early 20's while she was battling Glioblastoma in 2016. After her mom's passing it led her to want to make a change and now she is Head for the Cure's Sr. Manager of Partnerships & Community Relations. Hear her story and how she managed it all.
Meet Erin Stewart, wife and caregiver to Host DJ Stewart as well as the Program's & Advocacy Coordinator for Head for the Cure. Get to know your host and listen along as they share their story with Brain Cancer.
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