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Navigating Chronic Illness and Advocacy with Kathryn Swaim In this episode of 'Pushing Forward with Alycia,' host Alycia Anderson welcomes guest Kathryn Swaim, a PhD student from North Carolina State University focusing on lifespan development psychology. Kathryn shares her personal journey with chronic migraines and her unexpected diagnosis of a benign brain tumor. They discuss the challenges of self-advocacy in the healthcare system, the impact of chronic illness on identity, and the importance of trust and resilience in navigating these experiences. Kathryn also highlights the intersectionality of identity in the context of healthcare and the power of having a supportive community. This episode release is in honor of May as Brain Tumor Awareness Month and offers invaluable insights into the lived experiences of those facing chronic illness and the critical need for self-advocacy. Key Points on the Clock 00:00 Introduction to Pushing Forward with Alycia 00:26 Meet Kathryn Swaim: A Journey Through Chronic Illness 01:32 The Diagnosis: Discovering a Brain Tumor 07:12 Navigating the Healthcare System 15:05 The Power of Self-Advocacy 17:29 Intersectionality in Healthcare 24:53 Finding Strength and Support 31:14 Conclusion and Final Thoughts A Quote from Kathryn “Your voice is the most powerful tool you can use in the healthcare system.” ~ Kathryn Swaim What Emerged from the Conversation
Send us a textMay is Brain Tumor Awareness Month, and in this episode, we share the story of Erin Gaffney, an incredible Oligodendroglioma fighter who gets real about her journey, including undergoing an awake craniotomy, navigating the weight of survivor's guilt, and learning to give herself grace through it all. Listen along and be inspired by her strength and vulnerability.Support the show
Season 4 of Glioblastoma aka GBM kicks off Brain Tumor Awareness Month with a closer look at CeGaT, a genetic diagnostics company based in Tübingen, Germany. Founded in 2009 by Dr. Saskia Biskup and Dirk Biskup, CeGaT focuses on identifying rare diseases and tumor-specific mutations through advanced sequencing technologies. In this episode, we speak with Dr. Biskup and Florian Battke, Head of Research & Development, about what genetic sequencing is, how it's used in the context of brain tumors, and what they see as the next frontier for diagnosing and treating diseases like glioblastoma. We discuss how long-read sequencing may offer greater accuracy in identifying genetic changes and what that could mean for patients navigating difficult diagnoses. This episode explores the broader role that genomics can play in brain cancer research and the questions still left to answer as science continues to evolve. To learn more about the work CeGaT is doing, visit them online at https://cegat.com/ This episode is intended for informational purposes only and does not constitute medical advice. Always consult a qualified healthcare provider for guidance specific to your health or treatment plan.
EVERYTHING YOU EVER WANTED TO KNOW ABOUT BRAIN TUMORS! We try to keep it simple here on YDF, but today it IS brain surgery! We are rounding out Brain Tumor Awareness Month! Building on our conversation last week with Alyx Porter, MD, re: how to know if you could have a tumor, this episode focuses on the other side of the conversation. Let's explore treatment! More specifically, answering the question, "I have a brain tumor, can you remove it?" Cue our UNBELIEVABLE guest, Neurosurgical Oncologist, Edjah Nduom, MD, FAANS! Dr. Nduom is the Daniel Louis Barrow Endowed Chair and Associate Professor in the Department of Neurosurgery at Emory University School of Medicine. He serves as Leader of the Brain Tumors Disease Group for Winship Cancer Institute. He has held numerous national and international roles in the neurosurgical and brain tumor community, including Founder and Diasporan Board Member for the Society for Neuro-Oncology Sub-Saharan Africa, Scientific Program Chair for the Congress of Neurological Surgeons Annual Meeting and Chair of the Board of Directors of the National Brain Tumor Society. He is also accomplished in basic, translational, and clinical research, developing new immune therapy treatments for malignant brain tumors. Dr. Nduom's clinical specialty is the surgical management of brain and spinal cord tumors. Topics covered in today's episode: What are common types of brain tumors and their treatment options? What kind of specialist should you see if you are diagnosed with a brain tumor? Should you get a second opinion? Which tumors should be surgically removed? Should people get routine brain or body scans to look for brain tumors? What are common surgical techniques for removing brain tumors? Are brain tumor surgeries done while the patient is awake? Does brain tumor DNA typing help to guide treatment? And much, much more! Thanks for tuning in, folks! Please sign up for our "PULSE CHECK" monthly newsletter! Signup is easy, right on our website page, and we PROMISE we will not spam you! We just want to send you cool articles, videos and thoughts :) For more episodes, limited edition merch, or to become a Friend of Your Doctor Friends (and more), follow this link! Find us at: Website: yourdoctorfriendspodcast.com Email: yourdoctorfriendspodcast@gmail.com Connect with us: @your_doctor_friends (IG) Send/DM us a voice memo/question and we might play it on the show! @yourdoctorfriendspodcast1013 (YouTube) @JeremyAllandMD (IG, FB, Twitter) @JuliaBrueneMD (IG) @HealthPodNet (IG)
It's Brain Tumor Awareness Month! Have you ever felt perhaps "too aware" - letting your imagination run amok and ponder if its reaaally just a headache, or maybe something a bit more serious? Most folks can relate. Sometimes we jump to "worst case scenario" when appraising our symptoms, as a defense mechanism. We want to feel prepared, feel like we are one step ahead, that we can control the situation. We also love that sweet release when we realize that it WAS just a headache after all. It can be an exhausting cycle. How do you know if you're one of the "worried well" or if there's really something there, especially when it comes to brain tumors?? Cue today's unbelievable guest, Alyx Porter, MD, FAAN! Dr. Porter is the Director of the NeuroOncology Section at Mayo Clinic in Arizona and is an Associate Professor of Neurology. Having been with Mayo for over two decades, she has worked diligently to provide care for patients with tumors and cancers involving the nervous system in addition to patients who have neurologic complications resulting from their systemic cancers. Her research interests are aimed at ensuring that patients with brain cancers have the best quality of life as possible. She is also co-author of the book, Navigating Life with a Brain Tumor, a resource for patients and families. She and her husband, Dr. Gregory Umphrey founded a national non-profit in 2019, ElevateMeD. To date, ElevateMeD has awarded over $1,000,000 in scholarships and support to medical students from underrepresented backgrounds. ElevateMeD is committed to elevating the field of medicine by providing financial support, mentorship and leadership training to future physicians from racial and ethnic backgrounds underrepresented in medicine. Sometimes it's a tumor. Sometimes it's not. Either way, be informed, be prepared, keep asking questions and listen to Your Doctor Friends :) Thanks for tuning in, folks! Please sign up for our "PULSE CHECK" monthly newsletter! Signup is easy, right on our website page, and we PROMISE we will not spam you! We just want to send you cool articles, videos and thoughts :) For more episodes, limited edition merch, or to become a Friend of Your Doctor Friends (and more), follow this link! Find us at: Website: yourdoctorfriendspodcast.com Email: yourdoctorfriendspodcast@gmail.com Connect with us: @your_doctor_friends (IG) Send/DM us a voice memo/question and we might play it on the show! @yourdoctorfriendspodcast1013 (YouTube) @JeremyAllandMD (IG, FB, Twitter) @JuliaBrueneMD (IG) @HealthPodNet (IG)
Well hello and thank you for listening today! It's been two years since my second craniotomy for a small recurrence of my brain tumor. I cannot believe that it's been two years already! I just wanted to share how I felt back then and how I'm feeling today while still going through my own treatments. I have to apologize for not getting everything I wanted to get done for Brain Tumor Awareness Month. Like I mention in the episode, I just don't have enough hours in the day after work and getting everything cleaned up and planted outside. I also have to manage with the fatigue as well.
Hello! This is just a short episode talking about Brain Tumor Awareness Month here in May 2023. I just started talking and just went with what I was feeling. Not exactly a structured episode but sometimes I like to just talk. And thank you for letting me talk. This is a show for all of us and it really acts as a bit of therapy for myself as well. Some days ARE difficult. But I am so lucky that I've got an outlet like this. I got some not-so-great news recently as we've lost another good soul far too soon. It's this awful situation where we meet under such unfortunate terms but I don't take any days or anything for granted. I know one day we will be able to beat this disease. Thank you all so much. Please never hesitate to reach out to me if you need anything. Chris
Lucia talks about Brain Tumor Awareness Month and talks with Riley about growing up with a brain tumor.
May is Brain Tumor Awareness Month. Discover fascinating information about the parts of the brain. Learn about some of the risk factors for brain tumors as well as the symptoms and signs to be aware of. Hear the preferred way to diagnose a brain tumor. Find out about the standard of care to treat a brain tumor. Your Guide Joy also shares really useful questions you may need to ask after getting a diagnosis. Finally, learn about online support conversations you can take part in. Support the show
Lisa is joined by Philanthropist/Model/Sports Illustrated Finalist and surviror Victoria Vesce is telling everyone who will listen. Ms. Vesce has a long history of advocacy and philanthropy with various organizations, but her advocacy took on new meaning when she became a cancer survivor at age 24. Today, Victoria is an advocate for the National Brain Tumor Society, an organization that helped her during her radiation treatments at Duke Cancer Institute.In 2017, Victoria was diagnosed with multiple Paraganglioma, a brain-skull tumor and a carotid body tumor that required surgery and pin-point radiation treatment. During her time at Duke University Hospital, she voluntarily participated in a study to help more patients overcome rare tumors.DiagnosisIn 2016 and 2017 while dancing in the NBA for the Charlotte Hornets, and studying for the LSAT, Victoria started losing her hearing and experiencing extreme headaches. She began experiencing symptoms like fainting, unexplained adrenalin rushes and dizziness. After a CAT scan and repeated visits to the doctor and ENT, she was diagnosed with a tumor.TreatmentVictoria was referred to Duke University Hospital, where they discovered another tumor (carotid artery) during an MRI. Surgery occurred 6 weeks later, and following that, Victoria underwent 30 rounds of experimental radiation treatment.RecoveryToday, Victoria is fully deaf in her right ear. She also suffers from tinnitus. At the same time, she enjoys a new perspective on life and has gratitude for the organizations and people who have helped her along the way."My motto in life now is that life is short. I have quit shaming myself or changing myself to please others. I own my life, imperfections and all. I want to help others to reach a point of good health, happiness and fulfillment - as I have," said Ms. Vesce. "Brain Tumor Awareness Month presents a chance to become educated about the issues that affect people with cancer diagnoses. It's also a chance to give to organizations that save lives."Ms. Vesce encourages others to donate to organizations like the National Brain Tumor Society. If you would like to interview her please let me know!For more information about how you can contribute to the National Brain Tumor Society, see their website, https://braintumor.orgAbout Victoria DeHart Vesce: now based in Miami, Florida, Victoria is a graduate of NC State University with a Bachelor of Arts in Media Communications and has obtained her Juris Doctorate from Charleston School of Law. She currently works with Berman Law Group in South Florida and continues to model and grow her social media platform. She is signed model with JL Model Management and Marilyn's Agency.In the past, Ms. Vesce has volunteered for and been a part of organizations such as Make-A-Wish, Toys for Tots, Relay for Life, Ronald McDonald House (Young Professional's Society) YMCA,
Brandon Huffman and Ryland Spencer are back talking football. May is Brain Tumor Awareness Month, so be sure to wear Gray in support. NFL Draft, who won, who lost, Browns and Seahawks. Scott Eklund's Time. Bad camps coming up, NIL and an update on the top 10 from Washington's 2023 recruiting class.
May is Brain Tumor Awareness Month and we at Radiology: Imaging Cancer are thrilled to welcome Dr. Edjah Nduom @EKNduom, Associate Professor of Neurological Surgery at Emory University, to the podcast! We cover a wide range of topics including brain tumor imaging biomarkers, patient advocacy, racial justice in medicine, mentorship, and so much more. Please see the following links for articles referenced in this episode: The Person in the Images: A Patient Perspective on Cancer Diagnosis, Therapy, and Living with Cancer. Radiology: Imaging Cancer 2021; 3(2):e210031 https://pubmed.ncbi.nlm.nih.gov/33862619/ https://pubmed.ncbi.nlm.nih.gov/33611592/ https://pubmed.ncbi.nlm.nih.gov/33030435/ Black Lives in Neurosurgery: A Three-part Webinar Series - cns.org
Hawaii Tourism Authority's tourism management plans; Federal aid for local arts and culture; Reality Check with Civil Beat; Brain Tumor Awareness Month; Protecting keiki mental health
Tatyana will be discussing mental health, giving encouraging words and advice, talking about how to fight the stigma against mental health and mental illnesses, Gen Z’s experience dealing with mental health, sharing her personal mental health experiences, and ways to help yourself and ways to help others with mental health in honor of Mental Health Awareness Month. She will also be briefly discussing the story of Lyric Chanel Jacks, a young, beautiful, and amazing girl that passed away from a brain tumor and brain cancer, and discussing brain tumors in honor of May also being Brain Tumor Awareness Month.
WATCH THE VIDEO WEBCAST HERE: https://youtu.be/TEFcsd5lt1A In recognition of Brain Tumor Awareness Month, TWIPO hosts Dr. Timothy Cripe and Dr. Brenda Weigel are joined by Dr. Stergios Zacharoulis of Columbia University Irving Medical Center (CUIMC), where he initiated a novel drug delivery program for pediatric brain tumors. Listen in as Dr. Zacharoulis discusses different delivery methodologies being explored and developed that bypass the blood brain barrier. Have any thoughts? Questions? Ideas for future topics? Email us at TWIPO@solvingkidscancer.org. Subscribe to TWIPO to get notifications of new uploads.
There's a lot of fear surrounding the topic of brain tumors - much of it due to widespread myths and misinformation linking brain tumors to everything from cell phones to sweeteners. May is Brain Tumor Awareness Month, and a good time to separate facts from myths. Host, Jonathan Fialkow, M.D., chief population health officer with Baptist Health, welcomes Michael McDermott, M.D. to the podcast to offer his substantial expertise on the topic. Dr. McDermott is a neurosurgeon and chief medical executive at Baptist Health's Miami Neuroscience Institute and is considered the number-one expert in the world on meningiomas, the most common primary brain tumors in adults.
May 1st, 2021 NATIONAL MENTAL HEALTH & BRAIN TUMOR AWARENESS MONTH! Work The Plan - Ep 05 Catching up on current life events Navigating life mentally, emotionally, physically Follow @JustSimplyYvonne on Instagram for happenings Email justsimplyyvonne@gmail.com for questions, topic suggestions, or feedback --- Send in a voice message: https://podcasters.spotify.com/pod/show/jsypodcast/message
Primary brain tumors originate in the brain or tissues close to the brain, such as in brain-covering membranes, cranial nerves, or the pituitary or pineal glands. There are many types of primary brain tumors, and over 84,000 people will receive a primary brain tumor diagnosis in 2021, according to the National Brain Tumor Society. The median age for these diagnoses is 60. The most common cancerous, or malignant, brain tumor is the glioblastoma, a type of glioma that begins in the brain or spinal cord. The most common primary noncancerous, or benign, brain tumor is the meningioma, which arises from the membranes that surround the brain and spinal cord. May is Brain Tumor Awareness Month. On the Mayo Clinic Q&A podcast, Dr. Alyx Porter, co-chair of the Central Nervous System Tumor Disease Group at Mayo Clinic Cancer Center, discusses the various types of brain tumors and how they are diagnosed and treated.
In this episode, Shanna Adamic, executive director of Cerner’s First Hand, joins us during Brain Tumor Awareness Month to share her personal story of being a brain tumor survivor and the important role that telehealth – and her own advocacy – played in her journey. Read the show notes: https://www.cerner.com/perspectives/a-patients-perspective-on-the-power-of-telehealth
In this episode, I give a quick recap of how my last MRI went. Then we talk some statistics, charities and things you can do to help bring awareness to brain cancer! I sort of rushed this and I don't like how the audio turned out, but I wanted to get this one out for early May. I also messed up the volume settings on my original template so please let me know if it's too loud, or not loud enough. I mixed it to the usual level, but I have the files so I could adjust it quickly if needed. Feel free to give me your thoughts and what you want to hear about. I'm trying my best to cover what I can and would love to do more in-depth episodes. Thanks again! Chris Links from the episode: https://braintumor.org/brain-tumor-information/brain-tumor-facts/ https://seer.cancer.gov/statfacts/html/brain.html https://www.abta.org/about-brain-tumors/brain-tumor-education/#statistics https://www.abta.org/ https://www.thebraintumourcharity.org/ https://www.curebraincancer.org.au/
Jen Pace is The President of the CT Brain Tumor Alliance and she talks to the guys about a new event coming up Saturday to benefit the CTBTA called Miles for May, which is a socially distanced event to replace the annual Path of Hope 5k
At Children’s Hospital of Philadelphia (CHOP), researchers and doctors are working side by side to improve outcomes for children with brain tumors. In honor of Brain Tumor Awareness Month, Madeline recently sat down with Dr. Phillip “Jay” Storm, Chief of CHOP’s Division of Neurosurgery, and Dr. Adam Resnick, a research scientist at CHOP, to talk about how they are using genetic information to match patients with the best brain tumor treatments – and how philanthropy is fueling these breakthroughs. To help fund groundbreaking research at CHOP, visit give.chop.edu.
This week’s show featured Team Jack Foundation director of development David Joekel discussing the work their group is doing during Brain Tumor Awareness Month to battle pediatric brain cancer, Special Olympics of Nebraska CEO Carolyn Chamberlin promoting the upcoming games and events, and Costco’s Bri Krambeck and Cody Lee talking about the link this month between the retailer and the Children’s Miracle Network.
Brain Tumor Awareness Month with guest Dr. Jennifer Moliterno May 18, 2018 Yale Cancer Center visit: http://www.yalecancercenter.org email: canceranswers@yale.edu call: 203-785-4095
Brain Tumor Awareness Month with guest Dr. Jennifer Moliterno May 18, 2018 Yale Cancer Center visit: http://www.yalecancercenter.org email: canceranswers@yale.edu call: 203-785-4095
Brain Tumor Awareness Month with guest Dr. Jennifer Moliterno May 18, 2018 Yale Cancer Center visit: http://www.yalecancercenter.org email: canceranswers@yale.edu call: 203-785-4095
Brain Tumor Awareness Month 2017: Glioblastomas with guest Dr. Jennifer Moliterno May 28, 2017 Yale Cancer Center visit: http://www.yalecancercenter.org email: canceranswers@yale.edu call: 203-785-4095
Brain Tumor Awareness Month 2017: Glioblastomas with guest Dr. Jennifer Moliterno May 28, 2017 Yale Cancer Center visit: http://www.yalecancercenter.org email: canceranswers@yale.edu call: 203-785-4095
Brain Tumor Awareness Month 2017: Glioblastomas with guest Dr. Jennifer Moliterno May 28, 2017 Yale Cancer Center visit: http://www.yalecancercenter.org email: canceranswers@yale.edu call: 203-785-4095
Frankly Speaking About Cancer with the Cancer Support Community
May is Brain Tumor Awareness Month. In the United States, there are nearly 700,000 people living with a primary brain or central nervous system tumor, and there will about 78,000 new primary brain tumor diagnoses made this year. To help us learn more about brain tumors and living well with this diagnosis, guest host Linda House is joined by Dr. Nicholas Blondin.
Frankly Speaking About Cancer with the Cancer Support Community
May is Brain Tumor Awareness Month. In the United States, there are nearly 700,000 people living with a primary brain or central nervous system tumor, and there will about 78,000 new primary brain tumor diagnoses made this year. To help us learn more about brain tumors and living well with this diagnosis, guest host Linda House is joined by Dr. Nicholas Blondin.
Frankly Speaking About Cancer with the Cancer Support Community
“I won't let a brain tumor defeat me or the people I love. It's a scary diagnosis but now I know the facts.” This is a quote from Frankly Speaking About Cancer: Brain Tumors. Currently there are more than 688,000 people living with a brain or central nervous system tumor in the United States, and this year alone an estimated 23,380 adults will be diagnosed with a primary, cancerous brain tumor according to the American Society of Clinical Oncology. To help us learn more about brain tumors this Brain Tumor Awareness Month, the show is joined by Deanna Glass Macenka, Program Coordinator the Neurosurgical Oncology Program at Johns Hopkins Hospital, and Dr. Ashley Love Sumrall, Neuro-Oncologist at the Levine Cancer Institute.
Primary brain tumors originate in the brain or tissues close to the brain, such as in brain-covering membranes, cranial nerves, or the pituitary or pineal glands. There are many types of primary brain tumors, and over 84,000 people will receive a primary brain tumor diagnosis in 2021, according to the National Brain Tumor Society. The median age for these diagnoses is 60. The most common cancerous, or malignant, brain tumor is the glioblastoma, a type of glioma that begins in the brain or spinal cord. The most common primary noncancerous, or benign, brain tumor is the meningioma, which arises from the membranes that surround the brain and spinal cord. May is Brain Tumor Awareness Month. On the Mayo Clinic Q&A podcast, Dr. Alyx Porter, co-chair of the Central Nervous System Tumor Disease Group at Mayo Clinic Cancer Center, discusses the various types of brain tumors and how they are diagnosed and treated. Advertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy