Podcasts about Health equity

Rebecca Bloom is a former employee benefits and executive compensation attorney who spent more than 25 years helping women navigate cancer, work, insurance, disability coverage, and financial survival. She is the founder and author of When Women Get Sick, a book built from decades inside the legal, workplace, and patient advocacy systems most people only discover after diagnosis.Bloom started in Big Law at Simpson Thacher handling employee benefits and compensation work she originally chose to pay off student loans. Then her mother was diagnosed with breast cancer. Suddenly the language she used in corporate law offices became the language of survival at home. Explanation of benefits forms. Coverage disputes. Second opinions. Disability protections. Medical leave. Bills no one could explain.That collision changed the direction of her life.In this episode, Bloom explains how serious illness quietly turns patients into unpaid administrators managing paperwork, logistics, financial risk, and emotional labor while trying to survive treatment. She breaks down how employer based health insurance shapes nearly every aspect of cancer care in America and why women often carry the invisible burden of protecting everyone else from discomfort while they themselves fall apart.The conversation digs into workplace power, the illusion of the healthcare “safety net,” caregiver exhaustion, and the class divide hiding underneath patient empowerment culture. Bloom explains why educated, insured women with resources still struggle to navigate healthcare bureaucracy and what happens to patients without those advantages.This episode explores cancer care, health insurance, employee benefits, patient advocacy, workplace protections, caregiving, and the structural incentives that force sick people to become project managers of their own survival.RELATED LINKSRebecca BloomWhen Women Get SickBay Area Cancer ConnectionsSimpson Thacher & BartlettFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Vasanta Pundarika built her career inside healthcare investment banking before launching Lotuspring, an advisory firm focused on women's health and behavioral health. She spent nearly 20 years advising healthcare systems, treatment providers, and growth stage companies on mergers, financing, and operational strategy while watching the industry repeatedly misunderstand the people it claimed to serve.The conversation starts unexpectedly with anthropology, bread, and language. Vasanta explains how she spent years changing the pronunciation of her own name to make other people comfortable before eventually reclaiming it. That thread opens into a much larger discussion about adaptation, identity, and what institutions quietly train people to tolerate.From there, the discussion moves into behavioral health, women delaying care, and the invisible labor that healthcare business models routinely ignore. During COVID, Vasanta noticed men's behavioral health units refilled faster than women's units. The reason had nothing to do with demand. Women were still home managing caregiving responsibilities, children, aging parents, and households while their own mental health collapsed in the background.The episode examines what happens when healthcare companies become “snazzy big brands” before building real clinical substance underneath. Vasanta describes the tension between mission and margin inside healthcare startups, private equity backed care models, and behavioral health expansion. The conversation pushes on who benefits when healthcare scales aggressively, who absorbs the operational pressure, and how patient trust erodes long before executives notice it on a dashboard.They also discuss patient advocacy culture, anthropology as systems analysis, healthcare capitalism, prior authorization, investor language, and why some clinically excellent companies never survive long enough to scale.RELATED LINKSVasanta PundarikaLotuspringWomen's Health HorizonsSakhi for South Asian SurvivorsNACDPrinceton University Anthropology DepartmentFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

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On this episode of C-Speak, Alastair Bell, president and CEO of Boston Medical Center Health System, discusses BMC's history and mission as an academic medical center serving underserved communities. He also explores the operational, financial and policy complexity of leading a mission-driven nonprofit focused on health equity.“Trying to think about how to create an environment for all of the people that are part of BMC Health System to show up, do their best work against our mission and maintain a trust as we navigate some difficult choices,” Bell says.Subscribe to C-Speak so you never miss an episode. Listen on Apple Podcasts, Spotify, YouTube or wherever you get your podcasts.

Brad Power spent years advising major corporations on systems design, process engineering, and decision making before lymphoma shoved him into the patient side of American healthcare. Instead of accepting the experience at face value, he started reverse engineering the machinery around cancer itself. Brad is the founder of Cancer Patient Lab and Open Cancer AI, two projects built around a blunt reality most patients discover too late: the healthcare system rewards people who know how to navigate it. Everyone else risks getting steamrolled by information asymmetry, insurance barriers, administrative friction, and institutional incentives designed around efficiency instead of human survival.The conversation starts with Harvard Business Review and Tumblr blogs before moving directly into the darker architecture underneath modern cancer care. Power explains how hospitals optimize for throughput, how insurance companies reward operational consistency over personalized medicine, and why many patients quietly end up needing a crash course in oncology, reimbursement policy, and behavioral psychology while fighting for their lives.The discussion digs into CAR-T therapy, functional testing, AI assisted decision support, and the growing collision between personalized medicine and standardized care pathways. Power argues that engaged patients often get better outcomes because they learn how to push for off guideline treatments, contest denials, and ask smarter questions. The counterpoint lands hard: patients should never have needed to become experts in the first place.The episode also explores the cultural consequences of AI entering cancer care. OpenAI advertising, data privacy, trust erosion, pharmaceutical influence, and “agentic AI” all collide inside a healthcare economy already drowning in distrust. Power sees artificial intelligence as a force multiplier for patient literacy and access. The larger system still decides who gets approved, who gets delayed, and who gets left behind.By the end, the conversation lands exactly where modern healthcare keeps forcing people to land: survival increasingly depends on learning how the machine works before the machine works on you.RELATED LINKSBrad PowerCancer Patient LabOpen Cancer AIHarvard Business ReviewResearch to the PeopleCAR T Cell TherapyFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

In this week's episode we are joined by researcher and author Dr. Terrell J.A. Winder for a powerful conversation on the intersections of identity, stigma, and self-worth among Black queer men in Los Angeles. Grounded in Terrell’s work, we explore the earliest moments many Black queer folks come to understand their bodies as “problems” and how those messages are shaped by institutions like churches, schools, healthcare systems, and everyday public life. We also talk about their new book "Shameless" and how we all can imagine new pathways toward healing and liberation. We want to hear from you! Send us an email with your thoughts/comments about the show: BlackFatFemmePod@gmail.com. Also, don’t forget to watch and subscribe on YouTube! Buy DoctorJonPaul's book here! Follow the show on social: Instagram | BlueSky | Threads | Tik-Tok | Facebook Follow Dr. Jon Paul: Instagram | Website | Tik-Tok | Threads Follow Jordan: Instagram | Website | Tik-Tok Follow Dr. Terrell: Website | X See omnystudio.com/listener for privacy information.

In episode 82 of Going anti-Viral, Dr Tyler Evans joins host Dr Michael Saag to discuss the Ebola outbreak in the Democratic Republic of the Congo and Uganda and the global response. Dr Evans is an infectious diseases and addiction medicine physician and CEO of Wellness Equity Alliance, a national organization advancing health equity in the US and globally. He is also an associate professor of population and public health sciences at the University of Southern California Keck School of Medicine and the author of Pandemics, Poverty, and Politics, which examines how socially and politically determined inequalities, have consistently precipitated pandemics and public health emergencies. Dr Evans' work spans street medicine, HIV/AIDS care, and humanitarian response in complex emergencies, including 2 Ebola response missions. Dr Evans and Dr Saag discuss the current Ebola outbreak, its transmission, challenges in containment, and the likelihood for a vaccine. They also explore the impact of public trust on care and provide an update on the response from US and international agencies including a discussion of the risk for the outbreak to spread globally.  0:00 – Introduction 1:33 – Understanding Ebola: transmission and symptoms3:05 – Containment strategies for Ebola outbreaks7:39 – Challenges in surveillance and response11:09 – Urban spread of Ebola: risks and concerns12:43 – Vaccination strategies and developments15:58 – Conditions in treatment centers and the impact of public trust in the outbreak21:04 – Update on the response from US and international agencies and risk of spread to the US and globallyResources:Pandemics, Poverty, and Politics: https://www.tylerevansmd.com/ Wellness Equity Alliance: https://www.wellnessequityalliance.com/ __________________________________________________Produced by IAS-USA, Going anti–Viral is a podcast for clinicians involved in research and care in HIV, its complications, and other viral infections. This podcast is intended as a technical source of information for specialists in this field, but anyone listening will enjoy learning more about the state of modern medicine around viral infections.Going anti-Viral's host is Dr Michael Saag, a physician, prominent HIV researcher at the University of Alabama at Birmingham, and volunteer IAS–USA board member. In most episodes, Dr Saag interviews an expert in infectious diseases or emerging pandemics about their area of specialty and current developments in the field. Other episodes are drawn from the IAS–USA vast catalogue of panel discussions, Dialogues, and other audio from various meetings and conferences. Email podcast@iasusa.org to send feedback, show suggestions, or questions to be answered on a later episode.Follow Going anti-Viral on: Apple Podcasts YouTubeXFacebookInstagram...

Health systems spend billions on transformation that works in the boardroom and collapses at the clinical unit. Dr. Sarah Matt, a surgeon turned health technology executive, explains why most AI and virtual care initiatives fail at adoption rather than design, and how her Five Pillars of Access give leaders a practical way to evaluate what will actually scale. A direct conversation about trust, financial sustainability, and building care models that stick. The Borderless Healthcare Revolution: The Definitive Guide to Breaking Geographic Barriers Through Technology   Sarah Matt, MD, MBA, Health Technology Strategist, Growth Catalyst, Author, The Borderless Healthcare Revolution Megan Antonelli, Chief Executive Officer, HealthIMPACT Live Subscribe to Digital Health Talks on Apple Podcasts, Spotify, YouTube, or wherever you listen.Learn more about HealthIMPACT Live events, virtual forums, and healthcare leader conversations at healthimpactlive.com.Interested in being a guest, sponsoring, or joining the HealthIMPACT community? Visit healthimpactlive.com/digital-health-talks.

The American healthcare system is built around a simple idea: get sick, get treated. But what if the problem isn't how we treat illness — it's that we've never seriously tried to prevent it? In this first installment of a two-part conversation, Jamie sits down with Brody Wall, Division President of Operations at Your Health, to trace the arc from a broken, reactive healthcare system to one where data tells you what's coming before the patient even knows something is wrong. Brody's path to healthcare wasn't through a textbook — it was through a father who was a Methodist minister and a mother who spent her career caring for underprivileged children. The mission was always there. The data just became the most honest way to fulfill it. In Part 1, Jamie and Brody cover: Why fee-for-service healthcare financially rewards volume of sick visits — not health — and how that one incentive structure explains why 17-20% of America's GDP goes to healthcare costs with outcomes that still lag behind other developed nations What Your Health was flying blind on before it committed to building a real data infrastructure — and what gut-feeling decisions look like when data finally proves them wrong How social determinants of health (Z codes) and behavioral health conditions (F codes) reveal which patients are actually at the highest risk of hospitalization The finding that changed everything: patients with four or more behavioral health conditions were ten times more likely to have multiple ER visits — and the clinical response that followed This isn't just a conversation about numbers. It's about what happens when an organization decides that preventing the crisis matters more than reacting to it. Part 2 drops next week. www.YourHealth.Org

By the time the paper hit version 71, Dr. Nirosha Murugan had already done the hard part. The data were real. The experiment had worked. A team of researchers had used a wearable bioreactor to trigger limb regeneration in frogs, a result with obvious implications for regenerative medicine. But the science still wasn't getting over the line. The problem wasn't the work. It was the translation.On this episode of Standard Deviation, host Oliver Bogler talks with Dr. Nirosha Murugan, a biophysicist and Tier II Canada Research Chair in Tissue Biophysics at Wilfrid Laurier University, about what happens when a scientist working at the edges of quantum biology, bioelectricity, and tissue regeneration runs headfirst into the unwritten rules of academic publishing. Murugan's research asks biologists to think beyond molecules and chemistry alone, and to consider the physical signals, electromagnetic fields, and invisible forces that shape development and healing. It is ambitious science. It is also exactly the kind of work that can make gatekeepers nervous.Bogler follows Murugan through the less glamorous part of discovery: the hidden curriculum of getting a paper published, securing scientific credibility, and learning that data do not simply “speak for themselves.” Murugan describes how jargon buried the pitch of her own work, how a lack of editorial support left her at a disadvantage, and how the JEDI program at the Life Science Editors Foundation paired her with a former journal editor who taught her how to structure a manuscript, write a cover letter, and survive peer review.The result was publication in Science Advances, but the larger story is about power. Who gets taught the rules of biomedical research. Who has access to grant writers, editors, and institutional polish. Who is left to brute-force their way through the maze. And how one scientist, having finally found the map, now makes sure her own trainees do not have to learn it the hard way.RELATED LINKSDr. Nirosha Murugan⁠Wilfrid Laurier University⁠Life Science Editors Foundation⁠JEDI Program⁠Science Advances paper on limb regeneration⁠FEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Dr. Jess Peatross trained in conventional medicine and worked as a hospitalist before she started questioning why so many chronically ill patients kept getting worse inside the healthcare system she trusted. Her perspective carries weight because she spent years following every protocol exactly as taught before walking away from hospital medicine entirely.Raised in Huntington, West Virginia during the opioid crisis, she entered medicine believing the system existed to heal people. Instead, she found hospitals driven by billing codes, liability management, and pharmaceutical dependence while patients with chronic illness, autoimmune disease, mold exposure, and chronic pain cycled endlessly through appointments and prescriptions.Dr. Peatross explains what pushed her toward functional medicine, cannabis therapy, and prevention focused care after watching patients improve only after leaving conventional treatment pipelines behind. The conversation tackles physician burnout, chronic illness stigma, healthcare incentives, and the growing collapse of trust between patients and institutions.The discussion also moves into supplements, environmental toxins, ultra processed food, and the uncomfortable economics behind keeping people permanently sick but continuously billable. Dr. Peatross describes the professional backlash that comes with challenging medical orthodoxy while Matthew connects her experience to the broader erosion of public trust across American healthcare.Together they unpack what happens when patients stop believing the system can help them and start searching elsewhere for answers.RELATED LINKSDr. Jess PeatrossInstagramMarshall UniversityBrave New WeedFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

9 Simple Solutions to Achieve Health Equity: A Guide for Healthcare Professionals and Patients by Mauvareen Beverley https://www.amazon.com/dp/B0D73NNN2V Drbeverley.com Nine Simple Solutions to Achieve Health Equity: A Guide for Healthcare Professionals and Patients by Dr. Beverley presents actionable strategies to transform health disparity into health equity. Drawing from her extensive interactions with over 1,000 diverse patients, Dr. Beverley introduces innovative approaches, like “The Bridge Team,” to enhance outcomes for vulnerable populations. Dr. Beverley offers a clear roadmap supported by real-life stories, addressing the critical gap between patient perception and reality. She emphasizes simple, empathetic solutions to prevent complex health issues, stressing the importance of recognizing patients as multifaceted individuals with roles beyond their medical conditions. This essential guide advocates for cultural competence across all patient demographics, highlighting the often-overlooked needs of the English-speaking Black population who are not included in the need for cultural competence. Dr. Beverley also provides historical insights into the health crises faced by Black communities, underscoring the need for equitable, compassionate care inclusive of individuals with Sickle Cell Disease. Echoing Hippocrates, Dr. Beverley reminds us: “It is more important to know the person who has the disease than the disease who has the person.” This book is a vital resource for healthcare professionals and patients committed to achieving health equity and improving health outcomes. About the author Mauvareen Beverley, M.D. is the President of Mauvareen Beverley, M.D., PLLC, Patient Engagement and Cultural Competence Specialist. She is an executive-level physician and a fellow of the New York Academy of Medicine (NYAM) with over twenty years of experience advocating for improving patient engagement and cultural competence for all populations, especially African American communities. As Assistant Vice President, Physician Advisor for NYC Health + Hospitals, she sponsored the first Conference on Improving the Health of the Elderly Black Population. Under her leadership as Deputy Executive Director of Kings County Hospital, she led her team to implement innovative strategies for improved equitable health outcomes and decreased Congestive Heart Failure readmission from 30 percent to 18.7 percent in less than two years. Dr. Beverley is a national thought leader and expert in patient engagement and health equity. She has lectured extensively on health disparities, patient engagement and valuing the human experience.

Farla Efros is a senior retail executive and former CEO who built and sold companies before facing her own breast cancer diagnosis. She brings that same operational mindset into a healthcare system that expects patients to manage complexity while they are at their most vulnerable.She was on a client call in Spain when the diagnosis came through. A clear mammogram had missed it. An MRI caught it. Within hours, she was ordering binders, building a plan, and structuring her treatment like a turnaround strategy. Every appointment became a meeting. Every doctor faced an agenda with dozens of questions. She paid out of pocket for PET scans that were denied and hired a third party firm to validate her treatment path when her own doctors resisted outside input. The conversation tracks what happens when a high-functioning executive enters a system built on delay, denial, and fragmentation. Efros describes negotiating for tests, managing physician relationships, and assembling an “executive board” of advisors across conventional and alternative care. She calls the experience “the worst client I ever had,” exposing how administrative burden shifts onto patients and families.The tension sits between what worked for her and what is inaccessible to most. Her approach requires confidence, time, and fluency in navigating power. The system rewards that behavior while quietly failing patients who cannot replicate it. Insurance coverage still left her paying out of pocket. Doctors pushed standard protocols over precision medicine. Survivorship offered little support once treatment ended.This episode examines how cancer care operates as a series of incentives rather than a coordinated system, and why patients are forced to become operators just to get through it.RELATED LINKSFarla EfrosFarla Efros on LinkedInF*ck CancerF*ck Cancer on AmazonAccentureCTOAMPULL QUOTES“I treated cancer like the worst client I ever had.”“They wouldn't approve the test, so I paid for it myself.”“Every appointment was a negotiation.”FEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Dr. Eugene Manley Jr. is a cancer scientist, health equity leader, and longtime patient advocate working at the intersection of biomedical sciences, cancer care, AI ethics, and leadership. As a Black healthcare advocate and founder of SCHEQ (STEMM* & Cancer Health Equity), a nonprofit focused on cancer health equity, Eugene runs an annual lung cancer summit that brings together patients, clinicians, researchers, and industry to co-create solutions to disparities in screening, diagnosis, and treatment. Eugene has ADHD, which didn't get diagnosed until he was in graduate school.  *STEMM stands for Science, Technology, Engineering, Mathematics, and Medicine. Content note: This episode discusses medical/healthcare trauma and physical injuries. During this episode, you will hear Eugene talk about: Discovering his ADHD later in life, and how ADHD shaped him as a person  How his academic interests, education and career experiences led him to start his nonprofit The impact of a recent traumatic experience he had as a patient in the healthcare system How SCHEQ helps people understand their rights and options in healthcare settings Learn more about Eugene's work at SCHEQ.org. Support or sponsor this podcast: BuyMeACoffee.com/Beyond6Seconds Watch the video of this interview on YouTube: https://www.youtube.com/watch?v=H13-WoQuP9o Read the episode transcript: carolynkiel.com/podcast/eugene-manley-scheq Follow the Beyond 6 Seconds podcast in your favorite podcast player: pod.link/1336740192 Subscribe to the FREE Beyond 6 Seconds newsletter for early access to new episodes: mailchi.mp/f9f6e8356138/insider  *Disclaimer: The views, guidance, opinions, and thoughts expressed in Beyond 6 Seconds episodes are solely mine and/or those of my guests, and do not necessarily represent those of my employer or other organizations. These episodes are for informational purposes only and do not substitute for professional medical advice. Consult a medical professional or healthcare provider if you are seeking medical advice, diagnoses, or treatment.*

In the final episode, Sharonne N. Hayes discusses how structural inequities and unconscious bias continue to affect cardiovascular outcomes for women and minority patients. From improving diversity in research to leveraging social media responsibly, this episode explores what the future of equitable cardiovascular care could look like. Timestamps: 0:58 – Health equity 4:02 – Improving representation 7:10 – Role of social media 9:54 – 10-year prediction 11:08 – Sharonne's wish

In 2020, Emily Mendenhall drove from Washington, DC to Okoboji, Iowa, a town of 800 that swells to 200,000 every summer, and walked into a pandemic that looked nothing like the one dominating national headlines. Inside gas stations and bars, masks marked you as an outsider. In one stop, a man told her family they would not be served if they kept theirs on. Her 6 year old daughter cried, confused. Mendenhall, a medical anthropologist at Georgetown University, did what she always does. She started asking questions. Over months, she interviewed neighbors, former classmates, and local officials, including her own brother in law who helped lead the local COVID response. The result became Unmasked, a case study in how community identity, economics, and politics shaped public health decisions in real time. That work led directly into her latest book, Invisible Illness: A History, from Hysteria to Long COVID, where she tracks a much older problem. Patients with chronic illness, especially women, often fail to meet medicine's demand for proof. Without a clear diagnosis, they lose access to care, insurance coverage, and legitimacy. Mendenhall argues that long COVID did not create this failure. It exposed it.This conversation centers on how healthcare systems reward certainty and punish complexity. Long COVID clinics send patients to 17 specialists without resolution. Insurance structures require diagnoses that many conditions cannot provide. Medical training still struggles to integrate trauma, mental health, and chronic disease into a coherent model of care.Mendenhall brings lived experience into the conversation. After COVID, she dealt with months of fatigue and escalating anxiety that altered her baseline health. She does not claim the label of long COVID, but she understands how quickly the system becomes harder to navigate once symptoms stop fitting clean categories. The stakes are not theoretical. In the United States, access to healthcare, disability benefits, and treatment still depends on whether a condition can be measured, coded, and reimbursed. For millions living with invisible illness, the burden of proof becomes the illness itself.RELATED LINKSEmily MendenhallInvisible Illness: A History, from Hysteria to Long COVIDScience PoliticsGeorgetown UniversityFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Health Affairs Publishing's Rob Lott speaks to Adam Markovitz of the University of Michigan about his recent paper exploring the growing role of third-party firms in Medicare ACOs, highlighting how they have contributed to wider participation and more geographically dispersed networks while raising questions about how these structures relate to shared savings outcomes.Order the June 2026 issue of Health Affairs.Sign up for our free Health Affairs newsletters to stay up to date on health policy news and analysis.

In the Season 6 finale of Health Calls, host Brian Reardon and executive producer Josh Matejka reflect on the theme “United for Change” through a clip show featuring top voices in Catholic healthcare.  Drawing from insights shared at the Catholic Health Association Assembly, Brian and Josh highlight how unity, collaboration and Catholic social teaching are transforming care delivery across the United States. Clips from six different episodes underscore the importance of listening deeply, valuing lived experience and addressing social determinants of health such as housing, food insecurity and mental health. From parish nurse programs to community partnerships and immigrant advocacy, these conversations illustrate how Catholic healthcare can elevate human flourishing by working collaboratively, building trust and centering the dignity of every person. Health Calls is available on the following podcast streaming platforms:Apple PodcastsSpotifyYouTubeLearn more about The Catholic Health Association of the United States at www.chausa.org.

In this episode of The Public Health Joy Podcast, Dr. Joyee sits down with Dr. Lovell Jones. Dr. Jones is a pioneering cancer researcher, health equity scholar, and one of the most important architects of the infrastructure that made space for Black researchers in the biomedical sciences. As the first African American to be hired in the basic/behavioral sciences, at University of Texas M.D. Anderson Cancer Center, rose through the ranks to a tenured full professor and the first to hold an administrative title. He has been mentored by giants. And he has mentored giants. Researchers now doing transformational work across the country and across the globe credit him as a foundational part of their journey.In this conversation, he opens up about mentoring the next generation, addressing health disparities, and what it truly means to lead with a servant's heart. From historical insights to real community impact, this conversation is packed with wisdom on collaboration, legacy, and showing up for the people who need us most. This is probably the most important podcast episode we have ever released, which tells you everything you need to know about how much work we have to do to recover and preserve our own history.Key Points From This Episode:Mentoring with purpose and heart [9:37 – 14:39]The role of community and collaboration in health disparities [14:39 – 28:25]The history and impact of the Intercultural Cancer Council [35:21 – 43:58]Building sustainable legacies in public health [43:58 – 51:22]Addressing systemic issues and fostering change [22:18 – 35:13]If you enjoyed this episode, please subscribe, rate and, leave a review! For more transcripts, show notes, and more visit: Click Here

At 25, Jace Yawnick was building a career in health and wellness sales, chasing growth, status, and the usual young adult fantasy of getting somewhere fast. Then his body stopped cooperating. Fatigue turned into chemotherapy. The diagnosis was primary mediastinal B cell non Hodgkin lymphoma, and the rest of his life split into before and after. Now in remission, he talks about cancer the way people actually live it, not the way nonprofits package it. He gets into survivorship, mental health, young adult isolation, and the deadening absurdity of prior authorization. One of the sharpest parts of the conversation lands on a simple American insult disguised as policy: treatment innovation means very little when insurance can still deny the scan, the drug, or the next step. Jace has seen that firsthand, including during routine monitoring after active treatment. This episode tracks what happens when a young cancer patient becomes a public voice and refuses to play mascot. It covers oncology, insurance, remission, advocacy, and the long mental hangover that follows survival. It also names the part too many institutions dodge: the system works great right up until it doesn't, and when it fails, patients get handed the bill, the panic, and a camera if they want anyone to care. RELATED LINKSJace Beats CancerJace Yawnick on LinkedImConquer Cancer ArticleCURE Today ArticlePyure BrandsFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Health Affairs Publishing's Rob Lott speaks to Geoffrey Hoffman of the University of Michigan about his recent paper exploring the structure of Medicare's hospital wage index and discusses the growth of exceptions over time, exploring their implications for how the system functions and whether it meets its intended policy objectives. Order the June 2026 issue of Health Affairs.Sign up for our free Health Affairs newsletters to stay up to date on health policy news and analysis.

Public outrage and policy shifts offer hope. Learn how awareness, advocacy, and plant-based diets can drive real environmental change. #AtrazineBan #PublicAction #CleanWater #HealthTalks

At 20 years old, newly arrived from Puerto Rico and trying to build a future in science, Benjamin Suarez Jimenez found himself sitting in front of two senior faculty members accused of plagiarism. He knew the material. He had done the work. His mistake came from failing to cite class notes during an exam because nobody had told him that was expected. In a matter of minutes, he watched what felt like his entire career flash before him.On this episode of Standard Deviation, host Oliver Bogler examines the hidden architecture of academic science through the experiences of Dr. Benjamin Suarez Jimenez, Assistant Professor at the University of Rochester and a neuroscientist studying PTSD, anxiety, trauma, and spatial cognition through virtual reality and video game environments.Benjamin traces his path from Puerto Rico to the mainland United States, through the NIH, Columbia University, and eventually to leading his own laboratory. Along the way, he encountered a series of barriers that had little to do with scientific ability and everything to do with access to unwritten rules. From academic gatekeeping to grant writing expectations, he learned that success in biomedical research often depends on knowledge that never appears in a textbook.Oliver explores how those invisible obstacles shape careers, influence research funding, and determine who gains access to opportunity. The conversation also examines the Justice, Equity, Diversity, and Inclusion Program at the Life Science Editors Foundation, which pairs scientists from underrepresented backgrounds with experienced scientific editors. Through that mentorship, Benjamin transformed a critical grant proposal into a successful pilot award that helped launch an NIH R01 application.The discussion extends beyond one scientist's experience. Benjamin describes helping a former mentee navigate dissertation roadblocks that threatened her graduation, illustrating how institutional bureaucracy can delay careers and discourage talented researchers. Together, they explore the hidden administrative burden, cultural barriers, and bias that many scientists carry alongside their research, and what happens when someone who receives support turns around and opens the door for others.RELATED LINKSLife Science Editors FoundationBenjamin Suarez Jimenez LabDr. Benjamin Suarez JimenezBenjamin Suarez JimenezFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

The World Health Organization defines health equity as a public health concept describing equity of access to health resources for genetic, socio-environmental, and economic determinants of health, varying according to individuals, families, and social or societal groups. Concerns about data equity have surfaced, which may result in many populations, including those in rural areas with disabilities, experiencing homelessness or living in low and middle-income regions of the world, being underrepresented in health data sets. This can lead to biased findings and suboptimal health outcomes for certain subgroups, which is the focus of this episode of Stats+Stories with guest Bhramar Mukherjee. Dr. Bhramar Mukherjee is the inaugural Senior Associate Dean of Public Health Data Science and Data Equity and the Anna M. R. Lauder Professor of Biostatistics, as well as Professor of Epidemiology and of Statistics and Data Science at Yale University. Among her many honors, she was elected to the US National Academy of Medicine in 2022.

This episode of Quality Matters examines the growing role of digital wellness and chronic condition management programs and the challenge of measuring what truly matters. Host Rachel Harrington is joined by Peter Robertson of the Purchasing Business Group on Health and California Quality Collaborative and Kevin Masci of Omada Health to discuss how digital health solutions can help address rising healthcare costs, workforce shortages and fragmented care experiences. Peter and Kevin explain why meaningful engagement goes far beyond app downloads and login counts. Instead, successful programs focus on sustained participation, patient-centered goal setting, integration with primary care and measurable improvements in health outcomes. The conversation explores how employers, health plans and providers are evaluating digital solutions through clinical outcomes, patient-reported outcomes, utilization measures and value-based contracting arrangements. The guests also discuss one of the most important challenges facing digital health: trust. Privacy, transparency, data security and clear communication about how patient data is collected and used all play critical roles in long-term adoption. The episode concludes with a Patient Voice segment featuring Brandee Hicks, who shares her firsthand experiences using digital health tools, highlighting both the convenience they offer and the ongoing challenges around interoperability, digital literacy and maintaining support after programs end.     Highlights Beyond Logins and Clicks Meaningful engagement isn't about how often patients open an app. It's about helping people achieve their health goals through sustained participation and measurable outcomes. Measuring What Matters Guests discuss the growing use of clinical outcomes, patient-reported outcomes, utilization data and value-based contracting to assess digital health program performance. Trust Is Essential Digital health solutions must address concerns around privacy, transparency, data security and how patient information is stored and shared. The Patient Perspective Brandee Hicks shares how digital tools can improve organization, access and self-management while also revealing gaps in continuity, support and interoperability. Looking Ahead The future of digital health depends on better integration with primary care, more personalized engagement strategies and stronger measurement frameworks that prioritize patient outcomes.     Key Quote: "If we're really serious about improving health outcomes, we have to move beyond measuring clicks and logins. The real question is whether people are achieving meaningful progress toward their health goals—and whether these programs are creating lasting value for patients, providers and purchasers alike." — Kevin Masci     Time Stamps: (02:20) Meet Peter Robertson (03:45) Meet Kevin Masci (05:53) Why Digital Solutions Matter (10:01) Care Coordination, Not Care Fragmentation (11:52) Defining Meaningful Patient Engagement (15:07) Why Consistent Measurement Matters (18:32) Measuring Outcomes in Value-Based Contracts (21:12) Data Stratification, Risk Adjustment and Performance Guarantees (27:22) Privacy, Trust and Transparency in Digital Health (30:44) The Future of Digital Wellness and Chronic Care Management (35:08) Patient Voice: Brandee Hicks (40:25) Patient Challenges, Access and Continuity of Care (45:23) Key Takeaways and Closing Thoughts     Dive Deeper: Connect with Peter Robertson Connect with Kevin Masci Connect with Brandee Hicks Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Sir George Alleyne, now 94 years on this planet, is a global health leader and former Director of the Pan American Health Organization, joins On The Call for a powerful W.I.N.E conversation on Caribbean leadership, health equity, and systemic change. In this episode, we explore: • The intersection of health, inequality, and economic systems • Caribbean leadership on the global stage • Why awareness is not enough—systems must change • The responsibility of building equitable futures This conversation reflects the mission of On The Call: Caribbean Heritage, Healing & Humanity—where storytelling meets structure, and dialogue leads to action.

Dr. Sarah Matt trained as a burn surgeon, working in a field where patients arrive with catastrophic injuries and survival depends on speed, skill, and resources. She left the bedside after confronting a limit that medicine does not like to admit. One physician can only see so many people in a day. The system surrounding those patients decides the rest. She moved into health technology, held leadership roles in startups, and built global infrastructure at Oracle to scale care across populations. Then she watched billions of dollars in digital health and AI initiatives stall out when they hit real clinical environments.This episode follows that pivot from surgeon to strategist and back into direct patient care in rural New York, where she now treats uninsured patients, migrant workers, and communities pushed to the margins. The conversation centers on a persistent failure across healthcare systems. Products get built for regulators, executives, and investors instead of the people who use them. The result shows up in failed adoption, broken workflows, prior authorization delays, and rising physician burnout.The discussion cuts through health policy language and lands on lived consequence. The system rewards speed over usability, scale over trust, and compliance over care. Patients absorb the fallout. Physicians carry the liability. The incentives remain intact.RELATED LINKSDr. Sarah MattThe Borderless Healthcare RevolutionThe Clinical RealistJessica FedererSovatoFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Health Affairs Publishing's Rob Lott speaks to Yashaswini Singh of Brown University about her recent paper that explores how private equity acquisitions in primary care are associated with changes in utilization, spending, and workforce composition.Order the June 2026 issue of Health Affairs.Sign up for our free Health Affairs newsletters to stay up to date on health policy news and analysis.

What does it mean to build a life rooted in service rather than status?In this deeply moving conversation, I sat down with Dr. Farah Shroff—public health leader, educator, researcher, yoga teacher, and advocate for women's health—to explore the experiences that shaped her work and worldview. From her childhood in Canada after immigrating from Kenya, to watching her mother defy a devastating lupus diagnosis, to leading global health initiatives around the world, Farah shares how compassion, justice, and holistic well-being became the foundation of her life's work.We talked about the intersection of public health and personal healing, why women's health continues to be overlooked by institutions, and what women must unlearn in order to step fully into their power as leaders.In this episode, we discuss:How witnessing her mother's health journey sparked a lifelong commitment to women's health, public health, and holistic healing.Why improving health outcomes requires more than medicine; and how social justice, equity, and community are fundamental to well-being.What decades of global public health work have taught her about listening to communities instead of imposing solutions.The ways women are still underserved by healthcare systems and why research focused specifically on women's bodies remains critically important.How yoga, meditation, and self-awareness have shaped her approach to leadership, advocacy, and personal resilience.Why women leaders must stop shrinking themselves, trust their own authority, and learn to lead from a place of confidence rather than self-doubt.One of my favorite moments from this conversation was Farah's reminder that leadership begins with believing you belong in the room. As she shared, so many women still carry the belief that they're "not enough." Releasing that narrative and stepping into our own power may be one of the most important forms of leadership there is.This episode is both a conversation about health and a conversation about humanity; about caring for ourselves, caring for each other, and building systems that honor the dignity and worth of every person.Connect with Dr. Farah Shroff on LinkedInListen now and join us for a conversation about leadership, service, healing, and the power of women supporting women.

Health Calls Season 6, Episode 17 explores how health systems across the United States can improve outcomes by connecting health care, nature, and community partnerships. Host Brian Reardon and Executive Producer Josh Matejka welcome Dr. Sheetal Rao, Assistant Professor at the University of Illinois Chicago, to examine the growing evidence linking green space access to better physical, mental, and community health.  Dr. Rao shares how the COVID‑19 pandemic revealed stark inequities in access to nature, introducing concepts like tree equity and “nature deficit” in underserved communities. The conversation highlights how hospitals, acting as anchor institutions, can partner with local organizations to expand tree canopy, support biodiversity, and reduce environmental risks like heat, flooding, and air pollution. With U.S. health care contributing significantly to climate impacts, Dr. Rao underscores how nature‑based solutions, from native plantings to urban forestry, can strengthen resilience, improve health outcomes, and advance more equitable, sustainable care nationwide. Health Calls is available on the following podcast streaming platforms:Apple PodcastsSpotifyYouTubeLearn more about The Catholic Health Association of the United States at www.chausa.org.

This episode discusses the importance of health equity and its impact on our day to day lives. We will hear valuable insights and perspectives about the importance of awareness, resources, and steps individuals can take to drive health equity forward.(716)831-1800 | horizon-health.orgfacebook.com/horizonhealthservicesinstagram.com/horizon_healthx.com/horizonhealth1linkedin.com/company/horizon-health-services/

Content warning: childhood abuse, childhood sexual abuse, sexual assault, rape, abduction, missing persons, gun violence, murder, and mental illness.Amber Rodgers is a survivor, business professional, and creative from Texas. As early as she can remember, her life was filled with chaos. By the time she was fourteen, she was a multi-crime survivor, and by 19 she would serve as a witness in her best friend's murder trial. Amber moved forward by cultivating a successful career and loving family, until her past trauma instigated a cascading effect in her mental health and relationships. Although Amber has shared portions of her story at-large, it took her decades and a life-altering mental health journey to realize the deep impact her teen years had had on her. The Broken Cycle Media team is deeply appreciative of Amber's transparency, rawness, and advocacy. These episodes are dedicated in loving memory of Kytrina Marie Locascio.Sources: -Centers for Disease Control and Prevention. “About Adverse Childhood Experiences.” CDC, U.S. Department of Health and Human Services, 2025, https://www.cdc.gov/violenceprevention/aces/. -Centers for Disease Control and Prevention. “Adverse Childhood Experiences (ACEs).” CDC Vital Signs, U.S. Department of Health and Human Services, https://www.cdc.gov/vitalsigns/aces/index.html. -Centers for Disease Control and Prevention. “Psychosocial Factors and Health Equity.” CDC, U.S. Department of Health and Human Services, https://www.cdc.gov/dhdsp/health_equity/psychosocial.htm. -Felitti, Vincent J., et al. “Relationship of Childhood Abuse and Household Dysfunction to Many of the Leading Causes of Death in Adults: The Adverse Childhood Experiences (ACE) Study.” American Journal of Preventive Medicine, vol. 14, no. 4, 1998, pp. 245–258.-Hughes, Karen, et al. “The Effect of Multiple Adverse Childhood Experiences on Health: A Systematic Review and Meta-Analysis.” The Lancet Public Health, vol. 2, no. 8, 2017, pp. e356–e366. doi:10.1016/S2468-2667(17)30118-4.-McKay, Matthew T., Laura Kilmartin, Aisling Meagher, Mary Cannon, Colm Healy, and Mary C. Clarke. “A Revised and Extended Systematic Review and Meta-Analysis of the Relationship between Childhood Adversity and Adult Psychiatric Disorder.” Journal of Psychiatric Research, vol. 156, 2022, pp. 159–174. PubMed, https://pubmed.ncbi.nlm.nih.gov/36274532/. -Swedo, Elizabeth A., et al. “Prevalence of Adverse Childhood Experiences Among U.S. Adults—Behavioral Risk Factor Surveillance System, 2011–2020.” Morbidity and Mortality Weekly Report, vol. 72, no. 26, 2023, pp. 707–715, https://www.cdc.gov/mmwr/volumes/72/wr/mm7226a2.htm. -Zhang, Y., et al. “Cumulative Adverse Childhood Experiences and Risk of Mental Disorders: A Systematic Review and Meta-Analysis.” Acta Psychiatrica Scandinavica, 2026, https://www.sciencedirect.com/science/article/pii/S0001691826007559. Accessed 2 June 2026.For additional resources and a list of non-profit organizations that can help, please visit http://www.somethingwaswrong.com/resources*Thank you again to Rula and Quince for sponsoring this episode. *Remember, Rula patients typically pay $15 per session when using insurance. Connect with quality therapists and mental health experts who specialize in you at https://www.rula.com/wcn #rulapod *And don't forget to elevate your summer wardrobe, go to quince.com/wcn for free shipping on your order and 365-day returns, now available in Canada too.

In the late 1980s, a child exposed to fallout from the Chernobyl disaster lay in a hospital bed while doctors told his family there were no clear answers and no reliable path forward. Decades later, that same child, Yan Leyfman, walks into exam rooms as a hematology oncology fellow, expected to deliver clarity inside a system that still runs on delay, uncertainty, and institutional self preservation.This episode traces the throughline from early life shaped by radiation exposure and hospice level uncertainty to a career inside academic medicine, translational research, and oncology media. Yan built his identity around survival and usefulness, moving from patient to physician while carrying the memory of what it feels like to sit on the other side of the table. He helped launch MedNews Week during the COVID crisis to push back on misinformation and expand access to medical knowledge, stepping into a public role while still in training.The conversation stays grounded in the friction between personal narrative and system reality. Clinical training demands efficiency, hierarchy, and emotional distance. Cancer care demands time, clarity, and human connection. Those forces collide in real patient encounters where prior authorization delays, insurance barriers, and fragmented care pathways shape outcomes as much as any treatment protocol.Yan speaks openly about mentorship, belonging, and the drive to make meaning out of survival. The discussion pushes further into what the healthcare system actually rewards, what it quietly strips away, and how quickly empathy can erode under institutional pressure. The episode also examines the role of medical media, where education, industry influence, and narrative control often blur together.This is a conversation about identity under construction, about what happens when someone who remembers powerlessness steps into a role that carries authority, and about whether that memory can survive long enough to change anything.RELATED LINKSYan Leyfman on LinkedInYan Leyfman on InstagramSurviving ChernobylFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Health Affairs Publishing's Rob Lott speaks to Abe Sutton, Director of the Center for Medicare and Medicaid Innovation, about the ACCESS model and broader efforts to test payment and delivery reforms aimed at improving affordability, expanding digital health, and generating real-world evidence in Medicare. Sign up for our free Health Affairs newsletters to stay up to date on health policy news and analysis.

We've been told that if we just show people the data on racial health disparities, change will follow. It hasn't. In this episode, Corey sits down with Dr. Sarah Gollust (University of Minnesota) and Dr. Neil Lewis Jr. (Cornell University), researchers with the Collaborative on Media and Messaging for Health and Social Policy (CommHSP), to unpack why the numbers alone never move people — and what does. They dig into the fear of "backlash," why context changes everything, and the surprising finding that the communities most affected by inequity are often the most ready to act, yet are routinely left out of the research about them.Show NotesWhy does telling people the facts about health disparities so often fail to create change? Dr. Sarah Gollust and Dr. Neil Lewis Jr. have spent two decades studying exactly that question — how media and messaging shape what the public believes about health, race, and who deserves care. In this conversation, they make the case that data without context can backfire, while stories grounded in lived experience can mobilize people across racial and political lines.In this episode:Why "just show them the data" is an incomplete strategy — and what people actually need to understand the why behind health outcomesThe moment a governor called COVID "the great equalizer," and why it crystallized the urgency of getting health communication rightThe study that found 94% of racial-equity messaging research relied on majority-white or all-white samples — and what that bias erased"Beyond fear of backlash": why explaining the causes of disparities removes defensiveness instead of triggering itHow America's individualistic culture pushes people toward blaming individuals ("just eat healthier," "just exercise") instead of seeing systemsWhy people of color, often excluded from the research, turn out to be the most willing to mobilize for changeThe power of narrative transportation — and why Neil opens academic papers with a quote from Dr. King's The Other AmericaHow the collapse of local health journalism makes community-grounded stories harder to tell, and why independent platforms matter more than everKey takeaway: Don't go quiet because the conversation is hard. You're likely in the majority — and the right words, with real context, can bring people in rather than push them away.Connect with our guests:CommHSP: https://commhsp.org/Follow the collaborative on LinkedIn for new research and accessible summariesConnect with The Healthy Project:Subscribe to the Live, Work, Play, Pray Substack for more on population health, advocacy, and community wellnessThis episode touches on heavy topics, including structural racism and health inequity. Take care of yourself as you listen.A Word From Our SponsorThis episode is brought to you by Goodfeed.Good conversations like this one deserve a place to live and grow — and that's exactly what Goodfeed is built for. If you're a creator, advocate, or community builder who's tired of fighting the algorithm just to reach the people who actually want to hear from you, Goodfeed gives you a better way to share your voice and connect with your community on your own terms. No gatekeepers. No noise. Just your work, reaching the people who care about it.Check it out at https://www.goodfeed.co/ and start building your feed today. ★ Support this podcast ★

In this segment of "Cancer Registry World", Leticia Nogueira, PhD, MPH discusses the important role of registry  information in the work of the American Cancer Society.  As the Scientific Director of Health Services Research in the Surveillance and Health Equity Sciences Department at the American Cancer Society (ACS) and Adjunct Professor at the Rollins School of Public Health at Emory University, Dr. Nogueira has a unique perspective on the use of registry data for research and as important repositories for cancer reporting. Please enjoy listening and learning.

Matthew Zachary is a brain cancer survivor, healthcare advocate, founder of Stupid Cancer and We the Patients, and host of Out of Patients. In April 2026, he returned to the stage at Merkin Hall near Lincoln Center for his first solo public piano concert in almost 22 years while launching his debut book, We the Patients: Understanding, Navigating, and Surviving America's Healthcare Nightmare.What unfolded became far larger than a concert.Over 2 hours, survivors, clinicians, advocates, nonprofit founders, journalists, pharmaceutical sponsors, and healthcare insiders gathered in one room to reflect on 30 years of survivorship, institutional failure, accidental advocacy, and the emotional afterlife of cancer. The evening moved through original piano performances, live chapter readings, and deeply personal conversations about infertility, disability, financial toxicity, insurance denials, grief, burnout, and what happens when patients spend decades navigating systems designed around transactions instead of continuity.Guests including Wendell Potter, Maimah Karmo, Craig Lustig, Shelly Fuld Nasso, Tamika Felder, and others reflected on how the modern cancer advocacy movement emerged largely because patients built parallel systems where healthcare infrastructure failed to meet human needs. The conversation explored how prior authorization, reimbursement incentives, administrative fragmentation, and institutional distrust continue shaping the patient experience across oncology and survivorship.The performance also marked a deeply personal milestone. After brain cancer compromised his left hand at age 21, Zachary spent 6 months rehabilitating both hands to return to public performance for the first time in over 2 decades. The result became part concert, part civic gathering, and part historical record of a generation of survivors who refused to disappear quietly.RELATED LINKSMZLIVE Official WebsiteMZLIVE YouTube VideoFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Welcome to a new, limited podcast series exploring major policy changes affecting older adults. This episode is part of our Age-Friendly Health series, which explores topics at the intersection of aging, health, health care, and health policy.In our third and final episode for the series in 2026, host Katherine Ornstein welcomes Alison Barkoff of George Washington University to the program to discuss the rising economic and social importance of family caregiving, recent federal policy shifts affecting Medicaid and caregiver programs, and new interventions at the state and private‑sector levels.Support for the Age-Friendly Health series is provided by The John A. Hartford Foundation.Related Links:Reflections On Caregiving Policy: Progress, Challenges, And Opportunities (Health Affairs Forefront)History Repeats? Faced With Medicaid Cuts, States Reduced Support For Older Adults And Disabled People (Health Affairs Forefront)Long Term Services and Supports InitiativeNational Strategy to Support Family CaregiversNation Alliance for Caregiving's Caregiver Nation Coalition

In December 1996, a 37 year old pharmaceutical executive sat in a Borders bookstore reading medical textbooks on the floor, trying to understand a disease she had never heard of. Multiple myeloma carried a three year prognosis. Her daughter was 18 months old. Her father had just died of cancer. Within weeks, she pushed her doctors to say the quiet part clearly. This would likely end her life before her child entered kindergarten.Kathy Giusti refused to accept passive survival. She built a plan while the system offered fragments. She interviewed oncologists and fertility specialists at the same time. She pursued IVF to have a second child while preparing for treatment. She stayed employed to keep insurance coverage. Every decision carried financial, medical, and emotional risk.That same urgency exposed a deeper failure. Cancer research moved slowly. Academic centers guarded data. Clinical trials lacked coordination. Patients entered a system that demanded compliance without providing clarity. Giusti responded by building the Multiple Myeloma Research Foundation, not as a support group, but as an operating engine to accelerate drug development, fund research, and force collaboration across institutions.This episode tracks the tension between individual agency and systemic failure. Giusti describes how patients navigate diagnosis, insurance barriers, and fragmented care in real time. She explains how data, genomics, and clinical trials reshape cancer treatment while still leaving patients responsible for decisions they are not trained to make. She addresses disparities in access, the limits of early detection, and the reality that progress in oncology often depends on speed, funding, and alignment of incentives.The conversation moves between lived experience and structural critique. It names the cost of delay, the burden placed on patients to act as their own advocate, and the tradeoffs required to push a system forward that still protects itself first.⸻RELATED LINKSKathy GiustiMultiple Myeloma Research FoundationFatal to FearlessAmerican Society of Hematology⸻FEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Health Affairs Publishing's Rob Lott speaks to Jeff Romine of Carelon Research about his recent paper exploring new research on how extreme heat affects health care use and costs, finding consistent increases in emergency department visits and some hospitalizations, but little change in outpatient care. Order the May 2026 issue of Health Affairs.Sign up for our free Health Affairs newsletters to stay up to date on health policy news and analysis.

OA1264 - Sherise Doyley was in the early stages of labor, in a hospital bed, preparing to deliver her baby, when nurses wheeled in a computer. On the screen was a judge, notifying her of an emergency order by the State of Florida to attempt to force her to undergo a C-section, instead of first attempting vaginal delivery. For 3 hours she advocated for herself, without an attorney, barely covered in a hospital gown. How was any of this legal? What is happening? Jenessa breaks down the history of our rights to make our own medical decisions and how that is legally modified in pregnancy, Lydia shares her own birth experience and how these situations could be handled with actual compassion, and Thomas holds very still in hopes our eyes are based on movement (just kidding, Thomas is very supportive and also outraged). Come rage against the machine with us and hopefully breathe life into a revived pro-choice movement, before it's too late. Amy Yurkanin (Mar. 14, 2026), They Didn't Want to Have C-Sections. A Judge Would Decide How They Gave Birth, ProPublica. Video clips of Doyley hearing, provided by ProPublica's Facebook page Anuli Njoku, Marian Evans, Lillian Nimo-Sefah, & Jonell Bailey (2023). Listen to the Whispers before They Become Screams: Addressing Black Maternal Morbidity and Mortality in the United States, 11 Healthcare 438. Brad N. Greenwood, Rachel R. Hardeman, Laura Huang, & Aaron Sojourner (2020), Physician–patient racial concordance and disparities in birthing mortality for newborns, 117 Proceedings of the National Academy of Sciences 21194. Maternal Mortality Prevention (Dec. 18, 2025). Data from the Pregnancy Mortality Surveillance System, CDC. Bracey Harris & Elizabeth Chuck (Jan. 9, 2026), 'Her worst fear has come to pass': Midwife who advocated for Black women dies after giving birth, NBC News. Camila Domonoske (Apr. 17, 2018), 'Father Of Gynecology,' Who Experimented On Slaves, No Longer On Pedestal In NYC, NPR. Megan L. Swanson, Sara Whetstone, Tushani Illangasekare, & Amy (Meg) Autry (2021), Obstetrics and Gynecology and Reparations: The Debt We Owe (and Continue to Accumulate), 5 Health Equity 353. Nicole Loy (May 16, 2025), Pain and Gynecology: Raising Standards of Care, The Healthcare Review at Cornell University. Jess Mador (July 29, 2025), A Brain-Dead Pregnant Woman Was Kept Alive in Georgia. It's Unclear if State Law Required It, KFF Health News. (June 2025), Pregnancy Exceptionalism: A Review of Restrictions on Advance Directives, Pregnancy Justice. U.S. Const. amend. IX Jacobson v. Massachusetts, 197 U.S. 11 (1905) Rochin v. California, 342 U.S. 165 (1952) Cruzan v. Director, Missouri Dep't of Health, 497 U.S. 261 (1990) Washington v. Harper, 494 U.S. 210 (1990) Roe v. Wade, 410 U.S. 113 (1973) Planned Parenthood of Southeastern Pa. v. Casey, 505 U.S. 833 (1992) Dobbs v. Jackson Women's Health Organization, 597 U.S. 215 (2022) Heller v. Doe, 509 U.S. 312 (1993) State Dept. of Human Services v. Northern, 563 S.W.2d 197 (1978) Lane v. Candura, 6 Mass. App. Ct. 377 (1978) Koskenoja v. Whitmer, Mich. Ct. Cl. (2026) (Apr. 20, 2026), Michigan Pregnancy Exclusion Law is Unconstitutional, Compassion & Choices. Check out the OA Linktree for all the places to go and things to do!  

Welcome to a new, limited podcast series exploring major policy changes affecting older adults. This episode is part of our Age-Friendly Health series, which explores topics at the intersection of aging, health, health care, and health policy.In our second episode, host Katherine Ornstein welcomes Bianca Frogner, director of the Center for Health Workforce Studies at the University of Washington to discuss the role of direct care workers in long‑term care, workforce shortages, policy shifts affecting Medicaid, immigration, labor standards, and more.Support for the Age-Friendly Health series is provided by The John A. Hartford Foundation.Related LinksHealth Care Workforce Pay Gaps: COVID-19 Modestly Compressed Wage Disparities, 2015–24The AWARD NetworkPHI

At 19, Shlomit woke up unable to speak. The right side of her body went numb. An emergency room sent her home and called it stress. That moment did not end in a diagnosis that changed policy or triggered reform. It sent her into a decade long pursuit of understanding how the brain fails language and how the healthcare system fails patients who cannot advocate for themselves.Shlomit trained as a speech language pathologist and spent years inside acute care hospitals and ICUs, performing endoscopies and treating patients with brain injury, stroke, and dysphagia. She watched medical teams rotate in and out, deliver dense updates, and leave families nodding without comprehension. She stayed behind and translated. Every day, patients told her she was the only one who explained what was happening. That gap is not an accident. Hospital systems optimize for throughput, not understanding. Patients move through beds based on cost, not readiness. Discharge planning becomes a financial decision wrapped in clinical language. A stay under 48 hours can shift the insurance burden dramatically, leaving patients exposed to higher out of pocket costs. Shlomit left the system and built Patient Path NYC, a private patient advocacy service. She now spends 15 to 20 hours a week per client reading charts, coordinating care teams, and translating medical decisions into plain language. Her work sits in the uncomfortable space between healthcare policy and lived experience. Families pay out of pocket to understand their own care. Hospitals benefit from the clarity she provides while maintaining the same structural incentives that created the confusion.This conversation tracks the human cost of fragmented care, the economics behind discharge decisions, and the quiet reality that patients who cannot communicate clearly often lose control of their own outcomes.RELATED LINKSShlomit LibertyShlomit Liberty on LinkedInPatient Path NYCBoard Certified Patient AdvocateFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Health Affairs Publishing's Rob Lott speaks to Dhara Patel of the Cambridge Health Alliance and Harvard Medical School about her recent paper exploring national trends in cold‑related illness hospitalizations and how climate change and social vulnerability shape health risks across the United States.Order the May 2026 issue of Health Affairs.Sign up for our free Health Affairs newsletters to stay up to date on health policy news and analysis.

Health Calls Season 6, Episode 16 highlights how health systems across the United States are expanding medication access through the nonprofit Dispensary of Hope.  Host Brian Reardon speaks with Mike Wascovich, Vice President of Medication Management and Chief Pharmacy Officer at Ascension, about addressing one of the nation's most urgent challenges—prescription affordability. With as many as half of U.S. prescriptions going unfilled due to cost, the Dispensary of Hope connects donated medications from pharmaceutical partners to clinics and pharmacies serving vulnerable populations. Wascovich explains how the program has grown into a national network of more than 300 sites, helping patients manage chronic conditions like diabetes, asthma, and hypertension. By improving adherence, reducing hospitalizations, and cutting unnecessary waste, this collaborative model demonstrates how U.S. health care organizations can work together to lower costs, improve outcomes, and ensure patients receive the medications they need to heal. Health Calls is available on the following podcast streaming platforms:Apple PodcastsSpotifyYouTubeLearn more about The Catholic Health Association of the United States at www.chausa.org.

In 2020, developmental biologist Dr. Crystal Rogers drove the country roads outside Davis, California crying between grant rejections, wondering whether she was about to lose her lab, her career, and the scientific future she had spent years building. She had already done what academia tells young scientists to do. She earned the credentials. She landed a faculty position at UC Davis. She built a lab. Then the real test began.On this episode of Standard Deviation, Dr. Oliver Bogler examines the unspoken rules that determine which scientists survive academic research and which quietly disappear from it. The conversation follows Crystal Rogers and cancer biologist Dr. Michelle Mendoza as they collide with the “Hidden Curriculum” of biomedical science: the unwritten rhetoric, institutional signaling, and grant writing strategies that often decide who receives funding, tenure, and long term stability.Michelle Mendoza entered a tenure track position at the Huntsman Cancer Institute while raising 3 children, navigating a divorce, and trying to secure major NIH funding during COVID. What looked like objective scientific review turned out to depend heavily on persuasion, presentation, and insider fluency. Established researchers could promise massive research agendas based on reputation alone. Junior investigators faced a completely different standard.Oliver traces how the Life Science Editors Foundation and its JEDI program intervened by pairing scientists with former editors from journals including Cell and Nature. The work had little to do with commas or grammar. Editors challenged logic, structure, and scientific framing before grant reviewers could destroy an application in public.Both researchers eventually secured career defining grants. One realized she would keep her job and not have to move her family. The other celebrated by ordering a personalized “DEV BIO” license plate and driving through Davis blasting nineties hip hop and Beyoncé.The episode exposes how biomedical research funding rewards institutional fluency as much as scientific talent, and how hidden systems inside academic medicine continue shaping who gets to stay in science long enough to make discoveries.RELATED LINKSDr. Crystal Rogers LinkedInDr. Crystal Rogers Faculty PageDr. Crystal Rogers LabDr. Michelle Mendoza LinkedInDr. Michelle Mendoza Faculty PageHuntsman Cancer Institute Mendoza LabLife Science Editors FoundationFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Welcome to the first episode in a new, limited podcast series exploring major policy changes affecting older adults. The episode is part of our Age-Friendly Health series, which explores topics at the intersection of aging, health, health care, and health policy. In our first episode, host Katherine Ornstein welcomes Hemi Tewarson of the National Academy for State Health Policy to discuss how The Big Beautiful Bill will impact Medicaid and state health policies affecting older adults. Their conversation explores work requirements, Medicaid financing changes, rural health investments, the sustainability of age‑friendly services, and more.Support for the Age-Friendly Health series is provided by The John A. Hartford Foundation.

In 2008, Katy Talento walked away from Capitol Hill and into a Catholic convent. Within a year, she walked out. Within another decade, she sat inside the White House shaping health policy. Somewhere in between, she got labeled “infertile” after a single cycle of testing and spent years believing it.That label stuck. The pain that came before it never got investigated. Doctors offered birth control and moved on. No one asked why her body was struggling. No one followed the thread.Talento built her career inside the very systems she now critiques. She worked on federal health policy, global disease programs, and later advised the Trump administration on healthcare reform. She helped advance price transparency rules in a system where hospitals can still list 457 different prices for the same service.Then she left.Now she builds employer health plans that bypass insurers, PBMs, and traditional networks. Her approach replaces insurance contracts with direct payment, nurse navigators, and cost sharing models that promise simplicity but raise hard questions about risk and protection.This conversation sits in that tension.Talento describes a healthcare system shaped by layered incentives, where insurers, hospitals, and intermediaries profit from complexity. She argues that employers hold the leverage to disrupt it. The host pushes on what happens when patients fall outside those structures, when contracts disappear, and when community based models fail.The episode moves through infertility, misdiagnosis, insurance design, and the mechanics of employer sponsored care. It tracks how policy decisions made in Washington ripple into exam rooms, billing departments, and family lives.It also confronts a harder truth.Even insiders who understand the system can still get caught in it.RELATED LINKSAllBetter HealthKaty TalentoThem Before UsAn Arm and a LegRelentless Health ValueFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Health Affairs Publishing's Rob Lott speaks with Cynthia Strathmann of SAJE about her recent paper that examines how climate impacts such as extreme heat affect low‑income renters and what policymakers can do to balance climate adaptation with housing stability.Order the May 2026 issue of Health Affairs.Sign up for our free Health Affairs newsletters to stay up to date on health policy news and analysis.

In a wooded campground cabin in the early 2000s, 19 year old Ben Unger stood in the doorway and watched 20 naked men form a circle around a crying teenager. A counselor held up two tangerines and shouted, “These are your balls.” The exercise claimed to cure same sex attraction by forcing young men to “reclaim” their masculinity from overbearing mothers. Phones had been confiscated. Parents had paid thousands of dollars. Religion supplied the script. Pseudoscience supplied the props.Ben had grown up in an Orthodox Jewish community in Brooklyn and later studied in Israel to become a rabbi. When he admitted he felt attracted to men, rabbis told him to eat 7 figs a day, immerse in a ritual bath 5 times daily, or marry a woman and trust that “if there's friction, it works.” At 19, he entered conversion therapy through an organization called Jews Offering New Alternatives to Homosexuality, known as JONAH. He left with depression, religious trauma, and 6 months of silence toward the mother he had been taught to blame.Years later, represented by the Southern Poverty Law Center, Ben helped sue JONAH for consumer fraud in a landmark New Jersey case. The argument centered on evidence, not theology. Sexual orientation cannot be changed. The jury deliberated for 3 hours and ruled against the organization. The verdict helped reshape how states regulate conversion therapy and protect minors from psychological harm disguised as treatment.Today, Ben runs Buff Personal Training in New York City, a gym built on autonomy, mental health, and self respect. His story traces the arc from institutional control to self authorship. The conversation examines religion, LGBTQ rights, conversion therapy, consumer protection law, and the lasting cost of being told your identity is a disorder.RELATED LINKSBen Unger on LinkedInBen Unger on InstagramBUF Personal TrainingSouthern Poverty Law CenterJONAHFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.