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In the late 1980s, a child exposed to fallout from the Chernobyl disaster lay in a hospital bed while doctors told his family there were no clear answers and no reliable path forward. Decades later, that same child, Yan Leyfman, walks into exam rooms as a hematology oncology fellow, expected to deliver clarity inside a system that still runs on delay, uncertainty, and institutional self preservation.This episode traces the throughline from early life shaped by radiation exposure and hospice level uncertainty to a career inside academic medicine, translational research, and oncology media. Yan built his identity around survival and usefulness, moving from patient to physician while carrying the memory of what it feels like to sit on the other side of the table. He helped launch MedNews Week during the COVID crisis to push back on misinformation and expand access to medical knowledge, stepping into a public role while still in training.The conversation stays grounded in the friction between personal narrative and system reality. Clinical training demands efficiency, hierarchy, and emotional distance. Cancer care demands time, clarity, and human connection. Those forces collide in real patient encounters where prior authorization delays, insurance barriers, and fragmented care pathways shape outcomes as much as any treatment protocol.Yan speaks openly about mentorship, belonging, and the drive to make meaning out of survival. The discussion pushes further into what the healthcare system actually rewards, what it quietly strips away, and how quickly empathy can erode under institutional pressure. The episode also examines the role of medical media, where education, industry influence, and narrative control often blur together.This is a conversation about identity under construction, about what happens when someone who remembers powerlessness steps into a role that carries authority, and about whether that memory can survive long enough to change anything.RELATED LINKSYan Leyfman on LinkedInYan Leyfman on InstagramSurviving ChernobylFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
We've been told that if we just show people the data on racial health disparities, change will follow. It hasn't. In this episode, Corey sits down with Dr. Sarah Gollust (University of Minnesota) and Dr. Neil Lewis Jr. (Cornell University), researchers with the Collaborative on Media and Messaging for Health and Social Policy (CommHSP), to unpack why the numbers alone never move people — and what does. They dig into the fear of "backlash," why context changes everything, and the surprising finding that the communities most affected by inequity are often the most ready to act, yet are routinely left out of the research about them.Show NotesWhy does telling people the facts about health disparities so often fail to create change? Dr. Sarah Gollust and Dr. Neil Lewis Jr. have spent two decades studying exactly that question — how media and messaging shape what the public believes about health, race, and who deserves care. In this conversation, they make the case that data without context can backfire, while stories grounded in lived experience can mobilize people across racial and political lines.In this episode:Why "just show them the data" is an incomplete strategy — and what people actually need to understand the why behind health outcomesThe moment a governor called COVID "the great equalizer," and why it crystallized the urgency of getting health communication rightThe study that found 94% of racial-equity messaging research relied on majority-white or all-white samples — and what that bias erased"Beyond fear of backlash": why explaining the causes of disparities removes defensiveness instead of triggering itHow America's individualistic culture pushes people toward blaming individuals ("just eat healthier," "just exercise") instead of seeing systemsWhy people of color, often excluded from the research, turn out to be the most willing to mobilize for changeThe power of narrative transportation — and why Neil opens academic papers with a quote from Dr. King's The Other AmericaHow the collapse of local health journalism makes community-grounded stories harder to tell, and why independent platforms matter more than everKey takeaway: Don't go quiet because the conversation is hard. You're likely in the majority — and the right words, with real context, can bring people in rather than push them away.Connect with our guests:CommHSP: https://commhsp.org/Follow the collaborative on LinkedIn for new research and accessible summariesConnect with The Healthy Project:Subscribe to the Live, Work, Play, Pray Substack for more on population health, advocacy, and community wellnessThis episode touches on heavy topics, including structural racism and health inequity. Take care of yourself as you listen.A Word From Our SponsorThis episode is brought to you by Goodfeed.Good conversations like this one deserve a place to live and grow — and that's exactly what Goodfeed is built for. If you're a creator, advocate, or community builder who's tired of fighting the algorithm just to reach the people who actually want to hear from you, Goodfeed gives you a better way to share your voice and connect with your community on your own terms. No gatekeepers. No noise. Just your work, reaching the people who care about it.Check it out at https://www.goodfeed.co/ and start building your feed today. ★ Support this podcast ★
In this segment of "Cancer Registry World", Leticia Nogueira, PhD, MPH discusses the important role of registry information in the work of the American Cancer Society. As the Scientific Director of Health Services Research in the Surveillance and Health Equity Sciences Department at the American Cancer Society (ACS) and Adjunct Professor at the Rollins School of Public Health at Emory University, Dr. Nogueira has a unique perspective on the use of registry data for research and as important repositories for cancer reporting. Please enjoy listening and learning.
Matthew Zachary is a brain cancer survivor, healthcare advocate, founder of Stupid Cancer and We the Patients, and host of Out of Patients. In April 2026, he returned to the stage at Merkin Hall near Lincoln Center for his first solo public piano concert in almost 22 years while launching his debut book, We the Patients: Understanding, Navigating, and Surviving America's Healthcare Nightmare.What unfolded became far larger than a concert.Over 2 hours, survivors, clinicians, advocates, nonprofit founders, journalists, pharmaceutical sponsors, and healthcare insiders gathered in one room to reflect on 30 years of survivorship, institutional failure, accidental advocacy, and the emotional afterlife of cancer. The evening moved through original piano performances, live chapter readings, and deeply personal conversations about infertility, disability, financial toxicity, insurance denials, grief, burnout, and what happens when patients spend decades navigating systems designed around transactions instead of continuity.Guests including Wendell Potter, Maimah Karmo, Craig Lustig, Shelly Fuld Nasso, Tamika Felder, and others reflected on how the modern cancer advocacy movement emerged largely because patients built parallel systems where healthcare infrastructure failed to meet human needs. The conversation explored how prior authorization, reimbursement incentives, administrative fragmentation, and institutional distrust continue shaping the patient experience across oncology and survivorship.The performance also marked a deeply personal milestone. After brain cancer compromised his left hand at age 21, Zachary spent 6 months rehabilitating both hands to return to public performance for the first time in over 2 decades. The result became part concert, part civic gathering, and part historical record of a generation of survivors who refused to disappear quietly.RELATED LINKSMZLIVE Official WebsiteMZLIVE YouTube VideoFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Welcome to a new, limited podcast series exploring major policy changes affecting older adults. This episode is part of our Age-Friendly Health series, which explores topics at the intersection of aging, health, health care, and health policy.In our third and final episode for the series in 2026, host Katherine Ornstein welcomes Alison Barkoff of George Washington University to the program to discuss the rising economic and social importance of family caregiving, recent federal policy shifts affecting Medicaid and caregiver programs, and new interventions at the state and private‑sector levels.Support for the Age-Friendly Health series is provided by The John A. Hartford Foundation.Related Links:Reflections On Caregiving Policy: Progress, Challenges, And Opportunities (Health Affairs Forefront)History Repeats? Faced With Medicaid Cuts, States Reduced Support For Older Adults And Disabled People (Health Affairs Forefront)Long Term Services and Supports InitiativeNational Strategy to Support Family CaregiversNation Alliance for Caregiving's Caregiver Nation Coalition
In December 1996, a 37 year old pharmaceutical executive sat in a Borders bookstore reading medical textbooks on the floor, trying to understand a disease she had never heard of. Multiple myeloma carried a three year prognosis. Her daughter was 18 months old. Her father had just died of cancer. Within weeks, she pushed her doctors to say the quiet part clearly. This would likely end her life before her child entered kindergarten.Kathy Giusti refused to accept passive survival. She built a plan while the system offered fragments. She interviewed oncologists and fertility specialists at the same time. She pursued IVF to have a second child while preparing for treatment. She stayed employed to keep insurance coverage. Every decision carried financial, medical, and emotional risk.That same urgency exposed a deeper failure. Cancer research moved slowly. Academic centers guarded data. Clinical trials lacked coordination. Patients entered a system that demanded compliance without providing clarity. Giusti responded by building the Multiple Myeloma Research Foundation, not as a support group, but as an operating engine to accelerate drug development, fund research, and force collaboration across institutions.This episode tracks the tension between individual agency and systemic failure. Giusti describes how patients navigate diagnosis, insurance barriers, and fragmented care in real time. She explains how data, genomics, and clinical trials reshape cancer treatment while still leaving patients responsible for decisions they are not trained to make. She addresses disparities in access, the limits of early detection, and the reality that progress in oncology often depends on speed, funding, and alignment of incentives.The conversation moves between lived experience and structural critique. It names the cost of delay, the burden placed on patients to act as their own advocate, and the tradeoffs required to push a system forward that still protects itself first.⸻RELATED LINKSKathy GiustiMultiple Myeloma Research FoundationFatal to FearlessAmerican Society of Hematology⸻FEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Health Affairs Publishing's Rob Lott speaks to Jeff Romine of Carelon Research about his recent paper exploring new research on how extreme heat affects health care use and costs, finding consistent increases in emergency department visits and some hospitalizations, but little change in outpatient care. Order the May 2026 issue of Health Affairs.Sign up for our free Health Affairs newsletters to stay up to date on health policy news and analysis.
OA1264 - Sherise Doyley was in the early stages of labor, in a hospital bed, preparing to deliver her baby, when nurses wheeled in a computer. On the screen was a judge, notifying her of an emergency order by the State of Florida to attempt to force her to undergo a C-section, instead of first attempting vaginal delivery. For 3 hours she advocated for herself, without an attorney, barely covered in a hospital gown. How was any of this legal? What is happening? Jenessa breaks down the history of our rights to make our own medical decisions and how that is legally modified in pregnancy, Lydia shares her own birth experience and how these situations could be handled with actual compassion, and Thomas holds very still in hopes our eyes are based on movement (just kidding, Thomas is very supportive and also outraged). Come rage against the machine with us and hopefully breathe life into a revived pro-choice movement, before it's too late. Amy Yurkanin (Mar. 14, 2026), They Didn't Want to Have C-Sections. A Judge Would Decide How They Gave Birth, ProPublica. Video clips of Doyley hearing, provided by ProPublica's Facebook page Anuli Njoku, Marian Evans, Lillian Nimo-Sefah, & Jonell Bailey (2023). Listen to the Whispers before They Become Screams: Addressing Black Maternal Morbidity and Mortality in the United States, 11 Healthcare 438. Brad N. Greenwood, Rachel R. Hardeman, Laura Huang, & Aaron Sojourner (2020), Physician–patient racial concordance and disparities in birthing mortality for newborns, 117 Proceedings of the National Academy of Sciences 21194. Maternal Mortality Prevention (Dec. 18, 2025). Data from the Pregnancy Mortality Surveillance System, CDC. Bracey Harris & Elizabeth Chuck (Jan. 9, 2026), 'Her worst fear has come to pass': Midwife who advocated for Black women dies after giving birth, NBC News. Camila Domonoske (Apr. 17, 2018), 'Father Of Gynecology,' Who Experimented On Slaves, No Longer On Pedestal In NYC, NPR. Megan L. Swanson, Sara Whetstone, Tushani Illangasekare, & Amy (Meg) Autry (2021), Obstetrics and Gynecology and Reparations: The Debt We Owe (and Continue to Accumulate), 5 Health Equity 353. Nicole Loy (May 16, 2025), Pain and Gynecology: Raising Standards of Care, The Healthcare Review at Cornell University. Jess Mador (July 29, 2025), A Brain-Dead Pregnant Woman Was Kept Alive in Georgia. It's Unclear if State Law Required It, KFF Health News. (June 2025), Pregnancy Exceptionalism: A Review of Restrictions on Advance Directives, Pregnancy Justice. U.S. Const. amend. IX Jacobson v. Massachusetts, 197 U.S. 11 (1905) Rochin v. California, 342 U.S. 165 (1952) Cruzan v. Director, Missouri Dep't of Health, 497 U.S. 261 (1990) Washington v. Harper, 494 U.S. 210 (1990) Roe v. Wade, 410 U.S. 113 (1973) Planned Parenthood of Southeastern Pa. v. Casey, 505 U.S. 833 (1992) Dobbs v. Jackson Women's Health Organization, 597 U.S. 215 (2022) Heller v. Doe, 509 U.S. 312 (1993) State Dept. of Human Services v. Northern, 563 S.W.2d 197 (1978) Lane v. Candura, 6 Mass. App. Ct. 377 (1978) Koskenoja v. Whitmer, Mich. Ct. Cl. (2026) (Apr. 20, 2026), Michigan Pregnancy Exclusion Law is Unconstitutional, Compassion & Choices. Check out the OA Linktree for all the places to go and things to do!
Welcome to a new, limited podcast series exploring major policy changes affecting older adults. This episode is part of our Age-Friendly Health series, which explores topics at the intersection of aging, health, health care, and health policy.In our second episode, host Katherine Ornstein welcomes Bianca Frogner, director of the Center for Health Workforce Studies at the University of Washington to discuss the role of direct care workers in long‑term care, workforce shortages, policy shifts affecting Medicaid, immigration, labor standards, and more.Support for the Age-Friendly Health series is provided by The John A. Hartford Foundation.Related LinksHealth Care Workforce Pay Gaps: COVID-19 Modestly Compressed Wage Disparities, 2015–24The AWARD NetworkPHI
Transforming healthcare delivery in resource-limited contexts around the world calls for compassionate, innovative solutions. Learn how The Luke Commission is bringing healthcare to the most isolated and underserved in Eswatini through a scalable model for advancing health equity.
At 19, Shlomit woke up unable to speak. The right side of her body went numb. An emergency room sent her home and called it stress. That moment did not end in a diagnosis that changed policy or triggered reform. It sent her into a decade long pursuit of understanding how the brain fails language and how the healthcare system fails patients who cannot advocate for themselves.Shlomit trained as a speech language pathologist and spent years inside acute care hospitals and ICUs, performing endoscopies and treating patients with brain injury, stroke, and dysphagia. She watched medical teams rotate in and out, deliver dense updates, and leave families nodding without comprehension. She stayed behind and translated. Every day, patients told her she was the only one who explained what was happening. That gap is not an accident. Hospital systems optimize for throughput, not understanding. Patients move through beds based on cost, not readiness. Discharge planning becomes a financial decision wrapped in clinical language. A stay under 48 hours can shift the insurance burden dramatically, leaving patients exposed to higher out of pocket costs. Shlomit left the system and built Patient Path NYC, a private patient advocacy service. She now spends 15 to 20 hours a week per client reading charts, coordinating care teams, and translating medical decisions into plain language. Her work sits in the uncomfortable space between healthcare policy and lived experience. Families pay out of pocket to understand their own care. Hospitals benefit from the clarity she provides while maintaining the same structural incentives that created the confusion.This conversation tracks the human cost of fragmented care, the economics behind discharge decisions, and the quiet reality that patients who cannot communicate clearly often lose control of their own outcomes.RELATED LINKSShlomit LibertyShlomit Liberty on LinkedInPatient Path NYCBoard Certified Patient AdvocateFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Health Affairs Publishing's Rob Lott speaks to Dhara Patel of the Cambridge Health Alliance and Harvard Medical School about her recent paper exploring national trends in cold‑related illness hospitalizations and how climate change and social vulnerability shape health risks across the United States.Order the May 2026 issue of Health Affairs.Sign up for our free Health Affairs newsletters to stay up to date on health policy news and analysis.
Health Calls Season 6, Episode 16 highlights how health systems across the United States are expanding medication access through the nonprofit Dispensary of Hope. Host Brian Reardon speaks with Mike Wascovich, Vice President of Medication Management and Chief Pharmacy Officer at Ascension, about addressing one of the nation's most urgent challenges—prescription affordability. With as many as half of U.S. prescriptions going unfilled due to cost, the Dispensary of Hope connects donated medications from pharmaceutical partners to clinics and pharmacies serving vulnerable populations. Wascovich explains how the program has grown into a national network of more than 300 sites, helping patients manage chronic conditions like diabetes, asthma, and hypertension. By improving adherence, reducing hospitalizations, and cutting unnecessary waste, this collaborative model demonstrates how U.S. health care organizations can work together to lower costs, improve outcomes, and ensure patients receive the medications they need to heal. Health Calls is available on the following podcast streaming platforms:Apple PodcastsSpotifyYouTubeLearn more about The Catholic Health Association of the United States at www.chausa.org.
In 2020, developmental biologist Dr. Crystal Rogers drove the country roads outside Davis, California crying between grant rejections, wondering whether she was about to lose her lab, her career, and the scientific future she had spent years building. She had already done what academia tells young scientists to do. She earned the credentials. She landed a faculty position at UC Davis. She built a lab. Then the real test began.On this episode of Standard Deviation, Dr. Oliver Bogler examines the unspoken rules that determine which scientists survive academic research and which quietly disappear from it. The conversation follows Crystal Rogers and cancer biologist Dr. Michelle Mendoza as they collide with the “Hidden Curriculum” of biomedical science: the unwritten rhetoric, institutional signaling, and grant writing strategies that often decide who receives funding, tenure, and long term stability.Michelle Mendoza entered a tenure track position at the Huntsman Cancer Institute while raising 3 children, navigating a divorce, and trying to secure major NIH funding during COVID. What looked like objective scientific review turned out to depend heavily on persuasion, presentation, and insider fluency. Established researchers could promise massive research agendas based on reputation alone. Junior investigators faced a completely different standard.Oliver traces how the Life Science Editors Foundation and its JEDI program intervened by pairing scientists with former editors from journals including Cell and Nature. The work had little to do with commas or grammar. Editors challenged logic, structure, and scientific framing before grant reviewers could destroy an application in public.Both researchers eventually secured career defining grants. One realized she would keep her job and not have to move her family. The other celebrated by ordering a personalized “DEV BIO” license plate and driving through Davis blasting nineties hip hop and Beyoncé.The episode exposes how biomedical research funding rewards institutional fluency as much as scientific talent, and how hidden systems inside academic medicine continue shaping who gets to stay in science long enough to make discoveries.RELATED LINKSDr. Crystal Rogers LinkedInDr. Crystal Rogers Faculty PageDr. Crystal Rogers LabDr. Michelle Mendoza LinkedInDr. Michelle Mendoza Faculty PageHuntsman Cancer Institute Mendoza LabLife Science Editors FoundationFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Welcome to the first episode in a new, limited podcast series exploring major policy changes affecting older adults. The episode is part of our Age-Friendly Health series, which explores topics at the intersection of aging, health, health care, and health policy. In our first episode, host Katherine Ornstein welcomes Hemi Tewarson of the National Academy for State Health Policy to discuss how The Big Beautiful Bill will impact Medicaid and state health policies affecting older adults. Their conversation explores work requirements, Medicaid financing changes, rural health investments, the sustainability of age‑friendly services, and more.Support for the Age-Friendly Health series is provided by The John A. Hartford Foundation.
In 2008, Katy Talento walked away from Capitol Hill and into a Catholic convent. Within a year, she walked out. Within another decade, she sat inside the White House shaping health policy. Somewhere in between, she got labeled “infertile” after a single cycle of testing and spent years believing it.That label stuck. The pain that came before it never got investigated. Doctors offered birth control and moved on. No one asked why her body was struggling. No one followed the thread.Talento built her career inside the very systems she now critiques. She worked on federal health policy, global disease programs, and later advised the Trump administration on healthcare reform. She helped advance price transparency rules in a system where hospitals can still list 457 different prices for the same service.Then she left.Now she builds employer health plans that bypass insurers, PBMs, and traditional networks. Her approach replaces insurance contracts with direct payment, nurse navigators, and cost sharing models that promise simplicity but raise hard questions about risk and protection.This conversation sits in that tension.Talento describes a healthcare system shaped by layered incentives, where insurers, hospitals, and intermediaries profit from complexity. She argues that employers hold the leverage to disrupt it. The host pushes on what happens when patients fall outside those structures, when contracts disappear, and when community based models fail.The episode moves through infertility, misdiagnosis, insurance design, and the mechanics of employer sponsored care. It tracks how policy decisions made in Washington ripple into exam rooms, billing departments, and family lives.It also confronts a harder truth.Even insiders who understand the system can still get caught in it.RELATED LINKSAllBetter HealthKaty TalentoThem Before UsAn Arm and a LegRelentless Health ValueFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Health Affairs Publishing's Rob Lott speaks with Cynthia Strathmann of SAJE about her recent paper that examines how climate impacts such as extreme heat affect low‑income renters and what policymakers can do to balance climate adaptation with housing stability.Order the May 2026 issue of Health Affairs.Sign up for our free Health Affairs newsletters to stay up to date on health policy news and analysis.
In this episode of the Medical Alley Podcast, host Bobbie Dressen sits down with National Geographic photographer and filmmaker David McLain for a powerful conversation ahead of his keynote at the 2026 Medical Alley Annual Celebration on May 21st. Drawing from his decades of work — from documenting the world's longest-living populations in the Blue Zones, to capturing the realities of underserved communities across the U.S. — David shares what he's learned about prevention, environment, and the role of access in shaping health outcomes. As David puts it, "We all deserve a fair shot at living a life in full health." This episode is a reminder of what's at stake, and what's possible when we see the world through someone else's eyes. Send us a message!Follow Medical Alley on social media on LinkedIn, Facebook, X and Instagram.
In a wooded campground cabin in the early 2000s, 19 year old Ben Unger stood in the doorway and watched 20 naked men form a circle around a crying teenager. A counselor held up two tangerines and shouted, “These are your balls.” The exercise claimed to cure same sex attraction by forcing young men to “reclaim” their masculinity from overbearing mothers. Phones had been confiscated. Parents had paid thousands of dollars. Religion supplied the script. Pseudoscience supplied the props.Ben had grown up in an Orthodox Jewish community in Brooklyn and later studied in Israel to become a rabbi. When he admitted he felt attracted to men, rabbis told him to eat 7 figs a day, immerse in a ritual bath 5 times daily, or marry a woman and trust that “if there's friction, it works.” At 19, he entered conversion therapy through an organization called Jews Offering New Alternatives to Homosexuality, known as JONAH. He left with depression, religious trauma, and 6 months of silence toward the mother he had been taught to blame.Years later, represented by the Southern Poverty Law Center, Ben helped sue JONAH for consumer fraud in a landmark New Jersey case. The argument centered on evidence, not theology. Sexual orientation cannot be changed. The jury deliberated for 3 hours and ruled against the organization. The verdict helped reshape how states regulate conversion therapy and protect minors from psychological harm disguised as treatment.Today, Ben runs Buff Personal Training in New York City, a gym built on autonomy, mental health, and self respect. His story traces the arc from institutional control to self authorship. The conversation examines religion, LGBTQ rights, conversion therapy, consumer protection law, and the lasting cost of being told your identity is a disorder.RELATED LINKSBen Unger on LinkedInBen Unger on InstagramBUF Personal TrainingSouthern Poverty Law CenterJONAHFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Health Affairs Publishing's Rob Lott speaks with Maud Powell of Oregon State University about her recent paper examining stress and anxiety among farmers and ranchers and the interventions that may help address these challenges.Order the May 2026 issue of Health Affairs.Sign up for our free Health Affairs newsletters to stay up to date on health policy news and analysis.
Health equity is being reorganized, renamed, or quietly deprioritized. Ramona Burress, co-founder of Onyx Health Collective, and Cassandra O'Neal, founder of Illuminated Arc Consulting, join the Scope of Things podcast for a direct, practical conversation about health equity in clinical trials. They break down what “decision-grade intelligence” looks like for site selection and community integration, why marketing-style segmentation and better storytelling can improve outreach, and why health equity needs a neutral home inside the company with real influence. Plus, host Deborah Borfitz shares the latest news on a UK initiative for accelerating dementia trials, the enterprise-wide rollout of an AI patient-finding platform at the Cleveland Clinic, and what Reddit users have to say about unreported side effects of weight loss drugs. Subscribe, share, leave a rating and review, and tell us: what's the biggest barrier you see to making health equity measurable in your organization? The Scope of Things podcast explores clinical research and its possibilities, promise, and pitfalls. Clinical Research News senior writer, Deborah Borfitz, welcomes guests who are visionaries closest to the topics, but who can still see past their piece of the puzzle. Focusing on game-changing trends and out-of-the-box operational approaches in the clinical research field, the Scope of Things podcast is your no-nonsense, insider's look at clinical research today.
In this episode of Behind the Pages, Health Affairs Publishing's Margaret Winchester interviews theme issue advisor Sacoby Wilson of The University of Maryland about key themes from the May Health Affairs issue on climate, health, and equity, with a focus on community‑led approaches, health system interventions, and scalable policy solutions to address climate‑related health risks. Order the May 2026 issue of Health Affairs.Join Health Affairs Publishing on May 6th for a free virtual event discussing research, insights, data, and takeaways from the May 2026 theme issue on climate, health, and equity.Sign up for our free Health Affairs newsletters to stay up to date on health policy news and analysis.
Remote technology can bring health interventions to patients who may struggle to get themselves to care because of where they live or how much money they have. Tae Joon Moon, Ph.D., has found that transdermal alcohol monitors are a remote tech that might help treat people with alcohol use disorder.
Indigenous maternal health is in a critical state, but we can change that.Learn why 93% of pregnancy-related deaths in these communities are preventable. Explore the healthcare gaps for First Nations and how restorative midwifery is working to save lives. https://bit.ly/4uncumOWhat You'll Learn:The 93% Preventability Gap: While 87% of all U.S. maternal deaths are preventable, that number rises to 93% for Native American and Alaska Native populations, signaling a critical failure in the care pipeline.The Postpartum "Blind Spot": 68% of pregnancy-related deaths occur between one week and one year after birth. Most of these happen after 43 days postpartum, a period when many mothers lose insurance or clinical support. Leading Causes are Treatable: Mental health conditions and infections are the top underlying causes. These are highly manageable when caught early, yet they often go unnoticed in "medical deserts." The Power of Advocacy: Learn why every mother should explicitly state, "I was pregnant within the last year," to every healthcare provider they see to trigger appropriate clinical protocols.Restoring Traditions: How Indigenous-led midwifery and the Momnibus Act are working to dismantle systemic bias and return to culturally safe birthing practices.#MaternalHealth #NativeHealth #PublicHealth #PostpartumCare #HealthEquity #HearHer #MaternalMortality #WomensHealth #IndigenousHealth #HealthcareAccess #CDCSupport the showConnect with Us: Email our Host: mail@every1dies.org Website: https://every1dies.org: Find show notes, links and expanded resources Follow Us: Facebook | Instagram | YouTube
In 2025, U.S. digital health startups raised $14.2 billion. AI-enabled companies captured 54% of it. Every prediction in every roundup carries one quiet assumption underneath it. The patient on the receiving end can use what's being built. The Pew data from January says something different. Two trajectories. One looks like progress in aggregate. The other looks like the patients with the worst health outcomes being structurally locked out of the system that's being built. Chris Boyer and Reed Smith examine what happens when digital strategy and health equity stop being parallel tracks and become the same problem. Why the 2026 AI investment narrative quietly assumes a digitally capable patient, and what the population data actually shows The smartphone-dependent patient most health systems haven't internalized, and why portal UX fails them by design Why disparities in patient portal access are widening for low-income, less-educated and 65-plus populations, even as overall use rises What the 2025 cancellation of federal digital equity funding means for health systems whose patient panels actually need the work done Modality mix as the reframe: digital, phone, in-person and printed channels as a portfolio allocated by segment, not a hierarchy everyone migrates toward The University of Michigan study published in JAMA Network Open in October is the one to anchor on. Researchers looked at 511 hospitals in 51 counties in 17 states where census data showed at least 300,000 LEP residents. 29% of those hospitals offered the patient portal login in English only. 60% offered English plus Spanish. 11% offered three or more languages. In counties specifically chosen because they have hundreds of thousands of patients who don't speak English at home. If your most-invested-in digital experience reaches the patients who already had the most options, and barely touches the patients with the worst outcomes, what is your digital strategy actually optimizing for? Mentions from the Show: Pew Research Center, NPORS 2025, January 2026: https://www.pewresearch.org/short-reads/2026/01/08/internet-use-smartphone-ownership-digital-divides-in-u-s/ Pew Research Center, Internet/Broadband Fact Sheet, December 2025: https://www.pewresearch.org/internet/fact-sheet/internet-broadband/ Pew Research Center, Mobile Fact Sheet, December 2025: https://www.pewresearch.org/internet/fact-sheet/mobile/ OATS / Benton Institute, 19 Million Older Adults Lack Broadband, 2025: https://www.benton.org/blog/19-million-older-adults-lack-broadband Shah & Fiala, Disparities in Patient Portal Access and Utilization, Journal of General Internal Medicine, January 2025: https://link.springer.com/article/10.1007/s11606-025-09359-z Chen et al. (U-Michigan), Language Barriers and Access to Hospital Patient Portals in the US, JAMA Network Open, October 2025: https://ihpi.umich.edu/news-events/news/language-barriers-health-care-have-fallen-not-online-study-shows Healthcare Dive, Top healthcare AI trends in 2026 (Rock Health funding data), January 2026: https://www.healthcaredive.com/news/top-healthcare-ai-artificial-intelligence-trends-2026/809493/ HIT Consultant / CB Insights, Q1 2026 Digital Health Funding, April 2026: https://hitconsultant.net/2026/04/20/digital-health-funding-q1-2026-ai-ma-rebound/ Chief Healthcare Executive, AI in health care: 26 leaders offer predictions for 2026, January 2026: https://www.chiefhealthcareexecutive.com/view/ai-in-health-care-26-leaders-offer-predictions-for-2026 JMIR, Bridging Rural America's Digital Divide in Health Care, December 2025: https://www.jmir.org/2025/1/e88833 Johns Hopkins Bloomberg School, Bridging the Digital Divide in Health Care: A New Framework for Equity, January 2025: https://publichealth.jhu.edu/2025/bridging-the-digital-divide-in-health-care-a-new-framework-for-equity NPR, How ending the Digital Equity Act has disrupted programs to help people get online, November 2025: https://www.npr.org/2025/11/12/nx-s1-5594805/how-ending-the-digital-equity-act-has-disrupted-programs-to-help-people-get-online ScienceDirect narrative review, Addressing language barriers in U.S. healthcare, November 2025: https://www.sciencedirect.com/science/article/pii/S2772632025000418 Reed Smith on LinkedIn: https://www.linkedin.com/in/reedtsmith/ Chris Boyer on LinkedIn: https://www.linkedin.com/in/chrisboyer/ Chris Boyer website: http://www.christopherboyer.com/ Chris Boyer on BlueSky: https://bsky.app/profile/chrisboyer.bsky.social Reed Smith on BlueSky: https://bsky.app/profile/reedsmith.bsky.social Learn more about your ad choices. Visit megaphone.fm/adchoices
Drew Flugstad-Clarke never planned to work in brain cancer. She planned to play Division I soccer at Georgetown. She planned to paint. She even tried investment banking, answering emails at 4am in a cubicle that never slept. Then in June 2022 her father, Jim, was diagnosed with glioblastoma at 57. He died 1 day shy of 7 months later, just before his 58th birthday. His symptoms began with emotion, not seizures. A steady HR executive suddenly cried. His golf game slipped. By the time he entered the hospital for a scan, he did not leave without surgery. A subway poster for a 5K became a lifeline. Drew showed up. She found a community. She later joined the American Brain Tumor Association as Community Manager for the Eastern Region. This conversation walks through anticipatory grief, caregiving in real time, strategic numbness, and what it costs to curate hope when the median survival clock is already ticking.RELATED LINKSDrew Clark Flukestad on LinkedInTopor StudiosAmerican Brain Tumor AssociationGeorgetown University Women's SoccerFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Health Affairs Publishing's Rob Lott interviews Jason Buxbaum of Brown University about his recent paper that explores new research on administrative spending in U.S. health insurance and why it varies so widely across states and markets. Order the March 2026 issue of Health Affairs.'Sign up for our free Health Affairs newsletters to stay up to date on health policy news and analysis.
Janine Durso spent 30 years inside pharmaceutical advertising shaping healthcare narratives before becoming a belief strategist and founder of The Believist. In November 2024, during a routine Zoom coaching session, she felt what she called a sharp, terrible pain in the right side of her head. Within hours she was in surgery for a ruptured brain aneurysm. She does not remember the ambulance, the ICU, or the first weeks that followed. She spent 5 weeks in intensive care, then 10 days relearning how to walk, calculate simple change, and manage basic cognition. Doctors later placed a stent and continue monitoring a second unruptured aneurysm.This episode traces the moment she told her husband something broke in my brain, the 14 days doctors called touch and go, and the slow mental rebuild that followed. It also examines insurance barriers that require 2 direct relatives with aneurysms before screening coverage, and why she now lobbies in Washington for change.RELATED LINKSJanine DursoThe BelievistBrain Aneurysm FoundationWhite Plains HospitalDr. Jared CooperFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Health Affairs Publishing's Rob Lott interviews Andrew Anderson of Johns Hopkins University about his recent paper that explores new research on the Medicare Advantage Star Ratings program and how effectively it has driven quality improvement over time. Sign up for our free Health Affairs newsletters to stay up to date on health policy news and analysis.Order the April 2026 issue of Health Affairs.
We Talk Weekly News is a weekly news and culture podcast delivering powerful analysis, real conversations, and unfiltered commentary on the biggest stories shaping our world today. On WPPM 106.5 FM Philadelphia every Saturday at 8 p.m. to 10 p.m., Hosted by celebrity stylist & radio personality Charles Gregory, journalist and media personality Lauren "Sizzle" Settles and health correspondent "Classy Lady" Sparkle Howell. We feature expert guests, political and public figures, celebrities, and community leaders combined with legal and law enforcement analysis and commentary.We Talk Weekly News takes you beyond the headlines with breaking news, political analysis, entertainment updates, and trending cultural conversations all through a sharp, informed, and unapologetically urban lens. From U.S. politics and policy to global events, celebrity headlines, music, and the viral moments everyone's talking about — this is where news meets culture and perspective meets truth.In this segment, we interview Dr. Veronica Jarido:March was National Colorectal Cancer Awareness Month, dedicated to increasing screening rates, promoting early detection, and educating the public on preventing GI cancers. I have the perfect expert, who can both educate and engage your audience.Dr. Veronica Jarido is a practicing gastroenterologist in rural Tennessee. Currently, she is transitioning to her role as an independently contracted physicians. Her interests include health equity, improving access to care in rural and impoverished communities, and patient education without medical jargon. She obtained her medical degree from The University of Pittsburgh. She completed her Internal Medicine residency at Duke University and completed her fellowship for gastroenterology at The Ohio State University Medical Center. Dr. Veronica Instagramhttps://www.instagram.com/ladydocofbuttsandguts?igsh=cXpodGNrcmJ2OXQxhttps://www.youtube.com/live/sKF3yDCFAXI?si=9DUgJ8abWRJYNutTBecome a supporter of this podcast: https://www.spreaker.com/podcast/we-talk-weekly-news--2576999/support.Subscribe to We Talk Weekly News' YouTube channel for full podcast video show episodes:https://www.youtube.com/@WeTalkWeeklyTVFollow We Talk Weekly News across all social media platforms for exclusive content, breaking updates, and behind-the-scenes access:Instagram: https://www.instagram.com/wetalkweeklyTwitter (X): https://twitter.com/WeTalkWeeklyFacebook: https://www.facebook.com/wetalkweekly
Rebecca Benghiat holds a JD, passed the bar, and skipped corporate law to build mental health systems instead. She now serves as Chief of Staff and Head of Impact at Inner Foundation, where she helps direct capital toward emerging adults ages 18 to 30 and asks a hard question every day: Is this actually working?In this conversation, she dismantles the myth of easy fixes. She explains why mental health measurement resists clean metrics, why a PHQ 9 score starts a conversation but never finishes one, and why “scale” often flatters institutions more than it helps people. She breaks down how impact investing shapes care delivery, why schools need networked systems not slogans, and why friction might be developmentally necessary.The stakes are real. Vulnerable families navigate snake oil, glossy apps, and pay to play algorithms while carrying the burden of choice in crisis. Benghiat lives inside that complexity and refuses to simplify it.RELATED LINKSRebecca BenghiatInner FoundationAspen Ideas HealthThe Jed FoundationFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Health Affairs' Rob Lott interviews James Robinson of the University of California Berkeley about his recent paper exploring most favored nation drug pricing, weighing its feasibility, likely effects on drug launch prices, and implications for global pharmaceutical innovation and investment. Order the April 2026 issue of Health Affairs.
Omari Richins, MPH of the Public Health Careers podcast talks with Winston Wellington Wright, MPH.In this conversation, Winston shares his journey as a health equity strategist, consultant, and co-founder of Brothers in Public Health. He reflects on how his experiences in St. Louis shaped his understanding of health disparities and the importance of centering community in public health work. Winston also shares how coaching youth soccer has influenced his leadership style - focused on teamwork, growth, and affirmation.He breaks down what real health equity work looks like inside health systems, highlighting the role of community voice, data, and navigating institutional challenges. Winston also discusses the impact and growth of Brothers in Public Health, and why representation, mentorship, and visibility are key to driving change.The episode closes with advice for future public health professionals - embracing creativity, staying grounded, and understanding that public health is a way of life.
Music by Tunetank from PixabaySPONSORED BY GOODFEED IMPACT AUDIO NETWORKJoin the waitlist at goodfeed.coEPISODE DESCRIPTION:What does it actually mean to advocate for your community — and where do you even begin? In this episode, host Corey Dion Lewis sits down with Morgan Newman, Grassroots Manager for the American Cancer Society Cancer Action Network (ACS CAN) and a two-time cervical cancer survivor, for a deeply honest conversation about the art and science of advocacy.Morgan shares how her own health journey became the foundation for her advocacy career, why trust-building is the most underrated skill in public health, and how coalition work can amplify impact without duplicating effort. Whether you're a seasoned organizer or someone who's never attended a community meeting, this episode will meet you where you are.IN THIS EPISODE:• How a personal cancer journey became the spark for a career in advocacy• The three levels of advocacy — personal, community, and systems change• Why building trust is the first step before you say a single word to a community• How to enter communities you don't live in and still earn credibility• The power of coalition building — and how to avoid the silo trap• Why storytelling moves people faster than data ever will• Preventing burnout and compassion fatigue in advocacy work• How to stay educated and connected in a rapidly changing landscape• Why advocating for yourself is the most foundational act of allABOUT MORGAN NEWMAN:Morgan Newman, MSW, is a licensed social worker, cancer policy advocate, and board member of the Iowa Cancer Consortium. She brings a trauma-informed lens to community health work and is passionate about empowering others to tell their stories and make lasting systems change. Connect with Morgan on LinkedIn.RESOURCES MENTIONED:• Iowa Cancer Consortium: iacancer.org• Iowa Cancer Plan — available through the Iowa Cancer Consortium• Live, Work, Play, Pray Newsletter — Subscribe on SubstackSPONSORED BY GOODFEED IMPACT AUDIO NETWORKA network built for podcasts, making a difference. Join the waitlist: https://goodfeed.co/ABOUT THE SHOW:The Healthy Project Podcast explores the social drivers of health — where we live, work, play, and pray — through honest conversations with advocates, practitioners, and community leaders—hosted by Corey Dion Lewis. ★ Support this podcast ★
On a special emergency pod episode of Health Affairs This Week coming to you on the A Health Podyssey feed, Health Affairs Publishing's Jeff Byers welcomes Brown University's David Meyers to the pod to unpack the 2027 Medicare Advantage final payment rule, including the higher-than-anticipated rate increase, changes to risk adjustment models, what is V28, and the tradeoffs between market stability and long-term program sustainability.To view an Insider Cheat Sheet on the MA rule, purchase Insider.On April 20th, join us for our upcoming Insider exclusive event exploring the evolution of the Medicare Advantage market featuring Sachin Jain, David Meyers, and Grace Mackleby.Related Links:Assessing Recent Regulatory Action On Medicare Advantage (Health Affairs Forefront)
At age 12, Dr. Chrystal Starbird stood by a pond after turning her mother in to the police. She watched tadpoles and fish move beneath the surface and found a strange kind of order. Science became her refuge long before it became her career. Years later, she built that refuge into a profession. She now serves as an Assistant Professor at the University of North Carolina, studies structural biology tied to cancer and Alzheimer's disease, and won Cell's first Rising Black Scientist Award in 2020. On paper, she fits the model of success. In practice, she had to fight for basic access at every stage.Conference travel required upfront cash she did not have. Networking favored pedigree over merit. Mentorship often depended on who knew your name in the room. Chrystal learned those rules, then chose to break them open for others.Oliver Bogler examines what Chrystal calls the advocacy tax. She has delivered over 70 invited talks. Nearly 40 percent focus on equity, mentorship, and policy. Academic reward systems do not count that labor toward tenure. She still does it.Through her leadership at the Life Science Editors Foundation, Chrystal helped build the JEDI program, which pairs underrepresented scientists with editors from journals like Cell and Nature. The program has supported over 100 awardees with more than 1,000 hours of mentorship. This episode exposes how biomedical science rewards output while ignoring the work required to make the system accessible. It also shows what happens when the people most affected refuse to step back.RELATED LINKSDr. Chrystal StarbirdStarbird LabLife Science Editors FoundationJEDI ProgramFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Danielle Jones is the vice president of accountability, belonging, and culture at the Association of Women's Health, Obstetric and Neonatal Nurses. Stephen Morrissey, the interviewer, is the Executive Managing Editor of the Journal. W.T. Moore and Others. From Clinic to Community — The EveryONE Project in Family Medicine. N Engl J Med 2026;394:1353-1354.
What if the healthcare system your loved one relies on doesn't even know they need help until it's too late — and what would it look like if it did? In this Q1 2026 episode, Jamie Preston sits down with Matt Staub, CEO of Your Health, for a candid and wide-ranging look at how one of the country's largest home-based care providers is navigating the evolving landscape of value-based care, population health, and the human experience at the center of it all. Matt brings his characteristic clarity and heart to a conversation that is equal parts strategy, story, and honest reckoning with what the system still gets wrong. Key topics covered: Why 11% of patients account for 67% of all healthcare spending — and why most of them don't know they're in an ACO The evolution of value-based care: from quality-over-cost to outcomes + patient experience over total costs How Your Health is becoming proactive — not reactive — about falls, readmissions, and high-needs patients The quiet crisis of patient trust: down from 71% in 2020 to just 33% today, and what the correlation means for hospitalizations Real stories: a 79-year-old patient who went from barely existing to living fully — and Matt's own mom, who hasn't fallen since leaving the hospital after her stroke If you work in healthcare, advocate for someone in the system, or simply believe that better is possible — this episode will change the way you see what care can be.
At 19, Jansher Naim went from sharp stomach pain to a Stage 4 fibrolamellar diagnosis that few doctors see and even fewer young adults survive. He pushed through 41 rounds of chemotherapy, a Whipple surgery, and months of isolation while his friends kept moving through normal college life. In the studio, Jansher sits beside his mother Sadia Siddiqui, who refused early defeat and helped overhaul his care team when the first plan offered little optimism. Now a Computer Science student at Columbia, Jansher lives in the uneasy space between remission and risk, managing fertility decisions, travel for ongoing care, and the strange pressure to look fine at 22. Together they describe what it takes to grow up fast inside a system that rarely knows what to do with young adults who refuse to disappear.RELATED LINKSJansher NaimSadia SiddiquiFibroFighters FoundationColumbia UniversityFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
"We might think access to veterinary care is just an issue for low-income families—but the reality is, it affects people across income levels, for very different reasons." This episode is sponsored-in-part by Maddie's Fund, OcuTrap, and the Feline Behavior Summit 2026. Access to veterinary care is one of the most pressing—and complex—issues facing pet families today. In this episode of the Community Cats Podcast, host Stacy LeBaron sits down with researcher Claire Shuch, PhD, to unpack the latest findings from a groundbreaking national study on barriers to veterinary care. Drawing from her work with the University of Tennessee Knoxville's Program for Pet Health Equity, Claire shares insights from the updated Access to Veterinary Care: Barriers and Insights from Pet Families report. This research builds on the foundational 2018 study and reveals how economic pressures, workforce shortages, and lingering pandemic effects continue to shape how—and whether—families can care for their pets. Listeners will discover surprising truths about who struggles to access care (hint: it's not just low-income households), why many cats remain unspayed or unvaccinated, and how logistical challenges like scheduling and clinic availability play a major role. The conversation also explores the broader "One Health" framework, highlighting how human, animal, and environmental health are deeply interconnected. For community cat advocates, this episode offers valuable context on intake trends, stray adoption patterns, and opportunities for intervention through education and accessible services. Claire also paints a compelling vision of a more integrated future—where human and animal healthcare services are co-located or mobile, reaching underserved communities more effectively. Whether you're a rescuer, veterinarian, policymaker, or passionate cat lover, this episode provides both data-driven insights and hopeful possibilities for improving care access nationwide. Press Play Now For: Key findings from the latest national veterinary care access study Why affordability is only part of the access problem Insights into cat ownership trends and stray intake patterns The real reasons cats aren't always spayed or neutered How COVID-19 reshaped pet ownership and care challenges The growing impact of veterinary workforce shortages A practical introduction to the "One Health" model Innovative ideas for co-located and mobile care services How community programs can better support both pets and people Resources & Links Access to Veterinary Care: Barriers and Insights from Pet Families University of Tennessee Knoxville – Program for Pet Health Equity (PPHE) One Health Community Forum (Maddie's Fund) Original 2018 Access to Veterinary Care Study (AVCC)
Health Affairs Publishing's Rob Lott interviews Dr. Ashish Jha about the future of public health education, the growing threat of engineered pathogens and building a bio-intelligence company, and practical approaches to slowing health care spending while preserving access and innovation.
Dom Kelly is the co-founder, president, and CEO of New Disabled South and New Disabled South Rising. A lifelong disability advocate, Dom has made his mark in nonprofit leadership and as a systems thinker who combines lived experience with movement building. Apart from his advocacy work, Dom is an accomplished musician, having toured extensively and shared the stage with renowned artists such as the Indigo Girls and Joan Baez. Amassing an impressive array of fellowships and awards, Dom is also an Atlantic Fellow for Health Equity and a recipient of the JM Kaplan Funds Innovation Prize. He resides in Atlanta with his family.In this powerful episode of Think Inclusive, host Tim Villegas engages in a significant dialogue with Dom Kelly, steering deeply into the realm of disability justice in schools. The conversation navigates the intertwining facets of inclusion, justice, belonging, and how these play out within educational settings. Dom Kelly, drawing from his multifaceted experiences as a disability advocate and co-founder of New Disabled South, speaks on evolving beyond mere compliance to fostering inclusive environments that value the voices and needs of disabled students, especially at the intersection of race and disability.Complete transcript and show notes: https://mcie.org/think-inclusive/centering-disabled-students-voices-for-true-inclusion-and-justice-with-dom-kelly-1327/
Jessica Federer built her career inside the rooms where science, money, and power collide. As the first female Chief Digital Officer at Bayer, she helped steer a 120,000 person global company through the rise of digital medicine while confronting a harder truth: women were excluded from U.S. clinical trials until 1993. In this conversation, she explains how decades of “first in man” research shaped drug development, why women experience side effects at nearly 2x the rate of men, and how guidance on sex based differences did not arrive from the FDA until December 2025. She shares what it means to sit on a Yale Institutional Review Board, why clinical trial stipends over $3,000 get taxed, and why she believes participants deserve tax credits instead. From GLP 1 profits to $40,000,000 women's health funds that barely move the needle, this episode names the gaps and the opportunity hiding inside them. RELATED LINKSJessica Federer on LinkedInJessica Federer on InstagramYale School of Public HealthHealth of Women Investor SummitFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
In part two of this series, Dr. Tesha Monteith and Dr. Nimish A. Mohile discuss the motivation behind the development of this roadmap to neurological health equity. Show citation: Patel PB, Hamilton RH, Budhu JA, et al. A Roadmap to Neurologic Health Equity: An AAN Position Statement. Neurology. 2026;106(5):e214687. doi:10.1212/WNL.0000000000214687
Health Affairs' Rob Lott interviews Em Balkan of Brown University about their recent paper showing that rapid disenrollment from Medicare Advantage plans tripled from 2017 to 2022, with higher rates among dual‑eligible beneficiaries and certain racial and ethnic groups — raising questions about how well plans are meeting beneficiaries' needs.Order the March 2026 issue of Health Affairs.
In the first part of this series, Dr. Tesha Monteith and Dr. Nimish A. Mohile discuss what the roadmap is and how it is intended to benefit practicing neurologists. Show citation: Patel PB, Hamilton RH, Budhu JA, et al. A Roadmap to Neurologic Health Equity: An AAN Position Statement. Neurology. 2026;106(5):e214687. doi:10.1212/WNL.0000000000214687
Today, we're excited to welcome Dr. Antony Stately to Native Lights. Antony Stately is a transformative leader dedicated to health equity in Indigenous communities. He's enrolled with the Oneida Nation, and he's a descendant of both the Red Lake and White Earth nations here in Minnesota, and he has two sons. He's currently the Executive Officer and President for the Native American Community Clinic in South Minneapolis, providing primary care, dental care and behavioral health services to the Native American community in the Twin Cities. Antony gives updates on the long-awaited new Native American Community Clinic building and shares his hope that it can be a space where Indigenous people recognize, from the moment they enter, that it's a place for them and where they belong. He also reflects on his youth and the early addictions that eventually led to a hospital room and a transformative moment that changed the trajectory of his life.-----Hosts / Producers: Leah Lemm, Cole Premo Editor: Britt Aamodt Editorial support: Emily Krumberger Mixing & mastering: Chris Harwood -----For the latest episode drops and updates, follow us on social media. instagram.com/ampersradioinstagram.com/mnnativenewsfacebook.com/MNNativeNewsNever miss a beat. Sign up for our email list to receive news, updates and content releases from AMPERS. ampers.org/about-ampers/staytuned/ This show is made possible by community support. Due to cuts in federal funding, the community radio you love is at risk. Your support is needed now more than ever. Donate now to power the community programs you love: ampers.org/fund
Monique Gore Massey spent 2.5 years cycling through New York City emergency rooms while her body shut down. Fevers hit 105. Her weight dropped from 122 pounds to 72 in 3 months. Hair fell out in clumps. No one ran an ANA test. Doctors blamed stress, old sports injuries, migraines. When a physician finally named it lupus, she added that she hoped it was not. Months later, Monique heard the words “get your affairs in order.”In this episode, Monique details living with lupus nephritis, pericarditis, fibromyalgia, and the daily math of survival. She recounts arriving at a patient conference shortly after coming off crutches and requesting elevator access for support, only to face resistance at a health summit that claimed to center patients. She breaks down what it costs when industry extracts lived experience for free and calls it engagement. Listeners will hear what invisible illness looks like in real time, how bias delays diagnosis, and why advocacy without strategy leaves patients exploited instead of respected.RELATED LINKSMonique Gore MasseyLupus Foundation of AmericaFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Some things are true whether we talk about them or not. Iowa has one of the highest cancer rates in the country. The people most affected by it are often the last ones to hear about it. And the systems that were supposed to catch it early — the clinics, the screenings, the outreach programs — are losing funding right now, quietly, in ways most people won't notice until it's too late. This episode is about all of that. But more than anything, it's about people.About This ConversationCorey sits down with Jason Semprini — a public health economist, a lifelong Iowan, and somebody who has spent his career translating complex data into something that can actually change how communities live. What started as a conversation about economics turned into one of the most honest, grounded discussions about health, place, and power that The Healthy Project Podcast has ever had.This one isn't for researchers. It's for anyone who has ever wondered why their community looks the way it does — and whether anybody in power is paying attention.What We Get IntoThe cancer rate nobody's talking about: Iowa ranks among the highest states in the nation for cancer. It's not a fluke. It's not a bad data year. It's consistent, it's climbing, and it's being driven by a specific set of cancers shaped by where people live and what surrounds them. Jason breaks down what the numbers are actually showing — and why the story is more complicated than any headline has captured.Agriculture, jobs, and the health trade-off nobody wants to say out loud. Iowa's ag economy is the backbone of this state. It provides livelihoods, identity, and community for generations of Iowa families. It is also, according to clear and compelling research, contributing to adverse health outcomes, including cancer. Jason doesn't flinch from that tension. Neither does Corey. Because pretending it doesn't exist isn't protecting anybody.What happens when the money disappears? Pop-up mammography clinics. Free screenings. Community health workers are going door to door. These programs exist because some people don't have a regular doctor — and for them, a pop-up clinic isn't a backup plan, it's the only plan. When federal funding gets cut, these are the first programs that feel it. Jason shares what colleagues on the ground are experiencing right now. It's not abstract. It's hitting real people in real communities today.Prostate cancer, Black men, and what the system keeps missing. This part of the conversation hits close to home for Corey — founder of Save the Homies, a prostate cancer awareness initiative through My City My Health. It's not always that Black men in Iowa are getting prostate cancer at higher rates. It's that they're getting diagnosed later. The navigation to quality care is broken. The trust isn't there. The access isn't there. Jason connects this to a framework about biology and health systems colliding — and why fixing it requires more than a screening event.The real cost of data we're not using. One of the most practical takeaways in the whole conversation: collecting health data you're not acting on isn't neutral. It costs money, it burdens patients, and it pulls resources away from interventions that would actually move the needle. If your organization is drowning in surveys nobody reads, this part is for you.What a job well done actually looks like. For Jason, success isn't a published paper. It's a policy change. An updated screening guideline. An insurance expansion that took twenty years to become the Affordable Care Act. The work is long. The patience required is real. But the outcomes are lives — and that's the only metric that matters.About Jason SempriniJason Semprini is a public health economist and researcher whose work focuses on cancer, health policy, and the systems shaping health outcomes across Iowa. A lifelong Iowan, Jason's path to this work ran through AmeriCorps, the Peace Corps, and the University of Chicago — where he developed the research and economic skills he now applies to the most pressing health challenges facing this state. His work sits at the intersection of data, policy, and real community impact.Find Jason on LinkedIn explore his research.If This Episode Hit For You — Here's What To Do NextShare it. Send this episode to somebody in your life who needs to hear it. A friend, a coworker, someone at your church, your health department, or your organization. The more people who hear this conversation, the more it can do.Subscribe to the Live. Work. Play. Pray. Newsletter This is where Corey goes deeper every week — health equity, the social determinants shaping our communities, and the stories that don't always make the headlines but absolutely should. Written for real people, not just professionals. Free to subscribe.
Teresa Baglietto has lived through the kind of compounded harm that exposes how thin the safety net really is. In this episode she walks through a life shaped by medical neglect, personal violence, and the exhausting labor of self advocacy. She nearly died after a C section when hospital staff failed to confirm she had urinated before discharge, spending 15 days hospitalized and separated from her newborn while facing the possibility of permanent damage. In 2013 she discovered an aggressive breast cancer and waited weeks for test results and surgery while administrators stalled and passed responsibility. Care only moved forward after she threatened public exposure. Teresa also speaks openly about surviving rape in high school, losing her father to cancer at age 48 when she was 10, and growing up without reliable adults in the room. She explains why it took 7 years to write her book, why she launched a podcast, and how sales grit becomes a survival tool when patients must fight systems designed to delay them. The conversation stays specific, unsentimental, and grounded in consequence.RELATED LINKSTeresa Baglietto on LinkedInThe Ripple Effect by Teresa BagliettoIn Shock PodcastIn Shock Podcast on InstagramCanvas Rebel interview with Teresa BagliettoFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship email podcasts@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.