#ThroughtThePain

Dana Star Kiwacz is the proprietor of Inspired Life Design Studio. She is also a Sickle Cell Warrior. Get your Inspire #throughthepain Shirt: https://bit.ly/3ber0dt Reach out to Dana: https://calendly.com/danakiwacz/30min www.inspiredlifedesignstudio.com https://www.johncmaxwellgroup.com/dan... This episode was brought to you in part by Unleashing Royalty: A R.O.Y.A.L Formula to Help You Walk into Queendom with Purpose. Available on: Amazon https://amzn.to/3IJSi7n Barnes & Noble https://bit.ly/3MnyLMa Join CaRISMA https://carisma-study.pitt.edu/ Make sure you follow us on social media. https://linktr.ee/ThroughThePainPodcast Support this podcast with a small monthly donation to help sustain future episodes. https://anchor.fm/throughthepain/support Our Production Team: Executive Producer -Dima Hendricks Producer- Michael Hendricks --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/throughthepain/message Support this podcast: https://anchor.fm/throughthepain/support

Lance Jasper Jones is a Los Angeles, California ASCAP music producer and songwriter member, alumni of Marymount California University, and a current Clinical Psychology graduate student at Grand Canyon University. Born with Sickle Cell Anemia, Lance understands the value of strong mental health as well as providing strong mental health services to those living with long-term and life-threatening chronic conditions. Lance developed Jasper House Warriors to help the causes of long-term conditions in mental health. Lance has and continues to push the bounds of Sickle Cell limitations. Lance is a world traveler, activist, music artist, mentor, and scholar. With more than 10 years of advocating publicly for Sickle Cell patients, Lance was a leading voice for California bill AB1105, the first California major medical bill of fifteen million for comprehensive Sickle Cell care. This episode was brought to you in part by Unleashing Royalty: A R.O.Y.A.L Formula to Help You Walk into Queendom with Purpose. Available on: Amazon https://amzn.to/3IJSi7n Barnes & Noble https://bit.ly/3MnyLMa Join CaRISMA https://carisma-study.pitt.edu/ Make sure you follow us on social media. https://linktr.ee/ThroughThePainPodcast Support this podcast with a small monthly donation to help sustain future episodes. https://anchor.fm/throughthepain/support Our Production Team: Executive Producer -Dima Hendricks Producer- Michael Hendricks --- Send in a voice message: https://anchor.fm/throughthepain/message Support this podcast: https://anchor.fm/throughthepain/support

In this special episode, Dima speaks with Dr. Charles Jonassaint, lead investigator of the CaRISMA study. This episode was brought to you by Unleashing Royalty: A R.O.Y.A.L Formula to Help You Walk into Queendom with Purpose. Available on: Amazon https://amzn.to/3IJSi7nBarnes & Noble https://bit.ly/3MnyLMa Join CaRISMA https://carisma-study.pitt.edu/ Make sure you follow us on social media. https://linktr.ee/ThroughThePainPodcast Support this podcast with a small monthly donation to help sustain future episodes. https://anchor.fm/throughthepain/support Our Production Team: Executive Producer -Dima Hendricks Producer- Michael Hendricks --- Send in a voice message: https://anchor.fm/throughthepain/message Support this podcast: https://anchor.fm/throughthepain/support

Sickle cell Warrior, Sarai Santiago is a proud Afro-Latina who represents her culture and community. Get your Represent #ThroughThePain T-Shirt https://bit.ly/381JCfD This episode was brought to you in part by Unleashing Royalty: A R.O.Y.A.L Formula to Help You Walk into Queendom with Purpose. Available on: Amazon https://amzn.to/3IJSi7n Barnes & Noble https://bit.ly/3MnyLMa Join CaRISMA https://carisma-study.pitt.edu/ Make sure you follow us on social media. https://linktr.ee/ThroughThePainPodcast Support this podcast with a small monthly donation to help sustain future episodes. https://anchor.fm/throughthepain/support Our Production Team: Executive Producer -Dima Hendricks Producer- Michael Hendricks --- Send in a voice message: https://anchor.fm/throughthepain/message Support this podcast: https://anchor.fm/throughthepain/support

Dr. Terry L. Jackson has the SS genotype of sickle cell anemia. As a child, he was the first poster child for sickle cell in the state of Virginia. Dr. Jackson received his B.S. in Biology from Virginia State University in 2003. He conducted research on sickle cell disease in the lab of Dr. Marilyn Telen at Duke University Medical Center from 2003 to 2005 and served on the Board of Directors for the hospital's sickle cell advocacy group, The Bridges Pointe Foundation from 2003 to 2010. Soon followed his Ph.D. in Genetics and Genomics from Duke University in 2013. Dr. Jackson was a Senior Biocuration Scientist at Stanford University from 2016 to 2018. In July of 2018, Dr. Jackson returned to Virginia where he started, Jaxsun Enterprises Corporation, a media company dedicated to communicating life science to the public. He also works with CBOs and other healthcare entities, and individuals to improve access to care, quality of life, and unity within the SCD community. Purchase an Achieve #ThroughThePain T https://bit.ly/3vQ7TNp This episode was brought to you in part by Unleashing Royalty: A R.O.Y.A.L Formula to Help You Walk into Queendom with Purpose. Available on: Amazon https://amzn.to/3IJSi7n Barnes & Noble https://bit.ly/3MnyLMa Join CaRISMA https://carisma-study.pitt.edu/ Make sure you follow us on social media. https://linktr.ee/ThroughThePainPodcast Support this podcast with a small monthly donation to help sustain future episodes. https://anchor.fm/throughthepain/support Our Production Team: Executive Producer -Dima Hendricks Producer- Michael Hendricks --- Send in a voice message: https://anchor.fm/throughthepain/message Support this podcast: https://anchor.fm/throughthepain/support

Shania Gordon has been performing with Central Virginia Dance Academy since 2016 and is the co-founder of Brown Ballerinas for Change. In 2018, Shania was chosen to be an ASK Kourageous Kid representing those in the Sickle Cell community where she is also a volunteer during their summer camp program. Subsequently, Shania was accepted to attend the Center for the Arts in 2019. Shania eats, sleeps, and breathes dance. She loves to cook and enjoys spending time with her friends. She desires to become a professional dancer with NYC Ballet and become a performer on a cruise ship; without any set limitations to achieving her goal. Shania wishes to inspire those that see her, encouraging them to “not be afraid of who you really are and to work hard to be the best version of yourself”. This episode was brought to you in part by Unleashing Royalty: A R.O.Y.A.L Formula to Help You Walk into Queendom with Purpose. Available on: Amazon https://amzn.to/3IJSi7n Barnes & Noble https://bit.ly/3MnyLMa Join CaRISMA https://carisma-study.pitt.edu/ Make sure you follow us on social media. https://linktr.ee/ThroughThePainPodcast Support this podcast with a small monthly donation to help sustain future episodes. https://anchor.fm/throughthepain/support Our Production Team: Executive Producer -Dima Hendricks Producer- Michael Hendricks --- Send in a voice message: https://anchor.fm/throughthepain/message Support this podcast: https://anchor.fm/throughthepain/support

Join DIma and Lena as they discuss issues in women's health and how they are affected by sickle cell disease. YouTube: Lena Lavish The Queen Warrior Herself: https://www.youtube.com/user/lenaharv Instagram: @lenalavish100 Read my articles: sickle-cell.com This episode was brought to you in part by Unleashing Royalty: A R.O.Y.A.L Formula to Help You Walk into Queendom with Purpose. Available on: Amazon https://amzn.to/3IJSi7n Barnes & Noble https://bit.ly/3MnyLMa #Throughthepain For Business: Ads, Mention, Unboxing, Posts, Collabs: Email- Contact@ThroughThePain.org Join the WEGO Health network today! https://app.wegohealth.com/register/i... Follow #ThroughThePain: Social Media- https://linktr.ee/ThroughThePainPodcast Website- www.throughthepain.org Our Production Team: Executive Producer -Dima Hendricks Producer- Michael Hendricks --- Send in a voice message: https://anchor.fm/throughthepain/message Support this podcast: https://anchor.fm/throughthepain/support

Kallie Hargrove is a native of Raymond, MS. She graduated from Raymond High School in 2012 and then went on to obtain her bachelor's in kinesiology from the illustrious HBCU, Hampton University, in Hampton, VA. Once Kallie graduated in 2017, she returned to Mississippi and started nursing school at Hinds Nursing Allied Health Center. There she was a part of the Alpha Delta Nu Associate Nursing Honor Society and President of the Student Nursing Organization. After graduating in May 2020, Kallie started her nursing career as a hematology/oncology nurse and now has transitioned to Bone Marrow Transplants. In 2018, Kallie became the youngest board member of the Mississippi Sickle Cell Foundation where she spearheads their Sickle Cell College Tour. She is personally impacted by sickle cell genotype SS. She has partnered with MS Blood Services on numerous occasions to encourage everyone to donate blood for those like herself and others. Kallie currently reigns as Ms. Black MS USA and her platform is “Breaking the Sickle Cycle”. She has also held the titles of Miss Black MS US Ambassador and Miss Black West Hinds County. For fun, Kallie enjoys modeling and roller skating in her spare time. This episode was brought to you in part by Unleashing Royalty: A R.O.Y.A.L Formula to Help You Walk into Queendom with Purpose. Available on: Amazon https://amzn.to/3IJSi7n Barnes & Noble https://bit.ly/3MnyLMa Make sure you follow us on social media. https://linktr.ee/ThroughThePainPodcast Support this podcast with a small monthly donation to help sustain future episodes. https://anchor.fm/throughthepain/support Our Production Team: Executive Producer -Dima Hendricks Producer- Michael Hendricks --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/throughthepain/message Support this podcast: https://anchor.fm/throughthepain/support

Meet Elsa Franco: Mother & caregiver of a Sickle Cell Warrior, Elsa is dedicated to the fight against SCD. Sickle Cell Disease 1st Edition: https://www.amazon.com/Sickle-Cell-Disease-Mark-Gladwin/dp/1260458598 This episode was brought to you in part by Unleashing Royalty: A R.O.Y.A.L Formula to Help You Walk into Queendom with Purpose. Available on: Amazon https://amzn.to/3IJSi7n Barnes & Noble https://bit.ly/3MnyLMa Make sure you follow us on social media. https://linktr.ee/ThroughThePainPodcast Support this podcast with a small monthly donation to help sustain future episodes. https://anchor.fm/throughthepain/support Our Production Team: Executive Producer -Dima Hendricks Producer- Michael Hendricks --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/throughthepain/message Support this podcast: https://anchor.fm/throughthepain/support

Meet Elsa Franco: Mother & caregiver of a Sickle Cell Warrior, Elsa is dedicated to the fight against SCD. This episode was brought to you in part by Unleashing Royalty: A R.O.Y.A.L Formula to Help You Walk into Queendom with Purpose. Available on: Amazon https://amzn.to/3IJSi7n Barnes & Noble https://bit.ly/3MnyLMa Make sure you follow us on social media. https://linktr.ee/ThroughThePainPodcast Support this podcast with a small monthly donation to help sustain future episodes. https://anchor.fm/throughthepain/support Our Production Team: Executive Producer -Dima Hendricks Producer- Michael Hendricks --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/throughthepain/message Support this podcast: https://anchor.fm/throughthepain/support

Interview with Sickle Cell Survivor Wunmi Bakare. Wunmi is a patient ambassador and sickle cell advocate for Health Union and AllStripes. She was diagnosed with the most severe type of sickle cell disease - Hemoglobin SS - at 18 months but participated in a clinical trial at the National Heart, Lung and Blood Institute (NIH-NHLBI) where she received an allogeneic stem cell transplant. While still facing challenges, Bakare thrives as the Director of her own public relations agency and advocates for the global sickle cell community, home and abroad. Now 34, she works across diverse disciplines - Consumer Brands, Healthcare & Non-Profit - focusing on brand partnerships, content creation and influencer marketing. In 2021, she launched “The Diary of a #SickleCellProdigy” Content Series, in partnership with WeGoHealth and the Cure SCD Initiative. The awareness campaign gives audiences a closer look at a patient's life with and without sickle cell disease. “My goal is to empower and support the next generation of patients with invisible disabilities like sickle cell,” says Bakare. “Sickle Cell is a disease, it is not a verdict of who we are as people. For me, it is the rock on which I've built my perfectly imperfect life.” Her legacy is advocating for social causes close to her heart including child adoptions and gender equity. She is an alumnus of the University of Texas at Austin and the President of The Gift of Adoption Fund - WA Chapter. This episode was brought to you in part by Unleashing Royalty: A R.O.Y.A.L Formula to Help You Walk into Queendom with Purpose. Available on: Amazon https://amzn.to/3IJSi7n Barnes & Noble https://bit.ly/3MnyLMa Make sure you follow us on social media. https://linktr.ee/ThroughThePainPodcast Our Production Team: Executive Producer -Dima Hendricks Producer- Michael Hendricks --- Send in a voice message: https://anchor.fm/throughthepain/message Support this podcast: https://anchor.fm/throughthepain/support

Special Guest Mia Robinson shares her experience with survivor's remorse. If you or someone you know has a mental illness, is struggling emotionally, or has concerns about their mental health, there are ways to get help. Use these resources to find help for you, a friend, or a family member. CaRISMA (Sickle Cell Warriors Only) A (paid) non-drug trial for Sickle Cell Disease. Use tools such as Video Lessons · Health Coach · Chatbot· Warrior Stories · Pain Diary · Toolbox and Badges. National Suicide Prevention Lifeline Call 1-800-273-TALK (8255); En español 1-888-628-9454 Use Lifeline Chat on the web The Lifeline is a free, confidential crisis service that is available to everyone 24 hours a day, seven days a week. The Lifeline connects people to the nearest crisis center in the Lifeline national network. These centers provide crisis counseling and mental health referrals. Crisis Text Line Text “HELLO” to 741741 The Crisis Text hotline is available 24 hours a day, seven days a week throughout the U.S. The Crisis Text Line serves anyone, in any type of crisis, connecting them with a crisis counselor who can provide support and information. Be The Match offers free counseling for people with SCD. More info Click Here And you can sign up here: --- Send in a voice message: https://anchor.fm/throughthepain/message Support this podcast: https://anchor.fm/throughthepain/support

The #ThroughThePain Podcast is back! Here is a preview of our new segment that we like to call PainFULL conversations. --- Send in a voice message: https://anchor.fm/throughthepain/message Support this podcast: https://anchor.fm/throughthepain/support

Dominique Friend is True survivor in every way possible. Although she suffers from three chronic illnesses, Although she suffers from three chronic illnesses, Dominique is an activist and a published author. Dominique has captured the essence of her daily struggles with the unpredictability and pain of Sickle Cell Disease in her autobiography, SICKLE, A Story of Pain, Purpose and Perseverance. Dominique’s story was written in another book entitled Uncommon Challenges; Shared Journeys. She has become an activist who is raising awareness of Sickle Cell Disease and advocating for improved treatment for people living with Sickle Cell Disease. She is the founder of the Sickle International Family Coalition, an international network of families, individuals and organizations. --- Send in a voice message: https://anchor.fm/throughthepain/message Support this podcast: https://anchor.fm/throughthepain/support

Dominique Friend is True survivor in every way possible. Although she suffers from three chronic illnesses, Although she suffers from three chronic illnesses, Dominique is an activist and a published author. Dominique has captured the essence of her daily struggles with the unpredictability and pain of Sickle Cell Disease in her autobiography, SICKLE, A Story of Pain, Purpose and Perseverance. Dominique’s story was written in another book entitled Uncommon Challenges; Shared Journeys. She has become an activist who is raising awareness of Sickle Cell Disease and advocating for improved treatment for people living with Sickle Cell Disease. She is the founder of the Sickle International Family Coalition, an international network of families, individuals and organizations. --- Send in a voice message: https://anchor.fm/throughthepain/message Support this podcast: https://anchor.fm/throughthepain/support

WEGO Health is a mission-driven company connecting healthcare with the experience, skills, and insights of patient leaders. The organizations connect patient leaders within a vast network of healthcare companies in order to incorporate the patient perspective and expertise into every stage of the product life cycle. Kristen also talks about the 9th Annual #WEGOHealthAwards. What's the WEGO Health Awards? This prestigious award was created to recognize and honor patient leaders who make a difference in the health community. ⠀ Who should you nominate? Nominate the exceptional patient advocates, influencers, and organizations who make a difference in the lives of patients and caregivers. Nominate your favorite patient leader today! https://bit.ly/31ngdGG The #ThroughThePain Podcast was created to help individuals that suffer from Chronic pain to dare, dance, and dream #ThroughThePain. Join us in taking your power back and living your optimal life. --- Send in a voice message: https://anchor.fm/throughthepain/message Support this podcast: https://anchor.fm/throughthepain/support

Born in Port-Au-Prince, Haiti, Hertz Nazaire is a prolific artist and visionary. However, he was born with sickle cell disease. A devastating hospitalization inspired Hertz to paint #ThroughThePain. As a result, he created a remarkable series of artwork. His Sickle Cell Art series included the following paintings: Need Not Suffer Alone Ten Redefined Sickle Cell Awareness- Hope His artwork became one of the designs for the Sickle Cell Pain Awareness postage stamps and sparked. His pieces inspired and filed his passion for "Art advocacy" His life work inspired a Ted Talk by Dr. Ahmar Zaidi and Hertz continues to inspire the world. The #ThroughThePain Podcast was created to help individuals that suffer from Chronic pain to dare, dance, and dream #ThroughThePain. Join us in taking your power back and living your optimal life. Have questions? Feel free to leave us a message using the following link: Click Here Follow Us: Visit our website: Social Media --- Send in a voice message: https://anchor.fm/throughthepain/message Support this podcast: https://anchor.fm/throughthepain/support

In this episode, I sit down with my husband Michael Hendricks (AKA) “Big Ruckus” as we discuss balancing being a caregiver and a spouse. The #ThroughThePain Podcast was created to help individuals that suffer from Chronic pain to dare, dance and dream #ThroughThePain. Join us in taking your power back and living your optimal life. Have questions? Feel free to leave us a message using the following link: https://anchor.fm/throughthepain/message Visit our website: www.throughthepain.org --- Send in a voice message: https://anchor.fm/throughthepain/message Support this podcast: https://anchor.fm/throughthepain/support

In this episode, Dima shares 5 tips to help keep your mind intact during the COVID-19 crisis. You can connect with #ThroughThePain: www.throughthepain.org The #ThroughThePain Podcast was created to help individuals that suffer from Chronic pain to dare, dance and dream #ThroughThePain. Join us in taking your power back and living your optimal life. Send us your thoughts by sending a message: https://anchor.fm/throughthepain/message Facebook Group: Facebook: Instagram Twitter: --- Send in a voice message: https://anchor.fm/throughthepain/message Support this podcast: https://anchor.fm/throughthepain/support

Welcome to the very first #ThroughThePain podcast episode. Episode one is a short and sweet introduction about the show, the tribe, and the #ThroughThePain brand. Founder, Dima Hendricks introduces herself, reveals a bit about her experience with chronic illness and shares her enthusiasm to help other chronic illness warriors. The #ThroughThePain Podcast was created to help individuals that suffer from Chronic pain to dare, dance and dream #ThroughThePain. Join us in taking your power back and living your optimal life. Subscribe for your free Plan #ThroughThePain Planner: https://www.subscribepage.com/s3j4f8 --- Send in a voice message: https://anchor.fm/throughthepain/message Support this podcast: https://anchor.fm/throughthepain/support