Group of genetic blood disorders
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14 episodes with sickle cell anemia
5 episodes with sickle cell anemia
3 episodes with sickle cell anemia
5 episodes with sickle cell anemia
2 episodes with sickle cell anemia
3 episodes with sickle cell anemia
2 episodes with sickle cell anemia
3 episodes with sickle cell anemia
2 episodes with sickle cell anemia
Welcome back to another episode of the FAQs Project, today I had a chance to talk about the Supernatural Tale Bytchcraft by the late Aaron Reese who passed earlier this year after his lifelong battle with Sickle Cell Anemia. I speak with his good friend and Nubia Author Stephanie Williams as well as Senior Editor for Mad Cave Studios James Emmett.The Story focuses on a queer coven of Wytches who each powerful in their own way discover they are bound by an ancient prophecy. They are synced in cosmic guidance by an entity known to them as MTHR. There is a distinction in the tale that focuses an internal battle between Religion and the power of miracles against Spirituality and the power of the coven. Through their togetherness and friendship can they rectify a disruption in the cosmic equilibrium.Written by the Late Aaron ReeseArtwork by Lema Carrill and Bex Glendining Letters by Morgan MartinezSupport this podcast at — https://redcircle.com/the-faqs-project-hosted-by-james-grandmaster-faqs-boyce/donations
This week's episode is an extended, uncut interview with the one and only, Vanessa Riley. She is the preeminent voice in historical romance and fiction, writing Black characters who feature prominently in Regency Romance. A PhD in Engineering from Stanford and author of well over 25 books, Vanessa combines her love of learning, facts and figures with... well... love.We talk about her process, how she chooses her topics, and what is it about the Regency that she is drawn to.Bio: Vanessa Riley is an acclaimed author known for captivating novels such as Island Queen, a Good Morning America Buzz Pick, and Queen of Exiles, an ABC View Lit Pick. She was honored as the 2024 Georgia Mystery/Detective Author of the year for Murder in Drury Lane and the 2023 Georgia Literary Fiction Author of the Year for Sister Mother Warrior. Her craft highlights hidden narratives of power, love, and sisterhoods of Black women and women of color in historical fiction, romance, and mystery genres. Her works have received praise from publications like the Washington Post, Entertainment Weekly, NPR, Publisher Weekly, and the New York Times. In addition to penning over twenty-five novels, Vanessa holds a doctorate in mechanical engineering from Stanford University and STEM degrees from Penn State, adding a research-oriented approach to her writing while emphasizing inclusive storytelling about the Caribbean, Georgian, and Regency eras. As a member of Regency Fiction Writers, Crime Writers of Color, Mystery Writers of America, Women's Fiction Writers Association, Christian Book Lovers Retreat, and the Historical Novel Society, Vanessa advocates for diverse voices. She's also working to increase Sickle Cell Anemia awareness. When she's not writing, she can be found baking, crafting her Trinidadian grandma's recipes, or relaxing on her southern porch sipping caffeine. For more on Vanessa, visit her website. VanessaRiley.com Follow Romance in Colour on Social MediaIG @RomanceInColourTwitter: @RomanceNColour Facebook Groups: www.facebook.com/groups/RomanceinColourFollow Yakini on her Instagram @OurNycHomeFollow Tati Richardson on social media and pick up her books here, here
Why we can't remember our lives as babies and a groundbreaking gene therapy cures a 21-year-old of his sickle cell anemia. On This Day in History, the discovery of Saturn's moon Titan. Why Can't We Remember Our Lives as Babies? Our Earliest Memories May Still be There | ZME Science Groundbreaking Gene Therapy Cures 21-year-old of His Sickle Cell Anemia: ‘I'm not in pain anymore' | Good News Network Titan: Exploration - NASA Science On This Day In History: Christiaan Huygens Discovers Saturn's Largest Moon Titan - On Mar 25, 1655 - Ancient Pages Huygens's Contributions to Astronomy | EBSCO Research Starters Sponsored by Factor -use code coolstuff50off to get 50% off your first box plus free shipping. Contact the show - coolstuffcommute@gmail.com Learn more about your ad choices. Visit megaphone.fm/adchoices
In Episode 15 of Undercurrents of Romance, Tracey Devlyn chats with award-winning author Vanessa Riley about her latest historical romance, A WAGER AT MIDNIGHT. Disguises, ambition, and simmering chemistry collide when a bold researcher and a principled physician are forced to choose between duty and desire. With Vanessa Riley's signature blend of fierce heroines, swoon-worthy heroes, a richly diverse cast, and sharp Regency wit, A WAGER AT MIDNIGHT delivers is a heartfelt, high-stakes romance you won't want to miss. Love the episode → Rate it ❃ Thumbs Up ❃ Subscribe → ❤ Show Notes: https://traceydevlyn.com/podcast #newrelease #bookrelease #romance #romancebooks #historicalromance #regencyromance #vanessariley #awageratmidnight #bettingagainstthedukeseries #frenemiestolovers #bestfriendssister #traceydevlyn #undercurrentsofromance #podcast #podcastepisode #podcastguest #authorsontheair #vidcast #authorinterview #writingcommunity #authorssupportingauthors #videobookclub #tbr #tbr2025 #books #bookrecommendations #bookaddiction
In Episode 15 of Undercurrents of Romance, Tracey Devlyn chats with award-winning author Vanessa Riley about her latest historical romance, A WAGER AT MIDNIGHT. Disguises, ambition, and simmering chemistry collide when a bold researcher and a principled physician are forced to choose between duty and desire. With Vanessa Riley's signature blend of fierce heroines, swoon-worthy heroes, a richly diverse cast, and sharp Regency wit, A WAGER AT MIDNIGHT delivers is a heartfelt, high-stakes romance you won't want to miss. Love the episode → Rate it ❃ Thumbs Up ❃ Subscribe → ❤ Show Notes: https://traceydevlyn.com/podcast #newrelease #bookrelease #romance #romancebooks #historicalromance #regencyromance #vanessariley #awageratmidnight #bettingagainstthedukeseries #frenemiestolovers #bestfriendssister #traceydevlyn #undercurrentsofromance #podcast #podcastepisode #podcastguest #authorsontheair #vidcast #authorinterview #writingcommunity #authorssupportingauthors #videobookclub #tbr #tbr2025 #books #bookrecommendations #bookaddiction
In this episode of the Being Rare Podcast, Sarita sits down with James Griffin and Genesis Jones, patient advocates and authors. We're talking about navigating life with sickle cell, healthcare bias, stigma, and more!The books mentioned in this episode can be found on Amazon. Direct links are below.Breaking Silence: Living with Sickle Cell Anemia by James Griffin III https://a.co/d/3znpc3sRebirth: A Sickle Cell Warrior's Crossover (Warrior's Sickle Cell Poetry Collection) by Genesis Jones https://a.co/d/3lVQL7ZResilient: Reflections of a Sickle Cell Journey (Warrior's Sickle Cell Poetry Collection) by Genesis Jones https://a.co/d/73XsFla
Send us a textDr. Jackie Kunzler, Ph.D. is Senior Vice President and Global Head of Research and Development (R&D), and member of the Executive Management Committee, of Terumo Blood and Cell Technologies ( https://www.terumobct.com/ ), where she focuses on innovation and development leading the way for unlocking the potential of blood and cell collections in varied sectors, including blood banking, plasma-based therapies and cell and gene therapies.Dr. Kunzler joined Terumo from Baxter Healthcare where she held successive leadership roles in their business, including as Baxter Healthcare's Senior Vice President for Quality and Regulatory and Head of Global Life Sciences.Dr. Kunzler holds a Ph.D. in Cell Biology/Neuroscience from the University of Illinois, Chicago. She earned a Master of Science in Toxicology from the University of Florida, Bachelor's degrees in Biology and Medical Technology (Laboratory Medicine) from University of Iowa and an MBA in Healthcare Administration from Benedictine University.#Terumo #JackieKunzler #Blood #SickleCell #Alzheimers #Dementia #Biotherapies #Immunology #TherapeuticApheresis #AutoimmuneDiseases #BloodDisorders #BloodBanking #TransfusionMedicine #RegenerativeMedicine #TherapeuticPlasmaExchange #ConvalescentPlasma #ExtracorporealPhotopheresis #Parabiosis #Longevity #Aging #HospiceCare #STEM #Innovation #Science #Technology #Research #ProgressPotentialAndPossibilities #IraPastor #Podcast #Podcaster #Podcasting #ViralPodcastSupport the show
Last May, a 12-year-old with sickle cell anemia was the first person to receive a new gene therapy to treat the disease. The process is painful, expensive, and still frightening and uncertain, but biomedical researchers are cautiously calling it a “cure.” Guests: Gina Kolata, medical reporter for the New York Times Deb and Keith Cromer, parents to Kendric Cromer, the first person in the world to go through a commercially approved gene therapy for sickle cell anemia. Want more What Next TBD? Subscribe to Slate Plus to access ad-free listening to the whole What Next family and all your favorite Slate podcasts. Subscribe today on Apple Podcasts by clicking “Try Free” at the top of our show page. Sign up now at slate.com/whatnextplus to get access wherever you listen. Podcast production by Evan Campbell, Patrick Fort, and Cheyna Roth. Learn more about your ad choices. Visit megaphone.fm/adchoices
Last May, a 12-year-old with sickle cell anemia was the first person to receive a new gene therapy to treat the disease. The process is painful, expensive, and still frightening and uncertain, but biomedical researchers are cautiously calling it a “cure.” Guests: Gina Kolata, medical reporter for the New York Times Deb and Keith Cromer, parents to Kendric Cromer, the first person in the world to go through a commercially approved gene therapy for sickle cell anemia. Want more What Next TBD? Subscribe to Slate Plus to access ad-free listening to the whole What Next family and all your favorite Slate podcasts. Subscribe today on Apple Podcasts by clicking “Try Free” at the top of our show page. Sign up now at slate.com/whatnextplus to get access wherever you listen. Podcast production by Evan Campbell, Patrick Fort, and Cheyna Roth. Learn more about your ad choices. Visit megaphone.fm/adchoices
Last May, a 12-year-old with sickle cell anemia was the first person to receive a new gene therapy to treat the disease. The process is painful, expensive, and still frightening and uncertain, but biomedical researchers are cautiously calling it a “cure.” Guests: Gina Kolata, medical reporter for the New York Times Deb and Keith Cromer, parents to Kendric Cromer, the first person in the world to go through a commercially approved gene therapy for sickle cell anemia. Want more What Next TBD? Subscribe to Slate Plus to access ad-free listening to the whole What Next family and all your favorite Slate podcasts. Subscribe today on Apple Podcasts by clicking “Try Free” at the top of our show page. Sign up now at slate.com/whatnextplus to get access wherever you listen. Podcast production by Evan Campbell, Patrick Fort, and Cheyna Roth. Learn more about your ad choices. Visit megaphone.fm/adchoices
Last May, a 12-year-old with sickle cell anemia was the first person to receive a new gene therapy to treat the disease. The process is painful, expensive, and still frightening and uncertain, but biomedical researchers are cautiously calling it a “cure.” Guests: Gina Kolata, medical reporter for the New York Times Deb and Keith Cromer, parents to Kendric Cromer, the first person in the world to go through a commercially approved gene therapy for sickle cell anemia. Want more What Next TBD? Subscribe to Slate Plus to access ad-free listening to the whole What Next family and all your favorite Slate podcasts. Subscribe today on Apple Podcasts by clicking “Try Free” at the top of our show page. Sign up now at slate.com/whatnextplus to get access wherever you listen. Podcast production by Evan Campbell, Patrick Fort, and Cheyna Roth. Learn more about your ad choices. Visit megaphone.fm/adchoices
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Last May, a 12-year-old with sickle cell anemia was the first person to receive a new gene therapy to treat the disease. The process is painful, expensive, and still frightening and uncertain, but biomedical researchers are cautiously calling it a “cure.” Guests: Gina Kolata, medical reporter for the New York Times Deb and Keith Cromer, parents to Kendric Cromer, the first person in the world to go through a commercially approved gene therapy for sickle cell anemia. Want more What Next TBD? Subscribe to Slate Plus to access ad-free listening to the whole What Next family and all your favorite Slate podcasts. Subscribe today on Apple Podcasts by clicking “Try Free” at the top of our show page. Sign up now at slate.com/whatnextplus to get access wherever you listen. Podcast production by Evan Campbell, Patrick Fort, and Cheyna Roth. Learn more about your ad choices. Visit megaphone.fm/adchoices
Chantay Harrison-Crawford, a resilient 35 year-old woman, navigates life with Sickle Cell Anemia, Liver Disease, and various medical complications stemming from Sickle Cell Disease. Despite facing immense personal challenges, in 2019, she courageously founded Tilted Crown I Inc., a testament to her strength and determination. In 2023, Chantay confronted rock-bottom moments as she grappled with her own and her daughter's separate suicide attempts, triggered by toxic relationships within her family and circle of friends. Through adversity, she found a renewed purpose after a divine intervention during her second suicide attempt, leading her to dedicate herself to self-transformation and following a higher calling. As a mother, professional, wife, and entrepreneur, Chantay now channels her energy into fostering mental and emotional well-being. She initiated the "Royal Bible Study" program, aiming to empower women towards self-love and care, building on her commitment to serving others. Concurrently, she extended her compassion by offering shelter to two homeless individuals in Illinois. Chantay's past initiatives like "Wisdom Wednesday," documenting stories of Sickle Cell Warriors, and providing community support reflect her altruistic nature. Notably, she has also launched programs such as "Melanated Warrior" and "PMS - Pray and Manifesting Ish," emphasizing natural remedies for Sickle Cell Anemia and hosting relatable discussions through a weekly podcast. Embarking on a new chapter, she is set to release her first book under She Rises Studios, expected between November 2024 and January 2025, marking a significant milestone in her journey of resilience and empowerment. Her social media presence on Instagram as @Catica.33, TikTok as @dearcatica.333, and podcasts on IHeartRadio, Apple Podcasts, and Spotify under "Dear Catica.33" showcase her commitment to sharing experiences and insights.
In this week's episode we'll learn more about the ASCEND study, which investigated first-line asciminib in chronic phase chronic myeloid leukemia; a new risk score for myeloid neoplasm transformation in patients with clonal cytopenia of undetermined significance; and use of RHD genotyped D-positive blood transfusions in patients with sickle cell and unexpected anti-D antibodies.Featured ArticlesAsciminib Monotherapy as Frontline Treatment of Chronic Phase Chronic Myeloid Leukaemia - Results from the ASCEND StudyRisk Prediction for Clonal Cytopenia: Multicenter Real-World Evidence Genotyped RhD+ red cells for D-positive patients with sickle cell disease with conventional RHD and unexpected anti-D
September is Sickle Cell Awareness Month. In this Cancer Matters podcast, Dr Bill Nelson, the Director of the Johns Hopkins Kimmel Cancer Center, speaks to Dr Rick Jones and Dr Robert Brodsky about treating sickle cell anemia, an inherited disorder where mutations in the globin gene cause the red blood cells to take on a sickle shape, leading to severe pain and organ damage. They discuss and compare the types of bone marrow transplants currently used to treat the disease and highlight the significant improvements in reducing complications, such as graft-versus-host disease and graft rejection.
Qunita Wilson aka Lucy Lue is an online personality, fashion brand ambassador, and Sickle Cell Anemia advocate. We speak about her start in advocacy, and it transforming into a social media show. Hosted on Acast. See acast.com/privacy for more information.
In this episode Durell is joined by songwriter, artist, and music producer O'Jizz. O'Jizz is a Baltimore Maryland native and Durell and him begin the episode chatting about how they discovered each other initially through previous guest on the podcast hip hop artist and entertainment attorney Tracey Lee. Durell and O'Jizz discuss his early love for music and ultimately learning how to make beats on FL Studio which ultimately led him to go to school to learn audio engineering. Durell asks O'Jizz about how he was able to land some of his early industry placements in the mixtape era with Lloyd Banks and several others. As well as working with artists such as Eric Roberson, Sy Smith and producers such as Troy Taylor just to name a few. O'Jizz shares that he was passionate about starting his own independent record label On The Trak Music Group and finding artists to make a difference with. The episode ends with O'Jizz sharing with Durell about his life living with Sickle Cell Anemia and how that has shaped him in his journey in life and music. For more information on O'Jizz, please visit his Instagram profile Instagram @iamojizz
Mr John Richardson is back to discuss Sickle Cell Anemia, Vitamin B17 Deficiency and so much more. Tonight at 10pm ET. Use Promo Code: DIAMOND or TRUMPWONDiamondandSilk.com1. https://DrStellaMD.com2. http://PatchThat.com3. https://www.KattsRemedies.com/shop/ ?aff=34. https://TWC.Health (Spike Protein Support)5. https://CardioMiracle.com6. https://MyPillow.com/TrumpWon7. https://TheDrArdisShow.com/shop-all/8. https://www.Curativabay.com/?aff=19. http://MaskDerma.com10. https://GiveSendGo.com Follow on https://ChatDit.comhttps://FrankSocial.com/u/DiamondandSilkSee omnystudio.com/listener for privacy information.
Meet Leia and Krison Burroughs, who are still in the midst of their family building journey. On today's show, Leia and Kriston tell Ali about how Kriston was diagnosed with sickle cell anemia when he was just a year old, and how they had no idea that the sickle cell drug, Hydroxyurea, would have a direct effect on his fertility. They also talk about microTESE surgery, the five hysteroscopies Leia had, and how the whole infertility journey has been hard on their marriage. They explain why they fired their OB, why they pivoted to embryo adoption, why they preferred doing that over donor sperm, and where they are now in the journey. Says Leia: "Did you know that 24% of men with Sickle Cell Anemia experience infertility due to the effects of the disease? Did you know that Sickle Cell Anemia affects about 100,000 people or that it occurs 1 in every 365 Black births in the U.S.?" Says Kriston, "Black folks need to start talking about our fertility treatments." For more, follow IG: @ladibuddafly08 and @owtspokeneducator and @iamkristonb TOPICS COVERED IN THIS EPISODE: Infertility; Sickle cell anemia; Hydroxyurea; fibroids; embryo adoption; donor sperm; therapy; marriage issues; health insurance; black maternal healthcare; fertility grants EPISODE SPONSORS: WORK OF ART Children's Book about IVF https://www.infertileafgroup.com/books Do not miss Ali's children's book about IVF! It's been getting rave reviews. “Work of ART” is the story of an IVF kiddo the day he learns he is a “work of ART” (born via IVF and Assisted Reproductive Technology). For young readers 4-8. Hardcover. Written by Ali Prato; Illustrated by Federico Bonifacini. Personalized and non-personalized versions are available. Order yours now at https://www.infertileafgroup.com/books For bulk orders of 10 or more books, go to https://www.infertileafgroup.com/bulk-order-request FERTILITY RALLY @fertilityrally www.fertilityrally.com No one should go through infertility alone. Join the Worst Club with the Best Members at fertilityrally.com. We offer 5 to 6 support groups per week, three private Facebook groups, tons of curated IRL and virtual events, and an entire community of more than 500 women available to support you, no matter where you are in your journey. Join today at link in bio on IG @fertilityrally or at www.fertilityrally.com/membership SAVE $40 on an annual membership with code RALLY2024 NATALIST www.natalist.com Natalist is on a mission to improve your fertility journey with evidence-backed essentials to support your needs, from vegan prenatal packets to easy-to-use, plastic-neutral ovulation tests and fertility-friendly lube. Natalist is offering my community 25% off your first order at Natalist.com with promo code INFERTILEAF. RECEPTIVA DX https://receptivadx.com/ ReceptivaDx is the singular test capable of identifying endometriosis,progesterone resistance, and endometritis in one comprehensive analysis. These conditions are often the hidden culprits behind unexplained infertility, directly impacting the success rates of IVF treatments. Ask for the Receptvia DX test today, and use code INFERTILEAF24 for $75 off. Learn more about your ad choices. Visit podcastchoices.com/adchoices Learn more about your ad choices. Visit podcastchoices.com/adchoices
FPWN S9 EP118 - "What Do Gen Z's Think About Jesus?" In this episode, I have a very candid conversation with Ms. Amanda Williams about her journey through Sickle Cell Anemia, her newfound freedom as a teenager, life as a PK, and living a life for Christ in her Generation. I was blessed and inspired by her strength and faith, and I believe you will be too. Be Blessed. ❤
In this episode, we review the high-yield topic of Sickle Cell Anemia from the Heme section. Follow Medbullets on social media: Facebook: www.facebook.com/medbullets Instagram: www.instagram.com/medbulletsofficial Twitter: www.twitter.com/medbullets Linkedin: https://www.linkedin.com/company/medbullets
Hour 4- Larry and Lynn talk about the crazy story of the 12 year old boy with sickle cell anemia. He would be the first person in the world with sickle cell anemia to begin commercially approved gene therapy that could cure his condition.
In this episode of the podcast Nurse John invited Keelie, a sickle cell anemia warrior who has been fighting the disease for almost all of her life, she will share her story, struggles and all the in between fighting an invisible disability that shaped who she is in the present. Keelie was once a patient of John, he met her at her most vulnerable time of her life and have shown John her strength during those trying times, her resilience, patience and most of all her advocacy for her condition. Get your coffee and ears ready bestie and let's listen to Keelie story and learn together. Follow Keelie here: Website: https://akeliacampb.wixsite.com/sicklecellpatientcar Instagram: @sicklecellpatientcare TikTok: @sicklecellpatientcare Do me the biggest favour bestie, by giving us a 5 star in Spotify & Apple podcast, and to other platforms you're listening to, follow our podcast, leave a comment, turn on notification and share it to your social, it will help us spread the love and get us going! Follow me here: TikTok: https://www.tiktok.com/@nurse.johnn Instagram: https://instagram.com/nurse.johnn YouTube: https://youtube.com/@NurseJohnn Facebook: https://www.facebook.com/nurse.johnn Spotify: https://open.spotify.com/show/7Hp3DBH... Apple: https://podcasts.apple.com/ca/podcast... Check out my merch and get yourself one bestie! https://nursejohnn.com
KSQD 4-04-2024: This episode delves into a range of health topics, beginning with a unique case where a bone marrow transplant offered new hope for treating schizophrenia. We discuss the complexities of diseases such as sickle cell anemia and their unexpected interactions with other conditions. Our conversation extends to the gut microbiome, highlighting research on its link to various disorders and how diets, particularly the Mediterranean diet, support a healthy microbiome. We address the significance of a new treatment for postpartum depression and caution against premature excitement over health trends. Listener questions add a personal touch, sharing stories of dietary changes and weight loss, alongside inquiries about homemade kombucha. The episode also revisits a discussion on a rare disease diagnosis, adding depth to our ongoing exploration of health and wellness.
It's a devastating disease that can lead to chronic pain and early death and can be passed along to the next generation. Sickle Cell Anemia is an inherited lifelong disease that impacts nearly 100,000 Americans. Sickle Cell disease is a group of disorders that cause red blood cells to become crescent shaped and break down. this can block flood flow and cause chronic pain and even death. But hope has arrived. In December the FDA approved what many are calling a game changer. So health yeah, we have your prescription for life. Monica Robins is not a medical doctor. All content presented in this program is for informational purposes only. It is not intended to be a substitute for professional medical advice and should not be relied on as health or personal advice. Always seek the guidance of your personal doctor or qualified healthcare professional with any questions regarding your health or medical condition.
Hey girlies! Get ready for a wild one today... we have three topics that feel pretty much equally unhinged. First - Bretman Rock goes on Fannita's Podcast and recounts the story of his mother finding out that his father was cheating and let's just say it's a bit disturbing. Second - Jessi explains the Kyte Baby drama to Lily and they react to BOTH equally horrible apologies from the CEO herself (spoiler alert: they were not well received). And as if things couldn't get any more out of pocket, we finish things off discussing Daisy Marquez and her recent admission that she lied to her audience about having Sickle Cell Anemia 6 years ago because she didn't want them to know why she had stopped uploading for a few days.... (hint: it wasn't sickle cell anemia).
TIL 1 and 2 - a cure for Sickle Cell Anemia / fetal hemoglobin Note: many of the words used here have alternative UK (and Commonwealth) spellings versus USA spellings. I am using the USA versions throughout, though I personally prefer the UK versions with their diphthongs and ligatures like fœtal, but I blame my education for the bias! TLDR 1: A potential cure was approved in the UK in November 2023 for the blood disorder called Sickle Cell Anemia. TLDR 2: The oxygen-carrying pigment in fetuses is different from that in adults, and changes after birth. I am interested in all types of science, but particularly in Biology of all sorts (I have a BSc degree in Zoology). I was listening to a podcast where the subject of a potential treatment for Sickle Cell Anemia was discussed: Sickle Cell Disease is an inherited blood disorder resulting in anemia which has many complications and can be fatal. It is caused by an abnormality in haemoglobin. It's a rather complex subject which we will not go into here, though the Wikipedia page has a lot of useful information. A new treatment has been developed using genetic manipulation (CRISPR), which increases the amount of fetal hemoglobin (Hemoglobin F) produced by the stem cells in the bone marrow. Red blood cells with Hemoglobin F do not form the sickle shape. A "foetus" (UK) or "fetus" (US) is the unborn offspring that develops from an animal embryo. Hemoglobin is the oxygen-carrying protein in red blood cells. In the fetus it is different from that in the adult, and is called Hemoglobin F. Normally the fetal form is replaced by the adult form after birth in the first 2-4 months. Quote from Wikipedia: Hemoglobin F has a different composition than adult forms of hemoglobin, allowing it to bind (or attach to) oxygen more strongly; this in turn enables the developing fetus to retrieve oxygen from the mother's bloodstream, which occurs through the placenta found in the mother's uterus. The change from fetal to adult haemoglobin has been known about for many years (75+?) but I had never heard of it until recently. Links About the words "foetal", "fœtal" and "fetal": Wikipedia: Diphthong Wikipedia: Ligature (writing) Wikipedia: Sickle Cell Disease Wikipedia: CRISPR gene editing Wikipedia: Fetus Wikipedia: Hemoglobin Wikipedia: Fetal hemoglobin Wikipedia: Malaria TIL 3 - Perl's birthday The Perl scripting language was "born" in 1987 on December 18th. See the Github commit for the first released version I'm a long-time devotee of Perl, and my birthday is the same day! I didn't know this until today ☺ I'm more than twice as old though... I find it quite interesting to look at the original ideas behind Perl, which you can see on Github. Links Perl website First Github commit Wikipedia: Perl
Tune in as Amy Marxkors and Brad Young engage in a compelling discussion with Beth Elders, the Executive Director of the American Red Cross serving Greater St. Louis, about the crucial significance of blood donation during the holiday season. Explore the upcoming Audacy Holiday Heroes Blood Drive, taking place from Tuesday, December 19, to Friday, December 22, at over 22 different locations. Uncover the immense impact of this initiative, especially during a time when blood supplies often decrease due to busy holiday schedules.
Baltimore Constitutional and Criminal Defense attorney A. Dwight Pettit will unravel the myriad of lawsuits Donald Trump is facing. He will focus on the recent court ruling denying Trump immunity against the January 6th charges. Before Attorney Pettit, Emergency Room Physician Dr. Val Crowder will discuss a new cure for Sickle Cell Anemia. Haitian Activist Dr. Jude Azard will update us on the issues in Haiti. Bobby Brown Joins The Lineup For Tom Joyner's Fantastic Voyage 2024 Porting In Haiti, Dominican Republic & Puerto Rico Learn About The 54 Countries of Africa Text "DCnews" to 52140 For Local & Exclusive News Sent Directly To You! The Big Show starts on WOLB at 1010 AM, wolbbaltimore.com, WOL 95.9 FM & 1450 AM & woldcnews.com at 6 am ET., 5 am CT., 3 am PT., and 11 am BST. Call-In # 800 450 7876 to participate, & listen liveSee omnystudio.com/listener for privacy information.
Jasmin, Reese and Alyssa discuss the FBI raid of the home of Mayor Adams' fundraiser, what to know about the new far-right wing Speaker of the House, Mike Johnson, measures being taken in Australia to address domestic violence, and a young New Jersey boy being cured of sickle cell anemia thanks to a bone marrow transplant from his brother.
In this episode, we review the high-yield topic of Sickle Cell Anemia from the Basic Science section. Follow Orthobullets on Social Media: Facebook: www.facebook.com/orthobullets Instagram: www.instagram.com/orthobulletsofficial Twitter: www.twitter.com/orthobullets LinkedIn: www.linkedin.com/company/27125689 YouTube: www.youtube.com/channel/UCMZSlD9OhkFG2t25oM14FvQ --- Send in a voice message: https://podcasters.spotify.com/pod/show/orthobullets/message
The American Cancer Society lung cancer screening recommendations have been updated, and the US saw an increase in infant mortality rates for the first time in more than two decades. AMA's Vice President of Science, Medicine and Public Health, Andrea Garcia, JD, MPH, discusses these developments, along with announcements from the FDA about a potential cure for sickle cell anemia and how to correctly administer the Moderna COVID-19 vaccine. Plus, a Medscape survey on how concerned physicians are about artificial intelligence, the Biden-Harris administration asking schools to carry naloxone, and a study on the experience of using the 988 Suicide and Crisis Lifeline. American Medical Association CXO Todd Unger hosts.
Live Nursing Review with Regina MSN, RN! Every Monday & Wednesday we are live. LIKE, FOLLOW, & SUB @ReMarNurse for more. Get your FREE NCLEX PDF Workbook for my "NCLEX Scary Topics Event" today at https://bit.ly/ScaryTopicWorkbook2023 Sign up for the NCLEX 30-Day Challenge Review now at http://www.ReMarNurse.com/30Days Quick Facts for NCLEX Next Gen Study Guide here - https://bit.ly/QF-NGN Study with Professor Regina MSN, RN every Monday as you prepare for NCLEX Next Gen. ► Create Free V2 Account - http://www.ReMarNurse.com ► Get Quick Facts Next Gen - https://bit.ly/QF-NGN ► Subscribe Now - http://bit.ly/ReMar-Subscription ► GET THE PODCAST: https://remarnurse.podbean.com/ ► WATCH LESSONS: http://bit.ly/ReMarNCLEXLectures/ ► FOLLOW ReMar on Instagram: https://www.instagram.com/ReMarNurse/ ► LIKE ReMar on Facebook: https://www.facebook.com/ReMarReview/ ReMar Review features weekly NCLEX review questions and lectures from Regina M. Callion MSN, RN. ReMar is the #1 content-based NCLEX review and has helped thousands of repeat testers pass NCLEX with a 99.2% student success rate! ReMar focuses on 100% core nursing content and as a result, has the best review to help nursing students to pass boards - fast!
Dr. Mark DeWitt Ph.D., Associate Director at Mammoth Biosciences, and Dr. Don Kohn M.D., distinguished professor and Director of the UCLA Human Gene and Cell Therapy Program and CIRM grantee sat down with us to discuss their latest clinical trials to cure sickle cell anemia, how synthetic guides accelerated their journey from the bench to the clinic, and their experience in the cell and gene therapy space.
The COVID-19 vaccine came out at warp speed because of the work of these two scientists. This week, they were awarded the Nobel Prize in Physiology or Medicine. In celebration, we are re-posting our episode about Katalin Karikó and Drew Weissman. For many, many years they investigated the secrets of messenger RNA (mRNA). And when the pandemic began, their research was ready and waiting. On this episode you'll hear Katalin Karikó talk about her humble beginnings in Hungary, and the forces that enabled her to persevere, even though for decades people thought her ideas about mRNA were laughable. She was denied grants, lost jobs and wasn't taken seriously, but she never wavered. Fortunately, she met Drew Weissman one day at a copy machine, where they both worked at the University of Pennsylvania. Dr. Weissman was an immunologist, working on a vaccine for HIV. He was interested in Karikó's work and they began to collaborate. Even when they made major discoveries, they could not get support for their work… until the Corona Virus appeared. Now the scientific world sees the potential that Karikó and Weissman saw all along: that mRNA may open the door to many other vaccines and to therapeutic treatment for a host of illnesses, from Cancer to Sickle Cell Anemia to Heart Disease. (c ) American Academy of Achievement 2023
Host: Dr. Morgan McLeod, Asst. Professor of Pediatrics and Internal Medicine at the University of Mississippi Medical Center.Guest(s): Dr. Betty Herrington, Pediatric Hematology and OncologyTopic: Oncology, Hematology, Leukemia, Blood Donation, Cancer Research, Sickle Cell Anemia, Special Cancer Charity EventsSend your questions or comments to: kids@mpbonline.org. Hosted on Acast. See acast.com/privacy for more information.
September is National Sickle Cell Anemia Awareness Month. Sickle cell anemia, or sickle cell disease (SCD), is the most common form of inherited blood disorder. SCD and Sickle Cell Trait impacts African Americans at disproportionate rates. Here's some facts: Sickle Cell Disease (SCD) occurs among about 1 out of every 365 Black or African-American births. SCD occurs among about 1 out of every 16,300 Hispanic-American births. About 1 in 13 Black or African-American babies is born with sickle cell trait (SCT). As you can see, this disease greatly impacts our community and at this time there is no known cure. Hear my conversation with guest who provide first-hand experience with this devastating disease. Lorena Belcher: Mother of a SCD Warrior. Lorena shares her story of parenting a child who is living with the disease and the impacts on her family. Kamilah Bailey: Kamilah shares her journey living with SCD, including surpassing all of the limitations her doctors told her she would never do, like going to college out of state, having a successful career and even having a child. Won't He do it! Ylan Hunt: Ylan is also a SCD Warrior and community health provider. Ylan shares her experiences living with SCD. In addition, Ms. Hunt has the unique opportunity as a mental health provider to bring her personal experience to help bring a cultural connection to patients. Sickle Cell Anemia Association San Francisco (SCAASF): Sickle Cell Anemia Awareness of San Francisco (SCAASF) is a 501(c)3 non-profit organization that came into existence in 2014 after the founder's son Kareem M. Jones passed away in 2013 from complications with sickle cell disease. To learn more about the organization: https://www.scaasf.org/ --- Support this podcast: https://podcasters.spotify.com/pod/show/iammswanda/support
In this week's episode, we'll learn more about ventricular arrhythmias in sickle cell anemia, discuss the molecular heterogeneity of pediatric monomorphic post–solid organ transplant lymphoproliferative disorders, and uncover the role of the bone marrow microenvironment as a driver of myeloid disorders.
Sickle cell anemia is a genetic disorder characterized by abnormally shaped red blood cells,In one of this week's episodes on Weekly Dose with Dr. Ude, we have a special guest who will share important information of this week's topic. Dr. Toyosi Onwuemene is an Associate Professor of Medicine-Hematology at Duke University School of Medicine and obtained her MD from Duke University and master's in clinical investigation from Northwestern University. She completed Internal Medicine residency at Duke University Medical Center and Hematology/Oncology Fellowship training at the McGaw Medical Center of Northwestern University. Dr. Onwuemene is a hematologist and clinician researcher who helps academic clinicians build research programs whether or not they have a mentor.Check it out!Here are the social media links of Dr. Toyosi Onwuemene.LinkedIn: linkedin.com/in/tonwuemeneInstagram: https://www.instagram.com/coagcoachYoutube: @CoagCoach Looking for a quality primary-care physician?
Our experience with mRNA vaccines during the COVID pandemic showed us the possibility of designing other RNA-based drugs in a flexible and efficient manner. Dr. Athma Pai of the UMass Chan Medical School talks about how her research into RNA therapeutics and the immense promise it holds for conquering a wide range of diseases, from. cancer to sickle cell anemia, and more. Veteran broadcast journalists George Lewis and Judy Muller moderated the session with Dr. Pai, recorded at the Telluride Conference Center in Mountain Village, Colorado
My daughter, Amani Joy, is turning one year old in just a few days! To celebrate this milestone, I wanted to reflect on my experience as a new mother and what I've been learning over the past 12 months. In this solo episode of The Unconditionally Worthy Podcast, I share with you the most impactful lessons I've learned during my first year of motherhood.IN THIS EPISODE, I SHARE…The 4 biggest lessons I've learned in my first year of motherhood.My experience as a parent of a child with sickle cell.What I'm working on to be a better mom.and more!If you enjoyed this solo episode, share it with a loved one, then…Leave a Rating & Review on Apple Podcasts and Spotify to show your love to The Unconditionally Worthy Podcast!Stream & Download The Unconditionally Worthy Podcast NOW for FREE on Apple Podcast, Google, Stitcher, Pandora, and Spotify!To connect further with me:Visit my website: https://www.dradiagooden.com Connect with me on Facebook: https://www.facebook.com/dradiagooden Follow me on Instagram: https://www.instagram.com/dradiagooden Connect with me on Linkedin: https://www.linkedin.com/in/adia-gooden-4b26751b Watch the full interview on YouTube: https://youtu.be/AI9qxu85L9w Read the show notes and transcript here: https://dradiagooden.com/episodearchive/81This episode was produced by Crys & Tiana.Learn more at https://www.crysandtiana.com.
In this episode, Dr. Leslie Appiah, who is fellowship-trained in Pediatric and Adolescent Gynecology and is the Director of the Fertility Preservation Program at the University of Colorado, discusses oncofertility and fertility preservation. --- EARN CME Reflect on how this Podcast applies to your day-to-day and earn free AMA PRA Category 1 CMEs: https://earnc.me/KtEfCL --- SHOW NOTES Dr. Appiah begins the episode by defining oncofertility as a multidisciplinary field that improves fertility and reproductive health outcomes for patients with cancer diagnoses. She emphasizes the growth of the field, with the term “oncofertility” being coined in 2009 by Dr. Teresa Woodruff at Northwestern University. Now, 13 states have legislation that mandates insurance providers to cover fertility services for patients with and without cancer. The primary patient population that may benefit includes patients with a cancer diagnosis, although additional populations who may benefit, including patients with Sickle Cell Anemia undergoing bone marrow transplant, systemic lupus erythematosus using alkylator therapies, transgender populations undergoing gender-affirming treatments, and patients born with genetic conditions that may result in infertility (e.g., Turner Syndrome). The main agents that are harmful to fertility include alkylator and radiation therapies. The physicians then transition to discuss fertility preservation, and Dr. Appiah highlights that it is the responsibility of medical providers to offer counseling for every patient who is at risk for infertility. She then describes types of fertility preservation, including sperm banking, testicular tissue preservation, egg freezing, and ovarian tissue cryopreservation. Dr. Appiah then shares 3 different procedures that are used for ovarian tissue cryopreservation, the most common approach begin a laparoscopic procedure to retrieve one ovary, which is then preserved and later transplanted back into the pelvic peritoneum once the patient has completed cancer therapies and is ready to start a family. The episode concludes with Dr. Appiah shares future directions in the field of oncofertility, which includes streamlining the process for male patients, ensuring every state is able to allow fertility preservation services that are covered by insurance providers, optimizing the process of transplanting ovarian tissue, and utilizing ovarian tissues for hormone replacement. --- RESOURCES ReproTech, Fertility Preservation: https://www.reprotech.com/fertility-preservation-network/ Oncofertility Consortium: https://oncofertility.msu.edu/about/ Alliance for Fertility Preservation, Fertility Scout: https://www.allianceforfertilitypreservation.org/about-fertility-scout/
We wrap up our conversation with Dr. Gregory Yanik, Director of the Pediatric Blood and Marrow Transplant Program at the University of Michigan Medical Center in Ann Arbor, Michigan. Parts 1 and 2 of this double bonus episode is a must-listen for every patient, family, and doctor in the healthcare field. Dr. Yanik epitomizes a model of compassion and respect for families and patients that every healthcare center should replicate and implement ASAP. This episode covers graft versus host disease, patient advocacy, the latest in half and full-match bone marrow transplant options for patients with sickle cell anemia, gene editing, recently completed studies from the Bone Marrow Transplant Clinical Trial Network, and much more!
You're in for a treat, WITH listeners! Have you ever interacted with a doctor and asked yourself, "how can I clone this provider so everyone can have this great experience?" Well, I have and this is the doctor I wish every single person receiving medical care could receive it from. Dr. Gregory Yanik is the Director of the Pediatric Blood and Marrow Transplant Program at the University of Michigan Medical Center in Ann Arbor, Michigan. From the moment you press play, you will hear why he's the GOAT. This is a can't miss episode.
Teresa "Super Tee" McCurry and Audrey “Tech Diva” Wiggins discussed Teresa's Marketplace ministry, which extends beyond the four walls of the church. She is a Ministry Leadership Trainer, International Speaker & Bible Teacher, Author, and licensed cosmetologist with over 30 years of beauty industry experience. She authored ten books which includes Runnin' Things; The Resilient Spirit of an Entrepreneur and The Person with Power; Holy Spirit Dwelling on the Inside. She also co-authored Giving; God's exchange rate with her husband. All of Pastor McCurry's writings can be viewed here. She has a Bachelor's Degree in Applied Business Administration and a Honorary Doctorate Degree in Humanitarianism. She is a Sickle Cell Advocate and Founder of The Meesha Chanell Saxton Fund {MCS~Fund} whose sole mission is to generate unrestricted funds for Sickle Cell Anemia individuals. Through supportive services and advocacy, serving the needs of people affected by this disease is not only a mission, but also a passion. Teresa's passion for the beauty industry standards are displayed in the excellence with which she leads by example educating, serving, and beautifying clients while inspiring them to be what God has called them to be.Teresa discussed the importance of having a coach or mentor as business leaders, and the need to build a team with people who have strengths in areas that the leader is not as proficient in. She also discussed the need for volunteers in ministry to have a heart condition and be passionate about the work they are doing. Finally, she mentioned her two programs, Anointed Destiny Helpers Mastermind and Running Things Leadership Development Training.Visit superteeinspires.me to apply for her Mastermind and Running Things Leadership Development training programs.Digital Business Cards Let's speed up your follow up. Get a digital business card.Altogether Domains, Hosting and More Bringing your business online - domain names, web design, branded email, security, hosting and more.Buzzsprout - Let's get your podcast launched! Start for FREESmall Business Legal Services Your Small Business Legal Plan can help with any business legal matter.Designrr Get Instant Transcripts from your Podcast, Video, or Webinar Riverside.fm Professional Remote Content Creation StudioDisclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the showPlease Rate & ReviewVisit Altogether Marketing LLC
This week's episode will be focusing on Sickle Cell Anemia. We will go over important details on sickle cell diseases including the pathophysiology , diagnosis and treatment of this group of diseases.
Sofia is the spotlight of season two! Born with Sickle Cell Anemia, an inherited blood disorder that affects red blood cells, Sofia underwent a Bone Marrow transplant that cured her of this disease that causes pain, fatigue, and additional complications. This season will feature Sofia's journey of healing. We will interview Sofia's donor, her brother Tevis and medical team. This season of Waiting is the Hardest will also highlight another sickle cell survivor, Kennedy and her donor, her mother Tamika. Kennedy will share her unique journey, lessons learned along the way, and encouragement for anyone who is going through a difficult health situation.Kennedy's story airs March 17 2023. You will be inspired and enlightened by both young ladies' perseverance and commitment to overcoming the odds. Set your reminders now!
JD Slajchert is an American novelist, speaker, and philanthropist. The former University of California, Santa Barbara basketball star debuts his second novel, “Darling, You're Not Alone” in the fall of 2022. NOVELISTA young adult novel, “Darling, You're Not Alone” explores the philosophical contention that if extraordinary darkness exists, then so too must extraordinary light. Slajchert explains, “We know all too well about the mindless tragedies that take place regularly in our world today, but this book is about the search and eventual discovery that if you keep battling, on the other side of tragedy is life changing opportunity.” “Darling” is a story told through three different stages of a boy's maturation into a young man. When we meet our protagonist, Phoenix Iver, on his tenth birthday in 1994, we quickly discover that he is not like everyone else. As a tortured young soul with crippling, manic episodes of social anxiety and depression, Phoenix leans heavily on his relationship with his one true friend, his father Herman. Although Phoenix relies on Herman for many things, he becomes increasingly more and more dependent on Herman's glowing, yet mysterious belief that the world is a good place. Then, one cold morning, and on the verge of discovering where his father's light comes from, Phoenix finds himself caught in the cross hairs of a school shooting. “Darling” chronicles this boy's struggles and rebounds as he attempts to believe in the idea's supported by his father despite all the darkness he's seen. A balance that we all—at one time or another—struggle to keep even.“MoonFlower” is inspired by his biggest fan as an athlete, Luc Bodden, who suffered and subsequently succumbed to Sickle Cell Anemia. Slajchert published a novella titled “Joining the Choir Invisible” last year.PHILANTHROPISTOn November 9, 2018 - just three weeks after his debut novel was published - Slajchert lost his Malibu home in the Woolsey Fire. The next day he and his team launched a fundraising campaign #MoonFlowers4Malibu where 100% of the book's sales were donated to the victims of the Woolsey Fire. After partnering with several organizations including, the American Red Cross (where he is a National Ambassador), Modern Woodmen Fraternal Financial and working with local politicians such as the Mayor of Calabasas and Mayor of Malibu, on March 3, 2019, Slajchert concluded this fundraising campaign by raising thousands of dollars for the American Red Cross. Since then, philanthropy has been cemented as a major pillar of Slajchert's passions. Slajchert is also the Director of Relationship Development for The LucStrong Foundation, a registered 501(c)(3) non-profit that supports children with Sickle Cell Disease. He works directly with donor and community outreach for the foundation, facilitating better communication between their donors and children. www.jdwritesbooks.comwww.lucstrong.org
The Joyful Mourning - A Podcast for Women Who Have Experienced Pregnancy or Infant Loss
In this episode I have the joy of interviewing Essence Reid-Oxley about her motherhood journey. During our time together Essence shares with me about her son Micah and what it was like to learn that he had Sickle Cell Anemia and then was later given a life limiting diagnosis called "Fetal Akinesia”. We talk about what it was like to receive that diagnosis, what options she was given and what words of wisdom she would give to another mom who has been given a life limiting diagnosis for her baby. Essence shares how she created a birth plan and what her hopes were for when her son Micah was born. Then we spend time talking about what it was like to parent her living son throughout her pregnancy and then after losing Micah. We talk about the kinds of questions that a 2-3 year old asks when trying to process the loss of a baby and how those questions change as they grow older. We talk about what it was like for Essence to walk Tobias, her living son, through that season while her heart was also breaking. The books she read to him, the way she talked about what was happening and what had happened as well as the ways they include Micah in the life of their family now. Essence experienced another devastating loss just earlier this year, not even a year after losing her son Micah and we spend some time talking about what that was like for her, how she is pursuing healing and what her relationship with God looked like amidst all the loss and grief. This conversation is honest and incredibly hopeful – I know it will bless you. QUESTIONS WE DISCUSS IN NO.172 What surprised you most about loss and the grief journey? What would you say to a woman who has just received a life-limiting diagnosis? What do you wish someone would have said to you? Let's talk about parenting amidst such devastating news. How old was your son Tobias at the time of the diagnosis given for Micah? What was it like to walk him through that season while your heart was also breaking? How did you talk to him? How did you explain what was happening? What other challenges did you face in parenting Tobias after you lost Micah? How did you navigate those challenges? How do you help Tobias grieve and cope? Are there any resources that have been helpful to you in parenting after loss? What has it looked like for you to include Micah in the life of your family now? You suffered another loss after losing your son Micah. What was it like to experience another loss? What has healing looked like for you? Spiritually, emotionally and mentally? What did/has your relationship with God look like in this season? What has it practically looked like to maintain a healthy relationship with God in this season? FREE GRIEF GUIDE Our best and most helpful resources for navigating grief and life after loss all in one place. Download Here. JOIN OUR FREE ONLINE COMMUNITYwww.themorning.com/community SHOW NOTESwww.themorning.com/blog/episode172 RATE, REVIEW & FOLLOW ON APPLE PODCASTSIf you love The Joyful Mourning Podcast, please consider rating and reviewing the show! This helps moms who are grieving to find us a little easier and get that support they need. Click here, scroll to the bottom, tap to rate with five stars, and select “Write a Review.” Then be sure to let me know how this episode helped you.
The COVID-19 vaccine came out at warp speed because of the work of these two scientists. For many years they had been investigating the secrets of messenger RNA (mRNA). And when the pandemic began, their research was ready and waiting. On this episode you'll hear Katalin Karikó talk about her humble beginnings in Hungary, and the forces that enabled her to persevere, even though for decades people thought her ideas about mRNA were laughable. She was denied grants, lost jobs and wasn't taken seriously, but she never wavered. Fortunately, she met Drew Weissman one day at a copy machine, where they both worked at the University of Pennsylvania. Dr. Weissman was an immunologist, working on a vaccine for HIV. He was interested in Karikó's work and they began to collaborate. Even when they made major discoveries, they could not get support for their work… until the Corona Virus appeared. Now the scientific world sees the potential that Karikó and Weissman saw all along: that mRNA may open the door to many other vaccines and to therapeutic treatment for a host of illnesses, from Cancer to Sickle Cell Anemia to Heart Disease.
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