Podcasts about patientvoice

Patient Advocates play a crucial role in the pharmaceutical industry, especially in clinical research. They serve as the voice of patients, ensuring their needs and concerns are addressed throughout the drug development process. Here's a simple breakdown of their contributions and when their involvement might not be ideal.Why Are Patient Advocates Important?1. Improving Clinical Trial Design: Patient Advocates provide valuable insights into patient experiences and needs. Their feedback helps researchers design more patient-friendly clinical trials, leading to higher participation rates and more reliable results.2. Bridging the Gap: They help bridge the communication gap between pharmaceutical companies and patients. By ensuring clear and understandable communication, they aid in better recruitment and retention of patients in clinical trials.3. Ensuring Transparency: Advocates promote transparency and trust by fully informing patients about the trials, including the risks and benefits. This transparency builds trust and encourages more patients to participate.When Might Patient Advocates Not Be the Best Choice?1. Overcomplicating Simple Studies: In straightforward clinical trials, involving Patient Advocates can add unnecessary complexity. For very clear protocols, this additional layer might slow down the process without adding significant value.2. Misalignment of Goals: Sometimes, the goals of Patient Advocates and pharmaceutical companies may not align perfectly. If Advocates push for changes that conflict with the scientific or regulatory goals of the study, it can create conflicts and delay research.3. Limited Expertise in Specialized Areas: In highly technical or specialized areas, Patient Advocates may lack the necessary expertise to contribute meaningfully. For example, in rare disease states or cutting-edge technologies, the required insights may be highly technical and specific, beyond the scope of patient advocate knowledge.While Patient Advocates are invaluable in many aspects of clinical research, their involvement should be carefully considered based on the study's complexity and specific needs. Proper alignment and clear communication between all parties can help maximize the benefits of involving Patient Advocates.Support the show

In this episode, we delved into the pivotal role of patient advocates within the pharmaceutical industry. Patient advocates are champions who ensure that patients' voices are not only heard but also central to decisions affecting their health. They play a crucial role in various aspects:Firstly, patient advocates are instrumental in representing the patient voice in clinical trials. By advocating for patient-centric endpoints and highlighting symptoms that matter most to patients, they help ensure that trials are not only rigorous but also relevant to real patient needs.Secondly, these advocates support the development and adoption of innovative drugs. They identify gaps in treatment options and advocate for the development of drugs that address unmet medical needs. By collaborating with pharmaceutical companies and healthcare providers, they advocate for the adoption of these drugs to improve patient outcomes.Thirdly, patient advocates work tirelessly to ensure access to medications. They advocate for policies and practices that remove barriers to medication access, such as affordability and availability issues. By engaging with policymakers, healthcare providers, and the public, they strive to make sure that every patient can obtain the medications they need without undue hardship.Moreover, patient advocates play a crucial role in healthcare decision-making processes. They participate in meetings with drug companies, hospitals, regulatory bodies, and government agencies to ensure that patient perspectives are considered in policy-making and healthcare delivery.For those interested in becoming patient advocates, we discussed practical steps such as educating oneself on healthcare systems, clinical trials, and specific health issues, joining patient advocacy groups, attending conferences and workshops, volunteering, and sharing personal experiences to raise awareness.In conclusion, patient advocates are instrumental in shaping a healthcare system that truly serves patients' needs. Their advocacy ensures that healthcare decisions are informed by patient experiences and priorities, ultimately leading to more effective, patient-centered care.Support the Show.

The pre-clinical stage of drug development is largely about safety - answering the question 'will a drug be well tolerated in people?' However, Kristina Bowyer of Ionis Pharmaceuticals helps us understand that the patient voice should be integrated into every stage of the process, including pre-clinical. Plus, Sean loses his focus. Enjoy!

Find out why you need to consider the patient and their wants and needs before building products or marketing campaigns.

With chronic pain impacting the lives of 1 in 5 Canadians, National Pain Awareness Week provides a critical opportunity to raise awareness, reduce stigma, and advocate for change in the way pain is understood and managed for millions of Canadians.People living with pain play a vital role in raising the profile of chronic pain, so on this month’s episode of the Pain Waves Podcast, we’re joined by patient advocates Jason and Jennifer. They speak about their experiences with pain, its many impacts on their lives and how they’re using their stories to advocate for others who also live with pain.To follow the conversation on National Pain Awareness Week, search for the #LivingWithPain and #NPAW2019 hashtags on Twitter and Facebook.Resources mentioned in this episode:- Jason's podcast: https://www.discomfort.fm/- Jennifer's blog post: https://www.painbc.ca/blog/undiagnosed-pain-one-womans-journey-hope

Living with chronic pain can be overwhelming and isolating, but sharing your story with others has the power to influence a new understanding of pain and how to manage it, and can help with providing a voice for other people living with pain.On this month’s episode of the Pain Waves podcast, we’re joined by Joletta Belton, a person with lived experience who has been advocating for people in pain since 2010. She shares her personal experiences and draws upon how she’s been able to redefine her story in a way that’s helped her manage pain, find meaning in life again, and increase awareness and understanding of pain among others.Resources mentioned in this episode:- Joletta's blog: https://www.mycuppajo.com/- Joletta's recent Pain BC webinar on pain science and story: https://painbc.ca/health-professionals/webinars/making-sense-pain-through-science-and-story- Endless Possibilites Initiative: http://www.epicolorado.org/- Retrain Pain Foundation: https://www.retrainpain.org/Literature references:- Howard Brody's "My story is broken; can you help me fix it? Medical ethics and the joint construction of narrative": https://muse.jhu.edu/article/376891- Bessel van der Kolk's "The Body Keeps the Score": https://www.psychotherapy.net/article/body-keeps-score-van-der-kolk- Arthur Frank’s "The Wounded Storyteller": https://www.goodreads.com/book/show/106486.The_Wounded_Storyteller

Have you bloomed where youare planted?NEW episode ofChronically CultivatingAvailable Today after 10 am EDTEpisode #7"Bloom Where You Are Planted"On this episode, Cassie and her Mom Debra have a wonderful chat around a trending quote and how it works in and around their lives!To listen to Chronically Cultivating

Have you bloomed where you are planted? NEW episode of Chronically Cultivating Available Today after 10 am EDT Episode #7 "Bloom Where You Are Planted" On this episode, Cassie and her Mom Debra have a wonderful chat around a trending quote and how it works in and around their lives! To listen to Chronically Cultivating

Living The Dream with Travis BartonNEW episode Monday Nights8:00 pm EDTEpisode #38"Dr. Juicy", Jill Stocker, D.O.Have you lost your juiciness?

Living The Dream with Travis Barton NEW episode Monday Nights 8:00 pm EDT Episode #38 "Dr. Juicy", Jill Stocker, D.O. Have you lost your juiciness?

Living The Dream with Travis BartonNEW episode Monday Nights8:00 pm EDTEpisode #38"Dr. Juicy", Jill Stocker, D.O.Have you lost your juiciness?

Chronically Cultivating with CASSIE NOLINEpisode #2"God Doesn't Make Garbage"Cassie and her Mom (Deb) have a candid chat of some of the memories and realities of managing the chronic illness lifeBrought to you by:Speaking to the Heart Podcast Networkspeakingtotheheart.orgListen on your favorite podcast appSpotify https://spoti.fi/2SvW3azFacebook http://bit.ly/2J6H0yBGoogle Play http://bit.ly/2fnIrIciTunes http://bit.ly/SpknToHrtYoutube http://bit.ly/STTHYoutubeSpreaker http://bit.ly/STTHSprkStitcher https://ecs.page.link/tPNrdPlayer FM https://ecs.page.link/iYQxy

Chronically Cultivating with CASSIE NOLIN Episode #2 "God Doesn't Make Garbage" Cassie and her Mom (Deb) have a candid chat of some of the memories and realities of managing the chronic illness life Brought to you by: Speaking to the Heart Podcast Network speakingtotheheart.org Listen on your favorite podcast app Spotify https://spoti.fi/2SvW3az Facebook http://bit.ly/2J6H0yB Google Play http://bit.ly/2fnIrIc iTunes http://bit.ly/SpknToHrt Youtube http://bit.ly/STTHYoutube Spreaker http://bit.ly/STTHSprk Stitcher https://ecs.page.link/tPNrd Player FM https://ecs.page.link/iYQxy