Podcasts about spoonie

Welcome to S04E10 of A Friend for the Long Haul - A Long Covid Podcast! I accidentally invented a virtual summer camp for Spoonies after having a small existential crisis in my Instagram stories.In this episode, I talk about why summer can feel surprisingly painful for chronically ill and neurodivergent people, especially parents, caregivers, and anyone grieving the life they thought they'd have. Between Long COVID, autism, ADHD, sensory overwhelm, heat intolerance, and the logistical nightmare of trying to “summer normally,” I realized what I actually need is community, ritual, silliness, softness, and something to look forward to.Enter: Camp Long Haul.A fully optional, low-pressure, asynchronous virtual camp for spoonie folks featuring themed weeks, crafts, scavenger hunts, campfire chats, hydration flotillas, ghost stories, pacing tips, and absolutely zero requirement to keep up or explain your absence.Lurkers welcome, goblin mode accepted, no assholes. Grab your flotilla and let's camp!Key topicsWhy summer can feel isolating and emotionally difficult for chronically ill and disabled peopleParenting in a fully neurodivergent household while managing chronic illnessCreating accessible community spaces for Spoonies and Long HaulersThe structure and philosophy behind Camp Long HaulLow-pressure participation and asynchronous community buildingThemed weeks, campfire chats, scavenger hunts, crafts, and low-spoon activitiesPacing, overstimulation, burnout, and adapting expectationsFriendship, belonging, ritual, and chosen family in disability communitiesCommunity rules around respect, consent, and psychological safetyReclaiming fun, softness, and creativity after trauma and illnessresourcesWhose Land — Whose LandInstagram account for Ray and Stormi (pet enrichment & disability-friendly dog training): Ray and Stormi Instagram and TikTok: Ray and Stormi TikTokEmbracing Enchantment — Embracing Enchantment PodcastSupport this PodcastI'm a disabled lady doing this whole podcast on my own. If you would like to support the podcast, please subscribe and follow, engage with my posts, comment, and share episodes that resonate with you! Those are the biggest ways you can support me and my work.If you'd like to get some of my merch, check out my Bonfire shop! All proceeds are funneled back into the podcast for tech or used for community care and mutual aid. I don't keep the proceeds.I do have an Amazon gift registry that I update for the summer each year. We are a blended family of 6 and all of us have disabilities. Some of our kids have complex medical issues as well as intellectual and physical disabilities, and we're increasingly neurodivergent. Summers get emotional, kids get boring, and the parents work from home without a "village" or the luxury of childcare. This summer gift registry keeps us afloat.---If you'd like to be a guest on the show or suggest a guest, please use this form! https://forms.gle/q9wiV6mQ4G3SMBu99Thank you for listening to and supporting A Friend for the Long Haul!KeywordsLong COVID, Spoonie community, chronic illness podcast, neurodivergent adults, autism, ADHD, virtual summer camp, disability community, accessible community, chronic illness support, CPTSD, pacing, burnout, neurodivergent parenting, accessible joy, online community, disability advocacy, mental health, summer loneliness, chronic illness isolation, low spoon activities, asynchronous community, virtual support group, EDS, chronic fatigue, inclusive spaces

This replay episode on spoonie productivity discusses strategies for managing the holiday season when you are a spoonie and have limited energy. Addressing chronically ill and disabled individuals, I share personal experiences and practical tips on honoring your culture and legacy without sacrificing your wellbeing. The episode highlights the importance of setting boundaries, delegating tasks, and adapting traditions to fit your capacity. I also encourage you to identify nonnegotiables and prioritize self-care to ensure you work towards having a meaningful and enjoyable holiday season.If you liked this episode, check out our previous episodes 44 and 166 on reducing overwhelm before the holiday break and navigating grad school during the holidays.Click here to learn more and sign up for my group coaching program, the Grad Empowerment Coaching Circle, by January 12.Get your free copy of my Grad School Femtoring Resource kit here.Support our free resources with a ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠one-time or monthly donation⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠.To download episode transcripts and access more resources, go to my website: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://gradschoolfemtoring.com/podcast/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠This podcast is a proud member of the Atabey & Co. Network.*The Grad School Femtoring Podcast is for educational purposes only and not intended to be a substitute for therapy or other professional services.* Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Ever wish your bag could calm a flare before it starts? We empty our real spoonie survival kits and show exactly how we plan for pain spikes, long waits, and the kind of detours that come with chronic illness. From compact pain tools to mood-lifting comforts, you'll hear how we choose items that solve predictable problems—then scale up for travel without hauling a suitcase.We start with the everyday carry essentials: hand sanitizer, lens wipes, and multiple lip care options because dry mouth and dehydration hit hard. Ginger chews help with nausea and jitters, while compression gloves and lidocaine patches offer quick relief for aching hands and joints. We share why a sanitizer-pen is a genius hybrid, how a tiny bio stick helps settle the gut, and why two forms of Benadryl can be a lifesaver. Snacks matter just as much: roasted nuts, protein bars, and freeze-dried fruit keep energy stable when appointments run long. A favorite verse card in the wallet can reset a spiral faster than you'd think.Then we move beyond purses to the systems that keep us steady at home and on the go. A nightstand or chair-side kit holds electrolytes, dry mouth lozenges, and a dedicated snack box so you don't need to stand when flaring. Caregivers will find easy wins: labeled drawers, a ready-to-grab travel tote, and a weekly pill organizer that flips to show what's been taken. For longer outings, we add a TENS unit, trigger point tool, multiple electrolyte formats (powders, chews, capsules, even pickle juice), and a bento-style snack so eating doesn't feel like a chore. The goal is predictability, not perfection—small, smart choices that make hard days workable.If you're building your first kit or upgrading an old one, we've got practical packing lists, product ideas, and simple routines that reduce stress and decision fatigue. Tell us what we missed, share your favorite items, and help other spoonies build their own safety nets. Subscribe, leave a review, and drop your must-carry pick—what's the one item you never leave home without?Send us a text Keep your spoons close and support system closer.Support the showSupport:https://rarepatientvoice.com/Myspooniesisters/https://www.etsy.com/shop/MySpoonieSistershttps://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10) Website: https://myspooniesisters.com/ Discount Codes: GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

Episode Notes On Episode 401, Andrew sits down with disabled entrepreneur Zoey Schvan as they tell us all about their experiences with Familial Dysautonomia, why they created their business The Spoonie Table and their life as a disabled parent and partner + so much more. Enjoy! Help Disabled Americans w/ Food Insecurity: www.feedingamerica.org Connect with Zoey and Spoonie Table at www.spoonietable.ca Episode Sponsors Do you wanna turn b*tt stuff up a notch. Go to bvibe.com and use code AFTERDARK to receive 20% off orders of $100 (including bundles, discounted items and more). Disability content creation doesn't have to be hard. Follow @seated.perspectives on Instagram to learn how to make content creation a gentle, easy, accessible experience. Are you looking for attendant care when you need it at your convenience? Check out your team, on tap www.whimble.ca Get 15% off your next purchase of sex toys, books and DVDs by using Coupon code AFTERDARK at checkout when you shop at trans owned and operated sex shop Come As You Are www.comeasyouare.com Order Notes From a Queer Cripple and hire him to speak on it by e-mailing andrew@andrewgurza.com US: https://us.jkp.com/products/notes-from-a-queer-cripple Canada: https://www.ubcpress.ca/notes-from-a-queer-cripple Support the show with a donation: https://patreon.com/disabilityafterdark This podcast is powered by Pinecast.

Have you ever considered that your chronic illness might have given you superpowers? Not the kind that let you leap tall buildings, but the real-life abilities that make you uniquely resilient, intuitive, and resourceful.In this heartfelt conversation, we explore the unexpected strengths that emerge when living with conditions like rheumatoid arthritis. Our guest shares how being diagnosed completely transformed her perspective, teaching her to value her incredible resilience – waking up each day to face a body that doesn't always cooperate, yet somehow finding ways to adapt and keep going. This quiet, persistent strength rarely gets recognized but represents an extraordinary form of courage.We dive deep into how our intuition sharpens after diagnosis, helping us make smarter decisions about everything from travel plans to work commitments. Years of managing unpredictable symptoms teach us to read the fine print, seek flexibility, and anticipate our needs in ways others might never consider. This isn't about limitation – it's about making choices that allow us to enjoy life more fully.The discussion takes fascinating turns through time management strategies (work smarter, not harder!), relationship wisdom (valuing positive connections while setting healthy boundaries), and career navigation with chronic illness. Our guest shares her remarkable journey from physically demanding hospital work to finding her purpose helping others with RA, writing for major health publications, and embracing multiple careers that accommodate her health needs.Perhaps most inspiring is the revelation that being underestimated because of chronic illness can become its own kind of superpower – creating motivation to exceed expectations and the satisfaction of surprising others with what you can accomplish. Whether you're newly diagnosedSend us a text Are you living with a chronic illness and want to make your voice heard? Rare Patient Voice connects patients and caregivers with research opportunities—so you can share your experiences and get paid for your time! Your insights help drive real change in healthcare.Let's Get Started - Rare Patient Voice

Move It or Lose It | Episode 135 | Jen Weaver from My Spoonie Sisters | A deep dive into community with chronic illnessDon't forget to like, comment, and subscribe for more episodes of the Move It or Lose It Podcast!

Jenni and Cheryl share the research highlights that stood out the most for them, from new research on POTS and Covid to the importance of sleep and fatigue management. We also shine a light on recent advancements in lupus treatment and managing stress and activity through "positive activity scheduling." Cheryl and Jennifer also share personal stories on navigating sleep hygiene, the subtle pressures of defining "normal," and the importance of sensitivity in language. Through these reflections, we emphasize a broader understanding and embrace of diverse health experiences. We also reflect on the importance of finding supportive communities.*This episode was originally recorded as part of the My Spoonie Sisters podcast. Episode at a glance:Getting Involved: Patient advocacy and research as “Rheum Champions” with the Rheumatology Research FoundationResearch Highlights: New findings on POTS and Covid, the role of sleep and fatigue management in chronic illness, Advances in lupus treatment, Benefits of positive activity scheduling for stress and activity managementPersonal Insights: Real-life strategies for improving sleep hygiene, Challenging the idea of what's considered “normal,” The power of sensitive and inclusive languageCommunity & Support: The importance of finding and connecting with supportive communities, Encouragement for those looking to get involved in advocacyMedical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! 

Ever wondered how you can travel the world as a spoonie without triggering a flare-up? In this episode, I share my 16-day journey through Europe—Barcelona, Mallorca, and Paris—while managing chronic illness and navigating international travel. From essential travel tips to mindset shifts, I dive deep into the strategies that allowed me to thrive, not just survive, while exploring new places and experiencing a life-changing adventure.In this episode, I cover:My pre-trip preparation (check out the previous episode for more details)The challenges and joys of flying with a hidden disabilityHow I used pacing and mindful rest to prevent flare-ups while sightseeingMy go-to strategies for managing energy and fatigue during travel (from grounding exercises to using crystal bracelets)How embracing a “thriving spoonie” mindset allowed me to let go of fear and experience more joyKey moments in Barcelona, Mallorca, and Paris that tested my limits and taught me important lessons about self-care, intuition, and boundariesPractical tips for managing anxiety, back pain, and other common spoonie symptoms while travelingHow I've learned to expand my capacity over time and set new goals for self-improvement in both travel and lifeWhether you're a spoonie who loves to travel or someone who's been afraid to take the plunge, this episode will offer you inspiration, practical advice, and the confidence to start planning your next adventure with ease. No matter what challenges you face, you can still explore the world on your terms.Want to learn how to find freedom from chronic pain and fatigue? Register for my free training: https://www.thespooniementor.com/free/ Instagram: https://instagram.com/thespooniementorWebsite: https://www.thespooniementor.com/

Struggling with the challenges of invisible disabilities? Join us as Maggie Cavanaugh, a National Certified Counselor living with postural orthostatic tachycardia syndrome (POTS), reveals her transformative journey from an advertising career to becoming a counselor. Diagnosed at just 14, Maggie navigates the complexities of mental health and chronic illness with empathy, sharing her insights on overcoming disparities in income and workplace stigma. Her story unfolds with a heartening look at how the COVID-19 pandemic inspired her to pivot and support those feeling isolated, highlighting the importance of empathy and understanding.Meet Andy, a remarkable advocate living with multiple invisible disabilities, who demonstrates the power of resilience and self-advocacy. Blindness, deafness, and autoimmune diseases have not stopped Andy from championing the necessity of strength-based, solution-focused strategies both personally and professionally. Their wisdom extends to the role of understanding healthcare providers and the critical support of family and partners. Andy's connection with the Spoonie community underscores the importance of collaborative networks, as they share strategies for empowerment and fostering genuine support systems.Maggie and Andy shine a light on self-care and community as cornerstones of managing chronic illness. They explore turning self-criticism into self-compassion, setting boundaries, and embracing empowerment. Their stories remind us of the resilience found in authentic connections and the transformative power of understanding and support. As we express gratitude to the Spoonie community, the episode culminates in a tribute to the strength and inspiration drawn from shared experiences, leaving listeners with a sense of belonging and encouragement to cherish their perseverance.Send us a text Are you living with a chronic illness and want to make your voice heard? Rare Patient Voice connects patients and caregivers with research opportunities—so you can share your experiences and get paid for your time! Your insights help drive real change in healthcare.Let's Get Started - Rare Patient Voice Support the showSupport:https://rarepatientvoice.com/Myspooniesisters/https://www.etsy.com/shop/MySpoonieSistershttps://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)Website:https://myspooniesisters.com/ Discount Codes: GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

Chronic illness impacts every aspect of our lives, including the bedroom. In this refreshingly candid conversation, we break down the walls of shame and silence surrounding sexuality when living with chronic conditions.Ali returns from her mountain cabin retreat to share how her diagnosis completely changed her relationship with intimacy—once a proudly sexual person who even won a Thunder Down Under fake orgasm contest (with her mother cheering her on!), years of severe symptoms and medication side effects left her disinterested in physical connection. Only after prioritizing rest and health did she reconnect with that part of herself – a journey many Spoonies can relate to.The discussion expands into how religious upbringings compound these challenges. From Catholic households to Mormon traditions, many of us received messages of fear and shame rather than education about our bodies. Jen's mother joins the conversation, offering fascinating insights into Mormon temple practices, including special garments with symbolic markings and secret names women aren't allowed to speak. Her powerful story of liberation – shouting her temple name from a mountaintop – demonstrates how breaking free from restrictive beliefs can be part of our healing journey.Personal stories range from embarrassing (smuggling a vibrator through Middle Eastern customs) to deeply concerning (the lack of comprehensive sex education in today's schools). We examine how gender expectations shaped our understanding of roles within relationships and how breaking these generational patterns through open, honest conversations can create healthier foundations for our children.Whether you're struggling with reclaiming your sexuality through chronic illness or want to better understand how illness impacts intimacy, this episode offers validation, laughter, and a reminder that your experiences deserve to be acknowledged without shame. Join us for this profoundly human conversation about one of the most natural yet seldom-discussed aspects of the Spoonie experience.Send us a text Are you living with a chronic illness and want to make your voice heard? Rare Patient Voice connects patients and caregivers with research opportunities—so you can share your experiences and get paid for your time! Your insights help drive real change in healthcare.Let's Get Started - Rare Patient Voice

Subscriber-only episodeResources for the Community:___________________________________________________________________https://linktr.ee/theplussidezpodcast Ro - Telehealth for GLP1 weight management https://ro.co/weight-loss/?utm_source=plussidez&utm_medium=partnership&utm_campaign=comms_yt&utm_content=45497&utm_term=55______________________________________________________________________Streamed live on Mar 26, 2025261 views • Streamed live on Mar 26, 2025Unlike traditional media, our live sessions offer raw, real-time discussions on obesity treatments. The community can engage directly in the comments, share their perspectives, and connect with experts and fellow patients. It's a space for honest dialogue, advocacy, and breaking the stigma around obesity, all while staying informed about the latest breakthroughs and understanding Mounjaro, Zepbound, Wegovy, Ozempic, Rybelsus, Saxenda, and Victoza and all the newest GLP1s.______________________________________________________________________⭐️Mounjaro Stanley⭐️griffintumblerco.Etsy.comUse code PODCAST10 for $ OFF______________________________________________________________________Join this channel to get access to perks:   / @theplussidez______________________________________________________________________#Mounjaro #MounjaroJourney #Ozempic #Semaglutide #tirzepatide  #GLP1 #Obesity #zepbound #wegovy  Kim Carlos, Executive Producer TikTok https://www.tiktok.com/@dmfkim?is_from_webapp=1&sender_device=pc Instagram https://www.instagram.com/dmfkimonmounjaro?igsh=aDF6dnlmbHBoYmJn&utm_source=qr Kat Carter, Associate Producer TikTok https://www.tiktok.com/@katcarter7?is_from_webapp=1&sender_device=pc Instagram https://www.instagram.com/mrskatcarter?utm_source=ig_web_button_share_sheet&igsh=ZDNlZDc0MzIxNw==

I'm sharing how I'm preparing for a two-week trip to Europe as a spoonie — from the excitement (and nerves!) to the mindset shifts, packing essentials, and pacing strategies that help me travel with more ease.You'll hear:How I'm adjusting to the time zone before my flightWhat's in my carry-on and flare-up kit (heatwraps, electrolytes, meditations + more)How I've planned rest into my itinerary (including spa days and slow café mornings)The simple ways I'm supporting my nervous system and asking for helpHow ChatGPT helped me prep with spoonie-friendly travel tips and pacing ideasWhether you're planning your own trip or just dreaming of future adventures, I hope this episode reminds you that travel is possible — even with chronic illness — when you honor your body, plan ahead, and lead with compassion.

Send us a textIn this Bizarro Backwards Opposite-Day episode, Ricki and Elle switch places, and Elle is in the hot seat, answering the questions they usually ask their guests. Despite coming down off a multiday migraine and the word salad that accompanies it, Elle shares how her disability shapes her art practice, why she cherishes her community of Spoonie artists, and why she's so focused on asking everyone about their One True Thing.Links to join Ricki's and Elle's creative newsletters for all the latest on The Failure Experiment, as well as all other resource links, are **in the full show notes at hoorfpodcast.comSubscribe to Hoorf! Radical Care in a Late Capitalist Heckscape wherever you listen to your favorite podcast:Apple | Spotify | YouTubeJoin the Blessed Herd of Saint Winkus: Sign up for our newsletter, get Hoorf! episodes delivered directly to your inbox. What's more, you get invitations to our monthly Coffee and Biscuits Chat, where you get to hang out with Ricki and Elle, talk about the show, and connect on the topics that mean the most to you.Become a Patron:https://www.buymeacoffee.com/hoorfpodcast/membershipConnect with Elle Billing:Website: www.hoorfpodcast.com / www.elleandwink.comInstagram: instagram.com/hoorfpodcastSupport the show

Crafting the perfect elevator pitch isn't just for business moguls—it's a vital tool for anyone navigating life with a chronic illness. Imagine being able to communicate the essence of your health journey in just a few sentences. That's exactly what our latest episode explores, featuring remarkable insights from Jen, Ali, Andi, Linnea, and Megan. Ali inspires us with her journey as a personal trainer who did not let juvenile rheumatoid arthritis slow her down. Andi, who is both blind and deaf on one side, reveals the significance of concise, clear communication with healthcare providers. Meanwhile, Megan, a fitness coach with rheumatoid arthritis, shares how she defies limitations to pursue her passion.We tackle the often invisible nature of chronic illnesses and the misconceptions they breed. Through poignant anecdotes and actionable strategies, our guests reveal the power of having a strong, succinct narrative to advocate for oneself. From navigating awkward gym encounters to educating others with grace, our conversation showcases the importance of being prepared with a well-crafted story. We even discuss the merits of using creative tools like business cards to reinforce these messages in everyday interactions.Laughter and resilience take center stage as we discuss how humor can lighten the load of chronic illness. We emphasize self-care through affirmations and the healing power of a supportive community. Sharing personal stories and quotes, we remind listeners that strength and joy can be found within, even amidst life's toughest challenges. By the end of this episode, you'll feel empowered to embrace your journey and equipped with the tools to communicate it effectively, fostering understanding and connection in the process.Send us a text Delivering Happy Mail around the world!We have sent thousands of cards to isolated illness warriors, facilitated hundreds of pen pal relationships, and reached countless family members, caregivers, and medical professionals with messages of hope and acknowledgment.Join our mission to send 100,000 cards of support to patients with long-term illnesses.About our organization | Cards2warriors Hi, Jen here! We are so glad to have you back. I want to personally thank those that have signed up with Rare Patient Voice recently. We love your support of the podcast, and this is another way that you can by signing up with Rare Patient Voice through our referral link. Remember, we're here to support you every step of the way. Support the showSupport:https://rarepatientvoice.com/Myspooniesisters/https://www.etsy.com/shop/MySpoonieSistershttps://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)Website:https://myspooniesisters.com/

Ever wondered how innovative tools like trainer chopsticks can transform your daily life with a chronic illness? Join us, your hosts Jen, Ali and Andi, as we share our personal experiences navigating these challenges and discuss the inspiring lifestyle of Okinawa, Japan. Discover the secrets behind their remarkable longevity, from embracing community to pursuing passions that spark joy in everyday life. We reflect on how finding fulfillment in work and fostering a supportive circle can significantly boost well-being and promote longevity, drawing inspiration from the Okinawan way of living.Prepare for laughter as we venture into the whimsical world of Giant Microbes. From dopamine and serotonin to the more peculiar mad cow disease and sperm cells, these Giant Microbes offer a humorous twist to gift-giving. We imagine the hilarious reactions they could provoke as earrings. Adding some groove to the mix, we explore the empowering potential of belly dancing. Plus, we've got some insights on wellness tracking tech, like the Guava Health App, Whoop band, and Aura Ring, alongside a light critique of social media's tendency to miss the point. Join us for an episode filled with humor, insights, and a strong sense of community.Send us a text Delivering Happy Mail around the world!We have sent thousands of cards to isolated illness warriors, facilitated hundreds of pen pal relationships, and reached countless family members, caregivers, and medical professionals with messages of hope and acknowledgment.Join our mission to send 100,000 cards of support to patients with long-term illnesses.About our organization | Cards2warriors Support the showSupport:https://rarepatientvoice.com/Myspooniesisters/https://www.etsy.com/shop/MySpoonieSistershttps://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)Website:https://myspooniesisters.com/

Listen in as Evan and Bryan are joined by Taylor (#teamtaylor) as they work together to help a Spoonie plan her trip. Our guest Brooke Simmons joins us and she asked us to help her plan for the trip. We give her pointers on Rides, Food, and some hints to help her get the most out of her short visit.  Note: This is the first part of a 2 part episode. ------------------------------------------------------ If you want to join us and discuss your trip or any of the topics we chat about, provide a trip report or even just ask questions, please reach out to us on our Facebook page, Spoonie Nation, Instagram or Twitter all episodes, show notes, and everything about our podcast here

This episode discusses strategies for managing the holiday season when you are a spoonie and have limited energy. Addressing chronically ill and disabled individuals, I share personal experiences and practical tips on honoring your culture and legacy without sacrificing your wellbeing. The episode highlights the importance of setting boundaries, delegating tasks, and adapting traditions to fit your capacity. I also encourage you to identify nonnegotiables and prioritize self-care to ensure you work towards having a meaningful and enjoyable holiday season. Right on time for holiday season, consider treating yourself to a FEMTOR mug or sweater from my merch shop. If you liked this episode, check out our previous episodes 44 and 166 on reducing overwhelm before the holiday break and navigating grad school during the holidays. Get your free copy of my Grad School Femtoring Resource kit here. Support our free resources with a ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠one-time or monthly donation⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠. To download episode transcripts and access more resources, go to my website: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://gradschoolfemtoring.com/podcast/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠   This podcast is a proud member of the Atabey & Co. Network. *The Grad School Femtoring Podcast is for educational purposes only and not intended to be a substitute for therapy or other professional services.*  Learn more about your ad choices. Visit megaphone.fm/adchoices

Do you know someone that has autoimmune disease like Rheumatoid Arthritis or Lupus? Have you ever heard of autoimmune issues before? It is estimated that 50 Million Americans have an autoimmune disease. Today's podcast is with Jen Weaver, Rheumatoid Arthritis patient, advocate and podcaster. This topic is new to the podcast but we believe it is so important. On this episode we dive into autoimmune disease, the spoon concept, navigating the healthcare system and how to advocate for yourself in the healthcare system. We take a look at Jen's life experience and wealth of knowledge and compile actionable tips, tricks and steps to help anyone navigate the complex world of autoimmune diseases. If you or some one you love is dealing with autoimmune disorder check out Jen's podcast My Spoonie Sisters, she has great guests and discussions on the topics. https://podcasts.apple.com/us/podcast/my-spoonie-sisters/id1616598789 IG: @My_Spoonie_Sisters --- Support this podcast: https://podcasters.spotify.com/pod/show/menshealthunscripted/support

Craving a good night's sleep like chocolate at 3 AM?

Jennifer Weaver is the host of the My Spoonie Sisters podcast, and her history with chronic illness is a storied tale. While most people never have to worry about the 1% chance of side effects from medication, Jen is the person who will develop the rare reaction. That's exactly how she came to suffer from medically induced pustular psoriasis, living through a horrific year where her skin was basically being burned from the inside out. Of her journey she says, "It feels like my body hates me. There's something so wrong with me because I have all the reactions. If it's in the tiny print and it says there's going to be a 1% chance it somehow ends up being me." In this episode of the Major Pain podcast, Jen shares her chronic illness journey so far. She talks us through the frustrating experience of getting diagnosed with rheumatoid arthritis (RA), spending a full year seeing a rheumatologist who provided terrible care. Firing that doctor allowed her to finally find good care and an official diagnosis of seronegative RA, but a whole new set of problems arose while trialing medications to treat her disease. That's when she discovered she has a rare reaction to TNF inhibitors, and developed pustular psoriasis. Although her journey has been a tumultuous one, she feels it has also made her a better, more compassionate person. She started the My Spoonie Sisters podcast and community at the end of 2021, and finds great joy helping others who live with chronic illness feel less alone. Check out My Spoonie Sisters: https://linktr.ee/myspooniesisters PlayWatch the episode on YouTube, or listen on your favorite podcast platform.

Heidewitzka, macht euch bereit für eine abwechslungsweise Fahrt: Ganz beseelt und gleichzeitig fix und fertig kommt Sam von der Hochzeit ihrer Mutter und Jacko spricht das erste mal offen über ihre Erkrankung. Außerdem erfahrt ihr heute, was #spoonie bedeutet, weshalb Sam nur noch 9 Fingerkuppen hat und was das schlimmste ist, woran sich die zwei aus ihrer Kindheit erinnern.http://instagram.com/jackundsam http://instagram.com/jackowuschhttp://instagram.com/samykeeMails an: jackundsampodcast@gmail.comhttps://jackundsam.com (unser edler Online-Shop) *werbelinkWerbung:Alle Infos, Angebote und Codes unserer Werbepartner findet ihr hier:https://linktr.ee/jackundsampodcast Hosted on Acast. See acast.com/privacy for more information.

In a transmission from God's hot car, Lina discusses the relationship between kink and chronic pain, and advises a Spoonie who's playing with a doctor to enjoy the free medical care without shame. To support the pod and join our thriving ask a sub community of kinky pocket friends, Join Patreon starting at $6/month! Subscribe to the subby substack here. See the paid post archive here. Submit questions for this podcast as voice memos to podcast@askasub.com Go here for information on how to record a voice memo Get 20% off your order at http://www.momotaroapotheca.com with code LINADUNE Twitter | @Lina.Dune | @askasub2.0 CREDITS Created, Hosted, Produced and Edited by Lina Dune With Additional Support from Mr. Dune Artwork by Kayleigh Denner Music by Dan Molad

This week our good friend Shawn Stahl joins us in the Ducks Unlimited Studio at Gamefair. We talk about some of the game laws and what could be better for hunters to be able to transport and harvest waterfowl. Shawn gives us some insight on hunting tactics and Joey gets him going on some awesome spoonie stories. Be sure to follow Shawn where you can find him. Thanks for listening and don't forget to subscribe and review!   New Waterfowl Film out now! Snow Geese in SD! Go to OnXHunt to be better prepared for your hunt: OnX Learn more about better ammo: Migra Ammunitions Stop saying "Huh?" with better hearing protection: Soundgear Stay comfortable, dry and warm: First Lite Real American Light Beer: Outlaw Beer Better Merch: /SHOP

It's the final special snackisode of the season, and Spoonie wants to go out with a cherry on top! Spoonie and Tongs are making ice cream, but they'll need help from everyone in the kitchen to get the job done. Teamwork to the rescue! Tongs shares fabulous facts about ice cream from all over the world, and special guests Marielys, Maxwell, Sebastian, and Matteo join as a family to play Please Pass the Peas, a relay-style game all about the many flavors of ice cream.

Spoonie celebrates her favorite spectator snack – chips! Spatty the Spatula is back in the Kitchen and excited about playing a new game, but can he learn to play by the rules? Tongs shares fabulous facts about chips from all over the world, and special kid guest Teddy shows Spatty how to keep it fair and fun in today's game – Secret Snack: a cooperative guessing game.

Ready to explore the world even with an autoimmune?

Spoonie's snackisodes continue! Instead of a dip into the Olympic pool, Spoonie is diving into…dips! Spoonie and Tongs show their support for each other with special cheers, tongs shares fabulous facts about dips from all over the world, and special kid guests Chrystie and Cailyn join to play “List with a Twist,” where they show how important it is to cheer each other on, even when it isn't your turn to play.

Join us for our 2nd Spoonie Panelist Discussion!!!!!!!!!!!! We invited a few guests to join us and discuss a few topics that will interest all Disney fans: What do you think about the Crazy things that guests do at the parks Will WDW get threatened by Epic? Looking forward 5 years, will Disney still be a value? The Featured Panelists: Heather Arceo Megan Figuerrez Donna Stevens Come listen to their very thoughtful analysis of these probing questions! ------------------------------------------------------ If you want to join us and discuss your trip or any of the topics we chat about, provide a trip report or even just ask questions, please reach out to us on our Facebook page, Spoonie Nation, Instagram or Twitter all episodes, show notes, and everything about our podcast here 

The Plate Show is back for a bonus series of mini-episodes inspired by the summer Olympic games, focusing on teamwork. In this snackisode, Spoonie celebrates how each team member brings their own unique talents to the table when they work together. Just like the ingredients in one of her favorite summer foods, sandwiches! Tongs shares fabulous facts about sandwiches from all over the world, and special guests Chloe and her parents play Alphabet Sandwich, a game all about highlighting team members' different strengths. 

What is it like to identify as a spoonie? How do you adjust your identity in relation to living with chronic illness? What do you have to do every day that your healthy friends don't have to? In this podcast episode, I unraveling the illness experience with Joe Sanok. He discusses how he came to identify as a Spoonie, and shares some of his perspectives on time and energy management. Thanks for listening, I'd love to connect with you over on Facebook and Instagram. SHOW NOTES AND RESOURCES: Click here WEBSITE: Click here

Spoonie is back! Brand new mini-episodes of The Plate Show are coming to you this summer! Play along with games like an ice-cream relay race and learn about favorite summer snacks from around the world. Tune in wherever you listen to your podcasts!

Hello, and welcome to our first episode of the Tea Spoonie Podcast, where we'll spill the tea on an array of topics. I hope you'll leave the podcast with an additional spoon! (And if you don't know what that means, give a listen!) Thanks for listening, I'd love to connect with you over on Facebook and Instagram. SHOW NOTES AND RESOURCES: Click here WEBSITE: Click here

Saying something stupid isn't just for the ignorant and uneducated among us. Enjoy my most recent shame.Support the Show.Apply to be a guest: Guest ApplicationWatch my TEDx talk Email badattitudespod@gmail.comFollow @badattitudespod on Instagram, Facebook, Twitter, and TikTok Subscribe ko-fi.com/badattitudespodBe sure to leave a rating or review wherever you listen!FairyNerdy: https://linktr.ee/fairynerdy

Despite being outdated and ableist, the term "wheelchair-bound" is still used by a lot of people — including the medical profession. Let's nip that in the bud.Support the Show.Apply to be a guest: Guest ApplicationWatch my TEDx talk Email badattitudespod@gmail.comFollow @badattitudespod on Instagram, Facebook, Twitter, and TikTok Subscribe ko-fi.com/badattitudespodBe sure to leave a rating or review wherever you listen!FairyNerdy: https://linktr.ee/fairynerdy

The road to hell is paved with good intentions. Or maybe it's "God's intentions"?That whole "If God intended [fill in the blank] argument" gets under my skin these days. Here's why.Support the Show.Apply to be a guest: Guest ApplicationWatch my TEDx talk Email badattitudespod@gmail.comFollow @badattitudespod on Instagram, Facebook, Twitter, and TikTok Subscribe ko-fi.com/badattitudespodBe sure to leave a rating or review wherever you listen!FairyNerdy: https://linktr.ee/fairynerdy

Join host Sharon Sayler as she shares three of her most recent Aha Moments with enlightening chats on brain inflammation, autoimmune conditions, chronic illnesses, and ADHD. Dr. Jenny Tufenkian, a naturopathic physician, delves into chronic fatigue and the concept of brain inflammation, advocating for an empowered approach to health. Dr. Connie McReynolds discusses misconceptions and innovative treatments for ADHD, emphasizing the importance of neuroplasticity and brain training. And author Jenny Dunton shares her nearly three-decade journey with Fibromyalgia, proposing a hopeful outlook on learning and self-discovery. Our time together shows the significance of understanding autoimmune overlaps to navigate the complexities of chronic conditions.• Unlocking the Mysteries of Chronic Fatigue with Dr. Jenny Tufenkian• The Interconnectedness of Brain, Gut, and Autoimmune Health• Deep Dive into ADHD with Dr. Connie McReynolds• Personalizing ADHD Treatment: A New Approach• The Impact of Long COVID and Neurofeedback on Brain Health• Empowering Strategies for Living with Autoimmune Conditions• Fostering Hope and Community in Fibromyalgia and Autoimmune Challenges And more...About Our Guests: Dr. Jenny Tufenkian, ND, has treated chronic illness for two decades. She is a licensed Naturopathic Physician/primary doctor, a sought-after adjunct clinical faculty member, and has run a successful private practice in Portland, Oregon. “Dr Jenny,”  as her patients and students lovingly call her, holds a BA in Political Sociology from Evergreen State College. She teaches widely to the public, health professionals, and corporations. She is also a mom of two, happily married, and loves her time outdoors and in the kitchen. Learn more at https://drjennytufenkian.com/Connie McReynolds, Ph.D., is a licensed psychologist, professor, certified rehabilitation counselor, and podcast host of ‘Roadmap To The Brain.' Dr. Reynolds is the author of the #1 Amazon bestseller “Solving the ADHD Riddle: The Real Cause and Lasting Solutions to Your Child's Struggle to Learn,” She has a proven track record of improved symptoms related to ADHD, anxiety, anger, panic disorder, conduct disorder, depression, chronic pain, cognitive decline, trauma, and PTSD. Learn more at www.conniemcreynolds.com. Jenny S. Dunton has been living with Fibromyalgia for nearly three decades. She believes in the power of sharing experiences to promote healing, inspire, and bring hope to those who need it most. That's why she wrote “Fibromyalgia: A Journey of Self Discovery 27 Years Traversing The Unknown.” She hopes to comfort those who feel isolated and raise awareness of the condition. You can find Jenny and her book at www.fibrojourney.org/Share this link with your family and friends: www.UnderstandingAutoimmune.com/AhaMoments_2024* Your host is not a doctor nor medical professional. If our guest(s) are medical or other professionals, in the capacity of this presentation, we are all only everyday people trying to make sense of the world. The information presented in this interview cannot substitute for the advice of your physician or other trained medical, healthcare, legal, or other professionals. Host(s) and guest(s) are not diagnosing specific conditions during the show. This show is not intended to diagnose, prevent, or treat autoimmune diseases or other conditions or illnesses. The information provided on UnderstandingAutoimmune.com, Life Interrupted Radio.com, and The Autoimmune Hour is for educational purposes only and opinion only. It is not a substitute for your own medical, legal, or other professional advice and care.©2024 Sharon Sayler and UnderstandingAutoimmune.comBecome a supporter of this podcast: https://www.spreaker.com/podcast/the-autoimmune-hour--2935987/support.

Both Amberlyn and Ann have some experience living in areas with severe weather and they've both gone through prepping education. While Amberlyn is much more formal with military training, Ann didn't do too shabby using using resources found at the library. Now is a great time to be talking to your providers about getting a few extra days worth of medications in case of an emergency. Don't forget to have your shoes handy and ready to go. And remember that part of prepping is thinking about the worst case scenario. You don't need to plan every detail in the event of a death, but it's a good idea to share basic wishes with your loved ones. We're on YouTube too: https://www.youtube.com/@taleoftwozebrasAmberlyn aka Mrs. Labeezy's Amazon Must Haves includes some of Ann's loved items too:https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_apin_aipsflist_aipsfmrs.labeezy_NQXZZ7SVJ2PSF3EZ700Y&language=en_USZebras are the rare type of spoonies often affiliated with the Ehlers-Danlos patients. Please check out the website: https://www.ehlers-danlos.comIf you'd like to be a guest, please reach out to Ann and Mrs. Labeezy at TaleofTwoZebras@gmail.comGiving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.

Did you know that brain inflammation, even when it goes unnoticed, can profoundly impact your overall health and ability to heal? The Autoimmune Hour welcomes back Dr. Jenny Tufenkian, a naturopathic physician with extensive experience in treating chronic illness and a personal experience with chronic fatigue. Join Dr. Jenny and host Sharon Sayler as they dive into the topic of brain inflammation. They will discuss the latest research and personal insights into this important area of study and how it affects your health and well-being. You'll learn how an overactive immune response within the brain can lead to conditions like brain fog and long-term fatigue. Their conversation will cover factors that contribute to brain inflammation, including gut health, sleep quality, movement, and connection.They will also discuss practical lifestyle changes that can help reduce inflammation and improve overall brain function. In addition, they will explore• The effects of glial priming,• The connection between chronic conditions and brain health,• Ways to address subconscious resistance to lifestyle changes,• How stress plays into chronic brain dysfunction and illness,• And simple tips for reducing brain inflammation, plus much more.More About Our Guest: Dr. Jenny Tufenkian, ND, has treated chronic illness for two decades. Having complex chronic fatigue herself, she had no choice but to dig deep into the literature and uncover the root causes of Chronic Fatigue. Through her research and experience she developed an effective system to unlock the five core root causes so that people who are too exhausted to function, can start feeling like themselves again. Her secret power is her ability to combine a very left-brain functional medical approach with deep subconscious work. This allows powerful shifts in both the physical and energetic bodies.She is a licensed Naturopathic Physician/primary doctor, a sought-after adjunct clinical faculty member, and has run her successful private practice in Portland, Oregon. “Dr Jenny,”  as she is lovingly called by her patients and students, holds a BA in Political Sociology from Evergreen State College. She teaches widely to the public, health professionals, and corporations. She is also a mom of two, happily married, and loves her time outdoors and in the kitchen. Learn more at https://drjennytufenkian.com/Share this link with your family and friends: www.UnderstandingAutoimmune.com/BrainFog_2024* Your host is not a doctor nor a medical professional. Medical professionals appearing on the show are sharing opinions only during our presentation. The information presented in this interview cannot substitute for the advice of your physician or other trained medical, healthcare, legal, or other professionals. Host(s) and guest(s) are not diagnosing specific conditions during the show. This show is not intended to diagnose, prevent, or treat autoimmune diseases or other conditions or illnesses. The information provided on UnderstandingAutoimmune.com, Life Interrupted Radio.com, and The Autoimmune Hour is for educational purposes only and opinion only. It is not a substitute for your own medical, legal, or other professional advice and care.©2024 Sharon Sayler and UnderstandingAutoimmune.comIf you've listened to the show, you know it's what my friends call my irrational passion... Please help us continue to offer help and hope for those with autoimmune and long-term health challenges by supporting The Autoimmune Hour podcast: https://www.spreaker.com/podcast/the-autoimmune-hour--2935987/support.

This episode is a beacon of hope for those seeking alternative pathways to managing ADHD and improving overall cognitive function at any age. The Autoimmune Hour's host, Sharon Sayler, dives into the world of ADHD and brain fog recovery with Dr. Connie McReynolds, author of “Solving the ADHD Riddle: The Real Cause and Lasting Solutions to Your Child's Struggle to Learn.”  While emphasizing neuroplasticity and the brain's ability to retrain through specific techniques and strategies, Sharon and Dr. Connie review the latest research on the growing diagnosis' of ADHD in both adults and children. They also explore the various causes of brain fog, offer advice on improving cognitive abilities, and suggest ways to manage behaviors associated with ADHD, brain fog, and provide guidance on overcoming learning difficulties. They also dive deep into:ADHD symptoms, misconceptions, and the power of assessmentsExploring the causes of ADHD, brain fog, and their treatmentsThe impact of medications and the importance of second opinionsEmpowering self-healing and debunking the ADHD, brain fog, and aging mythsPlus so much more…More About Our Guest: Connie McReynolds, Ph.D., is a licensed psychologist, professor, certified rehabilitation counselor, and podcast host of ‘Roadmap To The Brain.' Dr. Reynolds is the author of the #1 Amazon bestseller (in eight categories) “Solving the ADHD Riddle: The Real Cause and Lasting Solutions to Your Child's Struggle to Learn,” She has a proven track record of improved symptoms related to ADHD, anxiety, anger, panic disorder, conduct disorder, depression, chronic pain, cognitive decline, trauma, and PTSD.Dr. McReynolds emphasizes neuroplasticity and the ability to retrain the brain through specific techniques and strategies, such as using Neurofeedback and EEG Biofeedback. These corrective programs can be performed in the clinic or remotely. She also consults with parents and schools on government or district-sponsored or mandated programs. Learn more at www.conniemcreynolds.com. Share this link with your family and friends: www.UnderstandingAutoimmune.com/ADHD_2024* Your host and guest(s) are neither doctors nor medical professionals. In the capacity of this presentation, we are everyday people trying to make sense of the world. The information presented in this interview cannot substitute for the advice of your physician or other trained medical, healthcare, legal, or other professionals. Host(s) and guest(s) are not diagnosing specific conditions during the show. This show is not intended to diagnose, prevent, or treat autoimmune diseases or other conditions or illnesses. The information provided on UnderstandingAutoimmune.com, Life Interrupted Radio.com, and The Autoimmune Hour is for educational purposes only and opinion only. It is not a substitute for your own medical, legal, or other professional advice and care.©2024 Sharon Sayler and UnderstandingAutoimmune.comIf you've listened to the show, you know it's what my friends call my irrational passion... Please help us continue to offer help and hope for those with autoimmune and long-term health challenges by supporting The Autoimmune Hour podcast: https://www.spreaker.com/podcast/the-autoimmune-hour--2935987/support.

Featuring Mojo Maker Pamela Sylvan, Feng Shui Master Marie Diamond, Dr. Charryse Johnson, Transformational Life Coach Pi Venus Winslow, and quintuple cancer survivor Bill C. Potts.Looking for some motivation to help you get through personal health struggles? Our latest show features five illuminating mini-interviews featuring Mojo Maker Pamela Sylvan, Feng Shui Master Marie Diamond, Dr. Charryse Johnson, Pi Venus Winslow, and quintuple cancer survivor Bill C. Potts on their tips for navigating the complexities of health challenges including autoimmune disorders.Yes, it can be daunting, even overwhelming, so join us to discover what these five experts share from their personal experiences and potential ways to drastically improve the quality of life.Discover • Pamela's "The 10-3-2-1-0 Formula" for the Perfect Night's Sleep• Marie's Exploration of The Impact of Feng Shui on Health and Well-being• Dr. Charryse's Practical Ways to a Life of Self-Love and Empowerment• Pi Venus' Health Impacts of Narcissistic Upbringing on Codependency• Bill's Hard-Learned Lessons for Self Advocacy in Your Healing and TreatmentPlus much more... More about Our Guests: Pamela Sylvan is a highly accomplished personal development ‘whisperer' primarily for midlife women who know they are ‘not done yet' and want to express and flow more vibrancy. With over 35 years of experience in self-improvement, Public Relations, training and development, and leadership, Pamela has established herself as a respected expert and sought-after speaker. The most renowned Feng Shui Master in the world today, Marie Diamond, is a star of the worldwide phenomenon The Secret, a global bestselling author, and one of the planet's premiere transformational leaders. She is here today to talk about her brand new book from Hay House and a Peacock Network TV show coming this winter on how to ‘Feng Shui Your Life.'Dr. Charryse Johnson is a veteran psychotherapist, award-winning speaker, and author of #1 best-selling books, Expired Mindsets: Releasing Patterns That No Longer Serve You Well (2021) and Get Off the Scale and Heal (2023).Pi Venus Winslow is a published author, public speaker, and transformational life coach for those recovering from a narcissistic upbringing. Her robust 3-Phase Live Group Coaching Program to Conquer Codependency and Create Calm, Confidence, and Clarity helps people worldwide to overcome codependency and narcissistic abuse and begin living their lives free, calm, healthy, and confident.Bill C. Potts is a motivational speaker, creative business leader, energetic community builder, IRONMAN® athlete, dedicated father and husband, and five-time cancer survivor (his current fight against #6 is ongoing). He has written an indispensable handbook, “Up For The Fight,” for anyone diagnosed with cancer. Dealing with autoimmune disorders is a complex journey, but there are resources and strategies out there to help you navigate this path effectively. Learning from experts and those who are living with health challenges often provides valuable insights and practices for living uninterrupted.Share this link with your family and friends: www.UnderstandingAutoimmune.com/1BestOf_2024* Your host and guest(s) are neither doctors nor medical professionals. In the capacity of this presentation, we are everyday people trying to make sense of the world. The information presented in this interview cannot substitute for the advice of your physician or other trained medical, healthcare, legal, or other professionals. Host(s) and guest(s) are not diagnosing specific conditions during the show. This show is not intended to diagnose, prevent, or treat autoimmune diseases or other conditions or illnesses. The information provided on UnderstandingAutoimmune.com, Life Interrupted Radio.com, and The Autoimmune Hour is for educational purposes only and opinion only. It is not a substitute for your own medical, legal, or other professional advice and care.©2024 Sharon Sayler and UnderstandingAutoimmune.comIf you've listened to the show you know it's what my friends' call my irrational passion... Help us continue to offer help and hope for those with autoimmune and long-term health challenges, by becoming a supporter of The Autoimmune Hour podcast: https://www.spreaker.com/podcast/the-autoimmune-hour--2935987/support.

Over the years we have connected with a lot of family members of spoonies and arthritis warriors and time and time again we have been asked, "what's the best way to support someone with arthritis/chronic illness?". We try our best to break it down in this episode, although we understand that one size does not fit all!We encourage you to get social with us on social media by liking our Facebook page, “Those Girls with Arthritis”, and following us on instagram @thosegirlswitharthritis. Send your questions to us on Instagram or to our email thosegirlswitharthrits@gmail.com.Don't forget to subscribe, so you won't miss future episodes!Disclaimer: Those Girls with Arthritis was created by two friends hoping to share their personal experiences and learn from others. We are not medical experts. Please contact your health professionals before making any choices to change your medical plan.

Enjoy this inspiring episode of The Autoimmune Hour, when Sharon Sayler and Jenny S. Dunton share the ins and outs, ups and downs of living with Fibromyalgia and other autoimmune conditions. Jenny, author of the uplifting "Fibromyalgia: A Journey of Self Discovery 27 Years Traversing The Unknown' was diagnosed with Fibromyalgia nearly three decades ago. Together, Sharon and Jenny tap into their experiences and challenges related to autoimmune and, expressly, Fibromyalgia, a poorly understood condition. About 4 million adults have been diagnosed with Fibromyalgia in the U.S. (according to the CDC). Still, the number of those affected by it is likely much higher — and an estimated 75-90% of those individuals are women. Sharon and Jenny chat about symptoms, treatment options, including alternative therapies and methods that have worked for them, diet, and the importance of meditation. While underscoring Jenny's efforts to comfort people experiencing isolation due to this often debilitating condition, Jenny advocates for comprehensive 'Whole Body' patient care and emphasizes the importance of • Staying resilient through a hopeful and adaptive mindset,• The emotional impact of a Fibromyalgia diagnosis,• The role cognitive behavioral therapy has played for her,• The challenges of diagnosing Fibromyalgia and so much moreMore about our Guest: Jenny S. Dunton has been living with Fibromyalgia for nearly three decades. She believes in the power of sharing experiences to promote healing, inspire, and bring hope to those who need it most. That's why she wrote "Fibromyalgia: A Journey of Self Discovery 27 Years Traversing The Unknown." She hopes to comfort those who feel isolated and raise awareness of the condition. You can find Jenny and her book at www.fibrojourney.org/Share this link with your family and friends: www.UnderstandingAutoimmune.com/Jenny_2024* Your host and guest(s) are neither a doctor nor medical professional. In the capacity of this presentation, we are everyday people trying to make sense of the world. The information presented in this interview cannot substitute for the advice of your physician or other trained medical, healthcare, legal, or other professionals. Host(s) and guest(s) are not diagnosing specific conditions during the show. This show is not intended to diagnose, prevent, or treat autoimmune diseases or other conditions or illnesses. The information provided on UnderstandingAutoimmune.com, Life Interrupted Radio.com, and The Autoimmune Hour is for educational purposes only and opinion only. It is not a substitute for your own medical, legal, or other professional advice and care.©2024 Sharon Sayler and UnderstandingAutoimmune.com

Ever wondered if there's a deeper meaning to your health symptoms?  Noticed that nothing seems to work for certain complaints? Curious why some people seem to have mystery illnesses and no one can figure them out? Dr. Shiroko Sokitch, is an author and medical doctor trained in general surgery, practiced in the ER before becoming the owner of Heart to Heart Medical Center in Santa Rosa, California in 1993. Dr. Shiroko specializes in helping patients heal when it seems impossible. She brings hope and healing to difficult health conditions by blending Chinese and Western medicine with a deep spiritual and emotional healing approach.  She brings her expertise and unique comprehensive approach to her new book “Healing When It Seems Impossible - 7 Keys to Defy the Odds.  In this episode of The Health Fix Podcast, Dr. Jannine Krause interviews Dr. Sokitch on finding balance with Chinese Medicine, Energy work and other therapies to improve wellness and longevity.    What You'll Learn In This Episode: Dr. Shiroko's triangle of wellness Why you can get well without a diagnosis The connection between the liver and hormone balance Love and it's role in your health How the disruption of your energy and emotions impacts your organs The importance of listening to your body to find what works for your unique lifestyle Using energy medicine tools to help you achieve balance in your body How HBOT (Hyperbaric Oxygen Therapy) boosts circulation and improves longevity   Resources From The Show: Web That Has No Weaver - book explaining Chinese Medicine Dr. Shiroko's Book - Healing When It Seems Impossible - 7 Keys to Defy the Odds Heart to Heart Medical Center Website - Santa Rosa, California Sign up for a FREE NES energy assessment with Dr. Shiroko Sokitch - HERE

As the sun sets on another day of managing the delicate balance of chronic illness, I sat down with Jess Hay, a resilient "Spoonie Sister" who graciously opened up about her life woven with challenges and triumphs. Our intimate conversation traverses Jess's early health struggles to her current dance with multiple conditions, including celiac disease and POTS. She candidly discusses the tapestry of treatments, both conventional and holistic, that color her daily life and offers an honest look into the complexities of navigating the Canadian healthcare system, where she often plays the role of her own advocate amidst a sea of specialists.Navigating life with chronic illness is like sailing on unpredictable seas, and Jess shares her strategies for staying afloat, including her reliance on the unsung hero Gravol, and how she balances medications with the rhythms of her body's needs. She extends a hand to those on similar journeys, imparting wisdom on self-compassion and the delicate art of living within the bounds of one's fluctuating health. Jess's reflections on her journey toward trusting the medical process, despite the jarring realities of nerve tests and other procedures, highlight the courage found in vulnerability and the strength in seeking help.In the spirit of finding joy amidst the storms, we wrap up with an exploration of the evening rituals and the daily doses of happiness that Jess cherishes—a reminder that life's simple pleasures often hold the greatest comfort. Whether it's the warmth of a crochet needle in hand or the affectionate nuzzle from her service dog in training, Elda, Jess reminds us that support comes in many forms. Listeners will undoubtedly find solace in her story and perhaps recognize a piece of their own journey reflected in her words. Join us for this episode, not just for the resilience on display, but for the celebration of every spoonful of joy that makes the challenging days worth enduring.https://www.instagram.com/jess_and_elda?igsh=aHRsZGV3a3h5bHE4https://open.spotify.com/show/2jONwolC02aoGQOxJcTOc5?si=8BMizFi4Tq62E0vLW2jVdAThe one app with all the wellness resources is designed to help those with autoimmune diseases thrive and lead a more meaningful and purposeful life. From weekly recipes, movement, and meditation to forums and a marketplace, Our Serendipity has been developed as one cohesive ecosystem to support those fighting invisible illnesses. Our Serendipity App Kaleidoscope Rare Disease Stories, a collection of first-person stories from people around the world living with a variety of rare diseases. *Net proceeds from sales of this book will be donated to the National Organization for Rare Disorders Amazon.com: Kaleidoscope: Rare Disease Stories (Kaleidoscope Stories) eBook : Wong, Kerry L.: Kindle Store Thoughtful premium products for all the immune challenged.We make living with chronic illnesses easier! BeWell - Thoughtful products for those with an autoimmune disease. (wearebewell.com)Support the showWebsite: https://myspooniesisters.com/Support:https://www.etsy.com/shop/MySpoonieSisters

I'm so happy you're here! Keep up with Rollin' on Instagram @Rollin.Punches! https://www.instagram.com/rollin.punches/ Instagram & Twitter: @nataliedecker Natalie's Recommendation: *Alex Cooper's Unwell Network*

The Plate Show is a comedy podcast for kids 6-9 about cultures around the world and the foods that are important to them. Join Spoonie, everyone's favorite talking spoon, and her BFF sidekick Tongs, as they put on a show from their very own kitchen to learn about – and taste – amazing food from around the world! In this episode, Spoonie is doing a show about street food from around the world but keeps getting distracted by a delicious smell coming from outside her kitchen window. Can Spoonie stay focused long enough to get through her podcast? And will she ever get the chance to taste the street food she so desperately wants to try? Celebrity chef Pati Jinich shares her favorite Mexican street foods, and kid guest Gavi talks about the Malaysian curry puffs he loves making with his grandmother. The Plate Show is funded (in part) by a Ready To Learn grant (PR/Award No. S295A200004, CFDA No. 84.295A) provided by the U.S. Department of Education to the Corporation for Public Broadcasting. The contents of this podcast were developed under a grant from the U.S. Department of Education. However, those contents do not necessarily represent the policy of the Department of Education, and you should not assume endorsement by the Federal Government.  Additional funding is provided by the New York State Education Department. The Plate Show is a production of The WNET Group and PRX. It is distributed by PRX. © 2023 THIRTEEN Productions LLC. All Rights Reserved.

"You can love a person but not want them in your home." Hannah E. ScottHannah E. Scott is an unshakable fighter for the underdog who says she is a recovering Spoonie and mom of 3 (soon to be 4) kids. She grew up with 23 siblings. Yes, Twenty-Three Siblings! Learn how that is even possible. Hannah is a trauma-informed coach and speaker who is a superb boundary-setter, after learning the effects of allowing others to set her own agendas. She encourages others to share their stories. She has the skills to offer guidance on using phrases and words to reset those who manipulate and force themselves into your life. Some just can't take a hint. Listen to Hannah on how to get your solitude back. Her prank story is actually a Double Dog Dare to the Stranger Connections audience!Don't miss the fun, the superb advice, and fresh ideas just when we need it. LifeCoachHannah.com

Did you know that movement can actually RESTORE your spoons? Exercising with chronic illness is tricky - especially for those whose health can fluctuate daily. In this episode, Zoe of @ActivelyAutoimmune breaks down tangible strategies to help people implement a sustainable and consistent movement routine. She uses her expertise as physiotherapist, personal trainer, and pilates instructor to create transformative programs for fellow spoonies. Even if you experience post-exertional malaise or are currently bed-ridden, there are tips in this episode for you! Check out Zoe's work: https://www.activelyautoimmune.com/ Want to learn how to find freedom from chronic pain and fatigue? Register for my free training Flare-Up Freedom: https://www.thespooniementor.com/free/  Thriving Spoonie Pathway (Live Group Program for Spoonies): https://www.emilyfraser.ca/tsp Earn with Ease (Business Coaching): https://www.emilyfraser.ca/earnwithease Instagram: https://instagram.com/thespooniementor Website: https://www.emilyfraser.ca/  --- Send in a voice message: https://podcasters.spotify.com/pod/show/thespooniepodcast/message

Welcome to "Shit Talking Shrinks," I'm your host Paulie Siegel, a Licensed therapist, Certified Addiction Counselor and master-level trained mindfulness practitioner with a passion for psychology, humor, and insightful journeys through the realm of mental wellness. Join me as we explore the depths of the human mind, unraveling complexities while keeping it lighthearted.Today, we have a special guest, Emily Fraser, a Chronic Illness Advocate who works with a unique group of individuals known as Spoonies. Ever wondered what Spoon Theory is? Emily breaks it down for us and helps us identify the characteristics of a Spoonie.In this episode, we'll dive into the world of chronic illness, exploring what it means and how Spoonies can cope with its challenges. Emily shares valuable insights on pacing oneself and using energy wisely, essential skills for those navigating chronic health conditions. As a seasoned advocate, she provides practical strategies to enhance the lives of individuals who relate or identify as Spoonies.Join us for an enlightening conversation that combines psychology, humor, and genuine insights into the human experience. Whether you're a Spoonie yourself or simply curious about this unique perspective, you won't want to miss this episode.Listen now for episode that promises to be both informative and uplifting, as we navigate the intricacies of chronic illness with Emily Fraser on "Shit Talking Shrinks."Learn more about Emily's work at: https://www.emilyfraser.ca/Connect with Emily on Instagram here: @thespooniementorIf you want to work with me therapeutically and live in CO or ILhttps://www.courageouspathscounseling.comNeed quality therapy ASAP?! Receive 10% off your first month by clicking this link