Podcasts about spoonielife

  • 10PODCASTS
  • 32EPISODES
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  • ?INFREQUENT EPISODES
  • Jul 26, 2022LATEST

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Best podcasts about spoonielife

Latest podcast episodes about spoonielife

Fight Like a Mama Podcast
Ep - 145 The Mental Health Struggle when You're Chronically Ill is REAL!

Fight Like a Mama Podcast

Play Episode Listen Later Jul 26, 2022 13:37


So what exactly does depression do to you? Well, it can affect how you feel, think, and handle daily activities, such as working, sleeping, and handling self-care… I know you're making the same correlation that I am - wow, that sounds just like my chronic illness! Depression is one of the leading reasons chronically ill patients don't get the care they need. Listen to this episode to find out more! http://www.instagram.com/teamvasculitis http://teamvasculitis.com My 4 step Fullproof way to NEVER miss a question at your doctor's appointments again! https://bit.ly/3RPEcq3  

Fight Like a Mama Podcast
Ep 140 - The Truth About Chronic Illness and Remission

Fight Like a Mama Podcast

Play Episode Listen Later Jun 28, 2022 13:28


I so badly wanted it to go like this: Get a diagnosis, get the treatment, heal, get in remission, continue on with my life. I think many of us get into that mindset because we don't know any better. But we need to know the truth. So here it is... Team Vasculitis Instagram: http://www.instagram.com/teamvasculitis

The Brie Pod
Major Life Update- I'M PREGNANT!

The Brie Pod

Play Episode Listen Later Mar 9, 2022 14:21


As many of you know, this journey was not easy. We struggled with infertility for 5 years. In this episode, I share all the details of how I found out, some of out plans, and the feelings of becoming a first time parent.

The Brie Pod
Unfiltered V: Life of a "Spoonie"; Chronic Disease & Illness

The Brie Pod

Play Episode Listen Later Nov 3, 2021 26:01


My UNFILTERED SERIES IS BACK!Unfiltered V: Life of a "Spoonie" A “spoonie” is a term used by people with chronic illnesses. It stems from lupus blogger Christine Miserandino. In this episode, I will be sharing how the term "spoonie" came about. What my life looks like as a "spoonie", and what we need from our friends and family. There is also a special message for my fellow "spoonies". >> A chronic illness is a long-term health condition that may not have a cure. Examples of chronic illnesses are:- Alzheimer disease and dementia- Arthritis- Asthma- Cancer- COPD- Crohn disease- Cystic fibrosis- Diabetes- Endometriosis- Epilepsy- Heart disease- HIV/AIDS- Mood disorders (bipolar, cyclothymic, and depression)- Multiple sclerosis- Parkinson disease

The Painful Truth of Living with Chronic Pain
Post-Surgical Update and Body Image Issues

The Painful Truth of Living with Chronic Pain

Play Episode Listen Later Apr 13, 2021 38:19


HAPPY ONE YEAR ANNIVERSARY TO THE PAINFUL TRUTH OF LIVING WITH CHRONIC PAIN! Robby and Sammi would have never guessed that after starting their podcast that they would have not only found a doctor to help Robby with his neck pain, but that the doctor would be at the Mayo Clinic of all places AND that Robby would have been blessed with a corrective surgery before they even hit the one year mark. But thankfully, all of that is true, so today they share an update on how Robby is feeling 3 weeks post-surgery, plus he talks about some of his body image issues that he knows other people with chronic illnesses also suffer with.  Feeling uncomfortable in your skin is no joke, so he wants you to know that you are not alone, and shares what he does to help himself feel better, even if involves small steps or gains. Never give up! Go find Robby and Sammi on Instagram @thepainfultruthofchronicpain and share your story with them. They would love to get to know their listeners! Don't forget to like and subscribe, and they'll be checking in with you soon for Mental Health: 2!Support the show (https://www.patreon.com/limitlessbroadcasting)

The Painful Truth of Living with Chronic Pain
SPECIAL EPISODE: Our Week at the Mayo Clinic

The Painful Truth of Living with Chronic Pain

Play Episode Listen Later Apr 8, 2021 88:47


Robby finally found a doctor to help him with his chronic neck pain! Join him and Sammi during this Special Episode of The Painful Truth of Living with Chronic Pain Podcast as they shared updates during their week in Jacksonville, Florida at the Mayo Clinic. You'll hear them talk about how they  ended up at the Mayo Clinic, what kind of surgery Robby had done, and their experiences during Robby's stay in the hospital. This was truly a life changing event for them, and they are so excited to continue to share their journey with all of you. Check out @thepainfultruthofchronicpain on Instagram for more content focused on their week in northern Florida. Share your experience with the Mayo Clinic, or when you found a doctor to help you by messaging them on IG!Support the show (https://www.patreon.com/limitlessbroadcasting)

Uninvisible with Lauren Freedman
060: Sneha Dave, Founder of Health Advocacy Summit and CCYAN

Uninvisible with Lauren Freedman

Play Episode Listen Later Feb 5, 2020 46:18


A senior at Indiana University majoring in chronic illness advocacy and journalism, Sneha Dave is no stranger to #SpoonieLife. Diagnosed at the age of six with ulcerative colitis (UC), she is the founder of Health Advocacy Summit (HAS), an organization that hosts events in various cities around the country to provide education, insight, and community to an often underserved patient population affected by chronic illness: young adults transitioning from pediatric to adult care. HAS’s sister organization, the Crohn’s and Colitis Young Adults Network (CCYAN), connects the IBD youth community around the world. An advocate through and through, Sneha has spoken on Capitol Hill, featured nationally on C-SPAN, and contributed to U.S. News and World Report, Yahoo! News, Huffington Post, and others. In 2018, the We Are Family Foundation chose her as a Global Teen Leader through its Three Dot Dash program. Sneha has completed a research fellowship in health policy at Harvard T.H. Chan School of Public Health, where she is continuing research as an undergraduate in health care related to young adults. She has also interned at the Crohn’s and Colitis Foundation Headquarters and Pfizer Global Headquarters in health economics and outcomes research for Inflammation and Immunology. She created and chairs the first disability caucus in Indiana, and has served on the Democratic National Committee Disability Policy Subcommittee and Women’s March Disability Caucus. Sneha was awarded two academic fellowships with the Association of Health Care Journalists. She was previously a national policy fellow and now serves as the youngest director on the board for RespectAbility, a nonprofit fighting stigma and advancing opportunities for people with disabilities. Sneha has spoken at Stanford Medicine X; at the Harvard Youth and Public Health Summit; the National Academies of Science, Engineering, and Medicine; and other major avenues. She is also a national ambassador for the Invisible Disabilities Association and Lyfebulb. Sneha is passionate about advancing health care in rural communities, and is an ardent proponent for greater transparency in the patient advocacy space. Tune in as Sneha shares… how she was diagnosed with ulcerative colitis, and what treatment was like in the early stages of her illness that she used the restroom up to 20 times a day in her worst flares that she weighed about 60 lbs during her freshman year of high school that she had a full colectomy in her freshman year of college (removal of her large intestine and colon) that she now lives with a j-pouch and has chronic antibiotic-refractory pouchitis —and is still seeking a viable treatment option for this condition why bowel disease is difficult to discuss as a young adult background on 504 accommodations (disability accommodations for US high school students) how Sneha’s mom has been an advocate for her over the years — and how they’ve become closer as a result how she seeks accommodations for her illness, and the barriers she’s had to surmount to do so her journey to identifying as disabled why she started Health Advocacy Summit the urgent need for peer support among young women with chronic illness, in particular why young adults have such particular needs in terms of disability support, community, and access

The Transform U! Live Show
Episode 18: Being Completely Unaccepting

The Transform U! Live Show

Play Episode Listen Later Nov 1, 2019 30:13


President/CEO Hope Instilled, a 501(c)(3) non-profit, Jory Pradjinski "Living with chronic pain for over 30 years due to multiple back surgeries, a severe auto accident, suicidal thoughts and much more, I have turned my life around in ways beyond doctor's expectations. I am here for a reason, a purpose. That purpose is to reach out a hand to help others journey through their own health challenges and discover their "new normal".Learn more about Jory:JoryP@HopeInstilled.orgwww.HopeInstilled.orgwww.HopeAgainstPain.orghttps://www.facebook.com/HopeInstilled/https://twitter.com/hopeinstilledhttps://www.linkedin.com/in/jorypradjinskiOur sponsor! Wellness Metaphysical Fairs*Admission is FREENovember 10th, 2019 from 11am to 5pmNew Berlin Ale House16000 W Cleveland Ave.New Berlin, WIOther Dates:January 19th, 2020 and March 1st, 2020For our show information - https://transformubroadcast.com

The Transform U! Live Show
Episode 18: Being Completely Unaccepting

The Transform U! Live Show

Play Episode Listen Later Nov 1, 2019 30:13


President/CEO Hope Instilled, a 501(c)(3) non-profit, Jory Pradjinski "Living with chronic pain for over 30 years due to multiple back surgeries, a severe auto accident, suicidal thoughts and much more, I have turned my life around in ways beyond doctor's expectations. I am here for a reason, a purpose. That purpose is to reach out a hand to help others journey through their own health challenges and discover their "new normal".Learn more about Jory:JoryP@HopeInstilled.orgwww.HopeInstilled.orgwww.HopeAgainstPain.orghttps://www.facebook.com/HopeInstilled/https://twitter.com/hopeinstilledhttps://www.linkedin.com/in/jorypradjinskiOur sponsor! Wellness Metaphysical Fairs*Admission is FREENovember 10th, 2019 from 11am to 5pmNew Berlin Ale House16000 W Cleveland Ave.New Berlin, WIOther Dates:January 19th, 2020 and March 1st, 2020For our show information - https://transformubroadcast.com

Chronically Cultivating
Ep #7 Bloom Where You Are Planted

Chronically Cultivating

Play Episode Listen Later Jul 13, 2019 35:27


Have you bloomed where youare planted?NEW episode ofChronically CultivatingAvailable Today after 10 am EDTEpisode #7"Bloom Where You Are Planted"On this episode, Cassie and her Mom Debra have a wonderful chat around a trending quote and how it works in and around their lives!To listen to Chronically Cultivating

SpeakingToTheHeart
Ep #7 Bloom Where You Are Planted

SpeakingToTheHeart

Play Episode Listen Later Jul 13, 2019 35:27


Have you bloomed where you are planted? NEW episode of Chronically Cultivating Available Today after 10 am EDT Episode #7 "Bloom Where You Are Planted" On this episode, Cassie and her Mom Debra have a wonderful chat around a trending quote and how it works in and around their lives! To listen to Chronically Cultivating

Chronically Cultivating
Ep #6 Contentment Challenge

Chronically Cultivating

Play Episode Listen Later Jul 6, 2019 26:12


Chronically CultivatingAvailable Today after 10 am EDTAre you someone that will challenge yourself for the better?

SpeakingToTheHeart
Ep #6 Contentment Challenge

SpeakingToTheHeart

Play Episode Listen Later Jul 6, 2019 26:12


Chronically Cultivating Available Today after 10 am EDT Are you someone that will challenge yourself for the better?

Chronically Cultivating
Ep #3 You Don't Need a Full Schedule to Live a Full Life

Chronically Cultivating

Play Episode Listen Later Jun 15, 2019 26:30


Chronically CultivatingSaturday Morningsafter 10:00 am EDTEpisode #3You Don't Have to Have a Full Schedule to Have a Full LifeBrought to you bySpeaking to the Heart Podcast Networkspeakingtotheheart.orgListen on your favorite podcast app

SpeakingToTheHeart
Ep #3 You Don't Need a Full Schedule to Live a Full Life

SpeakingToTheHeart

Play Episode Listen Later Jun 15, 2019 26:30


Chronically Cultivating Saturday Mornings after 10:00 am EDT Episode #3 You Don't Have to Have a Full Schedule to Have a Full Life Brought to you by Speaking to the Heart Podcast Network speakingtotheheart.org Listen on your favorite podcast app

Raw & Unscripted with Christopher Rausch
Ep #10 How to Turn Fear Into Your Opportunity

Raw & Unscripted with Christopher Rausch

Play Episode Listen Later Jun 11, 2019 27:01


Raw & Unscriptedwith Christopher RauschEpisode #10How to Make Fear Your Opportunity!Chris will be using his own experiences and those who shared theirs from his New facebook group!So join us at 10pm ET / 7pm PTClick

SpeakingToTheHeart
Ep #10 How to Turn Fear Into Your Opportunity

SpeakingToTheHeart

Play Episode Listen Later Jun 11, 2019 27:01


Raw & Unscripted with Christopher Rausch Episode #10 How to Make Fear Your Opportunity! Chris will be using his own experiences and those who shared theirs from his New facebook group! So join us at 10pm ET / 7pm PT Click

SpeakingToTheHeart
Ep #2 "God Doesn't Make Garbage"

SpeakingToTheHeart

Play Episode Listen Later Jun 8, 2019 29:24


Chronically Cultivating with CASSIE NOLIN Episode #2 "God Doesn't Make Garbage" Cassie and her Mom (Deb) have a candid chat of some of the memories and realities of managing the chronic illness life Brought to you by: Speaking to the Heart Podcast Network speakingtotheheart.org Listen on your favorite podcast app Spotify https://spoti.fi/2SvW3az Facebook http://bit.ly/2J6H0yB Google Play http://bit.ly/2fnIrIc iTunes http://bit.ly/SpknToHrt Youtube http://bit.ly/STTHYoutube Spreaker http://bit.ly/STTHSprk Stitcher https://ecs.page.link/tPNrd Player FM https://ecs.page.link/iYQxy

Chronically Cultivating
Ep #2 "God Doesn't Make Garbage"

Chronically Cultivating

Play Episode Listen Later Jun 8, 2019 29:24


Chronically Cultivating with CASSIE NOLINEpisode #2"God Doesn't Make Garbage"Cassie and her Mom (Deb) have a candid chat of some of the memories and realities of managing the chronic illness lifeBrought to you by:Speaking to the Heart Podcast Networkspeakingtotheheart.orgListen on your favorite podcast appSpotify https://spoti.fi/2SvW3azFacebook http://bit.ly/2J6H0yBGoogle Play http://bit.ly/2fnIrIciTunes http://bit.ly/SpknToHrtYoutube http://bit.ly/STTHYoutubeSpreaker http://bit.ly/STTHSprkStitcher https://ecs.page.link/tPNrdPlayer FM https://ecs.page.link/iYQxy

SpeakingToTheHeart
Debut of Chronically Cultivating

SpeakingToTheHeart

Play Episode Listen Later Jun 1, 2019 18:02


Chronically Cultivating Show debut with Host Cassie Nolin Hey friends, I’m Cassie and I am a married spoonie who lives the chronic illness life, here each week I’ll challenge you to live intentionally and authentically where every spoon you use has a purpose and every step you take matters. Welcome to chronically cultivating! Make sure to join our NEW facebook group! A place where you will learn more about Cassie and her dreams and where you can celebrate with others just like you!

Chronically Cultivating
Debut of Chronically Cultivating

Chronically Cultivating

Play Episode Listen Later Jun 1, 2019 18:02


Chronically CultivatingShow debut with Host Cassie NolinHey friends, I’m Cassie and I am a married spoonie who lives the chronic illness life, here each week I’ll challenge you to live intentionally and authentically where every spoon you use has a purpose and every step you take matters. Welcome to chronically cultivating!Make sure to join our NEW facebook group!A place where you will learn more about Cassie and her dreams and where you can celebrate with others just like you!

SpeakingToTheHeart
Ep #8 "Can Our Pain Be A Motivator?"

SpeakingToTheHeart

Play Episode Listen Later May 28, 2019 26:08


SpeakingToTheHeart
Ep #2 Perfectionism & Procrastination

SpeakingToTheHeart

Play Episode Listen Later Apr 16, 2019 34:18


Are you a "perfectionist"? A "procrastinator"? Check out this weeks episode Raw & Unscripted with Christopher Rausch Available starting Tonight 10:30 ET! Chris pulls no punches when it comes to how he realized his own challenges with perfectionism would lead him into procrastination! He will share some valuable tips and insight that you can use to make sure you truly are #UNSTOPPABLE Raw & Unscripted the show that helps you get to the core of the problem without all the self help fluffy bullshit! Check it out on your favorite podcast platform! Speaking to the Heart Podcast Network speakingtotheheart.org To learn more visit our website! ☝ ____________________________________ Spotify https://spoti.fi/2SvW3az Facebook http://bit.ly/2J6H0yB Google Play http://bit.ly/2fnIrIc iTunes http://bit.ly/SpknToHrt Youtube http://bit.ly/STTHYoutube Spreaker http://bit.ly/STTHSprk Stitcher SpeakingToTheHeart https://ecs.page.link/1nZfv

Raw & Unscripted with Christopher Rausch
Ep #2 Perfectionism & Procrastination

Raw & Unscripted with Christopher Rausch

Play Episode Listen Later Apr 16, 2019 34:18


Are you a "perfectionist"? A "procrastinator"?Check out this weeks episode Raw & Unscripted with Christopher RauschAvailable starting Tonight 10:30 ET!Chris pulls no punches when it comes to how he realized his own challenges with perfectionism would lead him into procrastination!He will share some valuable tips and insight that you can use to make sure you truly are #UNSTOPPABLERaw & Unscripted the show that helps you get to the core of the problem without all the self help fluffy bullshit!Check it out on your favorite podcast platform!Speaking to the HeartPodcast Networkspeakingtotheheart.orgTo learn more visit our website! ☝____________________________________Spotify https://spoti.fi/2SvW3azFacebook http://bit.ly/2J6H0yBGoogle Play http://bit.ly/2fnIrIciTunes http://bit.ly/SpknToHrtYoutube http://bit.ly/STTHYoutubeSpreaker http://bit.ly/STTHSprkStitcher SpeakingToTheHeart https://ecs.page.link/1nZfv

Healthy Humor
Ep #8 "Three Psoriasis Scenarios"

Healthy Humor

Play Episode Listen Later Apr 4, 2019 17:46


Healthy HumorThursday Nights 8/7cSpecial guest: CHRIS PETTITOn this episode, Alisha and Daniel have their friend and fellow health advocate Chris Pettit to discuss 3 Scenarios that people with Psoriasis run into dailyChris is a stand-up comedian as well as a long time health advocate concerning the medical condition Psoriasis.This show is sure is to bring awareness while having more than a laugh or two with you!Healthy Humor is brought to you bySpeaking to the Heart Podcast Networkspeakingtotheheart.org_________________________________________ Spotify http://bit.ly/2DB1VVpFacebook http://bit.ly/2J6H0yBGoogle Play http://bit.ly/2fnIrIciTunes http://bit.ly/SpknToHrtYoutube http://bit.ly/STTHYoutubeSpreaker http://bit.ly/STTHSprkStitcher http://bit.ly/2TaNOML

SpeakingToTheHeart
Ep #8 "Three Psoriasis Scenarios"

SpeakingToTheHeart

Play Episode Listen Later Apr 4, 2019 17:46


Healthy Humor Thursday Nights 8/7c Special guest: CHRIS PETTIT On this episode, Alisha and Daniel have their friend and fellow health advocate Chris Pettit to discuss 3 Scenarios that people with Psoriasis run into daily Chris is a stand-up comedian as well as a long time health advocate concerning the medical condition Psoriasis. This show is sure is to bring awareness while having more than a laugh or two with you! Healthy Humor is brought to you by Speaking to the Heart Podcast Network speakingtotheheart.org _________________________________________ Spotify http://bit.ly/2DB1VVp Facebook http://bit.ly/2J6H0yB Google Play http://bit.ly/2fnIrIc iTunes http://bit.ly/SpknToHrt Youtube http://bit.ly/STTHYoutube Spreaker http://bit.ly/STTHSprk Stitcher http://bit.ly/2TaNOML

SpeakingToTheHeart
Ep #7 - No No Time with Health Advocate Chris Pettit

SpeakingToTheHeart

Play Episode Listen Later Mar 31, 2019 18:26


Healthy Humor Thursday Nights 8/7c Special guest: CHRIS PETTIT On this episode, Alisha and Daniel have their friend and fellow health advocate Chris Pettit to discuss No No Time? Chris is a stand-up comedian as well as a long time health advocate concerning the medical condition Psoriasis. This show is sure is to bring more than a laugh or two with you! Healthy Humor is brought to you by Speaking to the Heart Podcast Network speakingtotheheart.org _________________________________________ Facebook http://bit.ly/2J6H0yB Google Play http://bit.ly/2fnIrIc iTunes http://bit.ly/SpknToHrt Youtube http://bit.ly/STTHYoutube Spreaker http://bit.ly/STTHSprk Stitcher http://bit.ly/2TaNOML

Healthy Humor
Ep #7 - No No Time with Health Advocate Chris Pettit

Healthy Humor

Play Episode Listen Later Mar 31, 2019 18:26


Healthy HumorThursday Nights 8/7cSpecial guest: CHRIS PETTITOn this episode, Alisha and Daniel have their friend and fellow health advocate Chris Pettit to discuss No No Time?Chris is a stand-up comedian as well as a long time health advocate concerning the medical condition Psoriasis.This show is sure is to bring more than a laugh or two with you!Healthy Humor is brought to you bySpeaking to the Heart Podcast Networkspeakingtotheheart.org_________________________________________Facebook http://bit.ly/2J6H0yBGoogle Play http://bit.ly/2fnIrIciTunes http://bit.ly/SpknToHrtYoutube http://bit.ly/STTHYoutubeSpreaker http://bit.ly/STTHSprkStitcher http://bit.ly/2TaNOML