AmiPal: Palliative Care

This episode of AmiPal is about the development of this podcast. I’ll discuss my paper which was recently published in BMJ Supportive and Palliative Care: Use of podcast technology to facilitate education, communication and dissemination in palliative care: the development of the AmiPal podcast. http://spcare.bmj.com/content/early/2016/08/31/bmjspcare-2016-001140.full?sid=0f2fff3a-9f6e-4c80-bab6-eab94e775c39 Edison Research. The podcast consumer 2015. Website of Edison Research 2015. http://www.edisonresearch.com/the-podcast-consumer-2015/. Davidson L. How Serial shook up the podcasting industry. Website of the Telegraph 2015. http://www.telegraph.co.uk/finance/newsbysector/mediatechnologyandtelecoms/11513025/How-Serial-shook-up-the-podcasting-industry.html. Sinclair C. Palliative Care Podcasts. Website of Pallimed 2015. http://www.pallimed.org/2015/05/palliative-care-podcasts.html. Lin M, Thoma B, Trueger NS et al. Quality indicators for blogs and podcasts used in medical education: modified Delphi consensus recommendations by an international cohort of health professions educators. Postgraduate Medical Journal 2015;91(1080):546-50. http://pmj.bmj.com/content/91/1080/546.long Adam Lella. Number of Mobile-Only Internet Users Now Exceeds Desktop-Only in the U.S. (April 2015) https://www.comscore.com/Insights/Blog/Number-of-Mobile-Only-Internet-Users-Now-Exceeds-Desktop-Only-in-the-U.S Tommy Helgevold. Build a radio in less than 1 minute https://www.youtube.com/watch?v=3Zzmi_Kno4w AmiPal - SoundCloud: https://soundcloud.com/mypal AmiPal - Stitcher: http://www.stitcher.com/podcast/mypal-technology-innovation-palliative-care AmiPal - TuneIn: http://tunein.com/radio/AmiPal-Palliative-Care-p837382/ AmiPal - Acast: https://www.acast.com/amipal Audacity® is free, open source, cross-platform software for recording and editing sounds http://www.audacityteam.org/ Copyright Dr Amara Nwosu, AmiPal Media 2016. www.amaranwosu.com twitter.com/amaranwosu Music by Bensound www.bensound.com/royalty-free-music

In this episode I provide an overview of the use of bioimpedance analysis to assess hydration over time in a patient with POEMS syndrome. This was published in the BMJ Supportive and Palliative Care journal and can be found through the link provided below. Nwosu AC, Morris L, Mayland C, Mason S, Pettitt A, Ellershaw J. Longitudinal bioimpedance assessments to evaluate hydration in POEMS syndrome. BMJ Supportive and Palliative Care doi:10.1136/bmjspcare-2015-000991 http://spcare.bmj.com/content/early/2016/04/28/bmjspcare-2015-000991.full Nwosu AC, Mayland CR, Mason S, Khodabukus AF, Varro A, Ellershaw JE. Hydration in advanced cancer: can bioelectrical impedance analysis improve the evidence base? A systematic review of the literature. Journal of Pain and Symptom Management 2013; 46(3):433-446.e6 www.jpsmjournal.com/article/S0885-3…0499-X/abstract Researchgate link: https://www.researchgate.net/publication/233826517_Hydration_in_Advanced_Cancer_Can_Bioelectrical_Impedance_Analysis_Improve_the_Evidence_Base_A_Systematic_Review_of_the_Literature Nwosu AC, Mayland CR, Mason SR, Varro A, Ellershaw JE. Patients want to be involved in end-of-life care research. BMJ Support Palliat Care 2013, Dec;3(4):45. spcare.bmj.com/content/early/201…13-000537.extract Copyright Dr Amara Nwosu, AmiPal Media 2016. www.amaranwosu.com https://twitter.com/amaranwosu Music by Bensound www.bensound.com/royalty-free-music

In this episode I will provide an overview between the differences between research, audit and service evaluation. This is important to distinguish as research studies require ethical approval before they commence, whereas the other project types do not. Is your project research, evaluation or audit? (Avon Primary Care Research Collaborative website) http://www.apcrc.nhs.uk/governance/is_it_research.htm NRES Defining Research leaflet. http://www.hra.nhs.uk/documents/2013/09/defining-research.pdf Copyright Dr Amara Nwosu, AmiPal Media 2016. www.amaranwosu.com Music by Purple Planet http://www.purple-planet.com

In this episode of AmiPal I talk with Dr Hannah Sammut (Renal Physician and Royal College of Physicians post-CCT fellow in Palliative Medicine) about the importance of palliative medicine and palliative care. The prevalence of symptoms in end-stage renal disease: a systematic review. Murtagh FE et al. Adv Chronic Kidney Dis. 2007 Jan;14(1):82-99. http://www.ncbi.nlm.nih.gov/pubmed/17200048 Is maximum conservative management an equivalent treatment option to dialysis for elderly patients with significant comorbid disease?Carson RC et al.Clin J Am Soc Nephrol. 2009 Oct;4(10):1611-9. doi: 10.2215/CJN.00510109 http://www.ncbi.nlm.nih.gov/pubmed/19808244 AmiPal and it's content is copyright of Dr Amara Nwosu, KingAmi Media 2016. www.amaranwosu.com Music by Bensound www.bensound.com/royalty-free-music

In this episode of MyPal I discuss the potential uses of virtual reality (VR) in healthcare and what this may mean for palliative care. Beyond gaming: virtual reality in healthcare. Claire Bower. BMJ Blogs 2014. http://blogs.bmj.com/bmj-journals-development-blog/2014/03/27/beyond-gaming-virtual-reality-in-healthcare/ What can Oculus Rift do for healthcare?Mike Miliard. HealthcareIT news 2014. http://www.healthcareitnews.com/news/what-can-oculus-rift-do-healthcare The future of pain relief? Dutch burns unit trialling new virtual reality computer system that distracts patients from the agony of their wounds. Paul Donnelly, Daily Mail 9th Aug 2014. http://www.dailymail.co.uk/sciencetech/article-2720712/The-future-pain-relief-Dutch-burns-unit-trialling-new-virtual-reality-computer-distracts-patients-agony-wounds.html IS VR CHANGING HEALTHCARE? http://weareformation.com/is-vr-changing-healthcare/ A Survey of Health-Related Activities on Second Life. Leslie Beard et al. J Med Internet Res. 2009 Apr-Jun; 11(2): e17. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2762804/ Virtual reality for the palliative care of cancer. Oyama 1997 http://www.ncbi.nlm.nih.gov/pubmed/10175345 Copyright Dr Amara Nwosu, AmiPal Media 2016. www.amaranwosu.com Music by Purple Planet http://www.purple-planet.com Photo by Jordi Boixareu https://www.flickr.com/photos/jobopa/16696929145/in/photolist-rrs8jH-rrs8mM-3MDfx-qKnTu4-rGanMp-b9mcPi-rpHzg8-rpB6SJ-kSPP9-bi5sXZ-rGatMF-rpHwT2-u74s5N-rGarCk-oAL3wY-6bRG9s-uoDHj8-saUyek-r7ATWe-Q2c6b-n7C2b-6bMx48-72SPhm-oWS4dH-tpyDhR-qrZC-wFc2p5-pcoahT-qrZy-trCizL-oMvrvF-bi5s4a-4XAPsx-rpacFf-riz3TM-pendcM-yNhwvM-iqg34e-w1W2Zr-cLEPq7-a1YL7s-qUsiSS-5V44RG-qUE9Bx-ryZR18-ryTgFf-ryTfNJ-4TkycL-49wC8u-4HYWqe

In this episode of MyPal I interview Dr Laura Chapman (Palliative Medicine Consultant and Training Programme Director for Palliative Medicine in Health Education North West- Mersey) and Dr Daniel Monney (Specility Trainee in Palliative Medicine) about the Eportfolios' Case Based Discussion (CBD) supervised learning events (SLEs). We discuss practical tips for educational supervisors to help conduct these SLEs. Copyright Dr Amara Nwosu, KingAmi Media 2015. www.amaranwosu.com Music by Bensound www.bensound.com/royalty-free-music

In this episode of MyPal Dr Amara Nwosu provides an overview of the health secretary's recent speech to the Health Service Journal which outlined the potential role of technology in healthcare. Patient power: threat or opportunity? Health Secretary's speech on the opportunities offered by the shift to a patient-powered, technologically advanced health service. Department of Health and The Rt Hon Jeremy Hunt MP Health Service Journal, Barber-Surgeons‘ Hall, London https://www.gov.uk/government/speeches/patient-power-threat-or-opportunity Smart patients Emma Hill, Lancet Volume 15, No. 2, p140–141, February 2014. http://www.thelancet.com/journals/lanonc/article/PIIS1470-2045(14)70044-0/abstract The Patient Will See You Now: The Future of Medicine is in Your Hands by Eric Topol http://www.amazon.com/The-Patient-Will-See-You/dp/0465054749 Patient reported outcomes http://sites.duke.edu/rethinkingclinicaltrials/patient-reported-outcomes/ Use of an electronic patient-reported outcome measurement system to improve distress management in oncology Palliat Support Care. 2014 Feb; 12(1): 69–73. Sophia K. Smith, Krista Rowe, Amy P. Abernethy http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4066540/ Copyright Dr Amara Nwosu, KingAmi Media 2015. www.amaranwosu.com Music by Bensound www.bensound.com/royalty-free-music

Dr Amara Nwosu discusses social media and palliative medicine. He focuses on his recent blog published on the EAPC website about his study about the use of Twitter to evaluate communication about palliative care on social media. ‘Social media and palliative medicine: a retrospective 2-year analysis of global Twitter data to evaluate the use of technology to communicate about issues at the end of life’ by Nwosu AC, Debattista M, Rooney C, et al published in BMJ supportive & palliative care2015;5(2):207-12. http://spcare.bmj.com/content/5/2/207 EAPC Blog - Social media and palliative medicine: An opportunity for community and professional engagement https://eapcnet.wordpress.com/2015/08/17/social-media-and-palliative-medicine-an-opportunity-for-community-and-professional-engagement/ EAPC Blog: With great power comes great responsibility: Using Facebook to explain palliative care - Dr Leeroy William https://eapcnet.wordpress.com/2015/08/12/with-great-power-comes-great-responsibility-using-facebook-to-explain-palliative-care/ Palliative Medicine Teaching - Facebook and Twitter https://www.facebook.com/PallMedEd https://twitter.com/PallMedEd E-Hospice: Discussion of palliative care on Twitter is largely positive, and increasing - Dr A Nwosu http://www.ehospice.com/uk/Default/tabid/10697/ArticleId/12212/ E-Hospice: Harnessing social media to enhance hospice care #learnhospice http://www.ehospice.com/uk/Default/tabid/10697/ArticleId/11617/ E-Hospice: Social media and palliative care http://www.ehospice.com/uk/Default/tabid/10697/ArticleId/10009/ Symplur and the Heathcare Hashtag project - Dr Mark Taubert http://blogs.bmj.com/spcare/2015/08/16/symplur-and-the-heathcare-hashtag-project/?q=w_spcare_blog_sidetab Palliative social media - Mark Taubert et al http://spcare.bmj.com/content/4/1/13.abstract?sid=95d81aaf-38ce-4e34-943e-bce5b3763321 Why don't end-of-life conversations go viral? A review of videos on YouTube. Imogen Mitchell et al http://spcare.bmj.com/content/early/2015/07/16/bmjspcare-2014-000805.abstract?sid=16527997-aa5a-4ae7-be1a-bcbfa3a40024 Copyright Dr Amara Nwosu, KingAmi Media 2015. www.amaranwosu.com Music by Bensound http://www.bensound.com/royalty-free-music

In this episode of MyPal Dr Amara Nwosu talks about five apps/web applications he uses that help his daily life as a clinical academic. The apps are: 1) Evernote / Google Keep / Onenote / Todoist https://evernote.com/ http://www.google.com/keep/ https://www.onenote.com/ https://en.todoist.com/ 2) Google Drive / Dropbox / Onedrive https://www.google.co.uk/drive/ https://www.dropbox.com/ https://onedrive.live.com/about/en-us/ 3) Feedly / Flipboard https://feedly.com/ https://flipboard.com/ 4)Pocket https://getpocket.com 5) Twitter https://twitter.com/ Other apps to mention: If this then that (now know as IF or IFTTT) https://ifttt.com/ Social media and palliative medicine: a retrospective 2-year analysis of global twitter data to evaluate the use of technology to communicate about issues at the end of life. Nwosu et al, BMJ Spcare. http://www.ncbi.nlm.nih.gov/pubmed/25183713 Copyright Dr Amara Nwosu, KingAmi Media 2015. www.amaranwosu.com Music by 'Year of the Fiery Horse' (YOTFH). Soundcloud link: @year-of-the-fiery-horse

Does wearable technology have a role in improving heath, monitoring fitness and helping deliver personalised medical therapies or is it just a fad which will disappear in time? In this episode of MyPal Dr Amara Nwosu discusses the potential wearable technology has for healthcare and also highlights the limitations of the current technology. Wearable Devices as Facilitators, Not Drivers, of Health Behavior Change by Mitesh S. Patel et al (JAMA) http://jama.jamanetwork.com/article.aspx?articleid=2089651 Copyright Dr Amara Nwosu, KingAmi media 2015. www.amaranwosu.com Music by 'Year of the Fiery Horse' (YOTFH). Soundcloud link: @year-of-the-fiery-horse

The death of a Teenage Mutant Ninja Turtle? The Lion King and Palliative Care? Changing the direction a river flows? Intrigued? Well listen on! In this episode Dr Amara Nwosu asks the question "what is culture?" and asks how a society's culture can affect how Palliative Care is considered and delivered. Can we change and create a culture where death and dying are not considered taboo subjects? This is from a UK perspective but hopefully it will be of interest. Topics covered in this podcast: Barbara Gomes - end of life intelligence network - what we know now:http://www.endoflifecare-intelligence.org.uk/resources/publications/what_we_know_now_2013 Andy Couch - Culture Making https://setsnservice.wordpress.com/2008/10/27/a-summary-and-review-of-andy-crouchs-new-book-culture-making-01-05-culture/ Dr Atul Gawande - 2014 BBC Reith Lectures http://www.bbc.co.uk/programmes/articles/6F2X8TpsxrJpnsq82hggHW/dr-atul-gawande-2014-reith-lectures Dr Atul Gawande - Being Mortal http://www.amazon.co.uk/Being-Mortal-Medicine-What-Matters/dp/0805095152 The death of Donatello (Teenage Mutant Ninja Turtles) http://www.techtimes.com/articles/40753/20150321/teenage-mutant-ninja-turtle-44-donatello-gruesomely-killed-in-action.htm Story of the dragonfly http://www.achildofmine.org.uk/The-story-of-the-Dragonfly/I8.htm Copyright Dr Amara Nwosu, KingAmi media 2014. www.amaranwosu.com Music by 'Year of the Fiery Horse' (YOTFH). Soundcloud link: @year-of-the-fiery-horse

Dr Amara Nwosu provides an overview of his PhD research "The use of bioelectrical impedance vector analysis (BIVA) to assess hydration in patients with advanced cancer in a specialist palliative care inpatient unit". This study was the winner of the 2014 Twycross Research prize of the Association of Palliative Medicine. National Cancer Research Institute (NCRI) Conference prize winning abstract presented in 2014: http://conference.ncri.org.uk/abstracts/2014/abstracts/A222.html Information about Early Career Researcher Award of the European Association of Palliative Care (EAPC) http://www.eapc-2015.org/Early_Researcher_Award.html Nwosu AC, Mayland CR, Mason S, Khodabukus AF, Varro A, Ellershaw JE. Hydration in advanced cancer: can bioelectrical impedance analysis improve the evidence base? A systematic review of the literature. Journal of Pain and Symptom Management 2013; 46(3):433-446.e6 http://www.jpsmjournal.com/article/S0885-3924(12)00499-X/abstract Nwosu AC, Mayland CR, Mason SR, Varro A, Ellershaw JE. Patients want to be involved in end-of-life care research. BMJ Support Palliat Care 2013, Dec;3(4):45. http://spcare.bmj.com/content/early/2013/07/23/bmjspcare-2013-000537.extract Copyright Dr Amara Nwosu, KingAmi media 2014. www.amaranwosu.com Music by 'Year of the Fiery Horse' (YOTFH). Soundcloud link: @year-of-the-fiery-horse

Dr Amara Nwosu interviews Dr Daniel Monnery (Speciality trainee registrar in Palliative Medicine in the Mersey Deanery) to discuss a variety of topics including: postgraduate training in palliative medicine, medical handover, undergraduate medical education and its relevance to palliative care. Copyright Dr Amara Nwosu, KingAmi media 2014. www.amaranwosu.com Music by 'Year of the Fiery Horse' (YOTFH). Soundcloud link: @year-of-the-fiery-horse

Dr Amara Nwosu interviews Jane Isaac (Occupational Therapist at Marie Curie Hospice Liverpool) to discuss the role and services offered by of palliative care day therapy. Copyright Dr Amara Nwosu, KingAmi media 2014. www.amaranwosu.com Music by 'Year of the Fiery Horse' (YOTFH). Soundcloud link: @year-of-the-fiery-horse

Dr Amara Nwosu discusses his paper about peer-led learning as a mechanism to facilitate palliative care education in medical undergraduates. Nwosu A, Mason S, Roberts A, Hugel H. Does peer-led education have a role in teaching medical students about palliative care? The evaluation of an examination question-writing task. The Clinical Teacher 2013;10(3):151-4 http://www.ncbi.nlm.nih.gov/pubmed/23656675 Copyright Dr Amara Nwosu, KingAmi media 2014. http://www.amaranwosu.com Music by 'Year of the Fiery Horse' (YOTFH). Soundcloud link: https://soundcloud.com/year-of-the-fiery-horse

In this episode of MyPal Dr Amara Nwosu discusses a recent article from the BMJ by Bjorn Morten Hofmann, University College of Gjovik which poses the question of whether there is too much technology in healthcare. Too much Technology by Bjørn Morten Hofmann - BMJ 21/02/2015 (subscription required to access link) http://www.bmj.com/content/350/bmj.h705 Copyright Dr Amara Nwosu, KingAmi media 2014. http://www.amaranwosu.com Music by 'Year of the Fiery Horse' (YOTFH). Soundcloud link: https://soundcloud.com/year-of-the-fiery-horse

In this episode of MyPal Dr Amara Nwosu provides an overview publishing in palliative care, discussing the importance of this and sharing some tips for potential authors. The audio was recorded to support an educational session as part of the Merseyside & Cheshire Palliative Care Network Audit Group. Copyright Amara Nwosu www.amaranwosu.com Music by Year of the Fiery Horse @year-of-the-fiery-horse

In this episode of MyPal Dr Amara Nwosu discusses the recent BMJ editorial (by Mahiben Maruthappu) detailing the potential use of 3D printing in clinical practice. Copyright Amara Nwosu www.amaranwosu.com Music by Year of the Fiery Horse @year-of-the-fiery-horse Image copyright of endgaget.com http://www.engadget.com/2012/09/26/form-1-delivers-high-end-3d-printing-for-an-affordable-price/ References: Mahiben Maruthappu, Bruce Keogh. How might 3D printing affect clinical practice? BMJ 2014; 349 doi: http://dx.doi.org/10.1136/bmj.g7709 (Published 30 December 2014) Surgeon creates pelvis using 3D printer (Telegraph article) http://www.telegraph.co.uk/news/health/10627556/Surgeon-creates-pelvis-using-3D-printer.html 3D printed heart saves baby's life (article in Independent newspaper). http://www.independent.co.uk/life-style/gadgets-and-tech/news/3d-printed-heart-saves-babys-life-as-medical-technology-leaps-ahead-9776931.html 3-D printed windpipe gives infant breath of life (Nature) http://www.nature.com/news/3-d-printed-windpipe-gives-infant-breath-of-life-1.13085

Nanotechnology to diagnose and monitor cancer? Nanopills and smartwatches in disease management and treatment? Sounds like science fiction but that is what researchers at Google are working on right now! Dr Ami Nwosu discusses this in more depth. Copyright Amara Nwosu www.amaranwosu.com Music by Year of the Fiery Horse https://soundcloud.com/year-of-the-fiery-horse References: http://news.sciencemag.org/biology/2014/07/google-x-sets-out-define-healthy-human