Podcasts about patient power

Nine years with no evidence of disease—yet Megan-Claire Chase's cancer journey isn't over. As she once fought cancer alongside her mother, she now faces something even harder: losing her. In this episode, Megan-Claire shares a deeply vulnerable side—a daughter losing her mother. Facing your own mortality is one thing, but facing the mortality of your loved ones—friends, family, fellow cancer patients, and survivors—and the hole they leave behind is something entirely different. Key Highlights: Witnessing her mother's cancer progression brings anticipatory grief, yet despite that grief, Megan strives to learn as much about her mother as possible, including fond memories from her childhood. Despite the anticipatory grief, Megan and her mother engage in a bonding exercise using question cards, and she records their conversations. One of the most meaningful things she learned was that her mother reflects on her life with joy—ultimately, the greatest goal is to leave this world happy. Facing your own mortality can unearth many emotions: the need to be confident and not tolerate disrespect, the desire to live life on your own terms and to the fullest, yet also a deep sense of loneliness and isolation. About our guest: Check out the first episode Megan-Claire Chase appeared in here.  Megan-Claire Chase, also known as Warrior Megsie, is the Breast Cancer Program Director and host of the Our BC Life podcast at SHARE Cancer Support. As an invasive lobular carcinoma (ILC) breast cancer survivor and passionate patient advocate based in Atlanta, GA, Megan-Claire is a dedicated champion for the needs of breast cancer patients, particularly in addressing the disparities faced by minoritized communities and those in the adolescent and young adult (AYA) communities. In addition to her pivotal role at SHARE, she serves on Bayer Oncology's Digital Patient Council, is a patient advocate for the Oncology Data Advisor Editorial Board, and recently joined the Worth the Wait Charity advisory board. She also contributes as a writer and advisory board member for Patient Power, amplifying the voices of breast cancer patients. Megan-Claire's advocacy efforts include participating as a panelist on Leveraging Technology to Support Patient-Centered Multidisciplinary Oncologic Care at the 2024 ASCO Quality Care Symposium, co-authoring a podcast and infographic on genetic testing in metastatic breast cancer, collaborating with Pfizer on the Action Guide to Disrupt Inequitable Health Outcomes, and sharing her personal journey on PBS's Beyond Cancer through Stories from the Stage. Her work has been spotlighted in notable publications like The New York Times, People Magazine, Cancer Health, Cancer Today, and CURE Magazine. Beyond her cancer advocacy, Megan-Claire is a versatile voiceover actor, a dedicated social justice activist, and a proud cat mom to Phoebe. Disclaimer: All content and information provided in connection with Manta Cares is solely intended for informational and educational purposes only.  This content and information is not intended to be a substitute for medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Looking for tools to help you take control of your cancer experience? Check out My Cancer GPS™, a step-by-step map that guides you through the entire cancer experience.

My guest today asks the question, What should be done with Obamacare? This comes as Democratic subsidies and the Trump tax cuts are getting closer to expiring. He makes a case for reform. Joining me today is John C Goodman, PhD. Dr Goodman is president and CEO of the Goodman institute for Public Policy Research, a think tank focused on public policy issues. He is also author of a number of notable books to include Priceless, A Better Choice and of course Patient Power, among others.

In this episode of the Patient From Hell, Samira sits down with Megan-Claire Chase, known in the cancer community as "Warrior Megsy." Megan-Claire shares her deeply personal experience of navigating breast cancer and its aftermath. From managing the physical and emotional toll of treatment to finding new ways to regain a sense of self, Megan-Claire offers a powerful account of resilience, self-advocacy, and the importance of asking for help. Her humor, storytelling skills, and openness bring a refreshing perspective on survivorship, making this an inspiring conversation for anyone facing adversity. Key Highlights: 1. Self-advocacy is critical in healthcare, and sometimes, switching doctors is necessary to ensure your voice is heard. 2. The emotional impact of cancer extends beyond treatment, often manifesting in long-term physical pain and identity challenges. 3. Asking for help isn't a sign of weakness—it's a vital step in dealing with the overwhelming aspects of cancer. About our guest: Megan-Claire Chase, also known as Warrior Megsie, is the Breast Cancer Program Director and host of the Our BC Life podcast at SHARE Cancer Support. As an invasive lobular carcinoma (ILC) breast cancer survivor and passionate patient advocate based in Atlanta, GA, Megan-Claire is a dedicated champion for the needs of breast cancer patients, particularly in addressing the disparities faced by minoritized communities and those in the adolescent and young adult (AYA) communities. In addition to her pivotal role at SHARE, she serves on Bayer Oncology's Digital Patient Council, is a patient advocate for the Oncology Data Advisor Editorial Board, and recently joined the Worth the Wait Charity advisory board. She also contributes as a writer and advisory board member for Patient Power, amplifying the voices of breast cancer patients. Megan-Claire's advocacy efforts include participating as a panelist on Leveraging Technology to Support Patient-Centered Multidisciplinary Oncologic Care at the 2024 ASCO Quality Care Symposium, co-authoring a podcast and infographic on genetic testing in metastatic breast cancer, collaborating with Pfizer on the Action Guide to Disrupt Inequitable Health Outcomes, and sharing her personal journey on PBS's Beyond Cancer through Stories from the Stage. Her work has been spotlighted in notable publications like The New York Times, People Magazine, Cancer Health, Cancer Today, and CURE Magazine. Beyond her cancer advocacy, Megan-Claire is a versatile voiceover actor, a dedicated social justice activist, and a proud cat mom to Phoebe. My Cancer GPS™ is coming! Step-by-step subway maps that guide you through the entire cancer experience. Learn more here!⁠ Key Moment: 21 minutes: “Something that people outside of Cancerland may not fully understand is the side effects from the toxic treatments, the side effects from multiple surgeries, the pain that some get fades, they heal, but for others, like moi, I really got the motherload of permanent damage, permanent side effects, effects that happen like a year, two years post cancer. And so I, as I'm talking to you right now, I am in pain. And I often have people say, ‘you don't look like you're in pain.' And I'm like, look, it's not Halloween yet. I don't want to scare you. If I looked how I truly, truly felt on the daily, you would think you're in a scary movie. And so, dealing with multiple types of pain, chronic pain, is something I never, ever thought would be part of my cancer experience." Disclaimer: All content and information provided in connection with Manta Cares is solely intended for informational and educational purposes only.  This content and information is not intended to be a substitute for medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

  Megan-Claire Chase, also known as Warrior Megsie, is a 7-year breast cancer survivor in Atlanta, Georgia. She's a sought-after patient advocate, speaker, and blogger in the cancer community. Her blog, Life on the Cancer Train, is about the struggles of being a young adult cancer survivor while advocating for better treatments and resources. Megan-Claire and her work have been featured in the national press, including The New York Times and People Magazine, as well as through numerous patient advocacy publications, including Cancer Health Magazine, Cancer Today, CURE, and Patient Power. She has served as a consumer reviewer for the Department of Defense Breast Cancer Research Program, a contributing WebMD writer, and a budding voice-over actor. 

This is a clip from the full show this week between Dr Melanie Lee and Steve Roest. Melanie is the CEO of LifeArc who have decided to give away £1.3bn in funding to finding diagnostics, treatments and cures for motor neurone disease. In this clip, she explains how important patient and patient family power has been in prioritising the disease.

In this episode, Nick and Michael discuss the importance of booking follow-up appointments during a patient's visit rather than waiting for them to come back on their own. This proactive approach leads to better patient outcomes and a significant increase in reappointments. By simply telling patients what the next steps are and scheduling the next appointment before they leave, you can achieve a 74% rebooking rate. With an estimated additional revenue of $594,600 per year, it's clear that the benefits of always booking the next appointment from an appointment cannot be ignored. Listen in for more tips on improving patient satisfaction and driving your clinic's success! Have a question or a story we should feature as an episode? Email us at hello@patientcaremarketingpros.com Intro/Outro Music by Devin Smith https://open.spotify.com/artist/4UdQjNXnACFE2VpkEoP8v2?si=pDx5jsgtRFOtwrpMOKOkuQ Stay connected with Patient Care Marketing Pros! Website: https://patientcaremarketingpros.com Facebook: https://www.facebook.com/patientcaremarketingpros Instagram: https://www.instagram.com/patientcaremarketingpros LinkedIn: https://www.linkedin.com/company/patient-care-marketing-pros/ YouTube: https://www.youtube.com/channel/UC9nwkAwIyiVvsLTWGoeRbWA

This week, I spoke with 2 amazing women who work in the field of patient experience and engagement. As a patient engagement manager with Patient Power, Julie Fuller has the privilege of sharing the stories of patients living with various diseases and chronic medical conditions. Giving a voice to patients within numerous disease communities is her passion. By sharing their healthcare journeys with others, patients are empowered to affect better outcomes for themselves and others. You can find Julie online at https://www.linkedin.com/in/julie-howe-fuller-ba020913a/ Ashley Anderson is a clinical pharmacist who has practiced in acute care and sports pharmacy for nearly two decades. While practicing in Colorado Springs, Ashley implemented several pharmacy innovation projects including a Transitions of Care Program called Rx Concierge and advanced training of Pharm Tech for ED and Pre-Op Med Histories. Ashley is currently a generalist at a small community hospital. Outside of the hospital setting, she trains other pharmacists to work with elite athletes, after she developed her own expertise in sports pharmacy while working with the US AntiDoping Agency for 16 years. She is the founder of the International Sports Pharmacists Network which established integrity standards for involvement of pharmacists in sports. You can find Ashley online at www.sportspharmacists.org ******* If you enjoyed this episode, reviews are always welcome and appreciated! If you are interested in working with me, visit https://www.peaceadvocacygroup.com/ If you have ideas for future episodes or want to send a message about anything else, go to https://www.speakpipe.com/MindingWellness

Tim and Dan discuss the series second trip to IMS Road Course. Perhaps not surprising that Patient Power takes the championship standings ahead of Ericsson who along with Ganassi teammates seemed to struggle this round. Rahal continues their slow climb in turning around their qualifying efforts which are in turn helping their finishes. Dan is adamant that Power is the lead championship contender. Tim still puts all his chips on Newgarden. Who do you think it is with only four races left and Nashville up next? Tell us

Join Tim and Dan as they review the GMR Grand Prix at IMS Road Course. With Dan on site and so much on track action there is a lot to talk about. Kudos to Honda and Colton Herta on this victory.  What if anything does this mean going into the 500? Will Honda pull out an ace and take it to Chevy on the big track? Spectacular effort by Juncos and Calum Ilott who continues to outperform this team's perceived station. RLL finally has a good effort in qualifying - the only piece this team needs to contend week in and week out. Patient Power looks to maintain a hold on this championship going into the 500 and the double points haul available. Can he do it?Homes for our Troops: https://www.hfotusa.org/Engage with us on social media!Consider becoming a Patreon supporter at: https://www.patreon.com/turnfourpodcast  Twitter: @turnfourpodcas1Instagram: Turn_Four_Podcastwww.turn4podcast.comYouTube: https://www.youtube.com/channel/UC0KqoM_k5JAOjdJs1LMD9cg

— As a happily married, fifty-five-year-old professional woman, Susan Keller had it all—or thought she did—until the day of her shocking diagnosis with stage 4 Mantle Cell Lymphoma, a rare and aggressive disease. Within minutes of being admitted to the hospital, her beautifully ordinary life disappeared. How would cancer affect her marriage? Facing a possible death sentence, Susan experienced visions so lucid and beautiful that she imagined she was looking into the foyer of death or a magnificent afterlife. Her mind and body melded into all that surrounded her. Bliss replaced fear. Cancer and spirituality were one. But during the darkest moments, Susan questioned the nature of mortality. Does death have the same shape, sound, and feeling for everyone? Did the father she yearned for think of her the moment he died? What would she think of? Would there be regret, celebration, or nothingness? After months of grueling inpatient chemo, she faced another seemingly impossible hurdle. To survive, she needed a bone marrow transplant. But Johnny—her brilliant, off-the-grid brother—was the only possible donor. But he'd vanished decades earlier. Blood Brother is a family saga of curing an incurable cancer and of the enigmatic events that led to finding a man who never wanted to be found. It also explores why he disappeared and delves into what it means to forgive the parents who abused and abandoned them. Susan survived twice: once a violent childhood and secondly a devastating cancer. Blood Brother is a story of life after a bone marrow transplant. It's a moving tale of rebuilding a family, recognizing the unexpectedly stunning gifts of cancer, and of how to embrace a profoundly generous second chance at life. Valeria Teles interviews Susan Keller — The author of “Blood Brother: A Memoir.” Susan Keller enjoyed a 30-year career as an award-winning medical writer. Her poetry won prizes in regional and national contests. She has a degree in Public Health and Immunology from U. C. Berkeley.  This background in science as well as poetry makes the voice in her first book, Blood Brother: A Memoir, both lyric as well as credible.  A frequently fatal lymphoma inspired Susan to write Blood Brother: A Memoir. Articles about her story of hope and survival have been published in: Psychology Today; Conquer: The Patient Voice; two Guideposts Magazines; Patient Power; and several newspapers. She is a monthly blog contributor to Psychology Today and CURE Magazine. Susan is a presenter at Dominican University and at Stanford Cancer Center. All links available upon request. She is currently working on a novel entitled Flask. Susan lives in the Bay Area with her husband, Daniel.  To learn more about Susan Keller and her work, please visit: susankeller.com   — This podcast is a quest for well-being, a quest for a meaningful life through the exploration of fundamental truths, enlightening ideas, insights on physical, mental, and spiritual health. The inspiration is Love. The aspiration is to awaken new ways of thinking that can lead us to a new way of being, being well.  

This is a podcast from our Sunday morning service at Abundant Life Family Church in Dodge City, Kansas. Join us to listen to Dr. Jim Ames, Pastor and founder of Abundant Life Family Church.

Mel Mann is the World's Longest Living Gleevec (Imatinib) & TKI & Kinase Inhibitor Survivor, 27 Year Terminal Leukemia (CML) Survivor; US Army Retired, Educator, Patient Advocate & Consultant. He Published and appeared in articles such as USA Today, Coping With Cancer Magazine, American Association for Cancer Research (AACR), Cancer Today Magazine etc. He also appeared on numerous television & radio shows as a patient advocate and made a nationwide television commercial for the American Cancer Society (ACS). He has participated on panels such as The Atlantic's People vs Cancer series, Hematology Oncology Pharmacy Association (HOPA), WCG, Patient Power etc. Mel Mann actively collaborates on health equity and ethnic diversity issues with groups such as the American Cancer Society's Cancer Action Network (ACSCAN), Society of Integrative Oncology (SIO) etc. He has participated in numerous nationwide bone marrow drives, including the World's Largest, with 10,675 people joining the marrow registry at a single drive and collaborated in marrow donor recruitment for Be The Match, DKMS Marrow, and the Bill Young Marrow Donor organizations. He is the past National Community Outreach Coordinator of Leukemia & Lymphoma Society's (LLS) Myeloma Link program. He has been a Guest Speaker for Cepheid, Churches, Community Organizations, Leukemia & Lymphoma Society, Cancer Support Groups and the US Army. For being a marrow donor, please visit: http://join.bethematch.org/MelMann.

“In us and on us, we have our microbiome, which is more cells - bacterial, viral, and everything - than the number of human cells. And they're our friends. They're like a garden, we've got to plant them properly. We need to be starting to look at those much more, and genomics is going to play a key role.”  In this week's episode of The G word, Chris Wigley is joined by Sally Davies, Master of Trinity College, Cambridge, former Chief Medical Officer and UK Special Envoy on Antimicrobial Resistance. Having spent 20 years working with people with sickle cell disease, she is passionate about reforming healthcare, setting up the National Institute for Health Research and playing a key role in the establishment of Genomics England.   Today, Chris and Sally discuss generation genome, genetic exceptionalism and the value of patient stories. 

Matt Roberts sat down with Antonis Papasolomontos, Director of External Affairs, AbbVie, Rachel Power, Chief Executive, Patients Association and David Pilbury, Lead Physiotherapist & Clinical Specialist Physiotherapist, Pennine MSK Partnership to discuss shared decision making on Episode 17 of NHE's Finger on the Pulse podcast

Grabbed some time with Andrew Schorr from Patient Power. Was great to hear about how he was one of the first cohort of patients to be treated with FCR chemotherapy for CLL, a form of blood cancer, a couple of decades ago. He hadn't expected to survive his Blood Cancer this long, nor to get a second one and be successfully treated for that too. This is a story of hope. And a story of a man convinced that the Universe spared him for a purpose and a mission. As he said doctors better listen to him and his patient friends, or else! Be encouraged. Be inspired to give something back to the Blood Cancer community and to go on learning together. Watch video here https://bloodcanceruncensored.com/super-survivor-andrew-schorr-beat-two-blood-cancers-and-is-still-fighting-for-patients/ --- Send in a voice message: https://anchor.fm/adrian-warnock/message

When we think of the word church what comes to mind? We often think of the Sunday gathering but the New Testament talks more about “who” the church is. In this new series we are looking at what the church could be in the midst of this season and what are some themes of the early church we can learn from. In this message we look at Acts 1. A key virtue of the Early Church is patience but also they are filled with the power of the Holy Spirit to live the life of Jesus. --- Acts 1:1-11 Romans 8:11 Romans 12:12 —  “There are times when the hero has to sit down,” he said later. “At some bridges in life the part of you that always gets it done has to sit down.” David Whyte   God, in dealing with Israel across the centuries, was never in a hurry. God’s mission is unhurried and unstoppable. [In fact] “patience is the very nature of God. Patience is a distinctive sign of the Christian". Alan Krieder   Does anyone have the foggiest idea what sort of power we blithely invoke? Or, as I suspect, does no one believe a word of it? The churches are children playing on the floor with their chemistry sets, mixing up a batch of TNT to kill a Sunday morning. It is madness to wear ladies’ straw hats and velvet hats to church; we should all be wearing crash helmets. Ushers should issue life preservers and signal flares; they should lash us to our pews. For the sleeping god may wake someday and take offense, or the waking god may draw us to where we can never return.” Annie Dillard   The work of the spirit is to impart life, to implant hope, to give liberty, to testify to of christ, to guide us into truth, to teach us all things, comfort the believer and convict the world of sin. DL Moody

Esther Schorr, Co-founder and Chief Operating Officer of Patient Power, discusses her non-linear journey to patient education and Patient Power's mission to empower patients and their loved ones to take control of their healthcare decisions. We delve into the concept of "patient-centricity" in Pharma, the need for improved health and technology literacy among the general population, and how pharmaceutical sponsors can partner with Patient Power to educate patients on their disease and treatment options, in a transparent way.Schedule a meeting with Natalie Yeadon: https://www.meetwithnatalie.comNatalie Yeadon LinkedIn: https://www.linkedin.com/in/natalieyeadon/Impetus Digital Website: https://www.impetusdigital.com/Impetus Digital LinkedIn: https://www.linkedin.com/company/impetus-digital/Impetus Digital Twitter: https://twitter.com/ImpetusadboardsImpetus YouTube: https://www.youtube.com/ImpetushealthcareEsther Schorr: https://www.linkedin.com/in/estherschorr/Patient Power: https://patientpower.info/

In this episode of NST & Things we cover...- Traumatic accident, scar tissue and spastic muscle.- "SI" Joint Dysfunction - mobile joint vs. stable joint- Tilted pelvis or flexion disorder?- Some muscles pull things up, some muscles pull things down. - Emotional patients- Boundaries & the patient/therapist power differential- When should we give more as a therapist? Do we have to?- New patient improvements, being able to reference old charts and importance of educating your patient INSTA @NST_N_THINGS

A couple of years ago, Roi Shternin diagnosed himself with a rare condition. He was the “Patient in Residence” at the Open Innovation in Science Center of the Ludwig Boltzmann Gesellschaft (LBG). In “Research, Patients and the Public”, we want to shine a light on LBG projects in which research opens up to the expertise of multiple stakeholders outside academia.

A quarter century ago, the Cato Institute released a revolutionary book, Patient Power: Solving America's Health Care Crisis, by John C. Goodman and Gerald L. Musgrave. Patient Power introduced the United States to a bold and radical way of thinking about health care. When third parties pay medical bills, Goodman and Musgrave wrote, providers come to view third-party payers as their customers, not the patients. As a result, instead of maximizing patient satisfaction, providers deliver care to maximize their revenue given third-party payment formulas. Instead of falling, costs rise. Third-party payment is the reason patients can't talk to their doctors by phone, email, or Skype. It is why patients don't have Uber-type doctor house calls at night and on weekends. Patient Power showed that if people controlled and managed their own health care dollars, the medical marketplace would change radically—almost overnight. Indeed, Patient Power changed the world. Thanks largely to Goodman and Musgrave's work, more than 20 million people are managing their own health care dollars in health savings accounts. A roughly equal number are managing their medical spending through health reimbursement arrangements. And employers are experimenting with giving individuals complete financial control over everything from hip and knee replacements to blood tests. Come hear the authors of Patient Power and other leading scholars discuss the book's impact on health reform and how its insights can still inform the debate.

A quarter century ago, the Cato Institute released a revolutionary book, Patient Power: Solving America's Health Care Crisis, by John C. Goodman and Gerald L. Musgrave. Patient Power introduced the United States to a bold and radical way of thinking about health care.When third parties pay medical bills, Goodman and Musgrave wrote, providers come to view third-party payers as their customers, not the patients. As a result, instead of maximizing patient satisfaction, providers deliver care to maximize their revenue given third-party payment formulas. Instead of falling, costs rise. Third-party payment is the reason patients can't talk to their doctors by phone, email, or Skype. It is why patients don't have Uber-type doctor house calls at night and on weekends. Patient Power showed that if people controlled and managed their own health care dollars, the medical marketplace would change radically—almost overnight.Indeed, Patient Power changed the world. Thanks largely to Goodman and Musgrave's work, more than 20 million people are managing their own health care dollars in health savings accounts. A roughly equal number are managing their medical spending through health reimbursement arrangements. And employers are experimenting with giving individuals complete financial control over everything from hip and knee replacements to blood tests.Come hear the authors of Patient Power and other leading scholars discuss the book's impact on health reform and how its insights can still inform the debate. See acast.com/privacy for privacy and opt-out information.

Stacey L. Worthy, Esq, is a partner at DCBA Law & Policy, where she counsels members of the health care industry, including nonprofit patient advocacy organizations, treatment programs and providers, recovery residences, urine drug testing laboratories, and pharmaceutical companies. As counsel to the nonprofit Aimed Alliance, Stacey provides legal insights that drive the organization’s education, advocacy, and policy initiatives. Based on her extensive research and analysis of federal and state laws, regulations, and legislation affecting access to quality health care, Stacey authors scholarly articles for publication, drafts model legislation, develops policy positions, and assists with coalition-building efforts of allied organizations focused on advancing common goals. She is also a featured speaker at national conferences and contributes commentary that addresses important issues impacting patients with serious chronic diseases and rare conditions. She earned her Juris Doctorate degree from the George Mason University School of Law and graduated magna cum laude from Boston’s Suffolk University. 02:11 Stacey’s role with Patient Power and what Patient Power does. 02:55 A recent Patient Power case study. 05:57 The problematic situation with investigational treatments and the lag between guidelines and science. 06:46 The insurance catch-22 happening for patients. 08:48 The methods of bureaucracy insurance companies will use to avoid paying for expensive treatments. 13:08 The ideal policy in Stacey’s opinion. 15:35 The patient perspective. 17:50 A preview on a study about physician burnout. 19:48 “The big problem there is that health plans are typically siloed.” 20:47 “It’s one pocketbook.” 21:36 Stacey’s advice to employers. 21:49 “You really do need to look at both sides of the plan.” 22:03 Co-payment accumulators. 27:48 The federal stabilization efforts with the Affordable Care Act. 31:14 The problematic switches health systems are doing with drugs that are deemed interchangeable. 34:06 “Those health decisions ... should remain with the practitioner.”

In this episode, Mason Duchatschek interviews Britt E. Guerrero, the Amazon.com #1 bestselling author of the book Patient Power.They discuss solutions to employee absenteeism and strategies to reduce overtime costs for small businesses who can't afford to offer group health plans.Subscribe to The Mason Duchatschek Show (Video Podcast on iTunes) to discover expert insights and secrets to employee leadership, engagement, retention, selection, diversity, HR, sales and more!http://www.AmoHumanCapital.com Hosted on Acast. See acast.com/privacy for more information.

 Andrew Schorr is a medical journalist who was diagnosed with chronic lymphocytic leukemia (CLL) in 1996 and has remained in remission since then. He is the founder of HealthTalk.com, PatientPower.info and PatientPower.eu. He is board chair of the Patient Empowerment Foundation in Europe. He is also the author of The Web-Savvy Patient: An Insider's Guide to Navigating the Internet When Facing Medical Crisis, which was published in 2011. Andrew is a graduate of UNC-Chapel Hill and holds a master's degree in journalism from Columbia University. 00:00 What a Patient Unit is. 01:30 Patient Engagement from the patient side. 03:15 Defining the Patient and Viewing the Family Unit. 04:20 The under-engaged patient vs. the empowered patient. 06:30 Advice for helping empowered patients. 06:50 “People want to get well.” 07:00 Transparency from every care worker, from receptionist to provider. 07:45 Think like a patient. 11:20 Best practices & common themes that physicians are doing to get patients on track. 13:00 Using your social and digital platforms to improve patient health. 15:50 “Go where the patients are.” 17:00 “You have to be part of the dialogue.” 19:30 Upending the “paternalistic” healthcare model. 22:00 Payers and Patient Engagement. 22:45 The Cost of Care. 26:00 Employers, Payers, Government, and the Cost of Care. 27:45 How organizations can manage costs. 29:45 Honest communication. 30:20 Mail-Order Pharmacies. 32:50 Social Media listening.

A new medical movement in Wales is urging patients to take more control of the decisions about the care and treatment they receive. Called Choosing Wisely, it calls for a more equal doctor-patient relationship, an end to "doctor knows best". Dr Paul Myers, chair of the Academy of Medical Royal Colleges in Wales discusses the initiative with Dr Mark Porter and with Inside Health contributor, Dr Margaret McCartney. A new way of tracking cancer, through the blood, not from a biopsy of the tumour, is exciting oncologists worldwide. A liquid biopsy, a simple blood test, is proving to be a hugely promising development in cancer treatment. Circulating tumour DNA is measured in the blood, giving doctors the chance to target new treatments for the particular type of cancer. Dr Mark Porter talks to one of the pioneers in this field, Dr Nick Turner at The Royal Marsden Hospital and team leader at the Institute of Cancer Research about what liquid biopsies could, in the future, mean for cancer care. Traditional advice to parents has been to delay the introduction of foods like peanuts and eggs when they wean their babies onto solid food, in order to reduce the risk of food allergies later in life. But conventional wisdom has been turned on its head with a new body of evidence suggesting the opposite is true. In a new survey of the latest data, the Director of Imperial College's Paediatric Research Unit, Dr Robert Boyle, tells Mark that the two most common childhood food allergies, to peanuts and eggs, may be prevented by introducing them early. How accurate are parents when they're measuring out liquid medicine for their children? Not at all, according to a new study. Dr Margaret McCartney discusses the findings that 84% of the 2,000 or so volunteer parents made at least one error, and 20% made a big error. Scary stuff. But there's advice on how to avoid giving your sick child the wrong dose.

In this episode of MyPal Dr Amara Nwosu provides an overview of the health secretary's recent speech to the Health Service Journal which outlined the potential role of technology in healthcare. Patient power: threat or opportunity? Health Secretary's speech on the opportunities offered by the shift to a patient-powered, technologically advanced health service. Department of Health and The Rt Hon Jeremy Hunt MP Health Service Journal, Barber-Surgeons‘ Hall, London https://www.gov.uk/government/speeches/patient-power-threat-or-opportunity Smart patients Emma Hill, Lancet Volume 15, No. 2, p140–141, February 2014. http://www.thelancet.com/journals/lanonc/article/PIIS1470-2045(14)70044-0/abstract The Patient Will See You Now: The Future of Medicine is in Your Hands by Eric Topol http://www.amazon.com/The-Patient-Will-See-You/dp/0465054749 Patient reported outcomes http://sites.duke.edu/rethinkingclinicaltrials/patient-reported-outcomes/ Use of an electronic patient-reported outcome measurement system to improve distress management in oncology Palliat Support Care. 2014 Feb; 12(1): 69–73. Sophia K. Smith, Krista Rowe, Amy P. Abernethy http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4066540/ Copyright Dr Amara Nwosu, KingAmi Media 2015. www.amaranwosu.com Music by Bensound www.bensound.com/royalty-free-music

TONIGHT ON THE DR C ROBERT JONES SITUATION REPORT    Quietly, underneath the radar, all of Barack Obama's legacy as President is already crumbling.  By the end of 2017, his promise of fundamental transformation of our nation will be as faded and forlorn. Imagine Obama's furious, “progressive,” fundamental transformation of America succeeded by a fully enacted plan to achieve a balanced federal budget, tax reform providing for lower federal tax rates than under President Reagan, and Obamacare repealed and replaced by Patient Power, free market medicine. Obama is responsible for increasingly polarized and violence-plagued race relations.  As a bi-racial presidential candidate in 2007-08, many naïvely believed that Obama's election would soothe racial antagonisms, and possibly even end racial discord. THIS AND MUCH MORE ON THE DR C ROBERT JONES SITUATION REPORT. 

TONIGHT ON THE DR C ROBERT JONES SITUATION REPORT    Quietly, underneath the radar, all of Barack Obama's legacy as President is already crumbling.  By the end of 2017, his promise of fundamental transformation of our nation will be as faded and forlorn. Imagine Obama's furious, “progressive,” fundamental transformation of America succeeded by a fully enacted plan to achieve a balanced federal budget, tax reform providing for lower federal tax rates than under President Reagan, and Obamacare repealed and replaced by Patient Power, free market medicine. Obama is responsible for increasingly polarized and violence-plagued race relations.  As a bi-racial presidential candidate in 2007-08, many naïvely believed that Obama's election would soothe racial antagonisms, and possibly even end racial discord. THIS AND MUCH MORE ON THE DR C ROBERT JONES SITUATION REPORT. 

LONDON—People are now routinely using the internet to find out about health conditions and to share their own experiences with others with similar diagnoses. This is a radical change in how people experience illness. Health professionals and policy makers have much to learn from patients experience websites such as www.healthtalkonline.org about what is important to patients. This was the clear message in the Cochrane Lecture given at the London School of Hygiene & Tropical Medicine by Dr Sue Ziebland who specialises in Qualitative Health Research at Oxford University, in the UK. She gave the talk as part of the 2012 meeting of the Society for Social Medicine, after which she told Peter Goodwin about her research findings and the implications these have for health systems everywhere.

Char Brooks, author of “Patient Power: Get the HealthCare You Deserve” will share with us today her passion of helping us navigate and communicate with the HealthCare system. Hosts: Christina Souza Ma and special guest Char Brooks Airing on Wednesdays … Continue reading →

Andrew Schorr is a chronic lymphocyt leukemia survivor and founder of patient power, A website designed to assist anyone who has questions concerning their diagnosis, including cancer and other diseases. He is also the author of The Web Savvy Patient. Find out how he used "chutzpah" to call an old friend who works on the TV show The View, and how his book took off from there. Find out more about Andrew and his informative book and website on an all new The Cancer Warrior.

Audio Journal of Global Health Issues reporting from American College of Physicians Annual Meeting: Internal Medicine 2007; San Diego April 19-21 Patient Power Best to Manage Diabetes REFERENCE: ABSTRACT Press Release, San Diego ACP 2007 HILARY SELIGMAN, University of California, San Francisco Doctors can best help their patients with diabetes by taking particular care to put management into the hands of the patients themselves, rather than asking them to slavishly follow the doctors' instructions, conference-goers in San Diego heard. A new ACP guide booklet for diabetes management called "Living with Diabetes", designed to be used by patients in consultation with their doctors, has made concrete improvements in diabetic management, according to results from a study released during the American College of Physicians annual meeting. Peter Goodwin talked with one of the authors of the new initiative, Hilary Seligman.