Podcasts about colitis awareness week

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Best podcasts about colitis awareness week

Latest podcast episodes about colitis awareness week

The Health Advocates
S7, Ep 33- Crohn's and Colitis Awareness Week with Keyla Caba

The Health Advocates

Play Episode Listen Later Dec 5, 2024 19:26


This Crohn's and Colitis Awareness Week we're joined by Keyla Caba, who lives with Crohn's disease and ulcerative colitis, and is the Founder of the nonprofit Connecting Pieces. Keyla shares her patient journey, talks about the common misconceptions people have about inflammatory bowel disease (IBD), and why awareness and community is important. Among the highlights in this episode: 00:58: Keyla shares about her journey of living with IBD for over 12 years, her delayed diagnosis, and her experience as a caregiver to her child with ulcerative colitis 02:32: Keyla explains the challenges of living with an invisible illness and the importance of raising awareness for IBD 03:35: Keyla reflects on the progress in IBD treatments and the vital need for increased visibility and resources for patients 05:09: Keyla describes her early days as a newly diagnosed patient, highlighting the importance of tracking symptoms, finding community support, and effective communication with health care providers 06:11: Zoe Rothblatt, Director of Community Outreach at GHLF, asks Keyla about common misconceptions regarding Crohn's disease and ostomies, sparking a discussion about stigma and myths 07:39: Keyla describes what a good day looks like versus a bad day, emphasizing her gratitude for even small victories 09:33: Keyla dives into how her relationship with food has evolved, including the challenges of managing an ostomy and adapting her diet through trial and error 11:45: Keyla discusses how she stays positive during flare-ups and the role of self-care, journaling, and social media in managing her mental health 13:16: Keyla shares how her personal experiences led her to advocate for better health care access and improved insurance policies for IBD patients 14:46: Keyla details her advocacy work, including lobbying legislators to improve insurance coverage for ostomy supplies and raising awareness through state and federal initiatives 17:17: Keyla introduces her nonprofit, Connecting Pieces, and its services, including free ostomy supplies and virtual support programs for patients and caregivers. To learn more about Connecting Pieces, visit: https://www.connectingpcs.org/ 18:11: Keyla's message of hope encourages listeners to reach out to the IBD community and embrace available support Contact Our Hosts Steven Newmark, Chief of Policy at GHLF: snewmark@ghlf.org Zoe Rothblatt, Director of Community Outreach at GHLF: zrothblatt@ghlf.org A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF. We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to podcasts@ghlf.org Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

Proactive - Interviews for investors
Immunic CSO discusses breaking the IBD stigma to mark Crohn's and Colitis Awareness Week

Proactive - Interviews for investors

Play Episode Listen Later Dec 2, 2024 6:28


Immunic Inc chief scientific officer Hella Kohlhof talked with Proactive's Stephen Gunnion about the significance of Crohn's and Colitis Awareness Week. She outlined the challenges of inflammatory bowel disease (IBD), a chronic and serious condition affecting the digestive tract. "It's not just a regular stomach issue; it's a lifelong disease," she explained, emphasizing the debilitating symptoms such as abdominal pain, fatigue, and weight loss. Kohlhof discussed Immunic's innovative research projects targeting IBD. The company's IMU-856 aims to restore the gut lining's functionality through epigenetic modulation, while IMU-381 focuses on anti-inflammatory properties, addressing different aspects of gastrointestinal health. She encouraged viewers to explore resources provided by advocacy groups like the Crohn's and Colitis Foundation and to talk openly about IBD, helping to reduce the stigma and promote awareness. "Please speak about the disease and inform others to see a doctor if they have symptoms," Kohlhof urged. Stay tuned to Proactive's YouTube channel for more interviews with key figures in science and business. Don't forget to like this video, subscribe to our channel, and turn on notifications for the latest updates. #ibdawareness #CrohnsDisease #UlcerativeColitis #InflammatoryBowelDisease #GutHealth #ImmunicInc #MedicalResearch #HealthAwareness #Epigenetics #ProactiveInterviews #ProactiveInvestors #invest #investing #investment #investor #stockmarket #stocks #stock #stockmarketnews

Larry Richert and John Shumway
Crohn's & Colitis Awareness Week

Larry Richert and John Shumway

Play Episode Listen Later Dec 6, 2023 4:01


Dr. Sandra El-Hachem, an  AHN gastroenterologist and director of the AHN Center Inflammatory Bowel Disease joins Larry and Marty to discuss  Crohn's & Colitis Awareness Week.

crohn ahn colitis awareness week
Ulcerative Colitis, Motherhood & Me
Health Accountability: Good Changes but little anxious episodes

Ulcerative Colitis, Motherhood & Me

Play Episode Listen Later Dec 2, 2023 52:48


This week is Crohns and Colitis Awareness Week in the UK (I think!) and I share a brief story of my journey with IBD. I am also aware of little "anxious espisodes" that have occurred and why my Irrational Brain has been pretty annoying at times! I have also enlisted the help of a coach this week to make me more accountable for my overall health and hopefully set me in good stead ahead of my summer holiday. As always LISTENER DISCRETION ADVISED - content contains themes of mental health, ulcerative colitis symptoms, anxiety episodes.

The Health Advocates
S6, Ep 28- Crohn's and Colitis Awareness Week with Pharmacist Mallory Schmoll

The Health Advocates

Play Episode Listen Later Nov 30, 2023 22:36


It's Crohn's and Colitis Awareness Week and we are joined by pharmacist Mallory Schmoll to learn all about inflammatory bowel disease (IBD). Mallory explains what IBD is, how it differs from irritable bowel syndromes (IBS), and the treatments available to treat this disease. We also discuss what achieving remission means, the different types of remission, and questions to ask your doctor or pharmacist as you develop a treatment plan. This episode was made possible with support from Walgreens.  Among the highlights in this episode: 02:21: Mallory provides an overview of IBD, distinguishing it from IBS, and explains the characteristics of Crohn's disease and ulcerative colitis, including their autoimmune nature 04:47: Zoe discusses the importance of awareness weeks like Crohn's and Colitis Awareness Week, sharing her personal experience with Crohn's disease and emphasizing the community aspect in dealing with gastrointestinal (GI) conditions 06:26: Mallory addresses the challenges in diagnosing and treating IBD, including the time it takes to achieve an accurate diagnosis, individualized treatment plans, and the importance of achieving and maintaining remission 09:45: Zoe inquires about the trial and error phases in IBD treatment 12:14: Mallory outlines the various available treatment options for Crohn's and colitis, and the role of insurance and pharmacists in navigating these treatments 14:39: Mallory discusses biosimilars, their clinical equivalence to brand-name medications, and their potential to save costs for the health system and patients 16:24: Mallory highlights the role of supplements and vitamins in IBD treatment, emphasizing the importance of consulting health care providers before starting any new supplements to avoid interactions with prescription medications 17:22: Zoe and Mallory discuss the questions patients should ask their doctors about medications, emphasizing the importance of understanding risks and benefits to feel confident in managing the condition 18:39: Mallory explains the role of pharmacists in assisting patients with medication-related questions, insurance navigation, and financial resources for copay assistance, encouraging them to utilize pharmacists as a resource and advocate 21:09 Mallory discusses how effective medication management can enhance the quality of life for patients with IBD Contact Our Hosts Steven Newmark, Director of Policy at GHLF: snewmark@ghlf.org Zoe Rothblatt, Associate Director, Community Outreach at GHLF: zrothblatt@ghlf.org A podcast episode produced by Ben Blanc, Manager of Programs & Special Projects at GHLF. We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to podcasts@ghlf.org Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

Word On Health (Podcast)
Word On Health (Podcast)

Word On Health (Podcast)

Play Episode Listen Later Nov 30, 2023 17:49


In this edition of our popular podcast, Paul Pennington catches up with Professor Matthew Bown, British Heart Foundation Professor of Vascular Surgery at the University of Leicester to talk about abdominal aortic aneurysm research.  Mental health campaigner, Mohammed Sbahuddin Rafiuddin talks to Paul about ‘Mohammed's Mental Health Campaign'. Professor Simak Ali from Imperial College London joins Paul to highlight a new research initiative, funded by Breast Cancer Now, into breast cancer treatment resistance and, in the final interview, timed to coincide with Crohns and Colitis Awareness Week, Paul speaks to Sarah Sleet, CEO of the charity, Crohns & Colitis UK, about their push to improve the speed of diagnosis for IBD patients.  

Ali on the Run Show
594. Ask Ali, Crohn's & Colitis Awareness Week Edition, Part II

Ali on the Run Show

Play Episode Listen Later Dec 9, 2022 64:49


"Those were the darkest and hardest days of my life, and the biggest thing that I would do differently is I would ask for help. Instead, I hid, I locked that apartment door, and I wouldn't let anyone see me." Last week, in honor of Crohn's and Colitis Awareness Week, I talked about living with these diseases for the past 30 years. (Listen to that episode here.) Now, I'm wrapping things up by talking about running with Crohn's disease, navigating the emotional and mental sides of this disease (trigger warning here: lots of talk of depression and being in a really low, dark place), and how to support the people in your life living with a chronic illness. Plus, my hotel lobby hack (that rarely works, but I always try!), my fear of trail cams and small-town Facebook groups, and so much more. SPONSORS:  goodr: Click here for free shipping on your next goodr order! Publix Atlanta Marathon Weekend: Register today for the marathon, half marathon, 5K, and youth races, taking place February 25–26, 2023. Use code ONTHERUN for 10% off your race registration! Follow Ali: Instagram @aliontherun1 Join the Facebook group Twitter @aliontherun1 Support on Patreon Subscribe to the newsletter Blog Strava SUPPORT the Ali on the Run Show! If you're enjoying the show, please subscribe and leave a rating and review on Apple Podcasts. Spread the run love. And if you liked this episode, share it with your friends!

Ali on the Run Show
592. Ask Ali, Crohn's & Colitis Awareness Week Edition

Ali on the Run Show

Play Episode Listen Later Dec 2, 2022 57:35


"It's like someone has a hand mixer — what you would use to make brownies — on low at all times. And then without warning, they turn it up to high. That's what it feels like in my stomach." This year marks 30 years of living with Crohn's disease. I was diagnosed with this inflammatory bowel disease (sexy stuff!) when I was 7, and in my twenties, that diagnosis was upgraded to Crohn's-colitis. (Overachiever alert!) Today, in honor of Crohn's & Colitis Awareness Week (December 1–7), I'm talking all about my history with IBD and about living with a chronic illness. (Reminder: I'm not a doctor! This is all about my personal, lived experience with Crohn's disease and ulcerative colitis.) SPONSORS:  goodr. Click here for free shipping on your next goodr order! St. Jude Rock ‘n' Roll Nashville: Use code ONTHERUN10 for $10 off your registration for this year's races, taking place April 22–23. Follow Ali: Instagram @aliontherun1 Join the Facebook group Twitter @aliontherun1 Support on Patreon Blog Strava SUPPORT the Ali on the Run Show! If you're enjoying the show, please subscribe and leave a rating and review on Apple Podcasts. Spread the run love. And if you liked this episode, share it with your friends!

Pop To The Loo
“An overshare??!! We are well past that!” – A cuppa with Cass and Sarah

Pop To The Loo

Play Episode Listen Later Dec 16, 2021 37:54


Welcome back to the tenth episode of Pop To The Loo with Cass and Sarah. During this episode the girls sit down with a cuppa, reminiscing and reflecting over Crohn's and Colitis Awareness Week, which took place from the 1st-7th of December 2021.During this episode Cass and Sarah discuss the following:a mental health and gut health check in, involving negronis, can you believe it?!the statistics around fatigue and IBD,the impact IBD can have on sight and overall eye health,the impact IBD can have on the menstrual cycle,the price of tampons!!! Cass is still complaining about this…the impact IBD can have on joint pain,the impact IBD can have on skin,the impact IBD can have on bone health,the importance of having your smears, testicle checks, dental checks, and eye tests carried out (Cass's reminder!)Cass and Sarah's favourite products to support with their IBD symptoms which impact the entire body.Products discussed in this week's episode can be found on the Pop To The Loo Blog.Join Cass and Sarah in discussing the aftermath of Crohn's and Colitis Awareness Week. Due to the incredible awareness that the IBD community raised this week regarding the non-gastro symptoms of IBD that are often forgotten about, Cass and Sarah sat down to see whether any of them have impacted them. As always, Cass and Sarah discuss their own personal experiences in a raw, transparent and hilarious manner, emphasising that this is certainly not the podcast for certified medical advice and guidance! Cass and Sarah share their recommendations that have helped them with each symptom, which do not necessarily involve their stomach area.For anyone who wants to hysterically laugh, not listen to anything politically correct, empathise and relate to two professional women who continue to work far too many hours, study when they have no free time to do so, date all the wrong and right men, love a glass of vino and have so many poo stories that will ensure Cass, in particular, will never date again, make sure you tune in.How to tune in:1) Apple Podcasts2) Google Podcasts3) Spotify4) Amazon MusicAnd for behind the scenes footage follow @Poptotheloopodcast on Instagram !Do not forget to email Cass and Sarah on hello@poptotheloo.com for any advice, tips or questions of interest. Should you like any certain topics to be discussed, email them across. Cass and Sarah would love to have as many people as possible on the show talking about their experiences so should you like to share your story let them know! Creating laughter, acceptance and a community during such a difficult time for many is the Pop To The Loo's fundamental drive. Join the women on their journey!

The Sherman & Tingle Show
Crohn's & Colitis Awareness Week

The Sherman & Tingle Show

Play Episode Listen Later Dec 2, 2021 4:03


The Sherman & Tingle Show - WDRV-FM Chicago

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It Takes Guts
ITG x Crohn‘s & Colitis UK for Awareness Week 2021 with Darren & Andy

It Takes Guts

Play Episode Listen Later Dec 1, 2021 44:04


It's Crohn's & Colitis Awareness Week 2021 and It Takes Guts and Crohn's & Colitis UK have teamed up to bring you this very special episode to help spread awareness. Darren sat down with Andy Smith to have another discussion about all things Crohn's & Colitis. We talk about dealing with the mental side of these conditions and Andy offers Darren some tips on being a new dad and managing IBD. As always, an embarrassing story and lots of laughs too. Thanks to Crohn's & Colitis UK for setting this up and thanks to Andy for his time as always Remember that your story matters – you can head to https://www.crohnsandcolitis.org.uk/get-involved/awareness-week-2021 to see everything that's happening across the week, and share your story with the Crohn's & Colitis UK community at https://www.crohnsandcolitis.org.uk/get-involved/share-your-story

Off The Crutch Podcast
Crohn's Disease with Kaylin Morford

Off The Crutch Podcast

Play Episode Listen Later Dec 14, 2020 20:33


Did you know the beginning of December is Crohn's & Colitis Awareness Week? Crohn's Disease is a disability that does not get as much emphasis because it is an invisible disability.This week I have another APU alumnus, Kaylin Morford. At seven years old, Kaylin Morford was diagnosed with Crohn’s disease. She has now lived this disease for the past 18 years seeing countless hospital beds, medications, and operation rooms. Despite the ups and downs of being chronically ill, she finds great purpose and joy in sharing her story of living with a chronic illness and invisible disability. During her time as an undergraduate student, she was the co-president and co-founder of Azusa Pacific University’s (APU) club, STRONG, an on-campus support group for students with disabilities to find support, understanding, and advocacy for more resources on campus. Now working in the Accessibility and Disability Resources office at APU, she is gifted with the opportunity to continue advocating for people with chronic illnesses and disabilities on the campus. CCFA: https://www.crohnscolitisfoundation.orgCamp Go Beyond: https://www.campgobeyond.orgFor more information about STRONG: https://www.apu.edu/articles/we-are-strong-living-with-chronic-illness-in-college/United Ostomy Associations of America, Inc.: https://www.ostomy.orgFor more information about Crohn’s and colitis: https://www.crohnsandcolitis.comFollow me @offthecrutch on Twitter and FB and @offthecrutchpod on IG!

About IBD
The Streamers From Gaming4Guts

About IBD

Play Episode Listen Later Nov 30, 2020 30:11


Crohn's and Colitis Awareness Week is full of events that aim to raise funds and understanding of inflammatory bowel disease (IBD). One of these is Gaming4Guts, a gaming marathon to raise funds for the Crohn's & Colitis Foundation. Participants stream over Twitch during the 72-hour event but they have also formed a community, keeping in contact year-round on the Gaming4Guts Discord server. Kenzie, John, and Mark from Gaming4Guts sat down with me to talk about their personal connections to IBD, the evolution of Gaming4Guts, and what their goals are this year. Donate to Gaming4Guts on Tiltify. Concepts discussed in this episode: Indeterminate Colitis Pott Puffy Tumor Exclusive Enteral Nutrition (EEN) Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram. Find Gaming4Guts on Twitch, Discord, Facebook, and Twitter. Credits: Mix and sound design is by Mac Cooney. Theme music, "IBD Dance Party,” is from ©Cooney Studio.

Professor of Nothing
002. Meditation (Michael Popowits)

Professor of Nothing

Play Episode Listen Later Dec 2, 2019 46:06


Michael Popowits has been meditating for over 20 years and is a Senior Lecturer and Director of Student Professional Development at the University level. Also, it’s “Crohn’s and Colitis Awareness Week” and I talk about how my Thanksgiving weekend found its way into the pool.

About IBD
Summer of Activism: Connecting the Numbers to a Story

About IBD

Play Episode Listen Later Aug 26, 2019 16:25


In the final episode of my Summer of Activism Series, I asked Brooke Abbott of The Crazy Creole Mommy Chronicles to help us better understand Congressional Briefings. During Crohn’s and Colitis Awareness Week, she spoke at a briefing about IBD and minority health. It was an opportunity to bring awareness to this little-discussed factor of IBD and it presented some challenges and opportunities. Learn more about Congressional Briefings, how they are an important tool for advocacy groups, and how they have an impact on public policy.   See video of the Congressional Briefing on IBD & Population Health: https://www.facebook.com/ccfafb/videos/452493261950841/   Find Brooke Abbott of The Crazy Creole Mommy Chronicles at: Blog: https://crazycreolemommy.com/ Facebook: https://www.facebook.com/CrazyCreoleMama Twitter: https://twitter.com/CrzyCreoleMommy/ Instagram: https://www.instagram.com/crazycreolemama/   Find Amber J Tresca of About IBD at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutIBD/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/   Credits: Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney "About IBD with Amber Tresca" ©Cooney Studio http://cooneystudio.com/

blog numbers connecting disease policy advocacy activism ibd crohns verywell lawmaking congressional briefing colitis awareness week jpouch brooke abbott
Ali on the Run Show
30. My Crohn's Disease Story

Ali on the Run Show

Play Episode Listen Later May 23, 2017 21:23


I was diagnosed with Crohn’s disease when I was 7 years old. It was a scary, confusing time in my life, and while I’d love to say I’ve figured it all out since then, the truth is that this disease constantly keeps me on my toes. I’m someone who loves to live life according to plan, but living with a chronic, incurable illness makes that pretty tough — and has forced me to adjust to a life of uncertainty. I’m going through a Crohn’s flare right now (boo!), so on this episode I’m sharing exactly what that feels like, why I think it happens, and why I keep running — bathroom stops and all. (There’s a lot of bathroom talk in this one. Get excited!) Stuff I Mention on this Episode: Episode 2 of the Ali on the Run Show: Being Married to Someone With Crohn’s Disease: http://www.aliontherunblog.com/2017/03/01/episode-2-brian-cristiano-married-someone-crohns-disease/ Crohn’s & Colitis Awareness Week: http://www.aliontherunblog.com/2016/12/01/crohns-colitis-awareness-week/ A Plea From a Girl With Crohn’s: Please Let Me Use Your Bathroom: http://www.aliontherunblog.com/2016/12/02/plea-girl-crohns-please-let-use-bathroom/ What Your Friends With Crohn's Disease & Ulcerative Colitis Want You to Know: http://www.aliontherunblog.com/2016/12/12/friends-crohns-disease-ulcerative-colitis-want-know/ Things That Make Having Crohn's Easier (And a Few Things That Make It Worse): http://www.aliontherunblog.com/2016/10/13/things-make-crohns-easier-things-make-worse/ What to Know Before Enrolling in a Clinical Trial: http://www.aliontherunblog.com/2015/01/16/a-crohns-update-things-to-know-about-enrolling-in-a-clinical-trial/ When the Person You Love Has Crohn’s Disease: http://www.aliontherunblog.com/2015/12/02/when-the-person-you-love-has-crohns-disease-a-guest-post-by-brian/ When Your Kid Has Crohn’s: http://www.aliontherunblog.com/2015/12/03/when-your-kid-has-crohns-a-guest-post-from-my-dad/ The Mental & Emotional Side of Crohn’s Disease: http://www.aliontherunblog.com/2015/12/04/the-mental-emotional-side-of-crohns-disease/ Life After a Clinical Trial: http://www.aliontherunblog.com/2016/04/26/a-crohns-update/ Running With Crohn’s Disease: http://www.aliontherunblog.com/2016/09/09/running-crohns-disease/ What Crohn’s Disease Feels Like: http://www.aliontherunblog.com/2016/10/03/crohns-disease-feels-like/ Follow Ali: Instagram @aliontherun1: https://www.instagram.com/aliontherun1 Twitter @aliontherun1: https://twitter.com/aliontherun1 Facebook: https://www.facebook.com/aliontherun/ Blog: http://www.aliontherunblog.com/ Strava: https://www.strava.com/athletes/13333410 Thank you for listening to and supporting the Ali on the Run Show! If you’re enjoying the show, please subscribe and leave a rating and review on iTunes. Spread the run love!

IBD Round Table Discussion ( Video ) – The Crohn's Colitis Effect

It’s Crohn’s and Colitis Awareness Week in the United States and we couldn’t think of a better way to bring IBD Awareness than having a very special IBD Round Table episode. We talk about the differences between Crohn’s Disease and Ulcerative Colitis, Will IBD ever be a “household” name, The emotional and mental health issues […] The post SPECIAL – IBD Awareness Week 2013 appeared first on The Crohn's Colitis Effect.