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Host Dr. Narjust Florez engages with three leading lung cancer patient advocates on the importance of patient advocacy groups, how these were formed, challenges when managing large patient advocacy groups and the future of patient advocacy in lung cancer. Janet Freeman-Daily is a cancer patient research advocate and activist who translates the experience and science of cancer for others. She was diagnosed with advanced lung cancer in 2011 and metastatic ROS1+ lung cancer in 2012. She collaborates, writes, and speaks with cancer organizations both internationally and within the USA, and blogs at Gray Connections. Seamus Cotter is from Ireland and was diagnosed with stage IV NSCLC lung cancer in June 2016 and has shared his experiences with immunotherapy on many global platforms. Since his diagnosis, Seamus has been involved in drug development and the improvement of clinical trials in lung cancer. He is deeply involved in the Irish Lung Cancer Community and is also a Patient Consultant on the lung group in Cancer Trials Ireland. Terri Conneran is one of the founders of the non-profit group “KRAS Kickers.” She was diagnosed with stage IIIa KRAS + lung cancer and has experienced separate recurrences and has persevered through multiple treatments and has dedicated her time to patient advocacy. Terri has shared her story on national and international platforms and created a community beyond lung cancer for all patients with KRAS-driven cancers.
Janet is a very active patient advocate in the Lung Cancer Community and also a Sleep Apnea Patient. She joins Marc Ostrick to discuss the overlapping needs of these communities and shares insight into how Patient Advocacy can be improved and expanded.This panel livestream and many others can be viewed on YouTube, Facebook as well as sleepapnea.org.If you have questions or comments about this (or any episode) we'd like to hear from you. You can reach us at: stories@sleepapnea.org.AWAKE:The Sleep Apnea Podcast, is (usually) presented on Thursdays by sleepapnea.org, the American Sleep Apnea Association.The podcast is available through Apple Podcasts, Spotify or wherever you get your podcasts, including our podcast archive where every episode is available to stream right from your browser. It is the mission of the American Sleep Apnea Association to improve the lives of sleep apnea patients. We accomplish this mission through education, services, peer-support, research, and advocacy.Sleepapnea.org depends upon donations from people like you to continue its work. You can help! Making a tax-deductible donation through our secure server is fast and easy. When we receive your donation, we will mail you a written acknowledgment for tax purposes. Click here to contribute. Thank you for your support!Theme Music: Deliberate Thought by Kevin MacLeodLink: https://incompetech.filmmusic.io/song/3635-deliberate-thoughtLicense: http://creativecommons.org/licenses/by/4.0/If you, or a loved one has sleep apnea or questions about sleep apnea, go to sleepapnea.org for more information. Support the show (https://www.sleepapnea.org/donations/please-donate-to-asaa/)Support the show (https://www.sleepapnea.org/donations/please-donate-to-asaa/)Support the show (https://www.sleepapnea.org/donations/please-donate-to-asaa/)
In this episode, NCCS CEO Shelley Fuld Nasso talks to cancer survivorship advocates Janet Freeman-Daily, Sheila McGlown, and Kelly Shanahan about living with stage IV cancer and continuing their advocacy during a pandemic. Janet Freeman-Daily is a non-small cell lung cancer survivor, a former aerospace engineer and technical translator who writes and lectures about the cancer experience, and collaborates with with scientists and researchers. She is a moderator of the #LCSM lung cancer community on Twitter and you can follow her @JFreemanDaily. https://lcsmchat.com/ Sheila McGlown is a mother, wife, 25-year veteran of the United States Air Force, metastatic breast cancer (MBC) patient and advocate. Read her story here: https://www.storyhalftold.com/meet-sheila-mcglown Kelly Shanahan, MD is a metastatic patient advocate, a board member of the metastatic breast cancer awareness organization METAvivor, and a former OB/GYN. She is an avid tweeter, you can follow her @stage4kelly. Find COVID-19 and Cancer resources: https://www.canceradvocacy.org/covidresources/
The newest episode of Lung Cancer Considered, the IASLC's official podcast program, features patient advocates and lung cancer researchers on what patients need to know about lung cancer research in the era of COVID-19. This episode features a conversation between Janet Freeman-Daily, writer, lung cancer patient, advocate and Twitter chat moderator of the Lung Cancer Social Media chat (#LCSMchat); Jill Feldman, lung cancer advocate and patient; Dr. Alice Berger, assistant professor of human biology at the Fred Hutchinson Cancer Research Center; Dr. Christine Lovly, associate professor of medicine, division of Hematology and Oncology and Ingram Associate Professor of Cancer Research at Vanderbilt University Medical Center; Dr. Brendon Stiles, associate professor of cardiothoracic surgery at Weill Cornell Medical College, Cornell University, and the associate attending cardiothoracic surgeon at New York Presbyterian Hospital; Dr. Amy Moore has experience as a cancer researcher as director of science and research at the GO2 Foundation for Lung Cancer; Dr Upal Basu Roy also has experience as a cancer researcher as vice president of research at LUNGevity Foundation; and Dr Jan Baranski, vice president of scientific and patient programs for the Lung Cancer Research Foundation.
Cancer clinical trials can be a lung cancer patient's best option for accessing the most promising new treatments. It's important to understand how clinical trials work and how to talk to your doctor about which trial might be a good fit. In this episode of the Hope With Answers: Living With Lung Cancer podcast, we talk to a veteran of four lung cancer clinical trials (and the trials of online dating!) Linnea Olson, lung cancer advocates and great friends Jill Feldman, Ivy Elkins, and Lysa Buonanno about how they incorporate advocacy into their busy lives. Plus, get more detail on what to expect in a clinical trial from advocate Janet Freeman-Daily and lung cancer expert Dr. Ross Camidge of the University of Colorado Hospital.Guests Linnea Olson, Lung cancer patient and advocateLung cancer advocates Jill Feldman, Ivy Elkins, & Lysa BuonannoDr. Ross Camidge, of the University of Colorado Hospital and lung cancer advocate Janet Freeman-DailyResources:Information on clinical trialsHope With Answers videos about clinical trialsEpisode 06 Show NotesLCFA is a nonprofit dedicated to improving the survivorship of lung cancer patients by funding lung cancer research. Visit lcfamerica.org.
This episode features Janet Freeman- Daily, writer, lung cancer patient, advocate and Twitter chat moderator of the Lung Cancer Social Media chat (#LCSMchat), she is joined by Dr. Amy Moore, Director of Science and Research at the Go2 Foundation, Dr. Upal Basu Roy, Vice President of Research at LUNGevity Foundation, and Dr. Lecia Sequist, Director of Center for Innovation and Early Cancer Detection at Massachusetts General Hospital and the Landry Family Associate Professor of Medicine at Harvard Medical School. Together they discuss the impact of the COVID-19 epidemic on lung cancer patients and healthcare providers.
This episode features Janet Freeman- Daily, writer, lung cancer patient, advocate and Twitter chat moderator of the Lung Cancer Social Media chat (#LCSMchat), she is joined by Dr. Paul Bunn, a distinguished professor and Dudley Endowed Chair at the University of Colorado Comprehensive Cancer Center and IASLC Past President and Past CEO; as well as Dr. Suresh Ramalingam, Roberto Goizueta Chair in Cancer Research, Winship Cancer Institute of Emory University. Together they discuss the upcoming IASLC 2020 Lung Cancer Targeted Therapies meeting in Santa Monica.
Lung cancer survivors Montessa Lee and Janet Freeman Daily join Dr. Jack West to discuss their stories coping with lung cancer, becoming patient advocates and what advice they have for lung cancer patients.
November is Lung Cancer Awareness month and we speak with lung cancer survivor and advocate Janet Freeman-Daily. Lung Cancer kills more than the next three deadly cancers combined...more than colo-rectal, breast, and pancreatic cancers. Never a smoker, Janet tells her story of lung cancer diagnoses and treatment. There are new breakthroughs in identifying lung cancer types as well as treatments and with more research, much more can be done. Lots of resources are online to learn more about Lung Cancer: www.lcfamerica.org www.lungevity.org www.go2foundation.org
GRACE is happy to present the 8th in our series ASCO 2016 Lung Cancer Roundtable, Highlights and New Approaches in Lung Cancer. Featuring Jack West, MD, Janet Freeman-Daily, Everett Vokes, MD, and Suresh Ramalingam, MD, this roundtable discussion, moderated by Dr. West, highlights the newest and most intriguing discussions from ASCO 2016. Drs. West, Vokes and Ramalingam, along with patient advocate Janet Freeman-Daily, discuss new trials of targeting therapies used to treat leptomeningeal carcinomatosis.
GRACE is happy to present the 8th in our series ASCO 2016 Lung Cancer Roundtable, Highlights and New Approaches in Lung Cancer. Featuring Jack West, MD, Janet Freeman-Daily, Everett Vokes, MD, and Suresh Ramalingam, MD, this roundtable discussion, moderated by Dr. West, highlights the newest and most intriguing discussions from ASCO 2016. Drs. West, Vokes and Ramalingam, along with patient advocate Janet Freeman-Daily, discuss promising early results for treatments targeting new mutations.
GRACE is happy to present the 8th in our series ASCO 2016 Lung Cancer Roundtable, Highlights and New Approaches in Lung Cancer. Featuring Jack West, MD, Janet Freeman-Daily, Everett Vokes, MD, and Suresh Ramalingam, MD, this roundtable discussion, moderated by Dr. West, highlights the newest and most intriguing discussions from ASCO 2016. Drs. West, Vokes and Ramalingam, along with patient advocate Janet Freeman-Daily, discuss new trials of targeting therapies used to treat leptomeningeal carcinomatosis.
GRACE is happy to present the 8th in our series ASCO 2016 Lung Cancer Roundtable, Highlights and New Approaches in Lung Cancer. Featuring Jack West, MD, Janet Freeman-Daily, Everett Vokes, MD, and Suresh Ramalingam, MD, this roundtable discussion, moderated by Dr. West, highlights the newest and most intriguing discussions from ASCO 2016. Drs. West, Vokes and Ramalingam, along with patient advocate Janet Freeman-Daily, discuss promising early results for treatments targeting new mutations.
GRACE is happy to present the 8th in our series ASCO 2016 Lung Cancer Roundtable, Highlights and New Approaches in Lung Cancer. Featuring Jack West, MD, Janet Freeman-Daily, Everett Vokes, MD, and Suresh Ramalingam, MD, this roundtable discussion, moderated by Dr. West, highlights the newest and most intriguing discussions from ASCO 2016. Drs. West, Vokes and Ramalingam, along with patient advocate Janet Freeman-Daily, discuss new trials of targeting therapies used to treat leptomeningeal carcinomatosis.
GRACE is happy to present the 8th in our series ASCO 2016 Lung Cancer Roundtable, Highlights and New Approaches in Lung Cancer. Featuring Jack West, MD, Janet Freeman-Daily, Everett Vokes, MD, and Suresh Ramalingam, MD, this roundtable discussion, moderated by Dr. West, highlights the newest and most intriguing discussions from ASCO 2016. Drs. West, Vokes and Ramalingam, along with patient advocate Janet Freeman-Daily, discuss promising early results for treatments targeting new mutations.
GRACE is happy to present the 6th in our series ASCO 2016 Lung Cancer Roundtable, Highlights and New Approaches in Lung Cancer. Featuring Jack West, MD, Janet Freeman-Daily, Everett Vokes, MD, and Suresh Ramalingam, MD, this roundtable discussion, moderated by Dr. West, highlights the newest and most intriguing discussions from ASCO 2016. Drs. West, Vokes and Ramalingam, along with patient advocate Janet Freeman-Daily, discuss Immuno-oncology developments - combinations and use as first-Line therapy.
GRACE is happy to present the 6th in our series ASCO 2016 Lung Cancer Roundtable, Highlights and New Approaches in Lung Cancer. Featuring Jack West, MD, Janet Freeman-Daily, Everett Vokes, MD, and Suresh Ramalingam, MD, this roundtable discussion, moderated by Dr. West, highlights the newest and most intriguing discussions from ASCO 2016. Drs. West, Vokes and Ramalingam, along with patient advocate Janet Freeman-Daily, discuss Immuno-oncology developments - combinations and use as first-Line therapy.
GRACE is happy to present the 6th in our series ASCO 2016 Lung Cancer Roundtable, Highlights and New Approaches in Lung Cancer. Featuring Jack West, MD, Janet Freeman-Daily, Everett Vokes, MD, and Suresh Ramalingam, MD, this roundtable discussion, moderated by Dr. West, highlights the newest and most intriguing discussions from ASCO 2016. Drs. West, Vokes and Ramalingam, along with patient advocate Janet Freeman-Daily, discuss Immuno-oncology developments - combinations and use as first-Line therapy.
GRACE is happy to present the 5th in our series ASCO 2016 Lung Cancer Roundtable, Highlights and New Approaches in Lung Cancer. Featuring Jack West, MD, Janet Freeman-Daily, Everett Vokes, MD, and Suresh Ramalingam, MD, this roundtable discussion, moderated by Dr. West, highlights the newest and most intriguing discussions from ASCO 2016. Drs. West, Vokes and Ramalingam, along with patient advocate Janet Freeman-Daily, discuss the J-Alex trial and whether Alecensa should replace Xalkori as First-Line ALK Therapy.
GRACE is happy to present the 6th video in our series ASCO 2016 Lung Cancer Roundtable, Highlights and New Approaches in Lung Cancer. Featuring Jack West, MD, Janet Freeman-Daily, Everett Vokes, MD, and Suresh Ramalingam, MD, this roundtable discussion, moderated by Dr. West, highlights the newest and most intriguing discussions from ASCO 2016. Drs. West, Vokes and Ramalingam, along with patient advocate Janet Freeman-Daily, discuss whether current evidence supports favoring proton beam radiation.
GRACE is happy to present the 5th in our series ASCO 2016 Lung Cancer Roundtable, Highlights and New Approaches in Lung Cancer. Featuring Jack West, MD, Janet Freeman-Daily, Everett Vokes, MD, and Suresh Ramalingam, MD, this roundtable discussion, moderated by Dr. West, highlights the newest and most intriguing discussions from ASCO 2016. Drs. West, Vokes and Ramalingam, along with patient advocate Janet Freeman-Daily, discuss the J-Alex trial and whether Alecensa should replace Xalkori as First-Line ALK Therapy.
GRACE is happy to present the 6th video in our series ASCO 2016 Lung Cancer Roundtable, Highlights and New Approaches in Lung Cancer. Featuring Jack West, MD, Janet Freeman-Daily, Everett Vokes, MD, and Suresh Ramalingam, MD, this roundtable discussion, moderated by Dr. West, highlights the newest and most intriguing discussions from ASCO 2016. Drs. West, Vokes and Ramalingam, along with patient advocate Janet Freeman-Daily, discuss whether current evidence supports favoring proton beam radiation.
GRACE is happy to present the 6th video in our series ASCO 2016 Lung Cancer Roundtable, Highlights and New Approaches in Lung Cancer. Featuring Jack West, MD, Janet Freeman-Daily, Everett Vokes, MD, and Suresh Ramalingam, MD, this roundtable discussion, moderated by Dr. West, highlights the newest and most intriguing discussions from ASCO 2016. Drs. West, Vokes and Ramalingam, along with patient advocate Janet Freeman-Daily, discuss whether current evidence supports favoring proton beam radiation.
GRACE is happy to present the 5th in our series ASCO 2016 Lung Cancer Roundtable, Highlights and New Approaches in Lung Cancer. Featuring Jack West, MD, Janet Freeman-Daily, Everett Vokes, MD, and Suresh Ramalingam, MD, this roundtable discussion, moderated by Dr. West, highlights the newest and most intriguing discussions from ASCO 2016. Drs. West, Vokes and Ramalingam, along with patient advocate Janet Freeman-Daily, discuss the J-Alex trial and whether Alecensa should replace Xalkori as First-Line ALK Therapy.
GRACE is happy to present the 4th in our series ASCO 2016 Lung Cancer Roundtable, Highlights and New Approaches in Lung Cancer. Featuring Jack West, MD, Janet Freeman-Daily, Everett Vokes, MD, and Suresh Ramalingam, MD, this roundtable discussion, moderated by Dr. West, highlights the newest and most intriguing discussions from ASCO 2016. Drs. West, Vokes and Ramalingam, along with patient advocate Janet Freeman-Daily, discuss the subject of local consolidation therapies for oligomatastases.
GRACE is happy to present the 4th in our series ASCO 2016 Lung Cancer Roundtable, Highlights and New Approaches in Lung Cancer. Featuring Jack West, MD, Janet Freeman-Daily, Everett Vokes, MD, and Suresh Ramalingam, MD, this roundtable discussion, moderated by Dr. West, highlights the newest and most intriguing discussions from ASCO 2016. Drs. West, Vokes and Ramalingam, along with patient advocate Janet Freeman-Daily, discuss the subject of local consolidation therapies for oligomatastases.
GRACE is happy to present the 4th in our series ASCO 2016 Lung Cancer Roundtable, Highlights and New Approaches in Lung Cancer. Featuring Jack West, MD, Janet Freeman-Daily, Everett Vokes, MD, and Suresh Ramalingam, MD, this roundtable discussion, moderated by Dr. West, highlights the newest and most intriguing discussions from ASCO 2016. Drs. West, Vokes and Ramalingam, along with patient advocate Janet Freeman-Daily, discuss the subject of local consolidation therapies for oligomatastases.
GRACE is happy to present our ASCO 2016 Lung Cancer Roundtable series, Highlights and New Approaches in Lung Cancer. Featuring Jack West, MD, Janet Freeman-Daily, Everett Vokes, MD, and Suresh Ramalingam, MD, this roundtable discussion, moderated by Dr. West, highlights the newest and most intriguing topics presented at ASCO 2016. Drs. West, Vokes and Ramalingam, along with patient advocate Janet Freeman-Daily, discuss the subject of urine or blood testing instead of lung biopsy, showing promise for finding EGFR mutations.
GRACE is happy to present our ASCO 2016 Lung Cancer Roundtable series, Highlights and New Approaches in Lung Cancer. Featuring Jack West, MD, Janet Freeman-Daily, Everett Vokes, MD, and Suresh Ramalingam, MD, this roundtable discussion, moderated by Dr. West, highlights the newest and most intriguing topics presented at ASCO 2016. Drs. West, Vokes and Ramalingam, along with patient advocate Janet Freeman-Daily, discuss the subject of urine or blood testing instead of lung biopsy, showing promise for finding EGFR mutations.
GRACE is happy to present our ASCO 2016 Lung Cancer Roundtable series, Highlights and New Approaches in Lung Cancer. Featuring Jack West, MD, Janet Freeman-Daily, Everett Vokes, MD, and Suresh Ramalingam, MD, this roundtable discussion, moderated by Dr. West, highlights the newest and most intriguing topics presented at ASCO 2016. Drs. West, Vokes and Ramalingam, along with patient advocate Janet Freeman-Daily, discuss the subject of urine or blood testing instead of lung biopsy, showing promise for finding EGFR mutations.
GRACE is happy to present our ASCO 2016 Lung Cancer Roundtable series, Highlights and New Approaches in Lung Cancer. Featuring Jack West, MD, Janet Freeman-Daily, Everett Vokes, MD, and Suresh Ramalingam, MD, this roundtable discussion, moderated by Dr. West, highlights the newest and most intriguing topics presented at ASCO 2016. Drs. West, Vokes and Ramalingam, along with patient advocate Janet Freeman-Daily, discuss the subject of online patient groups and if they can help speed the development of new targeted therapies. A subject quite important to online groups such as our own GRACE.
GRACE is happy to present our ASCO 2016 Lung Cancer Roundtable series, Highlights and New Approaches in Lung Cancer. Featuring Jack West, MD, Janet Freeman-Daily, Everett Vokes, MD, and Suresh Ramalingam, MD, this roundtable discussion, moderated by Dr. West, highlights the newest and most intriguing topics presented at ASCO 2016. Drs. West, Vokes and Ramalingam, along with patient advocate Janet Freeman-Daily, discuss the subject of online patient groups and if they can help speed the development of new targeted therapies. A subject quite important to online groups such as our own GRACE.
GRACE is happy to present our ASCO 2016 Lung Cancer Roundtable series, Highlights and New Approaches in Lung Cancer. Featuring Jack West, MD, Janet Freeman-Daily, Everett Vokes, MD, and Suresh Ramalingam, MD, this roundtable discussion, moderated by Dr. West, highlights the newest and most intriguing topics presented at ASCO 2016. Drs. West, Vokes and Ramalingam, along with patient advocate Janet Freeman-Daily, discuss the subject of online patient groups and if they can help speed the development of new targeted therapies. A subject quite important to online groups such as our own GRACE.
1st Video in the GRACE ASCO 2016 Lung Cancer Roundtable series, featuring Jack West, MD, Janet Freeman-Daily, Everett Vokes, MD, and Suresh Ramalingam, MD. Dr. West moderates this roundtable discussion highlighting studies presented at ASCO 2016. For this video, Rova-T is presented as showing promise in Small Cell Lung Cancer.
1st Video in the GRACE ASCO 2016 Lung Cancer Roundtable series, featuring Jack West, MD, Janet Freeman-Daily, Everett Vokes, MD, and Suresh Ramalingam, MD. Dr. West moderates this roundtable discussion highlighting studies presented at ASCO 2016. For this video, Rova-T is presented as showing promise in Small Cell Lung Cancer.
1st Video in the GRACE ASCO 2016 Lung Cancer Roundtable series, featuring Jack West, MD, Janet Freeman-Daily, Everett Vokes, MD, and Suresh Ramalingam, MD. Dr. West moderates this roundtable discussion highlighting studies presented at ASCO 2016. For this video, Rova-T is presented as showing promise in Small Cell Lung Cancer.
Dr. Jack West, Brendan Bietry, and Janet Freeman-Daily take questions from the audience about financial assistance, legal protections, and patient support.
Dr. Jack West, Brendan Bietry, and Janet Freeman-Daily take questions from the audience about financial assistance, legal protections, and patient support.
Dr. Jack West, Brendan Bietry, and Janet Freeman-Daily take questions from the audience about financial assistance, legal protections, and patient support.