Podcasts about twin transfusion syndrome ttts

Type of Loss: Early-term loss, multiple loss, stillbirth, selective reduction, Twin to Twin Transfusion Syndrome More about Millie's story: Millie discusses her journey through multiple pregnancy losses, fertility struggles, and the heartbreaking loss of her twin sons, Landon and Emerson.After experiencing several traumatic first-trimester miscarriages between 2019 and 2022 and enduring unsuccessful fertility treatments, Millie finally conceived her son naturally in October 2022. He was born in July 2023, bringing incredible joy after years of heartbreak. But just four months postpartum, she was shocked to discover she was pregnant again—this time with identical twin boys.At 20 weeks, devastating complications arose, including Twin-to-Twin Transfusion Syndrome (TTTS) and growth abnormalities. Faced with an unimaginable decision about which baby to save, Millie and her family navigated an agonizing path of medical uncertainty and grief. Ultimately, both Landon and Emerson passed away around 22 weeks.More about Emma's Footprints:⁠⁠⁠⁠⁠⁠www.EmmasFootprints.com⁠⁠⁠⁠⁠⁠⁠Facebook: @EmmasFootprintsInstagram: @EmmasFootprints

Welcome to the Healthful Woman Podcast! On this episode, Dr. Nathan Fox speaks with Lauren Burstein about her pregnancy journey with her twins. She discusses being diagnosed with stage 2 Twin to Twin Transfusion Syndrome and the subsequent surgery to correct the issue.

In this episode of the SMFM Podcast Series, Dr. Alireza Shamshirsaz hosts a discussion with Dr. Sarah Obican about SMFM Consult Series #72, focusing on the management of Twin-Twin Transfusion Syndrome (TTTS) and Twin Anemia-Polycythemia Sequence (TAPS) in monochorionic twins. Dr. Obican shares insights into the latest evidence and practice guidelines for TTTS and TAPS, discussing the importance of early sonographic determination, recommendations for TTTS screening, and the complexities of managing TAPS. The conversation also covers fetal therapy options, doppler use, and the challenges of staging TTTS. Tune in to hear how these evolving guidelines impact clinical practice and patient care. Additional Resources: SMFM Consult #72: Twin-twin transfusion syndrome and twin anemia-polycythemia sequence Click here to access the full transcript. 

October is pregnancy and infant loss awareness month. CONTENT NOTE:On today's episode I am joined by Dr Natasha Davison who speaks about twin-to-twin transfusion syndrome and pregnancy loss which I know can be distressing.Here are some relevant links if you need resources or support around pregnancy loss:https://www.pregnancylossaustralia.org.au/https://www.sands.org.au/https://www.miraclebabies.org.au/content/loss-of-your-twin-or-triplet-baby/gjsr3chttps://www.pinkelephants.org.au/https://www.bearsofhope.org.au/Crisis lines (24 hour support):LIFELINE​13 11 14 www.lifeline.org.auBEYOND BLUE 1300 22 4636 www.beyondblue.org.auIn this poignant episode, Dr. Natasha Davison, a psychologist and high performance coach, opens up about her deeply personal journey through pregnancy, loss, and resilience. Dr. Davison's story is one of unexpected twists, from the surprise of a twin pregnancy after initially believing she'd only conceived one child, to the devastating diagnosis of Twin to Twin Transfusion Syndrome (TTTS).As she recounts the emotional rollercoaster of hope and heartbreak, Dr. Davison reflects on the strength required to navigate such challenging circumstances. The vivid account of her in utero procedure and subsequent complications is a testament to the courage and tenacity she embodied during this trying period.Tragically, on May 1st a decade ago, Dr. Davison experienced the unimaginable loss of both twins. Her candid narrative touches on the profound impact of this event and the complex grief that followed.However, this episode is not solely about loss, but also about resilience. Dr. Davison shares the transformational process she underwent in the aftermath, ultimately leading her to return to her work as a psychologist and high performance coach. Her unique perspective, drawn from personal experience, now serves as a beacon of hope for others facing adversity.Join us in this deeply moving conversation as Dr. Davison honors the memory of her twin boys and imparts invaluable wisdom on finding strength in the face of heartbreak. Her journey is a testament to the human capacity for resilience, offering solace and inspiration to all who listen.Thanks for listening! If you are a soon-to-be or current parent of multiples, be sure to head over to my website http://www.fiercekindmama.com to get my FREE resources designed specifically for you! Be sure to follow me on Instagram and Facebook too. Credits:Music from #Uppbeat (free for Creators!):https://uppbeat.io/t/aylex/with-youLicense code: YLMJTQCPKRANEOVB

This week's guest is Brooke Herbert! Join us as she talks to us about her experience with Twin to Twin Transfusion Syndrome (TTTS), her 3 month long NICU journey, and her beautiful children who went through it all.*Trigger warning: In this episode we talk about pregnancy, pregnancy loss, TTTS, and NICU experience.*You can find Brooke's episode here: https://youtu.be/W23PZNFXuWAhttps://pagesofastory.buzzsprout.com/www.pagesofastory.comYou can find more information here:Fetal Health Foundation:https://www.fetalhealthfoundation.org/fetal-syndromes/twin-to-twin-transfusion-syndrome/Children's hospitalhttps://childhealth.ca/TTTS support grouphttps://www.facebook.com/groups/203496653079054/?ref=share_______________________________________________Please subscribe and follow Pages Of A Story here:https://linktr.ee/pagesofastory#personalstories #pagesofastorypodcast #pagesofastory #lifeexperience #TTTS #twintotwintransfusionsyndrome #NICUjourney #NICU #strength #healing #pregnancy #twinpregnancyHosted by Candy Dinsmore-BekaanTheme music by Matthew DeMerittPages Of A Story episodes feature individuals' perspectives and opinions and should not be taken as advice on how to live your lives. Please enjoy and be safe.If you are struggling please reach out to a healthcare professional or the suicide prevention hotline:National Suicide Prevention Lifeline: 800-273-8255Canada Suicide Prevention Service: 833-456-4566

Nat chats with Amanda Blankenship about learning at 25 weeks gestation that her mo/di identical twins had Twin to Twin Transfusion Syndrome (TTTS) in utero and needed emergency laser ablation surgery. Twin to Twin Transfusion Syndrome is a rare condition that can occur when abnormal blood vessel connections form in the twins’ shared placenta, creating an uneven blood flow between the babies. This episode is sponsored by Dr. Brown's.Amanda Blankenship is the mother of 3 boys, 21-month-old Identical twin boys and a 3.5-year-old boy. She is a registered nurse in Southern California, working on a busy med-surg floor.Twiniversity MembershipsProper Care for Your Identical Twin PregnancyHow to Cope with a TTTS DiagnosisTwin to Twin: From High-Risk Pregnancy to Happy Family, a memoir about a TTTS experience by Twiniversity MoM Squad member Crystal DuffyTTTS FoundationTAPS SupportThe Surgeon's Cut on NetflixTwiniversity YouTube ChannelCONTACT USVISIT Twiniversity.com for tons of free twin tips!FOLLOW us on Facebook, Instagram, Pinterest, YouTube, and Twitter.SUBSCRIBE to our email newsletter!Subscribe for FREE to our other podcast, the Twins Tale Podcast, giving you an inside look at feeding schedules, sleep struggles, and all the highs and lows of raising twins from birth to college age.Take a class! Twiniversity offers online expecting twins classes, a breastfeeding twins class, and a baby safety class including CPR, first aid, car seat safety, and childproofing. Click here to check out our online classes.

If you have mo-di twins, you may have already heard by twin-to-twin transfusion syndrome. It's a complication that can happen during any twin pregnancy in which the babies share a placenta. How are pregnancies diagnosed with this condition? How can it impact your twins? And what options do you have to hopefully remedy the situation and keep your babies in utero for as long as possible? Learn more about your ad choices. Visit megaphone.fm/adchoices

Nat chats with Jenna Morton about learning at 19 weeks gestation that her identical twins had Twin to Twin Transfusion Syndrome (TTTS) in utero and needed fetoscopic laser ablation surgery. Twin to Twin Transfusion Syndrome is a rare condition that can occur when abnormal blood vessel connections form in the twins’ shared placenta, creating an uneven blood flow between the babies. Sponsored by Baby Trend and CBR (use the code DUO2 for special CBR twins pricing) Jenna Morton is a Canadian journalist with more than two decades of work in print, broadcast, and digital media. She’s been featured nationally by Today’s Parent, the Globe and Mail, Global TV, CBC Radio, and extensively throughout regional media. Her parenting resource, Pickle Planet Moncton, has been connecting families with each other and their community for five years. She is the contributing editor of Family 1st/Famille en premier, New Brunswick’s free, bilingual parenting magazine, and co-host of the Pickle Planet Podcast, aired daily on RogersTV in New Brunswick. Jenna is mom to three children: Clara, Alasdair, and Rory. Alasdair and Rory are identical twin boys, born at 32 weeks, after surviving Twin-to-Twin-Transfusion Syndrome (TTTS) thanks to a fetoscopic laser ablation surgery performed at Toronto’s Mount Sinai Hospital at 20 weeks. (That hospital is 1,500km (930 miles) away from their home.) The twins spent 35 days in the neonatal intensive care unit at the Moncton Hospital before coming home with very few residual impacts of TTTS. They are now seven years old, while their older sister is about to turn nine. Find Jenna on Facebook and Instagram. CONTACT USVISIT Twiniversity.com for tons of free twin tips!FOLLOW us on Facebook, Instagram, Pinterest, YouTube, and Twitter.SUBSCRIBE to our email newsletter!Subscribe for FREE to our other podcast, the Twins Tale Podcast, giving you an inside look at feeding schedules, sleep struggles, and all the highs and lows of raising twins from birth to college age.

If you have mo-di twins, you may have already heard by twin-to-twin transfusion syndrome. It's a complication that can happen during any twin pregnancy in which the babies share a placenta. How are pregnancies diagnosed with this condition? How can it impact your twins? And what options do you have to hopefully remedy the situation and keep your babies in utero for as long as possible? Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode we talked about:  Alexa's surprise of being pregnant with twin girls, who they would later find out suffer from a common disease, Twin to Twin Transfusion Syndrome (TTTS), which ultimately led to the loss of one twin baby girl.  The loss of Alexa’s baby affecting her relationship and faith in God. Alexa: “All I could think about was, “Why do you hate me?” ... and I just ended my relationship with God.”  The struggles Alexa had with herself in who she was and how she fell into a dark place in her life.  How the relationship with her husband fell apart and how they would continue with their lives going on their own paths while still being parents to their kids.  The events that led to Alexa’s faith in God being fully restored and the newest commitments her husband started to make for their relationship and family to be stronger than ever.  Alexa’s inspiration to share her story, write her books, and build her business and community towards helping families that can relate to her difficult life experiences.    Here’s a few quotes that we thought were awesome:   [10:20] “God never promises that it’s going to be kittens and rainbows…he never promises it’s going to be easy.”  [11:11] “He’s [God] sending us to walk through this hard trial and to learn and to grow and to gain the knowledge so that we can help other people along their journey.”  [26:16] “…I try really hard to drop my own pride and to say, “You’re not doing things right all the time either.” and “How is this impacting him [Alexa’s husband]? How does this make him feel?”, and most importantly, “What are you doing to make him feel loved?” When you start loving on someone like that, the response is incredible.”  [29:11] “It’s really not only trying to think through things from the other person’s perspective before you get so angry at them that you’re at a darker place, [but] along with learning to communicate and actually communicating.”  [34:19] “If you’re marriage is riding the struggle train, I think that if you can find ways to go back to the very things that you did when you first were dating and were first falling in love, that that just brings a level of lightness and joy back into it.”  Links Mentioned On Our Show:   The Question Behind The Question podcast episode by Stacy Tuschl  The Popcast Podcast with Knox and Jamie  Kat Biggie  Lose The Cape Book   Lost The Cape Podcast  Moms Lose the Cape: The Mom's Guide to Becoming Socially & Politically Engaged (& How to Raise Tiny Activists)  Princess Monroe  Write Publish Sell  Alexa Bigwarfe  Daily Bumps    About our guest: Alexa Bigwarfe is a wife, mother to 3 wildlings, devoted advocate, blogger, author, and publisher. Her writing career began after her infant daughter passed away at 2 days old. She has written and/or edited and published eight books, including Sunshine After the Storm: A Survival Guide for the Grieving Mother and Ditch the Fear and Just Write It! She uses that hard-earned publishing knowledge to support other writers and entrepreneurs at writepublishsell.co. She also owns the small hybrid-publishing company Kat Biggie Press (katbiggiepress.com), dedicated to sharing women’s works of inspiration and self-help. Alexa is passionate about women's, infant, and children's health topics and has had more than 50 articles published in regional parenting magazines around the U.S. and Canada. She enjoys drinking wine, spending time with her husband and friends, traveling, and just because life isn’t full enough, hosting the “Lose the Cape!” podcast featuring inspirational mothers and women making a difference in the world. Join the Lose the Cape movement at losethecape.com.   

To Raise a Powerful girl we need to teach her to not only know who she is but also how to use her voice and in a manner that people will receive her message, these are leadership skills critical for a girls success later on in life and we are going to dive in deep during todays interview. Alexa Bigwarfe is a wife, mother of three, dog owner, and advocate for those without a voice. She started blogging as an outlet for her grief after the loss of one of her twin daughters to Twin to Twin Transfusion Syndrome (TTTS) and now uses the blog to advocate for those without a voice (katbiggie.com). She is also the founder of LoseTheCape.com, and is the editor and publisher of the Lose the Cape! anthology series. She has written and/or edited and self-published numerous books of her own and for other authors through her hybrid publishing company, Kat Biggie Press. She uses that hard earned publishing knowledge to support other writers and small businesses in completing, publishing, and marketing their books through her company Write.Publish.Sell (writepublishsell.co). She spends her free time writing about children's and maternal health topics and survival strategies for busy moms. 

Taylor’s births are quite the experience! Her first pregnancy was surprise twins! Halfway through her pregnancy, they found out that the twins had Twin to Twin Transfusion Syndrome (TTTS) and selective intrauterine growth restriction (SIUGR). If you don’t know what that means, you will learn in an exciting and nail-biting way as we travel the pregnancy and birth with Taylor, her husband, and her children. Then, she shares her journey through her second pregnancy, a VBAC, with a beautiful story. Out fact today is defining TOLAC and what exactly it means in your pregnancy and birth space. You can find even more information about TOLAC on our VBAC blog at What is TOLAC? The Difference Between TOLAC and VBAC ( https://www.thevbaclink.com/what-is-tolac/ ) * @finandvince ( http://www.instagram.com/finandvince ) Instagram * fb.me/thevbaclink ( http://www.thevbaclink.com/thevbaclink/episode/update/id/fb.me/thevbaclink ) for Facebook * @thevbaclink ( http://www.instagram.com/thevbaclink ) on Instagram * Follow and subscribe! Please note, to get stories from all over the country and even other countries, we record using phone lines. For this reason, audio quality may vary between episodes and speakers. Advertising Inquiries: https://redcircle.com/brands Privacy & Opt-Out: https://redcircle.com/privacy

Alexa is a freelance writer, wife, and mother of three children and a dog. In addition to raising her children, managing her home, and writing, Alexa’s heart is in advocacy and raising funds to support nonprofit organizations involved with infant, children and women’s issues. Alexa launched her writing with her personal blog No Holding Back. Here she chronicles topics including health and wellness, living with autoimmune diseases, and most importantly, her grief after the loss of one of her twin daughters to complications from Twin to Twin Transfusion Syndrome (TTTS). Alexa took the experience from that painful life event and channeled it into a compilation book for grieving mothers entitled Sunshine After the Storm: A Survival Guide for the Grieving Mother. She has also been published in two anthologies, The Mother of All Meltdowns and The HerStories Project. Alexa enjoys writing articles about parenting and children’s health and wellness topics for regional parenting publications and online magazines. In her “spare” time, you can find Alexa enjoying time with her girlfriends or hiding in her closet for some “alone” time.   Katbiggie.com - Blog http://writepublishsell.co/ - Writing support   StoryHinge http://storyhinge.com Where we dig deeper into story and story creation.  We amplify personal stories to consider more possibility and realize more potential and happiness in life.

Aired Friday, 29 September 2017, 7:00 PM ET Beating the Odds: One Busy Woman's Thriver-not-Survivor Story Alexa Bigwarfe is a wife, mother of three, dog owner, and advocate. She started blogging as an outlet for her grief after the loss of one of her twin daughters to Twin to Twin Transfusion Syndrome (TTTS) and now uses the blog to advocate for those without a voice (katbiggie.com). All while living with Hashimotos and Lupus. On this episode, she shares with us her thriving regardless of your diagnosis story and: ~ How changing her diet changed the trajectory of her health ~ How stress, grief and taking action showed her, her mission ~ How she became an advocate for twin to twin transfusion syndrome and how you can become an advocate for your ‘why' too. ~ Plus so much more… Alexa has written and/or edited and self-published numerous books of her own and for other authors through her hybrid publishing company, Kat Biggie Press and supports other writers and small businesses in completing, publishing and marketing their books through her company Write.Publish.Sell (writepublishsell.co). She spends her free time writing about children's and maternal health topics and survival strategies for busy moms. Listen in to her Thriver-not-Survivor story September 29th at 7 PM ET.

Alexa Bigwarfe is a wife, mother of three, dog owner, and advocate. She started blogging as an outlet for her grief after the loss of one of her twin daughters to Twin to Twin Transfusion Syndrome (TTTS) and now uses the blog to advocate for those without a voice (katbiggie.com). All while living with Hashimotos and Lupus. On this episode, she shares with us her thriving regardless of your diagnosis story and:How changing her diet changed the trajectory of her health How stress, grief and taking action showed her, her missionHow she became an advocate for twin to twin transfusion syndrome and how you can become an advocate for your ‘why' too. Plus so much more… Alexa has written and/or edited and self-published numerous books of her own and for other authors through her hybrid publishing company, Kat Biggie Press and supports other writers and small businesses in completing, publishing and marketing their books through her company Write.Publish.Sell (writepublishsell.co). She spends her free time writing about children's and maternal health topics and survival strategies for busy moms. Listen in to her Thriver-not-Survivor story September 29th at 7 PM ET

This podcast features a story about the desire to have kids and the fear of losing them. Australian blogger Stephanie Ernst was struck by an incredibly rare disease which affects identical twins. The podcast highlights her struggle with the disease Twin to Twin Transfusion Syndrome – TTTS – and its closely associated variant TAPS – Twin Anemia Polycythemia Sequence. It features Dr. Enrico Lopriore head of the department of Neonatology at the Leiden University Medical Centre. TAPS was discovered by the team at the Leiden hospital. For more information on TTTS and TAPS visit the TTTS Foundation Or the TTTS Grief support group TTTS Grief support group Stephanie’s blog is The Inbuggering Diaries Contact Here in Holland email: hereinholland@gmail.com Facebook page WhatsApp +31 (0) 6 12 42 83 87 Twitter: @HereHolland. Support the show (https://www.patreon.com/hereinholland)