Podcast appearances and mentions of jon strum

In this powerful episode, we dive into the often-overlooked realities of living with Multiple Sclerosis. From the terrifying first symptoms to navigating the healthcare system, we talk about the importance of being your own advocate when answers are hard to find. Whether you're newly diagnosed or supporting someone with MS, this conversation is a reminder: your voice matters, and you're not alone.We cover:•What MS symptoms can look and feel like•How scary and isolating the unknown can be•Tips on advocating for your health when you feel dismissed•Raising awareness and fighting the stigma around MSFollow us on IG for more:https://www.instagram.com/spillinitpodcast?igsh=MThjdDd6Nzc2cXNnOQ==https://www.instagram.com/thecortreport?igsh=aHp3eHVzMzNpbjBwhttps://www.instagram.com/grayed_early?igsh=MWRwZ2VodzRmaHZuNA%3D%3D&utm_source=qrHave an inspiring story you would like to share? Fill out this Questionnaire and we will be in touch. Helpful Books About MS:    1.    “Multiple Sclerosis: A Guide for the Newly Diagnosed” by Nancy J. Holland – great for understanding what MS is and how to manage it early on.    2.    “The Wahls Protocol” by Dr. Terry Wahls – explores how diet and lifestyle may impact autoimmune diseases like MS.    3.    “MS and Your Feelings: Handling the Ups and Downs of Multiple Sclerosis” by Allison Shadday – focuses on the emotional side of the disease.Helpful Podcasts About MS:    1.    “MS Conversations” – Real stories and interviews with people living with MS.    2.    “The MS Gym Podcast” – Focuses on movement, mindset, and managing MS symptoms through exercise and positivity.    3.    “RealTalk MS” – Hosted by Jon Strum, this show offers deep dives into research, advocacy, and life with MS.

If you're a regular listener, you know that I rely on the RealTalk MS listener community to let me know which topics you'd like to hear about on this podcast. A few years ago, in episode 264, listener Dawnia Baynes did a podcast takeover, and interviewed me. Since then, I've heard from a bunch of you who, for some reason, want to hear more about me. So, when listener Kyra Millich asked if she could interview me, it felt like it was time.  In today's episode, you'll find out what I like to do when I'm not doing this podcast, I'll share some of the most memorable moments in my life, you'll hear how and why I started RealTalk MS, and I hope you'll get to know me a little better. You'll also hear about results from a study that show people with MS are far less likely to be diagnosed with Alzheimer's disease compared to people who don't have MS. We'll tell you about a Phase 1 clinical trial for a CAR-T cell therapy for MS. And you'll learn the details of a different Phase 1 clinical trial for a different CAR-T cell therapy for MS. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Jon gets interviewed  :22 Study results show people with MS are less likely to get Alzheimer's disease than people who don't have MS  1:23 TG Therapeutics announces Phase 1 clinical trial of CAR-T cell therapy for MS  3:44 FDA clears Immpact Bio for Phase 1 clinical trial of CAR-T cell therapy for hard-to-treat MS  7:13 Listener Kyra Millich interviews Jon  8:48 Share this episode  40:03 Have you downloaded the free RealTalk MS app?  40:23 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/365 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com STUDY: Unexpected Low Rate of Amyloid-β Pathology in Multiple Sclerosis Patients https://onlinelibrary.wiley.com/doi/10.1002/ana.27027 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 365 Privacy Policy

So often it seems the more you do, the harder it is to keep your head above water. You tell yourself you just need to get through this task. This morning. This day. Phrases like, “It can wait until tomorrow,” “I don't need to ask for help,” and “I got this,” fire up your sense of determination. But all they're really doing is forcing you to burn your candle at both ends, and this leads to, you guessed it, burnout. We are learning that a key to remedying this kind of overwhelmingness isn't so much about asking others for help, it's about connecting with them (and yourself) to hold you accountable. Accountability is all about taking responsibility for your actions. And responsibility isn't something you have to handle all by yourself. Join us for this episode of A Couple Takes on MS Podcast where we open up about the challenges we face when we don't involve someone or something to hold us accountable. This includes everything from a sleep study that is pushing us to actually get to bed before 1 a.m. or Stella, the 1-year-old Olde English bulldog who made us realize that we aren't the prime candidates for being puppy parents... right now. Here are links to the sites we discussed in our accountability conversation: • Coach, Accountability Buddy, or Friend – Everyday Health Blog essay by iconic MS author Trevis Gleason • Ask an MS Expert: How MS Can Affect Your Sleep – National MS Society conversation between RealTalk MS host Jon Strum and University of Kansas Medical Center's Sleep, Health & Wellness Lab Director Catherine (Katie) Siengsukon • Music and MS: Going beyond the meme – Dan's MS Focus Exclusive Content essay that digs into how music (including Bruce Springsteen, of course!) has helped him cope with MS realities • The benefits of living with a pet – Above MS article that highlights the pros of owning a pet ***** Remember to rate, review and subscribe to A Couple Takes on MS Podcast for two insightful perspectives on this one multifaceted disease.

Jon Strum's wife, Jeanne, was an avid biker, hiker, and writer when she was diagnosed with Progressive MS. Almost immediately, she became so severely disabled that Jon stopped working and became Jeanne's carer and advocate. He continued in this role until Jeanne passed in February 2020. Part of Jon's advocacy was (and continues to be) hosting the popular RealTalk MS podcast. As you'll hear, Jon started the podcast while sitting on a scientific committee as a member of the International Progressive MS Alliance, to bridge the gap between patients and caregivers and the scientific community. Since its launch in 2017 and over 200 episodes later it has been downloaded more than 1,000,000 times by listeners in over 100 countries around the world.Jon's devotion to his wife is moving and unquestionable. But so is his desire and commitment to advocating for all people living with Multiple Sclerosis.Listen in to my interview with this wonderful man and find out about all the ways that you can advocate for people with MS and affect change!Topics covered in this episode include:The story of Jeanne's diagnosis, and Jon's journey into caregiving and advocacyJon and Jeanne's experiences with health insurance, the impact on their finances, and the heartbreaking decision Jon had to make for Jeanne's care Why Jon feels that people with more progressive forms of MS can feel forgotten by the scientific community, and why he started the RealTalk MS PodcastJon's partnership with the National MS SocietyThings that are on the legislative horizon for people in the US with MS, and how you can get involved and put pressure on your representatives!Full show notes and resources at https://fumsnow.com/fums109/ See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Embracing Carers: Talking Self-Care With Jon Strum - Episode 40 - Transcript          Being a care partner has been a central role in Jon Strum's life. His experiences led him to become an MS advocate and start the RealTalk MS podcast. Today, we'll hear from Jon about the drastic effects of MS, not just in his wife's life, but his own. Reflecting on the importance of self-care, he shares his advice and encouragement for other support partners.

Dr Mitzi chats with Podcast host Jon Strum and patient advocacy leader Stuart Schlossman on finding trusted sources of information.

Summertime traditionally means getting out of the house, enjoying outdoor activities, and being active. But if you're living with MS, outdoor activity and summertime temperatures can raise red flags when it comes to your day-to-day quality of life. My guest is Dr. Colin Lenington, an Occupational Therapist and Clinical Specialist at the VA Long Beach Healthcare System and we're talking about getting outside, staying safe, and keeping cool while you enjoy your summer activities. We're joining the World Federation of Neurology and the global MS community on July 22nd, to celebrate World Brain Day 2021. This year's theme is Stop Multiple Sclerosis and we'll tell you where and how to register for the upcoming World Brain Day webinar. We're also talking about study results that show the impact of delaying an Ocrevus infusion in order to enhance the effect of a COVID-19 vaccination. We'll tell you about a study in the U.K. that followed 120 people with MS who received autologous hematopoietic stem cell transplantation (aHSCT). We'll share news about a new way to successfully cross the blood-brain barrier and deliver medicines to the central nervous system. (And we'll explain why that matters when it comes to treating MS) And we'll tell you about a study of veterans with MS that should convince anyone to adhere to their DMT treatment plan. We have a lot to talk about! Are you ready for RealTalk MS??! July 22nd is World Brain Day!  :22 My live conversation with Dr. Victoria Leavitt takes place this Wednesday, on the eSupport Health Wednesday Workshop   :55 Study shows the effect of extended interval dosing of Ocrevus  2:46 Study shows real-world outcomes for 120 people with MS who received aHSCT  5:49 Biopharmaceutical company successfully delivers an anti-inflammatory molecule across the blood-brain barrier  7:43 Study shows the benefits of adhering to DMTs  9:03 Dr. Colin Lenington talks about how to enjoy summertime activities while staying safe and staying cool  11:24 Share this episode  24:25 Catch my live conversation with Dr. Victoria Leavitt on Wednesday  24:48 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/203 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance World Brain Day 2021 https://wfneurology.org/world-brain-day-2021 Register for the eSupport Health Wednesday Workshop: A Conversation with Jon Strum https://esupporthealth.zoom.us/meeting/register/tJEpc--rqT0vHdJ6FbPDH7S1enOrLYAIQG-K STUDY: Ocrelizumab Extended Interval Dosing in Multiple Sclerosis in Times of COVID-19https://nn.neurology.org/content/8/5/e1035 STUDY: Autologous Haematopoietic Stem Cell Transplantation in Active Multiple Sclerosis: A Real-World Case Serieshttps://n.neurology.org/content/early/2021/07/12/WNL.0000000000012449 Bioasis Announces Positive Results from Efficacy Study of xB3TM -1L-1RA in a Model of Multiple Sclerosis https://www.globenewswire.com/news-release/2021/07/07/2259430/0/en/Bioasis-Announces-Positive-Results-From-an-Efficacy-Study-of-xB3-IL-1RA-in-a-Model-of-Multiple-Sclerosis.html STUDY: The Impact of Adherence to Disease-Modifying Therapies on Functional Outcomes in Veterans with Multiple Sclerosis https://journals.sagepub.com/doi/pdf/10.1177/11795735211028769 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Androidhttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 203 Guest: Dr. Colin Lenington Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

RealTalk MS is a podcast for people affected by multiple sclerosis (MS) — including patients, caregivers, family members, and friends. Each week, podcast host Jon Strum cuts through all the scientific jargon and breaks down the latest advances in MS research and news. Every podcast episode features an interview with the world-class MS researchers, clinicians, advocates, and policymakers who are making a difference in the lives of people living with MS. In this episode, Dr. Brian Sandroff joins Jon Strum to share the outcome of a Kessler Foundation study that may lead to a whole new way for people living with MS who are experiencing substantial disability to improve cognition and mobility impairment through rehabilitation exercise. Listen to the full episode at https://realtalkms.com/episode-198-anxiety-and-depression-in-ms-with-dr-anthony-feinstein Use by permission: REAL TALKS MS

In this episode of the MS Show, Bron chats with Jon Strum who was a carer for his wife Jean. Jean was diagnosed with a severe and rapidly progressive form of MS which led to her requiring round the clock residential care and ultimately and incredibly sadly, to her early passing. You will learn about the challenges Jon and Jean faced and the changes that Jon had to make in his own life expectations and directions. You will also hear about Jon's hosting of his Podcast RealTalk MS and his involvement with the Care Partner Protocol and the importance of early identification of support frameworks for carers.   Copyright Bron Webster 2021 www.multiplesuccess.co.uk

In the first episode of "The Multiple Sclerosis Podcast with Jenn Powell", Jenn talks with Jon Strum, host of the podcast, RealTalkMS. Jon shares his own experience as a caretaker for his wife who was diagnosed with progressive MS, in addition to what he sees as hope for those living with the disease. Join the conversation on our MS forums: http://www.multiplesclerosisnewstoday.com/forums/ Follow us on social media: Instagram - https://www.instagram.com/msnewstoday/ Facebook - https://www.facebook.com/multiplesclerosisnewstoday Twitter - https://twitter.com/msnewstoday For more news on Multiple Sclerosis visit: https://multiplesclerosisnewstoday.com/

In this episode of Causepods we are joined by Jon Strum who is the host of Real Talk MS, a podcast aimed at creating community around the spread of information on multiple sclerosis. Jon’s desire to create this platform grew out of his personal experience giving care to his wife after her own diagnosis and wishing to find a positive outlet through all the difficulty and sadness that is connected to progressive MS. For Jon, the impact and response to his show has been both deeply affirming as well as healing, something that he aims to provide for listeners and guests too. We chat about why the podcasting format is well suited to this pursuit, especially with the specifics of MS and Jon is kind enough unpacks some of the lessons he has learned as a new podcaster. We also go into two memorable episodes and why they stand out to Jon when looking back. The discussion covers Jon’s approach to communicating meaningfully and honestly when recording and how he facilitates these kinds of difficult conversations. Jon’s story is so inspiring, you are not going to want to miss it, so be sure to listen in! Key Topics: • The reasons that Jon started his platform and podcast. (02:12) • The altruist impetus and mission of starting a podcast like this. (06:32) • Jon’s wife’s situation and her relationship to the podcast. (08:45) • The support system that hosting a podcast provides. (11:59) • A little about Jon’s guests on the show. (12:54) • The two standout episodes from the history of the show. (14:41) • Jon’s secret to creating meaningful and honest engagement on air. (17:44) • Advice from Jon to prospective podcasters. (19:00) • The benefits of a podcast over other media and forms of communication. (20:40) • Understanding your audience and getting a message to them. (22:16) And much more! Support The National MS Society (https://www.gofundme.com/causecasts-for-the-national-ms-society) See the show notes and a transcript at http://www.causepods.org/podcast/jon-strum (http://www.causepods.org/podcast/jon-strum) Thanks for Listening! Be sure to subscribe on mathew@causepods.org (mailto:mathew@causepods.org) . Stay up-to-date on Causepods by followng Mathew Passy on social media at Twitter (https://twitter.com/mathewpassy) ! For help, resources, and community support, please join the Causecasters’ Facebook Group (https://www.facebook.com/groups/2073354376260768/) if you are already producing podcasts for a cause or are thinking about launching one. And if you would like to be a guest on Causepods, please fill out this form (https://docs.google.com/forms/d/e/1FAIpQLScxrbr_ixkZQHAOFldoDrSQzcLGi4EB3SFNW3t76_nG0VKlmw/viewform) .

Join host Jon Strum as he breaks down the latest multiple sclerosis news. Talking about the amazing MS research that’s currently being done in laboratories around the world — and talking to some of the brilliant neuroscientists who are conducting that research! Listen to host Jon Strum as he interviews Dr. John DeLuca, the Senior Vice-President of Research & Training at the Kessler Foundation, and the co-author of the just-published report that details this important set of new guidelines. Thanks to Jon Strum and RealTalk MS for allowing us to post this podcast. For more information about Jon Strum and RealTalk MS, go to http://realtalkms.com

MS affects 1 in every 340 Canadians, so there's a good chance you or someone you know is directly impacted by the disease. MS doesn't just change the lives of those diagnosed but also the lives of their families and friends.In 1997 when Jon Strum's wife, Jeanne, was diagnosed with secondary progressive MS her symptoms advanced so quickly that in a few short years she had become a quadriplegic. Seeing the extreme effects the disease could have firsthand, Jon started looking for ways to help other families and MS caregivers.After years of advocating and researching different MS treatments, Jon started a podcast in 2017 www.realtalkms.com, a place where you can find information on current MS research, hear from neuroscientists dedicated to the cause and meet MS caregivers and activists from across the globe.You can hear all about Jon's efforts and get more information about his incredible podcast by clicking the link below.

It's a new year and we have a lot to talk about! There's good news about new clinical trials...the FDA has given a "Breakthrough Therapy" designation for the first MS treatment approved for children and teens living with MS...UCLA researchers have identified why estrogen seems to have real potential as a treatment for MS...prices for some MS drugs are going up...pharmaceutical companies are suing the state of California over prescription price transparency...and host Jon Strum will tell you why the pace of scientific discovery is going to increase in 2018. Are you ready for some RealTalk MS?

Join host Jon Strum as he talks about the serious threat that the Cassidy-Graham healthcare bill poses to the MS community. Jon is joined by former Representative Donna Edwards, who worked to pass the Affordable Care Act in 2010, and then found herself diagnosed with MS in 2016. We'll also be discussing the passage of an important piece of legislation in California which may end up leading the way for other states to create greater transparency in prescription drug pricing. We'll talk about new MS research that is just getting underway, and we'll give you the latest about some exciting research results that are going to impact people dealing with progressive MS.  Get ready for some Real Talk about MS!

Jon Strum cuts through all the jargon and breaks down the latest multiple sclerosis news. You’ll meet the scientists who are creating tomorrow’s MS treatments today. You’ll hear from the experts discussing how the latest tweaks and changes to our healthcare laws will impact your MS treatment. And we’ll be talking to the courageous MS warriors who are out there advocating on behalf of the MS community every day, as well as the men and women who are committed to living their best lives with MS and living their best lives as MS caregivers. If you're dealing with multiple sclerosis in your life -- as a patient, caregiver, family member, or friend -- join us each week for RealTalk MS.