Podcasts about national ms society

In this episode of the Elevate Care Podcast, David Norris, CEO of Affineon Health, discusses the transformative role of AI in healthcare, particularly in alleviating provider burnout and enhancing patient care. He shares insights from his extensive experience in healthcare technology, emphasizing the need for innovative solutions to support healthcare providers overwhelmed by administrative tasks. The conversation explores how AI can streamline processes, improve patient communication, and ensure data privacy, while also addressing the challenges of adoption among healthcare professionals. Norris highlights the importance of creating a supportive environment for providers and the potential for AI to revolutionize patient-provider relationships in the future.Chapters:00:00 AI in Healthcare: A New Era04:45 Addressing Provider Burnout with AI Solutions10:50 Operationalizing AI: Protocols and Provider Control15:56 The Future of AI in Patient Care21:58 Ensuring Data Privacy and Cybersecurity in AI25:50 Looking Ahead: The Future of AI in Healthcare About David Norris: Mr. Norris is a CEO, investor, board member, advisor, and serial entrepreneur. Utilizing his extensive experience and network, he works closely with investors and boards to accelerate the growth of high potential companies. He has extensive governance experience on a wide range of boards and board committees.As a serial entrepreneur, he has founded and built companies in a number of different industries and has extensive fund-raising experience, having raised capital from VC, private equity, strategic, angel, and debt sources.Mr. Norris has held leadership positions in a number of companies including: Co-founder and CEO, Affineon Health, Chairman and CEO, Element3 Health (acquired 2022), Co-founder, Co-Founder and CEO of MD Insider (acquired by Accolade (NASDAQ:ACCD)), Co-founder and CEO of BlueCava (acquired by IDify/Adstra), Co-Founder and CEO of OnRequest Images, Co-Founder and CEO of ObjectSpace (acquired), VP/General Manager at Casco Signal Ltd (acquired by Alstom (ALO:EN)), and Toccata Systems (acquired by Chilton).Mr. Norris has extensive international business experience, having lived and worked in Europe, Asia, and the United States. He is a regular speaker at industry conferences, has lectured at organizations such as Microsoft and the Harvard Business School, has appeared on business TV programs such as CNN, Bloomberg TV, and has been quoted in publications such as The Wall Street Journal and New York Times.Mr. Norris has won various awards, including the Ernst and Young Entrepreneur of the Year, the Inc. 500, and The Software 500. He supports a number of charities including the American Diabetes Association and the National MS Society. Mr. Norris sits on a number of boards and is a senior advisor to a number of companies. He is also a very active cyclist. Sponsors: Discover how WorkWise is redefining workforce management for healthcare. Visit workwise.amnhealthcare.com to learn more.About The Show: Elevate Care delves into the latest trends, thinking, and best practices shaping the landscape of healthcare. From total talent management to solutions and strategies to expand the reach of care, we discuss methods to enable high quality, flexible workforce and care delivery. We will discuss the latest advancements in technology, the impact of emerging models and settings, physical and virtual, and address strategies to identify and obtain an optimal workforce mix. Tune in to gain valuable insights from thought leaders focused on improving healthcare quality, workforce well-being, and patient outcomes. Learn more about the show here. Find Us On:WebsiteYouTubeSpotifyAppleInstagramLinkedInXFacebook Powered by AMN Healthcare

Last week in Phoenix, Arizona, the Consortium of Multiple Sclerosis Centers (CMSC) held its annual meeting, and we had a chance to talk with some of the top MS experts in the world. Welcome to Part One of our coverage!   First, you'll hear Dr. Kathy Zackowski, the National MS Society's Associate Vice-President of Research, share her overview of the sessions and presentations that especially stood out to her.   Then, you'll hear Dr. Stephen Krieger as he expands on one of the most interesting and provocative presentations at the conference. Dr. Krieger headed up a panel of experts that explained how the terms used to describe MS today (relapsing-remitting, secondary progressive, and primary progressive) are no longer adequate and then offered answers to the question, "If MS is one disease, what does that mean for clinical conversations?".  We have a lot to talk about! Are you ready for RealTalk MS??! This Week: From the 2025 Consortium of MS Centers Annual Meeting  :22 Dr. Kathy Zackowski shares an overview of the sessions and presentations that caught her eye  1:08 Dr. Stephen Krieger discusses seeing MS as one disease  17:11 Share this episode  31:58 Have you downloaded the free RealTalk MS app?  32:18 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/405 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 405 Guests: Dr. Kathy Zackowski and Dr. Stephen Krieger Privacy Policy

Last week, the National Multiple Sclerosis Society and the European Committee for Treatment and Research in Multiple Sclerosis convened a meeting in Dublin, Ireland, to dive deeper into what a new framework for describing MS might look like.   There's still a tremendous amount of work to be done here. But, considering that whatever language is eventually adopted will affect every person living with MS, I want to keep you fully informed on this important work. So I'm devoting this entire episode of the podcast to sharing conversations I had with three of the attendees at the meeting in Dublin.    First, you'll hear from Dr. Bruce Bebo, the National MS Society's Executive Vice President of Research. Then, you'll hear from Dr. Daniel Ontaneda, a neurologist specializing in MS at the Cleveland Clinic, and, finally, you'll hear from Kathy Smith, who's lived with MS for the past 20 years.   As you listen to these conversations, I think you'll hear three slightly different perspectives, but you'll also hear some of the broad concepts and ideas around which there was a high level of agreement at our meeting. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: A meeting to discuss moving to a biologically based description of MS  :22 Dr. Bruce Bebo discusses how a new framework for describing MS could impact MS research and people living with MS  3:45 Dr. Daniel Ontaneda describes some of the shortcomings of the current MS course descriptors and discusses how a new framework for describing MS could impact   people living with MS  17:34 Kathy Smith explains how current MS course descriptors fail to fully capture her experience as someone living with MS, and explains how new course descriptors could benefit people living with MS  26:24 What's next in the work to develop new course descriptors for MS  35:20 Share this episode  35:44 Have you downloaded the free RealTalk MS app?  36:03 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/403 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com RealTalk MS Episode 279: A New Framework for Researching, Diagnosing, and Treating MS with Professor Tanja Kuhlmann https://realtalkms.com/279 RealTalk MS Episode 280: How the Proposed Framework for Diagnosing and Treating MS Will Affect You with Dr. Tim Coetzee https://realtalkms.com/280 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 403 Guests: Dr. Bruce Bebo, Dr. Daniel Ontaneda, Kathy Smith Privacy Policy

If you're living with MS, you might experience days when it feels like you're losing your sense of who you are, as your sense of self gets redefined by your symptoms. Reasserting your personal style can be a powerful way to rediscover joy in who you are while reclaiming your identity.    Jeri Zink Denz lives with MS and works in the luxury fashion industry. She's always been passionate about fashion and personal style, and Jeri joins me to discuss how you can find and define your personal style, despite the challenges that MS may present. We'll also explain the hidden outcome of the massive agency layoffs and drastic cuts in federal funding for healthcare research, and this is the outcome that can affect research for decades to come. We're sharing the results of a study that may have identified a biomarker for rapid MS progression. We'll tell you about the game-changing artificial intelligence project that received a $750,000 investment from the International Progressive MS Alliance. And you'll find out how and where you can register for the upcoming Hispanic/Latinx MS Experience Summit. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Reasserting your personal style can be a powerful way to rediscover joy in who you are in spite of the challenges that MS may present.   :22 Layoffs + funding cuts = brain drain  1:08 Have researchers found a biomarker for rapid MS progression?  4:51 The International Progressive MS Alliance has invested $750,000 in what could be a game-changing AI project  9:09 The National MS Society's Hispanic/Latinx MS Experience Summit is just 8 days away  10:59 Jeri Zink Denz discusses why it's especially important (and even therapeutic!) to assert your personal style when you're living with MS  12:22 Share this episode  29:31 Have you downloaded the free RealTalk MS app?  29:50 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/402 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Become an MS Activist Web: https://nationalmssociety.org/advocacy Email: msactivist@nmss.org STUDY: Broad Rim Lesions are a New Pathological and Imaging Biomarker for Rapid Disease Progression in Multiple Sclerosis https://nature.com/articles/s41591-025-03625-7 International Progressive MS Alliance https://progressivemsalliance.org Hispanic/Latinx MS Experience Summit Info & Registration https://nationalmssociety.org/resources/get-support/education-programs-and-library/hispanic-latinx-ms-experience Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 402 Guest: Jeri Zink Denz Privacy Policy

In this episode of the Nonprofit Leadership Podcast, host Rob Harter welcomes Tim Coetzee, CEO of the National Multiple Sclerosis Society, to discuss the ...

This warmer weather is the perfect time to dust off the bike and hit the road for a good cause. Bike MS is holding its annual "Cape Cod Getaway" next month to raise money for the National MS Society, which works each and every day to find a cure for multiple sclerosis. The Getaway is a two-day affair, and you won't even have to rent a vacation house! Jennifer Dowdy, the Development Director of Bike MS, and Liam Kennedy, captain of Liam's Lucky Charms, join Nichole to talk about it.

Most people living with MS don't see their neurologist often. For many, it might be only once or twice a year. A lot of important things take place during that appointment. Symptoms are assessed. Decisions about disease-modifying therapies are made or, sometimes, changed. Questions get asked and, hopefully, answered.   Dr. Barbara Giesser returns to the podcast, this time, to review the things that should be discussed and followed up on at your appointment with your neurologist or MS specialist. We're also sharing some good news about MS research funding from the National MS Society and the International Progressive MS Alliance. We'll tell you how you can catch the replay of the International Progressive MS Alliance's webcast focused on putting people with MS at the center of MS research. We're sharing the encouraging outcome of the Phase 2 clinical trial for vidofludimus calcium and progressive MS. We'll tell you how you or a family member can participate in the GEMS study. And we'll tell you about a new AI tool that can accurately diagnose a patient's transition from relapsing-remitting MS to secondary progressive MS, often before a clinician can! We have a lot to talk about! Are you ready for RealTalk MS??! This Week: What (should) happen during your appointment with your neurologist  :22 National MS Society invests $18.1 million in new research  1:04 International Progressive MS Alliance funds 3 clinical trial development projects  3:53 Catch the replay of the International Progressive MS Alliance webcast focused on putting people with MS at the center of research  6:56 Immunic Therapeutics announces positive results from the Phase 2 clinical trial evaluating vidofludimus calcium for progressive MS  7:45 You or a family member may qualify to participate in the GEMS study  10:00 AI tool can accurately diagnose the transition from relapsing-remitting MS to secondary progressive MS  12:01 Dr. Barbara Giesser discusses the kinds of conversations you should be having during your appointment with your neurologist  16:49 Share this episode  30:38 Have you downloaded the free RealTalk MS app?  31:00 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/401 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Become an MS Activist Web: https://nationalmssociety.org/advocacy Email: msactivist@nmss.org National MS Society Commits $18.1 Million for Research (Projects Being Funded) https://cdn.sanity.io/files/y936aps5/production/a788b2e3d8409173a4de417fcf3bebcfbddddc41.pdf International Progressive MS Alliance https://progressivemsalliance.org International Progressive MS Alliance Webcast: Putting People with MS at the Center of Research https://youtube.com/watch?v=uacSJ7ZxuRM Participate in MS Research: The GEMS Study https://recruit.cumc.columbia.edu/studyinfopage/1419 GEMS Study Contact: Juliana Oyegunle Email: gems_neuro@cumc.columbia.edu Phone: (212) 305-2434 STUDY: Conformal Prediction Enables Disease Course Prediction And Allows Individualized Diagnostic Uncertainty in Multiple Sclerosis https://www.nature.com/articles/s41746-025-01616-z Multiple Sclerosis Progression Tracker https://msp-tracker.serve.scilifelab.se/ Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 401 Guests: Dr. Barbara Giesser Privacy Policy

Welcome to the 400th episode of RealTalk MS! Over the past nearly eight years, it's been my absolute honor to bring you insights from leading experts, researchers, advocates, and, perhaps most importantly, from people living with MS themselves. And we have no intention of stopping here! We're excited to continue bringing you the information and conversations that matter most to the MS community.   In this episode of the podcast, Dr. Tim Coetzee, President and CEO of the National MS Society, looks back at a significant milestone that took place eighty years ago. Tim also shares his detailed vision of the future for people living with MS, and discusses some of the cutting-edge MS research that he's most excited about. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Welcome to episode 400!  :18 Dr. Tim Coetzee, President and CEO of the National MS Society, looks back at the past, shares his vision of the future, and discusses the MS research that he's most excited about  2:32 Share this episode  30:31 Have you downloaded the free RealTalk MS app?  30:50 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/400 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Become an MS Activist Web: https://nationalmssociety.org/advocacy Email: msactivist@nmss.org Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 400 Guests: Dr. Tim Coetzee Privacy Policy

We're diving into What's New in MS? with the incredible Dr. Annette Okai — a powerhouse in the MS world.Dr. Okai is a fellowship-trained MS specialist, Director of Clinical Neuroimmunology at North Texas Institute of Neurology and Headache, and Clinical Associate Professor at Texas Tech. She's also a key voice in research and advocacy, serving on advisory boards for the MS Association of America, National MS Society, and more.You don't want to miss her insights on the latest in MS care, research, and what's on the horizon for the community. 

Research shows that spirituality can benefit mental health and improve overall well-being. And it can play a meaningful role in helping people cope with life's challenges, like living with MS. This week, Dr. Mana Ali Carter, a rehabilitation psychologist at MedStar National Rehabilitation Hospital in Washington D.C., joins me to discuss the positive effects that spirituality can have on the mind and body, and how it's been shown to make a difference for people living with MS.   We're also sharing encouraging initial reports from a Phase 1 clinical trial for KYV-101, Kyverna's investigational CAR-T therapy for MS. We'll tell you about a positive report on two years of data from a Phase 2 clinical trial extension study for Frexalimab, a novel investigational disease-modifying therapy from Sanofi. We'll explain how the decision to discontinue federal matching funds for designated state health programs will have a direct impact on some people living with MS. And we'll tell you how you can register for the National MS Society's webinar in support of restoring federal funding for the MS Research Program. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: How spirituality can make a difference if you're living with MS  :22 Initial reports from a Phase 1 clinical trial for a CAR-T therapy are encouraging  1:15 Two years of data from a Phase 2 extension study of Frexalimab are positive  3:07 The federal government will no longer provide matching funds for designated state health programs  5:47 The National MS Society is hosting a virtual event to support restoring federal funding for the MS Research Program  8:38 Dr. Mana Ali Carter explains how spirituality can make a difference in your life if you're living with MS  11:27 Share this episode  30:40 Have you downloaded the free RealTalk MS app?  31:01 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/399 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Become an MS Activist Web: https://nationalmssociety.org/advocacy Email: msactivist@nmss.org Participate in a Sanofi Clinical Trial https://sanofistudies.com Register for a Virtual Event: Restore the MS Research Program https://nmss.quorum.us/event/23043 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 399 Guests: Dr. Mana Ali Carter Privacy Policy

For Carol Hunley, MS is more than a diagnosis—it's a call to action. Living with Secondary Progressive Multiple Sclerosis, she has turned her own challenges into fuel for advocacy, serving as Chair of the Carolinas chapter of the National MS Society. With relentless determination and a heart for the MS community, Carol is working to ensure that those living with MS don't just survive, but thrive, while pushing for a future free from the disease.Featuring: Carol HunleyInterviewed by: Allié McGuireMusic by: BorrtexProduced by: AwareNow Media

Tune in to the first episode of our new series, Navigating the Path: Resources for Patients with Neurodegenerative Diseases, which highlights organizations that provide resources and information to people with neurodegenerative diseases. In this episode, Lauren Corley, a National MS Society representative, joins our host Christina Burke to explore the many resources and programs offered by the society. From financial assistance for assistive devices to continuing education opportunities for clinicians, learn how the National MS Society is making a meaningful impact in the MS community. They are both joined by Gregory Brusola, a board member of the DD SIG and coordinator of the DD SIG liaison program, who discusses the role of DD SIG liaisons and connections for PTs with the National MS Society.  The Degenerative Diseases Special Interest Group is part of the Academy of  Neurologic Physical Therapy – www.neuroPT.org  For questions about this podcast, please contact neuroddsig@gmail.com.  Show notes available Visit the National MS Society website for more information on their programs 

When you look at a list of the typical symptoms associated with perimenopause, you'd think you were looking at a list of MS symptoms. And, for women living with MS, that's where the confusion begins. With an estimated 30% of the current MS population now in peri- or post-menopause, researchers are beginning to focus on how menopause and MS interact and the best ways to treat symptoms.   Dr. Riley Bove, a neurologist and founding director of the Sex and Gender-Enriched (SAGE) Neurology Program at the University of California San Francisco, joins me to talk about the things you need to know when you're managing MS while you're managing menopause. We'll also tell you about this year's winner of the John Dystel Prize for Multiple Sclerosis Research. We'll share a deeply personal poem written by a friend who's been living with MS since 1988. And we'll tell you about the results of a study that should be a reminder of the importance of starting disease-modifying therapy and the value of early intervention. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: We're in Washington, D.C., at the National MS Society's Public Policy Conference  :22 Dr. Amit-Bar-Or is the winner of the 2025 John Dystel Prize for Multiple Sclerosis Research  2:26 Magician Wayne Dobson's poem  7:07 STUDY: Cognitive impairment is prevalent among people living with untreated MS  10:23 Dr. Riley Bove talks about the things you need to know when you're managing MS while you're managing perimenopause and menopause  14:18 Share this episode  32:56 Have you downloaded the free RealTalk MS app?  33:16 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/395 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Become an MS Activist Web: https://nationalmssociety.org/advocacy Email: msactivist@nmss.org RealTalk MS 2025 ACTRIMS Forum YouTube Playlist https://www.youtube.com/playlist?list=PLATxgj1uHpxNEoc2-9_7-Wzmr96B7wt2C Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 395 Guests: Dr. Riley Bove Privacy Policy

This week, Crappie Kirby is joined by Jacqueline Helms from the National MS Society to talk about Bike MS. See omnystudio.com/listener for privacy information.

Next week, a couple of hundred MS activists will gather in Washington, D.C. for the National MS Society's Public Policy Conference. As we're seeing devastating cuts in funding for MS research, layoffs in every major governmental agency that impacts our healthcare, including the National Institutes of Health, the FDA, CDC, Health and Human Services, and the Department of Veterans Affairs, and even Medicaid funding is at serious risk, advocacy has never been more important than it is right now.    I'm devoting this entire episode to a conversation with Steffany Stern, the National MS Society's Vice President for Advocacy, who joins me to assess the current legislative climate in Washington, D.C., and give us a preview of the issues that will take center stage at this year's Public Policy Conference.  We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Is there anything more urgent and important to discuss than advocacy?  :22 Steffany Stern discusses the current legislative climate in our nation's capitol, and gives us a sneak peek at next week's National MS Society Public Policy Conference  2:16 Share this episode  25:40 Have you downloaded the free RealTalk MS app?  26:08 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/394 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Become an MS Activist Web: https://nationalmssociety.org/advocacy Email: msactivist@nmss.org RealTalk MS 2025 ACTRIMS Forum YouTube Playlist https://www.youtube.com/playlist?list=PLATxgj1uHpxNEoc2-9_7-Wzmr96B7wt2C Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 394 Guests: Steffany Stern Privacy Policy

It's MS Awareness Week, and the National MS Society is asking everyone in the MS community to tell MS exactly what they think of it. We're kicking off MS Awareness Week by introducing you to two difference-makers in the MS community who have each found their own way of talking back to MS.   Case Jernigan is an experimental animator, narrative gamemaker, and educator. His short animated documentary, Noggin, is currently making the rounds of the film festival circuit, raising awareness of how Case reacted and responded to his early symptoms of MS. Suni Conway is an MS activist who has lived with MS for nearly 13 years. Suni uses her social media platform to raise awareness about MS diagnosis and treatment, and the need for healthcare reform.  Be sure to follow RealTalk MS all week long, as we celebrate MS Awareness Week with bonus episodes featuring conversations with leading MS experts from the 2025 ACTRIMS Forum! We have a lot to talk about! Are you ready for RealTalk MS??!   This Week: It's MS Awareness Week!  :22 Case Jernigan explains how his short animated documentary, Noggin, reflects the early parts of his MS journey  1:02 Suni Conway discusses the motivation behind her social media efforts and why advocacy is so important     12:05 Share this episode  35:52 Don't miss RealTalk MS bonus episodes all week long during MS Awareness Week!  36:12 Have you downloaded the free RealTalk MS app?  36:32 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/393 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com RealTalk MS on YouTube https://www.youtube.com/@RealTalkMS VIDEO: Noggin https://vimeo.com/casejernigan/noggin Suni Conway on Instagram https://www.instagram.com/sunisideupproject Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 393 Guests: Case Jernigan and Suni Conway Privacy Policy

More than half of the people living with MS live with pain. And, too often, the distraction and discomfort of MS-related pain can stop you from fully engaging in every aspect of your life. Dr. Bianca Weinstock-Guttman joins me to discuss treatment options for managing MS pain. Dr. Weinstock-Guttman is a neurologist and professor of neurology at the Jacobs School of Medicine and Biomedical Sciences at the University of Buffalo, where she also serves as the Director of the Jacobs Multiple Sclerosis Center for Treatment and Research. We're also taking a moment to respond to all your questions and concerns about the state of healthcare policy and administration in the U.S. federal government. MS experts in Australia and New Zealand have released recommendations for MS care in those countries. We're sharing all the details.  We'll tell you about the National MS Society's initiative designed to improve access to MS care in rural communities in the U.S. And we'll share the details of a study that shows that, together, obesity and smoking worsen MS symptoms faster. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Managing MS pain  :22 Responding to your concerns about healthcare in the U.S.  :57 Recommendations published for treating MS in Australia and New Zealand  7:16 National MS Society has launched an initiative designed to improve access to MS care in rural communities in the United States  9:09 Together, smoking and obesity worsen MS physical and cognitive symptoms faster  12:46 Dr. Bianca Weinstock-Guttman shares treatment options for managing MS pain  14:14 Share this episode  29:19 Have you downloaded the free RealTalk MS app?  29:38 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/390 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com RealTalk MS on YouTube https://www.youtube.com/@RealTalkMS Consensus Recommendations on Multiple Sclerosis Management in Australia and New Zealand https://mja.com.au/journal/2025/222/7/consensus-recommendations-multiple-sclerosis-management-australia-and-new STUDY: Smoking and Obesity Interact to Adversely Affect Disease Progression and Cognitive Performance in Multiple Sclerosis https://onlinelibrary.wiley.com/doi/10.1111/ene.70058 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 390 Guest: Dr. Bianca Weinstock-Guttman Privacy Policy

Eden is a leader of The LSS Group and brings the resources of RBC Wealth Management to entrepreneurs, retirees, corporate executives, small business owners, entertainment industry professionals, foundations and institutions that seek to grow their assets. As part of assessing investment solutions, great consideration is given to the liability aspects of the balance sheet and how best to maximize yield curve dynamics. Eden's primary mission is to build tailored portfolios that help address the sophisticated financial requirements of the team's client base. Additionally, she believes financial literacy is fundamental to empowering clients so that they feel confident in advocating for themselves and making informed decisions. Eden has written on topics regarding signs of cognitive decline and how to navigate a divorce when emotions often cloud sound judgement. Eden delivers access to the full complement of products and services available at RBC Wealth Management and works with the Investment Bank and Capital Markets teams as opportunities present. Her commitment to attentive personal service extends beyond investment guidance—she and the other two principals of The LSS Group draw from 100+ years of combined experience to offer a powerful level of interconnectivity that is essential to the clients in their charge. Leveraging her 27 years of asset management background, Eden has significant investment capabilities developed as a financial advisor at Citigroup and its predecessor firms. With her team, she joined J.P. Morgan Securities in 2009 and RBC Wealth Management in 2020 to bring clients the firm's intellectual capital, industry-leading quality research and global investment platform. Eden earned a Bachelor of Arts degree from the University of Maryland, College Park and studied at the University of London, Birkbeck College. She is the chairman of the board of directors for MS Hope for a Cure, and in the fall of 2006 was inducted into the National MS Society's Hall of Fame. She lives with her husband and three children in lower Manhattan. www.motifplanning.com/ep-92

When we talk about myelin damage, most of us typically think of the brain. After all, that myelin is located in your central nervous system. But the inflammation that causes myelin damage may be triggered by activity that's taking place well south of your central nervous system, in your gut microbiome, the colony of trillions of bacteria and microorganisms that live in your intestines.  Dr. Ashutosh Mangalam joins me to help us understand what this gut-brain connection is all about, how that connection impacts MS, and what you can do to change the makeup of your gut microbiome. Dr. Mangalam is an Associate Professor of Pathology at the Carver College of Medicine at the University of Iowa, where his research is focused on studying the gut microbiome and the immune system in multiple sclerosis. We're also talking about the newly published guidance from the European Committee for Treatment and Research in MS and the European Society for Blood and Marrow Transplantation, recommending autologous hematopoietic stem cell transplantation (aHSCT) for treating some cases of relapsing-remitting MS. We'll tell you about an experimental drug that may resolve MS-related vision issues through remyelination.  And we'll introduce you to this year's winner of the Barancik Prize for Innovation in MS Research. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: The gut-brain connection (and what it means if you're liviing with MS)  :22 The European Committee for Treatment and Research in MS and the European Society for Blood and Marrow Transplantation issue a recommendation for stem cell therapy to treat relapsing-remitting MS  1:35 Researchers develop a drug that may resolve MS-related vision issues through remyelination  4:44 National MS Society names this year's winner of the Barancik Prize for Innovation in MS Research  7:23 Dr. Ashutosh Mangalam explains how (and why) the brain-gut connection impacts MS    11:14 Share this episode  35:38 Have you downloaded the free RealTalk MS app?  35:58 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/388 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com RealTalk MS on YouTube https://www.youtube.com/@RealTalkMS Autologous Hematopoietic Stem Cell Transplantation for Treatment of Multiple Sclerosis and Neuromyelitis Optica Spectrum Disorder -- Recommendations from ECTRIMS and EBMT https://www.nature.com/articles/s41582-024-01050-x National MS Society Releases Recommendations for aHSCT-Bone Marrow Transplant for MS https://nationalmssociety.org/news-and-magazine/news/national-ms-society-releases-recommendations STUDY: Incomplete Remyelination Via Therapeutically Enhanced Oligodendrogenesis Is Sufficient to Recover Visual Cortical Functionhttps://www.nature.com/articles/s41467-025-56092-6 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 388 Guest: Dr. Ashutosh Mangalam Privacy Policy

02/02/25The Healthy Matters PodcastS04_E08 - The MS Journey: From Symptoms to SolutionsDid you know that 1,000,000 people in the U.S. alone are living with Multiple Sclerosis?  We've all likely heard of MS before, and many of us may even know someone with the condition, but there are always a lot of questions when it comes to these types of diseases.  Like, what's actually happening in the body?  What are typical symptoms?  And what help is there available to those living with it?Thankfully, we've got experts on hand to guide us through the basics.  On Episode 8, we'll be joined by Dr. Ali AlMoamen (MB, BCh, BAO), a board-certified neurologist at Hennepin Healthcare and a specialist in autoimmune conditions like MS.  He's helped many patients and their loved ones navigate this perplexing, and oftentimes scary condition, and has assisted them on their way to continuing to live a fulfilling life.  On this show, we'll take a look at the root causes of the condition, the challenges in diagnosing it, the current and forthcoming treatment options, and how we all can help anyone living with MS.  Please join us.Additional resources and information can be found on the National MS Society website.We're open to your comments or ideas for future shows!Email - healthymatters@hcmed.orgCall - 612-873-TALK (8255)Get a preview of upcoming shows on social media and find out more about our show at www.healthymatters.org.

One of the most important MS research events every year is the annual European Committee for Treatment and Research in MS Scientific Congress, usually referred to by its acronym, ECTRIMS.    You've made our podcast episode that followed ECTRIMS the most downloaded episode of the year. So, this week, I'm revisiting the two conversations that I had immediately after the ECTRIMS conference ended. In what has become an annual tradition, it's my privilege to sit down with the National MS Society's Executive Vice-President of Research, Dr. Bruce Bebo, just minutes after the conclusion of ECTRIMS to get his first impressions of the news and presentations that caught his eye.   This year, I also wanted to bring you the perspective of someone who's living with MS, who attended ECTRIMS for the very first time.  So, less than an hour after the conference concluded, I had a conversation with Kristine Werner Ozug. (Full disclosure, Kristine is a member of the RealTalk MS team.) We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Revisiting ECTRIMS 2024   :22 Dr. Bruce Bebo shares the announcements and presentations that caught his eye at ECTRIMS  1:59 Kristine Werner Ozug shares a patient's perspective on attending the largest MS research conference in the world  14:07 Share this episode  26:54 Have you downloaded the free RealTalk MS app?  27:14 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/383 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com RealTalk MS at ECTRIMS on YouTube https://www.youtube.com/playlist?list=PLATxgj1uHpxPOTklQKDkASWTEBoHXVGH1 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 383 Guests: Dr. Bruce Bebo and Kristine Werner Ozug Privacy Policy

One in four babies is now delivered surgically. Should we be concerned?See omnystudio.com/listener for privacy information.

This is the story of Army veteran and former Apache helicopter pilot Kevin Byrne, and his unstoppable mission to fight Multiple Sclerosis (MS). Initially diagnosed while leading a squadron in Korea, he has since become a staunch supporter of his fellow MS patients and the National MS Society, through his non-profit organization “Never Stop Never Quit”.Through his website he offers books, blogs, recipes other ways people living with MS can still thrive.As this holiday season serves as a reminder that we should always give more than we receive, consider making a contribution to Never Stop Never Quit .com and support all those living with MS.More about MS:Multiple sclerosis (MS) is a chronic autoimmune disease that damages the central nervous system, which includes the brain and spinal cord: SymptomsMS can cause a wide range of symptoms, including vision loss, pain, fatigue, impaired coordination, numbness, tingling, weakness, and difficulty with mobility. Symptoms can vary from person to person and can change over time. CausesMS occurs when the immune system mistakenly attacks healthy cells in the central nervous system. This damage to the protective coating of nerve cells, called demyelination, can lead to paralysis. TreatmentThere is no cure for MS, but medications and physical therapy can help manage symptoms and slow disease progression. Early treatment can lead to better outcomes. PrognosisMost people with MS have a normal life expectancy, however end up dealing with degrading physical abilities and chronic symptoms over time .Learn more about Never Stop, Never Quit and Donate here:https://neverstopneverquit.com/To reach CBS Eye on Veterans Host, Phil Briggsphil@connectingvets.comFollow on social:@philbriggsVet@EyeOnVeteransSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

After 24 years with the National MS Society, most recently as Chief Advocacy, Services and Science Officer, Dr. Tim Coetzee is the new President and CEO of the Society. Serving the Society has been a driving force in his life's work and he is eager to build on the amazing achievements that have been accomplished with the organization over the years. Join them as they discuss how this position differs from his last, what new initiatives he hopes to bring to the Society, and what short and long term visions he has for the Society and the MS community. Join the conversation on our MS forums: www.multiplesclerosisnewstoday.com/forums/ Follow us on social media: Instagram – www.instagram.com/msnewstoday Facebook – www.facebook.com/multiplesclerosisnewstoday X – x.com/MSNewsToday For more news on MS, visit: www.instagram.com/msnewstoday/

More effective treatments and even cures for MS can only happen as a result of clinical research. And clinical research can only happen when people living with MS choose to become research participants. But what are the pros and cons that you should consider when you're thinking about participating in MS research? The National MS Society's Associate Vice President of Research, Dr. Kathy Zackowski, returns to the podcast to discuss the risks and benefits of participating in clinical research. We're also joined by Mimi Brown, who lives with primary progressive MS. Mimi will share her experiences as a participant in several MS research studies. We'll also remember Professor Giancarlo Comi, a true giant in the MS research community who passed away last week. We'll discuss the updated Brain Health -- Time Matters report. We'll tell you about a research collaboration between the National MS Society, Breakthrough T1D (formerly the Juvenile Diabetes Research Foundation), and the Lupus Research Alliance. And we're sharing the details about the International Progressive MS Alliance's upcoming global webcast. We have a lot to talk about! Are you ready for RealTalk MS??! Remembering Professor Giancarlo Comi  :22 This Week: Participating in MS research   3:28 Experts release the Brain Health -- Time Matters report  4:10 The National MS Society teams up with Breakthrough T1D and the Lupus Research Alliance to fund research in common mechanisms that drive autoimmunity  6:35 The International Progressive MS Alliance is hosting a global webcast on Dec. 11  9:27 Dr. Kathy Zackowski and Mimi Brown discuss the risks and benefits of participating in MS research  10:58 Share this episode  29:52 Have you downloaded the free RealTalk MS app?  30:11 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/379 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com REPORT: Brain Health -- Time Matters https://www.msbrainhealth.org/wp-content/uploads/2024/09/Brain-Health-Time-Matters-2024.pdf VIDEO: Brain Health -- Time Matters https://www.msbrainhealth.org/launch-videos Decoding Immunity: Common Mechanisms of Autoimmunity https://decodingautoimmunity.org REGISTER FOR THE WEBCAST: What We're Learning from Clinical Trials https://www.msif.org/webcast-clinical-trials Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 379 Guests: Dr. Kathy Zackowski and Mimi Brown Privacy Policy

Learning to live with MS is learning to live with loss. For some, those losses may be minor and seem relatively insignificant. For others, those losses can be huge and life-altering. The definition of grief is an emotional response to a significant loss. It's not unusual to grieve over those things in your life that have been lost due to MS. In fact, healthy grieving is a necessary emotional step to moving forward in life. Dr. Holly Hendin, a faculty physician and psychiatrist at St. Joseph's Hospital Medical Group Outpatient Behavioral Health in Phoenix, Arizona, joins me to explore grieving when you live with MS. We'll also share the results of a study that show other health conditions can have a negative impact on MS disease activity, like relapses and disability worsening. And we're sharing the details of the $4.6 million dollar investment the National MS Society is making in research focused on myelin repair. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Grieving when you're living with MS  :22 A study shows how other health conditions may cause MS to worsen  2:00 The National MS Society is investing $4.6 million dollars in research focused on myelin repair  6:21 Dr. Holly Hendin helps us understand the importance of healthy grieving when you're living with MS  9:39 Share this episode  35:30 Have you downloaded the free RealTalk MS app?  35:50 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/374 ADD YOUR VOICE TO THE CONVERSATION I've always considered the RealTalk MS podcast a conversation. This is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com STUDY: Comorbidity and Disease Activity in Multiple Sclerosis https://jamanetwork.com/journals/jamaneurology/fullarticle/2823966 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 374 Guest: Dr. Holly Hendin Privacy Policy

Now that he's had a chance to digest all of the research presented at ECTRIMS, Dr. Bruce Bebo, the National MS Society's Executive Vice President of Research, is back to share the key research presented at the largest MS research conference in the world. This episode of RealTalk MS is the perfect follow-up to my initial conversation with Bruce, which occurred just minutes after ECTRIMS ended. (If you missed our conversation, you may want to check out Episode 369 of RealTalk MS.) We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Part 2 of our coverage of ECTRIMS 2024  :22 Dr. Bruce Bebo shares the key research presented at ECTRIMS  1:06 Share this episode  26:13 Have you downloaded the free RealTalk MS app?  26:31 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/373 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com RealTalk MS Episode 369: ECTRIMS 2024 with Kristine Werner Ozug and Dr. Bruce Bebo https://realtalkms.com/369 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 373 Guest: Dr. Bruce Bebo Privacy Policy

Open enrollment is underway! And if you're one of the 25% of people living with MS who get their coverage through Medicare, there are some major changes coming in 2025. So, it's especially important that you review your prescription drug coverage to make sure you're enrolled in the Medicare Part D plan that's best for you.   Sarah Anderson, pharmacist and senior director of clinical resources and programming at the National MS Society, joins me to help us decipher those changes and navigate the sometimes confusing world of health insurance. We'll also tell you about a research team that's editing human DNA to promote myelin repair. We'll share the results of a study that offers some surprising evidence about the quality of MS care for women in France.  We'll explain why a study that shows people with MS are at a higher risk for being diagnosed with cancer may not be as scary as it sounds. In my conversation with Dawn Schottlandt, you'll hear the story of In My Running Shoes and learn how people with MS and other disabilities can benefit from their work. And we'll give you all the details about artist Elizabeth Jameson's exhibition, An Intimate Journey, which opens in New York on Saturday, October 19th. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Open Enrollment has begun  :22 Researchers succeed in editing human DNA to promote myelin repair  1:14 Research reveals women with MS are often undertreated in France  3:38 Are people with MS more likely to develop cancer?  6:18 Dawn Schottlandt explains why she founded In My Running Shoes and how you might benefit  9:12 Elizabeth Jameson's art exhibition, An Intimate Journey, opens in New York on Saturday  16:01 Sarah Anderson explains the changes to Medicare in 2025  18:04 Share this episode  27:56 Have you downloaded the free RealTalk MS app?  28:16 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/372 ADD YOUR VOICE TO THE CONVERSATION I've always considered the RealTalk MS podcast a conversation. This is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com STUDY: CRISPR-Edited ES-Derived Oligodendrocyte Progenitor Cells Improve Remyelination in Rodents https://www.nature.com/articles/s41467-024-52444-w STUDY: Cancer Risk Among Patients with Multiple Sclerosis https://www.neurology.org/doi/10.1212/WNL.0000000000209885 In My Running Shoes https://inmyrunninigshoes.org Elizabeth Jameson exhibition at the Positive Exposure Gallery https://positiveexposure.org/event/41014 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 372 Guests: Dawn Schottlandt and Sarah Anderson Privacy Policy

In the seven years that I've been hosting RealTalk MS, no one has ever described a mobility device as life-changing. That is until listener Dee Ecklund reached out to tell me about her experience with the Alinker.  One of my goals in producing this podcast is to introduce the RealTalk MS listener community to people who are difference-makers. And Dee's initial DM led to my conversation with Dee and the inventor of the Alinker, a true difference-maker, BE Alink.  The National MS Society's 3rd annual Hispanic/Latinx MS Experience Summit is just two days away! We're sharing all the details, including how you can register for this free virtual event. And I'm sharing my thoughts following attending the University of Pittsburgh's bi-annual caregiver research conference. We have a lot to talk about! Are you ready for RealTalk MS??! The Hispanic/Latinx MS Experience Summit is two days away!  :22 Don't miss our ECTRIMS Extra Conversations  1:38 Thoughts following attending the caregiver research conference at the University of Pittsburgh  2:15 Dee and BE discuss all things Alinker (including how you can get yours!)  9:26 Share this episode  37:02 Have you downloaded the free RealTalk MS app?  37:23 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/371 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Hispanic/Latinx MS Experience Summit https://nationalmssociety.org/resources/get-support/education-programs-and-library/hispanic-latinx-ms-experience MS Care Partner Connection https://mscarepartnerconnection.com The Alinker https://thealinker.com Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 371 Guests: Dee Ecklund and BE Alink Privacy Policy

In 2020, the National MS Society convened the Pathways to Cures Think Tank. I shared news and interviews from what I considered a historic meeting back in Episode 125 of RealTalk MS.  The information shared and the work generated by that Think Tank led to the Pathways to Cures Global Summit in 2023. In Episodes 297and 298 of RealTalk MS, I shared news and interviews from what I described as yet another historic meeting. The Pathways to Cures Research Roadmap has been updated, and I'm devoting this week's episode of RealTalk MS to my conversation with the National MS Society's Executive Vice-President of Research, Dr. Bruce Bebo, and the MS Society's Vice-President of Global Initiatives, Shawna Golden, to bring us up to date on how this global MS research initiative has been refined and enhanced and how it's resetting the global MS research agenda. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: The Pathways to Cures research roadmap has been updated  :22 Dr. Bruce Bebo and Shawna Golden discuss the refined and enhanced Pathways to Cures research roadmap  2:34 Share this episode  29:58 Have you downloaded the free RealTalk MS app?  30:18 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/370 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com RealTalk MS Episode 125: From the Pathways to Cures Think Tank https://realtalkms.com/125 RealTalk MS Episode 297: From the Pathways to Cures Global Summit (Part 1) https://realtalkms.com/297 RealTalk MS Episode 298: From the Pathways to Cures Global Summit (Part 2) https://realtalkms.com/298 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 370 Guests: Dr. Bruce Bebo, Shawna Golden Privacy Policy

ECTRIMS 2024, the largest MS research conference in the world concluded last week, and in this week's episode, we'll be hearing two slightly different perspectives on which news, announcements, and presentations stood out at this year's meeting.   The ECTRIMS conference can feel almost overwhelming. You find yourself among 9 or 10 thousand other attendees, trying to determine which of the more than 1700 scientific presentations you want to learn more about. It's both a marathon and a sprint that seem to be taking place simultaneously. Kristine Werner Ozug is a member of the RealTalk MS team and a person who lives with MS. This week, Kristine shares her perspective on attending ECTRIMS for the first time.  At the conclusion of ECTRIMS, you can almost hear a collective sigh coming from all the attendees. It feels like you've crossed the finish line, but now the work of sorting and processing all that you've seen, heard, and read over what feels like a non-stop 72-hour blur actually begins. Joining me to share his initial thoughts on the ECTRIMS news that caught his eye is the National MS Society's Executive Vice-President of Research, Dr. Bruce Bebo. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: ECTRIMS 2024  :22 It's our 7th anniversary!  1:28 Kristine Werner Ozug shares a patient's perspective on attending the largest MS research conference in the world  3:56 Dr. Bruce Bebo shares the news and announcements that caught his eye at ECTRIMS 17:19 Share this episode  28:59 Have you downloaded the free RealTalk MS app?  29:19 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/369 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 369 Guests: Kristine Werner Ozug, Dr. Bruce Bebo Privacy Policy

Living with MS is expensive. A recent study funded by the National MS Society found the average cost of living with MS in the United States is $88,487 a year.  Even with insurance, that can turn out to be a heavy lift. One thing you don't need is to be worrying about money while you're already worrying about MS. So, when I think about discussing budgeting and managing your personal finances when you're living with MS, I think we're really talking about preserving your quality of life. Joining me with strategies for budgeting and managing debt when you're living with MS is the Senior Vice President of Membership and Media Relations at the National Foundation for Credit Counseling, Bruce McClary. We'll also tell you about the updated Pathways to Cures Research Roadmap and the first ever global landscape analysis of MS research funding. We're sharing very encouraging results from the Phase 2 open-label extension study of Fenebrutinib, an experimental BTK inhibitor. We'll give you the details of a pilot study that demonstrated what may be a successful treatment for sexual dysfunction among men and women living with MS. We'll tell you why middle-aged people with MS may want to consider resistance training. And we'll tell you how to register for the National MS Society's Voting Without Barriers webinar.  We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Budgeting for Living with MS  :22 The Pathways to Cures Research Roadmap has been updated and refined  1:25 There's very encouraging news from the Phase 2 open-lable extension study of Fenebrutinib    5;31 Results from a pilot study point to successful treatment for sexual dysfunction among men and women living with MS  6:35 Study results show that resistance training is beneficial for middle-aged people with MS  9:52 We're 8 weeks away from election day in the U.S. and the National MS Society is hosting a webinar about access to polling places  11:36 Senior Vice President of Membership and Media Relations at the National Foundation for Credit Counseling, Bruce McClary, shares tips and strategies for taming your household budget and budgeting for living with MS  15:49 Share this episode  33:16 Have you downloaded the free RealTalk MS app?  33:36 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/367 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com RealTalk MS Episode 297: From the Pathways To Cures Global Summit (Part 1) https://realtalkms.com/297 RealTalk MS Episode 298: From the Pathways to Cures Global Summit (Part 2) https://realtalkms.com/298 The Refined Pathways To Cures Research Roadmap https://journals.sagepub.com/doi/10.1177/13524585241266483 The First Global Landscape Analysis of Multiple Sclerosis Research Funding https://journals.sagepub.com/doi/full/10.1177/13524585241265961 STUDY: Tibial Nerve Stimulation in the Management of Primary Sexual Dysfunction in Patients with Multiple Sclerosis: A Pilot Randomized Control Trial https://link.springer.com/article/10.1007/s10072-024-07687-2 STUDY: Is Resistance Training an Option to Improve Functionality and Muscle Strength In Middle-Aged People with Multiple Sclerosis? A Systematic Review and Meta-Analysis https://www.mdpi.com/2077-0383/13/5/1378 REGISTER for the Voting Without Barriers Webinar https://p2a.co/Dqy1Xpk Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 367 Guest: Bruce McClary Privacy Policy

Thank you so much for tuning in today! I have the Executive Vice President of Advocacy and Healthcare Access with me today. Her name is Bari Talenti. On today's episode, we talk about changes to healthcare policies for MS and what to keep an eye out for that could increase access and equity to healthcare. As the Executive Vice President of Advocacy and Healthcare Access, Bari leads teams who leverage public policies to find solutions for people with MS, engage healthcare providers and others in the healthcare space and work towards people affected by MS having access to the high quality healthcare they need. Bari also leads the Society's work to increase affordability and access to MS medications. In 2018, Bari was elected as president of the MS Coalition and explores opportunities to leverage the collaborative efforts of the nine Coalition organizations to improve the lives of people affected by MS. Bari received a law degree from the University at Buffalo School of Law and is a member of the New York and District of Columbia bars. She has been with the National MS Society since 2004. Resources mentioned in this episode: MS Activist Network: https://www.nationalmssociety.org/how-you-can-help/get-involved/advocate/become-an-ms-activist/join-ms-activist-network MS activist X account: https://x.com/MSactivist MS Navigator: https://www.nationalmssociety.org/resources/get-support/ms-navigator Additional Resources: https://www.doctorgretchenhawley.com/insider Reach out to Me: hello@doctorgretchenhawley.com Website: www.MSingLink.com Social: ★ Facebook: https://www.facebook.com/groups/mswellness ★ Instagram: https://www.instagram.com/doctor.gretchen ★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1 → Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse → Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram → The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

Less than two weeks ago, the National MS Society announced the appointment of Dr. Tim Coetzee as its new President and CEO. The MS Society's board chair, Peter Porrino, commented, "Tim is a trusted voice of the global MS community, a highly respected scientist, and we are excited for him to bring his transformative leadership to drive us into our next era to achieve a world free of MS." I thought it was important for everyone in the RealTalk MS listener community to hear from Tim and learn firsthand what his vision and priorities are for the MS Society. So, I'm dedicating this entire episode to my conversation with the new President and CEO of the National MS Society, Dr. Tim Coetzee. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: A conversation with the new President and CEO of the National MS Society, Dr. Tim Coetzee  :22 Share this episode  28:32 Have you downloaded the free RealTalk MS app?  28:52 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/361 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 361 Guest: Dr. Tim Coetzee Privacy Policy

It's hard to imagine any area of our lives that hasn't been transformed by digital technology. That's certainly true for healthcare in general and MS diagnosis and treatment in particular. Dr. Riley Bove joins me to discuss the role that digital technology already plays in the diagnosis and treatment of MS and to share a preview of what's coming next. The National MS Society has named its new President and CEO. We're sharing the details!  We'll tell you about some of the benefits that are being observed in the Phase 2 clinical trial and extension study of Frexalimab, an experimental antibody that may be on the path to becoming a highly effective disease-modifying therapy. We'll share the details behind the FTC's planned lawsuit against the three largest Pharmacy Benefit Managers (and we'll tell you why that matters to anyone taking a prescription medication). Stressing out about an upcoming MRI exam? We're sharing info about Happy MRI, a website that's been designed to relieve MRI-related anxiety. And we're reminding you that Crush MS, the Napa Valley wine-tasting fundraising event, is happening this Saturday, July 27th. We'll let you know where to get your ticket! We have a lot to talk about! Are you ready for RealTalk MS??! This Week: The impact of digital technology  :22 Dr. Tim Coetzee named the President and CEO of the National MS Society  1:50 Frexalimab shows significant benefits in Phase 2 clinical trial  4:08 FTC to file suit against three largest Pharmacy Benefit Managers  6:08 Happy MRI is designed to relieve MRI-related anxiety  8:03 We're just days away from Crush MS  9:47 Dr. Riley Bove discusses how digital technology is changing MS diagnosis and treatment  11:21 Share this episode  28:54 Next week: Newly named President and CEO of the National MS Society, Dr. Tim Coetzee, talks about his vision for the MS Society and shares his immediate priorities  29:14 Have you downloaded the free RealTalk MS app?  29:32 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/360 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com RealTalk MS Episode 359: The Unraveling with Dr. Nara Michaelson https://realtalkms.com/359 Happy MRI https://happymri.com CRUSH MS https://crushms.org Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 360 Guests: Dr. Riley Bove Privacy Policy  

Over the course of her 39-year career with the National MS Society, including the past 13 years as its President and CEO, Cyndi Zagieboylo has been a driving force behind major initiatives that have fundamentally changed the MS treatment and research landscape. Creating a world where cures for MS are now within reach, Cyndi has led the work to make living with MS better today than it's ever been. On July 1, Cyndi is retiring from her remarkable career at the National MS Society. I had an opportunity to talk with Cyndi about the progress she's witnessed and the progress she has driven in leading the MS Society. It's been a career filled with so many moments that are worthy of celebration, I am devoting this entire episode of RealTalk MS to one last conversation with Cyndi Zagieboylo. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: A final conversation with the National MS Society's President and CEO, Cyndi Zagieboylo  :22 A look back at some of the most impactful initiatives that were led by Cyndi  1:43 Share this episode  30:39 Next Week: Lifestyle medicine physician Dr. Linda Doggett shares tips and strategies for making healthy lifestyle choices that will improve your quality of life   31:00 Have you downloaded the free RealTalk MS app?  31:50 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/356 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 356 Guest: Cyndi Zagieboylo Privacy Policy

Two weeks ago, thousands of clinicians, nurses, physician's assistants, rehabilitation experts, and others traveled to Nashville to attend the Consortium of Multiple Sclerosis Centers 38th Annual Meeting. This is Part 2 of our coverage from that meeting. In this episode, we're sharing our conversations with some of the experts who were at the meeting to present their research. You'll hear the National MS Society's Executive Vice President for Advocacy and Healthcare Access, Bari Talente, share her thoughts on why getting early support when you've been diagnosed with MS can make a difference in how you begin your MS journey. Dr. Nancy Sicotte talks about why early diagnosis and treatment are important in ensuring the best long-term patient outcomes. Dr. Brian Sandroff asks and answers the question, "Does exercise improve cognitive function in MS?" And Dr. Anthony Feinstein shares what he and his team have learned about how cannabis impacts people with MS. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Part 2 of our coverage of the CMSC Annual Meeting  :22 National MS Society Executive Vice President for Advocacy and Healthcare Access, Bari Talente, discusses the importance of finding early support when you've been diagnosed with MS 1:18 Dr. Nancy Sicotte explains why early diagnosis and treatment make a difference in MS  8:57 Dr. Brian Sandroff poses (and answers) the question, "Doe exercise improve cognitive functioning in MS?"  17:11 Dr. Anthony Feinstein shares evidence gathered from his team's research into how cannabis impacts MS   23:58 Share this episode  38:13 Next Week: The North American Research Committe on Multiple Sclerosis (NARCOMS) with Managing Director, Dr. Robert Fox  38:34 Have you downloaded the free RealTalk MS app?  38:54 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/354 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com RealTalk MS Episode 353: From the Consortium of MS Centers 38th Annual Meeting with Dr. Kathy Zackowski and Dr. Stephen Krieger https://realtalkms.com/353 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 354 Guests: Bari Talente, Dr. Nancy Sicotte, Dr. Brian Sandroff, Dr. Anthony Feinstein Privacy Policy  

Last week, thousands of clinicians, nurses, physician's assistants, rehabilitation experts, and others traveled to Nashville to attend the Consortium of Multiple Sclerosis Centers 38th Annual Meeting. Welcome to Part 1 of our coverage from that meeting. In this episode, I'm talking with Dr. Kathy Zackowski, Associate Vice-President for Research at the National MS Society, and Dr. Zackowski is sharing some of the presentations that caught her attention. Next, you'll hear my conversation with Dr. Stephen Krieger, a neurologist at the Corinne Goldsmith Dickinson Center for Multiple Sclerosis. Dr. Krieger explains the hidden side of MS, why, when it comes to treating MS, "detecting only what we measure" isn't enough, and why an EDSS of 0 is not normal. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: We're reporting from the CMSC Annual Meeting  :22 Dr. Kathy Zackowski shares some of the presentations that caught her attention  1:14 Dr. Stephen Krieger discusses the hidden side of MS, why, when it comes to treating MS,  "detecting only what we measure" isn't enough, and why an EDSS of 0 is not normal   18:56 Share this episode  33:36 Next Week: Part 2 of our coverage from the CMSC Annual Meeting  33:56 Have you downloaded the free RealTalk MS app?  34:30 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/353 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 353 Guests: Dr. Kathy Zackowski and Dr. Stephen Krieger Privacy Policy  

May 30th is World MS Day, and we're taking this opportunity to look at some of the challenges faced by people with MS around the world. Global economics and the peculiarities of different healthcare systems make fundamental issues like access to quality healthcare and affordable MS medications difficult for many and impossible for some. U.K. journalist and MS activist Rachel Horne joins me for a freewheeling conversation focused on the broad range of challenges that people with MS face every day.  We're also sharing details about the National MS Society's Black MS Experience Summit, which gets underway June 12th and 13th. Find out why you'll want to be part of this free virtual event. We have a lot to talk about! Are you ready for RealTalk MS??! The National MS Society's Black MS Experience Summit is happening June 12th and 13  :24 This Week: World MS Day is May 30th  2:07 Rachel Horne talks about some of the issues confronting people with MS around the world   8:10 Share this episode  26:51 Have you downloaded the free RealTalk MS app?  27:11 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/352 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Register for the Black MS Experience Summit https://www.nationalmssociety.org/resources/get-support/education-programs-and-library/black-ms-experience World MS Day https://worldmsday.org Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 352 Guests: Rachel Horne Privacy Policy  

Marisa Hacker, Bike MS Director at the National MS Society, joins The Manufacturing Employer to discuss how manufacturers can build company culture through corporate social responsibility (CSR). She details how to use CSR to foster a positive internal culture and improve employee engagement, retention and, ultimately, company financial performance.

We've reached a moment in time when it seems impossible to avoid at least some level of stress in our lives.  We also know that stress has been shown to make MS symptoms worse and even trigger relapses. We can't eliminate all the stress in our lives, so learning how to manage and minimize stress is an important part of living well with MS. This week, Dr. Grace Tworek, a Clinical Health Psychologist at the Mellen Center for Multiple Sclerosis at the Cleveland Clinic, joins me to talk about best practices when it comes to managing stress when you're living with MS.  We're also sharing details about the $649,000 grant made by the National MS Society to support the development of an experimental remyelination treatment. If MS is detected early -- before an individual experiences even a single symptom -- and that individual is treated aggressively with a high-efficacy disease-modifying therapy, could that individual lead a life without experiencing any symptoms of MS? We'll tell you how that scenario is playing out right now. We'll tell you about research that revealed differences in the connections between nerve cells in the brain based upon biological sex. And we'll share survey results that show people with MS may be so embarrassed about some of their symptoms that they aren't discussing them with their care team. We have a lot to talk about! Are you ready for RealTalk MS??! The complexity of the human brain  :22 This Week: Managing stress when you're living with MS  2:08 National MS Society invests $649,000 in experimental remyelination treatment  2:57 Stopping MS before symptoms start  4:32 Study shows that connections between nerve cells vary by biological sex  6:30 Are people with MS too embarrassed to discuss some of their symptoms with their care team?  8:31 Dr. Grace Tworek discusses strategies to manage stress when you're affected by MS  11:44 Share this episode  27:27 Have you downloaded the free RealTalk MS app?  27:47 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/351 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com A Browsable Petascale Reconstruction of Human Cortex https://h01-release.storage.googleapis.com/landing.html STUDY: Deep Learning with Diffusion MRI as In Vivo Microscope Reveals Sex-Related Differences in Human White Matter Microstructure https://www.nature.com/articles/s41598-024-60340-y Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 351 Guests: Dr. Grace Tworek Privacy Policy  

Lower levels of Vitamin D have been associated with a higher risk of developing MS and an increase in MS disease activity. And, for years, scientists have worked to better understand the relationship between Vitamin D and MS. Joining me to talk about the role that Vitamin D plays in MS is Dr. Ellen Mowry. Dr. Mowry is a Professor of Neurology and Epidemiology, and the Co-Director of the Multiple Sclerosis Precision Medicine Center of Excellence at Johns Hopkins University. Dr. Mowry is also one of the leading experts on Vitamin D and MS in the world. The National MS Society's virtual MS Activist Rally is happening in just two days, on April 25th! We're sharing registration details.  We'll tell you about a scientific breakthrough that has identified a specific autoantibody signature that can accurately predict MS years before someone experiences any MS symptoms. We're sharing details of a clinical trial that focused on the efficacy of Ocrevus in treating Black and Hispanic people living with MS. We'll also share the details of this trial's novel design that can serve as a blueprint for successfully engaging members of minority communities in future clinical research. We'll explain one reason why we aren't hearing as much news about the benefits of using cannabis to treat MS symptoms, and why cannabis use may actually be creating a new set of problems for people living with MS. And we're sharing study results that show that an artificial intelligence program may have a better bedside manner than your neurologist. We have a lot to talk about! Are you ready for RealTalk MS??! Don't miss it! The MS Activist Rally is happening on 4/25!  :22 This Week: The relationship between Vitamin D and MS  2:50 Autoantibody signature predicts MS years before symtoms develop  3:45 Clinical trial results show that Black and Hispanic people with MS respond well to Ocrevus  7:58 Is cannabis working for people with MS?  11:13 Study results show that ChatGPT answers questions about MS with more empathy than neurologists  14:28 Dr. Ellen Mowry updates us on what the latest research is revealing about Vitamin D and MS  18:31 Share this episode  32:06 Have you downloaded the free RealTalk MS app?  32:26 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/347 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com REGISTER for the MS Activist Rally https://events.zoom.us/ev/Ame2jWSuHmriG94cyQmlWHr45mgnzxkDv8oMZRGsrS3ZxiSj5rro~Anqb3dHg3ewiz4KNHn2Ena4bgli_WXlza_zcygZN3GinnleB6rO15OCzGQ STUDY: An Autoantibody Signature Predictive of Multiple Sclerosis https://www.nature.com/articles/s41591-024-02938-3 RealTalk MS Episode 346: Why Members of Minority Communities May Face a More Severe MS Disease Course with Dr. Annette Langer-Gould https://realtalkms.com/346 STUDY: ChatGPT vs Neurologists: A Cross-Sectional Study Investigating Preference, Satisfaction Ratings, and Perceived Empathy in Responses Among People Living with Multiple Sclerosis https://link.springer.com/article/10.1007/s00415-024-12328-x Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 347 Guest: Dr. Ellen Mowry Privacy Policy  

In past episodes of this podcast, we've discussed disparities in healthcare. We've looked at evidence that shows members of historically underserved communities who are living with MS can face a more severe disease course. We've looked at studies that have shown some members of these racial and ethnic minority groups don't do as well on disease-modifying therapies, and their MS progresses more quickly. It's often been speculated that the reason behind these disparities is based on genetics -- that members of minority communities who are living with MS are genetically predisposed to experiencing a more severe disease course.  My guest in this episode is Dr. Annette Langer-Gould, and Dr. Langer-Gould comes armed with evidence that points to a completely different set of answers for the cause of racial and ethnic disparities in MS disease severity and progression. We're also sharing registration details for the National MS Society's MS Activist Rally on April 25th! We'll tell you about an inverse vaccine that prevents the mouse model of MS (and we'll explain what an inverse vaccine is!) You'll find out where you can find the just-released video progress report from the International Progressive MS Alliance. We'll explain just-published results from an analysis that shows why anti-diabetic and weight-loss drugs like Ozempic, Jardiance, and Trulicity may be repurposed as MS therapies. And we're sharing study results with both good news and not so great news when it comes to being diagnosed and treated for MS in a timely manner. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: We're exploring the reason that members of underserved minority populations who are living with MS often experience a more severe disease course  :22 The MS Activist Rally is happening on 4/25!  1:28 An inverse vaccine prevents the mouse model of MS  3:49 The International Progressive MS Alliance has released their 2024 progress report  6:13 Can weight-loss drugs be repurposed as MS therapies?  7:33 A study shows that getting diagnosed and treated for MS is dependent upon your country's healthcare system  10:26 Dr. Annette Langer-Gould has a sobering answer as to why some members of minority communities who are living with MS experience a more severe disease course  14:48 Share this episode  31:31 Have you downloaded the free RealTalk MS app?  31:51 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/346 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com REGISTER for the MS Activist Rally https://events.zoom.us/ev/Ame2jWSuHmriG94cyQmlWHr45mgnzxkDv8oMZRGsrS3ZxiSj5rro~Anqb3dHg3ewiz4KNHn2Ena4bgli_WXlza_zcygZN3GinnleB6rO15OCzGQ VIDEO: International Progressive MS Alliance 2024 Progress Report https://www.youtube.com/watch?v=4ojRaLp_J1w STUDY: Exploring the Association Between Weight Loss-Inducing Medications and Multiple Sclerosis: Insights from the FDA Adverse Event Reporting System Database https://journals.sagepub.com/doi/10.1177/17562864241241383 STUDY: Disease-Modifying Therapy Initiation Patterns in Multiple Sclerosis in Three Large Populations https://journals.sagepub.com/doi/10.1177/17562864241233044 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 346 Guest: Dr. Annette Langer-Gould Privacy Policy  

Multiple Sclerosis (MS) is a neurological disease which can lead to loss of mobility and vision. Almost 3 million people worldwide are affected by it. There is no cure, but attempts are being made to accelerate the healing process with treatments to restore what the disease has damaged.At the same time, scientists have recently discovered a link between MS and a common virus that the majority of us carry in our bodies. It had been known for years that there was a link between Multiple Sclerosis and Epstein-Barr virus (EBV). But then, a study finally proved the link.Now, trials are underway on potential vaccines against EBV and scientists are hopeful that this could be a gateway to preventing MS. This week on the Inquiry we are asking: Are we close to a breakthrough for Multiple Sclerosis?Contributors:Tim Coetzee, Chief Advocacy, Services & Science Officer for the National MS Society, US Tjalf Ziemssen, Professor of Clinical Neuroscience and Head of the Multiple Sclerosis Center and Neuroimmunological Laboratory, University Clinic Carl-Gustav Carus, Germany Jeffrey Huang, Associate Professor of Biology, Georgetown University, US Claire Shannon-Lowe, Associate Professor in Virology, Institute of Immunology and Immunotherapy at the University of Birmingham, UKProduction team: Presenter: Tanya Beckett Producer: Matt Toulson Researcher: Ajai Singh Editor: Tara McDermott Studio Manager: Hal Haines Production Co-ordinator: Liam MorreyImage Credit: ShidlovskiGetty

If you're a regular listener, you've probably heard me say that the pace of scientific discovery is moving faster than ever before. Or you may have heard the National MS Society remind us that we've seen as many advances in MS research in the past 5 years as we have in the previous 70 years. Have you ever wondered why? A major driver of this acceleration of discovery is the technology that allows scientists to analyze massive amounts of information looking for relationships or identifying characteristics that, without this technology, would be impossible to see.  This category of tech is commonly referred to as big data. And we're closer than we've ever been to understanding the biological complexities of multiple sclerosis because we've learned to harness the computing power that allows scientists to discover those very small needles among those very large haystacks. My guest in this episode is Professor Sergio Baranzini. Professor Baranzini is this year's recipient of the Barancik Prize for Innovation in MS Research and he's someone who has successfully leveraged big data to drive big, game-changing discoveries in multiple sclerosis. We'll also share some good news about MS research funding from the federal government.  We'll review newly published results from a study that has identified 3 subtypes of MS, each with a different disease trajectory. We'll share evidence from a study that focused on whether people over the age of 50 with nonactive MS should discontinue their disease-modifying therapy. And we'll tell you about the Canadian regulatory approval of a software-based medical device that can monitor MS disease activity by tracking eye movement -- all from an iPad that people with MS can use at home. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: We're saluting Professor Sergio Baranzini, this year's winner of the Barancik Prize  :22 Congress provides $20 million in FY2024 funding for the MS Research Program  1:57 A German research team has identified 3 subtypes of MS based on their unique immune cell signature found in a blood sample  4:10 A French research team focused their study on whether people over the age of 50 with nonactive MS should discontinue their DMT. Here's what they discovered  8:58 Health Canada has approved ETNA-MS. A software-based medical device that can monitor MS disease activity by tracking eye movement  12:48 Professor Sergio Baranzini discusses how big data has fundamentally changed scientific research, and how he's using it to find cures for MS  16:44 Share this episode  32:03 Have you downloaded the free RealTalk MS app?  32:24 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/344 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com REGISTER for the MS Activist Rally https://events.zoom.us/ev/Ame2jWSuHmriG94cyQmlWHr45mgnzxkDv8oMZRGsrS3ZxiSj5rro~Anqb3dHg3ewiz4KNHn2Ena4bgli_WXlza_zcygZN3GinnleB6rO15OCzGQ STUDY: Multiple Sclerosis Endophenotypes Identified by High-Dimensional Blood Signatures are Associated with Distinct Disease Trajectories https://science.org/doi/10.1126/scitranslmed.ade8560 STUDY: High-Efficacy Therapy Discontinuation vs Continuation in Patients 50 Years and Older with Nonactive MS https://jamanetwork.com/journals/jamaneurology/article-abstract/2816799 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 344 Guest: Professor Sergio Baranzini Privacy Policy  

Where do Butterburgers rank in the pantheon of fast food burgers? Kellie Baldwin is back to eat Culver's with Michael! And it's official: Culver's will be the #6 seed in the 2024 Septemburger tournament! March is Multiple Sclerosis Awareness Month! Find out more at the National MS Society website, and if you want to go the extra mile, donate here to Kellie's Walk for MS team! "Fine" Dining is now on video! Head on over to our YouTube to watch this episode! The interior of the restaurant is verifiably covered with to-go bags, leading Kellie to suspect they're plotting a major April Fools event in this week's What's Going On Over There? A plain-clothes undercover employee is behind the counter The Atlantic Cod and the Boom Boom Sauce do not bring the goods The frozen custard absolutely does bring the goods Michael can't stop saying "Wisconstin"   Music by: James McEnelly (@Ramshackle_Music) Theme Song by: Kyle Schieffer (@JazzyJellyfish) Segment Transitions Voiced by: Sandy Rose "Fine" Dining is on Patreon! Get an extra episode every month (February concluded with a special episode recapping all restaurants on the Tchotchke of Mediocrity between 4.00 and 6.00, taking a trip down memory lane with each one), extended Yelp from Strangers segments every other week, merch discounts, download access to our music including the 7 singles from our Olive Garden musical, and more! Patreon Producers: Sean Spademan, Joyce Van, & Sue Ornelas   Get the 5 Survival Tips for Casual Dining at www.finediningpodcast.com!   Send in your Culver's stories at finediningpodcast@gmail.com.   Follow the show on TikTok and Instagram @finediningpodcast   Let me know where I should go next by leaving us a review on Apple Podcasts, Spotify, Amazon Music, PodcastAddict, Overcast, or wherever you get your podcasts. I read every one!   Next week on "Fine" Dining: Costco Food Court History feat. On Brand Podcast [Part One]! Michael's off to the king of wholesalers, Costco, and their legendary food court with Marisa Pinson and Jon Glover. We cover the huge public reactions every time Costco changes its menu. Ever work at Costco? Send your stories to finediningpodcast@gmail.com.

Hear how this iconic Midwestern treasure came to be! Michael is joined by friend-from-college Kellie Baldwin to try Culver's, the Wisconsin burger chain that popularized the "Butterburger" and frozen custard March is Multiple Sclerosis Awareness Month! Find out more at the National MS Society website, and if you want to go the extra mile, donate here to Kellie's Walk for MS team! "Fine" Dining is now on video! Head on over to our YouTube to watch this episode! The First Impressions of the restaurant involves way too many pictures of babies and young children Learn how Culver's origins come from Midwestern Supper Clubs Kellie is drunk with power as she labels Michael a Fussy Little Boy A Yelper whose diet allows fries but not burgers, and then proceeds to review the water tab on the soda machine makes his presence felt in this week's Yelp from Strangers The full review comes next week!   Music by: James McEnelly (@Ramshackle_Music) Theme Song by: Kyle Schieffer (@JazzyJellyfish) Segment Transitions Voiced by: Sandy Rose "Fine" Dining is on Patreon! Get an extra episode every month (February concluded with a special episode recapping all restaurants on the Tchotchke of Mediocrity between 4.00 and 6.00, taking a trip down memory lane with each one), extended Yelp from Strangers segments every other week, merch discounts, download access to our music including the 7 singles from our Olive Garden musical, and more! Patreon Producers: Sean Spademan, Joyce Van, & Sue Ornelas   Get the 5 Survival Tips for Casual Dining at www.finediningpodcast.com!   Send in your Culver's stories at finediningpodcast@gmail.com.   Follow the show on TikTok and Instagram @finediningpodcast   Let me know where I should go next by leaving us a review on Apple Podcasts, Spotify, Amazon Music, PodcastAddict, Overcast, or wherever you get your podcasts. I read every one!   Next week on "Fine" Dining: Culver's Review [Part Two]! Kellie and I start Septemburger in March, the chain restaurant equivalent of Christmas in July, as we try three different burgers, as well as some frozen custard. Ever work at Culver's? Send your stories to finediningpodcast@gmail.com.

Adam Gilbert has helped more than 7,500 clients finally find a diet and exercise routine they can stick with consistently. His company, MyBodyTutor, offers daily coaching and accountability with a focus on mindset, psychology and habits. In this episode, Adam shares how his father's health crisis inspired his life's work; why a lack of consistency is at the root of almost every fitness setback; and how you can build a plan that actually works over the long haul without denying yourself the foods you love.Adam also talks about: - Why fad diets fail- Mindless eating and overeating and how to break those cycles- Why you shouldn't obsess over protein- Why he doesn't believe in “cheat meals”- How to plan indulgences- Where coaching and accountability come in- Tips for parents of picky eaters - Why you should never criticize your own body in front of your kids- Business lessons from 17+ years at the helm of BodyTutorBooks Mentioned:- Pour Your Heart Into It: How Starbucks Built a Company One Cup at a Time by Howard Schultz- Good to Great by Jim Collins- The Dip by Seth GodinConnect with Adam: Website: https://www.mybodytutor.comInstagram: https://www.instagram.com/mybodytutor/TikTok: https://www.tiktok.com/@mybodytutorAdam's charitable cause (100% of ad revenue goes here):- The National MS Society, which works to bring a cure to Multiple SclerosisShow Sponsor: The BetterLife REI Summit May 3-5 in Denver, CO. The most actionable “how to” real estate event for new and experienced investors. Grab your tickets here: https://reisummit2024.com/Connect with us!Website: https://abetterlife.com/Instagram: https://www.instagram.com/betterlife/?hl=enhttps://www.instagram.com/beardybrandonInterested in building wealth without losing your soul? Join the BetterLife Tribe here: https://join.abetterlife.com/tribe

Today on the Matt Walsh Show, Google's new AI program just launched this week and it's already attempting to erase white people from history. Our woke dystopian future has arrived. Also, the Biden Administration tries to buy more votes with yet another "student loan forgiveness" scheme. A major cellular outage affects thousands of Americans. Is there something sinister behind it? And the National MS Society fires a 90 year old volunteer for failing to put her pronouns in her bio. It sounds like a Babylon Bee headline but it's real.  Ep.1318 - - -  DailyWire+:   Watch Lady Ballers, the Most Triggering Movie in America here: https://bit.ly/3R1dM5b DON'T MISS OUT! Get 30% off your DailyWire+ Membership here: https://bit.ly/3wco7nQ Unlock your Bentkey 14-day free trial here: https://bit.ly/3GSz8go Get your Matt Walsh flannel here: https://bit.ly/3EbNwyj  - - -  Today's Sponsors: Helix - Get 25% off your order + a FREE bedroom bundle.Promo code: HELIXPARTNER25 at https://helixsleep.com/Walsh Renewal by Andersen - Exclusive discount for my listeners! Text WALSH to 200-300 ZipRecruiter - Rated #1 Hiring Site. Try ZipRecruiter for FREE!http://www.ZipRecruiter.com/WALSH  Regina Caeli Academy - Join me at the Courage Under Fire Gala! Use code DAILYWIRE for exclusive access to your tickets at http://www.courageunderfiregala.org  - - - Socials: Follow on Twitter: https://bit.ly/3Rv1VeF Follow on Instagram: https://bit.ly/3KZC3oA Follow on Facebook: https://bit.ly/3eBKjiA Subscribe on YouTube: https://bit.ly/3RQp4rs

Take a look at this man. I call him Pervert Zero. In my opinion, he is a pervert. In my opinion, he is harmful and spiritually captured. Factually speaking, he is the boss of government schools in the separate country of Washington. His name is Chris Reykdal. He was the first of the school bosses to be convinced to sexually mess kids up and groom them into becoming sexual pleasure toys for adults. It's just my opinion, but I can back it up. He spent a year or so advocating for a curriculum that is ‘sexually appropriate” in schools. I want to talk about how he did this and take a look at how I tried to expose this. Thank God there is now an effort to expose what is being done to our children. There is a new documentary coming out called “Quiet On Set” that is about exposing pedophilia at Nickelodeon. Just like at Nickelodeon or at a school, sexual predators are drawn to bottlenecks of power. In Outagamie County, Adam Westrbook, the human resources director for the county was arrested for possession of child pornography. If only there were clues, like dressing up as a woman, an over sexualized version of a nun. Oh wait, that's exactly what he did.What does God's Word say? Leviticus 18:21 You shall not give any of your children to offer them to Molech, and so profane the name of your God: I am the Lord.Deuteronomy 12:31 You shall not worship the Lord your God in that way, for every abominable thing that the Lord hates they have done for their gods, for they even burn their sons and their daughters in the fire to their gods.2 Kings 23:10 And he defiled Topheth, which is in the Valley of the Son of Hinnom, that no one might burn his son or his daughter as an offering to Molech.2 Kings 16:3 But he walked in the way of the kings of Israel. He even burned his son as an offering, according to the despicable practices of the nations whom the Lord drove out before the people of Israel.Episode 1,420 Links:DEVELOPING: There is a documentary titled “Quiet on Set” coming out that is exposing the pedophilia in Nickelodeon which hints of Dan Schneider's on set behavior and talks on the topic of sexual assault. It will air on March 17th.UNREAL. National MS Society (@mssociety) forced a 90-year-old volunteer to step down because she wasn't “inclusive” enough after she asked what pronouns are. Fran volunteered for 60 years and her late husband had MS. The @mssociety still hasn't said a word about this. Don't give them another penny until they rectify this!On October 8th, 2020, I did a video with Maia Espinoza, a godly young woman who was running to be Superintendent of WA State schools. UNBELIEVABLE. Garrett Jones, assistant principal for an elementary school in @AlachuaSchools says he thinks it's appropriate for 8-year-old kids to be reading p*rnogr*phy and dirty magazines in school.POWERFUL! Students in @CCSDSchools begged the school board to reverse their bathroom policy which allows males to use the girl's bathrooms/locker rooms. "I no longer feel safe... I don't feel mature enough to see any man's p*nis.” These young girls shouldn't feel unsafe going to school! Extremely unfair to them. Kudos to them for standing up for themselves! We need more like them!Outagamie County's human resources director was arrested overnight and is in a southern Wisconsin jail. Jail records from Sauk County show Adam Westbrook was booked at 3:40 a.m. Friday.State's top court explains ruling in 'sex position' defamation cas4Patriots https://4Patriots.com/Todd Stay connected when the power goes out and get free shipping on orders over $97. Alan's Soaps https://alanssoaps.com/TODD Use coupon code ‘TODD' to save an additional 10% off the bundle price. Bioptimizers https://bioptimizers.com/todd Use promo code TODD for 10% off your order. Bonefrog https://bonefrogcoffee.com/todd Use code TODD at checkout to receive 10% off your first purchase and 15% on subscriptions. Bulwark Capital Bulwark Capital Management (bulwarkcapitalmgmt.com) Call 866-779-RISK or visit online to get their FREE Common Cents Investing Guide. GreenHaven Interactive Digital Marketing https://greenhaveninteractive.com Your Worldclass Website Will Get Found on Google!