Podcasts about people living

When my wife was diagnosed with MS in 1997, the annual cost of her MS medication was $9,000. Today, the annual cost of that same medication is $110,000. We cannot allow the insanity associated with the cost of MS medications to continue. Joining me to discuss the impact of the outrageously high cost of MS medications -- and what each of us can do about it -- is the National MS Society's Vice-President of Advocacy, Steffany Stern. We're also talking about a Phase 1 clinical trial for an investigational Epstein-Barr Virus vaccine (and why that matters to everyone living with MS). We'll tell you about a study that may have identified a biomarker for MS-related fatigue. We're also sharing the results of a study that identified which stress-reducing activities can help reduce MS-related depression and fatigue. And we'll tell you about a study that identified the economic benefits of starting MS medications early. We have a lot to talk about! Are you ready for RealTalk MS??! The (HIGH!) Cost of MS Medications   :22 NIH Announces Phase I Clinical Trial of Investigational EBV Vaccine 4:21 Study identifies a potential biomarker for MS fatigue  6:04 Study identifies stress-reducing activities that lower MS-related depression and fatigue    8:37 Study shows the economic benefits of starting MS medications early  11:25 Steffany Stern discusses the impact of the cost of MS medications   14:16 Share this episode  32:10 Download the RealTalk MS app for your iOS or Android device   32:30 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/246 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance National MS Society: You Can Help Bring MS Medications Into Reach https://nationalmssociety.org/Treating-MS/Medications/Make-MS-Medications-Accessible/Take-Action RealTalk MS Ep.229: Evidence Shows MS Is Triggered by the Epstein-Barr Virus with Dr. Kassandra Munger and Dr. AJ Joshi https://realtalkms.com/229 RealTalk MS Episode 231: Evidence Shows EBV Triggers MS: Understanding this Breakthrough Research with Dr. Bruce Bebo https://realtalkms.com/231 Cerebrospinal Fluid Amyloid Precursor Protein as a Potential Biomarker for Fatigue in Multiple Sclerosis: A Pilot Study https://sciencedirect.com/science/article/pii/S2211034822003583 SURVEY: Undertaking Specific Stress-Reducing Activities are Associated with Reduced Fatigue and Depression, And Increased Mastery, in People with Multiple Sclerosis https://sciencedirect.com/science/article/pii/S2211034822003169 Early vs Late Treatment Initiation in Multiple Sclerosis and Its Impact on Cost of Illness: A Register-Based Prospective Cohort Study in Sweden https://pubmed.ncbi.nlm.nih.gov/35496759 iConquer MS Survey for MS Caregivers https://survey.alchemer.com/s3/6823942/Caregiver-Survey-MS-Caregivers iConquer MS Survey for Researchers and Healthcare Providers https://survey.alchemer.com/s3/6823815/Caregiver-research-survey-HCPs-and-researchers Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 246 Guests: Steffany Stern Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Welcome back to WellSeekers as we continue this brand new five part series focusing on cancer. In this series, we'll share inspiring and powerful conversations full of encouragement, hope, wisdom, touching personal stories, and most importantly real world solutions; all from a holistic perspective. We'll talk with professionals and friends of the show on what it's like to hear those words “you have cancer”, real life and practical wisdom and solutions for supporting those diagnosed and living with cancer, support for caregivers, and their heroic kind and self-less acts. So join us on this extraordinary series as we want to help you grow and thrive in the face of a cancer diagnosis if you've been diagnosed with cancer, are living with cancer, know someone dear to you with cancer, or want to prevent this fast growing, deadly and sometimes chronic disease.On today's show, we welcome Hannah Lawrie, the Nutrition Nurse and a Board Certified Nutrition Specialist (BCNS), as we continue this series talking about nutrition and cancer. Hannah's nutrition philosophy is grounded in finding the root cause of disease and utilizing a whole foods no-nonsense approach with healthy lifestyle changes to support the foundational needs of the body to restore proper functioning. With 30% of cancer related to poor dietary habits, according to a study by the World Health Organization, we'll unravel how food and our dietary habits can be used as medicine to make lasting positive change. We talk about the ingredients and the quality of ingredients in our food that are associated with supporting cancer prevention and cancer care, and the benefits and strategies for making and preparing your own meals and snacks. We'll also clear up some common misconceptions, highlight recent and cutting edge studies around food and cancer cells, and lastly offer additional resources for your nutritional support.​If you or someone you know are living with cancer, or looking for cancer prevention, we're here to walk along side you in your journey! When it comes to nutrition and cancer, you won't want to miss this amazing show with Lucia and expert guest Nurse Hannah right here on WellSeekers.Visit Hannah's website at thenutritionnurse.comBe sure to check out Hannah's IG @the.nutrition.nurseAnd check out Dr.G's IG as well! @doctor.gonzalezRecommended books in this show:How to Starve Cancer by Jane McLellandThe Cancer Wellness Cookbook: Smart Nutrition and Delicious Recipes for People Living with Cancer by Kimberly MathaiThe Metabolic Approach to Cancer: Integrating Deep Nutrition, the Ketogenic Diet, and Nontoxic Bio-Individualized Therapies by Nasha Winters and Jess Higgins KelleyThe Omnivore's Dilemma: A Natural History of Four Meals by Michael PollenLiving Downstream: An Ecologist's Personal Investigation of Cancer and the Environment by Sandra Steingraber----------------WellSeekers with Lucia is a podcast exploring how to find your own story of well from the mind down focusing on holistic mental and emotional health, relationships, and wellness topics.Lucia Nazzaro, MA, MSW, LCSW, is an Emmy nominated multi-media storyteller, professor and expert. She works to create ways to help individuals & society find their story of well with a special focus on how we can rise and comeback from life transitions (both considered positive and negative), relationship issues, and issues that surround the human condition and ways to thrive in the face of adversity and challenge.

For some, the journey to their MS diagnosis is relatively quick and straightforward. For others, it can be lengthy and convoluted, sometimes  taking years. Joining me to talk about some of the twists and turns that can pop up on the road to being diagnosed with MS is Dr. Michael Robers, a neurologist in the Multiple Sclerosis Program and an assistant professor in the Department of Neurology at Barrow Neurological Institute. We're also talking about a study that measured MS prevalence among Black, White, Hispanic, and Asian people. We'll share results of a survey that looked at cannabis use among Canadians living with MS. We're also sharing results of a survey that looked at where Americans living with MS get their information about cannabis. If you're an MS caregiver, healthcare professional, or researcher, we'll give you the details about an important survey that you can participate in. And we're even taking a moment for a special thank you! We have a lot to talk about! Are you ready for RealTalk MS??! A quick look at the numbers and a heartfelt thank you!   :22 A date that each person remembers 2:59 Study looks at MS prevalence among different racial and ethnic groups  4:36 Survey results show cannabis use among Canadians with MS    7:41 Where do you get your information?  10:07 Survey results show where Americans with MS get their information and guidance about cannabis  11:20 An important survey for MS caregivers, healthcare professionals, and researchers  14:37 Dr. Michael Robers discusses the journey to an MS diagnosis  17:03 Share this episode  31:20 Download the RealTalk MS app for your iOS or Android device   31:41 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/245 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance STUDY: Racial and Ethnic Disparities in Multiple Sclerosis Prevalence https://n.neurology.org/content/98/18/e1818 SURVEY: Medical Cannabis Used in Canadians with Multiple Sclerosis https://www.msard-journal.com/article/S2211-0348(22)00153-5/fulltext SURVEY: Sources of Cannabis Information and Medical Guidance for Neurologic Use: NARCOMS Survey of People Living with Multiple Sclerosis https://cp.neurology.org/content/12/2/102 iConquer MS Survey for MS Caregivers https://survey.alchemer.com/s3/6823942/Caregiver-Survey-MS-Caregivers iConquer MS Survey for Researchers and Healthcare Providers https://survey.alchemer.com/s3/6823815/Caregiver-research-survey-HCPs-and-researchers Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 245 Guests: Dr. Michael Robers Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

In this episode, I answer the question, "How do I visit my family member who doesn't seem to know that I'm even there? Or who doesn't even know who I am?” As dementia deepens and your family member communicates less, it may seem as if your visits don't matter. I think they do! Tune in for concrete approaches to having a great visit with your loved one, even in the moderate, moderately severe, and severe stages of dementia. My book, "Make Dementia Your B*tch! An Easy Guide to Understanding Dementia-related Behaviors" is now available on Amazon! Order it here. Love the podcast? Want to stay in the loop and snag information about free stuff and other offers in the podcast? Subscribe here Frustrated with care refusals? Get your free copy of my checklist, “ Dementia Hacks: 15 Ways to Manage Dementia Care Refusals.” Have a dementia question? Want to hear it answered on a future podcast? Email me: info@makedementiayourbitch.com Looking for a community? I have my own Facebook page for dementia caregivers: Make Dementia Your B! #alzheimers #lewy body #frontotemporal #dementia #caregiving #care refusal #dementiabitch #visiting #nursinghome #memorycare --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/rita-a-jablonski/message

Is there a connection between sleep, memory, and dementia? Well, it's complicated. Different types of dementia are associated with different sleep problems, and it is a hot topic for researchers. Whether poor sleep causes or exacerbates dementia, is being looked at and then the separate but related issue of dementia contributing to poor sleep. It is clear that more research is needed to understand this relationship; in particular research that observes large groups of affected people for very long periods of time. In this ISTAART Research Perspectives Special, Fernando Peres and Dr Clara Domínguez Vivero get two perspectives on a research topic, from the researcher and the person who lives with the disease. This time we are joined by Epidemiologist and Sleep Research expert Dr Yue Leng from University of California, San Francisco and Helen Rochford-Brennan, who has been living with dementia for a number of years and transformed her live into campaigning for improved awareness and human rights through charities and the European Working Group for People Living with Dementia. Find out more about our hosts and guests and review a full transcript of this podcast on our website at: https://www.dementiaresearcher.nihr.ac.uk/podcast For information on ISTAART Visit – https://www.alz.org/istaart -- This podcast is brought to you in association with Alzheimer's Association, Alzheimer's Research UK and Alzheimer's Society, who we thank for their ongoing support.

A new support podcast for people living with Psoriasis. We delve into the condition with a Consultant Dermatologist and a sufferer. Pat was joined on the show by Damien Broderick, Photographer & psoriasis sufferer, and Caitriona Ryan. Consultant Dermatologist and Co-Founder of Institute of Dermatologists. Listen and subscribe to The Pat Kenny Show on Apple Podcasts, Google Podcasts and Spotify.      Download, listen and subscribe on the Newstalk App.    You can also listen to Newstalk live on newstalk.com or on Alexa, by adding the Newstalk skill and asking: 'Alexa, play Newstalk'.

Planning for your financial future is good advice for everyone. But when you're living with MS, financial planning is an important part of the game plan for living your best life. Joining me to talk about the things you'll want to keep in mind as you develop your personal financial roadmap is Dick Bell, a professional financial advisor who has worked with more than 600 clients who are living with MS. We're also talking about how Russia's invasion of Ukraine is impacting MS clinical research. We'll tell you about a study that's focusing on a novel approach to promoting remyelination. We're sharing the results of a study that identified a biomarker that may predict future MS disease progression.  And we'll share survey results that show all the ways that MS can impact life. We have a lot to talk about! Are you ready for RealTalk MS??! How Russia's invasion of Ukraine is impacting MS clinical research   1:35 A study in the U.K. will test a novel approach to promoting remyelination:  3:27 Study identifies a biomarker that may predict future MS disease activity  7:26 FDA awards Breakthrough Device Designation to a technology that may speed MS diagnosis and predict future disease activity   9:56 Survey results show all the ways MS impacts your life  11:20 Financial advisor Dick Bell discusses your long-term financial strategy for living with MS  15:39 Share this episode  28:05 Download the RealTalk MS app for your iOS or Android device   28:25 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/244 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance CCMR Two: A Phase IIa, Randomised, Double-Blind, Placebo-Controlled Trial of the Ability of Metformin and Clemastine to Promote Remyelination in People with Relapsing-Remitting Multiple Sclerosis Already on Disease-Modifying Therapy https://clinicaltrials.gov/ct2/show/NCT05131828 STUDY: Prognostic Value of Serum Filament Light Chain for Disease Activity and Worsening in Patients with Relapsing Multiple Sclerosis: Results from the Phase 3 ASCLEPIOS I and II Trials https://frontiersin.org/articles/10.3389/fimmu.2022.852563/full iConquer MS Survey for MS Caregivers https://survey.alchemer.com/s3/6823942/Caregiver-Survey-MS-Caregivers iConquer MS Survey for Researchers and Healthcare Providers https://survey.alchemer.com/s3/6823815/Caregiver-research-survey-HCPs-and-researchers Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 244 Guests: Dick Bell Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Living with MS is expensive. And if you're curious about how expensive living with MS is, why it's so expensive, and what can be done about it, then you're going to be interested in the results of a study that was commissioned by the National MS Society. Joining me to talk about what this study revealed and what it means to individuals and families affected by MS are Dr. Bruce Bebo, the Executive Vice-President of Research at the National MS Society, and the MS Society's Executive Vice-President of Advocacy and Healthcare Access, Bari Talente. We're also talking about a study that reveals a connection between MS severity and geography. Have you ever wondered why some people develop severe MS while others don't? We're sharing the details of a study that's hoping to answer that question. And if you're a caregiver for someone who's living with MS, or you're a healthcare provider who interacts with MS caregivers, or you're a researcher interested in MS caregivers, we'll explain why iConquer MS would like just a few minutes of your time. We have a lot to talk about! Are you ready for RealTalk MS??! Measuring the financial impact of MS  :22 A study shows MS severity correlates to geographic latitude  1:47 A new study will try to understand why some people develop severe MS while others don't  4:13 iConquer MS is expanding to include MS caregivers but first they need your help  7:26 Dr. Bruce Bebo and Bari Talente break down the results of a study that focused on the cost of living with MS   9:56 Share this episode  29:04 Download the RealTalk MS app for your iOS or Android device   29:25 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/243 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance STUDY: Economic Burden of Multiple Sclerosis in the United States: Estimate of Direct and Indirect Costs https://n.neurology.org/content/early/2022/04/13/WNL.0000000000200150 STUDY: Association of Latitude and Exposure to Ultraviolet B Radiation With Severity of Multiple Sclerosis: An International Registry Study https://n.neurology.org/content/early/2022/04/11/WNL.0000000000200545 University at Buffalo Multiple Sclerosis Research Challenge: Contribute to the CASA-MS Study https://crowdfunding.buffalo.edu/project/29733 iConquer MS Survey for MS Caregivers https://survey.alchemer.com/s3/6823942/Caregiver-Survey-MS-Caregivers iConquer MS Survey for Researchers and Healthcare Providers https://survey.alchemer.com/s3/6823815/Caregiver-research-survey-HCPs-and-researchers Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 243 Guests: Dr. Bruce Bebo and Bari Talente Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Mask mandates have mostly ended, and bars, restaurants, public buildings, and other businesses no longer require proof of vaccination. It looks like the COVID-19 pandemic is over. Except for the fact that we're seeing cases of the latest COVID subvariant continue to rise in cities across the country and around the world. So, how do we navigate this post-pandemic world? And if you happen to be immunocompromised, how do you stay safe? Joining me as she has throughout the pandemic, with an update including the steps you can take to stay safe as the world re-opens is Dr. Nancy Sicotte. Dr. Sicotte is a professor and Chair of the Department of Neurology at Cedars-Sinai Medical Center in Los Angeles. Dr. Sicotte also Chairs the National MS Society's National Medical Advisory Committee and she leads the MS Society's COVID-19 Advisory Group. We're also talking about a workshop that brought together a group of global experts to weigh in on autologous hematopoietic stem cell transplantation (aHSCT) as a viable treatment for MS. We're sharing the details about an upcoming clinical trial that will test a myelin-restoring treatment for people with relapsing-remitting MS. Evidence from multiple studies shows that members of the Black and Hispanic communities who live with MS can experience a more severe disease course and a higher disability burden. We'll share the details of a presentation from the Academy of American Neurology annual meeting that sheds new light on what may be driving these disparities.  And we'll tell you how you can register to participate in the National African-Americans with MS Registry. We have a lot to talk about! Are you ready for RealTalk MS??! Welcome to the Next Normal!  :22 ECTRIMS hosts an Autologous Hematopoietic Stem Cell Transplantation (aHSCT) workshop  1:45 FDA Approves clinical trial for a myelin-restoring treatment  6:04 New data may explain racial and ethnic disparities in MS disease severity and treatment  7:45 The National African Americans with MS Registry  10:13 Dr. Nancy Sicotte explains what people with MS need to know to stay safe as they re-enter a post-pandemic world   11:52 Share this episode  32:31 Download the RealTalk MS app for your iOS or Android device   32:51 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/242 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance ECTRIMS Focused Workshop: Autologous Hematopoietic Stem Cell Transplantation For Treatment of MS and Related Diseases https://ectrims.eu/ongoing-educational-programmes/focused-workshops National MS Society Recommendations for aHSCT-Bone Marrow Transplant for MS https://nationalmssociety.org/About-the-Society/News/National-MS-Society-Releases-Recommendations-for-a National African Americans with MS Registry https://www.naamsr.org Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 242 Guests: Dr. Nancy Sicotte Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

I spent last week attending the American Academy of Neurology (AAN) Annual Meeting and in this week's episode of RealTalk MS, I'm sharing an overview of what I saw and what I heard. Each year at the AAN meeting, the American Academy of Neurology and the National MS Society award the John Dystel Prize for MS Research. Joining me on today's podcast is this year's recipient of the Dystel Prize, Professor Xavier Montalban. We're also talking about how the COVID-19 pandemic has affected MS research and clinical care. We're sharing encouraging news about two potential disease-modifying therapies. And we'll share some of the over-arching themes that kept popping up in a number of different meetings, presentations, and conversations during the AAN annual meeting. We have a lot to talk about! Are you ready for RealTalk MS??! The impact of the pandemic on MS research and clinical care   :53 Results of Phase 2 extension study show Evobrutinib effective in reducing relapse rates in relapsing forms of MS   4:53 Results of Ublituximab Phase 3 post-hoc analyses announced    7:16 Dr. Stephen Hauser receives the Scientific Breakthrough Award  9:25 The importance of making complex science easy to understand for people affected by MS  10:29 The importance of increasing clinical trial participation among members of minority communities  12:48 The importance of caring for the caregiver  14:04 John Dystel Prize for MS Research awarded to Prof. Xavier Montalban  15:40 My conversation with John Dystel Prize recipient Professor Xavier Montalban  16:25 Share this episode  24:51 Have you downloaded the RealTalk MS app?   25:12 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/241 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jonstrum@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 241 Guests: Professor Xavier Montalban Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Support AlzAuthors at https://alzauthors.com/donate Please leave a review and share this podcast with a caregiver or loved one on a dementia journey. * * * About Laurette Klier Laurette Klier believes ENGAGEMENT + NOSTALGIA = JOY. She is the author of Nana's Books, heart-centered pairings of nostalgic literature and art, modified to meet the needs of seniors living with brain changes. Each book is carefully designed to bring you and your loved ones renewed connection, comfort, and joy. The books were inspired by her mother-in-law, Nana Mary, who loved big and passed with Lewy Body Dementia in 2021. Laurette's goal is to spearhead a national movement to create libraries within libraries of quality multimedia, multi-sensory engagement materials for people living with dementia. With a background in creating literacy environments for students in urban and priority schools, this work came naturally to her as she believes that people are best engaged via a holistic, literature, and arts-based approach. Now, as ever, she is focused on underserved communities and inclusion.  Nana's Books are the winner of a 2021 MAUDE'S AWARD for Innovation in Dementia Care and are endorsed by ALZ SPEAKS, ALZ AUTHORS and the Neurocognitive Community for their utility in person-centered care. In addition to creating these beautiful books, Laurette is also working on the Essential Caregivers Act of 2021 to ensure care partners unrestricted access to their loved ones in long term care, as COVID lockdowns and lack of uniform federal protections continue to devastate seniors and their families. Learn more here. In this episode, we discuss, how books and reading can provide meaningful interactions between family members and those living with dementia, the need that drove her to create these books, and how dementia changed her relationship with her mother-in-law for the better. Laurette Klier Creates Nana's Books: Nostalgic Picture Books for Seniors Preview Laurette's books at Issuu.com Purchase Nana's Books now! A sampling of titles: ·     Nostalgic Picture Book of Irish Wit & Wisdom: Large Format for People with Alzheimer's / Dementia ·     Love Poems for the Young at Heart: Large Format Book for People with Alzheimer's/Dementia ·     Jewish Proverbs for the Young at Heart: Large Format Book for People with Alzheimer's/Dementia ·     Nostalgic Picture Book of Babies ·     Fine Art Picture Book; Mother & Child: Gift Book for People with Dementia/ Alzheimer's ·     The Soul Remembers: Memory Care Spirituals ·     Nostalgic Picture Book of Living Dolls ·     Nostalgic Picture Book of Prayer Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Laurette Klier Website Instagram Twitter LinkedIn About the Untangling Alzheimer's and Dementia Podcast Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. AlzAuthors.com Want to be on the podcast? Here's what you need to know.

Jesus, forgive us when our greed leaves other people poorer. As we grow in our friendship with you, Teach us what it means to be generous, And help us build the kind of world where everyone has enough. Amen. For more information about Keep Praying, visit canterburydiocese.org/keep-praying Backing music by James Bowden

Research has shown that hypnosis is an effective treatment for managing chronic pain, including pain associated with MS.  My guest, Dr. Mark Jensen, is a Professor and Vice-Chair of the Department of Rehabilitation Medicine at the University of Washington. Dr. Jensen has devoted his career to developing effective treatments for pain and is an expert on hypnotic interventions. We're also talking about a research team that may have learned how to successfully penetrate the blood-brain barrier (and why that could be great news for people living with MS!). We'll share the results of a 10-year study in France that showed very positive outcomes for people living with highly active relapsing-remitting MS. We'll tell you about 66 research projects that have just been funded by the MS Society of Canada. And we'll share results from a survey that identify pandemic-specific depression and anxiety among people living with MS. We have a lot to talk about! Are you ready for RealTalk MS??! Researchers may have found a way through the blood- brain barrier   1:17 10-year study reveals surprising results   4:19 MS Society of Canada announces funding for 66 research projects    8:07 Researchers identify pandemic-related depression among people living with MS  9:11 Dr. Mark Jensen discusses treating MS-related chronic pain with hypnosis  12:43 Share this episode  30:58 Have you downloaded the RealTalk MS app?   31:19 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/240 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jonstrum@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance STUDY: Endothelial Unc5B Controls Blood-Brain Barrier Integrity https://www.nature.com/articles/s41467-022-28785-9 STUDY: Ten-Year Follow-Up After Mitoxantrone Induction For Early Highly Active Relapsing-Remitting Multiple Sclerosis: An Observational Study of 100 Consecutive Patients https://sciencedirect.com/science/articles/abs/pii/5003578722000431 MS Society of Canada Research Funding Announcement https://mssociety.ca/information-for-researchers/funding-announcements National MS Society MS Navigator Contact Info Phone: (800) 344-4867 Email: contactusnmss@nmss.org Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 240 Guests: Dr. Mark Jensen Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

This week I had the pleasure of talking to nutritional therapist Kirsten Chick. Not only is Kirsten a nutritional therapist, She's a public speaker, educator, podcast host of not one but TWO podcasts and author of "Nutrition brought to life". In other words, she's incredibly knowledgable about all things food related.We spent a solid hour talking about the effects of stress, and diet, on the human body.We talk about the physical effects of stress on the human body, including on digestion and weightmanagement.Whether food can cause an increase in the levels of stress.Which foods help with stress-management and which nutrients to look out for, and what they do.The benefit of taking 10-15 minutes screenbreaks, and other time-outs, every day.Why eating whilst working is not the same as eating whilst stepping away from the computer.The benefit of eating a bit more slowly.And many, MANY other things.It's a  fascinating chat with tonnes of wisdom and advice for all of us but especially powerful for women with young children. After all, stress-management can have such a huge impact on the health and happiness of you, and those around you, and Kirsten gives you a LOT of "easy to follow and implement" bits of information.You can find Kirsten's "Nutrition brought to life" on Amazon and Waterstone's.You can listen to the Nutrition Brought to Life podcast here Of course Kirsten is on Instagram, YouTube , and Facebook.The seminars that we mentioned are listed below andI shall also remind you of these if you follow me on my Instagram as these look well worth attending. April 27th 7-8.15pm online What is an Anti-Inflammatory Diet?  Thurs 19th May 7-8.30pm online  Nutrition for People Living with Cancer Sat 21st May 9.30am-12.30pm in Brighton: Nutrition & Vitality Thu, 9 June 2022, The secret to healthy snackingIn the news this week This article about the carbon emission savings if everyone in the UK ate a plantbased meal just 2x per week. Is it really the equivalent of planting 14billion trees? Remember to follow us on Instagram and Facebook for the competitions, wisdom and cute videos. And, of course, you can always find us on our YouTube channel if you like your podcast in video form with little pictures :) Visit healthypostnatalbody.com and get 3 months completely FREE access. No sales, no commitment, no BS. Email peter@healthypostnatalbody.com if you have any questions or comments Playing us out this week; "Just a breath" by NOVVA

I am living with bipolar. It's the lovable sludge monster living on my shoulder every day and as I'm getting to know it, it blooms into something new. My experience, as well as the four women interviewed throughout this episode, is personal and different from others. Personal bipolar experiences are not shared anywhere outside of private conversations–making bipolar a taboo topic and a sensitive one to discuss. So, just like we're publicly talking about periods now (and the real truth about them), we are going to talk about bipolar.  Take care while listening to this episode as sensitive topics such as suicidal ideation, medication, and we will mention frequently triggering content throughout the episode.  Leave a five star review if this episode helped you and follow along on TikTok and Instagram (@sarahalpotter).  And, if you have some feedback find us at socialmediatherapypodcast@gmail.com . This episode is sponsored Sunsama. Sunsama is the go-to daily planner for busy and neurodivergent people needing to see all of their work, to-dos, family plans, and appointments in one place. Check it out here. View show notes: https://www.sarahapotter.com/bipolarinfoSunsama: https://www.sunsama.grsm.io/sarahalpotter Shout us out: Twitter, Instagram, TikTokThe next episode we'll be releasing is all a bout financial shame and the way people shame others on social media. We'll be talking with  Sarah Li Cain, former podcast host of Beyond the Dollar and Sarah Li Cain Writes, along with certified financial therapist Steven M. Hughes. Jon Ingram produced today's episode Music and intro by LOAMResearch and writing by me,  Sarah PotterEditing by  Sarah Potter and Jon IngramCreative Direction by  Sarah PotterInterviews with Casey Triber, Moriah Chaze, Alicia Greensides, and Mackenzie Stewart

CBC Radio reporter, Kyle Muzyka is in Rome this week to cover Indigenous delegations from Canada meeting with Pope Francis.

A decade ago, the International Progressive MS Alliance didn't exist. Today, it can be credited with changing the global conversation about progressive MS research, elevating the progressive MS research agenda and moving the work forward. A few weeks ago, the Alliance announced the details of an ambitious strategic plan that will guide their work over the next 3 years.  Joining me to talk about the new goals that were set by the Alliance, and what that means for people affected by progressive MS, is the Chair of the Alliance's Scientific Steering Committee, Dr. Robert Fox. The MS International Federation conducted a survey and we're wondering whether the responses have raised a larger question? We're also talking about a study that showed how an online mindfulness program significantly improved depression for people living with MS. We're sharing study results that show your nose knows when your DMT is working well for you. We'll also share the details about an exciting undertaking at the University of Colorado that may lead to treating people so that they completely avoid the symptoms of MS. And we'll tell you about a small trial that demonstrated the effectiveness of an experimental stem cell therapy as a potential treatment for progressive MS. We have a lot to talk about! Are you ready for RealTalk MS??! International Progressive MS Alliance unveils a new 3-year strategic plan  :22 Survey results raise a larger question -- How do we share MS research news with people affected by MS???  1:04 Online mindfulness provides significant improvement for managing depression among people with MS    16:14 Using your nose to determine the efficacy of your disease-modifying therapy  8:33 NeuroGenesis cell therapy shows promise as a potential treatment for progressive MS  14:14 Dr. Robert Fox discusses what's next for the International Progressive MS Alliance  17:28 Share this episode  28:07 Have you downloaded the RealTalk MS app?   28:27 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/239 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jonstrum@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance International Progressive MS Alliance https://progressivemsalliance.org STUDY: A Randomized Controlled Trial of a Web-Based Mindfulness Programme for People With MS With and Without a History of Recurrent Depression https://journals.sagepub.com/doi/10.1177/13524585211068002 STUDY: Olfactory Threshold Predicts Treatment Response in Relapsing Multiple Sclerosis https://journals.sagepub.com/doi/10.1177/1354285221079744 STUDY: Effects of Mesenchymal Stem Cell Transplantation on Cerebrospinal Fluid Biomarkers in Progressive MS https://academic.oup.com/stcltm/article/11/1/55/6528889 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 239 Guests: Dr. Robert Fox Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Sergei Utkin, head of strategic assessments at the Institute of World Economy and International Relations of the Russian Academy of Sciences shares some candid thoughts, saying the war is a "catastrophe".

A new drug to tackle obesity has been approved for use in Ireland and will be available under prescription under the brand name Wegovy. Dr. Michael Crotty of My Best Weight Clinic tells us more..

The Pathways to Cures initiative is focused on stopping MS progression, restoring lost function, and ending MS forever. This bold initiative has already been endorsed by more than 20 MS research and patient organizations around the world. And now, the publication of the Pathways to Cures Research Roadmap has brought us to a pivotal moment in the history of MS research. Joining me in this episode of RealTalk MS are two very special guests, Dr. Carol Whitacre and Professor Alan Thompson. We're taking a close look at what Pathways to Cures is all about, where we are on the Pathways to Cures Research Roadmap, and what this initiative means for people affected by MS. Dr. Whitacre is the former Senior Vice-President of Research at The Ohio State University, and the current Chair of the National MS Society's Scientific Advisory Committee. Professor Thompson is a clinician scientist who has been the recipient of virtually every high honor and award that's given in the field of multiple sclerosis research, including the John Dystel Prize for MS Research in 2017, the Sobek Research Prize in 2020, and the 2021 Charcot Award, which recognizes a lifetime of achievement in outstanding research into understanding and treating MS. We have a lot to talk about! Are you ready for RealTalk MS??! The Pathways to Cures Research Roadmap  :22 Dr. Carol Whitacre discusses the significance of the Pathways to Cures initiative  3:34 Prof. Alan Thompson reviews the status of MS research to stop progression, restore lost function, and end MS, then looks ahead to next steps in the Pathways to Cures research roadmap    16:14 Share this episode  33:52 Have you downloaded the RealTalk MS app?   34:12 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/238 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jonstrum@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance RealTalk MS Episode 125: The Pathways to Cures Think Tank  https://realtalkms.com/125 Pathways to Cures https://pathwaystocures.org Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 238 Guests: Dr. Carol Whitacre and Prof. Alan Thompson Tags: MS, MSAwareness MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

On this episode, we find out about the Radical Inclusion Program created by John Humphrey Centre for Peace and Human Rights. In August of 2021, the John Humphrey Centre for Peace and Human Rights released a report on the Status of Rights of People Living with Disability in Alberta.  Our correspondent, Karli Drew, shows us why disability rights are human rights, not privileges. Links: Read the report on the Status of Rights of People Living with Disability in Alberta. Learn more about Radical Inclusion Program created by John Humphrey Centre for Peace and Human Rights. Check out ECF's Vital Topic: Gaps […]

Die Ukraine hat die zweitgrößte Zahl an Menschen mit HIV in Europa. Valeria Rachynska von 100% Life, der größten NGO zur Hilfe von Menschen mit HIV in der Ukraine hat mit Gersin Livia Paya über die aktuelle Notlage, den fehlenden Transport von Medikamenten und ihre Situation als eine von geschätzten 250.000 HIV positiven Menschen in der Ukraine gesprochen.

It's MS Awareness Week and my guest is Marti Hines. Marti is a successful event producer, entrepreneur, film producer, and director. She was diagnosed with MS in 2018, and Marti has been very transparent in sharing the highs and lows of her MS journey on her social channels.  Like so many people living with MS, Marti has an amazing energy and a seemingly endless supply of resilience. You're going to enjoy meeting her.  We're also talking about why increasing diversity in clinical trials is so vital. And we're highlighting the Consensus Statement on Health Equity in Clinical Trials and Real-World Evidence Data Collection that was released by the National MS Society's Corporate Healthcare Roundtable. You'll learn about the Cost Plus Drug Company, billionaire Mark Cuban's effort to disrupt the prescription drug market by offering generic drugs that truly are affordable. And we'll share the results of a study that shows that a keto diet may be beneficial for people living with relapsing MS. We have a lot to talk about! Are you ready for RealTalk MS??! It's MS Awareness Week!  :22 MS Society Corporate Healthcare Roundtable issues a consensus statement on health equity in clinical trials  1:03 Mark Cuban Cost Plus Drug Company is compassionate capitalism in action  5:59 Keto diet shows benefits for people with  relapsing MS  11:18 Marti Hines talks about why sharing her MS journey is important  14:51 Share this episode  26:08 Have a minute? Leave a rating and review for RealTalk MS!   26:28 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/237 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jonstrum@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance National MS Society MS Awareness Week https://nationalmssociety.org/msawareness National MS Society Corporate Healthcare Roundtable Consensus Statement on Health Equity in Clinical Trials and Real-World Evidence Data Collection  https://nmsscdn.azureedge.net/NationalMSSociety/media/MSNationalFiles/Documents/Corporate-Healthcare-Roundtable_Consensus-Statement-on-Health-Equity-in-Clinical-Trials-and-Data-Collection-(2).pdf National MS Society Public Policy Conference Replay https://nationalmssociety.org/ppc Mark Cuban Cost Plus Drug Company https://costplusdrugs.com STUDY: Ketogenic Diet as a Strategy for Improved Wellness and Reduced Disability in Relapsing Multiple Sclerosis https://index.mirasmart.com/aan2022/PDFfiles/AAN2022-000622.html Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 237 Guests: Marti Hines Tags: MS, MSAwareness MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Host: Mindy McCulley, Extension Specialist for Instructional Support, Family and Consumer Sciences Extension, University of Kentucky Guests: Dr. Amy Kostelic, Extension Specialist for Adult Development and Aging and Sheila Fawbush, Shelby County Extension Agent for Family and Consumer Sciences Cancer Conversations Episode 32 On this special edition of Cancer Conversations on Talking FACS, we visit with Sheila Fawbush, a cancer survivor, and Dr. Amy Kostelic, who address the "elephant in the room."  They share insight into how to care for and communicate with those living with cancer.  With lightness and humor, their tips for compassionate and assertive concern while dealing with the realities of everyday life, will benefit everyone in this situation. For more information: Markey Cancer Center Kentucky Cancer Statistics

If you're living with MS, there's a good chance that, at some point, you're going to deal with depression, cognitive issues, or both of these common MS symptoms. We're taking a deep dive into how these symptoms can impact your everyday life at home and at work with the author of Mind, Mood, and Memory: The Neurobehavioral Consequences of Multiple Sclerosis, Dr. Anthony Feinstein. We're also highlighting some of the MS research that was presented two weeks ago at the ACTRIMS Forum, the annual meeting of the Americas Committee for Treatment and Research in Multiple Sclerosis.  You'll hear how artificial intelligence is being used to predict how someone will respond to different disease-modifying therapies. You'll learn about the efficacy of stem cell therapy in treating aggressive MS. And we'll share the results of a research project designed to calculate the economic burden of MS in the United States. We have a lot to talk about! Are you ready for RealTalk MS??! Thanks for participating in the Public Policy Conference!  :22 Why we talk about depression and cognitive issues on this podcast  :47 AI helps predict treatment response in primary progressive MS  3:02 Stem cell therapy shows benefits in treating aggressive MS  6:28 Study measures the economic burden of MS  8:32 Dr. Anthony Feinstein discusses how mind, mood, and memory impact MS  12:31 Share this episode  28:34 Download the RealTalk MS app for your iOS or Android device   28:56 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/236 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jonstrum@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance "Mind, Mood, and Memory: The Neurobehavioral Consequences of Multiple Sclerosis" on Amazon.com  https://www.amazon.com/Mind-Mood-Memory-Neurobehavioral-Consequences-ebook-dp-B099NXZMMS/dp/B099NXZMMS/ref=mt_other STUDY: A Comprehensive Assessment of the Total Economic Burden of Multiple Sclerosis in the United States https://ectrims2021.abstractserver.com/program/#/details/presentations/557 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 236 Guests: Dr. Anthony Feinstein Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Bernadette Keenan of the Irish Coalition for People Living with Obesity tells PJ why we need to change our attitude to treating people with obesity. See acast.com/privacy for privacy and opt-out information.

On this episode of WOCTalk, we sit down with Kate Lawrence, MSN, RN, CWOCN, the WOCN Public Policy and Advocacy Coordinator, and Chris Rorick, MPH, the WOCN  Director of Government Relations, who serve on the WOCN National Public Policy and Advocacy Committee. Kate and Chris discuss updates to the COVID-19 Legislation, partnering with other organizations to fill coverage gaps, Regional and Affiliate resources, the VoterVoice Platform, and other hot topics and resources. For more information on WOCN Public Policy and Advocacy efforts, to access documents, and to contact your legislator regarding current policy issues, visit our Public Policy and Advocacy page.Episode ResourcesClick hereto view the WOCN Public Policy & Advocacy page.Click here to view the WOCN Trending Legislative IssuesClick here to learn more about the Lymphedema Treatment ActClick here to view the Regional & Affiliate Public Policy Toolkit. (members-only)Click here to view the WOCN and UOAA Admission and Retention of People Living with an Ostomy in Assisted Living Residences Frequently Asked Questions document.Click here to view the new Surgical Dressings Provider Checklist and Frequently Asked Questions documents.Click here to view the Critical Need to Provide Ostomy Supplies Specific to Patient Need to Improve Health Outcomes whitepaper. Click hereto send a message to your legislators through the VoterVoice platform.

In a culture where drinking alcohol is so prevalent and part of almost every occasion, it can be hard for young people to avoid the pressure to drink.

The Portland auditor has found that the city is unprepared to assist people with disabilities during emergencies. The auditor's office used the city's response during the pandemic as a template for examining whether emergency programs and services are accessible to people with disabilities. Portland auditor Mary Hull Caballero explains the results, and Tom Stenson, deputy legal director for Disability Rights Oregon provides his organization's perspective.