Can Do MS Podcast

Finding Your Calm: Mindfulness and MS- Episode 185 - Transcript In this powerful and insightful episode, host Stephanie welcomes mindfulness expert Robert Simpson to explore the vital connection between stress, mindfulness, and multiple sclerosis.  They also dive into self-compassion, the stress care partners face, and how mindfulness can foster empowerment and deeper connection. Whether you're new to mindfulness or looking for fresh insights, this episode offers practical takeaways and hope for anyone navigating life with MS. Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product, service, or diet associated with the content of this program.

Living Well With MS While Managing Pain- Episode 184 - Transcript In this episode, we explore how to manage the different types of pain associated with multiple sclerosis.  We discuss the role of behavioral interventions like Cognitive Behavioral Therapy, mindfulness, and behavioral activation in reducing pain's impact and improving quality of life. We also share practical tips for people who don't have access to a CBT therapist and offer a brief relaxation exercise to try together. Tune in to learn how to take control of your pain and reconnect with what matters most, even in the face of MS.   Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product, service, or diet associated with the content of this program.

My MS Story- Episode 183 - Transcript In this episode we join our host Stephanie Buxhoeveden and special guest Ashley Ratcliff Lundy as we dive into the personal journeys of living with Multiple Sclerosis (MS) as we share unique stories of diagnosis, the emotional rollercoaster that follows, and how perspectives on life have shifted since that moment. From the first signs of MS to the life-changing diagnosis, our guest speaks about challenges, the feelings of uncertainty, fear, and hope, while hearing the lessons they've learned along the way. With honesty and resilience, we discuss how to redefine goals, priorities, and outlook on life, offering valuable advice to those newly diagnosed. Tune in for an inspiring conversation on adapting to change, embracing strength, and finding a renewed sense of purpose in the face of MS. A special thank you to our generous sponsor Novartis. Poppy + Monarch, E-commerce business that supports the chronically ill community Jesus Year, The self-help memoir Ashley wrote about her MS diagnosis We Are ILL, The patient advocacy organization Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any service, or diet associated with the content of this program.

Navigating Pediatric MS - Challenges, Treatment, and Hope for the Future- Episode 182 - Transcript In this episode, we join our host Stephanie Buxhoeveden and two special guests Emily Blosberg with Oscar the Monkey and Harvard Neurology professor Tanuja Chitnis. Together we explore the complexities of pediatric multiple sclerosis and how it differs from the adult form of the disease. We'll dive into when pediatric MS is typically diagnosed and highlight the early signs that parents and what to watch for. Beyond medical treatment, managing MS as a child can be particularly challenging. We share valuable advice for families on navigating school, sports, and social life, while emphasizing the importance of emotional support and accommodations. We take a look at the future of pediatric MS research, discussing advancements in clinical trials, potential new therapies, and ongoing studies to improve outcomes for children and teenagers with MS. Tune in for an informative and hopeful discussion about pediatric MS, its challenges, and what's ahead for young patients. Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product, service, or diet associated with the content of this program.

Debunking Myths and Crafting Sleep Strategies for MS- Episode 181 - Transcript In this episode we join our host Stephanie Buxhoeveden and special guest Areti Vassilopoulos, we dive into the challenges of managing sleep with multiple sclerosis. From debunking common myths to exploring practical, real-life strategies, we provide insights on how to improve your sleep quality. Whether you're struggling with fatigue, or simply looking for a routine, we offer tips to help you create a sleep routine that supports your health and well-being. Tune in for expert advice and personal stories to help you navigate the connection between MS and sleep. Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product, service, or diet associated with the content of this program.

Debunking Myths and Crafting Sleep Strategies for MS- Episode 181 - Transcript In this episode we join our host Stephanie Buxhoeveden and special guest  Areti Vassilopoulos, we dive into the challenges of managing sleep with multiple sclerosis. From debunking common myths to exploring practical, real-life strategies, we provide insights on how to improve your sleep quality. Whether you're struggling with fatigue, or simply looking for a routine, we offer tips to help you create a sleep routine that supports your health and well-being. Tune in for expert advice and personal stories to help you navigate the connection between MS and sleep. Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product, service, or diet associated with the content of this program.

Aging with MS: Navigating the Journey- Episode 180 - Transcript In this episode we join our host Stephanie Buxhoeveden and special guest Le Hua as we explore the unique experiences of living with multiple sclerosis as we age.  Whether you're newly diagnosed or have been living with MS for years, this episode provides the support, inspiration, and knowledge you need to embrace the journey ahead. Tune in as we navigate the road to growing older with MS. Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product, service, or diet associated with the content of this program.

Transforming Your Mental Health Journey with MS- Episode 179 - Transcript Join host Dr. Stephanie Buxhoeveden with guest neuropsychologist Meghan Beier, who joins us to dive deeper into how various therapeutic approaches can transform your mental health journey with MS. Whether you're living with MS or a care partner, you'll find helpful explanations of different therapies and actionable insights that can empower you on your journey. If you're here looking for support, education, or inspiration, this episode is here to help you build resilience, live well, and thrive with MS. Thank you to Viatris for their support of this podcast episode. Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product, service, or diet associated with the content of this program.

Care Partners in Action: Celebrating Friendship and Support- Episode 177 - Transcript Join host Stephanie Buxhoeveden, an MS clinician and researcher, as she welcomes Sharon Vaughn and her care friend, Eileen Dubois. In celebration of Caregivers Month, Sharon and Eileen share their inspiring friendship and the unique ways they support one another. Discover the powerful bond between a  care partner and friend living with MS, as well as practical insights and heartfelt stories that highlight the importance of connection, compassion, and resilience in the face of challenges. Here we will have uplifting conversations that honor the vital role of care partners in our lives! Thank you to EMD Serono for their support of this podcast episode. Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product, service, or diet associated with the content of this program.

Hope in Innovation: Exploring CAR-T Cell Therapy for MS - Episode 178 - Transcript Join host Dr. Stephanie Buxhoeveden, someone living with multiple sclerosis and a dedicated clinician and researcher. In this episode, she welcomes Dr. Gregory Wu, who is making significant strides in MS research, particularly in CAR-T cell therapy. Join us as they dive into an engaging conversation about Dr. Wu's work, his experiences in the field, and what the future may hold for MS treatments. Don't miss this opportunity to learn and regain hope in upcoming MS research! Thank you to Bristol Myers Squibb and Kyverna for their support of this podcast episode. Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product, service, or diet associated with the content of this program.

Taking Control: Understanding and Managing MS Progression- Episode 176 - Transcript In this empowering episode, host Stephanie Buxhoeveden connects with MS advocate and author Julie Stamm. Join us as we explore the complexities of the disease process, unpacking what it means to live with progressive MS.  Julie shares her personal journey, insights on smoldering MS, and practical strategies for regaining control. Whether you're living with MS or supporting someone who is, this conversation offers hope, resilience, and valuable knowledge to help you navigate the challenges of MS disease progression. Thank you to Sanofi for their support of this podcast episode. Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product, service, or diet associated with the content of this program.

Occupational Therapy: Redesigning Your Life With MS- Episode 175 - Transcript In this episode, host Stephanie Buxhoeveden sits down with occupational therapist Rebecca Cunningham to explore the impact of MS on the various aspects of our lives including work, school, and parenting with MS. Together, they will delve into how MS affects daily routines and pursuits and discuss how an occupational therapist can offer support. While we often strive to maximize productivity and efficiency, this episode highlights the importance of pacing tasks and offers tips for effective time and energy management strategies. Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product, service, or diet associated with the content of this program.

Current Research Updates on Rehabilitation in MS - Episode 174 - Transcript In this episode, host Stephanie Buxhoeveden sits down with Dr. Kathy Zackowski, who brings two decades of patient care experience and a strong background in MS research. They'll explore the latest developments in MS rehabilitation, discussing how it can impact various aspects of life, how to choose the right physical therapist, and the exciting opportunities for participating in rehabilitation studies. Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product, service, or diet associated with the content of this program.

Intermittent Fasting and MS - Episode 170 - Transcript In this episode we host guest Dr. Samantha Roman who is not only a neurologist but also lives with MS. Hear more about the exciting topic of Intermittent Fasting. What is intermittent fasting? Is intermittent fasting safe for people with MS? What do we know about gut health and MS? Listen in to learn the answers to these questions and more. We'll go into detail on the different methods and benefits of intermittent fasting and tips on how to get started. Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product, service, or diet associated with the content of this program.

The National MS Brain Bank: Advancing Research - Episode 173 - Transcript In this episode, host Stephanie Buxhoeveden talks in detail with Dr. Claire Riley about the crucial role of the National MS Brain Bank in unraveling the complexities of Multiple Sclerosis through detailed Central Nervous System tissue research. It highlights the importance of this unique resource in advancing our understanding and treatment of MS.

Health Insurance and MS: Breaking Down Benefits - Episode 172 - Transcript Join host Stephanie Buxhoeveden alongside nurse and certified case manager Judy Gulley as they explore the complexities of health insurance. From different insurance types to managing costs and benefits, it can all be confusing.  Nurse Judy breaks it all down and provides insights into which options might work best for you.  Stephanie also shares her own experiences navigating insurance while living with MS, providing real-life examples. Tune in for practical advice and valuable resources.

Mental Health and MS: Understanding Resilience - Episode 171 - Transcript In this episode we hear from Psychologist, Roz Kalb and host Stephanie Buxhoeveden about Resilience, just in time for Mental Health Month. We talk about the meaning of resilience and being emotionally agile.  Also, learning to be flexible with your thoughts and feelings. We will encourage different ways to respond and how to accept different challenges in MS and in life overall.

Navigating a New MS Diagnosis - Episode 169 - Transcript - In this episode of the podcast, we welcome Megan Hall who is young, newly diagnosed, a new parent, and a small business owner. Megan and Stephanie talk candidly about what it is like navigating the complexities of a new MS diagnosis. They discuss the importance of finding the right doctor to determine a treatment plan together. Megan shares that it took some trial and error to learn what MS medication was the best fit for her and her lifestyle considerations. Megan also opens up about what she felt, experienced, and the questions she's had as a young parent with a new diagnosis of MS. She shares the conversations she had with healthcare providers that have helped. You'll also hear about the health and wellness lifestyle changes that Megan has made as a result of her diagnosis and the goals she has for the future. Megan wants all those newly diagnosed to know that it's going to be okay. There are many resources out there for those navigating new diagnosis or navigating parenthood with MS. Look for support, ask for help, and find your community.

Diversity in MS Research and Clinical Trials - Episode 168 - Transcript - In this episode we hear from Neurologist Jacqueline Rosenthal and host Stephanie Buxhoeveden about the need for diversity in MS research and clinical trials. We talk about why diversity is important and what is being done to fill the gaps in care and MS research. And most importantly, we talk about how you can get involved!

Progressive MS Research Update - Episode 167 - Transcript - This episode of the Can Do MS Podcast welcomes guest Dr. Bruce Bebo who is the Executive Vice President of Research at the National MS Society. Bruce and host, Stephanie talk about what's on the forefront of Progressive MS Research. Learn about the projects, trials, and collaborations that are currently happening around the globe. The sheer amount of research that's being done is cause for optimism.

2023 Mindful Moments: Week 52 – Episode 166– Transcript – I spend time with my soul. Tap into the power of this mantra with Megan Weigel, Nurse Practitioner and MS-Certified Nurse, and discover a mindful moment for yourself.

2023 Mindful Moments: Week 51 – Episode 165– Transcript – I feel relieved. Tap into the power of this mantra with Megan Weigel, Nurse Practitioner and MS-Certified Nurse, and discover a mindful moment for yourself.

2023 Mindful Moments: Week 50 – Episode 164– Transcript – I notice where emotions go in my body. Tap into the power of this mantra with Megan Weigel, Nurse Practitioner and MS-Certified Nurse, and discover a mindful moment for yourself.

2023 Mindful Moments: Week 49 – Episode 163– Transcript – I'll ask for what I need. Tap into the power of this mantra with Megan Weigel, Nurse Practitioner and MS-Certified Nurse, and discover a mindful moment for yourself.

2023 Mindful Moments: Week 48 – Episode 162– Transcript – It feels good to let go. Tap into the power of this mantra with Megan Weigel, Nurse Practitioner and MS-Certified Nurse, and discover a mindful moment for yourself.

2023 Mindful Moments: Week 47 – Episode 161– Transcript – Gratitude is how you heal. Tap into the power of this mantra with Megan Weigel, Nurse Practitioner and MS-Certified Nurse, and discover a mindful moment for yourself.

MS Care From All Angles: Partner and Provider - Episode 160 - Transcript - On this episode on the Can Do MS Podcast, we welcome guest Timothy West who is a neurologist with a unique perspective on MS. His own experiences as an MS care partner have given him insights and a passion for helping his patients with MS. We talk about how far MS treatments have come since his mother's diagnosis and the hope he has for the next generation of MS patients. Timothy also opens up about his experiences as a care partner and he reminds us all to be patient and gentle with ourselves.

2023 Mindful Moments: Week 46 – Episode 159– Transcript – Take the time off. Tap into the power of this mantra with Megan Weigel, Nurse Practitioner and MS-Certified Nurse, and discover a mindful moment for yourself.

2023 Mindful Moments: Week 45 – Episode 158– Transcript – It's okay that I can't make sense of things right now. Tap into the power of this mantra with Megan Weigel, Nurse Practitioner and MS-Certified Nurse, and discover a mindful moment for yourself.

2023 Mindful Moments: Week 44 – Episode 157– Transcript – My dreams have words, wings, and footprints. Tap into the power of this mantra with Megan Weigel, Nurse Practitioner and MS-Certified Nurse, and discover a mindful moment for yourself.

2023 Mindful Moments: Week 43 – Episode 156– Transcript – I set loose my binds. Tap into the power of this mantra with Megan Weigel, Nurse Practitioner and MS-Certified Nurse, and discover a mindful moment for yourself.

Biosimilar Medications and MS: What You Need To Know - Episode 155 - Transcript - Biosimilars are not new to the medical world, but they are new to multiple sclerosis. In this episode, host Stephanie Buxhoeveden welcomes neurologist Derrick Robertson to talk about what you need to know about biosimilar medications as they come to market. Join us for this conversation, and you'll get answers to common questions like: what is a biosimilar? What are the differences between biosimilars vs. generics? What is the biosimilar approval process? Are biosimilars safe? And what questions you should be asking your doctor. Thank you to Sandoz for their support of this podcast episode.   Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product or service associated with the content of this program.  

2023 Mindful Moments: Week 42 – Episode 154– Transcript – No is a complete sentence. Tap into the power of this mantra with Megan Weigel, Nurse Practitioner and MS-Certified Nurse, and discover a mindful moment for yourself.

2023 Mindful Moments: Week 41 – Episode 153– Transcript – I hear the voice of my heart. Tap into the power of this mantra with Megan Weigel, Nurse Practitioner and MS-Certified Nurse, and discover a mindful moment for yourself.

2023 Mindful Moments: Week 40 – Episode 152– Transcript – I stand on firm ground. Tap into the power of this mantra with Megan Weigel, Nurse Practitioner and MS-Certified Nurse, and discover a mindful moment for yourself.

2023 Mindful Moments: Week 39 – Episode 151– Transcript – I am capable of clear communication. Tap into the power of this mantra with Megan Weigel, Nurse Practitioner and MS-Certified Nurse, and discover a mindful moment for yourself.

Figure It Out: Adaptations and Staying Active - Episode 150 - Transcript - In this episode, we're excited to feature our guest and past program participant, Danica King, who is thriving with MS thanks to her amazing ability to “figure it out.” We're excited to have Danica on this episode while we celebrate Can Do Month, which is in honor of our founder Jimmie Heuga. Jimmie wore many hats including that of an athlete, Olympian, husband, father, and pioneer in the MS Community. Jimmie was all about discovering what you “Can Do” to be able to enjoy the things you love and even try new adventures while living with MS. There are a lot of parallels between Jimmie's Can Do Spirit and Danica's own story. Danica is passionate about adaptive sports and has participated in many sports and activities. Through her story she encourages us to “figure it out” whether that's seeking out adaptive equipment or asking for help. You can check out more of Danica's story in her book Figure It Out: Snapshots Of My Journey With Multiple Sclerosis and follow her on Instagram @FigureItOutMS Thank you to Biogen and Viatris for their support of Can Do Month and this podcast episode. In this episode we mention a variety of resources, a few are below for your reference. MSAA Cooling Distribution Program MSAA Equipment Distribution Program Sportable NMSS Navigator

2023 Mindful Moments: Week 38 – Episode 149– Transcript – My thoughts are clear. Tap into the power of this mantra with Megan Weigel, Nurse Practitioner and MS-Certified Nurse, and discover a mindful moment for yourself.

2023 Mindful Moments: Week 37 – Episode 148– Transcript – My life has purpose. Tap into the power of this mantra with Megan Weigel, Nurse Practitioner and MS-Certified Nurse, and discover a mindful moment for yourself.

2023 Mindful Moments: Week 36 – Episode 147– Transcript – I am a survivor. Tap into the power of this mantra with Megan Weigel, Nurse Practitioner and MS-Certified Nurse, and discover a mindful moment for yourself.

Artist, Rebel, and Progressive MS Warrior - Episode 146 - Transcript - Meet street artist, rebel, and progressive MS warrior Lydia Emily. She shares her life with us including the story of her MS diagnosis, adaptations she made, and some stories and experiences from creating art. Lydia Emily's approach to her MS is real and refreshing. She sees strength in seeking out adaptations, asking for help, and making the adjustments needed to live a happy and easier life with MS. Keep your eye out for Lydia Emily's upcoming book The Art of Hope. You can learn more about Lydia Emily and her art via her website - https://lydiaemily.com/ and her Instagram @lydiaemily.  

2023 Mindful Moments: Week 35 – Episode 145– Transcript – I can be alert and relaxed. Tap into the power of this mantra with Megan Weigel, Nurse Practitioner and MS-Certified Nurse, and discover a mindful moment for yourself.

2023 Mindful Moments: Week 34 – Episode 144– Transcript – I release what I don't need to carry. Tap into the power of this mantra with Megan Weigel, Nurse Practitioner and MS-Certified Nurse, and discover a mindful moment for yourself.

2023 Mindful Moments: Week 33 – Episode 143– Transcript – I feel inspired. Tap into the power of this mantra with Megan Weigel, Nurse Practitioner and MS-Certified Nurse, and discover a mindful moment for yourself.

2023 Mindful Moments: Week 32 – Episode 142 – Transcript – I communicate clearly. Tap into the power of this mantra with Megan Weigel, Nurse Practitioner and MS-Certified Nurse, and discover a mindful moment for yourself.

2023 Mindful Moments: Week 31 – Episode 141 –Transcript – I know what's good and what's bad for me. Tap into the power of this mantra with Megan Weigel, Nurse Practitioner and MS-Certified Nurse, and discover a mindful moment for yourself.

2023 Mindful Moments: Week 30 – Episode 140 – Transcript – My heart sees all of me. Tap into the power of this mantra with Megan Weigel, Nurse Practitioner and MS-Certified Nurse, and discover a mindful moment for yourself.

Family Planning Considerations for Men and Women with MS - Episode 139 - Transcript - Join host Stephanie Buxhoeveden and neurologist, Dr. Suma Shah as they break down the big topic of family planning. There are so many factors for both men and women with MS when it comes to family planning that each step of the way should be considered thoughtfully. Learn what Dr. Suma Shah has to say about DMT considerations, contraceptives, fertility, sexual dysfunction, pregnancy, breast feeding, and more.

2023 Mindful Moments: Week 29 – Episode 138 – Transcript – I am comfortable. Tap into the power of this mantra with Megan Weigel, Nurse Practitioner and MS-Certified Nurse, and discover a mindful moment for yourself.

2023 Mindful Moments: Week 28– Episode 137 – Transcript – My spirit is radiant. Tap into the power of this mantra with Megan Weigel, Nurse Practitioner and MS-Certified Nurse, and discover a mindful moment for yourself.

2023 Mindful Moments: Week 27– Episode 136 – Transcript – I can accept help. Tap into the power of this mantra with Megan Weigel, Nurse Practitioner and MS-Certified Nurse, and discover a mindful moment for yourself.