Podcasts about wnl

Next week, Matt Knaggs and Colin Goodman will attempt to set a Guinness World Record for running the 350-mile length of Ireland with MS. This week, you'll meet Matt and Colin and learn why this undertaking is so important to each of them.  We're also sharing survey results that point to gaps in how we approach MS care from the day of diagnosis. We'll tell you what it really means when you read that the prevalence of MS is increasing. It isn't bad news at all! We'll provide you with all the details you need to register for ECTRIMS Patient Community Day. And, if you can spare 20 minutes, we'll tell you how you can participate in an MS research study from the comfort of your own home. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: We're hitting the open road in Ireland with Matt Knaggs and Colin Goodman  :22 Survey points to gaps in how we approach MS care from day one  2:48 What does the increase in MS prevalence really mean?  8:48 Register for ECTRIMS 2026 Patient Community Day  12:33 An opportunity for you to participate in MS research without leaving home   14:10 Matt Knaggs and Colin Goodman talk about their attempt to set a Guinness World Record for running the length of Ireland with MS  15:56 Share this episode  32:13 Next week  32:33 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/460 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes at www.RealTalkMS.com STUDY: Understanding the Unmet Needs of People with MS at Diagnosis and Throughout Their Care Journey: Insights from a Survey-Based Study https://link.springer.com/article/10.1007/s40120-026-00942-y STUDY: Drivers of Prevalence in Major Motor Neurodegenerative Diseases: Temporal Trends in Sweden and France (2003-2022) https://www.neurology.org/doi/10.1212/WNL.0000000000218072 REGISTER: ECTRIMS 2026 Patient Community Day https://www.ectrimspatientcommunity.eu PARTICPATE IN RESEARCH: Survey: Automatic and Reflective Determinants, Fatigue, and Physical Activity for People with Multiple Sclerosis https://purdue.ca1.qualtrics.com/jfe/form/SV_douenJftXAcGxVk JOIN: The RealTalk MS Facebook Group https://facebook.com/groups/realtalkms REVIEW: Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on X, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 460 Guest: Matt Knaggs, Colin Goodman Privacy Policy

In part two of this series, Dr. Stacey Clardy and Dr. John Ney discuss the primary limitation of using claims data to estimate wait times for neurology services, particularly in rural areas or for subspecialty neurology care.  Show citation: Laffargue EK, Van Der Goes DN, Wilson AM, Parziale SD, Sico JJ, Ney J. Neurology Wait Times After Primary Care or Emergency Department Visits Among the Commercially Insured Population in the United States: 2019-2023. Neurology. 2026;106(10):e218008. doi:10.1212/WNL.0000000000218008  

In part two of this series, Dr. Stacey Clardy and Dr. John Ney discuss the primary limitation of using claims data to estimate wait times for neurology services, particularly in rural areas or for subspecialty neurology care.  Show citation: Laffargue EK, Van Der Goes DN, Wilson AM, Parziale SD, Sico JJ, Ney J. Neurology Wait Times After Primary Care or Emergency Department Visits Among the Commercially Insured Population in the United States: 2019-2023. Neurology. 2026;106(10):e218008. doi:10.1212/WNL.0000000000218008  

Na bijna acht jaar aan het roer van MKB-Nederland draagt Jacco Vonhof vandaag het voorzitterschap over aan zijn opvolger. Waar kijkt hij met de meeste trots op terug? En wat gaat hij nu doen? Op zijn laatste werkdag blikt hij vooruit en terug. Sven op 1 is een programma van Omroep WNL. Meer van WNL vind je op onze website en sociale media: ► Website: https://www.wnl.tv  ► Facebook: https://www.facebook.com/omroepwnl  ► Instagram: https://www.instagram.com/omroepwnl ► Twitter: https://www.twitter.com/wnlvandaag ► Steun WNL, word lid: https://www.steunwnl.tv ► Gratis Nieuwsbrief: https://www.wnl.tv/nieuwsbrief 

Sven Kockelmann ontvangt minister van Justitie en Veiligheid David van Weel, D66-fractievoorzitter Jan Paternotte en directeur van de Atlantische Commissie Anna van Zoest. Café Kockelmann is een programma van Omroep WNL. Meer van WNL vind je op onze website en sociale media: ► Website: https://www.wnl.tv  ► Facebook: https://www.facebook.com/omroepwnl  ► Instagram: https://www.instagram.com/omroepwnl ► Twitter: https://www.twitter.com/wnlvandaag ► Steun WNL, word lid: https://www.steunwnl.tv ► Gratis Nieuwsbrief: https://www.wnl.tv/nieuwsbrief 

Na 10 jaar neemt Aleid Wolfsen afscheid als voorzitter van de Autoriteit Persoonsgegevens, de privacywaakhond. In een tijd waarin de cyberdreiging groeit, het datalekken regent en AI nieuwe uitdagingen met zich meebrengt, blikt hij terug op de afgelopen jaren.  Sven op 1 is een programma van Omroep WNL. Meer van WNL vind je op onze website en sociale media: ► Website: https://www.wnl.tv  ► Facebook: https://www.facebook.com/omroepwnl  ► Instagram: https://www.instagram.com/omroepwnl ► Twitter: https://www.twitter.com/wnlvandaag ► Steun WNL, word lid: https://www.steunwnl.tv ► Gratis Nieuwsbrief: https://www.wnl.tv/nieuwsbrief   

In part one of this series, Dr. Stacey Clardy and Dr. John Ney break down the difference between mean and median wait times for new neurology appointments.  Show citation: Laffargue EK, Van Der Goes DN, Wilson AM, Parziale SD, Sico JJ, Ney J. Neurology Wait Times After Primary Care or Emergency Department Visits Among the Commercially Insured Population in the United States: 2019-2023. Neurology. 2026;106(10):e218008. doi:10.1212/WNL.0000000000218008  

Topdrukte in Brussel vandaag. EU-leiders zijn bij elkaar om te praten over drugs, asiel, Oekraïne en geld. Even verderop zijn de NAVO-ministers van Defensie op bezoek bij Mark Rutte. Genoeg te bespreken dus met De Telegraaf-correspondent Alexander Bakker, live vanaf het NAVO-hoofdkwartier bij Sven op NPO Radio 1. Sven op 1 is een programma van Omroep WNL. Meer van WNL vind je op onze website en sociale media: ► Website: https://www.wnl.tv  ► Facebook: https://www.facebook.com/omroepwnl  ► Instagram: https://www.instagram.com/omroepwnl ► Twitter: https://www.twitter.com/wnlvandaag ► Steun WNL, word lid: https://www.steunwnl.tv ► Gratis Nieuwsbrief: https://www.wnl.tv/nieuwsbrief 

Volgende week vrijdag presenteert het kabinet zijn langverwachte stikstofpakket. Toch lekte gisteren al een deel uit. Gaan deze plannen Nederland nu echt van het stikstofslot halen? En is er draagvlak onder boeren? Voorzitter van de Jonge Boeren Gerben Boom schuift aan bij Sven. Sven op 1 is een programma van Omroep WNL. Meer van WNL vind je op onze website en sociale media: ► Website: https://www.wnl.tv  ► Facebook: https://www.facebook.com/omroepwnl  ► Instagram: https://www.instagram.com/omroepwnl ► Twitter: https://www.twitter.com/wnlvandaag ► Steun WNL, word lid: https://www.steunwnl.tv ► Gratis Nieuwsbrief: https://www.wnl.tv/nieuwsbrief 

Dr. Madeline Russell discusses a common complication faced by patients with acute ischemic stroke.  Show citation:  Schwarz G, Cascio Rizzo A, Ambler G, et al. Contrast-Associated Acute Kidney Injury After Thrombectomy for Ischemic Stroke: Prognostic Impact and CAN-REST Predictive Score. Neurology. 2026;106(6):e214655. doi:10.1212/WNL.0000000000214655  

Welmoed Sijtsma verruilt WNL voor RTL. Showbizzdeskundige Jan Uriot begrijpt niets van deze keuze, aangezien de presentatrice onlangs heeft gedeeld dat ze de ‘pest' heeft aan commerciële omroepen. Jordi Versteegden vraagt zich af tot wanneer Welmoed Goedemorgen Nederland blijft presenteren. Thijs Römer is terug: de acteur heeft in alle stilte gewerkt aan een theatershow waarin hij terugblikt op zijn jaren in eenzaamheid, nadat hij in de gevangenis zat wegens online seksueel grensoverschrijdend gedrag met minderjarige meisjes. Iedereen verdient een tweede kans, maar om daar een theatershow aan op te hangen, vindt Jan vreemd. Verder in deze nieuwe aflevering van Strikt Privé: Bert en Ernie zijn in rouw na het overlijden van Wim T. Schippers en Merel Ek is ternauwernood ontsnapt aan een diarree-aanval op televisie.See omnystudio.com/listener for privacy information.

Volgens het akkoord tussen de VS en Iran zou de Straat van Hormuz vrijdag weer moeten opengaan voor scheepvaart. Wat voor gevolgen heeft dit voor onze welvaart? Sven spreekt CEO van de Antwerpse haven Rob Smeets. Sven op 1 is een programma van Omroep WNL. Meer van WNL vind je op onze website en sociale media: ► Website: https://www.wnl.tv  ► Facebook: https://www.facebook.com/omroepwnl  ► Instagram: https://www.instagram.com/omroepwnl ► Twitter: https://www.twitter.com/wnlvandaag ► Steun WNL, word lid: https://www.steunwnl.tv ► Gratis Nieuwsbrief: https://www.wnl.tv/nieuwsbrief 

Dr. Bradley Ong discusses the use of eptinezumab in combination with patient education is an effective treatment for reducing disease burden in patients living with chronic migraine complicated by medication overuse.  Show citation:  Jensen RH, Lundqvist C, Schytz HW, et al. Eptinezumab With Patient Education for Chronic Migraine and Medication-Overuse Headache: The Randomized, Placebo-Controlled RESOLUTION Trial. Neurology. 2026;106(8):e214863. doi:10.1212/WNL.0000000000214863 

De Straat van Hormuz gaat open, als Iran en de VS de overeenkomst vrijdag in Zwitserland ondertekenen. Dat bevestigt de Amerikaanse president Trump via TruthSocial. Komt er nu écht een einde aan de oorlog? Ben Bekkering, voormalig plaatsvervangend commandant Zeestrijdkrachten en militair attaché bij de NAVO en EU, schuift aan bij Sven Kockelmann. Sven op 1 is een programma van Omroep WNL. Meer van WNL vind je op onze website en sociale media: ► Website: https://www.wnl.tv  ► Facebook: https://www.facebook.com/omroepwnl  ► Instagram: https://www.instagram.com/omroepwnl ► Twitter: https://www.twitter.com/wnlvandaag ► Steun WNL, word lid: https://www.steunwnl.tv ► Gratis Nieuwsbrief: https://www.wnl.tv/nieuwsbrief 

Sven Kockelmann ontvangt zelfstandig Kamerlid Mona Keijzer, Europarlementariër Jeroen Lenaers (CDA) en politiek verslaggevers Wouter de Winther en Tessa van Viegen.  Café Kockelmann is een programma van Omroep WNL. Meer van WNL vind je op onze website en sociale media: ► Website: https://www.wnl.tv  ► Facebook: https://www.facebook.com/omroepwnl  ► Instagram: https://www.instagram.com/omroepwnl ► Twitter: https://www.twitter.com/wnlvandaag ► Steun WNL, word lid: https://www.steunwnl.tv ► Gratis Nieuwsbrief: https://www.wnl.tv/nieuwsbrief 

Vandaag gaat officieel het Europese Migratiepact in, met hoge verwachtingen vanuit Brussel én Den Haag. Eindigt vandaag dan de asielcrisis van de afgelopen tien jaar, of zijn er nog te veel losse eindjes? We spreken met Hans Leijtens, directeur van Frontex, de Europese grensbewaking, en Jeroen Lenaers, Nederlandse Europarlementariër en chief whip van de Christendemocraten in het Europees Parlement . Sven op 1 is een programma van Omroep WNL. Meer van WNL vind je op onze website en sociale media: ► Website: https://www.wnl.tv  ► Facebook: https://www.facebook.com/omroepwnl  ► Instagram: https://www.instagram.com/omroepwnl ► Twitter: https://www.twitter.com/wnlvandaag ► Steun WNL, word lid: https://www.steunwnl.tv ► Gratis Nieuwsbrief: https://www.wnl.tv/nieuwsbrief 

"Wet- en regelgeving zijn vandaag de dag vaak zeer complex." Met die woorden opent Kees van der Staaij, samen met vier andere preadviseurs, zijn boek over de uitvoerbaarheid van wet- en regelgeving. Straks vertelt hij bij Sven Kockelmann op welke oplossingen hij ziet. Sven op 1 is een programma van Omroep WNL. Meer van WNL vind je op onze website en sociale media: ► Website: https://www.wnl.tv  ► Facebook: https://www.facebook.com/omroepwnl  ► Instagram: https://www.instagram.com/omroepwnl ► Twitter: https://www.twitter.com/wnlvandaag ► Steun WNL, word lid: https://www.steunwnl.tv ► Gratis Nieuwsbrief: https://www.wnl.tv/nieuwsbrief 

Terwijl de VS en Iran elkaar opnieuw bestoken na het neerstorten van een Amerikaanse Apache-helikopter boven de Straat van Hormuz en het fragiele bestand op instorten staat, rammelt ook de militaire samenwerking in Europa. Wat betekent dat voor Nederland? Sven spreekt met oud-topambtenaar Ed Kronenberg. Sven op 1 is een programma van Omroep WNL. Meer van WNL vind je op onze website en sociale media: ► Website: https://www.wnl.tv  ► Facebook: https://www.facebook.com/omroepwnl  ► Instagram: https://www.instagram.com/omroepwnl ► Twitter: https://www.twitter.com/wnlvandaag ► Steun WNL, word lid: https://www.steunwnl.tv ► Gratis Nieuwsbrief: https://www.wnl.tv/nieuwsbrief 

Nog een paar dagen en dan treedt het Europese Migratiepact in werking. Volgens veel politici een belangrijke stap om de asielinstroom te beperken. Toch zitten er nog een hoop haken en ogen aan. Tweede Kamerlid en asielwoordvoerder van D66, Robert van Asten, schuift aan bij Sven. Sven op 1 is een programma van Omroep WNL. Meer van WNL vind je op onze website en sociale media: ► Website: https://www.wnl.tv  ► Facebook: https://www.facebook.com/omroepwnl  ► Instagram: https://www.instagram.com/omroepwnl ► Twitter: https://www.twitter.com/wnlvandaag ► Steun WNL, word lid: https://www.steunwnl.tv ► Gratis Nieuwsbrief: https://www.wnl.tv/nieuwsbrief 

Te gast bij Sven is staatssecretaris van Defensie Derk Boswijk. Op de ochtend waarop de NAVO boven Letland een drone uit de lucht moest schieten. Hij vertelt daarover en over zijn plannen rondom defensie-innovatie. Sven op 1 is een programma van Omroep WNL. Meer van WNL vind je op onze website en sociale media: ► Website: https://www.wnl.tv  ► Facebook: https://www.facebook.com/omroepwnl  ► Instagram: https://www.instagram.com/omroepwnl ► Twitter: https://www.twitter.com/wnlvandaag ► Steun WNL, word lid: https://www.steunwnl.tv ► Gratis Nieuwsbrief: https://www.wnl.tv/nieuwsbrief 

Minister van Werk en Participatie Thierry Aartsen wil statushouders en kansrijke asielzoekers sneller aan het werk helpen. Hij vertelt erover in Café Kockelmann. Verder te gast: de burgemeester van Arnhem Ahmed Marcouch over het omstreden optreden van rapper Ye (Kanye West), hoogleraar Wim Voermans over de parlementaire enquete en CDA-senator Madeleine van Toorenburg over haar ervaring met parlementaire enquetes. Café Kockelmann is een programma van Omroep WNL. Meer van WNL vind je op onze website en sociale media: ► Website: https://www.wnl.tv  ► Facebook: https://www.facebook.com/omroepwnl  ► Instagram: https://www.instagram.com/omroepwnl ► Twitter: https://www.twitter.com/wnlvandaag ► Steun WNL, word lid: https://www.steunwnl.tv ► Gratis Nieuwsbrief: https://www.wnl.tv/nieuwsbrief 

ProRail-topman John Voppen vertrekt na 6,5 jaar leiding te hebben gegeven in een tijd dat er grote zorgen zijn over de kwetsbaarheid van onze infrastructuur en de cyberveiligheid van het spoor. Voelt het kabinet de urgentie? En wat is zijn laatste oproep aan de politiek? Sven op 1 is een programma van Omroep WNL. Meer van WNL vind je op onze website en sociale media: ► Website: https://www.wnl.tv  ► Facebook: https://www.facebook.com/omroepwnl  ► Instagram: https://www.instagram.com/omroepwnl ► Twitter: https://www.twitter.com/wnlvandaag ► Steun WNL, word lid: https://www.steunwnl.tv ► Gratis Nieuwsbrief: https://www.wnl.tv/nieuwsbrief 

Minister David van Weel (J&V) reist vandaag naar Zandvoort om bewoners te spreken over overlast door hangjongeren, al jaren een groeiende zorg. Samen met minister Heerma (BZK) stuurde hij gisteren een brief naar de Tweede Kamer over het demonstratierecht: burgemeesters moeten meer bevoegdheden krijgen om ordeverstorende demonstraties te verplaatsen, aldus de brief. Sven op 1 is een programma van Omroep WNL. Meer van WNL vind je op onze website en sociale media: ► Website: https://www.wnl.tv  ► Facebook: https://www.facebook.com/omroepwnl  ► Instagram: https://www.instagram.com/omroepwnl ► Twitter: https://www.twitter.com/wnlvandaag ► Steun WNL, word lid: https://www.steunwnl.tv ► Gratis Nieuwsbrief: https://www.wnl.tv/nieuwsbrief 

De Raad van State heeft besloten dat GroenLinks-PvdA de naam Progressief Nederland (PRO) mag gebruiken bij landelijke en Europese verkiezingen.
De uitspraak komt een dag voor het debat over de sociale zekerheid dat is aangevraagd door partijleider Jesse Klaver. Sven op 1 is een programma van Omroep WNL. Meer van WNL vind je op onze website en sociale media: ► Website: https://www.wnl.tv  ► Facebook: https://www.facebook.com/omroepwnl  ► Instagram: https://www.instagram.com/omroepwnl ► Twitter: https://www.twitter.com/wnlvandaag ► Steun WNL, word lid: https://www.steunwnl.tv ► Gratis Nieuwsbrief: https://www.wnl.tv/nieuwsbrief 

Breekt er een nieuwe fase aan in de oorlog in Oekraïne, waarin Europa een grotere rol speelt en mogelijk de overhand krijgt? Hoogleraar oorlogsstudies Frans Osinga duidt de veranderende verhoudingen aan het front. Zo meteen in gesprek met Sven Kockelmann. Sven op 1 is een programma van Omroep WNL. Meer van WNL vind je op onze website en sociale media: ► Website: https://www.wnl.tv  ► Facebook: https://www.facebook.com/omroepwnl  ► Instagram: https://www.instagram.com/omroepwnl ► Twitter: https://www.twitter.com/wnlvandaag ► Steun WNL, word lid: https://www.steunwnl.tv ► Gratis Nieuwsbrief: https://www.wnl.tv/nieuwsbrief 

De spanning tussen het kabinet en de vakbonden houdt aan. Hoe denkt CNV-voorzitter Hans van den Heuvel, een van de hoofdonderhandelaars namens de bonden, de impasse te doorbreken?  Sven op 1 is een programma van Omroep WNL. Meer van WNL vind je op onze website en sociale media: ► Website: https://www.wnl.tv  ► Facebook: https://www.facebook.com/omroepwnl  ► Instagram: https://www.instagram.com/omroepwnl ► Twitter: https://www.twitter.com/wnlvandaag ► Steun WNL, word lid: https://www.steunwnl.tv ► Gratis Nieuwsbrief: https://www.wnl.tv/nieuwsbrief 

Sven Kockelmann ontvangt minister van Financiën Eelco Heinen, minister van Onderwijs, Cultuur en Wetenschap Rianne Letschert en burgemeester van Leeuwarden Sybrand Buma. Café Kockelmann is een programma van Omroep WNL. Meer van WNL vind je op onze website en sociale media: ► Website: https://www.wnl.tv  ► Facebook: https://www.facebook.com/omroepwnl  ► Instagram: https://www.instagram.com/omroepwnl ► Twitter: https://www.twitter.com/wnlvandaag ► Steun WNL, word lid: https://www.steunwnl.tv ► Gratis Nieuwsbrief: https://www.wnl.tv/nieuwsbrief 

Sven op 1 is een programma van Omroep WNL. Meer van WNL vind je op onze website en sociale media: ► Website: https://www.wnl.tv  ► Facebook: https://www.facebook.com/omroepwnl  ► Instagram: https://www.instagram.com/omroepwnl ► Twitter: https://www.twitter.com/wnlvandaag ► Steun WNL, word lid: https://www.steunwnl.tv ► Gratis Nieuwsbrief: https://www.wnl.tv/nieuwsbrief 

Een zware kabinetsdelegatie spreekt vanochtend met sociale partners over de bezuinigingsplannen op sociale zekerheid. Sven bespreekt het met oud-topambtenaar Hans Borstlap, die pleit voor een totale verbouwing van het 'museale stelsel'. Sven op 1 is een programma van Omroep WNL. Meer van WNL vind je op onze website en sociale media: ► Website: https://www.wnl.tv  ► Facebook: https://www.facebook.com/omroepwnl  ► Instagram: https://www.instagram.com/omroepwnl ► Twitter: https://www.twitter.com/wnlvandaag ► Steun WNL, word lid: https://www.steunwnl.tv ► Gratis Nieuwsbrief: https://www.wnl.tv/nieuwsbrief 

Rob Jetten hield vandaag zijn eerste grote buitenlandtoespraak bij de eerste Next Gen Veiligheidsconferentie in Den Haag. Sven spreekt er met Jaap de Hoop Scheffer over de toekomst van de NAVO. Sven op 1 is een programma van Omroep WNL. Meer van WNL vind je op onze website en sociale media: ► Website: https://www.wnl.tv  ► Facebook: https://www.facebook.com/omroepwnl  ► Instagram: https://www.instagram.com/omroepwnl ► Twitter: https://www.twitter.com/wnlvandaag ► Steun WNL, word lid: https://www.steunwnl.tv ► Gratis Nieuwsbrief: https://www.wnl.tv/nieuwsbrief 

Angela de Jong is positief verrast door Johan Derksen, vertelt ze in de nieuwe AD Media Podcast. Hij trok het boetekleed aan na een foute opmerking over verkrachte vrouwen in de Engelse versie van Married at first sight. „Een groot compliment”, aldus de AD-columnist. Wie wordt de vervanger van Renze Klamer als hij met vakantie is? Het was deze week een komen en gaan van talkshowhosts op het kantoor van Endemol Shine. Vrijwel de hele presentatiestal van WNL kwam voorbij en ook Hila Noorzai zou vlak na haar zwangerschap al een pilot hebben gemaakt. Er is veel te doen rond het Eurovisie Songfestival. Omroep Max ziet het wel zitten om het liedjesfestijn over te nemen komend jaar. Ook haken diverse landen weer aan na de overwinning van Bulgarije en lijkt zelfs Canada interesse te hebben om mee te gaan doen. Qmusic had wéér een actieweek en daar worden vraagtekens bij gezet. De radiozender heeft wel erg veel acties. Ook wordt de nieuwe vrijdag-collega van Mattie Valk besproken. Daarnaast is er weer een bevolkingsgroep die mag daten op televisie.. Dit keer mannen die op Texel wonen. Ook komt natuurlijk de tv-clash tussen Harry Mens en Catherine Keyl voorbij. Er is een ergernis over Hunted VIPS en Angela de Jong zet een nieuwe Videoland-documentaire in haar etalage. Luisteren dus! Naar de wekelijkse AD Media Podcast, waarin columnist Angela de Jong en verslaggevers Gudo Tienhooven en Mark den Blanken alle hoofd-, rand-, en bijzaken bespreken op het gebied van media. De presentatie is in handen van Manuel Venderbos. Luister je liever via Spotify of Apple, of een andere podcastapp? Dat kan! Vind al onze podcasts op ad.nl/podcasts.Support the show: https://krant.nl/See omnystudio.com/listener for privacy information.

Gisteren liep de deadline van de vakbonden af. Als de AOW-verhoging en bezuinigingen op sociale zekerheid niet van tafel gaan, volgen acties. Leggen de bonden zaterdag het land plat? Sven vraag het aan FNV-voorzitter Hans Spekman. Sven op 1 is een programma van Omroep WNL. Meer van WNL vind je op onze website en sociale media: ► Website: https://www.wnl.tv  ► Facebook: https://www.facebook.com/omroepwnl  ► Instagram: https://www.instagram.com/omroepwnl ► Twitter: https://www.twitter.com/wnlvandaag ► Steun WNL, word lid: https://www.steunwnl.tv ► Gratis Nieuwsbrief: https://www.wnl.tv/nieuwsbrief 

Dr. Alex Menze and Dr. Breton Asken discuss the long-term impacts of repetitive head impacts in football players, focusing on inflammation, brain microstructure, and cognitive decline. Show citation:  Emanuel OM, Miner AE, Lee SY, et al. Inflammation, Limbic White Matter Microstructure, and Clinical Symptoms in Retired American Football Players With Repetitive Head Impacts. Neurology. 2026;106(6):e214646. doi:10.1212/WNL.0000000000214646 

Dr. Alex Menze and Dr. Kathryn C. Fitzgerald discuss using accelerometry to detect subtle, longitudinal changes in disability in people with multiple sclerosis and how these changes relate to brain atrophy and disability progression.  Show citation:  Fitzgerald KC, Sanjayan M, Dewey BE, et al. Association of Changes in Activity Patterns With Brain Atrophy and Disability Progression in People With Multiple Sclerosis. Neurology. 2026;106(7):e214678. doi:10.1212/WNL.0000000000214678  Show transcript:  Dr. Alexander Menze: Hi, this is Alexander Menze. I just finished interviewing Kate Fitzgerald for the Neurology Podcast. For today's Neurology Minute, Kate, I'm hoping you can tell us the main points of your paper. Dr. Kathryn C. Fitzgerald:  So we followed 238 people with MS who are 40 or older for over three years and they wore risk-worn accelerometers roughly every three months and had regular clinical assessments and brain MRI. And what we found was that changes in activity patterns over time at the individual level were associated with subsequent changes in disability worsening and brain volume loss, particularly in the deep gray matter and thalamus. Dr. Alexander Menze: Thank you very much. Be sure to download this week's podcast to hear our full interview.  

One out of every two people with MS will experience clinical depression at some point in their MS journey, making depression one of the most significant yet under-discussed aspects of living with MS. While the physical symptoms of MS often take center stage, the neuropsychiatric challenges can be just as impactful on an individual's overall quality of life and long-term outcomes. Joining us to shed some light on this important topic is Dr. Anthony Feinstein, a world-renowned neuropsychiatrist and professor at the University of Toronto. Dr. Feinstein has spent decades researching the biological and psychological drivers of depression in MS. We're also sharing study results revealing that wait times to see a neurologist in the U.S. are way too long. We'll tell you about a pilot trial that's recruiting participants for an implantable device designed to promote remyelination. We're just two days away from the National MS Society's webcast on protecting federal funding for MS research, the NIH, CDC, and FDA. We're sharing all the details and info to register. And we'll tell you all about the MS Society's statement for the record at a congressional hearing, exposing how Pharmacy Benefit Managers often prioritize profits over patient welfare. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Managing MS-Related Depression  :22 Study results reveal wait times for an appointment with a neurologist in the U.S.    1:45 A pilot clinical trial for an implantable device designed to promote remyelination  4:38 A webcast to update you on the National MS Society's advocacy efforts to protect federal funding for MS research, the NIH, CDC, and FDA  7:05 The National MS Society has submitted a critical statement for the record at a congressional hearing, exposing how Pharmacy Benefit Managers often prioritize profits over patient welfare  8:39 Dr. Anthony Feinstein discusses the latest research and strategies for managing MS-related depression  11:00 Share this episode  29:37 Next week  28:56 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/454 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes at www.RealTalkMS.com STUDY: Access to High-Efficacy Therapies for Multiple Sclerosis Under Medicaid: Variation in Coverage and Utilization Across States https://aan.com/msa/Public/Events/AbstractDetails/61520 STUDY RESULTS: Neurology Wait Times After Primary Care or Emergency Department Visits Among the Commercially Insured Population in the United States: 2019-2023 https://www.neurology.org/doi/10.1212/WNL.0000000000218008 CLINICAL TRIAL: The SetPoint System as a Pro-Remyelination Therapy for Relapsing-Remitting Multiple Sclerosis: A Pilot Study https://clinicaltrials.gov/study/NCT06796504 WEBCAST: Make It Count Now: Mobilizing for Federal Funding in a Changing Policy Landscape https://nmss.quorum.us/event/33151 READ: The National MS Society Statement for The Record: "Profits Over Patients: The PBM Business Model Under Scrutiny" https://cdn.sanity.io/files/y936aps5/production/0372d3964cc269a404c17dff8ca919b34d0c6603.pdf AbleNOW https://ablenow.com JOIN: The RealTalk MS Facebook Group https://facebook.com/groups/realtalkms REVIEW: Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on X, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 454 Guest: Dr. Anthony Feinstein Privacy Policy

Are artificial sweeteners helping us age well—or quietly working against our brain health?In this episode of The Aging Well Podcast, Jeff and Corbin unpack new research linking popular sugar substitutes to accelerated cognitive decline. While artificial sweeteners are often marketed as healthier alternatives to sugar, emerging evidence suggests the story may be more complex—especially for midlife and older adults concerned about dementia risk.Together, they explore the science behind the study, the broader metabolic and neurological implications of artificial sweeteners, and whether “natural” alternatives like honey, maple syrup, or stevia truly offer an advantage. This episode offers a balanced, science-based discussion to help listeners make informed decisions about sweeteners and long-term brain health.Article links:https://scitechdaily.com/popular-sugar-substitutes-linked-to-faster-cognitive-decline/https://www.neurology.org/doi/10.1212/WNL.0000000000214023Please, support The Aging Well Podcast by hitting the ‘like' button, subscribing/following the podcast, sharing with a friend, and….Tip Jar! All donations support this podcast to keep it going. https://paypal.me/theagingwellpodcastBUY the products you need to… age well from our trusted affiliates and support the mission of The Aging Well Podcast*.The Aging Well Podcast merchandise | Show how you are aging well | Use the promo code AGING WELL for free shipping on orders over $75 | https://theagingwellpodcast-shop.fourthwall.com/promo/AGINGWELLAuro Wellness | Glutaryl—Antioxidant spray that delivers high doses of glutathione (“Master Antioxidant”) and the new Copper Tripeptide (GHK-Cu) | 10% off Code: AGINGWELL at https://aurowellness.com/agingwellpodcastNutritional Biochemical Inc. (NBI) | Trusted supplement. NBIstands 100% behind the quality of their formulations and the science on whichthey're based. | Click the following link and use the discount codeAGINGWELL for 10% off: https://shop.nbihealth.com/agingwellBerkeley Life | Optimize nitric oxide levels | Purchase your starter kit at a 15% discount | Use the promo code: AGINGWELL15 | https://berkeleylife.pxf.io/c/6475525/3226696/31118Oxford Healthspan | Primeadine®, a plant-derived spermidine supplement | 10% off code: AGINGWELL | https://oxford-healthspan.com/AgingWellJigsaw Health | Trusted supplements. “It's fun to feel good.” | Click the following link and use the discount code AGINGWELL for 10% off: https://www.jigsawhealth.com/?rfsn=8710089.1dddcf3&utm_source=refersion&utm_medium=affiliate&utm_campaign=8710089.1dddcf3KneeMo | A smart device programmed to reduce your knee pain and keep you moving. | Click the following link and use the discount code AGINGWELL15 for 15% off: https://thekneemo.com/ref/agingwellProlon | The Fasting Mimicking Diet (FMD) is a revolutionary five-day nutrition program scientifically formulated to mimic the effects of a prolonged water fast while still allowing nourishment - supporting the benefits of fasting without the challenges and risks that come from water-only fasts. | For the best available discount always use this link: https://prolonlife.com/theagingwellpodcastL-Nutra Health | The medical division of L-Nutra, focused on helping people manage and potentially reverse chronic health conditions, like type 2 diabetes, prediabetes, insulin resistance, and obesity, using personalized, lifestyle-based programs grounded in evidence, not prescriptions. | Use this link: https://l-nutrahealth.com/theagingwellpodcastDr Lewis Nutrition | Fight neurodegeneration and cognitive decline with Daily Brain Care by Dr Lewis Nutrition—a proven daily formula designed to protect and restore brain function. | 10% off code: AGINGWELL or use the link: https://drlewisnutrition.com/AGINGWEL*We receive commission on these purchases. Thank you.

Dr. Zohaib Siddiqi and Dr. Laurence Poirier discuss a complex stroke case associated with systemic vasculitis, highlighting diagnostic challenges and management strategies, including the role of endovascular therapy.  Show citation:  Poirier L, Brissette V, Shamy MCF, Maxwell JP, Drake B, Fahed R. Clinical Reasoning: A 70-Year-Old Man With Systemic Illness Related Strokes Refractory to Medical Treatment Managed With Intracranial Stent. Neurology. 2025;104(1):e210068. doi:10.1212/WNL.0000000000210068 

Dr. Andy Southerland and Dr. Layne Dylla discuss the trends in head CT use in US emergency departments from 2007 to 2022, highlighting disparities, regional variations, and the potential role of AI in optimizing imaging decisions.  Show citations:  Dylla L, Krothapalli N, Tu L, et al. Trends in Head CT Use in US Emergency Department Patients From 2007 to 2022: A Nationwide Analysis. Neurology. 2025;105(12):e214347. doi:10.1212/WNL.0000000000214347

Deze keer: de economische gevolgen van de oorlog in Iran. Terwijl Trump strooit met oorlogsretoriek en waarschuwt voor ‘het einde der tijden', gaan de energieprijzen wereldwijd door het dak. Hoe groot is de crisis? En zijn we hier in Europa wel op voorbereid? De Europese Commissie roept lidstaten nu al op om zuiniger om te gaan met energie. Komt de autoloze zondag terug? En hoe komen we in Europa af van onze enorme energie-afhankelijkheid? Onze kersverse presentator Hajar Yagkoubi en co-host Stefan de Vries bespreken het allemaal met schrijver, ondernemer en econoom Jona van Loenen. Jona ziet deze crisis ook als een enorme kans voor Europa. Hoe? Dat legt hij uit in deze aflevering. Oók checken we in bij Mariëlle Wijermars, hoofddocent Internet Government aan de Universiteit van Maastricht, voor onze nieuwe rubriek. Kan de EU straks sneller besluiten nemen als dwarsligger Victor Orbán de verkiezingen in Hongarije verliest? Tips en verwijzingen uit deze aflevering: - Hajar tipt ‘Het continent van kwaliteit' van Paul Schenderling https://www.botuitgevers.nl/pr... - Jona tipt ‘Antifragiel' van Nassim Nicholas Talebhttps://www.bol.com/nl/nl/f/an... Hajar Yagkoubi is presentator en spreker, o.a. bij NPO radio 1 en Eva Stefan de Vries is Europa-verslaggever voor o.a. Pauw & de Wit, BNR, Haagsch College en vaste duider voor Café Europa Jona van Loenen is schrijver, ondernemer en econoom, o.a. bij WNL en Pauw & de Wit Mariëlle Wijermars is hoofddocent Internet Government aan de Universiteit van Maastricht De podcast Café Europa is een initiatief van Haagsch College en Studio Europa Maastricht Deze podcast wordt mede mogelijk gemaakt door Nieuwspoort.

Dr. Derek Stitt and Dr. Page B. Pennell discuss antiseizure medication management during pregnancy and postpartum, based on the MONEAD study.  Show citation:  Pennell PB, Li D, Kerr WT, et al. Antiseizure Medication Dosing Strategy During Pregnancy and Early Postpartum in Women With Epilepsy in MONEAD. Neurology. 2026;106(2):e214483. doi:10.1212/WNL.0000000000214483 

In part two of this series, Dr. Tesha Monteith and Dr. Nimish A. Mohile discuss the motivation behind the development of this roadmap to neurological health equity.  Show citation:  Patel PB, Hamilton RH, Budhu JA, et al. A Roadmap to Neurologic Health Equity: An AAN Position Statement. Neurology. 2026;106(5):e214687. doi:10.1212/WNL.0000000000214687 

In the first part of this series, Dr. Tesha Monteith and Dr. Nimish A. Mohile discuss what the roadmap is and how it is intended to benefit practicing neurologists. Show citation:  Patel PB, Hamilton RH, Budhu JA, et al. A Roadmap to Neurologic Health Equity: An AAN Position Statement. Neurology. 2026;106(5):e214687. doi:10.1212/WNL.0000000000214687   

IN this episode Dr's J and Santhosh explore the history of common medical tools. ALong the way they cover common contents of the white coat, the oldest medical tool, doctor's bag, ancient egypt, medical totems, the origin story of the stethoscope, chest percussion and wine barrels, reflex hammers and targeted design, the reflector disc and it's true purpose, the laryngoscope, the greatest showman's songbird, tongue depressors and more! So sit back and relax as we investigate what we actually use to do our jobs!Further Readinghttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC1570491/#:~:text=Auscultation%3A%20Immediate%20versus%20Mediate,ear%20to%20the%20chest%20wall.https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9482790/#:~:text=There%20are%20two%20versions%20of,Th%C3%A9ophile%20Hycanith%20Laennec.https://www.woodlibrarymuseum.org/museum/phonendoscope/https://www.entandaudiologynews.com/features/ent-features/post/manuel-patricio-rodriguez-garcia-1805-1906-the-inventor-of-the-laryngoscope-and-world-renowned-singing-teacherhttps://www.neurology.org/doi/pdf/10.1212/WNL.39.11.1542Support Us spiritually, emotionally or financially here! or on ACAST+travelmedicinepodcast.comBlueSky/Mastodon/X/Instagram: @doctorjcomedy @toshyfroTikotok: DrjtoksmedicineGmail: travelmedicinepodcast@gmail.comSpotify: https://open.spotify.com/show/28uQe3cYGrTLhP6X0zyEhTPatreon: https://www.patreon.com/travelmedicinepodcast Hosted on Acast. See acast.com/privacy for more information.

Dr. Greg Cooper and Dr. Sara Hassani discuss periprocedural brain health and call on neurologists to engage in multidisciplinary efforts to improve periprocedural outcomes. Show citation: Hassani S, Gorelick PB. Periprocedural Brain Health: The Scope of the Problem and the Neurologist's Role. Neurology. 2025;105(12):e214427. doi:10.1212/WNL.0000000000214427   Show transcript: Dr. Greg Cooper: Hi, this is Greg Cooper. I just finished interviewing Sara Hassani for this week's Neurology Podcast. For today's Neurology minutes, Sara, I'm hoping you can tell us the main points of your paper. Dr. Sara Hassani:  I would say that the central message of this paper is that paraprocedural neurologic complications, they're very common, and they may actually be as high as the third leading cause of mortality, and yet very few healthcare providers realize this. And furthermore, few healthcare providers are adequately prepared to discuss the risks of the various procedures with patients and/or their family members. Dr. Greg Cooper: Thank you for that summary and all your work on this topic. Please check out this week's podcast to hear the full interview, and read the full article published in Neurology, Paraprocedural Brain Health. Thank you. 

In this episode of Walk Don't Run to the Doctor, Miles Hassell MD breaks down one of the most debated topics in nutrition: saturated fat. For decades, saturated fat has been blamed as a major cause of heart disease—but what if the evidence isn't as clear as we've been told? This episode explores the history behind dietary guidelines, the evolving food pyramid, and why current research is challenging long-held beliefs about fat, cholesterol, and overall health. You'll learn how whole foods, processed foods, and the broader "food matrix" play a much bigger role than simply avoiding saturated fat. If you've ever been confused about what to eat—or felt like nutrition advice keeps changing—this conversation will help you think more critically about the science behind it all. Key Takeaways Saturated fat has been widely criticized since the 1950s, but much of the original evidence is weak or inconclusive Recent research shows little to no clear link between saturated fat and heart disease or mortality Not all saturated fats—or foods containing them—are the same (whole foods vs. processed foods matter) Dairy, red meat, and other whole-food sources of saturated fat may be neutral or even beneficial Ultra-processed foods, refined sugars, and white flour have far stronger evidence of harm Overall diet quality, lifestyle, and metabolic health matter far more than focusing on a single nutrient     [1] Talukdar, J. R., et al. (2023). Saturated fat, the estimated absolute risk and certainty of risk for mortality and major cancer and cardiometabolic outcomes: an overview of systematic reviews. Systematic reviews, 12(1), 179. https://doi.org/10.1186/s13643-023-02312-3 [2] Valk, R., et al. (2022). Saturated fat: villain and bogeyman in the development of cardiovascular disease? European journal of preventive cardiology, 29(18), 2312–2321. https://doi.org/10.1093/eurjpc/zwac194 [3] Krauss, R. M., et al. (2020). Public health guidelines should recommend reducing saturated fat consumption as much as possible: NO. The American journal of clinical nutrition, 112(1), 19–24. https://doi.org/10.1093/ajcn/nqaa111 [4] Dunne, S., et al. (2024). The effects of saturated fat intake from dairy on CVD markers: the role of food matrices. The Proceedings of the Nutrition Society, 83(4), 236–244. https://doi.org/10.1017/S0029665124000132 [5] Du, Y., et al. (2026). High- and Low-Fat Dairy Consumption and Long-Term Risk of Dementia: Evidence From a 25-Year Prospective Cohort Study. Neurology, 106(2), e214343. https://doi.org/10.1212/WNL.0000000000214343 [6] Yuan, M., et al. (2022). Saturated fat from dairy sources is associated with lower cardiometabolic risk in the Framingham Offspring Study. The American journal of clinical nutrition, 116(6), 1682–1692. https://doi.org/10.1093/ajcn/nqac224 [7] Dehghan, M., et al., … Prospective Urban Rural Epidemiology (PURE) study investigators (2017). Associations of fats and carbohydrate intake with cardiovascular disease and mortality in 18 countries from five continents (PURE): a prospective cohort study. Lancet (London, England), 390(10107), 2050–2062. https://doi.org/10.1016/S0140-6736(17)32252-3 [8] Astrup, A., et al. (2020). Saturated Fats and Health: A Reassessment and Proposal for Food-Based Recommendations: JACC State-of-the-Art Review. Journal of the American College of Cardiology, 76(7), 844–857. https://doi.org/10.1016/j.jacc.2020.05.077

Dr. Paul Crane and Dr. Hanalise Huff discuss neurological and neurocognitive sequelae in pediatric survivors of the 2015 Ebola outbreak in Liberia.  Show citation:  Huff HV, Van Ryn C, Reilly C, et al. Neurologic Sequelae After Ebola Virus Disease in Children in Liberia: An Observational Study. Neurology. 2026;106(1):e214450. doi:10.1212/WNL.0000000000214450 

Dr. Greg Cooper and Dr. Kerry Sheets discuss how hearing aid use affects cognition and the risk of dementia in older adults with hearing impairment.  Show citations: Cribb L, Moreno-Betancur M, Pase MP, et al. Treating Hearing Loss With Hearing Aids for the Prevention of Cognitive Decline and Dementia. Neurology. 2026;106(3):e214572. doi:10.1212/WNL.0000000000214572  Show transcript: Dr. Greg Cooper: Hi, this is Greg Cooper. I just finished interviewing Kerry Sheets for this week's Neurology Podcast. For today's Neurology Minute, I'm hoping you can tell us the main points of your paper. Dr. Kerry Sheets: The central message of our paper is that hearing aid use in adults aged 70 years or older with hearing impairment may reduce dementia risk over 7 years. Results for the impact of hearing aid use on cognitive decline were less. Dr. Greg Cooper: Well, thank you for that summary and for all of your work on this topic. Please check out this week's podcast to hear the full interview and read the full article published in Neurology: Treating Hearing Loss with Hearing Aids for the Prevention of Cognitive Decline and Dementia. 

Dr. Halley Alexander and Dr. Abel Sandmann discuss seizure rates and risk factors in patients with cerebral cavernous malformations (CCMs) during long-term follow-up without CCM intervention.  Show citation:  Sandmann ACA, Vandertop WP, White PM, Verbaan D, Coutinho JM, Al-Shahi Salman R. Seizures and Epilepsy in Patients With Untreated Cerebral Cavernous Malformations: A Prospective, Population-Based Cohort Study. Neurology. 2025;105(11):e214387. doi:10.1212/WNL.0000000000214387  Show transcript:  Dr. Halley Alexander: Hi, this is Halley Alexander with today's Neurology Minute. I'm here with Abel Sandmann from Amsterdam University Medical Center, and we just finished recording a full-length podcast about some exciting findings related to cerebral cavernous malformations and the risk of seizures and epilepsy. Abel, can you give our listeners a rundown of the most exciting findings and how it can change practice? Dr. Abel Sandmann:  In our paper, we show that patients with a cerebral cavernous malformation who have a first unprovoked seizure should be diagnosed with epilepsy and considered for anti-seizure medication, as most of them achieve long-term seizure freedom with medical therapy alone. These findings are based on a prospective population-based cohort study in which we analyze long-term follow-up and assess the rates and risk factors for: one, a first-ever epileptic seizure; two, seizure recurrence to evaluate the updated ILAE definition of epilepsy; and three, seizure freedom over two years and five years among patients with epilepsy. We found that among patients who had never experienced a seizure before, the 10-year risk of a first-ever seizure was only 6%. This supports current recommendations against prophylactic anti-seizure medication in patients who are incidentally diagnosed with a cerebral cavernous malformation. However, following a first unprovoked seizure, the 10-year risk of recurrence was 80%, which exceeds the 60% threshold defined by the ILAE. This justifies diagnosing epilepsy after the first and provoked seizure in this population. Given that the risk of recurrence was lower in patients treated with anti-seizure medication after the first seizure, this supports early initiation of therapy, although these treatment analyses were non-randomized and should be interpreted cautiously. Most patients who met the definition of epilepsy became two year and five years seizure-free with medical management alone. But some patients with cerebral cavernous malformations develop medically intractable seizures and might benefit from surgical treatments. Dr. Halley Alexander: Excellent. Thank you so much, Abel. You can find the full-length podcast, which is available now on the Neurology Podcast, or you can also find the full article in Neurology at neurology.org, or in the December 2025 print issue. As always, thanks for tuning in for today's Neurology Minute.   

In part two of this series, Dr. Justin Abbatemarco, Dr. Marjo S. van der Knaap, and Romy J. van Voorst discuss the patient management card and how patients should use it.  Show citation: and Clinical Management of Vanishing White Matter. Neurology. 2025;105(11):e214320. doi:10.1212/WNL.0000000000214320  Show transcript:  Dr. Justin Abbatemarco: Hello and welcome back. This is Justin Abbatemarco here with Romy J. van Voorst and Dr. Marjo S. van der Knaap. After discussing her article, Published Neurology Consensus Base Expert Recommendation for Diagnosis and Clinical Management of Vanishing White Matter Disease. Romy, I really want to talk with you about the patient management card. What inspired you to create that in this publication, and how should patients use that? Romy J. van Voorst:  So what the main motivation was of the study was actually a previous study that we did before. And in this study, we looked at the impact of any short matter on unaffected family members. And we found out that actually many family members encountered clinicians that were unfamiliar with its disease or disease-specific management. And during interviews, we saw that there was an urgent need for moral harmonization of care and also symptom management because families felt like they are left alone with just their child and no guidance on how to go further. And we wrote these recommendations to help families better understand the diagnostic and care process so they can also participate in informed decision-making. So they can understand what kind of preventive measures they can take and whether or not this interferes, for example, with quality of life goals. So there are a lot of different recommendations families can take home with. Dr. Justin Abbatemarco:  Marjo, anything else you want to add there? Dr. Marjo S. van der Knaap:  Yeah, I think the management card also helps because they have a physical card when they go to consultation or to emergency room that they can hand over. It's an official publication. It's developed by the Finishing WebMetter Expert Consortium in combination with other experts in combination with patient advocates and representatives. And so it's really a sort of a guidance that cannot be denied. So it has some authority to it. Dr. Justin Abbatemarco:  But I think it's a theme that applies to many neurological diseases, and addressing that. You do it really practically. And I agree, giving something more tangible for patients to present, especially to non-neurologists to help them give some guidance. It's an idea that we need to think about in clinic all the time on how we're interacting and supporting caregivers and when they're interfacing with the medical community at large. So I love what you guys have done here and to make us think about this more broadly. Thanks again for all your time and your work on this topic. Dr. Marjo S. van der Knaap:  Thank you for having us. 

In part one of this two-part series, Dr. Justin Abbatemarco, Dr. Marjo S. van der Knaap, and Romy J. van Voorst discuss vanishing white matter disease, focusing on the clinical and MRI findings that would prompt the consideration of genetic testing.  Show citation: van Voorst RJ, Schoenmakers DH, Bonkowsky JL, et al. Consensus-Based Expert Recommendations for Diagnosis and Clinical Management of Vanishing White Matter. Neurology. 2025;105(11):e214320. doi:10.1212/WNL.0000000000214320  Show transcript:  Justin Abbatemarco: Hello and welcome. This is Justin Abbatemarco here with Romy J. van Voorst and Marjo S. van der Knaap. After discussing their article published in Neurology, Consensus-Based Expert Recommendation for Diagnosis and Clinical Management of Vanishing White Matter. They both work for Amsterdam University Medical Center in the Netherlands. And we're going to have a two-part episode dissecting maybe two elements of this paper. Marjo, maybe we could start here and just talking about what vanishing white matter disease is and what in the clinic and MRI findings would make us go towards a genetic testing. Dr. Marjo S. van der Knaap:  There are two things about vanishing white matter that matter most to families, and one is the stress sensitivity. So any type of physical stress, like fever, viral infection, anything may cause a rapid decline and you never know when it comes. And that brings me to the second item that's very difficult and painful for families. And that's the unpredictability. You never know when a disease is going to hit and then your child is going to go down. So you really need the support of neurologists who know about this disease and help you go through this situation. Dr. Justin Abbatemarco: Right. And this paper serves as a great resource for folks that if they have a patient in clinic like this, medications to avoid, how to manage those stress responses. And so it's a really helpful publication to have there. And then I think another message we talked a lot about on the podcast was the importance of genetic testing when patients aren't fitting a typical bucket and this specific disease has unique characteristics. I think the cystic appearance of the MRI, which you do a great job highlighting, would really lead us down that road. So I think it's all really helpful and it gives us some ways to start in clinic with patients and our caregivers. So thank you. Come back and join us for the second part of The Neurology Minute episode where we're going to talk about the patient management.