Podcasts about parkinsonnet

Stef is functioneel- en communitybeheerder bij ParkinsonNet (parkinsonnet.nl) en vertelt over zijn ervaringen. ParkinsonNet is een landelijk dekkend netwerk van zorgverleners die zich gespecialiseerd hebben in de ziekte van Parkinson en Parkinsonisme. Zij kunnen zich na een verplichte scholing aansluiten bij het netwerk. Hun motivatie om de zorg voor mensen met Parkinson te verbeteren is de sleutel van het succes van deze community. Eveline is medeoprichter van Stichting Vuurvrouw en initiatiefnemer van een belangrijke community voor vrouwen in de overgang (vuurvrouw.nu). Het is cruciaal om aandacht te besteden aan de overgang, aangezien meer dan 1,8 miljoen vrouwen met dit levensfase te maken krijgen. Tachtig procent van deze vrouwen is actief is in het dagelijkse arbeidsleven en hebben te maken met de worsteling rondom de overgang. Eveline's community heeft als doel dit thema onder de aandacht te brengen bij zowel werkgevers als werknemers, met als doel het voorkomen van verzuim. Tijdens het gesprek komen we erachter dat allebei de online communities dicht bij het vuur zitten als het gaat om kennis halen, kennis brengen en het activeren van de online community. En ook tijdens deze aflevering komt de 90-9-1 regel opnieuw aan bod. Uit het gesprek blijkt dat niet alle communitymanagers op de hoogte zijn van deze regel, maar hier wél (onbewust) mee bezig zijn. Benieuwd? Luister de aflevering!

In deze aflevering vertelt Stef Kaal, functioneel- en communitybeheerder bij ParkinsonNet over zijn ervaringen. ParkinsonNet is een landelijk dekkend netwerk van zorgverleners die zich gespecialiseerd hebben in de ziekte van Parkinson en Parkinsonisme. Zij kunnen zich na een verplichte scholing aansluiten bij het netwerk. Hun motivatie om de zorg voor mensen met Parkinson te verbeteren is de sleutel van het succes van deze community. De online kennis- en samenwerkcommunity bestaat sinds 2011 en werd in 2019 grondig vernieuwd. Het forum vormt het hart van de community. Hier delen experts en onderzoekers van het Radboudumc hun kennis en beantwoorden ze vragen van zorgprofessionals. De leden werken samen in regionale samenwerkingsgroepen die praktisch zijn ingericht en faciliterend aan het werkproces. Wil jij weten hoe die zorgprofessionals in de praktijk korte lijntjes met elkaar houden? Luister dan mee!    Wil je meer over ParkinsonNet te weten komen? Bekijk dan parkinsonnet.nl en netwerkzorgnederland.nl of luister de ParkinsonNet Podcast via Spotify, Apple Podcasts of Pocket Casts. Oja, aan het einde van de aflevering noemt Stef een website die niet helemaal bleek te kloppen, met netwerkzorgnederland.nl kom je er wel!

I avansert behandling ved Parkinsons sykdom kan det benyttes flytende levodopa i Duodopa- eller Lecigonpumper, men mange benytter også dopaminagonisten Apomorfin. I denne episoden møter vi den internasjonalt anerkjente parkinsonforskeren professor Andrew Lees fra England, som regnes som «Mr. Apomorfin». Han var en av de første som introduserte nettopp apomorfin i parkinsonbehandlingen. I tillegg kan du høre professor Bastiaan Bloem fortelle mer om viktigheten av tverrfaglighet og ParkinsonNet i oppfølgingen, og mer om stamcellebehandlingen i Sverige. Gjester: Bastiaan Bloem (professor Radboud University Medical Center, Nijmegen), ParkinsonNet. Andrew Lees (professor University College London og National Hospital for Neurology and Neurosurgery) og Håkan Widner (professor Lunds universitet). Med programleder Nils Johan Halvorsen og husnevrolog Espen Dietrichs, professor ved OUS Produsert av Tid og Lyst AS for Norges Parkinsonforbund, med støtte fra Stiftelsen Dam.

Velkommen til en preikepodd der anekdotene virkelig fikk satt seg. En podd full av gode historier og selvfølgelig en liten debrifing av forrige fagspeial om ParkinsonNet med ergoterapeut Cecilie Gjersum.Vi får et innblikk i hvilken superkraft ergotripperne skulle ønske seg i ufiltrert og du vil få en god mengde herlige triks for et ryddig liv i spalten strømpepåtrekkern.Vi høres! See acast.com/privacy for privacy and opt-out information.

I del 1 får du høre mer om hva ParkinsonNet er, begrepsavklaring, symptombilde, ulike varianter av parkinson og ulike behandlingsprinsipper med medisinering og dyp hjernestimulering.I del 2 er det et fokus på hva som defineres som “best practice” ut fra hvilke guidelines og hva som er konsensus rundt fysisk aktivitet og trening. I denne delen får du høre Per Ola sine tips til hvordan man kan forebygge fall risiko og hvordan man kan håndtere pasientgruppen i klinikken.Per Ola Wold-Olsen har lang erfaring med parkinson pasienter. Han jobber i ParkinsonNet Norge der han er fagveileder og koordinator for Oslo. Support the show (http://fysi.no)

I del 1 får du høre mer om hva ParkinsonNet er, begrepsavklaring, symptombilde, ulike varianter av parkinson og ulike behandlingsprinsipper med medisinering og dyp hjernestimulering.I del 2 er det et fokus på hva som defineres som “best practice” ut fra hvilke guidelines og hva som er konsensus rundt fysisk aktivitet og trening. I denne delen får du høre Per Ola sine tips til hvordan man kan forebygge fall risiko og hvordan man kan håndtere pasientgruppen i klinikken.Per Ola Wold-Olsen har lang erfaring med parkinson pasienter. Han jobber i ParkinsonNet Norge der han er fagveileder og koordinator for Oslo. Support the show (http://fysi.no)

En liten uke forsinket kommer Ergotrip med nest siste fagspeisal for sesongen! Siv Iren og Ingunn har tatt en prat med Cecilie Gjersum om ParkinsonNet. I og med at Cecilie gikk i samme kull som Siv Iren og Ingunn blir det litt mimring over gode studietider :) See acast.com/privacy for privacy and opt-out information.

Koronasituasjonen har i perioder gjort det vanskelig for mennesker med parkinson å gjennomføre sine faste aktiviteter og få nødvendig oppfølging av viktige fagmiljøer. Hva kan ulike fagpersoner bidra med nå? Hvilke erfaringer har de gjort seg i koronatiden? Her møter du Per Ola Wold-Olsen og Ragnhild Støkket, fagveiledere for fysioterapi og sykepleierne i ParkinsonNet. De forteller om utfordringer, ensomhet og endrede rutiner og aktiviteter for brukerne, men også om alle de nye mulighetene disse spesielle koronatider har gitt for å komme opp med nye digitale løsninger for å ivareta en form for sosialt liv, aktiviteter og nødvendig trening. Gjester: Per Ola Wold-Olsen, Ragnhild Støkket Programleder: Nils Johan Halvorsen Produsert av Tid og Lyst AS for Norges Parkinsonforbund, med støtte fra Stiftelsen Dam.

In this episode of When Life Gives You Parkinson’s, I talk with Professor of Neurology Ray Dorsey, MD from University of Rochester and the CEO of the Michael J. Fox Foundation Todd Sherer, PhD. These are two of the fourth authors behind a new book called, “Ending Parkinson’s Disease, a prescription for action.” Dorsey, Sherer and co-authors Michael S. Okun, MD at University of Florida and Bastiaan Bloem, MD, PhD of the Netherlands, each approach Parkinson’s disease from a specific point of view. Dorsey is a telehealth and home healthcare advocate who has been using technology to see patients remotely for more than a decade. He directs the Center for Health and Technology, which offers free care to anyone in New York that has Parkinson’s disease. His mission is to offer to anyone, anywhere. Sherer is neuroscientists who was part of a team that found the link between pesticides and Parkinson’s. Okun is a pioneer of surgical treatments for Parkinson’s. Bloem is co-creator of ParkinsonNet, the world’s largest integrated care program for Parkinson’s disease which is customize and individualized networked treatment which can include nutritional advice, physical therapy, occupational therapy, speech therapy, exercise, clever IT, community and hope. Their book clearly portrays Parkinson’s disease as a formidable antagonist. They describe Parkinson’s as a “man-made pandemic,” which thrives today, doubling the rate of diagnosis every 25 years, with no known cure and not enough urgency to slow the spread. The authors point to research which suggests Parkinson’s disease was fueled initially by the industrial revolution and continues to be diagnosed at a rate greater than the rates of aging or population growth due to pesticides that attack the nervous systems of bugs (and people), solvents, contaminated well water, and head trauma. The authors conclude Parkinson’s disease may be man-made. However, just as humans contributed to the rise of Parkinson’s in the nineteenth and twentieth centuries, we can now work together to eradicate the disease. Readers are called to action by focusing on prevention, advocacy, care and treatment. The book concludes with a list of twenty-five concrete steps we can and should take to reduce the worldwide toll of this disease. The list includes banning specific pesticides and solvents, and cleaning up contaminated sites, which will all take vigorously lobbying to the governments of many countries. But there are things they suggest you can do today to reduce your risk of getting Parkinson’s: use a water filter, eat a Mediterranean diet, vigorously exercise for four hours a week, get involved with research, and if you already have Parkinson’s – be loud and share your story. Please comment by leaving us a voice message here: https://www.speakpipe.com/WhenLifeGivesYouParkinsons Links we mentioned and source material for the show: Ending Parkinson’s Disease book official website Parkinson’s Disease Care New York  – Free Care for New Yorker’s with Parkinson’s disease Follow me, Larry Gifford  Twitter: @ParkinsonsPod Facebook: Facebook.com/ParkinsonsPod Instagram: @parkinsonspod Follow Co-host and Producer Niki Reitmayer Twitter: @Niki_Reitmayer Thank you to my wife and partner in Parkinson’s Rebecca Gifford. Also, thank you to the following contributors and guests. Ray Dorsey, MD – following him on Twitter @RayDorseyNeuro Todd Sherer, PhD, CEO of the Michael J. Fox Foundation Our presenting partner is Parkinson Canada http://www.parkinson.ca/ The toll free hotline 1-800-565-3000 Follow them on Twitter @ParkinsonCanada Find the new Parkinson Clinical Guideline www.parkinsonclinicalguideline.ca Our content and promotional partners Parkinson’s IQ + You– A free, series of Parkinson’s events from the Michael J. Fox Foundation Spotlight YOPD – The only Parkinson’s organization dedicated to raising awareness for Young Onset Parkinson’s disease and funds for the Cure Parkinson’s Trust.  WPC2022- Save the date for the sixth World Parkinson Congress, June 7 to 10, 2022 in Barcelona, Spain in 2022. The only inclusive scientific conference opens its doors to people with Parkinson’s and families.  

Hör Thyra Kirknes, assisterande generalsekreterare i norska Parkinsonförbundet, om ParkinsonNet, ett projekt norska Parkinsonförbundet driver för att samordna vården och därmed höja livskvalitén för människor med Parkinson i Norge. Hör också Trine Corneliussen om hur hon lever med sin Parkinson.

ParkinsonNet er et prøveprosjekt innen behandling av Parkinson sykdom. Et prosjekt helseminister Bent Høie har engasjert seg sterkt i. I samtale med generalsekretær i Norges Parkinsonforbund, Magne Wang Fredriksen, forteller Høie i denne episoden av Parkispodden hvorfor ParkinsonNet-modellen er så viktig, og hvordan den også kan ha stor betydning for andre kroniske sykdommer.Programleder Nils Johan HalvorsenProdusert av Tid og Lyst See acast.com/privacy for privacy and opt-out information.

Het zorgnetwerk ParkinsonNet maakt een vogelvlucht. Kan dit netwerk, waarbij de patient in het midden van de organisatie staat, ook beter werken voor andere aandoeningen zoals reuma of diabetes?

Bas Bloem talks about ParkinsonNet, a healthcare model that supports a multidisciplinary network for people with Parkinson's disease.

Read the full analysis of ParkinsonNet: http://www.bmj.com/content/348/bmj.g1838 Patients with Parkinson's disease need long term support to manage their condition. In this podcast Bastiaan Bloem, medical director at the Parkinsons Institute in Nijmegen, and Marko van der Vegt, a Parkinsons patient, describe the benefits of ParkinsonNet; a model of integrated care provided by a network of specialists and suggest it has promise for other long term conditions