One Voice for Neurology

In this episode, host Sam Pauly explores the role of education, health literacy, and stigma in shaping experiences of neurological conditions. Genein Letford discusses how early education can support brain development and why the arts can be an effective tool for fostering understanding of neurological health.Abraham Ntshalintshali and Mary Secco join a roundtable discussion on epilepsy-related stigma, sharing insights from community-level initiatives, including work in Eswatini to train police officers and improve legal outcomes for people with epilepsy. They also reflect on how stigma manifests in different cultural contexts and the need to involve people with lived experience in advocacy and policy.The episode also features two personal accounts: Ameena Aimen shares her experience of navigating diagnosis and stigma as a medical student in Pakistan, while Laura Molinari reflects on how health literacy helped her manage life with MS at work and in daily life. Finally, Abdelfatah Ibrahim from the MS International Federation explains why improving health literacy is essential to achieving better outcomes and more equitable care for people with neurological conditions.

In this episode, host Sam Pauly explores the healthcare challenges faced by displaced people, particularly those with neurological disorders. Sebastian Einseidel from the UN OCHA discusses global displacement in regions like Sudan, Syria, and Ukraine. Yulia Ostapenko shares her experience being displaced from Ukraine, highlighting the human side of these crises. Dr. Bindu Menon offers insights from India on the impact of environmental disasters on neurological care. The episode emphasizes the urgent need for long-term solutions, global coordination, and community resilience in addressing the healthcare needs of displaced populations.

In this episode Sam Pauly meets 4 neurologists to discuss the challenges faced in India across the life course.  We'll examine the role that Brain Health can play in India; how it can be promoted and its role in prevention of and protection from neurological disorders. We'll learn more on what it's like to live with a neurological disorder in India as a child and also as an elderly person and we'll hear more from the WHO on the Intersectoral Global Action Plan on Epilepsy and Other Neurological Disorders which was adopted in 2022. 

 With a focus primarily on Sub-Saharan Africa in this episode we explore the challenges currently faced across the continent in accessing neurological care.  We're joined by neurologists from the region as well as hearing from the WHO on the range of issues and barriers to care, from the low number of neurologists to the problem of stigma and discrimination.   Our guests will be discussing how these challenges can be addressed through education, a holistic approach and understanding of the region and its population.  We'll also be hearing first-hand what it's like to live with a neurological disorder in Africa.    

How can the  WHO Global Action Plan be implemented at regional and national levels around the world?  In this episode Sam Pauly and her guests try to answer this question by case studying the region of Europe and discussing how nations can address disparities and inequalities as well as achieve success through collaboration and with EU initiatives like Healthier Together.    

Neurology is a truly global challenge, with the low- and middle-income countries carrying the heaviest burden. This episode is about the challenges facing people living with neurological disorders in different regions of the world, and how governments, healthcare professionals and patient advocates can help turn things around. Tune-in and join Sam Pauly and her international guests in the debate. 

Celebrate with us the first-year anniversary of the OneNeurology Partnership and the One Voice For Neurology podcast with our host, Sam Pauly and her guests. In this episode, we go over the developments and achievements made by the OneNeurology partnership in the last 12 months. We will discuss what we can gain by addressing neurology as ONE, why the WHO Global Action Plan is a game changer, and what comes next. 

Join us in our 9th episode as Sam Pauly is joined by Christopher Agbega from Ghana.  Christopher lives with Hereditary Motor Sensory Neuropathy, and is an advocate and peer trainer for the Ghana NCD Alliance and a projects officer of the Ghana Federation of Disability Organizations.  We discuss what it's like living with a neurological disorder in a developing country as well as the struggle to reach diagnosis and the impact of Covid 19.

Join us for this special 10 minute episode where we sit down with Dr Dan Chisholm, a mental health specialist at the WHO Regional Office for Europe and take a look at the global cost of neurological disorders and how it can be addressed. 

In our final episode we look ahead and ask what is now needed at International, European and national level. We'll be talking with Dr Tarun Dua, from the World Health Organisation Brain Health Unit and hearing some success stories from Iceland and Norway.  We'll be discussing the Global Action Plan and hear what's next for the OneNeurology Initiative and how people can get involved.  www.oneneurology.net/podcast 

How do we best care for people living with neurological disorders?  In this episode we discuss why prioritising neurology as a whole means truly putting the patient centre stage.    We're joined by a panel of guests from a cross section of the neurology community as well as hearing from someone living with migraine. http://www.oneneurology.net

In our fifth episode we move the lens beyond treatment and focus on research.  We discuss the challenges of the research in neuroscience and how we can make the case for the value of innovation in brain research?  We'll also look at the importance of prevention and ask is this a watershed moment for research?  We'll also hear directly a person living with EMEA as well as message on treatment from the neurology community. http://oneneurology.net/

Treatment is under the spotlight in this, our fourth episode.  We'll be talking about the solutions that exist and the value of bringing them to the people.  We'll also discuss the importance of taking a holistic approach and hearing about the importance of innovation. Plus we'll have messages from the some of the companies who are who are delivering innovative solutions and hear from a person living with Young Onset Parkinson's Disease  

This special episode is all about people living with neurological disorders.  We hear from 3 patient groups from a global, European and national perspective and discuss where the challenges faced are the same and where they differ.  As well as exploring how the OneNeurology  Initiative could help address these challenges.   We'll also hear directly from three people living with different disorders: dystonia, restless legs syndrome and peripheral neuropathy.For more information visit www.oneneurology.net

In this, our second episode we discuss why now is the time to act for neurology.  We'll be examining why neurology has soaring figures and asking has it been neglected historically?  Plus we'll be case studying stroke and finding out what neurology as a whole can learn from it. We'll also have messages from the neurology community and hear from a person living with Myasthenia Gravis. For more information visit www.oneneurology.net

In our first episode we explore what makes neurology one and discuss the commonalities between disorders as well as the common challenges.  We'll be hearing how these can be addressed with an integrated response, as well as how neurology should be positioned within broader discussions on brain health.  Plus we'll have messages from the neurology community and hear from a person living with MS. For more information visit www.oneneurology.net

Coming soon!The One Voice for Neurology podcast, is a series of 7 podcasts exploring why it's time to make neurology a priority, how that can be achieved with a global and uniform response and what that could mean for the future of neurology and those living with a neurological disorder.  This podcast is for anybody and everybody interested in making neurology one global priority.http://oneneurology.net/